STRATEGY STUDIO / PUBLIC DATA EXPLORER

MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period
2018-01-01 to 2018-12-31
Filed
2019-08-30
IRS object ID
201932429349300138
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-08-30T13:23:14-05:00ReturnTs
Tax Period End2018-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN221478099PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1COHNREZNICK LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line14 BECKER FARM ROADAddressLine1Txt
CityROSELANDCityNm
State AbbreviationNJStateAbbreviationCd
ZIP07068ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN131665552EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MUSCULAR DYSTROPHY ASSOCIATIONINCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlMUSCBusinessNameControlTxt
Phone3122605900PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK ST NO 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMICHAEL J KENNEDYPersonNm
Person TitleCFOPersonTitleTxt
Phone3122605900PhoneNum
Signature2019-08-29SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLORI ROTHE YOKOBOSKY CPAPreparerPersonNm
PTINP01273422PTIN
Phone9732283500PhoneNum
Preparation2019-08-28PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address209.59.242.22IPv4AddressTxt
FieldValueIRS element (for citing)
IP2019-08-29IPDt
IP Tm08:22:22IPTm
IP TimezoneEDIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdCE01BC270595D296D8543B76CF2A4C9C8DEAC159AtSubmissionCreationDeviceId
At Submission Filing Device IdF9BA0E82A6D947CC92540FBC56E8B73643681DA5AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerELLEN VOSSPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK ST NO 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$124,115,241GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.MDA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1950FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTHE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.ActivityOrMissionDesc
Voting Members Governing Body20VotingMembersGoverningBodyCnt
Voting Members Independent19VotingMembersIndependentCnt
Total Employee913TotalEmployeeCnt
Total Volunteers350000TotalVolunteersCnt
Total Gross UBI$373,297TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$113,962,253PYContributionsGrantsAmt
CY Contributions Grants$103,881,886CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$2,531,003PYInvestmentIncomeAmt
CY Investment Income$6,232,772CYInvestmentIncomeAmt
PY Other Revenue$992,004PYOtherRevenueAmt
CY Other Revenue$542,895CYOtherRevenueAmt
PY Total Revenue$117,485,260PYTotalRevenueAmt
CY Total Revenue$110,657,553CYTotalRevenueAmt
PY Grants And Similar Paid$26,449,500PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$26,577,877CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$56,599,128PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$49,730,603CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$16,230,816CYTotalFundraisingExpenseAmt
PY Other Expenses$29,034,942PYOtherExpensesAmt
CY Other Expenses$31,488,552CYOtherExpensesAmt
PY Total Expenses$112,083,570PYTotalExpensesAmt
CY Total Expenses$107,797,032CYTotalExpensesAmt
PY Revenues Less Expenses$5,401,690PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$2,860,521CYRevenuesLessExpensesAmt
Total Assets BOY$94,239,232TotalAssetsBOYAmt
Total Assets EOY$83,664,541TotalAssetsEOYAmt
Total Liabilities BOY$78,070,364TotalLiabilitiesBOYAmt
Total Liabilities EOY$73,718,038TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$16,168,868NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$9,946,503NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$46,664,172ExpenseAmt
Grant$10,258,403GrantAmt
DescHEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE AFFECTED BY MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$18,762,515ExpenseAmt
Grant$16,319,474GrantAmt
DescRESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING MORE THAN 40 NEUROMUSCULAR DISEASES INCLUDING MUSCULAR DYSTROPHY, ALS, AND MANY OTHERS. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS AND CURE. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE, AND IN 2018, MDA SUPPORTED 224 RESEARCH PROJECTS WORLDWIDE. OUR UMBRELLA MODEL OF FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$12,220,075ExpenseAmt
DescPROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE U.S., OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE, A FLAGSHIP EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NMD COMMUNITY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$77,646,762TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of ArtYes (1)CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent EndowmentsYes (1)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming ActivitiesYes (1)GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related PersonYes (1)GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer EntYes (1)BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document260IRPDocumentCnt
IRP Document W2 G8IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee913EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members20GoverningBodyVotingMembersCnt
Independent Voting Member19IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPRStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1JENNIFER BUZALSKI CONTROLERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone3122605900PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARKE STREET STE 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (30 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
BENJAMIN CUMBO III
DIRECTOR1.00Yes (X)$0$0$0
CHARLES D SCHOOR ESQ
SECRETARY2.00Yes (X)$0$0$0Yes (X)
CHRISTOPHER J ROSA PHD
VICE CHAIR1.00Yes (X)$0$0$0Yes (X)
DANIEL G FRIES
DIRECTOR1.00Yes (X)$0$0$0
DAVE HUTTON
DIRECTOR1.00Yes (X)$0$0$0
DON WOOD
DIRECTOR1.00Yes (X)$0$0$0
EUGENE WILLIAMS
DIRECTOR1.00Yes (X)$0$0$0
GOVERNOR BRAD HENRY
DIRECTOR3.00Yes (X)$0$0$0
JOHN COSTANTINO
DIRECTOR3.00Yes (X)$0$0$0
JOHN TOGNINO
DIRECTOR1.00Yes (X)$0$0$0
KRISTINE WELKER
DIRECTOR3.00Yes (X)$0$0$0
LILIAN WU PHD
DIRECTOR1.00Yes (X)$0$0$0
LOUIS KUNKEL PHD
DIRECTOR1.00Yes (X)$0$0$0
MARSHALL D SMITH
DIRECTOR3.00Yes (X)$0$0$0
MIKE ROWLETT
DIRECTOR1.00Yes (X)$0$0$0
PATRICIA NAZEMETZ
DIRECTOR1.00Yes (X)$0$0$0
R RODNEY HOWELL MD
CHAIRMAN5.00Yes (X)$0$0$0Yes (X)
STANLEY APPEL MD
DIRECTOR3.00Yes (X)$0$0$0
STEVE FARELLA
DIRECTOR3.00Yes (X)$0$0$0
VICTOR WRIGHT
TREASURER2.00Yes (X)$0$0$0Yes (X)
EILEEN TIMMINS PHD JAN-SEPT
ASST. SEC. EVP CHIEF PEOPLE OFFICER50.00$162,599$0$16,975Yes (X)
ELLEN VOS
PRESIDENT & CEO50.00$530,244$0$12,037Yes (X)
JULIE FABER CPA
