AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization: AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
Tax period: 2019-02-01 to 2020-01-31
Filed: 2020-06-19
IRS object ID: 202041719349300104
Schema version: 2019v5.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2020-06-19T08:17:20-05:00	ReturnTs
Tax Period End	2020-01-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	410746749	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	CLIFTONLARSONALLEN LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	901 N GLEBE ROAD SUITE 200	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22203	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2019-02-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	133271855	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	AMYOTROPHIC LATERAL SCLEROSIS ASSN	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	AMYO	BusinessNameControlTxt
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1300 WILSON BLVD NO 600	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22209	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	GREGORY MITCHELL	PersonNm
Person Title	CFO & EVP, FINANCE & ADMN.	PersonTitleTxt
Phone	2024078580	PhoneNum
Signature	2020-06-19	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	MICHAELA J CROMAR CPA	PreparerPersonNm
PTIN	P00895728	PTIN
Phone	5712279500	PhoneNum
Preparation	2020-06-19	PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	71.178.24.152	IPv4AddressTxt

Field	Value	IRS element (for citing)
IP	2020-06-19	IPDt
IP Tm	08:16:41	IPTm
IP Timezone	ED	IPTimezoneCd
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	66F718BFCE6F9B3EE8F9C6FC68E8E061BAD4FB8C	AtSubmissionCreationDeviceId
At Submission Filing Device Id	87826B80F82B7742AC94E6ED7EC5993094E974B0	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2019	TaxYr
Build TS	2020-11-06 18:47:13Z	BuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

Field	Value	IRS element (for citing)
Business Name Line1	THE ALS ASSOCIATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Principal Officer	CALANEET BALAS	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1300 WILSON BLVD NO 600	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22209	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$40,415,254	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Group Exemption	4119	GroupExemptionNum
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.ALSA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1985	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.	ActivityOrMissionDesc
Voting Members Governing Body	25	VotingMembersGoverningBodyCnt
Voting Members Independent	25	VotingMembersIndependentCnt
Total Employee	113	TotalEmployeeCnt
Total Volunteers	25	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$29,429,700	PYContributionsGrantsAmt
CY Contributions Grants	$34,202,008	CYContributionsGrantsAmt
PY Program Service Revenue	$146,365	PYProgramServiceRevenueAmt
CY Program Service Revenue	$112,947	CYProgramServiceRevenueAmt
PY Investment Income	-$2,361,210	PYInvestmentIncomeAmt
CY Investment Income	$2,827,122	CYInvestmentIncomeAmt
PY Other Revenue	-$149,153	PYOtherRevenueAmt
CY Other Revenue	-$110,273	CYOtherRevenueAmt
PY Total Revenue	$27,065,702	PYTotalRevenueAmt
CY Total Revenue	$37,031,804	CYTotalRevenueAmt
PY Grants And Similar Paid	$17,868,141	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$19,723,207	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$8,434,709	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$10,678,002	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$421,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$890,893	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$5,954,946	CYTotalFundraisingExpenseAmt
PY Other Expenses	$8,166,363	PYOtherExpensesAmt
CY Other Expenses	$10,516,401	CYOtherExpensesAmt
PY Total Expenses	$34,890,213	PYTotalExpensesAmt
CY Total Expenses	$41,808,503	CYTotalExpensesAmt
PY Revenues Less Expenses	-$7,824,511	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$4,776,699	CYRevenuesLessExpensesAmt
Total Assets BOY	$96,316,713	TotalAssetsBOYAmt
Total Assets EOY	$98,033,652	TotalAssetsEOYAmt
Total Liabilities BOY	$5,877,998	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$7,837,360	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$90,438,715	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$90,196,292	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$18,352,163	ExpenseAmt
Grant	$17,004,492	GrantAmt
Revenue	$0	RevenueAmt
Desc	RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS DOMESTICALLY AND INTERNATIONALLY TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS).	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$10,463,835	ExpenseAmt
Grant	$2,715,915	GrantAmt
Desc	PATIENT AND COMMUNITY SERVICES: THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$4,052,273	ExpenseAmt
Grant	$2,800	GrantAmt
Revenue	$112,947	RevenueAmt
Desc	PUBLIC AND PROFESSIONAL EDUCATION: THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2020, THE ASSOCIATION WORKED WITH CONGRESS TO INCREASE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$32,868,271	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	Yes (1)	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	90	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Employee	113	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (1)	Form1098CFiledInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	25	GoverningBodyVotingMembersCnt
Independent Voting Member	25	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	Yes (1)	MembersOrStockholdersInd
Election Of Board Members	Yes (1)	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	Yes (1)	LocalChaptersInd
Policies Reference Chapters	Yes (1)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	GREGORY MITCHELL	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	2024078580	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1300 WILSON BLVD NO 600	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22209	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (37 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd
CALANEET BALAS
PRESIDENT & CEO	37.50	Yes (X)	$358,632	$0	$49,063
GREG MITCHELL
EXECUTIVE VP, FINANCE & ADMINISTRATION	37.50	Yes (X)	$257,561	$0	$35,193
LANCE SLAUGHTER
EXECUTIVE VP, CHAPTER RELATIONS & GOVERNANCE	37.50		$239,507	$0	$36,831	Yes (X)
NEIL THAKUR
EXECUTIVE VP, MISSION STRATEGY	37.50		$229,145	$0	$39,734	Yes (X)
TINA ZEFF
EXECUTIVE VP, DEVELOPMENT	37.50		$209,419	$0	$41,320	Yes (X)
BRIAN FREDERICK
EXECUTIVE VP, COMMUNICATION	37.50		$226,534	$0	$18,452	Yes (X)
KIMBERLY HARDING-MAGINNIS
SENIOR VP, CARE SERVICES	37.50		$194,734	$0	$14,825	Yes (X)
KATHLEEN SHEEHAN
VP, PUBLIC POLICY & ADVOCACY	37.50		$167,838	$0	$17,329		Yes (X)
TERESSA HARRIS
VP, FINANCE	37.50		$152,058	$0	$18,033		Yes (X)
MARY MORGAN ROTH
VP, COMMUNICATIONS	37.50		$156,688	$0	$12,804		Yes (X)
LYLES EDDINS
VP, DEVELOPMENT	37.50		$156,784	$0	$4,751		Yes (X)
MONICA SANTA CRUZ
VP, HUMAN RESOURCES & TALENT MANAGEMENT	37.50		$148,273	$0	$4,229		Yes (X)
SUE GORMAN
CHAIR	5.00	Yes (X)	$0	$0	$0			Yes (X)
MARK STANCIL
TREASURER	5.00	Yes (X)	$0	$0	$0			Yes (X)
CAMERON WARD
SECRETARY	4.00	Yes (X)	$0	$0	$0			Yes (X)
MARK CALMES
VICE-CHAIR	4.00	Yes (X)	$0	$0	$0			Yes (X)
TOM CARROLL
TRUSTEE	5.00		$0	$0	$0			Yes (X)
DON CASEY
TRUSTEE	2.00		$0	$0	$0			Yes (X)
FRED M DEGRANDIS
TRUSTEE	2.00		$0	$0	$0			Yes (X)
MILLIE ARNOLD
TRUSTEE	2.00		$0	$0	$0			Yes (X)
CONNIE HOUSTON
TRUSTEE	2.00		$0	$0	$0			Yes (X)
SCOTT KAUFFMAN
TRUSTEE	2.00		$0	$0	$0			Yes (X)
CHRISTI L KOLARCIK PHD
TRUSTEE	2.00		$0	$0	$0			Yes (X)
JOHN P KRAVE JD
TRUSTEE	2.00		$0	$0	$0			Yes (X)
LOU LIBBY MD
TRUSTEE	2.00		$0	$0	$0			Yes (X)
WARREN NELSON
TRUSTEE	2.00		$0	$0	$0			Yes (X)
STUART OBERMANN
TRUSTEE	2.00		$0	$0	$0			Yes (X)
KEITH A GARY PH D
TRUSTEE	2.00		$0	$0	$0			Yes (X)
JUDY PRATT DMD
TRUSTEE	2.00		$0	$0	$0			Yes (X)
CHARLIE ROBINSON D SC PE
TRUSTEE	2.00		$0	$0	$0			Yes (X)
WENDY J SCHRIBER
TRUSTEE	2.00		$0	$0	$0			Yes (X)
WILLIAM D SOFFEL
TRUSTEE	2.00		$0	$0	$0			Yes (X)
EUGENE BRANDON PHD
TRUSTEE	2.00		$0	$0	$0			Yes (X)
CLIFTON GOOCH MD
TRUSTEE	2.00		$0	$0	$0			Yes (X)
DOUG BUTCHER
TRUSTEE	2.00		$0	$0	$0			Yes (X)
TOBIN M KUCHARSKI
TRUSTEE	2.00		$0	$0	$0			Yes (X)
J THOMAS MAY
TRUSTEE	2.00		$0	$0	$0			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,497,173	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$292,564	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	14	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (4 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
SALESFORCE
415 MISSION STREET 3RD FLOOR	SAN FRANCISCO	CA	95105	CRM SOFTWARE IMPLEMENTATION	$1,559,095
DRUM - U MARKETING LLC
20 WEST 37TH STREET 3RD FLOOR	NEW YORK	NY	10018	MARKETING CONSULTING SERVICES	$890,893
ATTAIN LLC
1600 TYSONS BLVD 1400	MCLEAN	VA	22102	CRM SOFTWARE IMPLEMENTATION	$590,980
TURNKEY PROMOTIONS
3310 ROSEDALE AVE	RICHMOND	VA	23230	MARKETING CONSULTING SERVICES	$568,000

