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INTERNATIONAL MYELOMA FOUNDATION: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization
INTERNATIONAL MYELOMA FOUNDATION (EIN 95-4296919)
Tax period
2016-10-01 to 2017-09-30
Filed
2018-05-03
IRS object ID
201811239349301981
Schema version
2016v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-05-03T19:56:24-05:00ReturnTs
Tax Period End2017-09-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN953309779PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Gursey Schneider LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line11888 Century Park East Suite 900AddressLine1Txt
CityLos AngelesCityNm
State AbbreviationCAStateAbbreviationCd
ZIP900671735ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2016-10-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN954296919EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1INTERNATIONAL MYELOMA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlINTEBusinessNameControlTxt
Phone8184877455PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line112650 RIVERSIDE DRIVE No 206AddressLine1Txt
CityNORTH HOLLYWOODCityNm
State AbbreviationCAStateAbbreviationCd
ZIP916073466ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonSUSAN DURIEPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone8184877455PhoneNum
Signature2018-05-03SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonNaz AfsharPreparerPersonNm
PTINP00441843PTIN
Phone3105520960PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address38.104.231.98IPv4AddressTxt
FieldValueIRS element (for citing)
IP2018-05-03IPDt
IP Tm14:15:08IPTm
IP TimezonePDIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdDA39A3EE5E6B4B0D3255BFEF95601890AFD80709AtSubmissionCreationDeviceId
At Submission Filing Device IdEA673CAE559EF0374FCFAF59F4B8E3C23DD0614CAtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2016TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSUSAN DURIEPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line112650 RIVERSIDE DRIVE SUITE 206AddressLine1Txt
CityNORTH HOLLYWOODCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91607ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$16,102,983GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.myeloma.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1990FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionDEDICATED TO IMPROVING THE QUALITY OF LIFE OF MYELOMA PATIENTS WHILE WORKING TOWARD PREVENTION AND A CURE.ActivityOrMissionDesc
Voting Members Governing Body18VotingMembersGoverningBodyCnt
Voting Members Independent17VotingMembersIndependentCnt
Total Employee45TotalEmployeeCnt
Total Volunteers41TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$22,145,699PYContributionsGrantsAmt
CY Contributions Grants$15,589,432CYContributionsGrantsAmt
PY Program Service Revenue$75,138PYProgramServiceRevenueAmt
CY Program Service Revenue$59,198CYProgramServiceRevenueAmt
PY Investment Income$397,815PYInvestmentIncomeAmt
CY Investment Income$347,381CYInvestmentIncomeAmt
PY Other Revenue-$251,561PYOtherRevenueAmt
CY Other Revenue-$306,854CYOtherRevenueAmt
PY Total Revenue$22,367,091PYTotalRevenueAmt
CY Total Revenue$15,689,157CYTotalRevenueAmt
PY Grants And Similar Paid$544,738PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$525,686CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$3,955,862PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$4,561,892CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$984,967CYTotalFundraisingExpenseAmt
PY Other Expenses$11,321,435PYOtherExpensesAmt
CY Other Expenses$10,937,843CYOtherExpensesAmt
PY Total Expenses$15,822,035PYTotalExpensesAmt
CY Total Expenses$16,025,421CYTotalExpensesAmt
PY Revenues Less Expenses$6,545,056PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$336,264CYRevenuesLessExpensesAmt
Total Assets BOY$21,865,280TotalAssetsBOYAmt
Total Assets EOY$19,253,565TotalAssetsEOYAmt
Total Liabilities BOY$13,446,803TotalLiabilitiesBOYAmt
