LUPUS RESEARCH ALLIANCE INC: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization: LUPUS RESEARCH ALLIANCE INC (EIN 58-2492929)
Tax period: 2024-01-01 to 2024-12-31
Filed: 2025-09-11
IRS object ID: 202502549349301630
Schema version: 2024v5.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2025-09-11T14:27:40-05:00	ReturnTs
Tax Period End	2024-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	131655065	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	LUTZ AND CARR CPAS LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	551 FIFTH AVENUE SUITE 400	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10176	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2024-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	582492929	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS RESEARCH ALLIANCE INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	LUPU	BusinessNameControlTxt
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA ROSE	PersonNm
Person Title	CHIEF FINANCIAL OFFICER	PersonTitleTxt
Phone	2122182840	PhoneNum
Signature	2025-09-11	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	0	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JENNIFER COATES	PreparerPersonNm
PTIN	P02247728	PTIN
Phone	2126972299	PhoneNum

Field	Value	IRS element (for citing)
Tax	2024	TaxYr
Build TS	2025-03-06 01:10:19Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ALBERT T ROY	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$31,453,401	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUPUSRESEARCH.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1999	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	FREEING THE WORLD OF LUPUS.	ActivityOrMissionDesc
Voting Members Governing Body	25	VotingMembersGoverningBodyCnt
Voting Members Independent	25	VotingMembersIndependentCnt
Total Employee	72	TotalEmployeeCnt
Total Volunteers	500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$41,038,661	PYContributionsGrantsAmt
CY Contributions Grants	$11,172,604	CYContributionsGrantsAmt
PY Program Service Revenue	$1,197,560	PYProgramServiceRevenueAmt
CY Program Service Revenue	$1,874,491	CYProgramServiceRevenueAmt
PY Investment Income	$8,063,403	PYInvestmentIncomeAmt
CY Investment Income	$4,937,822	CYInvestmentIncomeAmt
PY Other Revenue	$561,873	PYOtherRevenueAmt
CY Other Revenue	$570,065	CYOtherRevenueAmt
PY Total Revenue	$50,861,497	PYTotalRevenueAmt
CY Total Revenue	$18,554,982	CYTotalRevenueAmt
PY Grants And Similar Paid	$16,607,966	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$15,491,102	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$9,057,340	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$11,287,230	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$72,500	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$75,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$4,204,298	CYTotalFundraisingExpenseAmt
PY Other Expenses	$9,667,445	PYOtherExpensesAmt
CY Other Expenses	$11,322,100	CYOtherExpensesAmt
PY Total Expenses	$35,405,251	PYTotalExpensesAmt
CY Total Expenses	$38,175,432	CYTotalExpensesAmt
PY Revenues Less Expenses	$15,456,246	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$19,620,450	CYRevenuesLessExpensesAmt
Total Assets BOY	$111,947,130	TotalAssetsBOYAmt
Total Assets EOY	$93,254,416	TotalAssetsEOYAmt
Total Liabilities BOY	$36,633,486	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$37,541,841	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$75,313,644	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$55,712,575	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	PUTTING PEOPLE WITH LUPUS AT THE CENTER OF ALL WE DO, THE LUPUS RESEARCH ALLIANCE DRIVES THE DISCOVERY & DEVELOPMENT OF NEXT GENERATION LUPUS DIAGNOSTICS AND CURATIVE TREATMENTS THROUGH INNOVATIVE RESEARCH & COLLABORATIONS.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$14,619,194	ExpenseAmt
Grant	$12,856,659	GrantAmt
Desc	THE LUPUS RESEARCH ALLIANCE (LRA), THE LARGEST NON-GOVERNMENTAL, PRIVATE FUNDER OF LUPUS RESEARCH WORLDWIDE: FUNDS INNOVATIVE RESEARCH THAT SPANS THE SPECTRUM FROM FOUNDATIONAL TO CLINICAL RESEARCH. FOSTERS DIVERSE SCIENTIFIC TALENT, STIMULATES COLLABORATIONS, AND DRIVES DISCOVERIES TO TRANSFORM TREATMENT WHILE ADVANCING TOWARD A CURE. HAS INVESTED NEARLY $272 MILLION IN LUPUS RESEARCH INCLUDING 620+ RESEARCH GRANTS LRA-FUNDED RESEARCH PAVED THE WAY FOR THE ONLY TWO BIOLOGIC DRUGS CURRENTLY APPROVED FOR LUPUS, AND THE LRA IS INVOLVED IN NUMEROUS ONGOING PHASE 3 TRIALS. FURTHER, LRA RESEARCH INVESTMENTS HAVE CONTRIBUTED TO THE IDENTIFICATION OR FURTHER VALIDATION OF TWO DOZEN DISEASE PATHWAYS IN LUPUS AND HAVE ENABLED THE DISCOVERY, PROOF OF CONCEPT, OR DEVELOPMENT OF MORE THAN A DOZEN DIFFERENT NEW THERAPIES FOR LUPUS. SINCE THE FORMATION OF THE LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN), LRA HAS DEDICATED $34 MILLION TO BOLSTER LUPUS CLINICAL RESEARCH INFRASTRUCTURE AND QUALITY.THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORY BOARD INCLUDES TOP SCIENTIFIC EXPERTS, AND KEY LAY MEMBERS OF THE LRA'S BOARD OF DIRECTORS, WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA.IN 2024 ALONE, OVER $12 MILLION WAS AWARDED IN GRANTS FOR 38 HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS AND THUS LEAD TO A CURE. BELOW IS A SUMMARY OF RESEARCH GRANTS AND PROGRAMS FUNDED BY THE LRA IN 2024: 1) 11 LUPUS INNOVATION AWARD GRANTS WERE AWARDED TOTALING ALMOST $4 MILLION OVER TWO YEARS, THIS PROGRAM SUPPORTS PIONEERING, HIGH-RISK, HIGH-REWARD PROJECTS ADDRESSING MAJOR CHALLENGES IN LUPUS RESEARCH. EARLY-STAGE INVESTIGATORS ARE GIVEN SPECIAL CONSIDERATION DURING THE REVIEW PROCESS AND ARE ELIGIBLE FOR A THIRD YEAR OF FUNDING; 2) 6 ADMINISTRATIVE LUPUS RESEARCH SUPPLEMENT GRANTS WERE AWARDED TOTALING $90,000. THIS PROGRAM SUPPORTS PROMISING TRAINEES WHO ARE WORKING WITH LRA-FUNDED RESEARCHERS OR INVESTIGATORS FOCUSED ON AUTOIMMUNITY SUPPORTED BY THE NATIONAL INSTITUTES OF HEALTH (NIH), DEPARTMENT OF DEFENSE (DOD), OR EQUIVALENT GRANTS IN GOOD STANDING. 3) 3 GRANTS TOTALING APPROXIMATELY $1.8 MILLION WERE AWARDED TO RESEARCHERS IN THE CAREER DEVELOPMENT AWARD PROGRAM THAT AIMS TO SUPPORT EARLY CAREER INVESTIGATORS FOR THE PERIOD BETWEEN THE COMPLETION OF POST-DOCTORATE FELLOWSHIP TRAINING AND ESTABLISHMENT AS AN INDEPENDENT INVESTIGATOR. THE PROGRAM PROVIDES UP TO $600,000 OVER FOUR YEARS. 