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	4	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$107,805	FederatedCampaignsAmt
Fundraising	$1,745,425	FundraisingAmt
Government Grants	$389,492	GovernmentGrantsAmt
All Other Contributions	$31,959,286	AllOtherContributionsAmt
Noncash Contributions	$426,080	NoncashContributionsAmt
Total Contributions	$34,202,008	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	CONFERENCE FEES	Desc
Business	900099	BusinessCd
Total Revenue Column	$112,947	TotalRevenueColumnAmt
Related Or Exempt Func Income	$112,947	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$112,947	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,782,381	TotalRevenueColumnAmt
Exclusion	$2,782,381	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$3,260,636	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$3,160,437	SecuritiesAmt
Other	$55,458	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$100,199	SecuritiesAmt
Other	-$55,458	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$44,741	TotalRevenueColumnAmt
Exclusion	$44,741	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$0	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$1,745,425	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$167,555	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$167,555	TotalRevenueColumnAmt
Exclusion	-$167,555	ExclusionAmt

Miscellaneous Revenue MiscellaneousRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$57,282	TotalRevenueColumnAmt
Exclusion	$57,282	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$57,282	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$37,031,804	TotalRevenueColumnAmt
Related Or Exempt Func Income	$112,947	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$2,716,849	ExclusionAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part IX	Yes (X)	InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$17,293,495	TotalAmt
Program Services	$17,293,495	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$54,585	TotalAmt
Program Services	$54,585	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$2,375,127	TotalAmt
Program Services	$2,375,127	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$1,934,133	TotalAmt
Program Services	$993,837	ProgramServicesAmt
Management And General	$689,557	ManagementAndGeneralAmt
Fundraising	$250,739	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$7,366,026	TotalAmt
Program Services	$5,023,334	ProgramServicesAmt
Management And General	$984,085	ManagementAndGeneralAmt
Fundraising	$1,358,607	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$328,514	TotalAmt
Program Services	$249,675	ProgramServicesAmt
Management And General	$18,880	ManagementAndGeneralAmt
Fundraising	$59,959	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$351,270	TotalAmt
Program Services	$231,372	ProgramServicesAmt
Management And General	$66,062	ManagementAndGeneralAmt
Fundraising	$53,836	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$698,059	TotalAmt
Program Services	$454,525	ProgramServicesAmt
Management And General	$123,006	ManagementAndGeneralAmt
Fundraising	$120,528	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$56,170	TotalAmt
Program Services	$7,110	ProgramServicesAmt
Management And General	$49,060	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$46,727	TotalAmt
Management And General	$46,727	ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$890,893	TotalAmt
Fundraising	$890,893	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$181,569	TotalAmt
Management And General	$181,569	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$5,197,577	TotalAmt
Program Services	$2,572,003	ProgramServicesAmt
Management And General	$190,497	ManagementAndGeneralAmt
Fundraising	$2,435,077	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$413,393	TotalAmt
Program Services	$373,490	ProgramServicesAmt
Management And General	$1,151	ManagementAndGeneralAmt
Fundraising	$38,752	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$324,780	TotalAmt
Program Services	$218,883	ProgramServicesAmt
Management And General	$57,214	ManagementAndGeneralAmt
Fundraising	$48,683	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$778,771	TotalAmt
Program Services	$511,455	ProgramServicesAmt
Management And General	$82,949	ManagementAndGeneralAmt
Fundraising	$184,367	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$1,842,807	TotalAmt
Program Services	$1,237,608	ProgramServicesAmt
Management And General	$304,355	ManagementAndGeneralAmt
Fundraising	$300,844	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$360,900	TotalAmt
Program Services	$242,376	ProgramServicesAmt
Management And General	$59,605	ManagementAndGeneralAmt
Fundraising	$58,919	FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$674,048	TotalAmt
Program Services	$674,048	ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$100,883	TotalAmt
Program Services	$59,842	ProgramServicesAmt
Management And General	$20,960	ManagementAndGeneralAmt
Fundraising	$20,081	FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CREDIT CARD & DATA FEES	$270,385	$104,718	$83,881	$81,786
TELECOMMUNICATIONS	$260,858	$190,788	$22,755	$47,315
CHAPTER SUPPORT	$7,533		$2,973	$4,560

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$41,808,503	TotalAmt
Program Services	$32,868,271	ProgramServicesAmt
Management And General	$2,985,286	ManagementAndGeneralAmt
Fundraising	$5,954,946	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Program Services	-$1,657,000	ProgramServicesAmt
Management And General	$1,382,000	ManagementAndGeneralAmt
Fundraising	$275,000	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$6,371,727	BOYAmt
EOY	$2,899,434	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$5,692,587	BOYAmt
EOY	$2,185,573	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$5,984,641	BOYAmt
EOY	$5,138,931	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$190,949	BOYAmt
EOY	$196,562	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$127,444	BOYAmt
EOY	$570,021	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$697,793	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$540,127	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$92,060	BOYAmt
EOY	$157,666	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$73,672,514	BOYAmt
EOY	$79,137,064	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$4,184,791	BOYAmt
EOY	$7,748,401	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$96,316,713	BOYAmt
EOY	$98,033,652	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$2,070,215	BOYAmt
EOY	$4,733,477	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$2,818,427	BOYAmt
EOY	$1,142,569	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
EOY	$15,350	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$989,356	BOYAmt
EOY	$1,945,964	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$5,877,998	BOYAmt
EOY	$7,837,360	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$79,882,951	BOYAmt
EOY	$79,169,831	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$10,555,764	BOYAmt
EOY	$11,026,461	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$90,438,715	BOYAmt
EOY	$90,196,292	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$96,316,713	BOYAmt
EOY	$98,033,652	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$4,776,699	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$4,509,451	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$24,825	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$23,487,328	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$27,407,957	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,216,448	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$29,429,700	CurrentTaxYearMinus1YearAmt
Current Tax Year	$34,202,008	CurrentTaxYearAmt
Total	$137,743,441	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$23,487,328	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$27,407,957	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$23,216,448	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$29,429,700	CurrentTaxYearMinus1YearAmt
Current Tax Year	$34,202,008	CurrentTaxYearAmt
Total	$137,743,441	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$137,743,441	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,466,148	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,633,793	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,156,702	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,641,824	CurrentTaxYearMinus1YearAmt
Current Tax Year	$2,782,381	CurrentTaxYearAmt
Total	$11,680,848	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,042	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$47,788	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$43,647	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$56,636	CurrentTaxYearMinus1YearAmt
Current Tax Year	$57,282	CurrentTaxYearAmt
Total	$207,395	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$149,631,684	TotalSupportAmt
Gross Receipts Rltd Activities	$547,666	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.92050	PublicSupportCY170Pct
Public Support PY170	0.96000	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$64,007	FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$501,597	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$565,604	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$41,242,899	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$41,808,503	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$529,987	CurrentYearMinus3Amt
Current Year Minus2	$466,481	CurrentYearMinus2Amt
Current Year Minus1	$453,482	CurrentYearMinus1Amt
Current Year	$565,604	CurrentYearAmt
Total	$2,015,554	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$33,626	CurrentYearMinus3Amt
Current Year Minus2	$15,724	CurrentYearMinus2Amt
Current Year Minus1	$13,778	CurrentYearMinus1Amt
Current Year	$64,007	CurrentYearAmt
Total	$127,135	TotalAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,454,731	BeginningYearBalanceAmt
Investment Earnings Or Losses	$587,974	InvestmentEarningsOrLossesAmt
Other Expenditures	$526,390	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$61,584	InvestmentEarningsOrLossesAmt
Other Expenditures	$0	OtherExpendituresAmt
End Year Balance	$6,454,731	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	$482,577	InvestmentEarningsOrLossesAmt
Other Expenditures	$482,577	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,333,662	BeginningYearBalanceAmt
Investment Earnings Or Losses	$386,180	InvestmentEarningsOrLossesAmt
Other Expenditures	$203,527	OtherExpendituresAmt
End Year Balance	$6,516,315	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$6,516,315	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$182,653	InvestmentEarningsOrLossesAmt
End Year Balance	$6,333,662	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	0.03640	PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY	0.96360	TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$301,491	OtherCostOrOtherBasisAmt
Depreciation	$143,825	DepreciationAmt
Book Value	$157,666	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$396,302	OtherCostOrOtherBasisAmt
Depreciation	$396,302	DepreciationAmt
Book Value	$0	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$157,666	TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (4 entries)

DescDesc	Book ValueBookValueAmt
CHAPTER RECEIVABLES	$2,418,418
DEPOSITS	$48,980
CONSTRUCTION IN PROGRESS - SOFTWARE	$3,783,556
CONSTRUCTION IN PROGRESS - LEASEHOLD IMPROVEMENTS	$1,497,447

Field	Value	IRS element (for citing)
Total Book Value Other Assets	$7,748,401	TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ANNUITY PAYMENT LIABILITY	$853,282
DEFERRED RENT	$1,092,682

