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INTERNATIONAL MYELOMA FOUNDATION: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
INTERNATIONAL MYELOMA FOUNDATION (EIN 95-4296919)
Tax period
2018-10-01 to 2019-09-30
Filed
2020-05-12
IRS object ID
202011339349303416
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-05-12T19:12:42-05:00ReturnTs
Tax Period End2019-09-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN953309779PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1GURSEY SCHNEIDER LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11888 CENTURY PARK EAST SUITE 900AddressLine1Txt
CityLOS ANGELESCityNm
State AbbreviationCAStateAbbreviationCd
ZIP900671735ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-10-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN954296919EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1INTERNATIONAL MYELOMA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlINTEBusinessNameControlTxt
Phone8184877455PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line112650 RIVERSIDE DRIVE NO 206AddressLine1Txt
CityNORTH HOLLYWOODCityNm
State AbbreviationCAStateAbbreviationCd
ZIP916073466ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonSUSAN DURIEPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone8184877455PhoneNum
Signature2020-04-24SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonNAZ AFSHARPreparerPersonNm
PTINP00441843PTIN
Phone3105520960PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address38.88.179.250IPv4AddressTxt
FieldValueIRS element (for citing)
IP2020-04-24IPDt
IP Tm12:04:10IPTm
IP TimezonePDIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdDA39A3EE5E6B4B0D3255BFEF95601890AFD80709AtSubmissionCreationDeviceId
At Submission Filing Device IdB4DE9E07BEFF9F022A478DFE9E5F2D6773821691AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2020-09-23 17:36:50ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSUSAN DURIEPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line112650 RIVERSIDE DRIVE SUITE 206AddressLine1Txt
CityNORTH HOLLYWOODCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91607ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$20,402,322GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.MYELOMA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1990FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionDEDICATED TO IMPROVING THE QUALITY OF LIFE OF MYELOMA PATIENTS WHILE WORKING TOWARD PREVENTION AND A CURE.ActivityOrMissionDesc
Voting Members Governing Body17VotingMembersGoverningBodyCnt
Voting Members Independent16VotingMembersIndependentCnt
Total Employee48TotalEmployeeCnt
Total Volunteers15TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$16,653,578PYContributionsGrantsAmt
CY Contributions Grants$20,084,695CYContributionsGrantsAmt
PY Program Service Revenue$59,459PYProgramServiceRevenueAmt
CY Program Service Revenue$72,368CYProgramServiceRevenueAmt
PY Investment Income$329,426PYInvestmentIncomeAmt
CY Investment Income$165,880CYInvestmentIncomeAmt
PY Other Revenue-$238,441PYOtherRevenueAmt
CY Other Revenue-$297,325CYOtherRevenueAmt
PY Total Revenue$16,804,022PYTotalRevenueAmt
CY Total Revenue$20,025,618CYTotalRevenueAmt
PY Grants And Similar Paid$423,333PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$370,000CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$5,367,547PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$5,954,445CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,242,145CYTotalFundraisingExpenseAmt
PY Other Expenses$11,093,027PYOtherExpensesAmt
CY Other Expenses$13,006,481CYOtherExpensesAmt
PY Total Expenses$16,883,907PYTotalExpensesAmt
CY Total Expenses$19,330,926CYTotalExpensesAmt
PY Revenues Less Expenses-$79,885PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$694,692CYRevenuesLessExpensesAmt
Total Assets BOY$16,649,778TotalAssetsBOYAmt
Total Assets EOY$18,014,619TotalAssetsEOYAmt
