HUNTINGTONS DISEASE SOCIETY OF AMERICA INC: Form 990, tax year 2020
View the entire original 990 at ProPublica ↗
- Organization
- HUNTINGTONS DISEASE SOCIETY OF AMERICA INC (EIN 13-3349872)
- Tax period
- 2020-01-01 to 2020-12-31
- Filed
- 2021-07-16
- IRS object ID
- 202121979349301117
- Schema version
- 2020v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2021-07-16T12:17:32-05:00 | ReturnTs |
| Tax Period End | 2020-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EISNERAMPER LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 733 THIRD AVENUE | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 100172703 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2020-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 133349872 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HUNTINGTON'S DISEASE SOCIETY OF AMERICA INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| In Care Of | % ROSEMARY COLUCCIO | InCareOfNm |
| Business Name Control | HUNT | BusinessNameControlTxt |
| Phone | 2122421968 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 505 EIGHTH AVENUE SUITE 902 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Louise Vetter | PersonNm |
| Person Title | CEO | PersonTitleTxt |
| Phone | 2122421968 | PhoneNum |
| Signature | 2021-07-16 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | Louise | PersonFirstNm |
| Person Last | Vetter | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | 999009999 | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | WILLIAM EPSTEIN | PreparerPersonNm |
| PTIN | P01307171 | PTIN |
| Phone | 2129498700 | PhoneNum |
| Preparation | 2021-07-07 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2020 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Louise Vetter | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 505 EIGHTH AVENUE SUITE 902 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $8,901,197 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Group Exemption | 9201 | GroupExemptionNum |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.HDSA.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1986 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. is a HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. | ActivityOrMissionDesc |
| Voting Members Governing Body | 15 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 15 | VotingMembersIndependentCnt |
| Total Employee | 36 | TotalEmployeeCnt |
| Total Volunteers | 500 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $10,888,668 | PYContributionsGrantsAmt |
| CY Contributions Grants | $8,480,494 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $27,426 | PYInvestmentIncomeAmt |
| CY Investment Income | $24,533 | CYInvestmentIncomeAmt |
| PY Other Revenue | $101,289 | PYOtherRevenueAmt |
| CY Other Revenue | $81,919 | CYOtherRevenueAmt |
| PY Total Revenue | $11,017,383 | PYTotalRevenueAmt |
| CY Total Revenue | $8,586,946 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,129,504 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,612,868 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $3,985,760 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $3,964,488 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $1,084,333 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $3,077,906 | PYOtherExpensesAmt |
| CY Other Expenses | $1,654,839 | CYOtherExpensesAmt |
| PY Total Expenses | $9,193,170 | PYTotalExpensesAmt |
| CY Total Expenses | $8,232,195 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,824,213 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $354,751 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $10,968,665 | TotalAssetsBOYAmt |
| Total Assets EOY | $12,188,468 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,616,446 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,526,092 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $9,352,219 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $9,662,376 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | HUNTINGTON'S DISEASE SOCIETY OF AMERICA, INC. IS A NATIONAL VOLUNTARY HEALTH AND WELFARE ORGANIZATION DEDICATED TO IMPROVING THE LIVES OF PEOPLE WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $2,102,371 | ExpenseAmt |
| Grant | $1,103,059 | GrantAmt |
| Desc | RESEARCH - Supports research as advised by its Scientific Advisory Board. The research projects are involved in finding cures and treatments for Huntington's disease. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $2,794,287 | ExpenseAmt |
| Grant | $1,509,809 | GrantAmt |
| Desc | PATIENT AND FAMILY SERVICES - PROVIDES COUNSELING AND REFERRAL SERVICES TO PATIENTS WITH HUNTINGTON'S DISEASE AND THEIR FAMILIES. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $974,649 | ExpenseAmt |
| Desc | COMMUNITY OUTREACH - PROVIDES WORKSHOPS, SEMINARS, AND SYMPOSIUMS ON HUNTINGTON'S DISEASE THROUGH A NETWORK OF CHAPTER AFFILIATES AND BRANCHES THROUGHOUT THE UNITED STATES. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $757,658 | ExpenseAmt |
