CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2019-01-01 to 2019-12-31
Filed: 2020-10-28
IRS object ID: 202033029349301438
Schema version: 2019v5.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2020-10-28T11:13:50-05:00	ReturnTs
Tax Period End	2019-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	KPMG LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	8350 Broad Street Suite 900	AddressLine1Txt
City	McLean	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2019-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
In Care Of	% MICHAEL P BOYLE MD	InCareOfNm
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVENUE Suite 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	MICHAEL BOYLE	PersonNm
Person Title	PRESIDENT & CEO	PersonTitleTxt
Phone	3019514422	PhoneNum
Signature	2020-10-27	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JG WHITE	PreparerPersonNm
PTIN	P01498698	PTIN
Phone	7032868000	PhoneNum
Preparation	2020-10-23	PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	127.0.0.1	IPv4AddressTxt

Field	Value	IRS element (for citing)
Federal Original Submission Id	54028020203025000001	FederalOriginalSubmissionId
Federal Original Submission Id	2020-10-28	FederalOriginalSubmissionIdDt
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	C48FCDF2455541838D8EE1295B79EA4EB344D0C4	AtSubmissionCreationDeviceId
At Submission Filing Device Id	F84D70DE4ED1A3D1D305868E05B483BCD107B33D	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2019	TaxYr
Build TS	2021-01-29 14:40:06Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	Michael Boyle	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE STE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$4,557,943,659	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CFF.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1955	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives.	ActivityOrMissionDesc
Voting Members Governing Body	16	VotingMembersGoverningBodyCnt
Voting Members Independent	15	VotingMembersIndependentCnt
Total Employee	888	TotalEmployeeCnt
Total Volunteers	92000	TotalVolunteersCnt
Total Gross UBI	-$4,139,609	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	-$4,173,957	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$108,058,591	PYContributionsGrantsAmt
CY Contributions Grants	$108,894,890	CYContributionsGrantsAmt
PY Program Service Revenue	$4,441,092	PYProgramServiceRevenueAmt
CY Program Service Revenue	$4,147,243	CYProgramServiceRevenueAmt
PY Investment Income	$141,144,690	PYInvestmentIncomeAmt
CY Investment Income	$441,790,325	CYInvestmentIncomeAmt
PY Other Revenue	$22,146,383	PYOtherRevenueAmt
CY Other Revenue	$50,945,967	CYOtherRevenueAmt
PY Total Revenue	$275,790,756	PYTotalRevenueAmt
CY Total Revenue	$605,778,425	CYTotalRevenueAmt
PY Grants And Similar Paid	$144,315,284	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$155,248,642	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$90,187,520	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$99,469,166	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$326,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$323,686	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$28,709,961	CYTotalFundraisingExpenseAmt
PY Other Expenses	$103,083,764	PYOtherExpensesAmt
CY Other Expenses	$93,608,605	CYOtherExpensesAmt
PY Total Expenses	$337,912,568	PYTotalExpensesAmt
CY Total Expenses	$348,650,099	CYTotalExpensesAmt
PY Revenues Less Expenses	-$62,121,812	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$257,128,326	CYRevenuesLessExpensesAmt
Total Assets BOY	$4,013,935,956	TotalAssetsBOYAmt
Total Assets EOY	$4,476,511,082	TotalAssetsEOYAmt
Total Liabilities BOY	$238,572,484	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$239,802,250	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$3,775,363,472	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$4,236,708,832	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis (CF) and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$245,607,340	ExpenseAmt
Grant	$151,680,216	GrantAmt
Revenue	$32,567,532	RevenueAmt
Desc	MEDICAL PROGRAMS - SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLD'S LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE. THE FOUNDATION ACCOMPLISHES ITS MISSION BY FUNDING LIFE-SAVING RESEARCH TO DISCOVER AND DEVELOP EFFECTIVE THERAPIES FOR PEOPLE WITH CF. THE CF FOUNDATION HAS FUNDED HUNDREDS OF MILLIONS OF DOLLARS OF RESEARCH COSTS TO HELP DISCOVER/DEVELOP CF DRUGS AND THERAPIES. THROUGH THE FOUNDATION'S EFFORTS, THE LIFE EXPECTANCY OF PEOPLE WITH CF HAS MORE THAN DOUBLED IN THE LAST 30 YEARS, AND RESEARCH TO FIND A CURE IS MORE PROMISING THAN EVER BEFORE. IN 2019, THE CF FOUNDATION INVESTED $201 MILLION INTO RESEARCH AND CARE. THE CF FOUNDATION HAS ATTRACTED SIGNIFICANT INDUSTRY INVOLVEMENT IN THE FIGHT AGAINST CF BY FUNDING CONTRACTED DRUG DISCOVERY AND DEVELOPMENT RESEARCH CONDUCTED BY BIOTECHNOLOGY COMPANIES. IT ALSO PROVIDES MATCHING AWARDS TO CF DRUG DEVELOPERS FOR CF RESEARCH AND FUNDS A SPECIALIZED CF CLINICAL TRIALS NETWORK OF NEARLY 90 FOUNDATION-ACCREDITED CARE CENTERS. AS A RESULT OF THIS FUNDING, IN 2019 THE CF DRUG DEVELOPMENT PIPELINE HAD 29 THERAPIES IN DEVELOPMENT IN ADDITION TO 15 FDA APPROVED TREATMENTS THAT ADDRESS COMPLICATIONS LIKE INFECTIONS AND A POTENTIAL CURE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF MORE THAN 130 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. IN 2019, THE FOUNDATION PROVIDED MORE THAN $41 MILLION OF SUPPORT FOR CARE CENTERS AND CLINICIANS. THE FOUNDATION'S PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 31,199 PEOPLE WITH CF, PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$22,103,810	ExpenseAmt
Grant	$3,568,426	GrantAmt
Desc	COMMUNITY SERVICES - THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE PHYSICAL, EMOTIONAL, AND FINANCIAL CHALLENGES OF LIVING WITH CF - FROM SUPPORTING SPECIALIZED QUALITY CF CARE, TO PROVIDING INFORMATION AND RESOURCES TO HELP PEOPLE WITH CF BECOME EFFECTIVE PARTNERS IN THEIR CARE TO PROGRAMS TO HELP AFFECT THE ISOLATION OF LIVING WITH THIS DISEASE. APPROXIMATELY 31,199 PEOPLE WITH CF WERE SERVED IN 2019, INCLUDING APPROXIMATELY 766 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUAL'S CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2019, SKILLED CASE MANAGERS ADDRESSED MORE THAN 6,000 CASES FOR PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, INCLUDING UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS GETTING HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER. IN 2019, APPROXIMATELY 1,500 PEOPLE WITH CF AND THEIR FAMILY MEMBERS JOINED VIRTUAL EVENTS DESIGNED BY AND FOR ADULTS WITH CF, FAMILY, CLINICIANS AND RESEARCHERS INCLUDING BREATHECON, FAMILYCON AND RESEARCHCON, THAT PROVIDE AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$17,584,009	ExpenseAmt
Desc	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2019, THERE WERE 27 PUBLICATIONS AND 39 VIDEOS PRODUCED AND MADE AVAILABLE TO SUPPORT EDUCATION AND AWARENESS. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2019, OVER 3,063,346 UNIQUE VISITORS CAME TO THE CF FOUNDATION'S WEBSITE. NEW CONTENT ON CFF.ORG IN 2019 INCLUDED THE LAUNCH OF 11 NEW SECTIONS AND 90 BLOG POSTS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$285,295,159	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	false	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Donor Rstr Or Quasi Endowments	false	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	Yes (true)	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	false	ReportOtherAssetsInd
Report Other Liabilities	false	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (true)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	false	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (true)	ProfessionalFundraisingInd
Fundraising Activities	Yes (true)	FundraisingActivitiesInd
Gaming Activities	Yes (true)	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	Yes (true)	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	false	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (true)	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	false	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (true)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	false	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	1742	IRPDocumentCnt
IRP Document W2 G	1	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	888	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (true)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (true)	Form990TFiledInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (true)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (true)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (true)	Form1098CFiledInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	Yes (true)	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	false	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	16	GoverningBodyVotingMembersCnt
Independent Voting Member	15	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	Yes (true)	LocalChaptersInd
Policies Reference Chapters	Yes (true)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	MICHAEL P BOYLE MD	PersonNm
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (28 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Key EmployeeKeyEmployeeInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
JACK MAHLER MD
CHIEF INVESTMENT OFFICER	40.0	0.0	Yes (X)	$1,129,788	$0	$454,050
PRESTON CAMPBELL MD
PRESIDENT & CEO	40.0	0.0		$1,296,038	$0	$160,730	Yes (X)	Yes (X)
MARC S GINSKY
EXECUTIVE VP, COO & SECRETARY	40.0	1.0		$798,697	$0	$196,290		Yes (X)
ERIC KOEHRSEN
MANAGING DIRECTOR, INVESTMENTS	40.0	0.0		$724,272	$0	$181,211			Yes (X)
EARL LEE
MANAGING DIRECTOR, INVESTMENTS	40.0	0.0		$795,644	$0	$31,560			Yes (X)
VERA H TWIGG
EXECUTIVE VP & CFO	40.0	1.0		$616,492	$0	$116,663		Yes (X)
MICHAEL P BOYLE MD
SR.VP,THERAPEUTICS DEVELOPMENT	40.0	0.0	Yes (X)	$572,626	$0	$110,366
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIRS	40.0	0.0	Yes (X)	$553,576	$0	$108,709
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIRS	40.0	0.0	Yes (X)	$570,534	$0	$44,951
CHRIS GEGELYS
SENIOR VP, CHIEF LEGAL OFFICER	40.0	1.0		$508,694	$0	$76,727			Yes (X)
DRUCY S BOROWITZ MD
SENIOR VP, COMMUNITY AFFAIRS	40.0	0.0		$542,352	$0	$28,284			Yes (X)
ANTHONY DURMOWICZ MD
VP, CLINICAL DEVELOPMENT	40.0	0.0		$519,124	$0	$45,129			Yes (X)
C RICHARD MATTINGLY
FORMER OFFICER	0.0	0.0		$101,212	$0	$0				Yes (X)
LOUIS A DEFALCO
VICE CHAIR	5.0	0.0		$0	$0	$0	Yes (X)
RICHARD J GRAY ESQ
VICE CHAIR	5.0	0.0		$0	$0	$0	Yes (X)
CAROLE B GRIEGO MD
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)
SUSAN L HOOK
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)
CATHERINE C MCLOUD
CHAIR	8.0	0.0		$0	$0	$0	Yes (X)
CHAD T MOORE
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)
DAVID A MOUNT
TREASURER	3.0	0.0		$0	$0	$0	Yes (X)
ROBERT H NIEHAUS
VICE CHAIR	5.0	0.0		$0	$0	$0	Yes (X)
ERIC R OLSON PHD
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)
TERESA L ELDER
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)
STEVEN SHAK MD
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)
THEODORE J TORPHY PH
VICE CHAIR	5.0	0.0		$0	$0	$0	Yes (X)
JOHN S WEINBERG
EXECUTIVE VICE CHAIR	5.0	0.0		$0	$0	$0	Yes (X)
PAUL W WHETSELL
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)
KC BRYAN WHITE
TRUSTEE	3.0	0.0		$0	$0	$0	Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$8,729,049	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$1,554,670	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	218	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (true)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt	Address Line1ContractorAddress/ForeignAddress/AddressLine1Txt	CityContractorAddress/ForeignAddress/CityNm	Province Or StateContractorAddress/ForeignAddress/ProvinceOrStateNm	CountryContractorAddress/ForeignAddress/CountryCd	Foreign PostalContractorAddress/ForeignAddress/ForeignPostalCd
VERTEX PHARMACEUTICALS INC
50 NORTHERN AVE	BOSTON	MA	02210	CONTRACTED RESEARCH	$12,500,000
CLINICAL RESEARCH SEQUENCING PLATFO
415 MAIN STREET	CAMBRIDGE	MA	02142	CONTRACTED RESEARCH	$6,441,110
CORBUS PHARMACEUTICALS INC
100 RIVER RIDGE DRIVE	NORWOOD	MA	02062	CONTRACTED RESEARCH	$5,000,000
ARCTURUS THERAPEUTICS INC
10628 SCIENCE CENTER DRIVE SUITE 2	SAN DIEGO	CA	92121	CONTRACTED RESEARCH	$4,100,901
Laurent Pharmaceuticals Inc
				CONTRACTED RESEARCH	$3,600,000	355 PEEL STREET SUITE 503	MONTREAL	QUEBEC	CA	H3C 2G9

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	125	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$508,229	FederatedCampaignsAmt
Fundraising	$80,308,624	FundraisingAmt
All Other Contributions	$28,078,037	AllOtherContributionsAmt
Noncash Contributions	$10,918,240	NoncashContributionsAmt
Total Contributions	$108,894,890	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SCIENTIFIC CONFERENCE	611600	$3,624,953	$3,624,953
CLINICAL STUDY	541900	$135,305	$135,305
DATA SAFETY MONITORING BOARD REVENUE	541990	$386,985	$386,985

Field	Value	IRS element (for citing)
Total Program Service Revenue	$4,147,243	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$73,149,393	TotalRevenueColumnAmt
Unrelated Business Revenue	-$4,139,609	UnrelatedBusinessRevenueAmt
Exclusion	$77,289,002	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$44,535,937	TotalRevenueColumnAmt
Related Or Exempt Func Income	$22,166,076	RelatedOrExemptFuncIncomeAmt
Exclusion	$22,369,861	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$4,304,985,564	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$3,936,344,632	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$368,640,932	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$368,640,932	TotalRevenueColumnAmt
Exclusion	$368,640,932	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$15,811,603	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$80,308,624	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$15,811,603	FundraisingDirectExpensesAmt
Gaming Gross Income	$135,192	GamingGrossIncomeAmt
Gaming Direct Expenses	$8,999	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$126,193	TotalRevenueColumnAmt
Exclusion	$126,193	ExclusionAmt

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	$0	GrossSalesOfInventoryAmt
Cost Of Goods Sold	$0	CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt	ExclusionExclusionAmt
REFUNDED OR CANCELLED GRANTS	900099	$6,254,213	$6,254,213
CLAIM PROCEEDS	900099	$29,624		$29,624

Field	Value	IRS element (for citing)
Other Revenue Total	$6,283,837	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$605,778,425	TotalRevenueColumnAmt
Related Or Exempt Func Income	$32,567,532	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	-$4,139,609	UnrelatedBusinessRevenueAmt
Exclusion	$468,455,612	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$143,401,389	TotalAmt
Program Services	$143,401,389	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$204,262	TotalAmt
Program Services	$204,262	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$11,642,991	TotalAmt
Program Services	$11,642,991	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$6,729,509	TotalAmt
Program Services	$3,697,320	ProgramServicesAmt
Management And General	$1,613,438	ManagementAndGeneralAmt
Fundraising	$1,418,751	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$171,700	TotalAmt
Program Services	$94,335	ProgramServicesAmt
Management And General	$41,166	ManagementAndGeneralAmt
Fundraising	$36,199	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$71,752,291	TotalAmt
Program Services	$39,422,067	ProgramServicesAmt
Management And General	$17,203,020	ManagementAndGeneralAmt
Fundraising	$15,127,204	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$5,202,675	TotalAmt
Program Services	$2,858,448	ProgramServicesAmt
Management And General	$1,247,371	ManagementAndGeneralAmt
Fundraising	$1,096,856	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$10,575,751	TotalAmt
Program Services	$5,810,517	ProgramServicesAmt
Management And General	$2,535,597	ManagementAndGeneralAmt
Fundraising	$2,229,637	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$5,037,240	TotalAmt
Program Services	$2,721,815	ProgramServicesAmt
Management And General	$1,130,120	ManagementAndGeneralAmt
Fundraising	$1,185,305	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$1,127,995	TotalAmt
Program Services	$1,024,990	ProgramServicesAmt
Management And General	$100,527	ManagementAndGeneralAmt
Fundraising	$2,478	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$309,350	TotalAmt
Management And General	$309,350	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$720,241	TotalAmt
Program Services	$720,241	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$323,686	TotalAmt
Fundraising	$323,686	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$3,272,948	TotalAmt
Management And General	$3,272,948	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$6,340,491	TotalAmt
Program Services	$5,278,463	ProgramServicesAmt
Management And General	$907,502	ManagementAndGeneralAmt
Fundraising	$154,526	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$12,625	TotalAmt
Program Services	$4,166	ProgramServicesAmt
Management And General	$2,525	ManagementAndGeneralAmt
Fundraising	$5,934	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$6,140,270	TotalAmt
Program Services	$3,747,788	ProgramServicesAmt
Management And General	$652,027	ManagementAndGeneralAmt
Fundraising	$1,740,455	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$11,371,753	TotalAmt
Program Services	$7,729,233	ProgramServicesAmt
Management And General	$2,004,874	ManagementAndGeneralAmt
Fundraising	$1,637,646	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$6,738,238	TotalAmt
Program Services	$3,839,227	ProgramServicesAmt
Management And General	$1,323,984	ManagementAndGeneralAmt
Fundraising	$1,575,027	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$2,798,639	TotalAmt
Program Services	$1,817,319	ProgramServicesAmt
Management And General	$461,423	ManagementAndGeneralAmt
Fundraising	$519,897	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$7,123,256	TotalAmt
Program Services	$5,664,442	ProgramServicesAmt
Management And General	$476,496	ManagementAndGeneralAmt
Fundraising	$982,318	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$4,034,528	TotalAmt
Program Services	$3,244,104	ProgramServicesAmt
Management And General	$379,614	ManagementAndGeneralAmt
Fundraising	$410,810	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$901,415	TotalAmt
Program Services	$619,029	ProgramServicesAmt
Management And General	$230,600	ManagementAndGeneralAmt
Fundraising	$51,786	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CONTRACTED RESEARCH	$39,719,382	$39,719,382
MEDICAL QUALITY IMPROVEMENT	$716,903	$716,903
TRAINING	$699,217	$447,790	$209,312	$42,115
OTHER	$1,581,354	$868,938	$543,085	$169,331

