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NFX: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
NFX (EIN 82-1672519)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-11-13
IRS object ID
202533179349307923
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-11-13T14:36:32-06:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN331498605PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1PLANTE & MORAN PLLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line18181 E TUFTS AVE SUITE 600AddressLine1Txt
CityDENVERCityNm
State AbbreviationCOStateAbbreviationCd
ZIP80237ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN821672519EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1NFXBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNFXBusinessNameControlTxt
Phone3133733977PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11074 WOODWARD AVENUEAddressLine1Txt
CityDETROITCityNm
State AbbreviationMIStateAbbreviationCd
ZIP482261906ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMATTHEW RIZIKPersonNm
Person TitleTREASURERPersonTitleTxt
Phone3133733977PhoneNum
Signature2025-11-06SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (1)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonDORI J EGGETTPreparerPersonNm
PTINP00645252PTIN
Phone3037409400PhoneNum
Preparation2025-11-04PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Name ChangeYes (X)NameChangeInd
Principal OfficerMATTHEW RIZIKPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11074 WOODWARD AVENUEAddressLine1Txt
CityDETROITCityNm
State AbbreviationMIStateAbbreviationCd
ZIP482261906ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$9,403,321GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.NFXDETROIT.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2017FormationYr
Legal Domicile StateMILegalDomicileStateCd
Activity Or MissionTHE MISSION OF NFX (FORMERLY NF FORWARD) IS TO ADVANCE RESEARCH TOWARD A CURE FOR NEUROFIBROMATOSIS ("NF") AND TO EXPAND AND IMPROVE TREATMENT OPTIONS FOR THOSE WITH NF AND RELATED DISORDERS.ActivityOrMissionDesc
Voting Members Governing Body3VotingMembersGoverningBodyCnt
Voting Members Independent3VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Volunteers30TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$11,290,238PYContributionsGrantsAmt
CY Contributions Grants$8,840,638CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$1,315PYInvestmentIncomeAmt
CY Investment Income$2,158CYInvestmentIncomeAmt
PY Other Revenue-$1,770,463PYOtherRevenueAmt
CY Other Revenue-$1,958,885CYOtherRevenueAmt
PY Total Revenue$9,521,090PYTotalRevenueAmt
CY Total Revenue$6,883,911CYTotalRevenueAmt
PY Grants And Similar Paid$5,331,337PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$15,047,154CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$0PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$55,249PYOtherExpensesAmt
CY Other Expenses$64,280CYOtherExpensesAmt
PY Total Expenses$5,386,586PYTotalExpensesAmt
CY Total Expenses$15,111,434CYTotalExpensesAmt
PY Revenues Less Expenses$4,134,504PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$8,227,523CYRevenuesLessExpensesAmt
Total Assets BOY$18,398,741TotalAssetsBOYAmt
Total Assets EOY$10,349,543TotalAssetsEOYAmt
Total Liabilities BOY$140,137TotalLiabilitiesBOYAmt
Total Liabilities EOY$233,022TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$18,258,604NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$10,116,521NetAssetsOrFundBalancesEOYAmt
MissionTHE ORGANIZATION FOLLOWS THE MISSION AS SET FORTH IN ITS ARTICLES OF INCORPORATION. IT HAS NOT YET ADOPTED A SEPARATE MISSION STATEMENT.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$15,047,154ExpenseAmt
Grant$15,047,154GrantAmt
DescNFX (FORMERLY NF FORWARD) WAS CREATED IN 2017 TO ADVANCE RESEARCH TOWARD A CURE FOR NEUROFIBROMATOSIS. NFX'S ANNUAL FUNDRAISING EVENT WAS HELD AND THESE FUNDS WERE USED TO SUPPORT RESEARCH ACTIVITIES.Desc
Total Program Service Expenses$15,047,154TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming ActivitiesYes (1)GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document12IRPDocumentCnt
IRP Document W2 G1IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee0EmployeeCnt
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members3GoverningBodyVotingMembersCnt
Independent Voting Member3IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board MembersYes (1)ElectionOfBoardMembersInd
Decisions Subject To ApprovaYes (1)DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of Committees0MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn Body0Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn0AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc0RegularMonitoringEnfrcInd
Whistleblower Policy0WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEO0CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MATTHEW RIZIKBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone3133733977PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11074 WOODWARD AVENUEAddressLine1Txt
CityDETROITCityNm
State AbbreviationMIStateAbbreviationCd
ZIP48226ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (3 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
JENNIFER GILBERT
PRESIDENT0.500.00Yes (X)Yes (X)$0$0$0
MATTHEW RIZIK
TREASURER & SECRETARY0.500.00Yes (X)Yes (X)$0$0$0
JEFFREY MORGANROTH
