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APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC (EIN 52-1336903)
Tax period
2018-01-01 to 2018-12-31
Filed
2019-10-23
IRS object ID
201932969349300828
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-10-23T10:42:00-05:00ReturnTs
Tax Period End2018-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN521392008PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1GELMAN ROSENBERG & FREEDMANBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line14550 MONTGOMERY AVE SUITE 800NAddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP208142930ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN521336903EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1APLASTIC ANEMIA & MDS INTERNATIONALBusinessNameLine1Txt
Business Name Line2FOUNDATION INCBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlAPLABusinessNameControlTxt
Phone3012797202PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line14330 EAST WEST HIGHWAY NO 230AddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonNEIL HORIKOSHIPersonNm
Person TitleCEOPersonTitleTxt
Phone3012797202PhoneNum
Signature2019-10-23SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonRICHARD J LOCASTRO CPAPreparerPersonNm
PTINP00288314PTIN
Phone3019519090PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address75.103.231.202IPv4AddressTxt
FieldValueIRS element (for citing)
IP2019-10-23IPDt
IP Tm11:41:53IPTm
IP TimezoneEDIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdF22637C97F07C4B2E9947E4430D0228AEC14A97AAtSubmissionCreationDeviceId
At Submission Filing Device Id33DA4B33534C4D7C1853F02558DCFD93AEDB8771AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2019-02-21 02:37:17ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerNEIL HORIKOSHIPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line14330 EAST WEST HIGHWAY NO 230AddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,781,318GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.AAMDS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1983FormationYr
Legal Domicile StateMDLegalDomicileStateCd
Activity Or MissionSEE PART III, LINE 1.ActivityOrMissionDesc
Voting Members Governing Body10VotingMembersGoverningBodyCnt
Voting Members Independent10VotingMembersIndependentCnt
Total Employee20TotalEmployeeCnt
Total Volunteers240TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$13,875NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$5,316,382PYContributionsGrantsAmt
CY Contributions Grants$2,914,718CYContributionsGrantsAmt
PY Program Service Revenue$31,135PYProgramServiceRevenueAmt
CY Program Service Revenue$49,787CYProgramServiceRevenueAmt
PY Investment Income$108,072PYInvestmentIncomeAmt
CY Investment Income$118,113CYInvestmentIncomeAmt
PY Other Revenue-$35,504PYOtherRevenueAmt
CY Other Revenue-$26,136CYOtherRevenueAmt
PY Total Revenue$5,420,085PYTotalRevenueAmt
CY Total Revenue$3,056,482CYTotalRevenueAmt
PY Grants And Similar Paid$2,468,975PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,184,849CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,904,384PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,498,431CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$28,795CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$522,248CYTotalFundraisingExpenseAmt
PY Other Expenses$2,075,260PYOtherExpensesAmt
CY Other Expenses$1,896,206CYOtherExpensesAmt
PY Total Expenses$6,448,619PYTotalExpensesAmt
CY Total Expenses$4,608,281CYTotalExpensesAmt
PY Revenues Less Expenses-$1,028,534PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$1,551,799CYRevenuesLessExpensesAmt
Total Assets BOY$5,908,201TotalAssetsBOYAmt
Total Assets EOY$3,312,135TotalAssetsEOYAmt
Total Liabilities BOY$2,329,240TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,404,415TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$3,578,961NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,907,720NetAssetsOrFundBalancesEOYAmt
MissionTO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$3,885,332ExpenseAmt
Grant$1,184,849GrantAmt
Revenue$49,787RevenueAmt
DescPROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES.Desc
Total Program Service Expenses$3,885,332TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other AssetsYes (1)ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document83IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee20EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (1)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (1)Form990TFiledInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members10GoverningBodyVotingMembersCnt
