LUPUS RESEARCH ALLIANCE INC: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization: LUPUS RESEARCH ALLIANCE INC (EIN 58-2492929)
Tax period: 2020-01-01 to 2020-12-31
Filed: 2021-09-23
IRS object ID: 202112669349301036
Schema version: 2020v4.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2021-09-23T14:50:39-05:00	ReturnTs
Tax Period End	2020-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	131655065	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	LUTZ AND CARR CPAS LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	551 FIFTH AVENUE SUITE 400	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10176	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2020-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	582492929	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS RESEARCH ALLIANCE INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	LUPU	BusinessNameControlTxt
Phone	2122182840	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA ROSE	PersonNm
Person Title	CHIEF FIN. AND ADMIN. OFFICER	PersonTitleTxt
Phone	2122182840	PhoneNum
Signature	2021-09-21	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	DEBRA	PersonFirstNm
Person Last	ROSE	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LAUREN CRESCI	PreparerPersonNm
PTIN	P01268493	PTIN
Phone	2126972299	PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2020	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	KENNETH M FARBER	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$53,112,899	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUPUSRESEARCH.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1999	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	TO SUPPORT RESEARCH TO PREVENT, TREAT AND CURE LUPUS.	ActivityOrMissionDesc
Voting Members Governing Body	24	VotingMembersGoverningBodyCnt
Voting Members Independent	24	VotingMembersIndependentCnt
Total Employee	49	TotalEmployeeCnt
Total Volunteers	500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$17,673,622	PYContributionsGrantsAmt
CY Contributions Grants	$41,539,746	CYContributionsGrantsAmt
PY Program Service Revenue	$1,236,449	PYProgramServiceRevenueAmt
CY Program Service Revenue	$1,291,193	CYProgramServiceRevenueAmt
PY Investment Income	$2,148,621	PYInvestmentIncomeAmt
CY Investment Income	$1,938,994	CYInvestmentIncomeAmt
PY Other Revenue	$0	PYOtherRevenueAmt
CY Other Revenue	$20,119	CYOtherRevenueAmt
PY Total Revenue	$21,058,692	PYTotalRevenueAmt
CY Total Revenue	$44,790,052	CYTotalRevenueAmt
PY Grants And Similar Paid	$15,505,548	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$23,030,250	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$5,172,935	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$5,962,910	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$49,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$49,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$2,838,968	CYTotalFundraisingExpenseAmt
PY Other Expenses	$6,083,559	PYOtherExpensesAmt
CY Other Expenses	$5,224,653	CYOtherExpensesAmt
PY Total Expenses	$26,811,042	PYTotalExpensesAmt
CY Total Expenses	$34,266,813	CYTotalExpensesAmt
PY Revenues Less Expenses	-$5,752,350	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$10,523,239	CYRevenuesLessExpensesAmt
Total Assets BOY	$71,431,718	TotalAssetsBOYAmt
Total Assets EOY	$103,408,141	TotalAssetsEOYAmt
Total Liabilities BOY	$26,661,517	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$41,851,086	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$44,770,201	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$61,557,055	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE LUPUS RESEARCH ALLIANCE LEADS THE WORLD IN TRANSFORMING THE LIVES OF PEOPLE AFFECTED WITH LUPUS BY USING THE POWER OF SCIENCE TO DRIVE NEW TREATMENTS, PREVENT DISEASE PROGRESSION, AND FIND A CURE.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$15,417,842	ExpenseAmt
Grant	$14,398,193	GrantAmt
Desc	RESEARCH:THE LUPUS RESEARCH ALLIANCE (LRA) IS THE LARGEST NON-GOVERNMENTAL, NON-PROFIT FUNDER OF LUPUS RESEARCH WORLDWIDE. THE ORGANIZATION AIMS TO TRANSFORM TREATMENT BY FUNDING THE MOST INNOVATIVE LUPUS RESEARCH, FOSTERING DIVERSE SCIENTIFIC TALENT, AND DRIVING DISCOVERY TOWARD BETTER DIAGNOSTICS AND IMPROVED TREATMENTS. LRA-FUNDED RESEARCH IS LEADING TO KEY DISCOVERIES THAT ARE IMPROVING DIAGNOSIS AND THERAPIES WHILE ADVANCING TOWARD PREVENTION AND ULTIMATELY A CURE. THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS (BOD) AND SCIENTIFIC ADVISORY BOARD INCLUDE TOP SCIENTIFIC EXPERTS, AND KEY LAY MEMBERS OF THE BOARD, WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA. SINCE ITS INCEPTION, THE LRA HAS COMMITTED OVER $218 MILLION TO FUND LUPUS RESEARCH PROJECTS. IN 2020 ALONE, OVER $14 MILLION WAS AWARDED IN GRANTS FOR HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS AND THUS LEAD TO A CURE: 1) A NEW INVESTIGATOR INITIATED CLINICAL TRIAL AWARD WAS MADE IN 2020 FOR $1.6MILLION OVER THREE YEARS TO STUDY THE EFFECTS OF THE COVID-19 VACCINES ON LUPUS PATIENTS. AN ADDITIONAL $1.4 MILLION WAS FUNDED BY LUPUS THERAPEUTICS TO THE LUPUS CLINICAL INVESTIGATORS NETWORK PARTICIPATING IN THIS STUDY;2) 5 LUPUS MECHANISMS AND TARGETS AWARD GRANTS (FORMERLY KNOWN AS TARGET IDENTIFICATION IN LUPUS) WERE MADE FOR A TOTAL OF NEARLY $3 MILLION OVER THREE YEARS FOCUSING OF UNDERSTANDING DISEASE MECHANISMS AND IDENTIFYING NEW DRUG TARGETS; 3) 7 LUPUS INNOVATION AWARD GRANTS (FORMERLY KNOWN AS NOVEL RESEARCH PROGRAM) WERE AWARDED FOR A TOTAL OF $2.1 MILLION OVER TWO YEAR FOCUSING ON EARLY-STAGE FUNDAMENTAL RESEARCH INTO DISEASE MECHANISMS; 4) 2 DISTINGUISHED INNOVATOR AWARD GRANTS FOCUS ON UNCOVERING THE UNDERLYING CAUSES OF LUPUS WERE FUNDED FOR A TOTAL OF $2 MILLION OVER TWO YEARS;5) 6 COMMON MECHANISMS GRANTS WERE AWARDED JOINTLY WITH JDRF FOR OVER $1.2 MILLION FOR ONE- AND TWO-YEAR GRANTS;6) 10 ACCELERATOR AWARDS WERE FUNDED FOR A TOTAL OF NEARLY $3 MILLION WITH SUPPORT FROM CELGENE (NOW BRISTOL MYERS SQUIBB). 7) THE LUPUS INSIGHT PRIZE WAS AWARDED FOR $100,000. THIS AWARD RECOGNIZES A LEADING RESEARCHER WHO HAS MADE A MAJOR CONTRIBUTION TO THE FIELD.THE LUPUS RESEARCH ALLIANCE'S UNIQUE FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS IN THE NEAR FUTURE. THROUGH A COMPETITIVE PEER-REVIEW PROCESS PROJECTS BY THE LUPUS RESEARCH ALLIANCE AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE. BECAUSE THE LUPUS RESEARCH ALLIANCE BOARD OF DIRECTORS FUNDS THE ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE LUPUS RESEARCH ALLIANCE'S LUPUS RESEARCH PROGRAMS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$12,839,966	ExpenseAmt