ASST. TREASURER & CFO (JAN)50.00$19,696$0$756Yes (X)
MICHAEL KENNEDY MAR-DEC
ASST. TREASURER, ASST. SEC. & CFO50.00$215,934$0$14,175Yes (X)
KAREN ALEXANDER
EVP, CHIEF IMPACT & PHILANTHROPY OFFICER50.00$277,790$0$12,548Yes (X)
ANOTHONY ENGLERT
VP, FUNDRAISING OPERATIONS50.00$204,054$0$20,373Yes (X)
GAIL KERNER
SR VP & GENERAL COUNSEL50.00$183,164$0$12,699Yes (X)
GRACE PAVLATH
SR VP SCIENTIFIC PROGRAM DIRECTOR50.00$207,898$0$19,660Yes (X)
JEANNE ZUCKER
SENIOR VP, HEALTHCARE PARTNERSHIPS50.00$199,605$0$0Yes (X)
KRISTIN STEPHENSON
SVP, CHIEF POLICY & COMM ENGAGEMENT OFFICER50.00$210,997$0$30,500Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,211,981TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$139,723TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K39IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
INNOVATIVE TELEPHONE AND DATA
150 HOUSTON ST 301BATAVIAIL60510IT SERVICES$509,325
HYATT REGENCY CRYSTAL CITY
2799 JEFFERSON DAVIS HWYARLINGTONVA22202EVENT SERVICES$471,102
FLYING TELEVISION PRODUCTIONS
36 W 25TH ST STE 300NEW YORKNY10010GALA MANAGEMENT SERVICES$396,000
CLIFTON LARSON ALLEN LLP
220 S 6THS ST STE 300MINNEAPOLISMN55402AUDIT & TEMP SERVICES$301,878
BDO USA
770 KENMOOR ST STE 300GRAND RAPIDSMI49546AUDIT & TAX SERVICES$209,216
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K15CntrctRcvdGreaterThan100KCnt
Federated Campaigns$268,675FederatedCampaignsAmt
Fundraising$66,043,368FundraisingAmt
Government Grants$304,341GovernmentGrantsAmt
All Other Contributions$37,265,502AllOtherContributionsAmt
Noncash Contributions$3,625,298NoncashContributionsAmt
Total Contributions$103,881,886TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,533,253TotalRevenueColumnAmt
Exclusion$1,533,253ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$15,424TotalRevenueColumnAmt
Exclusion$15,424ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$11,144,273SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$6,444,754SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$4,699,519SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,699,519TotalRevenueColumnAmt
Exclusion$4,699,519ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$6,990,769FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$66,043,368ContriRptFundraisingEventAmt
Fundraising Direct Expenses$6,990,769FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Gaming Gross Income$176,339GamingGrossIncomeAmt
Gaming Direct Expenses$22,165GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$154,174TotalRevenueColumnAmt
Exclusion$154,174ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescQUEST ADVERTISINGDesc
Business541800BusinessCd
Total Revenue Column$373,297TotalRevenueColumnAmt
Unrelated Business Revenue$373,297UnrelatedBusinessRevenueAmt
FieldValueIRS element (for citing)
Other Revenue Total$373,297OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$110,657,553TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$373,297UnrelatedBusinessRevenueAmt
Exclusion$6,402,370ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$23,661,632TotalAmt
Program Services$23,661,632ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$2,916,245TotalAmt
Program Services$2,916,245ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,262,752TotalAmt
Program Services$941,261ProgramServicesAmt
Management And General$181,224ManagementAndGeneralAmt
Fundraising$140,267FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$37,664,807TotalAmt
Program Services$27,966,892ProgramServicesAmt
Management And General$5,474,557ManagementAndGeneralAmt
Fundraising$4,223,358FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$902,583TotalAmt
Program Services$728,367ProgramServicesAmt
Management And General$94,186ManagementAndGeneralAmt
Fundraising$80,030FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$6,793,939TotalAmt
Program Services$5,482,570ProgramServicesAmt
Management And General$708,959ManagementAndGeneralAmt
Fundraising$602,410FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$3,106,522TotalAmt
Program Services$2,357,865ProgramServicesAmt
Management And General$421,513ManagementAndGeneralAmt
Fundraising$327,144FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$540,299TotalAmt
Program Services$179,216ProgramServicesAmt
Management And General$128,392ManagementAndGeneralAmt
Fundraising$232,691FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$238,029TotalAmt
Management And General$238,029ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$546,855TotalAmt
Program Services$546,855ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$205,323TotalAmt
Management And General$205,323ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$7,888,729TotalAmt
Program Services$2,330,167ProgramServicesAmt
Management And General$1,823,093ManagementAndGeneralAmt
Fundraising$3,735,469FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$247,549TotalAmt
Program Services$21,826ProgramServicesAmt
Management And General$182,520ManagementAndGeneralAmt
Fundraising$43,203FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$8,328,901TotalAmt
Program Services$2,121,463ProgramServicesAmt
Management And General$1,615,618ManagementAndGeneralAmt
Fundraising$4,591,820FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$6,108,697TotalAmt
Program Services$5,236,970ProgramServicesAmt
Management And General$490,221ManagementAndGeneralAmt
Fundraising$381,506FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$3,555,455TotalAmt
Program Services$2,689,120ProgramServicesAmt
Management And General$352,837ManagementAndGeneralAmt
Fundraising$513,498FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$78,662TotalAmt
Program Services$59,495ProgramServicesAmt
Management And General$7,806ManagementAndGeneralAmt
Fundraising$11,361FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$314,538TotalAmt
Management And General$314,538ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$270,693TotalAmt
Program Services$177,851ProgramServicesAmt
Management And General$80,410ManagementAndGeneralAmt
Fundraising$12,432FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$940,147TotalAmt
Program Services$82,891ProgramServicesAmt
Management And General$693,180ManagementAndGeneralAmt
Fundraising$164,076FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
MISCELLANEOUS EXPENSES$1,342,275$146,076$907,048$289,151
FUNDRAISING EXPENSES$882,400$882,400

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$107,797,032TotalAmt
Program Services$77,646,762ProgramServicesAmt
Management And General$13,919,454ManagementAndGeneralAmt
Fundraising$16,230,816FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$3,246,395TotalAmt
