NEW YORK GENOME CENTER INC: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization: NEW YORK GENOME CENTER INC (EIN 80-0631734)
Tax period: 2017-01-01 to 2017-12-31
Filed: 2018-11-13
IRS object ID: 201833179349301323
Schema version: 2017v2.3
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2018-11-13T08:38:46-06:00	ReturnTs
Tax Period End	2017-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	KPMG LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	345 Park Avenue	AddressLine1Txt
City	New York	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	101540102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2017-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	800631734	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	NEW YORK GENOME CENTER INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
In Care Of	% NANCY KONG	InCareOfNm
Business Name Control	NEWY	BusinessNameControlTxt
Phone	6469777000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	101 AVENUE OF THE AMERICAS Suite 7T	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10013	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	ELIZABETH O'BRIEN	PersonNm
Person Title	VP & GENERAL COUNSEL	PersonTitleTxt
Phone	6469777000	PhoneNum
Signature	2018-11-12	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	NICOLE A FITZMAURICE	PreparerPersonNm
PTIN	P01491005	PTIN
Phone	2127589700	PhoneNum
Preparation	2018-11-12	PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	167.68.102.5	IPv4AddressTxt

Field	Value	IRS element (for citing)
Federal Original Submission Id	13407320183175000008	FederalOriginalSubmissionId
Federal Original Submission Id	2018-11-13	FederalOriginalSubmissionIdDt
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	9DD58F112FDB1D6FC5ED64343B33E2E6300E3CA8	AtSubmissionCreationDeviceId
At Submission Filing Device Id	B09A8F7452AAEB109EF01FBCB66ABFE0CB6B8889	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2017	TaxYr
Build TS	2019-02-21 02:37:17Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	CHERYL A MOORE	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	101 AVENUE OF THE AMERICAS	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10013	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$94,913,836	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	www.nygenome.org	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	2010	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	NYGC IS AN INDEPENDENT, NONPROFIT ACADEMIC RESEARCH INSTITUTION DEDICATED TO ADVANCING PATIENT CARE THROUGH DISEASE-BASED GENOME RESEARCH.	ActivityOrMissionDesc
Voting Members Governing Body	25	VotingMembersGoverningBodyCnt
Voting Members Independent	23	VotingMembersIndependentCnt
Total Employee	232	TotalEmployeeCnt
Total Volunteers	24	TotalVolunteersCnt
Total Gross UBI	$855,443	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	-$192,555	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$94,901,046	PYContributionsGrantsAmt
CY Contributions Grants	$70,723,214	CYContributionsGrantsAmt
PY Program Service Revenue	$37,095,198	PYProgramServiceRevenueAmt
CY Program Service Revenue	$23,716,598	CYProgramServiceRevenueAmt
PY Investment Income	$23,269	PYInvestmentIncomeAmt
CY Investment Income	$88,421	CYInvestmentIncomeAmt
PY Other Revenue	$58,024	PYOtherRevenueAmt
CY Other Revenue	$95,299	CYOtherRevenueAmt
PY Total Revenue	$132,077,537	PYTotalRevenueAmt
CY Total Revenue	$94,623,532	CYTotalRevenueAmt
PY Grants And Similar Paid	$444,802	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$991,540	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$32,325,804	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$30,157,920	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$130,033	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$140,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$1,231,122	CYTotalFundraisingExpenseAmt
PY Other Expenses	$65,312,805	PYOtherExpensesAmt
CY Other Expenses	$60,996,415	CYOtherExpensesAmt
PY Total Expenses	$98,213,444	PYTotalExpensesAmt
CY Total Expenses	$92,285,875	CYTotalExpensesAmt
PY Revenues Less Expenses	$33,864,093	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$2,337,657	CYRevenuesLessExpensesAmt
Total Assets BOY	$122,070,905	TotalAssetsBOYAmt
Total Assets EOY	$114,196,275	TotalAssetsEOYAmt
Total Liabilities BOY	$82,869,747	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$72,657,460	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$39,201,158	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$41,538,815	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	OPERATE A STATE-OF-THE-ART, WORLD CLASS GENOME SEQUENCING, BIOINFORMATICS AND RESEARCH CENTER IN NEW YORK CITY. FOR MORE INFORMATION, SEE SCHEDULE O.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$38,391,900	ExpenseAmt
Revenue	$14,844,068	RevenueAmt
Desc	RESEARCH SEQUENCING IN 2017, NEW YORK GENOME CENTER (NYGC) SEQUENCED TENS OF THOUSANDS OF WHOLE GENOME SAMPLES, COMPLETED 780 PROJECTS, AND COLLABORATED WITH 190 INVESTIGATORS FROM 110 INSTITUTIONS WORLDWIDE. AS OF DECEMBER 2017, NYGCS HAD 5 ILLUMINA NOVASEQ INSTRUMENTS, 14 ILLUMINA HISEQ X INSTRUMENTS AND 12 ILLUMINA HISEQ 2500 INSTRUMENTS. FOR MORE INFORMATION, SEE SCHEDULE O.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$24,176,450	ExpenseAmt
Grant	$991,540	GrantAmt
Revenue	$2,350,599	RevenueAmt
Desc	RESEARCH OUR RESEARCH SCIENTISTS AND FACULTY ARE EXPLORING GENOMIC CONTRIBUTORS TO HUMAN DISEASE, BOTH IN THEIR OWN PROJECTS AND THROUGH COLLABORATIONS. NYGC RESEARCHERS HAVE PROJECTS UNDERWAY IN CANCER, INCLUDING LUNG, LIVER, BREAST AND MELANOMA; NEURODEGENERATIVE DISEASES, FOCUSING ON ALS; AND AUTISM, AMONG MANY OTHERS. OUR BIOINFORMATICS SCIENTISTS PLAY A LEADERSHIP ROLE IN THE COMPLEX ANALYSIS OF DATASETS, INCLUDING INTEGRATING AND HARMONIZING CLINICAL AND GENOMIC DATA NECESSARY FOR ADVANCED RESEARCH. FOR MORE INFORMATION, SEE SCHEDULE O.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$5,278,717	ExpenseAmt
Revenue	$6,521,931	RevenueAmt
Desc	CLINICAL SEQUENCING - NYGC IS AUTHORIZED BY THE NEW YORK STATE DEPARTMENT OF HEALTH TO OFFER THE FOLLOWING APPROVED CLINICAL TESTS THROUGH ITS CLEP/CLIA-CERTIFIED CLINICAL LABORATORY: CONSTITUTIONAL WHOLE GENOME SEQUENCING FOR UNDIAGNOSED DISEASE, CONSTITUTIONAL WHOLE GENOME SEQUENCING FOR PREDISPOSITIONAL GENETIC SCREENING, ONCOLOGY WHOLE EXOME AND TRANSCRIPTOME SEQUENCING, CONSTITUTIONAL WHOLE EXOME SEQUENCING, TARGETED SANGER SEQUENCING FOR VARIANT CONFIRMATION, AND SEQUENCING OF PREPARED LIBRARIES FOR MGTL.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$67,847,067	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	false	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	false	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	Yes (true)	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (true)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	false	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	Yes (true)	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	false	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (true)	ProfessionalFundraisingInd
Fundraising Activities	false	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	false	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	false	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	false	DisregardedEntityInd
Related Entity	false	RelatedEntityInd
Related Organization Ctrl Ent	false	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	73	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	232	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (true)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (true)	Form990TFiledInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	false	QuidProQuoContributionsInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	25	GoverningBodyVotingMembersCnt
Independent Voting Member	23	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	Yes (true)	MembersOrStockholdersInd
Election Of Board Members	Yes (true)	ElectionOfBoardMembersInd
Decisions Subject To Approva	Yes (true)	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	false	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	Yes (true)	InvestmentInJointVentureInd
Written Policy Or Procedure	Yes (true)	WrittenPolicyOrProcedureInd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	NANCY KONG	PersonNm
Phone	6469777154	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	101 AVENUE OF THE AMERICAS 7TH FLO	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10013	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (40 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
DAFNA BAR-SAGI PHD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
RUSSELL L CARSON MBA
DIRECTOR & CO-CHAIR	4.0	0.0	Yes (X)	$0	$0	$0	Yes (X)
DENNIS S CHARNEY MD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
AUGUSTINE MK CHOI MD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
NICHOLAS DONOFRIO
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
JOHN B EHRENKRANZ
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
ANTHONY B EVNIN PHD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
WILLIAM E FORD
DIRECTOR - THRU 02/04/17	1.0	0.0	Yes (X)	$0	$0	$0
LEE GOLDMAN MD MPH
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
JOHN HAVENS
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
WESLIE R JANEWAY
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
RICHARD P LIFTON MD PHD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
EDISON T LIU MD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
HERB PARDES MD
DIRECTOR & VICE CHAIR	1.0	0.0	Yes (X)	$0	$0	$0
FRANK E RICHARDSON MA JD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
ARTHUR J SAMBERG
DIRECTOR - THRU 03/24/17	1.0	0.0	Yes (X)	$0	$0	$0
IVAN G SEIDENBERG MBA
DIRECTOR & CO-CHAIR	4.0	0.0	Yes (X)	$0	$0	$0	Yes (X)
FRANK V SICA
DIRECTOR / COMMITTEE CHAIR	1.0	0.0	Yes (X)	$0	$0	$0
JIM SIMONS PHD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
STEVEN SINGER ESQ
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
ALLEN M SPIEGEL MD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
SAMUEL L STANLEY JR MD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
BRUCE STILLMAN PHD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
CRAIG B THOMPSON MD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
KEVIN J TRACEY MD
DIRECTOR	1.0	0.0	Yes (X)	$0	$0	$0
TOM MANIATIS PhD
DIRECTOR - INTERIM S.D. & CEO	40.0	0.0	Yes (X)	$0	$0	$0	Yes (X)
CHERYL A MOORE
PRESIDENT & COO	40.0	0.0	Yes (X)	$1,167,309	$0	$216,998	Yes (X)
CHRIS DUIGNAN
VP, FINANCE	40.0	0.0		$313,374	$0	$42,287	Yes (X)
ELIZABETH O'BRIEN
VICE PRESIDENT & GEN. COUNSEL	40.0	0.0		$415,722	$0	$42,514	Yes (X)
CAROL ASHE
CHIEF BUSINESS OFFICER	40.0	0.0		$451,089	$0	$13,617		Yes (X)
HAROLD SWERDLOW PHD
VP OF SEQUENCING-THRU 11/30/17	40.0	0.0		$411,959	$0	$28,719		Yes (X)
KATHLEEN MCGOVERN KEARNS
VICE PRESIDENT, DEV'T & COMM	40.0	0.0		$411,085	$0	$27,165		Yes (X)
TOBY BLOOM PHD
DEPUTY SCIENTIFIC DIR., INFO.	40.0	0.0		$364,761	$0	$30,270		Yes (X)
MATTHEW J PELO
VP, FINANCIAL STRATEGY & OPS	40.0	0.0		$322,954	$0	$21,614		Yes (X)
SHAILAJA GARGEYA
SENIOR DIR. SOFTWARE ENGINEER	40.0	0.0		$292,967	$0	$35,830			Yes (X)
DAYNA M OSCHWALD
SNR. DIR, INFO. PGM MGMT	40.0	0.0		$233,308	$0	$23,307			Yes (X)
SOREN GERMER PhD
DIRECTOR SEQUENCING OPERATIONS	40.0	0.0		$205,308	$0	$25,788			Yes (X)
TERRY DOUGLAS DONTJE
SR PRINCIPAL, SOFWARE ENGINEER	40.0	0.0		$190,767	$0	$37,156			Yes (X)
CHRISTOPHER BLACK
Director, Research Computing	40.0	0.0		$192,304	$0	$27,715			Yes (X)
ROBERT B DARNELL MD PHD
FOUNDING DIR&CEO-THRU 12/31/16	0.0	0.0		$463,672	$0	$0				Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$5,436,579	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$572,980	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	87	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (true)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
Alvarez Marsal Heathcare Industry
600 MADISON AVENUE 8TH FL	NEW YORK	NY	10022	Consulting Services	$1,490,424
PJ Mechanical Service Maintenanc
55 BROAD STREET	NEW YORK	NY	10004	Engineering Services	$612,442
Gensler
PO BOX 848279	DALLAS	TX	75284	Architect Services	$555,112
Robert Darnell MD PhD
236 ELDERWOOD AVE	PELHAM	NY	10803	Management Services	$463,672
Guardian Service Industries Inc
88005 EXPEDITE WAY	CHICAGO	IL	60695	Cleaning Services	$246,979

