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HEALTHWELL FOUNDATION: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization
HEALTHWELL FOUNDATION (EIN 20-0413676)
Tax period
2020-01-01 to 2020-12-31
Filed
2021-08-18
IRS object ID
202112309349301101
Schema version
2020v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-08-18T10:28:35-05:00ReturnTs
Tax Period End2020-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN111986323PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Marcum LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11899 L Street NW Suite 850AddressLine1Txt
CityWashingtonCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20036ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2020-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN200413676EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1HealthWell FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlHEALBusinessNameControlTxt
Phone2406325305PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line120440 Century Boulevard No 250AddressLine1Txt
CityGermantownCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20874ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonStephen M WeinerPersonNm
Person TitleBoard ChairPersonTitleTxt
Phone2406325305PhoneNum
Signature2021-08-18SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstStephenPersonFirstNm
Person LastWeinerPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonAaron M FoxPreparerPersonNm
PTINP01365820PTIN
Phone2022274000PhoneNum
Preparation2021-08-18PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer3TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2020TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerStephen M WeinerPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line120440 Century Boulevard No 250AddressLine1Txt
CityGermantownCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20874ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$569,851,271GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.healthwellfoundation.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2003FormationYr
Legal Domicile StateVALegalDomicileStateCd
Activity Or MissionHelp eligible patients with chronic or life-altering diseases afford their medical treatments.ActivityOrMissionDesc
Voting Members Governing Body7VotingMembersGoverningBodyCnt
Voting Members Independent7VotingMembersIndependentCnt
Total Employee167TotalEmployeeCnt
Total Volunteers0TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$481,424,153PYContributionsGrantsAmt
CY Contributions Grants$546,256,983CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$6,945,876PYInvestmentIncomeAmt
CY Investment Income$12,490,776CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$488,370,029PYTotalRevenueAmt
CY Total Revenue$558,747,759CYTotalRevenueAmt
PY Grants And Similar Paid$371,896,580PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$437,532,753CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$6,761,205PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$9,125,591CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$276,525PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$313,550CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$948,149CYTotalFundraisingExpenseAmt
PY Other Expenses$4,907,392PYOtherExpensesAmt
CY Other Expenses$5,186,651CYOtherExpensesAmt
PY Total Expenses$383,841,702PYTotalExpensesAmt
CY Total Expenses$452,158,545CYTotalExpensesAmt
PY Revenues Less Expenses$104,528,327PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$106,589,214CYRevenuesLessExpensesAmt
Total Assets BOY$473,159,995TotalAssetsBOYAmt
Total Assets EOY$604,913,332TotalAssetsEOYAmt
Total Liabilities BOY$17,449,349TotalLiabilitiesBOYAmt
Total Liabilities EOY$22,794,136TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$455,710,646NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$582,119,196NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionThe HealthWell Foundation (the Foundation) reduces financial barriers to care for underinsured patients with chronic or life-altering diseases. HealthWell's vision is to ensure that no patient - adult or child - goes without medical treatments because they cannot afford them.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$143,338,737ExpenseAmt
Grant$141,352,811GrantAmt
DescMultiple Myeloma - Medicare Access - Provided deductible, coinsurance, copayment and premium assistance to 26,020 eligible Medicare patients receiving treatment for Multiple Myeloma.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$42,252,983ExpenseAmt
Grant$41,892,526GrantAmt
DescMultiple Sclerosis - Medicare Access - Provided deductible, coinsurance, copayment and premium assistance to 11,018 eligible patients receiving treatment for Multiple Sclerosis.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$35,174,660ExpenseAmt
Grant$34,802,105GrantAmt
DescPulmonary Fibrosis - Provided deductible, coinsurance, copayment and premium assistance to 8,015 eligible patients being treated for Pulmonary Fibrosis.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (56 entries)

ExpenseExpenseAmtGrantGrantAmtDescDesc
$26,681,611$26,564,661Hepatitis C
$17,219,479$17,009,673Chronic Lymphocytic Leukemia