Grant	$8,612,243	GrantAmt
Revenue	$1,291,193	RevenueAmt
Desc	SCIENTIFIC PROGRAMS:2020 WAS A YEAR OF CONSIDERABLE ACTIVITY WITHIN LUPUS RESEARCH ALLIANCE'S (LRA) SCIENTIFIC PROGRAM EVEN WITH THE PANDEMIC. THE IMPLEMENTATION OF LRA'S SCIENTIFIC STRATEGIC PLAN FOCUSING ON HETEROGENEITY CONTINUED WITH MUCH WORK DONE ON CREATING A LUPUS BIO-REPOSITORY AND REGISTRY. IN 2020, THE LUPUS RESEARCH ALLIANCE DEVELOPED A BUSINESS PLAN FOR LUPUS NEXUS, A PATIENT REGISTRY AND BIOREPOSITORY, TO PROVIDE A GAME-CHANGING CONTRIBUTION TO LUPUS PATIENT-CENTERED RESEARCH. THE DEVELOPMENT OF LUPUS NEXUS WILL CAPITALIZE ON CURRENT STRATEGIC OPPORTUNITIES IN THE LUPUS FIELD BY ENABLING A COLLABORATIVE, DATA-DRIVEN PLATFORM FOR THE RESEARCH COMMUNITY. THE LUPUS NEXUS WILL CATALYZE GLOBAL COLLABORATIONS, RESEARCH INNOVATION AND PRECISION MEDICINE APPROACHES TO ACCELERATE LUPUS DRUG DISCOVERY AND IMPROVE THE QUALITY OF LIFE OF LUPUS PATIENTS BY PROVIDING ACCESS TO PATIENTS' SAMPLES AND DATA TO DELIVER NEW TREATMENTS, PREVENT DISEASE PROGRESSION, AND CURE LUPUS.THE LUPUS RESEARCH ALLIANCE ENCOURAGES CROSS-SECTOR AND CROSS-DISCIPLINE PARTNERSHIPS TO FOSTER THE MOST INNOVATIVE AND PRODUCTIVE RESEARCH ENVIRONMENT. IN 2020, VIRTUAL COLLABORATIVE MEETINGS WERE HELD BY THE LUPUS RESEARCH ALLIANCE WHERE RESEARCHERS WERE ENCOURAGED TO EXCHANGE IDEAS AND HELP THE LUPUS RESEARCH ALLIANCE TARGET NEW RESEARCH OPPORTUNITIES. THIS INCLUDED THE: ANNUAL FORUM FOR DISCOVERY WHERE FUNDED SCIENTISTS AND GUESTS SHARE THEIR PROGRESS; RESEARCH COMMITTEE MEETINGS WHERE MEMBERS OF OUR BOARD OF DIRECTORS AS WELL AS TOP-LEVEL RESEARCHERS DISCUSSED OUR PORTFOLIO AND UPCOMING STRATEGIC STEPS; SCIENTIFIC ADVISORY BOARD MEETINGS WHERE OUR ADVISORS REVIEW GRANT APPLICATION SUBMISSIONS AND DISCUSS FUTURE OVERALL RESEARCH STRATEGY FOR THE ORGANIZATION; LUPUS INDUSTRY COUNCIL MEETINGS WHERE INDUSTRY FOCUSES ON SOLVING SHARED OBSTACLES TO CLINICAL TRIALS; CLINICAL TRIALS AWARENESS FAIRS THAT ENGAGE THE LUPUS COMMUNITY IN UNDERSTANDING, PARTICIPATING IN AND ADVOCATING FOR LUPUS CLINICAL TRIALS; AND LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN) MEETINGS WHERE TOP RESEARCHERS DISCUSS THE DESIGN AND PROGRESS FOR LUPUS CLINICAL TRIALS. THE LUPUS RESEARCH ALLIANCE FOUNDED LUPUS THERAPEUTICS, LLC AS AN AFFILIATE OF THE LRA IN 2018 TO RUN LUCIN TO ADVANCE CLINICAL TRIALS AND FACILITATE THE DEVELOPMENT OF MUCH NEEDED NEW LUPUS TREATMENTS. THE LUPUS RESEARCH ALLIANCE COMMITTED OVER $8.6 MILLION IN 2-YEAR GRANTS IN 2020 TO TOP ACADEMIC CENTERS TO FOSTER CLINICAL TRIAL PARTICIPATION IN LUCIN. LUPUS THERAPEUTICS (LT) CONTINUES TO HAVE A DIVERSE PORTFOLIO OF ONGOING CLINICAL TRIALS WITHIN LUCIN AND IN 2020, THERE WERE FIFTEEN ACTIVE STUDIES MANAGED VIA LUPUS THERAPEUTICS IN CONJUNCTION WITH THE LUCIN NETWORK WITH AN EMPHASIS ON NEW TREATMENTS FOR LUPUS IN PHASE II AND III CLINICAL STUDIES. MOREOVER, LT HAS A HEALTHY PIPELINE OF NEW BUSINESS DEVELOPMENT DISCUSSIONS WITH INDUSTRY RELATED TO PERFORMING ADVISORY SERVICES AND/OR CONDUCTING PROSPECTIVE CLINICAL TRIALS WITHIN THE NETWORK AND COMPLETED 7 CONSULTATIVE ENGAGEMENTS WITH PHARMA IN 2020.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$743,966	ExpenseAmt
Grant	$19,814	GrantAmt
Desc	PUBLIC POLICY:THE MAIN GOALS OF THE LUPUS RESEARCH ALLIANCE PUBLIC POLICY PROGRAM ARE TO: EDUCATE MEMBERS OF CONGRESS ABOUT ISSUES OF PRIORITY TO THE LUPUS COMMUNITY; INCREASE FEDERAL FUNDING FOR LUPUS RESEARCH BY INCREASING OVERALL NATIONAL INSTITUTES OF HEALTH (NIH) FUNDS, AND SECURE ADDITIONAL FUNDING FOR LUPUS RESEARCH THROUGH OTHER KEY FEDERAL AGENCIES INCLUDING THE DEPARTMENT OF DEFENSE (DOD). VOLUNTEERS ACROSS THE COUNTRY HELP AMPLIFY THESE OUTREACH EFFORTS.THROUGH THE LUPUS RESEARCH ALLIANCE ONGOING PUBLIC POLICY PROGRAM EFFORTS, SIGNIFICANT FUNDING FOR LUPUS RESEARCH HAS BEEN OBTAINED UNDER THE DEPARTMENT OF DEFENSE (DOD) CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) OPERATED BY THE ARMY MEDICAL RESEARCH AND MATERIEL COMMAND. FIRST, THE LUPUS RESEARCH ALLIANCE WAS RESPONSIBLE FOR PERSUADING CONGRESS TO INCLUDE LUPUS IN ITS LIST OF DESIGNATED DISEASES ELIGIBLE FOR FUNDING OVER THE PAST TEN YEARS IN THE PEER REVIEWED MEDICAL PROGRAM. MOST RECENTLY, LUPUS RESEARCH ALLIANCE ADVOCACY SUCCEEDED IN THE ESTABLISHMENT IN 2017 OF THE LUPUS RESEARCH PROGRAM UNDER THE CDMRP. OVER THE PROGRAM'S FIRST THREE YEARS, $5 MILLION WAS EARMARKED EACH YEAR SPECIFICALLY FOR LUPUS; THROUGH THE LUPUS RESEARCH ALLIANCE'S CONTINUED EFFORTS THIS AMOUNT WAS INCREASED TO $10M IN FISCAL YEARS (FY) 2020 AND 2021 DEFENSE APPROPRIATIONS BILLS OVER FIVE YEARS, $35M WAS SECURED UNDER THIS PROGRAM, AND THE LRA HAS REQUESTED AN INCREASE TO $15M FOR FY 2022.IN 2017, THE LUPUS PATIENT-FOCUSED DRUG DEVELOPMENT (PFDD) INITIATIVE WAS LAUNCHED TO BRING THE VOICE OF THE PATIENT TO DRUG DEVELOPMENT. THIS COLLABORATIVE EFFORT WITH THE LUPUS AND ALLIED DISEASES ASSOCIATION (LADA) AND LUPUS FOUNDATION OF AMERICA (LFA) WAS DESIGNED TO PROVIDE THE FOOD AND DRUG ADMINISTRATION (FDA) WITH