4) 2 POSTDOCTORAL GRANTS FELLOWSHIP GRANTS AWARDED, THIS GRANT IS DESIGNED TO FUND PROMISING RESEARCH FELLOWS AND PROVIDES THEM WITH UP TO $170,000 OVER TWO YEARS TO SUPPORT THE GENERATION OF DATA, UNIQUE RESEARCH IDEAS AND PROGRESS TO TRANSITION TO AN INDEPENDENT RESEARCH ROLES FOCUSED ON LUPUS RESEARCH. 5) 5 TRANSLATIONAL BRIDGE AWARDS FUNDED TOTALING APPROXIMATELY $2.2 MILLION. THIS PROGRAM PROVIDES UP TO $450,000 OVER TWO YEARS, WITH A GOAL TO BRIDGE THE GAP BETWEEN POST-DISCOVERY AND PRE-COMMERCIAL DEVELOPMENT WITH AN AIM TO ACCELERATE THE PACE AT WHICH PROMISING LRA-FUNDED FOUNDATIONAL RESEARCH DISCOVERIES ARE TRANSLATED INTO CLINICAL EVALUATION AND TRANSITIONED TO A VIABLE PRODUCT THAT WILL IMPACT PATIENTS DIRECTLY. 6) 11 TARGETED RESEARCH PROGRAM ON ENGINEERED CELL THERAPIES FOR LUPUS GRANTS TOTALING OVER $4 MILLION. THIS PROGRAM ADVANCES THE DEVELOPMENT OF NEXT GENERATION ENGINEERED CELL THERAPIES WITH A CLEAR AND DIRECT RELEVANCE TO PEOPLE WITH LUPUS.7) THE LUPUS INSIGHT PRIZE WAS AWARDED $200,000. THIS AWARD RECOGNIZED TWO LEADING RESEARCHERS WHO HAVE MADE A MAJOR CONTRIBUTION RELEVANT TO LUPUS, AS PART THE LRA'S COMMITMENT TO COLLABORATION, THE LRA WORKS WITH A VARIETY OF PARTNERS ACROSS SECTORS AIMED AT ACCELERATING RESEARCH DISCOVERIES, LEVERAGING RESOURCES, AND EXPEDITING THE DRUG DEVELOPMENT PROCESS TO IMPROVE THE QUALITY OF LIFE OF PEOPLE LIVING WITH LUPUS BRINGING TOGETHER THE KEY PLAYERS IN THE FIGHT AGAINST LUPUS -- OUR GRANTEES, SCIENTIFIC ADVISORS, CLINICIANS, THE BIOPHARMACEUTICAL INDUSTRY, THE U.S. GOVERNMENT, AND PEOPLE LIVING WITH LUPUS. THE LRA'S ROBUST FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS WITH THE GOAL OF IMPROVING THE LIVES OF PEOPLE WITH LUPUS SOON. THROUGH COMPETITIVE PEER-REVIEW PROCESS PROJECTS BY THE LRA AIM TO TRANSLATE RESULTS FROM THE RESEARCH BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE. BECAUSE THE LUPUS RESEARCH ALLIANCE'S BOARD OF DIRECTORS FUNDS THE ADMINISTRATIVE AND FUNDRAISING EXPENSES, 100% OF ALL OTHER CONTRIBUTIONS GOES TO SUPPORT THE LRA'S LUPUS RESEARCH PROGRAMS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$14,814,000	ExpenseAmt
Grant	$2,634,443	GrantAmt
Revenue	$1,874,491	RevenueAmt
Desc	THE LUPUS RESEARCH ALLIANCE (LRA) HAS MADE SIGNIFICANT STRIDES IN ADVANCING ITS SCIENTIFIC MISSION THROUGH STRATEGIC PLANNING, PROGRAM EXPANSION AND OPERATIONAL IMPROVEMENTS.IN 2024, THE LRA SUCCESSFULLY DEVELOPED AND IMPLEMENTED THE FIRST-YEAR GOALS OF ITS 20242028 RESEARCH STRATEGY. IN ALIGNMENT WITH THE UPDATED RESEARCH STRATEGY, LRA LAUNCHED SEVERAL INNOVATIVE, PATIENT-CENTRIC RESEARCH INITIATIVES, INCLUDING THE TRANSLATIONAL BRIDGE AWARD, THE TARGETED RESEARCH PROGRAM ON ENGINEERED CELL THERAPIES, THE RENEWED CYCLE OF THE COMMON MECHANISMS IN AUTOIMMUNE DISEASES PROGRAM, AND THE MECHANISTIC CLINICAL STUDIES AWARD. ADDITIONALLY, THE ORGANIZATION BEGAN DEVELOPING A LUPUS BIOMARKERS STRATEGY AND INITIATED THE DEVELOPMENT OF A COMPREHENSIVE DATA STRATEGY, SCHEDULED FOR COMPLETION IN 2025.LRA'S CURRENT GRANT PROGRAMS, INCLUDING THE GLOBAL TEAM SCIENCE AWARD (GTSA), CAREER DEVELOPMENT AWARD, POST DOCTORAL AWARD, AND LUPUS INNOVATION AWARD --WERE EXPANDED AND OPTIMIZED THROUGH ACTIVE STAFF OVERSIGHT AND STRATEGIC COLLABORATIONS. THIS INCLUDED LAUNCHING A REQUEST FOR APPLICATIONS IN A COLLABORATIVE PROGRAM ACROSS THE GTSA AND CONTINUING THE ADMINISTRATIVE SUPPLEMENT TRAINING PROGRAM.TO RAISE THE VISIBILITY OF ITS RESEARCH PROGRAMS, LRA SUBMITTED MULTIPLE ABSTRACTS TO INTERNATIONAL SCIENTIFIC MEETINGS, SEVERAL WERE ACCEPTED AND WILL BE PRESENTED IN 2025. THE ORGANIZATION ALSO HOSTED A SUCCESSFUL AND ENGAGING ANNUAL INVESTIGATOR'S AND PROGRAM SPECIFIC MEETINGS: FORUM FOR DISCOVERY, ALLIANCE OF GTSA AND OTHER PROGRAM-SPECIFIC RESEARCH MEETINGS IN NOVEMBER OF 2024. OPERATIONAL IMPROVEMENTS INCLUDED THE SELECTION AND IMPLEMENTATION OF A NEW GRANT MANAGEMENT SYSTEM, THE RECRUITMENT AND ONBOARDING OF TWO STAFF SCIENTISTS AND A LUPUS ABC ADMINISTRATOR, AND THE STRENGTHENING OF THE RESEARCH TEAM THROUGH TARGETED TEAM-BUILDING AND PROFESSIONAL DEVELOPMENT EFFORTS. LUPUS ABC HAS BEEN SUCCESSFULLY ESTABLISHED AS A MODEL PUBLIC-PRIVATE PARTNERSHIP IN THE REGULATORY SPACE, DEMONSTRATING LEADERSHIP AND INNOVATION IN ADVANCING LUPUS RESEARCH AND EXPERIENCED SUBSTANTIAL GROWTH IN MEMBERSHIP DURING 2024. THE INITIATIVE SECURED ACTIVE PARTICIPATION FROM THE FDA'S CENTER FOR BIOLOGICS EVALUATION AND RESEARCH, REINFORCING ITS CREDIBILITY AND COLLABORATIVE STRENGTH. A MAJOR MILESTONE WAS THE FDA'S ACKNOWLEDGMENT OF CLASI 70 AS A PRIMARY EFFICACY ENDPOINT IN CUTANEOUS LUPUS CLINICAL TRIALS, MARKING A SIGNIFICANT ADVANCEMENT IN CLINICAL OUTCOME MEASUREMENT. ADDITIONALLY, LUPUS ABC CONVENED A DEDICATED PATIENT-REPORTED OUTCOMES (PRO) MEETING TO FURTHER INTEGRATE PATIENT PERSPECTIVES INTO RESEARCH AND REGULATORY STRATEGIES. LUPUS NEXUS COMPLETED ITS INFRASTRUCTURE BUILD AND OFFICIALLY LAUNCHED TO BOTH RESEARCH AND PATIENT COMMUNITIES. IT FINALIZED FOUNDATIONAL ANALYSIS PLANS, SELECTED KEY VENDORS, AND RECRUITED 200 PARTICIPANTS. ADDITIONALLY, 10 NEW CLINICAL SITES WERE ACTIVATED THROUGH LUCIN (SEE BELOW), AND A SUSTAINABLE FINANCIAL MODEL WITH A DEFINED MEMBERSHIP FEE STRUCTURE WAS ESTABLISHED. LUPUS THERAPEUTICS, LLC :THE LRA FOUNDED LUPUS THERAPEUTICS, LLC (LT) AS THE CLINICAL RESEARCH AFFILIATE OF THE LRA IN 2018. WITH THIS ADDITION, THE LRA IS THE ONLY ORGANIZATION LEADING LUPUS RESEARCH ACROSS THE CONTINUUM FROM ACCELERATING BASIC DISCOVERIES IN THE LAB THROUGH CLINICAL EVALUATION OF NEW THERAPIES. MANY OF THE BASIC RESEARCH BREAKTHROUGHS SUPPORTED BY THE LRA HAVE HELPED UNRAVEL THE COMPLEXITIES OF LUPUS AND ENABLED THE DEVELOPMENT OF POTENTIAL TREATMENTS AND DIAGNOSTICS NOW IN CLINICAL STUDIES. LT IS ACTIVELY SUPPORTING SEVERAL CLINICAL STUDIES FOR NEW THERAPIES THROUGH THE LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN). LT OVERSEES LUCIN, A NORTH AMERICA-BASED LUPUS CLINICAL TRIALS NETWORK OF 60+ PREMIER RESEARCH MEDICAL CENTERS. THE LRA PROVIDED OVER $2.6 MILLION IN GRANTS IN 2024 TO CONTINUE FUNDING TOP ACADEMIC CENTERS TO FOSTER ROBUST, HIGH QUALITY CLINICAL TRIAL CONDUCT WITH PARTICIPATION ACROSS NORTH AMERICA.LT ALSO OFFERS EXPERTISE COMBINED WITH THAT OF 250+ LUCIN PROVIDERS AND THE LRA TO SUPPORT ACADEMIC, NONPROFIT AND BIOTECH AND PHARMACEUTICAL ORGANIZATIONS TO PLAN, INITIATE AND MANAGE CLINICAL