| Desc | EDUCATION | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $757,658 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $6,628,965 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (true) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | Yes (true) | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| Info In Schedule O Part V | Yes (X) | InfoInScheduleOPartVInd |
| IRP Document | 69 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 36 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form1098 C Filed | Yes (true) | Form1098CFiledInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 15 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 15 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ID | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ROSEMARY COLUCCIO | PersonNm |
| Phone | 2122421968 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 505 EIGHTH AVENUE SUITE 902 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (22 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|---|
| LOUISE VETTER | ||||||||
| CHIEF EXECUTIVE OFFICER | 35.0 | 3.0 | Yes (X) | $274,376 | $0 | $56,267 | ||
| GEORGE YOHRLING | ||||||||
| Sr. Dir. Mission & Sci Affairs | 35.0 | 3.0 | $233,994 | $0 | $13,117 | Yes (X) | ||
| Rosemary Coluccio | ||||||||
| Chief Operating Officer | 35.0 | 3.0 | Yes (X) | $220,662 | $0 | $22,220 | ||
| CHRISTOPHER COSENTINO | ||||||||
| Director of Marketing & Comm. | 35.0 | 3.0 | $126,438 | $0 | $48,872 | Yes (X) | ||
| DEBRA LOVECKY | ||||||||
| Dir of Program Serv & Advocacy | 35.0 | 3.0 | $151,476 | $0 | $23,518 | Yes (X) | ||
| NANCY RHODES | ||||||||
| Director of Field Dev & Oper. | 35.0 | 3.0 | $151,999 | $0 | $4,079 | Yes (X) | ||
| Jamison Skala | ||||||||
| Director, National Development | 35.0 | 3.0 | $127,511 | $0 | $9,760 | Yes (X) | ||
| ARIK JOHNSON PSYD | ||||||||
| PAST CHAIR | 6.0 | 3.0 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| KAMRAN ALAM | ||||||||
| TREASURER | 6.0 | 3.0 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| VICTOR SUNG MD | ||||||||
| CHAIR-ELECT | 6.0 | 3.0 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| EJ GARNER | ||||||||
| CHAIR | 6.0 | 3.0 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| JENNE COLER-DARK | ||||||||
| SECRETARY | 6.0 | 3.0 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| JAY HUGHES | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| DANIEL BRENNAN | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| STACY COEN | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| DANIEL VANDIVORT | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| TERESA SRAJER | ||||||||
| Trustee | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| WENDY ERLER | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| JONATHAN KLEIN | ||||||||
| Trustee | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| LESLIE M THOMPSON PHD | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| DONALD HIGGINS MD | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| VICKY WHEELOCK MD | ||||||||
| TRUSTEE | 6.0 | 3.0 | $0 | $0 | $0 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,286,456 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $177,833 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 8 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| JR GRAPHICS | |||||
| 56 ELIZABETH AVE | ELMWOOD PARK | NJ | 07407 | GRAPHIC DESIGN | $126,721 |
| LIBSHAP REALTY CORP | |||||
| 125 PARK AVE 11TH FLR | NEW YORK | NY | 10017 | REALTY | $300,283 |
| THORN RUN PARTNERS LLC | |||||
| 100 M ST SE | WASHINGTON DC | DC | 20003 | advocacy | $110,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $179,903 | FederatedCampaignsAmt |
| Fundraising | $978,304 | FundraisingAmt |
| Related Organizations | $1,577,568 | RelatedOrganizationsAmt |
| All Other Contributions | $5,744,719 | AllOtherContributionsAmt |
| Noncash Contributions | $295,757 | NoncashContributionsAmt |
| Total Contributions | $8,480,494 | TotalContributionsAmt |
| Total Program Service Revenue | $0 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $23,523 | TotalRevenueColumnAmt |
| Exclusion | $23,523 | ExclusionAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $0 | RealAmt |
| Personal | $0 | PersonalAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $222,649 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $221,639 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,010 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,010 | TotalRevenueColumnAmt |
| Exclusion | $1,010 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $92,612 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $978,304 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $92,612 | FundraisingDirectExpensesAmt |
| Gaming Gross Income | $0 | GamingGrossIncomeAmt |
| Gaming Direct Expenses | $0 | GamingDirectExpensesAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $0 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $0 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | MISCELLANEOUS | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $81,919 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $81,919 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $81,919 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $8,586,946 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $81,919 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $24,533 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,101,403 | TotalAmt |
