CHILDRENS TUMOR FOUNDATION: Form 990, tax year 2019
View the entire original 990 at ProPublica ↗
- Organization
- CHILDRENS TUMOR FOUNDATION (EIN 13-2298956)
- Tax period
- 2019-01-01 to 2019-12-31
- Filed
- 2020-08-26
- IRS object ID
- 202042399349300529
- Schema version
- 2019v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2020-08-26T12:55:46-05:00 | ReturnTs |
| Tax Period End | 2019-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 113518842 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MARKS PANETH LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 685 THIRD AVENUE | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10017 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2019-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 132298956 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CHILDREN'S TUMOR FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CHIL | BusinessNameControlTxt |
| Phone | 2123446633 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 370 LEXINGTON AVE NO 2100 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10017 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ANNETTE BAKKER PHD | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 2123446633 | PhoneNum |
| Signature | 2020-07-28 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | MAGDALENA CZERNIAWSKI CPA | PreparerPersonNm |
| PTIN | P00535099 | PTIN |
| Phone | 2125038800 | PhoneNum |
| Preparation | 2020-07-28 | PreparationDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 98.209.89.150 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2020-07-28 | IPDt |
| IP Tm | 11:58:05 | IPTm |
| IP Timezone | ED | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | E99CEA45C307B5E011B655275064C3D25F8033D4 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2019 | TaxYr |
| Build TS | 2020-11-19 02:30:22Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | ANNETTE BAKKER PHD | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 370 LEXINGTON AVE NO 2100 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10017 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $18,006,606 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CTF.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1978 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS. | ActivityOrMissionDesc |
| Voting Members Governing Body | 23 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 23 | VotingMembersIndependentCnt |
| Total Employee | 43 | TotalEmployeeCnt |
| Total Volunteers | 1000 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $11,939,258 | PYContributionsGrantsAmt |
| CY Contributions Grants | $16,140,037 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $1,338,437 | CYProgramServiceRevenueAmt |
| PY Investment Income | $108,474 | PYInvestmentIncomeAmt |
| CY Investment Income | $198,308 | CYInvestmentIncomeAmt |
| PY Other Revenue | $442,636 | PYOtherRevenueAmt |
| CY Other Revenue | $220,905 | CYOtherRevenueAmt |
| PY Total Revenue | $12,490,368 | PYTotalRevenueAmt |
| CY Total Revenue | $17,897,687 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $4,714,730 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $3,304,234 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $4,049,314 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $4,085,516 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $877,648 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $3,639,895 | PYOtherExpensesAmt |
| CY Other Expenses | $3,877,482 | CYOtherExpensesAmt |
| PY Total Expenses | $12,403,939 | PYTotalExpensesAmt |
| CY Total Expenses | $11,267,232 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $86,429 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $6,630,455 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $11,722,094 | TotalAssetsBOYAmt |
| Total Assets EOY | $19,223,379 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,209,782 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,535,050 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $10,512,312 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $17,688,329 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $6,751,593 | ExpenseAmt |