PERSPECTIVES FROM PEOPLE WITH LUPUS, ADVOCATES, AND CAREGIVERS TO HELP INFORM THE FDA'S DECISIONS AND OVERSIGHT DURING THE DRUG DEVELOPMENT AND REVIEW PROCESSES. A REPORT WAS SENT TO THE FDA IN SPRING 2018. THE LRA CONTINUES TO WORK TO BRING THE VOICE OF THE PATIENT TO THE DRUG REVIEW PROCESS BY RESPONDING TO RELEVANT CALLS FROM THE FDA FOR COMMENTS. ONGOING ADVOCACY FOCUSES ON ENSURING LEGISLATION THAT SECURES THE FEDERAL FUNDING SUPPORT NECESSARY TO AFFORD INVESTIGATORS THE RESOURCES TO FOLLOW THROUGH WITH RESEARCH DISCOVERIES THAT WILL IMPROVE TREATMENT OF LUPUS. EVERY YEAR, THE LRA BRINGS ADVOCATES FROM ACROSS THE COUNTRY TO WASHINGTON DC FOR A DAY OF ADVOCACY TRAINING AND PRE-SCHEDULED MEETINGS WITH LEGISLATORS. THE GOAL IS TO INCREASE AWARENESS OF LUPUS AND THE IMPACT IT HAS ON PEOPLES' DAILY LIVES TO MEMBERS OF CONGRESS AND TO REQUEST THEIR SUPPORT FOR INCREASED FUNDING FOR LUPUS RESEARCH FROM FEDERAL PROGRAMS SUCH AS THE NIH. IN 2020, DUE TO THE COVID-19 PANDEMIC, WE PIVOTED TO A VIRTUAL EVENT, ENCOURAGING ADVOCATES TO REACH OUT WITH PHONE CALLS AND EMAILS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$29,001,774	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	Yes (1)	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	65	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	49	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	24	GoverningBodyVotingMembersCnt
Independent Voting Member	24	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA ROSE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	275 MADISON AVE 10 FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (34 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
IRA AKSELRAD
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
RICHARD K DESCHERER
CO-CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
JOSEPH MAURIELLO
TREASURER	1.00	Yes (X)	Yes (X)	$0	$0	$0
BRENDA BLACKMON
SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
BISHOP RUDY V CARLTON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JEROME CHAZEN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIE COLON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
THOMAS O DANIEL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIE DESCHERER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KATEY DRISCOLL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SIR MARC FELDMANN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOTI FERDER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JOE GERMANOTTA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DAVID KIES
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL LAVECCHIA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
LOUIS LUCIDO
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOLLY MCCABE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NADEEM MEGHJI
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM J MULVIHILL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT SEDER MD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL J WALLACE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM WOLFE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
CAROL WEISMAN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SPENCER ZWICK
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KENNETH M FARBER
CEO AND PRESIDENT	40.00		Yes (X)	$429,099	$0	$73,996
DEBRA ROSE
CHIEF FINANCE OFFICER	40.00		Yes (X)	$205,396	$0	$39,787
ANDREA O'NEILL
EXECUTIVE DIRECTOR	40.00			$261,568	$0	$45,243	Yes (X)
ALBERT ROY
EXECUTIVE DIRECTOR, LUCIN	40.00			$273,012	$0	$63,988	Yes (X)
TEODORA STAEVA
CHIEF SCIENTIFIC OFFICER	40.00			$298,364	$0	$57,474	Yes (X)
DIANE GROSS
NATIONAL DIRECTOR OF ADVOCACY	40.00			$139,098	$0	$39,397		Yes (X)
MARGY MEISLIN
EDITORIAL & PR DIRECTOR	40.00			$133,100	$0	$35,416		Yes (X)
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANTROPHY	40.00			$168,333	$0	$34,323		Yes (X)
PENELOPE MITCHELL
DIRECTOR OF COMMUNICATIONS	40.00			$164,404	$0	$18,455		Yes (X)
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVELOPMENT	40.00			$143,580	$0	$47,893		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,215,954	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$455,972	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	12	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
KIM KAISER & ASSOCIATES LLC
4001 SANTA BARBARA BLVD 405	NAPLES	FL	34104	PHARMA RELATIONS CONSULTANT	$248,755
MCS HEALTHCARE PR
110 ALLEN ROAD SUITE 300	BASKING RIDGE	NJ	07921	PUBLIC RELATIONS CONSULTANT	$143,600
AMPEL BIOSOLUTIONS LLC
250 WEST MAIN STREET SUITE 300	CHARLOTTESVILLE	VA	22902	LUCIN CLINICAL TRIALS	$142,261
SCHANER & LUBITZ PLLC
4550 MONTGOMERY AVENUE SUITE 1100N	BETHESDA	MD	20814	CLINICAL TRIALS ATTORNEY	$116,106
CAVAROCCHI RUSCIO DENNIS & ASSOCIATES L
600 MARLAND AVE SW SUITE 835 W	WASHINGTON	DC	20024	PUBLIC POLICY CONSULTANTS	$102,000

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	5	CntrctRcvdGreaterThan100KCnt
Fundraising	$3,898,924	FundraisingAmt
All Other Contributions	$37,640,822	AllOtherContributionsAmt
Noncash Contributions	$10,190,725	NoncashContributionsAmt
Total Contributions	$41,539,746	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	LUCIN CONSULTING REVENUE	Desc
Business	900099	BusinessCd
Total Revenue Column	$1,291,193	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,291,193	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$1,291,193	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,594,271	TotalRevenueColumnAmt
Exclusion	$1,594,271	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$8,036,504	SecuritiesAmt
Other	$470,564	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$7,668,845	SecuritiesAmt
Other	$493,500	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$367,659	SecuritiesAmt
Other	-$22,936	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$344,723	TotalRevenueColumnAmt
