CURE DUCHENNE: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- CURE DUCHENNE (EIN 20-0299958)
- Tax period
- 2024-01-01 to 2024-12-31
- Filed
- 2025-08-27
- IRS object ID
- 202542399349301719
- Schema version
- 2024v5.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule G
- Schedule I
- Schedule J
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-08-27T17:14:38-05:00 | ReturnTs |
| Tax Period End | 2024-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 954303700 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JOHN S BALISY & COMPANY | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 24000 ALICIA PARKWAY 17 STE 466 | AddressLine1Txt |
| City | MISSION VIEJO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92691 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 200299958 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE DUCHENNE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CURE | BusinessNameControlTxt |
| Phone | 9498722552 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 BAYVIEW CIRCLE 5600 | AddressLine1Txt |
| City | NEWPORT BEACH | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92660 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | DEBRA MILLER | PersonNm |
| Person Title | CEO | PersonTitleTxt |
| Phone | 9498722552 | PhoneNum |
| Signature | 2025-08-25 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JOHN S BALISY COMPANY | PreparerPersonNm |
| PTIN | P01385861 | PTIN |
| Phone | 9495407519 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | DEBRA MILLER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 BAYVIEW 5600 | AddressLine1Txt |
| City | NEWPORT BEACH | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92660 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $13,991,364 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREDUCHENNE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2003 | FormationYr |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Activity Or Mission | COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. AS WELL AS, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 13 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 13 | VotingMembersIndependentCnt |
| Total Employee | 30 | TotalEmployeeCnt |
| Total Volunteers | 0 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $4,489,779 | PYContributionsGrantsAmt |
| CY Contributions Grants | $3,505,601 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $549,583 | PYInvestmentIncomeAmt |
| CY Investment Income | -$1,944,106 | CYInvestmentIncomeAmt |
| PY Other Revenue | $2,318,576 | PYOtherRevenueAmt |
| CY Other Revenue | $2,380,390 | CYOtherRevenueAmt |
| PY Total Revenue | $7,357,938 | PYTotalRevenueAmt |
| CY Total Revenue | $3,941,885 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $495,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $660,000 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $4,682,911 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $4,567,404 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $886,800 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $5,069,243 | PYOtherExpensesAmt |
| CY Other Expenses | $3,940,213 | CYOtherExpensesAmt |
| PY Total Expenses | $10,247,154 | PYTotalExpensesAmt |
| CY Total Expenses | $9,167,617 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$2,889,216 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$5,225,732 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $27,086,351 | TotalAssetsBOYAmt |
| Total Assets EOY | $30,906,923 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $256,435 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $247,864 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $26,829,916 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $30,659,059 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS; COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $7,366,415 | ExpenseAmt |
| Grant | $660,000 | GrantAmt |
| Desc | CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. SINCE CURE DUCHENNE WAS ORGANIZED, THE ORGANZIATIO HAS BEEN VERY INSTRUMENTAL IN HAVING SEVERAL DRUGS APPROVED BY THE FDA FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY. | Desc |
| Total Program Service Expenses | $7,366,415 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | Yes (1) | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | 0 | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | Yes (1) | DisregardedEntityInd |
| Related Entity | Yes (1) | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 50 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 30 | EmployeeCnt |
| Employment Tax Returns Filed | 0 | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 13 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 13 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (1) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | 0 | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | 0 | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | DEBRA MILLER | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 9498722552 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 100 BAYVIEW CIRCLE 5600 | AddressLine1Txt |
| City | NEWPORT BEACH | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92660 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (23 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd |
|---|---|---|---|---|---|---|---|---|
| PAUL MILLER | ||||||||
| SECRETARY | 10.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| DEBRA MILLER | ||||||||
| CEO | 40.00 | Yes (X) | Yes (X) | $151,304 | $0 | $0 | ||
| JEFFREY GOFFMAN | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| PETER STRELOW | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| DAVID MACINNIS | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| DANA WHITE | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| RYAN WILLIAMS | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| MARTIN LEHR | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| TJ FARNSWORTH | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| DIANE KEMPLE | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| CHRISTOPHER FINAZZO | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| TIM SULLIVAN | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| BOB SMITH | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| JOHN MANAGONORE | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| NICHOLAS PRYTHERCH | ||||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| KATHLENE BALISY | ||||||||