DIRECTOR0.500.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$0TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
PREMIER CREATIVE GROUP
1821 NOTHWOOD DRTROYMI48084EVENT RENTAL SERVICES$584,379
SODEXO LIVE
1 WASHINGTON BLVDDETROITMI48226VENUE CONSULTING SERVICES$486,833
EVENT THEORY
20801 RYAN RDWARRENMI48091EVENT RENTAL SERVICES$358,905
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
Fundraising$6,784,194FundraisingAmt
Related Organizations$2,056,444RelatedOrganizationsAmt
Noncash Contributions$104,258NoncashContributionsAmt
Total Contributions$8,840,638TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,158TotalRevenueColumnAmt
Exclusion$2,158ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$446,750FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$6,784,194ContriRptFundraisingEventAmt
Fundraising Direct Expenses$2,502,574FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$2,055,824TotalRevenueColumnAmt
Exclusion-$2,055,824ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$113,775GamingGrossIncomeAmt
Gaming Direct Expenses$16,836GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$96,939TotalRevenueColumnAmt
Exclusion$96,939ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$6,883,911TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion-$1,956,727ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$14,746,984TotalAmt
Program Services$14,746,984ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$300,170TotalAmt
Program Services$300,170ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$43,965TotalAmt
Management And General$43,965ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$4,608TotalAmt
Management And General$4,608ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$15,707TotalAmt
Management And General$15,707ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$15,111,434TotalAmt
Program Services$15,047,154ProgramServicesAmt
Management And General$64,280ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$16,673,174BOYAmt
EOY$6,452,928EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,432,822BOYAmt
EOY$3,403,236EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$9,670BOYAmt
EOY$20,606EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$283,075BOYAmt
EOY$472,773EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$18,398,741BOYAmt
EOY$10,349,543EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$140,137BOYAmt
EOY$233,022EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$140,137BOYAmt
EOY$233,022EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$18,258,604BOYAmt
EOY$10,116,521EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$18,258,604BOYAmt
EOY$10,116,521EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$18,398,741BOYAmt
EOY$10,349,543EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$8,227,523ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$85,440NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$7,119,529CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$9,734,521CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,827,323CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11,290,238CurrentTaxYearMinus1YearAmt
Current Tax Year$8,840,638CurrentTaxYearAmt
Total$46,812,249TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$7,119,529CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$9,734,521CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$9,827,323CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11,290,238CurrentTaxYearMinus1YearAmt
Current Tax Year$8,840,638CurrentTaxYearAmt
Total$46,812,249TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$11,501,729SubstantialContributorsTotAmt
Public Support Total170$35,310,520PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$26CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$17,559CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$29,585CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,315CurrentTaxYearMinus1YearAmt
Current Tax Year$2,158CurrentTaxYearAmt
Total$50,643TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$56,250CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$69,950CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$260,220CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$229,650CurrentTaxYearMinus1YearAmt
Current Tax Year$560,525CurrentTaxYearAmt
Total$1,176,595TotalAmt
FieldValueIRS element (for citing)
Total Support$48,039,487TotalSupportAmt
Public Support CY1700.73500PublicSupportCY170Pct
Public Support PY1700.74940PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$10,368,497TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$85,440NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$879,736DonatedServicesAndUseFcltsAmt
Other Revenue$2,519,410OtherRevenueAmt
Revenue Not Reported$3,484,586RevenueNotReportedAmt
Revenue Subtotal$6,883,911RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$6,883,911TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$18,510,580TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$879,736DonatedServicesUseFcltsAmt
Other Expenses Included$2,519,410OtherExpensesIncludedAmt
Expenses Not Reported$3,399,146ExpensesNotReportedAmt
Expenses Subtotal$15,111,434ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$15,111,434TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART XI, LINE 2D - OTHER ADJUSTMENTS:FUNDRAISING & GAMING EXPENSES 2,519,410.