Independent Voting Member10IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NEIL HORIKOSHIBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone3012797202PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line14330 EAST WEST HIGHWAY SUITE 230AddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (14 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
KEVIN LYONS-TARR
CHAIR2.00Yes (X)Yes (X)$0$0$0
HARSHA MURTHY
VICE CHAIR1.00Yes (X)Yes (X)$0$0$0
STEPHEN KING
SECRETARY1.00Yes (X)Yes (X)$0$0$0
TONY SAN FILIPPO
TREASURER1.00Yes (X)Yes (X)$0$0$0
JUDY PAULETTE
DIRECTOR1.00Yes (X)$0$0$0
STEPHANIE DILLON HAMM
DIRECTOR1.00Yes (X)$0$0$0
DEBORAH COOK
DIRECTOR1.00Yes (X)$0$0$0
JAMES GAJEWSKI
DIRECTOR1.00Yes (X)$0$0$0
BART FISHER
DIRECTOR1.00Yes (X)$0$0$0
MELANIE MARQUEZ
DIRECTOR1.00Yes (X)$0$0$0
KATHLEEN WEIS
CEO (UNTIL OCT. 2018)40.00Yes (X)$241,887$0$21,588
NEIL HORIKOSHI
DIRECTOR THEN CEO (TRANS. OCT. 2018)40.00Yes (X)$19,082$0$0
SERAP AKISOGLU
CHIEF DEVELOPMENT OFFICER40.00$150,231$0$19,463Yes (X)
ALICE HOUK
SENIOR DIR., HEALTH PROF. PROGRAMS40.00$101,397$0$15,773Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$512,597TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$56,824TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CALIBRE CPA GROUPBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line17501 WISCONSIN AVENUEAddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd
FieldValueIRS element (for citing)
ServicesPROFESSIONAL SERVICESServicesDesc
Compensation$189,840CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
Federated Campaigns$19,971FederatedCampaignsAmt
Fundraising$344,713FundraisingAmt
All Other Contributions$2,550,034AllOtherContributionsAmt
Noncash Contributions$4,641NoncashContributionsAmt
Total Contributions$2,914,718TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescCONFERENCEDesc
Business900099BusinessCd
Total Revenue Column$49,787TotalRevenueColumnAmt
Related Or Exempt Func Income$49,787RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$49,787TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$62,579TotalRevenueColumnAmt
Exclusion$62,579ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$1,724,087SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$1,668,553SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$55,534SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$55,534TotalRevenueColumnAmt
Exclusion$55,534ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$30,147FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$344,713ContriRptFundraisingEventAmt
Fundraising Direct Expenses$56,283FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$26,136TotalRevenueColumnAmt
Exclusion-$26,136ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,056,482TotalRevenueColumnAmt
Related Or Exempt Func Income$49,787RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$91,977ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,139,849TotalAmt
Program Services$1,139,849ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$45,000TotalAmt
Program Services$45,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$282,556TotalAmt
Program Services$233,950ProgramServicesAmt
Management And General$28,255ManagementAndGeneralAmt
Fundraising$20,351FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$988,387TotalAmt
Program Services$660,716ProgramServicesAmt
Management And General$56,483ManagementAndGeneralAmt
Fundraising$271,188FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$43,957TotalAmt
Program Services$28,967ProgramServicesAmt
Management And General$2,409ManagementAndGeneralAmt
Fundraising$12,581FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$93,028TotalAmt
Program Services$64,394ProgramServicesAmt
Management And General$5,914ManagementAndGeneralAmt
Fundraising$22,720FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$90,503TotalAmt
Program Services$63,511ProgramServicesAmt
Management And General$5,982ManagementAndGeneralAmt
Fundraising$21,010FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$9,933TotalAmt
Program Services$8,602ProgramServicesAmt
Management And General$279ManagementAndGeneralAmt
Fundraising$1,052FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$212,026TotalAmt
Program Services$183,614ProgramServicesAmt
Management And General$5,962ManagementAndGeneralAmt
Fundraising$22,450FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$30,000TotalAmt
Program Services$30,000ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$28,795TotalAmt
Fundraising$28,795FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$13,113TotalAmt
Management And General$13,113ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$333,850TotalAmt
Program Services$308,573ProgramServicesAmt
