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FOUNDATION FIGHTING BLINDNESS INC: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
FOUNDATION FIGHTING BLINDNESS INC (EIN 23-7135845)
Tax period
2018-07-01 to 2019-06-30
Filed
2019-11-14
IRS object ID
201943189349310839
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-11-14T15:26:56-06:00ReturnTs
Tax Period End2019-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN420714325PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1RSM US LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1100 INTERNATIONAL DRIVE SUITE 1400AddressLine1Txt
CityBALTIMORECityNm
State AbbreviationMDStateAbbreviationCd
ZIP21202ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN237135845EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE FOUNDATION FIGHTING BLINDNESS INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlFOUNBusinessNameControlTxt
Phone4104230600PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17168 COLUMBIA GATEWAY DRIVE NO 100AddressLine1Txt
CityCOLUMBIACityNm
State AbbreviationMDStateAbbreviationCd
ZIP21046ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJASON MENZOPersonNm
Person TitleCOOPersonTitleTxt
Phone4104230600PhoneNum
Signature2019-11-14SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJULIA FLANNERY CPAPreparerPersonNm
PTINP00928915PTIN
Phone4102469301PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address66.98.98.135IPv4AddressTxt
FieldValueIRS element (for citing)
IP2019-11-14IPDt
IP Tm13:47:59IPTm
IP TimezoneESIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdDA39A3EE5E6B4B0D3255BFEF95601890AFD80709AtSubmissionCreationDeviceId
At Submission Filing Device Id4EE6A31F760B3C5EA0809148B0E883CC4242B14CAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2020-03-31 21:24:44ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerBENJAMIN YERXAPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line17168 COLUMBIA GATEWAY DRIVE NO 100AddressLine1Txt
CityCOLUMBIACityNm
State AbbreviationMDStateAbbreviationCd
ZIP21046ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$63,034,969GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.FIGHTINGBLINDNESS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1971FormationYr
Legal Domicile StateMDLegalDomicileStateCd
Activity Or MissionTHE URGENT MISSION OF THE FOUNDATION FIGHTING BLINDNESS IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, AGE-RELATED MACULAR DEGENERATION, USHER SYNDROME AND THE ENTIRE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. THE FOUNDATION IS A BEACON FOR THOSE AFFECTED BY THESE BLINDING DISEASES.ActivityOrMissionDesc
Voting Members Governing Body18VotingMembersGoverningBodyCnt
Voting Members Independent18VotingMembersIndependentCnt
Total Employee78TotalEmployeeCnt
Total Volunteers2500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$9,910NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$22,775,761PYContributionsGrantsAmt
CY Contributions Grants$50,471,319CYContributionsGrantsAmt
PY Program Service Revenue$255,996PYProgramServiceRevenueAmt
CY Program Service Revenue$231,550CYProgramServiceRevenueAmt
PY Investment Income$2,441,422PYInvestmentIncomeAmt
CY Investment Income$3,237,444CYInvestmentIncomeAmt
PY Other Revenue-$508,508PYOtherRevenueAmt
CY Other Revenue-$571,103CYOtherRevenueAmt
PY Total Revenue$24,964,671PYTotalRevenueAmt
CY Total Revenue$53,369,210CYTotalRevenueAmt
PY Grants And Similar Paid$20,785,716PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$15,521,841CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$6,824,930PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$6,586,135CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$322,478PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$353,084CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$7,079,653CYTotalFundraisingExpenseAmt
PY Other Expenses$6,064,329PYOtherExpensesAmt
CY Other Expenses$11,462,968CYOtherExpensesAmt
PY Total Expenses$33,997,453PYTotalExpensesAmt
CY Total Expenses$33,924,028CYTotalExpensesAmt
PY Revenues Less Expenses-$9,032,782PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$19,445,182CYRevenuesLessExpensesAmt
Total Assets BOY$137,901,875TotalAssetsBOYAmt
Total Assets EOY$166,093,298TotalAssetsEOYAmt
Total Liabilities BOY$10,783,026TotalLiabilitiesBOYAmt
Total Liabilities EOY$16,767,804TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$127,118,849NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$149,325,494NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE MISSION OF THE FOUNDATION FIGHTING BLINDNESS, INC. (FFB) IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES, FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$19,328,673ExpenseAmt
Grant$12,487,476GrantAmt
Revenue$160,000RevenueAmt