| Grant | $3,304,234 | GrantAmt |
| Revenue | $1,583,957 | RevenueAmt |
| Desc | RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $2,691,714 | ExpenseAmt |
| Desc | PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $9,443,307 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| Info In Schedule O Part V | Yes (X) | InfoInScheduleOPartVInd |
| IRP Document | 36 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 43 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 23 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 23 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ID | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ANNETTE BAKKER PRESIDENT | PersonNm |
| Phone | 2123446633 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 370 LEXINGTON AVE STE 2100 | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10017 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (32 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| AMY BOULAS | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| BRUCE R KORF MD PHD | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| CAROL KALAGHER | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| DANIEL ALTMAN | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| DANIEL GILBERT | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| GABRIEL GROISMAN | |||||||
| SECRETARY | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| JOHN GOLFINOS | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KENNETH RUDD | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| LAURA PERFETTI | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| LEE BABBIS | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| LINDA HALLIDAY MARTIN | |||||||
| CHAIR EMERITUS (OUTGOING) | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| LIZ RODBELL | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL PETERSON | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| PEGGY WALLACE | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RACHEL TIVEN | |||||||
| BOARD MEMBER (OUTGOING) | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RANDALL STANICKY | |||||||
| TREASURER | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| RENIE MOSS | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RICHARD HORVITZ | |||||||
| CHAIR | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| RICHARD SOLL | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ROBERT BRAININ | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SCOTT PLOTKIN | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| SIMONE MANSO | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| STEVEN L MCKENZIE | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| STUART SUNA | |||||||
| BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| TRACY GALLOWAY | |||||||
| VICE CHAIR | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| ANNETTE BAKKER | |||||||
| PRESIDENT | 37.50 | $327,948 | $0 | $32,800 | Yes (X) | ||
| SARAH BOURNE | |||||||
| VP, FINANCE AND OPERATIONS | 37.50 | $143,156 | $0 | $5,726 | Yes (X) | ||
| BARBARA GALLAGHER | |||||||
| VICE PRESIDENT OF DEVELOPMENT | 37.50 | $136,710 | $0 | $27,030 | Yes (X) | ||
| MICHELE PRZYPYSZNY | |||||||
| CHIEF ADVANCEMENT OFFICER | 37.50 | $229,294 | $0 | $14,441 | Yes (X) | ||
| PATRICE PANCZA | |||||||
| VP, EXTERNAL RELATIONS | 37.50 | $122,193 | $0 | $12,110 | Yes (X) | ||
| SALVATORE LA ROSA | |||||||
| CHIEF SCIENTIFIC OFFICER | 37.50 | $217,245 | $0 | $15,657 | Yes (X) | ||
| SIMON VUKELJ | |||||||
| CHIEF MARKETING OFFICER | 37.50 | $190,440 | $0 | $22,529 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,366,986 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $130,293 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 8 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SQUIRE PATTON BOGGS | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2550 MAIN ST NW | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20037 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | LOBBYING/ADVOCACY | ServicesDesc |
| Compensation | $307,999 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $18,435 | FederatedCampaignsAmt |
| Fundraising | $698,295 | FundraisingAmt |
