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THE CHILDRENS HEART FOUNDATION: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization
THE CHILDRENS HEART FOUNDATION (EIN 36-4077528)
Tax period
2020-01-01 to 2020-12-31
Filed
2021-10-29
IRS object ID
202113029349301036
Schema version
2020v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2021-10-29T11:26:31-05:00ReturnTs
Tax Period End2020-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN362658780PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1MUELLER & CO LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11707 N RANDALL ROADAddressLine1Txt
CityELGINCityNm
State AbbreviationILStateAbbreviationCd
ZIP60123ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2020-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN364077528EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE CHILDREN'S HEART FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHILBusinessNameControlTxt
Phone8476346474PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15 REVERE DRIVE NO 200AddressLine1Txt
CityNORTHBROOKCityNm
State AbbreviationILStateAbbreviationCd
ZIP600621500ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonBARBARA NEWHOUSEPersonNm
Person TitlePRESIDENT AND CEOPersonTitleTxt
Phone8476346474PhoneNum
Signature2021-10-28SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstBARBARAPersonFirstNm
Person LastNEWHOUSEPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonGREGORY F KASHPreparerPersonNm
PTINP00161547PTIN
Phone8478888600PhoneNum
Preparation2021-10-28PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2020TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerABIGAIL RODDIE-HAMLINPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line15 REVERE DRIVE NO 200AddressLine1Txt
CityNORTHBROOKCityNm
State AbbreviationILStateAbbreviationCd
ZIP600621500ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$2,732,871GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CHILDRENSHEARTFOUNDATION.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1996FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionTHE MISSION OF THE CHILDREN'S HEART FOUNDATION (CHF) IS TO ADVANCE THE DIAGNOSIS, TREATMENT, AND PREVENTION OF CONGENITAL HEART DEFECTS (CHDS) BY FUNDING THE MOST PROMISING RESEARCH.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee12TotalEmployeeCnt
Total Volunteers500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$2,468,430PYContributionsGrantsAmt
CY Contributions Grants$2,725,561CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$612PYInvestmentIncomeAmt
CY Investment Income$1,037CYInvestmentIncomeAmt
PY Other Revenue$186,245PYOtherRevenueAmt
CY Other Revenue-$422,083CYOtherRevenueAmt
PY Total Revenue$2,655,287PYTotalRevenueAmt
CY Total Revenue$2,304,515CYTotalRevenueAmt
PY Grants And Similar Paid$1,410,284PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$734,326CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$627,158PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$799,536CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$463,156CYTotalFundraisingExpenseAmt
PY Other Expenses$760,961PYOtherExpensesAmt
CY Other Expenses$854,601CYOtherExpensesAmt
PY Total Expenses$2,798,403PYTotalExpensesAmt
CY Total Expenses$2,388,463CYTotalExpensesAmt
PY Revenues Less Expenses-$143,116PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$83,948CYRevenuesLessExpensesAmt
Total Assets BOY$2,160,928TotalAssetsBOYAmt
Total Assets EOY$1,986,794TotalAssetsEOYAmt
Total Liabilities BOY$898,904TotalLiabilitiesBOYAmt
