APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC: Form 990, tax year 2017
View the entire original 990 at ProPublica ↗
- Organization
- APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC (EIN 52-1336903)
- Tax period
- 2017-01-01 to 2017-12-31
- Filed
- 2018-09-28
- IRS object ID
- 201832719349300308
- Schema version
- 2017v2.3
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2018-09-28T08:08:11-05:00 | ReturnTs |
| Tax Period End | 2017-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521392008 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | GELMAN ROSENBERG & FREEDMAN | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4550 MONTGOMERY AVE SUITE 650N | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 208142930 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2017-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 521336903 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | APLASTIC ANEMIA & MDS INTERNATIONAL | BusinessNameLine1Txt |
| Business Name Line2 | FOUNDATION INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | APLA | BusinessNameControlTxt |
| Phone | 3012797202 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4330 EAST WEST HIGHWAY NO 230 | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KATHLEEN WEIS | PersonNm |
| Person Title | CEO | PersonTitleTxt |
| Phone | 3012797202 | PhoneNum |
| Signature | 2018-09-28 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3019519090 | PhoneNum |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 75.103.231.202 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2018-09-28 | IPDt |
| IP Tm | 09:08:06 | IPTm |
| IP Timezone | ED | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | 4FA38BE9C690C82C721A5060F87FC7588CB81F81 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 30DEBE96A666B77FDF6485797CE4D1D3F8E4BD42 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2017 | TaxYr |
| Build TS | 2018-06-14 16:35:46Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | KATHLEEN WEIS | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4330 EAST WEST HIGHWAY NO 230 | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $8,215,270 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.AAMDS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1983 | FormationYr |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Activity Or Mission | SEE PART III, LINE 1. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 23 | TotalEmployeeCnt |
| Total Volunteers | 260 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $6,294,712 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,316,382 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $62,389 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $31,135 | CYProgramServiceRevenueAmt |
| PY Investment Income | $71,536 | PYInvestmentIncomeAmt |
| CY Investment Income | $108,072 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$30,496 | PYOtherRevenueAmt |
| CY Other Revenue | -$35,504 | CYOtherRevenueAmt |
| PY Total Revenue | $6,398,141 | PYTotalRevenueAmt |
| CY Total Revenue | $5,420,085 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,803,709 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,468,975 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,752,789 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,904,384 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $550,860 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,222,739 | PYOtherExpensesAmt |
| CY Other Expenses | $2,075,260 | CYOtherExpensesAmt |
| PY Total Expenses | $6,779,237 | PYTotalExpensesAmt |
| CY Total Expenses | $6,448,619 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$381,096 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,028,534 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $5,638,642 | TotalAssetsBOYAmt |
| Total Assets EOY | $5,908,201 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,155,792 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,329,240 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $4,482,850 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $3,578,961 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $5,678,232 | ExpenseAmt |
| Grant | $2,468,975 | GrantAmt |
| Revenue | $31,135 | RevenueAmt |
| Desc | PROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES. | Desc |
| Total Program Service Expenses | $5,678,232 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (1) | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | Yes (1) | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 81 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 23 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | KATHLEEN WEIS | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 3012797202 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4330 EAST WEST HIGHWAY SUITE 230 | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| KEVIN LYONS-TARR | |||||||
| CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| HARSHA MURTHY | |||||||
| VICE CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| STEPHEN KING | |||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| TONY SAN FILIPPO | |||||||
| TREASURER | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| JUDY PAULETTE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| STEPHANIE DILLON HAMM | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| DEBORAH COOK | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES GAJEWSKI | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| BART FISHER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| NEIL HORIKOSHI | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MELANIE MARQUEZ | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KATHLEEN WEIS | |||||||
| CEO | 40.00 | Yes (X) | $224,613 | $0 | $19,316 | ||
| SERAP AKISOGLU | |||||||
| CHIEF DEVELOPMENT OFFICER | 40.00 | $127,912 | $0 | $19,754 | Yes (X) | ||
| ELLEN SALKELD | |||||||
| SR. DIR. RESEARCH/HEALTH PROF. PROGRM | 40.00 | $105,976 | $0 | $7,885 | Yes (X) | ||
| BARBARA HOLZER | |||||||
| SR. DIR., COMMUNICATIONS/OUTREACH | 40.00 | $103,474 | $0 | $18,416 | Yes (X) | ||
| PAUL SCRIBNER | |||||||
| SENIOR DIR., PATIENT ADVOCACY | 40.00 | $108,937 | $0 | $15,180 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $670,912 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $80,551 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 5 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CALIBRE CPA GROUP | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7501 WISCONSIN AVENUE | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 20814 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | PROFESSIONAL SERVICES | ServicesDesc |
| Compensation | $174,020 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $29,352 | FederatedCampaignsAmt |
| Fundraising | $293,835 | FundraisingAmt |
| All Other Contributions | $4,993,195 | AllOtherContributionsAmt |
| Noncash Contributions | $261,319 | NoncashContributionsAmt |
| Total Contributions | $5,316,382 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $31,135 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $31,135 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $31,135 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $57,996 | TotalRevenueColumnAmt |
| Exclusion | $57,996 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,778,623 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,728,547 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $50,076 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $50,076 | TotalRevenueColumnAmt |
| Exclusion | $50,076 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $31,134 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $293,835 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $66,638 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$35,504 | TotalRevenueColumnAmt |
| Exclusion | -$35,504 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,420,085 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $31,135 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $72,568 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,343,975 | TotalAmt |
| Program Services | $2,343,975 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,000 | TotalAmt |
| Program Services | $5,000 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $120,000 | TotalAmt |
| Program Services | $120,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $243,928 | TotalAmt |
| Program Services | $182,947 | ProgramServicesAmt |
| Management And General | $41,467 | ManagementAndGeneralAmt |
| Fundraising | $19,514 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,360,436 | TotalAmt |
| Program Services | $964,343 | ProgramServicesAmt |
| Management And General | $81,440 | ManagementAndGeneralAmt |
| Fundraising | $314,653 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $64,039 | TotalAmt |
| Program Services | $45,381 | ProgramServicesAmt |
| Management And General | $3,801 | ManagementAndGeneralAmt |
| Fundraising | $14,857 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $122,263 | TotalAmt |
| Program Services | $87,082 | ProgramServicesAmt |
| Management And General | $8,434 | ManagementAndGeneralAmt |
| Fundraising | $26,747 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $113,718 | TotalAmt |
| Program Services | $81,272 | ProgramServicesAmt |
| Management And General | $8,582 | ManagementAndGeneralAmt |
| Fundraising | $23,864 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,280 | TotalAmt |
| Program Services | $3,006 | ProgramServicesAmt |
| Management And General | $95 | ManagementAndGeneralAmt |
| Fundraising | $179 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $207,685 | TotalAmt |