| All Other Contributions | $15,423,307 | AllOtherContributionsAmt |
| Noncash Contributions | $1,033,245 | NoncashContributionsAmt |
| Total Contributions | $16,140,037 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PARTICIPANT REVENUE | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $1,338,437 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $1,338,437 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $1,338,437 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $200,112 | TotalRevenueColumnAmt |
| Exclusion | $200,112 | ExclusionAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,804 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$1,804 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$1,804 | TotalRevenueColumnAmt |
| Exclusion | -$1,804 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $82,500 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $698,295 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $107,115 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$24,615 | TotalRevenueColumnAmt |
| Exclusion | -$24,615 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $47,773 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $0 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $47,773 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $47,773 | RelatedOrExemptFuncIncomeAmt |
Other Revenue Misc OtherRevenueMiscGrp (3 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| RETURN OF UNUSED GRANTS | 900099 | $164,509 | $164,509 |
| BAD DEBT RECOVERY | 900099 | $20,000 | $20,000 |
| OTHER INCOME | 900099 | $13,238 | $13,238 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $197,747 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $17,897,687 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $1,583,957 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $173,693 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,724,549 | TotalAmt |
| Program Services | $2,724,549 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,593 | TotalAmt |
| Program Services | $49,593 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $530,092 | TotalAmt |
| Program Services | $530,092 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $509,631 | TotalAmt |
| Program Services | $312,076 | ProgramServicesAmt |
| Management And General | $113,665 | ManagementAndGeneralAmt |
| Fundraising | $83,890 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,906,520 | TotalAmt |
| Program Services | $2,402,920 | ProgramServicesAmt |
| Management And General | $226,186 | ManagementAndGeneralAmt |
| Fundraising | $277,414 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $99,712 | TotalAmt |
| Program Services | $78,602 | ProgramServicesAmt |
| Management And General | $11,193 | ManagementAndGeneralAmt |
| Fundraising | $9,917 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $268,897 | TotalAmt |
| Program Services | $205,877 | ProgramServicesAmt |
| Management And General | $34,526 | ManagementAndGeneralAmt |
| Fundraising | $28,494 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $300,756 | TotalAmt |
| Program Services | $228,801 | ProgramServicesAmt |
| Management And General | $39,100 | ManagementAndGeneralAmt |
| Fundraising | $32,855 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $35,546 | TotalAmt |
| Management And General | $35,546 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $270,000 | TotalAmt |
| Program Services | $270,000 | ProgramServicesAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $548,996 | TotalAmt |
| Program Services | $411,789 | ProgramServicesAmt |
| Management And General | $47,000 | ManagementAndGeneralAmt |
| Fundraising | $90,207 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,663 | TotalAmt |
| Program Services | $1,250 | ProgramServicesAmt |
| Management And General | $178 | ManagementAndGeneralAmt |
| Fundraising | $235 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $395,958 | TotalAmt |
| Program Services | $254,871 | ProgramServicesAmt |
| Management And General | $87,071 | ManagementAndGeneralAmt |
| Fundraising | $54,016 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $266,802 | TotalAmt |