Total Liabilities EOY$808,718TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,262,024NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,178,076NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE MISSION OF THE CHILDREN'S HEART FOUNDATION (CHF) IS TO ADVANCE THE DIAGNOSIS, TREATMENT, AND PREVENTION OF CONGENITAL HEART DEFECTS (CHDS) BY FUNDING THE MOST PROMISING RESEARCH.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$990,208ExpenseAmt
Grant$734,326GrantAmt
DescRESEARCH - THE CHILDREN'S HEART FOUNDATION FUNDS THE MOST PROMISING CONGENITAL HEART DEFECT (CHD) RESEARCH. SINCE 1996, CHF HAS INVESTED NEARLY $14 MILLION INTO CHD RESEARCH AND SCIENTIFIC COLLABORATIONS.IN 2020, CHF FUNDED MORE THAN $735,000 IN CHD RESEARCH AND SCIENTIFIC COLLABORATIONS ACROSS FOUR KEY INITIATIVES: 1. INDEPENDENT RESEARCH FUNDED BY THE FOUNDATION, 2. COLLABORATIVE RESEARCH WITH THE AMERICAN HEART ASSOCIATION THROUGH JOINT CONGENITAL HEART DEFECT RESEARCH AWARDS, 3. FUNDING THE AMERICAN ACADEMY OF PEDIATRICS' PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD, AND 4. FUNDING CARDIAC NETWORKS UNITED (CNU), A NATIONAL PEDIATRIC AND CONGENITAL CARDIOVASCULAR RESEARCH NETWORK.ALONG WITH NEW RESEARCH, THE FOUNDATION PROVIDED SECOND-YEAR FUNDING TO THREE PROJECTS THAT MADE SIGNIFICANT PROGRESS: -KRISTOPHER B. DEATRICK, MD [UNIVERSITY OF MARYLAND] FOR HIS WORK ON STEM CELL THERAPY FOR POST- CARDIOPULMONARY BYPASS LOW CARDIAC OUTPUT SYNDROME. -YOUNGJAE CHUN, PHD [UNIVERSITY OF PITTSBURGH] FOR HIS EFFORTS ON A SELF-GROWING PERCUTANEOUS HEART VALVE FRAME TO TREAT CONGENITAL HEART DISEASE. -ALLEN EVERETT, MD [JOHNS HOPKINS UNIVERSITY] WHO IS STUDYING THE ROLE OF CYCLOHEXANONE TOXICITY IN MEDIATING CONGENITAL CARDIAC SURGICAL OUTCOMES.THESE RESEARCH EFFORTS WILL HELP EXPERTS LEARN MORE ABOUT THE LIFE-LONG CARE NEEDS OF INDIVIDUALS LIVING WITH CHDS AND HOW TO CONTINUE TO IMPROVE THEIR OVERALL QUALITY OF LIFE.THE CHILDREN'S HEART FOUNDATION PROVIDES FUNDING TO CARDIAC NETWORKS UNITED TO IMPROVE OUTCOMES FOR CHILDREN WITH CHDS. ONE OF CNU'S CURRENT RESEARCH EFFORTSTHE PAC3 CHEST TUBE PROJECTIS NOW BEING IMPLEMENTED AT NEARLY 20 U.S. HOSPITALS AS RESEARCHERS CONSIDER THE OPTIMAL TIME FOR CHEST TUBE REMOVAL IN YOUNG CHD PATIENTS.IN ADDITION, THE FOUNDATION FUNDED THE AMERICAN ACADEMY OF PEDIATRICS' 2020 PEDIATRIC CARDIOLOGY RESEARCH FELLOWSHIP AWARD GIVEN TO DAVID STAUDT, MD, PHD, PEDIATRIC CARDIOLOGY FELLOW AT STANFORD UNIVERSITY. HIS RESEARCHUNRAVELING MOLECULAR MODIFIERS OF HYPERTROPHIC AND RESTRICTIVE CARDIOMYOPATHYIS IMPORTANT BECAUSE IT BEGINS TO IDENTIFY GENETIC MUTATIONS AND UNDERLYING CAUSES OF HYPERTROPHIC AND RESTRICTIVE CARDIOMYOPATHIES, WHICH COULD LEAD TO THERAPIES THAT COUNTERACT OR PREVENT CHDS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$307,487ExpenseAmt
DescAWARENESS -CONGENITAL HEART WALKS: THE CHILDREN'S HEART FOUNDATION'S CONGENITAL HEART WALK SERIES IS THE NATION'S LARGEST WALK SERIES SOLELY DEDICATED TO RAISING AWARENESS AND FUNDS FOR CONGENITAL HEART DEFECT RESEARCH. THE 2020 CONGENITAL HEART WALK SERIES VIRTUALLY BROUGHT TOGETHER 5,000 WALKERS, 800 TEAMS, AND HUNDREDS OF FAMILIES, PROVIDERS, AND SPONSORS WHO SHARED DIRECT SUPPORT, ALONG WITH 28 AMAZING WALK DAY PROGRAMS, AS WE RAISED OVER $1,000,000 FOR CHD RESEARCH. THE WALKS OFFER A CHANCE TO STRENGTHEN OUR COMMUNITY AND SPREAD AWARENESS ABOUT AMERICA'S MOST COMMON BIRTH DEFECT - CHDS.""VOLUNTEER SUMMIT: IN FEBRUARY 2020, THE CHILDREN'S HEART FOUNDATION HOSTED A GROUP OF VOLUNTEERS FROM ACROSS THE COUNTRY AT A SUMMIT THAT FOCUSED ON TRAINING THE FOUNDATION'S VOLUNTEER COMMITTEES OF OUR CONGENITAL HEART WALKS TO STRENGTHEN THEIR EFFORTS IN FUNDRAISING AND AWARENESS." "FUNDRAISING EVENTS AND CAMPAIGNS: VARIOUS FUNDRAISING EVENTS AND CAMPAIGNS TOOK PLACE THROUGHOUT 2020, INCLUDING HEARTS AT PLAY, GRAEME'S RUN, #GIVINGTUESDAY, HEART MONTH, AND VOLUNTEER APPRECIATION MONTH - ALL OF WHICH HELPED RAISE AWARENESS AND FUNDS OF THE CHILDREN'S HEART FOUNDATION'S CRITICAL MISSION. " GENERAL AWARENESS: THE CHILDREN'S HEART FOUNDATION UTILIZES SOCIAL MEDIA AND VIDEO STORYTELLING TO SPREAD FURTHER AWARENESS OF CHDS AND CHF. OUR SOCIAL MEDIA EFFORTS FOCUS ON SHARING STORIES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY CHDS, AS WELL AS TELLING OUR AUDIENCE ABOUT THE IMPORTANT RESEARCH EFFORTS WE ARE FUNDING. THESE TOOLS HELP US REACH PEOPLE WHO MAY NOT HAVE PREVIOUSLY KNOWN ABOUT OUR IMPORTANT WORK.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$263,702ExpenseAmt
DescADVOCACY - IN 2020, THE CHILDREN'S HEART FOUNDATION (CHF) PROUDLY PARTNERED WITH MENDED LITTLE HEARTS (MLH) AND THE ADULT CONGENITAL HEART ASSOCIATION (ACHA) TO HOST THE FIRST COLLABORATIVE TELEMEDICINE WEBINAR. THE THREE ORGANIZATIONS ALSO WORKED TOGETHER ON A VIRTUAL ADVOCACY OUTREACH CAMPAIGN. SPANNING SEPTEMBER 28 TO OCTOBER 9, THE EFFORT REACHED STATE AND LOCAL LEGISLATORS NATIONWIDE TO RAISE AWARENESS ABOUT CONGENITAL HEART DEFECTS AND THE CRITICAL NEED FOR INCREASED RESEARCH FUNDING. WE ENDEAVORED TO CREATE MORE AWARENESS OF THE NEED FOR ADVOCACY FOR THOSE WITH CHDS AND THEIR FAMILY MEMBERS BY TELLING THEIR STORY ON OUR WEBSITES, IN VIDEO, AND THROUGH SPECIAL BROADCAST PRODUCTIONS, LIKE THE PBS VISIONARIES SERIES. OUR ADVOCACY EFFORTS FOCUS ON RAISING AWARENESS OF THE NEED FOR INCREASED FUNDING FOR RESEARCH, SURVIVAL, LONGIEVITY AND QUALITY OF LIFE EFFORTS WHICH HAVE DRAMATICALLY INCREASED FOR CHD PATIENTS. THERE HAS BEEN A 37.5% DECREASE IN BABIES DYING AT BIRTH WHICH IS A TREMENDOUS RESULT, BUT WE KNOW THAT BABIES ARE STILL BEING BORN DAILY WITH CHDS. WITH CHD PATIENTS LIVING LONGER WE ARE LOOKING TO DRIVE MORE RESEARCH FUNDING AND ADVOCATE FOR EFFORTS IN NEURODEVELOPMENT, COGNITIVE FUNCTION, MENTAL HEALTH CARE, DEVICES, AND PROCEDURAL RESEARCH, TRANSITIONAL CARE, AND LONG-TERM CARE FOR ADULTS WITH CHDS. LAST YEAR, WE HELD MORE THAN 20 VIRTUAL RESEARCH RECEPTIONS THAT UNDERSCORED THIS CRITICAL LINKAGE FROM THE DOLLARS RAISED IN COMMUNITIES THROUGH OUR WALKS AND OTHER EVENTS, CREATING MORE AWARENESS OF CHDS, AND, ADVOCATING FOR MORE FUNDING THROUGH PARTNERSHIPS AND HEALTH SYSTEM RELATIONSHIPS. WE ARE MOVING FORWARD TO ENGAGE MORE IN ADVOCACY EFFORTS BY RECRUITING GRASSROOTS VOLUNTEERS, CREATING A STRATEGIC LEGISLATIVE AGENDA, AND ADVOCATING THROUGH VOLUNTEER EFFORTS TO INFLUENCE MORE FUNDING FOR CARDIAC HEART DEFECTS.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,561,397TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document9IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee12EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower Policy0WhistleblowerPolicyInd
Document Retention Policy0DocumentRetentionPolicyInd
Compensation Process CEO0CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1ABIGAIL RODDIE-HAMLINBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8476346474PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15 REVERE DRIVE ONE NORTHBROOK PLACEAddressLine1Txt
CityNORTHBROOKCityNm
State AbbreviationILStateAbbreviationCd
ZIP600621500ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerInd
KATHRYN OSTEEN
MEMBER10.00Yes (X)$0$0$0
DANIELLE PRADAS
MEMBER10.00Yes (X)$0$0$0
MELISSA ALEXANDER
MEMBER10.00Yes (X)$0$0$0
SALLY POWERS
SECRETARY10.00Yes (X)$0$0$0Yes (X)
LORI JONES
SECRETARY IN TRAINING10.00Yes (X)$0$0$0
WILLIAM ROACH
MEMBER10.00Yes (X)$0$0$0
TAMARA THOMAS
IMMEDIATE PAST BOARD CHAIR10.00Yes (X)$0$0$0Yes (X)
DR JENNIFER ROMANO
MEDICAL ADVISORY COUNCIL LIA10.00Yes (X)$0$0$0
DR JOHN COSTELLO
MEDICAL ADVISORY COUNCIL IN TRNG10.00Yes (X)$0$0$0
KEVIN SLAWIN
DIRECTOR10.00Yes (X)$0$0$0
MARTHA HAUBER
BOARD CHAIR10.00Yes (X)$0$0$0Yes (X)