Total Liabilities EOY$11,171,352TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$8,418,477NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,082,213NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionDEDICATED TO IMPROVING THE QUALITY OF LIFE OF MYELOMA PATIENTS WHILE WORKING TOWARD PREVENTION AND A CURE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$6,993,460ExpenseAmt
Grant$525,686GrantAmt
DescRESEARCH - THE FOUNDATION IS THE LEADER IN GLOBALLY COLLABORATIVE MYELOMA RESEARCH. FOUNDATION SUPPORTS LAB-BASED RESEARCH AND HAS AWARDED OVER 135 GRANTS TO TOP JUNIOR AND SENIOR RESEARCH SCIENTISTS SINCE 1995. IN ADDITION, THE FOUNDATION BRINGS TOGETHER THE WORLD'S LEADING EXPERTS IN THE MOST SUCCESSFUL AND UNIQUE WAY THROUGH THE INTERNATIONAL MYELOMA WORKING GROUP, WHICH IS PUBLISHING IN PRESTIGIOUS MEDICAL JOURNALS, CHARTING THE COURSE TO A CURE, MENTORING THE NEXT GENERATION OF INNOVATIVE INVESTIGATORS, AND IMPROVING LIVES THROUGH BETTER CARE. THE BLACK SWAN RESEARCH INITIATIVE IS A MULTINATIONAL CONSORTIUM OF LEADING MYELOMA EXPERTS WHO ARE HARNESSING NEW TECHNOLOGIES AND THE LATEST MYELOMA TREATMENTS TO FIND A PATHWAY TO A CURE. THE BLACK SWAN RESEARCH STRATEGY CAPITALIZES ON THE AVAILABILITY OF POTENT NOVEL THERAPIES AND THE ADVENT OF ULTRA-SENSITIVE TESTS TO MEASURE EXACTLY WHEN AND HOW THOSE THERAPIES ARE WORKING IN PATIENTS. THE BLACK SWAN RESEARCH INITIATIVE IS DEDICATED TO DEVELOPING NEW CURATIVE THERAPIES FOR MYELOMA.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,194,623ExpenseAmt
Revenue$28,096RevenueAmt
DescPatient and Family Seminars: The IMF's Patient and Family Seminars present vital information about new treatments and clinical trials, provide time with myeloma specialists in intimate settings, and allow participants to share their personal experiences and support. Premier myeloma experts volunteer their time to the seminars, to empower patients and their families to make educated treatment choices tailored to their needs. In addition to Patient and Family Seminars, the IMF facilitates Regional Community Workshops, which serve as condensed seminars in smaller cities to expand the reach of IMF programs and up-to-date information on myeloma care, support and treatment to a wider audience at no charge.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$1,816,514ExpenseAmt
DescEducation and Awareness: Although it is the second most common blood cancer, multiple myeloma is still a relatively unknown disease. For many patients and their caregivers, it is at diagnosis when they first heard the word "myeloma". The International Myeloma Foundation (IMF) recognizes the need for comprehensive education programs for both the patient and the physician to ensure that patients are diagnosed correctly and treated effectively. Our library of more than 100 publications for patients, caregivers and healthcare professionals, is available free of charge. Publications are updated annually and available in more than 20 languages. The IMF empowers patients and their caregivers to join healthcare providers as active decision-making partners, leading to the best possible quality of life for each individual myeloma patient. The IMF produces comprehensive but 'user-friendly' information for the entire myeloma community. The IMF's publications library includes an extensive catalog of booklets, tip cards, articles, and teleconferences, blogs, digital media and interviews, all written, created, and produced by the IMF with oversight by its Scientific Advisory Committee. The IMF library's broad scope includes information about myeloma treatment options, clinical trials, and quality of life considerations for patients and physicians.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (9 entries)

ExpenseExpenseAmtDescDescRevenueRevenueAmt
$1,045,878INTERNATIONAL - THE IMF GROWS ITS NETWORK OF HEALTH CARE PROFESSIONALS AROUND THE WORLD. KEY TEAM MEMBERS ORGANIZE PHYSICIAN AS WELL AS PATIENT MEETINGS IN ORDER TO PROVIDE EDUCATION ABOUT THE LATEST DEVELOPMENTS IN THE FIELD OF MULTIPLE MYELOMA.