| Program Services | $172,558 | ProgramServicesAmt |
| Management And General | $55,430 | ManagementAndGeneralAmt |
| Fundraising | $38,814 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $304,313 | TotalAmt |
| Program Services | $192,366 | ProgramServicesAmt |
| Management And General | $74,631 | ManagementAndGeneralAmt |
| Fundraising | $37,316 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $184,691 | TotalAmt |
| Program Services | $151,270 | ProgramServicesAmt |
| Management And General | $12,374 | ManagementAndGeneralAmt |
| Fundraising | $21,047 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $721,395 | TotalAmt |
| Program Services | $574,537 | ProgramServicesAmt |
| Management And General | $41,340 | ManagementAndGeneralAmt |
| Fundraising | $105,518 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $35,584 | TotalAmt |
| Program Services | $19,571 | ProgramServicesAmt |
| Management And General | $10,675 | ManagementAndGeneralAmt |
| Fundraising | $5,338 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,022 | TotalAmt |
| Program Services | $14,434 | ProgramServicesAmt |
| Management And General | $7,654 | ManagementAndGeneralAmt |
| Fundraising | $3,934 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| FOOD AND BEVERAGE | $457,498 | $419,145 | $14,471 | $23,882 |
| DUES AND OTHER FEES | $247,120 | $152,323 | $62,391 | $32,406 |
| CAMP EXPENSES | $149,750 | $149,750 | ||
| APPAREL | $116,978 | $83,929 | $12,665 | $20,384 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $115,166 | TotalAmt |
| Program Services | $43,004 | ProgramServicesAmt |
| Management And General | $60,181 | ManagementAndGeneralAmt |
| Fundraising | $11,981 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,267,232 | TotalAmt |
| Program Services | $9,443,307 | ProgramServicesAmt |
| Management And General | $946,277 | ManagementAndGeneralAmt |
| Fundraising | $877,648 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,541,111 | BOYAmt |
| EOY | $6,490,455 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,987,491 | BOYAmt |
| EOY | $7,032,148 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $674,500 | BOYAmt |
| EOY | $1,477,275 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $56,336 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $637 | BOYAmt |
| EOY | $1,270 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $189,331 | BOYAmt |
| EOY | $338,267 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $334,633 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $284,529 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $32,309 | BOYAmt |
| EOY | $50,104 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,280,199 | BOYAmt |
| EOY | $3,686,459 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,516 | BOYAmt |
| EOY | $91,065 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,722,094 | BOYAmt |
| EOY | $19,223,379 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $347,301 | BOYAmt |
| EOY | $411,814 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $650,295 | BOYAmt |
| EOY | $925,196 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $212,186 | BOYAmt |
| EOY | $198,040 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,209,782 | BOYAmt |
| EOY | $1,535,050 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,465,015 | BOYAmt |
| EOY | $7,112,042 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,047,297 | BOYAmt |
| EOY | $10,576,287 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,512,312 | BOYAmt |
| EOY | $17,688,329 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,722,094 | BOYAmt |
| EOY | $19,223,379 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $6,630,455 | ReconcilationRevenueExpnssAmt |
| Donated Services And Use Fclts | $545,562 | DonatedServicesAndUseFcltsAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $15,207,544 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $15,471,546 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $10,817,315 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $11,939,258 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $16,140,037 | CurrentTaxYearAmt |