DescRESEARCH: THE FOUNDATION FIGHTING BLINDNESS, INC. (FFB) FUNDED RESEARCHERS ARE ACHIEVING REMARKABLE SUCCESS IN DISCOVERING, TESTING AND DELIVERING TO PATIENTS A WIDE RANGE OF PROMISING THERAPIES TO PREVENT, STOP THE PROGRESSION, OF, AND CURE BLINDNESS DUE TO RETINAL DEGENERATIVE DISEASES. FFB HAS ENCUMBRANCES OF $35.4 MILLION, NOT INCLUDED ON OUR JUNE 30 FINANCIAL REPORT, FOR ACTIVE RESEARCH PROJECTS THAT HAVE FUTURE RESEARCH MILESTONES. OUR RESEARCH OVERSIGHT COMMITTEE'S SPENDING PLAN INCLUDES SPENDING AT AN AVERAGE OF $21 MILLION ANNUALLY TO SUPPORT FUTURE RESEARCH.AS OF THE END OF OUR FISCAL YEAR 2019, FFB'S RESEARCH GRANTS PROGRAM IS FUNDING 66 GRANTS BEING CONDUCTED BY MORE THAN 110 INVESTIGATORS AT 67 INSTITUTIONS, EYE HOSPITALS AND UNIVERSITIES IN THE U.S. AND AROUND THE WORLD. A SAMPLING OF THE RESEARCH PROJECTS FUNDED ARE LISTED BELOW.RADHA AYYAGARI, PH.D, FFB-FUNDED RESEARCHER AT THE UNIVERSITY OF CALIFORNIA, SAN DIEGO, AND HER TEAM ARE LOOKING FOR ULTRA-RARE INHERITED RETINAL DEGENERATION GENES YET TO BE DISCOVERED, AS WELL AS PREVIOUSLY UNDISCOVERED DEFECTS IN KNOWN GENES. TODAY, ABOUT 65-70 PERCENT OF INHERITED RETINAL DEGENERATION PATIENTS WILL HAVE THEIR MUTATED GENE IDENTIFIED WHEN GETTING TESTED. HOWEVER, IT ALSO MEANS THAT THE GENE MUTATIONS FOR ABOUT ONE-THIRD OF PATIENTS ARE STILL NOT IDENTIFIED. DR. AYYAGARI'S RESEARCH IS CLOSING THIS GAP WITH THE IDENTIFICATION OF 'ELUSIVE OR HARD-TO-FIND GENES.RACHEL HUCKFELDT, M.D., PH.D., FFB-FUNDED EARLY-CAREER CLINICIAN SCIENTIST AT MASSACHUSETTS EYE AND EAR, IS INVESTIGATING CYSTOID MACULAR EDEMA (CME), A COMMON, VISION-ROBBING COMPLICATION OF RETINITIS PIGMENTOSA AND OTHER INHERITED RETINAL DISEASES. DR. HUCKFELDT WILL BE WORKING TO BETTER UNDERSTAND WHAT CAUSES THE POTENTIALLY HARMFUL COLLECTION OF FLUID ASSOCIATED WITH CME, AS WELL AS BETTER WAYS TO TREAT IT.OPTOGENETIC THERAPIES BESTOW LIGHT-SENSITIVITY (VISUAL FUNCTION) TO SURVIVING RETINAL CELLS AFTER PHOTORECEPTORS ARE LOST TO ADVANCED RETINAL DISEASES SUCH AS RETINITIS PIGMENTOSA, USHER SYNDROME, AND AGE-RELATED MACULAR DEGENERATION. HOWEVER, MANY CURRENT OPTOGENETIC THERAPIES IN DEVELOPMENT HAVE LIMITED LIGHT SENSITIVITY AND WILL ONLY WORK IN VERY BRIGHT SETTINGS. JOHN FLANNERY, PH.D., FFB-FUNDED RESEARCHER AT THE UNIVERSITY OF CALIFORNIA, BERKELEY, IS DEVELOPING OPTOGENETIC APPROACHES THAT WILL WORK IN A BROADER SPECTRUM OF LIGHTING CONDITIONS AND POTENTIALLY PROVIDE BETTER PERCEPTION OF DETAILS THAN OTHER OPTOGENETIC ALTERNATIVES IN CLINICAL TRIALS. THE START-UP COMPANY, VEDERE HAS BEEN FORMED TO ADVANCE THE TREATMENT INTO A CLINICAL TRIAL AND OUT TO THE MARKETPLACE.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,689,116ExpenseAmt
Revenue$171,550RevenueAmt
DescPUBLIC HEALTH EDUCATION - DURING FISCAL YEAR 2019, THROUGH OUR CHATLOS FOUNDATION PUBLIC HEALTH EDUCATION PROGRAM, FFB AIMED TO CONTINUE TO PROVIDE EDUCATION AND SUPPORT TO PEOPLE AFFECTED BY RETINAL DEGENERATIVE DISEASES. TO KEEP OUR CONSTITUENTS INFORMED, FFB OPERATES A WEBSITE, BLOG AND SOCIAL MEDIA SITES; DISTRIBUTES A NEWSLETTER, ONLINE AND IN PRINT; HOSTS LOCAL, REGIONAL AND NATIONAL EDUCATIONAL SESSIONS; AND, SUPPORTS FUNDRAISING VISIONWALKS, DINING IN THE DARK DINNERS AND OTHER SPECIAL EVENTS. FFB HELD ITS NATIONAL CONFERENCE, INVESTING IN THE CURES SUMMIT, IN CARY, NC. THE CONFERENCE BROUGHT TOGETHER LEADING VISION SCIENTISTS, ASSISTIVE TECHNOLOGIES EXPERTS, AND THE VISUALLY IMPAIRED COMMUNITY. MORE THAN 30 DISTINGUISHED PANELISTS PRESENTED, WITH APPROXIMATELY XXX PEOPLE IN ATTENDANCE FROM AROUND THE WORLD. INFOCUS, THE NEWSLETTER FOR FRIENDS OF THE FOUNDATION FIGHTING BLINDNESS, IS ANOTHER SIGNIFICANT WAY OF INFORMING OUR CONSTITUENTS. IT IS OFFERED IN PRINT AND ELECTRONICALLY. DURING FISCAL YEAR 2019, FFB ISSUED TWO EDITIONS OF THE NEWSLETTER, THE PRINT EDITIONS WERE CIRCULATED TO APPROXIMATELY 59,000 RECIPIENTS AND THE ELECTRONIC VERSIONS WERE EMAILED TO AN APPROXIMATELY 19,000 RECIPIENTS. CHAPTERS BRING THE FOUNDATION'S MESSAGE AND MISSION TO LIFE. IN FY19, THE FOUNDATION SUPPORTED 35 VOLUNTEER-LED CHAPTERS IN 22 STATES. THE CHAPTERS HELD 46 SPEAKER PRESENTATIONS, SOCIALS AND OTHER OUTREACH ACTIVITIES WHICH MORE THAN 1,380 PEOPLE ATTENDED, AND CO-HOSTED FOUR VISION SEMINARS WITH THE FOUNDATION (IN HOUSTON, TX; JACKSONVILLE, FL; HOFFMANN ESTATES, IL; AND, ANAHEIM, CA) WHICH A TOTAL OF 466 PEOPLE ATTENDED.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$3,486,232ExpenseAmt
Grant$3,034,364GrantAmt
DescMY RETINA TRACKER:DURING FISCAL YEAR 2019 APPROXIMATELY 4,300 ADDITIONAL PATIENTS WERE ADDED TO THE REGISTRY, BRINGING TOTAL REGISTERED INDIVIDUALS UP TO 12,669.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$24,504,021TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent EndowmentsYes (1)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt0IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtYes (1)ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl EntYes (1)RelatedOrganizationCtrlEntInd
Transaction With Control EntYes (1)TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document197IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee78EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (1)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (1)Form990TFiledInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members18GoverningBodyVotingMembersCnt
Independent Voting Member18IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or StockholdersYes (1)MembersOrStockholdersInd
Election Of Board MembersYes (1)ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NANCY DAVENPORTBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone4104230600PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line17168 COLUMBIA GATEWAY DRIVE NO 100AddressLine1Txt
CityCOLUMBIACityNm
State AbbreviationMDStateAbbreviationCd
ZIP21046ZIPCd
FieldValueIRS element (for citing)
Info In Schedule O Part VIIYes (X)InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (30 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeIndFormer Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
DAVID BRINT
CHAIRMAN10.001.00Yes (X)Yes (X)$0$0$0
JOEL DAVIS
VICE CHAIRMAN, MAJOR GIFTS1.00Yes (X)Yes (X)$0$0$0
EDWARD RUSSNOW
VICE CHAIRMAN, DEVELOPMENT1.00Yes (X)Yes (X)$0$0$0
JONATHAN STEINBERG MD
VICE CHAIRMAN, RESEARCH1.001.00Yes (X)Yes (X)$0$0$0
WARREN THALER
VICE CHAIRMAN, BOARD DEV & COMM1.001.00Yes (X)Yes (X)$0$0$0
HAYNES LEA
TREASURER1.00Yes (X)Yes (X)$0$0$0
YVONNE CHESTER
SECRETARY1.00Yes (X)Yes (X)$0$0$0
STEVEN ALPER
DIRECTOR1.00Yes (X)$0$0$0
WILLIAM CARTY
DIRECTOR1.00Yes (X)$0$0$0
JASON FERREIRA
DIRECTOR1.00Yes (X)$0$0$0
JASON MORRIS
DIRECTOR1.001.00Yes (X)$0$0$0
GORDON GUND
DIRECTOR - CHAIRMAN EMERITUS1.00Yes (X)Yes (X)$0$0$0
ROBERT HEIDENBERG
DIRECTOR1.00Yes (X)$0$0$0
JANNI LEHRER-STEIN
DIRECTOR1.00Yes (X)$0$0$0
BRADFORD MANNING
DIRECTOR1.00Yes (X)$0$0$0
EVAN MITTMAN
DIRECTOR1.00Yes (X)$0$0$0
KAREN PETROU
DIRECTOR1.00Yes (X)$0$0$0
MARYROSE SYLVESTER
DIRECTOR1.00Yes (X)$0$0$0
BENJAMIN R YERXA
CEO34.006.00Yes (X)$357,150$63,026$47,395
PATRICIA DUDLEY
CHIEF HUMAN RESOURCE OFFICER40.00Yes (X)$177,564$0$40,157
JASON D MENZO
COO40.001.00Yes (X)$256,711$0$38,683
STEPHEN MARK ROSE
SR. SCIENTIFIC ADVISOR40.00$248,107$0$25,358Yes (X)
BRIAN MANSFIELD
EXEC VP, RESEARCH40.00$179,733$0$30,870Yes (X)
HOPE KESSLER
SR. DIRECTOR, DEVELOPMENT40.00$249,197$0$24,065Yes (X)
NANCY M DAVENPORT
VP, FINANCE40.00$146,106$0$7,762Yes (X)
MARK ALAN JONES
DIRECTOR, MAJOR GIFTS40.00$134,842$0$26,072Yes (X)
MICHELE C DIVINCENZO
VP, EVENTS & CHAPTERS40.00$125,207$0$23,211Yes (X)
MICHELE MERCER
SR. DIRECTOR, DATABASE40.00$119,693$0$27,941Yes (X)
PATRICIA ZILLIOX
FORMER CHIEF DRUG DEV OFF0.00$0$140,751$0Yes (X)
VALERIE NAVY-DANIELS
FORMER CHIEF DEV OFFICER0.00$136,243$0$12,770Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,130,553TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$203,777TotReportableCompRltdOrgAmt
Total Other Compensation$304,284TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K12IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedYes (1)FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
SHERATON SAN DIEGO HOTEL
1380 HARBOR ISLAND DRIVESAN DIEGOCA92101VISIONS SEMINAR VENUE$420,725
BLACKBAUD
PO BOX 930256ATLANTAGA31193ON LINE FUNDRAISING FEES$264,612
DP SOLUTIONS
9160 RED BRANCH ROAD SUITE W-1COLUMBIAMD21045COMPUTER CONSULTANT$247,465
NNE MARKETING
1666 MASSACHUSETTS AVE SUITE 14LEXINGTONMA02420MEMBERSHIP CONSULTANT$246,000
PRODUCTION ADVANTAGE
13873 PARK CENTER ROADOAKHILLVA20171PRINTING/MAIL HOUSE SERVICES$233,942
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K9CntrctRcvdGreaterThan100KCnt
Federated Campaigns$176,595FederatedCampaignsAmt
Fundraising$7,930,243FundraisingAmt
All Other Contributions$42,364,481AllOtherContributionsAmt
Noncash Contributions$12,721,403NoncashContributionsAmt
Total Contributions$50,471,319TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
CONFERENCE FEES & SPON900099$171,550$171,550
CONTRACT REVENUE900099$60,000$60,000
FieldValueIRS element (for citing)
Total Program Service Revenue$231,550TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,279,923TotalRevenueColumnAmt
Exclusion$5,279,923ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$191,504TotalRevenueColumnAmt
Exclusion$191,504ExclusionAmt

Gross Rents GrossRentsGrp

FieldValueIRS element (for citing)
Real$32,473RealAmt

Less Rental Expenses LessRentalExpensesGrp

FieldValueIRS element (for citing)
Real$0RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$32,473RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$32,473TotalRevenueColumnAmt
Exclusion$32,473ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$5,960,455SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$8,002,934SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$2,042,479SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$2,042,479TotalRevenueColumnAmt
Exclusion-$2,042,479ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$767,663FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$7,930,243ContriRptFundraisingEventAmt
Fundraising Direct Expenses$1,662,825FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$895,162TotalRevenueColumnAmt
Exclusion-$895,162ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmtExclusionExclusionAmt
FFB RDF SERVICE FEES900099$100,000$100,000
OTHER INCOME900099$82$82
FieldValueIRS element (for citing)
Other Revenue Total$100,082OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$53,369,210TotalRevenueColumnAmt
Related Or Exempt Func Income$331,550RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$2,566,341ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$12,160,924TotalAmt
Program Services$12,160,924ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$3,360,917TotalAmt
Program Services$3,360,917ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,810,651TotalAmt
Program Services$523,988ProgramServicesAmt
Management And General$271,939ManagementAndGeneralAmt
Fundraising$1,014,724FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$3,864,007TotalAmt
Program Services$1,130,682ProgramServicesAmt
Management And General$568,952ManagementAndGeneralAmt
Fundraising$2,164,373FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$153,716TotalAmt
Program Services$46,179ProgramServicesAmt
Management And General$23,384ManagementAndGeneralAmt
Fundraising$84,153FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$390,617TotalAmt
Program Services$96,201ProgramServicesAmt
Management And General$71,341ManagementAndGeneralAmt
Fundraising$223,075FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$367,144TotalAmt
Program Services$97,893ProgramServicesAmt
Management And General$54,176ManagementAndGeneralAmt
Fundraising$215,075FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$16,652TotalAmt
Management And General$9,793ManagementAndGeneralAmt
Fundraising$6,859FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$40,795TotalAmt
Management And General$36,050ManagementAndGeneralAmt
Fundraising$4,745FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$353,084TotalAmt
Fundraising$353,084FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$333,117TotalAmt
Management And General$308,775ManagementAndGeneralAmt
Fundraising$24,342FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$2,152,138TotalAmt
Program Services$957,933ProgramServicesAmt
Management And General$407,933ManagementAndGeneralAmt
Fundraising$786,272FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$33,334TotalAmt
Program Services$14,690ProgramServicesAmt
Management And General$1,285ManagementAndGeneralAmt
Fundraising$17,359FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$657,964TotalAmt
Program Services$102,144ProgramServicesAmt
Management And General$135,740ManagementAndGeneralAmt
Fundraising$420,080FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$379,975TotalAmt
Program Services$18,356ProgramServicesAmt
Management And General$44,606ManagementAndGeneralAmt
Fundraising$317,013FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$694,168TotalAmt
Program Services$153,108ProgramServicesAmt
Management And General$128,625ManagementAndGeneralAmt
Fundraising$412,435FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$376,665TotalAmt
Program Services$122,101ProgramServicesAmt
Management And General$51,334ManagementAndGeneralAmt
Fundraising$203,230FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$532,511TotalAmt
Program Services$327,522ProgramServicesAmt
Management And General$137,240ManagementAndGeneralAmt
Fundraising$67,749FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$256,533TotalAmt
Program Services$125,129ProgramServicesAmt
Management And General$31,369ManagementAndGeneralAmt
Fundraising$100,035FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$268,584TotalAmt
Program Services$143,489ProgramServicesAmt
Management And General$22,485ManagementAndGeneralAmt
Fundraising$102,610FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
GENETIC TESTING STUDY$3,408,184$3,408,184
NATURAL HISTORY STUDY$735,771$735,771
PRINTING AND PRODUCTION$705,019$107,252$35,327$562,440

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$871,558TotalAmt
Program Services$871,558ProgramServicesAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$33,924,028TotalAmt
Program Services$24,504,021ProgramServicesAmt
Management And General$2,340,354ManagementAndGeneralAmt
Fundraising$7,079,653FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$7,687,395BOYAmt
EOY$1,763,158EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$16,755,072BOYAmt
EOY$42,857,611EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$29,204,636BOYAmt
EOY$26,254,801EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$450,470BOYAmt
EOY$743,629EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$500,000BOYAmt
EOY$500,000EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$583,113BOYAmt
EOY$916,253EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$5,770,877LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$4,441,598LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$1,384,743BOYAmt
EOY$1,329,279EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$73,061,630BOYAmt
EOY$83,927,791EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$8,274,816BOYAmt
EOY$7,800,776EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$137,901,875BOYAmt
EOY$166,093,298EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,637,741BOYAmt
EOY$1,542,226EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$6,727,999BOYAmt
EOY$13,980,632EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$526,096BOYAmt
EOY$316,357EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,891,190BOYAmt
EOY$928,589EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$10,783,026BOYAmt
EOY$16,767,804EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$28,938,419BOYAmt
EOY$36,405,532EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$94,923,682BOYAmt
EOY$0EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,256,748BOYAmt
EOY$112,919,962EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$127,118,849BOYAmt
EOY$149,325,494EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$137,901,875BOYAmt
EOY$166,093,298EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$19,445,182ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$2,641,526NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$119,937OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consolidated Basis Fincl StmtYes (X)ConsolidatedBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$56,098,521CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$68,515,510CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$22,746,532CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$22,775,761CurrentTaxYearMinus1YearAmt
Current Tax Year$50,471,319CurrentTaxYearAmt
Total$220,607,643TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$56,098,521CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$68,515,510CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$22,746,532CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$22,775,761CurrentTaxYearMinus1YearAmt
Current Tax Year$50,471,319CurrentTaxYearAmt
Total$220,607,643TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$72,840,728SubstantialContributorsTotAmt
Public Support Total170$147,766,915PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,753,831CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,764,598CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,320,989CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,875,189CurrentTaxYearMinus1YearAmt
Current Tax Year$5,503,900CurrentTaxYearAmt
Total$22,218,507TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$102,294CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$102,691CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$100,091CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$101,805CurrentTaxYearMinus1YearAmt
Current Tax Year$100,082CurrentTaxYearAmt
Total$506,963TotalAmt
FieldValueIRS element (for citing)
Total Support$243,333,113TotalSupportAmt
Gross Receipts Rltd Activities$3,280,942GrossReceiptsRltdActivitiesAmt
Public Support CY1700.60730PublicSupportCY170Pct
Public Support PY1700.61950PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationFFB CRI SERVICE FEES - 2014 AMOUNT: $ 100,000. 2015 AMOUNT: $ 99,996. 2016 AMOUNT: $ 99,996. 2017 AMOUNT: $ 100,000. 2018 AMOUNT: $ 100,000. MISCELLANEOUS - 2014 AMOUNT: $ 2,294. 2015 AMOUNT: $ 2,695. 2016 AMOUNT: $ 95. 2017 AMOUNT: $ 1,805. 2018 AMOUNT: $ 82.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$3,256,748BeginningYearBalanceAmt
Investment Earnings Or Losses$208,731InvestmentEarningsOrLossesAmt
Grants Or Scholarships$74,246GrantsOrScholarshipsAmt
Administrative Expenses$9,405AdministrativeExpensesAmt
End Year Balance$3,381,828EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$3,256,748BeginningYearBalanceAmt
Investment Earnings Or Losses$11,279InvestmentEarningsOrLossesAmt
Grants Or Scholarships$9,028GrantsOrScholarshipsAmt
Administrative Expenses$2,251AdministrativeExpensesAmt
End Year Balance$3,256,748EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$3,190,000BeginningYearBalanceAmt
Contributions$66,748ContributionsAmt
Investment Earnings Or Losses$17,173InvestmentEarningsOrLossesAmt
Grants Or Scholarships$15,012GrantsOrScholarshipsAmt
Administrative Expenses$2,161AdministrativeExpensesAmt
End Year Balance$3,256,748EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$500,000BeginningYearBalanceAmt
Contributions$2,690,000ContributionsAmt
Investment Earnings Or Losses$23,270InvestmentEarningsOrLossesAmt
Grants Or Scholarships$21,049GrantsOrScholarshipsAmt
Administrative Expenses$2,221AdministrativeExpensesAmt
End Year Balance$3,190,000EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$500,000BeginningYearBalanceAmt
Investment Earnings Or Losses$30,311InvestmentEarningsOrLossesAmt
Grants Or Scholarships$28,140GrantsOrScholarshipsAmt
Administrative Expenses$2,171AdministrativeExpensesAmt
End Year Balance$500,000EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$867,698OtherCostOrOtherBasisAmt
Depreciation$726,706DepreciationAmt
Book Value$140,992BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,325,749OtherCostOrOtherBasisAmt
Depreciation$997,036DepreciationAmt
Book Value$328,713BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$3,577,430OtherCostOrOtherBasisAmt
Depreciation$2,717,856DepreciationAmt
Book Value$859,574BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,329,279TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
CHARITABLE GIFT ANNUITY OBLIGATION$706,978
DEFERRED RENT$221,611
FieldValueIRS element (for citing)
Total Liability$928,589TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$56,028,183TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$2,641,527NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$426,079DonatedServicesAndUseFcltsAmt
Other Revenue$3,078,002OtherRevenueAmt
Revenue Not Reported$6,145,608RevenueNotReportedAmt
Revenue Subtotal$49,882,575RevenueSubtotalAmt
Investment Expenses Not Incld$308,775InvestmentExpensesNotIncldAmt
Other Revenues Not Included$3,177,860OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$3,486,635RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$53,369,210TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$33,896,980TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$426,079DonatedServicesUseFcltsAmt
Other Expenses Included$3,033,508OtherExpensesIncludedAmt
Expenses Not Reported$3,459,587ExpensesNotReportedAmt
Expenses Subtotal$30,437,393ExpensesSubtotalAmt
Investment Expenses Not Incld2$308,775InvestmentExpensesNotIncld2Amt
Other Expenses Not Included$3,177,860OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$3,486,635ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$33,924,028TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART V, LINE 4:EARNINGS CAN BE USED FOR OPERATIONS; PRINCIPAL IS DONOR RESTRICTED.
PART X, LINE 2:THE FOUNDATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2019 AND 2018, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE FOUNDATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE FOUNDATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE FOUNDATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE FOUNDATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE FOUNDATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2016.
PART XI, LINE 2D - OTHER ADJUSTMENTS:REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 3,078,002.
PART XI, LINE 4B - OTHER ADJUSTMENTS:ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 3,177,860.
PART XII, LINE 2D - OTHER ADJUSTMENTS:EXPENSES FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 3,153,445. GRANT REFUNDS -119,937.
PART XII, LINE 4B - OTHER ADJUSTMENTS:ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS 3,177,860.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (6 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtRegion Total ExpendituresRegionTotalExpendituresAmtSpecific Services ProvidedSpecificServicesProvidedTxt
EUROPE (INCLUDING ICELAND & GREENLAND)00GRANTMAKING$2,935,917
NORTH AMERICA00GRANTMAKING$150,000
EAST ASIA AND THE PACIFIC00GRANTMAKING$75,000
MIDDLE EAST AND NORTH AFRICA00GRANTMAKING$200,000
EUROPE (INCLUDING ICELAND & GREENLAND)00PROGRAM SERVICE$28,445PROGRAM RELATED TRAVEL
NORTH AMERICA00PROGRAM SERVICE$31,487PROGRAM RELATED TRAVEL
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$3,420,849SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$3,420,849TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (14 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$810,997CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$469,580CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$65,000CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$122,000CHECK
NORTH AMERICARESEARCH$75,000CHECK
NORTH AMERICARESEARCH$75,000CHECK
EAST ASIA AND THE PACIFICRESEARCH$75,000CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$434,296CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$99,689CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$521,355CHECK
MIDDLE EAST AND NORTH AFRICARESEARCH$200,000CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$100,000CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$213,000CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$100,000CHECK
FieldValueIRS element (for citing)
Total501c3 Org14Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationEACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Phone SolicitationsYes (X)PhoneSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (1)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdActivityActivityTxtFundraiser Control Of FundsFundraiserControlOfFundsIndGross ReceiptsGrossReceiptsAmtRetained By ContractorRetainedByContractorAmtNet To OrganizationNetToOrganizationAmt
NNE MARKETING
754 MASSACHUSETTS AVENUEARLINGTONMA02476FUNDRAISING COUNSEL0$1,724,258$288,000$1,436,258
THE HERITAGE COMPANY
2402 WILDWOOD AVENUENORTH LITTLE ROCKAR72120TELEMARKETING FUNDRAISING COUNSEL0$50,851$40,084$10,767
VENTUROUS LLC
269 S BEVERLY DRIVE 1317BEVERLY HILLSCA90212EVENT FUNDRAISING COUNSEL0$18,470$25,000-$6,530
FieldValueIRS element (for citing)
Total Gross Receipts$1,793,579TotalGrossReceiptsAmt
Total Retained By Contractors$353,084TotalRetainedByContractorsAmt
Total Net To Organization$1,440,495TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesAZLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesINLicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1DINNER CHICAGOEvent1Nm
Gross Receipts Event1$637,354GrossReceiptsEvent1Amt
Charitable Contri Event1$577,618CharitableContriEvent1Amt
Gross Revenue Event1$59,736GrossRevenueEvent1Amt
Cash Prizes Event1$0CashPrizesEvent1Amt
Non Cash Prizes Event1$0NonCashPrizesEvent1Amt
Rent Facility Costs Event1$4,727RentFacilityCostsEvent1Amt
Food And Beverage Event1$65,079FoodAndBeverageEvent1Amt
Entertainment Event1$5,825EntertainmentEvent1Amt
Other Direct Expenses Event1$49,055OtherDirectExpensesEvent1Amt
Event2NY FASHION DINNEREvent2Nm
Gross Receipts Event2$1,527,783GrossReceiptsEvent2Amt
Charitable Contri Event2$1,277,783CharitableContriEvent2Amt
Gross Revenue Event2$250,000GrossRevenueEvent2Amt
Rent Facility Costs Event2$120,901RentFacilityCostsEvent2Amt
Food And Beverage Event2$95,094FoodAndBeverageEvent2Amt
Entertainment Event2$135,075EntertainmentEvent2Amt
Other Direct Expenses Event2$161,032OtherDirectExpensesEvent2Amt
Other Events Total70OtherEventsTotalCnt
Gross Receipts Other Events$6,532,769GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$6,074,842CharitableContriOtherEventsAmt
Gross Revenue Other Events$457,927GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events$449,548RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events$188,650FoodAndBeverageOtherEventsAmt
Entertainment Other Events$107,852EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events$279,987OthDirectExpnssOtherEventsAmt
Gross Receipts Total$8,697,906GrossReceiptsTotalAmt
Charitable Contributions Tot$7,930,243CharitableContributionsTotAmt
Gross Revenue Total Events$767,663GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$575,176RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$348,823FoodAndBeverageTotalEventsAmt
Entertainment Total Events$248,752EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$490,074OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$1,662,825DirectExpenseSummaryEventsAmt
Net Income Summary-$895,162NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (28 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
AUGUSTA UNIV RESEARCH INSTITUTE
1120 15TH STREETAUGUSTAGA30912586002053501(C)(3)$100,000$0RESEARCH
COLUMBIA UNIVERSITY
635 WEST 165TH STREETNEW YORKNY10032135598093501(C)(3)$576,691$0RESEARCH
DUKE UNIVERSITY MEDICAL CENTER
2200 W MAINE STREETDURHAMNC27705560532129501(C)(3)$100,000$0RESEARCH
EMORY UNIVERSITY
1559 CLIFTON ROADATLANTAGA30322580566256501(C)(3)$75,000$0RESEARCH
FLORIDA STATE UNIVERSITY
600 W COLLEGE AVENUETALLAHASSEEFL32306596152180501(C)(3)$18,000$0RESEARCH
FOUNDATION FIGHTING BLINDNESS RD FUND
7168 COLUMBIA GATEWAY DRIVECOLUMBIAMD21046450524687501(C)(3)$3,077,860$0RESEARCH
HARVARD UNIVERSITY
243 CHARLES STREETBOSTONMA02114042103580501(C)(3)$43,000$0RESEARCH
JOHNS HOPKINS UNIVERSITY
600 NORTH WOLFE STREETBALTIMOREMD21287520595110501(C)(3)$304,415$0RESEARCH
MASSACHUSETTS EYE AND EAR INFIRMARY
243 CHARLES STREETBOSTONMA02114042103591501(C)(3)$1,482,104$0RESEARCH
MOLECULAR INSIGHT RESEARCH FOUNDATION
8635 WEST 3RDLOS ANGELESCA90048205329822501(C)(3)$100,000$0RESEARCH
OREGON HEALTH AND SCIENCE UNIVERSITY
3375 TERWILLIGER BOULEVARD SWPORTLANDOR97201237083114501(C)(3)$274,907$0RESEARCH
REGENTS UNIV OF CALIFORNIA
10889 WILSHIRE BLVDLOS ANGELESCA90095943067788501(C)(3)$190,308$0RESEARCH
RETINA FOUNDATION OF THE SOUTHWEST
9900 NORTH CENTRAL EXPRESSWAYDALLASTX75231510151514501(C)(3)$100,000$0RESEARCH
STANFORD UNIVERSITY SCHOOL OF MEDICINE
SUMC RM L-331STANFORDCA94305941156365501(C)(3)$100,000$0RESEARCH
UNIV OF NC CHAPEL HILL
104 AIRPORT DRIVECHAPEL HILLNC27599566001393501(C)(3)$545,000$0RESEARCH
UNIVERSITY CALIFORNIA SAN FRANCISCO
100 STEIN PLAZALOS ANGELESCA90095956006143501(C)(3)$498,656$0RESEARCH
UNIVERSITY HOSPITALS
UH GRANTS DEPT 781686 PO BOX 78000DETROITMI48278341567805501(C)(3)$1,500,380$0RESEARCH
UNIVERSITY OF CALIFORNIA BERKELEY
2150 SHATTUCK AVENUEBERKELEYCA94720946002123501(C)(3)$158,682$0RESEARCH
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVELA JOLLACA92037956006144501(C)(3)$575,000$0RESEARCH
UNIVERSITY OF FLORIDA
PO BOX 100284GAINESVILLEFL32610592729133501(C)(3)$300,000$0RESEARCH
UNIVERSITY OF IOWA
2 GILMORE HALLIOWA CITYIA52242237436761501(C)(3)$100,000$0RESEARCH
UNIVERSITY OF MICHIGAN
100 WALL STREETANN ARBORMI48105386006309501(C)(3)$164,973$0RESEARCH
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREETPHILADELPHIAPA19104232810852501(C)(3)$600,000$0RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACEPITTSBURGHPA15213250965591501(C)(3)$100,000$0RESEARCH
UNIVERSITY OF SOUTHERN CALIFORNIA
2001 SOTO STREETLOS ANGELESCA90089951642394501(C)(3)$43,000$0RESEARCH
UNIVERSITY OF UTAH
75 SOUTH 2000 EASTSALT LAKE CITYUT84112876000525501(C)(3)$100,000$0RESEARCH
UNIVERSITY OF WASHINGTON
1100 45TH ST NESEATTLEWA98105943079432501(C)(3)$198,767$0RESEARCH
UNIVERSITY OF WISCONSIN
21 NORTH PARK STREETMADISONWI53715390743975501(C)(3)$674,181$0RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org28Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationEACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Idemnification Gross Up PmtsYes (X)IdemnificationGrossUpPmtsInd
Written Policy Ref T And E ExpnssYes (1)WrittenPolicyRefTAndEExpnssInd
Substantiation RequiredYes (1)SubstantiationRequiredInd
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentYes (1)SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
BENJAMIN R YERXA
CEO$356,720$62,950$0$0$430$76$14,952$2,639$25,333$4,471$397,435$70,136$0$0
PATRICIA DUDLEY
CHIEF HUMAN RESOURCE OFFICER$163,628$0$12,077$0$1,859$0$8,339$0$31,818$0$217,721$0$0$0
JASON D MENZO
COO$256,591$0$0$0$120$0$13,682$0$25,001$0$295,394$0$0$0
STEPHEN MARK ROSE
SR. SCIENTIFIC ADVISOR$245,104$0$0$0$3,003$0$11,894$0$13,464$0$273,465$0$0$0
BRIAN MANSFIELD
EXEC VP, RESEARCH$178,677$0$0$0$1,056$0$8,798$0$22,072$0$210,603$0$0$0
HOPE KESSLER
SR. DIRECTOR, DEVELOPMENT$236,109$0$8,395$0$4,693$0$3,975$0$20,090$0$273,262$0$0$0
NANCY M DAVENPORT
VP, FINANCE$140,856$0$5,000$0$250$0$6,789$0$973$0$153,868$0$0$0
MARK ALAN JONES
DIRECTOR, MAJOR GIFTS$134,416$0$0$0$426$0$5,691$0$20,381$0$160,914$0$0$0
PATRICIA ZILLIOX
FORMER CHIEF DRUG DEV OFF$0$0$0$0$0$140,751$0$0$0$0$0$140,751$0$103,722
VALERIE NAVY-DANIELS
FORMER CHIEF DEV OFFICER$46,071$0$0$0$90,172$0$1,148$0$11,622$0$149,013$0$0$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 1AGROSS UP PAYMENT WAS RECEIVED BY PATRICIA DUDLEY DURING THE CALENDAR YEAR. THIS GROSS UP PAYMENT WAS INCLUDED IN TAXABLE COMPENSATION.
PART I, LINE 4AMS. VALERIE NAVY-DANIELS RECEIVED A SEVERANCE PAYMENT DURING THE CALENDAR YEAR. THE PAYMENT IS INCLUDED IN PART VII, COLUMN D AND SCHEDULE J, PART II, COLUMN BIII. THE TERMS AND CONDITIONS OF THE CONFIDENTIAL AGREEMENT ARE AVAILABLE TO THE INTERNAL REVENUE SERVICE UPON REQUEST.

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution57ContributionCnt
Noncash Contributions Rpt F990$12,354,843NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)

Non Cash CheckboxNonCashCheckboxIndDescDescContributionContributionCntNoncash Contributions Rpt F990NoncashContributionsRptF990AmtMethod Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Yes (X)AUCTION ITEMS1$299,479FAIR MARKET VALUE
Yes (X)EVENT ITEMS1$67,081FAIR MARKET VALUE
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties UsedYes (1)ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, COLUMN (B):THE NUMBER IN THIS COLUMN FOR LINE 9 REPRESENTS THE NUMBER OF CONTRIBUTIONS OF STOCK.
PART I, LINE 32B:WHEN DONATED STOCK IS RECEIVED, OUR BROKER MERRILL LYNCH IMMEDIATELY CONVERTS THESE CONTRIBUTIONS INTO CASH.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 6MEMBERS OF FFB ARE KNOWN AS NATIONAL TRUSTEES. THE QUALIFICATIONS AND ELIGIBILITY FOR MEMBERSHIP AND THE MANNER OF ADMISSION INTO MEMBERSHIP IS PRESCRIBED BY RESOLUTION OF THE BOARD OF DIRECTORS. THE NATIONAL TRUSTEES ARE ENTITLED TO VOTE ON ELECTION OF DIRECTORS.
FORM 990, PART VI, SECTION A, LINE 7ADURING THE ANNUAL MEETING OF THE NATIONAL TRUSTEES, MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED.
FORM 990, PART VI, SECTION B, LINE 11BDATA TO PREPARE THE FEDERAL FORM 990 IS PROVIDED TO OUR OUTSIDE ACCOUNTING FIRM FOR PREPARATION AND GUIDANCE. AFTER IT HAS BEEN COMPLETED, A DRAFT OF THE FEDERAL FORM 990 IS REVIEWED BY THE VP OF FINANCE AND CHIEF OPERATING OFFICER. WITH THE VP OF FINANCE'S APPROVAL, THE DRAFT FEDERAL FORM 990 IS THEN MADE AVAILABLE TO ALL BOARD MEMBERS. ALL BOARD MEMBERS ARE INVITED TO ATTEND A SPECIAL MEETING OF THE FINANCE COMMITTEE TO REVIEW THE FEDERAL FORM 990. A FINAL DRAFT IS MADE AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING.
FORM 990, PART VI, SECTION B, LINE 12CIN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST, AN INTERESTED PERSON (INCLUDING OFFICERS, DIRECTORS, AND KEY EMPLOYEES) MUST DISCLOSE, IN WRITING PRIOR TO ANY DISCUSSION OR VOTE UPON A PROPOSAL, THE EXISTENCE AND NATURE OF HIS OR HER PERSONAL INTEREST TO THE CHAIR OF THE BOARD AND CHAIR OF THE BOARD COMMITTEE CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, THE INTERESTED PERSON SHALL LEAVE THE BOARD OR COMMITTEE MEETING WHILE THE FINANCIAL INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS, AND IF SO, WHETHER THERE IS A COMPELLING REASON TO RECOMMEND TO THE BOARD THAT THE CONFLICT OF INTEREST POLICY BE OVERRIDDEN. A QUORUM IS NEEDED FOR VOTING AND THE VOTE TO OVERRIDE SHALL BE BY MAJORITY AND DULY NOTED IN THE MINUTES.
FORM 990, PART VI, SECTION B, LINE 15THE COMPENSATION COMMITTEE AND THE BOARD OF DIRECTORS APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER. THE COMPENSATION COMMITTEE APPROVES THE COMPENSATION OF THE OTHER CHIEF OFFICERS. ON A ROUTINE BASIS, EXTERNAL DATA PROVIDED BY OUTSIDE EXPERT COMPENSATION CONSULTANTS IS USED TO MEASURE REASONABLENESS OF SALARIES TO THE MARKET PLACE AND RESULTS ARE COMMUNICATED BY OUTSIDE CONSULTANTS TO THE BOARD CHAIR/COMPENSATION COMMITTEE.
FORM 990, PART VI, SECTION C, LINE 19FFB'S FEDERAL FORM 990 AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.FIGHTBLINDNESS.ORG. OTHER PUBLIC DOCUMENTS INCLUDING THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST THROUGH THE CONTACT INFORMATION DISCLOSED ON FFB'S WEB SITE. THESE DOCUMENTS ARE AVAILABLE FOR THE SAME PERIOD OF DISCLOSURE AS SET FORTH IN SECTION 6104(D).
FORM 990, PART VII, SECTION A:FFB ACTS AS THE COMMON PAYMASTER FOR THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND, A RELATED ORGANIZATION.
FORM 990, PART XI, LINE 9:GRANT REFUNDS 119,937.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdEINEINPrimary ActivitiesPrimaryActivitiesTxtLegal Domicile StateLegalDomicileStateCdExempt Code SectionExemptCodeSectionTxtPublic Charity StatusPublicCharityStatusTxtBusiness Name Line1DirectControllingEntityName/BusinessNameLine1TxtControlled OrganizationControlledOrganizationInd
FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
7168 COLUMBIA GATEWAY DRIVE SUITE 1COLUMBIAMD21046450524687FUNDS RESEARCH AND CLINICAL TRIALS TO FIND TREATMENTS FOR RETINAL DISEASESDE501(C)(3)LINE 12A, IFOUNDATION FIGHTING BLINDNESS INCYes (1)
MACULAR DEGENERATION INTERNATIONAL INC
7168 COLUMBIA GATEWAY DRIVE SUITE 1COLUMBIAMD21046363923922FUNDRAISINGIL501(C)(3)LINE 7FOUNDATION FIGHTING BLINDNESS INCYes (1)
NATIONAL RETINITIS PIGMENTOSA FOUNDATION INC
7168 COLUMBIA GATEWAY DRIVE SUITE 1COLUMBIAMD21046522072391FUNDRAISINGMD501(C)(3)LINE 12A, IFOUNDATION FIGHTING BLINDNESS INCYes (1)
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgYes (1)GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org0GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth OrgYes (1)PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees SharingYes (1)PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxtInvolvedInvolvedAmtMethod Of Amount DeterminationMethodOfAmountDeterminationTxt
FOUNDATION FIGHTING BLINDNESS RD FUND
B$3,077,860FAIR MARKET VALUE
FOUNDATION FIGHTING BLINDNESS RD FUND
L$100,000FAIR MARKET VALUE
FOUNDATION FIGHTING BLINDNESS RD FUND
O$363,752FAIR MARKET VALUE