| Program Services | $2,101,403 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $511,465 | TotalAmt |
| Program Services | $511,465 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $573,526 | TotalAmt |
| Program Services | $414,405 | ProgramServicesAmt |
| Management And General | $51,789 | ManagementAndGeneralAmt |
| Fundraising | $107,332 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,556,241 | TotalAmt |
| Program Services | $1,847,029 | ProgramServicesAmt |
| Management And General | $230,826 | ManagementAndGeneralAmt |
| Fundraising | $478,386 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $102,599 | TotalAmt |
| Program Services | $74,133 | ProgramServicesAmt |
| Management And General | $9,265 | ManagementAndGeneralAmt |
| Fundraising | $19,201 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $472,567 | TotalAmt |
| Program Services | $341,457 | ProgramServicesAmt |
| Management And General | $42,672 | ManagementAndGeneralAmt |
| Fundraising | $88,438 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $259,555 | TotalAmt |
| Program Services | $187,543 | ProgramServicesAmt |
| Management And General | $23,438 | ManagementAndGeneralAmt |
| Fundraising | $48,574 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $406 | TotalAmt |
| Management And General | $406 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $62,948 | TotalAmt |
| Management And General | $62,948 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,593 | TotalAmt |
| Management And General | $1,593 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $604,125 | TotalAmt |
| Program Services | $547,648 | ProgramServicesAmt |
| Management And General | $30,799 | ManagementAndGeneralAmt |
| Fundraising | $25,678 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $106,793 | TotalAmt |
| Program Services | $70,539 | ProgramServicesAmt |
| Management And General | $17,739 | ManagementAndGeneralAmt |
| Fundraising | $18,515 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $287,203 | TotalAmt |
| Program Services | $222,338 | ProgramServicesAmt |
| Management And General | $18,780 | ManagementAndGeneralAmt |
| Fundraising | $46,085 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,258 | TotalAmt |
| Program Services | $39,396 | ProgramServicesAmt |
| Management And General | $806 | ManagementAndGeneralAmt |
| Fundraising | $3,056 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $44,167 | TotalAmt |
| Program Services | $34,700 | ProgramServicesAmt |
| Management And General | $2,849 | ManagementAndGeneralAmt |
| Fundraising | $6,618 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $48,159 | TotalAmt |
| Program Services | $31,145 | ProgramServicesAmt |
| Management And General | $10,940 | ManagementAndGeneralAmt |
| Fundraising | $6,074 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| PRINTING AND PUBLICATIONS | $135,180 | $90,029 | $227 | $44,924 |
| PRIZES, GIFTS & AWARDS | $34,246 | $15,820 | $340 | $18,086 |
| EQUIPMENT RENTAL | $17,295 | $14,458 | $2,837 | |
| TELEPHONE | $64,056 | $45,101 | $3,848 | $15,107 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $205,410 | TotalAmt |
| Program Services | $40,356 | ProgramServicesAmt |
| Management And General | $9,632 | ManagementAndGeneralAmt |
| Fundraising | $155,422 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,232,195 | TotalAmt |
| Program Services | $6,628,965 | ProgramServicesAmt |
| Management And General | $518,897 | ManagementAndGeneralAmt |
| Fundraising | $1,084,333 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,443,343 | BOYAmt |
| EOY | $8,527,019 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,187,716 | BOYAmt |
| EOY | $1,130,598 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $159,116 | BOYAmt |
| EOY | $151,279 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $415,470 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $385,524 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $47,177 | BOYAmt |
| EOY | $29,946 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,069,844 | BOYAmt |
| EOY | $2,310,097 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $61,469 | BOYAmt |
| EOY | $39,529 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,968,665 | BOYAmt |
| EOY | $12,188,468 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $366,588 | BOYAmt |
| EOY | $489,890 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,088,162 | BOYAmt |
| EOY | $1,283,055 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $34,167 | BOYAmt |
| EOY | $0 | EOYAmt |
Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Escrow Account Liability EscrowAccountLiabilityGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Loans From Officers Directors LoansFromOfficersDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $634,692 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $127,529 | BOYAmt |
| EOY | $118,455 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,616,446 | BOYAmt |
| EOY | $2,526,092 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,953,703 | BOYAmt |