Field	Value	IRS element (for citing)
Total Liability	$1,945,964	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$81,450,768	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$4,509,451	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$40,066,257	DonatedServicesAndUseFcltsAmt
Other Revenue	$24,825	OtherRevenueAmt
Revenue Not Reported	$44,600,533	RevenueNotReportedAmt
Revenue Subtotal	$36,850,235	RevenueSubtotalAmt
Investment Expenses Not Incld	$181,569	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$181,569	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$37,031,804	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$81,693,191	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$40,066,257	DonatedServicesUseFcltsAmt
Expenses Not Reported	$40,066,257	ExpensesNotReportedAmt
Expenses Subtotal	$41,626,934	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$181,569	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$181,569	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$41,808,503	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES.
PART X, LINE 2:	THE ASSOCIATION DID NOT HAVE ANY UNRELATED TAXABLE INCOME FOR THE YEARS ENDED JANUARY 31, 2020 AND 2019. ACCORDINGLY, NO PROVISION FOR INCOME TAXES HAS BEEN PROVIDED IN THE FINANCIAL STATEMENTS. THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED THAT ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. THE ASSOCIATION'S TAX RETURNS ARE SUBJECT TO REVIEW AND EXAMINATION BY FEDERAL AND STATE AUTHORITIES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 58,591. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -33,766.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (5 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EUROPE	GRANTS	RESEARCH	$1,569,454
NORTH AMERICA	GRANTS	RESEARCH	$400,000
SUB-SAHARAN AFRICA	GRANTS	RESEARCH	$31,576
EAST ASIA & THE PACIFIC	GRANTS	RESEARCH	$100,000
SOUTH AMERICA	GRANTS	RESEARCH	$274,097

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$2,375,127	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$2,375,127	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (13 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPE	CLINICAL MANAGEMENT.	$50,000	CHECK & WIRE TRANSFER
EUROPE	CLINICAL PILOT TRIAL.	$20,373	CHECK & WIRE TRANSFER
EUROPE	DRUG DEVELOPMENT CONTRACT.	$406,667	CHECK & WIRE TRANSFER
EUROPE	INVESTIGATOR INITIATED PROGRAM.	$99,958	CHECK & WIRE TRANSFER
EUROPE	LOU GEHRIG CHALLENGE ALS.	$42,391	CHECK & WIRE TRANSFER
EUROPE	STRATEGIC INITIATIVE.	$327,858	CHECK & WIRE TRANSFER
EUROPE	INVESTIGATOR INITIATED MULTI-YEAR.	$622,207	CHECK & WIRE TRANSFER
EAST ASIA & THE PACIFIC	INVESTIGATOR INITIATED STARTER.	$100,000	CHECK & WIRE TRANSFER
NORTH AMERICA	INVESTIGATOR INITIATED MULTI-YEAR.	$350,000	CHECK & WIRE TRANSFER
NORTH AMERICA	POSTDOCTORAL FELLOWSHIP.	$50,000	CHECK & WIRE TRANSFER
SUB-SAHARAN AFRICA	INVESTIGATOR INITIATED MULTI-YEAR.	$31,576	CHECK & WIRE TRANSFER
SOUTH AMERICA	INVESTIGATOR INITIATED MULTI-YEAR.	$25,000	CHECK & WIRE TRANSFER
SOUTH AMERICA	DRUG DEVELOPMENT CONTRACT.	$249,097	CHECK & WIRE TRANSFER

Field	Value	IRS element (for citing)
Total501c3 Org	13	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 2:	FOREIGN RESEARCHERS, SIMILAR TO U.S. RESEARCHERS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH DEPARTMENT.
PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Solicitation Of Govt Grants	Yes (X)	SolicitationOfGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DRUM - U MARKETING LLC	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1 E 22ND STREET SUITE 200	AddressLine1Txt
City	LOMBARD	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60148	ZIPCd