JIM BOLOTIN
TREASURER10.00Yes (X)$0$0$0Yes (X)
KELLY WITTICH
ADVOCACY CHAIR10.00Yes (X)$0$0$0
BARBARA NEWHOUSE
CHIEF EXECUTIVE OFFICER40.00$154,000$0$0Yes (X)
FARRAH WATSON
DIRECTOR OF FINANCE AND OPERATIONS40.00$85,000$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$239,000TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
UNIVERSITY OF MICHIGAN CONGENITAL HEAR
1540 E HOSPITAL DR FLR 11ANN ARBORMI48109MEDICAL RESEARCH$300,000
MCDERMOTT WILL & EMERY
444 W LAKE STCHICAGOIL60606LEGAL$257,944
BLACKBAUD
2000 DANIEL ISLAND DRCHARLESTONSC29492INFORMATION TECHNOLOGY$205,640
AMERICAN HEART ASSOCIATION
7272 GREENVILLE AVEDALLASTX75231MEDICAL RESEARCH$200,000
THE CHILDREN'S HOSPITAL CORPORATION
300 LONGWOOD AVEBOSTONMA02115MEDICAL RESEARCH$199,326
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K5CntrctRcvdGreaterThan100KCnt
Fundraising$1,455,208FundraisingAmt
Government Grants$110,000GovernmentGrantsAmt
All Other Contributions$1,160,353AllOtherContributionsAmt
Total Contributions$2,725,561TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,037TotalRevenueColumnAmt
Exclusion$1,037ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$5,930FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,455,208ContriRptFundraisingEventAmt
Fundraising Direct Expenses$428,356FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$422,426TotalRevenueColumnAmt
Exclusion-$422,426ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOTHER INCOMEDesc
Business900099BusinessCd
Total Revenue Column$343TotalRevenueColumnAmt
Related Or Exempt Func Income$343RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$343OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,304,515TotalRevenueColumnAmt
Related Or Exempt Func Income$343RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion-$421,389ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$734,326TotalAmt
Program Services$734,326ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$799,536TotalAmt
Program Services$399,768ProgramServicesAmt
Management And General$175,898ManagementAndGeneralAmt
Fundraising$223,870FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$423,351TotalAmt
Program Services$211,676ProgramServicesAmt
Management And General$93,137ManagementAndGeneralAmt
Fundraising$118,538FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$54,543TotalAmt
Program Services$27,272ProgramServicesAmt
Management And General$11,999ManagementAndGeneralAmt
Fundraising$15,272FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$75,909TotalAmt
Program Services$37,955ProgramServicesAmt
Management And General$16,700ManagementAndGeneralAmt
Fundraising$21,254FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$191,561TotalAmt
Program Services$95,781ProgramServicesAmt
Management And General$42,143ManagementAndGeneralAmt
Fundraising$53,637FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$79,528TotalAmt
Program Services$39,764ProgramServicesAmt
Management And General$17,496ManagementAndGeneralAmt
Fundraising$22,268FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$8,628TotalAmt
Program Services$4,314ProgramServicesAmt
Management And General$1,898ManagementAndGeneralAmt
Fundraising$2,416FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$7,494TotalAmt
Program Services$3,747ProgramServicesAmt
Management And General$1,649ManagementAndGeneralAmt
Fundraising$2,098FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$2,580TotalAmt
Program Services$1,290ProgramServicesAmt
Management And General$568ManagementAndGeneralAmt
Fundraising$722FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$10,798TotalAmt
Program Services$5,399ProgramServicesAmt
Management And General$2,376ManagementAndGeneralAmt
