STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

CROHNS & COLITIS FOUNDATION INC: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
CROHNS & COLITIS FOUNDATION INC (EIN 13-6193105)
Tax period
2019-01-01 to 2019-12-31
Filed
2020-11-13
IRS object ID
202023189349305942
Schema version
2019v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-11-13T12:00:34-06:00ReturnTs
Tax Period End2019-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1GRANT THORNTON LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1757 THIRD AVENUE 3RD FLOORAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP100172013ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2019-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN136193105EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Crohn's & Colitis Foundation IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% RONALD GOLDSMAN VP FINANCEInCareOfNm
Business Name ControlCROHBusinessNameControlTxt
Phone8009322423PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1733 Third Avenue Suite 510AddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10017ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonRONALD GOLDSMANPersonNm
Person TitleVP OF FINANCEPersonTitleTxt
Phone2126843440PhoneNum
Signature2020-11-13SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonScott ThompsettPreparerPersonNm
PTINP00741490PTIN
Phone2125990100PhoneNum
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerMichael Osso PresidentPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1733 Third AvenueAddressLine1Txt
Citynew yorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10017ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$91,603,043GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.crohnscolitisfoundation.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1967FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTo cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.ActivityOrMissionDesc
Voting Members Governing Body27VotingMembersGoverningBodyCnt
Voting Members Independent27VotingMembersIndependentCnt
Total Employee430TotalEmployeeCnt
Total Volunteers5425TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$67,009,903PYContributionsGrantsAmt
CY Contributions Grants$66,405,320CYContributionsGrantsAmt
PY Program Service Revenue$4,834,276PYProgramServiceRevenueAmt
CY Program Service Revenue$5,275,500CYProgramServiceRevenueAmt
PY Investment Income$778,119PYInvestmentIncomeAmt
CY Investment Income$958,595CYInvestmentIncomeAmt
PY Other Revenue$1,264,933PYOtherRevenueAmt
CY Other Revenue$1,285,835CYOtherRevenueAmt
PY Total Revenue$73,887,231PYTotalRevenueAmt
CY Total Revenue$73,925,250CYTotalRevenueAmt
PY Grants And Similar Paid$24,952,189PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$25,099,238CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$29,781,678PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$31,959,212CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$456,679PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$463,544CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$4,850,525CYTotalFundraisingExpenseAmt
PY Other Expenses$18,458,329PYOtherExpensesAmt
CY Other Expenses$18,201,536CYOtherExpensesAmt
PY Total Expenses$73,648,875PYTotalExpensesAmt
CY Total Expenses$75,723,530CYTotalExpensesAmt
PY Revenues Less Expenses$238,356PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$1,798,280CYRevenuesLessExpensesAmt
Total Assets BOY$46,583,088TotalAssetsBOYAmt
Total Assets EOY$45,274,249TotalAssetsEOYAmt
Total Liabilities BOY$37,528,315TotalLiabilitiesBOYAmt
Total Liabilities EOY$36,455,900TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$9,054,773NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,818,349NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionFOR more than FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD").MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$31,492,679ExpenseAmt
Grant$0GrantAmt
Revenue$780,015RevenueAmt
DescTHE FOUNDATION PROVIDES INFORMATION AND EDUCATION IN AN EFFORT TO REACH THE MORE THAN 3 MILLION IBD PATIENTS AND THEIR FAMILIES THROUGH A VARIETY OF PERIODICALS (TAKE CHARGE, UNDER THE MICROSCOPE), AWARENESS CAMPAIGNS, LOCAL CHAPTERS, ITS WEBCASTS, AND THROUGH ITS WEBSITE. THE FOUNDATION ALSO REACHES ITS MANY MEMBERS WITH EXCLUSIVE MAILINGS, ELECTRONIC MAIL, AND SOCIAL MEDIA POSTS. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION ON INFLAMMATORY BOWEL DISEASES, ITS IBD JOURNAL, AND HEALTH PROFESSIONAL WORKSHOPS. REVENUES REPORTED AS PROGRAM SERVICE REVENUE OF $473,595 REPRESENTS CAMP REGISTRATION FEES FOR WORKSHOPS/CAMP PROGRAMS RUN FOR CHILDREN AND FAMILIES AFFECTED BY EITHER CROHN'S DISEASE OR ULCERATIVE COLITIS. THE FOUNDATION SUPPORT SERVICES ARE DELIVERED THROUGH ITS CHAPTERS NATIONWIDE WHICH OFFER MORE THAN 300 SUPPORT GROUPS ANNUALLY, SUMMER CAMPS FOR CHILDREN WITH IBD, AND A RANGE OF EDUCATIONAL AND TRAINING PROGRAMS FOR LOCAL COMMUNITIES. READ MORE ABOUT THE FOUNDATION'S CHAPTERS ON ITS WEBSITE OR VIEW ITS webcasts.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$29,234,702ExpenseAmt
Grant$25,099,238GrantAmt
Revenue$4,765,830RevenueAmt