Program Services$466,037ProgramServicesAmt
Management And General$788,519ManagementAndGeneralAmt
Fundraising$1,991,839FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$3,405,271BOYAmt
EOY$3,383,819EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$15,629,725BOYAmt
EOY$9,445,671EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$2,897,784BOYAmt
EOY$5,818,287EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$1,916,899BOYAmt
EOY$4,916,271EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$6,949,266LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$6,304,319LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$555,932BOYAmt
EOY$644,947EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$69,833,621BOYAmt
EOY$59,455,546EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$94,239,232BOYAmt
EOY$83,664,541EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$5,713,039BOYAmt
EOY$4,068,625EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$9,674,969BOYAmt
EOY$10,468,957EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
EOY$1,689,054EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$10,000,000BOYAmt
EOY$7,500,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$52,682,356BOYAmt
EOY$49,991,402EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$78,070,364BOYAmt
EOY$73,718,038EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$10,090,586BOYAmt
EOY$5,364,018EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,160,724BOYAmt
EOY$3,816,365EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$917,558BOYAmt
EOY$766,120EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$16,168,868BOYAmt
EOY$9,946,503EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$94,239,232BOYAmt
EOY$83,664,541EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$2,860,521ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$8,539,078NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets-$543,808OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$135,174,690CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$121,934,463CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$117,071,918CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$113,962,253CurrentTaxYearMinus1YearAmt
Current Tax Year$103,881,886CurrentTaxYearAmt
Total$592,025,210TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$135,174,690CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$121,934,463CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$117,071,918CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$113,962,253CurrentTaxYearMinus1YearAmt
Current Tax Year$103,881,886CurrentTaxYearAmt
Total$592,025,210TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$592,025,210PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,555,130CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,700,561CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,736,766CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,920,477CurrentTaxYearMinus1YearAmt
Current Tax Year$1,548,677CurrentTaxYearAmt
Total$9,461,611TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$211,673CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$258,243CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$369,757CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$298,749CurrentTaxYearMinus1YearAmt
Current Tax Year$373,297CurrentTaxYearAmt
Total$1,511,719TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$14,063,176CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$9,750,743CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$10,013,249CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$8,664,556CurrentTaxYearMinus1YearAmt
Current Tax Year$7,167,108CurrentTaxYearAmt
Total$49,658,832TotalAmt
FieldValueIRS element (for citing)
Total Support$652,657,372TotalSupportAmt
Public Support CY1700.90710PublicSupportCY170Pct
Public Support PY1700.98250PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationOTHER REVENUE - 2014 AMOUNT: $ 331,475. 2015 AMOUNT: $ 432,222. 2016 AMOUNT: $ 312,578. 2017 AMOUNT: $ 347,946. SPECIAL EVENTS - 2014 AMOUNT: $ 13,415,167. 2015 AMOUNT: $ 8,673,714. 2016 AMOUNT: $ 8,970,739. 2017 AMOUNT: $ 7,942,063. 2018 AMOUNT: $ 6,990,769. GAMING EVENTS - 2014 AMOUNT: $ 316,534. 2015 AMOUNT: $ 644,807. 2016 AMOUNT: $ 729,932. 2017 AMOUNT: $ 374,547. 2018 AMOUNT: $ 176,339.ExplanationTxt

Schedule B IRS990ScheduleB

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$546,855FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$546,855FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$77,099,907FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$77,646,762FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$1,000,000FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$250,000FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$1,000,000CurrentYearMinus3Amt
Current Year Minus2$1,000,000CurrentYearMinus2Amt
Current Year Minus1$1,000,000CurrentYearMinus1Amt
Current Year$1,000,000CurrentYearAmt
Total$4,000,000TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$6,000,000LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$375,042CurrentYearMinus3Amt
Current Year Minus2$463,056CurrentYearMinus2Amt
Current Year Minus1$510,119CurrentYearMinus1Amt
Current Year$546,855CurrentYearAmt
Total$1,895,072TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$250,000CurrentYearMinus3Amt
Current Year Minus2$250,000CurrentYearMinus2Amt
Current Year Minus1$250,000CurrentYearMinus1Amt
Current Year$250,000CurrentYearAmt
Total$1,000,000TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,500,000GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$17,255CurrentYearMinus3Amt
Current Year Minus2$1,438CurrentYearMinus2Amt
Total$18,693TotalAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Collection Used Pub ExhibitionYes (X)CollectionUsedPubExhibitionInd
Collection Used PreservationYes (X)CollectionUsedPreservationInd
Coll Used Loan Or Exch ProgYes (X)CollUsedLoanOrExchProgInd
Solicited Assets Sale0SolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$790,985BeginningYearBalanceAmt
Investment Earnings Or Losses-$43,248InvestmentEarningsOrLossesAmt
Administrative Expenses$108,258AdministrativeExpensesAmt
End Year Balance$639,479EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$477,155BeginningYearBalanceAmt
Contributions$259,816ContributionsAmt
Investment Earnings Or Losses$54,014InvestmentEarningsOrLossesAmt
End Year Balance$790,985EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$357,197BeginningYearBalanceAmt
Contributions$90,075ContributionsAmt