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$348,650,099	TotalAmt
Program Services	$285,295,159	ProgramServicesAmt
Management And General	$34,644,979	ManagementAndGeneralAmt
Fundraising	$28,709,961	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,716,518	TotalAmt
Program Services	$427,334	ProgramServicesAmt
Fundraising	$1,289,184	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$59,884	BOYAmt
EOY	$81,770	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$82,861,615	BOYAmt
EOY	$69,282,429	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$6,564,345	BOYAmt
EOY	$5,560,596	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$5,700,247	BOYAmt
EOY	$23,594,344	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$315,551	BOYAmt
EOY	$344,669	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$3,056,446	BOYAmt
EOY	$5,846,146	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$27,102,737	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$15,988,085	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$11,545,942	BOYAmt
EOY	$11,114,652	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$1,746,072,213	BOYAmt
EOY	$3,325,008,913	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$2,123,859,053	BOYAmt
EOY	$1,005,305,643	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$1,000,000	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$33,900,660	BOYAmt
EOY	$29,371,920	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$4,013,935,956	BOYAmt
EOY	$4,476,511,082	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$36,567,354	BOYAmt
EOY	$38,067,909	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$196,882,717	BOYAmt
EOY	$196,869,140	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$5,122,413	BOYAmt
EOY	$4,865,201	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$238,572,484	BOYAmt
EOY	$239,802,250	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,764,331,282	BOYAmt
EOY	$4,226,469,269	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$11,032,190	BOYAmt
EOY	$10,239,563	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,775,363,472	BOYAmt
EOY	$4,236,708,832	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$4,013,935,956	BOYAmt
EOY	$4,476,511,082	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$257,128,326	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$204,217,034	NetUnrlzdGainsLossesInvstAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$122,210,533	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$117,148,751	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$110,650,273	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$108,058,591	CurrentTaxYearMinus1YearAmt
Current Tax Year	$108,894,890	CurrentTaxYearAmt
Total	$566,963,038	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$122,210,533	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$117,148,751	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$110,650,273	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$108,058,591	CurrentTaxYearMinus1YearAmt
Current Tax Year	$108,894,890	CurrentTaxYearAmt
Total	$566,963,038	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$566,963,038	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$75,041,033	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$64,638,761	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$67,686,719	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$66,681,682	CurrentTaxYearMinus1YearAmt
Current Tax Year	$95,519,254	CurrentTaxYearAmt
Total	$369,567,449	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$16,333,174	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$14,060,761	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$15,116,982	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$15,369,965	CurrentTaxYearMinus1YearAmt
Current Tax Year	$15,976,419	CurrentTaxYearAmt
Total	$76,857,301	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$1,013,387,788	TotalSupportAmt
Gross Receipts Rltd Activities	$52,401,021	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.55947	PublicSupportCY170Pct
Public Support PY170	0.90305	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 12 - GROSS RECEIPTS FROM RELATED ACTIVITIES	FormAndLineReferenceDesc
Explanation	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATION RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. THE FOUNDATION MANAGES A POST-MARKETING SAFETY STUDY MANDATED BY THE FOOD & DRUG ADMINISTRATION (FDA) IN ORDER TO ENSURE THE SAFETY OF PEOPLE WITH CF. FEES FOR THIS SERVICE ARE REPORTED ON LINE 12. REIMBURSEMENTS FOR DATA SAFETY MONITORING BOARD AND PROTOCOL REVIEW COMMITTEE RELATED COSTS ARE REPORTED ON LINE 12.	ExplanationTxt

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Total Grassroots Lobbying		TotalGrassrootsLobbyingGrp
Total Direct Lobbying		TotalDirectLobbyingGrp
Total Lobbying Expend		TotalLobbyingExpendGrp
Other Exempt Purpose Expend		OtherExemptPurposeExpendGrp
Total Exempt Purpose Expend		TotalExemptPurposeExpendGrp
Lobbying Nontaxable Amount		LobbyingNontaxableAmountGrp
Grassroots Nontaxable		GrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp
Volunteers	Yes (true)	VolunteersInd
Paid Staff Or Management	Yes (true)	PaidStaffOrManagementInd
Media Advertisements	false	MediaAdvertisementsInd
Mailings Members	Yes (true)	MailingsMembersInd
Mailings Members	$42,142	MailingsMembersAmt
Publications Or Broadcast	Yes (true)	PublicationsOrBroadcastInd
Publications Or Broadcast	$16,982	PublicationsOrBroadcastAmt
Grants Other Organizations	false	GrantsOtherOrganizationsInd
Direct Contact Legislators	Yes (true)	DirectContactLegislatorsInd
Direct Contact Legislators	$1,665,989	DirectContactLegislatorsAmt
Rallies Demonstrations	false	RalliesDemonstrationsInd
Other Activities	Yes (true)	OtherActivitiesInd
Other Activities	$1,521	OtherActivitiesAmt
Total Lobbying Expenditures	$1,726,634	TotalLobbyingExpendituresAmt
Not Described Section501c3	false	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	LOBBYING ACTIVITY	FormAndLineReferenceDesc
Explanation	THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.	ExplanationTxt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$6,653,212	OtherCostOrOtherBasisAmt
Depreciation	$2,289,772	DepreciationAmt
Book Value	$4,363,440	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$20,449,525	OtherCostOrOtherBasisAmt
Depreciation	$13,698,313	DepreciationAmt
Book Value	$6,751,212	BookValueAmt

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildingsGrp
Total Book Value Land Buildings	$11,114,652	TotalBookValueLandBuildingsAmt
Financial Derivatives		FinancialDerivativesGrp
Closely Held Equity Interests		CloselyHeldEquityInterestsGrp

Other Securities OtherSecuritiesGrp (5 entries)

DescDesc	Book ValueBookValueAmt	Method ValuationMethodValuationCd
GLOBAL PUBLIC EQUITY	$422,998,835	F
PVT EQTY & OTHR ILLIQUID FUNDS	$334,752,615	F
ABSOLUTE RETURN	$242,052,193	F
PERPETUAL TRUSTS	$4,057,017	F
OTHER	$1,444,983	F

Field	Value	IRS element (for citing)
Total Book Value Securities	$1,005,305,643	TotalBookValueSecuritiesAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt
Total Liability	$0	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$801,247,603	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$204,217,034	NetUnrealizedGainsInvstAmt
Revenue Not Reported	$204,217,034	RevenueNotReportedAmt
Revenue Subtotal	$597,030,569	RevenueSubtotalAmt
Investment Expenses Not Incld	$8,747,856	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$8,747,856	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$605,778,425	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$339,902,243	TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal	$339,902,243	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$8,747,856	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$8,747,856	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$348,650,099	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE D, PART X	FormAndLineReferenceDesc
Explanation	FIN 48 FOOTNOTE THE FOUNDATION IS A NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATION EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2019 AND 2018. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (14 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
Europe (Including Iceland and Greenland)	Grantmaking	NONE	$5,305,625
East Asia and the Pacific	Grantmaking	NONE	$4,083,554
North America	Grantmaking	NONE	$1,993,521
Sub-Saharan Africa	Grantmaking	NONE	$116,643
Middle East and North Africa	Grantmaking	NONE	$108,648
South America	Grantmaking	NONE	$35,000
Central America and the Caribbean	Investments		$710,982,000
East Asia and the Pacific	Investments		$237,725,000
Europe (Including Iceland and Greenland)	Investments		$416,741,000
North America	Investments		$63,725,000
Middle East and North Africa	Investments		$2,127,000
Europe (Including Iceland and Greenland)	Program Services	CONTRACTED RESEARCH	$3,135,360
North America	Program Services	CONTRACTED RESEARCH	$2,900,000
East Asia and the Pacific	Program Services	CONTRACTED RESEARCH	$82,038

Field	Value	IRS element (for citing)
Subtotal Spent	$1,449,060,389	SubtotalSpentAmt
Total Spent	$1,449,060,389	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (42 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
Europe (Including Iceland and Greenland)	RESEARCH STUDY	$65,450	WIRE
Middle East and North Africa	THERAPEUTICS DISCOVERY RESEARCH	$6,480	WIRE
East Asia and the Pacific	QUALITY IMPROVEMENT	$113,700	WIRE
North America	CLINICAL RESEARCH STUDY	$374,360	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH CENTER	$1,420,762	WIRE
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	$921,634	WIRE
North America	RESEARCH	$107,379	CHECK
Europe (Including Iceland and Greenland)	RESEARCH	$134,622	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	$144,253	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$131,871	WIRE
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	$20,379	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$54,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$135,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$135,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$135,000	WIRE
South America	RESEARCH	$35,000	WIRE
North America	RESEARCH	$267,840	CHECK
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	$511,283	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$54,000	WIRE
Middle East and North Africa	CLINICAL RESEARCH	$52,920	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH	$616,965	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$135,000	WIRE
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	$23,701	WIRE
Middle East and North Africa	CLINICAL RESEARCH	$49,248	WIRE
North America	CLINICAL RESEARCH STUDY	$557,497	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$208,497	WIRE
East Asia and the Pacific	RESEARCH	$108,000	WIRE
North America	PILOT STUDY	$54,000	WIRE
North America	QUALITY IMPROVEMENT	$54,000	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	$603,962	WIRE
East Asia and the Pacific	CLINICAL RESEARCH STUDY	$1,476,089	WIRE
North America	CLINICAL RESEARCH STUDY	$68,905	CHECK
Europe (Including Iceland and Greenland)	PILOT STUDY	$108,000	WIRE
North America	CLINICAL CARE RESEARCH	$375,280	WIRE
North America	RESEARCH	$134,260	WIRE
Sub-Saharan Africa	CLINICAL RESEARCH	$116,643	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	$53,957	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$49,680	WIRE
Europe (Including Iceland and Greenland)	CLINICAL RESEARCH STUDY	$60,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$51,571	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$135,000	WIRE
East Asia and the Pacific	CLINICAL RESEARCH	$1,781,803	WIRE

Field	Value	IRS element (for citing)
Total501c3 Org	35	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt
Transfer To Foreign Corp	Yes (true)	TransferToForeignCorpInd
Interest In Foreign Trust	false	InterestInForeignTrustInd
Foreign Corp Ownership	Yes (true)	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	Yes (true)	PassiveForeignInvestmestCoInd
Foreign Partnership	Yes (true)	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S.

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE GRANTS TO THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO THE RESEARCH FUND OF THE HADASSAH MEDICAL ORGANIZATION, THE HEBREW UNIVERSITY OF JERUSALEM, AND CLALIT HEALTH SERVICES IN ISRAEL.

FOREIGN FORMS

THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (true)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
LAUTMAN MASKA NEILL CO
MAIL COUNSEL	false	$8,817,851	$240,000	$8,577,851
THE PURSUANT GROUP INC
DATA ANALYSIS	false	$0	$83,686

Field	Value	IRS element (for citing)
Total Gross Receipts	$8,817,851	TotalGrossReceiptsAmt
Total Retained By Contractors	$323,686	TotalRetainedByContractorsAmt
Total Net To Organization	$8,577,851	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SKI	Event1Nm
Gross Receipts Event1	$2,854,425	GrossReceiptsEvent1Amt
Charitable Contri Event1	$1,434,338	CharitableContriEvent1Amt
Gross Revenue Event1	$1,420,087	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$110,995	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$705,583	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$353,347	FoodAndBeverageEvent1Amt
Other Direct Expenses Event1	$250,162	OtherDirectExpensesEvent1Amt
Event2	ATLANTA WALK	Event2Nm
Gross Receipts Event2	$3,359,794	GrossReceiptsEvent2Amt
Charitable Contri Event2	$3,200,325	CharitableContriEvent2Amt
Gross Revenue Event2	$159,469	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$23,310	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$38,286	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$70,583	FoodAndBeverageEvent2Amt
Entertainment Event2	$6,100	EntertainmentEvent2Amt
Other Direct Expenses Event2	$21,190	OtherDirectExpensesEvent2Amt
Other Events Total	882	OtherEventsTotalCnt
Gross Receipts Other Events	$89,906,008	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$75,673,961	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$14,232,047	GrossRevenueOtherEventsAmt
Cash Prizes Other Events	$9,500	CashPrizesOtherEventsAmt
Non Cash Prizes Other Events	$1,304,466	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$6,679,794	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$3,860,787	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$448,450	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$1,929,050	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$96,120,227	GrossReceiptsTotalAmt
Charitable Contributions Tot	$80,308,624	CharitableContributionsTotAmt
Gross Revenue Total Events	$15,811,603	GrossRevenueTotalEventsAmt
Cash Prizes Total Events	$9,500	CashPrizesTotalEventsAmt
Non Cash Prizes Total Events	$1,438,771	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$7,423,663	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$4,284,717	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$454,550	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$2,200,402	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$15,811,603	DirectExpenseSummaryEventsAmt

Gaming Information GamingInformationGrp

Field	Value	IRS element (for citing)
Gross Revenue Other Gaming	$135,192	GrossRevenueOtherGamingAmt
Non Cash Prizes Other Gaming	$8,999	NonCashPrizesOtherGamingAmt
Volunteer Labor Other Gaming	false	VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming	$135,192	GrossRevenueTotalGamingAmt
Non Cash Prizes Total Gaming	$8,999	NonCashPrizesTotalGamingAmt
Direct Expense Summary Gaming	$8,999	DirectExpenseSummaryGamingAmt
Net Gaming Income Summary	$126,193	NetGamingIncomeSummaryAmt

Field	Value	IRS element (for citing)
States Where Gaming Conducted	CO	StatesWhereGamingConductedCd
States Where Gaming Conducted	IL	StatesWhereGamingConductedCd
States Where Gaming Conducted	KS	StatesWhereGamingConductedCd
States Where Gaming Conducted	MT	StatesWhereGamingConductedCd
States Where Gaming Conducted	NH	StatesWhereGamingConductedCd
States Where Gaming Conducted	TX	StatesWhereGamingConductedCd
Licensed	Yes (true)	LicensedInd
License Suspended Etc	false	LicenseSuspendedEtcInd
Gaming With Nonmembers	false	GamingWithNonmembersInd
Member Of Other Entity	false	MemberOfOtherEntityInd
Gaming Other Facility	1.00000	GamingOtherFacilityPct
Individual With Books	THE ORGANIZATION	IndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Cntrct With3rd Prty For Game Rev	false	CntrctWith3rdPrtyForGameRevInd
Gaming Manager Person	NA	GamingManagerPersonNm
Charitable Distribution Rqr	false	CharitableDistributionRqrInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROFESSIONAL FUNDRAISING SERVICES

SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL AND ANNUAL FUND EFFORTS DURING 2019. THE EXPENSE FOR THE PROJECT IS $20,000 PER MONTH OR $240,000 FOR THE ENTIRE YEAR OF SERVICES. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. CFF HAD A WRITTEN CONTRACT WITH THE PURSUANT GROUP, INC TO CONDUCT DONOR FILE ANALYSIS AND SEGMENTATION DURING 2019. THE EXPENSE FOR THE PROJECT WAS $83,686. IN ADDITION TO THE ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED THE PURSUANT GROUP FOR CREATIVE DEVELOPMENT. THE PURSUANT GROUP DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM ANALYSIS PERFORMED BY THE PURSUANT GROUP ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

SCHEDULE G, PART III

ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. NO OUTSIDE PARTY HAD ANY INVOLVEMENT IN GAMING ACTIVITIES AND THESE ACTIVITIES DO NOT GENERATE UNRELATED BUSINESS INCOME. THE EXECUTIVE DIRECTOR OF EACH OFFICE IS RESPONSIBLE FOR OVERSEEING GAMING ACTIVITIES CONDUCTED BY THEIR OFFICE.

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (606 entries)

Address Line1USAddress/AddressLine1Txt	Address Line2USAddress/AddressLine2Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt
3RD STREET SOCIETY
107 E INDIAN AVENUE	PO BOX 1012	FOLLY BEACH	SC	29439	821635295	501C(3)	$6,856	COMMUNITY IMPACT
ADVOCATE CHARITABLE FOUNDATION
3075 HIGHLAND PARKWAY SUITE 600	SUITE 600	DOWNERS GROVE	IL	60515	363297360	501C(3)	$114,940	CF CARE CENTER
ADVOCATE HEALTH AND HOSPITALS CORPORATION
3075 HIGHLAND PARKWAY	SUITE 600	DOWNERS GROVE	IL	695151288	362169147	501C(3)	$29,160	CF CARE CENTER
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVENUE		ALBANY	NY	12298	141338310	501C(3)	$24,420	CLINICAL RESEARCH CENTER
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVENUE		ALBANY	NY	12298	141338310	501C(3)	$141,110	CF CARE CENTER
ALL CHILDREN'S HOSPITAL INC
3910 KESWICK ROAD		BALTIMORE	MD	21211	590683252	501C(3)	$38,000	CLINICAL RESEARCH CENTER
ALL CHILDREN'S HOSPITAL INC
3910 KESWICK ROAD	S BLDG NO 4300A	BALTIMORE	MD	21211	590683252	501C(3)	$165,420	CF CARE CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
225 E CHICAGO AVE	S BLDG NO 4300A	CHICAGO	IL	606112991	362170833	501C(3)	$70,461	CLINICAL RESEARCH CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
225 E CHICAGO AVE	BOX 282	CHICAGO	IL	606112991	362170833	501C(3)	$81,000	THERAPEUTICS DISCOVERY RESEARCH
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
225 E CHICAGO AVE	BOX 282	CHICAGO	IL	606112991	362170833	501C(3)	$241,754	CLINICAL RESEARCH STUDY
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
225 E CHICAGO AVE	BOX 282	CHICAGO	IL	606112991	362170833	501C(3)	$242,021	CF CARE CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
225 E CHICAGO AVE	BOX 282	CHICAGO	IL	606112991	362170833	501C(3)	$523,157	QUALITY IMPROVEMENT
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
1303 E UNIVERSITY	BOX 282	TUCSON	AZ	857190521	742652689	IRC 115	$34,560	ADHERENCE
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
1303 E UNIVERSITY	BOX 3	TUCSON	AZ	857190521	742652689	IRC 115	$36,920	CLINICAL RESEARCH CENTER
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
1303 E UNIVERSITY	BOX 3	TUCSON	AZ	857190521	742652689	IRC 115	$182,875	CF CARE CENTER
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
1303 E UNIVERSITY	BOX 3	TUCSON	AZ	857190521	742652689	IRC 115	$348,151	CLINICAL RESEARCH STUDY
ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE I
13 CHILDRENS WAY	BOX 3	LITTLE ROCK	AR	72202	710694931	501C(3)	$125,382	CF CARE CENTER
ASCENSION SETON
2975 REGENT BLVD		IRVING	TX	75063	741109643	501C(3)	$35,255	CLINICAL RESEARCH CENTER
ASCENSION SETON
2975 REGENT BLVD		IRVING	TX	75063	741109643	501C(3)	$254,367	CF CARE CENTER
ATLANTIC HEALTH SYSTEM
475 SOUTH STREET		MORRISTON	NJ	07960	521958352	501C(3)	$35,726	CLINICAL RESEARCH CENTER
ATLANTIC HEALTH SYSTEM
475 SOUTH STREET		MORRISTON	NJ	07960	521958352	501C(3)	$122,950	CF CARE CENTER
AUGUSTA UNIVERSITY
1120 FIFTEENTH STREET		AUGUSTA	GA	30912	586002053	IRC 115	$33,955	ADULT CARE
AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH STREET	HSB-132	AUGUSTA	GA	30912	581418202	501C(3)	$17,192	CLINICAL RESEARCH CENTER
AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH STREET		AUGUSTA	GA	30912	581418202	501C(3)	$262,234	CF CARE CENTER
AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC
1120 15TH STREET		AUGUSTA	GA	30912	581418202	501C(3)	$399,307	CLINICAL RESEARCH STUDY
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	330 BROOKLINE AVE	HOUSTON	TX	77030	741613878	501C(3)	$25,877	CLINICAL RESEARCH
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	BCM 200	HOUSTON	TX	77030	741613878	501C(3)	$92,000	CLINICAL RESEARCH CENTER
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	BCM 200	HOUSTON	TX	77030	741613878	501C(3)	$100,551	CLINICAL RESEARCH STUDY
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	BCM 200	HOUSTON	TX	77030	741613878	501C(3)	$452,608	CF CARE CENTER
BAYLOR SCOTT & WHITE HEALTH
2401 S 31ST STREET	BCM 200	TEMPLE	TX	76508	463131350	501C(3)	$84,880	CF CARE CENTER
BAYSTATE MEDICAL CENTER INC
759 CHESNUT STREET		SPRINGFIELD	MA	01199	042790311	501C(3)	$44,335	CF CARE CENTER
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE		BOSTON	MA	02215	042103881	501C(3)	$26,620	CLINICAL RESEARCH
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE		BOSTON	MA	02215	042103881	501C(3)	$104,751	ADULT CARE
BETH ISRAEL MEDICAL CENTER
FIRST AVENUE AT 16TH STREET		NEW YORK	NY	10003	135564934	501C(3)	$151,646	CF CARE CENTER
BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH		BILLINGS	MT	59101	810407289	501C(3)	$16,363	CLINICAL RESEARCH CENTER
BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH	PO BOX 31031	BILLINGS	MT	59101	810407289	501C(3)	$43,000	ADULT CARE
BILLINGS CLINIC FOUNDATION
2917 TENTH AVE NORTH	PO BOX 31031	BILLINGS	MT	59101	810407289	501C(3)	$234,115	CF CARE CENTER
BOARD OF REGENTS NEVADA SYSTEM OF HIGHER EDUCATION
4505 SOUTH MARYLAND PARKWAY	PO BOX 31031	LAS VEGAS	NV	89154	886000024	IRC 115	$54,000	PILOT STUDY
BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEA
PO BOX 26901	RP 865 ROOM 450	OKLAHOMA CITY	OK	731260901	731563627	501C(3)	$31,911	CLINICAL RESEARCH CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA HEA
PO BOX 26901	RP 865 ROOM 450	OKLAHOMA CITY	OK	731260901	731563627	501C(3)	$246,562	CF CARE CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
21 N PARK STREET	RP 865 ROOM 450	MADISON	WI	537151218	396006492	501C(3)	$37,973	CLINICAL RESEARCH CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
21 N PARK STREET	SUITE 6401	MADISON	WI	537151218	396006492	501C(3)	$250,195	CF CARE CENTER
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
21 N PARK STREET	SUITE 6401	MADISON	WI	537151218	396006492	501C(3)	$331,552	QUALITY IMPROVEMENT
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
21 N PARK STREET	SUITE 6401	MADISON	WI	537151218	396006492	501C(3)	$368,003	CLINICAL RESEARCH STUDY
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616	SUITE 6401	SPRINGFIELD	IL	627949616	376005961	501C(3)	$30,855	CF CARE CENTER
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE		PALO ALTO	CA	94304	941156365	501C(3)	$34,315	ADHERENCE
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE		PALO ALTO	CA	94304	941156365	501C(3)	$35,640	ADULT CARE
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE	M/C 201-15	PALO ALTO	CA	94304	941156365	501C(3)	$43,229	TRAINING
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE		PALO ALTO	CA	94304	941156365	501C(3)	$76,379	CLINICAL RESEARCH CENTER
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE		PALO ALTO	CA	94304	941156365	501C(3)	$124,850	RESEARCH STUDY
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE		PALO ALTO	CA	94304	941156365	501C(3)	$144,220	CLINICAL CARE RESEARCH
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE		PALO ALTO	CA	94304	941156365	501C(3)	$154,625	CLINICAL RESEARCH STUDY
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE	ATTN DEBORAH ELAM	PALO ALTO	CA	94304	941156365	501C(3)	$265,000	RESEARCH
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
3145 PORTER DRIVE	ATTN DEBORAH ELAM	PALO ALTO	CA	94304	941156365	501C(3)	$356,789	CF CARE CENTER
BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
506 S WRIGHT STREET	ATTN DEBORAH ELAM	URBANA	IL	61801	376000511	501C(3)	$10,000	COMMUNITY IMPACT
BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
506 S WRIGHT STREET	209 HAB NO MC339	URBANA	IL	61801	376000511	501C(3)	$54,000	PILOT STUDY
BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE ROAD	209 HAB NO MC339	VALHALLA	NY	06488	133956599	LLP	$31,564	CLINICAL RESEARCH CENTER
BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE ROAD	SKYLINE SUITE 1N-C08	VALHALLA	NY	06488	133956599	LLP	$76,501	ADULT CARE
BOSTON CHILDREN'S HEALTH PHYSICIANS LLP
40 SUNSHINE COTTAGE ROAD	SKYLINE SUITE 1N-C08	VALHALLA	NY	06488	133956599	LLP	$223,600	CF CARE CENTER
BOWLING GREEN STATE UNIVERSITY
1851 N RESEARCH DR	SKYLINE SUITE 1N-C08	BOWLING GREEN	OH	43403	346402018	IRC 115	$54,000	PILOT STUDY
BREATHE BRAVELY INC
305 W 29TH ST	CONTROLLERS OFFICE	SIOUX FALLS	AL	57105	475334258	501C(3)	$19,275	COMMUNITY IMPACT
BREATHE FOR BRITT FOUNDATION
PO BOX 187		CENTEREACH	NY	11720	300492819	501C(3)	$10,000	COMMUNITY IMPACT
BRIGHAM AND WOMEN'S HOSPITAL BOSTON
75 FRANCIS STREET		BOSTON	MA	02115	042312909	501C(3)	$53,479	PILOT STUDY
CALIFORNIA INSTITUTE OF TECHNOLOGY
1200 EAST CALIFORNIA BLVD M/C 234		PASADENA	CA	91125	951643307	501C(3)	$143,088	RESEARCH STUDY
CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE
PO BOX 1547		CHARLESTON	WV	253261547	550753754	501C(3)	$78,670	CF CARE CENTER
CARLE FOUNDATION HOSPITAL
611 WEST PARK		URBANA	IL	61801	371119538	501C(3)	$49,065	CF CARE CENTER
CAROLINAS HEALTHCARE FOUNDATION
PO BOX 32861		CHARLOTTE	NC	282322861	566060481	501C(3)	$32,400	ADULT CARE
CAROLINAS HEALTHCARE FOUNDATION
PO BOX 32861		CHARLOTTE	NC	282322861	566060481	501C(3)	$200,916	CF CARE CENTER
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE		CLEVELAND	OH	44106	341018992	501C(3)	$24,369	ADULT CARE
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE		CLEVELAND	OH	44106	341018992	501C(3)	$91,178	CLINICAL RESEARCH CENTER
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	SUITE 120	CLEVELAND	OH	44106	341018992	501C(3)	$324,000	PILOT STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE		CLEVELAND	OH	44106	341018992	501C(3)	$565,467	THERAPEUTICS DISCOVERY RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE		CLEVELAND	OH	44106	341018992	501C(3)	$674,981	RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE		CLEVELAND	OH	44106	341018992	501C(3)	$1,453,663	RESEARCH CENTER
CEDARS-SINAI MEDICAL CENTER
127 S SAN VICENTE BLVD AHSP 9600		LOS ANGELES	CA	90048	951644600	501C(3)	$54,000	PILOT STUDY
CEDARS-SINAI MEDICAL CENTER
127 S SAN VICENTE BLVD AHSP 9600		LOS ANGELES	CA	90048	951644600	501C(3)	$260,000	RESEARCH
CENTRAL FLORIDA PULMONARY GROUP PA
1115 EAST RIDGEWOOD STREET		ORLANDO	FL	32803	591760017	C CORP	$32,626	CLINICAL RESEARCH CENTER
CENTRAL FLORIDA PULMONARY GROUP PA
1115 EAST RIDGEWOOD STREET		ORLANDO	FL	32803	591760017	C CORP	$166,325	CF CARE CENTER
CHATTANOOGA HAMILTON COUNTY HOSPITAL AUTHORITY (DB
975 EAST THIRD STREET		CHATTANOOGA	TN	37403	626000101	501C(3)	$91,780	CF CARE CENTER
CHILDREN'S HEALTH CARE
2525 CHICAGO AVENUE SOUTH	4650 SUNSET BLVD	MINNEAPOLIS	MN	554041844	411754276	501C(3)	$41,034	CLINICAL RESEARCH CENTER
CHILDREN'S HEALTH CARE
2525 CHICAGO AVENUE SOUTH	4650 SUNSET BLVD	MINNEAPOLIS	MN	554041844	411754276	501C(3)	$129,660	CF CARE CENTER
CHILDREN'S HEALTHCARE OF ATLANTA
1575 NORTHEAST EXPRESSWAY		ATLANTA	GA	30329	582367819	501C(3)	$17,171	CLINICAL RESEARCH CENTER
CHILDREN'S HEALTHCARE OF ATLANTA
1575 NORTHEAST EXPRESSWAY		ATLANTA	GA	30329	582367819	501C(3)	$125,165	CF CARE CENTER
CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND
747 52ND STREET		OAKLAND	CA	946091809	940382330	501C(3)	$280,000	THERAPEUTICS DISCOVERY RESEARCH
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501C(3)	$23,311	ADULT CARE
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501C(3)	$65,450	RESEARCH STUDY
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501C(3)	$141,226	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501C(3)	$228,500	TRAINING
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501C(3)	$255,000	RESEARCH
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501C(3)	$345,900	CF CARE CENTER
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVENUE		BOSTON	MA	02115	042774441	501C(3)	$2,566,209	ADHERENCE
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD		LOS ANGELES	CA	900270982	951690977	501C(3)	$69,250	TRAINING
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD		LOS ANGELES	CA	900270982	951690977	501C(3)	$86,400	CLINICAL RESEARCH STUDY
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD		LOS ANGELES	CA	900270982	951690977	501C(3)	$184,432	CF CARE CENTER
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BOULEVARD		LOS ANGELES	CA	900270982	951690977	501C(3)	$273,688	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$32,400	ADHERENCE
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$43,200	QUALITY IMPROVEMENT
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$90,455	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$128,500	TRAINING
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$167,845	CF CARE CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$194,000	RESEARCH STUDY
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$600,000	RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$1,201,070	CLINICAL RESEARCH STUDY
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUE		CINCINNATI	OH	452293039	310833936	501C(3)	$2,927,422	CLINICAL CARE RESEARCH
CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE		AKRON	OH	44308	340714357	501C(3)	$23,813	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE	111 MICHIGAN AVENUE NW	AKRON	OH	44308	340714357	501C(3)	$35,640	ADULT CARE
CHILDREN'S HOSPITAL MEDICAL CENTER OF AKRON
ONE PERKINS SQUARE		AKRON	OH	44308	340714357	501C(3)	$238,770	CF CARE CENTER
CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVENUE		ORANGE	CA	92868	952321786	501C(3)	$13,500	CLINICAL RESEARCH CENTER
CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVENUE		ORANGE	CA	92868	952321786	501C(3)	$53,816	CLINICAL RESEARCH STUDY
CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 WEST LA VETA AVENUE		ORANGE	CA	92868	952321786	501C(3)	$106,627	CF CARE CENTER
CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH S
4401 PENN AVENUE		PITTSBURGH	PA	15224	250402510	501C(3)	$61,750	TRAINING
CHILDREN'S HOSPITAL OF PITTSBURGH OF UPMC HEALTH S
4401 PENN AVENUE	COLD SPRING	PITTSBURGH	PA	15224	250402510	501C(3)	$367,080	CF CARE CENTER
CHILDREN'S LUNG SPECIALISTS
3006 S MARYLAND PKWY		LAS VEGAS	NV	89109	880271963	501C(3)	$181,400	CF CARE CENTER
CHILDREN'S MEDICAL CENTER
ONE CHILDRENS PLAZA	SUITE 315	DAYTON	OH	454041815	310672132	501C(3)	$29,029	CLINICAL RESEARCH CENTER
CHILDREN'S MEDICAL CENTER
ONE CHILDRENS PLAZA		DAYTON	OH	454041815	310672132	501C(3)	$187,140	CF CARE CENTER
CHILDREN'S NATIONAL MEDICAL CENTER
11 MICHIGAN AVENUE NW		WASHINGTON	DC	20010	521640403	501C(3)	$42,412	ADULT CARE
CHILDREN'S RESEARCH INSTITUTE (AT CNMC)
111 MICHIGAN AVENUE NW		WASHINGTON	DC	20010	521654453	501C(3)	$130,000	CLINICAL RESEARCH STUDY