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	15	CntrctRcvdGreaterThan100KCnt
Membership Dues	$3,035,000	MembershipDuesAmt
Government Grants	$21,583,627	GovernmentGrantsAmt
All Other Contributions	$46,104,587	AllOtherContributionsAmt
Total Contributions	$70,723,214	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt	Unrelated Business RevenueUnrelatedBusinessRevenueAmt
RESEARCH SEQUENCING	541700	$14,844,068	$13,988,625	$855,443
RESEARCH	541700	$2,350,599	$2,350,599
CLINICAL SEQUENCING	541700	$6,521,931	$6,521,931

Field	Value	IRS element (for citing)
Total Program Service Revenue	$23,716,598	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$88,421	TotalRevenueColumnAmt
Exclusion	$88,421	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$290,304	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$290,304	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$0	FundraisingGrossIncomeAmt
Fundraising Direct Expenses	$0	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Gaming Gross Income	$0	GamingGrossIncomeAmt
Gaming Direct Expenses	$0	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	$0	GrossSalesOfInventoryAmt
Cost Of Goods Sold	$0	CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	ExclusionExclusionAmt
EVENT SPACE REVENUE	900099	$46,500	$46,500
OTHER REVENUE	900099	$48,799	$48,799

Field	Value	IRS element (for citing)
Other Revenue Total	$95,299	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$94,623,532	TotalRevenueColumnAmt
Related Or Exempt Func Income	$22,861,155	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$855,443	UnrelatedBusinessRevenueAmt
Exclusion	$183,720	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$991,540	TotalAmt
Program Services	$991,540	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$4,262,038	TotalAmt
Program Services	$2,991,523	ProgramServicesAmt
Management And General	$1,153,675	ManagementAndGeneralAmt
Fundraising	$116,840	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$20,100,598	TotalAmt
Program Services	$14,108,603	ProgramServicesAmt
Management And General	$5,440,954	ManagementAndGeneralAmt
Fundraising	$551,041	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$1,099,529	TotalAmt
Program Services	$771,759	ProgramServicesAmt
Management And General	$297,627	ManagementAndGeneralAmt
Fundraising	$30,143	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$2,903,405	TotalAmt
Program Services	$2,037,899	ProgramServicesAmt
Management And General	$785,912	ManagementAndGeneralAmt
Fundraising	$79,594	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,792,350	TotalAmt
Program Services	$1,258,050	ProgramServicesAmt
Management And General	$485,164	ManagementAndGeneralAmt
Fundraising	$49,136	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$475,009	TotalAmt
Program Services	$2,978	ProgramServicesAmt
Management And General	$472,031	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$174,361	TotalAmt
Management And General	$174,361	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$92,427	TotalAmt
Management And General	$92,427	ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$140,000	TotalAmt
Fundraising	$140,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$3,864,596	TotalAmt
Program Services	$2,700,538	ProgramServicesAmt
Management And General	$1,164,058	ManagementAndGeneralAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$91,267	TotalAmt
Program Services	$12,079	ProgramServicesAmt
Management And General	$76,406	ManagementAndGeneralAmt
Fundraising	$2,782	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$773,196	TotalAmt
Program Services	$169,011	ProgramServicesAmt
Management And General	$602,727	ManagementAndGeneralAmt
Fundraising	$1,458	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,388,766	TotalAmt
Program Services	$1,541,632	ProgramServicesAmt
Management And General	$846,067	ManagementAndGeneralAmt
Fundraising	$1,067	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$15,799,205	TotalAmt
Program Services	$10,459,924	ProgramServicesAmt
Management And General	$5,160,520	ManagementAndGeneralAmt
Fundraising	$178,761	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$367,132	TotalAmt
Program Services	$228,667	ProgramServicesAmt
Management And General	$134,969	ManagementAndGeneralAmt
Fundraising	$3,496	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$216,512	TotalAmt
Program Services	$108,285	ProgramServicesAmt
Management And General	$95,427	ManagementAndGeneralAmt
Fundraising	$12,800	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$923,295	TotalAmt
Program Services	$696,511	ProgramServicesAmt
Management And General	$215,027	ManagementAndGeneralAmt
Fundraising	$11,757	FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$13,063,480	TotalAmt
Program Services	$7,501,956	ProgramServicesAmt
Management And General	$5,516,661	ManagementAndGeneralAmt
Fundraising	$44,863	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$401,672	TotalAmt
Management And General	$401,672	ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
DIRECT COST OF SEQUENCING	$17,383,671	$17,383,671
RESEARCH & CLIA	$4,693,506	$4,693,506
RECRUITMENT	$156,024	$76,822	$79,202
ALL OTHER EXPENSE	$132,296	$112,113	$12,799	$7,384