| Program Services | $190,364 | ProgramServicesAmt |
| Management And General | $6,002 | ManagementAndGeneralAmt |
| Fundraising | $11,319 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $82,500 | TotalAmt |
| Program Services | $82,500 | ProgramServicesAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,308 | TotalAmt |
| Program Services | $10,341 | ProgramServicesAmt |
| Management And General | $1,454 | ManagementAndGeneralAmt |
| Fundraising | $1,513 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $448,529 | TotalAmt |
| Program Services | $416,374 | ProgramServicesAmt |
| Management And General | $15,730 | ManagementAndGeneralAmt |
| Fundraising | $16,425 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $239,841 | TotalAmt |
| Program Services | $177,272 | ProgramServicesAmt |
| Management And General | $5,212 | ManagementAndGeneralAmt |
| Fundraising | $57,357 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $143,779 | TotalAmt |
| Program Services | $114,760 | ProgramServicesAmt |
| Management And General | $16,459 | ManagementAndGeneralAmt |
| Fundraising | $12,560 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $182,814 | TotalAmt |
| Program Services | $145,265 | ProgramServicesAmt |
| Management And General | $21,804 | ManagementAndGeneralAmt |
| Fundraising | $15,745 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $171,276 | TotalAmt |
| Program Services | $159,790 | ProgramServicesAmt |
| Management And General | $381 | ManagementAndGeneralAmt |
| Fundraising | $11,105 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $390,934 | TotalAmt |
| Program Services | $380,106 | ProgramServicesAmt |
| Management And General | $906 | ManagementAndGeneralAmt |
| Fundraising | $9,922 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $38,602 | TotalAmt |
| Program Services | $30,673 | ProgramServicesAmt |
| Management And General | $4,604 | ManagementAndGeneralAmt |
| Fundraising | $3,325 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,543 | TotalAmt |
| Program Services | $13,940 | ProgramServicesAmt |
| Management And General | $2,092 | ManagementAndGeneralAmt |
| Fundraising | $1,511 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | FundraisingFundraisingAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|---|
| HONORARIA | $98,300 | $97,437 | $863 | |
| DUES & SUBSCRIPTIONS | $27,986 | $20,719 | $6,662 | $605 |
| PROF. DEVELOPMENT | $8,883 | $5,685 | $2,739 | $459 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,448,619 | TotalAmt |
| Program Services | $5,678,232 | ProgramServicesAmt |
| Management And General | $219,527 | ManagementAndGeneralAmt |
| Fundraising | $550,860 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $452,703 | BOYAmt |
| EOY | $398,232 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,128,710 | BOYAmt |
| EOY | $430,996 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $243,095 | BOYAmt |
| EOY | $337,517 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $409,795 | BOYAmt |
| EOY | $809,106 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $310,711 | BOYAmt |
| EOY | $87,086 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $386,951 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $276,680 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $122,441 | BOYAmt |
| EOY | $110,271 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,680,166 | BOYAmt |
| EOY | $3,438,609 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $291,021 | BOYAmt |
| EOY | $296,384 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,638,642 | BOYAmt |
| EOY | $5,908,201 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $364,233 | BOYAmt |
| EOY | $471,048 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $748,620 | BOYAmt |
| EOY | $1,745,994 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $42,939 | BOYAmt |
| EOY | $112,198 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,155,792 | BOYAmt |
| EOY | $2,329,240 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $454,049 | BOYAmt |
| EOY | -$49,330 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,028,801 | BOYAmt |
| EOY | $3,628,291 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,482,850 | BOYAmt |
| EOY | $3,578,961 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,638,642 | BOYAmt |
| EOY | $5,908,201 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | -$1,028,534 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $124,645 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,360,504 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,394,694 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,277,766 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,294,712 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,316,382 | CurrentTaxYearAmt |
| Total | $31,644,058 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,360,504 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,394,694 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,277,766 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,294,712 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,316,382 | CurrentTaxYearAmt |
| Total | $31,644,058 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $21,531,986 | SubstantialContributorsTotAmt |
| Public Support Total170 | $10,112,072 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $146,346 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $176,581 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $165,316 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $82,617 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $57,996 | CurrentTaxYearAmt |
| Total | $628,856 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $32,272,914 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $174,668 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.31330 | PublicSupportCY170Pct |
| Public Support PY170 | 0.30320 | PublicSupportPY170Pct |
| Ten Pct Facts Crcmstncs Test CY | Yes (X) | TenPctFactsCrcmstncsTestCYInd |
| Facts And Circumstances Test | AAMDS QUALIFIES AS A PUBLIC CHARITY UNDER THE "FACTS AND CIRCUMSTANCES" TEST OF 1.170A-9(F)(3) OF THE TREASURY REGULATIONS, BASED UPON THE FOLLOWING:ITS SUPPORT, AS REPORTED FOR 2017, IS 31.33%, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I).AAMDS IS ORGANIZED AND OPERATED SO AS TO ATTRACT NEW AND ADDITIONAL FUNDING ON A CONTINUOUS BASIS, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(II). AAMDS HAS RECENTLY UNDERTAKEN NEW DEVELOPMENT EFFORTS TO BROADEN AAMDS' BASE OF SUPPORT.AAMDS' PUBLIC SUPPORT, AT 31.33%, IS WELL ABOVE THE 10% MINIMUM REQUIRED FOR THE "FACTS AND CIRCUMSTANCES" TEST, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(III). IN MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I), AAMDS HAS RECEIVED SUPPORT FROM A REPRESENTATIVE NUMBER OF ORGANIZATIONS, RATHER THAN RECEIVING ALL OR MOST OF ITS SUPPORT FROM A SINGLE ORGANIZATION, OR FROM A SINGLE DONOR. IN FACT, AAMDS HAS RECEIVED FINANCIAL SUPPORT FROM A NUMBER OF INDIVIDUAL DONORS, IN ADDITION TO GRANTS RECEIVED FROM A NUMBER OF DIFFERENT ORGANIZATIONS. AAMDS' CURRENT FUNDRAISING PLANS ARE TARGETED AT A BROAD BASE OF DONORS. IN THIS RESPECT, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(B).AAMDS REMAINS AN ORGANIZATION COMMITTED TO SERVING THE PUBLIC THROUGH ITS WORK. AAMDS WAS FORMED TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. IN THIS MANNER, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(D). | FactsAndCircumstancesTestTxt |
Schedule B IRS990ScheduleB
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $82,500 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $82,500 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,366,119 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,448,619 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $472,431 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $118,108 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $527,108 | CurrentYearMinus3Amt |
| Current Year Minus2 | $481,016 | CurrentYearMinus2Amt |
| Current Year Minus1 | $488,962 | CurrentYearMinus1Amt |
| Current Year | $472,431 | CurrentYearAmt |
| Total | $1,969,517 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,954,276 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year | $82,500 | CurrentYearAmt |
| Total | $82,500 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $131,777 | CurrentYearMinus3Amt |
| Current Year Minus2 | $120,254 | CurrentYearMinus2Amt |
| Current Year Minus1 | $122,241 | CurrentYearMinus1Amt |
| Current Year | $118,108 | CurrentYearAmt |
| Total | $492,380 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $738,570 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $386,951 | OtherCostOrOtherBasisAmt |
| Depreciation | $276,680 | DepreciationAmt |
| Book Value | $110,271 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $110,271 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp (2 entries)
| DescDesc | Book ValueBookValueAmt |
|---|---|
| SECURITY DEPOSITS | $15,232 |
| CHARITABLE REMAINDER TRUST | $281,152 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $296,384 | TotalBookValueOtherAssetsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | DEFERRED RENT | Desc |
| Amt | $112,198 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $112,198 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $5,630,076 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $124,645 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $18,708 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $66,638 | OtherRevenueAmt |
| Revenue Not Reported | $209,991 | RevenueNotReportedAmt |