Investment Earnings Or Losses$29,883InvestmentEarningsOrLossesAmt
End Year Balance$477,155EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$362,888BeginningYearBalanceAmt
Investment Earnings Or Losses-$5,691InvestmentEarningsOrLossesAmt
End Year Balance$357,197EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$346,757BeginningYearBalanceAmt
Investment Earnings Or Losses$16,131InvestmentEarningsOrLossesAmt
End Year Balance$362,888EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$161,304OtherCostOrOtherBasisAmt
Depreciation$16,885DepreciationAmt
Book Value$144,419BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$6,787,962OtherCostOrOtherBasisAmt
Depreciation$6,287,434DepreciationAmt
Book Value$500,528BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$644,947TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescACCRUED PENSION COSTDesc
Amt$49,991,402Amt
FieldValueIRS element (for citing)
Total Liability$49,991,402TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$100,486,944TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$8,539,078NetUnrealizedGainsInvstAmt
Other Revenue-$1,426,208OtherRevenueAmt
Revenue Not Reported-$9,965,286RevenueNotReportedAmt
Revenue Subtotal$110,452,230RevenueSubtotalAmt
Investment Expenses Not Incld$205,323InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$205,323RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$110,657,553TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$106,709,309TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$106,709,309ExpensesSubtotalAmt
Investment Expenses Not Incld2$205,323InvestmentExpensesNotIncld2Amt
Other Expenses Not Included$882,400OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$1,087,723ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$107,797,032TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART III, LINE 4:THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
PART V, LINE 4:THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES.
PART X, LINE 2:U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2018, 2017, 2016, 2015 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:FUNDRAISING EXPENSES -882,400. CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -543,808.
PART XII, LINE 4B - OTHER ADJUSTMENTS:FUNDRAISING EXPENSES 882,400.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC00PROGRAM SERVICESRESEARCH GRANT$336,389
EUROPE (INCLUDING ICELAND & GREENLAND)00PROGRAM SERVICESRESEARCH GRANT$1,432,458
NORTH AMERICA00PROGRAM SERVICESRESEARCH GRANT$1,033,898
SOUTH AMERICA00PROGRAM SERVICESRESEARCH GRANT$113,500
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$2,916,245SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$2,916,245TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EAST ASIA AND THE PACIFICRESEARCH$336,389CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$1,432,458CHECK
NORTH AMERICARESEARCH$1,033,898CHECK
SOUTH AMERICARESEARCH$113,500CHECK
FieldValueIRS element (for citing)
Total Other Org33TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1SPECIAL EVENTSEvent1Nm
Gross Receipts Event1$45,691,235GrossReceiptsEvent1Amt
Charitable Contri Event1$43,382,116CharitableContriEvent1Amt
Gross Revenue Event1$2,309,119GrossRevenueEvent1Amt
Other Direct Expenses Event1$2,309,119OtherDirectExpensesEvent1Amt
Event2SIGNATUREEvent2Nm
Gross Receipts Event2$22,157,968GrossReceiptsEvent2Amt
Charitable Contri Event2$17,860,003CharitableContriEvent2Amt
Gross Revenue Event2$4,297,965GrossRevenueEvent2Amt
Other Direct Expenses Event2$4,297,965OtherDirectExpensesEvent2Amt
Other Events Total144OtherEventsTotalCnt
Gross Receipts Other Events$5,184,934GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$4,801,249CharitableContriOtherEventsAmt
Gross Revenue Other Events$383,685GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$383,685OthDirectExpnssOtherEventsAmt
Gross Receipts Total$73,034,137GrossReceiptsTotalAmt
Charitable Contributions Tot$66,043,368CharitableContributionsTotAmt
Gross Revenue Total Events$6,990,769GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$6,990,769OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$6,990,769DirectExpenseSummaryEventsAmt
Net Income Summary$0NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$176,339GrossRevenueOtherGamingAmt
Rent Fclty Costs Other Gaming$22,165RentFcltyCostsOtherGamingAmt
Volunteer Labor Other GamingYes (1)VolunteerLaborOtherGamingInd
Volunteer Labor Other Gaming1.00000VolunteerLaborOtherGamingPct
Gross Revenue Total Gaming$176,339GrossRevenueTotalGamingAmt
Rent Fclty Costs Total Gaming$22,165RentFcltyCostsTotalGamingAmt
Direct Expense Summary Gaming$22,165DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$154,174NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedTXStatesWhereGamingConductedCd
States Where Gaming ConductedFLStatesWhereGamingConductedCd
States Where Gaming ConductedPAStatesWhereGamingConductedCd
States Where Gaming ConductedCAStatesWhereGamingConductedCd
States Where Gaming ConductedNEStatesWhereGamingConductedCd
States Where Gaming ConductedWIStatesWhereGamingConductedCd
States Where Gaming ConductedNYStatesWhereGamingConductedCd
States Where Gaming ConductedMIStatesWhereGamingConductedCd
States Where Gaming ConductedOKStatesWhereGamingConductedCd
States Where Gaming ConductedLAStatesWhereGamingConductedCd
LicensedYes (1)LicensedInd
License Suspended Etc0LicenseSuspendedEtcInd
Gaming With NonmembersYes (1)GamingWithNonmembersInd
Member Of Other Entity0MemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct

Persons With Books Name PersonsWithBooksName

FieldValueIRS element (for citing)
Business Name Line1JENNIFER BUZALSKI CONTROLLERBusinessNameLine1Txt

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK STREET STE 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game Rev0CntrctWith3rdPrtyForGameRevInd

Gaming Manager Business Name GamingManagerBusinessName

FieldValueIRS element (for citing)
Business Name Line1NABusinessNameLine1Txt
FieldValueIRS element (for citing)
Charitable Distribution Rqr0CharitableDistributionRqrInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (210 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
ACURASTEM INC
2520 E LEE STSEATTLEWA98112811640548C-CORP$150,000RESEARCH
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVEMINNEAPOLISMN55415411717098501(C)(3)$86,666RESEARCH
ANN AND ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO
225 E CHICAGO BOX 205CHICAGOIL60611362170833501(C)(3)$137,500MEDICAL DIAGNOSIS AND RESEARCH
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
1303 E UNIVERSITY BOX 5TUCSONAZ85719742652689STATE OF AZ$96,087RESEARCH