Management And General$12,423ManagementAndGeneralAmt
Fundraising$12,854FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$261,841TotalAmt
Program Services$200,607ProgramServicesAmt
Management And General$9,185ManagementAndGeneralAmt
Fundraising$52,049FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$119,942TotalAmt
Program Services$88,556ProgramServicesAmt
Management And General$18,594ManagementAndGeneralAmt
Fundraising$12,792FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$190,256TotalAmt
Program Services$139,347ProgramServicesAmt
Management And General$30,160ManagementAndGeneralAmt
Fundraising$20,749FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$166,321TotalAmt
Program Services$161,972ProgramServicesAmt
Management And General$560ManagementAndGeneralAmt
Fundraising$3,789FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$410,628TotalAmt
Program Services$399,890ProgramServicesAmt
Management And General$1,382ManagementAndGeneralAmt
Fundraising$9,356FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$41,019TotalAmt
Program Services$30,884ProgramServicesAmt
Management And General$6,004ManagementAndGeneralAmt
Fundraising$4,131FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$17,135TotalAmt
Program Services$12,550ProgramServicesAmt
Management And General$2,716ManagementAndGeneralAmt
Fundraising$1,869FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
HONORARIA$73,250$71,894$650$706
DUES & SUBSCRIPTIONS$10,105$7,740$239$2,126
PAYROLL PROCESSING FEES$3,497$2,454$231$812
PROF. DEVELOPMENT$3,290$2,262$160$868

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$4,608,281TotalAmt
Program Services$3,885,332ProgramServicesAmt
Management And General$200,701ManagementAndGeneralAmt
Fundraising$522,248FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$398,232BOYAmt
EOY$392,072EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$430,996BOYAmt
EOY$663,083EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$337,517BOYAmt
EOY$59,330EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$809,106BOYAmt
EOY$35,159EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$87,086BOYAmt
EOY$40,352EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$421,864LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$317,699LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$110,271BOYAmt
EOY$104,165EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$3,438,609BOYAmt
EOY$1,704,721EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$296,384BOYAmt
EOY$313,253EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$5,908,201BOYAmt
EOY$3,312,135EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$471,048BOYAmt
EOY$598,306EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$1,745,994BOYAmt
EOY$698,962EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$112,198BOYAmt
EOY$107,147EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$2,329,240BOYAmt
EOY$1,404,415EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY-$49,330BOYAmt
EOY-$316,587EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,628,291BOYAmt
EOY$2,224,307EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,578,961BOYAmt
EOY$1,907,720EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,908,201BOYAmt
EOY$3,312,135EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$1,551,799ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$119,442NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$7,394,694CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,277,766CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,294,712CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$5,316,382CurrentTaxYearMinus1YearAmt
Current Tax Year$2,914,718CurrentTaxYearAmt
Total$27,198,272TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$7,394,694CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,277,766CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,294,712CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$5,316,382CurrentTaxYearMinus1YearAmt
Current Tax Year$2,914,718CurrentTaxYearAmt
Total$27,198,272TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$17,010,548SubstantialContributorsTotAmt
Public Support Total170$10,187,724PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$176,581CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$165,316CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$82,617CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$57,996CurrentTaxYearMinus1YearAmt
Current Tax Year$62,579CurrentTaxYearAmt
Total$545,089TotalAmt
FieldValueIRS element (for citing)
Total Support$27,743,361TotalSupportAmt
Gross Receipts Rltd Activities$222,705GrossReceiptsRltdActivitiesAmt
Public Support CY1700.36720PublicSupportCY170Pct
Public Support PY1700.31330PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$30,000FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$30,000FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$4,578,281FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$4,608,281FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$380,414FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$95,104FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$481,016CurrentYearMinus3Amt
Current Year Minus2$488,962CurrentYearMinus2Amt
Current Year Minus1$472,431CurrentYearMinus1Amt
Current Year$380,414CurrentYearAmt
Total$1,822,823TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$2,734,235LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus1$82,500CurrentYearMinus1Amt
Current Year$30,000CurrentYearAmt
Total$112,500TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$120,254CurrentYearMinus3Amt
Current Year Minus2$122,241CurrentYearMinus2Amt
Current Year Minus1$118,108CurrentYearMinus1Amt
Current Year$95,104CurrentYearAmt
Total$455,707TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$683,561GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$421,864OtherCostOrOtherBasisAmt
Depreciation$317,699DepreciationAmt
Book Value$104,165BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$104,165TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
SECURITY DEPOSITS$15,232
CHARITABLE REMAINDER TRUST$298,021
FieldValueIRS element (for citing)
Total Book Value Other Assets$313,253TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescDEFERRED RENTDesc
Amt$107,147Amt
FieldValueIRS element (for citing)
Total Liability$107,147TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$2,990,585TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$119,442NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$10,375DonatedServicesAndUseFcltsAmt
Other Revenue$56,283OtherRevenueAmt
Revenue Not Reported-$52,784RevenueNotReportedAmt
Revenue Subtotal$3,043,369RevenueSubtotalAmt
Investment Expenses Not Incld$13,113InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$13,113RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$3,056,482TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$4,661,826TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$10,375DonatedServicesUseFcltsAmt
Other Expenses Included$56,283OtherExpensesIncludedAmt
Expenses Not Reported$66,658ExpensesNotReportedAmt
Expenses Subtotal$4,595,168ExpensesSubtotalAmt
Investment Expenses Not Incld2$13,113InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$13,113ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$4,608,281TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:FOR THE YEAR ENDED DECEMBER 31, 2018, THE FOUNDATION HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENT EXPENSES REPORTED AS EXPENSE ON THE FINANCIAL 56,283. STATEMENTS AND NETTED AGAINST REVENUE ON FORM 990, PART VIII, LINE 8C.
PART XII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENT EXPENSES REPORTED AS EXPENSE ON THE FINANCIAL 56,283. STATEMENTS AND NETTED AGAINST REVENUE ON FORM 990, PART VIII, LINE 8C.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPE00GRANTS TO RECIPIENTS LOCATED IN REGION$30,000
EAST ASIA AND THE PACIFIC00GRANTS TO RECIPIENTS LOCATED IN REGION$15,000
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$45,000SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$45,000TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPERESEARCH$15,000WIRE TRANSFER
EUROPERESEARCH$15,000WIRE TRANSFER
EAST ASIA AND THE PACIFICRESEARCH$15,000WIRE TRANSFER
FieldValueIRS element (for citing)
Total501c3 Org3Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt
Transfer To Foreign CorpYes (1)TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationAS WITH ALL OF OUR TWO-YEAR RESEARCH GRANTS, PROGRESS REPORTS ARE REQUIRED TO BE SUBMITTED AFTER THE FIRST YEAR AND A FINAL REPORT IS REQUIRED AT THE CONCLUSION OF THE SECOND YEAR. THESE REPORTS ARE REVIEWED AND APPROVED BY OUR MEDICAL ADVISORY BOARD. SECOND YEAR FUNDING IS CONTINGENT UPON SUBMISSION OF THE FIRST YEAR PROGRESS REPORT AND INDICATION OF FIRST YEAR PROGRESS IN MEETING THE OBJECTIVES OF THE STUDY.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Phone SolicitationsYes (X)PhoneSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Agrmt Prof Fundraising ActyYes (1)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1CBC LOS ANGELES INCBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line19255 SUNSET BLVD SUITE 730AddressLine1Txt
CityWEST HOLLYWOODCityNm
State AbbreviationCAStateAbbreviationCd
ZIP90069ZIPCd
FieldValueIRS element (for citing)
ActivityPROFESSIONAL FUNDRAISERActivityTxt
Fundraiser Control Of Funds0FundraiserControlOfFundsInd
Gross Receipts$0GrossReceiptsAmt
Retained By Contractor$28,795RetainedByContractorAmt
Net To Organization-$28,795NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Retained By Contractors$28,795TotalRetainedByContractorsAmt
Total Net To Organization-$28,795TotalNetToOrganizationAmt
Licensed StatesMDLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesNYLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1DC WALKEvent1Nm
Gross Receipts Event1$77,189GrossReceiptsEvent1Amt
Charitable Contri Event1$69,803CharitableContriEvent1Amt
Gross Revenue Event1$7,386GrossRevenueEvent1Amt
Rent Facility Costs Event1$120RentFacilityCostsEvent1Amt
Food And Beverage Event1$99FoodAndBeverageEvent1Amt
Entertainment Event1$590EntertainmentEvent1Amt
Other Direct Expenses Event1$8,539OtherDirectExpensesEvent1Amt
Event2LA WALKEvent2Nm
Gross Receipts Event2$52,930GrossReceiptsEvent2Amt
Charitable Contri Event2$45,004CharitableContriEvent2Amt
Gross Revenue Event2$7,926GrossRevenueEvent2Amt
Non Cash Prizes Event2$251NonCashPrizesEvent2Amt
Rent Facility Costs Event2$719RentFacilityCostsEvent2Amt
Food And Beverage Event2$208FoodAndBeverageEvent2Amt
Entertainment Event2$53EntertainmentEvent2Amt
Other Direct Expenses Event2$10,002OtherDirectExpensesEvent2Amt
Other Events Total3OtherEventsTotalCnt
Gross Receipts Other Events$244,741GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$229,906CharitableContriOtherEventsAmt
Gross Revenue Other Events$14,835GrossRevenueOtherEventsAmt
Food And Beverage Other Events$7,130FoodAndBeverageOtherEventsAmt
Oth Direct Expnss Other Events$28,572OthDirectExpnssOtherEventsAmt
Gross Receipts Total$374,860GrossReceiptsTotalAmt
Charitable Contributions Tot$344,713CharitableContributionsTotAmt
Gross Revenue Total Events$30,147GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events$251NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$839RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$7,437FoodAndBeverageTotalEventsAmt
Entertainment Total Events$643EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$47,113OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$56,283DirectExpenseSummaryEventsAmt
Net Income Summary-$26,136NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (14 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVEALBANYNY12208141338310501(C)(3)$15,000RESEARCH
ALBERT EINSTEIN COLLEGE OF MEDICINE INC
1300 MORRIS PARK AVE BELFER 312BRONXNY10461131624225501(C)(3)$15,000RESEARCH
CHILDRENS HOSPITAL OF PHILIDELPHIA
3615 CIVIC CENTER BLVDPHILIDELPHIPA19104231352166501(C)(3)$30,000RESEARCH
CLEVELAND CLINIC FOUNDATION
PO BOX 931531CLEVELANDOH44193340714585501(C)(3)$45,000RESEARCH
DANA FARBER CANCER INSTITUTE
450 BROOKLINE AVENUEBOSTONMA02215042263040501(C)(3)$30,000RESEARCH
MEMORIAL SLOAN-KETTERING CANCER CENTER
1275 YORK AVENUE BOX 701NEW YORKNY10065131924236501(C)(3)$15,000RESEARCH
NIH
6707 DEMOCRACY BLVD SUITE 201BETHESDAMD20892520858115501(C)(3)$15,000RESEARCH
SLOAN-KETTERING INSTITUTE FOR CANCER RESEARCH
1275 YORK AVE BOX 701NEW YORKNY10065131624182501(C)(3)$15,000RESEARCH
THE U OF TEXAS MD ANDERSON CANCER CENTER
PO BOX 301402 UNIT 1431HOUSTONTX77230760449960501(C)(3)$110,000RESEARCH
H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE
PO BOX 742801ATLANTAGA30374592451713501(C)(3)$80,462RESEARCH
WEILL CORNELL MEDICAL COLLEGE
525 EAST 68TH STREETNEW YORKNY10065133376695501(C)(3)$110,000RESEARCH
CLEVELAND CLINIC
PO BOX 931568 ATTN165368173501CLEVELANDOH44193340714585501(C)(3)$220,000RESEARCH
JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DRCHICAGOIL60693520595110501(C)(3)$110,000RESEARCH
DANA FARBER CANCER INSTITUTE
450 BROOKLINE AVENUEBOSTONMA02215042263040501(C)(3)$151,500RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org14Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationAS WITH ALL OF OUR TWO-YEAR RESEARCH GRANTS, PROGRESS REPORTS ARE REQUIRED TO BE SUBMITTED AFTER THE FIRST YEAR AND A FINAL REPORT IS REQUIRED AT THE CONCLUSION OF THE SECOND YEAR. THESE REPORTS ARE REVIEWED AND APPROVED BY OUR MEDICAL ADVISORY BOARD. SECOND YEAR FUNDING IS CONTINGENT UPON SUBMISSION OF THE FIRST YEAR PROGRESS REPORT AND INDICATION OF FIRST YEAR PROGRESS IN MEETING THE OBJECTIVES OF THE STUDY.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentYes (1)SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
KATHLEEN WEIS
CEO (UNTIL OCT. 2018)$150,605$0$30,000$0$61,282$0$14,660$0$6,928$0$263,475$0$0$0
SERAP AKISOGLU
CHIEF DEVELOPMENT OFFICER$134,951$0$0$0$15,280$0$9,040$0$10,423$0$169,694$0$0$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 4AKATHLEEN WEIS RECEIVED SEVERANCE PAYMENTS OF $36,944 IN 2018.