| Revenue Subtotal | $5,420,085 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,420,085 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,533,965 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $18,708 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $66,638 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $85,346 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,448,619 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,448,619 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | FOR THE YEAR ENDED DECEMBER 31, 2017, THE FOUNDATION HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | SPECIAL EVENT EXPENSES REPORTED AS EXPENSE ON THE FINANCIAL 66,638. STATEMENTS AND NETTED AGAINST REVENUE ON FORM 990, PART VIII, LINE 8C. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | SPECIAL EVENT EXPENSES REPORTED AS EXPENSE ON THE FINANCIAL 66,638. STATEMENTS AND NETTED AGAINST REVENUE ON FORM 990, PART VIII, LINE 8C. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| EUROPE | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $78,750 |
| SOUTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $18,750 |
| EAST ASIA AND THE PACIFIC | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $22,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $120,000 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $120,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (6 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| EUROPE | RESEARCH | $18,750 | WIRE TRANSFER |
| EUROPE | RESEARCH | $15,000 | CHECK |
| EUROPE | RESEARCH | $15,000 | CHECK |
| EUROPE | RESEARCH | $30,000 | WIRE TRANSFER |
| EAST ASIA AND THE PACIFIC | RESEARCH | $22,500 | CHECK |
| SOUTH AMERICA | RESEARCH | $18,750 | CHECK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 6 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | Yes (1) | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | AS WITH ALL OF OUR TWO-YEAR RESEARCH GRANTS, PROGRESS REPORTS ARE REQUIRED TO BE SUBMITTED AFTER THE FIRST YEAR AND A FINAL REPORT IS REQUIRED AT THE CONCLUSION OF THE SECOND YEAR. THESE REPORTS ARE REVIEWED AND APPROVED BY OUR MEDICAL ADVISORY BOARD. SECOND YEAR FUNDING IS CONTINGENT UPON SUBMISSION OF THE FIRST YEAR PROGRESS REPORT AND INDICATION OF FIRST YEAR PROGRESS IN MEETING THE OBJECTIVES OF THE STUDY. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | PNH BREAKF. & WALK | Event1Nm |
| Gross Receipts Event1 | $36,493 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $32,533 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $3,960 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $1,203 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $2,930 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $3,240 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $4,501 | OtherDirectExpensesEvent1Amt |
| Event2 | OTHER WALKS | Event2Nm |
| Gross Receipts Event2 | $288,476 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $261,302 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $27,174 | GrossRevenueEvent2Amt |
| Non Cash Prizes Event2 | $14,743 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $1,793 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $1,268 | FoodAndBeverageEvent2Amt |
| Other Direct Expenses Event2 | $36,960 | OtherDirectExpensesEvent2Amt |
| Gross Receipts Total | $324,969 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $293,835 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $31,134 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $15,946 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $4,723 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $4,508 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $41,461 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $66,638 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$35,504 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (16 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| ALBANY MEDICAL COLLEGE | |||||||
| 47 NEW SCOTLAND AVE | ALBANY | NY | 12208 | 141338310 | 501(C)(3) | $30,000 | RESEARCH |
| ALBERT EINSTEIN COLLEGE OF MEDICINE INC | |||||||
| 1300 MORRIS PARK AVE BELFER 312 | BRONX | NY | 10461 | 131624225 | 501(C)(3) | $44,721 | RESEARCH |
| BAYLOR COLLEGE OF MEDICINE | |||||||
| ONE BAYLOR PLAZA | HOUSTON | TX | 77030 | 741159753 | 501(C)(3) | $15,000 | RESEARCH |
| CHILDRENS HOSPITAL OF PHILIDELPHIA | |||||||
| 3615 CIVIC CENTER BLVD | PHILIDELPHI | PA | 19104 | 231352166 | 501(C)(3) | $15,000 | RESEARCH |
| CLEVELAND CLINIC FOUNDATION | |||||||
| 9500 EUCLID AVE | CLEVELAND | OH | 44195 | 340714585 | 501(C)(3) | $15,000 | RESEARCH |
| DANA FARBER CANCER INSTITUTE | |||||||
| 450 BROOKLINE AVENUE | BOSTON | MA | 02215 | 042263040 | 501(C)(3) | $15,000 | RESEARCH |
| MEMORIAL SLOAN-KETTERING CANCER CENTER | |||||||
| 1275 YORK AVENUE BOX 701 | NEW YORK | NY | 10065 | 131924236 | 501(C)(3) | $30,000 | RESEARCH |
