AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
Tax period: 2020-02-01 to 2021-01-31
Filed: 2021-06-15
IRS object ID: 202141669349301914
Schema version: 2020v4.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2021-06-15T13:52:10-05:00	ReturnTs
Tax Period End	2021-01-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	410746749	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	CLIFTONLARSONALLEN LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	901 N GLEBE ROAD SUITE 200	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22203	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2020-02-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	133271855	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	AMYOTROPHIC LATERAL SCLEROSIS ASSN	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	AMYO	BusinessNameControlTxt
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1300 WILSON BLVD NO 600	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22209	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	GREGORY MITCHELL	PersonNm
Person Title	CHIEF FINANCIAL OFFICER	PersonTitleTxt
Phone	2024078580	PhoneNum
Signature	2021-06-15	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	GREGORY	PersonFirstNm
Person Last	MITCHELL	PersonLastNm

Field	Value	IRS element (for citing)
SSN	XXX-XX-XXXX	SSN

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	MICHAELA J CROMAR CPA	PreparerPersonNm
PTIN	P00895728	PTIN
Phone	5712279500	PhoneNum
Preparation	2021-06-15	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	3	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2020	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Principal Officer	CALANEET BALAS	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1300 WILSON BLVD NO 600	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22209	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$49,026,377	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Group Exemption	4119	GroupExemptionNum
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.ALS.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1985	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.	ActivityOrMissionDesc
Voting Members Governing Body	24	VotingMembersGoverningBodyCnt
Voting Members Independent	24	VotingMembersIndependentCnt
Total Employee	123	TotalEmployeeCnt
Total Volunteers	31	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$34,202,008	PYContributionsGrantsAmt
CY Contributions Grants	$33,002,036	CYContributionsGrantsAmt
PY Program Service Revenue	$112,947	PYProgramServiceRevenueAmt
CY Program Service Revenue	$34,050	CYProgramServiceRevenueAmt
PY Investment Income	$2,827,122	PYInvestmentIncomeAmt
CY Investment Income	$2,132,313	CYInvestmentIncomeAmt
PY Other Revenue	-$110,273	PYOtherRevenueAmt
CY Other Revenue	-$55,882	CYOtherRevenueAmt
PY Total Revenue	$37,031,804	PYTotalRevenueAmt
CY Total Revenue	$35,112,517	CYTotalRevenueAmt
PY Grants And Similar Paid	$19,723,207	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$13,659,140	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$10,678,002	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$12,424,475	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$890,893	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$349,450	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$7,151,837	CYTotalFundraisingExpenseAmt
PY Other Expenses	$10,516,401	PYOtherExpensesAmt
CY Other Expenses	$12,003,131	CYOtherExpensesAmt
PY Total Expenses	$41,808,503	PYTotalExpensesAmt
CY Total Expenses	$38,436,196	CYTotalExpensesAmt
PY Revenues Less Expenses	-$4,776,699	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$3,323,679	CYRevenuesLessExpensesAmt
Total Assets BOY	$98,033,652	TotalAssetsBOYAmt
Total Assets EOY	$100,284,898	TotalAssetsEOYAmt
Total Liabilities BOY	$7,837,360	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$7,215,213	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$90,196,292	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$93,069,685	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$12,483,281	ExpenseAmt
Grant	$10,955,765	GrantAmt
Desc	RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS).	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$11,512,369	ExpenseAmt
Grant	$2,703,122	GrantAmt
Desc	PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$4,074,358	ExpenseAmt
Grant	$253	GrantAmt
Revenue	$34,050	RevenueAmt
Desc	PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2021, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$28,070,008	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	59	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Employee	123	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	0	QuidProQuoContributionsInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (1)	Form1098CFiledInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	24	GoverningBodyVotingMembersCnt
Independent Voting Member	24	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	Yes (1)	MembersOrStockholdersInd
Election Of Board Members	Yes (1)	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	GREGORY MITCHELL	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1300 WILSON BLVD NO 600	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22209	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (40 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd
CALANEET BALAS
PRESIDENT AND CEO	50.00	Yes (X)	$354,590	$0	$44,614
GREG MITCHELL
CHIEF FINANCIAL OFFICER	50.00	Yes (X)	$271,938	$0	$29,786
NEIL THAKUR
CHIEF MISSION OFFICER	50.00		$256,502	$0	$38,707	Yes (X)
LANCE SLAUGHTER
SVP STRATEGIC ALLIANCES AND GOVERNANCE	50.00		$246,111	$0	$40,848		Yes (X)
TINA ZEFF
CHIEF OPERATIONS OFFICER	50.00		$242,183	$0	$40,669	Yes (X)
BRIAN FREDERICK
SENIOR VICE PRESIDENT AND HEAD OF CREATIVE	50.00		$227,206	$0	$23,592		Yes (X)
KULDIP DAVE
VICE PRESIDENT RESEARCH	50.00		$205,277	$0	$35,692		Yes (X)
KIMBERLY HARDING-MAGINNIS
SENIOR VICE PRESIDENT CARE SERVICES	50.00		$203,688	$0	$28,544		Yes (X)
TERESSA HARRIS
SENIOR VICE PRESIDENT FINANCE	50.00		$183,783	$0	$28,469		Yes (X)
SUE GORMAN
CHAIRMAN	15.00	Yes (X)	$0	$0	$0			Yes (X)
CAMERON WARD
SECRETARY	15.00	Yes (X)	$0	$0	$0			Yes (X)
MARK CALMES
VICE-CHAIR	15.00	Yes (X)	$0	$0	$0			Yes (X)
CONNIE HOUSTON
TREASURER	15.00	Yes (X)	$0	$0	$0			Yes (X)
SCOTT KAUFFMAN
SECRETARY	15.00	Yes (X)	$0	$0	$0			Yes (X)
MARK STANCIL
TRUSTEE	8.00		$0	$0	$0			Yes (X)
TOM CARROLL
TRUSTEE	8.00		$0	$0	$0			Yes (X)
DON CASEY
TRUSTEE	8.00		$0	$0	$0			Yes (X)
FRED M DEGRANDIS
TRUSTEE	8.00		$0	$0	$0			Yes (X)
MILLIE ARNOLD
TRUSTEE	8.00		$0	$0	$0			Yes (X)
CHRISTI L KOLARCIK PHD
TRUSTEE	8.00		$0	$0	$0			Yes (X)
JOHN P KRAVE JD
TRUSTEE	8.00		$0	$0	$0			Yes (X)
LOU LIBBY MD
TRUSTEE	8.00		$0	$0	$0			Yes (X)
WARREN NELSON
TRUSTEE	8.00		$0	$0	$0			Yes (X)
STUART OBERMANN
TRUSTEE	8.00		$0	$0	$0			Yes (X)
KEITH A GARY PH D
TRUSTEE	8.00		$0	$0	$0			Yes (X)
JUDY PRATT DMD
TRUSTEE	8.00		$0	$0	$0			Yes (X)
CHARLIE ROBINSON D SC PE
TRUSTEE	8.00		$0	$0	$0			Yes (X)
WENDY J SCHRIBER
TRUSTEE	8.00		$0	$0	$0			Yes (X)
WILLIAM D SOFFEL
TRUSTEE	8.00		$0	$0	$0			Yes (X)
EUGENE BRANDON PHD
TRUSTEE	8.00		$0	$0	$0			Yes (X)
CLIFTON GOOCH MD
TRUSTEE	8.00		$0	$0	$0			Yes (X)
DOUG BUTCHER
TRUSTEE	8.00		$0	$0	$0			Yes (X)
TOBIN M KUCHARSKI
TRUSTEE	8.00		$0	$0	$0			Yes (X)
J THOMAS MAY
TRUSTEE	8.00		$0	$0	$0			Yes (X)
WILLIAM THOETT
TRUSTEE	8.00		$0	$0	$0			Yes (X)
JINSY ANDREWS
TRUSTEE	8.00		$0	$0	$0			Yes (X)
KEVIN SPINELLA
TRUSTEE	8.00		$0	$0	$0			Yes (X)
KENNETH MENKHAUS
TRUSTEE	8.00		$0	$0	$0			Yes (X)
LARRY FALIVENA
TRUSTEE	8.00		$0	$0	$0			Yes (X)
DAVID VAN DE RIET
TRUSTEE	8.00		$0	$0	$0			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,191,278	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$310,921	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	32	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
ATTAIN LLC
1600 TYSONS BLVD 1400	MCLEAN	VA	22102	CRM SOFTWARE IMPLEMENTATION	$2,006,004
SALESFORCE
415 MISSION ST 3RD FLOOR	SAN FRANCISCO	CA	95105	CRM SOFTWARE VENDOR	$1,072,756
TURNKEY PROMOTIONS
3310 ROSEDALE AVE	RICHMOND	VA	23230	MARKETING CONSULTING SERVICES	$1,021,512
BUGLE LLC
1814 1ST ST NW	WASHINGTON	DC	20001	COMMUNICATION CONSULTING SERVICES	$330,937
LAUTMAN MASKA NEILL & CO
1730 RHODE ISLAND AVE NW STE 301	WASHINGTON	DC	20036	FUNDRAISING COUNSEL	$255,700