$16,965,893$15,976,012Post-Menopausal Osteoporosis - Medicare Access
$16,645,128$16,323,547Breast Cancer - Medicare Access
$16,457,834$15,501,218Hypercholesterolemia - Medicare Access
$16,038,019$15,702,283Acute Myeloid Leukemia
$15,837,092$15,646,153Tardive Dyskinesia - Medicare Access
$14,115,955$13,443,624Cystic Fibrosis Treatments
$8,734,699$8,463,046Secondary Hyperparathyroidism
$7,945,702$7,862,179Renal Cell Carcinoma - Medicare Access
$6,799,536$6,375,929Bone Metastases - Medicare Access
$5,572,856$5,363,903Systemic Lupus Erythematosus
$4,609,444$3,717,404Cystic Fibrosis Vitamins and Supplements
$3,661,554$3,553,444Non-Small Cell Lung Cancer - Medicare Access
$3,617,507$3,428,570Chemotherapy-Induced Neutropenia - Medicare Access
$3,468,547$3,420,856Mantle Cell Lymphoma
$3,314,352$3,267,882Melanoma - Medicare Access
$3,201,160$2,659,465COVID-19
$3,035,527$2,788,017Macular Degeneration (Wet and Dry)
$3,013,375$2,954,472Peyronie's Disease
$2,853,468$2,702,035Small Cell Lung Cancer - Medicare Access
$2,721,167$2,644,336Ovarian Cancer - Medicare Access
$2,546,755$2,475,193Amyotrophic Lateral Sclerosis
$2,467,142$2,282,202Colorectal Carcinoma - Medicare Access
$2,425,615$2,370,152Dupuytren's Disease
$2,042,648$1,965,943Urticaria
$1,989,581$1,877,159Gout - Medicare Access
$1,744,644$1,728,984Congenital Sucrase-Isomaltase Deficiency
$1,675,595$1,659,539Huntington's Disease - Medicare Access
$1,405,684$1,209,805Pediatric Assistance
$1,180,352$1,121,305Chronic Heart Failure - Medicare Access
$809,387$798,780Acromegaly
$729,091$714,503Giant Cell Arteritis or Temporal Arteritis - Medicare Access
$701,943$692,299Amyloidosis
$626,076$602,725Bladder and Urothelial Cancer - Medicare Access
$524,469$480,363Head and Neck Cancer - Medicare Access
$484,225$461,044Asthma
$462,039$454,949Prostate Cancer - Medicare Access
$316,231$293,134ANCA - Associated Vasculitis, Wegener's and Granulomatosis with Polyangiitis
$314,247$311,695Lambert-Eaton Myasthenic Syndrome
$311,841$306,931Movement Disorders - Medicare Access
$298,847$258,606Immunosuppressive Treatment for Solid Organ Transplant Recipients - Medicare Access
$285,740$282,470Chronic Myeloid Leukemia - Medicare Access
$230,629$220,460Migraine
$225,066$225,066Other
$205,127$200,873Sickle Cell Desease
$184,506$166,858Gastric Cancer - Medicare Access
$170,574$163,903Cytomegalovirus Disease - Prevention and Treatment
$168,547$161,186B-Cell Lymphoma - Medicare Access
$150,266$143,987Non Hodgkins Lymphoma - Medicare Access
$117,137$109,561Diabetic Foot Ulcers
$105,711$101,813Gliobalstoma Multiforme/Anaplastic Astrocytoma
$89,916$89,916Health Access
$77,374$72,160Nontuberculous Mycobacterium - Medicare Access
$75,492$51,265Cancer - Related Behavioral Health
$64,772$61,773Homocystinuria
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$227,717,174TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$219,485,311TotalOtherProgSrvcGrantAmt
Total Program Service Expenses$448,483,554TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt0IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtYes (1)ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To Organizations0GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded EntityYes (1)DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document61IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee167EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members7GoverningBodyVotingMembersCnt
Independent Voting Member7IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Krista ZodetBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone2406325305PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line120440 Century Blvd Ste 250AddressLine1Txt
CityGermantownCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20874ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeIndIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Alan Klein
Chief Development Officer40.00Yes (X)$320,676$0$26,689
Krista Zodet
President40.00Yes (X)$317,631$0$27,035
Shela Halper
Senior Director, External Relations40.00$202,003$0$30,604Yes (X)
Collin Alexander
Controller40.00$148,624$0$39,624Yes (X)
Fred Asiedu Larbi
Director of Operations40.00$165,853$0$14,356Yes (X)
Virginia Dunn Sen Associate
Dir., Communications & Marketing40.00$127,252$0$40,238Yes (X)
Robin A Hidalgo
Solutions Architect40.00$107,748$0$13,672Yes (X)
David L Knowlton
Vice Chair & Secretary1.00Yes (X)$36,912$0$0Yes (X)
Nancy Carteron MD FACR
Board Member1.00$15,094$0$0Yes (X)
Jerri Scarzella BSN
Vice Chair & Treasurer1.00Yes (X)$12,000$0$0Yes (X)
Suzanne M Miller PhD
Board Member1.00$12,000$0$0Yes (X)
Cathleen Bennett Esq
Board Member1.00$9,000$0$0Yes (X)
Stephen M Weiner
Board Chair2.00Yes (X)$0$0$0Yes (X)
Don Liss MD
Board Member1.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,474,793TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$192,218TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K7IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
Vonage Business
7900 West Park Drive Suite A-315McLeanVA22102Telephony services$545,704
AB Data Group
600 A B Data DriveMilwaukeeWI53217Direct mail services$216,952
Experian Health Inc
720 Cool Springs Boulevard Suite 2FranklinTN37067Verification services$213,717
Baker Donelson
