STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

CROHNS & COLITIS FOUNDATION INC: Form 990, tax year 2017

View the entire original 990 at ProPublica ↗

Organization
CROHNS & COLITIS FOUNDATION INC (EIN 13-6193105)
Tax period
2017-01-01 to 2017-12-31
Filed
2018-11-05
IRS object ID
201823099349302217
Schema version
2017v2.3
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2018-11-05T14:58:08-06:00ReturnTs
Tax Period End2017-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1GRANT THORNTON LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1757 THIRD AVENUE 3RD FLOORAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP100172013ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2017-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN136193105EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Crohn's & Colitis Foundation IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% RONALD GOLDSMAN VP FINANCEInCareOfNm
Business Name ControlCROHBusinessNameControlTxt
Phone8009322423PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1733 Third Avenue Suite 510AddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10017ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonRONALD GOLDSMANPersonNm
Person TitleVP OF FINANCEPersonTitleTxt
Phone2126843440PhoneNum
Signature2018-11-05SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonScott ThompsettPreparerPersonNm
PTINP00741490PTIN
Phone2125990100PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address209.220.136.124IPv4AddressTxt
FieldValueIRS element (for citing)
Federal Original Submission Id26377520183095000005FederalOriginalSubmissionId
Federal Original Submission Id2018-11-05FederalOriginalSubmissionIdDt
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id0AE51D185F2B8DBE64241C7507ECC047D5915589AtSubmissionCreationDeviceId
At Submission Filing Device Id7D14034AF515942D2ABE7F7E27EA16D2649DB046AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2017TaxYr
Build TS2018-06-14 16:35:46ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerMichael OssoPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1733 Third AvenueAddressLine1Txt
Citynew yorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10017ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$88,800,534GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.crohnscolitisfoundation.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1967FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTo cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.ActivityOrMissionDesc
Voting Members Governing Body27VotingMembersGoverningBodyCnt
Voting Members Independent27VotingMembersIndependentCnt
Total Employee363TotalEmployeeCnt
Total Volunteers5424TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$68,702,957PYContributionsGrantsAmt
CY Contributions Grants$71,431,094CYContributionsGrantsAmt
PY Program Service Revenue$747,505PYProgramServiceRevenueAmt
CY Program Service Revenue$647,385CYProgramServiceRevenueAmt
PY Investment Income$531,740PYInvestmentIncomeAmt
CY Investment Income$2,284,263CYInvestmentIncomeAmt
PY Other Revenue$795,743PYOtherRevenueAmt
CY Other Revenue$1,477,404CYOtherRevenueAmt
PY Total Revenue$70,777,945PYTotalRevenueAmt
CY Total Revenue$75,840,146CYTotalRevenueAmt
PY Grants And Similar Paid$29,281,589PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$29,169,694CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$25,011,149PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$27,163,542CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$264,647PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$480,127CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$5,084,151CYTotalFundraisingExpenseAmt
PY Other Expenses$16,346,816PYOtherExpensesAmt
CY Other Expenses$18,851,041CYOtherExpensesAmt
PY Total Expenses$70,904,201PYTotalExpensesAmt
CY Total Expenses$75,664,404CYTotalExpensesAmt
PY Revenues Less Expenses-$126,256PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$175,742CYRevenuesLessExpensesAmt
Total Assets BOY$40,336,506TotalAssetsBOYAmt
Total Assets EOY$46,776,925TotalAssetsEOYAmt
Total Liabilities BOY$29,800,511TotalLiabilitiesBOYAmt
Total Liabilities EOY$36,200,067TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$10,535,995NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$10,576,858NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionFOR FIVE DECADES, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. THE FOUNDATION HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS RESULTING IN GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD").MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$32,319,169ExpenseAmt
Grant$29,169,694GrantAmt
Revenue$0RevenueAmt
DescSINCE ITS INCEPTION, THE FOUNDATION HAS BEEN AT THE FOREFRONT OF MEDICAL RESEARCH IN CROHN'S DISEASE AND ULCERATIVE COLITIS - COLLECTIVELY KNOWN AS INFLAMMATORY BOWEL DISEASE (IBD). BASIC RESEARCH EXPLORES THE SCIENTIFIC FOUNDATIONS OF THE DISEASES. IT ANSWERS SUCH QUESTIONS AS: WHAT ARE THE UNDERLYING CAUSES OF CROHN'S AND COLITIS? WHICH GENES ARE INVOLVED IN THESE DISEASES? THESE FINDINGS WILL ULTIMATELY LEAD TO THE CURE FOR IBD. CLINICAL RESEARCH HELPS DETERMINE THE MEDICAL AND SURGICAL OPTIONS THAT WORK BEST FOR PATIENTS. - WITH MORE THAN 1,000 GRANTS AWARDED, THE FOUNDATION HAS PLAYED A SIGNIFICANT ROLE IN MANY MAJOR SCIENTIFIC BREAKTHROUGHS IN IBD, FROM GENERATING DATA THAT LEADS TO NEW THERAPIES TO THE DISCOVERY OF THE FIRST GENE FOR CROHN'S. - THE FOUNDATION INVESTS IN HUMAN RESOURCES: IT TAKES 10 years to "build" a full-fledged, senior investigator. to make sure that the most TALENTED RESEARCHERS ENTER AND REMAIN IN THE FIELD OF IBD, THE FOUNDATION PROVIDES RESEARCH TRAINING AWARDS TO DEVELOP THE NEXT GENERATION OF INVESTIGATORS. MANY OF TODAY'S MOST PROMINENT RESEARCHERS RECEIVED TRAINING AWARDS FROM THE FOUNDATION EARLY IN THEIR CAREERS. - THE FOUNDATION SETS THE RESEARCH AGENDA: THE FOUNDATION BRINGS TOGETHER THE FINEST MINDS IN THE INTERNATIONAL SCIENTIFIC COMMUNITY (BOTH BASIC AND CLINICAL) AND DEVELOPS AND IDENTIFIES THE PRIORITIES AND RESOURCES THAT ARE ESSENTIAL TO MOVING RESEARCH FROM THE LABORATORY BENCH TO THE PATIENT'S BEDSIDE. - THE FOUNDATION SUPPORTS INNOVATIVE AND ESSENTIAL RESEARCH IN THE FIELD OF IBD. SINCE ITS INCEPTION IN 1967, THE FOUNDATION HAS INVESTED NEARLY $330 