RESEARCH. THIS OCCURS THROUGH DIVERSE ADVISORY SERVICES AND DIRECT CLINICAL OPERATIONS SUPPORT. AN ANNUAL LUCIN COMMUNITY MEETING IS HELD TO BRING TOGETHER ALL OF THE PARTNERS IN CLINICAL RESEARCH TO HIGHLIGHT RECENT ADVANCEMENTS, BOLSTER UNDERSTANDING, ADDRESS CURRENT CHALLENGES IN CLINICAL RESEARCH AND ENCOURAGE COLLABORATION FOR SUCCESSFUL DEVELOPMENT OF NEW TREATMENT APPROACHES.IN ADDITION, LT HAS EXPANDED THE FIRST PEER-TO-PEER CLINICAL TRIALS EDUCATION PROGRAM, PATIENT ADVOCATES FOR LUPUS STUDIES OR PALS TO INCLUDE TRIAL BUDDY SUPPORT DURING PARTICIPATION IN CLINICAL TRIALS. PALS AIMS TO IMPROVE CLINICAL RESEARCH AWARENESS, KNOWLEDGE AND ENROLLMENT, WITH A SPECIFIC FOCUS ON MAKING SURE POPULATIONS AT GREATEST RISK FOR LUPUS ARE WELL REPRESENTED IN STUDIES. LT ALSO SUPPORTS OTHER PATIENT ENGAGEMENT ACTIVITIES SUCH AS PATIENT ADVISORY BOARDS, PATIENT VISITS AND PATIENT PROTOCOL REVIEW COMMITTEES TO ENSURE THAT INDIVIDUALS IMPACTED BY LUPUS HAVE A VOICE IN THE TREATMENT DEVELOPMENT PROCESS. FINALLY, LT EFFORTS SUPPORT VARIOUS EDUCATION OFFERINGS FOR PROVIDERS AND PATIENTS, AND COMMUNITY-BASED OUTREACH TO ENSURE REPRESENTATIVE PARTICIPATION OF THE ENTIRE LUPUS COMMUNITY IN CLINICAL RESEARCH.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$571,134	ExpenseAmt
Desc	THE LUPUS RESEARCH ALLIANCE'S ADVOCACY EFFORTS FOCUS ON EDUCATING CONGRESS ABOUT LUPUS AND URGING CONGRESS AND THE ADMINISTRATION TO PROVIDE THE FUNDS AND SUPPORT NEEDED TO ADVANCE LUPUS RESEARCH THAT CAN LEAD TO BETTER TREATMENTS AND, ULTIMATELY, A CURE. EFFORTS ALSO INCLUDE WAYS TO ENSURE INCREASED DIVERSITY IN CLINICAL TRIALS AND REDUCING BARRIERS TO ENROLLMENT FOR ALL WHO WANT TO PARTICIPATE. THE TOP GOALS OF THE LUPUS RESEARCH ALLIANCE PUBLIC POLICY PROGRAM FOCUS MAINLY ON FUNDING FOR LUPUS RESEARCH THAT WILL LEAD TO BETTER TREATMENTS AND ELIMINATE RACIAL DISPARITIES IN HEALTHCARE. GOALS INCLUDE: INCREASING FEDERAL FUNDING FOR LUPUS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH (NIH), AND SPECIFICALLY THE NATIONAL INSTITUTE FOR ALLERGY & INFECTIONS DISEASE (NIAID) AND NATIONAL INSTITUTE FOR ARTHRITIS & MUSCULOSKELETAL DISORDERS (NIAMS). ADDITIONALLY, LRA ADVOCATES FOR LUPUS RESEARCH THROUGH THE DEPARTMENT OF DEFENSE (DOD); SUPPORTING THE LRA'S PARTNERSHIP WITH THE FDA, THE LUPUS ACCELERATING BREAKTHROUGHS CONSORTIUM (LUPUS ABC); AND ENSURING THE PATIENT VOICE IS INCORPORATED IN THE DRUG DEVELOPMENT PROCESS. VOLUNTEERS ACROSS THE COUNTRY HELP AMPLIFY THESE OUTREACH EFFORTS.THROUGH THE LUPUS RESEARCH ALLIANCE ONGOING PUBLIC POLICY PROGRAM EFFORTS, SIGNIFICANT FUNDING FOR LUPUS RESEARCH HAS BEEN OBTAINED UNDER THE DEPARTMENT OF DEFENSE (DOD) CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP) OPERATED BY THE ARMY MEDICAL RESEARCH AND MATERIEL COMMAND. GIVEN THE HIGH DEMAND FOR NEW RESEARCH ALONGSIDE THE RISING NUMBERS OF WOMEN TREATED AT MILITARY HEALTH FACILITIES AS WELL AS THE LINK BETWEEN POST-TRAUMATIC STRESS DISORDER (PTSD) AND THE DEVELOPMENT OF AN AUTOIMMUNEDISEASE, THE LUPUS RESEARCH ALLIANCE HAS WORKED TO CONVINCE CONGRESS TO INCREASE ITS INVESTMENT AND PROVIDE $15 MILLION FOR THE LUPUS RESEARCH PROGRAM IN THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS OPERATED UNDER THE DEFENSE HEALTH PROGRAM IN THE DEFENSE APPROPRIATIONS BILL. THIS ADDITIONAL INVESTMENT IS CRITICAL FOR DISCOVERIES THAT CAN MAKE A DIFFERENCE IN PATIENTS' ABILITY TO BE THE BEST VERSION OF THEMSELVES. THE LRA LED THE PUSH FOR THE CREATION OF THE LUPUS RESEARCH PROGRAM, WHICH WAS FIRST FUNDED WITH $5 MILLION IN 2017 AND INCREASED TO $10 MILLION PER YEAR IN 2020. LRA LEADERSHIP, OUR ADVOCATES, AND ALLIED MEMBERS OF CONGRESS ARE WORKING TO ADVANCE RESEARCH PRIORITIES LIKE THIS THAT ARE CRITICAL TO THE LUPUS RESEARCH ALLIANCE AND ALL PEOPLE IMPACTED BY LUPUS.IN 2024, AS THE THREAT OF CUTS TO HEALTH RESEARCH FUNDING BECAME MORE PRONOUNCED, THE LUPUS RESEARCH ALLIANCE INTENSIFIED ITS ADVOCACY TO PROTECT AND EXPAND SUPPORT FOR LUPUS RESEARCH. LRA'S PRIMARY ADVOCACY PUSH CENTERED ON ENCOURAGING CONSTITUENTS TO ENGAGE WITH THEIR HOUSE LEGISLATORS DURING THE AUGUST CONGRESSIONAL RECESS. TO SUPPORT THIS EFFORT, LRA LAUNCHED A WEBPAGE WITH RESOURCES TO HELP ADVOCATES LOCATE THEIR LEGISLATORS AND IDENTIFY LOCAL TOWN HALLS AND EVENTS. ADDITIONALLY, STAFF HELD A VIRTUAL OFFICE HOUR SESSION TO ANSWER QUESTIONS AND HELP ADVOCATES PREPARE TO SHARE THEIR STORIES AND EMPHASIZE THE IMPORTANCE OF RESEARCH FUNDING.ONGOING ADVOCACY FOCUSES ON ENSURING LEGISLATION THAT SECURES THE FEDERAL FUNDING SUPPORT NECESSARY TO AFFORD INVESTIGATORS THE RESOURCES TO FOLLOW THROUGH WITH RESEARCH DISCOVERIES THAT WILL IMPROVE THE UNDERSTANDING OF AND TREATMENT FOR LUPUS. EACH SPRING, LUPUS RESEARCH ADVOCATES MEET WITH MEMBERS OF CONGRESS AND THEIR STAFF TO DESCRIBE THEIR PERSONAL LUPUS JOURNEY AND HOW THE DISEASE HAS AFFECTED THEIR LIFE, AND TO REQUEST SPECIFIC POLICIES THAT WILL MOVE LUPUS RESEARCH FORWARD. THE GOAL IS TO INCREASE AWARENESS OF LUPUS AND THE IMPACT IT HAS ON PEOPLE'S DAILY LIVES TO MEMBERS OF CONGRESS AND TO REQUEST THEIR SUPPORT FOR INCREASED FUNDING FOR LUPUS RESEARCH FROM FEDERAL PROGRAMS SUCH AS THE NIH AND CDMRP.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$30,004,328	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	Yes (1)	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	Yes (1)	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	120	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	72	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	25	GoverningBodyVotingMembersCnt
Independent Voting Member	25	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA ROSE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVE SUITE 300	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (38 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
IRA AKSELRAD
CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
JOSEPH MAURIELLO
TREASURER	1.00	Yes (X)	Yes (X)	$0	$0	$0
ANNA FISCH
SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
JAMES ANDREW
DIRECTOR	1.00	Yes (X)		$0	$0	$0
BISHOP RUDY V CARLTON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIE COLON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ANDREW C CHAN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIFER DAKIN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIE DESCHERER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KATEY DRISCOLL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