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$92,285,875	TotalAmt
Program Services	$67,847,067	ProgramServicesAmt
Management And General	$23,207,686	ManagementAndGeneralAmt
Fundraising	$1,231,122	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$15,120,314	BOYAmt
EOY	$6,415,091	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$19,131,071	BOYAmt
EOY	$18,053,451	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$6,687,337	BOYAmt
EOY	$8,882,349	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$7,515,459	BOYAmt
EOY	$4,494,873	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$2,375,799	BOYAmt
EOY	$4,164,286	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$114,501,839	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$53,961,882	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$59,917,403	BOYAmt
EOY	$60,539,957	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$11,323,522	BOYAmt
EOY	$11,646,268	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$122,070,905	BOYAmt
EOY	$114,196,275	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$14,754,579	BOYAmt
EOY	$9,332,329	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$13,596,240	BOYAmt
EOY	$4,647,997	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$5,543,160	BOYAmt
EOY	$7,013,580	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$21,885,110	BOYAmt
EOY	$24,633,098	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$27,090,658	BOYAmt
EOY	$27,030,456	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$82,869,747	BOYAmt
EOY	$72,657,460	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$17,485,267	BOYAmt
EOY	$22,459,118	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$21,715,891	BOYAmt
EOY	$19,079,697	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$39,201,158	BOYAmt
EOY	$41,538,815	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$122,070,905	BOYAmt
EOY	$114,196,275	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$2,337,657	ReconcilationRevenueExpnssAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	Yes (true)	FederalGrantAuditRequiredInd
Federal Grant Audit Performed	Yes (true)	FederalGrantAuditPerformedInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,419,687	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$52,034,400	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$61,060,764	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$94,901,046	CurrentTaxYearMinus1YearAmt
Current Tax Year	$70,723,214	CurrentTaxYearAmt
Total	$293,139,111	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,419,687	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$52,034,400	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$61,060,764	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$94,901,046	CurrentTaxYearMinus1YearAmt
Current Tax Year	$70,723,214	CurrentTaxYearAmt
Total	$293,139,111	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$96,058,584	SubstantialContributorsTotAmt
Public Support Total170	$197,080,527	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$83,412	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$556,550	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$268,801	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$302,728	CurrentTaxYearMinus1YearAmt
Current Tax Year	$378,725	CurrentTaxYearAmt
Total	$1,590,216	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus2 Years	$116,870	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$58,024	CurrentTaxYearMinus1YearAmt
Current Tax Year	$95,299	CurrentTaxYearAmt
Total	$270,193	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$294,999,520	TotalSupportAmt
Gross Receipts Rltd Activities	$90,418,270	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.66807	PublicSupportCY170Pct
Public Support PY170	0.70161	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Total Grassroots Lobbying		TotalGrassrootsLobbyingGrp
Total Direct Lobbying		TotalDirectLobbyingGrp
Total Lobbying Expend		TotalLobbyingExpendGrp
Other Exempt Purpose Expend		OtherExemptPurposeExpendGrp
Total Exempt Purpose Expend		TotalExemptPurposeExpendGrp
Lobbying Nontaxable Amount		LobbyingNontaxableAmountGrp
Grassroots Nontaxable		GrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp
Volunteers	false	VolunteersInd
Paid Staff Or Management	Yes (true)	PaidStaffOrManagementInd
Media Advertisements	false	MediaAdvertisementsInd
Mailings Members	false	MailingsMembersInd
Publications Or Broadcast	false	PublicationsOrBroadcastInd
Grants Other Organizations	false	GrantsOtherOrganizationsInd
Direct Contact Legislators	Yes (true)	DirectContactLegislatorsInd
Direct Contact Legislators	$3,500	DirectContactLegislatorsAmt
Rallies Demonstrations	false	RalliesDemonstrationsInd
Other Activities	Yes (true)	OtherActivitiesInd
Other Activities	$92,427	OtherActivitiesAmt
Total Lobbying Expenditures	$95,927	TotalLobbyingExpendituresAmt
Not Described Section501c3	false	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	LOBBYING ACTIVITIES	FormAndLineReferenceDesc
Explanation	SCHEDULE C, PART II-B, LINES 1G & 1I THROUGH ITS LEGISLATIVE CONSULTANTS, NYGC ADVOCATES AT THE STATE AND LOCAL LEVEL FOR GOVERNMENT FUNDS TO SUPPORT CURRENT OPERATIONS AND/OR EXPAND RESEARCH OPPORTUNITIES AT NYGC. NYGC ALSO MAINTAINS MEMBERSHIPS IN SEVERAL IRC SECTION 501(C)(6) ORGANIZATIONS THAT REPRESENT THE INTERESTS OF THE MEDICAL RESEARCH COMMUNITY; $2,427 OF THE DUES THAT NYGC PAID TO THESE ASSOCIATIONS WERE ATTRIBUTABLE TO LOBBYING IN 2017. ADDITIONALLY, NYGC STAFF MAY, FROM TIME TO TIME, CONTACT FEDERAL LEGISLATORS OR THEIR STAFFS TO ENCOURAGE THEIR SUPPORT FOR MATTERS OF CONCERN TO THE ACADEMIC MEDICAL RESEARCH COMMUNITY. SUCH CONTACT MAY INCLUDE WRITING LETTERS OR OCCASIONAL MEETINGS WITH PUBLIC OFFICIALS. THE APPROXIMATE COST ASSOCIATED WITH COMMUNICATIONS WITH CAPITOL HILL IS $3,500.	ExplanationTxt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$53,507,688	OtherCostOrOtherBasisAmt
Depreciation	$11,826,254	DepreciationAmt
Book Value	$41,681,434	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$32,444,083	OtherCostOrOtherBasisAmt
Depreciation	$24,951,639	DepreciationAmt
Book Value	$7,492,444	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$28,550,068	OtherCostOrOtherBasisAmt
Depreciation	$17,183,989	DepreciationAmt
Book Value	$11,366,079	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$60,539,957	TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDesc	Book ValueBookValueAmt
SECURITY DEPOSITS	$11,110,521
DEFERRED COMPENSATION	$535,747

Field	Value	IRS element (for citing)
Total Book Value Other Assets	$11,646,268	TotalBookValueOtherAssetsAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ACCRUED INTEREST PAYABLE	$13,077
DEFERRED RENT	$27,017,379

Field	Value	IRS element (for citing)
Total Liability	$27,030,456	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$94,913,836	TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal	$94,913,836	RevenueSubtotalAmt
Other Revenues Not Included	-$290,304	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	-$290,304	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$94,623,532	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$92,576,179	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	$290,304	OtherExpensesIncludedAmt
Expenses Not Reported	$290,304	ExpensesNotReportedAmt
Expenses Subtotal	$92,285,875	ExpensesSubtotalAmt
Total Expenses Per Form990	$92,285,875	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

INCOME TAXES

SCHEDULE D, PART X, LINE 2 NYGC IS SUBJECT TO THE PROVISIONS OF THE FASB ASC SECTION 740-10-05, INCOME TAXES OVERALL, RELATING TO ACCOUNTING AND REPORTING FOR UNCERTAINTY IN INCOME TAXES. NYGC RECOGNIZES THE EFFECT OF INCOME TAX POSITIONS ONLY IF THOSE POSITIONS ARE MORE LIKELY THAN NOT TO BE SUSTAINED AND HAS DETERMINED IT DID NOT HAVE ANY EXPOSURE TO UNCERTAIN TAX POSITIONS DURING 2017 AND 2016.

REVENUE AND EXPENSE RECONCILIATION

SCHEDULE D, PART XI, LINE 4B AND PART XII, LINE 2D ($290,304) RENTAL EXPENSES ALLOCABLE TO 990, PART VIII

Schedule F IRS990ScheduleF

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxt	EmployeeEmployeeCnt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
Europe (Including Iceland and Greenland)	6	Program Services	RESEARCH	$417,871
North America	1	Program Services	RESEARCH	$27,320
Middle East and North Africa	1	Program Services	RESEARCH	$22,000