MILLION IN RESEARCH, RESULTING IN $4.2 BILLION IN FOLLOW-UP FUNDING FROM THE NATIONAL INSTITUTES OF HEALTH. - LAUNCHED IN OCTOBER 2017, IBD PLEXUS IS A FIRST-OF-ITS-KIND INFORMATION EXCHANGE PLATFORM HOUSING DATA FROM THOUSANDS OF PATIENTS PARTICIPATING IN FOUR OF OUR RESEARCH INITIATIVES - IBD QORUS, RISK PEDIATRIC, SPARC IBD, AND IBD PARTNERS. THOSE PATIENTS HAVE CONTRIBUTED MILLIONS OF DATA POINTS, WHICH ARE NOW ACCESSIBLE FROM A SINGLE LOCATION. BEFORE IBD PLEXUS, THERE WAS NO DATA STANDARDIZATION ACROSS RESEARCH PROJECTS, AND INFORMATION WAS OFTEN SILOED AND ACCESSIBLE ONLY TO THOSE THAT WERE PART OF THE STUDIES. THE TECHNOLOGY OF IBD PLEXUS ELIMINATES THESE CHALLENGES BY CENTRALIZING DATA AND GIVING RESEARCHERS EXPEDITED ACCESS TO DATA AND BIOLOGICAL SAMPLES (BLOOD, STOOL AND TISSUE). IBD PLEXUS ALLOWS INVESTIGATORS TO more RAPIDLY ACCESS KEY INFORMATION THAT PROMISES TO ACCELERATE THE RESEARCH PROCESS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$29,557,490ExpenseAmt
Grant$0GrantAmt
Revenue$647,385RevenueAmt
DescTHE FOUNDATION PROVIDES INFORMATION AND EDUCATION IN AN EFFORT TO REACH THE MORE THAN AN ESTIMATED 3.1 MILLION IBD PATIENTS AND THEIR FAMILIES THROUGH A VARIETY OF PERIODICALS, BOOKS, AWARENESS CAMPAIGNS, LOCAL CHAPTERS, ITS WEBCASTS, AND THROUGH ITS WEBSITE. THE FOUNDATION ALSO REACHES ITS MANY MEMBERS WITH EXCLUSIVE MAILINGS. THE FOUNDATION ALSO OFFERS PROFESSIONAL EDUCATION ON INFLAMMATORY BOWEL DISEASES, ITS IBD JOURNAL, AND HEALTH PROFESSIONAL WORKSHOPS. THE FOUNDATION SUPPORT SERVICES ARE DELIVERED THROUGH ITS CHAPTERS NATIONWIDE WHICH OFFER MORE THAN 250 SUPPORT GROUPS ANNUALLY, SUMMER CAMPS FOR CHILDREN WITH IBD, AND A RANGE OF EDUCATIONAL AND TRAINING PROGRAMS FOR LOCAL COMMUNITIES. IN 2017, OVER 1,000,000 INDIVIDUALS PARTICIPATED IN OUR PROGRAMS. READ MORE ABOUT THE FOUNDATION'S CHAPTERS ON ITS WEBSITE, WWW.CROHNSCOLITISFOUNDATION.ORGDesc
FieldValueIRS element (for citing)
Total Program Service Expenses$61,876,659TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingYes (true)ProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesYes (true)GamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document368IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee363EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members27GoverningBodyVotingMembersCnt
Independent Voting Member27IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersYes (true)LocalChaptersInd
Policies Reference ChaptersYes (true)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonRONALD GOLDSMAN VP FINANCEPersonNm
Phone2126853440PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1733 THIRD AVENUEAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP100178804ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (43 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
Michael Osso
President/CEO (Non-voting)35.00.0Yes (X)Yes (X)$452,028$0$35,548
Donald Burke
treasurer1.00.0Yes (X)Yes (X)$0$0$0
Paul Salerno
Treasurer (thru 3/2017)1.00.0Yes (X)Yes (X)$0$0$0
Scott Snapper MD
NSAC Chairman1.00.0Yes (X)Yes (X)$0$0$0
Vance Gibbs Esq
Chairman1.00.0Yes (X)Yes (X)$0$0$0
Andrew Stern
Secretary1.00.0Yes (X)Yes (X)$0$0$0
Bishop Walter Scott Thomas
Trustee1.00.0Yes (X)$0$0$0
Christopher Collette
Trustee1.00.0Yes (X)$0$0$0
David levenson
Trustee1.00.0Yes (X)$0$0$0
Eric Stone
Trustee1.00.0Yes (X)$0$0$0
james lewis
Trustee (thru 3/2017)1.00.0Yes (X)$0$0$0
Jennifer O'Neill
Trustee1.00.0Yes (X)$0$0$0
John Crosson
Trustee1.00.0Yes (X)$0$0$0
John Hasenauer
Trustee (thru 3/2017)1.00.0Yes (X)$0$0$0
Maria Oliva-Hemker MD
Trustee1.00.0Yes (X)$0$0$0
Matt Leavitt
Trustee1.00.0Yes (X)$0$0$0
Paula Hilbert
Trustee1.00.0Yes (X)$0$0$0
Shelby Modell
co-founder/trustee1.00.0Yes (X)$0$0$0
Maura Breen
Trustee (thru 3/2017)1.00.0Yes (X)$0$0$0
Brent Polk
Trustee/ NSAC Chair-Elect1.00.0Yes (X)$0$0$0
Donald Kortz
Trustee1.00.0Yes (X)$0$0$0
Mark Murray
Trustee1.00.0Yes (X)$0$0$0
Marcy Beth Nanus
Trustee1.00.0Yes (X)$0$0$0
Joseph Nemmers
Trustee1.00.0Yes (X)$0$0$0
Robert Van Pulley
Trustee1.00.0Yes (X)$0$0$0
Amber Backhaus
TrusTee (as of 3/2017)1.00.0Yes (X)$0$0$0
Noel Brown
TrusTee (as of 3/2017)1.00.0Yes (X)$0$0$0
Rep Ander Crenshaw
TrusTee (as of 3/2017)1.00.0Yes (X)$0$0$0
Alessandro DiNello
TrusTee (as of 3/2017)1.00.0Yes (X)$0$0$0
Alex Funderburg
TrusTee (as of 3/2017)1.00.0Yes (X)$0$0$0
Michele Kissous-Hunt
TrusTee (as of 3/2017)1.00.0Yes (X)$0$0$0
Joel ROsh
TrusTee (as of 3/2017)1.00.0Yes (X)$0$0$0
Robert Territo
cfo/coo35.00.0Yes (X)$260,091$0$13,428
Caren Heller
Chief Scientific Officer35.00.0$342,822$0$14,710Yes (X)
Michael Elkow
EVP, CHAPTER GROWTH & DEVELOP.35.00.0$233,876$0$18,378Yes (X)
Marie Granieri
chief of staff35.00.0$233,365$0$14,089Yes (X)
Sheri Markus-Kennell
Senior VP,Business Development35.00.0$183,507$0$16,128Yes (X)
Allison Coffey
Senior VP, Advancement35.00.0$178,986$0$10,500Yes (X)
Kimberly Frederick-snapper
AREA EXEC. DIR., NEw england35.00.0$185,066$0$10,613Yes (X)
Jennifer Fagerstrom
VP, Chapter Growth & Develop.35.00.0$180,701$0$13,540Yes (X)
Kristin Kaplan
Vice President, Special Events35.00.0$167,364$0$16,625Yes (X)
Robert Bryan
VP, Chapter Growth & Develop.35.00.0$164,129$0$5,500Yes (X)
Craig Comins
Vice President, Team Challenge35.00.0$162,659$0$16,619Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,744,594TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$185,678TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K49IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
Deloitte Consulting LLP
4022 belle driveHERMINTAGETN37076patient d.base impl.$2,598,308
ROBERT MICHAEL EDUCATIONAL INSTITUT
101 LAUREL ROAD SUITE 200VOORHEESNJ080432368EDUCATIONAL SERVICES$1,619,241
Blackbaud
PO Box 930256ATLANTAGA311930256DONOR DATABASE$1,360,220
BLUE WOLF GROUP LLC
11 E 26TH ST 21ST FLNEW YORKNY10010IBD PLEXUS & DESIGN$598,730
CHARITY DYNAMICS LLC
4031 GUADALUPE STAUSTINTX78751MARKETING$563,593
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K20CntrctRcvdGreaterThan100KCnt
Federated Campaigns$1,603,520FederatedCampaignsAmt
Fundraising$29,301,776FundraisingAmt
Government Grants$448,102GovernmentGrantsAmt
All Other Contributions$40,077,696AllOtherContributionsAmt
Noncash Contributions$689,644NoncashContributionsAmt
Total Contributions$71,431,094TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
EDUCATION & CAMP REGISTRATION FEES900099$501,135$501,135