901 K Street NWWashingtonDC20001Legal services$204,171
Salesforce
50 Fremont Suite 300San FranciscoCA94105Grant management system$174,778
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K7CntrctRcvdGreaterThan100KCnt
All Other Contributions$546,256,983AllOtherContributionsAmt
Total Contributions$546,256,983TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$7,417,028TotalRevenueColumnAmt
Exclusion$7,417,028ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$16,177,260SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$11,103,512SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$5,073,748SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,073,748TotalRevenueColumnAmt
Exclusion$5,073,748ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$558,747,759TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$12,490,776ExclusionAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$437,532,753TotalAmt
Program Services$437,532,753ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,189,853TotalAmt
Program Services$343,603ProgramServicesAmt
Management And General$555,842ManagementAndGeneralAmt
Fundraising$290,408FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$6,078,886TotalAmt
Program Services$5,330,144ProgramServicesAmt
Management And General$611,629ManagementAndGeneralAmt
Fundraising$137,113FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$191,475TotalAmt
Program Services$158,218ProgramServicesAmt
Management And General$26,961ManagementAndGeneralAmt
Fundraising$6,296FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$1,104,226TotalAmt
Program Services$904,424ProgramServicesAmt
Management And General$172,282ManagementAndGeneralAmt
Fundraising$27,520FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$561,151TotalAmt
Program Services$465,213ProgramServicesAmt
Management And General$69,223ManagementAndGeneralAmt
Fundraising$26,715FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$1,332,536TotalAmt
Program Services$1,124,721ProgramServicesAmt
Management And General$183,594ManagementAndGeneralAmt
Fundraising$24,221FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$225,007TotalAmt
Program Services$20,282ProgramServicesAmt
Management And General$204,725ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$78,692TotalAmt
Management And General$78,692ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$313,550TotalAmt
Fundraising$313,550FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$222,242TotalAmt
Management And General$222,242ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,334,868TotalAmt
Program Services$1,114,368ProgramServicesAmt
Management And General$199,755ManagementAndGeneralAmt
Fundraising$20,745FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$373,513TotalAmt
Program Services$251,068ProgramServicesAmt
Management And General$99,385ManagementAndGeneralAmt
Fundraising$23,060FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$923,224TotalAmt
Program Services$856,690ProgramServicesAmt
Management And General$66,534ManagementAndGeneralAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$429,198TotalAmt
Program Services$312,011ProgramServicesAmt
Management And General$85,720ManagementAndGeneralAmt
Fundraising$31,467FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$8,988TotalAmt
Management And General$5,341ManagementAndGeneralAmt
Fundraising$3,647FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$27,342TotalAmt
Management And General$18,047ManagementAndGeneralAmt
Fundraising$9,295FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$102,363TotalAmt
Program Services$65,140ProgramServicesAmt
Management And General$27,228ManagementAndGeneralAmt
Fundraising$9,995FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$25,269TotalAmt
Management And General$25,269ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescMemberships/subs.Desc
Total$103,409TotalAmt
Program Services$4,919ProgramServicesAmt
Management And General$74,373ManagementAndGeneralAmt
Fundraising$24,117FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$452,158,545TotalAmt
Program Services$448,483,554ProgramServicesAmt
Management And General$2,726,842ManagementAndGeneralAmt
Fundraising$948,149FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$8,982,839BOYAmt
EOY$69,909,065EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$112,876,487BOYAmt
EOY$73,009,100EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$43,125,000BOYAmt
EOY$70,378,438EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$83,324BOYAmt
EOY$410,493EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$2,118,082LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$1,629,245LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$387,000BOYAmt
EOY$488,837EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$307,663,141BOYAmt
EOY$390,675,195EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$42,204BOYAmt
EOY$42,204EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$473,159,995BOYAmt
EOY$604,913,332EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$11,167,013BOYAmt
EOY$15,320,049EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$1,198,512EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$6,282,336BOYAmt
EOY$6,275,575EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$17,449,349BOYAmt