Exclusion	$344,723	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$160,502	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$3,898,924	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$160,502	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	SUBLET INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$20,119	TotalRevenueColumnAmt
Exclusion	$20,119	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$20,119	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$44,790,052	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,291,193	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$1,959,113	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$20,997,003	TotalAmt
Program Services	$20,997,003	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$19,814	TotalAmt
Program Services	$19,814	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$2,013,433	TotalAmt
Program Services	$2,013,433	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,672,760	TotalAmt
Program Services	$845,775	ProgramServicesAmt
Management And General	$372,145	ManagementAndGeneralAmt
Fundraising	$454,840	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$3,134,963	TotalAmt
Program Services	$1,493,016	ProgramServicesAmt
Management And General	$709,403	ManagementAndGeneralAmt
Fundraising	$932,544	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$231,301	TotalAmt
Program Services	$110,865	ProgramServicesAmt
Management And General	$50,092	ManagementAndGeneralAmt
Fundraising	$70,344	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$608,262	TotalAmt
Program Services	$291,586	ProgramServicesAmt
Management And General	$138,793	ManagementAndGeneralAmt
Fundraising	$177,883	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$315,624	TotalAmt
Program Services	$153,207	ProgramServicesAmt
Management And General	$71,004	ManagementAndGeneralAmt
Fundraising	$91,413	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$135,083	TotalAmt
Program Services	$88,392	ProgramServicesAmt
Management And General	$24,148	ManagementAndGeneralAmt
Fundraising	$22,543	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$69,772	TotalAmt
Management And General	$69,772	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$111,804	TotalAmt
Program Services	$111,804	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$49,000	TotalAmt
Fundraising	$49,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$161,535	TotalAmt
Management And General	$161,535	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$1,241,114	TotalAmt
Program Services	$805,544	ProgramServicesAmt
Management And General	$250,610	ManagementAndGeneralAmt
Fundraising	$184,960	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$112,546	TotalAmt
Program Services	$53,413	ProgramServicesAmt
Management And General	$40,943	ManagementAndGeneralAmt
Fundraising	$18,190	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$547,297	TotalAmt
Program Services	$304,900	ProgramServicesAmt
Management And General	$154,649	ManagementAndGeneralAmt
Fundraising	$87,748	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$1,094,893	TotalAmt
Program Services	$591,902	ProgramServicesAmt
Management And General	$219,892	ManagementAndGeneralAmt
Fundraising	$283,099	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$137,298	TotalAmt
Program Services	$97,722	ProgramServicesAmt
Management And General	$15,291	ManagementAndGeneralAmt
Fundraising	$24,285	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$314,148	TotalAmt
Program Services	$275,098	ProgramServicesAmt
Management And General	$32,117	ManagementAndGeneralAmt
Fundraising	$6,933	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$173,375	TotalAmt
Program Services	$84,158	ProgramServicesAmt
Management And General	$39,004	ManagementAndGeneralAmt
Fundraising	$50,213	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$64,154	TotalAmt
Program Services	$38,795	ProgramServicesAmt
Management And General	$11,086	ManagementAndGeneralAmt
Fundraising	$14,273	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CLINICAL STUDIES	$509,267	$509,267
PRINTING & PUBLICATIONS	$170,699	$20,050	$14,630	$136,019
POSTAGE, SHIPPING & DEL	$98,197	$5,169	$11,123	$81,905
DATA PROCESSING	$95,564	$24,205	$5,781	$65,578

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$187,907	TotalAmt
Program Services	$66,656	ProgramServicesAmt
Management And General	$34,053	ManagementAndGeneralAmt
Fundraising	$87,198	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$34,266,813	TotalAmt
Program Services	$29,001,774	ProgramServicesAmt
Management And General	$2,426,071	ManagementAndGeneralAmt
Fundraising	$2,838,968	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$3,724,504	BOYAmt
EOY	$3,877,555	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$873,961	BOYAmt
EOY	$846,030	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$2,579,649	BOYAmt
EOY	$15,931,284	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$373,770	BOYAmt
EOY	$545,275	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$162,892	BOYAmt
EOY	$193,080	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,122,584	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$731,757	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$494,479	BOYAmt
EOY	$390,827	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$61,719,649	BOYAmt
EOY	$80,441,611	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$398,731	BOYAmt
EOY	$708,544	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$1,104,083	BOYAmt
EOY	$473,935	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$71,431,718	BOYAmt
EOY	$103,408,141	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$438,885	BOYAmt
EOY	$511,502	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$25,422,502	BOYAmt
EOY	$39,843,096	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