COLLABORATIVE FUNDING AGREEMENTS611430$146,250$146,250
FieldValueIRS element (for citing)
Total Program Service Revenue$647,385TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$183,033TotalRevenueColumnAmt
Exclusion$183,033ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$502,943TotalRevenueColumnAmt
Exclusion$502,943ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$0RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$7,935,757SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$5,834,527SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$2,101,230SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,101,230TotalRevenueColumnAmt
Exclusion$2,101,230ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$6,790,328FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$29,301,776ContriRptFundraisingEventAmt
Fundraising Direct Expenses$7,058,754FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$268,426TotalRevenueColumnAmt
Exclusion-$268,426ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$335,533GamingGrossIncomeAmt
Gaming Direct Expenses$67,107GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$268,426TotalRevenueColumnAmt
Exclusion$268,426ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$0GrossSalesOfInventoryAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmtExclusionExclusionAmt
IBD PLEXUS DATABASE ACCESS FEES900099$658,759$658,759
VEHICLE DONATION PROGRAM900099$13,497$13,497
MISCELLANEOUS INCOME900099$302,205$302,205
FieldValueIRS element (for citing)
Other Revenue Total$974,461OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$75,840,146TotalRevenueColumnAmt
Related Or Exempt Func Income$1,306,144RelatedOrExemptFuncIncomeAmt
Exclusion$3,102,908ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$26,886,018TotalAmt
Program Services$26,886,018ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$2,283,676TotalAmt
Program Services$2,283,676ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,519,880TotalAmt
Program Services$1,032,816ProgramServicesAmt
Management And General$309,213ManagementAndGeneralAmt
Fundraising$177,851FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$19,927,097TotalAmt
Program Services$13,541,214ProgramServicesAmt
Management And General$4,054,081ManagementAndGeneralAmt
Fundraising$2,331,802FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$802,558TotalAmt
Program Services$545,368ProgramServicesAmt
Management And General$163,277ManagementAndGeneralAmt
Fundraising$93,913FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$3,292,040TotalAmt
Program Services$2,237,065ProgramServicesAmt
Management And General$669,751ManagementAndGeneralAmt
Fundraising$385,224FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$1,621,967TotalAmt
Program Services$1,102,188ProgramServicesAmt
Management And General$329,982ManagementAndGeneralAmt
Fundraising$189,797FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$98,550TotalAmt
Program Services$82,027ProgramServicesAmt
Management And General$10,490ManagementAndGeneralAmt
Fundraising$6,033FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$115,897TotalAmt
Program Services$96,466ProgramServicesAmt
Management And General$12,336ManagementAndGeneralAmt
Fundraising$7,095FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$345,374TotalAmt
Management And General$345,374ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$480,127TotalAmt
Fundraising$480,127FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$7,484,643TotalAmt
Program Services$6,916,856ProgramServicesAmt
Management And General$539,155ManagementAndGeneralAmt
Fundraising$28,632FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$759,353TotalAmt
Program Services$471,474ProgramServicesAmt
Management And General$182,760ManagementAndGeneralAmt
Fundraising$105,119FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$777,678TotalAmt
Program Services$484,595ProgramServicesAmt
Management And General$186,064ManagementAndGeneralAmt
Fundraising$107,019FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$1,287,631TotalAmt
Program Services$1,071,745ProgramServicesAmt
Management And General$137,055ManagementAndGeneralAmt
Fundraising$78,831FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$1,787,501TotalAmt
Program Services$1,100,207ProgramServicesAmt
Management And General$436,329ManagementAndGeneralAmt
Fundraising$250,965FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,928,254TotalAmt
Program Services$1,226,237ProgramServicesAmt
Management And General$445,676ManagementAndGeneralAmt
Fundraising$256,341FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$769,843TotalAmt
Program Services$769,843ProgramServicesAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$672,084TotalAmt
Program Services$460,688ProgramServicesAmt
Management And General$134,205ManagementAndGeneralAmt
Fundraising$77,191FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$349,308TotalAmt
Program Services$217,474ProgramServicesAmt
Management And General$83,695ManagementAndGeneralAmt
Fundraising$48,139FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
GRANTS REFUNDED/RESCINDED-$708,300-$708,300
PUBLICATIONS$1,037,364$639,480$252,597$145,287
LIST RENTAL FEES$67,811$42,218$16,248$9,345
MISCELLANEOUS$2,078,050$1,377,304$395,306$305,440

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$75,664,404TotalAmt
Program Services$61,876,659ProgramServicesAmt
Management And General$8,703,594ManagementAndGeneralAmt
Fundraising$5,084,151FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$9,924,371BOYAmt
EOY$14,927,797EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$9,015,454BOYAmt
EOY$8,530,763EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$631,460BOYAmt
EOY$573,074EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$1,242,529BOYAmt
EOY$1,177,935EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$5,961,816LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$4,040,547LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$2,397,651BOYAmt
EOY$1,921,269EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$14,772,899BOYAmt
EOY$17,091,594EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$1,103,852BOYAmt
EOY$1,051,151EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$1,248,290BOYAmt
EOY$1,503,342EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$40,336,506BOYAmt