MOTI FERDER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
XAVIER GROSS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JOE GERMANOTTA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DAVID KIES
DIRECTOR	1.00	Yes (X)		$0	$0	$0
GARY KORETSKY
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL LAVECCHIA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
VERONICA VARGAS LUPO
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NADEEM MEGHJI
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM J MULVIHILL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NIDHI PATEL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT SEDER MD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL J WALLACE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JULIUS WILLIAMS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM WOLFE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SPENCER ZWICK
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ALBERT ROY
CEO AND PRESIDENT	40.00		Yes (X)	$427,429	$0	$92,685
STACIE BELL PHD
CHIEF CLINICAL RESEARCH OFFICER	40.00		Yes (X)	$301,419	$0	$50,676
DEBRA ROSE
CHIEF FINANCAL OFFICER	40.00		Yes (X)	$259,368	$0	$84,594
TEODORA STAEVA
CHIEF SCIENTIFIC OFFICER	40.00		Yes (X)	$325,453	$0	$81,570
ANDREA O'NEILL
VP, DEVELOPMENT	40.00		Yes (X)	$248,348	$0	$44,585
PENELOPE MITCHELL
VP OF COMMUNICATIONS	40.00			$210,708	$0	$47,301	Yes (X)
LUKE EASLEY
VP OF HR & ADMINISTRATION	40.00			$233,917	$0	$42,715	Yes (X)
DEVON KELLY
LUPUS NEXUS DIRECTOR	40.00			$226,537	$0	$46,357		Yes (X)
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANTHROPY	40.00			$189,043	$0	$47,611		Yes (X)
HOANG NGUYEN
DIRECTOR OF SCIENTIFIC PARTNERSHIP	40.00			$167,678	$0	$39,601		Yes (X)
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVELOPMENT	40.00			$147,444	$0	$52,686		Yes (X)
KENNETH M FABER
FORMER CEO & PRESIDENT	40.00			$375,000	$0	$0			Yes (X)
JENNIFER MERIWETHER
CLIN OPS DIRECTOR, LT	40.00			$199,140	$0	$39,763		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,311,484	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$670,144	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	13	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (1)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
EG&A CIRP DBA MCS HEALTHCARE PR
110 ALLEN ROAD SUITE 300	BASKING RIDGE	NJ	07921	PUBLIC RELATIONS CONSULTANT	$337,767
SCHANER & LUBITZ PLLC
4550 MONTGOMERY AVE SUITE 1100 N	BETHESDA	MD	20814	LIFE SCIENCES ATTORNEY	$236,624
KDH RESEARCH AND COMMUNICATION INC
145 15TH STREET NE SUITE 831	ATLANTA	GA	30309	CHANGE CONSULTANT	$221,900
DECISION INFORMATION RESOURCES INC
3900 ESSEX LANE SUITE 900	HOUSTON	TX	77027	CHANGE CONSULTANT	$200,000
LAUTMAN MASKA NEIL AND CO
1703 RHODE ISLAND AVE NW STE 301	WASHINGTON	DC	20036	DIRECT RESPONSE CONSULTANT	$161,000

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	10	CntrctRcvdGreaterThan100KCnt
Fundraising	$3,788,150	FundraisingAmt
All Other Contributions	$7,384,454	AllOtherContributionsAmt
Noncash Contributions	$166,624	NoncashContributionsAmt
Total Contributions	$11,172,604	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	LUCIN CONSULTING REVENUE	Desc
Business	900099	BusinessCd
Total Revenue Column	$1,874,491	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,874,491	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$1,874,491	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,867,297	TotalRevenueColumnAmt
Exclusion	$1,867,297	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$15,276,526	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$12,206,001	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$3,070,525	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,070,525	TotalRevenueColumnAmt
Exclusion	$3,070,525	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$692,418	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$3,788,150	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$692,418	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	SUBLET INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$570,065	TotalRevenueColumnAmt
Exclusion	$570,065	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$570,065	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$18,554,982	TotalRevenueColumnAmt
Related Or Exempt Func Income	$1,874,491	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$5,507,887	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$12,646,443	TotalAmt
Program Services	$12,646,443	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$2,844,659	TotalAmt
Program Services	$2,844,659	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$2,482,569	TotalAmt
Program Services	$1,462,319	ProgramServicesAmt
Management And General	$485,262	ManagementAndGeneralAmt
Fundraising	$534,988	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$6,266,791	TotalAmt
Program Services	$3,994,959	ProgramServicesAmt
Management And General	$1,016,399	ManagementAndGeneralAmt
Fundraising	$1,255,433	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$431,227	TotalAmt
Program Services	$278,018	ProgramServicesAmt
Management And General	$65,163	ManagementAndGeneralAmt
Fundraising	$88,046	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$1,467,433	TotalAmt
Program Services	$932,484	ProgramServicesAmt
Management And General	$234,951	ManagementAndGeneralAmt
Fundraising	$299,998	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$639,210	TotalAmt
Program Services	$400,273	ProgramServicesAmt
Management And General	$108,162	ManagementAndGeneralAmt
Fundraising	$130,775	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$251,042	TotalAmt
Program Services	$197,306	ProgramServicesAmt
Management And General	$40,970	ManagementAndGeneralAmt
Fundraising	$12,766	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$78,240	TotalAmt
Management And General	$78,240	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$180,399	TotalAmt
Program Services	$180,399	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$75,000	TotalAmt
Fundraising	$75,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$173,130	TotalAmt
Management And General	$173,130	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,655,114	TotalAmt
Program Services	$1,432,005	ProgramServicesAmt
Management And General	$440,411	ManagementAndGeneralAmt