Field	Value	IRS element (for citing)
Activity	FUNDRAISING COUNSEL	ActivityTxt
Fundraiser Control Of Funds	0	FundraiserControlOfFundsInd
Gross Receipts	$3,572,702	GrossReceiptsAmt
Retained By Contractor	$890,893	RetainedByContractorAmt
Net To Organization	$2,681,809	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$3,572,702	TotalGrossReceiptsAmt
Total Retained By Contractors	$890,893	TotalRetainedByContractorsAmt
Total Net To Organization	$2,681,809	TotalNetToOrganizationAmt
Licensed States	CA	LicensedStatesCd
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	DC	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	PORTLAND WALK TO DEFEAT ALS	Event1Nm
Gross Receipts Event1	$216,980	GrossReceiptsEvent1Amt
Charitable Contri Event1	$216,980	CharitableContriEvent1Amt
Rent Facility Costs Event1	$1,651	RentFacilityCostsEvent1Amt
Other Direct Expenses Event1	$11,616	OtherDirectExpensesEvent1Amt
Event2	LOUISVILLE WALK TO DEFEAT ALS	Event2Nm
Gross Receipts Event2	$148,233	GrossReceiptsEvent2Amt
Charitable Contri Event2	$148,233	CharitableContriEvent2Amt
Rent Facility Costs Event2	$3,500	RentFacilityCostsEvent2Amt
Other Direct Expenses Event2	$8,800	OtherDirectExpensesEvent2Amt
Other Events Total	21	OtherEventsTotalCnt
Gross Receipts Other Events	$1,380,212	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$1,380,212	CharitableContriOtherEventsAmt
Rent Fclty Costs Other Events	$15,097	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$876	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$1,475	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$124,540	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$1,745,425	GrossReceiptsTotalAmt
Charitable Contributions Tot	$1,745,425	CharitableContributionsTotAmt
Rent Fclty Costs Total Events	$20,248	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$876	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$1,475	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$144,956	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$167,555	DirectExpenseSummaryEventsAmt
Net Income Summary	-$167,555	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (231 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ADVANTAGE HEALTH SAINT MARY'S MEDICAL GROUP
200 JEFFERSON AVENUE SE	GRAND RAPIDS	MI	49503	272491974	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
ALLEGHANY HEALTH NETWORK
ALLEGHENY-SINGER RESEARCH INSTITUTE	PITTSBURGH	PA	15212	251320493	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	ATTN DR SANDEEP RANA 30 ISABELLA ST
ALS NEVERSURRENDER FOUNDATION
12669 W WARREN AVE	LAKEWOOD	CO	80228	474746935	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
201 CHICAGO AVENUE	MINNEAPOLIS	MN	55415	410726167	501(C)3	-$44,288	CLINICAL RESEARCH TRAINING FELLOWSHIP
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
201 CHICAGO AVENUE	MINNEAPOLIS	MN	55415	410726167	501(C)3	$53,334	CLINICAL SCIENTIST DEVELOPMENT AWARD
AMERICAN ACADEMY OF NEUROLOGY INSTITUTE
201 CHICAGO AVENUE	MINNEAPOLIS	MN	55415	410726167	501(C)3	-$18,330	TREAT ALS CLINICAL SCIENTIST
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVE	MINNEAPOLIS	MN	554151126	411717098	501(C)3	$127,500	CLINICAL RESEARCH TRAINING FELLOWSHIP
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVE	MINNEAPOLIS	MN	55401	411717098	501(C)3	$56,000	CLINICAL SCIENTIST DEVELOPMENT AWARD
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVE	MINNEAPOLIS	MN	554151126	411717098	501(C)3	$50,000	SHEILA ESSEY AWARD
AMYLYX PHARMACEUTICALS INC
210 BROADWAY NO 201	CAMBRIDGE	MA	021391902	464600503	501(C)3	$50,000	LOU GEHRIG CHALLENGE ALS
ANELIXIS THERAPEUTICS INC
300 TECHNOLOGY SQUARE 4TH FLOOR	CAMBRIDGE	MA	021391902	474022454	501(C)3	$250,000	ALSA INITIATED
AQUINNAH PHARMACEUTICALS INC
700 MAIN STCAMBRIDGE MA 02139	CAMBRIDGE	MA	021391902	465070024	501(C)3	$100,000	DRUG DEVELOPMENT CONTRACT
BAYLOR COLLEGE OF MEDICINE ALS CLINIC
ACCT 2280015201 ATTN CATHERINE	HOUSTON	TX	77030	300791563	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	PETTINOS 7200 CAMBRIDGE SUITE 9A
BLOOM SCIENCE INC
11575 SORRENTO VALLEY ROAD	SAN DIEGO	CA	92121	824752586	501(C)3	$300,000	DRUG DEVELOPMENT CONTRACT
BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM
PO BOX 500 UNIVERSITY OF WISCONSIN	MILWAUKEE	WI	53201	391805963	501(C)3	$100,000	CLINICAL MANAGEMENT
BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINIOS
1901 S FIRST STREET SUITE A	CHAMPAIGN	IL	618207406	376000511	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER
BOARDSOURCE
750 9TH ST NW STE 650	WASHINGTON	DC	20001	521681375	501(C)3	$10,628	CHAPTER SUPPORT TRAININGS
BRIGHAM AND WOMEN'S HOSPITAL RESEARCH
PO BOX 3887	BOSTON	MA	022413887	042312909	501(C)3	$50,000	STRATEGIC INITIATIVE
BROWN UNIVERSITY
OFFICE OF SPONSORED PROJECTS 164	PROVIDENCE	RI	02912	050258809	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR	ANGELL STREET BOX 1929
BROWN UNIVERSITY
OFFICE SPONSORED PROJECTS PO BOX	PROVIDENCE	RI	02912	050258809	501(C)3	$100,000	MANAGING ALS	1929
CEDARS-SINAI MEDICAL CENTER
DEPT OF NEUROLOGY ALS PROGRAM 127 S	LOS ANGELES	CA	90048	951644600	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	SAN VICENTE BLVD A6600
CLEVELAND CLINIC FOUNDATION
CLEVELAND CLINLIC NEUROMUSCULAR	CLEVELAND	OH	44195	340714585	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	DEPT 9500 EUCLID AVENUE
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVENUE	CLEVELAND	OH	44195	340714585	501(C)3	$24,999	INVESTIGATOR INITIATED MULTI-YEAR
CLEVELAND VA MEDICAL RESEARCH AND EDUCATION FOUNDATION
10701 E BLVD VAMC 151CW 9500 EUCLID	CLEVELAND	OH	44106	341710663	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	AVE
COMMUNITY FOUNDATION OF GREATER HUNTSVILLE
PO BOX 332	HUNTSVILLE	AL	35804	263750673	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
DARTMOUTH HITCHCOCK FOUNDATION
LEBANON CLINIC ONE MEDICAL CENTER	LEBANON	NH	037560001	020222139	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	DRIVE
DARTMOUTH HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	037560001	020222139	501(C)3	$12,500	NNE CHAPTER SUPPORT OF DHMC'S ALS CLINIC
DARTMOUTH-HITCHCOCK CLINIC
ASHLEY YOUNG DIR RES FIN 1 MEDICAL	LEBANON	NH	037560001	222519596	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR	CENTER DRIVE
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR
350 WEST THOMAS ROAD	PHOENIX	AZ	85013	941196203	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR
350 W THOMAS RD	PHOENIX	AZ	85013	941196203	501(C)3	$250,000	STRATEGIC INITIATIVE
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR
350 W THOMAS RD	PHOENIX	AZ	85013	941196203	501(C)3	$59,900	TREAT ALS
DOUBLE TREE BY MANCHESTER DOWNTOWN
DOUBLE TREE BY MANCHESTER DOWNTOWN	MANCHESTER	NH	03101	042752559	501(C)3	$6,670	PATIENT EDUCATION SYMPOSIUM	700 ELM STREET
DUKE UNIVERSITY
DUKE UNIVERSITY DEPT OF NEUROLOGY	DURHAM	NC	27710	560532129	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	ATTN MEGAN PHILIPS DUMC BOX 2900
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
EXECUTIVE DEVELOPMENT ASSOCIATES
4 NE 10TH ST 171	OKLAHOMA CITY	OK	73104	208359176	501(C)3	$5,831	CHAPTER SUPPORT TRAININGS
FACULTY PHYSICIANS AND SURGEONS OF LLUSM
C/O JEFFREY ROSENFELD PHD MD 11370	LOMA LINDA	CA	92354	330672915	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	ANDERSON STREET SUITE B-100
GENERAL ELECTRIC
1 RESEARCH CIRCLE	NISKAYUNA	NY	12309	140689340	501(C)3	-$14,172	LOU GEHRIG CHALLENGE ALS
GEORGIA HEALTH SCIENCES FOUNDATION INC
DEPT OF NEUROLOGY EMG LAB 1120 15TH	AUGUSTA	GA	309120004	352310573	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	STREET BP 4390
GNS HEALTHCARE INC
196 BROADWAY	CAMBRIDGE	MA	021391902	271667187	501(C)3	-$93,750	STRATEGIC INITIATIVE
GW- MFA ALS CLINIC DEPT OF NEUROLOGY
2180 PENNSYLVANIA AVE	WASHINGTON	DC	20007	522220700	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HENNEPIN HEALTHCARE
FOUNDATION LSB-3 701 PARK AVE	MINNEAPOLIS	MN	55415	421707837	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HENRY FORD HEALTH SYSTEM
2799 WEST GRAND BOULEVARD DEPT OF	DETROIT	MI	48202	381357020	501(C)3	$25,659	STRATEGIC INITIATIVE	NEUROLOGY ROOM CFP-463
HONOR HEALTH
NEUROLOGY/ALS CLINIC 8125 N HAYDEN	SCOTTSDALE	AZ	85258	860181654	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	ROAD
HOPE LOVES COMPANY INC
C/O JODI ODONNELL-AMES P O BOX 931	PENNINGTON	NJ	08534	208418402	501(C)3	$50,000	HOPE LOVES CO CHILDREN'S CAMP OUTREACH GRANT
HOSPITAL FOR SPECIAL CARE
ATTN FISCAL DEPT 2150 CORBIN AVE	NEW BRITAIN	CT	06053	060646766	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
HOSPITAL FOR SPECIAL SURGERY
DEPARTMENT OF NEUROLOGY 535 EAST	NEW YORK	NY	10021	131624135	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	70TH ST
HOUSTON METHODIST DEPT OF NEUROLOGY
ATTN MARY LOUISE SPEARS 6560 FANNIN	HOUSTON	TX	77030	760094743	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	STREET SUITE 802
HOUSTON METHODIST NEUROLOGICAL INSTITUTE
OFFICE OF GRANTS AND CONTRACTS REF	HOUSTON	TX	77210	760094743	501(C)3	$130,000	ALSA INITIATED	STANLEY H APPEL MD EPAR T CELLS P O
HOUSTON METHODIST NEUROLOGICAL INSTITUTE
PO BOX 4805	HOUSTIN	TX	77210	760094743	501(C)3	$20,000	INVESTIGATOR INITIATED MULTI-YEAR
IMMUNOBRAIN CHECKPOINT INC
1120 AVE OF THE AMERICAS 20TH FLOOR	NEW YORL	NY	10036	811652612	501(C)3	$300,000	DRUG DEVELOPMENT CONTRACT	ATTENTION OF MR MOTI ELIASI
INDIANA UNIVERSITY
C/O ALS CLINIC 355 WEST 16TH STREET	INDIANAPOLIS	IN	46202	356001673	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	ROOM 3222
IRON HORSE DIAGNOSTICS INC
ATTN LORRIN BOWSER 21053 N 75TH	SCOTTSDALE	AZ	85255	454537278	501(C)3	$100,000	STRATEGIC INITIATIVE	STREET
JEFFERSON WEINBERG ALS CENTER
JHN SUITE 408 - FARBER INSTITUTE	PHILADELPHIA	PA	19107	232809585	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	FOR NEUROSCIENCE 900 WALNUT STREET
LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC
DEPARTMENT OF NEUROLOGY 41 MALL	BURLINGTON	MA	01805	042704683	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	ROAD
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO
433 BOLIVAR STREET 8TH FLOOR	NEW ORLEANS	LA	70112	720702002	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
LUDWIG INSTITUTE FOR CANCER RESEARCH
8950 VILLA LA JOLLA DR SUITE C135	LA JOLLA	CA	92037	237121131	501(C)3	$250,000	DRUG DEVELOPMENT CONTRACT
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$155,000	ALSA INITIATED
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$98,814	CLINICAL MANAGEMENT
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$160,000	DRUG DEVELOPMENT CONTRACT
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$279,849	LOU GEHRIG CHALLENGE ALS
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$50,000	POST DOCTORAL FELLOWSHIP
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$1,965,805	STRATEGIC INITIATIVE
MASSACHUSETTS GENERAL HOSPITAL - RESEARCH
BANK OF AMERICA NA PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)3	$140,247	TREAT ALS
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MAYO CLINIC ARIZONA
13400 E SHEA BLVD	SCOTTSDALE	AZ	85259	860800150	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
MAYO CLINIC FLORIDA
ATTNJEFF SCHEFFEL BIRDSALL 102 4500	JACKSONVILLE	FL	32224	593337028	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	SAN PABLO RD
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	$150,000	INVESTIGATOR INITIATED MULTI-YEAR
MAYO CLINIC JACKSONVILLE
DEPARTMENT OF RESEARCH 4500 SAN	JACKSONVILLE	FL	32224	593337028	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER	PABLO ROAD
MAYO CLINIC JACKSONVILLE
DEPARTMENT OF RESEARCH 4500 SAN	JACKSONVILLE	FL	32224	593337028	501(C)3	$32,500	STRATEGIC INITIATIVE	PABLO ROAD
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)3	-$16,061	TREAT ALS