EOY$46,776,925EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$2,532,276BOYAmt
EOY$2,883,755EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$26,077,074BOYAmt
EOY$30,500,567EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$574,636BOYAmt
EOY$2,193,135EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$616,525BOYAmt
EOY$622,610EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$29,800,511BOYAmt
EOY$36,200,067EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY-$2,273,764BOYAmt
EOY-$150,068EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$12,809,759BOYAmt
EOY$10,726,926EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$10,535,995BOYAmt
EOY$10,576,858EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$40,336,506BOYAmt
EOY$46,776,925EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$175,742ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$10,670NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets-$124,209OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$52,916,365CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$60,902,280CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$65,605,925CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$68,702,957CurrentTaxYearMinus1YearAmt
Current Tax Year$71,431,094CurrentTaxYearAmt
Total$319,558,621TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$52,916,365CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$60,902,280CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$65,605,925CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$68,702,957CurrentTaxYearMinus1YearAmt
Current Tax Year$71,431,094CurrentTaxYearAmt
Total$319,558,621TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$45,116,378SubstantialContributorsTotAmt
Public Support Total170$274,442,243PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$723,526CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$625,821CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$650,124CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$718,756CurrentTaxYearMinus1YearAmt
Current Tax Year$685,976CurrentTaxYearAmt
Total$3,404,203TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$48,092CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$295,805CurrentTaxYearMinus1YearAmt
Current Tax Year$0CurrentTaxYearAmt
Total$343,897TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$7,753,879CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,775,390CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$6,910,304CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,088,687CurrentTaxYearMinus1YearAmt
Current Tax Year$8,100,322CurrentTaxYearAmt
Total$37,628,582TotalAmt
FieldValueIRS element (for citing)
Total Support$360,935,303TotalSupportAmt
Gross Receipts Rltd Activities$2,194,971GrossReceiptsRltdActivitiesAmt
Public Support CY1700.76036PublicSupportCY170Pct
Public Support PY1700.74545PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
Total Grassroots LobbyingTotalGrassrootsLobbyingGrp
Total Direct LobbyingTotalDirectLobbyingGrp
Total Lobbying ExpendTotalLobbyingExpendGrp
Other Exempt Purpose ExpendOtherExemptPurposeExpendGrp
Total Exempt Purpose ExpendTotalExemptPurposeExpendGrp
Lobbying Nontaxable AmountLobbyingNontaxableAmountGrp
Grassroots NontaxableGrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non TxTotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non TxTotLbbyExpendMnsLbbyngNonTxGrp
VolunteersfalseVolunteersInd
Paid Staff Or ManagementfalsePaidStaffOrManagementInd
Media AdvertisementsfalseMediaAdvertisementsInd
Mailings MembersYes (true)MailingsMembersInd
Publications Or BroadcastfalsePublicationsOrBroadcastInd
Grants Other OrganizationsfalseGrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (true)DirectContactLegislatorsInd
Direct Contact Legislators$270,755DirectContactLegislatorsAmt
Rallies DemonstrationsfalseRalliesDemonstrationsInd
Other ActivitiesYes (true)OtherActivitiesInd
Other Activities$74,619OtherActivitiesAmt
Total Lobbying Expenditures$345,374TotalLobbyingExpendituresAmt
Not Described Section501c3falseNotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule C, Part II-B, Line 1(i)FormAndLineReferenceDesc
ExplanationiN 2017, THE CROHN'S & COLITIS FOUNDATION ("THE FOUNDATION") EMPLOYED THE SERVICES of two different professional consultants to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. The first consultant, Health & Medicine Counsel of Washington is a healthcare ADVOCACY GROUP THAT MAY LOBBY ON BEHALF OF HEALTHCARE ORGANIZATIONS; HOWEVER, IT IS NOT PAID TO DIRECTLY UNDERTAKE ANY LOBBYING ACTIVITIES ON BEHALF OF THE FOUNDATION. TOTAL AMOUNT PAID IN 2017 WAS $74,619. THE FOUNDATION HOLDS A "DAY ON THE HILL" EVENT EVERY YEAR, IN WHICH PATIENTS SUFFERING WITH CROHN'S DISEASE VOLUNTEER TO TRAVEL TO WASHINGTON D.C. TO DISCUSS PROPOSED HEALTHCARE BILLS WITH LEGISLATORS. THE "DAY ON THE HILL" EVENT WAS CONDUCTED DURING THE CALENDAR YEAR 2017, FOR WHICH EXPENSES INCURRED WERE APPROXIMATELY $79,447. The second consultant, FAeger Baker Daniels, LLP, is a law firm specializing in U.S. legislation and regulations. The Foundation employed their services in November of 2017. The Foundation engages in state-based advocacy campaigns ensuring the needs of patients are being addressed through legislation that targets the cost of health care and access and ensures access to care and treatment with the ultimate goal of improving the quality of life for our patients. Total payments made in Calendar Year 2017 were $121,416. EXPENDITURES OF $79,447 FOR THE DAY ON THE HILL EVENT HAVE BEEN REPORTED ON SCHEDULE C, PART II-B, 1(G). INCLUDED WITHIN THE $79,447 ARE EXPENSES INCURRED FOR MAILINGS MADE TO MEMBERS, LEGISLATORS OR THE PUBLIC (LINE 1(D)); ACCORDINGLY THE FOUNDATION HAS MARKED BOX 1(D) YES, BUT NOT REPORTED AN EXPENSE ON THAT LINE (TO AVOID DOUBLE-COUNTING).ExplanationTxt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Art Public Exhibition AmountsArtPublicExhibitionAmountsGrp
Held Works ArtHeldWorksArtGrp
CY Minus3 Yr Endwmt FundCYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt FundCYMinus4YrEndwmtFundGrp
LandLandGrp
BuildingsBuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$476,504OtherCostOrOtherBasisAmt
Depreciation$206,700DepreciationAmt
Book Value$269,804BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$2,196,743OtherCostOrOtherBasisAmt