PART I, LINE 7KATHLEEN WEIS RECEIVED $30,000 IN BONUS COMPENSATION DURING 2018.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BTHE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE AUDIT COMMITTEE. A FINAL COPY WAS DISTRIBUTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12CBEFORE ANY CONTRACTS FOR THE PURCHASE OF GOODS OR SERVICES ARE AWARDED, MANAGEMENT AND STAFF REVIEW THEM FOR ANY POTENTIAL, PERCEIVED AND/OR REAL CONFLICTS OF INTEREST WITH RESPECT TO BOARD MEMBERS, KEY VOLUNTEERS OR STAFF. IN THE EVENT OF CONFLICT OF INTEREST, THE MATTER IS REFERRED TO THE EXECUTIVE COMMITTEE OF THE BOARD FOR DISCUSSION AND RESOLUTION. NO SUCH CONFLICTS OCCURRED IN 2018.
FORM 990, PART VI, SECTION B, LINE 15ATHE CEO'S PERFORMANCE & COMPENSATION IS REVIEWED BY THE EXECUTIVE COMMITTEE USING COMPENSATION STUDIES PUBLISHED BY ASAE, BOARD SOURCE & OTHERS FOR COMPARITIVE DATA. THE EXECUTIVE DIRECTOR'S SALARY IS APPROVED BY THE EXECUTIVE COMMITTEE WHICH THEN INFORMS THE BOARD. THIS ENTIRE PROCESS IS DOCUMENTED. SALARIES OF ALL STAFF ARE REVIEWED ANNUALLY BY THE EXECUTIVE DIRECTOR USING COMPENSATION SURVEY DATA FOR COMPARABLE SIZE AND TYPE ORGANIZATIONS. THE LAST SALARY REVIEW DATE FOR THE EXECUTIVE DIRECTOR WAS OCTOBER 2018.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC IN PRINT AND/OR ELECTRONIC FORM UPON REQUEST, AT NO COST.
FORM 990, PART XI, LINE 10:DURING THE YEARS 2012-2014, APLASTIC ANEMIA AND MDS INTERNATIONAL FOUNDATION RECEIVED SIGNIFICANT FUNDING FOR MULTI-YEAR PROGRAM SUPPORT AND RESEARCH GRANTS. THE FOUNDATION'S POLICY, WHICH IS IN ACCORDANCE WITH GENERALLY ACCEPTED ACCOUNTING POLICIES, IS TO RECOGNIZE TEMPORARILY RESTRICTED REVENUE IN THE YEAR IN WHICH THE FUNDS ARE COMMITTED AND TO RECORD EXPENSES AND RELEASE RESTRICTIONS IN THE YEAR IN WHICH THE FUNDS ARE SPENT. THE TIMING RESULTED IN NET INCOME FOR THE YEARS 2012-2014 AND A NET LOSS FOR 2015, 2016, 2017, AND 2018.