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	7	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$53,328	FederatedCampaignsAmt
Fundraising	$1,092,362	FundraisingAmt
Government Grants	$398,545	GovernmentGrantsAmt
All Other Contributions	$31,457,801	AllOtherContributionsAmt
Noncash Contributions	$5,874,895	NoncashContributionsAmt
Total Contributions	$33,002,036	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	CONFERENCE FEES	Desc
Business	900099	BusinessCd
Total Revenue Column	$34,050	TotalRevenueColumnAmt
Related Or Exempt Func Income	$34,050	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$34,050	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,985,828	TotalRevenueColumnAmt
Exclusion	$1,985,828	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$13,985,239	SecuritiesAmt
Other	$400	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$13,839,154	SecuritiesAmt
Other	$0	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$146,085	SecuritiesAmt
Other	$400	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$146,485	TotalRevenueColumnAmt
Exclusion	$146,485	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$0	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$1,092,362	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$74,706	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$74,706	TotalRevenueColumnAmt
Exclusion	-$74,706	ExclusionAmt

Miscellaneous Revenue MiscellaneousRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$18,824	TotalRevenueColumnAmt
Exclusion	$18,824	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$18,824	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$35,112,517	TotalRevenueColumnAmt
Related Or Exempt Func Income	$34,050	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$2,076,431	ExclusionAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part IX	Yes (X)	InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$12,712,232	TotalAmt
Program Services	$12,712,232	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$78,844	TotalAmt
Program Services	$78,844	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$868,064	TotalAmt
Program Services	$868,064	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,278,989	TotalAmt
Program Services	$857,053	ProgramServicesAmt
Management And General	$387,145	ManagementAndGeneralAmt
Fundraising	$34,791	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$9,081,444	TotalAmt
Program Services	$6,300,744	ProgramServicesAmt
Management And General	$989,471	ManagementAndGeneralAmt
Fundraising	$1,791,229	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$477,116	TotalAmt
Program Services	$334,739	ProgramServicesAmt
Management And General	$41,057	ManagementAndGeneralAmt
Fundraising	$101,320	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$734,942	TotalAmt
Program Services	$502,117	ProgramServicesAmt
Management And General	$95,462	ManagementAndGeneralAmt
Fundraising	$137,363	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$851,984	TotalAmt
Program Services	$588,579	ProgramServicesAmt
Management And General	$111,399	ManagementAndGeneralAmt
Fundraising	$152,006	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$375,926	TotalAmt
Management And General	$111,822	ManagementAndGeneralAmt
Fundraising	$264,104	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$44,011	TotalAmt
Management And General	$44,011	ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$349,450	TotalAmt
Fundraising	$349,450	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$192,701	TotalAmt
Management And General	$192,701	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$6,777,581	TotalAmt
Program Services	$2,541,805	ProgramServicesAmt
Management And General	$728,238	ManagementAndGeneralAmt
Fundraising	$3,507,538	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$332,335	TotalAmt
Program Services	$310,069	ProgramServicesAmt
Management And General	$1,105	ManagementAndGeneralAmt
Fundraising	$21,161	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$207,757	TotalAmt
Program Services	$164,066	ProgramServicesAmt
Management And General	$15,131	ManagementAndGeneralAmt
Fundraising	$28,560	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$591,794	TotalAmt
Program Services	$390,400	ProgramServicesAmt
Management And General	$58,061	ManagementAndGeneralAmt
Fundraising	$143,333	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$579,414	TotalAmt
Program Services	$435,479	ProgramServicesAmt
Management And General	$90,386	ManagementAndGeneralAmt
Fundraising	$53,549	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$161,293	TotalAmt
Program Services	$125,801	ProgramServicesAmt
Management And General	$22,288	ManagementAndGeneralAmt
Fundraising	$13,204	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$1,105,513	TotalAmt
Program Services	$615,300	ProgramServicesAmt
Management And General	$151,987	ManagementAndGeneralAmt
Fundraising	$338,226	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CHAPTER SUPPORT	$860,830	$859,377	$953	$500
CREDIT CARD & DATA FEES	$322,406	$91,538	$102,280	$128,588
TELECOMMUNICATIONS	$217,439	$159,875	$17,570	$39,994
DUES AND SUBSCRIPTIONS	$164,386	$95,108	$43,695	$25,583

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$69,745	TotalAmt
Program Services	$38,818	ProgramServicesAmt
Management And General	$9,589	ManagementAndGeneralAmt
Fundraising	$21,338	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$38,436,196	TotalAmt
Program Services	$28,070,008	ProgramServicesAmt
Management And General	$3,214,351	ManagementAndGeneralAmt
Fundraising	$7,151,837	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,708,000	TotalAmt
Program Services	$305,000	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$1,403,000	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$2,899,434	BOYAmt
EOY	$5,348,756	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$2,185,573	BOYAmt
EOY	$821,786	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$5,138,931	BOYAmt
EOY	$4,677,732	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$196,562	BOYAmt
EOY	$203,455	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$570,021	BOYAmt
EOY	$1,300,138	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$6,569,698	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$1,550,154	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$157,666	BOYAmt
EOY	$5,019,544	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$79,137,064	BOYAmt
EOY	$78,834,650	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$7,748,401	BOYAmt
EOY	$4,078,837	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$98,033,652	BOYAmt
EOY	$100,284,898	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$4,733,477	BOYAmt
EOY	$2,762,825	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$1,142,569	BOYAmt
EOY	$271,383	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$15,350	BOYAmt
EOY	$10,000	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$1,945,964	BOYAmt
EOY	$4,171,005	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$7,837,360	BOYAmt
EOY	$7,215,213	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$79,169,831	BOYAmt
EOY	$77,102,484	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$11,026,461	BOYAmt
EOY	$15,967,201	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$90,196,292	BOYAmt
EOY	$93,069,685	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$98,033,652	BOYAmt
EOY	$100,284,898	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$3,323,679	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$6,122,944	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$74,128	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$27,407,957	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$23,216,448	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$29,429,700	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$34,202,008	CurrentTaxYearMinus1YearAmt
Current Tax Year	$33,002,094	CurrentTaxYearAmt
Total	$147,258,207	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$27,407,957	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$23,216,448	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$29,429,700	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$34,202,008	CurrentTaxYearMinus1YearAmt
Current Tax Year	$33,002,094	CurrentTaxYearAmt
Total	$147,258,207	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$1,606,953	SubstantialContributorsTotAmt
Public Support Total170	$145,651,254	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,633,793	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,156,702	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,641,824	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,782,381	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,985,828	CurrentTaxYearAmt
Total	$12,200,528	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$47,788	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$43,647	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$56,636	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$57,282	CurrentTaxYearMinus1YearAmt
Current Tax Year	$18,824	CurrentTaxYearAmt
Total	$224,177	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$159,682,912	TotalSupportAmt
Gross Receipts Rltd Activities	$466,354	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.91210	PublicSupportCY170Pct
Public Support PY170	0.92050	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$7,109	FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$213,589	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$220,698	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$38,215,498	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$38,436,196	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$466,481	CurrentYearMinus3Amt
Current Year Minus2	$453,482	CurrentYearMinus2Amt
Current Year Minus1	$565,604	CurrentYearMinus1Amt
Current Year	$220,698	CurrentYearAmt
Total	$1,706,265	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$15,724	CurrentYearMinus3Amt
Current Year Minus2	$13,778	CurrentYearMinus2Amt
Current Year Minus1	$64,007	CurrentYearMinus1Amt
Current Year	$7,109	CurrentYearAmt
Total	$100,618	TotalAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	$669,572	InvestmentEarningsOrLossesAmt
Other Expenditures	$669,572	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,454,731	BeginningYearBalanceAmt
Investment Earnings Or Losses	$587,974	InvestmentEarningsOrLossesAmt
Other Expenditures	$526,390	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$61,584	InvestmentEarningsOrLossesAmt
End Year Balance	$6,454,731	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	$482,577	InvestmentEarningsOrLossesAmt
Other Expenditures	$482,577	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,333,662	BeginningYearBalanceAmt
Investment Earnings Or Losses	$386,180	InvestmentEarningsOrLossesAmt
Other Expenditures	$203,527	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	0.03677	PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY	0.96322	TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,087,224	OtherCostOrOtherBasisAmt
Depreciation	$90,602	DepreciationAmt
Book Value	$996,622	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$673,382	OtherCostOrOtherBasisAmt
Depreciation	$205,207	DepreciationAmt
Book Value	$468,175	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$4,809,092	OtherCostOrOtherBasisAmt
Depreciation	$1,254,345	DepreciationAmt
Book Value	$3,554,747	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$5,019,544	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)