Depreciation$1,696,463DepreciationAmt
Book Value$500,280BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$3,288,569OtherCostOrOtherBasisAmt
Depreciation$2,137,384DepreciationAmt
Book Value$1,151,185BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,921,269TotalBookValueLandBuildingsAmt
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
REINSURANCE CONTRACTS$248,183
DEFERRED RENT$374,427
FieldValueIRS element (for citing)
Total Liability$622,610TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$82,791,440TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$10,670NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$6,950,439DonatedServicesAndUseFcltsAmt
Other Revenue$11,525OtherRevenueAmt
Revenue Not Reported$6,951,294RevenueNotReportedAmt
Revenue Subtotal$75,840,146RevenueSubtotalAmt
Total Revenue Per Form990$75,840,146TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$82,750,577TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$6,950,439DonatedServicesUseFcltsAmt
Other Expenses Included$135,734OtherExpensesIncludedAmt
Expenses Not Reported$7,086,173ExpensesNotReportedAmt
Expenses Subtotal$75,664,404ExpensesSubtotalAmt
Total Expenses Per Form990$75,664,404TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Reconciliation of RevenuePart XI, Line 2d Changes in Charitable Remainder Trusts: $11,525 RECONCILIATION OF EXPENSES PART XII, LINE 2D Uncollectible Pledges: $135,734
Income TaxesPart X Accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement, provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The adoption of this guidance did not have an impact on the Foundation's financial statements as management believes that there are no material uncertain tax positions within its financial statements. IN 2017, MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE FOUNDATION, AND HAS CONCLUDED THAT AS OF DECEMBER 31, 2017, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN. THE FOUNDATION HAS NOT POSTED THE INCOME TAX LIABILITY ON ITS STATEMENT OF ACTIVITIES AS THE AMOUNT IS IMMATERIAL FROM A FINANCIAL STATEMENT PERSPECTIVE.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
Europe (Including Iceland and Greenland)00Grantmakingresearch$1,718,166
East Asia and the Pacific00GrantmakingRESEARCH$243,867
North America00GrantmakingRESEARCH$321,643
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$2,283,676SubtotalSpentAmt
Total Spent$2,283,676TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (31 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtNon Cash AssistanceNonCashAssistanceAmt
East Asia and the PacificBroad Foundation$73,715BANK WIRE$0
East Asia and the PacificBroad Foundation$81,230BANK WIRE$0
East Asia and the PacificBroad Foundation$26,400BANK WIRE$0
East Asia and the PacificBroad Foundation$62,523BANK WIRE$0
North AmericaBroad Foundation$141,166BANK WIRE$0
North AmericaBroad Foundation$32,280BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$25,809BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$40,000BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$118,525BANK WIRE$0
Europe (Including Iceland and Greenland)Senior Research Award$97,913BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$26,961BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$61,600BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$31,823BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$30,463BANK WIRE$0
Europe (Including Iceland and Greenland)Senior Research Award$28,941BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$83,829BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$97,500BANK WIRE$0
Europe (Including Iceland and Greenland)Senior Research Award$208,447BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$41,535BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$63,500BANK WIRE$0
Europe (Including Iceland and Greenland)Senior Research Award$115,530BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$107,910BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$59,950BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$89,999BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$67,056BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$61,837BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$80,841BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$95,702BANK WIRE$0
Europe (Including Iceland and Greenland)Broad Foundation$82,494BANK WIRE$0
North AmericaSenior Research Award$61,324BANK WIRE$0
North AmericaSenior Research Award$86,873BANK WIRE$0
FieldValueIRS element (for citing)
Total501c3 Org32Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Phone SolicitationsYes (X)PhoneSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Solicitation Of Govt GrantsYes (X)SolicitationOfGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

ActivityActivityTxtFundraiser Control Of FundsFundraiserControlOfFundsIndGross ReceiptsGrossReceiptsAmtRetained By ContractorRetainedByContractorAmtNet To OrganizationNetToOrganizationAmt
sanky communication
direct mailfalse$739,773$158,536$581,237
chapman cubine and hussey i
direct mailfalse$3,550,545$322,111$3,228,434
FieldValueIRS element (for citing)
Total Gross Receipts$4,290,318TotalGrossReceiptsAmt
Total Retained By Contractors$480,647TotalRetainedByContractorsAmt
Total Net To Organization$3,809,671TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDCLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd
Licensed StatesWYLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1TAKE STEPSEvent1Nm
Gross Receipts Event1$10,965,796GrossReceiptsEvent1Amt
Charitable Contri Event1$9,551,044CharitableContriEvent1Amt
Gross Revenue Event1$1,414,752GrossRevenueEvent1Amt
Rent Facility Costs Event1$651,699RentFacilityCostsEvent1Amt
Other Direct Expenses Event1$763,053OtherDirectExpensesEvent1Amt
Event2TEAM CHALLENGEEvent2Nm
Gross Receipts Event2$6,407,545GrossReceiptsEvent2Amt
Charitable Contri Event2$5,041,736CharitableContriEvent2Amt
Gross Revenue Event2$1,365,809GrossRevenueEvent2Amt
Rent Facility Costs Event2$289,446RentFacilityCostsEvent2Amt
Other Direct Expenses Event2$1,076,363OtherDirectExpensesEvent2Amt
Other Events Total89OtherEventsTotalCnt
Gross Receipts Other Events$18,718,763GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$14,708,996CharitableContriOtherEventsAmt