DescSINCE ITS INCEPTION, THE FOUNDATION HAS BEEN FIRMLY COMMITTED TO FUNDING RESEARCH THAT HAS THE POTENTIAL TO CHANGE THE LIVES OF PATIENTS WITH IBD. - COLLECTIVELY KNOWN AS INFLAMMATORY BOWEL DISEASE (IBD). THERE ARE TWO MAIN RESEARCH CATEGORIES. BASIC RESEARCH EXPLORES THE SCIENTIFIC FOUNDATIONS OF THE DISEASES. IT ANSWERS SUCH QUESTIONS AS: WHAT IS THE UNDERLYING CAUSE OF CROHN'S AND Ulcerative COLITIS? WHICH GENES ARE INVOLVED IN THESE DISEASES? ALTHOUGH BASIC RESEARCH IS COMPLEX AND CAN BE DIFFICULT FOR LAYPERSONS TO UNDERSTAND, THESE STUDIES WILL ULTIMATELY LEAD TO THE CURE FOR IBD. CLINICAL RESEARCH DETERMINES WHICH MEDICAL AND SURGICAL OPTIONS WORK BEST FOR PATIENTS.- THE FOUNDATION BRINGS TOGETHER PATIENTS, CAREGIVERS AND THE FINEST MINDS IN THE INTERNATIONAL SCIENTIFIC COMMUNITY (BOTH BASIC AND CLINICAL), TO DESIGN EDUCATION PROGRAMS AND SET THE RESEARCH AGENDA. - THE FOUNDATION INVESTS IN HUMAN RESOURCES: IT TAKES 10 YEARS TO "BUILD" A FULL-FLEDGED, SENIOR INVESTIGATOR. TO MAKE SURE THAT THE MOST TALENTED RESEARCHERS ENTER AND REMAIN IN THE FIELD OF IBD, THE FOUNDATION PROVIDES RESEARCH TRAINING AWARDS TO DEVELOP THE NEXT GENERATION OF INVESTIGATORS. MANY OF TODAY'S MOST PROMINENT RESEARCHERS RECEIVED TRAINING AWARDS FROM THE FOUNDATION EARLY IN THEIR CAREERS. - As part of its drive to push the boundaries of inflammatory bowel disease (IBD) research, the Foundation publishes its Challenges in IBD Research report to update the Foundations research agenda and identify new research priorities.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$60,727,381TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingYes (true)ProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesYes (true)GamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document463IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee430EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members27GoverningBodyVotingMembersCnt
Independent Voting Member27IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersYes (true)LocalChaptersInd
Policies Reference ChaptersYes (true)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonRONALD GOLDSMAN VP FINANCEPersonNm
Phone2126853440PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1733 THIRD AVENUEAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP100178804ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (40 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
Michael Osso
President/CEO(non-voting)35.00.0Yes (X)Yes (X)$472,836$0$88,176
Caren Heller
Chief Science Officer35.00.0$372,382$0$14,000Yes (X)
Robert Territo
CFO/COO35.00.0Yes (X)$271,653$0$26,424
Rohit Suri
Chief Technology officer35.00.0$257,130$0$21,385Yes (X)
Michael Elkow
Chief Field Officer35.00.0$251,548$0$20,334Yes (X)
Allison Coffey
Chief Development Officer35.00.0$208,103$0$12,154Yes (X)
Jennifer Fagerstrom
VP, Chapter Growth and Develop35.00.0$190,804$0$17,556Yes (X)
JUDY HOFFSTEIN
CHIEF MARKETING OFFICER35.00.0$186,939$0$19,742Yes (X)
Kimberly Frederick-Sna
Regional Director35.00.0$187,907$0$11,264Yes (X)
Kristin Kaplan
VP, Special Events35.00.0$174,549$0$19,608Yes (X)
Robert Bryan
VP, Chapter Growth and Develop35.00.0$181,311$0$6,799Yes (X)
Jack Matarasso
VP Digital Marketing35.00.0$168,959$0$8,439Yes (X)
Sheri Markus-Kennell
SVP, Business Dev (THRU 05/19)35.00.0$100,609$0$8,033Yes (X)
John Crosson
Chairman1.00.0Yes (X)Yes (X)$0$0$0
Robert Van Pulley
Treasurer1.00.0Yes (X)Yes (X)$0$0$0
Andrew Stern
Secretary1.00.0Yes (X)Yes (X)$0$0$0
Brent Polk MD
TRUSTEE/NSAC Chair1.00.0Yes (X)$0$0$0
Alessandro DiNello
Trustee1.00.0Yes (X)$0$0$0
Alex Funderburg
Trustee1.00.0Yes (X)$0$0$0
Amber Backhaus
Trustee1.00.0Yes (X)$0$0$0
Christopher Collette
Trustee1.00.0Yes (X)$0$0$0
Cindi Roth
Trustee1.00.0Yes (X)$0$0$0
David Rubin MD
Trustee1.00.0Yes (X)$0$0$0
Donald Kortz
Trustee1.00.0Yes (X)$0$0$0
Eric Stone
Trustee1.00.0Yes (X)$0$0$0
f Rep Ander Crenshaw
Trustee1.00.0Yes (X)$0$0$0
Frank Russomano
Trustee1.00.0Yes (X)$0$0$0
Jason Burr
Trustee1.00.0Yes (X)$0$0$0
Jennifer O'Neill
Trustee1.00.0Yes (X)$0$0$0
Jodi Yellen
Trustee1.00.0Yes (X)$0$0$0
Joe Monk
Trustee1.00.0Yes (X)$0$0$0
Joel Rosh MD
Trustee1.00.0Yes (X)$0$0$0
Marcy Beth Nanus
Trustee1.00.0Yes (X)$0$0$0
Maria Oliva-Hemker MD
Trustee1.00.0Yes (X)$0$0$0
Mark Murray PhD
Trustee1.00.0Yes (X)$0$0$0
Michele Kissous-Hunt
Trustee1.00.0Yes (X)$0$0$0
Noel Brown
Trustee1.00.0Yes (X)$0$0$0
Paula Hilbert
Trustee1.00.0Yes (X)$0$0$0
Shelby Modell
Co-Founder/Trustee1.00.0Yes (X)$0$0$0
Troy Vollertsen
Trustee (As of 03/2019)1.00.0Yes (X)Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$3,024,730TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$273,914TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K54IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
Deloitte Consulting LLP
4022 belle driveHERMINTAGETN37076IBD Plexus$2,002,834
Blackbaud
PO Box 930256ATLANTAGA311930256DONOR DATABASE$1,162,927
PHASE2 TECHNOLOGY LLC
1735 north lynn street suite 720ARLINGTONVA22209Website Development$853,186
International Business Machines Cor
north castle driveARMONKNY10504IBD Plexus$596,838
CHAPMAN CUBINE AND HUSSEY INC
2000 15TH STREET NORTH SUITE 550ARLINGTONVA22201MARKETING CONSULTING$506,297
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K25CntrctRcvdGreaterThan100KCnt
Federated Campaigns$1,184,804FederatedCampaignsAmt
Fundraising$28,767,167FundraisingAmt
Government Grants$581,443GovernmentGrantsAmt
All Other Contributions$35,871,906AllOtherContributionsAmt
Noncash Contributions$641,800NoncashContributionsAmt
Total Contributions$66,405,320TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
EDUCATION & CAMP REGISTRATION FEES900099$509,670$509,670
IBD PLEXUS DATABASE ACCESS FEES900099$4,765,830$4,765,830
FieldValueIRS element (for citing)
Total Program Service Revenue$5,275,500TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$313,200TotalRevenueColumnAmt
Exclusion$313,200ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$416,509TotalRevenueColumnAmt
Exclusion$416,509ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$0RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$11,007,162SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$10,361,767SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$645,395SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$645,395TotalRevenueColumnAmt
Exclusion$645,395ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$6,822,830FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$28,767,167ContriRptFundraisingEventAmt
Fundraising Direct Expenses$7,217,387FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$394,557TotalRevenueColumnAmt