CHILDREN'S RESEARCH INSTITUTE (AT CNMC)
111 MICHIGAN AVENUE NW		WASHINGTON	DC	20010	521654453	501C(3)	$188,635	CF CARE CENTER
CHILDREN'S SPECIALTY GROUP PLLC
811 REDGATE AVENUE		NORFOLK	VA	23507	541871633	LLC	$128,330	CF CARE CENTER
CHRISTIANA CARE HEALTH SERVICES INC
PO BOX 2653	SUITE 420	WILMINGTON	DE	198050653	510103684	501C(3)	$8,394	CF CARE CENTER
CHRISTUS SANTA ROSA HEALTH SYSTEM
333 N SANTA ROSA STREET	SUITE 420	SAN ANTONIO	TX	78207	741109665	501C(3)	$36,430	CF CARE CENTER
COACH-ED INC
526 SPROUL RD		VILLANOVA	PA	19085	453399942	501C(3)	$10,000	COMMUNITY IMPACT
COLORADO STATE UNIVERSITY
555 SOUTH HOWES	BOX 104025	FORT COLLINS	CO	805232002	846000545	IRC 115	$391,850	RESEARCH
CONNECTICUT CHILDREN'S MEDICAL CENTER
202 WASHINGTON STREET	6003 CAMPUS DELIVERY	HARTFORD	CT	061063322	060646755	501C(3)	$70,775	CF CARE CENTER
COOK CHILDREN'S MEDICAL CENTER CF CENTER
801 SEVENTH AVENUE	BOX 104025	FORT WORTH	TX	76104	752051646	501C(3)	$44,670	CLINICAL RESEARCH CENTER
COOK CHILDREN'S MEDICAL CENTER CF CENTER
801 SEVENTH AVENUE	BOX 104025	FORT WORTH	TX	76104	752051646	501C(3)	$308,500	CF CARE CENTER
CREIGHTON UNIVERSITY
2500 CALIFORNIA PLAZA		OMAHA	NE	68178	470376583	501C(3)	$54,000	PILOT STUDY
CYSTIC FIBROSIS LIFESTYLE FOUNDATION
300 71SR ST		MIAMI	FL	33141	571163801	501C(3)	$10,000	COMMUNITY IMPACT
DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRIVE	SUITE 550	LEBANON	NH	03756	222519596	501C(3)	$61,750	TRAINING
DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRIVE		LEBANON	NH	03756	222519596	501C(3)	$90,430	CLINICAL RESEARCH CENTER
DREXEL UNIVERSITY
1505 RACE STREET 10TH FLOOR		PHILADELPHIA	PA	19102	231352630	501C(3)	$115,483	CLINICAL RESEARCH CENTER
DREXEL UNIVERSITY
1505 RACE STREET 10TH FLOOR	NO 420	PHILADELPHIA	PA	19102	231352630	501C(3)	$134,970	CF CARE CENTER
DRISCOLL CHILDREN'S HOSPITAL
3533 SOUTH ALAMEDA	NO 420	CORPUS CHRISTI	TX	78411	742577746	501C(3)	$111,005	CF CARE CENTER
DUKE UNIVERSITY
324 BLACKWELL ST		DURHAM	NC	27701	560532129	501C(3)	$53,262	therapeutics discovery research
DUKE UNIVERSITY
324 BLACKWELL ST	WASHIN BLDG NO 850	DURHAM	NC	27701	560532129	501C(3)	$264,300	CF CARE CENTER
DUKE UNIVERSITY
324 BLACKWELL ST	WASHIN BLDG NO 850	DURHAM	NC	27701	560532129	501C(3)	$1,907,878	CLINICAL CARE RESEARCH
EAST CAROLINA UNIVERSITY
GREENVILLE CENTRE SUITE 2900	WASHIN BLDG NO 850	GREENVILLE	NC	278584353	566000403	IRC 115	$31,410	CF CARE CENTER
EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION I
PO BOX 15010	2200 S CHARLES BLVD	KNOXVILLE	TN	379015010	626002604	501C(3)	$118,265	CF CARE CENTER
EASTERN MAINE MEDICAL CENTER
489 STATE STREET		BANGOR	ME	04402	010211501	501C(3)	$52,260	CF CARE CENTER
EMORY UNIVERSITY
1599 CLIFTON ROAD	PO BOX 404	ATLANTA	GA	30322	580566256	501C(3)	$40,782	CLINICAL RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD	4TH FLOOR	ATLANTA	GA	30322	580566256	501C(3)	$42,680	CLINICAL RESEARCH CENTER
EMORY UNIVERSITY
1599 CLIFTON ROAD	4TH FLOOR	ATLANTA	GA	30322	580566256	501C(3)	$66,675	TRAINING
EMORY UNIVERSITY
1599 CLIFTON ROAD	4TH FLOOR	ATLANTA	GA	30322	580566256	501C(3)	$162,000	PILOT STUDY
EMORY UNIVERSITY
1599 CLIFTON ROAD	4TH FLOOR	ATLANTA	GA	30322	580566256	501C(3)	$196,350	RESEARCH STUDY
EMORY UNIVERSITY
1599 CLIFTON ROAD	4TH FLOOR	ATLANTA	GA	30322	580566256	501C(3)	$266,951	RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD	4TH FLOOR	ATLANTA	GA	30322	580566256	501C(3)	$341,140	CF CARE CENTER
EMORY UNIVERSITY
1599 CLIFTON ROAD	4TH FLOOR	ATLANTA	GA	30322	580566256	501C(3)	$907,774	CLINICAL RESEARCH STUDY
FAIRFAX NEONATAL ASSOCIATES PC DBAPEDIATRIC LUNG
2730-B PROSPERITY AVENUE	4TH FLOOR	FAIRFAX	VA	22031	541110106	C CORP	$70,595	CF CARE CENTER
GEISINGER CLINIC
100 N ACADEMY AVE		DANVILLE	PA	178229800	236291113	501C(3)	$61,750	TRAINING
GEISINGER CLINIC
100 N ACADEMY AVE	MC 49-70	DANVILLE	PA	178229800	236291113	501C(3)	$172,756	CF CARE CENTER
GEORGIA TECH RESEARCH CORPORATION
505 TENTH ST NW	MC 49-70	ATLANTA	GA	30318	580603146	501C(3)	$63,100	RESEARCH STUDY
GEORGIA TECH RESEARCH CORPORATION
505 TENTH ST NW		ATLANTA	GA	30318	580603146	501C(3)	$108,000	PILOT STUDY
GEORGIA TECH RESEARCH CORPORATION
505 TENTH ST NW		ATLANTA	GA	30318	580603146	501C(3)	$240,280	RESEARCH
GOOD SAMARITAN HOSPITAL
1000 MONTAUK HIGHWAY	BOX 3500	WEST ISLIP	NY	11795	111888924	501C(3)	$23,930	CF CARE CENTER
GUNDERSEN LUTHERAN MEDICAL FOUNDATION
1836 SOUTH AVENUE	BOX 3500	LA CROSSE	WI	54601	391249705	501C(3)	$32,955	CF CARE CENTER
HARTFORD HOSPITAL
80 SEYMOUR STREET	BOX 3500	HARTFORD	CT	061025037	060646668	501C(3)	$128,601	CF CARE CENTER
HARVARD MEDICAL SCHOOL
1033 MASSACHUSETTS AVENUE	PO BOX 5037	CAMBRIDGE	MA	02138	042103580	501C(3)	$54,380	therapeutics discovery research
HARVARD MEDICAL SCHOOL
1033 MASSACHUSETTS AVENUE	2ND FLOOR	CAMBRIDGE	MA	02138	042103580	501C(3)	$127,354	RESEARCH STUDY
HEALTH ADVOCACY SUMMIT INC
1962 DOCKSIDE DRIVE	2ND FLOOR	GREENWOOD	IN	46143	830866589	501C(3)	$10,000	COMMUNITY IMPACT
HEALTH ASSESSMENT LAB INC
300 LEDGEWOOD PLACE SUITE 200		ROCKLAND	MD	02370	043383748	501C(3)	$16,553	CLINICAL RESEARCH CENTER
HEALTH RESEARCH INC NEW YORK STATE DEPARTMENT O
150 BROADWAY		MENANDS	NY	122042719	141402155	501C(3)	$107,762	RESEARCH
HEALTHWELL FOUNDATION
PO BOX 4133	SUITE 560	GAITHERSBURG	MD	20885	200413676	501C(3)	$3,400,000	PATIENT ASSISTANCE
HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF
6720A ROCKLEDGE DRIVE		BETHESDA	MD	20817	521317896	501C(3)	$47,500	CF CARE CENTER
HMH HOSPITALS CORPORATION
343 THORNALL STREET	NO 100	EDISON	NJ	08837	221487576	501C(3)	$125,000	RESEARCH
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE	BUILDING 340 SUITE 302	NEW YORK	NY	10029	136171197	501C(3)	$16,762	CLINICAL RESEARCH CENTER
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE		NEW YORK	NY	10029	136171197	501C(3)	$21,660	CF CARE CENTER
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE	2545 SCHOENERSVILLE ROAD	NEW YORK	NY	10029	136171197	501C(3)	$43,200	QUALITY IMPROVEMENT
INFECTIOUS DISEASE RESEARCH INSTITUTE
1616 EASTLAKE AVENUE EAST	COLEMAN PAV A1120N	SEATTLE	WA	98102	911608978	501C(3)	$54,000	PILOT STUDY
INOVA HEALTH CARE SERVICES
8110 GATEHOUSE ROAD	400	FALLS CHURCH	VA	22042	540620889	501C(3)	$40,166	ADULT CARE
INOVA HEALTH CARE SERVICES
8110 GATEHOUSE ROAD	SUITE 400W	FALLS CHURCH	VA	22042	540620889	501C(3)	$86,908	CF CARE CENTER
IOM HEALTH SYSTEM LP
7950 W JEFFERSON	SUITE 400W	FORT WAYNE	IN	46804	351963748	C CORP	$64,160	CF CARE CENTER
IOWA HEALTH FOUNDATION
1415 WOODLAND AVENUE		DES MOINES	IA	50309	421467682	501C(3)	$85,655	CF CARE CENTER
JOE DIMAGGIO CHILDREN'S HOSPITAL FOUNDATION INC
3329 JOHNSON STREET	NO E-200	HOLLYWOOD	FL	33021	650492343	501C(3)	$17,843	CLINICAL RESEARCH CENTER
KAISER FOUNDATION RESEARCH INSTITUTE A DIVIDISION
ONE KAISER PLAZA		OAKLAND	CA	94612	941105628	501C(3)	$438,235	CF CARE CENTER
KALEIDA HEALTH
726 EXCHANGE STREET	15L	BUFFALO	NY	14210	161533232	501C(3)	$160,440	CF CARE CENTER
LANDON PEDIATRIC FOUNDATION
3291 LOMA VISTA RD	SUITE 200	VENTURA	CA	93003	931097216	501C(3)	$42,650	CF CARE CENTER
LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC
16451 HEALTH PARK COMMONS DRIVE	BLDG 340 STE 302	FORT MYERS	FL	33908	650645343	501C(3)	$36,215	CF CARE CENTER
LEHIGH VALLEY HOSPITAL
2100 MACK BLVD	SUITE 200	ALLENTOWN	PA	181035622	231689692	501C(3)	$87,155	CF CARE CENTER
LOMA LINDA UNIVERSITY
11145 ANDERSON STREET	PLUMMER 5	LOMA LINDA	CA	92354	951816009	501C(3)	$71,260	CF CARE CENTER
LONG ISLAND JEWISH MEDICAL CENTER
270-05 76TH AVENUE		NEW HYDE PARK	NY	11040	112241326	501C(3)	$219,285	CF CARE CENTER
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
433 BOLIVAR ST		NEW ORLEANS	LA	70112	726087770	501C(3)	$54,000	PILOT STUDY
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
PO BOX 33932		SHREVEPORT	LA	71130	720702002	501C(3)	$125,065	CF CARE CENTER
LOYOLA UNIVERSITY CHICAGO
820 NORTH MICHIGAN AVENUE		CHICAGO	IL	606112147	361408475	501C(3)	$79,485	CF CARE CENTER
LOYOLA UNIVERSITY CHICAGO
820 NORTH MICHIGAN AVENUE		CHICAGO	IL	606112147	361408475	501C(3)	$145,600	CLINICAL CARE RESEARCH
MAINE MEDICAL CENTER
22 BRAIMHALL STREET		PORTLAND	ME	041023175	010238552	501C(3)	$35,274	CLINICAL RESEARCH CENTER
MAINE MEDICAL CENTER
22 BRAIMHALL STREET		PORTLAND	ME	041023175	010238552	501C(3)	$187,879	CF CARE CENTER
MAINE MEDICAL CENTER
22 BRAIMHALL STREET		PORTLAND	ME	041023175	010238552	501C(3)	$362,019	CLINICAL RESEARCH STUDY
MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 N OAK AVENUE		MARSHFIELD	WI	54449	390452970	501C(3)	$48,310	CF CARE CENTER
MARY BRIDGE CHILDREN'S FOUNDATION
PO BOX 5299	PO BOX 1428	TACOMA	WA	98415	943030039	501C(3)	$64,520	CF CARE CENTER
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVENUE		CAMBRIDGE	MA	021394307	042103594	501C(3)	$63,100	therapeutics discovery research
MAYO CLINIC
200 FIRST STREET SW	SUITE C	ROCHESTER	MN	55905	416011702	501C(3)	$94,965	CF CARE CENTER
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD		JACKSONVILLE	FL	32224	593337028	501C(3)	$41,142	ADULT CARE
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE		CHARLESTON	SC	294258908	576000722	501C(3)	$42,090	ADULT CARE
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	1628 JFK BOULEVARD	CHARLESTON	SC	294258908	576000722	501C(3)	$48,723	CLINICAL CARE RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE		CHARLESTON	SC	294258908	576000722	501C(3)	$63,669	CLINICAL RESEARCH CENTER
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE		CHARLESTON	SC	294258908	576000722	501C(3)	$66,750	TRAINING
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE		CHARLESTON	SC	294258908	576000722	501C(3)	$125,000	RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE		CHARLESTON	SC	294258908	576000722	501C(3)	$198,720	CF CARE CENTER
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE		CHARLESTON	SC	294258908	576000722	501C(3)	$217,147	CLINICAL RESEARCH STUDY
MEMORIAL HEALTH SERVICES
17360 BROOKHURST STREET		FOUNTAIN VALLEY	CA	92708	951643381	501C(3)	$18,498	CLINICAL RESEARCH CENTER
MEMORIAL MEDICAL CENTER FOUNDATION (ON BEHALF OF L
2801 ATLANTIC AVENUE		LONG BEACH	CA	90806	956105984	501C(3)	$160,365	CF CARE CENTER
MH MISSION HOSPITAL LLLP
PO BOX 550		NASHVILLE TN	MD	372020550	832048706	LLP	$18,080	CF CARE CENTER
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD		EAST LANSING	MI	48824	386005984	501C(3)	$58,165	CF CARE CENTER
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD	ROOM 360	EAST LANSING	MI	48824	386005984	501C(3)	$84,000	therapeutics discovery research
MILES FOR CYSTIC FIBROSIS INC
PO BOX 2984	ROOM 360	TUCKER	GA	30085	264020016	501C(3)	$10,000	COMMUNITY IMPACT
MONMOUTH MEDICAL CENTER FOUNDATION
300 SECOND AVENUE		LONG BRANCH	NJ	07740	222456079	501C(3)	$61,946	CLINICAL RESEARCH CENTER
MONMOUTH MEDICAL CENTER FOUNDATION
300 SECOND AVENUE		LONG BRANCH	NJ	07740	222456079	501C(3)	$134,070	CF CARE CENTER
NATIONAL DISEASE RESEARCH INTERCHANGE
1628 JOHN F KENNEDY BLVD	SUITE 102	PHILADELPHIA	PA	19103	232213205	501C(3)	$336,807	RESEARCH
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	8 PENN CENTER 15TH FLOOR	DENVER	CO	80206	742044647	501C(3)	$28,868	ADHERENCE
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	RUBLOFF 7TH FLOOR	DENVER	CO	80206	742044647	501C(3)	$35,640	ADULT CARE
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	RUBLOFF 7TH FLOOR	DENVER	CO	80206	742044647	501C(3)	$54,000	PILOT STUDY
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	RUBLOFF 7TH FLOOR	DENVER	CO	80206	742044647	501C(3)	$79,015	CLINICAL RESEARCH CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	RUBLOFF 7TH FLOOR	DENVER	CO	80206	742044647	501C(3)	$233,385	CF CARE CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	RUBLOFF 7TH FLOOR	DENVER	CO	80206	742044647	501C(3)	$362,652	CLINICAL RESEARCH
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	RUBLOFF 7TH FLOOR	DENVER	CO	80206	742044647	501C(3)	$508,000	RESEARCH
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET		DENVER	CO	80206	742044647	501C(3)	$547,878	RESEARCH CENTER
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET		DENVER	CO	80206	742044647	501C(3)	$720,480	CLINICAL RESEARCH STUDY
NEMOURS CHILDREN'S HEALTH SYSTEM
1600 ROCKLAND ROAD		WILMINGTON	DE	198033607	590634433	501C(3)	$42,526	QUALITY IMPROVEMENT
NEMOURS CHILDREN'S HEALTH SYSTEM
1600 ROCKLAND ROAD	ROCKLAND CENTER 1	WILMINGTON	DE	198033607	590634433	501C(3)	$53,783	CLINICAL RESEARCH STUDY
NEMOURS CHILDREN'S HEALTH SYSTEM
1600 ROCKLAND ROAD	ROCKLAND CENTER 1	WILMINGTON	DE	198033607	590634433	501C(3)	$57,500	CLINICAL RESEARCH CENTER
NEMOURS CHILDREN'S HEALTH SYSTEM
1600 ROCKLAND ROAD	ROCKLAND CENTER 1	WILMINGTON	DE	198033607	590634433	501C(3)	$369,345	CF CARE CENTER
NEW YORK UNIVERSITY
545 FIRST AVENUE	ROCKLAND CENTER 1	NEW YORK	NY	10016	135562308	501C(3)	$43,200	QUALITY IMPROVEMENT
NEW YORK UNIVERSITY
545 FIRST AVENUE	OFFICE OF RESEARCH AFFAIRS H138	NEW YORK	NY	10016	135562308	501C(3)	$63,100	RESEARCH STUDY
NEW YORK UNIVERSITY
545 FIRST AVENUE	OFFICE OF RESEARCH AFFAIRS H138	NEW YORK	NY	10016	135562308	501C(3)	$119,910	CF CARE CENTER
NORTH SUBURBAN PULMONARY AND CRITICAL CARE CONSULT
9201N WAUKEGAN ROAD	OFFICE OF RESEARCH AFFAIRS H138	MORTON GROVE	IL	60053	364393017	C CORP	$42,575	CF CARE CENTER
NORTHWESTERN UNIVERSITY
633 CLARK ST		EVANSTON	IL	60208	362167817	501C(3)	$50,340	CLINICAL RESEARCH CENTER
NORTHWESTERN UNIVERSITY
633 CLARK ST		EVANSTON	IL	60208	362167817	501C(3)	$54,000	PILOT STUDY
NORTHWESTERN UNIVERSITY
633 CLARK ST		EVANSTON	IL	60208	362167817	501C(3)	$55,900	CLINICAL RESEARCH
NORTHWESTERN UNIVERSITY
633 CLARK ST		EVANSTON	IL	60208	362167817	501C(3)	$60,711	ADHERENCE
NORTHWESTERN UNIVERSITY
633 CLARK ST		EVANSTON	IL	60208	362167817	501C(3)	$94,240	CF CARE CENTER
OREGON HEALTH & SCIENCE UNIVERSITY
2525 SW 3RD AVE		PORTLAND	OR	97201	931176109	501C(3)	$20,115	ADHERENCE
OREGON HEALTH & SCIENCE UNIVERSITY
2525 SW 3RD AVE	SUITE 245	PORTLAND	OR	97201	931176109	501C(3)	$49,183	CLINICAL RESEARCH CENTER
OREGON HEALTH & SCIENCE UNIVERSITY
2525 SW 3RD AVE	SUITE 245	PORTLAND	OR	97201	931176109	501C(3)	$50,783	QUALITY IMPROVEMENT
OREGON HEALTH & SCIENCE UNIVERSITY
2525 SW 3RD AVE	SUITE 245	PORTLAND	OR	97201	931176109	501C(3)	$54,000	PILOT STUDY
OREGON HEALTH & SCIENCE UNIVERSITY
2525 SW 3RD AVE	SUITE 245	PORTLAND	OR	97201	931176109	501C(3)	$80,431	ADULT CARE
OREGON HEALTH & SCIENCE UNIVERSITY
2525 SW 3RD AVE	SUITE 245	PORTLAND	OR	97201	931176109	501C(3)	$309,395	CF CARE CENTER