DescDesc	AmtAmt
ANNUITY PAYMENT LIABILITY	$1,041,709
DEFERRED RENT	$1,516,176
PAYCHECK PROTECTION PROGRAM LOAN	$1,613,120

Field	Value	IRS element (for citing)
Total Liability	$4,171,005	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$62,723,665	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$6,122,944	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$21,606,777	DonatedServicesAndUseFcltsAmt
Other Revenue	$74,128	OtherRevenueAmt
Revenue Not Reported	$27,803,849	RevenueNotReportedAmt
Revenue Subtotal	$34,919,816	RevenueSubtotalAmt
Investment Expenses Not Incld	$192,701	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$192,701	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$35,112,517	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$59,850,272	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$21,606,777	DonatedServicesUseFcltsAmt
Expenses Not Reported	$21,606,777	ExpensesNotReportedAmt
Expenses Subtotal	$38,243,495	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$192,701	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$192,701	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$38,436,196	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES.
PART X, LINE 2:	THE ASSOCIATION DID NOT HAVE ANY UNRELATED TAXABLE INCOME FOR THE YEARS ENDED JANUARY 31, 2021 AND 2020. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED THAT ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. THE ASSOCIATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 44,633. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 29,495.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EUROPE	GRANTS	RESEARCH	$348,460
NORTH AMERICA	GRANTS	RESEARCH	$175,000
EAST ASIA & THE PACIFIC	GRANTS	RESEARCH	$220,056
SOUTH AMERICA	GRANTS	RESEARCH	$124,548

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$868,064	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$868,064	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (11 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Description Of Non Cash AsstDescriptionOfNonCashAsstTxt	Valuation Method UsedValuationMethodUsedDesc
EAST ASIA AND THE PACIFIC	DRUG DEVELOPMENT CONTRACT	$245,811	CHECK	N/A	N/A
EAST ASIA AND THE PACIFIC	INVESTIGATOR INTITIATED	-$50,755	CHECK	N	N/A
EAST ASIA AND THE PACIFIC	STRATEGIC INITIATIVE	$25,000	CHECK	N/A	N/A
EUROPE	DRUG DEVELOPMENT CONTRACT	$66,667	CHECK	N/A	N/A
EUROPE	INVESTIGATOR INITIATED	$190,680	CHECK	N/A	N/A
EUROPE	LOU GEHRIG CHALLENGE	-$20,000	CHECK	N/A	N/A
EUROPE	POST DOCTORAL FELLOWSHIP	$75,000	CHECK	N/A	N/A
EUROPE	STRATEGIC INTIATIVE	$36,113	CHECK	N/A	N/A
NORTH AMERICA	INVESTIGATOR INITIATED	$150,000	CHECK	N/A	N/A
NORTH AMERICA	POST DOCTORAL FELLOWSHIP	$25,000	CHECK	N/A	N/A
SOUTH AMERICA	STRATEGIC INITIATIVE	$124,548	CHECK	N/A	N/A

Field	Value	IRS element (for citing)
Total501c3 Org	11	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 2:	FOREIGN RESEARCHERS, SIMILAR TO U.S. RESEARCHERS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH DEPARTMENT.
PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Solicitation Of Govt Grants	Yes (X)	SolicitationOfGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
LAUTMAN MASKA NEILL & COMPANY
1730 RHODE ISLAND AVENUE NW SUITE	WASHINGTON	DC	20036	FUNDRAISING COUNSEL	0	$2,880,424	$255,700	$2,624,724
DRUM - U MARKETING LLC
1 E 22ND STREET SUITE 200	LOMBARD	IL	60148	FUNDRAISING COUNSEL	0	$878,091	$93,750	$784,341