EOY	$698,800	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$800,130	BOYAmt
EOY	$797,688	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$26,661,517	BOYAmt
EOY	$41,851,086	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$39,293,680	BOYAmt
EOY	$45,047,938	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$5,476,521	BOYAmt
EOY	$16,509,117	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$44,770,201	BOYAmt
EOY	$61,557,055	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$71,431,718	BOYAmt
EOY	$103,408,141	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	$10,523,239	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$6,026,720	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$236,895	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$19,101,537	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$23,693,133	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$15,396,535	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$17,673,622	CurrentTaxYearMinus1YearAmt
Current Tax Year	$41,539,746	CurrentTaxYearAmt
Total	$117,404,573	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$19,101,537	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$23,693,133	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$15,396,535	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$17,673,622	CurrentTaxYearMinus1YearAmt
Current Tax Year	$41,539,746	CurrentTaxYearAmt
Total	$117,404,573	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$56,723,727	SubstantialContributorsTotAmt
Public Support Total170	$60,680,846	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,227,336	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,314,981	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,336,303	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,445,946	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,614,390	CurrentTaxYearAmt
Total	$6,938,956	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	-$440	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$204	CurrentTaxYearMinus3YearsAmt
Total	-$236	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$124,343,293	TotalSupportAmt
Gross Receipts Rltd Activities	$4,106,523	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.48800	PublicSupportCY170Pct
Public Support PY170	0.58960	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$743,966	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$743,966	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$33,505,652	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$34,249,618	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$776,350	CurrentYearMinus3Amt
Current Year Minus2	$788,377	CurrentYearMinus2Amt
Current Year Minus1	$846,235	CurrentYearMinus1Amt
Current Year	$743,966	CurrentYearAmt
Total	$3,154,928	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,813,456	BeginningYearBalanceAmt
Investment Earnings Or Losses	$6,226,708	InvestmentEarningsOrLossesAmt
Other Expenditures	$1,453,727	OtherExpendituresAmt
End Year Balance	$56,586,437	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$46,122,925	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,404,231	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,713,456	OtherExpendituresAmt
End Year Balance	$51,813,456	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,742,397	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$2,936,193	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,683,279	OtherExpendituresAmt
End Year Balance	$46,122,925	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$45,863,827	BeginningYearBalanceAmt
Investment Earnings Or Losses	$8,478,913	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,600,343	OtherExpendituresAmt
End Year Balance	$51,742,397	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$44,173,045	BeginningYearBalanceAmt
Investment Earnings Or Losses	$4,257,605	InvestmentEarningsOrLossesAmt
Other Expenditures	$2,566,823	OtherExpendituresAmt
End Year Balance	$45,863,827	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	1.00000	BoardDesignatedBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$424,912	OtherCostOrOtherBasisAmt
Depreciation	$185,293	DepreciationAmt
Book Value	$239,619	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$697,672	OtherCostOrOtherBasisAmt
Depreciation	$546,464	DepreciationAmt
Book Value	$151,208	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$390,827	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	DEFERRED RENT	Desc
Amt	$797,688	Amt

Field	Value	IRS element (for citing)
Total Liability	$797,688	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$50,874,937	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$6,026,720	NetUnrealizedGainsInvstAmt
Recoveries Prior Year Grants	$219,700	RecoveriesPriorYearGrantsAmt
Revenue Not Reported	$6,246,420	RevenueNotReportedAmt
Revenue Subtotal	$44,628,517	RevenueSubtotalAmt
Investment Expenses Not Incld	$161,535	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$161,535	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$44,790,052	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$34,088,083	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$34,088,083	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$161,535	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$17,195	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$178,730	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$34,266,813	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	BOARD DESIGNATED (QUASI) ENDOWMENT FUND INCOME TO BE USED FOR RESEARCH PROGRAM GRANTS. PRINCIPAL TO REMAIN INTACT UNLESS HIGH PRIORITY LUPUS RESEARCH PROJECTS NEED TO BE FUNDED THAT COULD NOT BE FUNDED OTHERWISE.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	RETURN OF GRANTS & ADJUSTMENTS 17,195.
