FOUNDATION FOR PRADER WILLI RESEARCH: Form 990, tax year 2019
View the entire original 990 at ProPublica ↗
- Organization
- FOUNDATION FOR PRADER WILLI RESEARCH (EIN 31-1763110)
- Tax period
- 2019-01-01 to 2019-12-31
- Filed
- 2020-11-16
- IRS object ID
- 202043219349303884
- Schema version
- 2019v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2020-11-16T09:21:32-06:00 | ReturnTs |
| Tax Period End | 2019-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 271728945 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PKF O'CONNOR DAVIES LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 665 FIFTH AVENUE | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10022 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2019-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 311763110 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FOUNDATION FOR PRADER-WILLI | BusinessNameLine1Txt |
| Business Name Line2 | RESEARCH INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | FOUN | BusinessNameControlTxt |
| Phone | 8883225487 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 340 S LEMON AVE NO 3620 | AddressLine1Txt |
| City | WALNUT | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 917892706 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JOHN WALTER | PersonNm |
| Person Title | CEO | PersonTitleTxt |
| Phone | 8883225487 | PhoneNum |
| Signature | 2020-11-16 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | GARRETT M HIGGINS | PreparerPersonNm |
| PTIN | P00543209 | PTIN |
| Phone | 9143818900 | PhoneNum |
| Preparation | 2020-11-16 | PreparationDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 66.108.235.87 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2020-11-16 | IPDt |
| IP Tm | 08:37:11 | IPTm |
| IP Timezone | ES | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | DA39A3EE5E6B4B0D3255BFEF95601890AFD80709 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 8B9532C6912B3E39A4E7E5ED0BE6E8176682D039 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2019 | TaxYr |
| Build TS | 2021-01-29 14:40:06Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | SUSAN HEDSTROM | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 340 S LEMON AVE NO 3620 | AddressLine1Txt |
| City | WALNUT | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 917892706 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $4,185,722 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.FPWR.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2001 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | SUPPORTS RESEARCH TO ADVANCE THE UNDERSTANDING AND TREATMENT OF PRADER-WILLI SYNDROME | ActivityOrMissionDesc |
| Voting Members Governing Body | 16 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 16 | VotingMembersIndependentCnt |
| Total Employee | 11 | TotalEmployeeCnt |
| Total Volunteers | 100 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $3,950,192 | PYContributionsGrantsAmt |
| CY Contributions Grants | $3,863,432 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $159,797 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $223,944 | CYProgramServiceRevenueAmt |
| PY Investment Income | $40,045 | PYInvestmentIncomeAmt |
| CY Investment Income | $54,246 | CYInvestmentIncomeAmt |
| PY Other Revenue | $2,589 | PYOtherRevenueAmt |
| CY Other Revenue | -$79,297 | CYOtherRevenueAmt |
| PY Total Revenue | $4,152,623 | PYTotalRevenueAmt |
| CY Total Revenue | $4,062,325 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,739,078 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,534,954 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,097,677 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,173,370 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $38,302 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $8,390 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $311,458 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $718,862 | PYOtherExpensesAmt |
| CY Other Expenses | $777,292 | CYOtherExpensesAmt |
| PY Total Expenses | $3,593,919 | PYTotalExpensesAmt |
| CY Total Expenses | $4,494,006 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $558,704 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$431,681 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $5,481,978 | TotalAssetsBOYAmt |
| Total Assets EOY | $5,712,409 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,299,792 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,108,729 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,182,186 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $3,603,680 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $3,750,071 | ExpenseAmt |
| Grant | $2,534,954 | GrantAmt |
| Revenue | $223,944 | RevenueAmt |
| Desc | THROUGH THE IMPLEMENTATION OF TRANSLATIONAL RESEARCH PROGRAMS, THE MANAGEMENT OF A WORLD-CLASS GRANTS PROGRAM, AND THE DEVELOPMENT OF PRADER WILLI SYNDROME (PWS) RESEARCH TOOLS, THE FOUNDATION FOR PRADER-WILL RESEARCH (FPWR) ADVANCES RESEARCH IN ORDER TO DEVELOP NEW TREATMENTS FOR PWS AND IMPROVE THE HEALTH AND WELL-BEING OF THOSE WITH PWS. UNDER THE GUIDANCE OF OUR SCIENTIFIC ADVISORY BOARD THROUGH A CAREFULLY MANAGED GRANTS PROCESS, FPWR SELECTS RESEARCH PROJECTS BASED ON THE COLLABORATIVE INPUT OF RESEARCHERS AND PARENTS, CHOOSING PROJECTS THAT ARE BOTH SCIENTIFICALLY MERITORIOUS AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PWS AND THEIR FAMILIES. | Desc |
| Total Program Service Expenses | $3,750,071 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 17 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 11 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 16 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 16 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | Yes (1) | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | JONES & ASSOCIATES | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3237829391 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6300 WILSHIRE BLVD STE 860 | AddressLine1Txt |
| City | LOS ANGELES | CityNm |
| State Abbreviation | CA | StateAbbreviationCd |
| ZIP | 90048 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|---|
| JOHN WALTER | ||||||||
| CEO | 40.00 | Yes (X) | $270,465 | $0 | $35,156 | |||
| NATHALIE KAYADJANIAN | ||||||||
| DIRECTOR OF TRANSLATIONAL RESEARCH | 40.00 | $181,695 | $0 | $6,699 | Yes (X) | |||
| THERESA STRONG | ||||||||
| DIRECTOR OF RESEARCH PROGRAMS | 40.00 | $149,861 | $0 | $92 | Yes (X) | |||
| SUSAN HEDSTROM | ||||||||
| EXECUTIVE DIRECTOR | 40.00 | Yes (X) | $71,284 | $0 | $32 | |||
| DANIEL CHORNEY | ||||||||
| PRESIDENT | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| ALICIA SECOR | ||||||||
| VICE PRESIDENT | 0.50 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| JEANNINE KOWAL | ||||||||
| SECRETARY | 0.50 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| JASON WALDROP - TREASURER | ||||||||
| (THRU 05/2019); BOARD MEMBER | 0.50 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| BRENT SNYDER | ||||||||
| TREASURER | 0.50 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| IAN ALBERG | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| SCOTT ARANT | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| DANA CAPOBIANCO | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| BRIAN DULA | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| KATIE GILLIAM | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| DREW HARMAN | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| JACK JONES | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| GUY NIEDORKOM | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| DAVID PFIEFFER | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| JONATHAN SEBAT | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| PAUL WISSMAN | ||||||||
| BOARD MEMBER | 0.50 | $0 | $0 | $0 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $673,305 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $41,979 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (2 entries)
| Address Line1ContractorAddress/ForeignAddress/AddressLine1Txt | CityContractorAddress/ForeignAddress/CityNm | CountryContractorAddress/ForeignAddress/CountryCd | Foreign PostalContractorAddress/ForeignAddress/ForeignPostalCd | ServicesServicesDesc | CompensationCompensationAmt | Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd |
|---|---|---|---|---|---|---|---|---|---|
| MEDICAL RESEARCH COUNCIL (MRC) UK SBS AC | |||||||||
| CARDIFF ROAD | NEWPORT | UK | NP10 8QQ 01 | RESEARCH SERVICES | $294,810 | ||||
| DOUBLETREE NEW ORLEANS | |||||||||
| CONFERENCE SERVICES | $107,614 | 300 CANAL STREET | NEW ORLEANS | LA | 70130 | ||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 2 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $243,990 | FundraisingAmt |
| All Other Contributions | $3,619,442 | AllOtherContributionsAmt |
| Noncash Contributions | $2,920 | NoncashContributionsAmt |
| Total Contributions | $3,863,432 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE REVENUE | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $223,944 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $223,944 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $223,944 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $54,246 | TotalRevenueColumnAmt |
| Exclusion | $54,246 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $44,100 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $243,990 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $123,397 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$79,297 | TotalRevenueColumnAmt |
| Exclusion | -$79,297 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $4,062,325 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $223,944 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$25,051 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,760,214 | TotalAmt |
| Program Services | $1,760,214 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $774,740 | TotalAmt |
| Program Services | $774,740 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $565,331 | TotalAmt |
| Program Services | $380,632 | ProgramServicesAmt |
| Management And General | $74,990 | ManagementAndGeneralAmt |
| Fundraising | $109,709 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $524,184 | TotalAmt |
| Program Services | $352,929 | ProgramServicesAmt |
| Management And General | $69,532 | ManagementAndGeneralAmt |
| Fundraising | $101,723 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,296 | TotalAmt |
| Program Services | $4,239 | ProgramServicesAmt |
| Management And General | $835 | ManagementAndGeneralAmt |
| Fundraising | $1,222 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $77,559 | TotalAmt |
| Program Services | $52,220 | ProgramServicesAmt |
| Management And General | $10,288 | ManagementAndGeneralAmt |
| Fundraising | $15,051 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $24,166 | TotalAmt |
| Program Services | $16,270 | ProgramServicesAmt |
| Management And General | $3,206 | ManagementAndGeneralAmt |
| Fundraising | $4,690 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,450 | TotalAmt |
| Management And General | $3,450 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $54,253 | TotalAmt |
| Management And General | $54,253 | ManagementAndGeneralAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,390 | TotalAmt |
| Fundraising | $8,390 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $212,928 | TotalAmt |
| Program Services | $94,917 | ProgramServicesAmt |
| Management And General | $118,011 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,652 | TotalAmt |
| Management And General | $2,652 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $139,245 | TotalAmt |
| Program Services | $37,027 | ProgramServicesAmt |
| Management And General | $62,462 | ManagementAndGeneralAmt |
| Fundraising | $39,756 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $22,144 | TotalAmt |
| Program Services | $173 | ProgramServicesAmt |
| Management And General | $8,827 | ManagementAndGeneralAmt |
| Fundraising | $13,144 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $80,704 | TotalAmt |
| Program Services | $64,728 | ProgramServicesAmt |
| Management And General | $9,937 | ManagementAndGeneralAmt |
| Fundraising | $6,039 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $86,077 | TotalAmt |
| Program Services | $85,758 | ProgramServicesAmt |
| Management And General | $319 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $774 | TotalAmt |
| Management And General | $774 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,553 | TotalAmt |
| Management And General | $12,553 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| OTHER EXPENSES | $114,457 | $102,445 | $278 | $11,734 |
| AUDIO VISUAL EXPENSES | $23,889 | $23,779 | $110 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,494,006 | TotalAmt |
| Program Services | $3,750,071 | ProgramServicesAmt |
| Management And General | $432,477 | ManagementAndGeneralAmt |
| Fundraising | $311,458 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $50,123 | BOYAmt |
| EOY | $431 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,841,983 | BOYAmt |
| EOY | $5,301,292 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $73,165 | BOYAmt |
| EOY | $183,738 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $24,977 | BOYAmt |
| EOY | $64,235 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $6,967 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $774 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $6,193 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,491,730 | BOYAmt |
| EOY | $6,520 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $150,000 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,481,978 | BOYAmt |
| EOY | $5,712,409 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $244,600 | BOYAmt |
| EOY | $89,961 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,055,192 | BOYAmt |
| EOY | $2,018,768 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,299,792 | BOYAmt |
| EOY | $2,108,729 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,851,584 | BOYAmt |
| EOY | $3,205,976 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $330,602 | BOYAmt |
| EOY | $397,704 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,182,186 | BOYAmt |
| EOY | $3,603,680 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,481,978 | BOYAmt |
| EOY | $5,712,409 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$431,681 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $25,975 | NetUnrlzdGainsLossesInvstAmt |
| Prior Period Adjustments | -$172,800 | PriorPeriodAdjustmentsAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,936,741 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,359,978 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,245,876 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,950,192 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,863,432 | CurrentTaxYearAmt |
| Total | $17,356,219 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,936,741 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,359,978 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,245,876 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $3,950,192 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,863,432 | CurrentTaxYearAmt |
| Total | $17,356,219 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $2,623,309 | SubstantialContributorsTotAmt |
| Public Support Total170 | $14,732,910 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,128 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $17,552 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $25,649 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $40,045 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $54,246 | CurrentTaxYearAmt |
| Total | $144,620 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $2,589 | CurrentTaxYearMinus1YearAmt |
| Total | $2,589 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $17,503,428 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $383,741 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.84170 | PublicSupportCY170Pct |
| Public Support PY170 | 0.85500 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $6,967 | OtherCostOrOtherBasisAmt |
| Depreciation | $774 | DepreciationAmt |
| Book Value | $6,193 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $6,193 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $4,088,300 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $25,975 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $25,975 | RevenueNotReportedAmt |
| Revenue Subtotal | $4,062,325 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $4,062,325 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $4,494,006 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $4,494,006 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $4,494,006 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION RECOGNIZES THE EFFECT OF INCOME TAX POSITIONS ONLY IF THOSE POSITIONS ARE MORE LIKELY NOT TO BE SUSTAINED. MANAGEMENT HAS DETERMINED THAT THE FOUNDATION HAD NO UNCERTAIN POSITIONS THAT WOULD REQUIRE FINANCIAL STATEMENT RECOGNITION OR DISCLOSURE. THE FOUNDATION IS NO LONGER SUBJECT TO EXAMINATIONS BY THE APPLICABLE TAXING JURISDICTIONS FOR PERIODS PRIOR TO 2016. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | GRANTS TO RECIPIENTS IN REGION FOR RESEARCH | $299,275 |
| NORTH AMERICA | GRANTS TO RECIPIENTS IN REGION FOR RESEARCH | $218,000 |
| EAST ASIA AND THE PACIFIC | GRANTS TO RECIPIENTS IN REGION FOR RESEARCH | $254,348 |
| MIDDLE EAST AND NORTH AFRICA | GRANTS TO RECIPIENTS IN REGION FOR RESEARCH | $3,117 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $774,740 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $774,740 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (8 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $95,598 | WIRE TRANSFER |
| EAST ASIA AND THE PACIFIC | RESEARCH | $97,200 | WIRE TRANSFER |
| EAST ASIA AND THE PACIFIC | RESEARCH | $7,920 | WIRE TRANSFER |
| NORTH AMERICA | RESEARCH | $110,000 | WIRE TRANSFER |
| EAST ASIA AND THE PACIFIC | RESEARCH | $149,228 | WIRE TRANSFER |
| NORTH AMERICA | RESEARCH | $108,000 | WIRE TRANSFER |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $108,000 | WIRE TRANSFER |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH | $92,077 | WIRE TRANSFER |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 8 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | THE FOUNDATION FOR PRADER-WILLI RESEARCH ("FPWR") HAS A PROFESSIONALLY MANAGED GRANT PROCESS THAT ELECTS PROJECTS BASED ON THE COLLABORATIVE INPUT OF BOTH SCIENTISTS AND PARENTS. FPWR CHOOSES PROJECTS THAT ARE BOTH SCIENTIFICALLY SOUND AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PRADER-WILLI SYNDROME ("PWS") AND THEIR FAMILIES. FPWR'S GRANT PROCESS IS MANAGED BY A SCIENTIFIC ADVISORY BOARD THAT HAS ESTABLISHED THE FOLLOWING OBJECTIVES. 1. STIMULATE RESEARCH THAT WILL ADDRESS THE CHALLENGES FACED BY THOSE WITH PWS. 2. SUPPORT RESEARCH THAT DIRECTLY DEVELOPS AND EVALUATES NEW THERAPEUTIC APPROACHES TO PWS. 3. SUPPORT INNOVATIVE RESEARCH THAT WILL LEAD TO SIGNIFICANT ADVANCES IN UNDERSTANDING PWS. 4. SUPPORT EARLY STUDIES THAT ALLOW INVESTIGATORS TO OBTAIN THE NECESSARY DATA TO SUPPORT FURTHER INVESTIGATION OF PWS. 5. INVOLVE PARENTS IN THE PROCESS OF IDENTIFYING RELEVANT AREAS OF RESEARCH AND SELECTING THE MOST DESERVING RESEARCH PROPOSALS. TO REACH THESE OBJECTIVES, FPWR TARGET THE FOLLOWING GROUPS FOR ALLOCATION OF RESEARCH GRANTS, ALL WITH THE GOAL OF BROADENING THE BASE OF RESEARCH DONE ON PWS. 1. NEW INVESTIGATORS TO HELP THEM ESTABLISH CAREERS IN PWS RESEARCH. 2. WELL ESTABLISHED NON-PWS INVESTIGATORS TO HELP THEM BRING EXPERTISE IN RELEVANT AREAS OF RESEARCH TO ADDRESS THE PROBLEMS ASSOCIATED WITH PWS. 3. ESTABLISHED PWS INVESTIGATORS TO HELP THEM INITIATE NEW LINES OF PWS RESEARCH. |
| PART I, LINE 3: | THE EXPENSES REPORTED IN PART I, LINE 3 AND PART II ARE ACCOUNTED FOR USING THE ACCRUAL METHOD OF ACCOUNTING. |
| PART III ACCOUNTING METHOD: |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | IGGSF | Event1Nm |
| Gross Receipts Event1 | $186,607 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $170,607 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $16,000 | GrossRevenueEvent1Amt |
| Food And Beverage Event1 | $29,473 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $10,000 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $1,331 | OtherDirectExpensesEvent1Amt |
| Event2 | PARS 4 PAYTON | Event2Nm |
| Gross Receipts Event2 | $97,856 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $73,256 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $24,600 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $9,320 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $6,083 | FoodAndBeverageEvent2Amt |
| Other Direct Expenses Event2 | $7,446 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 5 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $3,627 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $127 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $3,500 | GrossRevenueOtherEventsAmt |
| Rent Fclty Costs Other Events | $14,908 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $2,244 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $400 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $42,192 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $288,090 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $243,990 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $44,100 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $24,228 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $37,800 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $10,400 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $50,969 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $123,397 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$79,297 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (19 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| ALBERT EINSTEIN COLLEGE OF MEDICINE AND MONTEFIORE MEDICAL CENTER | |||||||
| 111 E 210TH ST | BRONX | NY | 10467 | 131740114 | 501(C)(3) | $108,000 | RESEARCH |
| CORNELL UNIVERSITY | |||||||
| 341 PINE TREE ROAD | ITHACA | NY | 14850 | 150532082 | 501(C)(3) | $54,000 | RESEARCH |
| JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE | |||||||
| 733 N BROADWAY SUITE 117 | BALTIMORE | MD | 21205 | 520595110 | 501(C)(3) | $64,800 | RESEARCH |
| MASSACHUSETTS GENERAL HOSPITAL | |||||||
| 125 NASHUA ST SUITE 540 | BOSTON | MA | 02114 | 041564655 | 501(C)(3) | $145,584 | RESEARCH |
| NYU WINTHROP HOSPITAL | |||||||
| 259 FIRST STREET | MINEOLA | NY | 11501 | 111633486 | 501(C)(3) | $108,000 | RESEARCH |
| PLEA AGENCY | |||||||
| 733 SOUTH AVENUE | PITTSBURGH | PA | 15221 | 237007910 | 501(C)(3) | $34,290 | RESEARCH |
| PURDUE UNIVERSITY | |||||||
| 1281 WIN HENTSCHEL BLVD SUITE 1100 | WEST LAFAYETTE | IN | 479064182 | 356002041 | 501(C)(3) | $75,598 | RESEARCH |
| ST JUDE CHILDREN'S RESEARCH HOSPITAL | |||||||
| 262 DANNY THOMAS PLACE | MEMPHIS | TN | 38105 | 620646012 | 501(C)(3) | $108,000 | RESEARCH |
| THE SALK INSTITUTE FOR BIOLOGICAL STUDIES | |||||||
| 10010 NORTH TORREY PINES ROAD | LA JOLLA | CA | 92037 | 952160097 | 501(C)(3) | $200,000 | RESEARCH |
| UNIVERSITY OF ALABAMA | |||||||
| BOX 870136 | TUSCALOOSA | AL | 35487 | 636001138 | 501(C)(3) | $140,811 | RESEARCH |
| UNIVERSITY OF ARIZONA | |||||||
| PO BOX 41867 | TUSCON | AZ | 85717 | 742652689 | STATE OF AZ | $64,800 | RESEARCH |
| UNIVERSITY OF COLORADO DENVER | |||||||
| 1800 GRANT STREET SUITE 600 | DENVER | CO | 80203 | 846000555 | 501(C)(3) | $23,869 | RESEARCH |
| UNIVERSITY OF CONNECTICUT | |||||||
| 263 FARMINGTON AVENUE | FARMINGTON | CT | 06030 | 060772160 | STATE OF CT | $54,000 | RESEARCH |
| UNIVERSITY OF FLORIDA | |||||||
| 123 GRINTER HALL | GAINESVILLE | FL | 32611 | 596002052 | STATE OF FL | $109,516 | RESEARCH |
| UNIVERSITY OF IOWA | |||||||
| 118 SOUTH CLINTON STREET | IOWA CITY | IA | 52245 | 426004813 | STATE OF IA | $64,800 | RESEARCH |
| UNIVERSITY OF MICHIGAN | |||||||
| 500 S STATE STREET | ANN ARBOR | MI | 48109 | 386006309 | 501(C)(3) | $105,300 | RESEARCH |
| UNIVERSITY OF PITTSBURGH | |||||||
| PO BOX 371220 | PITTSBURGH | PA | 15251 | 250965591 | 501(C)(3) | $6,000 | RESEARCH |
| UNIVERSITY OF TENNESSEE | |||||||
| 910 MADISON AVENUE SUITE 823 | MEMPHIS | TN | 38163 | 626001636 | STATE OF TN | $32,400 | RESEARCH |
| YALE UNIVERSITY | |||||||
| PO BOX 1873 | NEW HAVEN | CT | 065081873 | 060646973 | 501(C)(3) | $107,999 | RESEARCH |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 19 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE FOUNDATION FOR PRADER-WILLI RESEARCH (FPWR) IS DEDICATED TO SUPPORTING RESEARCH TO ADVANCE THE UNDERSTANDING AND TREATMENT OF PRADER-WILLI SYNDROME (PWS). WE INVITE APPLICATIONS FOR FUNDING ON AN ANNUAL OR SEMIANNUAL BASIS, IN RESPONSE TO A REQUEST FOR APPLICATIONS. FPWR ACCEPTS APPLICATIONS IN ALL AREAS OF RESEARCH RELEVANT TO PWS, BUT WE ARE PARTICULARLY INTERESTED IN SUPPORTING PROJECTS THAT WILL LEAD TO NEW INTERVENTIONS TO ALLEVIATE THE SYMPTOMS ASSOCIATED WITH PWS. FPWR ACCEPTS APPLICATIONS FROM ACADEMIC, GOVERNMENT, NON-PROFIT OR FOR-PROFIT RESEARCH ENTITIES. ACADEMIC RESEARCH APPLICANTS SHOULD HAVE A PRIMARY FACULTY APPOINTMENT AT THE LEVEL OF INSTRUCTOR OR HIGHER. THIS GRANT PROGRAM WILL BE USEFUL FOR JUNIOR FACULTY IN THE EARLY STAGES OF THEIR CAREERS, ESTABLISHED INVESTIGATORS IN OTHER AREAS OF RESEARCH WHO WISH TO ENTER THE FIELD OF PWS RESEARCH, OR INVESTIGATORS IN THE PWS FIELD WHO ARE SEEKING FUNDING TO SUPPORT PILOT STUDIES IN A NEW AREA OF PWS RESEARCH. FPWR SEEKS TO SUPPORT INNOVATIVE, HIGH-RISK/HIGH REWARD RESEARCH IN ITS EARLY STAGES. APPLICATIONS MEETING THE TECHNICAL REQUIREMENTS ARE REVIEWED BY SCIENTIFIC REVIEWERS, WHO HAVE EXPERTISE IN THE RESEARCH AREA, AS WELL AS AN ADVOCATE REVIEWER WHO EVALUATES THE RELEVANCE OF THE PROPOSED RESEARCH TO THE PWS COMMUNITY. FINAL FUNDING DECISIONS ARE BASED ON SCIENTIFIC MERIT, RELEVANCE TO PWS, AND THE SUITABILITY OF THE RESEARCH WITH RESPECT TO THE PROGRAMMATIC GOALS OF FPWR. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| JOHN WALTER | ||||||||||||||