| FINANCE DIRECTOR | 40.00 | $190,000 | $0 | $0 | Yes (X) | |||
| LIANNA ORLANDO | ||||||||
| VICE PRESIDENT OF RESEARCH | 40.00 | $213,873 | $0 | $0 | Yes (X) | |||
| MICHAEL KELLY | ||||||||
| CHIEF SCIENTIFIC OFFICER | 40.00 | $235,000 | $0 | $0 | Yes (X) | |||
| HEATHER MEDLIN | ||||||||
| DIRECTOR OF CLINICAL DEVEL | 40.00 | $198,846 | $0 | $0 | Yes (X) | |||
| ANDREA PIKE | ||||||||
| DIRECTOR OF MARKETING | 40.00 | $173,619 | $0 | $0 | Yes (X) | |||
| MONICA UTLEY | ||||||||
| DIRECTOR OF PROGRAMS | 40.00 | $168,502 | $0 | $0 | Yes (X) | |||
| EMILIE PERKINS | ||||||||
| DIRECTOR OF COMMUNICATIONS | 40.00 | $169,737 | $0 | $0 | Yes (X) | |||
| LAURA HAMEED | ||||||||
| EXECUTIVE DIRECTOR | 40.00 | $243,077 | $0 | $0 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,743,958 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 20 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (1) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| TRINDS LLC | |||||
| 6425 LIVING SPACES 2ND FLOOR | PITTSBURGH | PA | 15206 | PROGRAM SERVICES | $348,380 |
| KAPTURE VISION | |||||
| 17322 MURPHY AVE | IRVINE | CA | 92614 | EVENT SERVICES | $180,662 |
| DMH NAPA VALLEY LLC | |||||
| 108 RANDOLPH ST B | NAPA | CA | 94559 | CONSULTING COMPANY | $166,101 |
| BRAND AMP LLC | |||||
| 1945 PLACENTIA AVENUE BLG C | COSTA MESA | CA | 92627 | MARKETING SERVICES | $159,617 |
| I3 EVENT MARKETING | |||||
| 9020 MOUNTAIN LAKE CIRCLE | AUSTIN | TX | 78750 | EVENT SERVICES | $131,759 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 5 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $2,664,101 | FundraisingAmt |
| All Other Contributions | $841,500 | AllOtherContributionsAmt |
| Total Contributions | $3,505,601 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $234,089 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $234,089 | RelatedOrExemptFuncIncomeAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,893,564 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $4,759,367 | SecuritiesAmt |
| Other | $2,312,392 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $134,197 | SecuritiesAmt |
| Other | -$2,312,392 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$2,178,195 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$2,178,195 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $5,171,016 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $2,664,101 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $2,977,720 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,193,296 | TotalRevenueColumnAmt |
| Exclusion | $2,193,296 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| TRINDS LLC INCOME | 541700 | $172,094 | $172,094 |
| DATASET INCOME | 541700 | $15,000 | $15,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $187,094 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,941,885 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$1,757,012 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $2,193,296 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $660,000 | TotalAmt |
| Program Services | $660,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,095,003 | TotalAmt |
| Program Services | $1,978,336 | ProgramServicesAmt |
| Management And General | $15,125 | ManagementAndGeneralAmt |
| Fundraising | $101,542 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,840,165 | TotalAmt |
| Program Services | $966,631 | ProgramServicesAmt |
| Management And General | $461,475 | ManagementAndGeneralAmt |
| Fundraising | $412,059 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $84,599 | TotalAmt |
| Program Services | $73,133 | ProgramServicesAmt |
| Management And General | $166 | ManagementAndGeneralAmt |
| Fundraising | $11,300 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $224,478 | TotalAmt |
| Program Services | $194,053 | ProgramServicesAmt |
| Management And General | $439 | ManagementAndGeneralAmt |
| Fundraising | $29,986 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $323,159 | TotalAmt |
| Program Services | $259,379 | ProgramServicesAmt |
| Management And General | $17,655 | ManagementAndGeneralAmt |
| Fundraising | $46,125 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $338,359 | TotalAmt |
| Program Services | $239,738 | ProgramServicesAmt |
| Management And General | $84,799 | ManagementAndGeneralAmt |
| Fundraising | $13,822 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $69,001 | TotalAmt |
| Management And General | $69,001 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $40,151 | TotalAmt |
| Program Services | $1,814 | ProgramServicesAmt |
| Management And General | $33,163 | ManagementAndGeneralAmt |
| Fundraising | $5,174 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $50,132 | TotalAmt |
| Program Services | $36,217 | ProgramServicesAmt |
| Fundraising | $13,915 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $123,975 | TotalAmt |
| Program Services | $35,094 | ProgramServicesAmt |
| Management And General | $70,473 | ManagementAndGeneralAmt |
| Fundraising | $18,408 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $266,105 | TotalAmt |
| Program Services | $172,352 | ProgramServicesAmt |
| Management And General | $85,085 | ManagementAndGeneralAmt |
| Fundraising | $8,668 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $126,148 | TotalAmt |
| Program Services | $102,613 | ProgramServicesAmt |
| Management And General | $5,042 | ManagementAndGeneralAmt |
| Fundraising | $18,493 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $620,884 | TotalAmt |
| Program Services | $542,727 | ProgramServicesAmt |
| Management And General | $664 | ManagementAndGeneralAmt |
| Fundraising | $77,493 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,892 | TotalAmt |