PART PART XII, LINE 4B	UNUSED PORTIONS OF GRANTS RETURNED TO LRA THAT WERE PAID IN PREVIOUS YEARS IN THE AMOUNT OF $17,195. THESE AMOUNTS ARE RECONCILING ITEMS BETWEEN THE REVENUE AND EXPENSES FROM THE AUDITED FINANCIAL STATEMENTS AND THOSE REPORTED ON FORM 990.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC	GRANTS TO RECIPIENTS	$310,000
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	GRANTS TO RECIPIENTS	$1,154,745
EUROPE (INCLUDING ICELAND & GREENLAND)	GRANTS TO RECIPIENTS	$548,688

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$2,013,433	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$2,013,433	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (12 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Valuation Method UsedValuationMethodUsedDesc
NORTH AMERICA	LUPUS RESEARCH	$160,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$160,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$160,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$160,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$160,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$160,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$160,000	CHECK	BOOK
NORTH AMERICA	LUPUS RESEARCH	$34,745	CHECK	BOOK
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$310,000	CHECK	BOOK
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$7,406	CHECK	BOOK
EUROPE (INCLUDING ICELAND & GREENLAND)	LUPUS RESEARCH	$299,706	CHECK	BOOK
EUROPE (INCLUDING ICELAND & GREENLAND)	LUPUS RESEARCH	$241,576	CHECK	BOOK

Field	Value	IRS element (for citing)
Total501c3 Org	5	Total501c3OrgCnt
Total Other Org	7	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, THE SPONSORING INSTITUTION (SI) MUST AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING FORUM FOR DISCOVERY. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OF PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT: A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THIS GRANT. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THE FOLLOWING STATEMENT SHOULD APPEAR AT THE CONCLUSION OF THE LETTER OF ACCEPTANCE, "I AGREE TO ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE RESEARCH PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LUPUS RESEARCH ALLIANCE." IF AN EXTENSION IS AWARDED ADDITIONAL INTERIM PROGRESS REPORTS AND BUDGET RECONCILIATIONS ARE REQUIRED TO BE SUBMITTED. AT THE END OF THE GRANT A FINAL PROGRESS REPORT AND BUDGET RECONCILIATION IS REQUIRED TO BE SUBMITTED, UNSPENT AMOUNTS ARE TO BE RETURNED TO THE LRA. ALL SIS RECEIVE A PAYMENT AND DELIVERABLE SCHEDULE AND THE PROJECT IS MONITORED BY: O PERIODIC PROGRESS REPORTS O PERIODIC BUDGET RECONCILIATIONS ALL PUBLICATIONS RELATED TO THE GRANT ARE TO BE SUBMITTED TO THE LRA THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND VERBAL OR POSTER PRESENTATIONS THE SI MUST SUBMIT A COPY OF THE IRS OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI

PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DS CONSULTING GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	845 THIRD AVENUE 6TH FLOOR	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10022	ZIPCd

Field	Value	IRS element (for citing)
Activity	SPECIAL EVENT CONSULTANT NY GALA	ActivityTxt
Fundraiser Control Of Funds	Yes (1)	FundraiserControlOfFundsInd
Gross Receipts	$3,057,745	GrossReceiptsAmt
Retained By Contractor	$49,000	RetainedByContractorAmt
Net To Organization	$3,057,754	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$3,057,745	TotalGrossReceiptsAmt
Total Retained By Contractors	$49,000	TotalRetainedByContractorsAmt
Total Net To Organization	$3,057,754	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GALA CELEBRATION	Event1Nm
Gross Receipts Event1	$3,254,023	GrossReceiptsEvent1Amt
Charitable Contri Event1	$3,131,249	CharitableContriEvent1Amt
Gross Revenue Event1	$122,774	GrossRevenueEvent1Amt
Food And Beverage Event1	$28,630	FoodAndBeverageEvent1Amt
Other Direct Expenses Event1	$94,144	OtherDirectExpensesEvent1Amt
Event2	WALK-A-THONS	Event2Nm
Gross Receipts Event2	$805,403	GrossReceiptsEvent2Amt
Charitable Contri Event2	$767,675	CharitableContriEvent2Amt
Gross Revenue Event2	$37,728	GrossRevenueEvent2Amt
Other Direct Expenses Event2	$37,728	OtherDirectExpensesEvent2Amt
Gross Receipts Total	$4,059,426	GrossReceiptsTotalAmt
Charitable Contributions Tot	$3,898,924	CharitableContributionsTotAmt
Gross Revenue Total Events	$160,502	GrossRevenueTotalEventsAmt
Food And Beverage Total Events	$28,630	FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events	$131,872	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$160,502	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DS CONSULTING PLANNED AND MANAGED ALR'S GALA EVENT. CONTRACT AMOUNT FOR THE PERIOD COVERING 1/1/20 - 12/31/20 WAS $49,000 PLUS REIMBURSABLE EXPENSES.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (55 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Valuation Method UsedValuationMethodUsedDesc	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ALBERT EINSTEIN COLLEGE OF MEDICINE
1300 MORRIS PARK AVE	BRONX	NY	10461	472209056	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
BENAROYA RESEARCH INSTITUTE AT VIRGINIA MASON
1201 NINTH AVE	SEATTLE	WA	98101	910653422	501(C)(3)	$574,469	BOOK	LUPUS RESEARCH
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE	BOSTON	MA	02215	042103881	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
BRIGHAM AND WOMEN'S HOSPITAL
77 AVENUE LOUIS PASTEUR	BOSTON	MA	02115	042312909	501(C)(3)	$273,298	BOOK	LUPUS RESEARCH
CHILDREN'S HOSPITAL PHILADELPHIA
3401 CIVIC CENTER BOULEVARD	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$291,389	BOOK	LUPUS RESEARCH