Fundraising	$782,698	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$175,477	TotalAmt
Program Services	$115,012	ProgramServicesAmt
Management And General	$41,102	ManagementAndGeneralAmt
Fundraising	$19,363	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,267,826	TotalAmt
Program Services	$1,933,319	ProgramServicesAmt
Management And General	$188,519	ManagementAndGeneralAmt
Fundraising	$145,988	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$848,409	TotalAmt
Program Services	$204,189	ProgramServicesAmt
Management And General	$576,376	ManagementAndGeneralAmt
Fundraising	$67,844	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$692,907	TotalAmt
Program Services	$436,974	ProgramServicesAmt
Management And General	$163,243	ManagementAndGeneralAmt
Fundraising	$92,690	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,535,283	TotalAmt
Program Services	$1,373,398	ProgramServicesAmt
Management And General	$136,533	ManagementAndGeneralAmt
Fundraising	$25,352	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$115,082	TotalAmt
Program Services	$71,561	ProgramServicesAmt
Management And General	$19,987	ManagementAndGeneralAmt
Fundraising	$23,534	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$87,160	TotalAmt
Program Services	$57,290	ProgramServicesAmt
Management And General	$13,636	ManagementAndGeneralAmt
Fundraising	$16,234	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CLINICAL STUDIES	$1,242,977	$1,242,977
PRINTING & PUBLICATIONS	$387,425	$69,209	$58,664	$259,552
POSTAGE, SHIPPING & DEL	$188,690	$12,272	$10,744	$165,674
PROFESSIONAL DEVELOPMEN	$120,458	$34,649	$84,833	$976

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$322,481	TotalAmt
Program Services	$84,613	ProgramServicesAmt
Management And General	$30,481	ManagementAndGeneralAmt
Fundraising	$207,387	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$38,175,432	TotalAmt
Program Services	$30,004,328	ProgramServicesAmt
Management And General	$3,966,806	ManagementAndGeneralAmt
Fundraising	$4,204,298	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$4,319,024	BOYAmt
EOY	$3,033,725	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$255,096	BOYAmt
EOY	$259,307	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$21,589,284	BOYAmt
EOY	$13,309,587	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$336,389	BOYAmt
EOY	$281,210	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$826,852	BOYAmt
EOY	$635,827	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,074,232	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$892,185	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$262,745	BOYAmt
EOY	$182,047	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$80,913,435	BOYAmt
EOY	$73,055,389	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$855,454	BOYAmt
EOY	$598,131	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$2,588,851	BOYAmt
EOY	$1,899,193	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$111,947,130	BOYAmt
EOY	$93,254,416	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$1,362,369	BOYAmt
EOY	$2,313,310	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$31,537,305	BOYAmt
EOY	$32,647,877	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$3,733,812	BOYAmt
EOY	$2,580,654	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$36,633,486	BOYAmt
EOY	$37,541,841	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$47,936,256	BOYAmt
EOY	$34,833,646	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$27,377,388	BOYAmt
EOY	$20,878,929	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$75,313,644	BOYAmt
EOY	$55,712,575	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$111,947,130	BOYAmt
EOY	$93,254,416	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$19,620,450	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$288,960	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$308,341	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$41,539,746	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$18,941,837	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$18,375,553	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$41,038,661	CurrentTaxYearMinus1YearAmt
Current Tax Year	$11,172,604	CurrentTaxYearAmt
Total	$131,068,401	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$41,539,746	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$18,941,837	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$18,375,553	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$41,038,661	CurrentTaxYearMinus1YearAmt
Current Tax Year	$11,172,604	CurrentTaxYearAmt
Total	$131,068,401	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$67,824,432	SubstantialContributorsTotAmt
Public Support Total170	$63,243,969	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,614,390	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,025,770	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,655,902	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,929,526	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,867,297	CurrentTaxYearAmt
Total	$10,092,885	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$141,161,286	TotalSupportAmt
Gross Receipts Rltd Activities	$6,632,924	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.44800	PublicSupportCY170Pct
Public Support PY170	0.46330	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$571,134	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$571,134	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$37,604,298	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$38,175,432	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$647,293	CurrentYearMinus3Amt
Current Year Minus2	$622,162	CurrentYearMinus2Amt
Current Year Minus1	$761,506	CurrentYearMinus1Amt
Current Year	$571,134	CurrentYearAmt
Total	$2,602,095	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,925,078	BeginningYearBalanceAmt
Investment Earnings Or Losses	$2,690,242	InvestmentEarningsOrLossesAmt
Other Expenditures	$4,009,849	OtherExpendituresAmt
End Year Balance	$50,605,471	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$53,986,019	BeginningYearBalanceAmt
Investment Earnings Or Losses	$1,956,112	InvestmentEarningsOrLossesAmt
Other Expenditures	$4,017,053	OtherExpendituresAmt
End Year Balance	$51,925,078	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$61,314,537	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$3,669,040	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,659,722	OtherExpendituresAmt