Total Liabilities BOY$8,647,450TotalLiabilitiesBOYAmt
Total Liabilities EOY$9,119,429TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$8,002,328NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,895,190NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionDEDICATED TO IMPROVING THE QUALITY OF LIFE OF MYELOMA PATIENTS WHILE WORKING TOWARD PREVENTION AND A CURE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$8,988,911ExpenseAmt
Grant$370,000GrantAmt
DescRESEARCH - THE INTERNATIONAL MYELOMA FOUNDATION (IMF) IS THE LEADER IN GLOBALLY COLLABORATIVE MYELOMA RESEARCH. IMF SUPPORTS LAB-BASED RESEARCH AND HAS AWARDED OVER 146 GRANTS TO TOP JUNIOR AND SENIOR RESEARCH SCIENTISTS SINCE 1995. IN ADDITION, IMF BRINGS TOGETHER THE WORLD'S LEADING EXPERTS IN THE MOST SUCCESSFUL AND UNIQUE WAY THROUGH THE INTERNATIONAL MYELOMA WORKING GROUP, WHICH IS PUBLISHING IN PRESTIGIOUS MEDICAL JOURNALS, CHARTING THE COURSE TO A CURE, MENTORING THE NEXT GENERATION OF INNOVATIVE INVESTIGATORS, AND IMPROVING LIVES THROUGH BETTER CARE. THE BLACK SWAN RESEARCH INITIATIVE IS A MULTINATIONAL CONSORTIUM OF LEADING MYELOMA EXPERTS WHO ARE HARNESSING NEW TECHNOLOGIES AND THE LATEST MYELOMA TREATMENTS TO FIND A PATHWAY TO A CURE. THE BLACK SWAN RESEARCH STRATEGY CAPITALIZES ON THE AVAILABILITY OF POTENT NOVEL THERAPIES AND THE ADVENT OF ULTRA-SENSITIVE TESTS TO MEASURE EXACTLY WHEN AND HOW THOSE THERAPIES ARE WORKING IN PATIENTS. THE BLACK SWAN RESEARCH INITIATIVE IS DEDICATED TO DEVELOPING NEW CURATIVE THERAPIES FOR MYELOMA.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,300,134ExpenseAmt
Revenue$72,368RevenueAmt
DescPATIENT AND FAMILY SEMINARS: THE IMF'S PATIENT AND FAMILY SEMINARS PRESENT VITAL INFORMATION ABOUT NEW TREATMENTS AND CLINICAL TRIALS, PROVIDE TIME WITH MYELOMA SPECIALISTS IN INTIMATE SETTINGS, AND ALLOW PARTICIPANTS TO SHARE THEIR PERSONAL EXPERIENCES AND SUPPORT. PREMIER MYELOMA EXPERTS VOLUNTEER THEIR TIME TO THE SEMINARS, TO EMPOWER PATIENTS AND THEIR FAMILIES TO MAKE EDUCATED TREATMENT CHOICES TAILORED TO THEIR NEEDS. IN ADDITION TO PATIENT AND FAMILY SEMINARS, THE IMF FACILITATES REGIONAL COMMUNITY WORKSHOPS, WHICH SERVE AS CONDENSED SEMINARS IN SMALLER CITIES TO EXPAND THE REACH OF IMF PROGRAMS AND UP-TO-DATE INFORMATION ON MYELOMA CARE, SUPPORT AND TREATMENT TO A WIDER AUDIENCE AT NO CHARGE.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$1,811,101ExpenseAmt
DescEDUCATION AND AWARENESS: ALTHOUGH IT IS THE SECOND MOST COMMON BLOOD CANCER, MULTIPLE MYELOMA IS STILL A RELATIVELY UNKNOWN DISEASE. FOR MANY PATIENTS AND THEIR CAREGIVERS, IT IS AT DIAGNOSIS WHEN THEY FIRST HEARD THE WORD "MYELOMA". IMF RECOGNIZES THE NEED FOR COMPREHENSIVE EDUCATION PROGRAMS FOR BOTH THE PATIENT AND THE PHYSICIAN TO ENSURE THAT PATIENTS ARE DIAGNOSED CORRECTLY AND TREATED EFFECTIVELY. OUR LIBRARY OF MORE THAN 100 PUBLICATIONS FOR PATIENTS, CAREGIVERS AND HEALTHCARE PROFESSIONALS, IS AVAILABLE FREE OF CHARGE. PUBLICATIONS ARE UPDATED ANNUALLY AND AVAILABLE IN MORE THAN 14 LANGUAGES. THE IMF EMPOWERS PATIENTS AND THEIR CAREGIVERS TO JOIN HEALTHCARE PROVIDERS AS ACTIVE DECISION-MAKING PARTNERS, LEADING TO THE BEST POSSIBLE QUALITY OF LIFE FOR EACH INDIVIDUAL MYELOMA PATIENT. THE IMF PRODUCES COMPREHENSIVE BUT 'USER-FRIENDLY' INFORMATION FOR THE ENTIRE MYELOMA COMMUNITY. THE IMF'S PUBLICATIONS LIBRARY INCLUDES AN EXTENSIVE CATALOG OF BOOKLETS, TIP CARDS, ARTICLES, AND TELECONFERENCES, BLOGS, DIGITAL MEDIA AND INTERVIEWS, ALL WRITTEN, CREATED, AND PRODUCED BY THE IMF WITH OVERSIGHT BY ITS SCIENTIFIC ADVISORY COMMITTEE. THE IMF LIBRARY'S BROAD SCOPE INCLUDES INFORMATION ABOUT MYELOMA TREATMENT OPTIONS, CLINICAL TRIALS, AND QUALITY OF LIFE CONSIDERATIONS FOR PATIENTS AND PHYSICIANS.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$5,382,717ExpenseAmt
DescINTERNATIONAL - THE IMF GROWS ITS NETWORK OF HEALTH CARE PROFESSIONALS AROUND THE WORLD. KEY TEAM MEMBERS ORGANIZE PHYSICIAN AS WELL AS PATIENT MEETINGS IN ORDER TO PROVIDE EDUCATION ABOUT THE LATEST DEVELOPMENTS IN THE FIELD OF MULTIPLE MYELOMA.SUPPORT GROUPS - THROUGH A GLOBAL COMMUNITY OF VOLUNTARY SUPPORT GROUPS, THE IMF SEEKS TO ENSURE THAT PATIENTS AND FAMILIES HAVE LOCAL ACCESS TO SUPPORT AND EDUCATION. THE IMF CURRENTLY SUPPORTS OVER 300 SUPPORT GROUPS WORLDWIDE. THE IMF OFFERS UNEQUALED WEBSITE CREATION AND HOSTING FOR LOCAL SUPPORT GROUPS, AND PROVIDED A UNIQUE OPPORTUNITY FOR SOME SUPPORT GROUP LEADERS TO ATTEND THE AMERICAN SOCIETY OF HEMATOLOGY ANNUAL MEETING. THE 19TH ANNUAL SUPPORT GROUP LEADERS SUMMIT TOOK PLACE WITH OVER 100 LEADERS IN ATTENDANCE. THE SUPPORT GROUPS REPRESENTED AT THE SUMMIT SERVE MORE THAN 5,500 SUPPORT GROUP MEMBERS, EXTENDING THE SUMMIT'S REACH TO THOUSANDS OF MYELOMA PATIENTS AND FAMILY MEMBERS. TECHNOLOGY IS ALSO EMPHASIZED FOR SUPPORT GROUP LEADERS. THE IMF ALSO CONTINUED TO UPDATE ITS APP SPECIFICALLY DESIGNED FOR SUPPORT GROUP LEADERS WHICH OFFER MEETING AND EDUCATION MATERIALS ACCESSIBLE TO HELP BUILD EFFECTIVE COMMUNICATION WITH PATIENTS, CAREGIVERS AND FAMILY MEMBERS.NURSE - THE IMF NURSE LEADERSHIP BOARD IS A PROFESSIONAL PARTNERSHIP REPRESENTING NURSE EXPERTS CARING FOR MYELOMA PATIENTS AT LEADING MEDICAL CENTERS. FOUNDED IN NOVEMBER 2006, THE NLB HAS PROVEN TO BE INVALUABLE TO THE MYELOMA COMMUNITY AS A PLATFORM THAT BOLSTERS NURSING EDUCATION, CLINICAL CARE EXPERIENCE EXCHANGE, AND PATIENT KNOWLEDGE AND EMPOWERMENT IN AN EFFORT TO OPTIMIZE OUTCOMES FOR PATIENTS WITH MYELOMA. THIS BOARD OF EXPERIENCED MYELOMA NURSES HAS MADE GREAT STRIDES IN IMPROVING THE NURSING CARE AND SELF-CARE OF MYELOMA PATIENTS SINCE ITS INCEPTION.CLINICAL MEETINGS - IMF TEAM MEMBERS ORGANIZE CLINICAL MEETINGS, BRINGING TOGETHER THE WORLD'S LEADING MYELOMA EXPERTS, TO FORM A COALITION THAT WILL WORK COLLABORATIVELY ON MYELOMA-RELATED PROJECTS AND AVOID DUPLICATION OF EFFORTS AND DILUTION OF VALUABLE RESOURCES. THESE COALITIONS PROMOTE EXCELLENCE IN CLINICAL PRACTICE, RESEARCH AND EDUCATION AND CME-ACCREDITED MEDICAL EDUCATION PROGRAMS. THIS PAST YEAR ALSO INCLUDED EDUCATION TO THE COMMUNITY PHYSICIAN AND NURSE VIA ONLINE AND LIVE INSTRUCTION.ADVOCACY - THE IMF IS DEDICATED TO CREATING A GLOBAL COMMUNITY THAT SUPPORTS THE WIDE-RANGING NEEDS OF ALL AFFECTED BY MYELOMA. THE IMF ADVOCATES ON BEHALF OF THOSE AFFECTED BY MULTIPLE MYELOMA FOR AN INCREASE IN ACCESSIBILITY OF HIGH-QUALITY DIAGNOSTICS AND TREATMENTS, FOR FUNDING OF MYELOMA-RELATED RESEARCH, AND FOR AN END TO INSURANCE COVERAGE DISPARITIES FOR TREATMENT. THE IMF INCLUDES THE ENTIRE MYELOMA COMMUNITY IN THESE EFFORTS AND CONTINUES TO EXPAND ITS COMMITMENT TO EMPOWERING PATIENTS, FAMILIES, AND FRIENDS TO ADVOCATE ON BEHALF OF PATIENT RIGHTS.INFOLINE - THE IMF'S TOLL-FREE INFORMATION TELEPHONE LINE PROVIDES LIFE-SAVING AND LIFE-CHANGING MYELOMA TREATMENT AND MANAGEMENT SUPPORT FROM COMPASSIONATE, HIGHLY TRAINED SPECIALISTS. AS NEW TREATMENT OPTIONS ARE GAINING ATTENTION AND USE IN MULTIPLE MYELOMA, ANSWERING QUESTIONS ABOUT MYELOMA, ITS TREATMENT, DRUG SIDE EFFECTS, OPTIONS FOR POSSIBLE CLINICAL TRIALS OTHER HEALTH CONCERNS, AND WHERE TO FIND LOCAL SUPPORT IS MORE IMPORTANT THAN EVER.WEBSITE - REDESIGNED IN EARLY 2019, THE IMF WEBSITE IS THE LEADING RESOURCE FOR MYELOMA-RELATED CONTENT AND THE MOST COMPLETE SOURCE OF ANSWERS FROM THE MANY QUESTIONS ASKED BY THOSE NEWLY DIAGNOSED TO THOSE MANAGING MYELOMA FOR MANY YEARS. THE WEBSITE CONSIDERS PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND HEALTHCARE PROFESSIONALS. INFORMATION IS AVAILABLE IN MULTIPLE LANGUAGES AND FOCUS IS ON THE IMF'S RESEARCH, EDUCATION, SUPPORT AND ADVOCACY INITIATIVES.MYELOMA TODAY - MYELOMA TODAY IS A QUARTERLY NEWSLETTER AND THE GO-TO RESOURCE FOR THE MYELOMA COMMUNITY TO LEARN ABOUT THE LATEST ADVANCES IN MYELOMA TREATMENT, RESEARCH AND QUALITY OF LIFE ISSUES. IT IS PROVIDED FREE OF CHARGE.INFORMATIONAL MAILINGS - THE INFOPACK IS MADE UP OF A SELECTION OF THE IMF'S PUBLICATIONS AND IS DESIGNED TO PROVIDE NEWLY DIAGNOSED PATIENTS AND THEIR FAMILIES WITH A COMPLETE UNDERSTANDING OF THE DISEASE AND CARE. THE INFO PACK CONTAINS INFORMATIVE MATERIALS FREE OF CHARGE IN 20 LANGUAGES.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$5,382,717TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses$17,482,863TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other SecYes (1)ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign OfficeYes (1)ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document38IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee48EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members17GoverningBodyVotingMembersCnt
Independent Voting Member16IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1JENNIFER SCARNEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8184877455PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line112650 RIVERSIDE DRIVE 206AddressLine1Txt
CityNORTH HOLLYWOODCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91607ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (23 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
DR BRIAN DURIE
CHAIRMAN1.00Yes (X)$0$0$0
SUSAN DURIE
PRESIDENT40.00Yes (X)$243,242$0$36,845Yes (X)
BENSON KLEIN
DIRECTOR1.00Yes (X)$0$0$0
DR ROBERT A KYLE
DIRECTOR1.00Yes (X)$0$0$0
DR EDITH MITCHELL
DIRECTOR1.00Yes (X)$0$0$0
CHARLES NEWMAN
DIRECTOR1.00Yes (X)$0$0$0
MATTHEW ROBINSON
DIRECTOR1.00Yes (X)$0$0$0
E MICHAEL D SCOTT
DIRECTOR1.00Yes (X)$0$0$0
LORAINE BOYLE
DIRECTOR1.00Yes (X)$0$0$0
DR VINCENT RAJKUMAR
DIRECTOR1.00Yes (X)$0$0$0
DR MARIO BOCCADORO
DIRECTOR1.00Yes (X)$0$0$0
ANDREW KUZNESKI III
DIRECTOR1.00Yes (X)$0$0$0
DR HEINZ LUDWIG
DIRECTOR1.00Yes (X)$0$0$0
CHRISTINE BATTISTINI
DIRECTOR1.00Yes (X)$0$0$0
YELAK BIRU
DIRECTOR1.00Yes (X)$0$0$0
JASON KATZ
DIRECTOR1.00Yes (X)$0$0$0
GEORGE T HAYUM
DIRECTOR1.00Yes (X)$0$0$0
JENNIFER SCARNE
CFO/COO40.00$264,200$0$22,103Yes (X)
DIANE MORAN
STRATEGIC PLANNER40.00$363,025$0$18,423Yes (X)
LISA PAIK
SENIOR VICE PRESIDENT40.00$190,967$0$25,710Yes (X)
JOSEPH MIKHAEL
CHIEF MEDICAL OFFICER40.00$450,000$0$24,989Yes (X)
PETER ANTON
VICE PRESIDENT, MARKETING40.00$186,517$0$31,021Yes (X)
LYNN GREEN
SENIOR VICE PRESIDENT, PHILANTHROPY40.00$109,731$0$4,130Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,807,682TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$163,221TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K18IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/ForeignAddress/AddressLine1TxtCityContractorAddress/ForeignAddress/CityNmCountryContractorAddress/ForeignAddress/CountryCdForeign PostalContractorAddress/ForeignAddress/ForeignPostalCdServicesServicesDescCompensationCompensationAmtAddress Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCd
DAN NAVID
SIRA SILA 20/46 SOI 97HUA HINTH77110INTERNATIONAL GLOBAL STRATEGY$208,000
DRINKER BIDDLE & REATH LLP
ADVOCACY CONSULTING SERVICES$160,000ONE LOGAN SQUARE STE 2000PHILIDELPHIAPA19103
NIXON PEABODY LLP
LEGAL COUNSEL$110,641PO BOX 28012NEW YORKNY100878012
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
Fundraising$1,099,194FundraisingAmt
All Other Contributions$18,985,501AllOtherContributionsAmt
Total Contributions$20,084,695TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
PATIENT & FAMILY SEMINARS611710$36,338$36,338
SUPPORT GROUP611710$36,030$36,030
FieldValueIRS element (for citing)
Total Program Service Revenue$72,368TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$165,880TotalRevenueColumnAmt
Exclusion$165,880ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$79,379FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,099,194ContriRptFundraisingEventAmt
Fundraising Direct Expenses$376,704FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$297,325TotalRevenueColumnAmt
Exclusion-$297,325ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$20,025,618TotalRevenueColumnAmt
Related Or Exempt Func Income$72,368RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion-$131,445ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$113,333TotalAmt
Program Services$113,333ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$256,667TotalAmt
Program Services$256,667ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$5,954,445TotalAmt
Program Services$4,809,359ProgramServicesAmt
Management And General$385,886ManagementAndGeneralAmt
Fundraising$759,200FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$109,032TotalAmt
Program Services$102,174ProgramServicesAmt
Management And General$2,107ManagementAndGeneralAmt
Fundraising$4,751FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$63,972TotalAmt
Program Services$57,032ProgramServicesAmt
Management And General$3,502ManagementAndGeneralAmt
Fundraising$3,438FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,758,356TotalAmt
Program Services$1,688,407ProgramServicesAmt
Management And General$666ManagementAndGeneralAmt
Fundraising$69,283FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$436,060TotalAmt
Program Services$407,307ProgramServicesAmt
Management And General$6,621ManagementAndGeneralAmt
Fundraising$22,132FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$140,280TotalAmt
Program Services$124,387ProgramServicesAmt
Management And General$7,300ManagementAndGeneralAmt
Fundraising$8,593FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$315,735TotalAmt
Program Services$229,723ProgramServicesAmt
Management And General$32,563ManagementAndGeneralAmt
Fundraising$53,449FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,238,368TotalAmt
Program Services$1,204,424ProgramServicesAmt
Management And General$6,579ManagementAndGeneralAmt
Fundraising$27,365FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$3,209,227TotalAmt
Program Services$3,068,051ProgramServicesAmt
Management And General$87,956ManagementAndGeneralAmt
Fundraising$53,220FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$335,426TotalAmt
Program Services$307,156ProgramServicesAmt
Management And General$14,116ManagementAndGeneralAmt
Fundraising$14,154FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$64,957TotalAmt
Program Services$61,271ProgramServicesAmt
Management And General$1,237ManagementAndGeneralAmt
Fundraising$2,449FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmtManagement And GeneralManagementAndGeneralAmt
PRINTING & PUBLICATIONS$4,816,953$4,803,383$13,570
POSTAGE & SHIPPING$245,835$93,156$148,886$3,793
TELEPHONE$132,850$115,020$15,130$2,700
RECRUITMENT$49,624$49,624

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$89,806TotalAmt
Program Services$42,013ProgramServicesAmt
Management And General$1,268ManagementAndGeneralAmt
Fundraising$46,525FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$19,330,926TotalAmt
Program Services$17,482,863ProgramServicesAmt
Management And General$605,918ManagementAndGeneralAmt
Fundraising$1,242,145FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$548,806BOYAmt
EOY$1,329,030EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,566,173BOYAmt
EOY$2,624,490EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$7,041,588BOYAmt
EOY$5,710,832EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$1,287,362BOYAmt
EOY$1,038,027EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$1,209,300LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$584,896LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$928,345BOYAmt
EOY$624,404EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$5,146,943BOYAmt
EOY$6,551,634EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$130,561BOYAmt
EOY$136,202EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$16,649,778BOYAmt
EOY$18,014,619EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,506,735BOYAmt
EOY$2,583,802EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$7,062,437BOYAmt
EOY$6,457,610EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$78,278BOYAmt
EOY$78,017EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$8,647,450BOYAmt
EOY$9,119,429EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$6,338,900BOYAmt
EOY$8,708,329EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,663,428BOYAmt
EOY$186,861EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$8,002,328BOYAmt
EOY$8,895,190EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$16,649,778BOYAmt
EOY$18,014,619EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$694,692ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$198,170NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$12,769,438CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$11,394,264CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,690,465CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11,470,224CurrentTaxYearMinus1YearAmt
Current Tax Year$19,852,188CurrentTaxYearAmt
Total$65,176,579TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$12,769,438CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$11,394,264CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,690,465CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11,470,224CurrentTaxYearMinus1YearAmt
Current Tax Year$19,852,188CurrentTaxYearAmt
Total$65,176,579TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$33,455,160SubstantialContributorsTotAmt
Public Support Total170$31,721,419PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$128,518CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$197,754CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$170,097CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$134,827CurrentTaxYearMinus1YearAmt
Current Tax Year$371,600CurrentTaxYearAmt
Total$1,002,796TotalAmt
FieldValueIRS element (for citing)
Total Support$66,179,375TotalSupportAmt
Gross Receipts Rltd Activities$283,051GrossReceiptsRltdActivitiesAmt
Public Support CY1700.47930PublicSupportCY170Pct
Public Support PY1700.47360PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$50,192FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$195,447FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$245,639FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$19,085,287FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$19,330,926FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$1,000,000FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$250,000FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$902,384CurrentYearMinus3Amt
Current Year Minus2$902,008CurrentYearMinus2Amt
Current Year Minus1$946,948CurrentYearMinus1Amt
Current Year$1,000,000CurrentYearAmt
Total$3,751,340TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$5,627,010LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$231,437CurrentYearMinus3Amt
Current Year Minus2$202,131CurrentYearMinus2Amt
Current Year Minus1$234,619CurrentYearMinus1Amt
Current Year$245,639CurrentYearAmt
Total$913,826TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$225,596CurrentYearMinus3Amt
Current Year Minus2$225,502CurrentYearMinus2Amt
Current Year Minus1$236,737CurrentYearMinus1Amt
Current Year$250,000CurrentYearAmt
Total$937,835TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,406,753GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$78,841CurrentYearMinus3Amt
Current Year Minus2$39,381CurrentYearMinus2Amt
Current Year Minus1$43,144CurrentYearMinus1Amt
Current Year$50,192CurrentYearAmt
Total$211,558TotalAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,209,300OtherCostOrOtherBasisAmt
Depreciation$584,896DepreciationAmt
Book Value$624,404BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$624,404TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (5 entries)

DescDescBook ValueBookValueAmtMethod ValuationMethodValuationCd
CERTIFICATES OF DEPOSIT$868,922F
EQUITY SECURITIES & ETF'S$1,885,763F
MUTUAL FUNDS$2,532,396F
FIXED MATURITIES$1,134,675F
GIFT ANNUITIES$129,878F
FieldValueIRS element (for citing)
Total Book Value Securities$6,551,634TotalBookValueSecuritiesAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescANNUITY PYMT LIABILITYDesc
Amt$78,017Amt
FieldValueIRS element (for citing)
Total Liability$78,017TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$20,223,788TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$198,170NetUnrealizedGainsInvstAmt
Revenue Not Reported$198,170RevenueNotReportedAmt
Revenue Subtotal$20,025,618RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$20,025,618TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$19,330,926TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$19,330,926ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$19,330,926TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationMANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ENTITY AND HAS CONCLUDED THAT AS OF SEPTEMBER 30, 2019, THERE WERE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN. ACCORDINGLY, NO INTEREST OR PENALTIES RELATED TO UNCERTAIN TAX POSITIONS WERE ACCRUED IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ENTITY IS SUBJECT TO AUDITS BY TAXING JURISDICTIONS, HOWEVER, NO AUDITS FOR ANY TAX PERIODS ARE CURRENTLY IN PROGRESS. MANAGEMENT BELIEVES THAT THE ENTITY IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR YEARS ENDED ON OR PRIOR TO SEPTEMBER 30, 2016 UNDER FEDERAL AND CALIFORNIA TAX JURISDICTIONS.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (5 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPE11PROGRAM SERVICESAWARDED RESEARCH GRANTS, CONDUCTED A RESEARCH PROJECT, PATIENT & FAMILY SEMINARS, PATIENT AND PHYSICIAN REGIONAL COMMUNITY WORKSHOPS, AND AN AWARDS CEREMONY.$2,892,676
EAST ASIA AND THE PACIFIC11PROGRAM SERVICESAWARDED RESEARCH GRANTS, CONDUCTED A RESEARCH PROJECT, PATIENT & FAMILY SEMINARS, PATIENT AND PHYSICIAN REGIONAL COMMUNITY WORKSHOPS.$1,176,850
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES00PROGRAM SERVICESCONDUCTED RESEARCH PROJECTS, PATIENT EDUCATION.$270,351
MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT,00PROGRAM SERVICESCONDUCTED PATIENT & FAMILY SEMINARS.$104,043
SOUTH AMERICA00PROGRAM SERVICESAWARDED GRANTS AND CONDUCTED RESEARCH PROJECTS.$14,000
FieldValueIRS element (for citing)
Subtotal Offices2SubtotalOfficesCnt
Subtotal Employees2SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office2TotalOfficeCnt
Total Employee2TotalEmployeeCnt
Subtotal Spent$4,457,920SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$4,457,920TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (9 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmt
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMUNRAVELING THE BALANCE OF TOLERANCE AND IMMUNOGENICITY OF MULTIPLE MYELOMA CELLS.$33,333
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMMETABOLISM WITHIN THE BONE MARROW MICROENVIRONMENT: TARGETS FOR MM STRATEGY.$26,667
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMMANIPULATING ENDOPLASMIC RETICULUM HOMEOSTASIS AND SECRETORY CAPACITY AGAINST SYSTEMIC AL AMYLOIDOSIS.$33,333
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMTHE RIBONUCLEASE DIS3 IN THE DNA DAMAGE RESPONSE IN MYELOMA: A TARGETABLE PATHWAY TO PROTECT THE GENOME.$16,667
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMREPROGRAMMING MM CELL METABOLISHM TO AFFECT BONE DISEASE IN MULTIPLE MYELOMA.$26,667
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,TISSUE ENGINEERING OF AN ORTHOTOPIC HUMANISED BONE-ORGAN AS A PRECLINICAL PLATFORM FOR MULTIPLE MYELOMA RESEARCH.$16,667
EAST ASIA AND THE PACIFICSINGLE CELL SEQUENCING TO DISCOVER TUMOR-ASSOCIATED CHANGES IN THE BONE MICROENVIRONMENT OF MYELOMA PATIENTS: IDENTIFICATION OF PROGNOSTIC MARKERS AND NOVEL THERAPEUTIC TARGETS.$53,333
EAST ASIA AND THE PACIFICDISSECTING THE STRUCTURAL AND FUNCTIONAL HETEROGENEITY OF TERMINAL EFFECTOR CD8+T CELLS FROM MGUS AND NEWLY DIAGNOSED MM PATIENTS IN ORDER TO IDENTIFY THERAPEUTIC TARGETS AND UNLOCK THEIR ANTI-MYELOMA POTENTIAL.$33,333
EUROPE (INCLUDING ICELAND & GREENLAND)PROTEIN ARGININE METHYLTRANSFERASE 5 (PRMT5) IN MM: PIVOTAL ROLE IN GENOMIC INSTABILITY AND DRUG RESPONSE.$16,667
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationFOR RESEARCH GRANT FUNDS, REPORTS ARE PROVIDED AS PART OF THE REQUIRED GRANT COMPLIANCE PROCESS BUILT INTO THE GRANT AGREEMENT.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GALAEvent1Nm
Gross Receipts Event1$1,178,573GrossReceiptsEvent1Amt
Charitable Contri Event1$1,099,194CharitableContriEvent1Amt
Gross Revenue Event1$79,379GrossRevenueEvent1Amt
Other Direct Expenses Event1$376,704OtherDirectExpensesEvent1Amt
Gross Receipts Total$1,178,573GrossReceiptsTotalAmt
Charitable Contributions Tot$1,099,194CharitableContributionsTotAmt
Gross Revenue Total Events$79,379GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$376,704OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$376,704DirectExpenseSummaryEventsAmt
Net Income Summary-$297,325NetIncomeSummaryAmt
FieldValueIRS element (for citing)
Explanation If NoN/AExplanationIfNoTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
DANA FARBER CANCER INSTITUTE
450 BROOKLINE AVEBOSTONMA02115042263040IRC SEC 501(C)(3)$60,000OVERCOMING RESISTANCE TO PHARMACOLOGICAL DEGRADERS OF MYELOMA ONCOPROTEINS AND RESEARCHING FUNCTIONAL ROLE OF CORE SPLICING FACTOR DEREGULATION IN MM PATHOGENESIS
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROADEAST LANSINGMI48824386005984IRC SEC 501(C)(3)$53,333TARGETING C-MYC DEGRADATION TO TREAT MULTIPLE MYELOMA

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Substantiation RequiredYes (1)SubstantiationRequiredInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
SUSAN DURIE
PRESIDENT$223,242$0$20,000$0$0$0$0$0$36,845$0$280,087$0$0$0
JENNIFER SCARNE
CFO/COO$249,200$0$15,000$0$0$0$0$0$22,103$0$286,303$0$0$0
DIANE MORAN
STRATEGIC PLANNER$338,025$0$25,000$0$0$0$0$0$18,423$0$381,448$0$0$0
LISA PAIK
SENIOR VICE PRESIDENT$187,967$0$3,000$0$0$0$0$0$25,710$0$216,677$0$0$0
JOSEPH MIKHAEL
CHIEF MEDICAL OFFICER$450,000$0$0$0$0$0$0$0$24,989$0$474,989$0$0$0
PETER ANTON
VICE PRESIDENT, MARKETING$176,517$0$10,000$0$0$0$0$0$31,021$0$217,538$0$0$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 7BONUSES PAID: SUSAN LAVITT NOVIS - $20,000 DIANE MORAN - $25,000 JENNIFER SCARNE - $15,000 LISA PAIK - $3,000 PETER ANTON - $10,000
FORM 990, PART VII LINE 5CHAIRMAN, DR. BRIAN DURIE, WAS COMPENSATED $192,000 FROM THE DURIE GROUP FOR SERVICES RENDERED TO THE ORGANIZATION.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2SUSAN NOVIS, PRESIDENT AND DR. BRIAN DURIE, CHAIRMAN ARE HUSBAND AND WIFE.
FORM 990, PART VI, SECTION B, LINE 11BA COPY OF THE FORM 990 IS PROVIDED TO THE FINANCE COMMITTEE OF THE BOARD FOR REVIEW PRIOR TO FILING THE TAX RETURN.
FORM 990, PART VI, SECTION B, LINE 12CTHIS PROCEDURE IS PERFORMED ANNUALLY AT THE ORGANIZATION'S BOARD OF DIRECTORS RETREAT.
FORM 990, PART VI, SECTION B, LINE 15FOR KEY EMPLOYEES, A REVIEW OF COMPARABLE COMPENSATION DATA IS REVIEWED BY THE FINANCE COMMITTEE. MEMBERS OF THE FINANCE COMMITTEE APPROVE OF THE COMPENSATION PACKAGE AND WOULD NOT HAVE A CONFLICT OF INTEREST WITH RESPECT TO THE COMPENSATION ARRANGEMENT ISSUE. THE DECISION IS DISCUSSED AND RECORDED IN THE EXECUTIVE COMMITEE AND FINANCE COMMITTEE BOARD OF DIRECTOR MEETING MINUTES.
FORM 990, PART VI, SECTION C, LINE 19THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS OF THE ORGANIZATION ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE, AND UPON REQUEST. THESE DOCUMENTS HAVE BEEN PROVIDED TO A THIRD PARTY WEBSITE "CHARITY NAVIGATOR: YOUR GUIDE TO INTELLIGENT GIVING."
PART XII, LINE 2CTHE AUDIT OVERSIGHT COMMITTEE HAS NOT CHANGED ITS PROCESS SINCE THE PRIOR YEAR.