Fundraising$3,023FundraisingAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescMISCELLANEOUSDesc
Total$209TotalAmt
Program Services$105ProgramServicesAmt
Management And General$46ManagementAndGeneralAmt
Fundraising$58FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,388,463TotalAmt
Program Services$1,561,397ProgramServicesAmt
Management And General$363,910ManagementAndGeneralAmt
Fundraising$463,156FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,614,253BOYAmt
EOY$1,263,993EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$410,190BOYAmt
EOY$411,077EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$160,098EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$102,222BOYAmt
EOY$109,813EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$42,742LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$35,877LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$6,795BOYAmt
EOY$6,865EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$27,468BOYAmt
EOY$34,948EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,160,928BOYAmt
EOY$1,986,794EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$864,371BOYAmt
EOY$776,045EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$34,533BOYAmt
EOY$32,673EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$898,904BOYAmt
EOY$808,718EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,161,029BOYAmt
EOY$843,803EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$100,995BOYAmt
EOY$334,273EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,262,024BOYAmt
EOY$1,178,076EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,160,928BOYAmt
EOY$1,986,794EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$83,948ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,399,112CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,509,205CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,544,951CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,396,929CurrentTaxYearMinus1YearAmt
Current Tax Year$2,303,135CurrentTaxYearAmt
Total$12,153,332TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,399,112CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,509,205CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,544,951CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,396,929CurrentTaxYearMinus1YearAmt
Current Tax Year$2,303,135CurrentTaxYearAmt
Total$12,153,332TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$12,153,332PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$285CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$400CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$83CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$612CurrentTaxYearMinus1YearAmt
Current Tax Year$1,037CurrentTaxYearAmt
Total$2,417TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$285CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$400CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$83CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$612CurrentTaxYearMinus1YearAmt
Current Tax Year$1,037CurrentTaxYearAmt
Total$2,417TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$2,323CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$30,507CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$257,746CurrentTaxYearMinus1YearAmt
Current Tax Year$343CurrentTaxYearAmt
Total$290,919TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,399,397CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,511,928CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,575,541CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,655,287CurrentTaxYearMinus1YearAmt
Current Tax Year$2,304,515CurrentTaxYearAmt
Total$12,446,668TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.97640PublicSupportCY509Pct