End Year Balance	$53,986,019	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$56,586,437	BeginningYearBalanceAmt
Investment Earnings Or Losses	$7,839,333	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,111,233	OtherExpendituresAmt
End Year Balance	$61,314,537	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,813,456	BeginningYearBalanceAmt
Investment Earnings Or Losses	$6,226,708	InvestmentEarningsOrLossesAmt
Other Expenditures	$1,453,727	OtherExpendituresAmt
End Year Balance	$56,586,437	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	1.00000	BoardDesignatedBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,074,232	OtherCostOrOtherBasisAmt
Depreciation	$892,185	DepreciationAmt
Book Value	$182,047	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$182,047	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	OPERATING LEASE LIABILITIES	Desc
Amt	$2,580,654	Amt

Field	Value	IRS element (for citing)
Total Liability	$2,580,654	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$18,401,233	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$288,960	NetUnrealizedGainsInvstAmt
Recoveries Prior Year Grants	$308,341	RecoveriesPriorYearGrantsAmt
Revenue Not Reported	$19,381	RevenueNotReportedAmt
Revenue Subtotal	$18,381,852	RevenueSubtotalAmt
Investment Expenses Not Incld	$173,130	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$173,130	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$18,554,982	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$38,002,302	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$38,002,302	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$173,130	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$173,130	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$38,175,432	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART V, LINE 4:	FormAndLineReferenceDesc
Explanation	BOARD DESIGNATED (QUASI) ENDOWMENT FUND INCOME TO BE USED FOR SUPPORTING OPERATIONS AND THE RESEARCH PROGRAM. PRINCIPAL TO REMAIN INTACT UNLESS HIGH PRIORITY LUPUS RESEARCH PROJECTS NEED TO BE FUNDED THAT COULD NOT BE FUNDED OTHERWISE.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	GRANTS TO RECIPIENTS	$684,695
EAST ASIA AND THE PACIFIC	GRANTS TO RECIPIENTS	$851,280
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	GRANTS TO RECIPIENTS	$1,308,684

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$2,844,659	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$2,844,659	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (15 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
NORTH AMERICA	LUPUS RESEARCH	$293,046	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$16,384	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$29,000	WIRE	$0
NORTH AMERICA	LUPUS RESEARCH	$19,875	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$37,538	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$34,352	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$18,000	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$23,063	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$30,653	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$182,784	CHECK	$0
EAST ASIA AND THE PACIFIC	LUPUS RESEARCH	$751,880	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$698,996	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$10,000	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$300,000	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$299,688	WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	11	Total501c3OrgCnt
Total Other Org	4	TotalOtherOrgCnt

Foreign Individuals Grants ForeignIndividualsGrantsGrp

Field	Value	IRS element (for citing)
Type Of Assistance	DATA STRATEGY	TypeOfAssistanceTxt
Region	EAST ASIA AND THE PACIFIC	RegionTxt
Recipient	1	RecipientCnt
Cash Grant	$99,400	CashGrantAmt
Manner Of Cash Disbursement	WIRE	MannerOfCashDisbursementTxt
Valuation Method Used	BOOK	ValuationMethodUsedDesc

Field	Value	IRS element (for citing)
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJECT THAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONES SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. A. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. B. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DS CONSULTING GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	757 THIRD AVE 20TH FL	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10017	ZIPCd

Field	Value	IRS element (for citing)
Activity	SPECIAL EVENT CONSULTANT NY GALA	ActivityTxt
Fundraiser Control Of Funds	Yes (1)	FundraiserControlOfFundsInd
Gross Receipts	$2,719,926	GrossReceiptsAmt
Retained By Contractor	$75,000	RetainedByContractorAmt
Net To Organization	$2,719,926	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$2,719,926	TotalGrossReceiptsAmt
Total Retained By Contractors	$75,000	TotalRetainedByContractorsAmt
Total Net To Organization	$2,719,926	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GALA CELEBRATION	Event1Nm
Gross Receipts Event1	$3,487,331	GrossReceiptsEvent1Amt
Charitable Contri Event1	$2,834,005	CharitableContriEvent1Amt
Gross Revenue Event1	$653,326	GrossRevenueEvent1Amt
Food And Beverage Event1	$170,135	FoodAndBeverageEvent1Amt
Entertainment Event1	$244,057	EntertainmentEvent1Amt
Other Direct Expenses Event1	$239,134	OtherDirectExpensesEvent1Amt
Event2	WALK-A-THONS	Event2Nm
Gross Receipts Event2	$993,237	GrossReceiptsEvent2Amt
Charitable Contri Event2	$954,145	CharitableContriEvent2Amt
Gross Revenue Event2	$39,092	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$6,613	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$4,938	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$9,575	FoodAndBeverageEvent2Amt
Other Direct Expenses Event2	$17,966	OtherDirectExpensesEvent2Amt
Gross Receipts Total	$4,480,568	GrossReceiptsTotalAmt
Charitable Contributions Tot	$3,788,150	CharitableContributionsTotAmt
Gross Revenue Total Events	$692,418	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$6,613	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$4,938	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$179,710	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$244,057	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$257,100	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$692,418	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DS CONSULTING PLANNED AND MANAGED LRA'S GALA EVENT. CONTRACT AMOUNT FOR THE PERIOD COVERING 1/1/24 - 12/31/24 WAS $75,500 PLUS REIMBURSABLE EXPENSES.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (63 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ALBERT EINSTEIN COLLEGE OF MEDICINE