Gross Revenue Other Events$4,009,767GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events$2,964,593RentFcltyCostsOtherEventsAmt
Oth Direct Expnss Other Events$1,313,600OthDirectExpnssOtherEventsAmt
Gross Receipts Total$36,092,104GrossReceiptsTotalAmt
Charitable Contributions Tot$29,301,776CharitableContributionsTotAmt
Gross Revenue Total Events$6,790,328GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$3,905,738RentFcltyCostsTotalEventsAmt
Oth Direct Expnss Total Events$3,153,016OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$7,058,754DirectExpenseSummaryEventsAmt
Net Income Summary-$268,426NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$335,533GrossRevenueOtherGamingAmt
Oth Direct Expnss Other Gaming$67,107OthDirectExpnssOtherGamingAmt
Volunteer Labor Other GamingfalseVolunteerLaborOtherGamingInd
Gross Revenue Total Gaming$335,533GrossRevenueTotalGamingAmt
Oth Direct Expnss Total Gaming$67,107OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming$67,107DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$268,426NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedCAStatesWhereGamingConductedCd
States Where Gaming ConductedCOStatesWhereGamingConductedCd
States Where Gaming ConductedCTStatesWhereGamingConductedCd
States Where Gaming ConductedFLStatesWhereGamingConductedCd
States Where Gaming ConductedGAStatesWhereGamingConductedCd
States Where Gaming ConductedMAStatesWhereGamingConductedCd
States Where Gaming ConductedMOStatesWhereGamingConductedCd
States Where Gaming ConductedNVStatesWhereGamingConductedCd
States Where Gaming ConductedNYStatesWhereGamingConductedCd
States Where Gaming ConductedNCStatesWhereGamingConductedCd
States Where Gaming ConductedOHStatesWhereGamingConductedCd
States Where Gaming ConductedORStatesWhereGamingConductedCd
States Where Gaming ConductedPAStatesWhereGamingConductedCd
States Where Gaming ConductedTXStatesWhereGamingConductedCd
States Where Gaming ConductedWAStatesWhereGamingConductedCd
LicensedYes (true)LicensedInd
License Suspended EtcfalseLicenseSuspendedEtcInd
Gaming With NonmembersfalseGamingWithNonmembersInd
Member Of Other EntityfalseMemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct
Individual With BooksRonald GoldsmanIndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line1733 Third Avenue Suite 510AddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10017ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game RevfalseCntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonSee part IVGamingManagerPersonNm
Gaming Manager Compensation$0GamingManagerCompensationAmt
Gaming Manager Services ProvnoneGamingManagerServicesProvTxt
Charitable Distribution RqrfalseCharitableDistributionRqrInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule G, Part III - GAMING ACTIVITIESFormAndLineReferenceDesc
ExplanationThe Crohn's & Colitis Foundation, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own special event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only twenty-eight chapters held raffles in twenty-one states: Arizona, Arkansas, California, Colorado, Connecticut, Massachusetts, Florida, Georgia, Illinois, Indiana, Michigan, Missouri, Nebraska, North Carolina, New Jersey, New York, Ohio, Pennsylvania, Tennessee, Texas and Washington.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (74 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Albany Medical College
43 New Scotland AveAlbanyNY12208141338310501(c)(3)$46,600$0Research
Albert Einstein College of Medicine of YU
1300 Morris Park AveBronxNY10461132937352501(c)(3)$105,000$0Research
Baylor College of Medicine
1 Baylor Plaza MSHoustonTX77030741613878501(c)(3)$54,822$0Research
Beth Israel Deaconess Medical Center
330 Brookline AveBostonMA02215042103881501(c)(3)$115,799$0Research
Boston Childrens Hospital
300 Longwood AveBostonMA02115042774441501(c)(3)$18,250$0Research
Brigham and Women's Hospital Inc
75 Francis StreetBostonMA02115104231290501(c)(3)$452,304$0Research
Brown University
ProvidenceProvidenceRI02912050258809501(c)(3)$22,500$0Research
California Inst for Biomedical Research
11119 N Torrey Pines RdLa JollaCA92037453682796501(c)(3)$58,250$0Research
Carilion Medical Center
3 Riverside CircleRoanokeVA24016540506332501(c)(3)$74,551$0Research
Case Western Reserve University
10900 Euclid AveClevelandOH441064979341018992501(c)(3)$370,150$0Research
Children's Hosp & Res Cntr Oakland
747 52nd StOaklandCA94609943281666501(c)(3)$28,957$0Research
Children's Hospital Boston
300 Longwood AveBostonMA02115104277444501(c)(3)$590,299$0Research
Children's Hospital Los Angeles
4650 Sunset BlvdLos AngelesCA90027195612191501(c)(3)$266,744$0Research
Cincinnati Children's Hosp Med Cntr
3333 Burnet AveCincinnatiOH45229131083393501(c)(3)$569,531$0Research
Dartmouth Hitchcock Medical Center
1 Medical Center DrLebanonNH03756020222111501(c)(3)$102,626$0Research
Duke University Medical Center
2200 W Main StreetDurhamNC27705560532129501(c)(3)$90,000$0Research
Emory University
1599 Clifton Rd NEAtlantaGA30322580566256501(c)(3)$635,070$0Research
Federation of American Soc Exp Bio
9650 Rockville PikeBethesdaMA20814520700497501(c)(3)$10,000$0Research
Georgia Institute of Technology
901 Atlantic DriveAtlantaGA30332586002023501(c)(3)$53,350$0Research
Georgia State University
1 Park Place SAtlantaGA30303586002050501(c)(3)$37,489$0Research
Georgia State University Research Fdn
38 Peachtree Cntr AveAtlantaGA30302581845423501(c)(3)$417,750$0Research
Icahn School of Med at Mount Sinai
1 Gustave L Levy PlNew YorkNY10029136171197501(c)(3)$492,955$0Research
Iowa State Uni of Science and Tech
1138 Pearson HallAmesIA500112103426004224501(c)(3)$47,891$0Research
Joan & Sanford I Weill Medical College
1300 York AveNew YorkNY10065131623978501(c)(3)$116,580$0Research
Johns Hopkins University-School of Med
12529 Collections Cntr DrChicagoIL60693586002050501(c)(3)$13,921$0Research
Massachusetts General Hospital
101 Huntington AveBostonMA02199042697983501(c)(3)$235,288$0Research
Massachusetts Institute of Technology
77 Massachusetts AveCambridgeMA02139042103594501(c)(3)$71,573$0Research
Mayo Clinic
200 First St SWRochesterMN559050001416011702501(c)(3)$141,628$0Research
Memorial Sloan-Kettering Cancer Cntr
1275 York AvenueNew YorkNY10065131924236501(c)(3)$57,915$0Research
Michigan State University
426 Auditorium RdEast LansingMI48824386005984501(c)(3)$86,873$0Research