BAYCARE MEDICAL GROUP
300 PARK PLACE BLVD SUITE 170CLEARWATERFL33759593140335501(C)(3)$18,750MEDICAL DIAGNOSIS
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZAHOUSTONTX77030741613878501(C)(3)$261,250MEDICAL DIAGNOSIS AND RESEARCH
BEAUMONT HEALTH SYSTEM
3601 W 13 MILE ROADROYAL OAKMI48073381459362501(C)(3)$18,750MEDICAL DIAGNOSIS
BECKMAN RESEARCH INSTITUTE OF THE CITY OF HOPE
1500 E DURARTE RDDURARTECA91010953432210501(C)(3)$125,000RESEARCH
BILLINGS CLINIC FOUNDATION
PO BOX 31031BILLINGSMT59107810407289501(C)(3)$7,500MEDICAL DIAGNOSIS
BOARD OF REGENTS NSHE
CONTROLLERS OFFICE MAIL STOP 0124RENONV89557886000024STATE OF NV$175,000RESEARCH
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616SPRINGFIELDIL62794376005961STATE OF IL$7,500MEDICAL DIAGNOSIS
BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149BOSTONMA02241042312909501(C)(3)$22,500MEDICAL DIAGNOSIS
BROWN UNIVERSITY
350 EDDY STREET BOX 1929PROVIDENCERI02912050258809501(A)$202,188RESEARCH
CALIFORNIA PACIFIC MEDICAL
2324 SACRAMENTO STREETSAN FRANCISCOCA94115942728943501(C)(3)$14,094MEDICAL DIAGNOSIS
CARILION CLINIC RESEARCH AN DEVELOPMENT
101 ELM AVENUE SEROANOKEVA24013540506332501(C)(3)$15,000MEDICAL DIAGNOSIS
CARLE FOUNDATION HOSPITAL
611 WEST PARKURBANAIL61801371119538501(C)(3)$7,500MEDICAL DIAGNOSIS
CAROLINAS HEALTHCARE FOUNDATION
208 EAST BOULEVARDCHARLOTTENC28203566060481501(C)(3)$279,904MEDICAL DIAGNOSIS AND RESEARCH
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BOULEVARDLOS ANGELESCA90048951644600501(C)(3)$92,500MEDICAL DIAGNOSIS AND RESEARCH
CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100ROUND ROCKTX78681742710396501(C)(3)$7,500MEDICAL DIAGNOSIS
CHILD NEUROLOGY CONSULTANTS OF AUSTIN
6811 AUSTIN CENTER BLVD SUITE 400AUSTINTX78731472192039$7,500MEDICAL DIAGNOSIS
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVETUCSONAZ85712860667510501(C)(3)$15,000MEDICAL DIAGNOSIS
CHILDRENS HEALTHCARE OF ATLANTA
1577 NORTHEAST EXPRESSWAYATLANTAGA30329580572465501(C)(3)$18,750MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL BOSTON MA
300 LONGWOOD AVENUEBOSTONMA02115042774441501(C)(3)$305,685RESEARCH
CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285AURORACO80045840166760501(C)(3)$41,250MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL CORPORATION
PO BOX 414413BOSTONMA02241042774441501(C)(3)$18,750MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL LOS ANGELES
4650 SUNSET BLVDLOS ANGELESCA90027951690977501(C)(3)$15,000MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVECINCINNATIOH45229310833963501(C)(3)$37,500MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF ORANGE COUNTY
1201 W LA VETA AVEORANGECA92868952321786501(C)(3)$7,500MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF PHILADELPHIA
3615 CIVIC CENTER BLVDPHILADELPHIAPA19104231352166501(C)(3)$156,250MEDICAL DIAGNOSIS AND RESEARCH
CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANTPITTSBURGHPA15224251865744501(C)(3)$18,750MEDICAL DIAGNOSISFLOOR 3
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANENORFOLKVA23507540506321501(C)(3)$15,000MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL NEW ORLEANS
200 HENRY CLAY AVENUENEW ORLEANSLA70118720467503501(C)(3)$7,500MEDICAL DIAGNOSIS
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NWWASHINGTONDC20010521640403501(C)(3)$18,750MEDICAL DIAGNOSIS
CHILDREN'S RESEARCH INSTITUTE (CNMC)
111 MICHIGAN AVENUE NWWASHINGTONDC20010521654453501(C)(3)$120,000RESEARCH
CHRISTI HOSPITALS WICHITA INC
707 NORTH EMPORIA AVENUEWICHITAKS67214481172106501(C)(3)$15,000MEDICAL DIAGNOSIS
CLINICAL NEUROLOGY PC
4221 S WESTERN SUITE 5010OKLAHOMA CITYOK73109412141136501(C)(3)$56,250MEDICAL DIAGNOSIS
COLORADO STATE UNIVERSITY
BOX 2002FORT COLLINSCO80523846000545STATE OF CO$75,000RESEARCH
COLUMBIA UNIVERSITY MEDICAL CENTER
PO BOX 29789NEW YORKNY29789135598093501(C)(3)$175,951RESEARCH
CONNECTICUT CHILDRENS MEDICAL CENTER
282 WASHINGTON STREETHARTFORDCT06106060646755501(C)(3)$15,000MEDICAL DIAGNOSIS
COOK CHILDRENS MEDICAL CENTER
801 SEVENTH AVENUEFT WORTHTX76104752051646501(C)(3)$11,250MEDICAL DIAGNOSIS
CORNELL UNIVERSITY
373 PINE TREE ROADITHACANY14850150532082501(C)(3)$174,999RESEARCH
DANA-FARBER CANCER INSTITUTE
450 BROOKLINE AVENUEBOSTONMA02215042263040C-CORP$60,000RESEARCH
DEAN HEALTH SYSTEMS INC
1808 WEST BELTLINE HWYMADISONWY53715391128616501(C)(3)$15,000MEDICAL DIAGNOSIS
DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOORAMHERSTNY14226161582336501(C)(3)$15,000MEDICAL DIAGNOSIS
DIGNITY HEALTH ST JOSEPHS HOSPITAL
3033 N 3RD AVENUECHANDLERAZ85224860096787501(C)(3)$37,500MEDICAL DIAGNOSIS
DRISCOLL CHILDRENS HOSPITAL
3533 SOUTH ALAMEDA STREETCORPUS CHRISTITX78411742577746501(C)(3)$7,500MEDICAL DIAGNOSIS
DUKE UNIVERSITY MEDICAL CENTER
PO BOX 602651CHARLOTTENC28260560532129501(C)(3)$75,000MEDICAL DIAGNOSIS
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOORATLANTAGA30322580566256501(C)(3)$265,722RESEARCH
ESSENTIA HEALTH DULUTH
400 E 3RD STREETDULUTHMN55805410884623501(C)(3)$7,500MEDICAL DIAGNOSIS
FEDERATION OF AMERICAN SOCIETIES FOR EXPERIMENTAL BIOLOGY
9650 ROCKVILLE PIKEBETHESDAMD20814520700497501(C)(3)$5,000RESEARCH
GEISINGER CLINIC
100 N ACADEMY AVEDANVILLEPA17822236291113501(C)(3)$15,000MEDICAL DIAGNOSIS
GEORGE WASHINGTON UNIVERSITY DC
2121 EYE ST NW ROOM 601WASHINGTONDC20052530196584501(C)(3)$245,989RESEARCH
GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUEST PAULMN55101363379150501(C)(3)$37,500MEDICAL DIAGNOSIS
GOOD SHEPHERD REHABILITATION HOSPITAL
850 SOUTH 5TH STREETALLENTOWNPA18103231371947501(C)(3)$37,500MEDICAL DIAGNOSIS
GORDON RESEARCH CONFERENCES
512 LIBERTY LANEW KINGSTONRI02892260150662501(C)(3)$7,500RESEARCH
GREENVILLE HEALTH SYSTEM UPSTATE AFFILIATE ORGANIZATION
701 GROVE ROADGREENVILLESC29605811723202501(C)(3)$15,000MEDICAL DIAGNOSIS
HARVARD MEDICAL SCHOOL
1350 MASSACHUSETTS AVENUECAMBRIDGEMA02138042103580501(C)(3)$100,000RESEARCH
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUENEW BRITAINCT06053060646766501(C)(3)$37,500MEDICAL DIAGNOSIS
HOUSTON METHODIST RESEARCH INSTITUTE
1599 CLIFTON ROAD NE 4TH FLOORATLANTAGA30322580566256501(C)(3)$17,775RESEARCH
ICAGEN-T
2090 E INNOVATION PARK DRORO VALLEYAZ85755813002107C-CORP$74,625RESEARCH
INLAND NORTHWEST HEALTH SERVICES
PO BOX 2185SPOKANEWA99210911307555501(C)(3)$15,000MEDICAL DIAGNOSIS
IRON HORSE DIAGNOSTICS AZ
21053 N 75TH STREETSCOTTSDALEAZ85255454537278C-CORP$108,587RESEARCH
IU HEALTH NEUROSCIENCE CENTER
355 W 16TH STREET 4TH FLOOR SUITEINDIANAPOLISIN46202351955872501(C)(3)$15,000MEDICAL DIAGNOSIS4700
IU HEALTH RILEY HOSPITAL FOR CHILDREN
355 W 16TH STREET 4TH FLOOR SUITEINDIANAPOLISIN46202351955872501(C)(3)$15,000MEDICAL DIAGNOSIS4700
JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117BALTIMOREMD21205520595110501(C)(3)$699,352MEDICAL DIAGNOSIS AND RESEARCH
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039KANSAS CITYKS66160481108830501(C)(3)$56,250MEDICAL DIAGNOSIS
LE BONHEUR COMMUNITY HEALTH AN WELL BEING
50 PEABODY PLACE SUITE 400MEMPHISTN38103621251288501(C)(3)$18,750MEDICAL DIAGNOSIS
LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202LOMA LINDACA92350951816009501(C)(3)$26,250MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
433 BOLIVAR STNEW ORLEANSLA70112726087770501(C)(3)$15,000MEDICAL DIAGNOSIS
LSUHSC-SHREVEPORT
1501 KINGS HWYSHREVEPORTLA71103720702002501(C)(3)$15,000MEDICAL DIAGNOSIS
LUDWIG INSTITUTE FOR CANCER RESEARCH LTD
9500 GILMAN DRIVELA JOLLACA92093237121131501(C)(3)$144,500RESEARCH
MAINE MEDICAL CENTER
22 BRAMHALL STPORTLANDME04102010238552501(C)(3)$11,250MEDICAL DIAGNOSIS
MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 N OAK AVEMARSHFIELDWI54449390452970501(C)(3)$7,500MEDICAL DIAGNOSIS
MASS GENERAL HOSPITAL - RESEARCH
PO BOX 414876BOSTONMA02241042697983501(C)(3)$93,750MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVENUE STE 300BOSTONMA02199042697983501(C)(3)$481,656RESEARCH
MAYO CLINIC
4500 SAN PABLO ROADJACKSONVILLEFL32224593337028501(C)(3)$15,000MEDICAL DIAGNOSIS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROADJACKSONVILLEFL32224593337028501(C)(3)$205,571RESEARCH
MCKINNON MEDICAL GROUP PLLC
351 N BUFFALO DRLAS VEGASNV89145453720025$7,500MEDICAL DIAGNOSIS
MCV ASSOCIATED PHYSICIANS
PO BOX 980599RICHMONDVA23298541581185501(C)(3)$22,500MEDICAL DIAGNOSIS
MDA CARE CENTER AT SUNY UPSTATE MEDICAL UNIVERSITY
750 EAST ADAMS STREETSYRACUSENY13210141368361501(C)(3)$1,481,250MEDICAL DIAGNOSIS
MDA CLINIC AT DARTMOUTH-HITCHCOCK MEDICAL CENTER--ONE MEDICAL CENTER DRIVE
ONE MEDICAL CENTER DRIVELEBANONNH03756020222140501(C)(3)$15,000MEDICAL DIAGNOSIS
MEDICAL COLLEGE OF WISCONSIN
9200 WEST WISCONSIN AVENUEMILWAUKEEWI53226390806261501(C)(3)$22,500MEDICAL DIAGNOSIS
MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606 MSC 808CHARLESTONSC29425576000722501(C)(3)$15,000MEDICAL DIAGNOSIS
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOORWASHINGTONDC20007522228444501(C)(3)$15,000MEDICAL DIAGNOSIS
MERCY HEALTH FOUNDATION SPRINGFIELD
620 S GLENSTONE AVESPRINGFIELDMO65802320195818501(C)(3)$7,500MEDICAL DIAGNOSIS
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2EAST LANSINGMI48824386005984501(C)(3)$18,750MEDICAL DIAGNOSIS
MILLER SCHOOL OF MEDICINE OF THE UNIVERSITY OF MIAMI
1320 SOUTH DIXIE HIGHWAY SUITE 650CORAL GABLESFL33146590624458STATE OF FL$250,000RESEARCH
MONTEFIORE MEDICAL CENTER
3351 STEUBEN AVE 3RD FLOORBRONXNY10467131740114501(C)(3)$37,500MEDICAL DIAGNOSIS
NEMOURS
10140 CENTURION PARKWAY NJACKSONVILLEFL32256590634433501(C)(3)$26,250MEDICAL DIAGNOSIS
NEMOURS FOUNDATION
10140 CENTURION PARKWAY NJACKSONVILLEFL32256590634433501(C)(3)$48,750MEDICAL DIAGNOSIS
NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707TULSAOK74104731502318$18,750MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026BOSTONMA02241135562308STATE OF NY$37,500MEDICAL DIAGNOSIS
NORTHEAST ALS CONSORTIUM
811 W 7TH STREET FLOOR 12LOS ANGELESCA90017562547779501(C)(3)$55,635RESEARCH
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
710 N LAKESHORE DR SUITE 1119CHICAGOIL60611363097297STATE OF IL$50,000MEDICAL DIAGNOSIS
NORTHWESTERN UNIVERSITY
750 NORTH LAKE SHORE DRIVECHICAGOIL60611362167817501(C)(3)$190,000RESEARCH
OLIVE VIEW-UCLA EDUCATION AN RESEARCH INSTITUTE
14445 OLIVE VIEW DRIVESYLMARCA91342952249539501(C)(3)$18,750MEDICAL DIAGNOSIS
OREGON HEALTH AN SCIENCE UNIVERSITY
0690 SW BANCROFT STPORTLANDOR97239931176109STATE OF OR$18,750MEDICAL DIAGNOSIS
OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL
800 NE GLEN OAK AVEPEORIAIL61603383852646501(C)(3)$7,500MEDICAL DIAGNOSIS
PALO ALTO VET INSTITUTE FOR RESEARCH
3801 MIRANDA AVEPALO ALTOCA94304770207331501(C)(3)$69,621RESEARCH
PERKINELMER GENETICS INC
1599 CLIFTON ROAD NE 4TH FLOORATLANTAGA30322580566256501(C)(3)$125,000RESEARCH
PHOENIX CHILDRENS HOSPITAL
1919 EAST THOMAS RDPHOENIXAZ85016860422559501(C)(3)$7,500MEDICAL DIAGNOSIS
PONCE HEALTH SCIENCES UNIVERSITY
PO BOX 7004PONCEPR00732660379122501(C)(3)$15,000MEDICAL DIAGNOSIS
PURDUE UNIVERSITY
155 S GRANT STREETWEST LAFAYETTEIN47907356002041STATE OF INDIANA$58,180RESEARCH
RADY CHILDRENS HOSPITAL FOUNDATION
3020 CHILDRENS WAYSAN DIEGOCA92123330170626501(C)(3)$15,000MEDICAL DIAGNOSIS
REGENTS OF THE UNIVERSITY OF CALIFORNIA
4860 Y STREET SUITE 3850SACRAMENTOCA95817946036494501(C)(3)$37,500MEDICAL DIAGNOSIS
REGENTS OF THE UNIVERSITY OF MINNESOTA
PO BOX 1450MINNEAPOLISMN55485416007513STATE ON MN$56,250MEDICAL DIAGNOSIS
RHODE ISLAND HOSPITAL
593 EDDY STREETPROVIDENCERI02903050258954501(C)(3)$7,500MEDICAL DIAGNOSIS
RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAYCHICAGOIL60612362174823501(C)(3)$15,000MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREETNEWARKNJ07103462354111STATE OF NJ$137,500MEDICAL DIAGNOSIS AND RESEARCH
SAINT LOUIS UNIVERSITY
221 NORTH GRAND BOULEVARDST LOUISMO63103430654872501(C)(3)$50,000RESEARCH
SALK INSTITUTE FOR BIOLOGICAL STUDIES
10010 N TORREY PINES RDLA JOLLACA92037952160097501(C)(3)$45,000RESEARCH
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10010 N TORREY PINES RDLA JOLLACA92037510197108501(C)(3)$99,655RESEARCH
SANFORD CHILDRENS SPECIALTY CLINIC
415 NORTH 3RD AVENUEFARGOND58102911770748501(C)(3)$7,500MEDICAL DIAGNOSIS
SANFORD MEDICAL CENTER FARGO
415 NORTH 3RD AVENUEFARGOND58102911770748501(C)(3)$7,500MEDICAL DIAGNOSIS
SANFORD-BURNHAM MEDICAL RESEARCH INSTITUTE
10010 N TORREY PINES RDLA JOLLACA92037510197108501(C)(3)$106,779RESEARCH
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAILSARASOTAFL34239596012500501(C)(3)$15,000MEDICAL DIAGNOSIS
SEATTLE CHILDRENS HOSPITAL
4300 ROOSEVELT WAY NESEATTLEWA98105910564748501(C)(3)$37,500MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK RPORTLANDOR97239362193608501(C)(3)$7,500MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN CHICAGO
3101 SW SAM JACKSON PARK RPORTLANDOR97239362193608501(C)(3)$15,000MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN TAMPA
3101 SW SAM JACKSON PARK RPORTLANDOR97239362193608501(C)(3)$18,750MEDICAL DIAGNOSIS
SOLID BIOSCIENCES LLC
111 MICHIGAN AVE NWWASHINGTONDC20210521654453501(C)(3)$49,870RESEARCH
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROADPORT JEFFERSONNY11777412076312501(C)(3)$15,000MEDICAL DIAGNOSIS
ST JOSEPH'S HOSPITAL MEDICAL CENTER
350 WEST THOMAS RDPHOENIXAZ85013860096787501(C)(3)$99,278RESEARCH
ST LUKES HEALTH SYSTEM
PO BOX 1663BOISEID83701820161600501(C)(3)$15,000MEDICAL DIAGNOSIS
ST PETERS HOSPITAL
310 S MANNING BLVDALBANYNY12208222262982501(C)(3)$37,500MEDICAL DIAGNOSIS
ST VINCENT HOSPITAL DBA PREVEA HEALTH
PO BOX 19070GREEN BAYWI54307390817529501(C)(3)$7,500MEDICAL DIAGNOSIS
STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON ROAD MAIL CODE 5894MENLO PARKCA94025770003859501(C)(3)$37,500MEDICAL DIAGNOSIS
STANFORD HEALTH CARE
PO BOX 742835LOS ANGELESCA90074946174066501(C)(3)$37,500MEDICAL DIAGNOSIS
STANFORD UNIVERSITY
3172 PORTER DRIVEPALO ALTOCA94304941156365501(C)(3)$115,000RESEARCH
SUTTER PACIFIC MEDICAL FOUNDATION
2324 SACRAMENTO STREETSAN FRANCISCOCA94115942728943501(C)(3)$37,500MEDICAL DIAGNOSIS
TARGET ALS
PO BOX 1598NEW YORKNY10101810756743501(C)(3)$20,000RESEARCH
TEMPLE UNIVERSITY
PO BOX 827997PHILADELPHIAPA19182231365971501(C)(3)$26,250MEDICAL DIAGNOSIS
TEXAS NEUROLOGY PA
6301 GASTON AVEDALLASTX75214752654757501(C)(3)$15,000MEDICAL DIAGNOSIS
TEXAS TECH UNIVERSITY HEALTH SCIENCE CENTER
3601 4TH STLUBBOCKTX79430752668014STATE OF TX$140,250RESEARCH
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
600 HIGHLAND AVEMADISONWI53792396006492STATE OF WI$15,000MEDICAL DIAGNOSIS
THE EMORY CLINIC INC
12 EXECUTIVE PARK DR NE RM 433ATLANTAGA30329582030692501(C)(3)$75,000MEDICAL DIAGNOSIS
THE HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH STREETNEW YORKNY10021131624135501(C)(3)$37,500MEDICAL DIAGNOSIS
THE JACKSON LABORATORY--
600 MAIN STREETBAR HARBORME04609010211513501(C)(3)$25,000RESEARCH
THE METHODIST HOSPITAL FOUNDATION
6560 FANNIN STHOUSTONTX77030760094743501(C)(3)$353,500MEDICAL DIAGNOSIS AND RESEARCH
THE METROHEALTH SYSTEM
PO BOX 73308CLEVELANDOH44193346004382501(C)(3)$18,750MEDICAL DIAGNOSIS
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD 4TH FLOORCOLUMBUSOH43210316025986STATE OF OH$99,412MEDICAL DIAGNOSIS AND RESEARCH
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
PO BOX 850HERSHEYPA17033246000376STATE OF PA$26,250MEDICAL DIAGNOSIS
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195CHARLOTTESVILLEVA22904546001796501(C)(3)$22,500MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
1850 RESEARCH PARK DRIVE SUITE 300DAVISCA95618946036494501(C)(3)$124,861RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
120 THEORY SUITE 200IRVINECA92697952226406501(C)(3)$56,250MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
141 INNOVATION SUITE 250IRVINECA92697952226406501(C)(3)$55,000RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
405 HILGARD AVENUELOS ANGELESCA90095956006143501(C)(3)$479,913MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE DEPT 0934LA JOLLACA92093956006144501(C)(3)$90,000MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM STREET SUITE 425SAN FRANCISCOCA94143946036493501(C)(3)$52,500MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO--UCSF MAIN DEPOS
PO BOX 748872LOS ANGELESCA90074946036493501(C)(3)$133,840RESEARCH
THE REGENTS OF THE UNIVERSITY OF COLORADO
500 13001 E 17TH PLACE RM W1124AURORACO80045846000555STATE OF CO$75,000RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 S STATE STREETANN ARBORMI48109386006309501(C)(3)$183,502MEDICAL DIAGNOSIS
THE RESEARCH FOUNDATION FOR THE SUNY ON BEHALF OF UNIVERSITY
35 STATE STALBANYNY12207141368361501(C)(3)$50,000RESEARCH
THE RESEARCH FOUNDATION OF SUNY AT BINGHAMTON UNIVERSITY
PO BOX 6000BINGHAMTONNY13902141368361501(C)(3)$175,000RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDRENS HOSPITAL
700 CHILDRENS DRIVECOLUMBUSOH43205316056230501(C)(3)$378,787RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDRENS HOSPITAL
700 CHILDRENS DRIVECOLUMBUSOH43205316056230501(C)(3)$37,500MEDICAL DIAGNOSIS
THE SCRIPPS RESEARCH INSTITUTE-- LA JOLLA CA
10550 NORTH TORREY PINES ROADLA JOLLACA92037330435954501(C)(3)$75,000RESEARCH
THE TOLEDO HOSPITAL DBA PROMEDICA TOLEDO CHILDRENS HOSPITAL
3949 SUNFOREST COURT TWIN OAKSTOLEDOOH43623344428256501(C)(3)$15,000MEDICAL DIAGNOSISMEDICAL BLDG SUITE 203
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET BOX 49NEW YORKNY10032135598093501(C)(3)$131,250MEDICAL DIAGNOSIS
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
PO BOX 785541PHILADELPHIAPA19178231352685501(C)(3)$97,775MEDICAL DIAGNOSIS AND RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUEBIRMINGHAMAL35233636005396STATE OF AL$262,791MEDICAL DIAGNOSIS AND RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
PO BOX 402420ATLANTAGA30384566001393501(C)(3)$15,000MEDICAL DIAGNOSIS
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200CHAPEL HILLNC27599566001393501(C)(3)$50,000RESEARCH
THE UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
1000 STANTON BLVDOKLAHOMA CITYOK73117736017987STATE OF OK$75,000RESEARCH
THOMAS JEFFERSON UNIVERSITY
125 S 9TH STPHILADELPHIAPA19107231352651501(C)(3)$124,623RESEARCH
TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS-
200 JEFFERSON SEGRAND RAPIDSMI49503272491974501(C)(3)$15,000MEDICAL DIAGNOSIS
TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
PO BOX 29789NEW YORKNY10087135598093501(C)(3)$92,578RESEARCH
UNIVERSITY FACULTY ASSOCIATES INC
2335 E KASHIAN LANE SUITE 301FRESNOCA93701463969536501(C)(3)$15,000MEDICAL DIAGNOSIS
UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
750 EAST ADAMS STREETSYRACUSENY13210141368361501(C)(3)$26,250MEDICAL DIAGNOSIS
UNIVERSITY NEUROLOGY INC
77 GOODELL ST SUITE 310BUFFALONY14203161359213501(C)(3)$7,500MEDICAL DIAGNOSIS
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUEBIRMINGHAMAL35233636005396STATE OF AL$15,000MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM 812LITTLE ROCKAZ72205716046242STATE OF AR$15,000MEDICAL DIAGNOSIS
UNIVERSITY OF CINCINNATI PHYSICIANS
51 GOODMAN DR SUITE 530CINCINNATIOH45221316000989501(C)(3)$26,250MEDICAL DIAGNOSIS
UNIVERSITY OF COLORADO DENVER
3100 MARINE STREET ROOM 479BOULDERCO80309846000555STATE OF CO$75,000MEDICAL DIAGNOSIS
UNIVERSITY OF COLORADO DENVER
13001 E 17TH PLACE RM W1124AURORACO80045846000555STATE OF CO$60,000RESEARCH
UNIVERSITY OF FLORIDA
219 GRINTER HALLGAINESVILLEFL32611596002052STATE OF FL$749,675MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF ILLINOIS
1901 SOUTH FIRST STREET SUITE ACHAMPAIGNIL61820376000511501(C)(3)$100,000RESEARCH
UNIVERSITY OF IOWA
2 GILMORE HALLIOWA CITYIA52242426004813STATE OF IOWA$309,275MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARDKANSAS CITYKS66160481108830501(C)(3)$317,945RESEARCH
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
500 S LIMESTONELEXINGTONKY40526616033693501(C)(3)$50,000RESEARCH
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300LOUISVILLEKY40202611029626501(C)(3)$15,000MEDICAL DIAGNOSIS
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGTON STREET 4TH FLOORBALTIMOREMD21201526002033STATE OF MD$54,880RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUENORTH WORCESTERMA01655043167352STATE OF MA$400,000RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUENORTH WORCESTERMA01655043167352STATE OF MA$15,000MEDICAL DIAGNOSIS
UNIVERSITY OF MIAMI
1320 SOUTH DIXIE HIGHWAY SUITE 650CORAL GABLESFL33146590624458STATE OF FL$228,853MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF MINNESOTA
200 OAK STREET SEMINNEAPOLISMN55455416007513STATE ON MN$270,000RESEARCH
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREETJACKSONMS39216646008520STATE OF MS$15,000MEDICAL DIAGNOSIS
UNIVERSITY OF MISSOURI
ONE HOSP DRIVECOLUMBIAMO65212436003859STATE OF MO$75,000RESEARCH
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985450 NEBRASKA MEDICAL CENTEROMAHANE68198470049123STATE OF NE$26,250MEDICAL DIAGNOSIS
UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICOALBUQUERQUENM87131856000642STATE OF NM$15,000MEDICAL DIAGNOSIS
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACEPITTSBURGHPA15213250965591STATE OF PA$261,711MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF ROCHESTER
601 ELMWOOD AVENUE BOX 673ROCHESTERNY14642160743209501(C)(3)$396,147MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVESAN ANTONIOTX78229741586031STATE OF TX$56,250MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH
15 N 2030 E ROOM 2260SALT LAKE CITYUT84112876000525STATE OF UT$170,788MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902BURLINGTONVT05401030219303STATE OF VT$15,000MEDICAL DIAGNOSIS
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472SEATTLEWA98195916001537STATE OF WA$125,000RESEARCH
UNIVERSITY OF WASHINGTON MEDICAL CENTER
1959 NE PACIFICSEATTLEWA98195916001537STATE OF WA$37,500MEDICAL DIAGNOSIS
UNIVERSITY PHYSICIANS
310 JESSE HALLCOLUMBIAMO65211436003859STATE OF MO$7,500MEDICAL DIAGNOSIS
USCUNIVERSITY OF SOUTHERN CALIFORNIA--3720 S FLOWER STREET
3720 S FLOWER STLOS ANGELESCA90089951642394STATE OF CA$95,000RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753DALLASTX75284756002868STATE OF TX$167,500MEDICAL DIAGNOSIS AND RESEARCH
UW HOSPITAL AN CLINICS AUTHORITY
600 HIGHLAND AVEMILWAUKEEWI53792391835630501(C)(3)$15,000MEDICAL DIAGNOSIS
VALLEY CHILDRENS HOSPITAL
9300 VALLEY CHILDRENS PLACEMADERACA93636941294954501(C)(3)$7,500MEDICAL DIAGNOSIS
VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236DALLASTX75312352528741501(C)(3)$75,000MEDICAL DIAGNOSIS
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980568RICHMONDVA23298546001758STATE OF VA$374,331RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVDWINSTON SALEMNC27157223849199501(C)(3)$15,000MEDICAL DIAGNOSIS
WASHINGTON UNIVERSITY IN ST LOUIS
1054 ONE BROOKINGS DRIVEST LOUISMO63130430653611501(C)(3)$390,722MEDICAL DIAGNOSIS AND RESEARCH
WESLEY NEUROLOGY CLINIC PC
8000 CENTERVIEW PARKWAY SUITE 305CORDOVATN38018621499155501(C)(3)$37,500MEDICAL DIAGNOSIS
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROADMORGANTOWNWV26506550665758501(C)(3)$15,000MEDICAL DIAGNOSIS
WRIGHT STATE UNIVERSITY
3640 COLONEL GLENN HWYDAYTONOH45435310732831501(C)(3)$63,840RESEARCH
YALE UNIVERSITY
PO BOX 1873NEW HAVENCT06508060646973501(C)(3)$123,357MEDICAL DIAGNOSIS AND RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org203Total501c3OrgCnt
Total Other Org7TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentYes (1)SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
EILEEN TIMMINS PHD JAN-SEPT
ASST. SEC. EVP CHIEF PEOPLE OFFICER$155,722$0$0$0$6,877$0$700$0$16,275$0$179,574$0$0$0
ELLEN VOS
PRESIDENT & CEO$529,056$0$0$0$1,188$0$0$0$12,037$0$542,281$0$0$0
MICHAEL KENNEDY MAR-DEC
ASST. TREASURER, ASST. SEC. & CFO$215,428$0$0$0$506$0$3,617$0$10,558$0$230,109$0$0$0
KAREN ALEXANDER
EVP, CHIEF IMPACT & PHILANTHROPY OFF$265,266$0$0$0$12,524$0$867$0$11,681$0$290,338$0$0$0
ANOTHONY ENGLERT
VP, FUNDRAISING OPERATIONS$203,280$0$0$0$774$0$2,541$0$17,832$0$224,427$0$0$0
GAIL KERNER
SR VP & GENERAL COUNSEL$82,335$0$0$0$100,829$0$0$0$12,699$0$195,863$0$0$0
GRACE PAVLATH
SR VP SCIENTIFIC PROGRAM DIRECTOR$207,710$0$0$0$188$0$1,238$0$18,422$0$227,558$0$0$0
JEANNE ZUCKER
SENIOR VP, HEALTHCARE PARTNERSHIPS$199,039$0$0$0$566$0$0$0$0$0$199,605$0$0$0
KRISTIN STEPHENSON
SVP, CHIEF POLICY & COMM ENGAGEMENT$210,817$0$0$0$180$0$688$0$29,812$0$241,497$0$0$0

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 4AFormAndLineReferenceDesc
ExplanationGAIL KERNER RECEIVED SEVERANCE PAYMENT OF $98,475. THE AMOUNT IS PRESENTED IN PART II, B(III).ExplanationTxt

Schedule L IRS990ScheduleL

Grnt Asst Bnft Interested Prsn GrntAsstBnftInterestedPrsnGrp

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1STANLEY APPELBusinessNameLine1Txt
FieldValueIRS element (for citing)
Relationship With OrgBOARD MEMBERRelationshipWithOrgTxt
Cash Grant$278,500CashGrantAmt
Type Of AssistanceRESEARCH GRANTTypeOfAssistanceTxt
Assistance PurposeSEE PART VAssistancePurposeTxt

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DANIEL G FRIESBusinessNameLine1Txt
FieldValueIRS element (for citing)
Relationship DescriptionMDA BOARD MEMBERRelationshipDescriptionTxt
Transaction$151,400TransactionAmt
TransactionMDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES.TransactionDesc
Sharing Of Revenues0SharingOfRevenuesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART III, LINE 1, COLUMN E:FormAndLineReferenceDesc
ExplanationTHE GRANT AMOUNT WENT TO STANLEY APPEL'S INSTITUTION, THE METHODIST HOSPITAL RESEARCH INSTITUTE. HE WAS THE RESEARCHER THAT THE GRANT BENEFITS.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Closely Held Stock SecuritiesCloselyHeldStockGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution83ContributionCnt
Noncash Contributions Rpt F990$1,109,798NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Securities Miscellaneous SecuritiesMiscellaneousGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution1ContributionCnt
Noncash Contributions Rpt F990$2,515,500NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, COLUMN (B):FormAndLineReferenceDesc
ExplanationAMOUNTS IN COLUMN B REPRESENT THE NUMBER OF CONTRIBUTIONS.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12CTHE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH LEGAL.
FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART XI, LINE 9:CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS -543,808.
FORM 990, PART XII LINE 2C:THE ORGANIZATION HAS A COMMITTEE RESPONSIBLE FOR THE OVERSIGHT OF THE AUDIT AS WELL AS THE SELECTION OF THE INDEPENDENT ACCOUNTANT.