| EOY | $5,361,276 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,398,516 | BOYAmt |
| EOY | $4,301,100 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,352,219 | BOYAmt |
| EOY | $9,662,376 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,968,665 | BOYAmt |
| EOY | $12,188,468 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $354,751 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$1,094 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | -$43,500 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,562,031 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $10,235,578 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $10,105,837 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $10,888,668 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8,480,494 | CurrentTaxYearAmt |
| Total | $48,272,608 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,562,031 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $10,235,578 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $10,105,837 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $10,888,668 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8,480,494 | CurrentTaxYearAmt |
| Total | $48,272,608 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $4,529,532 | SubstantialContributorsTotAmt |
| Public Support Total170 | $43,743,076 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $11,983 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $11,333 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $32,605 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $27,014 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $23,523 | CurrentTaxYearAmt |
| Total | $106,458 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $5,021 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $23,362 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $26,892 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $101,289 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $81,919 | CurrentTaxYearAmt |
| Total | $238,483 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $48,617,549 | TotalSupportAmt |
| Public Support CY170 | 0.89974 | PublicSupportCY170Pct |
| Public Support PY170 | 0.92920 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Art Public Exhibition Amounts | ArtPublicExhibitionAmountsGrp | |
| Held Works Art | HeldWorksArtGrp |
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $268,961 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$95 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $268,866 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $268,506 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $455 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $268,961 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $267,431 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $1,075 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $268,506 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $264,877 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $2,554 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $267,431 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $281,881 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$17,004 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $264,877 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 0.92980 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.07020 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
| Land | LandGrp | |
| Buildings | BuildingsGrp |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $65,856 | OtherCostOrOtherBasisAmt |
| Depreciation | $59,951 | DepreciationAmt |
| Book Value | $5,905 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $332,529 | OtherCostOrOtherBasisAmt |
| Depreciation | $308,488 | DepreciationAmt |
| Book Value | $24,041 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $17,085 | OtherCostOrOtherBasisAmt |
| Depreciation | $17,085 | DepreciationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $29,946 | TotalBookValueLandBuildingsAmt |
| Federal Income Tax Liability | $0 | FederalIncomeTaxLiabilityAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| DEFERRED RENT | $114,721 |
| OBLIGATION UNDER CAPITAL LEASE | $3,734 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $118,455 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $8,970,625 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$1,094 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $31,708 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $1,932,226 | OtherRevenueAmt |
| Revenue Not Reported | $1,962,840 | RevenueNotReportedAmt |
| Revenue Subtotal | $7,007,785 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $1,593 | InvestmentExpensesNotIncldAmt |
| Other Revenues Not Included | $1,577,568 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $1,579,161 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $8,586,946 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $8,781,587 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $31,708 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $2,096,845 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $2,128,553 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,653,034 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $1,593 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $1,577,568 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $1,579,161 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $8,232,195 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE D, PART V, LINE 4: | FormAndLineReferenceDesc |