| CEO | $245,465 | $0 | $25,000 | $0 | $0 | $0 | $0 | $0 | $35,156 | $0 | $305,621 | $0 | $0 | $0 |
| NATHALIE KAYADJANIAN | ||||||||||||||
| DIRECTOR OF TRANSLATIONAL RESEARCH | $181,695 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $6,699 | $0 | $188,394 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 7 | FormAndLineReferenceDesc |
| Explanation | JOHN WALTER AND SUSAN HEDSTROM RECEIVED A DISCRETIONARY BONUS IN 2019. THIS AMOUNT HAS BEEN INCLUDED IN THEIR TAXABLE COMPENSATION AND IS REPORTED ON SCHEDULE J, PART II, LINE B(II). | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 3 | THE ORGANIZATION USES TRINET HR CORPORATION ("TRINET"), A PROFESSIONAL EMPLOYER ORGANIZATION ("PEO"), WHICH PROVIDES PROFESSIONAL EMPLOYER SERVICES. IN THE PEO RELATIONSHIP, TRINET AND THE ORGANIZATION SHARE CERTAIN RESPONSIBILITIES AND ALLOCATE OTHER EMPLOYER RESPONSIBILITIES INDIVIDUALLY. THE ORGANIZATION REMAINS AN EMPLOYER OF THE ORGANIZATION'S EMPLOYEES, AND TRINET IS A CO-EMPLOYER. THE ORGANIZATION HAS DIRECTION AND CONTROL OVER EMPLOYEES AS IS NECESSARY TO: CONDUCT ITS BUSINESS; DISCHARGE ANY FIDUCIARY RESPONSIBILITY IT MAY HAVE; AND COMPLY WITH ANY APPLICABLE LICENSURE, REGULATORY OR STATUTORY REQUIREMENT OF SOLAR ONE. IN ADDITION, THE ORGANIZATION HAS CONTROL OVER THE DAY-TO-DAY JOB DUTIES OF EMPLOYEES AND OVER THE JOB SITES AT WHICH OR FROM WHICH EMPLOYEES PERFORM SERVICES. TRINET RESERVES A RIGHT OF DIRECTION AND CONTROL OVER EMPLOYEES AS IS NECESSARY TO FULFILL ITS OBLIGATIONS AND PROVIDE ITS SERVICES UNDER AN AGREEMENT BETWEEN THE ORGANIZATION AND TRINET. TRINET AND THE ORGANIZATION HAVE A RIGHT TO HIRE, DISCIPLINE, AND TERMINATE EMPLOYEES AS TO EACH ONE'S EMPLOYMENT RELATIONSHIP WITH THE EMPLOYEES. FEE PAID TO TRINET IN 2019 WAS $24,166. |
| FORM 990, PART VI, SECTION B, LINE 11B | FOUNDATION FOR PRADER-WILLI RESEARCH INC. HAS ITS FORM 990 PREPARED BY AN OUTSIDE ACCOUNTING FIRM AND HAS ESTABLISHED THE FOLLOWING REVIEW PROCESS TO ENSURE THAT THE INFORMATION REPORTED IS COMPLETE AND ACCURATE. WHEN THE FORM 990 HAS BEEN PREPARED, REVIEWED BY MANAGEMENT AND IS READY TO BE FILED WITH THE INTERNAL REVENUE SERVICE, IT IS CIRCULATED AMONG BOARD MEMBERS WITH AN EXPLICIT DEADLINE FOR WHICH ANY COMMENTS MUST BE SUBMITTED BY. AFTER ALL COMMENTS ARE ADDRESSED, THE FORM 990 IS ELECTRONICALLY FILED WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE BOARD MEMBERS REVIEW AND DISCUSS THE CONFLICT OF INTEREST POLICY ANNUALLY AT A BOARD MEETING. THE GOVERNING BOARD OR DELEGATED COMMITTEE IS RESPONSIBLE FOR DETERMINING AND REVIEWING CONFLICTS OF INTEREST. BOARD MEMBERS AND PRINCIPAL OFFICERS ARE REQUIRED TO SELF DISCLOSE AND THE BOARD HAS AN ADDITIONAL GOVERNANCE COMMITTEE. EACH MEMBER AND PRINCIPAL OFFICER IS THEN REQUIRED TO SIGN THE DISCLOSURE FORM AT THE MEETING NOTING CONFLICTS. AN INTERESTED PERSON MAY MAKE A PRESENTATION AT THE GOVERNING BOARD OR COMMITTEE MEETING, BUT AFTER THE PRESENTATION, HE/SHE SHALL LEAVE THE MEETING DURING THE DISCUSSION OF, AND THE VOTE ON, THE TRANSACTION OR ARRANGEMENT INVOLVING THE POSSIBLE CONFLICT OF INTEREST. |
| FORM 990, PART VI, SECTION B, LINE 15A | THE PROCESS FOR DETERMINING THE COMPENSATION OF THE CEO INCLUDED THE USE OF COMPARABILITY DATA, AND INCLUDED REVIEW AND APPROVAL BY THE EXECUTIVE COMMITTEE OF THE BOARD. THE PROCESS WAS DOCUMENTED AND LAST UNDERTAKEN IN 2019. COMPENSATION INCREASES FOR OTHER STAFF ARE RECOMMENDED BY THE CEO TO THE EXECUTIVE COMMITTEE, WHO REVIEWS AND APPROVES THESE INCREASES. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. THE FORM 990 IS AVAILABLE AT WWW.GUIDESTAR.ORG. |
| FORM 990, PART XII, LINE 2C: | THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THIS PROCESS DID NOT CHANGE FROM THE PRIOR YEAR. |