PART XII, LINE 2D - OTHER ADJUSTMENTS:FUNDRAISING & GAMING EXPENSES 2,519,410.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionEAST ASIA AND THE PACIFICRegionTxt
Offices0OfficesCnt
Employee0EmployeeCnt
Type Of Activities ConductedGRANTS TO UNIVERSITY FOR RESEARCHTypeOfActivitiesConductedTxt
Specific Services ProvidedGRANTS TO SUPPORT NEUROFIBROMATOSIS RESEARCH.SpecificServicesProvidedTxt
Region Total Expenditures$300,170RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$300,170SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$300,170TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp

FieldValueIRS element (for citing)
RegionEAST ASIA AND THE PACIFICRegionTxt
Purpose Of GrantSUPPORT FOR NEUROFIBROMATOSIS RESEARCH.PurposeOfGrantTxt
Cash Grant$300,170CashGrantAmt
Manner Of Cash DisbursementWIRE TRANSFERMannerOfCashDisbursementTxt
Non Cash Assistance$0NonCashAssistanceAmt
Description Of Non Cash AsstN/ADescriptionOfNonCashAsstTxt
Valuation Method UsedACTUAL USD AMOUNTValuationMethodUsedDesc
FieldValueIRS element (for citing)
Total501c3 Org0Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GALA BENEFITEvent1Nm
Gross Receipts Event1$7,230,944GrossReceiptsEvent1Amt
Charitable Contri Event1$6,784,194CharitableContriEvent1Amt
Gross Revenue Event1$446,750GrossRevenueEvent1Amt
Rent Facility Costs Event1$26,500RentFacilityCostsEvent1Amt
Food And Beverage Event1$487,256FoodAndBeverageEvent1Amt
Entertainment Event1$529,156EntertainmentEvent1Amt
Other Direct Expenses Event1$1,459,662OtherDirectExpensesEvent1Amt
Gross Receipts Total$7,230,944GrossReceiptsTotalAmt
Charitable Contributions Tot$6,784,194CharitableContributionsTotAmt
Gross Revenue Total Events$446,750GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$26,500RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$487,256FoodAndBeverageTotalEventsAmt
Entertainment Total Events$529,156EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$1,459,662OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$2,502,574DirectExpenseSummaryEventsAmt
Net Income Summary-$2,055,824NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$113,775GrossRevenueOtherGamingAmt
Cash Prizes Other Gaming$6,786CashPrizesOtherGamingAmt
Non Cash Prizes Other Gaming$10,000NonCashPrizesOtherGamingAmt
Oth Direct Expnss Other Gaming$50OthDirectExpnssOtherGamingAmt
Volunteer Labor Other GamingYes (1)VolunteerLaborOtherGamingInd
Volunteer Labor Other Gaming1.00000VolunteerLaborOtherGamingPct
Gross Revenue Total Gaming$113,775GrossRevenueTotalGamingAmt
Cash Prizes Total Gaming$6,786CashPrizesTotalGamingAmt
Non Cash Prizes Total Gaming$10,000NonCashPrizesTotalGamingAmt
Oth Direct Expnss Total Gaming$50OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming$16,836DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$96,939NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedMIStatesWhereGamingConductedCd
LicensedYes (1)LicensedInd
License Suspended Etc0LicenseSuspendedEtcInd
Gaming With Nonmembers0GamingWithNonmembersInd
Member Of Other Entity0MemberOfOtherEntityInd
Gaming Own Facility0.00000GamingOwnFacilityPct
Gaming Other Facility1.00000GamingOtherFacilityPct
Individual With BooksMATTHEW RIZIKIndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line11074 WOODWARD AVEAddressLine1Txt
CityDETROITCityNm
State AbbreviationMIStateAbbreviationCd
ZIP48226ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game Rev0CntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonMATTHEW RIZIKGamingManagerPersonNm
Gaming Manager Compensation$0GamingManagerCompensationAmt
Gaming Manager Is Director OfcrYes (X)GamingManagerIsDirectorOfcrInd
Charitable Distribution Rqr0CharitableDistributionRqrInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (18 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtValuation Method UsedValuationMethodUsedDescNon Cash AssistanceNonCashAssistanceDescPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
CHILDREN'S TUMOR FOUNDATION
370 LEXINGTON AVENEW YORKNY10017132298956501(C)(3)$1,500,000$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
STANFORD UNIVERSITY
485 BROADWAYREDWOOD CITYCA94063941156365GOVERNMENT$2,492,685$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE
700 CHILDRENS DRIVECOLUMBUSOH43205316056230501(C)(3)$326,633$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
DUKE UNIVERSITY
705 BROAD STREETDURHAMNC27708560532129GOVERNMENT$360,000$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