| Explanation | ENDOWMENT: The Society's endowment consists of one donor-restricted fund, established by the donor for the purpose of funding medical research in the field of Huntington's Disease. SCHEDULE D, PART X, LINE 2: The Society follows the provisions of the Financial Accounting Standards Board's (the "FASB") Accounting Standards Codification ("ASC") Topic 740, Income Taxes, as it relates to accounting and reporting for uncertainty in income taxes. Because of the Society's general tax-exempt status, management believes ASC Topic 740 has not had, and is not anticipated to have, a material impact on the Society's financial statements. SCHEDULE D, PART XI, LINE 2D & 4B: lINE 2D: TOTAL REVENUE FROM HDSA CHAPTERS OF ($1,932,226) LINE 4B: TOTAL PAYMENTS FROM HDSA CHAPTERS OF $1,577,568 SCHEDULE D, PART XII, LINE 2D: TOTAL EXPENSES FROM HDSA CHAPTERS ($2,053,345) LOSS ON UNCOLLECTIBLE ACCOUNTS ($43,500) ------------ ($2,096,845) SCHEDULE D, PART XII, LINE 4B: TOTAL PAYMENTS FROM HDSA CHAPTERS OF $1,577,568 | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|
| East Asia and the Pacific | Grantmaking | $150,000 |
| North America | Grantmaking | $150,000 |
| Europe (Including Iceland and Greenland) | Grantmaking | $211,465 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $511,465 | SubtotalSpentAmt |
| Total Spent | $511,465 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (5 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt |
|---|---|---|
| North America | Medical research | $150,000 |
| Europe (Including Iceland and Greenland) | Medical research | $75,000 |
| Europe (Including Iceland and Greenland) | Medical research | $73,000 |
| East Asia and the Pacific | Medical research | $150,000 |
| Europe (Including Iceland and Greenland) | Medical research | $63,465 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 5 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE F, PART I, LINE 1: | FormAndLineReferenceDesc |
| Explanation | MAINTAINING RECORDS FOREIGN ACTIVITIES: THE SOCIETY REQUESTS SEMI-ANNUAL FINANCIAL REPORTS FROM grantees' OFFICES. SCHEDULE F, PART I, LINE 3, COLUMN (F): AMOUNTS ARE REPORTED USING THE ACCRUAL METHOD OF ACCOUNTING. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | Walks | Event1Nm |
| Gross Receipts Event1 | $503,222 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $469,774 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $33,448 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $24,406 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $1,718 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $7,323 | OtherDirectExpensesEvent1Amt |
| Event2 | Gala | Event2Nm |
| Gross Receipts Event2 | $180,368 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $166,681 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $13,687 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $2,240 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $1,050 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $10,310 | FoodAndBeverageEvent2Amt |
| Other Direct Expenses Event2 | $87 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 16 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $387,326 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $341,849 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $45,477 | GrossRevenueOtherEventsAmt |
| Non Cash Prizes Other Events | $1,082 | NonCashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $21,416 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $7,880 | FoodAndBeverageOtherEventsAmt |
| Oth Direct Expnss Other Events | $15,100 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,070,916 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $978,304 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $92,612 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $27,728 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $24,184 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $18,190 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $22,510 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $92,612 | DirectExpenseSummaryEventsAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (60 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| Albany Medical College | |||||||
| 47 New Scotland Avenue Mail Code 7 | Albany | NY | 122083479 | 141338310 | 501(c)(3) | $34,200 | Community services |
| Beth Israel Deaconess Medical Center | |||||||
| 330 Brookline Avenue Research Finan | Boston | MA | 022150000 | 042103881 | 501(c)(3) | $150,000 | Medical research |
| Beth Israel Deaconess Medical Center | |||||||
| 109 Brookline Avenue RM 215 | Boston | MA | 022155491 | 042103881 | 501(c)(3) | $35,950 | Community services |
| Cleveland Clinic Foundation | |||||||
| 9500 Eculid Ave S-31 | Cleveland | OH | 44195 | 340714585 | 501(c)(3) | $24,000 | Community services |
| Columbia University Medical Center | |||||||