MID COAST
ATTN CELESTE MOREAU 81 MEDICAL	BRUNSWICK	ME	04101	010215911	501(C)3	$5,460	MAINE ALS CLINIC GRANT	CENTER DRIVE SUITE 2400
MOUNT SINAI HEALTH SYSTEM
MOUNT SINAI HEALTH SYSTEM OFFICE	NEW YORK	NY	10029	135564934	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	DEVELOPMENT ONE GUSTAVE L LEVY PLAC
NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT
NICHD/NIH 6710 B ROCKLEDGE DR 1211C	BETHESDA	MD	208927970		501(C)3	$50,000	POST DOCTORAL FELLOWSHIP	1211C
NATIONAL INSTITUTE OF NEUOLOGICAL DISORDERS AND STROKE
ATTN FINANCIAL MGMT BRANCHBUILDING	BETHESDA	MD	208922540	520858115	501(C)3	$600,000	LOU GEHRIG CHALLENGE ALS	31 ROOM 8A34 31 CENTER DR MSC 2540
NATIONAL INSTITUTE OF NEUOLOGICAL DISORDERS AND STROKE
6001 EXECUTIVE BLVD ROOM 3287 ATTN	ROCKVILLE	MD	20852	520858115	501(C)3	$150,000	STRATEGIC INITIATIVE	BECKY BUTLER
NC STATE UNIVERSITY
2701 SULLIVAN DRIVE SUITE 240	RALEIGH	NC	27695	566000756	501(C)3	$50,000	STRATEGIC INITIATIVE	CAMPUS BOX 7514
NEBRASKA MEDICINE
ATTN TOVA SAFFORD 988440 NEBRASKA	OMAHA	NE	681988440	911858433	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	MEDICINE
NEUROLOGY ASSOCIATES OF STONY BROOK
MEDICAL DIRECTOR ALS CENTER STONY	EAST SETAUKET	NY	11733	112587430	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	BROOK UNIV 179 BELLE MEADE ROAD SUI
NEUROPORE THERAPIES INC
10835 ROAD TO THE CURE	SAN DIEGO	CA	92121	262922865	501(C)3	$300,000	DRUG DEVELOPMENT CONTRACT
NEW YORK GENOME CENTER
101 AVENUE OF THE AMERICAS	NEW YORK	NY	10013	800631734	501(C)3	$575,000	STRATEGIC INITIATIVE
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
ATTENTION ANTHONY CARNA DIRECTOR	NEW YORK	NY	10016	135562309	501(C)3	$125,000	DRUG DEVELOPMENT CONTRACT	ONE PARK AVENUE 6TH FLOOR
NORTHEAST ALS CONSORTIUM (NEALS)
811 W 7TH ST FLOOR 12	LOS ANGELES	CA	90017	562547779	501(C)3	$107,737	STRATEGIC INITIATIVE
NORTHEASTERN UNIVERSITY
360 HUNTINGTON AVE	BOSTON	MA	021155000	041679980	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
NORTHWESTERN UNIVERSITY
ASRSP CASH MANAGEMENT 633 CLARK	EVANSTON	IL	60208	362167817	501(C)3	$25,659	STRATEGIC INITIATIVE	STREET ROOM G547
OCHSNER CLINIC FOUNDATION
ERIC B STILLMAN OCHSNER HEALTH SYS	JEFFERSON	LA	70121	720502505	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	PHILANTHROPY DEPT SUITE 607 1514 JE
OHIOHEALTH FOUNDATON
ATTN MARK FLASH 180 EAST BROAD ST	COLUMBUS	OH	43215	237446919	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	31ST FLOOR
OREGON HEALTH AND SCIENCE UNIVERSITY
ATTN LYNETTE ARIAS DIRECTOR	PORTLAND	OR	97201	931176109	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	SPONSORED PROJECTS ADMIN 2525 SW FI
ORIGENT DATA SCIENCES INC
8245 BOONE BLVD SUITE 600	VIENNA	VA	22182	383916182	501(C)3	$82,334	STRATEGIC INITIATIVE
PENN STATE HERSHEY MEDICAL CENTER
DR ZACHARY SIMMONS DEPT OF	HERSHEY	PA	17033	246000376	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	NEUROLOGY EC 037 30 HOPE DRIVE
PISON TECHNOLOGY INC
258 HARVARD STREET STE 312	BROOKLINE	MA	02446	813603539	501(C)3	$100,000	MANAGING ALS
PORTLAND VA RESEARCH FOUNDATION
PO BOX 5977	PORTLAND	OR	97228	943090170	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
PO BOX 415649	BOSTON	MA	022415649	042103580	501(C)3	-$194	CLINICAL MANAGEMENT
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
HARVARD UNIVERSITY OFFICE FOR	CAMBRIDGE	MA	02138	042103580	501(C)3	$99,999	INVESTIGATOR INITIATED STARTER	SPONSORED PROGRAMS 1033 MASSACHUSET
PRESIDENT AND FELLOWS OF HARVARD COLLEGE
PRESIDENT AND FELLOWS OF HARVARD	BOSTON	MA	022415649	042103580	501(C)3	$34,940	STRATEGIC INITIATIVE	COLLEGE PO BOX 415649
PROVIDENCE HEALTH & SERVICES
ATTN FINANCE 4805 NE GILSAN STREET	PORTLAND	OR	97213	930386929	501(C)3	$25,659	STRATEGIC INITIATIVE	SUITE 5F
PROVIDENCE HEALTH & SERVICES-OREGON
ST VINCENT MEDICAL CENTER/BRAIN	PORTLAND	OR	972285977	930386929	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	INSTITUTE FOUNDATION PO BOX 5977
QURALIS CORPORATION
700 MAIN ST NORTH	CAMBRIDGE	MA	021391902	814722156	501(C)3	$125,000	DRUG DEVELOPMENT CONTRACT
REGENTS OF THE UNIVERSITY OF CALIFORINA IRVINE
200 S MANCHESTER SUITE 110	ORANGE	CA	92868	952226406	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
REGENTS OF THE UNIVERSITY OF CALIFORNIA
DEPT OF NEUROSCIENCES 9500 GILMAN	LAJOLLA	CA	920935004	956006144	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	DRIVE
REGENTS OF THE UNIVERSITY OF MICHIGAN
C/O BNY MELLON BOX 223131	PITTSBURGH	PA	152512131	386006309	501(C)3	$199,927	INVESTIGATOR INITIATED MULTI-YEAR
REGENTS OF THE UNIVERSITY OF MINNESOTA
NW 5957 PO BOX 1450	MINNEAPOLIS	MN	554855957	386006309	501(C)3	$25,659	STRATEGIC INITIATIVE
ROCKEFELLER UNIVERSITY
ATTN ROBIN MALONEY - ASST TREAS	NEW YORK	NY	10065	131624158	501(C)3	$50,000	INVESTIGATOR INITIATED MULTI-YEAR	1230 YORK AVENUE BOX 259A
RUTGERS
ROBERT WOOD JOHNSON UNIVERSITY	NEW BRUNSWICK	NJ	08901	222378007	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	HOSPITAL FOUNDATION 10 PLUM STREET
SCRIPPS FLORIDA
130 SCRIPPS WAY	JUPITER	FL	33458	330435954	501(C)3	$75,000	POST DOCTORAL FELLOWSHIP
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN STREET NE MAIL CODE	GRAND RAPIDS	MI	49503	382752328	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	004
ST JUDE CHILDREN'S RESEARCH HOSPITAL
LYNETTE NELSON SUPERVISOR GRANT AND	MEMPHIS	TN	38105	620646012	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR	CONTRACTS MANAGEMENT OFFICE 262 DAN
ST JUDE CHILDREN'S RESEARCH HOSPITAL
262 DANNY THOMAS PLACE MS 509	MEMPHIS	TN	38105	620646012	501(C)3	$167,187	LOU GEHRIG CHALLENGE ALS
ST LOUIS UNIVERSITY
ALS CENTER 3660 VISTA AVENUE	ST LOUIS	MS	63110	430654872	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	NEUROLOGY CLINIC ROOM 303
STATE UNIVERSITY OF NEW YORK AT STONY BROOK
WEST 5510 MELVILLE LIBRARY	STONY BROOK	NY	117943362	146013200	501(C)3	$100,000	MANAGING ALS
SUTTER WEST BAY HOSPITAL
2324 SACRAMENTO ST 111	SAN FRANCISCO	CA	94115	941156581	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
SWEDISH NEUROSCIENCE INSTITUTE
PHYSICIAN DIVISON 550 17TH AVE	SEATLE	WA	98122	912073120	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	SUITE 400
SYRACUSE UNIVERSITY
BURSARS OFFICE 102 ARCHBOLD NORTH	SYRACUSE	NY	13244	150532081	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR	SYRACUSE UNIVERSITY
TACONIC BIOSCIENCES
273 HOVER AVE	GERMANTOWN	NY	125265320	141381104	501(C)3	$34,442	STRATEGIC INITIATIVE
TARGET ALS FOUNDATION
1740 BROADWAY 15TH FLOOR	NEW YORK	NY	10019	810756743	501(C)3	$300,000	STRATEGIC INITIATIVE
THE ALS ASSOCIATION-ALABAMA CHAPTER
C/O NANCY COLIN PO BOX 2888	HUNTSVILLE	AL	35804	202218566	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-ARIZONA CHAPTER
C/O TARYN NORLEY 4643 E THOMAS ROAD	PHONEIX	AZ	85018	860727136	501(C)3	$7,000	MT PHARMA STIPEND	SUITE 1
THE ALS ASSOCIATION-ARKANSAS CIO
1200 WEST WALNUT SUITE 2406-08	ROGERS	AR	72756	204863643	501(C)3	$7,000	MT PHARM STIPEND
THE ALS ASSOCIATION-CENTRAL & SOUTHERN OHIO CHAPTER
1170 OLD HENDERSON RD STE 221	COLUMBUS	OH	43220	311235704	501(C)3	$7,000	MTPHARMA STIPEND
THE ALS ASSOCIATION-CONNECTICUT CHAPTER
4 OXFORD ROAD UNIT E4	MILFORD	CT	06460	043417472	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-DCMDVA CHAPTER
ATTN CHRISTINE KIRKLEY 30 W GUDE DR	ROCKVILLE	MD	20850		501(C)3	$7,000	MT PHARM STIPEND	DR
THE ALS ASSOCIATION-EVERGREEN CHAPTER
6100 SOUTHCENTER BLVD STE 290	SEATTLE	WA	98188	911950869	501(C)3	$7,000	MTPHARMA STIPEND	SEATTLE WA XXX-XX-XXXX
THE ALS ASSOCIATION-FLORIDA CHAPTER
ATTN KIM HANNA 3242 PARKSIDE CENTER	TAMPA	FL	33619	943124732	501(C)3	$7,000	MT PHARMA STIPEND	CIRCLE
THE ALS ASSOCIATION-GEORGIA CHAPTER
5881 GLENRIDGE DRIVE SUITE 200	ATLANTA	GA	30328	581943490	501(C)3	$10,500	ROSALYNN-CARTER INSTITUTE CAREGIVING PROGRAM
THE ALS ASSOCIATION-GEORGIA CHAPTER
1955 CLIFF VALLEY WAY SUITE 116	ATLANTA	GA	30329	581943490	501(C)3	$7,000	MTPHARMA STIPEND
THE ALS ASSOCIATION-GOLDEN WEST CHAPTER
PO BOX 565	AGOURA HILLS	CA	913760565	954163338	501(C)3	$7,000	MT PHARM STIPEND
THE ALS ASSOCIATION-GREATER CHICAGO CHAPTER
220 WEST HURON STE 4003	CHICAGO	IL	60654	542126575	501(C)3	$10,500	CARE SERVICE BOOT CAMP EXPANSION INITIATIVE
THE ALS ASSOCIATION-GREATER CHICAGO CHAPTER
220 WEST HURON SUITE 4003	CHICAGO	IL	60610	542126575	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-GREATER NEW YORK CHAPTER
116 JOHN STREET SUITE 1304	NEW YORK	NY	10038	133616680	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-GREATER PHILADELPHIA CHAPTER
321 NORRISTOWN RD SUITE 260	AMBLER	PA	19002	232387205	501(C)3	$12,000	GEISINGER ALS CLINIC TELEHEALTH PROJECT
THE ALS ASSOCIATION-GREATER PHILADELPHIA CHAPTER
321 NORRISTOWN RD SUITE 260	AMBLER	PA	19002	232387205	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-GREATER SACRAMENTO CHAPTER
5701 SUNRISE BLVD	CITRUS HEIGHTS	CA	95610	680152992	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-GREATER SAN DIEGO CHAPTER
7920 SILVERTON SUITE E	SAN DIEGO	CA	921266350	043651272	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-INDIANA CHAPTER
7202 E 87TH STREET SUITE 102	INDIANAPOLIS	IN	46256	353029321	501(C)3	$12,500	CLINIC EXPANSION INITATIVE
THE ALS ASSOCIATION-INDIANA CHAPTER
7202 E 87TH STREET SUITE 102	INDIANAPOLIS	IN	46256	353029321	501(C)3	$7,000	MTPHARMA STIPEND
THE ALS ASSOCIATION-LOUISIANAMISSISSIPPI CHAPTER
11725 INDUSTIPLEX BLVD SUITE 3	BATON ROUGE	LA	708095190	201742120	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER
C/O LYNN AARONSON 685 CANTON STREET	NORWOOD	MA	02062	043085718	501(C)3	$100,000	ASSISTIVE TECHNOLOGY REGINONAL OUTREACH GRANT 5 OF 6	SUITE 103
THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER
685 CANTON STREET SUITE 103	NORWOOD	MA	02062	043085718	501(C)3	$55,902	PETE FRATES HOME HEALTH INITIATIVE
THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER
C/O LYNN AARONSON 685 CANTON STREET	NORWOOD	MA	02062	043085718	501(C)3	$15,000	REIMBURSEMENT FOR PORTION OF EXECUTIVE DIRECTOR SEARCH	SUITE 103
THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER
C/O LYNN AARONSON 685 CANTON STREET	NORWOOD	MA	02062	043085718	501(C)3	$7,000	MT PHARMA STIPEND	SUITE 103
THE ALS ASSOCIATION-MID AMERICA CHAPTER
6950 SQUIBB ROAD STE 210	MISSION	KS	66202	481021611	501(C)3	$7,000	MT PHARM STIPEND
THE ALS ASSOCIATION-MNNDSD CHAPTER
1919 UNIVERSITY AVE W SUITE 175	ST PAUL	MN	55104	411756085	501(C)3	$7,000	MTPHARMA STIPEND
THE ALS ASSOCIATION-NEVADA CHAPTER
2101 SOUTH JONES BLVD SUITE 120	LAS VEGAS	NV	89146	201531344	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-NEW MEXICO CHAPTER
2309 RENARD PLACE STE 105	ALBUQUERQUE	NM	87106	850473026	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-NORTH CAROLINA CHAPTER
1425-113 ROCK QUARRY ROAD	RALEIGH	NC	27610	561609591	501(C)3	$20,000	ATRIUM HEALTH TELEMEDICINE PROGRAM
THE ALS ASSOCIATION-NORTH CAROLINA CHAPTER
4 N BLOUNT ST 2ND FLOOR	RALEIGH	NC	27601	561609591	501(C)3	$7,500	JOE MARTIN'S CHILDREN OUTREACH GRANT - NC 2019
THE ALS ASSOCIATION-NORTH CAROLINA CHAPTER
1425-113 ROCK QUARRY ROAD	RALEIGH	NC	27610	561609591	501(C)3	$7,000	MTPHARMA STIPEND
THE ALS ASSOCIATION-NORTHERN OHIO CHAPTER
2500 E 22ND STREET SUITE 102	CLEVELAND	OH	44115		501(C)3	$7,000	MTPHARMA STIPEND
THE ALS ASSOCIATION-OREGON & SW WASHINGTON CHAPTER
700 NE MULTNOMAH ST SUITE 210	PORTLAND	OR	97232	680516066	501(C)3	$7,000	MT PHARM STIPEND
THE ALS ASSOCIATION-RHODE ISLAND CHAPTER
GATEWAY PLAZA 1637 WARWICK AVENUE	WARWICK	RI	028891525	050460482	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-ROCKY MOUNTAIN CHAPTER
1201 EAST COLFAX AVE SUITE 202	DENVER	CO	80218	841337868	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-ST LOUIS REGIONAL CHAPTER
C/O MAUREEN BARBER-HILL 2258 WELDON	SAINT LOUIS	MO	631463206	431458163	501(C)3	$7,000	MT PHARMA STIPEND	PARKWAY
THE ALS ASSOCIATION-TENNESSEE CHAPTER
PO BOX 40244	NASHVILLE	TN	372040244	943124723	501(C)3	$7,000	MT PHARM STIPEND
THE ALS ASSOCIATION-TEXAS CHAPTER
5830 GRANITE PKWY 100-320	PLANO	TX	75024	742678974	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-UPSTATE NEW YORK CHAPTER
890 SEVENTH NORTH STREET SUITE 108	LIVERPOOL	NY	13088	371667986	501(C)3	$7,000	MT PHARMA STIPEND
THE ALS ASSOCIATION-WESTERN PENNSYLVANIA CHAPTER
LANDMARKS BUILDING SUITE 550 100	PITTSBURGH	PA	152191122	237123851	501(C)3	$7,000	MT PHARMA STIPEND	WEST STATION SQUARE DRIVE
THE ALS ASSOCIATION-WISCONSIN CHAPTER
2421 N MAYFAIR RD STE 212	WAUWATOSA	WI	53226	391600965	501(C)3	$7,000	MT PHARMA STIPEND
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET SUITE 6401	MADISON	WI	53715	396006492	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
21 N PARK STREET SUITE 6401	MADISON	WI	53715	396006492	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER
THE CURATORS OF THE UNIVERSITY OF MISSOURI
UNIVERSITY OF MISSOURI AR PO BOX	KANSAS CITY	MO	64180	436003859	501(C)3	$39,439	INVESTIGATOR INITIATED STARTER	807012
THE EMORY CLINIC INC
EMORY ALS CENTER 12 EXECUTIVE PARK	ATLANTA	GA	30329	582030692	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	DR NE ROOM 433
THE J DAVID GLADSTONE INSTITUTES
1650 OWENS STREET	SAN FRANCISCO	CA	941582261	237203666	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
THE JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)3	$50,000	DRUG DEVELOPMENT CONTRACT
THE JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)3	$300,000	INVESTIGATOR INITIATED MULTI-YEAR
THE JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)3	$98,014	INVESTIGATOR INITIATED STARTER
THE JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)3	$150,000	POST DOCTORAL FELLOWSHIP
THE JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)3	-$6,391	TREAT ALS
THE MEDICAL COLLEGE OF WISCONSIN INC
DEPT OF NEUROLOGY ATTN ALS 8701	MILWAUKEE	WI	53226	390806261	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	WATERTOWN PLANK ROAD
THE MGH INSTITUTE OF HEALTH PROFESSIONS
36 1ST AVE OFFICE OF THE PROVOST	CHARLESTOWN	MA	02129	042868893	501(C)3	$100,000	MANAGING ALS
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
500 UNIVERSITY DRIVE PO BOX 850 MC	HERSHEY	PA	170330850	246000376	501(C)3	-$754	CLINICAL MANAGEMENT	A470
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
500 UNIVERSITY DRIVE PO BOX 850 MC	HERSHEY	PA	170330850	246000376	501(C)3	$100,000	MANAGING ALS	A470
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
UC SAN DIEGO DEPT OF NEUROSCIENCES	LA JOLLA	CA	920935004	956006144	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER	9500 GILMAN DRIVE MC 0662
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
9500 GILMAN DRIVE MC 0009	LA JOLLA	CA	92093	946036493	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
UCSF CONTROLLERS OFFICE CONTRACTS	SAN FRANCISCO	CA	94143	946039493	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER	AND GRANTS ACCOUNTING BOX 0897 1855
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
C/O BNY MELLON BOX 223131	PITTSBURGH	PA	15251	386006309	501(C)3	$50,000	CLINICAL MANAGEMENT
THE RESEARCH FOUNDATION OF SUNY
ATTN RESEARCH ACCOUNTING 750 EAST	SYRACUSE	NY	13210	141368361	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	ADAMS STREET ROOM 209 CAB
THE RESEARCH FOUNDATION OF SUNY
750 EAST ADAMS STREET WEISKOTTEN	SYRACUSE	NY	13210	141368361	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER	HALL ROOM 1111D
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
SPONSORED PROJECTS FINANCE P O BOX	NEW YORK	NY	10087	135598093	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER	29789 GENERAL POST OFFOCE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
SPONSORED PROJECTS FINANCE P O BOX	NEW YORK	NY	10087	135598093	501(C)3	$294,671	LOU GEHRIG CHALLENGE ALS	29789 GENERAL POST OFFOCE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
SPONSORED PROJECTS FINANCE P O BOX	NEW YORK	NY	10087	135598093	501(C)3	$50,000	POST DOCTORAL FELLOWSHIP	29789 GENERAL POST OFFOCE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
SPONSORED PROJECTS FINANCE P O BOX	NEW YORK	NY	10087	135598093	501(C)3	$500,000	STRATEGIC INITIATIVE	29789 GENERAL POST OFFOCE
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET 5TH FLOOR	PHILADELPHIA	PA	19104	231352685	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET 5TH FLOOR	PHILADELPHIA	PA	19104	231352685	501(C)3	$25,000	POST DOCTORAL FELLOWSHIP
THE UNIVERSITY OF CHICAGO
5841 S MARYLAND AVE DEPT OF	CHICAGO	IL	60637	362177139	501(C)3	$50,000	DRUG DEVELOPMENT CONTRACT	NEUROLOGY MC2030
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON
7000 FANNIN ST	HOUTON	TX	77030	741761309	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER
THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON
7000 FANNIN ST	HOUTON	TX	77030	741761309	501(C)3	$25,000	STRATEGIC INITIATIVE
THERA NEUROPHARMA
538 NEWTOWN ROAD	BERWYN	PA	19312	812014147	501(C)3	$50,000	INVESTIGATOR INITIATED MULTI-YEAR
TRUSTEES OF COLUMBIA UNIVERSITY-CITY OF NEW YORK
CU GRANTS CONTRACTS P O BOX 29789	NEW YORK	NY	10087	135598093	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	GENERAL POST OFFICE NEW YORK NY 100
UC DAVIS MULTIDISCIPLINARY ALS CLINIC
ONE SHIELDS AVE	DAVIS	CA	95616	946036494	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC 0934	SAN DIEGO	CA	92039	956006144	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER
UNIVERSITY OF CHICAGO MEDICINE
C/O RAYMOND ROSS 5841 S MARYLAND	CHICAGO	IL	60637	362177139	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	AVE MC 2030
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
207 GRINTER HALL PO BOX 115500	GAINESVILLE	FL	326115500	596002052	501(C)3	$89,925	CLINICAL MANAGEMENT
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
207 GRINTER HALL PO BOX 115500	GAINESVILLE	FL	326115500	596002052	501(C)3	$24,764	INVESTIGATOR INITIATED MULTI-YEAR
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
207 GRINTER HALL PO BOX 115500	GAINESVILLE	FL	326115500	596002052	501(C)3	$20,000	INVESTIGATOR INITIATED STARTER
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
207 GRINTER HALL PO BOX 115500	GAINESVILLE	FL	326115500	596002052	501(C)3	$50,000	POST DOCTORAL FELLOWSHIP
UNIVERSITY OF FLORIDA BOARD OF TRUSTEES
207 GRINTER HALL PO BOX 115500	GAINESVILLE	FL	326115500	596002052	501(C)3	$75,659	STRATEGIC INITIATIVE
UNIVERSITY OF ILLINOIS AT CHICAGO ALS CLINIC
1801 W TAYLOR ST SUITE 4E	CHICAGO	IL	60612	376000511	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF KENTUCKY
DEPT OF NEUROLOGY 740 SOUTH	LEXINGTON	KY	405360284	616001218	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	LIMESTONE SUITE J425
UNIVERSITY OF MARYLAND BALTIMORE
DEPARTMENT OF NEUROLOGY 110 SOUTH	BALTIMORE	MD	21202	526002033	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	PACA ST 3RD FLOOR
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	501(C)3	$50,000	DRUG DEVELOPMENT CONTRACT
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	501(C)3	$96,498	INVESTIGATOR INITIATED MULTI-YEAR
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	501(C)3	$25,000	POST DOCTORAL FELLOWSHIP
UNIVERSITY OF MASSACHUSETTTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	501(C)3	$854,509	STRATEGIC INITIATIVE
UNIVERSITY OF MIAMI
DEPT OF NEUROLOGY ALS CENTER FOR	MIAMI	FL	33136	592579826	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	EXCELLENCE 1120 NW 14TH STREET
UNIVERSITY OF MICHIGAN ALS CLINIC
UNIVERSITY OF MICHIGAN ALS CLINIC	ANN ARBOR	MI	48109	386006309	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	1500 E MEDICAL CENTER DRIVE
UNIVERSITY OF MINNESOTA
NW 5957 P O BOX 1450	MINNEAPOLIS	MN	55485	416007513	501(C)3	$67,196	CLINICAL MANAGEMENT
UNIVERSITY OF MINNESOTA FOUNDATION
PO BOX 860266	MINNEAPOLIS	MN	554860266	416042488	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
HILL OFFICE OF SPONSORED RESEARCH	ATLANTA	GA	30384	566001393	501(C)3	$25,000	INVESTIGATOR INITIATED MULTI-YEAR	IN CARE OF BANK OF AMERICA LOCKBOX
UNIVERSITY OF OREGON
C/O SPONSORED PROJECTS SERVICES	EUGENE	OR	97403	464727800	501(C)3	$50,000	POST DOCTORAL FELLOWSHIP	5219 UNIVERSITY OF OREGON
UNIVERSITY OF PITTSBURGH
UNIVERSITY OF PITTSBURGH ATTN	PITTSBURGH	PA	152620001	125096559	501(C)3	$150,000	INVESTIGATOR INITIATED MULTI-YEAR	371220 500 ROSS STREET 154-0455
UNIVERSITY OF PITTSBURGH
OFFICE OF RESEARCH 123 UNIVERSITY	PITTSBURGH	PA	15213	125096559	501(C)3	$50,000	INVESTIGATOR INITIATED STARTER	PLACE B21
UNIVERSITY OF RHODE ISLAND
ATTN SPONSORED COST ACCOUNTING 70	KINGSTON	RI	02881	223011455	501(C)3	$50,000	INVESTIGATOR INITIATED MULTI-YEAR	LOWER COLLEGE RD
UNIVERSITY OF ROCHESTER
UNIVERSITY OF ROCHESTER MEDICAL	ROCHESTER	NY	14642	160743209	501(C)3	$56,310	STRATEGIC INITIATIVE	CENTER 601 ELMWOOD AVENUE BOX 673
UNIVERSITY OF SOUTHERN CALIFORNIA
3720 S FLOWER ST 3RD FLOOR	LOS ANGELES	CA	90090	951642394	501(C)3	$125,000	DRUG DEVELOPMENT CONTRACT
UNIVERSITY OF SOUTHERN CALIFORNIA
3720 S FLOWER ST 3RD FLOOR	LOS ANGELES	CA	90090	951642394	501(C)3	-$3,217	INVESTIGATOR INITIATED MULTI-YEAR
UNIVERSITY OF UTAH
175 N MEDICAL DR E ROOM 5001	SALT LAKE CITY	UT	84132	876000525	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF VERMONT MEDICAL CENTER
ALS CLINIC 1 SOUTH PROSPECT ST	BURLINGTON	VT	05401	030219309	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
UNIVERSITY OF VERMONT DEPARTMENT OF NEUROLOGICAL SCIENCES
ATTN JOANNE STETSON COLLEGE OF	BURLINGTON	VT	05405	030179440	501(C)3	$12,500	NNE CHAPTER SUPPORT OF VERMONT CLINICAL & RESEARCH	MEDICINE 89 BEAUMONT DR GIVEN C225
UNIVERSITY OF VIRGINIA DEPT OF NEUROLOGY
PO BOX 800394	CHARLOTTESVILLE	VA	22908	541124769	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT
VA CONNECTICUT RESEARCH AND EDUCATION FOUNDATION
950 CAMPBELL AVENUE BLDG 35A ROOM	WEST HAVEN	CT	06516	202206467	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	104
VA PUGET SOUND HEALTH CARE SYSTEM
ATTN VOLUNTARY SERVICE 1660 SOUTH	SEATTLE	WA	98108	741612229	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	COLUMBIAN WAY
VIRGINIA COMMONWEALTH UNIVERSITY
GRANTS CONTRACTS ACCOUNTING 800 E	RICHMOND	VA	232843039	546001758	501(C)3	$25,000	INVESTIGATOR INITIATED STARTER	LEIGH ST STE 3100 843039
VIRGINIA COMMONWEALTH UNIVERSITY
GRANTS CONTRACTS ACCOUNTING 800 E	RICHMOND	VA	232843039	546001758	501(C)3	$25,659	STRATEGIC INITIATIVE	LEIGH ST STE 3100 843039
VIRGINIA MASON MEDICAL CENTER ALS CLINIC
NEUROLOGY AND NEUROPHYSIOLOGY 1100	SEATTLE	WA	98111	910565539	501(C)3	$25,000	CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT	NINTH AVENUE PO BOX 900 M/S X7 NEU
WASHINGTON UNIVERSITY IN ST LOUIS
CAMPUS BOX 1034 700 ROSEDALE AVENUE	ST LOUIS	MO	63112	430653611	501(C)3	$24,966	ALSA INITIATED	AVENUE
WASHINGTON UNIVERSITY IN ST LOUIS
1 BROOKINGS DR CAMPUS BOX 1054	ST LOUIS	MO	63130	430653611	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR
WASHINGTON UNIVERSITY IN ST LOUIS
CAMPUS BOX 1034 700 ROSEDALE AVENUE	ST LOUIS	MO	63112	430653611	501(C)3	-$193	LOU GEHRIG CHALLENGE ALS	AVENUE
WASHINGTON UNIVERSITY IN ST LOUIS
CAMPUS BOX 1034 700 ROSEDALE AVENUE	ST LOUIS	MO	63112	430653611	501(C)3	$25,000	STRATEGIC INITIATIVE	AVENUE
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
RESEARCH ACCT C/O MELISSA PARAY 575	NEW YORK	NY	10022	133376695	501(C)3	$250,000	DRUG DEVELOPMENT CONTRACT	LEXINGTON AVE 9TH FLOOR
YALE UNIVERSITY
OFFICE OF SPONSORED PROJECTS P O	NEW HAVEN	CT	06508	060646973	501(C)3	$100,000	INVESTIGATOR INITIATED MULTI-YEAR	BOX 1873
YALE UNIVERSITY
OFFICE OF SPONSORED PROJECTS P O	NEW HAVEN	CT	06508	060646973	501(C)3	$49,969	STRATEGIC INITIATIVE	BOX 1873

Field	Value	IRS element (for citing)
Total501c3 Org	230	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Non Cash AssistanceNonCashAssistanceAmt	Valuation Method UsedValuationMethodUsedDesc	Non Cash AssistanceNonCashAssistanceDesc	Cash GrantCashGrantAmt
POWER LIFT SEATS	9	$16,164	FMV	POWER LIFT SEATS
CARE SERVICES GRANTS	64				$38,421

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	GRANT APPLICATIONS ARE REVIEWED BY COMMITTEES AND STAFF FOR APPROVAL. ALL GRANT AWARDED RESEARCHERS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (12 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
CALANEET BALAS
PRESIDENT & CEO	$308,632	$0	$50,000	$0	$0	$0	$41,250	$0	$7,813	$0	$407,695	$0	$0	$0
GREG MITCHELL
EXECUTIVE VP, FINANCE & ADMINISTRATI	$238,594	$0	$18,967	$0	$0	$0	$24,301	$0	$10,892	$0	$292,754	$0	$0	$0
LANCE SLAUGHTER
EXECUTIVE VP, CHAPTER RELATIONS & GO	$217,313	$0	$22,194	$0	$0	$0	$20,646	$0	$16,185	$0	$276,338	$0	$0	$0
NEIL THAKUR
EXECUTIVE VP, MISSION STRATEGY	$204,545	$0	$24,600	$0	$0	$0	$24,750	$0	$14,984	$0	$268,879	$0	$0	$0
TINA ZEFF
EXECUTIVE VP, DEVELOPMENT	$189,419	$0	$20,000	$0	$0	$0	$22,770	$0	$18,550	$0	$250,739	$0	$0	$0
BRIAN FREDERICK
EXECUTIVE VP, COMMUNICATION	$202,019	$0	$24,515	$0	$0	$0	$16,915	$0	$1,537	$0	$244,986	$0	$0	$0
KIMBERLY HARDING-MAGINNIS
SENIOR VP, CARE SERVICES	$194,734	$0	$0	$0	$0	$0	$5,924	$0	$8,901	$0	$209,559	$0	$0	$0
KATHLEEN SHEEHAN
VP, PUBLIC POLICY & ADVOCACY	$167,838	$0	$0	$0	$0	$0	$5,271	$0	$12,058	$0	$185,167	$0	$0	$0
TERESSA HARRIS
VP, FINANCE	$152,058	$0	$0	$0	$0	$0	$3,000	$0	$15,033	$0	$170,091	$0	$0	$0
MARY MORGAN ROTH
VP, COMMUNICATIONS	$156,688	$0	$0	$0	$0	$0	$4,246	$0	$8,558	$0	$169,492	$0	$0	$0
LYLES EDDINS
VP, DEVELOPMENT	$156,784	$0	$0	$0	$0	$0	$4,141	$0	$610	$0	$161,535	$0	$0	$0
MONICA SANTA CRUZ
VP, HUMAN RESOURCES & TALENT MANAGEM	$148,273	$0	$0	$0	$0	$0	$3,000	$0	$1,229	$0	$152,502	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 3	FormAndLineReferenceDesc
Explanation	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT.	ExplanationTxt