New York University School of Medicine
550 1st AvenueNew YorkNY10016133971298501(c)(3)$28,958$0Research
Oregon Health & Science University
3181 SW Sam Jackson PkPortlandOR97239237083114501(c)(3)$28,958$0Research
Pennsylvania State University
Old MainState CollegePA16801246000376501(c)(3)$14,563$0Research
Res Inst at Nationwide Children's Hosp
700 Childrens DriveColumbusOH43205316056230501(c)(3)$208,662$0Research
Rutgers The State University -Newark
249 University AveNewarkNJ07102226001086501(c)(3)$90,000$0Research
Sanford Burnham Prebys Med Dis Ins
10901 N Torrey Pines RdLa JollaCA92037510197108501(c)(3)$58,250$0Research
Stanford University
3172 Porter DrivePalo AltoCA94304941156365501(c)(3)$149,935$0Research
State University of NY Uni at Buffalo
BuffaloBuffaloNY14260161514621501(c)(3)$22,100$0Research
Temple Uni of the Commonwealth Sys
1801 N Broad StPhiladelphiaPA19122231365971501(c)(3)$28,101$0Research
The Children's Hospital of Philadelphia
3615 Civic Cntr BlvdPhiladelphiaPA19104231352166501(c)(3)$196,332$0Research
The Medical College of Wisconsin Inc
8701 Watertown Plank RdMilwaukeeWI53226390806261501(c)(3)$28,958$0Research
The Pennsylvania State University
110 Tech CntrUniversity ParkPA16802246000376501(c)(3)$57,203$0Research
The Rector and Visitors of the Uni of VA
PO Box 400195CharlottesvilleVA22904546001796501(c)(3)$61,776$0Research
The Regents of the Uni of CA
1089 Veterinary Med DrDavisCA95616943067788501(c)(3)$92,664$0Research
The Regents of the Uni of CA Los Angeles
10889 Wilshire BlvdLos AngelesCA90095956006143501(c)(3)$133,840$0Research
The Regents of the Uni of CA Riverside
245 University OfficeRiversideCA92521956006142501(c)(3)$86,873$0Research
The Regents of the Uni of CA San Diego
9500 Gilman DrLa JollaCA92093195600614501(c)(3)$295,676$0Research
The Regents of the Uni of CA San Fran
3333 California StSan FranciscoCA94143946036493501(c)(3)$234,955$0Research
The Regents of the Uni of Michigan
3003 S State StAnn ArborMI48109386006309501(c)(3)$502,995$0Research
The Regents Uni of CA Riverside
900 University AveRiversideCA92521956006142501(c)(3)$72,000$0Research
The Rockefeller University
1230 York AveNew YorkNY10065131624158501(c)(3)$176,873$0Research
The Salk Institute for Biological Studies
10010 N Torrey Pines RdLa JollaCA92037952160097501(c)(3)$167,664$0Research
The Scripps Research Institute
130 Scripps WayJupiterFL33458330435954501(c)(3)$159,030$0Research
The Trustees of the University of PA
3451 Walnut StPhiladelphiaPA19104231352685501(c)(3)$689,017$0Research
The University of AL at Birmingham
1720 2nd Ave SBirminghamAL352940111163600539501(c)(3)$147,915$0Research
The University of Chicago
5801 S Ellis AveChicagoIL60637362177139501(c)(3)$46,600$0Research
The University of NC at Chapel Hill
104 Airport DrChapel HillNC27599566001393501(c)(3)$2,146,387$0Research
The University of TX Health Science Cntr
7000 Fannin St 1200HoustonTX77030741761309501(c)(3)$22,157$0Research
Thomas Jefferson University
125 S 9th StPhiladelphiaPA19107231352651501(c)(3)$90,000$0Research
Tulane University School of Medicine
1430 Tulane AveNew OrleansLA70112720423889501(c)(3)$64,553$0Research
University of California San Diego
9500 Gilman DrLa JollaCA92093956006144501(c)(3)$43,705$0Research
University of CO Denver AMC and DC
13001 E 17th PlAuroraCO80045846000555501(c)(3)$340,747$0Research
University of Florida
219 Grinter HallGainesvilleFL32611596002052501(c)(3)$50,475$0Research
University of Maryland
100 N Greene StBaltimoreMD21201152600203501(c)(3)$95,248$0Research
University of MA Medical School
55 Lake Avenue NWorcesterMA01655043167352501(c)(3)$63,180$0Research
University of New Mexico HSC
1 Uni of NMAlbuquerqueNM871310001856000642501(c)(3)$90,000$0Research
University of Pittsburgh
4401 Penn AvePittsburghPA15224250965591501(c)(3)$72,000$0Research
University of Southern California
1985 Zonal AveLos AngelesCA90033951642394501(c)(3)$82,500$0Research
University of Utah
75 S 2000 E Rm 111Salt Lake CityUT84112876000525501(c)(3)$52,573$0Research
UT Southwestern Medical Center
5323 Harry Hines BlvdDallasTX75390175600286501(c)(3)$31,773$0Research
Vanderbilt University Medical Center
3319 West End AveNashvilleTN37203162047682501(c)(3)$165,014$0Research
Virginia Commonwealth University
PO BOX 980568RichmondVA232980568546001758501(c)(3)$81,095$0Research
Washington University in StLouis
1 Brookings DrSt LouisMO63130430653611501(c)(3)$2,061,346$0Research
Yale University
PO Box 208057New HavenCT06520060646973501(c)(3)$222,625$0Research
FieldValueIRS element (for citing)
Total501c3 Org74Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantsFormAndLineReferenceDesc
ExplanationPart I, Line 1 The CrOhn's & Colitis Foundation ("The Foundation") is a non-profit organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. grants are awarded for specific projects for specific research and the foundation requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years with an annual progress report presented to the Chief Scientific Officer and the National Scientific Advisory Committee for review and approval. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (true)AnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (12 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Michael Osso
President/CEO (Non-voting)$377,528$0$74,500$0$0$0$31,500$0$4,048$0$487,576$0$0$0
Robert Territo
cfo/coo$250,007$0$10,084$0$0$0$12,534$0$894$0$273,519$0$0$0
Caren Heller
Chief Scientific Officer$329,748$0$13,074$0$0$0$12,710$0$2,000$0$357,532$0$0$0
Michael Elkow
EVP, CHAPTER GROWTH & DEVELOP.$229,276$0$4,600$0$0$0$9,452$0$8,926$0$252,254$0$0$0
Marie Granieri
chief of staff$230,865$0$2,500$0$0$0$13,795$0$294$0$247,454$0$0$0
Sheri Markus-Kennell
Senior VP,Business Development$181,007$0$2,500$0$0$0$11,128$0$5,000$0$199,635$0$0$0
Allison Coffey
Senior VP, Advancement$175,486$0$3,500$0$0$0$10,500$0$0$0$189,486$0$0$0
Kimberly Frederick-snapper
AREA EXEC. DIR., NEw england$177,056$0$8,010$0$0$0$10,613$0$0$0$195,679$0$0$0
Jennifer Fagerstrom
VP, Chapter Growth & Develop.$176,107$0$4,594$0$0$0$6,410$0$7,130$0$194,241$0$0$0
Kristin Kaplan
Vice President, Special Events$163,931$0$3,433$0$0$0$10,179$0$6,446$0$183,989$0$0$0
Robert Bryan
VP, Chapter Growth & Develop.$160,185$0$3,944$0$0$0$5,500$0$0$0$169,629$0$0$0
Craig Comins
Vice President, Team Challenge$162,659$0$0$0$0$0$10,083$0$6,536$0$179,278$0$0$0