| 54 Haven Ave 2nd Floor | New York | NY | 10032 | 800496512 | Other | $75,000 | Medical research |
| Duke Movement Disorders Center | |||||||
| 932 Morreene Road | Durham | NC | 27705 | 560532129 | 501(c)(3) | $26,290 | Community services |
| Emory University | |||||||
| 1599 Clifton Rd 4th Fl Mailstop 1 | Atlanta | GA | 30322 | 580566256 | Other | $24,750 | Community services |
| Erlanger Health System | |||||||
| 979 E Third Street Suite C830 | Chattanooga | TN | 37373 | 626000101 | 501(c)(3) | $14,500 | Community services |
| Frederick Brinter Center for Parkinson's Disease & | |||||||
| 1 South Prospect Street Arnold 2 | Burlington | VT | 054010000 | 030219309 | 501(c)(3) | $18,843 | Community services |
| Georgetown University HD CERC | |||||||
| 2115 Wisconsin Avenue NW Suite 20 | Washington | DC | 20007 | 530196603 | 501(c)(3) | $26,500 | Community services |
| Hennepin Healthcare Research Institute | |||||||
| 825 8th Street South | Minneapolis | MN | 55404 | 411677920 | 501(c)(3) | $34,975 | Community services |
| Henry Ford Health System | |||||||
| 2799 West Grand Blvd CFP-463 | Detroit | MI | 48202 | 381357020 | 501(c)(3) | $9,000 | Community services |
| Johns Hopkins University | |||||||
| 600 N Wolfe Street CMSC 8-121 | Baltimore | MD | 21287 | 520595110 | 501(c)(3) | $34,550 | Community services |
| Mary Hitchcock Memorial Hospital | |||||||
| One Medical Center Drive | Lebanon | NH | 037660000 | 020222140 | 501(c)(3) | $9,500 | Community services |
| Massachusett General Hospital | |||||||
| 149 13th Street Rm 10126 | Charlestown | MA | 021290000 | 042697983 | 501(c)(3) | $26,500 | Community services |
| Massachusetts General Hospital | |||||||
| Bank of America NA PO Box 414876 | Boston | MA | 022414876 | 043167352 | 501(c)(3) | $75,000 | Medical research |
| Movement Disorders Foundation | |||||||
| PO Box 886 | Englewood | CO | 80151 | 271618835 | 501(c)(3) | $35,950 | Community services |
| Northwestern University | |||||||
| 710 N Lake Shore Drive 1124 | Chicago | IL | 60611 | 362167817 | 501(c)(3) | $34,200 | Community services |
| Northwestern University Feinberg School of Medicin | |||||||
| 633 Clark Room G547 | Evanston | IL | 60208 | 362167817 | 501(c)(3) | $55,672 | Medical research |
| Ochsner Health System | |||||||
| 1515 Jefferson Hwy 7th Fl Clinic T | New Orleans | LA | 70121 | 720502505 | 501(c)(3) | $16,820 | Community services |
| Ohio State University Wexner Medical Center | |||||||
| 395 W 12th Avenue 7th Floor | Columbus | OH | 43210 | 311145986 | 501(c)(3) | $48,500 | Community services |
| Oregon Health and Science University | |||||||
| 3181 SW Jam Jackson Park Rd OP 32 | Portland | OR | 97239 | 931176109 | GOVT | $9,268 | Community services |
| OSF Healthcare Illinois Neurological Institute | |||||||
| OSF Grants PO Box 775655 | Chicago | IL | 606775655 | 383852646 | 501(c)(3) | $6,875 | Community services |
| Regents of the University of California Davis Hea | |||||||
| 4860 Y Street Suite 3700 | Sacramento | CA | 95817 | 946036494 | 501(c)(3) | $71,100 | Community services |
| Rowan University | |||||||
| 201 Mullica Hill Road | Glassboro | NJ | 080280000 | 222764819 | Other | $15,000 | Community services |
| Rush University Medical Center | |||||||
| 1201 W Harrison Street Suite 300 | Chicago | IL | 60607 | 362174823 | 501(c)(3) | $42,275 | Community services |
| Sanford Health | |||||||
| 2301 E 60th Street N Route 5031 | Fargo | ND | 57104 | 450226909 | 501(c)(3) | $18,861 | Community services |
| Stanford University | |||||||
| 485 Broadway 4th Floor | Redwood City | CA | 94063 | 946174066 | Other | $15,538 | Community services |
| The Rector & Visitors of the University of Virgini | |||||||
| 101 Hospial Dr Davis 5 RM 5293 PO | Charlottesville | VA | 229080001 | 546001796 | 501(c)(3) | $42,584 | Community services |
| The Regent of the University of California-San Fra | |||||||
| POB 748872 | Los Angeles | CA | 90074 | 946036493 | 501(c)(3) | $25,000 | Community services |
| The Research Foundation for the State University o | |||||||
| Stony Brook University W5510 Melvi | Stony Brook | NY | 117943366 | 141368361 | 501(c)(3) | $9,000 | Community services |
| The Trustees of Columbia University in the City of | |||||||
| 622 West 168th Street PH-19 Room 31 | New York | NY | 10032 | 135598093 | 501(c)(3) | $44,788 | Community services |
| Trustees of Indiana University | |||||||
| 980 Indiana Avenue | Indianapolis | IN | 46202 | 356001673 | GOVT | $26,579 | Community services |
| Trustees of the University of Pennsylvania | |||||||
| 3451 Walnut Street | Philadelphia | PA | 19104 | 231352685 | 501(c)(3) | $36,000 | Community services |
| UC Regents | |||||||
| Box 957089 1125 Murphy Hall | Los Angeles | CA | 90095 | 956006143 | 501(c)(3) | $45,674 | Community services |
| University Neurology Inc | |||||||
| 77 Goodell Street Suite 310 | Buffalo | NY | 14203 | 161359213 | 501(c)(3) | $12,750 | Community services |
| University of Alabama Birmingham | |||||||
| 1720 7th Avenue S SC 460A1 | Birmingham | AL | 35294 | 630649108 | 501(c)(3) | $46,007 | Community services |
| University of California Movement Disorders Progr | |||||||