Exclusion-$394,557ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$493,196GamingGrossIncomeAmt
Gaming Direct Expenses$98,639GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$394,557TotalRevenueColumnAmt
Exclusion$394,557ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$0GrossSalesOfInventoryAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmtExclusionExclusionAmt
EDUCATIONAL STIPEND900099$270,345$270,345
VEHICLE DONATION PROGRAM900099$41,745$41,745
REIMBURSEMENTS900099$4,839$4,839

Miscellaneous Revenue MiscellaneousRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$552,397TotalRevenueColumnAmt
Exclusion$552,397ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$869,326OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$73,925,250TotalRevenueColumnAmt
Related Or Exempt Func Income$5,545,845RelatedOrExemptFuncIncomeAmt
Exclusion$1,974,085ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$23,656,358TotalAmt
Program Services$23,656,358ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$1,442,880TotalAmt
Program Services$1,442,880ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$2,324,523TotalAmt
Program Services$1,598,291ProgramServicesAmt
Management And General$491,331ManagementAndGeneralAmt
Fundraising$234,901FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$22,982,064TotalAmt
Program Services$15,949,077ProgramServicesAmt
Management And General$4,758,156ManagementAndGeneralAmt
Fundraising$2,274,831FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$891,205TotalAmt
Program Services$617,954ProgramServicesAmt
Management And General$184,868ManagementAndGeneralAmt
Fundraising$88,383FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$3,852,548TotalAmt
Program Services$2,671,323ProgramServicesAmt
Management And General$799,156ManagementAndGeneralAmt
Fundraising$382,069FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$1,908,872TotalAmt
Program Services$1,323,595ProgramServicesAmt
Management And General$395,968ManagementAndGeneralAmt
Fundraising$189,309FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$20,980TotalAmt
Program Services$17,116ProgramServicesAmt
Management And General$2,614ManagementAndGeneralAmt
Fundraising$1,250FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$183,276TotalAmt
Management And General$183,276ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$524,392TotalAmt
Program Services$524,392ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$463,544TotalAmt
Fundraising$463,544FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$7,176,425TotalAmt
Program Services$6,286,003ProgramServicesAmt
Management And General$856,743ManagementAndGeneralAmt
Fundraising$33,679FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$854,239TotalAmt
Program Services$533,143ProgramServicesAmt
Management And General$217,237ManagementAndGeneralAmt
Fundraising$103,859FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$627,349TotalAmt
Program Services$398,267ProgramServicesAmt
Management And General$154,985ManagementAndGeneralAmt
Fundraising$74,097FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$1,394,984TotalAmt
Program Services$1,138,093ProgramServicesAmt
Management And General$173,799ManagementAndGeneralAmt
Fundraising$83,092FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$1,979,957TotalAmt
Program Services$1,231,930ProgramServicesAmt
Management And General$506,077ManagementAndGeneralAmt
Fundraising$241,950FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,872,684TotalAmt
Program Services$1,193,654ProgramServicesAmt
Management And General$459,397ManagementAndGeneralAmt
Fundraising$219,633FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$743,416TotalAmt
Program Services$742,669ProgramServicesAmt
Management And General$506ManagementAndGeneralAmt
Fundraising$241FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$736,530TotalAmt
Program Services$474,287ProgramServicesAmt
Management And General$177,420ManagementAndGeneralAmt
Fundraising$84,823FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$378,218TotalAmt
Program Services$246,059ProgramServicesAmt
Management And General$89,412ManagementAndGeneralAmt
Fundraising$42,747FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
PUBLICATIONS$841,809$533,105$208,854$99,850
LIST RENTAL FEES$42,375$27,568$10,018$4,789
GRANTS REFUNDED/RESCINDED-$1,187,786-$1,187,786
ALL OTHER EXPENSES$2,012,688$1,309,403$475,807$227,478

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$75,723,530TotalAmt
Program Services$60,727,381ProgramServicesAmt
Management And General$10,145,624ManagementAndGeneralAmt
Fundraising$4,850,525FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$12,585,946BOYAmt
EOY$3,316,952EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$10,120,199BOYAmt
EOY$13,522,713EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$598,670BOYAmt
EOY$744,033EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$3,337,082BOYAmt
EOY$3,600,532EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$7,452,291LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$5,277,288LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$2,039,912BOYAmt
EOY$2,175,003EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$16,317,981BOYAmt
EOY$19,552,807EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$911,857BOYAmt
EOY$468,887EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$671,441BOYAmt
EOY$1,893,322EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$46,583,088BOYAmt
EOY$45,274,249EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$5,219,133BOYAmt
EOY$4,791,819EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$27,522,249BOYAmt
EOY$25,547,248EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$4,167,778BOYAmt
EOY$5,552,232EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$619,155BOYAmt
EOY$564,601EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$37,528,315BOYAmt