COLUMBIA UNIVERSITY MEDICAL CENTER
154 HAVEN AVE 2ND FL	NEW YORK	NY	10032	133598093	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
EMORY UNIVERSITY
1762 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501(C)(3)	$1,182,854	BOOK	LUPUS RESEARCH
HOSPITAL FOR SPECIAL SURGERY
535 E 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$862,647	BOOK	LUPUS RESEARCH
JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	04609	010211513	501(C)(3)	$946,854	BOOK	LUPUS RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)(3)	$402,824	BOOK	LUPUS RESEARCH
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)(3)	$151,389	BOOK	LUPUS RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	29425	576028985	SECTION 115 - SC STA	$160,000	BOOK	LUPUS RESEARCH
NATIONAL MINORITY QUALITY FORUM INC
1201 15TH STREET NW SUITE 340	WASHINGTON	DC	20005	311750942	501(C)(3)	$90,666	BOOK	LUPUS RESEARCH
NATIONAL KIDNEY FOUNDATION
30 EAST 33RD STREET	NEW YORK	NY	10016	131673104	501(C)(3)	$115,000	BOOK	LUPUS RESEARCH
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501(C)(3)	$754,655	BOOK	LUPUS RESEARCH
NORTHWELL HEALTH - DIVISION OF RHEUMATOLOGY
972 BRUSH HOLLOW RD 5TH FL	WESTBURY	NY	11590	112673595	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
NORTHWESTERN UNIVERSITY
633 CLARK STREET	EVANSTON	IL	60208	362167818	501(C)(3)	$497,509	BOOK	LUPUS RESEARCH
OKLAHOMA MEDICAL RESEARCH FOUNDATION
825 NE 13TH STREET	OKLAHOMA CITY	OK	73104	730580274	501(C)(3)	$1,333,668	BOOK	LUPUS RESEARCH
PENNSYLVANIA STATE UNIVERSITY
ONE OLD MAIN	UNIVERSITY PARK	PA	16802	246000376	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE
5171 CALIFORNIA AVENUE STE 150	IRVINE	CA	92697	952226406	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1653 WEST CONGRESS PARKWAY	CHICAGO	IL	60612	362174823	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
STANFORD UNIVERSITY
3145 PORTER DRIVE	PALO ALTO	CA	94304	941156365	501(C)(3)	$645,648	BOOK	LUPUS RESEARCH
ST JUDE CHILDREN'S HOSPITAL
262 DANNY THOMAS PLACE	MEMPHIS	TN	38105	620646012	501(C)(3)	$3,314	BOOK	LUPUS RESEARCH
TEMPLE UNIVERSITY
1801 N BROAD STREET	PHILADELPHIA	PA	19122	231365971	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
350 COMMUNITY DRIVE	MANHASSET	NY	11030	112673595	501(C)(3)	$169,525	BOOK	LUPUS RESEARCH
THE METROHEALTH SYSTEM
2500 METROHEALTH DRIVE	CLEVELAND	OH	44109	346004382	SECTION 115 - OH STA	$160,000	BOOK	LUPUS RESEARCH
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	311702164	SECTION 115 - OH STA	$160,000	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10920 WILSHIRE BLVD STE 620	LOS ANGELES	CA	90024	956006143	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$573,472	BOOK	LUPUS RESEARCH
THE RESEARCH FOUNDATION OF SUNY
35 STATE STREET	ALBANY	NY	12201	141368361	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE STE 501	CHICAGO	IL	60637	362177139	501(C)(3)	$722,396	BOOK	LUPUS RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
6000 FELDWOOD ROAD	COLLEGE PARK	GA	30349	566001393	501(C)(3)	$210,000	BOOK	LUPUS RESEARCH
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH STREET	LUBBOCK	TX	79430	752668014	TX STATE GOVERNMENT	$555,655	BOOK	LUPUS RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$454,576	BOOK	LUPUS RESEARCH
UNIVERISTY OF SOUTHERN CALIFORNIA
1640 MARENGO STREET 7TH FL	LOS ANGELES	CA	90033	951642394	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S	BIRMINGHAM	AL	35294	636005396	501(C)(3)	$160,396	BOOK	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
2200 UNIVERSITY HALL	BERKELEY	CA	94720	946036493	501(C)(3)	$285,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS
3100 MARINE ST 6TH FL	BOULDER	CO	80309	846000555	501(C)(3)	$151,389	BOOK	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
207 TIGERT HALL	GAINESVILLE	FL	32611	596002052	FL STATE GOVERNMENT	$160,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF HOUSTON
4800 CALHOUN ROAD	HOUSTON	TX	77004	746001399	501(C)(3)	$291,389	BOOK	LUPUS RESEARCH
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGON STREET 4TH FL	BALTIMORE	MD	21201	521830242	SECTION 115 - MD STA	$160,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167325	MA STATE GOVERNMENT	$166,781	BOOK	LUPUS RESEARCH
UNIVERSITY OF MIAMI
1320 S DIXIE HIGHWAY GABLES ONE	CORAL GABLES	FL	33146	590624458	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH	TOWER 650
UNIVERSITY OF MICHIGAN
503 THOMPSON STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$754,703	BOOK	LUPUS RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	39216	646008520	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	$157,520	BOOK	LUPUS RESEARCH
UNIVERSITY OF TEXAS SAN ANTONIO
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	782293900	746000203	TX STATE GOVERNMENT	$3,314	BOOK	LUPUS RESEARCH
UNIVERSITY OF WASHINGTON
3917 UNIVERSITY WAY NE	SEATTLE	WA	98195	916001537	SECTION 115 - WA STA	$158,397	BOOK	LUPUS RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75390	746000203	TX STATE GOVERNMENT	$166,857	BOOK	LUPUS RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1211 MEDICAL CENTER DRIVE	NASHVILLE	TN	37232	352528741	501(C)(3)	$458,795	BOOK	LUPUS RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	501(C)(3)	$185,000	BOOK	LUPUS RESEARCH
WALLACE RHEUMATIC STUDIES CENTER LLC
8737 BENVERLY BLVD STE 301	W HOLLYWOOD	CA	90048	455434561	501(C)(3)	$160,000	BOOK	LUPUS RESEARCH
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE	NEW YORK	NY	10065	131623978	501(C)(3)	$3,455,249	BOOK	LUPUS RESEARCH
YALE UNIVERSITY
BOX 208239	NEW HAVEN	CT	06520	060646973	501(C)(3)	$590,405	BOOK	LUPUS RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	45	Total501c3OrgCnt