| 150 Medical Surge 1 | Irvine | CA | 92697 | 952226406 | GOVT | $16,500 | Community services |
| University of California San Diego | |||||||
| 9500 Gilman Drive MC0041 | La Jolla | CA | 92093 | 956006144 | 501(c)(3) | $48,500 | Community services |
| University of Colorado Anschutz Medical Campus | |||||||
| PO Box 910238 | Denver | CO | 802910238 | 846000555 | 501(c)(3) | $26,500 | Community services |
| University of Florida | |||||||
| 33 Tigert Hall PO Box 113001 | Gainsville | FL | 326113001 | 596002052 | Other | $24,000 | Community services |
| University of Iowa Department of Neurology | |||||||
| 200 Hawkins Dr 8820-12JPP | Iowa City | IA | 52242 | 426004813 | GOVT | $34,200 | Community services |
| University of Kansas Medical Center | |||||||
| 3901 Rainbow Blvd MS30 | Kansas City | KS | 66160 | 481108830 | 501(c)(3) | $9,000 | Community services |
| University of Louisville | |||||||
| 500 South Preston Street Suite 113 | Louisville | KY | 40202 | 611014882 | 501(c)(3) | $14,750 | Community services |
| University of Massachusetts Medical School | |||||||
| 55 Lake Avenue North | Worcester | MA | 016650000 | 043167352 | Other | $240,000 | Medical research |
| University of Miami | |||||||
| Office of Research Administration | Atlanta | GA | 303845803 | 590624458 | 501(c)(3) | $11,500 | Community services |
| University of Mississippi Medical Center | |||||||
| 2500 N State Street | Jackson | MS | 392164505 | 646008520 | GOVT | $8,425 | Community services |
| University of Nebraska Medical Center | |||||||
| 988440 Nebraska Medical Center | Omaha | NE | 68198 | 470049123 | 501(c)(3) | $17,926 | Community services |
| University of Pittsburgh Physicians | |||||||
| 3600 Forbes Avenue 9th Floor Cubi | Pittsburgh | PA | 15213 | 232919472 | Other | $34,200 | Community services |
| University of Rochester Medical Center | |||||||
| 601 Elmwood Avenue Box 673 | Rochester | NY | 146428673 | 160743209 | Other | $43,500 | Community services |
| University of South Carolina School of Medicine | |||||||
| 1 Medical Park Rd Suite 230 | Columbia | SC | 29203 | 576001153 | GOVT | $15,500 | Community services |
| University of South Florida | |||||||
| 13220 USF Laurel Drive Room 4105 | Tampa | FL | 33612 | 590879015 | 501(c)(3) | $30,000 | Community services |
| University of Texas Health Science Center | |||||||
| Department of Neurology PO Box 3 | Dallas | TX | 753031418 | 741761309 | Other | $35,950 | Community services |
| University of Utah | |||||||
| 650 Komas Drive 106A | Salt Lake City | UT | 84108 | 876000525 | 501(c)(3) | $26,500 | Community services |
| University of Washington | |||||||
| 1959 NE Pacific Street | Seattle | WA | 98195 | 916001537 | GOVT | $60,342 | Community services |
| University of Wisconsin - Madison | |||||||
| 21 N Park Street Ste 6401 | Madison | WI | 537151218 | 396006492 | 501(c)(3) | $14,450 | Community services |
| UT Medical Center | |||||||
| 1924 Alcoa Highway Box U52 | Knoxville | TN | 37920 | 311626179 | 501(c)(3) | $14,500 | Community services |
| Vanderbilt University Medical Center | |||||||
| Medical Center North A-0118 | Nashville | TN | 37232 | 352528741 | 501(c)(3) | $42,269 | Community services |
| Virginia Commonwealth University | |||||||
| 800 East Leigh St Suite 3100 POB | Richmond | VA | 23284 | 546001758 | GOVT | $19,000 | Community services |
| Washington University | |||||||
| 700 Rosedale Avenue Cmpus Box 1034 | St Louis | MO | 63112 | 430653611 | 501(c)(3) | $37,875 | Community services |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 43 | Total501c3OrgCnt |
| Total Other Org | 17 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE I, PART I, LINE 1: | FormAndLineReferenceDesc |
| Explanation | MAINTAINING RECORDS FOR GRANT ACTIVITIES: THE ORGANIZATION REQUESTS SEMI-ANNUAL FINANCIAL REPORTS FROM recipients. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| LOUISE VETTER | ||||||||||||||
| CHIEF EXECUTIVE OFFICER | $274,376 | $0 | $0 | $0 | $0 | $0 | $14,250 | $0 | $42,017 | $0 | $330,643 | $0 | $0 | $0 |
| GEORGE YOHRLING | ||||||||||||||
| Sr. Dir. Mission & Sci Affairs | $233,994 | $0 | $0 | $0 | $0 | $0 | $11,750 | $0 | $1,367 | $0 | $247,111 | $0 | $0 | $0 |
| NANCY RHODES | ||||||||||||||
| Director of Field Dev & Oper. | $151,999 | $0 | $0 | $0 | $0 | $0 | $1,879 | $0 | $2,200 | $0 | $156,078 | $0 | $0 | $0 |
| DEBRA LOVECKY | ||||||||||||||
| Dir of Program Serv & Advocacy | $151,476 | $0 | $0 | $0 | $0 | $0 | $7,800 | $0 | $15,718 | $0 | $174,994 | $0 | $0 | $0 |
| CHRISTOPHER COSENTINO | ||||||||||||||
| Director of Marketing & Comm. | $126,438 | $0 | $0 | $0 | $0 | $0 | $6,807 | $0 | $42,065 | $0 | $175,310 | $0 | $0 | $0 |
| Rosemary Coluccio | ||||||||||||||
| Chief Operating Officer | $220,662 | $0 | $0 | $0 | $0 | $0 | $8,913 | $0 | $13,307 | $0 | $242,882 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE J, PART 1: | FormAndLineReferenceDesc |
| Explanation | COMPENSATION DETERMINATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD. | ExplanationTxt |
Schedule M IRS990ScheduleM
| Field | Value | IRS element (for citing) |
|---|---|---|
| Works Of Art | WorksOfArtGrp | |
| Art Historical Treasures | ArtHistoricalTreasuresGrp | |
| Art Fractional Interest | ArtFractionalInterestGrp | |