EOY$36,455,900EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY-$2,111,482BOYAmt
EOY-$5,307,069EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$11,166,255BOYAmt
EOY$14,125,418EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$9,054,773BOYAmt
EOY$8,818,349EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$46,583,088BOYAmt
EOY$45,274,249EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$1,798,280ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$1,725,416NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets-$163,560OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$65,605,925CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$68,702,957CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$71,431,094CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$67,009,903CurrentTaxYearMinus1YearAmt
Current Tax Year$66,405,320CurrentTaxYearAmt
Total$339,155,199TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$65,605,925CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$68,702,957CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$71,431,094CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$67,009,903CurrentTaxYearMinus1YearAmt
Current Tax Year$66,405,320CurrentTaxYearAmt
Total$339,155,199TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$38,785,577SubstantialContributorsTotAmt
Public Support Total170$300,369,622PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$650,124CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$718,756CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$685,976CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$615,382CurrentTaxYearMinus1YearAmt
Current Tax Year$729,709CurrentTaxYearAmt
Total$3,399,947TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$295,805CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$0CurrentTaxYearMinus1YearAmt
Total$295,805TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$6,677,304CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$6,852,687CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$7,441,563CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$8,568,811CurrentTaxYearMinus1YearAmt
Current Tax Year$8,185,352CurrentTaxYearAmt
Total$37,725,717TotalAmt
FieldValueIRS element (for citing)
Total Support$380,576,668TotalSupportAmt
Gross Receipts Rltd Activities$12,793,901GrossReceiptsRltdActivitiesAmt
Public Support CY1700.78925PublicSupportCY170Pct
Public Support PY1700.76959PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
Total Grassroots LobbyingTotalGrassrootsLobbyingGrp
Total Direct LobbyingTotalDirectLobbyingGrp
Total Lobbying ExpendTotalLobbyingExpendGrp
Other Exempt Purpose ExpendOtherExemptPurposeExpendGrp
Total Exempt Purpose ExpendTotalExemptPurposeExpendGrp
Lobbying Nontaxable AmountLobbyingNontaxableAmountGrp
Grassroots NontaxableGrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non TxTotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non TxTotLbbyExpendMnsLbbyngNonTxGrp
VolunteersfalseVolunteersInd
Paid Staff Or ManagementfalsePaidStaffOrManagementInd
Media AdvertisementsfalseMediaAdvertisementsInd
Mailings MembersYes (true)MailingsMembersInd
Publications Or BroadcastfalsePublicationsOrBroadcastInd
Grants Other OrganizationsfalseGrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (true)DirectContactLegislatorsInd
Direct Contact Legislators$317,513DirectContactLegislatorsAmt
Rallies DemonstrationsfalseRalliesDemonstrationsInd
Other ActivitiesYes (true)OtherActivitiesInd
Other Activities$144,367OtherActivitiesAmt
Total Lobbying Expenditures$461,880TotalLobbyingExpendituresAmt
Not Described Section501c3falseNotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule C, Part II-B, Line 1(i)FormAndLineReferenceDesc
ExplanationIN 2019, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES OF A PROFESSIONAL CONSULTANT TO KEEP THE ORGANIZATION UP-TO-DATE ON WHAT IS TRANSPIRING WITH FEDERAL LEGISLATION ON CAPITOL HILL CONCERNING HEALTH AND MEDICINE. DURING THE YEAR ENDED 2019, EXPENSES INCURRED TOTALLED $144,367. THE FOUNDATION ENGAGES IN STATE-BASED ADVOCACY CAMPAIGNS ENSURING THAT THE NEEDS OF PATIENTS ARE ADDRESSED THROUGH LEGISLATION THAT TARGETS THE COST OF HEALTH CARE AND ACCESS TO CARE. TOTAL PAYMENTS MADE IN CALENDAR YEAR 2019 WERE $171,862. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH IBD VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED DURING THE CALENDAR YEAR 2019, FOR WHICH EXPENSES INCURRED WERE $121,357. EXPENDITURES OF $121,357 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $121,357 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING).ExplanationTxt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Art Public Exhibition AmountsArtPublicExhibitionAmountsGrp
Held Works ArtHeldWorksArtGrp
CY Minus3 Yr Endwmt FundCYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt FundCYMinus4YrEndwmtFundGrp
LandLandGrp
BuildingsBuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$486,754OtherCostOrOtherBasisAmt
Depreciation$288,735DepreciationAmt
Book Value$198,019BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$2,740,791OtherCostOrOtherBasisAmt
Depreciation$2,357,736DepreciationAmt
Book Value$383,055BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$4,224,746OtherCostOrOtherBasisAmt
Depreciation$2,630,817DepreciationAmt
Book Value$1,593,929BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$2,175,003TotalBookValueLandBuildingsAmt
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
REINSURANCE CONTRACTS$228,669
DEFERRED RENT$335,932
FieldValueIRS element (for citing)
Total Liability$564,601TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$83,653,673TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$1,725,416NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$7,996,354DonatedServicesAndUseFcltsAmt
Other Revenue$6,653OtherRevenueAmt
Revenue Not Reported$9,728,423RevenueNotReportedAmt