| Total | $69,575,700 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $15,207,544 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $15,471,546 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $10,817,315 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $11,939,258 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $16,140,037 | CurrentTaxYearAmt |
| Total | $69,575,700 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $9,424,752 | SubstantialContributorsTotAmt |
| Public Support Total170 | $60,150,948 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $66,963 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $110,210 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $104,412 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $172,362 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $200,112 | CurrentTaxYearAmt |
| Total | $654,059 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $461,553 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $491,971 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $953,426 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $606,656 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $328,020 | CurrentTaxYearAmt |
| Total | $2,841,626 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $73,071,385 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $1,338,437 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.82320 | PublicSupportCY170Pct |
| Public Support PY170 | 0.89130 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | MISCELLANEOUS INCOME - 2015 AMOUNT: $ 56,252. 2016 AMOUNT: $ 41,162. 2017 AMOUNT: $ 491,993. 2018 AMOUNT: $ 6,844. 2019 AMOUNT: $ 13,238. FUNDRAISING - 2015 AMOUNT: $ 405,301. 2016 AMOUNT: $ 450,809. 2017 AMOUNT: $ 461,433. 2018 AMOUNT: $ 111,000. 2019 AMOUNT: $ 82,500. RETURN OF UNUSED GRANTS - 2018 AMOUNT: $ 456,233. 2019 AMOUNT: $ 164,509. BAD DEBT RECOVERY - 2019 AMOUNT: $ 20,000. SALE OF INVENTORY - 2018 AMOUNT: $ 32,579. 2019 AMOUNT: $ 47,773. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | Yes (1) | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | 0 | MailingsMembersInd |
| Publications Or Broadcast | 0 | PublicationsOrBroadcastInd |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $270,000 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | 0 | RalliesDemonstrationsInd |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $270,000 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II-B, LINE 1: | FormAndLineReferenceDesc |
| Explanation | THE AMOUNT OF $270,000 SPENT ON LOBBYING WAS FOR THE SOLE PURPOSE OF PURSUING THE MISSION OF THE ORGANIZATION. THIS WAS PAID TO OUTSIDE LOBBYING ENTITY SQUIRE PATTON BOGGS. | ExplanationTxt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $29,311 | OtherCostOrOtherBasisAmt |
| Depreciation | $28,593 | DepreciationAmt |
| Book Value | $718 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $305,322 | OtherCostOrOtherBasisAmt |
| Depreciation | $255,936 | DepreciationAmt |
| Book Value | $49,386 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $50,104 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| DEFERRED RENT | $2,240 |
| ASSETS HELD IN TRUST | $195,800 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $198,040 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $18,443,249 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $545,562 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $545,562 | RevenueNotReportedAmt |
| Revenue Subtotal | $17,897,687 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $17,897,687 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $11,267,232 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $11,267,232 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $11,267,232 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION HAS NO UNCERTAIN TAX POSITIONS AS OF DECEMBER 31, 2019, IN ACCORDANCE WITH ACCOUNTING STANDARDS CODIFICATION ("ASC") TOPIC 740, WHICH PROVIDES STANDARDS FOR ESTABLISHING AND CLASSIFYING ANY TAX PROVISIONS FOR UNCERTAIN TAX POSITIONS. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| EAST ASIA | 0 | 0 | RESEARCH GRANTS TO SCIENTIST | RESEARCH GRANTS | $140,000 |