1300 MORRIS PARK AVE	BRONX	NY	10461	472209056	501(C)(3)	$28,743	$0	LUPUS RESEARCH
BOSTON CHILDREN'S HOSPTIAL
300 LONGWOOD AVENUE	BOSTON	MA	02115	042774441	501(C)(3)	$919,988	$0	LUPUS RESEARCH
BRIGHAM AND WOMEN'S HOSPITAL
77 AVENUE LOUIS PASTEUR	BOSTON	MA	02115	042312909	501(C)(3)	$935,996	$0	LUPUS RESEARCH
COLUMBIA UNIVERSITY MEDICAL CENTER
154 HAVEN AVE 2ND FL	NEW YORK	NY	10032	133598093	501(C)(3)	$97,762	$0	LUPUS RESEARCH
EMORY UNIVERSITY
1762 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501(C)(3)	$1,287,995	$0	LUPUS RESEARCH
FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
350 COMMUNITY DRIVE	MANHASSET	NY	11030	112673595	501(C)(3)	$368,535	$0	LUPUS RESEARCH
FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH INC
9650 ROCKVILLE PIKE	BETHESDA	MD	20814	521986675	501(C)(3)	$100,000	$0	LUPUS RESEARCH
HOSPITAL FOR SPECIAL SURGERY
535 E 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$973,154	$0	LUPUS RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)(3)	$25,729	$0	LUPUS RESEARCH
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)(3)	$30,453	$0	LUPUS RESEARCH
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501(C)(3)	$142,715	$0	LUPUS RESEARCH
NORTHWELL HEALTH - DIVISION OF RHEUMATOLOGY
972 BRUSH HOLLOW RD 5TH FL	WESTBURY	NY	11590	112673595	501(C)(3)	$40,960	$0	LUPUS RESEARCH
NORTHWESTERN UNIVERSITY
633 CLARK STREET	EVANSTON	IL	60208	362167818	501(C)(3)	$38,847	$0	LUPUS RESEARCH
OKLAHOMA MEDICAL RESEARCH FOUNDATION
825 NE 13TH STREET	OKLAHOMA CITY	OK	73104	730580274	501(C)(3)	$50,087	$0	LUPUS RESEARCH
PENNSYLVANIA STATE UNIVERSITY
ONE OLD MAIN	UNIVERSITY PARK	PA	16802	246000376	501(C)(3)	$21,678	$0	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE
5171 CALIFORNIA AVENUE STE 150	IRVINE	CA	92697	952226406	501(C)(3)	$30,027	$0	LUPUS RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1653 WEST CONGRESS PARKWAY	CHICAGO	IL	60612	362174823	501(C)(3)	$32,392	$0	LUPUS RESEARCH
STANFORD UNIVERSITY
3145 PORTER DRIVE	PALO ALTO	CA	94304	941156365	501(C)(3)	$319,671	$0	LUPUS RESEARCH
STATE UNIVERSITY OF NY AT STONY BROOK
ONE LINCOLN CENTER	SYRACUSE	NY	13202	141368361	501(C)(3)	$23,000	$0	LUPUS RESEARCH
THE METROHEALTH SYSTEM
2500 METROHEALTH DRIVE	CLEVELAND	OH	44109	346004382	SECTION 115 - OH STA	$31,314	$0	LUPUS RESEARCH
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	311702164	SECTION 115 - OH STA	$127,170	$0	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10920 WILSHIRE BLVD STE 620	LOS ANGELES	CA	90024	956006143	501(C)(3)	$48,441	$0	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$61,175	$0	LUPUS RESEARCH
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE STE 501	CHICAGO	IL	60637	362177139	501(C)(3)	$186,154	$0	LUPUS RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
6000 FELDWOOD ROAD	COLLEGE PARK	GA	30349	566001393	501(C)(3)	$182,114	$0	LUPUS RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$343,842	$0	LUPUS RESEARCH
TULANE UNIVERSITY AKA THE TULANE EDUCATIONAL FUND
200 BROADWAY ST STE 120	NEW ORLEANS	LA	70118	720423889	501(C)(3)	$30,000	$0	LUPUS RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S	BIRMINGHAM	AL	35294	636005396	501(C)(3)	$92,869	$0	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
2200 UNIVERSITY HALL	BERKELEY	CA	94720	946036493	501(C)(3)	$164,938	$0	LUPUS RESEARCH
UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS
3100 MARINE ST 6TH FL	BOULDER	CO	80309	846000555	501(C)(3)	$80,498	$0	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
207 TIGERT HALL	GAINSEVILLE	FL	32611	596002052	FL STATE GOVERNMENT	$21,000	$0	LUPUS RESEARCH
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGON STREET 4TH FL	BALTIMORE	MD	21201	521830242	SECTION 115 - MD STA	$72,612	$0	LUPUS RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167325	MA STATE GOVERNMENT	$185,223	$0	LUPUS RESEARCH
UNIVERSITY OF MICHIGAN
503 THOMPSON STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$122,959	$0	LUPUS RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	$134,000	$0	LUPUS RESEARCH
UNIVERISTY OF SOUTHERN CALIFORNIA
1640 MARENGO STREET 7TH FL	LOS ANGELES	CA	90033	951642394	501(C)(3)	$32,000	$0	LUPUS RESEARCH
WASHINGTON UNIVERSITY SCHOOL OF MEDICINE MISSOURI
ONE BROOKINGS DRIVE	ST LOUIS	MO	63130	430653611	501(C)(3)	$30,239	$0	LUPUS RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75390	746000203	TX STATE GOVERNMENT	$47,819	$0	LUPUS RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1211 MEDICAL CENTER DRIVE	NASHVILLE	TN	37232	352528741	501(C)(3)	$28,241	$0	LUPUS RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	501(C)(3)	$38,000	$0	LUPUS RESEARCH
YALE UNIVERSITY
BOX 208239	NEW HAVEN	CT	06520	060646973	501(C)(3)	$87,232	$0	LUPUS RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	29425	576028985	SECTION 115 - SC STA	$798,495	$0	LUPUS RESEARCH
RILITE FOUNDATION
530 EAST MAIN STREET	CHARLOTTESVILLE	VA	22902	472638830	501(C)(3)	$30,000	$0	LUPUS RESEARCH
UNIVERSITY OF HOUSTON
4800 CALHOUN ROAD	HOUSTON	TX	77004	746001399	501(C)(3)	$600,000	$0	LUPUS RESEARCH
SEATTLE CHILDREN'S HOSPITAL
818 STEWART ST	SEATTLE	WA	98145	910564748	501(C)(3)	$769,121	$0	LUPUS RESEARCH
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE	BOSTON	MA	02215	042103881	501(C)(3)	$25,525	$0	LUPUS RESEARCH
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501(C)(3)	$10,000	$0	LUPUS RESEARCH
GEORGETOWN UNIVERSITY MEDICAL CENTER
3970 RERSERVOIR RD NW	WASHINGTON	DC	20057	530196603	501(C)(3)	$10,000	$0	LUPUS RESEARCH
LA JOLLA INSTITUTE FOR IMMUNOLOGY
9420 ATHENA CIR	LA JOLLA	CA	92037	330328688	501(C)(3)	$449,814	$0	LUPUS RESEARCH
MEMORIAL SLOAN-KETTERING CANCER CENTER
633 THIRD AVE 4TH FL	NEW YORK	NY	10017	131924236	501(C)(3)	$300,000	$0	LUPUS RESEARCH
UNIVERSITY OF ARIZONA COLLEGE OF MEDICINE TUCSON
1501 N CAMPBELL AVE	TUCSON	AZ	85724	742652689	AZ STATE GOVERNMENT	$37,953	$0	LUPUS RESEARCH
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501(C)(3)	$18,000	$0	LUPUS RESEARCH
UNIVERSITY OF MIAMI
1320 S DIXIE HIGHWAY GABLES ONE	CORAL GABLES	FL	33146	590624458	501(C)(3)	$18,000	$0	LUPUS RESEARCH	TOWER 650