| Management And General | $3,892 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,852 | TotalAmt |
| Program Services | $25,741 | ProgramServicesAmt |
| Management And General | $8,322 | ManagementAndGeneralAmt |
| Fundraising | $4,789 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | FundraisingFundraisingAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|---|
| RESEARCH EXPENSE | $1,352,680 | $1,352,680 | ||
| PUBLIC RELATIONS | $467,239 | $466,114 | $1,125 | |
| PROMOTIONAL EXPENSE | $130,462 | $88,076 | $33,874 | $8,512 |
| DUES & SUBSCRIPTIONS | $92,972 | $72,987 | $9,522 | $10,463 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $219,361 | TotalAmt |
| Program Services | $98,730 | ProgramServicesAmt |
| Management And General | $40,126 | ManagementAndGeneralAmt |
| Fundraising | $80,505 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,167,617 | TotalAmt |
| Program Services | $7,366,415 | ProgramServicesAmt |
| Management And General | $914,402 | ManagementAndGeneralAmt |
| Fundraising | $886,800 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,539,794 | BOYAmt |
| EOY | $2,931,152 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $37,337 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $31,497 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,732 | BOYAmt |
| EOY | $5,840 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $24,150,054 | BOYAmt |
| EOY | $27,541,165 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $386,771 | BOYAmt |
| EOY | $428,766 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $27,086,351 | BOYAmt |
| EOY | $30,906,923 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $137,002 | BOYAmt |
| EOY | $113,784 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $42,469 | BOYAmt |
| EOY | $49,481 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $76,964 | BOYAmt |
| EOY | $84,599 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $256,435 | BOYAmt |
| EOY | $247,864 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $26,829,916 | BOYAmt |
| EOY | $30,659,059 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $26,829,916 | BOYAmt |
| EOY | $30,659,059 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $27,086,351 | BOYAmt |
| EOY | $30,906,923 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$5,225,732 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $9,054,875 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | 0 | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,772,905 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,804,005 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,429,586 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,489,779 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,505,601 | CurrentTaxYearAmt |
| Total | $15,001,876 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,772,905 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,804,005 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,429,586 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $4,489,779 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,505,601 | CurrentTaxYearAmt |
| Total | $15,001,876 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total170 | $15,001,876 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,574,511 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $994,482 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $147,656 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $363,250 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $234,089 | CurrentTaxYearAmt |
| Total | $3,313,988 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $18,315,864 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $12,290,250 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.81910 | PublicSupportCY170Pct |
| Public Support PY170 | 0.40300 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Agent Trustee Etc | 0 | AgentTrusteeEtcInd |
| Incl Escrow Custodial Acct Liab | 0 | InclEscrowCustodialAcctLiabInd |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $37,337 | OtherCostOrOtherBasisAmt |
| Depreciation | $31,497 | DepreciationAmt |
| Book Value | $5,840 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $5,840 | TotalBookValueLandBuildingsAmt |
Invst Program Related Org InvstProgramRelatedOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | INVESTMENTS HELD | Desc |
| Book Value | $27,541,165 | BookValueAmt |
| Method Valuation | F | MethodValuationCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Program Rltd | $27,541,165 | TotalBookValueProgramRltdAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PENSION PAYABLE | Desc |
| Amt | $84,599 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $84,599 | TotalLiabilityAmt |
| Total Rev Etc Audited Fincl Stmt | $13,094,173 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $9,324,382 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $9,324,382 | RevenueNotReportedAmt |
| Revenue Subtotal | $3,769,791 | RevenueSubtotalAmt |
| Other Revenues Not Included | $172,094 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $172,094 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $3,941,885 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $9,403,668 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $236,051 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $236,051 | ExpensesNotReportedAmt |
| Expenses Subtotal | $9,167,617 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $9,167,617 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | TRINDS LLC K-1 INCOME 172,094. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | RENT EXPENSE REDUCTION DUE TO RIGHT OF USE ADJUSTMENT 236,051. |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | FUNDRAISER - 2024 MJM EVENT | Event1Nm |
| Gross Receipts Event1 | $1,574,000 | GrossReceiptsEvent1Amt |
| Gross Revenue Event1 | $1,574,000 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $40,199 | OtherDirectExpensesEvent1Amt |
| Event2 | FUNDRAISER-NEWPORT BEACH GALA | Event2Nm |