EOY$22,794,136EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$25,094,347BOYAmt
EOY$52,046,936EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$430,616,299BOYAmt
EOY$530,072,260EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$455,710,646BOYAmt
EOY$582,119,196EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$473,159,995BOYAmt
EOY$604,913,332EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$106,589,214ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$19,819,336NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consolidated Basis Fincl StmtYes (X)ConsolidatedBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$139,091,107CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$350,046,179CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$427,570,435CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$481,424,153CurrentTaxYearMinus1YearAmt
Current Tax Year$546,256,983CurrentTaxYearAmt
Total$1,944,388,857TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$139,091,107CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$350,046,179CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$427,570,435CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$481,424,153CurrentTaxYearMinus1YearAmt
Current Tax Year$546,256,983CurrentTaxYearAmt
Total$1,944,388,857TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$1,383,541,771SubstantialContributorsTotAmt
Public Support Total170$560,847,086PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,866,191CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,017,353CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$7,058,197CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,173,067CurrentTaxYearMinus1YearAmt
Current Tax Year$7,417,028CurrentTaxYearAmt
Total$26,531,836TotalAmt
FieldValueIRS element (for citing)
Total Support$1,970,920,693TotalSupportAmt
Public Support CY1700.28460PublicSupportCY170Pct
Public Support PY1700.26990PublicSupportPY170Pct
Ten Pct Facts Crcmstncs Test CYYes (X)TenPctFactsCrcmstncsTestCYInd
Facts And Circumstances TestThe HealthWell Foundation (the "Foundation") offers the following facts and circumstances in support of its ongoing classification as a public charity and not a private foundation.General Background - The Foundation provides need-based financial assistance to underinsured individuals living with chronic and/or life-altering illnesses such as multiple sclerosis, cystic fibrosis, multiple myeloma and many other types of cancer. Through 2020, the Foundation has helped 617,948 patients afford their prescription drug copayments, premiums and other out-of-pocket health care costs.The Foundation grants funds to patients who have private or government-sponsored insurance but who are still unable to afford their insurance copayments or premiums to obtain coverage for their conditions. The Foundation awards grants based on the objective consideration of financial and medical criteria and the adequacy of the recipient's insurance coverage. Grants are awarded to recipients for a 12 month cycle. The Foundation does not place restrictions on the medications within each disease fund its grant recipients use. The decision as to which medications are prescribed is a medical judgment. Further, the Foundation does not limit the providers or pharmacies its grant recipients may use to obtain their medications.Public Support Percentage - The Foundation's cumulative public support percentage through December 31, 2020 is 28.46%, which is above the minimum amount at which facts and circumstances will be considered by the Service in determining the Foundation's ongoing qualification as a publicly supported charity. The Foundation's public support percentage has generally maintained an upward trajectory since 2004, with a small fluctuation down in 2018; the facts and circumstances relating to the Foundation's structure and operations present an exceptionally strong case in support of its ongoing classification as a public charity and not as a private foundation. These facts and circumstances, which are discussed in more detail later, include the following:1. The Foundation is not controlled by its contributors and has no endowment fund, characteristics which distinguish it from virtually all private foundations.2. The Foundation's board represents many diverse aspects of the health care community, demonstrating the Foundation's commitment to the broad public benefit and the Foundation's commitment to operate an outstanding organization that will attract future public support.3. The Foundation's activities broadly benefit the general public as well as other charitable organizations that are attempting to help patients cope with a variety of illnesses and conditions.Facts and Circumstances Supporting Qualification as a Publicly Supported Organization1. Attraction of public support. The Foundation's policy is to accept contributions from donors and to disburse the contributions in the form of grants as soon as practicable. The Foundation does not have an endowment fund, and its ability to fulfill its future mission is entirely dependent on its ability to attract future support from donors on a continuous basis. None of the Foundation's historical substantial contributors have pledged or otherwise committed to continue to support the Foundation in future years. Therefore, the Foundation must continually seek new donors to sustain its funds, and it has done so. Specifically:- The Foundation employs 118 persons who, in addition to their primary tasks, may also work on fundraising projects as needed.