Revenue Subtotal$73,925,250RevenueSubtotalAmt
Total Revenue Per Form990$73,925,250TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$83,890,098TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$7,996,354DonatedServicesUseFcltsAmt
Other Expenses Included$170,214OtherExpensesIncludedAmt
Expenses Not Reported$8,166,568ExpensesNotReportedAmt
Expenses Subtotal$75,723,530ExpensesSubtotalAmt
Total Expenses Per Form990$75,723,530TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Reconciliation of RevenuePart XI, Line 2d Changes in Charitable Remainder Trusts: $6,653 RECONCILIATION OF EXPENSES PART XII, LINE 2D Uncollectible Pledges: $170,214
Income TaxesPart X The Foundation is a not-for-profit voluntary health organization exempt from federal income taxes under Section 501(c)(3) of the Internal Revenue Code (the "Code") and has been classified as a publicly supported charitable organization under Section 509(a)(1) of the Code and qualifies for the maximum charitable contribution deduction by donors. Contributions to the Foundation are tax deductible within the limitations prescribed by the Code. The Foundation is also exempt from state and local taxes under similar statutes. Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The Foundation has determined that there are no material uncertain tax positions that require recognition or disclosure in the consolidated financial statements. In addition, the Foundation has not recorded a provision for income taxes as it has no material tax liability from unrelated business income activities.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
Europe (Including Iceland and Greenland)00Grantmakingresearch$1,235,786
North America00Grantmakingresearch$37,990
Middle East and North Africa00Grantmakingresearch$104,104
East Asia and the Pacific00Grantmakingresearch$65,000
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$1,442,880SubtotalSpentAmt
Total Spent$1,442,880TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (18 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
Europe (Including Iceland and Greenland)Broad Foundation$119,991BANK WIRE
Europe (Including Iceland and Greenland)Broad Foundation$56,354BANK WIRE
Europe (Including Iceland and Greenland)Broad Foundation$19,297BANK WIRE
Europe (Including Iceland and Greenland)RESEARCH$58,300BANK WIRE
Europe (Including Iceland and Greenland)Broad Foundation$66,735BANK WIRE
Europe (Including Iceland and Greenland)RESEARCH$81,071BANK WIRE
Europe (Including Iceland and Greenland)RESEARCH$28,958BANK WIRE
Europe (Including Iceland and Greenland)RESEARCH$115,830BANK WIRE
Europe (Including Iceland and Greenland)Research$81,000BANK WIRE
Europe (Including Iceland and Greenland)RESEARCH$26,171BANK WIRE
East Asia and the PacificRESEARCH$65,000BANK WIRE
North AmericaSenior Research Award$27,990BANK WIRE
Middle East and North AfricaRESEARCH$104,104BANK WIRE
Europe (Including Iceland and Greenland)Broad Foundation$119,975BANK WIRE
North AmericaRESEARCH$10,000BANK WIRE
Europe (Including Iceland and Greenland)RESEARCH$88,000BANK WIRE
Europe (Including Iceland and Greenland)Broad Foundation$82,350BANK WIRE
Europe (Including Iceland and Greenland)RESEARCH$291,753BANK WIRE
FieldValueIRS element (for citing)
Total501c3 Org18Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantsFormAndLineReferenceDesc
ExplanationPart I, Line 1 The Crohn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding a cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports annually as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Phone SolicitationsYes (X)PhoneSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Solicitation Of Govt GrantsYes (X)SolicitationOfGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

FieldValueIRS element (for citing)
Personchapman cubine and husseyPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line12000 15th Street Suite 550AddressLine1Txt
CityArlingtonCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22201ZIPCd
FieldValueIRS element (for citing)
Activitydirect mailActivityTxt
Fundraiser Control Of FundsfalseFundraiserControlOfFundsInd
Gross Receipts$5,368,046GrossReceiptsAmt
Retained By Contractor$463,544RetainedByContractorAmt
Net To Organization$4,904,502NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$5,368,046TotalGrossReceiptsAmt
Total Retained By Contractors$463,544TotalRetainedByContractorsAmt
Total Net To Organization$4,904,502TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesAZLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDELicensedStatesCd
Licensed StatesDCLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesINLicensedStatesCd
Licensed StatesIALicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesNELicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd
Licensed StatesWYLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1TAKE STEPSEvent1Nm
Gross Receipts Event1$10,824,483GrossReceiptsEvent1Amt
Charitable Contri Event1$9,305,672CharitableContriEvent1Amt
Gross Revenue Event1$1,518,811GrossRevenueEvent1Amt
Rent Facility Costs Event1$703,027RentFacilityCostsEvent1Amt
Entertainment Event1$48,673EntertainmentEvent1Amt
Other Direct Expenses Event1$767,111OtherDirectExpensesEvent1Amt
Event2TEAM CHALLENGEEvent2Nm
Gross Receipts Event2$4,186,557GrossReceiptsEvent2Amt
Charitable Contri Event2$3,204,444CharitableContriEvent2Amt
Gross Revenue Event2$982,113GrossRevenueEvent2Amt
Rent Facility Costs Event2$150,748RentFacilityCostsEvent2Amt
Entertainment Event2$22EntertainmentEvent2Amt
Other Direct Expenses Event2$831,343OtherDirectExpensesEvent2Amt
Other Events Total122OtherEventsTotalCnt
Gross Receipts Other Events$20,578,956GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$16,257,050CharitableContriOtherEventsAmt
Gross Revenue Other Events$4,321,906GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events$3,221,449RentFcltyCostsOtherEventsAmt
Entertainment Other Events$106,885EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events$1,388,129OthDirectExpnssOtherEventsAmt
Gross Receipts Total$35,589,996GrossReceiptsTotalAmt
Charitable Contributions Tot$28,767,166CharitableContributionsTotAmt
Gross Revenue Total Events$6,822,830GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$4,075,224RentFcltyCostsTotalEventsAmt
Entertainment Total Events$155,580EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$2,986,583OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$7,217,387DirectExpenseSummaryEventsAmt
Net Income Summary-$394,557NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$493,196GrossRevenueOtherGamingAmt
Oth Direct Expnss Other Gaming$98,639OthDirectExpnssOtherGamingAmt
Volunteer Labor Other GamingfalseVolunteerLaborOtherGamingInd
Gross Revenue Total Gaming$493,196GrossRevenueTotalGamingAmt
Oth Direct Expnss Total Gaming$98,639OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming$98,639DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$394,557NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedARStatesWhereGamingConductedCd
States Where Gaming ConductedCAStatesWhereGamingConductedCd
States Where Gaming ConductedCTStatesWhereGamingConductedCd
States Where Gaming ConductedFLStatesWhereGamingConductedCd
States Where Gaming ConductedGAStatesWhereGamingConductedCd
States Where Gaming ConductedILStatesWhereGamingConductedCd
States Where Gaming ConductedINStatesWhereGamingConductedCd
States Where Gaming ConductedMAStatesWhereGamingConductedCd
States Where Gaming ConductedMIStatesWhereGamingConductedCd
States Where Gaming ConductedMNStatesWhereGamingConductedCd
States Where Gaming ConductedNJStatesWhereGamingConductedCd
States Where Gaming ConductedNYStatesWhereGamingConductedCd
States Where Gaming ConductedNCStatesWhereGamingConductedCd
States Where Gaming ConductedOHStatesWhereGamingConductedCd
States Where Gaming ConductedPAStatesWhereGamingConductedCd
States Where Gaming ConductedTXStatesWhereGamingConductedCd
States Where Gaming ConductedWAStatesWhereGamingConductedCd
LicensedYes (true)LicensedInd
License Suspended EtcfalseLicenseSuspendedEtcInd
Gaming With NonmembersfalseGamingWithNonmembersInd
Member Of Other EntityfalseMemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct
Individual With BooksRonald GoldsmanIndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line1733 Third Avenue Suite 510AddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10017ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game RevfalseCntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonSee part IVGamingManagerPersonNm
Gaming Manager Compensation$0GamingManagerCompensationAmt
Gaming Manager Services ProvnoneGamingManagerServicesProvTxt
Charitable Distribution RqrfalseCharitableDistributionRqrInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule G, Part III - GAMING ACTIVITIESFormAndLineReferenceDesc
ExplanationThe Crohn's & Colitis Foundation, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only 36 chapters held raffles in 27 states: ALABAMA, ARIZONA, ARKANSAS, CALIFORNIA, COLORADO, CONNECTICUT, FLORIDA, GEORGIA, ILLINOIS, INDIANA, KANSAS, MARYLAND, MASSACHUSETTS, MICHIGAN, MINNESOTA, MISSOURI, NEBRASKA, NEW JERSEY, NEW YORK, NORTH CAROLINA, OHIO, OREGON, PENNSYLVANIA, TEXAS, VIRGINIA, WASHINGTON, WISCONSIN.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (76 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVEALBANYNY12208141338310501(c)(3)$29,125Research
AURORA RESEARCH INSTITUTE LLC
PO BOX 341880MILWAUKEEWI53234464361213501(c)(3)$68,939RESEARCH
BAYLOR COLLEGE OF MEDICINE
1 BAYLOR PLZ BCM 320HOUSTONTX77030741613878501(c)(3)$146,251Research
BAYLOR RESEARCH INSTITUTE
3310 LIVE OAK SUITE 501DALLASTX75204751921898501(c)(3)$61,384Research
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVEBOSTONMA02215042103881501(c)(3)$37,903Research
BOSTON MEDICAL CENTER
ONE BOSTON MED CNTR PLBOSTONMA02118043314093501(c)(3)$44,073RESEARCH
BRIGHAM AND WOMEN'S HOSPITAL INC
75 FRANCIS STREETBOSTONMA02115042312909501(c)(3)$452,579Research
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVECLEVELANDOH44106341018992501(c)(3)$462,430Research
CEDARS SINAI MEDICAL CENTER
8700 BEVERLY BLVDLOS ANGELESCA90048951644600501(c)(3)$350,500Research
CHILDREN'S HOSPITAL BOSTON
300 LONGWOOD AVEBOSTONMA02115042774441501(c)(3)$630,372Research
CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTERPHILADELPHIAPA19104231352166501(c)(3)$159,406Research
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BLVDLOS ANGELESCA90027195612191501(c)(3)$173,230Research
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVECINCINNATIOH45229131083393501(c)(3)$182,034Research
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUECLEVELANDOH44195340714585501(c)(3)$137,805RESEARCH
DARTMOUTH COLLEGE
11 ROPE FERRY RDHANOVERNH03755020222111501(c)(3)$694,840RESEARCH
DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRLEBANONNH03756222519596501(c)(3)$659,677RESEARCH
DUKE UNIVERSITY MEDICAL CENTER
BOX 104132DURHAMNC27708560532129501(c)(3)$17,939RESEARCH
EMORY UNIVERSITY
1599 CLIFTON RD NEATLANTAGA30322580566256501(c)(3)$1,517,309Research
GENERAL HOSPITAL CORPORATION DBA MASSACHUSETTS
PO BOX 414876BOSTONMA02241042697983501(c)(3)$1,710,032RESEARCH
GEORGIA STATE UNIVERSITY RESEARCH FOUNDATION
30 COURTLAND ST NEATLANTAGA30303581845423501(c)(3)$149,250Research
HARVARD UNIVERSITY
1033 MASS AVE 2ND FLCAMBRIDGEMA02138042103580501(c)(3)$28,050RESEARCH
HAWAII PACIFIC UNIVERSITY
1164 BISHOP STHONOLULUHI96813990113920501(c)(3)$7,152RESEARCH
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
1 GUSTAVE L LEVY PLACENEW YORKNY10029136171197501(c)(3)$676,569Research
INDIANA UNIVERSITY
400 E 7TH STREETBLOOMINGTONIN47405356001673501(c)(3)$36,832Research
IOWA STATE UNIVERSITY OF SCIENCE AND TECHNOLOGY
1138 PEARSON HALLAmesIA50011426004224501(c)(3)$38,432RESEARCH
JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL
1300 YORK AVENUENEW YORKNY10065131623978501(c)(3)$520,216Research
JOHNS HOPKINS UNIVERSITY
733 N BROADWAYBALTIMOREMD21205520595110501(c)(3)$58,198Research
LA JOLLA INSTITUTE FOR ALLERGY AND IMMUNOLOGY
9420 ATHENA CIRLA JOLLACA92037330328688501(c)(3)$72,813Research
MASSACHUSETTS GENERAL HOSPITAL
7 CAMBRIDGE CENTERCAMBRIDGEMA02241042697983501(c)(3)$788,918Research
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVECAMBRIDGEMA02139042103594501(c)(3)$119,206Research
MAYO CLINIC COLLEGE OF MEDICINE
200 FIRST STREET SWROCHESTERMN55905416011702501(c)(3)$176,026Research
MEDICAL COLLEGE OF WISCONSIN INC
8701 WATERTOWN PLNK RDMILWAUKEEWI53226390806261501(c)(3)$79,450RESEARCH
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROADEAST LANSINGMI48824386005984501(c)(3)$87,207Research
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUENEW YORKNY10016133971298501(c)(3)$297,992Research
NORTHWESTERN UNIVERSITY
633 CLARK STREETEVANSTONIL60208362167817501(c)(3)$131,915RESEARCH
PALO ALTO VETERANS INSTITUTE FOR RESEARCH
PO BOX V-38PALO ALTOCA94304770207331501(c)(3)$9,000RESEARCH
PENNSYLVANIA STATE UNIVERSITY
227 W BEAVER AVESTATE COLLEGEPA16801246000376501(c)(3)$100,720Research
PRINCETON UNIVERSITY
701 CARNEGIE CENTERPRINCETONNJ08540210634501501(c)(3)$9,000RESEARCH
RESEARCH FOUNDATION OF SUNY AT STONY BROOK
PO BOX 9ALBANYNY12201141368361501(c)(3)$88,500RESEARCH
RESEARCH TRIANGLE INSTITUTE
PO BOX 900002RALEIGHNC27676560686338501(c)(3)$64,363Research
ROCKEFELLER UNIVERSITY
1230 YORK AVENUE BOX 82NEW YORKNY10065131624158501(c)(3)$28,958Research
Salk Institute for Biological Studies
10010 N TORREY PINES RDLA JOLLACA92037952160097501(c)(3)$81,081Research
SCRIPPS RESEARCH INSTITUTE
10550 N TORREY PINES RDLA JOLLACA90237330435954501(c)(3)$114,480Research
STANFORD UNIVERSITY DBA THE BOARD OF TRUSTEES
485 BROADWAYREDWOOD CITYCA94063941156365501(c)(3)$115,681RESEARCH
TEMPLE UNIVERSITY
1852 N 10TH STPHILADELPHIAPA19122231365971501(c)(3)$79,504Research
THETIS PHARMACEUTICALS LLC
23 BUSINESS PARK DRIVEBRANFORDCT06405274940990501(c)(3)$180,000RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVE SBIRMINGHAMAL35294636005396501(c)(3)$444,731RESEARCH
UNIVERSITY OF CALIFORNIA
10920 WHILSHIRE BLVDLOS ANGELESCA90024943067788501(c)(3)$271,660Research
UNIVERSITY OF CALIFORNIA - DAVIS
ONE SHIELDS AVENUEDAVISCA95616946036494501(c)(3)$86,873RESEARCH
UNIVERSITY OF CALIFORNIA LOS ANGELES
11000 KINROSS AveLOS ANGELESCA90095956006143501(c)(3)$325,000Research
UNIVERSITY OF CALIFORNIA RIVERSIDE
200 UNIV OFFICE BLDGRIVERSIDECA92521956006142501(c)(3)$149,873Research
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRLA JOLLACA92093956006144501(c)(3)$135,183Research
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
3333 CALIFORNIA STSAN FRANCISCOCA94143946036493501(c)(3)$190,103Research
UNIVERSITY OF CHICAGO
5801 S ELLIS AVENUECHICAGOIL60637362177139501(c)(3)$298,445RESEARCH
UNIVERSITY OF CINCINNATI (SPARC IBD)
260 STETSON STCINCINNATIOH45267316000989501(c)(3)$17,006RESEARCH
UNIVERSITY OF COLORADO DENVER
12631 E 17TH AVEAURORACO80045846000555501(c)(3)$346,107RESEARCH
UNIVERSITY OF HOUSTON
PO BOX 988HOUSTONTX77001746001399501(c)(3)$115,830Research
UNIVERSITY OF ILLINOIS
809 S MARSHFIELD AVECHICAGOIL60612376000511501(c)(3)$115,830RESEARCH
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALLLEXINGTONKY40506616033693501(c)(3)$88,000RESEARCH
UNIVERSITY OF MARYLAND BALTIMORE
PO BOX 41428BALTIMOREMD21203526002033501(c)(3)$128,609Research
UNIVERSITY OF MIAMI
PO BOX 405803ATLANTAGA30384590624458501(c)(3)$23,470Research
UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREETANN ARBORMI48109386006309501(c)(3)$958,923Research
UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRCHAPEL HILLNC27599566001393501(c)(3)$553,492Research
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STPHILADELPHIAPA19104231352685501(c)(3)$544,331Research
UNIVERSITY OF PITTSBURGH
200 LOTHROP STREETPITTSBURGHPA15123232919472501(c)(3)$116,494Research
UNIVERSITY OF PITTSBURGH-COMMONWEALTH SYSTEM OF HI
200 LOTHROP STREETPITTSBURGHPA15213250965591501(c)(3)$39,950Research
UNIVERSITY OF TEXAS AT DALLAS
800 W CAMPBELL ROADRICHARDSONTX75080751305566501(c)(3)$100,000RESEARCH
UNIVERSITY OF TEXAS MEDICAL BRANCH AT GALVESTON
301 UNIVERSITY BLVDGALVESTONTX77555746000949501(c)(3)$498,384RESEARCH
UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVDDALLASTX75235756002868501(c)(3)$87,375Research
UNIVERSITY OF TOLEDO
2801 WEST BANCROFT STREETTOLEDOOH43606346401483501(c)(3)$117,018RESEARCH
UNIVERSITY OF UTAH
420 MONTGOMERY STSAN FRANCISCOCA94104876000525501(c)(3)$86,873Research
UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK ST STE 6401MADISONWI53715396006492501(c)(3)$68,044Research
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SNASHVILLETN37232162047682501(c)(3)$232,642Research
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980568RICHMONDVA23301546001758501(c)(3)$100,341Research
WASHINGTON UNIVERSITY IN ST LOUIS
ONE BROOKING DRST LOUISMO63110430653611501(c)(3)$2,813,338Research
YALE UNIVERSITY
2 WHITNEY AVENEW HAVENCT06510060646973501(c)(3)$111,188Research
FieldValueIRS element (for citing)
Total501c3 Org76Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantsFormAndLineReferenceDesc
ExplanationPart I, Line 1 The Crohn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding a cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports annually as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. IF THE PROGRESS REPORTS DO NOT SHOW THAT THE RESEARCH HAS MET ITS PROPOSED OBJECTIVES, THE GRANT WILL NOT BE APPROVED FOR ADDITIONAL FUNDING AND WILL BE TERMINATED.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanYes (true)SupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (true)AnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtBonus Filing OrganizationBonusFilingOrganizationAmountDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmt
Michael Osso
President/CEO(non-voting)$419,836$53,000$84,770$0$3,406$0$561,012$0
Caren Heller
Chief Science Officer$362,382$10,000$14,000$386,382
Robert Territo
CFO/COO$266,153$5,500$16,359$10,065$298,077
Rohit Suri
Chief Technology officer$251,630$5,500$8,156$13,229$278,515
Michael Elkow
Chief Field Officer$249,548$2,000$12,705$7,629$271,882
Allison Coffey
Chief Development Officer$203,103$5,000$12,154$220,257
Jennifer Fagerstrom
VP, Chapter Growth and Develop$188,804$2,000$9,768$7,788$208,360
JUDY HOFFSTEIN
CHIEF MARKETING OFFICER$184,939$2,000$2,563$17,179$206,681
Kimberly Frederick-Snapper
Regional Director$187,907$11,264$199,171
Kristin Kaplan
VP, Special Events$174,549$10,859$8,749$194,157
Robert Bryan
VP, Chapter Growth and Develop$181,311$6,799$188,110
Jack Matarasso
VP Digital Marketing$168,959$8,439$177,398
Sheri Markus-Kennell
SVP, Business Dev (THRU 05/19)$97,309$3,300$5,950$2,083$108,642

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceCOMPENSATIONFormAndLineReferenceDesc
ExplanationSCHEDULE J, PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, GEOGRAPHIC LOCATION, TENURE, MISSION EXPENSES AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD AND COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION WILL COMMISSION ITS NEXT STUDY IN 2021. Part I, Line 4B The Foundation instituted a Section 457(f) nonqualified deferred compensation plan for the benefit of the President/CEO, Michael Osso, in 2018. The agreement allows for annual contributions to be made based on meeting pre-determined objectives. In 2019, the Foundation credited $50,000 to the President/CEO which has been reflected in Schedule J, Part II, Column C. No amount was actually paid to the CEO during the year under this agreement, as the terms of the agreement have not yet been satisfied. Incentive Program Schedule J, Part I, Line 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. The Foundation acknowledges all of its other employees through annual lump-sum incentive awards based on meeting individual, departmental, and overall Foundation performance goals.ExplanationTxt

Schedule M IRS990ScheduleM

FieldValueIRS element (for citing)
Works Of ArtWorksOfArtGrp
Art Historical TreasuresArtHistoricalTreasuresGrp
Art Fractional InterestArtFractionalInterestGrp
Books And PublicationsBooksAndPublicationsGrp
Clothing And Household GoodsClothingAndHouseholdGoodsGrp
Cars And Other VehiclesCarsAndOtherVehiclesGrp
Boats And PlanesBoatsAndPlanesGrp
Intellectual PropertyIntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution91ContributionCnt
Noncash Contributions Rpt F990$641,800NoncashContributionsRptF990Amt
Method Of Determining RevenuesMarket PriceMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Securities Closely Held StockSecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust IntrstsSecurPrtnrshpTrustIntrstsGrp
Securities MiscellaneousSecuritiesMiscellaneousGrp
Qualified Contrib Hist StructQualifiedContribHistStructGrp
Qualified Contrib OtherQualifiedContribOtherGrp
Real Estate ResidentialRealEstateResidentialGrp
Real Estate CommercialRealEstateCommercialGrp
Real Estate OtherRealEstateOtherGrp
CollectiblesCollectiblesGrp
Food InventoryFoodInventoryGrp
Drugs And Medical SuppliesDrugsAndMedicalSuppliesGrp
TaxidermyTaxidermyGrp
Historical ArtifactsHistoricalArtifactsGrp
Scientific SpecimensScientificSpecimensGrp
Archaeological ArtifactsArchaeologicalArtifactsGrp
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedYes (true)ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Process used to review form 990Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the audit committee for discussion and comment. A copy of the 990 is distributed to all Board of Trustees prior to filing.
Conflict of Interest Policy Monitoring & EnforcementPart VI, Section B, Line 12 All officers, directors, trustees, and key employees of the Crohn's & Colitis Foundation are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with THE FOUNDATION. THE FOUNDATION monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately.
Process for determining compensationPart VI, section B, Lines 15 a & b The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic location, tenure, mission and individual performance help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board and Compensation and Benefits Committee using guidelines and comparable data provided in National Compensation Studies of Chief Staff Executives. The Foundation has an independent compensation consultant to review and validate the compensation it pays its employees. The Foundation's practice will be to continue to rely on benchmarking surveys and other industry data comparing the compensation THE FOUNDATION pays to its employees with compensation paid to employees of other not for profit organizations of similar size. The next compensation study will take place in 2021.
Availability of documents to the publicpart vi, section C, line 19 The foundation makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.CROHNSCOLITISFOUNDATION.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion.
ContributionsPart VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation ("THE FOUNDATION") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to THE FOUNDATION nor does THE FOUNDATION have ownership rights to them. In 2019, THE FOUNDATION received $41,745 in revenues from this program. Additionally, THE FOUNDATION receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of THE FOUNDATION's mission. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, THE FOUNDATION has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2019, contributed services and airtime amounted to $7,996,354. Form 990, Part XI, Line 9 Other changes in net assets Changes in Charitable Remainder Trusts: $6,653 Uncollectible Pledges: ($170,214) TOTAL TO PART XI, LINE 9: ($163,561)