Field	Value	IRS element (for citing)
Subtotal Employees	8	SubtotalEmployeesCnt
Total Employee	8	TotalEmployeeCnt
Subtotal Spent	$467,191	SubtotalSpentAmt
Total Spent	$467,191	TotalSpentAmt
Transfer To Foreign Corp	false	TransferToForeignCorpInd
Interest In Foreign Trust	false	InterestInForeignTrustInd
Foreign Corp Ownership	false	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	false	PassiveForeignInvestmestCoInd
Foreign Partnership	false	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	accounting method	FormAndLineReferenceDesc
Explanation	SCHEDULE F, PART I, LINE 3 THE PROGRAM EXPENDITURES ARE REPORTED ON THE ACCRUAL METHOD.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Agrmt Prof Fundraising Acty	Yes (true)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Field	Value	IRS element (for citing)
Person	COMMUNITY COUNSELLING SERVICE	PersonNm
Activity	CAMPAIGN SERVICES	ActivityTxt
Fundraiser Control Of Funds	false	FundraiserControlOfFundsInd
Gross Receipts	$0	GrossReceiptsAmt
Retained By Contractor	$140,000	RetainedByContractorAmt
Net To Organization	-$140,000	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$0	TotalGrossReceiptsAmt
Total Retained By Contractors	$140,000	TotalRetainedByContractorsAmt
Total Net To Organization	-$140,000	TotalNetToOrganizationAmt
Licensed States	CT	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	OK	LicensedStatesCd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	Schedule G, Part I, Line 2b	FormAndLineReferenceDesc
Explanation	COMMUNITY COUNSELLING SERVICE'S ADDRESS: 527 MADISON AVENUE 5TH FLOOR NEW YORK, NY 10022 SCHEDULE G, PART I, LINE 2B, COLUMN (IV) NYGC UTILIZES THE SERVICES OF A FUNDRAISING ADVISOR TO CONSULT ON THE DEVELOPMENT ACTIVITIES OF THE ORGANIZATION. DUE TO THE NATURE OF THESE ARRANGEMENTS, NYGC IS UNABLE TO REASONABLY DETERMINE THE GROSS RECEIPTS FROM THE FUNDRAISING ACTIVITIES WHICH ARE SOLELY ATTRIBUTABLE TO THIS ADVISOR.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (7 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
TRUSTEES OF COLUMBIA UNIVERSITY IN CITY OF NY
630 W 168TH ST	NEW YORK	NY	10032	135598093	501(C)(3)	$196,297	RESEARCH SUBAWARD
COLD SPRING HARBOR LABORATORY
1 BUNGTOWN RD	COLD SPRING HARBOR	NY	11724	112013303	501(C)(3)	$232,552	RESEARCH SUBAWARD
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PL	NEW YORK	NY	10029	136171197	501(C)(3)	$55,874	RESEARCH SUBAWARD	BOX 1075
REGENTS OF THE UNIVERSITY OF CALIFORNIA-SF
1550 4TH STREET	SAN FRANCISCO	CA	94158	946036493	115 - CA	$20,816	RESEARCH SUBAWARD
REGENTS OF THE UNIVERSITY OF CALIFORNIA-LA
11000 KINROSS AVE	LOS ANGELES	CA	90095	956006143	115 - CA	$43,901	RESEARCH SUBAWARD
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE	SEATTLE	WA	98195	916001537	115 - WA	$196,282	RESEARCH SUBAWARD
THE ROCKEFELLER UNIVERSITY
1230 YORK AVENUE	NEW YORK	NY	10064	131624158	501(C)(3)	$245,818	RESEARCH SUBAWARD