- The Foundation's corporate cumulative donor base has increased each year from one corporate donor in 2004 to 54 corporate donors.- The Foundation's Chief Development Officer works with the President and board to identify and pursue new corporate fundraising opportunities.- The Foundation's Senior Director of External Relations works to identify and secure partners and sponsors for the Foundation's broad-based initiatives, including its Pediatric Assistance and Cancer-Related Behavioral Health Funds.- The Foundation's Senior Director of External Relations also engages disease-aligned non-profits to promote the Foundation program and specific disease area funds to their networks.- The Foundation regularly solicits support from private individuals, which has resulted in donations from more than 44,200 individual donors. 2. Representative governing body. The Foundation's board consists entirely of nationally-recognized health care experts with deep experience in the fields of health care administration, clinical practice and research, direct patient care, patient advocacy and health law. The composition of the board exemplifies the Foundation's commitment to represent the broad interests of the general public and to operate in a manner that will attract attention - and support - from a broad range of potential donors.Given their diverse expertise, the Foundation's board members bring forward a variety of important issues to encourage discussion about how the Foundation's programs and services will directly impact the general public. Their wide-ranging opinions help to expand the Foundation's viewpoint and result in an organization that can respond successfully to important changes in the health care environment.Significantly, none of the Foundation's board members are affiliated with any contributor to the Foundation and it is the Foundation's strict policy that there not be such affiliations. Moreover, no contributor has the power to appoint directors to the Foundation's board. In this regard, the Foundation differs markedly from a private foundation, where the governing body is typically composed of substantial contributors and/or members chosen by substantial contributors. 3. Availability of public facilities or services; public participation in programs or policies. The Foundation puts forth significant efforts to make the availability of its programs and services known to the general public through avenues such as its website (www.HealthWellFoundation.org), where patients, providers, pharmacies and advocates can obtain information on the Foundation's program, apply online and, through interactive portals, manage a patient's portfolio of grants (providers and pharmacies) or monitor their own grant (patients). These avenues are updated continuously and monitored closely throughout the year. The Foundation engages in a wide range of promotional outreach activities, including media relations and blog activities (www.RealWorldHealthCare.org) in addition to targeted social media campaigns to educate the public, providers, pharmacies and other health-related organizations about its work. News about the Foundation's programs regularly appears in local and national publications, including medical journals, newspapers, magazines, blogs and health care websites. Typically, representatives of the Foundation regularly attend national and local conferences including those of such entities as CBI Patient Assistance Program, The Liver Meeting, American Society of Clinical Oncology, North American Cystic Fibrosis Conference, Asembia Specialty Pharmacy Summit, and American Society of Hematology. COVID-19 and travel restrictions prevented representatives from participating in live events in 2020. In order to continue to share information about our programs and services, Foundation representatives engaged in a number of virtual events including virtual exhibits and panel participation in order to contribute to timely discussions on industry-related issues. Virtual events included CBI PAP Patient Assistance and Access, National Association of Specialty Pharmacy, Lymphoma Research Foundation's North American Education Forum on Lymphoma, and The Liver Meeting.Additionally, when the Foundation establishes a new fund with respect to a particular disease or condition, the Foundation:- Identifies key national patient support and health care organizations that are able to reach out to patients in the new fund area.- Identifies appropriate contacts in each organization that focus on patient advocacy and/or reimbursement issues. - Invites these organizations to educate patients, providers, advocates and their broader networks about the Foundation's programs by posting a link to www.HealthWellFoundation.org on their websites, promoting via social media and/or including information about the Foundation's services in their marketing and educational materials as well as their webinars and conferences. - Issues a press release to announce a new fund to the media, patient advocacy groups and the broader health care community.- Reaches out to prospective donors to solicit additional support for the disease area.- Promotes the new fund in its newsletter, "The Pulse," which reaches approximately 48,000 individuals several times a year, and through social media.FactsAndCircumstancesTestTxt