Public Support PY5090.97730PublicSupportPY509Pct
Investment Income CY0.00020InvestmentIncomeCYPct
Investment Income PY0.00010InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$42,742OtherCostOrOtherBasisAmt
Depreciation$35,877DepreciationAmt
Book Value$6,865BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$6,865TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$2,732,871TotalRevEtcAuditedFinclStmtAmt
Revenue Not Reported$0RevenueNotReportedAmt
Revenue Subtotal$2,732,871RevenueSubtotalAmt
Other Revenues Not Included-$428,356OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt-$428,356RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$2,304,515TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,816,819TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$428,356OtherExpensesIncludedAmt
Expenses Not Reported$428,356ExpensesNotReportedAmt
Expenses Subtotal$2,388,463ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,388,463TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART XI, LINE 4B - OTHER ADJUSTMENTS:SPECIAL EVENTS
PART XII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1EXTERNAL SPECIAL EVENTSEvent1Nm
Gross Receipts Event1$1,461,138GrossReceiptsEvent1Amt
Charitable Contri Event1$1,455,208CharitableContriEvent1Amt
Gross Revenue Event1$5,930GrossRevenueEvent1Amt
Non Cash Prizes Event1$19,972NonCashPrizesEvent1Amt
Rent Facility Costs Event1$42,941RentFacilityCostsEvent1Amt
Other Direct Expenses Event1$365,443OtherDirectExpensesEvent1Amt
Gross Receipts Total$1,461,138GrossReceiptsTotalAmt
Charitable Contributions Tot$1,455,208CharitableContributionsTotAmt
Gross Revenue Total Events$5,930GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events$19,972NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$42,941RentFcltyCostsTotalEventsAmt
Oth Direct Expnss Total Events$365,443OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$428,356DirectExpenseSummaryEventsAmt
Net Income Summary-$422,426NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
AMERICAN HEART ASSOCIATION
7272 GREENVILLE AVEDALLASTX75231$200,000RESEARCH
AMERICAN ACADEMY OF PEDIATRICS
345 PARK BLVDITASCAIL60143$35,000RESEARCH
CARDIAC NETWORKS UNITED
1000 OAKBROOK DR STE 100ANN ARBORMI48104$300,000RESEARCH
BOSTON CHILDREN'S HOSPITAL
PO BOX 414413BOSTONMA02241$199,326RESEARCH

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonBARBARA NEWHOUSEPersonNm
TitleCHIEF EXECUTIVE OFFICERTitleTxt
Base Compensation Filing Org$154,000BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$0BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$0OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$0DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$0NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$154,000TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$0CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BTHE ORGANIZATION'S BOARD TREASURER REVIEWS FORM 990 AND DISCUSSES IT DURING THE TREASURER'S REPORT AT THE NEXT BOARD MEETING.
FORM 990, PART VI, SECTION B, LINE 12CEVERY DIRECTOR AND OFFICER, IN A MANNER, FORM AND FREQUENCY TO BE PRESCRIBED BY THE BOARD OF DIRECTORS, SHALL BE REQUIRED, AS A CONDITION OF HIS OR HER OFFICE, TO DISCLOSE FULLY ANY INTEREST THAT COULD GIVE RISE TO A CONFLICT OF INTEREST AS DEFINED IN ARTICLE 8 OF THE ORGANIZATION'S BYLAWS AND ANY POLICY ADOPTED BY THE BOARD RELATING TO CONFLICT OF INTEREST.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION'S GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. THE FINANCIAL STATEMENTS ARE AVAILABLE ON THEIR WEBSITE.
FORM 990, PART IX, LINE 11GOTHER PROFESSIONAL EXPENSES: PROGRAM SERVICE EXPENSES 211,676. MANAGEMENT AND GENERAL EXPENSES 93,137. FUNDRAISING EXPENSES 118,538. TOTAL EXPENSES 423,351.