Total Other Org	10	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	LUPUS EMERGENCY GRANT - $500 MAX PER PERSON	GrantTypeTxt
Recipient	45	RecipientCnt
Cash Grant	$19,814	CashGrantAmt
Valuation Method Used	BILLS	ValuationMethodUsedDesc
Non Cash Assistance	LUPUS EMERGENCY GRANT - $500 MAX PER PERSON	NonCashAssistanceDesc

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, THE SPONSORING INSTITUTION (SI) MUST AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING FORUM FOR DISCOVERY. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OF PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT: A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THIS GRANT. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THE FOLLOWING STATEMENT SHOULD APPEAR AT THE CONCLUSION OF THE LETTER OF ACCEPTANCE, "I AGREE TO ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE RESEARCH PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LUPUS RESEARCH ALLIANCE." IF AN EXTENSION IS AWARDED ADDITIONAL INTERIM PROGRESS REPORTS AND BUDGET RECONCILIATIONS ARE REQUIRED TO BE SUBMITTED. AT THE END OF THE GRANT A FINAL PROGRESS REPORT AND BUDGET RECONCILIATION IS REQUIRED TO BE SUBMITTED, UNSPENT AMOUNTS ARE TO BE RETURNED TO THE LRA. ALL SIS RECEIVE A PAYMENT AND DELIVERABLE SCHEDULE AND THE PROJECT IS MONITORED BY: O PERIODIC PROGRESS REPORTS O PERIODIC BUDGET RECONCILIATIONS ALL PUBLICATIONS RELATED TO THE GRANT ARE TO BE SUBMITTED TO THE LRA THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND VERBAL OR POSTER PRESENTATIONS THE SI MUST SUBMIT A COPY OF THE IRS OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
KENNETH M FARBER
CEO AND PRESIDENT	$372,500	$0	$50,000	$0	$6,599	$0	$28,000	$0	$45,996	$0	$503,095	$0	$0	$0
DEBRA ROSE
CHIEF FINANCE OFFICER	$189,134	$0	$15,000	$0	$1,262	$0	$21,047	$0	$18,740	$0	$245,183	$0	$0	$0
ANDREA O'NEILL
EXECUTIVE DIRECTOR	$220,000	$0	$40,000	$0	$1,568	$0	$26,733	$0	$18,510	$0	$306,811	$0	$0	$0
ALBERT ROY
EXECUTIVE DIRECTOR, LUCIN	$231,790	$0	$40,000	$0	$1,222	$0	$20,860	$0	$43,128	$0	$337,000	$0	$0	$0
TEODORA STAEVA
CHIEF SCIENTIFIC OFFICER	$257,066	$0	$40,000	$0	$1,298	$0	$22,749	$0	$34,725	$0	$355,838	$0	$0	$0
DIANE GROSS
NATIONAL DIRECTOR OF ADVOCACY	$137,737	$0	$500	$0	$861	$0	$13,420	$0	$25,977	$0	$178,495	$0	$0	$0
MARGY MEISLIN
EDITORIAL & PR DIRECTOR	$128,750	$0	$1,000	$0	$3,350	$0	$12,600	$0	$22,816	$0	$168,516	$0	$0	$0
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANTROPHY	$164,250	$0	$1,000	$0	$3,083	$0	$17,713	$0	$16,610	$0	$202,656	$0	$0	$0
PENELOPE MITCHELL
DIRECTOR OF COMMUNICATIONS	$161,050	$0	$1,000	$0	$2,354	$0	$2,381	$0	$16,074	$0	$182,859	$0	$0	$0
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVELOPMENT	$141,900	$0	$750	$0	$930	$0	$15,224	$0	$32,669	$0	$191,473	$0	$0	$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	8	ContributionCnt
Noncash Contributions Rpt F990	$10,190,725	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG STOCK VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	LRA HAS AN ACCOUNT WITH MORGAN STANLEY, WHICH LRA USES TO SELL THE CONTRIBUTIONS IT RECEIVES THOUGH STOCKS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2	NEIL J. BURMEISTER (DIRECTOR) AND IRA AKSELRAD (DIRECTOR) HAVE A BUSINESS RELATIONSHIP. RICHARD K. DESCHERER (CO-CHAIR) AND JENNIE DESCHERER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11B	AFTER PREPARATION BY OF FORM 990 BY LRA'S AUDITOR, LUTZ AND CARR, THE 990 IS REVIEWED BY THE LRA'S SENIOR OFFICERS, THE CHIEF FINANCE OFFICER AND THE PRESIDENT. THE FINANCE AND AUDIT COMMITTEE OF THE BOARD THEN MEETS TO REVIEW THE 990 BEFORE FILING AND APPROVES FOR FILING WITH ANY NOTED CHANGES. A DRAFT OF THE 990 IS THEN SENT OUT TO THE FULL BOARD FOR COMMENT PRIOR TO FILING WITH THE IRS. THE FINAL FORM 990 IS PRESENTED TO THE FULL BOARD AT THE SEPTEMBER MEETING.
FORM 990, PART VI, SECTION B, LINE 12C	THE GOVERNANCE COMMITTEE OF THE BOARD IS RESPONSIBLE FOR MONITORING CONFLICTS OF INTEREST. AN ANNUAL CONFLICT OF INTEREST DISCLOSURE FORM IS REQUIRED TO BE FILLED OUT EACH YEAR BY BOARD MEMBERS, OFFICERS AND KEY EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15	THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS ASSISTED THE BOARD IN FULFILLING ITS OVERSIGHT RESPONSIBILITIES RELATING TO THE COMPENSATION AND BENEFITS OF THE PRESIDENT AND OTHER EXECUTIVE OFFICERS; AND PROVIDED RECOMMENDATIONS REGARDING MANAGEMENT SUCCESSORS. ANNUALLY THE COMMITTEE REVIEWS AND RECOMMENDS TO THE BOARD THE SALARY FOR THE PRESIDENT AND OTHER OFFICERS/KEY EMPLOYEES. IN 2020, THE COMMITTEE REVIEWED AND APPROVED BASE SALARIES, ANNUAL MERIT ADJUSTMENTS AND BONUSES FOR ALL STAFF.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST AND ON GUIDESTAR.ORG
FORM 990, PART XI, LINE 9:	REFUND OF GRANTS 17,195. CANCELLED GRANTS 219,700.
FORM 990, PART V, QUESTION 2A	THE LRA CONTRACTS WITH TRINET AMBROSE, A PROFESSIONAL EMPLOYER ORGANIZATION (PEO), TO PROVIDE PAYROLL AND BENEFITS AS A CO-EMPLOYER WITH THE LRA. LRA PAYROLL AND BENEFITS ARE ADMINISTERED BY AMBROSE AS APPROVED BY LRA OFFICERS. LRA PAYROLL IS THEREFORE UNDER THE AMBROSE EIN: 13-3867443 AND W-2'S ARE PREPARED UNDER THAT EIN BY TRINET AMBROSE.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS THERAPEUTICS LLC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	2550 SOUTH CLARK SUITE 670	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22202	ZIPCd

Field	Value	IRS element (for citing)
EIN	823984908	EIN
Primary Activities	LRA'S SCIENTIFIC PROGRAMS	PrimaryActivitiesTxt
Legal Domicile State	VA	LegalDomicileStateCd
Total Income	$1,449,194	TotalIncomeAmt
End Of Year Assets	$13,450,692	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	YES	BusinessNameLine1Txt