UNIVERSITY OF NEBRASKA MEDICAL CENTER
988145 NEBRASKA MEDICA CTR	OMAHA	NE	68198	911858433	501(C)(3)	$49,000	$0	LUPUS RESEARCH
UNIVERSITY OF NEVADA LAS VEGAS
4505 S MARYLAND PARKWAY	LAS VEGAS	NV	89154	886000024	NV STATE GOVERNMENT	$24,000	$0	LUPUS RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	501(C)(3)	$768,000	$0	LUPUS RESEARCH
UNIVERSITY OF WASHINGTON
3917 UNIVERSITY WAY NE	SEATTLE	WA	98195	916001537	WA STATE GOVERNMENT	$16,112	$0	LUPUS RESEARCH
WALLACE RHEUMATIC STUDIES CENTER LLC
8737 BENVERLY BLVD STE 301	W HOLLYWOOD	CA	90048	455434561	501(C)(3)	$38,373	$0	LUPUS RESEARCH
THE JACKSON LABORATORY
600 MAIN ST	BAR HARBOR	ME	04609	010211513	501(C)(3)	$15,000	$0	LUPUS RESEARCH
UNIVERSITY OF TENNESSEE HEALTH SCI CENTER
910 MADISON AVE STE 823	MEMPHIS	TN	38163	626001636	SECTION 115 - TN STA	$100,000	$0	LUPUS RESEARCH
CASE WESTERN RESERVE UNIVERSITY
2103 CORNELL ROAD BLDG 2125	CLEVELAND	OH	44106	341018992	501(C)(3)	$298,598	$0	LUPUS RESEARCH
FRED HUTCHINSON CANCER CENTER
1100 FAIRVIEW AVE N	SEATTLE	WA	98109	911935159	501(C)(3)	$300,000	$0	LUPUS RESEARCH
LELAND STANFORD JUNIOR UNIVERSITY
567 WILSON ROAD	EAST LANSING	MI	48824	386005984	501(C)(3)	$10,000	$0	LUPUS RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	64	Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT THE PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJEC TTHAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONE SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ALBERT ROY
CEO AND PRESIDENT	$350,397	$0	$75,000	$0	$2,032	$0	$34,500	$0	$58,185	$0	$520,114	$0	$0	$0
STACIE BELL PHD
CHIEF CLINICAL RESEARCH OFFICER	$258,500	$0	$40,000	$0	$2,919	$0	$24,000	$0	$26,676	$0	$352,095	$0	$0	$0
DEBRA ROSE
CHIEF FINANCAL OFFICER	$231,519	$0	$25,000	$0	$2,849	$0	$31,301	$0	$53,293	$0	$343,962	$0	$0	$0
TEODORA STAEVA
CHIEF SCIENTIFIC OFFICER	$273,255	$0	$50,000	$0	$2,198	$0	$34,481	$0	$47,089	$0	$407,023	$0	$0	$0
ANDREA O'NEILL
VP, DEVELOPMENT	$245,128	$0	$0	$0	$3,220	$0	$26,964	$0	$17,621	$0	$292,933	$0	$0	$0
PENELOPE MITCHELL
VP OF COMMUNICATIONS	$185,884	$0	$20,000	$0	$4,824	$0	$20,720	$0	$26,581	$0	$258,009	$0	$0	$0
LUKE EASLEY
VP OF HR & ADMINISTRATION	$197,917	$0	$35,000	$0	$1,000	$0	$18,553	$0	$24,162	$0	$276,632	$0	$0	$0
DEVON KELLY
LUPUS NEXUS DIRECTOR	$214,360	$0	$8,694	$0	$3,483	$0	$18,084	$0	$28,273	$0	$272,894	$0	$0	$0
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANTHROPY	$179,953	$0	$5,491	$0	$3,599	$0	$20,530	$0	$27,081	$0	$236,654	$0	$0	$0
HOANG NGUYEN
DIRECTOR OF SCIENTIFIC PARTNERSHIP	$157,990	$0	$8,000	$0	$1,688	$0	$13,439	$0	$26,162	$0	$207,279	$0	$0	$0
JONATHAN MARKS
DIRECTOR OF CORPORATE DEVELOPMENT	$146,437	$0	$0	$0	$1,007	$0	$17,233	$0	$35,453	$0	$200,130	$0	$0	$0
KENNETH M FABER
FORMER CEO & PRESIDENT	$375,000	$0	$0	$0	$0	$0	$0	$0	$0	$0	$375,000	$0	$0	$0
JENNIFER MERIWETHER
CLIN OPS DIRECTOR, LT	$197,838	$0	$0	$0	$1,302	$0	$15,827	$0	$23,936	$0	$238,903	$0	$0	$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	8	ContributionCnt
Noncash Contributions Rpt F990	$166,624	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG STOCK VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	LRA HAS AN ACCOUNT WITH MORGAN STANLEY, WHICH LRA USES TO SELL THE CONTRIBUTIONS IT RECEIVES THOUGH STOCKS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1A	EXECUTIVE COMMITTEE IS COMPRISED OF THE BOARD CO-CHAIRS, PRESIDENT, BOARD SECRETARY AND ONE ADDITIONAL VOTING BOARD MEMBER. THE EXECUTIVE COMMITTEE APPROVES DETAILS OF PROGRAMS ALREADY APPROVED BY THE BOARD, STAFF COMPENSATION AND LARGE CONTRACT NEGOTIATIONS.
FORM 990, PART VI, SECTION A, LINE 2	IRA AKSELRAD AND ROBERT WOOD JOHNSON, IV (PAST CHAIRMAN OF THE BOARD), HAVE A BUSINESS RELATIONSHIP. RICHARD K. DESCHERER (CO-CHAIR) AND JENNIE DESCHERER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11B	AFTER PREPARATION OF FORM 990 BY LRA'S AUDITOR, LUTZ AND CARR, THE 990 IS REVIEWED BY THE LRA'S EXECUTIVE OFFICERS, THE CHIEF FINANCIAL OFFICER AND THE PRESIDENT. THE FINANCE AND AUDIT COMMITTEE OF THE BOARD THEN MEETS TO REVIEW THE 990 BEFORE FILING AND APPROVES FOR FILING WITH ANY NOTED CHANGES. A DRAFT OF THE 990 IS THEN SENT OUT TO THE FULL BOARD FOR COMMENT PRIOR TO FILING WITH THE IRS. THE FINAL FORM 990 IS PRESENTED TO THE FULL BOARD AT THE NEXT SCHEDULED MEETING.
FORM 990, PART VI, SECTION B, LINE 12C	THE EXECUTIVE COMMITTEE OF THE BOARD IS RESPONSIBLE FOR MONITORING CONFLICTS OF INTEREST. AN ANNUAL CONFLICT OF INTEREST DISCLOSURE FORM IS REQUIRED TO BE FILLED OUT EACH YEAR BY BOARD MEMBERS, OFFICERS AND KEY EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15	THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS ASSISTED THE BOARD IN FULFILLING ITS OVERSIGHT RESPONSIBILITIES RELATING TO THE COMPENSATION AND BENEFITS OF THE PRESIDENT AND OTHER EXECUTIVE OFFICERS; AND PROVIDED RECOMMENDATIONS REGARDING MANAGEMENT SUCCESSORS. ANNUALLY THE COMMITTEE REVIEWS AND RECOMMENDS TO THE BOARD THE SALARY FOR THE PRESIDENT AND OTHER OFFICERS/KEY EMPLOYEES. IN 2023, THE COMMITTEE REVIEWED AND APPROVED BASE SALARIES, 2024 COMPENSATION PLAN INCLUDING THE 2023 YEAR-END BONUS POOL FOR ALL STAFF AND THE 403B NON-ELECTIVE EMPLOYER CONTRIBUTION TO ALL ELIGIBLE STAFF.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST, THE CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE ALSO AVAILABLE UPON REQUEST AND ARE ON THE FINANCIALS PAGE OF OUR WEBSITE AND ON GUIDESTAR.ORG
FORM 990, PART XI, LINE 9:	CANCELLED GRANTS 308,341.
FORM 990, PART V, QUESTION 2A	THE LRA CONTRACTS WITH TRINET, A PROFESSIONAL EMPLOYER ORGANIZATION (PEO), TO PROVIDE PAYROLL AND BENEFITS AS A CO-EMPLOYER WITH THE LRA. LRA PAYROLL AND BENEFITS ARE ADMINISTERED BY TRINET AS APPROVED BY LRA OFFICERS. LRA PAYROLL IS THEREFORE UNDER THE TRINET EIN: 13-3867443 AND W-2'S ARE PREPARED UNDER THAT EIN BY TRINET.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS THERAPEUTICS LLC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	270 MADISON AVENUE	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10016	ZIPCd

Field	Value	IRS element (for citing)
EIN	823984908	EIN
Primary Activities	LRA'S CLINICAL TRIAL AFFILIATE, OVERSEEING CLINICAL RESEARCH ACTIVITY	PrimaryActivitiesTxt
Legal Domicile State	NY	LegalDomicileStateCd
Total Income	$2,783,447	TotalIncomeAmt
End Of Year Assets	$624,656	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	YES	BusinessNameLine1Txt