$823,684Support Groups: Through a global community of assisted support groups, the IMF seeks to ensure that patients and families have local access to support and education. The IMF currently supports over 300 support groups worldwide. The IMF's team of Support Group Directors made over 244 in-person visits to support groups during the fiscal year as well as managed numerous teleconferences with support group leaders and educational calls with the Nurse Leadership Board. The IMF offers unequaled website creation and hosting for local support groups, and provided a unique opportunity for some support group leaders to attend the American Society of Hematology annual meeting. The 17th Annual Support Group Leaders Summit took place with over 100 leaders in attendance. The support groups represented at the Summit serve more than 5,300 support group members, extending the Summit's reach to thousands of myeloma patients and family members. Technology is also emphasized for Support Group Leaders. Through a technology grant, 73 leaders received IPads as well as 28 technology kits (projector, speaker, tripod, cables and carry case) plus 100 flash drives with updated information on myeloma support. The IMF also continued to update its app specifically designed for support group leaders which offer a sample meeting agendas and group surveys, as well as videos, blogs, webcasts, and slide presentations that can be utilized during meetings.$31,102
$633,083NURSE - THE IMF Nurse Leadership Board is a professional partnership representing nurse experts caring for myeloma patients at leading medical centers. FOUNDED IN NOVEMBER 2006, THE NLB HAS PROVEN TO BE INVALUABLE TO THE MYELOMA COMMUNITY AS A PLATFORM THAT BOLSTERS NURSING EDUCATION, CLINICAL CARE EXPERIENCE EXCHANGE, AND PATIENT KNOWLEDGE AND EMPOWERMENT IN AN EFFORT TO OPTOMIZE OUTCOMES FOR PATIENTS WITH MYELOMA. THIS BOARD OF EXPERIENCED MYELOMA NURSES HAS MADE GREAT STRIDES IN IMPROVING THE NURSING CARE AND SELF-CARE OF MYELOMA PATIENTS SINCE ITS INCEPTION.
$212,392CLINICAL MEETINGS - IMF TEAM MEMBERS ORGANIZE CLINICAL MEETINGS, BRINGING TOGETHER THE WORLD'S LEADING MYELOMA EXPERTS, TO FORM A COALITION THAT WILL WORK COLLABORATIVELY ON MYELOMA-RELATED PROJECTS AND AVOID DUPLICATION OF EFFORTS AND DILUTION OF VALUABLE RESOURCES. THESE COALITIONS PROMOTE EXCELLENCE IN CLINICAL PRACTICE, RESEARCH AND EDUCATION AND CME-ACCREDITED MEDICAL EDUCATION PROGRAMS.
$556,308ADVOCACY - The IMF is dedicated to creating a global community that supports the wide-ranging needs of all affected by myeloma. The IMF advocates on behalf of those affected by multiple myeloma for an increase in accessibility of high-quality diagnostics and treatments, for funding of myeloma-related research, and for an end to insurance coverage disparities for treatment. The IMF includes the entire myeloma community in these efforts and continues to expand its commitment to empowering patients, families, and friends to advocate on behalf of patient rights.
$344,538INFOLINE - THE IMF'S TOLL-FREE INFORMATION TELEPHONE LINE PROVIDES LIFE-SAVING AND LIFE-CHANGING MYELOMA TREATMENT AND MANAGEMENT SUPPORT FROM COMPASSIONATE, HIGHLY TRAINED SPECIALISTS. AS NEW TREATMENT OPTIONS ARE GAINING ATTENTION AND USE IN MULTIPLE MYELOMA, ANSWERING QUESTIONS ABOUT MYELOMA, ITS TREATMENT, DRUG SIDE EFFECTS, OPTIONS FOR POSSIBLE CLINICAL TRIALS OTHER HEALTH CONCERNS, AND WHERE TO FIND LOCAL SUPPORT IS MORE IMPORTANT THAN EVER.
$304,974WEBSITE - THE IMF WEBSITE IS A LEADING RESOURCE FOR MYELOMA-RELATED CONTENT AND THE MOST COMPLETE SOURCE OF ANSWERS TO THE MANY QUESTIONS ASKED BY THOSE NEWLY DIAGNOSED. THE IMF OFFERS PATIENTS AND CAREGIVERS MULTI-LINGUAL ACCESS TO ALL CURRENT MYELOMA RESEARCH (IMF-FUNDED RESEARCH AND OTHERWISE), THE LATEST COMMUNITY DEVELOPMENTS, AND LINKAGE TO SUPPORT SERVICES AND ADVOCACY FORUMS. IT ALSO PROVIDES ACCESS TO DR.BRIAN G.M. DURIE'S 10 STEPS TO BETTER CARE(R), A UNIQUE TOOL FOR DIAGNOSTIC AND TREATMENT INFORMATION WHICH IS DESIGNED TO HELP BOTH PATIENTS AND PHYSICIANS BETTER NAVIGATE THE COURSE OF MYELOMA, FROM DIAGNOSIS THROUGH LONG-TERM SURVIVAL.
$358,550MYELOMA TODAY - Myeloma Today is a quarterly newsletter and the go-to resource for the myeloma community to learn about the latest advances in myeloma treatment, research and quality of life issues. It is provided free of charge.