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | 0 | 0 | RESEARCH GRANTS TO SCIENTISTS | RESEARCH GRANTS | $125,460 |
| NORTH AMERICA, CANADA, AND MEXICO | 0 | 0 | RESEARCH GRANTS TO SCIENTISTS | RSEARCH GRANTS | $264,632 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $530,092 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $530,092 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (6 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES | RESEARCH - SYNODOS | $264,632 | WIRE |
| EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, | RESEARCH - CRA | $80,000 | WIRE |
| EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA, | RESEARCH - CONTRACT AWARD | $60,000 | WIRE |
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | RESEARCH EVENT -YIA | $53,250 | WIRE |
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | RESEARCH - SYNODOS | $52,000 | WIRE |
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | RESEARCH - SYNODOS | $20,210 | WIRE |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 6 | Total501c3OrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | RESEARCHERS ARE REQUIRED TO SEND IN PROGRESS REPORTS. THESE REPORTS ARE REVIEWED BY THE RESEARCH DEPARTMENT STAFF. MANY OF THE GRANTS ARE CONTINGENT ON THE RESEARCHERS MEETING CERTAIN MILESTONES WHICH ARE OUTLINED IN THEIR PROGRESS REPORTS. |
| PART III ACCOUNTING METHOD: |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | NEW YORK CITY GALA | Event1Nm |
| Gross Receipts Event1 | $780,795 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $698,295 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $82,500 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $80,000 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $27,115 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $780,795 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $698,295 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $82,500 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $80,000 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $27,115 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $107,115 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$24,615 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (46 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| ADVENTHEALTH FOR CHILDREN | |||||||
| 601 E ROLLINS ST | ORLANDO | FL | 32803 | 590724459 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| ARKANSAS CHILDREN'S HOSPITAL | |||||||
| 1 CHILDRENS WAY | LITTLE ROCK | AR | 72202 | 710236857 | 501(C)(3) | $7,000 | RESEARCH - NF CLINIC NETWORK |
| BOSTON CHILDREN'S HOSPITAL | |||||||
| 300 LONGWOOD AVE | BOSTON | MA | 02115 | 042774441 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| BRIGHAM AND WOMEN'S HOSPITAL | |||||||
| 75 FRANCIS SREET | BOSTON | MA | 02115 | 042312909 | 501(C)(3) | $82,550 | RESEARCH - YIA & NFTC |
| CHILDREN'S HOSPITAL LOS ANGELES | |||||||
| 4650 W SUNSET BLVD | LOS ANGELES | CA | 90027 | 951690977 | 501(C)(3) | $6,760 | RESEARCH - NF CLINIC NETWORK |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | |||||||
| 3401 CIVIC CENTER BLVD | PHILADELPHIA | PA | 19104 | 231352166 | 501(C)(3) | $153,000 | RESEARCH - SYNODOS, OPG |
| CHILDREN'S RESEARCH INSTITUTE | |||||||
| 111 MICHIGAN AVE NW | WASHINGTON | DC | 20010 | 521654453 | 501(C)(3) | $39,404 | RESEARCH - CRA |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | |||||||
| 3333 BURNET AVENUE ML 4900 | CINCINNATI | OH | 45229 | 310833936 | 501(C)(3) | $27,880 | RESEARCH - YIA |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | |||||||
| 3333 BURNET AVENUE ML 4900 | CINCINNATI | OH | 45229 | 310833936 | 501(C)(3) | $6,750 | RESEARCH - NF CLINIC NETWORK |
| CLEVELAND CLINIC NEUROFIBROMATOSIS CLINIC | |||||||
| 6801 BRECKSVILLE RD NO RK1-85 | INDEPENDENCE | OH | 44131 | 912153073 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| DANA-FARBER CANCER INSTITUTE | |||||||
| 450 BROOKLINE AVENUE | BOSTON | MA | 02115 | 042263040 | 501(C)(3) | $54,000 | RESEARCH - YIA |
| GEORGETOWN UNIVERSITY | |||||||
| 37TH AND O STREETS NW | WASHINGTON | DC | 20057 | 530196603 | 501(C)(3) | $85,000 | RESEARCH - DDI/DDIRR |
| HOUSE RESEARCH INSTITUTE | |||||||