Schedule M IRS990ScheduleM

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	160	ContributionCnt
Noncash Contributions Rpt F990	$111,399	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	36	ContributionCnt
Noncash Contributions Rpt F990	$314,681	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG HIGH/LOW AT DATE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Form8283 Received	0	Form8283ReceivedCnt
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1	THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING.
FORM 990, PART VI, SECTION A, LINE 6	MEMBERS. THE MEMBERS OF THE ASSOCIATION (THE "MEMBERS AND EACH, A "MEMBER") SHALL BE CHARTERED CHAPTERS OF THE ASSOCIATION (THE "CHAPTERS AND EACH, A "CHAPTER"). CHAPTERS WITHOUT A CHARTER OR OTHER ENTITIES OR ORGANIZATIONS MAY BE AFFILIATED WITH AND/OR MANAGED BY THE ASSOCIATION, BUT ARE NOT ENTITLED TO ALL OF THE RIGHTS OF CHAPTERS AS PROVIDED BY THESE BYLAWS AND THE CHAPTER CHARTER AGREEMENT. CHAPTERS SHALL BE ADMITTED TO MEMBERSHIP BY THE BOT BASED ON CRITERIA CONSISTENT WITH THESE BYLAWS AS ADOPTED BY THE BOT.
FORM 990, PART VI, SECTION A, LINE 7A	BOARD OF REPRESENTATIVES ELECTS THE MEMBERS OF THE BOARD OF TRUSTEES. BOR IS COMPOSED OF A REPRESENTATIVE FROM EACH MEMBER/CHAPTER.
FORM 990, PART VI, SECTION B, LINE 11B	THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE CFO. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES.
FORM 990, PART VI, SECTION B, LINE 12C	ANNUALLY BOARD MEMBERS SIGN A NEW CONFLICT OF INTEREST STATEMENT AS WELL AS ALL STAFF. MANAGEMENT TRACKS THE CONFLICT OF INTEREST STATEMENTS FOR ALL BOARD AND COMMITTEE MEMBERS AS WELL AS STAFF. WHERE IT IS DETERMINED THAT AN ACTUAL CONFLICT OF INTEREST EXITS, THE RESPONSIBLE PERSON HAVING THE CONFLICT OF INTEREST SHALL NOT BE COUNTED IN DETERMINING THE PRESENCE OF A QUORUM FOR PURPOSES OF THE VOTE ON THAT CONTRACT OR TRANSACTION. SUCH RESPONSIBLE PERSON MAY MAKE A STATEMENT OR PRESENTATION REGARDING THE MATTER OR RESPOND TO QUESTIONS, BUT SUCH RESPONSIBLE PERSON (I) SHALL NOT PARTICIPATE IN OR BE PERMITTED TO HEAR THE BOARD'S OR ASSOCIATION COMMITTEE'S DISCUSSION OF THE MATTER; (II) SHALL NOT ATTEMPT TO EXERT HIS OR HER PERSONAL INFLUENCE WITH RESPECT TO THE MATTER, EITHER AT OR OUTSIDE THE MEETING; (III) SHALL NOT VOTE ON THE CONTRACT OR TRANSACTION; AND (IV) SHALL NOT BE PRESENT IN THE MEETING ROOM WHEN THE VOTE IS TAKEN.
FORM 990, PART VI, SECTION B, LINE 15	A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT/CEO, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT/CEO'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF TRUSTEES WITHOUT THE PARTICIPATION OF THE PRESIDENT/CEO. THIS PROCESS TAKES PLACE ANNUALLY. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT/CEO AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. THIS PROCESS TAKES PLACE ANNUALLY.
FORM 990, PART VI, SECTION C, LINE 19	THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION'S FORM 990S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT ITS OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL.
FORM 990, PART IX, LINE 11G	TELECOMMUNICATIONS, PUBLIC POLICY, OTHER CONSULTING: PROGRAM SERVICE EXPENSES 2,572,003. MANAGEMENT AND GENERAL EXPENSES 190,497. FUNDRAISING EXPENSES 803,414. TOTAL EXPENSES 3,565,914. DIRECT MAIL: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 1,631,663. TOTAL EXPENSES 1,631,663.
FORM 990, PART XI, LINE 9:	GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS 58,591. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS -33,766.