$108,597INFORMATIONAL MAILINGS - THE INFOPACK IS MADE UP OF A SELECTION OF THE IMF'S PUBLICATIONS AND IS DESIGNED TO PROVIDE NEWLY DIAGNOSED PATIENTS AND THEIR FAMILIES WITH A COMPLETE UNDERSTANDING OF THE DISEASE AND CARE. THE INFO PACK CONTAINS INFORMATIVE MATERIALS FREE OF CHARGE IN 20 LANGUAGES.
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$4,388,004TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Revenue$31,102TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$14,392,601TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other SecYes (1)ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign OfficeYes (1)ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document39IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee45EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members18GoverningBodyVotingMembersCnt
Independent Voting Member17IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local ChaptersYes (1)LocalChaptersInd
Policies Reference ChaptersYes (1)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1JENNIFER SCARNEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8184877455PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line112650 RIVERSIDE DRIVE 206AddressLine1Txt
CityNORTH HOLLYWOODCityNm
State AbbreviationCAStateAbbreviationCd
ZIP91607ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
DR BRIAN DURIE
CHAIRMAN1.00Yes (X)$0$0$0
SUSAN DURIE
PRESIDENT/CEO40.00Yes (X)$235,625$0$31,742Yes (X)
BENSON KLEIN
DIRECTOR1.00Yes (X)$0$0$0
DR ROBERT A KYLE
DIRECTOR1.00Yes (X)$0$0$0
DR EDITH MITCHELL
DIRECTOR1.00Yes (X)$0$0$0
CHARLES NEWMAN
DIRECTOR1.00Yes (X)$0$0$0
MATTHEW ROBINSON
DIRECTOR1.00Yes (X)$0$0$0
E MICHAEL D SCOTT
DIRECTOR1.00Yes (X)$0$0$0
LORAINE BOYLE
DIRECTOR1.00Yes (X)$0$0$0
DR VINCENT RAJKUMAR
DIRECTOR1.00Yes (X)$0$0$0
DR MARIO BOCCADORO
DIRECTOR1.00Yes (X)$0$0$0
ANDREW KUZNESKI III
DIRECTOR1.00Yes (X)$0$0$0
DR HEINZ LUDWIG
DIRECTOR1.00Yes (X)$0$0$0
CHRISTINE BATTISTINI
DIRECTOR1.00Yes (X)$0$0$0
ALDO DEL COL
DIRECTOR1.00Yes (X)$0$0$0
YELAK BIRU
DIRECTOR1.00Yes (X)$0$0$0
JASON KATZ
DIRECTOR1.00Yes (X)$0$0$0
GEORGE T HAYUM
DIRECTOR1.00Yes (X)$0$0$0
DIANE MORAN
STRATEGIC PLANNER40.00$221,250$0$15,648Yes (X)
JENNIFER SCARNE
CFO/COO40.00$201,667$0$18,365Yes (X)
LISA PAIK
SENIOR VICE PRESIDENT40.00$164,833$0$20,710Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$823,375TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$86,465TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K9IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other SrcsYes (1)CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/ForeignAddress/AddressLine1TxtCityContractorAddress/ForeignAddress/CityNmCountryContractorAddress/ForeignAddress/CountryCdForeign PostalContractorAddress/ForeignAddress/ForeignPostalCdServicesServicesDescCompensationCompensationAmtAddress Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCd
DAN NAVID
SIRA SILA 20/46 SOI 97HUA HINTH77110INTERNATIONAL GLOBAL STRATEGY$198,000
NIXON PEABODY LLC
LEGAL SERVICES$178,597PO BOX 28012NEW YORKNY10087
DRINKER BIDDLE & REATH LLP
ADVOCACY CONSULTING SERVICES$150,000ONE LOGAN SQUARE STE 2000PHILIDELPHIAPA19103
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
Fundraising$1,271,451FundraisingAmt
All Other Contributions$14,317,981AllOtherContributionsAmt
Total Contributions$15,589,432TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SUPPORT GROUP611710$31,102$31,102
PATIENT & FAMILY SEMINARS611710$28,096$28,096
FieldValueIRS element (for citing)
Total Program Service Revenue$59,198TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$170,097TotalRevenueColumnAmt
Exclusion$170,097ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$177,284SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$0SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$177,284SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$177,284TotalRevenueColumnAmt
Exclusion$177,284ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$106,972FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,271,451ContriRptFundraisingEventAmt
Fundraising Direct Expenses$413,826FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$306,854TotalRevenueColumnAmt
Exclusion-$306,854ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$15,689,157TotalRevenueColumnAmt
Related Or Exempt Func Income$59,198RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$40,527ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$285,686TotalAmt
Program Services$285,686ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$240,000TotalAmt
Program Services$240,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$911,375TotalAmt
Program Services$726,600ProgramServicesAmt
Management And General$81,359ManagementAndGeneralAmt
Fundraising$103,416FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$2,819,647TotalAmt
Program Services$2,247,983ProgramServicesAmt
Management And General$251,713ManagementAndGeneralAmt
Fundraising$319,951FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$569,686TotalAmt
Program Services$454,187ProgramServicesAmt
Management And General$50,856ManagementAndGeneralAmt
Fundraising$64,643FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$261,184TotalAmt
Program Services$208,231ProgramServicesAmt
Management And General$23,316ManagementAndGeneralAmt
Fundraising$29,637FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$160,975TotalAmt
Program Services$152,976ProgramServicesAmt
Management And General$4,422ManagementAndGeneralAmt
Fundraising$3,577FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$48,550TotalAmt
Program Services$42,863ProgramServicesAmt
Management And General$3,181ManagementAndGeneralAmt
Fundraising$2,506FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$2,068,601TotalAmt
Program Services$1,982,087ProgramServicesAmt
Management And General$15,000ManagementAndGeneralAmt
Fundraising$71,514FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$339,141TotalAmt
Program Services$286,990ProgramServicesAmt
Management And General$7,345ManagementAndGeneralAmt
Fundraising$44,806FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$145,529TotalAmt
Program Services$126,665ProgramServicesAmt
Management And General$10,166ManagementAndGeneralAmt
Fundraising$8,698FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$279,226TotalAmt
Program Services$208,432ProgramServicesAmt
Management And General$34,865ManagementAndGeneralAmt
Fundraising$35,929FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,135,844TotalAmt
Program Services$1,100,504ProgramServicesAmt
Management And General$5,666ManagementAndGeneralAmt
Fundraising$29,674FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$2,460,082TotalAmt
Program Services$2,315,091ProgramServicesAmt
Management And General$72,708ManagementAndGeneralAmt
Fundraising$72,283FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$125,940TotalAmt
Program Services$106,413ProgramServicesAmt
Management And General$13,015ManagementAndGeneralAmt
Fundraising$6,512FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$63,882TotalAmt
Program Services$56,889ProgramServicesAmt
Management And General$3,732ManagementAndGeneralAmt
Fundraising$3,261FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmtManagement And GeneralManagementAndGeneralAmt
PRINTING & PUBLICATIONS$3,577,799$3,545,553$32,246
POSTAGE & SHIPPING$205,534$93,572$108,393$3,569
TELEPHONE$166,687$145,572$14,093$7,022
RECRUITMENT$55,455$55,455

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$104,598TotalAmt
Program Services$66,307ProgramServicesAmt
Management And General$4,463ManagementAndGeneralAmt
Fundraising$33,828FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$16,025,421TotalAmt
Program Services$14,392,601ProgramServicesAmt
Management And General$647,853ManagementAndGeneralAmt
Fundraising$984,967FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$813,513BOYAmt
EOY$1,324,797EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,712,551BOYAmt
EOY$790,201EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$11,773,560BOYAmt
EOY$10,184,182EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$765,178BOYAmt
EOY$894,936EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$1,275,219LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$396,443LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$537,245BOYAmt
EOY$878,776EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$6,183,489BOYAmt
EOY$5,079,916EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$79,744BOYAmt
EOY$100,757EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$21,865,280BOYAmt
EOY$19,253,565EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$806,174BOYAmt
EOY$1,731,656EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$12,634,601BOYAmt
EOY$9,434,342EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$6,028BOYAmt
EOY$5,354EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$13,446,803BOYAmt
EOY$11,171,352EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,827,417BOYAmt
EOY$7,929,306EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,591,060BOYAmt
EOY$152,907EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$8,418,477BOYAmt
EOY$8,082,213EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$21,865,280BOYAmt
EOY$19,253,565EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$336,264ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$8,680,230CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$13,731,918CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$12,769,438CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11,394,264CurrentTaxYearMinus1YearAmt
Current Tax Year$9,690,465CurrentTaxYearAmt
Total$56,266,315TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$8,680,230CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$13,731,918CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$12,769,438CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11,394,264CurrentTaxYearMinus1YearAmt
Current Tax Year$9,690,465CurrentTaxYearAmt
Total$56,266,315TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$32,396,705SubstantialContributorsTotAmt
Public Support Total170$23,869,610PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$8,670CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$27,046CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$128,518CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$197,754CurrentTaxYearMinus1YearAmt
Current Tax Year$170,097CurrentTaxYearAmt
Total$532,085TotalAmt
FieldValueIRS element (for citing)
Total Support$56,798,400TotalSupportAmt
Gross Receipts Rltd Activities$380,585GrossReceiptsRltdActivitiesAmt
Public Support CY1700.42030PublicSupportCY170Pct
Public Support PY1700.40270PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule A, Part VI, List of Unusual Grants:FormAndLineReferenceDesc
ExplanationDescription: BLACK SWAN RESEARCH INITIATIVE - SPECIALIZED RESEARCH PROJECT Date: 09/30/17 Amount: 4695000. Description: SPECIALIZED RESEARCH - NON-INTERVENTIONAL STUDY Date: 09/30/17 Amount: 10000. Description: SPECIALIZED RESEARCH - CLINICAL INVESTIGATOR STUDY Date: 09/30/17 Amount: 32000. Description: SPECIALIZED RESEARCH - OUTCOMES RESEARCH Date: 09/30/17 Amount: 428238. Description: MASTER CLASS EDUCATION Date: 09/30/17 Amount: 80000. Description: CLINICAL TRIAL ACCRUALS Date: 09/30/17 Amount: 201504. Description: GLOBAL OUTPATIENT EDUCATION Date: 09/30/17 Amount: 311550. Description: NURSE LEADERSHIP BOARD MEETING Date: 09/30/17 Amount: 86995. Description: LEGACY TRIBUTE AWARD Date: 09/30/17 Amount: 50000.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$39,381FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$162,750FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$202,131FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$14,838,024FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$15,040,155FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$902,008FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$225,502FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$643,737CurrentYearMinus3Amt
Current Year Minus2$749,357CurrentYearMinus2Amt
Current Year Minus1$902,384CurrentYearMinus1Amt
Current Year$902,008CurrentYearAmt
Total$3,197,486TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$4,796,229LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$345,008CurrentYearMinus3Amt
Current Year Minus2$288,736CurrentYearMinus2Amt
Current Year Minus1$231,437CurrentYearMinus1Amt
Current Year$202,131CurrentYearAmt
Total$1,067,312TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$160,934CurrentYearMinus3Amt
Current Year Minus2$187,339CurrentYearMinus2Amt
Current Year Minus1$225,596CurrentYearMinus1Amt
Current Year$225,502CurrentYearAmt
Total$799,371TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,199,057GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$134,941CurrentYearMinus3Amt
Current Year Minus2$137,253CurrentYearMinus2Amt
Current Year Minus1$78,841CurrentYearMinus1Amt
Current Year$39,381CurrentYearAmt
Total$390,416TotalAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,275,219OtherCostOrOtherBasisAmt
Depreciation$396,443DepreciationAmt
Book Value$878,776BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$878,776TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (4 entries)

DescDescBook ValueBookValueAmtMethod ValuationMethodValuationCd
SMITH BARNEY$8,261C
EQUITIES - FRB 1998 LT$2,714,785F
MUTUAL FUND - FRB 1998 LT$587,497F
MUTUAL FUND - MS SMITH BARNEY INV. 12-562$1,769,373F
FieldValueIRS element (for citing)
Total Book Value Securities$5,079,916TotalBookValueSecuritiesAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescANNUITY PYMT LIABILITYDesc
Amt$5,354Amt
FieldValueIRS element (for citing)
Total Liability$5,354TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$15,688,858TotalRevEtcAuditedFinclStmtAmt
Revenue Not Reported$0RevenueNotReportedAmt
Revenue Subtotal$15,688,858RevenueSubtotalAmt
Other Revenues Not Included$299OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$299RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$15,689,157TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$16,025,122TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$16,025,122ExpensesSubtotalAmt
Other Expenses Not Included$299OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$299ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$16,025,421TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part X, Line 2:Management has analyzed the tax positions taken by the entity and has concluded that as of September 30, 2017, there were no uncertain tax positions taken or expected to be taken. Accordingly, no interest or penalties related to uncertain tax positions were accrued in the accompanying financial statements. The entity is subject to audits by taxing jurisdictions, however, no audits for any tax periods are currently in progress. Management believes that the entity is no longer subject to income tax examinations for years ended on or prior to September 30, 2012 under Federal and California tax Jurisdictions.
Part XI, Line 4b - Other Adjustments:GRANT REFUND
Part XII, Line 4b - Other Adjustments:GRANT REFUND

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPE11PROGRAM SERVICESAWARDED RESEARCH GRANTS, CONDUCTED A RESEARCH PROJECT, PATIENT & FAMILY SEMINARS, PATIENT AND PHYSICIAN REGIONAL COMMUNITY WORKSHOPS, AND AN AWARDS CEREMONY.$2,994,094
EAST ASIA AND THE PACIFIC11PROGRAM SERVICESAWARDED RESEARCH GRANTS, CONDUCTED A RESEARCH PROJECT, PATIENT & FAMILY SEMINARS, PATIENT AND PHYSICIAN REGIONAL COMMUNITY WORKSHOPS.$1,011,658
Central America and the Caribbean - Antigua & Barbuda, Aruba, Bahamas,00PROGRAM SERVICES$5,100
North America00PROGRAM SERVICES$13,242
FieldValueIRS element (for citing)
Subtotal Offices2SubtotalOfficesCnt
Subtotal Employees2SubtotalEmployeesCnt
Continutation Total Office0ContinutationTotalOfficeCnt
Continutation Total Employee0ContinutationTotalEmployeeCnt
Total Office2TotalOfficeCnt
Total Employee2TotalEmployeeCnt
Subtotal Spent$4,024,094SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$4,024,094TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (7 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmt
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumDeciphering the role of eRNAs in the pathogenesis of MM$53,333
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumTargeting residual, dormant cancer cells in the M: a new approach$53,333
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumTARGETING THE INHIBITORY PATHWAYS IN THE BONE MARROW MIRCOENVIRONMENT OF MULTIPLE MYELOMA$16,667
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumPROTEASOME DEUBIQUITINASE INHIBITORS AS A NEW TREATMENT FOR MULTIPLE MYELOMA$16,667
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumTargeting of BMI-1 as novel treatment option in MM: Examination of PTC-028 as putative anti-myeloma drug in vitro & in vivo$33,333
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumExploiting ID01-GCN2-p62 axis in MM micoenvironment to trigger myeloid derive suppressors cells in MM$33,333
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumOpti & valid of an automated capillary immunoelectrophoresis tech to quantity$33,334
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2:FormAndLineReferenceDesc
ExplanationFor research grant funds, reports are provided as part of the required grant compliance process built into the grant agreement.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1GALAEvent1Nm
Gross Receipts Event1$1,378,423GrossReceiptsEvent1Amt
Charitable Contri Event1$1,271,451CharitableContriEvent1Amt
Gross Revenue Event1$106,972GrossRevenueEvent1Amt
Other Direct Expenses Event1$413,826OtherDirectExpensesEvent1Amt
Gross Receipts Total$1,378,423GrossReceiptsTotalAmt
Charitable Contributions Tot$1,271,451CharitableContributionsTotAmt
Gross Revenue Total Events$106,972GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$413,826OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$413,826DirectExpenseSummaryEventsAmt
Net Income Summary-$306,854NetIncomeSummaryAmt
FieldValueIRS element (for citing)
Explanation If NoN/AExplanationIfNoTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records Maintained0GrantRecordsMaintainedInd

Recipient Table RecipientTable (6 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
DANA FARBER CANCER INSTITUTE
450 BROOKLINE AVEBOSTONMA02115042263040IRS SEC 501(C)(3)$82,679Treating myeloma through inducing degradation of BET bromodomain proteins, blood biomarkers for clonal progression in multiple myeloma and investigating the role of Robo1 in migration and homing in multiple myeloma.
UNIVERSITY OF ALABAMA
1720 2ND AVE 5TH AB 1170BIRMINGHAMAL35294636005396IRS SEC 501(C)(3)$33,333THE ROLE OF MYELOMA CELL-DERIVED RUNX2 IN MYELOMA METASTASIS: FOCUS ON BONE MICROENVIROMENT.
UNIVERSITY OF IOWA
108 CALVIN HALLIOWA CITYIA52242426004813IRS SEC 501(C)(3)$33,333NEK2 SIGNALING IN MYELOMA OSTEOLYTIC DISEASE
MAYO CLINIC
200 FIRST ST SWROCHESTERMN55905416011702IRS SEC 501(C)(3)$16,341TARGETING GLUTAMINE ADDICTION IN MM CELLS TO INHIBIT DISEASE PROGRESSION AND ENHANCE MYELOMA THERAPEUTICS
Huntsman Cancer Institute University of Utah
2000 circle of hopesalt lake cityUT84112876000526IRS SEC 501(C)(3)$86,667Generation and validation of a monoclonal antibody against VISTA for the immunomodulatory therapy of MM and Anti-CD229 Chimeric Antigen Receptor T Cells for Treatment of MM.
Indiana University School of Medicine
340 west 10th streetindianapolisIN46202356001673IRS SEC 501(C)(3)$33,333Bone/bone marrow=targeted inhibition of Notch signaling in combination with glucocorticoid therapy as a novel approach to treat MM.
FieldValueIRS element (for citing)
Total501c3 Org6Total501c3OrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Substantiation RequiredYes (1)SubstantiationRequiredInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
SUSAN DURIE
PRESIDENT/CEO$210,625$0$25,000$0$0$0$0$0$0$0$235,625$0$0$0
DIANE MORAN
STRATEGIC PLANNER$201,250$0$20,000$0$0$0$0$0$0$0$221,250$0$0$0
JENNIFER SCARNE
CFO/COO$191,667$0$10,000$0$0$0$0$0$0$0$201,667$0$0$0
LISA PAIK
SENIOR VICE PRESIDENT$162,833$0$2,000$0$0$0$0$0$0$0$164,833$0$0$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part I, Line 7BONUSES PAID SUSAN LAVITT NOVIS $25,000 DIANE MORAN $20,000 LISA PAIK $ 2,000 JENNIFER SCARNE $10,000
FORM 990, PART VII LINE 5CHAIRMAN, DR. BRIAN DURIE, WAS COMPENSATED $184,000 FROM THE DURIE GROUP FOR SERVICES RENDERED TO THE ORGANIZATION.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section A, line 2Susan Novis, President and Dr. Brian Durie, Chairman are husband and wife.
Form 990, Part VI, Section B, line 11bA COPY OF THE FORM 990 IS PROVIDED TO THE FINANCE COMMITTEE OF THE BOARD FOR REVIEW PRIOR TO FILING THE TAX RETURN.
Form 990, Part VI, Section B, line 12cTHIS PROCEDURE IS PERFORMED ANNUALLY AT THE ORGANIZATION'S BOARD OF DIRECTORS RETREAT.
Form 990, Part VI, Section B, line 15FOR KEY EMPLOYEES, A REVIEW OF COMPARABLE COMPENSATION DATA IS REVIEWED BY THE FINANCE COMMITTEE. MEMBERS OF THE FINANCE COMMITTEE APPROVE OF THE COMPENSATION PACKAGE AND WOULD NOT HAVE A CONFLICT OF INTEREST WITH RESPECT TO THE COMPENSATION ARRANGEMENT ISSUE. THE DECISION IS DISCUSSED AND RECORDED IN THE EXECUTIVE COMMITEE AND FINANCE COMMITTEE BOARD OF DIRECTOR MEETING MINUTES.
Form 990, Part VI, Section C, line 19THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS OF THE ORGANIZATION ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE, AND UPON REQUEST. THESE DOCUMENTS HAVE BEEN PROVIDED TO A THIRD PARTY WEBSITE "CHARITY NAVIGATOR: YOUR GUIDE TO INTELLIGENT GIVING."
Form 990, Part IX, line 11gCONSULTING FEES: Program service expenses 1,982,087. Management and general expenses 15,000. Fundraising expenses 71,514. Total expenses 2,068,601.
PART XI, LINE 2CTHE AUDIT OVERSIGHT COMMITTEE HAS NOT CHANGED ITS PROCESS SINCE THE PRIOR YEAR.