| Gross Receipts Event2 | $1,011,567 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $110,000 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $901,567 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $470,234 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 32 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $5,249,550 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $2,554,101 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $2,695,449 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $2,467,287 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $7,835,117 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $2,664,101 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $5,171,016 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $2,977,720 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $2,977,720 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $2,193,296 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (4 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| THE BRIGHAM AND WOMEN'S HOSPITAL INC | |||||||
| 75 FRANCIS STREET | BOSTON | MA | 02115 | 042312909 | $60,000 | $0 | EDUCATION/ OUTREACH/ RESEARCH |
| NEUROLOGY AND NEURO CARE CENTER | |||||||
| 2817 S MAYHILL RD STE 115 | DENTON | TX | 76208 | 882364725 | $300,000 | $0 | EDUCATION/ OUTREACH/ RESEARCHEDUCATION/ OUTREACH/ RESEARCH |
| FOUNDATION OF NATIONAL INSTITUTE OF HEALTH | |||||||
| 9650 ROCKVILLE PIKE RM 3411 | BETHSEDA | MD | 20814 | 521986675 | $200,000 | $0 | EDUCATION/ OUTREACH/ RESEARCH |
| UNIVERSITY OF FLORIDA | |||||||
| 2046 NE WALDO ROAD SUITE 1150 | GAINSVILLE | FL | 32609 | 592729133 | $100,000 | $0 | EDUCATION/ OUTREACH/ RESEARCH |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTS GIVEN OUT BY THE ORGANIZATION ARE MONITORED AND ASSESSED WHETHER THE GRANTS WERE USED FOR THE ORIGINALLY INTENDED PURPOSE FOR THE GRANT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| LAURA HAMEED | ||||||||||||||
| EXECUTIVE DIRECTOR | $243,077 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $243,077 | $0 | $0 | $0 |
| MICHAEL KELLY | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $235,000 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $235,000 | $0 | $0 | $0 |
| LIANNA ORLANDO | ||||||||||||||
| VICE PRESIDENT OF RESEARCH | $213,873 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $213,873 | $0 | $0 | $0 |
| HEATHER MEDLIN | ||||||||||||||
| DIRECTOR OF CLINICAL DEVEL | $198,846 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $198,846 | $0 | $0 | $0 |
| KATHLENE BALISY | ||||||||||||||
| FINANCE DIRECTOR | $190,000 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $190,000 | $0 | $0 | $0 |
| ANDREA PIKE | ||||||||||||||
| DIRECTOR OF MARKETING | $173,619 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $173,619 | $0 | $0 | $0 |
| EMILIE PERKINS | ||||||||||||||
| DIRECTOR OF COMMUNICATIONS | $169,737 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $169,737 | $0 | $0 | $0 |
| MONICA UTLEY | ||||||||||||||
| DIRECTOR OF PROGRAMS | $168,502 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $168,502 | $0 | $0 | $0 |
| DEBRA MILLER | ||||||||||||||
| CEO | $151,304 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $151,304 | $0 | $0 | $0 |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 2 | DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. |
| FORM 990, PART VI, SECTION B, LINE 11B | FORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. |
| FORM 990, PART VI, SECTION B, LINE 15 | COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE. |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CUREDUCHENNE VENTURE LLC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 24000 ALICIA PARKWAY STE 466 | AddressLine1Txt |
| City | MISSION VIEJO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92691 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 383934145 | EIN |
| Primary Activities | INVESTING IN RESEARCH | PrimaryActivitiesTxt |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Total Income | -$2,052,103 | TotalIncomeAmt |
| End Of Year Assets | $26,007,145 | EndOfYearAssetsAmt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE DUCHENNE | BusinessNameLine1Txt |
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp
Disregarded Entity Name DisregardedEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CD ACCESS | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 24000 ALICIA PARKWAY STE 466 | AddressLine1Txt |
| City | MISSION VIEJO | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 92691 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 813735979 | EIN |
| Primary Activities | DISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASE | PrimaryActivitiesTxt |
| Legal Domicile State | CA | LegalDomicileStateCd |
| Exempt Code Section | 501(C)(3) | ExemptCodeSectionTxt |
| Public Charity Status | ACTIVE | PublicCharityStatusTxt |
Direct Controlling Entity Name DirectControllingEntityName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NOT APPLICABLE | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Controlled Organization | 0 | ControlledOrganizationInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | 0 | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | 0 | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | 0 | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | 0 | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | 0 | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | 0 | DivRelatedOrganizationInd |
| Asset Sale To Other Org | 0 | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | 0 | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | 0 | AssetExchangeInd |
| Rental Of Facilities To Oth Org | 0 | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | 0 | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | 0 | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | 0 | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | 0 | SharingOfFacilitiesInd |
| Paid Employees Sharing | 0 | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | 0 | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | 0 | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | 0 | TransferToOtherOrgInd |
| Transfer From Other Org | 0 | TransferFromOtherOrgInd |