PENNINGTON BIOMEDICAL RESEARCH CENTER
6400 PERKINS ROADBATON ROUGELA70808726000848501(C)(3)$360,000$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
THE GENERAL HOSPITAL CORPORATION
55 FRUIT STREETBOSTONMA02114042697983501(C)(3)$427,713$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
CHILDREN'S HOSPITAL OF PHILADELPHIA
PO BOX 8500PHILADELPHIAPA19178231352166501(C)(3)$3,023,731$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
801 5TH AVE SOUTHBIRMINGHAMAL35233636005396GOVERNMENT$1,184,294$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
WASHINGTON UNIVERSITY
7425 FORSYTH BOULEVARD MSCST LOUISMO63105430653611GOVERNMENT$887,596$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
CHILDREN'S HOSPITAL CORPORATION
300 LONGWOOD AVENUEBOSTONMA02115042774441501(C)(3)$859,027$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
BATTELLE MEMORIAL INSTITUTE
505 KING AVENUECOLUMBUSOH43201314379427501(C)(3)$619,262$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
UNIVERSITY OF MASSACHUSETTS
55 LAKE AVENUE NORTHWORCESTERMA01655043167352GOVERNMENT$537,597$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM STREET SUITE 425SAN FRANCISCOCA94143946036493GOVERNMENT$395,815$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
JOHNS HOPKINS UNIVERSITY
3910 KESWICK ROAD N4327-BBALTIMOREMD21211520595110GOVERNMENT$360,045$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
TRUSTEES OF INDIANA UNIVERSITY
1024 E 3RD STREET ROOM 132BLOOMINGTONIN47405356001673GOVERNMENT$360,000$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
THE OHIO STATE UNIVERSITY
901 WOODY HAYES DRIVE 2020COLUMBUSOH43210346025986GOVERNMENT$359,550$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCHBLANKENSHIP HALL
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVENUECINCINNATIOH45229310833936501(C)(3)$349,540$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
VIRGINIA COMMONWEALTH UNIVERSITY
800 E LEIGH STREET SUITE 3100RICHMONDVA23284546001758GOVERNMENT$338,746$0N/AN/ASUPPORT FOR NEUROFIBROMATOSIS RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org18Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationGRANTEES ARE REQUIRED TO SUBMIT ANNUAL REPORTS DETAILING THE USE OF GRANT FUNDS AND THE SCIENTIFIC PROGRESS MADE BY THEIR FUNDED RESEARCH PROJECTS.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution4ContributionCnt
Noncash Contributions Rpt F990$104,258NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties UsedYes (1)ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, COLUMN (B):THE ORGANIZATION IS REPORTING THE NUMBER OF CONTRIBUTIONS.
PART I, LINE 32B:ANY STOCK DEPOSITS ARE RECEIVED INTO A JPM INVESTMENT ACCOUNT. THE ORGANIZATION DETERMINES BASED ON CASH NEEDS WHEN THESE INVESTMENTS WILL BE SOLD. IF SOLD, JPM IS THE THIRD PARTY PERFORMING THIS TRANSACTION.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2MATTHEW RIZIK AND JEFFREY MORGANROTH HAVE A BUSINESS RELATIONSHIP.
FORM 990, PART VI, SECTION A, LINE 7ATHE SPOUSE OF THE PRESIDENT HAS THE SOLE POWER TO APPOINT BOARD MEMBERS.
FORM 990, PART VI, SECTION A, LINE 7BCERTAIN DECISIONS ARE RESERVED TO THE SPOUSE OF THE BOARD PRESIDENT.
FORM 990, PART VI, SECTION A, LINE 8BNFX (FORMERLY NF FORWARD) DOES NOT HAVE ANY COMMITTEES.
FORM 990, PART VI, SECTION B, LINE 11BTHE TREASURER WILL REVIEW THE FORM 990 BEFORE IT IS FILED.
FORM 990, PART VI, SECTION C, LINE 19UPON REQUEST
FORM 990, PART XII, LINE 2C:THE OVERSIGHT PROCESS HAS NOT CHANGED FROM PRIOR YEARS.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdEINEINPrimary ActivitiesPrimaryActivitiesTxtLegal Domicile StateLegalDomicileStateCdExempt Code SectionExemptCodeSectionTxtPublic Charity StatusPublicCharityStatusTxtDirect Controlling NADirectControllingNACdControlled OrganizationControlledOrganizationInd
GILBERT FAMILY FOUNDATION
1074 WOODWARD AVENUEDETROITMI48226810810541GRANTMAKING PRIVATE FOUNDATIONMI501(C)(3)PFN/A0
THE GILBERT FAMILY FOUNDATION
1074 WOODWARD AVENUEDETROITMI48226357294609GRANTMAKING PRIVATE FOUNDATIONMI501(C)(3)PFN/A0
NICK GILBERT NEUROFIBROMATOSIS RESEARCH INSTITUE
1074 WOODWARD AVENUEDETROITMI48226993110088NEUROFIBROMATOSIS RESEARCHMI501(C)(3)LINE 7N/A0
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgYes (1)GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of FacilitiesYes (1)SharingOfFacilitiesInd
Paid Employees SharingYes (1)PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd