CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2017-01-01 to 2017-12-31
Filed: 2018-10-02
IRS object ID: 201822759349301112
Schema version: 2017v2.3
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2018-10-02T15:09:07-05:00	ReturnTs
Tax Period End	2017-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	KPMG LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	1676 INTERNATIONAL DRIVE	AddressLine1Txt
City	McLean	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2017-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
In Care Of	% PRESTON W CAMPBELL MD	InCareOfNm
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVENUE Suite 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	PRESTON W CAMPBELL MD	PersonNm
Person Title	PRESIDENT & CEO	PersonTitleTxt
Phone	3019514422	PhoneNum
Signature	2018-10-01	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JG WHITE	PreparerPersonNm
PTIN	P01498698	PTIN
Phone	7032868000	PhoneNum
Preparation	2018-10-01	PreparationDt

Field	Value	IRS element (for citing)
Tax	2017	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	PRESTON W CAMPBELL MD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE STE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$1,393,954,611	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CFF.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1955	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.	ActivityOrMissionDesc
Voting Members Governing Body	17	VotingMembersGoverningBodyCnt
Voting Members Independent	16	VotingMembersIndependentCnt
Total Employee	760	TotalEmployeeCnt
Total Volunteers	92000	TotalVolunteersCnt
Total Gross UBI	-$1,415,836	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	-$1,532,275	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$117,148,751	PYContributionsGrantsAmt
CY Contributions Grants	$110,650,273	CYContributionsGrantsAmt
PY Program Service Revenue	$2,246,282	PYProgramServiceRevenueAmt
CY Program Service Revenue	$3,971,424	CYProgramServiceRevenueAmt
PY Investment Income	$64,555,425	PYInvestmentIncomeAmt
CY Investment Income	$149,520,920	CYInvestmentIncomeAmt
PY Other Revenue	$8,578,517	PYOtherRevenueAmt
CY Other Revenue	$11,339,404	CYOtherRevenueAmt
PY Total Revenue	$192,528,975	PYTotalRevenueAmt
CY Total Revenue	$275,482,021	CYTotalRevenueAmt
PY Grants And Similar Paid	$198,127,696	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$179,923,805	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$58,875,323	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$68,025,837	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$133,446	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$288,543	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$24,702,883	CYTotalFundraisingExpenseAmt
PY Other Expenses	$42,514,066	PYOtherExpensesAmt
CY Other Expenses	$44,528,505	CYOtherExpensesAmt
PY Total Expenses	$299,650,531	PYTotalExpensesAmt
CY Total Expenses	$292,766,690	CYTotalExpensesAmt
PY Revenues Less Expenses	-$107,121,556	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$17,284,669	CYRevenuesLessExpensesAmt
Total Assets BOY	$3,919,394,927	TotalAssetsBOYAmt
Total Assets EOY	$4,401,077,858	TotalAssetsEOYAmt
Total Liabilities BOY	$187,239,749	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$206,891,793	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$3,732,155,178	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$4,194,186,065	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF MORE THAN 30,000 PEOPLE IN THE U.S. CURRENTLY, THERE IS NO CURE.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$207,277,936	ExpenseAmt
Grant	$177,988,410	GrantAmt
Revenue	$5,206,040	RevenueAmt
Desc	MEDICAL PROGRAMS SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLDS LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF 120 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. BREAKTHROUGH TREATMENTS HAVE ADDED YEARS TO THE LIVES OF PEOPLE WITH CYSTIC FIBROSIS. TODAY THE MEDIAN SURVIVAL AGE IS OVER 40. THIS IS A DRAMATIC IMPROVEMENT FROM THE 1950S, WHEN A CHILD WITH CF RARELY LIVED LONG ENOUGH TO ATTEND ELEMENTARY SCHOOL. THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE DIFFICULT CONSEQUENCES OF THE DISEASE FROM SUPPORTING SPECIALIZED, QUALITY CF CARE TO PROVIDING INFORMATION AND SUPPORT TO HELP PEOPLE WITH CF ACCESS THAT CARE. THE FOUNDATIONS PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 29,800 PEOPLE WITH CF, PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS. MEDICAL PROGRAMS CONSIST OF APPROXIMATELY 738 GRANTS AND OTHER COSTS TO SUPPORT SCIENTIFIC STUDIES/INVESTIGATIONS AND CYSTIC FIBROSIS CENTERS. APPROXIMATELY 426 GRANTS TOTALING $32.1 MILLION WERE AWARDED TO CYSTIC FIBROSIS CARE CENTERS SERVING APPROXIMATELY 29,800 PATIENTS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$17,822,831	ExpenseAmt
Grant	$1,935,395	GrantAmt
Desc	COMMUNITY SERVICES THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM, AND EMPOWER INDIVIDUALS WITH CF AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING CF. APPROXIMATELY 29,800 PEOPLE WITH CF WERE SERVED IN 2017, INCLUDING APPROXIMATELY 880 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUALS CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2017, SKILLED CASE MANAGERS ADDRESSED MORE THAN 5,000 CASES FOR PEOPLE WITH CF, THEIR FAMILIES, AND THEIR PROVIDER NETWORK, INCLUDING UNDERSTANDING AND MAXIMIZING THEIR INSURANCE COVERAGE AND BENEFITS, AS WELL AS GETTING HELP WITH OTHER NEEDS RELATED TO DAILY LIFE WITH CF. CASE MANAGERS ALSO ASSISTED WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER. IN 2017, NEARLY 550 ADULTS WITH CF JOINED VIRTUAL EVENTS DESIGNED BY AND FOR ADULTS WITH CF, INCLUDING BREATHECON, CF MINICON: TRANSPLANT, AND CF MINICON: YOUNG ADULT TRANSITIONS, THAT PROVIDE AN OPPORTUNITY FOR THE CF COMMUNITY TO CONNECT, SHARE, AND LEARN FROM PEERS THROUGH OPEN AND HONEST DIALOGUE.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$16,900,416	ExpenseAmt
Desc	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2017, THERE WERE MORE THAN EIGHT PUBLICATIONS AND 30 VIDEOS/SERIES PRODUCED AND MADE AVAILABLE FOR PEOPLE WITH CF, FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2017, OVER 1,984,433 UNIQUE VISITORS CAME TO THE CF FOUNDATIONS WEBSITE. NEW CONTENT ON CFF.ORG IN 2017 INCLUDED THE LAUNCH OF NINE NEW SECTIONS AND 126 BLOG POSTS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$242,001,183	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	false	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	Yes (true)	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	false	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (true)	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (true)	ProfessionalFundraisingInd
Fundraising Activities	Yes (true)	FundraisingActivitiesInd
Gaming Activities	Yes (true)	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	Yes (true)	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (true)	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	Yes (true)	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (true)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (true)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	1426	IRPDocumentCnt
IRP Document W2 G	3	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	760	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (true)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (true)	Form990TFiledInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (true)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (true)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	Yes (true)	Form8282PropertyDisposedOfInd
Form8282 Filed	1	Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (true)	Form1098CFiledInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	17	GoverningBodyVotingMembersCnt
Independent Voting Member	16	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	false	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	PRESTON W CAMPBELL MD	PersonNm
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (31 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
RICHARD L DANDURAND
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
LOUIS A DEFALCO
VICE CHAIR	5.0	0.0	Yes (X)	$0	$0	$0
RICHARD J GRAY ESQ
VICE CHAIR	5.0	0.0	Yes (X)	$0	$0	$0
CAROLE B GRIEGO MD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
SUSAN L HOOK
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
CATHERINE C MCLOUD
CHAIR	8.0	3.0	Yes (X)	$0	$0	$0
CHAD T MOORE
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
DAVID A MOUNT
TREASURER	3.0	0.0	Yes (X)	$0	$0	$0
ROBERT H NIEHAUS
VICE CHAIR	5.0	0.0	Yes (X)	$0	$0	$0
ERIC R OLSON PHD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
TERESA L ELDER
TRUSTEE (AS OF 5/18/2017)	3.0	0.0	Yes (X)	$0	$0	$0
STEVEN SHAK MD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
CHARLES J THAYER
TRUSTEE (THROUGH 5/17/2017)	3.0	0.0	Yes (X)	$0	$0	$0
THEODORE J TORPHY PHD
TRUSTEE	3.0	5.0	Yes (X)	$0	$0	$0
AMY S WEINBERG
TRUSTEE (THROUGH 5/17/2017)	3.0	0.0	Yes (X)	$0	$0	$0
JOHN S WEINBERG
TRUSTEE (AS OF 5/18/2017)	3.0	0.0	Yes (X)	$0	$0	$0
PAUL W WHETSELL
EXECUTIVE VICE CHAIRMAN	5.0	0.0	Yes (X)	$0	$0	$0
KC BRYAN WHITE
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
PRESTON CAMPBELL MD
PRESIDENT & CEO	37.0	18.0	Yes (X)	$805,765	$396,810	$207,207	Yes (X)
MARC S GINSKY
EXECUTIVE VP, COO & SECRETARY	50.0	5.0		$663,211	$0	$226,013	Yes (X)
VERA H TWIGG
EXECUTIVE VP & CFO	50.0	5.0		$524,706	$0	$127,750	Yes (X)
JACK MAHLER MD
CHIEF INVESTMENT OFFICER	55.0	0.0		$1,197,052	$0	$152,338		Yes (X)
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIRS	45.0	10.0		$430,358	$101,381	$32,540		Yes (X)
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIRS	8.0	47.0		$74,361	$421,375	$67,421		Yes (X)
DRUCY S BOROWITZ MD
SENIOR VP, COMMUNITY AFFAIRS	55.0	0.0		$470,366	$0	$32,312			Yes (X)
TIMOTHY A WAIRE JR
CHIEF INFORMATION OFFICER	55.0	0.0		$341,523	$0	$65,090			Yes (X)
GLEN GOLDMARK
SENIOR VP OF HUMAN RESOURCES	55.0	0.0		$355,185	$0	$54,938			Yes (X)
ALBERT FARO MD
SR DIRECTOR, CLINICAL AFFAIRS	55.0	0.0		$319,590	$0	$61,736			Yes (X)
MARYBETH MCMAHON PHD
CHIEF OF STAFF	55.0	0.0		$332,209	$0	$52,917			Yes (X)
ROBERT J BEALL PHD
FORMER CEO/CURRENT CONSULTANT	10.0	0.0		$383,094	$55,949	$0				Yes (X)
C RICHARD MATTINGLY
FORMER COO	0.0	0.0		$197,010	$0	$0				Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$6,094,430	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$975,515	TotReportableCompRltdOrgAmt
Total Other Compensation	$1,080,262	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	134	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (true)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
NTC MAZZUCA CONTRACTING INC
10907 GUILFORD RD STE A	ANNAPOLIS JUNCTION	MD	20701	GENERAL CONTRACTING	$2,818,532
CELERITY IT LLC
8401 GREENSBORO DR SUITE 500	MCLEAN	VA	22102	IT CONSULTING	$2,054,243
SUFIAN PASSAMANO
712 MAIN STREET SUITE 2130	HOUSTON	TX	77002	PATIENT ASSISTANCE	$1,950,500
BARES CAPITAL MANAGEMENT INC
12600 HILL COUNTRY BLVDSUITE R-230	AUSTIN	TX	78738	INVESTMENT MGMT	$1,669,042
GARDNER RUSSO GARDNER LLC
223 E CHESTNUT ST	LANCASTER	PA	17602	INVESTMENT MGMT	$1,665,599

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	71	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$788,902	FederatedCampaignsAmt
Fundraising	$84,047,514	FundraisingAmt
All Other Contributions	$25,813,857	AllOtherContributionsAmt
Noncash Contributions	$10,517,381	NoncashContributionsAmt
Total Contributions	$110,650,273	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	SCIENTIFIC CONFERENCE	Desc
Business	611600	BusinessCd
Total Revenue Column	$3,971,424	TotalRevenueColumnAmt
Related Or Exempt Func Income	$3,971,424	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$3,971,424	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$58,068,866	TotalRevenueColumnAmt
Unrelated Business Revenue	-$1,415,836	UnrelatedBusinessRevenueAmt
Exclusion	$59,484,702	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$9,617,853	TotalRevenueColumnAmt
Exclusion	$9,617,853	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$1,174,435,480	SecuritiesAmt
Other	$20,859,117	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$1,096,128,551	SecuritiesAmt
Other	$7,713,992	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$78,306,929	SecuritiesAmt
Other	$13,145,125	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$91,452,054	TotalRevenueColumnAmt
Exclusion	$91,452,054	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$14,552,162	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$84,047,514	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$14,552,162	FundraisingDirectExpensesAmt
Gaming Gross Income	$152,043	GamingGrossIncomeAmt
Gaming Direct Expenses	$77,885	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$74,158	TotalRevenueColumnAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$74,158	ExclusionAmt

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	$0	GrossSalesOfInventoryAmt
Cost Of Goods Sold	$0	CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt	ExclusionExclusionAmt
REFUNDED OR CANCELLED GRANTS	900099	$1,234,616	$1,234,616
CLAIM PROCEEDS	900099	$412,777		$412,777

Field	Value	IRS element (for citing)
Other Revenue Total	$1,647,393	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$275,482,021	TotalRevenueColumnAmt
Related Or Exempt Func Income	$5,206,040	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	-$1,415,836	UnrelatedBusinessRevenueAmt
Exclusion	$161,041,544	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$177,688,641	TotalAmt
Program Services	$177,688,641	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$48,527	TotalAmt
Program Services	$48,527	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$2,186,637	TotalAmt
Program Services	$2,186,637	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$4,394,102	TotalAmt
Program Services	$2,443,584	ProgramServicesAmt
Management And General	$837,511	ManagementAndGeneralAmt
Fundraising	$1,113,007	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$580,104	TotalAmt
Program Services	$442,227	ProgramServicesAmt
Management And General	$59,201	ManagementAndGeneralAmt
Fundraising	$78,676	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$50,275,582	TotalAmt
Program Services	$27,958,528	ProgramServicesAmt
Management And General	$9,582,469	ManagementAndGeneralAmt
Fundraising	$12,734,585	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$3,214,679	TotalAmt
Program Services	$1,787,701	ProgramServicesAmt
Management And General	$612,714	ManagementAndGeneralAmt
Fundraising	$814,264	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$6,143,522	TotalAmt
Program Services	$3,416,447	ProgramServicesAmt
Management And General	$1,170,949	ManagementAndGeneralAmt
Fundraising	$1,556,126	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$3,417,848	TotalAmt
Program Services	$1,880,798	ProgramServicesAmt
Management And General	$560,986	ManagementAndGeneralAmt
Fundraising	$976,064	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$363,175	TotalAmt
Program Services	$259,733	ProgramServicesAmt
Management And General	$86,923	ManagementAndGeneralAmt
Fundraising	$16,519	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$285,760	TotalAmt
Management And General	$285,760	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$663,815	TotalAmt
Program Services	$663,815	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$288,543	TotalAmt
Fundraising	$288,543	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$9,017,639	TotalAmt
Management And General	$9,017,639	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$4,841,694	TotalAmt
Program Services	$3,898,075	ProgramServicesAmt
Management And General	$677,742	ManagementAndGeneralAmt
Fundraising	$265,877	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$23,486	TotalAmt
Program Services	$10,099	ProgramServicesAmt
Management And General	$2,818	ManagementAndGeneralAmt
Fundraising	$10,569	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$4,717,234	TotalAmt
Program Services	$2,380,323	ProgramServicesAmt
Management And General	$296,598	ManagementAndGeneralAmt
Fundraising	$2,040,313	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$7,125,429	TotalAmt
Program Services	$5,159,294	ProgramServicesAmt
Management And General	$683,182	ManagementAndGeneralAmt
Fundraising	$1,282,953	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$4,293,486	TotalAmt
Program Services	$2,275,623	ProgramServicesAmt
Management And General	$642,999	ManagementAndGeneralAmt
Fundraising	$1,374,864	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$1,833,941	TotalAmt
Program Services	$1,252,485	ProgramServicesAmt
Management And General	$168,788	ManagementAndGeneralAmt
Fundraising	$412,668	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$5,471,376	TotalAmt
Program Services	$4,706,605	ProgramServicesAmt
Management And General	$162,058	ManagementAndGeneralAmt
Fundraising	$602,713	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$2,086,005	TotalAmt
Program Services	$1,369,642	ProgramServicesAmt
Management And General	$220,775	ManagementAndGeneralAmt
Fundraising	$495,588	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$798,720	TotalAmt
Program Services	$532,825	ProgramServicesAmt
Management And General	$178,336	ManagementAndGeneralAmt
Fundraising	$87,559	FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
MEDICAL QUALITY IMPROVEMENT	$828,070	$828,070
TRAINING	$956,137	$481,879	$137,580	$336,678
OTHER	$1,222,538	$329,625	$677,596	$215,317

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$292,766,690	TotalAmt
Program Services	$242,001,183	ProgramServicesAmt
Management And General	$26,062,624	ManagementAndGeneralAmt
Fundraising	$24,702,883	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$2,288,492	TotalAmt
Program Services	$581,964	ProgramServicesAmt
Fundraising	$1,706,528	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$98,774	BOYAmt
EOY	$36,212	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$94,935,899	BOYAmt
EOY	$136,933,644	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$7,734,842	BOYAmt
EOY	$7,687,519	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$6,655,865	BOYAmt
EOY	$4,147,509	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$272,744	BOYAmt
EOY	$330,993	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$1,819,362	BOYAmt
EOY	$2,660,134	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$15,976,659	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$6,646,620	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$4,828,406	BOYAmt
EOY	$9,330,039	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$2,266,485,881	BOYAmt
EOY	$1,921,918,665	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,529,304,556	BOYAmt
EOY	$2,317,776,911	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$7,258,598	BOYAmt
EOY	$256,232	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,919,394,927	BOYAmt
EOY	$4,401,077,858	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$20,050,844	BOYAmt
EOY	$27,505,186	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$72,415,061	BOYAmt
EOY	$75,687,961	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$4,358,270	BOYAmt
EOY	$5,081,024	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$90,415,574	BOYAmt
EOY	$98,617,622	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$187,239,749	BOYAmt
EOY	$206,891,793	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,720,457,947	BOYAmt
EOY	$4,181,431,067	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$7,954,458	BOYAmt
EOY	$8,657,764	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,742,773	BOYAmt
EOY	$4,097,234	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,732,155,178	BOYAmt
EOY	$4,194,186,065	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,919,394,927	BOYAmt
EOY	$4,401,077,858	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$17,284,669	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$483,673,912	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	-$4,358,356	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$305,963,877	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,312,085,535	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$122,210,533	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$117,148,751	CurrentTaxYearMinus1YearAmt
Current Tax Year	$110,650,273	CurrentTaxYearAmt
Total	$3,968,058,969	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$305,963,877	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$3,312,085,535	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$122,210,533	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$117,148,751	CurrentTaxYearMinus1YearAmt
Current Tax Year	$110,650,273	CurrentTaxYearAmt
Total	$3,968,058,969	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$3,968,058,969	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$17,054,431	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$54,160,127	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$75,041,033	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$64,638,761	CurrentTaxYearMinus1YearAmt
Current Tax Year	$67,686,719	CurrentTaxYearAmt
Total	$278,581,071	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,927,254	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$15,655,168	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$16,333,174	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$14,060,761	CurrentTaxYearMinus1YearAmt
Current Tax Year	$15,116,982	CurrentTaxYearAmt
Total	$76,093,339	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$4,322,733,379	TotalSupportAmt
Gross Receipts Rltd Activities	$14,876,997	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.91795	PublicSupportCY170Pct
Public Support PY170	0.93134	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II - OTHER INCOME	FormAndLineReferenceDesc
Explanation	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Total Grassroots Lobbying		TotalGrassrootsLobbyingGrp
Total Direct Lobbying		TotalDirectLobbyingGrp
Total Lobbying Expend		TotalLobbyingExpendGrp
Other Exempt Purpose Expend		OtherExemptPurposeExpendGrp
Total Exempt Purpose Expend		TotalExemptPurposeExpendGrp
Lobbying Nontaxable Amount		LobbyingNontaxableAmountGrp
Grassroots Nontaxable		GrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp
Volunteers	Yes (true)	VolunteersInd
Paid Staff Or Management	Yes (true)	PaidStaffOrManagementInd
Media Advertisements	false	MediaAdvertisementsInd
Mailings Members	Yes (true)	MailingsMembersInd
Mailings Members	$63,959	MailingsMembersAmt
Publications Or Broadcast	Yes (true)	PublicationsOrBroadcastInd
Publications Or Broadcast	$31,849	PublicationsOrBroadcastAmt
Grants Other Organizations	false	GrantsOtherOrganizationsInd
Direct Contact Legislators	Yes (true)	DirectContactLegislatorsInd
Direct Contact Legislators	$1,703,101	DirectContactLegislatorsAmt
Rallies Demonstrations	false	RalliesDemonstrationsInd
Other Activities	Yes (true)	OtherActivitiesInd
Other Activities	$11,460	OtherActivitiesAmt
Total Lobbying Expenditures	$1,810,369	TotalLobbyingExpendituresAmt
Not Described Section501c3	false	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	LOBBYING ACTIVITY	FormAndLineReferenceDesc
Explanation	THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOPING WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.	ExplanationTxt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$5,658,482	OtherCostOrOtherBasisAmt
Depreciation	$1,366,119	DepreciationAmt
Book Value	$4,292,363	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$10,318,177	OtherCostOrOtherBasisAmt
Depreciation	$5,280,501	DepreciationAmt
Book Value	$5,037,676	BookValueAmt

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildingsGrp
Total Book Value Land Buildings	$9,330,039	TotalBookValueLandBuildingsAmt
Financial Derivatives		FinancialDerivativesGrp
Closely Held Equity Interests		CloselyHeldEquityInterestsGrp

Other Securities OtherSecuritiesGrp (6 entries)

DescDesc	Book ValueBookValueAmt	Method ValuationMethodValuationCd
FIXED INCOME INDEX COMMINGLED	$130,952,699	F
PUBLIC EQUITY COMMINGLED	$1,494,197,079	F
OTHER PUBLIC EQUITY BASED	$99,856,362	F
HEDGED STRATEGIES	$436,127,209	F
PVT EQTY & OTHR ILLIQUID FUNDS	$152,546,327	F
PERPETUAL TRUSTS	$4,097,235	F

Field	Value	IRS element (for citing)
Total Book Value Securities	$2,317,776,911	TotalBookValueSecuritiesAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	INTERCOMPANY PAYABLES	Desc
Amt	$98,617,622	Amt

Field	Value	IRS element (for citing)
Total Liability	$98,617,622	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE D, PART X	FormAndLineReferenceDesc
Explanation	FIN 48 FOOTNOTE THE FOUNDATION AND CFFT ARE NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATIONS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAVE BEEN CLASSIFIED AS ORGANIZATIONS THAT ARE NOT PRIVATE FOUNDATIONS UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2017 AND 2016. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. THE TAX CUTS AND JOBS ACT (THE TAX ACT) WAS SIGNED INTO LAW ON DECEMBER 22, 2017. THE TAX ACT INCLUDES SEVERAL CHANGES RELEVANT TO TAX-EXEMPT ORGANIZATIONS, PRIMARILY RELATED TO UNRELATED BUSINESS INCOME, NET OPERATING LOSSES, CERTAIN NEW EXCISE TAXES, AND CHANGES AFFECTING THE DEDUCTIBILITY OF CERTAIN EXPENSES. MANAGEMENT HAS DETERMINED THAT THE NEW LAW WILL NOT HAVE A SIGNIFICANT IMPACT ON THE FOUNDATIONS FINANCIAL STATEMENTS.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (7 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
NORTH AMERICA	GRANTMAKING	NONE	$755,200
EUROPE	GRANTMAKING	NONE	$1,245,287
MIDDLE EAST AND NORTH AFRICA	GRANTMAKING	NONE	$186,150
CENTRAL AMERICA/CARIBBEAN	INVESTMENTS		$757,769,000
EAST ASIA AND THE PACIFIC	INVESTMENTS		$6,089,000
EUROPE	INVESTMENTS		$151,400,000
NORTH AMERICA	INVESTMENTS		$5,497,000

Field	Value	IRS element (for citing)
Subtotal Spent	$922,941,637	SubtotalSpentAmt
Total Spent	$922,941,637	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (24 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
Europe (Including Iceland and Greenland)	PILOT STUDY	$54,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$108,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$54,500	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$54,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$53,999	WIRE
Europe (Including Iceland and Greenland)	QUALITY IMPROVEMENT	$15,321	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$107,990	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$149,477	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Middle East and North Africa	QUALITY IMPROVEMENT	$186,150	WIRE
North America	PILOT STUDY	$53,978	CHECK
North America	PILOT STUDY	$51,990	CHECK
North America	PILOT STUDY	$53,892	CHECK
North America	PILOT STUDY	$49,825	CHECK
North America	RESEARCH	$107,379	CHECK
North America	RESEARCH	$108,000	CHECK
North America	RESEARCH	$108,000	CHECK
North America	RESEARCH	$125,000	CHECK
North America	RESEARCH	$95,516	CHECK

Field	Value	IRS element (for citing)
Total501c3 Org	24	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt
Transfer To Foreign Corp	Yes (true)	TransferToForeignCorpInd
Interest In Foreign Trust	Yes (true)	InterestInForeignTrustInd
Foreign Corp Ownership	Yes (true)	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	Yes (true)	PassiveForeignInvestmestCoInd
Foreign Partnership	Yes (true)	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S.

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT TO THE MIDDLE EAST/NORTH AFRICA REGION WAS MADE TO MIDDLE EAST CYSTIC FIBROSIS ASSOCIATION IN TURKEY.

FOREIGN FORMS

THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (true)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
LAUTMAN MASKA NEILL COMPAN
MAIL COUNSEL	false	$7,735,399	$212,000	$7,523,399
TURNKEY PROMOTIONS
EVENT COUNSEL	false	$39,927,665	$76,543	$39,851,122

Field	Value	IRS element (for citing)
Total Gross Receipts	$47,663,064	TotalGrossReceiptsAmt
Total Retained By Contractors	$288,543	TotalRetainedByContractorsAmt
Total Net To Organization	$47,374,521	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SKI	Event1Nm
Gross Receipts Event1	$2,634,402	GrossReceiptsEvent1Amt
Charitable Contri Event1	$1,299,210	CharitableContriEvent1Amt
Gross Revenue Event1	$1,335,192	GrossRevenueEvent1Amt
Rent Facility Costs Event1	$695,547	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$321,908	FoodAndBeverageEvent1Amt
Entertainment Event1	$10,406	EntertainmentEvent1Amt
Other Direct Expenses Event1	$307,331	OtherDirectExpensesEvent1Amt
Event2	ATLANTA WALK	Event2Nm
Gross Receipts Event2	$2,358,767	GrossReceiptsEvent2Amt
Charitable Contri Event2	$2,274,084	CharitableContriEvent2Amt
Gross Revenue Event2	$84,683	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$12,868	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$27,670	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$19,981	FoodAndBeverageEvent2Amt
Other Direct Expenses Event2	$24,164	OtherDirectExpensesEvent2Amt
Other Events Total	985	OtherEventsTotalCnt
Gross Receipts Other Events	$93,606,507	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$80,474,220	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$13,132,287	GrossRevenueOtherEventsAmt
Cash Prizes Other Events	$21,171	CashPrizesOtherEventsAmt
Non Cash Prizes Other Events	$611,807	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$5,624,131	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$3,898,222	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$442,200	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$2,534,756	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$98,599,676	GrossReceiptsTotalAmt
Charitable Contributions Tot	$84,047,514	CharitableContributionsTotAmt
Gross Revenue Total Events	$14,552,162	GrossRevenueTotalEventsAmt
Cash Prizes Total Events	$21,171	CashPrizesTotalEventsAmt
Non Cash Prizes Total Events	$624,675	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$6,347,348	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$4,240,111	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$452,606	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$2,866,251	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$14,552,162	DirectExpenseSummaryEventsAmt

Gaming Information GamingInformationGrp

Field	Value	IRS element (for citing)
Gross Revenue Other Gaming	$152,043	GrossRevenueOtherGamingAmt
Non Cash Prizes Other Gaming	$77,885	NonCashPrizesOtherGamingAmt
Volunteer Labor Other Gaming	false	VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming	$152,043	GrossRevenueTotalGamingAmt
Non Cash Prizes Total Gaming	$77,885	NonCashPrizesTotalGamingAmt
Direct Expense Summary Gaming	$77,885	DirectExpenseSummaryGamingAmt
Net Gaming Income Summary	$74,158	NetGamingIncomeSummaryAmt

Field	Value	IRS element (for citing)
States Where Gaming Conducted	CA	StatesWhereGamingConductedCd
States Where Gaming Conducted	IL	StatesWhereGamingConductedCd
States Where Gaming Conducted	MI	StatesWhereGamingConductedCd
States Where Gaming Conducted	MN	StatesWhereGamingConductedCd
States Where Gaming Conducted	MT	StatesWhereGamingConductedCd
States Where Gaming Conducted	NH	StatesWhereGamingConductedCd
States Where Gaming Conducted	OH	StatesWhereGamingConductedCd
States Where Gaming Conducted	TX	StatesWhereGamingConductedCd
Licensed	Yes (true)	LicensedInd
License Suspended Etc	false	LicenseSuspendedEtcInd
Gaming With Nonmembers	false	GamingWithNonmembersInd
Member Of Other Entity	false	MemberOfOtherEntityInd
Gaming Other Facility	1.00000	GamingOtherFacilityPct
Individual With Books	THE ORGANIZATION	IndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Cntrct With3rd Prty For Game Rev	false	CntrctWith3rdPrtyForGameRevInd
Charitable Distribution Rqr	false	CharitableDistributionRqrInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROFESSIONAL FUNDRAISING SERVICES

SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MAIL EFFORTS DURING 2017. THE EXPENSE FOR THE PROJECT IS $16,000 PER MONTH OR $192,000 FOR THE ENTIRE YEAR OF SERVICES. LAUTMAN MASKA NEILL & COMPANY ALSO CONSULTED ON TWO INDIVIDUAL MAILINGS FOR $10,000 PER MAILING OR $20,000 TOTAL. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MAILINGS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS WITH ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. CFF HAD A WRITTEN CONTRACT WITH TURNKEY PROMOTIONS TO CONSULT ON ITS PEER TO PEER FUNDRAISING EVENTS DURING 2017. THE EXPENSE FOR THE PROJECT WAS $76,543. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED TURNKEY PROMOTIONS FOR PRIZE FULFILLMENT IN 2017. TURNKEY PROMOTIONS DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM EVENT ACTIVITIES WITH WHICH TURNKEY PROMOTIONS ASSISTS WITH ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

SCHEDULE G, PART III

ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. ANY VOLUNTEER INVOLVEMENT IN SUCH ACTIVITIES WAS INSIGNIFICANT. NO OUTSIDE PARTY HAD ANY INVOLVEMENT IN GAMING ACTIVITIES AND THESE ACTIVITIES DO NOT GENERATE UNRELATED BUSINESS INCOME. THE EXECUTIVE DIRECTOR OF EACH OFFICE IS RESPONSIBLE FOR OVERSEEING GAMING ACTIVITIES CONDUCTED BY THEIR OFFICE.

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (360 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	03755	020222111	501c(3)	$41,142	ADULT CARE
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	03755	020222111	501c(3)	$162,000	PILOT STUDY	DEPT 4656 / REF 413407
Children's Hospital & Medical Center Foundation
8401 W Dodge Rd Suite 120	Omaha	NE	68114	476105603	501c(3)	$45,607	ADULT CARE
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	03755	020222111	501c(3)	$2,883,905	QUALITY IMPROVEMENT	RESEARCH AND SPONSORED PROGRAMS
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	03755	020222111	501c(3)	$586,049	RESEARCH	B 5 JESSUP HALL
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	03755	020222111	501c(3)	$520,000	RESEARCH CENTER
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	03755	020222111	501c(3)	$67,800	RESEARCH STUDY
The University of Vermont and State Agricultural C
85 So Prospect Street	Burlington	VT	05405	030179440	501c(3)	$121,360	CF CARE CENTER
The University of Vermont and State Agricultural C
85 So Prospect Street	Burlington	VT	05405	030179440	501c(3)	$54,000	PILOT STUDY	310 JESSE HALL
Harvard Medical School
200 Longwood Avenue	Boston	MA	02115	042103580	501c(3)	$107,482	RESEARCH
Harvard Medical School
200 Longwood Avenue	Boston	MA	02115	042103580	501c(3)	$65,450	RESEARCH STUDY
The General Hospital Corporation ( Massachusetts G
PO Box 414876	Boston	MA	02114	042697983	501c(3)	$275,252	CF CARE CENTER
The General Hospital Corporation ( Massachusetts G
PO Box 414876	Boston	MA	02114	042697983	501c(3)	$211,584	RESEARCH
The General Hospital Corporation ( Massachusetts G
PO Box 414876	Boston	MA	02114	042697983	501c(3)	$67,800	RESEARCH STUDY
The General Hospital Corporation ( Massachusetts G
PO Box 414876	Boston	MA	02114	042697983	501c(3)	$227,500	TRAINING	ONE SHIELDS AVENUE
Children's Hospital Corporation (Boston Children's
300 Longwood Ave	Boston	MA	02115	042774441	501c(3)	$47,041	ADULT CARE	0690 SW BANCROFT STREET
Children's Hospital Corporation (Boston Children's
300 Longwood Ave	Boston	MA	02115	042774441	501c(3)	$459,630	CF CARE CENTER	1601 NW 12TH AVENUE
Children's Hospital Corporation (Boston Children's
300 Longwood Ave	Boston	MA	02115	042774441	501c(3)	$108,000	RESEARCH	PO BOX 414876
Children's Hospital Corporation (Boston Children's
300 Longwood Ave	Boston	MA	02115	042774441	501c(3)	$127,500	TRAINING	BR305
Rhode Island Hospital
593 Eddy Street	Providence	RI	02903	050258954	501c(3)	$76,765	ADULT CARE
Rhode Island Hospital
593 Eddy Street	Providence	RI	02903	050258954	501c(3)	$166,531	CF CARE CENTER
Yale University
47 College Street	New Haven	CT	06520	060646973	501c(3)	$284,390	CF CARE CENTER
Yale University
47 College Street	New Haven	CT	06520	060646973	501c(3)	$54,000	PILOT STUDY
Yale University
47 College Street	New Haven	CT	06520	060646973	501c(3)	$449,000	RESEARCH
Yale University
47 College Street	New Haven	CT	06520	060646973	501c(3)	$63,100	RESEARCH STUDY
New York University School of Medicine
550 First Avenue	New York	NY	10016	135562308	501c(3)	$155,802	CF CARE CENTER
New York University School of Medicine
550 First Avenue	New York	NY	10016	135562308	501c(3)	$53,575	PILOT STUDY
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$32,400	ADULT CARE
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$273,550	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$53,557	PILOT STUDY	OFFICE OF SPONSORED PROGRAMS
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$63,100	RESEARCH STUDY
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$61,250	TRAINING	OFFICE OF SPONSORED RESEARCH
University of Rochester
1325 Mt Hope Ave	Rochester	NY	14642	160743209	501c(3)	$32,400	ADULT CARE
University of Rochester
1325 Mt Hope Ave	Rochester	NY	14642	160743209	501c(3)	$259,930	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	27157	223849199	501c(3)	$124,490	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	27157	223849199	501c(3)	$54,000	PILOT STUDY
Advocate Charitable Foundation
3075 Highland PKWY	Downers Grove	IL	60515	363297360	501c(3)	$176,869	CF CARE CENTER
Albany Medical College
Elsmere A-107	Albany	NY	12208	141338310	501c(3)	$64,400	CF CARE CENTER	CAMPUS BOX 1034
The Children's Hospital of Philadelphia
3516 Civic Ctr Blvd	Philadelphia	PA	19104	231352166	501c(3)	$308,932	CF CARE CENTER
All Children's Hospital
PO Box 31020	St Petersburg	FL	33731	590683252	501c(3)	$223,167	CF CARE CENTER
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza	Chicago	IL	60614	362170833	501c(3)	$219,536	CF CARE CENTER
Arizona Board of Regents University of Arizona
888 N Euclid Room 510	Tucson	AZ	85722	742652689	IRC 115	$235,460	CF CARE CENTER	MAIL CODE 7828
Arkansas Children's Hospital Research Institute I
800 Marshall Street	Little Rock	AR	72202	710694931	501c(3)	$109,460	CF CARE CENTER
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	521958352	501c(3)	$115,284	CF CARE CENTER	888 N EUCLID ROOM 510
Augusta University Research Institute Inc
1120 15th Street CJ3301	Augusta	GA	30912	581418202	501c(3)	$255,356	CF CARE CENTER
Baylor College of Medicine
PO Box 1	Houston	TX	77212	741613878	501c(3)	$459,916	CF CARE CENTER
Baylor Scott & White Health
2401 S 31st St	Temple	TX	76508	463131350	501c(3)	$40,930	CF CARE CENTER
Baystate Medical Center (95-196)
759 Chestnut Street	Springfield	MA	01199	042790311	501c(3)	$56,370	CF CARE CENTER	160 WATER STREET 24TH FLOOR
Beth Israel Medical Center
160 Water St 24th Fl	New York	NY	10038	135564934	501c(3)	$210,580	CF CARE CENTER
Billings Clinic
2800 10th Avenue North	Billings	MT	59107	810231784	501c(3)	$76,070	CF CARE CENTER
The Children's Hospital of Philadelphia
3516 Civic Ctr Blvd	Philadelphia	PA	19104	231352166	501c(3)	$108,000	PILOT STUDY
Board of Trustees of Southern Illinois University
PO Box 19636	Springfield	IL	62794	376005961	501c(3)	$16,548	CF CARE CENTER
The Children's Hospital of Philadelphia
3516 Civic Ctr Blvd	Philadelphia	PA	19104	231352166	501c(3)	$65,450	RESEARCH STUDY
California Pacific Medical Center Research Institu
2200 Webster Street	San Francisco	CA	94115	940562680	501c(3)	$35,294	CF CARE CENTER
CAMC Health Education and Research Institute
PO Box 765	Charleston	WV	25323	550753754	501c(3)	$68,800	CF CARE CENTER	SUITE 260
Carle Foundation Hospital
611 W Park Street	Urbana	IL	61801	371119538	501c(3)	$42,420	CF CARE CENTER
Carolinas Healthcare Foundation
208 East Boulevard	Charlotte	NC	28203	566060481	501c(3)	$55,100	CF CARE CENTER
Children's Health Care
2525 Chicago Ave SO	Minneapolis	MN	55404	411754276	501c(3)	$141,020	CF CARE CENTER
Children's Healthcare of Atlanta
1001 Johnson Ferry Road	Atlanta	GA	30342	582367819	501c(3)	$205,710	CF CARE CENTER
Children's Hospital Central California
9300 Valley Chldns Place	Madera	CA	93638	941294954	501c(3)	$133,950	CF CARE CENTER
The Children's Hospital of Philadelphia
3516 Civic Ct Blvd	Philadelphia	PA	19104	231352166	501c(3)	$127,500	TRAINING
Trustees of the University of Pennsylvania
133 South 36th St	Philadelphia	PA	19104	231352685	501c(3)	$269,210	CF CARE CENTER
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	44308	340714357	501c(3)	$257,280	CF CARE CENTER
Children's Hospital of Michigan
3663 Woodward AveSte 200	Detroit	MI	48201	381357994	501c(3)	$95,460	CF CARE CENTER
Trustees of the University of Pennsylvania
133 South 36th St	Philadelphia	PA	19104	231352685	501c(3)	$108,000	RESEARCH
Children's Hospital of Pittsburgh
3705 Fifth Avenue	Pittsburgh	PA	15213	250402510	501c(3)	$324,150	CF CARE CENTER
Children's Hospital Los Angeles
4650 Sunset Blvd	Los Angeles	CA	90027	951690977	501c(3)	$198,680	CF CARE CENTER
Children's Lung Specialists
3838 Meadows Lane	Las Vegas	NV	89107	880271963	501c(3)	$131,720	CF CARE CENTER
Children's Medical Center
One Childrens Plaza	Dayton	OH	45404	310672132	501c(3)	$240,951	CF CARE CENTER
Children's Mercy Hospital
2401 Gillham Road	Kansas City	MO	64108	440605373	501c(3)	$207,072	CF CARE CENTER
Children's National Medical Center
111 Michigan Ave NW	Washington	DC	20010	521640403	501c(3)	$254,897	CF CARE CENTER
Christiana Care Health Services Inc
PO Box 2653	Wilmington	DE	19805	510103684	501c(3)	$31,570	CF CARE CENTER
Christus Santa Rosa Healthcare
333 North Santa Rosa	San Antonio	TX	78207	741109665	501c(3)	$37,270	CF CARE CENTER	SUITE 104
Pennsylvania State University
College of Medicine	Hershey	PA	17033	246000376	IRC 115	$185,850	CF CARE CENTER
Connecticut Children's Medical Center
282 Washington Street	Hartford	CT	06106	060646755	501c(3)	$115,648	CF CARE CENTER	SUITE 501
Cook Children's Medical Center CF Center
801 Seventh Avenue	Ft Worth	TX	76104	752051646	501c(3)	$218,210	CF CARE CENTER
Daughters of Caring Health Services of Austin
PO Box 1	Houston	TX	77212	741109643	501c(3)	$287,375	CF CARE CENTER
Drexel University College of Medicine St Christ
3201 Arch StSte 420	Philadelphia	PA	19104	231352630	501c(3)	$238,531	CF CARE CENTER
Driscoll Children's Hospital
Corpus Christi TX 78411	Corpus Christi	TX	78411	742577746	501c(3)	$34,900	CF CARE CENTER
Pennsylvania State University
College of Medicine	Hershey	PA	17033	246000376	IRC 115	$107,506	RESEARCH
East Tennessee Children's Hospital Association I
2100 Clinch Ave 310	Knoxville	TN	37916	626002604	501c(3)	$210,750	CF CARE CENTER
Eastern Maine Medical Center
417 State St Suite 305	Bangor	ME	04401	010211501	501c(3)	$50,220	CF CARE CENTER
Eastern Virginia Medical School
601 Childrens Lane	Norfolk	VA	23507	540506321	501c(3)	$40,925	CF CARE CENTER	1600 SW ARCHER RD SUITE D2-15
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$32,228	ADULT CARE
Erlanger Health System
975 East Third Street	Chattanooga	TN	37403	626000101	501c(3)	$49,660	CF CARE CENTER
Geisinger Medical Center
100 N Academy Drive	Danville	PA	17822	236291113	501c(3)	$167,794	CF CARE CENTER	SUITE 50
Good Samaritan Hospital
1000 Montauk Highway	New York	NY	11795	111888924	501c(3)	$27,500	CF CARE CENTER	MOB 203
Greenville Hospital System
701 Grove Road	Greenville	SC	29605	576007863	501c(3)	$67,690	CF CARE CENTER	CYSTIC FIBROSIS CLINIC
Gundersen Lutheran Medical Foundation
1900 South Avenue	La Crosse	WI	54601	391249705	501c(3)	$30,640	CF CARE CENTER	901 45TH STREET
Hartford Hospital (Central Connecticut Cystic Fibr
80 Seymour Street	Hartford	CT	06102	060646668	501c(3)	$115,766	CF CARE CENTER
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike	Rockville	MD	20852	521317896	501c(3)	$38,505	CF CARE CENTER
Inova Health Care Services
8110 Gatehouse Rd	Falls Church	VA	22042	540620889	501c(3)	$28,500	CF CARE CENTER
Iowa Health Foundation (Blank Children's CF Center
1440 Ingersoll Avenue	Des Moines	IA	50309	421467682	501c(3)	$73,680	CF CARE CENTER
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$110,160	CF CARE CENTER
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$54,000	PILOT STUDY	SUITE E-110
Kaleida Health
219 Bryant Street	Buffalo	NY	14209	161533232	501c(3)	$149,940	CF CARE CENTER
Landon Pediatric Foundation
3291 Loma Vista Road	Ventura	CA	93003	931097216	501c(3)	$37,880	CF CARE CENTER
Lee Memorial Health System Foundation Inc (LMHS
16451 HealthPark Commons	Ft Myers	FL	33908	650645343	501c(3)	$37,000	CF CARE CENTER
Lehigh Valley Hospital
2545 Schoenersville Rd	Bethlehem	PA	18017	231689692	501c(3)	$69,298	CF CARE CENTER
Loma Linda University
11175 E Campus Street	Loma Linda	CA	92354	953522679	501c(3)	$68,410	CF CARE CENTER
Long Island Jewish Medical Center
972 Brushhollow Road	Westbury	NY	11590	112241326	501c(3)	$211,760	CF CARE CENTER	3333 BURNET AVENUE
Louisiana State University Health Sciences Center
642 CSRB 533 Bolivar	New Orleans	LA	70112	726087770	501c(3)	$114,540	CF CARE CENTER
Loyola University of Chicago
2160 S First Avenue	Maywood	IL	60153	361408475	501c(3)	$28,660	CF CARE CENTER
Maine Medical Center
22 Bramhall Street	Portland	ME	04102	010238552	501c(3)	$151,431	CF CARE CENTER	RESEARCH AND SPONSORED PROGRAMS
Marshfield Clinic Research Foundation
1000 North Oak Avenue	Marshfield	WI	54449	390452970	501c(3)	$83,744	CF CARE CENTER
Mary Bridge Children's Foundation
311 South L St Mailstop	Tacoma	WA	98405	943030039	501c(3)	$59,090	CF CARE CENTER
Mayo Clinic Rochester
200 First Street SW	Rochester	MN	55905	416011702	501c(3)	$95,860	CF CARE CENTER
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$375,000	RESEARCH
Memorial Medical Center Foundation
2801 Atlantic Ave	Long Beach	CA	90801	956105984	501c(3)	$163,120	CF CARE CENTER
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$500,000	RESEARCH CENTER
Michigan State University
301 Admin Bldg	East Lansing	MI	48824	386005984	501c(3)	$93,657	CF CARE CENTER
Mission Healthcare Foundation Inc
980 Hendersonville Rd	Asheville	NC	28803	561881331	501c(3)	$24,350	CF CARE CENTER
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501c(3)	$171,730	CF CARE CENTER
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$63,100	RESEARCH STUDY	PLUMMER 5
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$61,250	TRAINING
Children's Hospital Medical Center (Cincinnati Chi
3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$197,210	CF CARE CENTER
Children's Hospital Medical Center (Cincinnati Chi
3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$54,000	PILOT STUDY
Children's Hospital Medical Center (Cincinnati Chi
3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$470,000	RESEARCH CENTER
Children's Hospital Medical Center (Cincinnati Chi
3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$128,550	RESEARCH STUDY
Children's Hospital Medical Center (Cincinnati Chi
3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$61,250	TRAINING
Orlando Health Foundation
3160 Southgate Com Blvd	Orlando	FL	32806	592244943	501c(3)	$80,200	CF CARE CENTER
OSF Saint Francis Medical Center
530 NE Glen Oak Avenue	Peoria	IL	61637	370662569	501c(3)	$100,860	CF CARE CENTER	SUITE 102
The Ohio State University
1960 Kenny Road	Columbus	OH	43210	316025986	IRC 115	$54,000	PILOT STUDY
Phoenix Children's Hospital
1300 North 12th Street	Phoenix	AZ	85006	860422559	501c(3)	$301,011	CF CARE CENTER
Providence Health & Services Washington
3200 Providence Drive PO Box 196	Anchorage	AK	99519	920016429	501c(3)	$66,153	CF CARE CENTER	PO BOX 19636
Providence Physician Service
101 W 8th Ave	Spokane	WA	99204	510216586	C CORP	$165,930	CF CARE CENTER
Rady Children's Hospital Foundation - San Diego
3020 Childrens Way	San Diego	CA	92123	330170626	501c(3)	$110,773	CF CARE CENTER
The Ohio State University
1960 Kenny Road	Columbus	OH	43210	316025986	IRC 115	$208,000	RESEARCH	310 JESSE HALL
Renown Health Foundation
1155 Mill St Z-5	Reno	NV	89502	942872749	501c(3)	$41,170	CF CARE CENTER
The Ohio State University
1960 Kenny Road	Columbus	OH	43210	316025986	IRC 115	$191,527	RESEARCH STUDY
Rush University Medical Center St Luke's Medica
1725 West Harrison	Chicago	IL	60612	362174823	501c(3)	$167,552	CF CARE CENTER
The Research Institute at Nationwide Children's Ho
700 Childrens Drive	Columbus	OH	43260	316056230	501c(3)	$32,400	ADULT CARE
Saint Barnabas Medical Center
Peds Pulmonary Div	Livingston	NJ	07039	221494440	501c(3)	$46,810	CF CARE CENTER
Saint Joseph Regional Medical Center
611 East Cedar Street	Mishawaka	IN	46545	351568821	501c(3)	$47,610	CF CARE CENTER
Saint Joseph's Hospital and Medical Center
703 Main Street	Paterson	NJ	07503	221487602	501c(3)	$40,240	CF CARE CENTER
Sanford Children's Specialty Clinic
1305 W 18th Street	Sioux Falls	SD	57117	460447693	501c(3)	$121,480	CF CARE CENTER
Sanford Medical Center Fargo
801 North Broadway	Fargo	ND	58122	450226909	501c(3)	$29,960	CF CARE CENTER
Santa Barbara Cottage Hospital
2405 De La Vina St	Santa Barbara	CA	93105	951644629	501c(3)	$35,890	CF CARE CENTER
Seattle Children's Hospital Foundation
6901 Sand Point Way NE	Seattle	WA	98105	910564748	501c(3)	$211,490	CF CARE CENTER
South Broward Hospital District
Cystic Fibrosis Clinic	Hollywood	FL	33321	596014973	501c(3)	$187,380	CF CARE CENTER
Spectrum Health Foundation
100 Michigan St NE	Grand Rapids	MI	49503	382752328	501c(3)	$327,322	CF CARE CENTER
St Alexius Medical Center
PO Box 5510	Bismarck	ND	58506	450226711	501c(3)	$66,570	CF CARE CENTER	MAIL STOP 6591
St Louis University
3500 Lindell Blvd	St Louis	MO	63103	430654872	501c(3)	$231,045	CF CARE CENTER
St Luke's Regional Medical Center
100 East Idaho Suite 200	Boise	ID	83712	820161600	501c(3)	$144,330	CF CARE CENTER	SUITE 200
St Vincent Hospital of the Hospital Sisters of th
835 S VanBuren St	Green Bay	WI	54301	390817529	501c(3)	$51,600	CF CARE CENTER
SUNY Upstate Medical University College of Medicin
P O Box 9	Albany	NY	12201	141368361	501c(3)	$478,752	CF CARE CENTER
Sutter Medical Center Sacramento
5609 J Street	Sacramento	CA	95819	941156621	501c(3)	$62,550	CF CARE CENTER
Texas Tech University Health Sciences Center
3601 4th Street	Lubbock	TX	79430	752668014	IRC 115	$39,690	CF CARE CENTER
The Research Institute at Nationwide Children's Ho
700 Childrens Drive	Columbus	OH	43260	316056230	501c(3)	$283,720	CF CARE CENTER
The Research Institute at Nationwide Children's Ho
700 Childrens Drive	Columbus	OH	43260	316056230	501c(3)	$54,000	PILOT STUDY
The Research Institute at Nationwide Children's Ho
700 Childrens Drive	Columbus	OH	43260	316056230	501c(3)	$200,000	RESEARCH CENTER
The Hitchcock Foundation
One Medical Center Drive	Lebanon	NH	03756	020222139	501c(3)	$199,985	CF CARE CENTER
The Research Institute at Nationwide Children's Ho
700 Childrens Drive	Columbus	OH	43260	316056230	501c(3)	$68,750	TRAINING
Cleveland Clinic Foundation
9500 Euclid Ave	Cleveland	OH	44195	340714585	501c(3)	$28,500	CF CARE CENTER
Cleveland Clinic Foundation
9500 Euclid Ave	Cleveland	OH	44195	340714585	501c(3)	$104,898	RESEARCH
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	44106	341018992	501c(3)	$32,400	ADULT CARE
The Regents of the University of California Los A
10920 Wilshire Blvd	Los Angeles	CA	90024	946006143	501c(3)	$34,770	CF CARE CENTER
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	44106	341018992	501c(3)	$108,000	PILOT STUDY
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	44106	341018992	501c(3)	$448,348	RESEARCH
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	44106	341018992	501c(3)	$923,133	RESEARCH CENTER
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	44106	341018992	501c(3)	$73,550	RESEARCH STUDY
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	44106	341018992	501c(3)	$86,800	TRAINING
The Tampa General Hospital Foundation
PO Box 1289	Tampa	FL	33601	237354477	501c(3)	$129,510	CF CARE CENTER	1601 NW 12TH AVENUE
University Hospitals of Cleveland Rainbow Babies
2074 Abingdon Road	Cleveland	OH	44106	341567805	501c(3)	$80,935	ADULT CARE	32-2210
University Hospitals of Cleveland Rainbow Babies
2074 Abingdon Road	Cleveland	OH	44106	341567805	501c(3)	$218,150	CF CARE CENTER
The University of Chicago
5801 S Ellis Avenue	Chicago	IL	60637	362177139	501c(3)	$239,338	CF CARE CENTER
Vanderbilt University Medical Center
1161 21st Avenue South	Nashville	TN	37232	352528741	501c(3)	$258,170	CF CARE CENTER
Vanderbilt University Medical Center
1161 21st Avenue South	Nashville	TN	37232	352528741	501c(3)	$130,000	RESEARCH
Toledo Children's Hospital
2142 N Cove Blvd	Toledo	OH	43606	344428256	501c(3)	$196,925	CF CARE CENTER
Trustees of Indiana University
PO Box 66057	Bloomington	IN	46266	356001673	501c(3)	$464,766	CF CARE CENTER
Trustees of Indiana University
PO Box 66057	Bloomington	IN	46266	356001673	501c(3)	$99,499	QUALITY IMPROVEMENT
Tufts Medical Center
800 Washington St	Boston	MA	02111	043400617	501c(3)	$23,010	CF CARE CENTER
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501c(3)	$317,847	CF CARE CENTER	SUITE 305
Trustees of Indiana University
PO Box 66057	Bloomington	IN	46266	356001673	501c(3)	$188,750	TRAINING
University of Arkansas for Medical Sciences
4301 West Markham St	Little Rock	AR	72205	716046242	IRC 115	$106,400	CF CARE CENTER
University of Cincinnati Physicians Company
231 Albert Sabin Way	Cincinnati	OH	45267	311405915	IRC 115	$136,956	CF CARE CENTER
Northwestern University
750 N Lake Shore Drive	Chicago	IL	60611	362167817	501c(3)	$50,515	ADULT CARE
Northwestern University
750 N Lake Shore Drive	Chicago	IL	60611	362167817	501c(3)	$181,078	CF CARE CENTER
Northwestern University
750 N Lake Shore Drive	Chicago	IL	60611	362167817	501c(3)	$107,174	RESEARCH
University of Kentucky Research Foundation
740 South Limestone	Lexington	KY	40536	616033693	501c(3)	$195,660	CF CARE CENTER
The Regents of the University of Michigan
3003 South State St	Ann Arbor	MI	48109	386006309	501c(3)	$564,296	CF CARE CENTER
University of Massachusetts Medical Center
55 Lake Avenue	Worcester	MA	10655	043167352	IRC 115	$172,090	CF CARE CENTER
The Regents of the University of Michigan
3003 South State St	Ann Arbor	MI	48109	386006309	501c(3)	$32,400	QUALITY IMPROVEMENT
University of Mississippi Medical Center
2500 North State Street	Jackson	MS	39216	646008520	501c(3)	$122,400	CF CARE CENTER
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501c(3)	$39,492	ADULT CARE
University of New Mexico Health Sciences Center
Health Sci Svc Bldg	Albuquerque	NM	87131	856000642	IRC 115	$125,720	CF CARE CENTER
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501c(3)	$397,805	CF CARE CENTER
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	IRC 115	$18,429	ADULT CARE
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	IRC 115	$282,207	CF CARE CENTER	OFFICE OF SPONSORED PROGRAMS
University of South Carolina Research Foundation
901 Sumter Street	Columbia	SC	29208	570967350	501c(3)	$68,150	CF CARE CENTER
University of South Florida
17 Davis Boulevard	Tampa	FL	33606	593102112	IRC 115	$42,310	CF CARE CENTER
University of Southern California
1540 Alcazar Street	Los Angeles	CA	90033	951642394	501c(3)	$231,938	CF CARE CENTER
University of Tennessee
62 S Dunlap	Memphis	TN	38163	626001636	IRC 115	$136,930	CF CARE CENTER	OFFICE OF SPONSORED RESEARCH
University of Tennessee Medical Center
1940 Alcoa Hwy	Knoxville	TN	37920	311626179	501c(3)	$151,150	CF CARE CENTER
University of Texas Health Center at Tyler
11937 US Hwy 271	Tyler	TX	75708	756001354	IRC 115	$170,801	CF CARE CENTER
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	IRC 115	$26,584	QUALITY IMPROVEMENT
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	IRC 115	$66,250	TRAINING
University of Vermont Medical Center IncFletche
PO Box 1870	Burlington	VT	05402	030219309	501c(3)	$161,674	CF CARE CENTER
The Regents of the University of Minnesota
200 Oak St SE	Minneapolis	MN	55455	416007513	IRC 115	$180,224	ADULT CARE	740 SOUTH LIMESTONE
University Psychiatric Practice Inc (SUNY Buffal
462 Grider St	Buffalo	NY	14215	161426208	501c(3)	$49,368	CF CARE CENTER
The Regents of the University of Minnesota
200 Oak St SE	Minneapolis	MN	55455	416007513	IRC 115	$629,270	CF CARE CENTER	MSB 60048
The Regents of the University of Minnesota
200 Oak St SE	Minneapolis	MN	55455	416007513	IRC 115	$108,000	RESEARCH
The Regents of the University of Minnesota
200 Oak St SE	Minneapolis	MN	55455	416007513	IRC 115	$65,450	RESEARCH STUDY	PO BOX 66057
Via Christi Hospital Wichita Inc
707 N Emporia	Wichita	KS	67214	481172106	501c(3)	$106,120	CF CARE CENTER	SUITE 405
The Regents of the University of Minnesota
200 Oak St SE	Minneapolis	MN	55455	416007513	IRC 115	$68,750	TRAINING
University of Iowa
B 5 Jessup Hall	Iowa City	IA	52242	426004813	IRC 115	$43,043	ADULT CARE
University of Iowa
B 5 Jessup Hall	Iowa City	IA	52242	426004813	IRC 115	$212,370	CF CARE CENTER	200 OAK ST SE
Wayne State University
Research Sponsored Pgm	Detroit	MI	48201	386028429	501c(3)	$156,950	CF CARE CENTER
University of Iowa
B 5 Jessup Hall	Iowa City	IA	52242	426004813	IRC 115	$108,000	PILOT STUDY
Western Michigan University School of Medicine
1000 Oakland Drive	Kalamazoo	MI	49008	454135256	501c(3)	$66,360	CF CARE CENTER
University of Iowa
B 5 Jessup Hall	Iowa City	IA	52242	426004813	IRC 115	$323,900	RESEARCH
Breathe Bravely
305 W 29th Street	Sioux Falls	SD	57105	475334258	501c(3)	$9,575	COMMUNITY IMPACT	RUBLOFF 7TH FLOOR
CF Society Inc
4118-14th Avenue	Brooklyn	NY	11219	471569448	501c(3)	$10,000	COMMUNITY IMPACT
Cody Dieruf Benefit Foundation
PO Box 6044	Bozeman	MT	59771	204498266	501c(3)	$8,000	COMMUNITY IMPACT
Kid Logistics
470 Arundel Drive	Brandon	MS	39047	813019912	501c(3)	$8,870	COMMUNITY IMPACT
Meghan's Light Inc
71 Homer St	Feeding Hills	MA	01030	475429549	501c(3)	$10,000	COMMUNITY IMPACT
Miles for Cystic Fibrosis Inc
PO Box 2984	Tucker	GA	30085	264020016	501c(3)	$10,000	COMMUNITY IMPACT	7703 FLOYD CURL DRIVE
Project CF Spouse
170 Davis Court	Hiram	GA	30141	813803502	501c(3)	$9,000	COMMUNITY IMPACT	F428 FITZSIMONS BUILDING 500
Rock CF Foundation
2990 West Grand Boulevard	Detroit	MI	48202	134358351	501c(3)	$10,000	COMMUNITY IMPACT
Cystic Fibrosis Foundation Therapeutics Inc
4550 Montgomery Ave	Bethesda	MD	20814	912059167	501c(3)	$115,564,401	GENERAL SUPPORT
Healthwell Foundation
PO Box 4133	Gaithersburg	MD	20885	200413676	501c(3)	$1,850,000	PATIENT ASSISTANCE	1540 ALCAZAR STREET
University of Iowa
B 5 Jessup Hall	Iowa City	IA	52242	426004813	IRC 115	$600,000	RESEARCH CENTER	PO BOX 1428
University of Iowa
B 5 Jessup Hall	Iowa City	IA	52242	426004813	IRC 115	$63,100	RESEARCH STUDY	9500 GILMAN DRIVE DEPT 0934
Eastern Virginia Medical School
601 Childrens Lane	Norfolk	VA	23507	546055378	501c(3)	$54,000	PILOT STUDY
Washington University
700 Rosedale Ave	St Louis	MO	63112	430653611	501c(3)	$85,796	ADULT CARE
Washington University
700 Rosedale Ave	St Louis	MO	63112	430653611	501c(3)	$327,282	CF CARE CENTER
Washington University
700 Rosedale Ave	St Louis	MO	63112	430653611	501c(3)	$68,750	TRAINING
Northeastern University
360 Huntington Ave	Boston	MA	02115	041679980	501c(3)	$54,000	PILOT STUDY
The Curators of the University of Missouri
310 Jesse Hall	Columbia	MO	65211	436003859	IRC 115	$220,060	CF CARE CENTER
Oregon State University
312 Kerr Admin Bldg	Corvallis	OR	97331	611730890	IRC 115	$50,000	PILOT STUDY
The Curators of the University of Missouri
310 Jesse Hall	Columbia	MO	65211	436003859	IRC 115	$54,000	PILOT STUDY	SUITE M21
The Curators of the University of Missouri
310 Jesse Hall	Columbia	MO	65211	436003859	IRC 115	$108,000	RESEARCH
Rutgers The State University of New Jersey
58 Bevier Road	Piscataway	NJ	08854	462354111	IRC 115	$41,142	ADULT CARE
Rutgers The State University of New Jersey
58 Bevier Road	Piscataway	NJ	08854	462354111	IRC 115	$257,766	CF CARE CENTER
University of Nebraska Medical Center
985100 Nebraska Medical Ctr	Omaha	NE	68198	470049123	501c(3)	$288,440	CF CARE CENTER
University of Nebraska Medical Center
985100 Nebraska Medical Ctr	Omaha	NE	68198	470049123	501c(3)	$53,020	PILOT STUDY
University of Kansas Medical Center Research Insti
3901 Rainbow Blvd	Kansas City	KS	66103	481108830	501c(3)	$46,440	ADULT CARE
University of Kansas Medical Center Research Insti
3901 Rainbow Blvd	Kansas City	KS	66103	481108830	501c(3)	$304,923	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street	Baltimore	MD	21205	520595110	501c(3)	$77,559	ADULT CARE
The Johns Hopkins University
600 N Wolfe Street	Baltimore	MD	21205	520595110	501c(3)	$514,483	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street	Baltimore	MD	21205	520595110	501c(3)	$54,000	PILOT STUDY
Trustees of Boston University
881 Commonwealth Ave	Boston	MA	02115	042103547	501c(3)	$54,000	PILOT STUDY
The Johns Hopkins University
600 N Wolfe Street	Baltimore	MD	21205	520595110	501c(3)	$427,169	RESEARCH
University of Georgia Research Foundation INC De
232 Epps Bridge Rd	Athens	GA	30606	581353149	501c(3)	$54,000	PILOT STUDY
The University of Maryland College Park
3112 Lee Building	College Park	MD	20742	526002033	IRC 115	$54,000	PILOT STUDY
The University of Maryland College Park
3112 Lee Building	College Park	MD	20742	526002033	IRC 115	$216,000	RESEARCH	B 5 JESSUP HALL
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	23284	546001758	IRC 115	$45,736	ADULT CARE	310 JESSE HALL
University of Notre Dame du Lac
731 Grace Hall	Notre Dame	IN	46556	350868188	501c(3)	$53,906	PILOT STUDY
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	23284	546001758	IRC 115	$273,070	CF CARE CENTER	S-151F
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	23284	546001758	IRC 115	$100,000	RESEARCH	1601 NW 12TH AVENUE
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	23284	546001758	IRC 115	$64,968	TRAINING
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	$40,483	ADULT CARE	405 LAKE HALL
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	$349,160	CF CARE CENTER
West Virginia University Research Corporation
PO Box 6001	Morgantown	WV	26506	550665758	501c(3)	$182,567	CF CARE CENTER
West Virginia University Research Corporation
PO Box 6001	Morgantown	WV	26506	550665758	501c(3)	$54,000	PILOT STUDY
Duke University
Box 104025	Durham	NC	27710	560532129	501c(3)	$40,986	ADULT CARE
Duke University
Box 104025	Durham	NC	27710	560532129	501c(3)	$212,563	CF CARE CENTER	PO BOX 6001
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$37,301	ADULT CARE
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$491,780	CF CARE CENTER
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$486,000	PILOT STUDY
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$157,936	QUALITY IMPROVEMENT
Board of Trustees of the University of Illinois
809 S Marshfield Ave	Chicago	IL	60612	376000511	501c(3)	$122,139	RESEARCH
Brigham and Women's Hospital Boston
10 Vining	Boston	MA	02115	042312909	501c(3)	$80,685	RESEARCH
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$681,562	RESEARCH
Children's Hospital & Research Center at Oakland
747 52nd Street	Oakland	CA	94609	940382330	501c(3)	$108,000	RESEARCH	F428 FITZSIMONS BUILDING 500
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$600,000	RESEARCH CENTER	10920 WILSHIRE BLVD SUITE 200
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$65,364	RESEARCH STUDY
Cold Spring Habror Laboratory
1 Bungtown	Cold Spring Harbor	NY	11724	112013303	501c(3)	$107,428	RESEARCH
The University of North Carolina at Chapel Hill
NC State Treasurer	Chapel Hill	NC	27599	566001393	501c(3)	$218,044	TRAINING
Georgia Tech Research Corporation
PO Box 100117	Atlanta	GA	30384	580603146	501c(3)	$105,200	RESEARCH
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501c(3)	$32,400	ADULT CARE
National Disease Research Interchange
8 Penn Ctr 15th Fl	Philadelphia	PA	19103	232213205	501c(3)	$320,000	RESEARCH
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501c(3)	$193,180	CF CARE CENTER	0690 SW BANCROFT STREET
Emory University
1599 Clifton Rd NE	Atlanta	GA	30322	580566256	501c(3)	$78,329	ADULT CARE
Organ Alliance Inc
344 W 23rd St 1A	New York	NY	10011	460806598	501c(3)	$185,020	RESEARCH
Emory University
1599 Clifton Rd NE	Atlanta	GA	30322	580566256	501c(3)	$401,084	CF CARE CENTER
Emory University
1599 Clifton Rd NE	Atlanta	GA	30322	580566256	501c(3)	$53,700	PILOT STUDY
Emory University
1599 Clifton Rd NE	Atlanta	GA	30322	580566256	501c(3)	$556,561	RESEARCH	OFFICE OF SPONSORED RESEARCH
Emory University
1599 Clifton Rd NE	Atlanta	GA	30322	580566256	501c(3)	$462,333	RESEARCH CENTER
Emory University
1599 Clifton Rd NE	Atlanta	GA	30322	580566256	501c(3)	$126,200	RESEARCH STUDY	MSB 60048
Emory University
1599 Clifton Rd NE	Atlanta	GA	30322	580566256	501c(3)	$66,251	TRAINING
University of Miami
1601 NW 12th Avenue	Miami	FL	33136	590624458	501c(3)	$70,483	ADULT CARE
University of Miami
1601 NW 12th Avenue	Miami	FL	33136	590624458	501c(3)	$212,430	CF CARE CENTER
The Scripps Research Institute
10666 N Torrey Pines Rd	LA Jolla	CA	92037	330435954	501c(3)	$108,000	RESEARCH
University of Miami
1601 NW 12th Avenue	Miami	FL	33136	590624458	501c(3)	$108,000	RESEARCH
Nemours Children's Health System
10140 Ctn Parkway N	Jacksonville	FL	32256	590634433	501c(3)	$340,660	CF CARE CENTER
University of Alabama in Huntsville
301 Sparkman Dr SW	Huntsville	AL	35899	630520830	IRC 115	$125,000	RESEARCH
Nicklaus Children's Hospital
3100 SW 60 Court	Miami	FL	33155	590638499	501c(3)	$78,070	CF CARE CENTER	ATTN DEBORAH ELAM
University of Florida
1600 SW Archer Rd	Gainesville	FL	32610	596002052	IRC 115	$82,617	ADULT CARE
University of Florida
1600 SW Archer Rd	Gainesville	FL	32610	596002052	IRC 115	$372,833	CF CARE CENTER
University of Florida
1600 SW Archer Rd	Gainesville	FL	32610	596002052	IRC 115	$35,029	QUALITY IMPROVEMENT
University of South Alabama
Admin Bldg 362	Mobile	AL	36688	630477348	501c(3)	$108,000	RESEARCH
University of Louisville Research Foundation Inc
Office of Grants Mgt	Louisville	KY	40292	611029626	501c(3)	$163,590	CF CARE CENTER
University of Louisville Research Foundation Inc
Office of Grants Mgt	Louisville	KY	40292	611029626	501c(3)	$53,609	PILOT STUDY
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	35294	636005396	501c(3)	$431,239	CF CARE CENTER
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	35294	636005396	501c(3)	$216,000	PILOT STUDY
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	35294	636005396	501c(3)	$448,480	RESEARCH	310 JESSE HALL
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	35294	636005396	501c(3)	$525,000	RESEARCH CENTER	PO BOX 414876
University of Oklahoma Health Sciences Center
PO Box 26901	Oklahoma City	OK	73190	736017987	IRC 115	$58,906	ADULT CARE
University of Oklahoma Health Sciences Center
PO Box 26901	Oklahoma City	OK	73190	736017987	IRC 115	$289,680	CF CARE CENTER
University of Texas Health Science Center at San A
7703 Floyd Curl Drive Mail Code 78	San Antonio	TX	78229	741586031	IRC 115	$79,454	ADULT CARE
University of Texas Health Science Center at San A
7703 Floyd Curl Drive Mail Code 78	San Antonio	TX	78229	741586031	IRC 115	$195,146	CF CARE CENTER	200 OAK ST SE
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$38,983	ADULT CARE
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$260,920	CF CARE CENTER
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$108,000	PILOT STUDY	OFFICE OF SPONSORED RESEARCH
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$324,000	RESEARCH
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$525,000	RESEARCH CENTER
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$65,450	RESEARCH STUDY
The University of Texas at Austin
P O Box 7726	Austin	TX	78713	746000203	IRC 115	$54,000	PILOT STUDY
California Institute of Technology
1200 E CA Blvd	PASADENA	CA	91125	951643307	501c(3)	$204,450	RESEARCH STUDY
The University of Texas at Austin
P O Box 7726	Austin	TX	78713	746000203	IRC 115	$106,777	RESEARCH
The University of Texas at Austin
P O Box 7726	Austin	TX	78713	746000203	IRC 115	$130,900	RESEARCH STUDY	SPONSORED PROGRAMS ACCOUNTING DEPT
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	75390	756002868	IRC 115	$435,875	CF CARE CENTER	1600 SW ARCHER RD SUITE D2-15
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	75390	756002868	IRC 115	$108,000	RESEARCH	B 5 JESSUP HALL
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	75390	756002868	IRC 115	$54,566	RESEARCH STUDY
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	75390	756002868	IRC 115	$130,000	TRAINING	1601 NW 12TH AVENUE
Regents of the University of Colorado at Denver
F428 Fitzsimons Bldg 500	Aurora	CO	80045	846000555	501c(3)	$45,014	ADULT CARE
Regents of the University of Colorado at Denver
F428 Fitzsimons Bldg 500	Aurora	CO	80045	846000555	501c(3)	$377,230	CF CARE CENTER
Regents of the University of Colorado at Denver
F428 Fitzsimons Bldg 500	Aurora	CO	80045	846000555	501c(3)	$117,274	QUALITY IMPROVEMENT
Regents of the University of Colorado at Denver
F428 Fitzsimons Bldg 500	Aurora	CO	80045	846000555	501c(3)	$255,000	TRAINING
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501c(3)	$32,400	ADULT CARE
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501c(3)	$354,070	CF CARE CENTER
University of Washington
4333 Brooklyn Ave NE	Seattle	WA	98105	916001537	IRC 115	$257,980	CF CARE CENTER
University of Washington
4333 Brooklyn Ave NE	Seattle	WA	98105	916001537	IRC 115	$217,093	PILOT STUDY
University of Washington
4333 Brooklyn Ave NE	Seattle	WA	98105	916001537	IRC 115	$558,226	RESEARCH
University of Washington
4333 Brooklyn Av NE	Seattle	WA	98105	916001537	IRC 115	$600,000	RESEARCH CENTER
University of Washington
4333 Brooklyn Ave NE	Seattle	WA	98105	916001537	IRC 115	$191,650	RESEARCH STUDY
Oregon Health & Science University
0690 SW Bancroft Street	Portland	OR	97239	931176109	501c(3)	$32,400	ADULT CARE	S-151F
Oregon Health & Science University
0690 SW Bancroft Street	Portland	OR	97239	931176109	501c(3)	$390,048	CF CARE CENTER
Oregon Health & Science University
0690 SW Bancroft Street	Portland	OR	97239	931176109	501c(3)	$54,000	PILOT STUDY
Kaiser Permanente Center for Health Research
3800 N Interstate Ave	Portland	OR	97227	941105628	501c(3)	$312,060	CF CARE CENTER
Board of Trustees of the Leland Stanford Junior Un
651 Serra Street	Stanford	CA	94305	941156365	501c(3)	$395,334	CF CARE CENTER
Board of Trustees of the Leland Stanford Junior Un
651 Serra Street	Stanford	CA	94305	941156365	501c(3)	$415,984	RESEARCH
The Regents of the University of California San F
3333 California St	San Francisco	CA	94143	946036493	501c(3)	$363,410	CF CARE CENTER
The Regents of the University of California San F
3333 California St	San Francisco	CA	94143	946036493	501c(3)	$54,000	PILOT STUDY
The Regents of the University of California San F
3333 California St	San Francisco	CA	94143	946036493	501c(3)	$108,000	RESEARCH
The Regents of the University of California San F
3333 California St	San Francisco	CA	94143	946036493	501c(3)	$430,000	RESEARCH CENTER
The Regents of the University of California San F
3333 California St	San Francisco	CA	94143	946036493	501c(3)	$128,550	RESEARCH STUDY
The Regents of the University of California San F
3333 California St	San Francisco	CA	94143	946036493	501c(3)	$391,250	TRAINING
The Regents of the University of California Davis
1200 Dutton Hall	Davis	CA	95616	946036494	501c(3)	$46,440	ADULT CARE
The Regents of the University of California Davis
1200 Dutton Hall	Davis	CA	95616	946036494	501c(3)	$196,175	CF CARE CENTER
Children's Hospital of Orange County
PO Box 5700	Orange	CA	92613	952321786	501c(3)	$32,400	ADULT CARE
Children's Hospital of Orange County
PO Box 5700	Orange	CA	92613	952321786	501c(3)	$127,974	CF CARE CENTER
The Regents of the University of California San D
9500 Gilman Drive	La Jolla	CA	92093	956006144	501c(3)	$52,547	ADULT CARE
The Regents of the University of California San D
9500 Gilman Drive	La Jolla	CA	92093	956006144	501c(3)	$318,580	CF CARE CENTER
The Regents of the University of California San D
9500 Gilman Drive	La Jolla	CA	92093	956006144	501c(3)	$108,000	RESEARCH
Asthma and Allergy Specialists PA
411 Billings Rd	Charlotte	NC	28211	561913043	C CORP	$59,200	CF CARE CENTER
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	521958352	501c(3)	$41,922	ADULT CARE	ATTN DEBORAH ELAM
Boston Children's Health Physicians LLP
40 Sunshine Cottage Rd	Valhalla	NY	10595	133956599	LLP	$156,770	CF CARE CENTER
Boston Children's Health Physicians LLP
40 Sunshine Cottage Rd	Valhalla	NY	10595	133956599	LLP	$54,000	CF CARE CENTER
Central Florida Pulmonary Group
326 North Mills Avenue	Orlando	FL	32803	591760017	C CORP	$99,420	CF CARE CENTER
Central Florida Pulmonary Group
326 North Mills Avenue	Orlando	FL	32803	591760017	C CORP	$49,950	CF CARE CENTER	3333 CALIFORNIA STREET SUITE 315
Children's Specialty Group PLLC
811 Redgate Ave	Norfolk	VA	23507	541871633	LLC	$99,369	CF CARE CENTER
Fairfax Neonatal Associates PC
2730-B Prosperity Avenue	Fairfax	VA	22031	541110106	C CORP	$61,260	CF CARE CENTER
LifeUnit LLC
841 E Fayette St	Syracuse	NY	13210	828741475	LLC	$99,626	RESEARCH	SUITE D3300 MCN
Lutheran Hospital of Indiana
7950 West Jefferson Blvd	FT Wayne	IN	46804	351963748	C CORP	$55,950	CF CARE CENTER
North Suburban Pulmonary Research and Education
8780 W Gold Suite 102	Niles	IL	60714	364393617	C CORP	$43,030	CF CARE CENTER	3333 BURNET AVENUE
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	West Palm Beach	FL	33407	752932830	C CORP	$62,330	CF CARE CENTER
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	West Palm Beach	FL	33407	752932830	C CORP	$39,960	CF CARE CENTER
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	West Palm Beach	FL	33407	752932830	C CORP	$108,000	CF CARE CENTER

Field	Value	IRS element (for citing)
Total501c3 Org	204	Total501c3OrgCnt
Total Other Org	9	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	fellowships	GrantTypeTxt
Recipient	8	RecipientCnt
Cash Grant	$48,527	CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.

SCHEDULE I, PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTION. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY.

SCHEDULE I, PART III

FELLOWSHIPS ARE AWARDED TO INVESTIGATORS CONDUCTING RESEARCH RELATED TO GRANTS REPORTED IN PART II. SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. PRIOR TO MAKING FELLOWSHIP PAYMENTS, SUPPORTING DOCUMENTATION OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE.

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (true)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (true)	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
PRESTON CAMPBELL MD
PRESIDENT & CEO	$369,858	$186,037	$266,400	$131,212	$169,507	$79,561	$131,074	$51,107	$25,026	$0	$961,865	$447,917	$132,835	$65,426
JACK MAHLER MD
CHIEF INVESTMENT OFFICER	$542,149	$0	$650,000	$0	$4,903	$0	$127,312	$0	$25,026	$0	$1,349,390	$0	$0	$0
MARC S GINSKY
EXECUTIVE VP, COO & SECRETARY	$467,890	$0	$174,227	$0	$21,094	$0	$190,903	$0	$35,110	$0	$889,224	$0	$68,247	$0
VERA H TWIGG
EXECUTIVE VP & CFO	$328,670	$0	$178,036	$0	$18,000	$0	$92,640	$0	$35,110	$0	$652,456	$0	$41,058	$0
ROBERT J BEALL PHD
FORMER CEO/CURRENT CONSULTANT	$269,500	$0	$70,350	$34,650	$43,244	$21,299	$0	$0	$0	$0	$383,094	$55,949	$28,879	$14,224
C RICHARD MATTINGLY
FORMER COO	$0	$0	$0	$0	$197,010	$0	$0	$0	$0	$0	$197,010	$0	$72,855	$0
DRUCY S BOROWITZ MD
SENIOR VP, COMMUNITY AFFAIRS	$375,062	$0	$89,579	$0	$5,725	$0	$32,312	$0	$0	$0	$502,678	$0	$0	$0
TIMOTHY A WAIRE JR
CHIEF INFORMATION OFFICER	$275,487	$0	$65,077	$0	$959	$0	$32,312	$0	$32,778	$0	$406,613	$0	$0	$0
GLEN GOLDMARK
SENIOR VP OF HUMAN RESOURCES	$276,817	$0	$71,627	$0	$6,741	$0	$32,312	$0	$22,626	$0	$410,123	$0	$0	$0
ALBERT FARO MD
SR DIRECTOR, CLINICAL AFFAIRS	$296,937	$0	$21,113	$0	$1,540	$0	$27,312	$0	$34,424	$0	$381,326	$0	$0	$0
MARYBETH MCMAHON PHD
CHIEF OF STAFF	$264,894	$0	$64,710	$0	$2,605	$0	$32,312	$0	$20,605	$0	$385,126	$0	$0	$0
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIRS	$335,833	$79,113	$89,144	$21,000	$5,381	$1,268	$26,151	$6,161	$185	$43	$456,694	$107,585	$0	$0
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIRS	$58,183	$329,703	$15,227	$86,284	$951	$5,388	$4,847	$27,465	$5,266	$29,843	$84,474	$478,683	$0	$0

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 4A SEVERANCE PAYMENTS:	A FORMER OFFICER LISTED ON THE FORM 990, PART VII, SECTION A RECEIVED PAYMENTS UNDER A SEVERANCE ARRANGEMENT, AS DESCRIBED IN FURTHER DETAIL IN SCHEDULE J, PART III, FOOTNOTE 9, BELOW.
PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN:	CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
PART I, LINE 7	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
PART II	CYSTIC FIBROSIS FOUNDATION. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $369,858; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $128,875, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $67,175, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $70,350; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS - $8,825, VESTED SERP ACCOUNT (8) - $148,334; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $103,762; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,173, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,253; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $132,835. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $186,037; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $63,476, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $33,086, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $34,650; (B)(III) OTHER REPORTABLE COMPENSATION: AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS - $4,125, VESTED SERP ACCOUNT (8) - $73,060; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $51,107; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $65,426. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $467,890; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $81,980, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $68,247, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $24,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $3,094, SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $136,717, SERP (4) - $26,874; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $24,855, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,655; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $68,247. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $328,670; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $84,478, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $41,058, LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $52,500; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $57,391, SERP (4) - $7,937; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $24,855, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,655; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $41,058. CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I) BASE COMPENSATION: BASE SALARY - $542,149; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $650,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,903; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,312, SERP (4) - $100,000; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $17,174, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,600, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $5,252. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: EXECUTIVE ADVISORY CONSULTING SERVICES FEES - $269,500; (B)(II) BONUS & INCENTIVE COMPENSATION: LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $70,350; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $43,244; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $28,879. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: R. BEALL, PH.D.; (B)(II) BONUS & INCENTIVE COMPENSATION: LONG-TERM INCENTIVE PLAN TREATMENT AWARD (10) $34,650; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $21,299 (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $14,224. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $92,255; SEVERANCE PAY (9) - $104,755; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $72,855. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2017 PLAN YEAR. (3) THIS AMOUNT IS INCLUDED IN COLUMN B OF THIS FORM 990 AND HAS ALREADY BEEN PREVIOUSLY REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS ($18,000 FOR 2017). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2017 (I.E., WITH RESPECT TO THE 2015-2017, 2016-2018 AND THE 2017-2019 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/17, 12/31/18 AND 12/31/19 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2015-2017, 2016-2018 AND THE 2017-2019 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/16 WAS PAID IN 2017, AND IS PROPERLY REPORTED AGAIN (AS COMPENSATION IN COLUMN (B)(II)) ON THIS FORM 990 (EVEN THOUGH AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN
PART II, CONTINUED	2016, 2015 AND 2014 WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR EACH OF THOSE YEARS). (7) THIS PAYMENT IS A DISTRIBUTION FROM THE 457(B) PLAN DESCRIBED IN FOOTNOTE (5) ABOVE. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, BECAUSE CONTRIBUTIONS TO THIS PLAN ARE FULLY VESTED WHEN MADE, CONTRIBUTIONS TO THIS PLAN WERE PREVIOUSLY REPORTED IN THE YEARS CONTRIBUTED, IN COLUMN B(III) AS "OTHER REPORTABLE COMPENSATION". THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (8) THIS AMOUNT BECAME VESTED AND TAXABLE IN 2017 UNDER THE SERP DESCRIBED IN FOOTNOTE (4) ABOVE, UNDER WHICH DR. CAMPBELL RECEIVED CONTRIBUTIONS FROM 2016-2017. AS REQUIRED, A PORTION OF THE CONTRIBUTIONS TO THIS SERP THAT GENERATED THE AMOUNT REPORTED IN COLUMN B(III) OF THIS FORM 990 WERE REPORTED ON PRIOR YEARS' FORM 990S IN COLUMN (C). THOSE PREVIOUSLY REPORTED AMOUNTS ARE REFLECTED IN COLUMN F OF THIS FORM 990. (9) AS PART OF A SEVERANCE AGREEMENT, THE EXECUTIVE RECEIVED THIS AMOUNT, WHICH RELATES TO (1) A PORTION OF THE AMOUNT THAT WOULD HAVE BEEN PAID TO HIM UNDER THE ORGANIZATION'S LONG TERM INCENTIVE COMPENSATION PLAN HAD HE CONTINUED EMPLOYMENT WITH THE ORGANIZATION THROUGH 12/31/16 AND (2) THE LONG TERM INCENTIVE PLAN TREATMENT AWARD (DESCRIBED IN FOOTNOTE 10, BELOW) THAT WOULD HAVE BEEN PAID TO HIM HAD HE CONTINUED EMPLOYMENT WITH THE ORGANIZATION TROUGH 12/31/18. THE LONG TERM INCENTIVE COMPENSATION PLAN AMOUNT RELATED TO A PORTION OF THE THREE-YEAR PERFORMANCE PERIOD (I.E., THE PORTION OF THE 2014-2016 PERFORMANCE PERIOD DURING WHICH THE EXECUTIVE WAS EMPLOYED BY THE ORGANIZATION), AND WAS SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (NOTE THAT AN ESTIMATE OF THE PORTION OF THIS AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE WAS REPORTED IN COLUMN (C) OF THE FORM 990 FOR THE APPLICABLE YEARS. THE PREVIOUSLY REPORTED AMOUNT IS REFLECTED IN COLUMN F OF THIS FORM 990.) THE SEVERANCE AMOUNT WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT AND APPROVED BY THE ORGANIZATION'S COMPENSATION COMMITTEE IN ACCORDANCE WITH THE IRS'S INTERMEDIATE SANCTIONS RULES. (10) THIS IS AN AWARD UNDER A PLAN THAT PAYS A SPECIFIED DOLLAR AMOUNT ONLY IF AND WHEN THE FDA APPROVES CERTAIN PRE-SPECIFIED TYPES OF THERAPIES. IN THE EVENT THE EMPLOYEE TERMINATES EMPLOYMENT PRIOR TO FDA APPROVAL OF THE SPECIFIED THERAPY TYPE AND PAYMENT OF THE AWARD, THE EMPLOYEE WILL FORFEIT HIS OR HER RIGHT TO RECEIVE PAYMENT, UNLESS THE EMPLOYEE IS AN OFFICER AND HIS/HER TERMINATION IS DUE TO RETIREMENT OR DISABILITY. THE PLAN TERMINATES ON DECEMBER 31, 2018.

Schedule M IRS990ScheduleM

Field	Value	IRS element (for citing)
Works Of Art		WorksOfArtGrp
Art Historical Treasures		ArtHistoricalTreasuresGrp
Art Fractional Interest		ArtFractionalInterestGrp
Books And Publications		BooksAndPublicationsGrp
Clothing And Household Goods		ClothingAndHouseholdGoodsGrp

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	63	ContributionCnt
Noncash Contributions Rpt F990	$33,360	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Boats And Planes		BoatsAndPlanesGrp
Intellectual Property		IntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	150	ContributionCnt
Noncash Contributions Rpt F990	$1,076,018	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Securities Closely Held Stock		SecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust Intrsts		SecurPrtnrshpTrustIntrstsGrp
Securities Miscellaneous		SecuritiesMiscellaneousGrp
Qualified Contrib Hist Struct		QualifiedContribHistStructGrp
Qualified Contrib Other		QualifiedContribOtherGrp
Real Estate Residential		RealEstateResidentialGrp
Real Estate Commercial		RealEstateCommercialGrp
Real Estate Other		RealEstateOtherGrp
Collectibles		CollectiblesGrp
Food Inventory		FoodInventoryGrp
Drugs And Medical Supplies		DrugsAndMedicalSuppliesGrp
Taxidermy		TaxidermyGrp
Historical Artifacts		HistoricalArtifactsGrp
Scientific Specimens		ScientificSpecimensGrp
Archaeological Artifacts		ArchaeologicalArtifactsGrp

Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)

Non Cash CheckboxNonCashCheckboxInd	DescDesc	ContributionContributionCnt	Noncash Contributions Rpt F990NoncashContributionsRptF990Amt	Method Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Yes (X)	TANGIBLE AND SERVICE AUCTION ITEMS	23124	$9,193,003	NET CASH RECEIPTS
Yes (X)	MORTGAGE RECEIVABLE	1	$215,000	SALES PRICE

Field	Value	IRS element (for citing)
Form8283 Received	1	Form8283ReceivedCnt
Any Property That Must Be Held	false	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (true)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (true)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	THIRD PARTY SELLER	FormAndLineReferenceDesc
Explanation	SCHEDULE M, PART I, LINE 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 11B THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATIONS ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. DISCLOSURES PROVIDED ARE REPORTED TO THE GOVERNANCE COMMITTEE AND THE BOARD OF TRUSTEES. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2017 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVES TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVES HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVES ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEES COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO CHIEF INVESTMENT OFFICER SENIOR VP, RESEARCH AFFAIRS SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2016, WITH THE EXCEPTION OF THAT FOR THE CEO POSITION WHICH WAS LAST CONDUCTED IN 2015.
PART VI, SECTION C, LINE 19	PUBLIC INSPECTION FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATIONS GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2017. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2017.
FORM 990, PART X, LINE 27	UNRESTRICTED NET ASSETS BOARD DESIGNATED THE FOUNDATIONS UNRESTRICTED NET ASSETS TOTALED $4,181,431,067 AS OF DECEMBER 31, 2017. OF THIS AMOUNT, THE FOUNDATIONS BOARD OF TRUSTEES HAS DESIGNATED $3,300,000,000 TO BE SPENT IN SUPPORT OF THE MISSION OF THE FOUNDATION OVER THE LONG TERM.
FORM 990, PART XI, LINE 9	OTHER CHANGES IN NET ASSETS PROVISION FOR LEASE COMMITMENTS...............................-4,358,356

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	Cystic Fibrosis Patient Assistance Fdn	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	900350985	EIN
Primary Activities	PATIENT ASST	PrimaryActivitiesTxt
Legal Domicile State	DE	LegalDomicileStateCd
Total Income	$0	TotalIncomeAmt
End Of Year Assets	$0	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF	BusinessNameLine1Txt

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION THERAPEUTICS	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	912059167	EIN
Primary Activities	RESEARCH	PrimaryActivitiesTxt
Legal Domicile State	MD	LegalDomicileStateCd
Exempt Code Section	501(C)(3)	ExemptCodeSectionTxt
Public Charity Status	12A	PublicCharityStatusTxt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Controlled Organization	false	ControlledOrganizationInd

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (true)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	false	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	false	DivRelatedOrganizationInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	Yes (true)	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (true)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
b	$115,564,401	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
n	$1,181,050	COST
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
o	$3,700,317	COST