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferencePart II, Section C, line 17a, Facts and Circumstances Test:FormAndLineReferenceDesc
ExplanationFurthermore, the Foundation is referenced by, or is linked to, the websites of a number of organizations that direct patients for copayment and premium assistance. Such organizations include Partnership for Prescription Assistance, American Cancer Society, CMS, ALS Foundation, International Myeloma Foundation, National MS Society, Community Liver Alliance, Lupus Foundation of America, CancerCare, American Porphyria Foundation and NeedyMeds, among others. Conclusion In summary, the HealthWell Foundation has the characteristics of a "publicly supported organization, based on the facts and circumstances test described in section 1.170a-9(e)(3) of the treasury regulations. Specifically, a small number of donors do not control HealthWell; rather HealthWell is a growing institution that bears many of the indicia of a "publicly supported organization, including public support from a wide cross-section of donors with a representative governing body. Moreover, HealthWell is continuing to seek new sources of support from the general public as well as other organizations. Accordingly, the Foundation qualifies as a "publicly supported organization described in section 170(b)(1)(a)(vi).ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$121,560OtherCostOrOtherBasisAmt
Depreciation$27,627DepreciationAmt
Book Value$93,933BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$217,893OtherCostOrOtherBasisAmt
Depreciation$163,653DepreciationAmt
Book Value$54,240BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,778,629OtherCostOrOtherBasisAmt
Depreciation$1,437,965DepreciationAmt
Book Value$340,664BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$488,837TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
Copayments and premium assistance payable$6,082,699
Deferred rent$192,876
FieldValueIRS element (for citing)
Total Liability$6,275,575TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$578,344,853TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$19,819,336NetUnrealizedGainsInvstAmt
Revenue Not Reported$19,819,336RevenueNotReportedAmt
Revenue Subtotal$558,525,517RevenueSubtotalAmt
Investment Expenses Not Incld$222,242InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$222,242RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$558,747,759TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$451,936,303TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$451,936,303ExpensesSubtotalAmt
Investment Expenses Not Incld2$222,242InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$222,242ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$452,158,545TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X, Line 2:FormAndLineReferenceDesc
ExplanationThe Foundation evaluated its uncertainty in income taxes for the year ended December 31, 2020, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Agrmt Prof Fundraising ActyYes (1)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1AB Data GroupBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1600 A B Data DriveAddressLine1Txt
CityMilwaukeeCityNm
State AbbreviationWIStateAbbreviationCd
ZIP53217ZIPCd
FieldValueIRS element (for citing)
ActivityDirect Mail CampaignActivityTxt
Fundraiser Control Of Funds0FundraiserControlOfFundsInd
Gross Receipts$1,128,774GrossReceiptsAmt
Retained By Contractor$216,952RetainedByContractorAmt
Net To Organization$911,822NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$1,128,774TotalGrossReceiptsAmt
Total Retained By Contractors$216,952TotalRetainedByContractorsAmt
Total Net To Organization$911,822TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesAZLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDELicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesIDLicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesINLicensedStatesCd
Licensed StatesIALicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesMTLicensedStatesCd
Licensed StatesNELicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesSDLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd
Licensed StatesWYLicensedStatesCd
Licensed StatesDCLicensedStatesCd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule G, Part I, Line 2b, Column (v)FormAndLineReferenceDesc
ExplanationThe Foundation paid in total $216,952 to A.B. Data Group of which, $26,972 was for expense reimbursements.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (59 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
Multiple Myeloma Medicare Access26020$141,352,811
Multiple Sclerosis Medicare Access11018$41,892,526
Pulmonary Fibrosis8015$34,802,105
Hepatitis C4836$26,564,661
Chronic Lymphocytic Leukemia4182$17,009,673
Post-Menopausal Osteoporosis Medicare Access35016$15,976,012
Breast Cancer Medicare Access3913$16,323,547
Hypercholesterolemia - Medicare Access19759$15,501,218
Acute Myeloid Leukemia4711$15,702,283
Tardive Dyskinesia Medicare Access3892$15,646,153
Cystic Fibrosis Treatments7665$13,443,624
Secondary Hyperparathyroidism5901$8,463,046
Renal Cell Carcinoma Medicare Access1989$7,862,179
Bone Metastases Medicare Access4614$6,375,929
Systemic Lupus Erythematosus1944$5,363,903
Cystic Fibrosis Vitamins and Supplements7053$3,717,404
Non-Small Cell Lung Cancer Medicare Access1078$3,553,444
Chemotherapy-Induced Neutropenia Medicare Access1952$3,428,570
Mantle Cell Lymphoma800$3,420,856
Melanoma Medicare Access594$3,267,882
COVID-195104$2,659,465
Macular Degeneration (Wet and Dry)2125$2,788,017
Peyronie's Disease1208$2,954,472
Small Cell Lung Cancer Medicare Access1103$2,702,035
Ovarian Cancer Medicare Access1305$2,644,336
Amyotrophic Lateral Sclerosis756$2,475,193
Colorectal Carcinoma Medicare Access1056$2,282,202
Dupuytren's Disease1648$2,370,152
Urticaria1012$1,965,943
Gout Medicare Access1157$1,877,159
Congenital Sucrase-Isomaltase Deficiency443$1,728,984
Huntington's Disease Medicare Access426$1,659,539
Pediatric Assistance806$1,209,805
Chronic Heart Failure Medicare Access1075$1,121,305
Acromegaly185$798,780
Giant Cell Arteritis or Temporal Arteritis - Medical Access287$714,503
Amyloidosis177$692,299
Bladder and Urothelial Cancer Medicare Access269$602,725
Head and Neck Cancer Medicare Access245$480,363
Asthma375$461,044
Prostate Cancer Medicare Access473$454,949
ANCA Associated Vasculitis, Wegener's and Granulomatosis with Polyangiitis128$293,134
Lambert-Eaton Myasthenic Syndrome51$311,695
Movement Disorders Medicare Access76$306,931
Immunosuppressive Treatment for Solid Organ Transplant Recipients Medicare Access414$258,606
Chronic Myeloid Leukemia Medicare Access61$282,470
Migraine162$220,460
Other242$225,066
Sickle Cell Desease71$200,873
Gastric Cancer Medicare Access92$166,858
Cytomegalovirus Disease Prevention and Treatment176$163,903
B-Cell Lymphoma Medicare Access59$161,186
Non Hodgkins Lymphoma- Medicare Access51$143,987
Diabetic Foot Ulcers210$109,561
Gliobalstoma Multiforme/Anaplastic Astrocytoma85$101,813
Health Access18$89,916
Nontuberculous Mycobacterium Medicare Access88$72,160
Cancer Related Behavioral Health75$51,265
Homocystinuria40$61,773

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2:FormAndLineReferenceDesc
ExplanationEach patient seeking assistance is screened for eligibility either by a specialist through the Foundation Hotline or through the Foundation's online application tool. Criteria are static across all of the Foundation funds: depending on the particular fund from which the grant issues, the patient's household income may be up to 500% of the Federal Poverty Level, adjusted for household size and high cost of living areas; the patient must have a diagnosis that the Foundation currently supports; the patient must have insurance coverage for the treatment for which they are seeking assistance; that treatment must be an eligible treatment under the HealthWell fund; and the treatment must be dispensed in the United States. In addition, during the approval process, a soft credit check is run on the applicant to determine that they meet the income requirements for the Program. If the soft credit check does not return a satisfactory result, the patient is required to submit a full income document review in order to receive assistance through the Program. Otherwise, patients are approved if all criteria are met during screening. Patients receive a pharmacy card to use at the local retail pharmacy, through mail order pharmacy, or through specialty pharmacy. The pharmacy card cannot be used for primary payment and provides electronic point of sale reimbursement for the pharmacy. In cases where the pharmacy card cannot be used, the Foundation requires the submission of a completed Reimbursement Request Form along with additional information as outlined on the form. Upon receipt, the request is reviewed: a Foundation payment specialist enters the received information into the system and the system validates the date of service, an insurer paid first, the product is an eligible treatment under the HealthWell fund, and the patient has an active, fully approved grant. Only if all systematic checks pass, the payment specialist processes the payment.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Alan Klein
Chief Development Officer$238,276$0$82,400$0$0$0$17,100$0$9,589$0$347,365$0$0$0
Krista Zodet
President$266,847$0$50,784$0$0$0$15,107$0$11,928$0$344,666$0$0$0
Shela Halper
Senior Director, External Relations$186,703$0$15,300$0$0$0$12,372$0$18,232$0$232,607$0$0$0
Collin Alexander
Controller$130,624$0$18,000$0$0$0$8,733$0$30,891$0$188,248$0$0$0
Fred Asiedu Larbi
Director of Operations$147,853$0$18,000$0$0$0$9,951$0$4,405$0$180,209$0$0$0
Virginia Dunn Sen Associate
Dir., Communications & Marketing$116,032$0$11,220$0$0$0$7,794$0$32,444$0$167,490$0$0$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part I, Line 7All bonus payments received by Officers, Key employees and Highest compensated employees listed in Form 990, Part VII are based on an appraisal of his/her performance.
Form 990, Part VII, Line 5:The Board Chair of the Foundation, Stephen Weiner, is also a partner at Mintz, Levin, Cohn, Ferris, Glovsky, and Popeo, PC, an unrelated organization. For the year ended December 31, 2020, the Foundation paid a total of $28,921 to the unrelated organization for the time incurred by Mr. Weiner. Dr. Jeffrey Peppercorn serves as the Scientific and Ethics Advisor to the HealthWell Foundation Board of Directors. In this capacity, Dr. Peppercorn, along with the other Board physicians, defines the disease state funds HealthWell supports and provides guidance to staff, as needed, related to disease fund parameters, inclusions, and management. In addition, Dr. Peppercorn, in collaboration with Dr. Suzanne Miller, oversees HealthWell-funded research grants including design, selection, and oversight. This advisory position is non-voting.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, line 11bUpon completion of the internal reviews, the Foundation's Finance Department provides each Board Member a copy for review prior to filing with the Internal Revenue Service. Once the Board has reviewed and approved the filing, the Board Chair authorizes the federal Form 990 to be e-filed.
Form 990, Part VI, Section B, line 12cThe Foundation's President and the Board Compliance Officer work together to ensure adherence to the Foundation's Compliance Program. Included in this Compliance Program are the following elements: staff and Board of Directors are required to follow a Code of Conduct; staff must sign a Confidentiality and Conflict of Interest Agreement upon hire; members of the Board of Directors and senior staff must sign a Conflict of Interest Disclosure annually (Board members that are deemed to have a conflict of interest based on this disclosure are recused from participating in a vote within that area of conflict); and senior staff and Board also attest to understanding and adhering to the policies and practices of the HealthWell Foundation. The senior staff and Board cannot refer patients to apply for assistance from the Foundation, or recommend a particular provider, supplier, or product for an applicant or patient, or disclose the identity any Program donor.
Form 990, Part VI, Section B, line 15HealthWell conducted a compensation review in 2018 (the last prior one was undertaken in 2016). HealthWell engaged an independent consultant, Marcum LLP, to conduct a compensation analysis for all positions at HealthWell based on updated job descriptions. The Board Chair, Treasurer, a Board Director and the President reviewed and approved all compensation for the Foundation staff other than the President. Independently the Board Chair, Treasurer and a Board Director reviewed/approved the President's job description and compensation.
Form 990, Part VI, Section C, line 19The Foundation's governing documents, conflict of interest policy, financial statements and the federal Form 990 are available to the public upon request. The federal Form 990, the Foundation's financials, and annual report are also available at www.healthwellfoundation.org.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1HWF Direct LLCBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line15280 Corporate Drive Suite 210BAddressLine1Txt
CityFrederickCityNm
State AbbreviationMDStateAbbreviationCd
ZIP21073ZIPCd
FieldValueIRS element (for citing)
EIN832192839EIN
Primary ActivitiesContact CenterPrimaryActivitiesTxt
Legal Domicile StateVALegalDomicileStateCd
Total Income$5,790,975TotalIncomeAmt
End Of Year Assets$10,291,399EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

FieldValueIRS element (for citing)
Business Name Line1HealthWell FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org0GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth OrgYes (1)LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth OrgYes (1)PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other OrgYes (1)ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxtInvolvedInvolvedAmt
HealthWell Foundation
E$4,500,000
HealthWell Foundation
L$5,790,975
HealthWell Foundation
P$1,165,061