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceCOMPENSATIONFormAndLineReferenceDesc
ExplanationSCHEDULE J, PART I, LINE 3 THE CROHN'S & COLITIS FOUNDATION IS DEPENDENT ON EXPERIENCED AND QUALIFIED LEADERSHIP TO ACHIEVE ITS GOALS. FACTORS SUCH AS ANNUAL GROSS REVENUES, GEOGRAPHIC LOCATIONS, TENURE, MISSION EXPENSES AND INDIVIDUAL PERFORMANCE HELP DETERMINE SENIOR LEADERSHIP COMPENSATION. THE PRESIDENT'S COMPENSATION IS DETERMINED ON AN ANNUAL BASIS BY THE CHAIRMAN OF THE BOARD AND COMPENSATION AND BENEFITS COMMITTEE USING GUIDELINES AND COMPARABLE DATA PROVIDED IN NATIONAL COMPENSATION STUDIES OF CHIEF STAFF EXECUTIVES. THE FOUNDATION HAS AN INDEPENDENT COMPENSATION CONSULTANT TO REVIEW AND VALIDATE THE COMPENSATION IT PAYS ITS EMPLOYEES. THE FOUNDATION'S PRACTICE WILL BE TO CONTINUE TO RELY ON BENCHMARKING SURVEYS AND OTHER INDUSTRY DATA COMPARING THE COMPENSATION THE FOUNDATION PAYS TO ITS EMPLOYEES WITH COMPENSATION PAID TO EMPLOYEES OF OTHER NOT FOR PROFIT ORGANIZATIONS OF SIMILAR SIZE. THE ORGANIZATION LAST COMMISSIONED A STUDY IN 2015 AND is CONDUCTING ANOTHER ONE IN 2018. Incentive Program Schedule J, Part I, Line 7 THE PRESIDENT/CEO'S BONUS AND INCENTIVE COMPENSATION IS PREDICATED OFF OF A SET OF OBJECTIVES THAT ARE DEVELOPED AND UPDATED EACH YEAR. THESE OBJECTIVES INCLUDE RAISING REVENUES, MANAGEMENT OF EXPENSES, DEVELOPMENT OF REGIONS AND RELATED PERFORMANCE, BUILDING OF INFRASTRUCTURE AND MAXIMIZATION OF MISSION EXPENDITURES. RESULTS ARE EVALUATED BY THE COMPENSATION AND BENEFITS COMMITTEE AND THE INCENTIVE IS ULTIMATELY DETERMINED BASED ON RATINGS OF PERFORMANCE OF THESE OBJECTIVES. The President/CEO's bonus, as reported in Schedule J, Part II, column (b)(ii) represents bonuses from two distinct calendar years: a bonus accrued in 2016, but paid out in 2017 and his 2017 calendar year bonus. The Foundation acknowledges all of its other employees through annual lump-sum incentive awards based on meeting individual, departmental, and overall Foundation performance goals.ExplanationTxt

Schedule M IRS990ScheduleM

FieldValueIRS element (for citing)
Works Of ArtWorksOfArtGrp
Art Historical TreasuresArtHistoricalTreasuresGrp
Art Fractional InterestArtFractionalInterestGrp
Books And PublicationsBooksAndPublicationsGrp
Clothing And Household GoodsClothingAndHouseholdGoodsGrp
Cars And Other VehiclesCarsAndOtherVehiclesGrp
Boats And PlanesBoatsAndPlanesGrp
Intellectual PropertyIntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution104ContributionCnt
Noncash Contributions Rpt F990$689,644NoncashContributionsRptF990Amt
Method Of Determining RevenuesMarket PriceMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Securities Closely Held StockSecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust IntrstsSecurPrtnrshpTrustIntrstsGrp
Securities MiscellaneousSecuritiesMiscellaneousGrp
Qualified Contrib Hist StructQualifiedContribHistStructGrp
Qualified Contrib OtherQualifiedContribOtherGrp
Real Estate ResidentialRealEstateResidentialGrp
Real Estate CommercialRealEstateCommercialGrp
Real Estate OtherRealEstateOtherGrp
CollectiblesCollectiblesGrp
Food InventoryFoodInventoryGrp
Drugs And Medical SuppliesDrugsAndMedicalSuppliesGrp
TaxidermyTaxidermyGrp
Historical ArtifactsHistoricalArtifactsGrp
Scientific SpecimensScientificSpecimensGrp
Archaeological ArtifactsArchaeologicalArtifactsGrp
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedYes (true)ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
RELATIONSHIPSPART VI, SECTION A, LINE 2 BOARD MEMBER SCOTT SNAPPER AND HIGHLY COMPENSATED EMPLOYEE KIMBERLY FREDERICK-SNAPPER HAVE A FAMILY RELATIONSHIP. Process used to review form 990 Part VI, section B, Line 11 The Form 990 was prepared by a national accounting firm in conjunction with the organization's finance department. A copy of the draft form 990 was circulated and reviewed with the Chair of the Audit and Finance Committee members for discussion and comment. A copy of the 990 is distributed to all Board of Trustees prior to filing.
Conflict of Interest Policy Monitoring & EnforcementPart VI, Section B, Line 12 All officers, directors, trustees, and key employees of the Crohn's & Colitis Foundation are required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with THE FOUNDATION. THE FOUNDATION monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately.
Process for determining compensationPart VI, section B, Lines 15 a & b The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic locations, tenure, mission and individual performance help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board and Compensation and Benefits Committee using guidelines and comparable data provided in National Compensation Studies of Chief Staff Executives. The Foundation has an independent compensation consultant to review and validate the compensation it pays its employees. The Foundation's practice will be to continue to rely on benchmarking surveys and other industry data comparing the compensation THE FOUNDATION pays to its employees with compensation paid to employees of other not for profit organizations of similar size.
Availability of documents to the publicpart vi, section C, line 19 The foundation makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.CROHNSCOLITISFOUNDATION.org. The Form 990 is likewise published on the internet at www.guidestar.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy will be provided upon request at management's discretion.
ContributionsPart VIII, line 1g, Noncash contributions The Crohn's & Colitis Foundation ("THE FOUNDATION") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to THE FOUNDATION nor does THE FOUNDATION have ownership rights to them. In 2017, THE FOUNDATION received $13,497 in revenues from this program. Additionally, THE FOUNDATION receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of THE FOUNDATION's mission. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, THE FOUNDATION has not reported the contributed services and airtime on Schedule M or Part VIII, line 1(G). For the year ending December 31, 2017, contributed services and airtime amounted to $6,950,439. Form 990, Part XI, Line 9 Other changes in net assets Changes in Charitable Remainder Trusts: $11,525 Uncollectible Pledges: $135,734 TOTAL TO PART XI, LINE 9: ($124,209)