OREGON HEALTH & SCIENCE UNIVERSITY
2525 SW 3RD AVE	SUITE 245	PORTLAND	OR	97201	931176109	501C(3)	$507,873	CLINICAL RESEARCH STUDY
OREGON STATE UNIVERSITY
PO BOX 1086	SUITE 245	CORVALLIS	OR	973391086	611730890	IRC 115	$124,706	RESEARCH
OREGON STATE UNIVERSITY
PO BOX 1086		CORVALLIS	OR	973391086	611730890	IRC 115	$270,838	THERAPEUTICS DISCOVERY RESEARCH
ORLANDO HEALTH FOUNDATION
3160 SOUTHGATE COMMERCE BLVD SUITE		ORLANDO	FL	32806	592244943	501C(3)	$90,075	CF CARE CENTER
OSF SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVE		PEORIA	IL	61637	370662569	501C(3)	$17,250	CLINICAL RESEARCH CENTER
OSF SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVE		PEORIA	IL	61637	370662569	501C(3)	$115,005	CF CARE CENTER
PENNSYLVANIA STATE UNIVERSITY
500 UNIVERSITY DRIVE		HERSHEY	PA	17033	246000376	IRC 115	$22,381	CLINICAL RESEARCH CENTER
PENNSYLVANIA STATE UNIVERSITY
500 UNIVERSITY DRIVE	MAIL CODE H157	HERSHEY	PA	17033	246000376	IRC 115	$187,300	CF CARE CENTER
PHOENIX CHILDREN'S HOSPITAL FOUNDATION
2929 CAMELBACK ROAD	MAIL CODE H157	PHOENIX	AZ	85016	742421549	501C(3)	$287,068	CF CARE CENTER
PROJECT CF SPOUSE
170 DAVIS COURT	SUITE 122	HIRAM	GA	30141	813803502	501C(3)	$10,000	COMMUNITY IMPACT
PROVIDENCE HEALTH & SERVICES WASHINGTON
PO BOX 389672		SEATTLE	WA	981389672	510216586	501C(3)	$34,495	ADULT CARE
PROVIDENCE HEALTH & SERVICES WASHINGTON
PO BOX 389672		SEATTLE	WA	981389672	510216586	501C(3)	$35,926	CLINICAL RESEARCH CENTER
PROVIDENCE HEALTH & SERVICES WASHINGTON
PO BOX 389672		SEATTLE	WA	981389672	510216586	501C(3)	$202,100	CF CARE CENTER
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE
ACCOUNTING OFFICE 120 THEORY		IRVINE	CA	926971050	952226406	501C(3)	$145,600	CLINICAL CARE RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT IRVINE
ACCOUNTING OFFICE 120 THEORY	SUITE 200	IRVINE	CA	926971050	952226406	501C(3)	$574,000	THERAPEUTICS DISCOVERY RESEARCH
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	SUITE 200	AURORA	CO	800452571	846000555	501C(3)	$21,673	ADHERENCE
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$53,999	PILOT STUDY
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$182,155	CLINICAL RESEARCH CENTER
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$222,410	CF CARE CENTER
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$239,800	RESEARCH
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$380,018	CLINICAL RESEARCH STUDY
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$457,000	TRAINING
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$768,483	CLINICAL RESEARCH
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS MS F428 AMC BL	RM W1124	AURORA	CO	800452571	846000555	501C(3)	$1,098,808	CLINICAL CARE RESEARCH
RENOWN HEALTH FOUNDATION
1155 MILL ST	RM W1124	RENO	NV	89502	942972749	501C(3)	$47,990	CF CARE CENTER
RHODE ISLAND HOSPITAL
593 EDDY STREET	O2	PROVIDENCE	RI	02903	050258954	501C(3)	$35,640	ADULT CARE
RHODE ISLAND HOSPITAL
593 EDDY STREET		PROVIDENCE	RI	02903	050258954	501C(3)	$162,240	CF CARE CENTER
ROSALIND FRANKLIN UNIVERSITY OF MEDICINE AND SCIEN
3333 GREEN BAY RD		NORTH CHICAGO	IL	60064	362181973	501C(3)	$136,178	RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAY	CYSTIC FIBROSIS CLINIC	CHICAGO	IL	60612	362174823	501C(3)	$89,675	CF CARE CENTER
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 DAVIDSON ROAD		PISCATAWAY	NJ	08854	462354111	IRC 115	$41,142	ADULT CARE
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 DAVIDSON ROAD		PISCATAWAY	NJ	08854	462354111	IRC 115	$41,466	CLINICAL RESEARCH CENTER
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 DAVIDSON ROAD		PISCATAWAY	NJ	08854	462354111	IRC 115	$108,000	RESEARCH
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 DAVIDSON ROAD		PISCATAWAY	NJ	08854	462354111	IRC 115	$122,749	CF CARE CENTER
SAINT BARNABAS MEDICAL CENTER
94 OLD SHORT HILLS ROAD	SUITE 405	LIVINGSTON	NJ	07039	221494440	501C(3)	$42,860	CF CARE CENTER
SAINT JOSEPH REGIONAL MEDICAL CENTER - SOUTH BEND
5215 HOLY CROSS PARKWAY		MISHAWAKA	IN	465451469	350868157	501C(3)	$95,145	CF CARE CENTER
SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER
703 MAIN STREET		PETERSON	NJ	07503	221487602	501C(3)	$43,950	CF CARE CENTER
SANFORD CLINIC
PO BOX 5039	SUITE 200	SIOUX FALLS	SD	571175039	460447693	501C(3)	$25,134	CLINICAL RESEARCH CENTER
SANFORD CLINIC
PO BOX 5039	RTE 5218	SIOUX FALLS	SD	571175039	460447693	501C(3)	$141,450	CF CARE CENTER
SANFORD MEDICAL CENTER FARGO
PO BOX 2010	RTE 5218	FARGO	ND	58112	450226909	501C(3)	$36,915	CF CARE CENTER
SANTA BARBARA COTTAGE HOSPITAL
400 WEST PUEBLO STREET		SANTA BARBARA	CA	93105	951644629	501C(3)	$64,060	CF CARE CENTER
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371		SEATTLE	WA	981455005	910564748	501C(3)	$43,200	QUALITY IMPROVEMENT
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$59,075	ADHERENCE
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$69,250	TRAINING
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$80,179	ADULT CARE
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$214,834	CF CARE CENTER
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$612,950	CLINICAL RESEARCH STUDY
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$1,303,466	CLINICAL CARE RESEARCH
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$8,852,451	CLINICAL RESEARCH CENTER
SEATTLE CHILDREN'S HOSPITAL
PO BOX 5371	MS RC-507	SEATTLE	WA	981455005	910564748	501C(3)	$9,086,103	CLINICAL RESEARCH
SOCIAL GOOD FUND
12651 SAN PABLO AVE	MS RC-507	RICHMOND	CA	94805	461323531	501C(3)	$10,000	COMMUNITY IMPACT
SOUTH BROWARD HOSPITAL DISTRICT
3501 JOHNSON STREET	5473	HOLLYWOOD	FL	33021	596014973	501C(3)	$142,220	CF CARE CENTER
SOUTHERN RESEARCH INSTITUTE
2000 NINTH AVENUE SOUTH		BIRMINGHAM	AL	35205	630288868	501C(3)	$2,198,738	THERAPEUTICS DISCOVERY RESEARCH
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE		GRAND RAPIDS	MI	49503	382752328	501C(3)	$82,080	ADULT CARE
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN ST NE	MC 004	GRAND RAPIDS	MI	49503	382752328	501C(3)	$342,201	CF CARE CENTER
ST ALEXIUS MEDICAL CENTER
900 EAST BROADWAY AVENUE	MC 004	BISMARCK	ND	585014520	450226711	501C(3)	$66,600	CF CARE CENTER
ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD		ST LOUIS	MO	63103	430654872	501C(3)	$6,633	CLINICAL RESEARCH CENTER
ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD		ST LOUIS	MO	63103	430654872	501C(3)	$106,840	ADULT CARE
ST LOUIS UNIVERSITY
221 NORTH GRAND BLVD		ST LOUIS	MO	63103	430654872	501C(3)	$178,565	CF CARE CENTER
ST LUKE'S REGIONAL MEDICAL CENTER LTD
190 E BANNOCK		BOISE	ID	83712	820161600	501C(3)	$29,670	CLINICAL RESEARCH CENTER
ST LUKE'S REGIONAL MEDICAL CENTER LTD
190 E BANNOCK		BOISE	ID	83712	820161600	501C(3)	$247,360	CF CARE CENTER
ST MARY'S MEDICAL CENTER INC
PO BOX 741191		ATLANTA	GA	303741191	752932830	C CORP	$69,350	CF CARE CENTER
ST VINCENT HOSPITAL OF THE HOSPITAL SISTERS OF TH
835 S VAN BUREN		GREEN BAY	WI	543013256	390817529	501C(3)	$56,755	CF CARE CENTER
STATE OF MISSISSIPPIUNIVERSITY OF MISSISSIPPI MED
2500 NORTH STATE STREET		JACKSON	MS	392164505	646008520	501C(3)	$143,008	CF CARE CENTER
STATE OF NEW JERSEY
DEPARTMENT OF HEALTH		TRENTON	NJ	08625	216000928	U.S. STATE	$43,200	QUALITY IMPROVEMENT
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN
PO BOX 9	310 JESSE HALL	ALBANY	NY	12201	141368361	501C(3)	$33,000	ADHERENCE
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN
PO BOX 9	310 JESSE HALL	ALBANY	NY	12201	141368361	501C(3)	$69,491	CLINICAL RESEARCH CENTER
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN
PO BOX 9		ALBANY	NY	12201	141368361	501C(3)	$82,059	ADULT CARE
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN
PO BOX 9		ALBANY	NY	12201	141368361	501C(3)	$215,419	CLINICAL RESEARCH
SUNY UPSTATE MEDICAL UNIVERSITY COLLEGE OF MEDICIN
PO BOX 9		ALBANY	NY	12201	141368361	501C(3)	$485,005	CF CARE CENTER
SUTTER BAY HOSPITALS
475 BRANNAN STREET		SAN FRANCISCO	CA	94107	940562680	501C(3)	$24,755	CF CARE CENTER
SUTTER MEDICAL CENTER SACRAMENTO
PO BOX 160727	SUITE 220	SACRAMENTO	CA	95833	941156621	501C(3)	$79,085	CF CARE CENTER
TAMPA GENERAL HOSPITAL FOUNDATION INC
PO BOX 1289		TAMPA	FL	33601	237354477	501C(3)	$143,945	CF CARE CENTER
TEMPLE UNIVERSITY OF THE COMMONWEALTH SYSTEM OF HI
1852 N 10TH STREET		PHILADELPHIA	PA	19122	231365971	501C(3)	$134,430	RESEARCH
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH STREET		LUBBOCK	TX	794306209	752668014	501C(3)	$44,795	CF CARE CENTER
THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVENUE	STOP 6209	NEW ORLEANS	LA	70118	720423889	501C(3)	$13,500	CLINICAL RESEARCH CENTER
THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVENUE		NEW ORLEANS	LA	70118	720423889	501C(3)	$37,226	ADULT CARE
THE ADMINISTRATORS OF THE TULANE EDUCATIONAL FUND
6823 ST CHARLES AVENUE		NEW ORLEANS	LA	70118	720423889	501C(3)	$214,855	CF CARE CENTER
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF AR ACTI
4301 WEST MARKHAM ST		LITTLE ROCK	AR	72205	716046242	501C(3)	$96,205	CF CARE CENTER
THE CHARLOTTE-MECKLENBURG HOSPITAL AUTHORITY
PO BOX 601979	812	CHARLOTTE	NC	282601979	560529945	501C(3)	$67,110	CLINICAL RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD		PHILADELPHIA	PA	19104	231352166	501C(3)	$54,375	CLINICAL RESEARCH CENTER
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD		PHILADELPHIA	PA	19104	231352166	501C(3)	$106,245	CLINICAL RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD		PHILADELPHIA	PA	19104	231352166	501C(3)	$133,067	RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD		PHILADELPHIA	PA	19104	231352166	501C(3)	$210,975	CF CARE CENTER
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD		PHILADELPHIA	PA	19104	231352166	501C(3)	$278,750	TRAINING
THE CHILDREN'S MERCY HOSPITAL
2401 GILLHAM ROAD		KANSAS CITY	MO	64108	440605373	501C(3)	$62,552	CLINICAL RESEARCH CENTER
THE CHILDREN'S MERCY HOSPITAL
2401 GILLHAM ROAD		KANSAS CITY	MO	64108	440605373	501C(3)	$162,320	CF CARE CENTER
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE		CLEVELAND	OH	44131	340714585	501C(3)	$13,468	CLINICAL RESEARCH CENTER
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	JJN5	CLEVELAND	OH	44131	340714585	501C(3)	$32,133	THERAPEUTICS DISCOVERY RESEARCH
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	JJN5	CLEVELAND	OH	44131	340714585	501C(3)	$46,440	ADULT CARE
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	JJN5	CLEVELAND	OH	44131	340714585	501C(3)	$76,295	CF CARE CENTER
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	JJN5	CLEVELAND	OH	44131	340714585	501C(3)	$156,032	CLINICAL CARE RESEARCH
THE CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	JJN5	CLEVELAND	OH	44131	340714585	501C(3)	$238,000	RESEARCH
THE CURATORS OF THE UNIVERSITY OF MISSOURI
118 UNIVERSITY HALL	JJN5	COLUMBIA	MO	652118230	436003859	501C(3)	$40,325	ADULT CARE
THE CURATORS OF THE UNIVERSITY OF MISSOURI
118 UNIVERSITY HALL		COLUMBIA	MO	652118230	436003859	501C(3)	$81,000	THERAPEUTICS DISCOVERY RESEARCH
THE CURATORS OF THE UNIVERSITY OF MISSOURI
118 UNIVERSITY HALL		COLUMBIA	MO	652118230	436003859	501C(3)	$169,255	CF CARE CENTER
THE CURATORS OF THE UNIVERSITY OF MISSOURI
118 UNIVERSITY HALL		COLUMBIA	MO	652118230	436003859	501C(3)	$243,000	RESEARCH
THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
972 BRUSH HOLLOW ROAD		WESTBURY	NY	11590	112673595	501C(3)	$43,917	CLINICAL RESEARCH CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET		BOSTON	MA	02114	042697983	501C(3)	$34,720	CLINICAL RESEARCH CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	OFFICE OF SPONSORED PROGRAMS	BOSTON	MA	02114	042697983	501C(3)	$71,376	ADULT CARE
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	OFFICE OF SPONSORED PROGRAMS	BOSTON	MA	02114	042697983	501C(3)	$145,600	CLINICAL CARE RESEARCH
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	OFFICE OF SPONSORED PROGRAMS	BOSTON	MA	02114	042697983	501C(3)	$160,800	THERAPEUTICS DISCOVERY RESEARCH
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	ONE SHIELDS AVENUE	BOSTON	MA	02114	042697983	501C(3)	$175,800	CF CARE CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	ONE SHIELDS AVENUE	BOSTON	MA	02114	042697983	501C(3)	$176,250	TRAINING
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	ONE SHIELDS AVENUE	BOSTON	MA	02114	042697983	501C(3)	$189,298	RESEARCH STUDY
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	10920 WILSHIRE BLVD SUITE 200	BOSTON	MA	02114	042697983	501C(3)	$265,000	RESEARCH
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET	10920 WILSHIRE BLVD SUITE 200	BOSTON	MA	02114	042697983	501C(3)	$439,347	CLINICAL RESEARCH CENTER
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
55 FRUIT STREET		BOSTON	MA	02114	042697983	501C(3)	$441,398	QUALITY IMPROVEMENT
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE		LEBANON	NH	03756	020222139	501C(3)	$35,400	ADULT CARE
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE		LEBANON	NH	03756	020222139	501C(3)	$44,767	CLINICAL RESEARCH CENTER
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE		LEBANON	NH	03756	020222139	501C(3)	$179,185	CF CARE CENTER
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	3333 CALIFORNIA STREET SUITE 315	BALTIMORE	MD	21211	520595110	501C(3)	$27,439	QUALITY IMPROVEMENT
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$32,400	ADHERENCE
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$99,705	RESEARCH CENTER
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$135,000	RESEARCH
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$158,000	PILOT STUDY
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$241,910	CLINICAL RESEARCH CENTER
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$342,038	TRAINING
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$389,342	CLINICAL RESEARCH
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$437,334	CF CARE CENTER
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$630,093	THERAPEUTICS DISCOVERY RESEARCH
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$797,104	CLINICAL CARE RESEARCH
THE JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD	NO N4327B	BALTIMORE	MD	21211	520595110	501C(3)	$943,026	CLINICAL RESEARCH STUDY
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	NO N4327B	MILWAUKEE	WI	532263548	390806261	501C(3)	$43,443	CLINICAL RESEARCH CENTER
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD		MILWAUKEE	WI	532263548	390806261	501C(3)	$68,538	CLINICAL RESEARCH
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD		MILWAUKEE	WI	532263548	390806261	501C(3)	$316,575	CF CARE CENTER
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD		COLUMBUS	OH	432101016	316025986	IRC 115	$54,000	PILOT STUDY
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD		COLUMBUS	OH	432101016	316025986	IRC 115	$131,323	RESEARCH
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI
1001 NORTH EMMET STREET		CHARLOTTESVILLE	VA	22903	546001796	501C(3)	$74,703	ADULT CARE
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI
1001 NORTH EMMET STREET		CHARLOTTESVILLE	VA	22903	546001796	501C(3)	$190,495	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUE		DAVIS	CA	95618	946036494	501C(3)	$40,126	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
ONE SHIELDS AVENUE		DAVIS	CA	95618	946036494	501C(3)	$129,570	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A
10889 WILSHIRE BOULEVARD	DEPT 4656 / REF 413407	LOS ANGELES	CA	90095	956006143	501C(3)	$92,880	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A
10889 WILSHIRE BOULEVARD	SUITE 700 BOX 951406	LOS ANGELES	CA	90095	956006143	501C(3)	$154,326	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A
10889 WILSHIRE BOULEVARD	SUITE 700 BOX 951406	LOS ANGELES	CA	90095	956006143	501C(3)	$162,000	THERAPEUTICS DISCOVERY RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D
9500 GILMAN DRIVE	SUITE 700 BOX 951406	LA JOLLA	CA	920930953	956006144	501C(3)	$30,707	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D
9500 GILMAN DRIVE	DEPT 4656 / REF 413407	LA JOLLA	CA	920930953	956006144	501C(3)	$252,895	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
1855 FOLSOM STREET	DEPT 4656 / REF 413407	SAN FRANCISCO	CA	94143	946036493	501C(3)	$17,558	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
1855 FOLSOM STREET	BOX 0812	SAN FRANCISCO	CA	94143	946036493	501C(3)	$41,142	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
1855 FOLSOM STREET	BOX 0812	SAN FRANCISCO	CA	94143	946036493	501C(3)	$145,600	CLINICAL CARE RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
1855 FOLSOM STREET	BOX 0812	SAN FRANCISCO	CA	94143	946036493	501C(3)	$175,000	RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
1855 FOLSOM STREET	BOX 0812	SAN FRANCISCO	CA	94143	946036493	501C(3)	$238,500	TRAINING
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
1855 FOLSOM STREET	BOX 0812	SAN FRANCISCO	CA	94143	946036493	501C(3)	$291,515	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
1855 FOLSOM STREET	BOX 0812	SAN FRANCISCO	CA	94143	946036493	501C(3)	$763,116	RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER	BOX 0812	ANN ARBOR	MI	481091287	386006309	501C(3)	$17,535	ADHERENCE
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER	3003 SOUTH STATE STREET	ANN ARBOR	MI	481091287	386006309	501C(3)	$45,003	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER	3003 SOUTH STATE STREET	ANN ARBOR	MI	481091287	386006309	501C(3)	$86,472	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER	3003 SOUTH STATE STREET	ANN ARBOR	MI	481091287	386006309	501C(3)	$337,346	CLINICAL RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER	3003 SOUTH STATE STREET	ANN ARBOR	MI	481091287	386006309	501C(3)	$415,631	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER	3003 SOUTH STATE STREET	ANN ARBOR	MI	481091287	386006309	501C(3)	$431,362	THERAPEUTICS DISCOVERY RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
5082 WOLVERINE TOWER	3003 SOUTH STATE STREET	ANN ARBOR	MI	481091287	386006309	501C(3)	$561,096	CLINICAL CARE RESEARCH
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	3003 SOUTH STATE STREET	BAGLEY	MN	56621	416007513	501C(3)	$53,609	CLINICAL RESEARCH
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	213 MAIN AVE N	BAGLEY	MN	56621	416007513	501C(3)	$104,913	CLINICAL RESEARCH CENTER
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	213 MAIN AVE N	BAGLEY	MN	56621	416007513	501C(3)	$305,548	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	213 MAIN AVE N	BAGLEY	MN	56621	416007513	501C(3)	$391,603	CLINICAL CARE RESEARCH
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
COURTHOUSE DEPT 106	213 MAIN AVE N	BAGLEY	MN	56621	416007513	501C(3)	$410,605	CF CARE CENTER
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE	213 MAIN AVE N	COLUMBUS	OH	432052664	316056230	501C(3)	$63,100	CLINICAL RESEARCH CENTER
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE		COLUMBUS	OH	432052664	316056230	501C(3)	$145,990	QUALITY IMPROVEMENT
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE		COLUMBUS	OH	432052664	316056230	501C(3)	$229,570	TRAINING
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE		COLUMBUS	OH	432052664	316056230	501C(3)	$253,594	THERAPEUTICS DISCOVERY RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE		COLUMBUS	OH	432052664	316056230	501C(3)	$420,075	CF CARE CENTER
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE		COLUMBUS	OH	432052664	316056230	501C(3)	$500,000	RESEARCH CENTER
THE ROCKEFELLER UNIVERSITY
1230 YORK AVENUE		NEW YORK	NY	10065	131624158	501C(3)	$279,885	THERAPEUTICS DISCOVERY RESEARCH
THE SALTY LIFE FOUNDATION
150 ANDREWS ROAD		FAYETTEVILLE	NC	28311	831723847	501C(3)	$10,000	COMMUNITY IMPACT
THE SCRIPPS RESEARCH INSTITUTE
10550 N TORREY PINES ROAD	SUITE 5A 13	LA JOLLA	CA	92307	330435954	501C(3)	$63,100	RESEARCH STUDY
THE TOLEDO HOSPITAL
2142 N COVE BLVD		TOLEDO	OH	43606	344428256	501C(3)	$28,545	CLINICAL RESEARCH CENTER
THE TOLEDO HOSPITAL
2142 N COVE BLVD		TOLEDO	OH	43606	344428256	501C(3)	$179,457	CF CARE CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
615 WEST 131ST STREET	OFFICE OF SPONSORED RESEARCH	NEW YORK	NY	100277922	135598093	501C(3)	$37,828	ADULT CARE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
615 WEST 131ST STREET	3RD FLOOR	NEW YORK	NY	100277922	135598093	501C(3)	$53,544	PILOT STUDY
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
615 WEST 131ST STREET	3RD FLOOR	NEW YORK	NY	100277922	135598093	501C(3)	$67,800	RESEARCH STUDY
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
615 WEST 131ST STREET	3RD FLOOR	NEW YORK	NY	100277922	135598093	501C(3)	$91,478	CLINICAL RESEARCH CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
615 WEST 131ST STREET	3RD FLOOR	NEW YORK	NY	100277922	135598093	501C(3)	$145,600	CLINICAL CARE RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
615 WEST 131ST STREET	3RD FLOOR	NEW YORK	NY	100277922	135598093	501C(3)	$329,900	CF CARE CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
615 WEST 131ST STREET	3RD FLOOR	NEW YORK	NY	100277922	135598093	501C(3)	$540,000	RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	3RD FLOOR	BIRMINGHAM	AL	352940111	636005396	501C(3)	$31,801	ADHERENCE
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$63,100	RESEARCH STUDY
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$161,839	PILOT STUDY
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$192,750	TRAINING
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$266,752	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$269,200	RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$300,124	CF CARE CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$371,200	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$414,064	CLINICAL RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$480,382	QUALITY IMPROVEMENT
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$550,000	RESEARCH CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH	AB 1170	BIRMINGHAM	AL	352940111	636005396	501C(3)	$561,532	CLINICAL RESEARCH STUDY
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE	AB 1170	CHICAGO	IL	60637	362177139	501C(3)	$227,105	CF CARE CENTER
THE UNIVERSITY OF MARYLAND COLLEGE PARK
7809 REGENTS DRIVE	7703 FLOYD CURL DRIVE	COLLEGE PARK	MD	207425141	526002033	IRC 115	$54,000	PILOT STUDY
THE UNIVERSITY OF MARYLAND COLLEGE PARK
7809 REGENTS DRIVE	3112 LEE BUILDING	COLLEGE PARK	MD	207425141	526002033	IRC 115	$65,450	RESEARCH STUDY
THE UNIVERSITY OF MARYLAND COLLEGE PARK
7809 REGENTS DRIVE	3112 LEE BUILDING	COLLEGE PARK	MD	207425141	526002033	IRC 115	$135,000	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	3112 LEE BUILDING	CHAPEL HILL	NC	275991350	566001393	501C(3)	$39,679	ADULT CARE
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$101,406	CLINICAL RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$128,500	TRAINING
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$194,000	RESEARCH STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$323,722	PILOT STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$343,621	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$427,043	CF CARE CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$550,000	RESEARCH CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$886,932	CLINICAL RESEARCH STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$1,599,357	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CAMPUS BOX 1350	CHAPEL HILL	NC	275991350	566001393	501C(3)	$2,856,504	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TENNESSEE
63 SOUTH DUNLAP STREET	CAMPUS BOX 1350	MEMPHIS	TN	38163	626001636	IRC 115	$150,460	CF CARE CENTER
THE UNIVERSITY OF TEXAS AT AUSTIN
110 INNER CAMPUS DR	SUITE 300	AUSTIN	TX	78712	746000203	501C(3)	$333,500	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT H
7000 FANNIN STREET	STOP K5300	HOUSTON	TX	77030	741761309	501C(3)	$1,141,588	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT S
7703 FLOYD CURL DRIVE		SAN ANTONIO	TX	782293900	741586031	501C(3)	$152,595	CF CARE CENTER
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD		DALLAS	TX	753909020	756002868	IRC 115	$34,534	ADHERENCE
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$41,142	ADULT CARE
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$68,170	CLINICAL RESEARCH
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$124,334	RESEARCH
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$130,608	TRAINING
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$214,229	THERAPEUTICS DISCOVERY RESEARCH
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$220,609	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$392,132	CLINICAL RESEARCH STUDY
THE UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTE
5323 HARRY HINES BLVD	MC 9029	DALLAS	TX	753909020	756002868	IRC 115	$452,290	CF CARE CENTER
THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C
85 SOUTH PROSPECT STREET	MC 9029	BURLINGTON	VT	05405	030179440	501C(3)	$31,149	CLINICAL RESEARCH CENTER
THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C
85 SOUTH PROSPECT STREET		BURLINGTON	VT	05405	030179440	501C(3)	$39,987	ADULT CARE
THE VANDERBILT UNIVERSITY
2301 VANDERBILT PLACE		NASHVILLE	TN	372406310	620476822	501C(3)	$54,000	PILOT STUDY
THE VANDERBILT UNIVERSITY
2301 VANDERBILT PLACE	PMB 406310	NASHVILLE	TN	372406310	620476822	501C(3)	$63,098	RESEARCH STUDY
TRUSTEES OF BOSTON UNIVERSITY
881 COMMONWEALTH AVENUE	PMB 406310	BOSTON	MA	02215	042103547	501C(3)	$384,000	THERAPEUTICS DISCOVERY RESEARCH
TRUSTEES OF DARTMOUTH COLLEGE
7 LEBANON STREET		HANOVER	NH	03755	020222111	501C(3)	$65,450	RESEARCH STUDY
TRUSTEES OF DARTMOUTH COLLEGE
7 LEBANON STREET	SUITE 302	HANOVER	NH	03755	020222111	501C(3)	$523,932	CLINICAL RESEARCH STUDY
TRUSTEES OF DARTMOUTH COLLEGE
7 LEBANON STREET	SUITE 302	HANOVER	NH	03755	020222111	501C(3)	$540,000	RESEARCH
TRUSTEES OF DARTMOUTH COLLEGE
7 LEBANON STREET	SUITE 302	HANOVER	NH	03755	020222111	501C(3)	$600,000	RESEARCH CENTER
TRUSTEES OF DARTMOUTH COLLEGE
7 LEBANON STREET	SUITE 302	HANOVER	NH	03755	020222111	501C(3)	$4,317,660	QUALITY IMPROVEMENT
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	SUITE 302	INDIANAPOLIS	IN	46202	356001673	501C(3)	$40,151	CLINICAL CARE RESEARCH
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$46,440	ADULT CARE
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$95,490	CLINICAL RESEARCH
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$104,000	PILOT STUDY
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$180,213	CLINICAL RESEARCH CENTER
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$189,683	TRAINING
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$197,113	QUALITY IMPROVEMENT
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$243,859	CLINICAL RESEARCH STUDY
TRUSTEES OF INDIANA UNIVERSITY
980 INDIANA AVENUE	LOCKEFIELD 2232	INDIANAPOLIS	IN	46202	356001673	501C(3)	$428,744	CF CARE CENTER
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	LOCKEFIELD 2232	PHILADELPHIA	PA	191046284	231352685	501C(3)	$34,235	CLINICAL RESEARCH CENTER
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$54,000	CLINICAL RESEARCH STUDY
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$63,100	RESEARCH STUDY
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$86,400	CLINICAL RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$117,276	ADULT CARE
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$145,600	CLINICAL CARE RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$149,078	THERAPEUTICS DISCOVERY RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$243,000	RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	5TH FLOOR FRANKLIN BUILDING	PHILADELPHIA	PA	191046284	231352685	501C(3)	$277,615	CF CARE CENTER
TUFTS MEDICAL CENTER
800 WASHINGTON STREET	5TH FLOOR FRANKLIN BUILDING	BOSTON	MA	02111	043400617	501C(3)	$17,000	CF CARE CENTER
UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION
4646 NE DIVISION STREET	BOX 468	GRESHAM	OR	97030	931036770	501C(3)	$10,000	COMMUNITY IMPACT
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
11100 EUCLID AVENUE		CLEVELAND	OH	44106	341567805	501C(3)	$5,404	CLINICAL RESEARCH CENTER
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
11100 EUCLID AVENUE		CLEVELAND	OH	44106	341567805	501C(3)	$73,834	ADULT CARE
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
11100 EUCLID AVENUE		CLEVELAND	OH	44106	341567805	501C(3)	$232,465	CF CARE CENTER
UNIVERSITY OF CINCINNATI
51 GOODMAN DR		CINCINNATI	OH	452210222	316000989	501C(3)	$6,565	CLINICAL RESEARCH CENTER
UNIVERSITY OF CINCINNATI
51 GOODMAN DR		CINCINNATI	OH	452210222	316000989	501C(3)	$168,180	CF CARE CENTER
UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY
3200 BURNET AVENUE	JOUETT HALL BELKNAP CAMPUS	CINCINNATI	OH	45229	311405915	501C(3)	$22,646	CLINICAL RESEARCH CENTER
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE BUILD	JOUETT HALL BELKNAP CAMPUS	GAINESVILLE	FL	326115500	596002052	IRC 115	$35,640	ADULT CARE
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE BUILD	PO BOX 113201	GAINESVILLE	FL	326115500	596002052	IRC 115	$39,944	CLINICAL RESEARCH CENTER
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE BUILD	PO BOX 113201	GAINESVILLE	FL	326115500	596002052	IRC 115	$54,000	PILOT STUDY
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE BUILD	PO BOX 113201	GAINESVILLE	FL	326115500	596002052	IRC 115	$61,750	TRAINING
UNIVERSITY OF FLORIDA
SUITE 1250 EAST CAMPUS OFFICE BUILD	PO BOX 113201	GAINESVILLE	FL	326115500	596002052	IRC 115	$209,813	CF CARE CENTER
UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC DE
310 EAST CAMPUS ROAD	PO BOX 113201	ATHENS	GA	30602	581353149	501C(3)	$100,517	RESEARCH
UNIVERSITY OF IOWA
105 JESSUP HALL	1601 NW 12TH AVENUE	IOWA CITY	IA	52242	426004813	501C(3)	$33,807	CLINICAL RESEARCH CENTER
UNIVERSITY OF IOWA
105 JESSUP HALL		IOWA CITY	IA	52242	426004813	501C(3)	$53,200	PILOT STUDY
UNIVERSITY OF IOWA
105 JESSUP HALL		IOWA CITY	IA	52242	426004813	501C(3)	$130,000	RESEARCH
UNIVERSITY OF IOWA
105 JESSUP HALL		IOWA CITY	IA	52242	426004813	501C(3)	$171,250	RESEARCH STUDY
UNIVERSITY OF IOWA
105 JESSUP HALL		IOWA CITY	IA	52242	426004813	501C(3)	$200,365	CF CARE CENTER
UNIVERSITY OF IOWA
105 JESSUP HALL	HEALTH SCIENCES AND SERVICES BLDG	IOWA CITY	IA	52242	426004813	501C(3)	$485,342	CLINICAL RESEARCH STUDY
UNIVERSITY OF IOWA
105 JESSUP HALL		IOWA CITY	IA	52242	426004813	501C(3)	$800,000	RESEARCH CENTER
UNIVERSITY OF IOWA
105 JESSUP HALL		IOWA CITY	IA	52242	426004813	501C(3)	$2,419,895	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BLVD		KANSAS CITY	KS	66160	481108830	501C(3)	$50,138	ADHERENCE
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BLVD	MAILSTOP 1039	KANSAS CITY	KS	66160	481108830	501C(3)	$54,000	PILOT STUDY
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BLVD	MAILSTOP 1039	KANSAS CITY	KS	66160	481108830	501C(3)	$63,100	RESEARCH STUDY
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BLVD	MAILSTOP 1039	KANSAS CITY	KS	66160	481108830	501C(3)	$76,440	ADULT CARE
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BLVD	MAILSTOP 1039	KANSAS CITY	KS	66160	481108830	501C(3)	$194,189	CLINICAL RESEARCH CENTER
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BLVD	MAILSTOP 1039	KANSAS CITY	KS	66160	481108830	501C(3)	$225,305	CF CARE CENTER
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALL	MAILSTOP 1039	LEXINGTON	KY	40506	616033693	501C(3)	$34,143	CLINICAL RESEARCH CENTER
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
109 KINKEAD HALL		LEXINGTON	KY	40506	616033693	501C(3)	$223,860	CF CARE CENTER
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET		LOUISVILLE	KY	402021959	611029626	501C(3)	$16,683	CLINICAL RESEARCH CENTER
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET	SUITE 300	LOUISVILLE	KY	402021959	611029626	501C(3)	$53,149	PILOT STUDY
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET	SUITE 300	LOUISVILLE	KY	402021959	611029626	501C(3)	$218,252	CF CARE CENTER
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	SUITE 300	WORCESTER	MA	01655	043167352	IRC 115	$35,120	CLINICAL RESEARCH CENTER
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	SUITE 260	WORCESTER	MA	01655	043167352	IRC 115	$41,100	ADULT CARE
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	SUITE 260	WORCESTER	MA	01655	043167352	IRC 115	$125,985	CF CARE CENTER
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 NORTH LAKE AVENUE	SUITE 501	WORCESTER	MA	01655	043167352	IRC 115	$216,000	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE	17 DAVIS BOULEVARD SUITE 200	CORAL GABLES	FL	331242912	590624458	501C(3)	$35,640	ADULT CARE
UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE		CORAL GABLES	FL	331242912	590624458	501C(3)	$44,025	CLINICAL RESEARCH CENTER
UNIVERSITY OF MIAMI
PO BOX 248106 CONTROLLERS OFFICE		CORAL GABLES	FL	331242912	590624458	501C(3)	$155,744	CF CARE CENTER
UNIVERSITY OF NEBRASKA MEDICAL CENTER
987835 NEBRASKA MEDICAL CENTER		OMAHA	NE	681987835	470049123	501C(3)	$33,202	CLINICAL RESEARCH CENTER
UNIVERSITY OF NEBRASKA MEDICAL CENTER
987835 NEBRASKA MEDICAL CENTER	SUITE E-110	OMAHA	NE	681987835	470049123	501C(3)	$56,752	CLINICAL RESEARCH STUDY
UNIVERSITY OF NEBRASKA MEDICAL CENTER
987835 NEBRASKA MEDICAL CENTER		OMAHA	NE	681987835	470049123	501C(3)	$352,765	CF CARE CENTER
UNIVERSITY OF NEW MEXICO
1 UNIVERSITY OF NEW MEXICO		ALBUQUERQUE	NM	87131	856000642	IRC 115	$107,092	CF CARE CENTER
UNIVERSITY OF NORTH CAROLINA AT CHARLOTTE
9201 UNIVERSITY CITY BOULEVARD	MSC09 5225	CHARLOTTE	NC	28223	560791228	501C(3)	$133,606	RESEARCH
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET		PITTSBURGH	PA	15260	250965591	501C(3)	$28,133	QUALITY IMPROVEMENT
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	SUITE 201	PITTSBURGH	PA	15260	250965591	501C(3)	$40,705	CLINICAL RESEARCH CENTER
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	SUITE 201	PITTSBURGH	PA	15260	250965591	501C(3)	$61,750	TRAINING
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	SUITE 201	PITTSBURGH	PA	15260	250965591	501C(3)	$141,300	RESEARCH STUDY
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	SUITE 201	PITTSBURGH	PA	15260	250965591	501C(3)	$199,289	CLINICAL CARE RESEARCH
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	SUITE 201	PITTSBURGH	PA	15260	250965591	501C(3)	$550,000	RESEARCH CENTER
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	SUITE 201	PITTSBURGH	PA	15260	250965591	501C(3)	$612,223	CLINICAL RESEARCH STUDY
UNIVERSITY OF PITTSBURGH
116 ATWOOD STREET	SUITE 201	PITTSBURGH	PA	15260	250965591	501C(3)	$672,295	RESEARCH
UNIVERSITY OF PITTSBURGH PHYSICIANS
CLINICAL TRAIL RECEIPTS MAIL STOP	SUITE 201	PITTSBURGH	PA	152192739	232919472	501C(3)	$46,440	ADULT CARE
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	58TH FL	ROCHESTER	NY	14627	160743209	501C(3)	$24,572	CLINICAL RESEARCH CENTER
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING		ROCHESTER	NY	14627	160743209	501C(3)	$39,805	ADULT CARE
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING		ROCHESTER	NY	14627	160743209	501C(3)	$135,000	RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING		ROCHESTER	NY	14627	160743209	501C(3)	$148,709	CF CARE CENTER
UNIVERSITY OF SOUTH CAROLINA
1600 HAMPTON STREET		COLUMBIA	SC	29208	576001153	IRC 115	$78,030	CF CARE CENTER
UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVENUE	6TH FLOOR	TAMPA	FL	336205800	593102112	IRC 115	$47,755	CF CARE CENTER
UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVENUE	ALN 147	TAMPA	FL	336205800	593102112	IRC 115	$124,999	RESEARCH
UNIVERSITY OF SOUTHERN CALIFORNIA
UNIVERSITY GARDENS	ALN 147	LOS ANGELES	CA	900898003	951642394	501C(3)	$14,038	CLINICAL RESEARCH CENTER
UNIVERSITY OF SOUTHERN CALIFORNIA
UNIVERSITY GARDENS	SUITE 205	LOS ANGELES	CA	900898003	951642394	501C(3)	$181,955	CF CARE CENTER
UNIVERSITY OF SOUTHERN CALIFORNIA
UNIVERSITY GARDENS	SUITE 205	LOS ANGELES	CA	900898003	951642394	501C(3)	$467,663	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF TENNESSE MEDICAL CENTER
1924 ALCOA HIGHWAY	SUITE 205	KNOXVILLE	TN	37920	311626179	501C(3)	$123,230	CF CARE CENTER
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HIGHWAY 271	SUITE D3300 MCN	TYLER	TX	757083154	756001354	501C(3)	$19,940	CLINICAL RESEARCH CENTER
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT TYLER
11937 US HIGHWAY 271		TYLER	TX	757083154	756001354	501C(3)	$61,775	CF CARE CENTER
UNIVERSITY OF TEXAS MD ANDERSON CANCER CENTER
1515 HOLCOMBE BOULEVARD		HOUSTON	TX	770307009	746001118	IRC 115	$229,400	RESEARCH
UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE		SALT LAKE CITY	UT	841120922	876000525	501C(3)	$53,322	CLINICAL RESEARCH CENTER
UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE	ROOM 411	SALT LAKE CITY	UT	841120922	876000525	501C(3)	$86,400	CLINICAL RESEARCH STUDY
UNIVERSITY OF UTAH
201 S PRESIDENTS CIRCLE	ROOM 411	SALT LAKE CITY	UT	841120922	876000525	501C(3)	$450,688	CF CARE CENTER
UNIVERSITY OF VERMONT MEDICAL CENTER INC
111 COLCHESTER AVENUE	ROOM 411	BURLINGTON	VT	05401	030219309	501C(3)	$20,926	ADHERENCE
UNIVERSITY OF VERMONT MEDICAL CENTER INC
111 COLCHESTER AVENUE		BURLINGTON	VT	05401	030219309	501C(3)	$138,745	CF CARE CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$62,715	CLINICAL RESEARCH CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$82,080	ADULT CARE
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$117,971	CF CARE CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$162,000	PILOT STUDY
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$163,899	CLINICAL CARE RESEARCH
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$418,539	RESEARCH STUDY
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$476,490	RESEARCH
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$550,000	RESEARCH CENTER
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$668,360	CLINICAL RESEARCH STUDY
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$766,496	THERAPEUTICS DISCOVERY RESEARCH
UNIVERSITY OF WASHINGTON
4300 ROOSEVELT WAY NE	BOX 354965	SEATTLE	WA	98105	916001537	IRC 115	$896,992	CLINICAL RESEARCH
UNIVERSITY PEDIATRICIANS
3901 BEAUBIEN	BOX 354965	DETROIT	MI	48201	383336414	501C(3)	$60,337	CF CARE CENTER
UNIVERSITY PSYCHIATRIC PRACTICE INC
462 GRIDER STREET	RESEARCH AND SPONSORED PROGRAMS	BUFFALO	NY	14215	161426208	501C(3)	$25,383	CF CARE CENTER
UPSTATE AFFILIATE ORGANIZATION
300 E MCBEE AVE		GREENVILLE	SC	29601	811723202	501C(3)	$77,165	CF CARE CENTER
UTAH STATE UNIVERSITY
2400 OLD MAIN HILL	SUITE 500	LOGAN	UT	843222400	876000528	501C(3)	$132,547	RESEARCH
VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACE		MADERA	CA	93636	941294954	501C(3)	$67,500	CLINICAL RESEARCH CENTER
VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACE	MS PC 05	MADERA	CA	93636	941294954	501C(3)	$216,314	CF CARE CENTER
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH	MS PC 05	NASHVILLE	TN	37232	352528741	501C(3)	$5,663	CLINICAL RESEARCH CENTER
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH	D-3300 MEDICAL CENTER NORTH	NASHVILLE	TN	37232	352528741	501C(3)	$130,000	RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVE SOUTH	D-3300 MEDICAL CENTER NORTH	NASHVILLE	TN	37232	352528741	501C(3)	$352,247	CF CARE CENTER
VARIETY CHILDREN'S HOSPITAL
3100 SW 62ND AVENUE	D-3300 MEDICAL CENTER NORTH	MIAMI	FL	331553009	590638499	501C(3)	$12,000	QUALITY IMPROVEMENT
VARIETY CHILDREN'S HOSPITAL
3100 SW 62ND AVENUE		MIAMI	FL	331553009	590638499	501C(3)	$42,140	CF CARE CENTER
VHS CHILDREN'S HOSPITAL OF MICHIGAN INC
8663 WOODWARD AVE		DETROIT	MI	48201	272845064	C CORP	$87,980	CF CARE CENTER
VIA CHRISTI HOSPITAL WICHITA INC
929 N SAINT FRANCIS	STE 200	WICHITA	KS	67214	481172106	501C(3)	$118,820	CF CARE CENTER
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$32,940	ADHERENCE
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$33,473	CLINICAL RESEARCH CENTER
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$35,640	ADULT CARE
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$81,000	QUALITY IMPROVEMENT
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$135,000	RESEARCH
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$152,768	CLINICAL RESEARCH STUDY
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$169,250	TRAINING
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 843035		RICHMOND	VA	232843035	546001758	IRC 115	$281,496	CF CARE CENTER
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD		WINSTONSALEM	NC	27157	223849199	501C(3)	$18,360	CLINICAL RESEARCH CENTER
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD		WINSTONSALEM	NC	27157	223849199	501C(3)	$190,875	CF CARE CENTER
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE		ST LOUIS	MO	631121408	430653611	501C(3)	$32,400	ADHERENCE
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	CB1034	ST LOUIS	MO	631121408	430653611	501C(3)	$49,958	CLINICAL RESEARCH CENTER
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	CB1034	ST LOUIS	MO	631121408	430653611	501C(3)	$199,600	CLINICAL RESEARCH STUDY
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	CB1034	ST LOUIS	MO	631121408	430653611	501C(3)	$233,000	RESEARCH
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	CB1034	ST LOUIS	MO	631121408	430653611	501C(3)	$356,745	CF CARE CENTER
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	CB1034	ST LOUIS	MO	631121408	430653611	501C(3)	$525,539	CLINICAL CARE RESEARCH
WAYNE STATE UNIVERSITY
5057 WOODWARD AVENUE	CB1034	DETROIT	MI	48202	386028429	501C(3)	$12,750	ADULT CARE
WAYNE STATE UNIVERSITY
5057 WOODWARD AVENUE	13TH FLOOR	DETROIT	MI	48202	386028429	501C(3)	$39,534	CLINICAL RESEARCH CENTER
WAYNE STATE UNIVERSITY
5057 WOODWARD AVENUE	13TH FLOOR	DETROIT	MI	48202	386028429	501C(3)	$71,360	CF CARE CENTER
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	13TH FLOOR	MORGANTOWN	WV	26506	550665758	501C(3)	$19,743	CLINICAL RESEARCH CENTER
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	NO 408	MORGANTOWN	WV	26506	550665758	501C(3)	$34,205	ADHERENCE
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	NO 408	MORGANTOWN	WV	26506	550665758	501C(3)	$40,945	ADULT CARE
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	NO 408	MORGANTOWN	WV	26506	550665758	501C(3)	$107,847	RESEARCH
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	NO 408	MORGANTOWN	WV	26506	550665758	501C(3)	$287,078	CF CARE CENTER
WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE
1000 OAKLAND DRIVE	NO 408	KALAMAZOO	MI	49008	454135256	501C(3)	$47,132	CF CARE CENTER
WILLIAM MARSH RICE UNIVERSITY
6100 MAIN STREET		HOUSTON	TX	77005	741109620	501C(3)	$363,030	THERAPEUTICS DISCOVERY RESEARCH
YALE UNIVERSITY
47 COLLEGE STREET	SUITE 203	NEW HAVEN	CT	065103209	060646973	501C(3)	$56,841	CLINICAL RESEARCH STUDY
YALE UNIVERSITY
47 COLLEGE STREET	SUITE 203	NEW HAVEN	CT	065103209	060646973	501C(3)	$137,960	CF CARE CENTER
YALE UNIVERSITY
47 COLLEGE STREET	SUITE 203	NEW HAVEN	CT	065103209	060646973	501C(3)	$142,097	CLINICAL RESEARCH CENTER
YALE UNIVERSITY
47 COLLEGE STREET	SUITE 203	NEW HAVEN	CT	065103209	060646973	501C(3)	$390,941	RESEARCH
YALE UNIVERSITY
47 COLLEGE STREET	SUITE 203	NEW HAVEN	CT	065103209	060646973	501C(3)	$810,000	THERAPEUTICS DISCOVERY RESEARCH
YALE UNIVERSITY
47 COLLEGE STREET	SUITE 203	NEW HAVEN	CT	065103209	060646973	501C(3)	$65,450	RESEARCH STUDY

Field	Value	IRS element (for citing)
Total501c3 Org	231	Total501c3OrgCnt
Total Other Org	9	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Cash GrantCashGrantAmt
FELLOWSHIPS	37	$166,762
COMMUNITY IMPACT	4	$37,500

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

SCHEDULE I, PART I, LINE 2

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY.

SCHEDULE I, PART III

SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS.

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (true)	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
PRESTON CAMPBELL MD
PRESIDENT & CEO	$699,283	$0	$468,016	$0	$128,739	$0	$134,964	$0	$25,766	$0	$1,456,768	$0	$119,446	$0
JACK MAHLER MD
CHIEF INVESTMENT OFFICER	$585,579	$0	$300,000	$0	$244,209	$0	$428,284	$0	$25,766	$0	$1,583,838	$0	$200,000	$0
MARC S GINSKY
EXECUTIVE VP, COO & SECRETARY	$506,350	$0	$267,795	$0	$24,552	$0	$159,977	$0	$36,313	$0	$994,987	$0	$101,309	$0
VERA H TWIGG
EXECUTIVE VP & CFO	$399,129	$0	$198,363	$0	$19,000	$0	$84,724	$0	$31,939	$0	$733,155	$0	$43,080	$0
C RICHARD MATTINGLY
FORMER OFFICER	$0	$0	$0	$0	$101,212	$0	$0	$0	$0	$0	$101,212	$0	$43,100	$0
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIRS	$448,893	$0	$112,497	$0	$9,144	$0	$44,951	$0	$0	$0	$615,485	$0	$0	$0
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIRS	$422,032	$0	$124,020	$0	$7,524	$0	$73,296	$0	$35,413	$0	$662,285	$0	$16,023	$0
MICHAEL P BOYLE MD
SR.VP,THERAPEUTICS DEVELOPMENT	$428,498	$0	$139,226	$0	$4,902	$0	$76,239	$0	$34,127	$0	$682,992	$0	$17,052	$0
EARL LEE
MANAGING DIRECTOR, INVESTMENTS	$407,004	$0	$387,500	$0	$1,140	$0	$28,284	$0	$3,276	$0	$827,204	$0	$0	$0
ERIC KOEHRSEN
MANAGING DIRECTOR, INVESTMENTS	$335,246	$0	$388,000	$0	$1,026	$0	$145,284	$0	$35,927	$0	$905,483	$0	$0	$0
DRUCY S BOROWITZ MD
SENIOR VP, COMMUNITY AFFAIRS	$427,484	$0	$105,724	$0	$9,144	$0	$28,284	$0	$0	$0	$570,636	$0	$0	$0
CHRIS GEGELYS
SENIOR VP, CHIEF LEGAL OFFICER	$380,463	$0	$125,609	$0	$2,622	$0	$41,610	$0	$35,117	$0	$585,421	$0	$0	$0
ANTHONY DURMOWICZ MD
VP, CLINICAL DEVELOPMENT	$416,733	$0	$94,867	$0	$7,524	$0	$42,429	$0	$2,700	$0	$564,253	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN:	CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
PART I, LINE 7	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
PART II	(A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $699,283; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $208,570, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $119,446, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (9) $140,000; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $9,144, AUTOMOBILE ALLOWANCE - $7,200, OTHER BENEFITS - $12,950, VESTED SERP ACCOUNT (8) - $99,445; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $106,680; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,675, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,441; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $119,446. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $506,350; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $134,486, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $101,309, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (9) $32,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,902, SECTION 457(B)PLAN (5) - $19,000, OTHER BENEFITS - $650; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $99,285, SERP (4) - $32,408; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $25,685, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,700, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,928; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $101,309. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $399,129; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $85,283, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $43,080, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (9) $70,000; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $19,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $43,606, SERP (4) - $12,834; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $22,363 EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,700, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $6,876; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $43,080. CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I) BASE COMPENSATION: BASE SALARY - $585,579; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (11) - $300,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524, VESTED SERP ACCOUNT (10) - 236,685; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $28,284, SERP (4) - $100,000, DEFERRED ANNUAL INCENTIVE (11) $300,000; (D)NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,675, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,650, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,441; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $200,000. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $101,212; (F)COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $43,100. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2019 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE TRANSFERRED TO ANOTHER 457(B)PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($19,000 FOR 2019). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS OR LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C)ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2019 (I.E., WITH RESPECT TO THE 2017-2019, 2018-2020 AND THE 2019-2021 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/19, 12/31/20 AND 12/31/21 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2017-2019, 2018-2020 AND THE 2019-2021 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/18 WAS PAID IN 2019, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2018, 2017 AND 2016 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS).
PART II, CONTINUED	(7) THIS PAYMENT IS A DISTRIBUTION FROM THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, BECAUSE CONTRIBUTIONS TO THIS PLAN ARE FULLY VESTED WHEN MADE, CONTRIBUTIONS TO THIS PLAN WERE PREVIOUSLY REPORTED IN THE YEARS CONTRIBUTED, IN COLUMN B(III) AS "OTHER REPORTABLE COMPENSATION". THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT IS A 2019 SERP CONTRIBUTION THAT ALSO BECAME VESTED AND TAXABLE IN 2019 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE. (9) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE AND PAYMENT OF THE AWARD, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT, UNLESS THE EMPLOYEE IS AN OFFICER AND HIS/HER TERMINATION IS DUE TO RETIREMENT OR DISABILITY. THE PLAN TERMINATED ON DECEMBER 31, 2019. (10) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2019 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH THE INDIVIDUAL RECEIVED CONTRIBUTIONS FROM 2016-2017. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B (III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (11) A. THE INVESTMENT DEPARTMENT INCENTIVE AND RETENTION PLAN PROVIDES AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. B. UNDER THE PLAN, FIFTY PERCENT OF THE ANNUAL AWARD EARNED BY THE PARTICIPANT IS DEFERRED AND SUBJECT TO A SUBSTANTIAL RISK OF FORFEITURE. THE DEFERRED AWARD BECOMES VESTED AND PAID TWO YEARS AND A DAY AFTER IT IS DETERMINED THE AWARD HAS BEEN EARNED. THE DEFERRED AWARD IS FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT OR IS TERMINATED FOR CAUSE PRIOR TO ATTAINING THE VESTING DATE. DEFERRED INTERESTS ARE SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, THE PARTICIPANT WOULD BECOME A GENERAL UNSECURED CREDITOR OF CFF. C. THE PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. D. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE PLAN AT ANY TIME.

Schedule M IRS990ScheduleM

Field	Value	IRS element (for citing)
Works Of Art		WorksOfArtGrp
Art Historical Treasures		ArtHistoricalTreasuresGrp
Art Fractional Interest		ArtFractionalInterestGrp
Books And Publications		BooksAndPublicationsGrp
Clothing And Household Goods		ClothingAndHouseholdGoodsGrp

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	71	ContributionCnt
Noncash Contributions Rpt F990	$29,999	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Boats And Planes		BoatsAndPlanesGrp
Intellectual Property		IntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	139	ContributionCnt
Noncash Contributions Rpt F990	$1,168,733	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Securities Closely Held Stock		SecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust Intrsts		SecurPrtnrshpTrustIntrstsGrp
Securities Miscellaneous		SecuritiesMiscellaneousGrp
Qualified Contrib Hist Struct		QualifiedContribHistStructGrp
Qualified Contrib Other		QualifiedContribOtherGrp
Real Estate Residential		RealEstateResidentialGrp
Real Estate Commercial		RealEstateCommercialGrp
Real Estate Other		RealEstateOtherGrp
Collectibles		CollectiblesGrp
Food Inventory		FoodInventoryGrp
Drugs And Medical Supplies		DrugsAndMedicalSuppliesGrp
Taxidermy		TaxidermyGrp
Historical Artifacts		HistoricalArtifactsGrp
Scientific Specimens		ScientificSpecimensGrp
Archaeological Artifacts		ArchaeologicalArtifactsGrp

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	TANGIBLE AUCTION ITEMS	Desc
Contribution	23495	ContributionCnt
Noncash Contributions Rpt F990	$9,719,508	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	false	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (true)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (true)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	THIRD PARTY SELLER	FormAndLineReferenceDesc
Explanation	Schedule M, Part I, Line 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY NON-PROFIT ORGANIZATION TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
CHAPTERS, AFFILIATES, AND BRANCHES	PART VI, SECTION B, LINE 10B CYSTIC FIBROSIS FOUNDATION HAS NUMEROUS OFFICES LOCATED ACROSS THE UNITED STATES WHICH ADHERE TO THE POLICIES AND PROCEDURES OF THE ORGANIZATION. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 11B THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. POTENTIAL CONFLICTS ARE REPORTED TO THE GOVERNANCE COMMITTEE OR THE BOARD OF TRUSTEES. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2019 AND HAD NO UNRESOLVED CONFLICTS OF INTEREST.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE TALENT (WHICH INCLUDES HAVING MEDICAL AND/OR INVESTMENT BACKGROUNDS TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD LONG, FULFILING LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. 4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVE'S HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVE'S ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. 5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEE'S COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO CHIEF INVESTMENT OFFICER SENIOR VP, THERAPEUTICS DEVELOPMENT SENIOR VP, RESEARCH AFFAIRS SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2018 WITH RESPECT TO COMPENSATION TO BE PAID IN 2019 TO ALL THE OFFICERS/KEY EMPLOYEES NAMED ABOVE.
PART VI, SECTION C, LINE 19	PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2019. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG, DURING 2019.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION THERAPEUTICS	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	912059167	EIN
Primary Activities	RESEARCH	PrimaryActivitiesTxt
Legal Domicile State	MD	LegalDomicileStateCd
Exempt Code Section	501(C)(3)	ExemptCodeSectionTxt
Public Charity Status	12A	PublicCharityStatusTxt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Controlled Organization	Yes (true)	ControlledOrganizationInd

Id Related Org Txbl Partnership IdRelatedOrgTxblPartnershipGrp

Related Organization Name RelatedOrganizationName

Field	Value	IRS element (for citing)
Business Name Line1	NANTAHALA CAPITAL PARTNERS QR LP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	130 MAIN ST	AddressLine1Txt
City	NEW CANAAN	CityNm
State Abbreviation	CT	StateAbbreviationCd
ZIP	06840	ZIPCd

Field	Value	IRS element (for citing)
EIN	833136898	EIN
Primary Activities	INVESTMENTS	PrimaryActivitiesTxt
Legal Domicile State	CT	LegalDomicileStateCd

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	NA	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Predominant Income Type	EXCLUDED	PredominantIncomeTypeTxt
Share Of Total Income	$4,043,243	ShareOfTotalIncomeAmt
Share Of EOY Assets	$167,895,050	ShareOfEOYAssetsAmt
Disproportionate Allocations	false	DisproportionateAllocationsInd
UBI Code V	$0	UBICodeVAmt
General Or Managing Partner	false	GeneralOrManagingPartnerInd
Ownership	0.98950	OwnershipPct

Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp (5 entries)

Address Line1ForeignAddress/AddressLine1Txt	CityForeignAddress/CityNm	Province Or StateForeignAddress/ProvinceOrStateNm	CountryForeignAddress/CountryCd	Foreign PostalForeignAddress/ForeignPostalCd	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile Foreign CountryLegalDomicileForeignCountryCd	Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt	Entity TypeEntityTypeTxt	Share Of Total IncomeShareOfTotalIncomeAmt	Share Of EOY AssetsShareOfEOYAssetsAmt	OwnershipOwnershipPct	Controlled OrganizationControlledOrganizationInd	Legal Domicile StateLegalDomicileStateCd
TSSP ROTATIONAL CREDIT FEEDER LP
UGLAND HOUSE SOUTH CHURCH ST	GEORGE TOWN	GRAND CAYMAN	CJ	KY1-1104	981468724	INVESTMENTS	CJ	NA	C CORP	$3,628,474	$61,397,408	1.00000	Yes (true)
CHARITABLE REMAINDER TRUST (2)
						FIDUCIARY		NA	TRUST					CA
CHARITABLE REMAINDER TRUST
						FIDUCIARY		NA	TRUST					TN
CHARITABLE REMAINDER TRUST
						FIDUCIARY		NA	TRUST					NM
PERPETUAL TRUST
						FIDUCIARY		NA	TRUST					MA

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (true)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	false	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	false	DivRelatedOrganizationInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	false	SharingOfFacilitiesInd
Paid Employees Sharing	false	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (2 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
NANTAHALA CAPITAL PARTNERS QR LP
B	$75,000,000	CASH
TSSP ROTATIONAL CREDIT FEEDER LP
B	$60,000,000	CASH