| Books And Publications | BooksAndPublicationsGrp | |
| Clothing And Household Goods | ClothingAndHouseholdGoodsGrp |
Cars And Other Vehicles CarsAndOtherVehiclesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Method Of Determining Revenues | see supp info | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Boats And Planes | BoatsAndPlanesGrp | |
| Intellectual Property | IntellectualPropertyGrp |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 22 | ContributionCnt |
| Noncash Contributions Rpt F990 | $222,699 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities Closely Held Stock | SecuritiesCloselyHeldStockGrp | |
| Secur Prtnrshp Trust Intrsts | SecurPrtnrshpTrustIntrstsGrp | |
| Securities Miscellaneous | SecuritiesMiscellaneousGrp | |
| Qualified Contrib Hist Struct | QualifiedContribHistStructGrp | |
| Qualified Contrib Other | QualifiedContribOtherGrp | |
| Real Estate Residential | RealEstateResidentialGrp | |
| Real Estate Commercial | RealEstateCommercialGrp | |
| Real Estate Other | RealEstateOtherGrp | |
| Collectibles | CollectiblesGrp | |
| Food Inventory | FoodInventoryGrp | |
| Drugs And Medical Supplies | DrugsAndMedicalSuppliesGrp | |
| Taxidermy | TaxidermyGrp | |
| Historical Artifacts | HistoricalArtifactsGrp | |
| Scientific Specimens | ScientificSpecimensGrp | |
| Archaeological Artifacts | ArchaeologicalArtifactsGrp |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | donated goods | Desc |
| Contribution | 309 | ContributionCnt |
| Noncash Contributions Rpt F990 | $73,058 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (true) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (true) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE M, LINE 32A: | FormAndLineReferenceDesc |
| Explanation | THE SOCIETY IS THE RECIPIENT OF PROCEEDS FROM THE SALES OF VEHICLES AND SECURITIES DONATIONS THROUGH UNRELATED INTERMEDIARY ORGANIZATIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART III - PROGRAM SERVICES 4D: | Education Provides information and education through publication and distribution of newsletters, brochures and science updates. FORM 990, PAGE 1, PART I, QUESTION 5, AND PAGE 5, PART V, QUESTION 2A: PAYROLL: The Society currently employs 36 individuals. Payroll and benefits are processed through a professional employer organization (PEO) which files the form w-3 on the Society's behalf under the peo's federal EIN#. Therefore the society does not file a form w-3. |
| FORM 990, PART VI, SECTION B, LINE 11B: | REVIEW OF FORM 990: MANAGEMENT THOROUGHLY REVIEWS AND SUBSEQUENTLY PROVIDES AN ELECTRONIC DRAFT COPY OF FORM 990 TO THE GOVERNING BODY FOR REVIEW BEFORE FILING WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C: | CONFLICT OF INTEREST POLICY: OFFICERS AND TRUSTEES ARE REQUESTED TO ANNUALLY SIGN DOCUMENTATION. |
| FORM 990, PART VI, SECTION B, LINE 15A AND 15B: | OFFICER COMPENSATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION OF THE BOARD. |
| FORM 990, PART VI, SECTION C, LINE 19: | GOVERNING DOCUMENTS: THE SOCIETY MAKES ITS by-laws, ARTICLES OF INCORPORATION, IRS FORM 1023, annual reports, audited financial statements, IRS Form 990 documents, conflict of interest policy and privacy policy AVAILABLE TO THE PUBLIC UPON REQUEST. |
| FORM 990, PART XI, LINE 9: | OTHER CHANGES IN NET ASSETS: INCLUDES LOSS OF UNCOLLECTIBLE ACCOUNTS ($43,500) |
Schedule R IRS990ScheduleR
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HUNTINGTON'S DISEASE SOCIETY OF AMERICA | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 505 EIGHTH AVENUE SUITE 902 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 900658125 | EIN |
| Primary Activities | PROGRAM SRVC | PrimaryActivitiesTxt |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Exempt Code Section | 501(c)(3) | ExemptCodeSectionTxt |
| Public Charity Status | 7 | PublicCharityStatusTxt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HDSA Nat'l | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Controlled Organization | false | ControlledOrganizationInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | false | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | Yes (true) | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | Yes (true) | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | false | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | false | LoansOrGuaranteesFromOthOrgInd |
| Asset Sale To Other Org | false | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | false | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | false | AssetExchangeInd |
| Rental Of Facilities To Oth Org | false | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | false | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | Yes (true) | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | false | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | Yes (true) | SharingOfFacilitiesInd |
| Paid Employees Sharing | Yes (true) | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | false | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | false | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | false | TransferToOtherOrgInd |
| Transfer From Other Org | false | TransferFromOtherOrgInd |