Field	Value	IRS element (for citing)
Total501c3 Org	7	Total501c3OrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	MONITORING USE OF GRANT FUNDS	FormAndLineReferenceDesc
Explanation	SCHEDULE I, PART I, LINE 2 NYGC MONITORS SUBRECIPIENTS' USE OF GRANT FUNDS IN BOTH THE PRE-AWARD AND POST-AWARD STAGES. IN THE PRE-AWARD PHASE, SUBRECIPIENTS ARE EVALUATED BY NYGC'S SPONSORED RESEARCH AND ACADEMIC/SCIENTIFIC DEPARTMENTS, WITH CONSIDERATION OF SUBRECIPIENT CAPABILITIES AND INFRASTRUCTURE, AS WELL AS THE APPROPRIATE CHECKS FOR SUSPENSION AND DEBARMENT. A SUB-RECIPIENT MONITORING FORM IS SENT TO ALL SUB-AWARDEES AND THIS FORM IS THE BASIS BY WHICH NYGC ASSESSES RISK. IN THE POST-AWARD PHASE, NYGC'S GRANTS ACCOUNTING DEPARTMENT WORKS WITH THE SPONSORED RESEARCH TEAM TO MONITOR PROGRAMMATIC PROGRESS IN A MANNER CONSISTENT WITH THE TERMS AND CONDITIONS OF THE AWARD. NYGC'S FINANCE/GRANTS ACCOUNTING DEPARTMENT REVIEWS ANY SUBRECIPIENT EXPENSES INVOICED TO NYGC FOR ALLOWABILITY WITH REGARD TO RELEVANT COST PRINCIPLES AND BUDGETARY RESTRICTIONS AND PROVIDES SUBRECIPIENT INVOICES TO SPONSORED RESEARCH FOR ITS REVIEW AND APPROVAL. AFTER THE SPONSORED RESEARCH AND FINANCE/GRANTS ACCOUNTING DEPARTMENTS HAVE APPROVED SUBRECIPIENT INVOICES, THE SUBRECIPIENT IS PAID. SUBAWARDS ELIGIBLE FOR FFATA REPORTING ARE RECORDED IN THE FSRS (THE FFATA SUBAWARD REPORTING SYSTEM) IN ACCORDANCE WITH THE FEDERAL REPORTING REQUIREMENTS FOR FIRST-TIER SUBAWARDS UNDER NYGC'S PRIME FEDERAL AWARDS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Idemnification Gross Up Pmts	Yes (X)	IdemnificationGrossUpPmtsInd
Housing Allowance Or Residence	Yes (X)	HousingAllowanceOrResidenceInd
Written Policy Ref T And E Expnss	Yes (true)	WrittenPolicyRefTAndEExpnssInd
Substantiation Required	Yes (true)	SubstantiationRequiredInd
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	false	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (14 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ROBERT B DARNELL MD PHD
FOUNDING DIR&CEO-THRU 12/31/16	$136,374	$0	$0	$0	$327,298	$0	$0	$0	$0	$0	$463,672	$0	$0	$0
CHERYL A MOORE
PRESIDENT & COO	$897,254	$0	$0	$0	$270,055	$0	$213,500	$0	$3,498	$0	$1,384,307	$0	$0	$0
CHRIS DUIGNAN
VP, FINANCE	$313,374	$0	$0	$0	$0	$0	$12,948	$0	$29,339	$0	$355,661	$0	$0	$0
CAROL ASHE
CHIEF BUSINESS OFFICER	$431,599	$0	$0	$0	$19,490	$0	$13,500	$0	$117	$0	$464,706	$0	$0	$0
HAROLD SWERDLOW PHD
VP OF SEQUENCING-THRU 11/30/17	$387,121	$0	$0	$0	$24,838	$0	$13,500	$0	$15,219	$0	$440,678	$0	$0	$0
KATHLEEN MCGOVERN KEARNS
VICE PRESIDENT, DEV'T & COMM	$391,973	$0	$0	$0	$19,112	$0	$10,395	$0	$16,770	$0	$438,250	$0	$0	$0
TOBY BLOOM PHD
DEPUTY SCIENTIFIC DIR., INFO.	$364,761	$0	$0	$0	$0	$0	$13,500	$0	$16,770	$0	$395,031	$0	$0	$0
MATTHEW J PELO
VP, FINANCIAL STRATEGY & OPS	$322,954	$0	$0	$0	$0	$0	$12,899	$0	$8,715	$0	$344,568	$0	$0	$0
ELIZABETH O'BRIEN
VICE PRESIDENT & GEN. COUNSEL	$379,925	$0	$0	$0	$35,797	$0	$13,926	$0	$28,588	$0	$458,236	$0	$0	$0
SHAILAJA GARGEYA
SENIOR DIR. SOFTWARE ENGINEER	$292,967	$0	$0	$0	$0	$0	$13,500	$0	$22,330	$0	$328,797	$0	$0	$0
DAYNA M OSCHWALD
SNR. DIR, INFO. PGM MGMT	$233,308	$0	$0	$0	$0	$0	$7,661	$0	$15,646	$0	$256,615	$0	$0	$0
SOREN GERMER PhD
DIRECTOR SEQUENCING OPERATIONS	$205,308	$0	$0	$0	$0	$0	$10,444	$0	$15,344	$0	$231,096	$0	$0	$0
TERRY DOUGLAS DONTJE
SR PRINCIPAL, SOFWARE ENGINEER	$190,767	$0	$0	$0	$0	$0	$9,948	$0	$27,208	$0	$227,923	$0	$0	$0
CHRISTOPHER BLACK
Director, Research Computing	$192,304	$0	$0	$0	$0	$0	$9,865	$0	$17,850	$0	$220,019	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
SCHEDULE J, PART I, LINE 1	TAX INDEMNIFICATION AND GROSS-UP PAYMENTS NYGC PROVIDED TUITION ASSISTANCE FOR A FAMILY MEMBER OF THE VICE PRESIDENT AND GENERAL COUNSEL. THE VALUE OF THIS ASSISTANCE WAS TREATED AS COMPENSATION TO THE EMPLOYEE FOR WHICH NYGC MADE GROSS-UP PAYMENTS TO ALLEVIATE THE TAX BURDEN ON THE EMPLOYEE. HOUSING ALLOWANCE OR RESIDENCE FOR PERSONAL USE NYGC PROVIDED A HOUSING ALLOWANCE TO THE PRESIDENT AND COO. THE VALUE OF THIS ASSISTANCE WAS TREATED AS TAXABLE COMPENSATION TO THE EMPLOYEE. NYGC SELECTIVELY OFFERS HOUSING ALLOWANCES TO EMPLOYEES, PRINCIPALLY AS A RECRUITING TOOL FOR NEW FACULTY AND POSTDOCTORAL FELLOWS. SUBSIDIZED HOUSING OR HOUSING ALLOWANCES ARE COMMONLY OFFERED BY PEER ACADEMIC INSTITUTIONS IN NEW YORK CITY TO HELP FACULTY AND OTHER RESEARCHERS DEFRAY THE HIGH COST OF HOUSING.
EXECUTIVE COMPENSATION	SCHEDULE J, PART I, LINE 3 AT THE TIME OF HIRE, AN AD-HOC EXECUTIVE COMPENSATION COMMITTEE COMPRISED OF INDEPENDENT BOARD MEMBERS (THE "AD-HOC COMMITTEE") WAS RESPONSIBLE FOR ESTABLISHING THE PRESIDENT AND COOS COMPENSATION PACKAGE AND THE TERMS OF HER EMPLOYMENT CONTRACT. HER COMPENSATION WAS DETERMINED THROUGH A REVIEW OF FORM 990 RETURNS AND COMPENSATION INFORMATION FOR TOP MANAGEMENT OFFICIALS AT SIMILARLY SITUATED ORGANIZATIONS OBTAINED THROUGH THE RECRUITING PROCESS. CONSIDERATION ALSO WAS GIVEN TO HER THEN-CURRENT COMPENSATION. ON RECOMMENDATION OF THE AD-HOC COMMITTEE, THE BOARD OF DIRECTORS APPROVED HER COMPENSATION. THIS APPROVAL WAS MEMORALIZED IN THE BOARD MINUTES. THE "INITIAL CONTRACT" EXCEPTION APPLIED FOR 2016 AND HER COMPENSATION HAS NOT CHANGED SINCE SHE JOINED NYGC. IN LATE 2016, NYGC HIRED AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW THE COMPENSATION PAID TO SENIOR MANAGEMENT. IN EARLY 2017, THE RESULTS OF THIS REVIEW WERE PROVIDED TO THE AD-HOC EXECUTIVE COMPENSATION COMMITTEE COMPRISED OF INDEPENDENT BOARD MEMBERS. THE REVIEW SHOWED THAT THE COMPENSATION PAID TO ALL MEMBERS OF EXECUTIVE AND SENIOR MANAGEMENT WAS REASONABLE AND THIS WAS MEMORALIZED IN THE AD-HOC COMMITTEE'S MINUTES.
SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN	SCHEDULE J, PART I, LINE 4B NYGC HAS A DEFERRED COMPENSATION PLAN FOR THE PRESIDENT AND COO. $200,000 WAS DEFERRED IN 2017.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (10 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
THE ORGANIZATIONS MISSION	FORM 990, PART I, LINE 1 & PART III, LINE 1: THE NEW YORK GENOME CENTER (NYGC) IS ORGANIZED AND OPERATED AS AN INDEPENDENT, NON-PROFIT CORPORATION, DEDICATED TO STATE-OF-THE-ART, WORLD CLASS GENOMIC RESEARCH, SEQUENCING AND BIOINFORMATICS, WHOSE MEMBERS INCLUDE LEADING ACADEMIC, MEDICAL AND RESEARCH INSTITUTIONS. NYGC HAS THE FOLLOWING KEY OBJECTIVES: (I) FOSTERING INTELLECTUALLY VIBRANT RESEARCH COLLABORATIONS IN THE ACADEMIC AND SCIENTIFIC COMMUNITY IN NEW YORK CITY; (II) RECRUITING AND RETAINING WORLD CLASS SCIENTIFIC TALENT TO LEAD THE SCIENTIFIC DEVELOPMENT OF THE ORGANIZATION; (III) SUPPORTING RESEARCH CONDUCTED BY THE INSTITUTIONAL FOUNDING MEMBERS, OTHER ACADEMIC, RESEARCH AND MEDICAL INSTITUTIONS AND THE BIOTECHNOLOGY/PHARMACEUTICAL INDUSTRY TO ADVANCE NYGCS SCIENTIFIC PROGRAM AND GENOMIC RESEARCH; (IV) DEVELOPING ADVANCED BIOINFORMATICS CAPABILITIES BASED UPON THE RESEARCH AND SEQUENCING ACTIVITIES CONDUCTED AT THE ORGANIZATIONS FACILITIES; (V) ADVANCING RESEARCH TO SUPPORT THE DEVELOPMENT OF NEW TREATMENTS, THERAPIES AND THERAPEUTICS TO TREAT HUMAN DISEASE; (VI) PROVIDING TRAINING TO THE ACADEMIC, RESEARCH AND TECHNOLOGY COMMUNITIES; AND (VII) CONDUCTING ACTIVITIES ANCILLARY TO THESE OBJECTIVES.
PROGRAM SERVICE ACCOMPLISHMENTS	FORM 990, PART III, LINE 4A, LINE 4B, LINE 4C NYGC IS AN INDEPENDENT, NONPROFIT ACADEMIC RESEARCH INSTITUTION WITH THE MISSION OF ADVANCING CLINICAL CARE THROUGH TRANSFORMATIVE GENOMIC RESEARCH. NYGCS WORK BUILDS ON THE STRENGTHS AND CAPABILITIES THAT THE CENTER HAS DEVELOPED SINCE ITS FOUNDING IN 2010 AND AUGMENTS RESEARCH BEING CONDUCTED BY NYGC MEMBER INSTITUTIONS. COLLABORATING WITH PREMIER ACADEMIC, MEDICAL AND INDUSTRY LEADERS ACROSS THE GLOBE, NYGC IS CONDUCTING DISEASE-BASED GENOMIC RESEARCH IN AREAS WHERE IT HAS DEVELOPED A SIGNIFICANT AND SUCCESSFUL TRACK RECORD, INCLUDING NEURODEGENERATIVE DISEASES SUCH AS ALS, NEUROPSYCHIATRIC DISEASES, PARTICULARLY AUTISM, AND CANCER, AMONG OTHERS. THROUGH GROUNDBREAKING RESEARCH, NYGCS GOAL IS TO ADVANCE THE DEVELOPMENT OF NEW TREATMENTS, THERAPIES AND THERAPEUTICS THAT TREAT HUMAN DISEASE. NYGC AND ITS MEMBER INSTITUTIONS AND PARTNERS ARE UNITED IN THIS UNPRECEDENTED COLLABORATION OF TECHNOLOGY, SCIENCE AND MEDICINE, DESIGNED TO HARNESS THE POWER OF INNOVATION AND DISCOVERIES TO ADVANCE GENOMIC DISCOVERIES. THEIR SHARED OBJECTIVE IS THE ACCELERATION OF MEDICAL GENOMICS AND PRECISION MEDICINE TO BENEFIT PATIENTS AROUND THE WORLD. NYGCS INNOVATION, RESEARCH AND QUALITY MAKE IT A UNIQUE AND STRONG COLLABORATIVE PARTNER. 2017 WAS A PIVOTAL YEAR FOR NYGC, POSITIONING THE ORGANIZATION FOR ITS NEXT PHASE OF GROWTH. NYGCS AWARD-WINNING FACULTY AND STAFF SCIENTISTS ARE PERFORMING THE HIGHEST QUALITY BIOINFORMATICS ANALYSIS AND DEVELOPING INNOVATIVE OPEN-SOURCE GENOMICS METHODS AND TOOLS TO SHARE WITH THE SCIENTIFIC COMMUNITY. THEY ARE LEADING THE WAY IN SINGLE-CELL ANALYSIS, GENE EDITING AND EXPLORATION OF THE NON-CODING AREA OF THE HUMAN GENOME ALL PROMISING FRONTIERS OF GENOMIC RESEARCH. IN 2017, NYGC ESTABLISHED A NEW AFFILIATE MEMBERSHIP PROGRAM, OPEN TO ALL EXTERNAL ACADEMIC RESEARCHERS, TO FURTHER ENCOURAGE THE EXCHANGE OF IDEAS AND FACILITATE MORE COLLABORATIONS. RESEARCH SEQUENCING NYGC HAS ONE OF THE LARGEST VOLUME WHOLE GENOME SEQUENCING PROGRAMS IN NEW YORK. IN THE LAST FIVE YEARS, NYGCS SEQUENCING LABORATORY HAS SEQUENCED TENS OF THOUSANDS OF WHOLE GENOME SAMPLES. IN 2017, THE CENTER ACQUIRED NOVASEQ SYSTEMS SEQUENCERS TO SUPPLEMENT ITS STABLE OF HISEQ X AND 2500 SEQUENCERS. THIS STATE-OF-THE-ART SEQUENCING TECHNOLOGY ENABLES NYGC TO CONDUCT LARGE-SCALE GENOMICS PROJECTS WITH GREATER SPEED AND SAMPLE VOLUMES, AND TO EXPLORE THE GENOME IN MORE DEPTH WITH GREATER EFFICIENCY.
RESEARCH AND FACULTY	SINCE ITS INCEPTION, NYGC HAS ATTRACTED WORLD-CLASS SCIENTISTS WHOSE GENOMIC EXPERTISE INCLUDING SINGLE CELL GENOMICS, GENOME ENGINEERING, POPULATION AND EVOLUTIONARY GENOMICS, TECHNOLOGY AND METHODS DEVELOPMENT, STATISTICS, COMPUTATIONAL BIOLOGY AND BIOENGINEERING BRINGS A MULTIDISCIPLINARY AND IN-DEPTH APPROACH TO THE EVOLVING FIELD OF GENOMICS. NYGCS FACULTY SUPPORT THE SCIENTIFIC VISION OF THE CENTER THROUGH THE ADVANCEMENT OF GENOMIC MEDICINE. TO ENHANCE COLLABORATION, FACULTY MEMBERS HAVE JOINT APPOINTMENTS AT OUR INSTITUTIONAL FOUNDING MEMBERS TO STRENGTHEN OUR RESEARCH CAPABILITIES, ADVANCE ACADEMIC LEADERSHIP, AND ENHANCE THEIR ABILITY TO HELP SOLVE HUMAN DISEASES. OVER THE COURSE OF 2017, NYGC MANAGED 37 ACTIVE GRANTS, INCLUDING 22 GRANTS FROM THE NATIONAL INSTITUTES OF HEALTH (NIH). NYGCS RESEARCHERS ARE WORKING WITH ITS MEMBER INSTITUTIONS AND AN ARRAY OF COLLABORATIVE PARTNERS TO ADDRESS THE FUNDAMENTAL CHALLENGE IN PRECISION MEDICINE: UNDERSTANDING THE RELATIONSHIP BETWEEN DNA SEQUENCE VARIATION AND MECHANISMS FOR HUMAN DISEASES, RANGING FROM CANCER TO AUTISM AND NEURODEGENERATIVE DISEASE. NYGC RESEARCHERS PUBLISHED MORE THAN 50 STUDIES IN LEADING SCIENTIFIC JOURNALS IN 2017, FUELING MOMENTUM FOR IMPORTANT COLLABORATIVE WORK. THEY COMPLETED MORE THAN 780 PROJECTS, COLLABORATING WITH 190 INVESTIGATORS FROM 110 INSTITUTIONS ACROSS THE GLOBE. OUR CENTER FOR GENOMICS OF NEURODEGENERATIVE DISEASES ALS CONSORTIUM, LED BY HEMALI PHATNANI, PHD, HAD AT THE END OF 2017 26 MEMBERS FROM LEADING INSTITUTIONS AROUND THE WORLD. SCIENTISTS AND CLINICIANS WORK COLLABORATIVELY TO APPLY STATE-OF-THE-ART CLINICAL AND FUNCTIONAL GENOMICS TOGETHER WITH BIOINFORMATICS TO STUDY ALS DISEASE MECHANISMS AND BETTER UNDERSTAND HOW MUTATIONS UNDERLYING ALS CAUSE DISEASE. THE TARGET OF THIS GLOBAL MULTIDISCIPLINARY EFFORT IS WHOLE GENOME SEQUENCING AND ANALYSIS OF 5,000 CLINICALLY WELL-ANNOTATED ALS SAMPLES BY 2021 TO ENHANCE EARLY DIAGNOSIS AND EFFECTIVE DRUG DISCOVERY. TO ADVANCE COLLABORATIVE EFFORTS ON CANCER GENOMICS, NOBEL LAUREATE HAROLD VARMUS, MD, SENIOR ASSOCIATE CORE MEMBER, NYGC, AND LEWIS THOMAS UNIVERSITY PROFESSOR OF MEDICINE, WEILL CORNELL MEDICINE, ESTABLISHED THE NEW YORK CANCER GENOMICS RESEARCH NETWORK. IN 2017, DR. VARMUS CONVENED MONTHLY MEETINGS AT NYGC WITH LEADING CANCER RESEARCHERS AND CLINICIANS FROM NYGCS INSTITUTIONAL FOUNDING MEMBERS AND OTHER KEY ACADEMIC INSTITUTIONS FROM AROUND THE WORLD. THE OBJECTIVE OF THIS MULTIDISCIPLINARY APPROACH WAS TO HELP SET CRITICAL PRIORITIES IN TRANSLATING GENOMIC SCIENCE INTO MORE EFFECTIVE TREATMENT OPTIONS FOR ALL CANCER PATIENTS IN NEW YORK AND BEYOND. THE CONSORTIUM INITIATED A CITY-WIDE PROJECT TO ENSURE THAT ADVANCES IN GENOMICS AND PRECISION MEDICINE CAN BE APPLIED TO ALL POPULATIONS AND EXPAND KNOWLEDGE OF THE GENETIC VARIATIONS THAT CONTRIBUTE TO CANCER. NAMED THE "POLYETHNIC-1000", THE PROJECT PLANS TO UTILIZE THE GREATER NEW YORK AREAS ETHNIC DIVERSITY TO ADDRESS SEVERAL IMPORTANT SCIENTIFIC QUESTIONS ABOUT THE ROLE OF ETHNICITY IN ONCOLOGY AND OFFER GENOMIC SERVICES DURING THE PROVISION OF CANCER CARE TO ALL POPULATIONS. THIS INITIATIVE WILL INVOLVE PATIENTS AND STAFF AT SEVERAL ACADEMIC HEALTH CENTERS AND PARTNER HOSPITALS IN THE NEW YORK CITY REGION AND WILL USE NYGCS GENOMICS AND INFORMATICS CAPABILITIES TO DETERMINE HOW INHERITED AND ACQUIRED GENETIC VARIATIONS AFFECT THE BEHAVIOR OF DIFFERENT CANCERS OCCURRING IN ETHNICALLY DIVERSE POPULATIONS. IN EARLY 2017, A STUDY BY NYGC CORE FACULTY MEMBER MARCIN IMIELINSKI, MD, PHD PUBLISHED IN CELL ILLUMINATED A POSSIBLE NEW TYPE OF DRIVER OF CANCER: SMALL (ONE- TO 50-LETTER) INSERTIONS OR DELETIONS OF DNA SEQUENCE, ALSO CALLED INDELS, IN REGIONS OF THE GENOME THAT DO NOT CODE FOR PROTEIN. THIS GENETIC MUTATION, WHICH OCCURS FREQUENTLY IN CANCER CELLS, MAY PROVIDE CLUES ABOUT THE DISEASES ORIGINS AND SERVE AS A BIOMARKER TO IMPROVE DIAGNOSIS AND TREATMENT. LATER IN THE YEAR, HE RECEIVED A CLINICAL SCIENTIST DEVELOPMENT AWARD FROM THE DORIS DUKE CHARITABLE FOUNDATION TO FUND HIS INVESTIGATION INTO UNDERSTANDING CANCER DRIVERS IN NON-CODING DNA THE 98 PERCENT OF THE GENOME THAT IS NOT TYPICALLY PROFILED IN STANDARD CLINICAL SEQUENCING TESTS. THE RESEARCH COULD REVEAL A NEW CLASS OF GENETIC MUTATIONS THAT DRIVE CANCER AND RESPONSE TO THERAPY. NYGC CORE FACULTY MEMBER NEVILLE SANJANA, PHD RECEIVED A SIDNEY KIMMEL FOUNDATION SCHOLAR AWARD AND A YOUNG INVESTIGATOR AWARD FROM THE MELANOMA RESEARCH ALLIANCE. THESE PRESTIGIOUS AWARDS FUND THE SANJANA LABORATORYS WORK IN LEVERAGING THE GENE-EDITING TOOL CRISPR TO COMPREHENSIVELY SURVEY MUTATIONS THAT ALLOW CANCER CELLS TO RESIST IMMUNOTHERAPY TREATMENT. NYGC CORE FACULTY MEMBER TUULI LAPPALAINEN, PHD RECEIVED A RESEARCH GRANT FROM THE NATIONAL INSTITUTES OF HEALTH TO FUND A STUDY TO BETTER UNDERSTAND VARIABLE PENETRANCE, A PHENOMENON WHERE THE SEVERITY OF THE EFFECT OF DISEASE-CAUSING GENETIC VARIANTS DIFFERS AMONG INDIVIDUALS WHO CARRY THEM. IN OCTOBER 2017, THE CHAN ZUCKERBERG INITIATIVE (CZI) AWARDED NYGC SCIENTISTS (TECHNOLOGY INNOVATION LABORATORY MANAGER PETER SMIBERT, PHD AND CORE FACULTY MEMBER RAHUL SATIJA, PHD, CO-PRINCIPAL INVESTIGATORS) A ONE-YEAR PILOT GRANT TO DEVELOP AN OPEN-SOURCE TOOLKIT FOR CITE-SEQ, THE SINGLE-CELL GENOMICS TOOL THAT WAS DEVELOPED BY NYGCS TECHNOLOGY INNOVATION LABORATORY EARLIER IN 2017. CITE-SEQ SIMULTANEOUSLY MEASURES PROTEIN AND RNA LEVELS IN THE LARGEST SCALE DEMONSTRATION OF MULTIDIMENSIONAL SINGLE-CELL ANALYSIS TO DATE. THE AWARD, FROM THE CZI DONOR-ADVISED FUND, AN ADVISED FUND OF THE SILICON VALLEY COMMUNITY FOUNDATION, WILL ENABLE RESEARCHERS TO LEVERAGE THIS POWERFUL TOOL FOR THE HUMAN CELL ATLAS PROJECT, THE INTERNATIONAL COLLABORATIVE EFFORT TO CREATE A COMPREHENSIVE REFERENCE MAP OF ALL HUMAN CELLS. PRIOR TO THE RECEIPT OF THE CZI GRANT, IN JULY 2017, NYGC SCIENTISTS PUBLISHED THEIR STUDY AND A DESCRIPTION OF CITE-SEQ IN NATURE METHODS. CITE-SEQ REPRESENTS AN IMPORTANT STEP FORWARD FOR SINGLE-CELL RNA SEQUENCING, AN ADVANCING FIELD OF GENOMICS THAT PROVIDES DETAILED INSIGHTS INTO INDIVIDUAL CELLS AND ENABLES RESEARCHERS TO DISTINGUISH BETWEEN DIFFERENT CELL TYPES AND TO STUDY DISEASE MECHANISMS AT THE LEVEL OF INDIVIDUAL CELLS. IN SEPTEMBER 2017, CELL PUBLISHED THE RESULTS OF A LARGE-SCALE WHOLE GENOME SEQUENCING STUDY AT NYGC THAT COMPARED THE WHOLE GENOMES OF 516 AUTISTIC CHILDREN WITH NO FAMILY HISTORY OF AUTISM WITH THE WHOLE GENOMES OF THEIR PARENTS AND AN UNAFFECTED SIBLING (2,064 PEOPLE IN TOTAL). RISK-RAISING MUTATIONS, WHICH OCCURRED IN CHILDREN BUT NOT THEIR PARENTS, WERE FOUND IN BOTH PROTEIN-CODING AND REGULATORY OR NON-CODING PORTIONS OF THE GENOME. THE STUDYS FINDINGS COULD HELP RESEARCHERS BETTER UNDERSTAND THE GENETIC SIGNATURES OF AUTISM, I.E., THE SUITE OF GENETIC ABNORMALITIES UNDERLYING THE DISORDER. THE RESEARCH WAS FUNDED BY A GRANT FROM THE NATIONAL HUMAN GENOME RESEARCH INSTITUTE, A DIVISION OF NIH, THAT ESTABLISHED NYGC AS A CENTER FOR COMMON DISEASE GENOMICS IN 2016. BIOINFORMATICS AND DATA MANAGEMENT NYGCS BIOINFORMATICS SCIENTISTS PLAY A LEADERSHIP ROLE IN THE COMPLEX ANALYSIS OF MULTIPLE DATASETS, INCLUDING INTEGRATING AND HARMONIZING CLINICAL AND GENOMIC DATA. NYGCS TEAM OF BIOINFORMATICIANS HAS EXPERTISE IN CANCER GENOMICS, STATISTICAL AND POPULATION GENETICS, EXPRESSION ANALYSIS, EPIGENOMICS AND FUNCTIONAL GENOMICS, TO NAME JUST A FEW. THEY DEVELOP, MAINTAIN AND IMPROVE DATA ANALYSIS PIPELINES BY LEVERAGING THE LARGE AMOUNTS OF SEQUENCING DATA PRODUCED AT THE CENTER. THEY WORK ON ESTIMATING THE SOURCES OF ERRORS AND VARIABILITY IN THE DATA, DEFINING METHODS TO CORRECT THEM, BOTH COMPUTATIONALLY AND ON THE LABORATORY SIDE. THEY ARE CONTINUALLY EVALUATING AND BENCHMARKING AVAILABLE TOOLS, REFINING BEST PRACTICES TO ANALYZE AND COMBINE RESULTS, AND ARE DEVELOPING NOVEL TOOLS AND METHODS FOR USE BY SCIENTISTS AROUND THE WORLD. IN 2017, OUR BIOINFORMATICS TEAM CONDUCTED AN ARRAY OF INVESTIGATIONS, INCLUDING RESEARCH ON HUMAN BRAIN DEVELOPMENT, RENAL CELL CARCINOMA, AUTISM AND BREAST CANCER. TECHNOLOGY INNOVATION TODAY, THERE ARE NUMEROUS EXCITING CLINICAL USES FOR GENOMIC INFORMATION, YET SUCH INFORMATION HAS TO BE GENERATED AND INTERPRETED IN A TIMELY, SCALABLE, AND HIGH-QUALITY FASHION IN ORDER TO SPEED AND IMPROVE THE DELIVERY OF RESULTS TO RESEARCHERS AND CLINICIANS. THE NYGC TECHNOLOGY INNOVATION LABORATORY IS A CREATIVE, MULTIDISCIPLINARY HUB WHERE SCIENTISTS ARE DEVELOPING CUTTING-EDGE TECHNOLOGIES TO ADVANCE GENOMICS RESEARCH AND CLINICAL APPLICATIONS, PARTICULARLY FOR CANCER RESEARCHERS AND CLINICIANS. THE TECHNOLOGY INNOVATION LABORATORY IS DEDICATED TO GENERATING NEW TECHNOLOGIES, PROTOCOL DEVELOPMENT, EQUIPMENT EVALUATION, AND INFORMATICS TOOL DEVELOPMENT/INTEGRATION. NYGC SCIENTISTS ARE DEVELOPING VARIOUS NOVEL TECHNOLOGIES TO SPEED UP, REDUCE COSTS OF AND DECREASE THE HANDLING OF NEXT-GENERATION LIBRARY PREPARATION REACTIONS.
EDUCATION	IN SUMMER 2017, NYGC COLLABORATED WITH THE NATIONAL CENTER FOR BIOTECHNOLOGY INFORMATION TO HOST A "GENOMICS HACKATHON." RESEARCHERS FROM NEW YORK CITY-AREA INSTITUTIONS AND BEYOND GATHERED AT NYGC TO TAKE PART IN A "SPRINT-LIKE" COLLABORATIVE WORKSHOP WHEREBY PARTICIPANTS INTENSIVELY WORKED TOGETHER ON COMPUTATIONAL PROJECTS RELATED TO GENOMICS AND CLINICAL RESEARCH. OVER A DOZEN TEAMS ASSEMBLED TO BRAINSTORM CREATION OF BIOINFORMATIC SOFTWARE, TOOLS FOR THE STUDY OF PROTEINS AND CANCER GENOMICS, AND PIPELINES TO ANALYZE LARGE-SCALE GENOMIC DATASETS. IN FALL 2017, NYGC LAUNCHED "GENOMIC INNOVATION," A 14-WEEK PROJECT-FOCUSED COURSE DEVELOPED BY NYGC CORE FACULTY MEMBERS NEVILLE SANJANA, PHD AND TUULI LAPPALAINEN, PHD. THE FOUR-CREDIT CLASS, THE FIRST-EVER GRADUATE-LEVEL COURSE TO BE HOSTED BY NYGC, INTRODUCED STUDENTS TO CUTTING-EDGE TECHNOLOGIES AND APPLICATIONS IN GENETICS AND GENOMICS AND THEIR RESPONSIBLE USE IN SCIENCE AND SOCIETY. GRADUATE STUDENTS FROM COLD SPRING HARBOR LABORATORY, COLUMBIA UNIVERSITY, ALBERT EINSTEIN COLLEGE OF MEDICINE, MOUNT SINAI SCHOOL OF MEDICINE (MSSM), MEMORIAL SLOAN-KETTERING CANCER CENTER (MSKCC), NEW YORK UNIVERSITY (NYU), THE ROCKEFELLER UNIVERSITY, STONY BROOK UNIVERSITY AND WEILL CORNELL MEDICINE (WCM) COULD RECEIVE CREDIT FOR THE CLASS THROUGH THEIR REGISTRARS OFFICE AND THE COURSE WAS OFFICIALLY LISTED IN THE COURSE CATALOGS OF COLUMBIA, NYU, AND EINSTEIN. THE FIRST CLASS INCLUDED STUDENTS FROM COLUMBIA, EINSTEIN, MSKCC, NYU, MSSM AND WCM. AS PART OF NYGCS EDUCATIONAL MISSION, THE CENTER HOSTED MANY SCIENTIFIC MEETINGS, WORKSHOPS, CONFERENCES AND LECTURES IN 2017. NYGC HELD "EVENING TALKS," A LECTURE SERIES FOR THE GENERAL PUBLIC ON ADVANCES IN GENOMIC SCIENCE, SPONSORED BY THE NEW YORK CITY COMMUNITY TRUSTPYEWACKET FUND. THE CENTER HOSTED "FIVE POINTS" LECTURES FOR THE SCIENTIFIC COMMUNITY, FEATURING LEADING RESEARCHERS FROM AROUND THE COUNTRY AND ABROAD. IN ADDITION, NYGC HELD WELL-ATTENDED WORKSHOPS FOR THE MEDICAL COMMUNITY ON SINGLE CELL GENOMICS, EPIGENOMICS, SEQUENCING INFORMATICS AND ANCESTRY. JLABS PARTNERSHIP IN JANUARY 2017, NYGC, JOHNSON & JOHNSON INNOVATION LLC AND NEW YORK STATE ANNOUNCED A COLLABORATION TO LAUNCH A NEW "JLABS" INCUBATOR IN NEW YORK CITY. CALLED "JLABS@NYCSCHEDULED TO OPEN IN SUMMER 2018, THE 30,000-SQUARE FOOT FACILITY ON THE THIRD FLOOR OF NYGC WILL HOUSE AS MANY AS 30 BIOTECH, PHARMACEUTICAL, MEDICAL DEVICE OR CONSUMER AND DIGITAL HEALTH COMPANIES. THE NEW ALLIANCE WAS FORGED TO SUPPORT THE GROWTH OF HEALTH CARE SOLUTIONS IN THE REGION BY PROVIDING A COMPREHENSIVE COMMERCIALIZATION VEHICLE FOR EMERGING LIFE SCIENCE COMPANIES. JLABS SUPPORT OF TALENTED SCIENTISTS IN THE CITY AS THEY TAKE THEIR INNOVATIVE IDEAS TO MARKET ALIGNS WITH NYGCS MISSION OF FOSTERING INTELLECTUALLY VIBRANT COLLABORATIONS THAT ADVANCE THE DEVELOPMENT OF NEW TREATMENTS, THERAPIES AND THERAPEUTICS AGAINST HUMAN DISEASE.
ORGANIZATION MEMBERS	FORM 990, PART VI, SECTION A, LINE 6: AS OF DECEMBER 31, 2017, THE CENTER HAD A TOTAL OF 18 MEMBERS, CONSISTING OF 12 INSTITUTIONAL FOUNDING MEMBERS, FIVE ASSOCIATE MEMBERS, AND ONE FOUNDING TECHNOLOGY MEMBER. THE INSTITUTIONAL FOUNDING MEMBERS ARE THE FOLLOWING RECOGNIZED ACADEMIC, MEDICAL AND RESEARCH INSTITUTIONS: (1) COLD SPRING HARBOR LABORATORY, (2) CORNELL UNIVERSITY/WEILL CORNELL MEDICINE, (3) THE JACKSON LABORATORY, (4) MEMORIAL SLOAN-KETTERING CANCER CENTER, (5) ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI, (6) NEW YORK-PRESBYTERIAN HOSPITAL, (7) NEW YORK UNIVERSITY, SCHOOL OF MEDICINE, (8) NORTHWELL HEALTH, (9) THE RESEARCH FOUNDATION OF STATE UNIVERSITY OF NEW YORK, ON BEHALF OF STONY BROOK UNIVERSITY, (10) THE ROCKEFELLER UNIVERSITY, (11) THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK, AND (12) ALBERT EINSTEIN COLLEGE OF MEDICINE. ASSOCIATE MEMBERS: (1) AMERICAN MUSEUM OF NATURAL HISTORY, (2) HOSPITAL FOR SPECIAL SURGERY, (3) THE NEW YORK STEM CELL FOUNDATION, AND (4) ROSWELL PARK CANCER INSTITUTE. (5) PRINCETON UNIVERSITY *FOUNDING TECHNOLOGY MEMBER: (1) INTERNATIONAL BUSINESS MACHINES (IBM)
ORGANIZATION MEMBERS - DECISION MAKING	FORM 990, PART VI, SECTION A, LINE 7A & 7B: EACH INSTITUTIONAL FOUNDING MEMBER APPOINTS ONE REPRESENTATIVE TO SERVE ON NYGCS BOARD OF DIRECTORS. THE BOARD OF DIRECTORS ALSO INCLUDES THE SCIENTIFIC DIRECTOR AND OTHER DESIGNATED DIRECTORS OR INDIVIDUALS APPOINTED BY THE BOARD. DECISIONS REQUIRING BOARD APPROVAL INCLUDE THE ADMISSION OF NEW MEMBERS, CHANGES TO THE MISSION, CERTIFICATE OF INCORPORATION, AND BYLAWS, APPOINTMENT OR REMOVAL OF THE CHAIRPERSON OF THE BOARD AND THE SCIENTIFIC DIRECTOR, AND ADOPTION OF CERTAIN POLICIES AND PROCEDURES. THE BOARD ALSO REVIEWS AND APPROVES THE ANNUAL OPERATING BUDGET. MANAGEMENT HAS THE ABILITY TO ENTER INTO BUSINESS ARRANGEMENTS AND CONTRACTS, INCLUDING FINANCING ARRANGEMENTS.
FORM 990 REVIEW	FORM 990, PART VI, SECTION B, LINE 11: THE FORM 990 IS PREPARED BY AN INDEPENDENT PUBLIC ACCOUNTING FIRM, UTILIZING INFORMATION PROVIDED BY MANAGEMENT. UPON RECEIPT OF THE DRAFT FORM 990, MANAGEMENT, INCLUDING THE DIRECTOR OF FINANCE, GENERAL COUNSEL, AND PRESIDENT, REVIEW THE FORM. PRIOR TO FILING, MANAGEMENT PRESENTS THE FORM 990 TO THE AUDIT COMMITTEE FOR REVIEW AND COMMENT. ALSO PRIOR TO FILING, MANAGEMENT WILL MAKE THE FORM 990 AVAILABLE TO THE BOARD OF DIRECTORS.
CONFLICT OF INTEREST POLICY & REVIEW	FORM 990, PART VI, SECTION B, LINE 12C: NYGC REQUIRES ALL INTERESTED PERSONS (DEFINED AS BOARD MEMBERS, PRINCIPAL OFFICERS, OR MEMBERS OF A COMMITTEE IN WHICH THE BOARD HAS DELEGATED POWERS) TO DISCLOSE CONFLICTS OF INTEREST AS REQUIRED BY THE CONFLICT OF INTEREST POLICY. NYGC FOLLOWS A PROCEDURE FOR OBTAINING SUCH DISCLOSURES ANNUALLY. ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REVIEWED BY THE BOARD. IF AN INTERESTED PERSON HAS A POTENTIAL CONFLICT OF INTEREST, HE OR SHE MAY MAKE A PRESENTATION AT THE BOARD OR COMMITTEE MEETING, BUT AFTER SUCH PRESENTATION, HE/SHE SHALL LEAVE THE MEETING DURING THE DISCUSSION OF, AND THE VOTE ON, THE TRANSACTION OR ARRANGEMENT THAT CREATES THE POTENTIAL CONFLICT OF INTEREST.
COMPENSATION REVIEW AND APPROVAL	FORM 990, PART VI, SECTION B, LINE 15: FOR THE ORGANIZATIONS TOP MANAGEMENT OFFICIAL, PLEASE REFER TO SCHEDULE J NARRATIVES FOR PROCESS OF DETERMINING COMPENSATION. FOR ROBERT DARNELL, THE EXECUTIVE LEADERSHIP OF THE BOARD REVIEWED AND APPROVED HIS 2017 CONSULTING FEE. NYGC HIRED AN INDEPENDENT COMPENSATION CONSULTANT IN LATE 2016 TO REVIEW SENIOR MANAGEMENTS COMPENSATION. RESULTS OF THIS REVIEW WERE PROVIDED TO THE AD-HOC COMPENSATION COMMITTEE IN EARLY 2017. THE REVIEW SHOWED THAT THE COMPENSATION PAID TO ALL MEMBERS OF SENIOR MANAGEMENT WAS REASONABLE, AND THAT MERIT INCREASES FOR 2017 WERE REASONABLE AND APPROPRIATE. SENIOR MANAGEMENT EMPLOYED FOR MORE THAN 18 MONTHS RECEIVED A 4.5% MERIT INCREASE. SENIOR MANAGEMENT EMPLOYED FOR GREATER THAN ONE YEAR BUT LESS THAN 18 MONTHS RECEIVED A 3% MERIT INCREASE. THE PRESIDENT & COO DECLINED A MERIT INCREASE AND HER COMPENSATION WAS UNCHANGED. FORM 990, PART VII, LINE 40(B): DR. ROBERT DARNELL PROVIDED REGULAR CONSULTING SERVICES TO NYGC UNDER A CONSULTANT CONTRACT EXECUTED IN JANUARY 2017. THOSE CONSULTANCY HOURS ARE NOT REFLECTED IN LINE 40(B).
DOCUMENT DISCLOSURE	FORM 990, PART VI, SECTION C, LINE 19: NYGC'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.