Field	Value	IRS element (for citing)
Total Gross Receipts	$3,758,515	TotalGrossReceiptsAmt
Total Retained By Contractors	$349,450	TotalRetainedByContractorsAmt
Total Net To Organization	$3,409,065	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd
Licensed States	DC	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	LOUISVILLE KY WALK	Event1Nm
Gross Receipts Event1	$121,682	GrossReceiptsEvent1Amt
Charitable Contri Event1	$121,682	CharitableContriEvent1Amt
Non Cash Prizes Event1	$493	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$3,500	RentFacilityCostsEvent1Amt
Other Direct Expenses Event1	$8,484	OtherDirectExpensesEvent1Amt
Event2	CONCORD NH WALK	Event2Nm
Gross Receipts Event2	$101,384	GrossReceiptsEvent2Amt
Charitable Contri Event2	$101,384	CharitableContriEvent2Amt
Non Cash Prizes Event2	$612	NonCashPrizesEvent2Amt
Other Direct Expenses Event2	$2,498	OtherDirectExpensesEvent2Amt
Other Events Total	22	OtherEventsTotalCnt
Gross Receipts Other Events	$869,296	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$869,296	CharitableContriOtherEventsAmt
Non Cash Prizes Other Events	$4,540	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$10,950	RentFcltyCostsOtherEventsAmt
Oth Direct Expnss Other Events	$43,629	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$1,092,362	GrossReceiptsTotalAmt
Charitable Contributions Tot	$1,092,362	CharitableContributionsTotAmt
Non Cash Prizes Total Events	$5,645	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$14,450	RentFcltyCostsTotalEventsAmt
Oth Direct Expnss Total Events	$54,611	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$74,706	DirectExpenseSummaryEventsAmt
Net Income Summary	-$74,706	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (86 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ALS NEVERSURRENDER FOUNDATION
12669 W WARREN AVE	LAKEWOOD	CO	80228	474746935	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
AMERICAN BRAIN FOUNDATION
ATTN ACCOUNTS RECEIVABLE 201	MINNEAPOLIS	MN	55415	411717098	501(C)3	$50,000	SHELIA ESSEY AWARD	CHICAGO AVENUE
AMERICAN BRAIN FOUNDATION
ATTN ACCOUNTS RECEIVABLE 201	MINNEAPOLIS	MN	55415	411717098	501(C)3	$105,000	CLINICAL RESEARCH TRAINING FELLOWSHIP	CHICAGO AVENUE
AMERICAN BRAIN FOUNDATION
ATTN ACCOUNTS RECEIVABLE 201	MINNEAPOLIS	MN	55415	411717098	501(C)3	$112,000	CLINICAL SCIENTIST DEVELOPMENT AWARD	CHICAGO AVENUE
ANELIXIS THERAPEUTICS INC
300 TECHNOLOGY SQUARE 4TH FLOOR	CAMBRIDGE	MA	02139	474022454	501(C)3	$120,000	ALSA INITIATED
AQUINNAH PHARMACEUTICALS INC
ATTN GLENN LARSEN LABCENTRAL 700	CAMBRIDGE	MA	02139	465070024	501(C)3	$94,343	CLINICAL MANAGEMENT	MAIN ST
BLOOM SCIENCE INC
11575 SORRENTO VALLEY ROAD	SAN DIEGO	CA	92121	824752586	501(C)3	$100,000	CLINICAL MANAGEMENT
BRAINSTORM CELL THERAPEUTICS INC
1325 AVENUE OF THE AMERICAS 28TH	NEW YORK	NY	10019	207273918	501(C)3	$200,000	STRATEGIC INITIATIVE	FLOOR
CEDARS-SINAI MEDICAL CENTER
SPONSORED RESEARCH FUNDS ADMINISTRA	LOS ANGELES	CA	90048	951644600	501(C)3	$39,990	STRATEGIC INITIATIVE	ION 6500 WILSHIRE BLVD SUITE 1150
CLEVELAND CLINIC
6801 BRECKSVILLE RD SUITE 20	INDEPENDENCE	OH	44131	340714585	501(C)3	-$21,765	INVESTIGATOR INITIATED AWARD MULTI YEAR
DARTMOUTH-HITCHCOCK CLINIC
ASHLEY YOUNG DIR RES FIN 1 MEDICAL	LEBANON	NH	03756	222519596	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR	CENTER DRIVE
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR
350 WEST THOMAS ROAD	PHOENIX	AZ	85013	941196203	501(C)3	$257,443	STRATEGIC INITIATIVE
DREXEL UNIVERSITY
3201 ARCH ST SUITE 100	PHILADELPHIA	PA	19104	231352630	501(C)3	-$40,000	CLINICAL MANAGEMENT
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)3	$49,996	INVESTIGATOR INITIATED AWARD MULTI YEAR
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)3	$75,000	POST DOCTORAL FELLOWSHIP
GNS HEALTHCARE INC
196 BROADWAY	CAMBRIDGE	MA	021391902	271667187	501(C)3	$93,750	STRATEGIC INITIATIVE
INMUNE BIO INC
1200 PROSPECT ST SUITE 525	LA JOLLA	CA	92037	475205835	501(C)3	$300,000	CLINICAL MANAGEMENT
JOHNS HOPKINS UNIVERSITY
855 N WOLFE ST 242	BALTIMORE	MD	212051503	520595110	501(C)3	$50,000	POST DOCTORAL FELLOWSHIP
JOHNS HOPKINS UNIVERSITY
855 N WOLFE ST 242	BALTIMORE	MD	212051503	520595110	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO
433 BOLIVAR STREET 8TH FLOOR	NEW ORLEANS	LA	70112	720702002	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
LUDWIG INSTITUTE FOR CANCER RESEARCH
8950 VILLA LA JOLLA DR SUITE C135	LA JOLLA	CA	92037	237121131	501(C)3	$75,000	POST DOCTORAL FELLOWSHIP