| 2100 WEST 3RD STREET | LOS ANGELES | CA | 90057 | 952127707 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| INVITAE CORPORATION | |||||||
| DEPT LA 23259 | PASADENA | CA | 91185 | 271701898 | 501(C)(3) | $49,500 | PATIENT SUPPORT - CLINIC NETWORK |
| JOHNS HOPKINS ALL CHILDREN'S HOSPITAL | |||||||
| 500 SEVENTH AVE SOUTH | ST PETERSBURG | FL | 33701 | 592481738 | 501(C)(3) | $5,300 | RESEARCH - NF CLINIC NETWORK |
| JOHNS HOPKINS UNIVERSITY | |||||||
| 3910 KESWICK ROAD | BALTIMORE | MD | 21211 | 237424444 | 501(C)(3) | $56,281 | RESEARCH - SYNODOS |
| MASSACHUSETTS GENERAL HOSPITAL | |||||||
| 55 FRUIT STREET | BOSTON | MA | 02114 | 041564655 | 501(C)(3) | $180,250 | RESEARCH - CONTRACT AWARD |
| MAYO CLINIC | |||||||
| 200 FIRST STREET SW | ROCHESTER | MN | 55905 | 416011702 | 501(C)(3) | $7,000 | RESEARCH - NF CLINIC NETWORK |
| MOFFITT CANCER CENTER | |||||||
| 12902 MAGNOLIA DRIVE | TAMPA | FL | 33612 | 593238636 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| NATIONAL DISEASE RESEARCH INTERCHANGE | |||||||
| 1628 JFK BLVD 8 PENN CENTER 15TH FL | PHILADELPHIA | PA | 19103 | 232213205 | 501(C)(3) | $36,260 | RESEARCH - BIOBANK |
| NEMOURS CHILDREN'S HEALTH SYSTEM | |||||||
| 10140 CENTURION PKWY N | JACKSONVILLE | FL | 32256 | 590634433 | 501(C)(3) | $8,500 | RESEARCH - NF CLINIC NETWORK |
| NF2 THERAPEUTICS | |||||||
| 471 CLINTON ROAD | CHESTNUT HILL | MA | 02467 | 815242264 | 501(C)(3) | $40,000 | RESEARCH - CONTRACT AWARD |
| NYU LANGONE HEALTH SYSTEM | |||||||
| 550 1ST AVE | NEW YORK | NY | 10016 | 472613531 | 501(C)(3) | $6,440 | RESEARCH - NF CLINIC NETWORK |
| PRECISION BIOSERVICES INC | |||||||
| 8425 PRECISION WAY | FREDERICK | MD | 21701 | 352463752 | 501(C)(3) | $43,573 | RESEARCH - OPG |
| PRESIDENT AND FELLOWS OF HARVARD COLLEGE | |||||||
| 1033 MASSACHUSETTS AVE STE 3 | CAMBRIDGE | MA | 02138 | 042103580 | 501(C)(3) | $32,000 | RESEARCH - YIA |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA | |||||||
| 1111 FRANKLIN ST 6TH FL | OAKLAND | CA | 94607 | 943067788 | 501(C)(3) | $82,787 | RESEARCH - SYNODOS & YIA |
| SAGE BIONETWORKS | |||||||
| 2901 3RD AVE STE 330 | SEATTLE | WA | 98121 | 264489946 | 501(C)(3) | $228,957 | RESEARCH - CONTRACT AWARD |
| SANFORD RESEARCH | |||||||
| 2301 E 60TH ST N | SIOUX FALLS | SD | 57104 | 460450378 | 501(C)(3) | $116,883 | RESEARCH - SYNODOS |
| ST JOSEPH'S REGIONAL MEDICAL CENTER | |||||||
| PO BOX 816 | LEWISTON | ID | 83501 | 820204264 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| STANFORD UNIVERSITY | |||||||
| 800 LAKERSHORE DR | BIRMINGHAM | AL | 35229 | 630312914 | 501(C)(3) | $6,500 | RESEARCH - NF CLINIC NETWORK |
| THE UNIVERSITY OF TEXAS M D ANDERSON CANCER CENTER | |||||||
| PO BOX 4486 | HOUSTON | TX | 77210 | 746001118 | 501(C)(3) | $47,592 | RESEARCH - DDI/DDIRR |
| UC REGENTS | |||||||
| 1111 FRANKLIN ST 6TH FL | OAKLAND | CA | 94607 | 943067788 | 501(C)(3) | $59,109 | RESEARCH - CONTRACT AWARD |
| UCLA HEALTH | |||||||
| 10920 WILSHIRE BLVD STE 620 | LOS ANGELES | CA | 90024 | 956006143 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF ALABAMA AT BIRMINGHAM | |||||||
| PO BOX 870142 | TUSCALOOSA | AL | 35487 | 636001138 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF ALABAMA AT BIRMINGHAM | |||||||
| PO BOX 870142 | TUSCALOOSA | AL | 35487 | 636001138 | 501(C)(3) | $89,535 | RESEARCH - CONTRACT AWARD & CRA |
| UNIVERSITY OF ARIZONA | |||||||
| 1111 N CHERRY AVE | TUCSON | AZ | 85721 | 866050388 | 501(C)(3) | $46,624 | RESEARCH - CONTRACT AWARD |
| UNIVERSITY OF IOWA | |||||||
| 1 W PARK RD | IOWA CITY | IA | 52242 | 420796760 | 501(C)(3) | $135,652 | RESEARCH - SYNODOS |
| UNIVERSITY OF KENTUCKY | |||||||
| 301 PETERSON SERVICE BLDG | LEXINGTON | KY | 40506 | 616001218 | 501(C)(3) | $7,000 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF MINNESOTA | |||||||
| 200 OAK ST SE STE 500 | MINNEAPOLIS | MN | 55455 | 416042488 | 501(C)(3) | $30,000 | RESEARCH - YIA |
| UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER | |||||||
| 2501 N BLACKWELDER AVE | OKLAHOMA CITY | OK | 73106 | 730579265 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF ROCHESTER MEDICAL CENTER DEPARTMENT OF CHILD NEUROLOGY | |||||||
| PO BOX 278893 | ROCHESTER | NY | 14627 | 160743209 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF UTAH | |||||||
| 201 PRESIDENTS CIR | SALT LAKE CITY | UT | 84112 | 876000525 | 501(C)(3) | $6,000 | RESEARCH - NF CLINIC NETWORK |
| UNIVERSITY OF WASHINGTON | |||||||
| 407 GERBERDING HALL | SEATTLE | WA | 98195 | 943079432 | 501(C)(3) | $67,616 | RESEARCH - SYNODOS |
| VAN ANDEL RESEARCH INSTITUTE | |||||||
| 333 BOSTWICK AVE NE | GRAND RAPIDS | MI | 49503 | 522000823 | 501(C)(3) | $32,000 | RESEARCH - YIA |
| VANDERBILT UNIVERSITY MEDICAL CENTER | |||||||
| 1161 21ST AVE S | NASHVILLE | TN | 37232 | 352528741 | 501(C)(3) | $6,440 | RESEARCH - NF CLINIC NETWORK |
| WASHINGTON UNIVERSITY | |||||||
| 700 ROSEDALE AVE | SAINT LOUIS | MO | 63112 | 430653611 | 501(C)(3) | $100,087 | RESEARCH - SYNODOS |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 46 | Total501c3OrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | NF CONFERENCE TRAVEL GRANT | GrantTypeTxt |
| Recipient | 61 | RecipientCnt |
| Cash Grant | $49,593 | CashGrantAmt |
| Non Cash Assistance | TRAVEL GRANT | NonCashAssistanceDesc |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANTS ARE MONITORED THROUGH THE USE OF PROGRESS REPORTS. RESEARCH TEAMS ARE REQUIRED TO SEND IN PROGRESS REPORTS TO THE CHILDREN'S TUMOR FOUNDATION'S RESEARCH DEPARTMENT PERIODICALLY. MANY OF OUR GRANT PAYMENTS ARE CONTINGENT ON RECEIVING THESE PROGRESS REPORTS. ALL PROGRESS REPORTS ARE REVIEWED BY SOMEONE AT THE FOUNDATION. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (5 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| ANNETTE BAKKER | ||||||||||||||
| PRESIDENT | $315,548 | $0 | $12,400 | $0 | $0 | $0 | $11,200 | $0 | $21,600 | $0 | $360,748 | $0 | $0 | $0 |
| BARBARA GALLAGHER | ||||||||||||||
| VICE PRESIDENT OF DEVELOPMENT | $135,310 | $0 | $1,400 | $0 | $0 | $0 | $5,703 | $0 | $21,327 | $0 | $163,740 | $0 | $0 | $0 |
| MICHELE PRZYPYSZNY | ||||||||||||||
| CHIEF ADVANCEMENT OFFICER | $225,919 | $0 | $3,375 | $0 | $0 | $0 | $7,232 | $0 | $7,209 | $0 | $243,735 | $0 | $0 | $0 |
| SALVATORE LA ROSA | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $206,995 | $0 | $10,250 | $0 | $0 | $0 | $8,777 | $0 | $6,880 | $0 | $232,902 | $0 | $0 | $0 |
| SIMON VUKELJ | ||||||||||||||
| CHIEF MARKETING OFFICER | $183,440 | $0 | $7,000 | $0 | $0 | $0 | $7,790 | $0 | $14,739 | $0 | $212,969 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 7 | FormAndLineReferenceDesc |
| Explanation | BONUSES WERE APPROVED BY THE BOARD OF DIRECTORS. | ExplanationTxt |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 1 | ContributionCnt |
| Noncash Contributions Rpt F990 | $1,009,664 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | OTHER | Desc |
| Contribution | 30 | ContributionCnt |
| Noncash Contributions Rpt F990 | $23,581 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, COLUMN (B): | FormAndLineReferenceDesc |
| Explanation | THE AMOUNT IN COLUMN (B) REPRESENTS THE NUMBER OF CONTRIBUTORS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 2A: | THE ORGANIZATION USES INSPERITY AS PROFESSIONAL EMPLOYMENT ORGANIZATION. THEY ISSUE THE W-2S FOR THE ORGANIZATION. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE COMPLETE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTANT AND IS DISTRIBUTED IN DRAFT FORM VIA E-MAIL TO ALL BOARD MEMBERS WITH A RETURN RECEIPT PRIOR TO FILING. EACH BOARD MEMBER ACKNOWLEDGES THEIR RECEIPT, REVIEW, AND ACCEPTANCE OF THE FORM 990. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY AND REGULARLY AND CONSISTENTLY MONITORS AND ENFORCES COMPLIANCE WITH THE POLICY ON AN ANNUAL BASIS. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE ORGANIZATION'S TOP MANAGEMENT AND KEY EMPLOYEES ARE REVIEWED FOR PERFORMANCE ON AN ANNUAL BASIS. COMPENSATION FOR THESE POSITIONS ARE REVIEWED AND APPROVED BY THE BOARD'S PERSONNEL COMMITTEE. COMPENSATION IS DETERMINED USING CURRENTLY AVAILABLE SALARY DATA FOR NON-PROFITS OF SIMILAR SIZE AND MISSION IN THE NEW YORK CITY AREA. |
| FORM 990, PART VI, SECTION C, LINE 19 | ALL DOCUMENTS ARE AVAILABLE UPON REQUEST WITHIN THE PRESCRIBED TIME FRAMES AS REQUIRED. |
| FORM 990, PART XII, LINE 2C | THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. |