LUDWIG INSTITUTE FOR CANCER RESEARCH
8950 VILLA LA JOLLA DR SUITE C135	LA JOLLA	CA	92037	237121131	501(C)3	$125,000	DRUG DEVELOPMENT CONTRACT
MASS GENERAL HOSPITAL- RESEARCH
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	$500,000	STRATEGIC INITIATIVE
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	$20,300	ALSA INITIATED
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	-$102,241	TREAT ALS CLINICAL SCIENTIST
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH ATTN NCRI NEALS
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	$100,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH ATTN NCRI NEALS
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	$50,000	POST DOCTORAL FELLOWSHIP
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)3	$100,000	STRATEGIC INITIATIVE
MAYO CLINIC JACKSONVILLE
RESEARCH FINANCE PO BOX 860334	MINNEAPOLIS	MN	554860334	593337028	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
MAYO CLINIC JACKSONVILLE
RESEARCH FINANCE PO BOX 860334	MINNEAPOLIS	MN	554860334	593337028	501(C)3	$75,000	POST DOCTORAL FELLOWSHIP
NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT
NICHD/NIH 6710 B ROCKLEDGE DR 1211C	BETHESDA	MD	208927970		501(C)3	$25,000	POST DOCTORAL FELLOWSHIP	1211C
NEUROPORE THERAPIES INC
10835 ROAD TO THE CURE	SAN DIEGO	CA	92121	262922865	501(C)3	$100,000	CLINICAL MANAGEMENT
NEW YORK GENOME CENTER
ATTN KATHLEEN KEARNS 101 SIXTH	NEW YORK	NY	10013	800631734	501(C)3	$1,150,000	STRATEGIC INITIATIVE	AVENUE 7TH FLOOR
NORTHEAST ALS CONSORTIUM (NEALS)
811 W 7TH ST FLOOR 12	LOS ANGELES	CA	90017	562547779	501(C)3	$157,805	STRATEGIC INITIATIVE
ORIGENT DATA SCIENCES INC
8245 BOONE BLVD SUITE 600	VIENNA	VA	22182	383916182	501(C)3	$116,133	STRATEGIC INITIATIVE
PARTNERS HEALTHCARE
101 HUNTINGTON AVE	BOSTON	MA	02199	264349357	501(C)3	-$6,218	TREAT ALS CLINICAL SCIENTIST
PARTNERS HEALTHCARE
101 HUNTINGTON AVE	BOSTON	MA	02199	264349357	501(C)3	-$50,537	STRATEGIC INITIATIVE
PARTNERS HEALTHCARE
101 HUNTINGTON AVE	BOSTON	MA	02199	264349357	501(C)3	-$45,646	TREAT ALS CLINICAL SCIENTIST
PISON TECHNOLOGY INC
258 HARVARD STREET STE 312	BROOKLINE	MA	02199	813603539	501(C)3	$100,000	MANAGING ALS
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
1033 MASSACHUSETTS AVE 5TH FLOOR	CAMBRIDGE	MA	021385319	042103580	501(C)3	$100,000	MANAGING ALS
REGENTS OF THE UNIVERSITY OF MICHIGAN
C/O BNY MELLON BOX 223131	PITTSBURGH	PA	152512131	386006309	501(C)3	$49,970	INVESTIGATOR INITIATED AWARD MULTI YEAR
ROCKEFELLER UNIVERSITY
ATTN PETE MARTTINEN 1230 YORK	NEW YORK	NY	10065	131624158	501(C)3	$100,000	INVESTIGATOR INITIATED AWARD MULTI YEAR	AVENUE BOX 259A
SAINT LOUIS UNIVERSITY
OFFICE OF SPONSORED PROGRAMS	ST LOUIS	MO	63108	430654872	501(C)3	$25,659	STRATEGIC INITIATIVE	ADMINISTRATION FUSZ MEMORIAL HALL 3
SCRIPPS FLORIDA
130 SCRIPPS WAY	JUPITER	FL	33458	330435954	501(C)3	$25,000	POST DOCTORAL FELLOWSHIP
ST JUDE CHILDREN'S RESEARCH HOSPITAL
PO BOX 1000 DEPT 949	MEMPHIS	TN	381480949	620646012	501(C)3	$167,187	CLINICAL MANAGEMENT
ST JUDE CHILDREN'S RESEARCH HOSPITAL
JAY THAKAR 262 DANNY THOMAS PL	MEMPHIS	TN	381053678	620646012	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
STATE UNIVERSITY OF NEW YORK AT STONY BROOK
WEST 5510 MELVILLE LIBRARY	STONY BROOK	NY	117943362	146013200	501(C)3	$99,998	MANAGING ALS
SYRACUSE UNIVERSITY
OFFICE OF SPONSORED PROGRAMS 211	SYRACUSE	NY	13244	150532081	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR	LYMAN HALL SYRACUSE UNIVERSITY
TACONIC BIOSCIENCES INC
273 HOVER AVE	GERMANTOWN	NY	125265320	141381104	501(C)3	$74,306	STRATEGIC INITIATIVE
TARGET ALS FOUNDATION
1740 BROADWAY 15TH FLOOR	NEW YORK	NY	10019	810756743	501(C)3	$50,000	STRATEGIC INITIATIVE
TEMPLE UNIVERSITY
LEWIS KATZ SCHOOL OF MEDICINE	PHILADELPHIA	PA	19140	231365971	501(C)3	$40,000	CLINICAL MANAGEMENT	KRESGE HALL EAST ROOM 342 3440 N BR
TEMPLE UNIVERSITY
LEWIS KATZ SCHOOL OF MEDICINE	PHILADELPHIA	PA	19140	231365971	501(C)3	$112,259	CLINICAL MANAGEMENT	KRESGE HALL EAST ROOM 342 3440 N BR
TEMPLE UNIVERSITY OF THE COMMONWEALTH SYSTEM OF HIGHER EDU
RESEARCH ACCOUNTING SERVICES P O	PHILADELPHIA	PA	19182	231365971	501(C)3	$25,659	STRATEGIC INITIATIVE	BOX 824242
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET SUITE 6401	MADISON	WI	53715	396006492	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
ON BEHALF OF U WISCONSIN-MILWAUKEE	MILWAUKEE	WI	530510340	391805963	501(C)3	$28,624	STRATEGIC INITIATIVE	PO BOX 340
THE GENERAL HOSPITAL CORPORATION DBA MASSACHUSETTS GENERAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	$49,407	CLINICAL MANAGEMENT
THE GENERAL HOSPITAL CORPORATION DBA MASSACHUSETTS GENERAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	$1,318,456	STRATEGIC INITIATIVE
THE GENERAL HOSPITAL CORPORATION DBA MASSACHUSETTS GENERAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)3	$50,000	POST DOCTORAL FELLOWSHIP
THE JOHNS HOPKINS UNIVERSITY
SCHOOL OF MEDICINE LINDA C CORK DVM	BALTIMORE	MD	21205	520595110	501(C)3	$100,000	INVESTIGATOR INITIATED AWARD MULTI YEAR	PHD DEPARTMENT OF PATHOLOGY
THE JOHNS HOPKINS UNIVERSITY
SCHOOL OF MEDICINE LINDA C CORK DVM	BALTIMORE	MD	21205	520595110	501(C)3	$25,000	POST DOCTORAL FELLOWSHIP	PHD DEPARTMENT OF PATHOLOGY
THE METHODIST HOSPITAL RESEARCH INSTITUTE
OFFICE OF GRANTS AND CONTRACTS P O	HOUSTON	TX	77210	870721923	501(C)3	$380,700	ALSA INITIATED	BOX 4805
THE OHIO STATE UNIVERSITY
OFFICE OF SPONSORED PROGRAMS 1960	COLUMBUS	OH	43210	316025986	501(C)3	$75,000	STRATEGIC INITIATIVE	KENNY RD
THE TRUSTEES OF COLUMBIA UNIVERSITY IN NYC
630 WEST 168TH STREET BOX 49	NEW YORK	NY	100323702	135598093	501(C)3	$205,000	STRATEGIC INITIATIVE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET ROOM 5-420	NEW YORK	NY	100323702	135598093	501(C)3	$150,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 W 168TH ST 49	NEW YORK	NY	100323725	135598093	501(C)3	$25,000	POST DOCTORAL FELLOWSHIP
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 W 168TH ST 49	NEW YORK	NY	100323725	135598093	501(C)3	$100,000	MANAGING ALS
UNIVERSITY OF FLORIDA
CONTRACTS GRANTS 33 TIGERT HALL PO	GAINESVILLE	FL	32611	596002052	501(C)3	-$535	INVESTIGATOR INITIATED AWARD	BOX 113001
UNIVERSITY OF FLORIDA
CONTRACTS GRANTS 33 TIGERT HALL PO	GAINESVILLE	FL	32611	596002052	501(C)3	-$175	STRATEGIC INITIATIVE	BOX 113001
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
CONTRACTS GRANTS 33 TIGERT HALL PO	GAINESVILLE	FL	32611	596002052	501(C)3	$25,000	POST DOCTORAL FELLOWSHIP	BOX 113001
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
CONTRACTS GRANTS 33 TIGERT HALL PO	GAINESVILLE	FL	32611	596002052	501(C)3	$44,963	CLINICAL MANAGEMENT	BOX 113001
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
OFFICE OF THE BURSAR 55 LAKE AVENUE	WORCESTER	MA	01655	043167352	501(C)3	$100,000	INVESTIGATOR INITIATED AWARD MULTI YEAR	NORTH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
OFFICE OF THE BURSAR 55 LAKE AVENUE	WORCESTER	MA	01655	043167352	501(C)3	$1,229,018	STRATEGIC INITIATIVE	NORTH
UNIVERSITY OF PITTSBURGH
OFFICE OF RESEARCH 123 UNIVERSITY	PITTSBURGH	PA	15213	250965591	501(C)3	$100,000	INVESTIGATOR INITIATED AWARD MULTI YEAR	PLACE B21
UNIVERSITY OF RHODE ISLAND
ATTN SPONSORED COST ACCOUNTING 70	KINGSTON	RI	02881	223011455	501(C)3	$51,751	INVESTIGATOR INITIATED AWARD MULTI YEAR	LOWER COLLEGE RD
UNIVERSITY OF SOUTHERN CALIFORNIA
3720 S FLOWER ST 3RD FLOOR	LOS ANGELES	CA	90090	951642394	501(C)3	$125,000	CLINICAL MANAGEMENT
WASHINGTON UNIVERSITY IN ST LOUIS
1 BROOKINGS DR CAMPUS BOX 1054	ST LOUIS	MO	63130	430653611	501(C)3	$50,000	INVESTIGATOR INITIATED AWARD MULTI YEAR
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
RESEARCH ACCT C/O MELISSA PARAY 575	NEW YORK	NY	10022	131623978	501(C)3	$125,000	CLINICAL MANAGEMENT	LEXINGTON AVENUE 9TH FLOOR
HOPE LOVES COMPANY INC
C/O JODI ODONNELL-AMES P O BOX 931	PENNINGTON	NJ	08534	208418402	501(C)3	$25,000	CHILDREN'S CAMP OUTREACH GRANT 2020
JOE MARTIN ALS FOUNDATION
100 NORTH TRYON ST STE 3420	CHARLOTTE	NC	28202	260163120	501(C)3	$10,000	JOE'S CAMP NC2020 OUTREACH GRANT
MID COAST
123 MEDICAL CENTER DRIVE SUITE G450	BRUNSWICK	ME	04101	010215911	501(C)3	$5,460	SALARIES OF SOCIAL WORKER AND DIETICIAN	G450
NON-PROFIT PERSONNEL NETWORK
27600 NORTHWESTERN HIGHWAY SUITE	SOUTHFIELD	MI	48034	383176192	501(C)3	$19,000	EXECUTIVE SEARCH FOR MI ED	215
THE ALS ASSOCIATION-FLORIDA CHAPTER
3242 PARKSIDE CENTER CIRCLE	TAMPA	FL	336190907	943124732	501(C)3	$245,279	CHAPTER CARE SVCS EXPENSES
THE ALS ASSOCIATION-INDIANA CHAPTER
PO BOX 56023	INDIANAPOLIS	IN	46256	353029321	501(C)3	$12,500	CLINIC EXPANSION INITATIVE
THE ALS ASSOCIATION-LOUISIANAMISSISSIPPI CHAPTER
11725 INDUSTRIPLEX BLVD SUITE 3	BATON ROUGE	LA	708095190	201742120	501(C)3	$26,477	CHAPTER CARE SVCS EXPENSES
THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER
685 CANTON STREET SUITE 103	NORWOOD	MA	02026	043085718	501(C)3	$100,000	ASSISTIVE TECHNOLOGY REGIONAL OUTREACH GRANT
THE ALS ASSOCIATION-OREGON & SW WASHINGTON CHAPTER
700 NE MULTNOMAH ST SUITE 210	PORTLAND	OR	97232	680516066	501(C)3	$24,800	OUTREACH GRANT FOR PORTLAND VA ALS CENTER

Field	Value	IRS element (for citing)
Total501c3 Org	87	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	QUALITY OF LIFE GRANT	GrantTypeTxt
Recipient	153	RecipientCnt
Cash Grant	$77,194	CashGrantAmt
Non Cash Assistance	$1,650	NonCashAssistanceAmt
Valuation Method Used	FMV	ValuationMethodUsedDesc
Non Cash Assistance	POWER SEAT ELEVATION	NonCashAssistanceDesc

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	GRANT APPLICATIONS ARE REVIEWED BY COMMITTEES AND STAFF FOR APPROVAL. ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. THE ASSOCIATION ALSO REQUIRE PROGRESS REPORTS THROUGH OUT THE AWARD TO CONTINUE TO RECEIVE FUNDS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	Yes (1)	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	Yes (1)	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
CALANEET BALAS
PRESIDENT AND CEO	$313,340	$0	$41,250	$0	$0	$0	$30,344	$0	$14,270	$0	$399,204	$0	$0	$0
GREG MITCHELL
CHIEF FINANCIAL OFFICER	$247,637	$0	$24,301	$0	$0	$0	$28,206	$0	$1,580	$0	$301,724	$0	$0	$0
NEIL THAKUR
CHIEF MISSION OFFICER	$231,752	$0	$24,750	$0	$0	$0	$24,905	$0	$13,802	$0	$295,209	$0	$0	$0
LANCE SLAUGHTER
SVP STRATEGIC ALLIANCES AND GOVERNAN	$225,465	$0	$20,646	$0	$0	$0	$26,619	$0	$14,229	$0	$286,959	$0	$0	$0
TINA ZEFF
CHIEF OPERATIONS OFFICER	$219,413	$0	$22,770	$0	$0	$0	$23,554	$0	$17,115	$0	$282,852	$0	$0	$0
BRIAN FREDERICK
SENIOR VICE PRESIDENT AND HEAD OF CR	$210,291	$0	$16,915	$0	$0	$0	$22,097	$0	$1,495	$0	$250,798	$0	$0	$0
KULDIP DAVE
VICE PRESIDENT RESEARCH	$205,277	$0	$0	$0	$0	$0	$18,577	$0	$17,115	$0	$240,969	$0	$0	$0
KIMBERLY HARDING-MAGINNIS
SENIOR VICE PRESIDENT CARE SERVICES	$203,688	$0	$0	$0	$0	$0	$20,858	$0	$7,686	$0	$232,232	$0	$0	$0
TERESSA HARRIS
SENIOR VICE PRESIDENT FINANCE	$180,783	$0	$3,000	$0	$0	$0	$14,667	$0	$13,802	$0	$212,252	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 3	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT.
PART I, LINE 5	PAYMENTS FOR ACCRUED INCENTIVE BONUSES AND SPOT BONUSES.
PART I, LINE 6	PAYMENTS FOR ACCRUED INCENTIVE BONUSES AND SPOT BONUSES.

Schedule M IRS990ScheduleM

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	63	ContributionCnt
Noncash Contributions Rpt F990	$66,951	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET PROCEEDS	MethodOfDeterminingRevenuesTxt

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	307	ContributionCnt
Noncash Contributions Rpt F990	$5,807,944	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG HIGH/LOW AT DATE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1	THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING.
FORM 990, PART VI, SECTION A, LINE 6	MEMBERS. THE MEMBERS OF THE ASSOCIATION (THE "MEMBERS AND EACH, A "MEMBER") SHALL BE CHARTERED CHAPTERS OF THE ASSOCIATION (THE "CHAPTERS AND EACH, A "CHAPTER"). CHAPTERS WITHOUT A CHARTER OR OTHER ENTITIES OR ORGANIZATIONS MAY BE AFFILIATED WITH AND/OR MANAGED BY THE ASSOCIATION, BUT ARE NOT ENTITLED TO ALL OF THE RIGHTS OF CHAPTERS AS PROVIDED BY THESE BYLAWS AND THE CHAPTER CHARTER AGREEMENT. CHAPTERS SHALL BE ADMITTED TO MEMBERSHIP BY THE BOT BASED ON CRITERIA CONSISTENT WITH THESE BYLAWS AS ADOPTED BY THE BOT.
FORM 990, PART VI, SECTION A, LINE 7A	BOARD OF REPRESENTATIVES ELECTS THE MEMBERS OF THE BOARD OF TRUSTEES. BOR IS COMPOSED OF A REPRESENTATIVE FROM EACH MEMBER/CHAPTER.
FORM 990, PART VI, SECTION B, LINE 11B	THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE CFO. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF TRUSTEES. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES.
FORM 990, PART VI, SECTION B, LINE 12C	ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN.
FORM 990, PART VI, SECTION B, LINE 15	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT/CEO, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT/CEO'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF TRUSTEES WITHOUT THE PARTICIPATION OF THE PRESIDENT/CEO. THIS PROCESS TAKES PLACE ANNUALLY. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT/CEO AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. THIS PROCESS TAKES PLACE ANNUALLY.
FORM 990, PART VI, SECTION C, LINE 19	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL.
FORM 990, PART IX, LINE 11G	TELECOMMUNICATIONS, PUBLIC POLICY, OTHER CONSULTING: PROGRAM SERVICE EXPENSES 2,541,805. MANAGEMENT AND GENERAL EXPENSES 728,238. FUNDRAISING EXPENSES 1,841,245. TOTAL EXPENSES 5,111,288. DIRECT MAIL: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 1,666,293. TOTAL EXPENSES 1,666,293.
FORM 990, PART XI, LINE 9:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 44,633. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 29,495.