| NIH | |||||||
| CLINICAL CENTER NIHCC | BETHESDA | MD | 20892 | 520858115 | 501(C)(3) | $30,000 | RESEARCH |
| RHODE ISLAND HOSPITAL | |||||||
| 1 HOPPIN ST | PROVIDENCE | RI | 02903 | 500258954 | 501(C)(3) | $15,000 | RESEARCH |
| UNIVERSITY OF SOUTH CAROLINA | |||||||
| 715 SUMTER ST | COLUMBIA | SC | 29208 | 576001153 | 501(C)(3) | $7,500 | RESEARCH |
| THE U OF TEXAS MD ANDERSON CANCER CENTER | |||||||
| PO BOX 301402 UNIT 1431 | HOUSTON | TX | 77230 | 760449960 | 501(C)(3) | $536,452 | RESEARCH |
| H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE | |||||||
| PO BOX 742801 | ATLANTA | GA | 30374 | 592451713 | 501(C)(3) | $306,340 | RESEARCH |
| WEILL CORNELL MEDICAL COLLEGE | |||||||
| 525 EAST 68TH STREET | NEW YORK | NY | 10065 | 133376695 | 501(C)(3) | $271,449 | RESEARCH |
| CLEVELAND CLINIC | |||||||
| PO BOX 931568 ATTN165368173501 | CLEVELAND | OH | 44193 | 340714585 | 501(C)(3) | $369,349 | RESEARCH |
| JOHNS HOPKINS UNIVERSITY | |||||||
| 12529 COLLECTIONS CENTER DR | CHICAGO | IL | 60693 | 520595110 | 501(C)(3) | $341,500 | RESEARCH |
| DANA FARBER CANCER INSTITUTE | |||||||
| 450 BROOKLINE AVENUE | BOSTON | MA | 02215 | 042263040 | 501(C)(3) | $283,150 | RESEARCH |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 16 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | SUMMER FELLOWSHIP | GrantTypeTxt |
| Recipient | 1 | RecipientCnt |
| Cash Grant | $5,000 | CashGrantAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | AS WITH ALL OF OUR TWO-YEAR RESEARCH GRANTS, PROGRESS REPORTS ARE REQUIRED TO BE SUBMITTED AFTER THE FIRST YEAR AND A FINAL REPORT IS REQUIRED AT THE CONCLUSION OF THE SECOND YEAR. THESE REPORTS ARE REVIEWED AND APPROVED BY OUR MEDICAL ADVISORY BOARD. SECOND YEAR FUNDING IS CONTINGENT UPON SUBMISSION OF THE FIRST YEAR PROGRESS REPORT AND INDICATION OF FIRST YEAR PROGRESS IN MEETING THE OBJECTIVES OF THE STUDY. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KATHLEEN WEIS | PersonNm |
| Title | CEO | TitleTxt |
| Base Compensation Filing Org | $186,613 | BaseCompensationFilingOrgAmt |
| Compensation Based On Rltd Orgs | $0 | CompensationBasedOnRltdOrgsAmt |
| Bonus Filing Organization | $38,000 | BonusFilingOrganizationAmount |
| Bonus Related Organizations | $0 | BonusRelatedOrganizationsAmt |
| Other Compensation Filing Org | $0 | OtherCompensationFilingOrgAmt |
| Other Compensation Rltd Orgs | $0 | OtherCompensationRltdOrgsAmt |
| Deferred Compensation Flng Org | $10,925 | DeferredCompensationFlngOrgAmt |
| Deferred Comp Rltd Orgs | $0 | DeferredCompRltdOrgsAmt |
| Nontaxable Benefits Filing Org | $8,391 | NontaxableBenefitsFilingOrgAmt |
| Nontaxable Benefits Rltd Orgs | $0 | NontaxableBenefitsRltdOrgsAmt |
| Total Compensation Filing Org | $243,929 | TotalCompensationFilingOrgAmt |
| Total Compensation Rltd Orgs | $0 | TotalCompensationRltdOrgsAmt |
| Comp Report Prior990 Filing Org | $0 | CompReportPrior990FilingOrgAmt |
| Comp Report Prior990 Rltd Orgs | $0 | CompReportPrior990RltdOrgsAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 7 | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION PAID K. WEIS $38,000 IN BONUS COMPENSATION DURING THE YEAR. | ExplanationTxt |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SUBSTANTIAL CONTRIBUTOR | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | SUBSTANTIAL CONTRIBUTOR | RelationshipDescriptionTxt |
| Transaction | $174,020 | TransactionAmt |
| Transaction | AAMDS PAID A SUBSTANTIAL CONTRIBUTOR FEES FOR PROFESSIONAL SERVICES PROVIDED. | TransactionDesc |
| Sharing Of Revenues | 0 | SharingOfRevenuesInd |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 3 | ContributionCnt |
| Noncash Contributions Rpt F990 | $261,319 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 0 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, COLUMN (B): | FormAndLineReferenceDesc |
| Explanation | THIS COLUMN REPRESENTS THE NUMBER OF CONTRIBUTIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE AUDIT COMMITTEE. A FINAL COPY WAS DISTRIBUTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING. |
| FORM 990, PART VI, SECTION B, LINE 12C | BEFORE ANY CONTRACTS FOR THE PURCHASE OF GOODS OR SERVICES ARE AWARDED, MANAGEMENT AND STAFF REVIEW THEM FOR ANY POTENTIAL, PERCEIVED AND/OR REAL CONFLICTS OF INTEREST WITH RESPECT TO BOARD MEMBERS, KEY VOLUNTEERS OR STAFF. IN THE EVENT OF CONFLICT OF INTEREST, THE MATTER IS REFERRED TO THE EXECUTIVE COMMITTEE OF THE BOARD FOR DISCUSSION AND RESOLUTION. NO SUCH CONFLICTS OCCURRED IN 2017. |
| FORM 990, PART VI, SECTION B, LINE 15A | THE CEO'S PERFORMANCE & COMPENSATION IS REVIEWED BY THE EXECUTIVE COMMITTEE USING COMPENSATION STUDIES PUBLISHED BY ASAE, BOARD SOURCE & OTHERS FOR COMPARITIVE DATA. THE EXECUTIVE DIRECTOR'S SALARY IS APPROVED BY THE EXECUTIVE COMMITTEE WHICH THEN INFORMS THE BOARD. THIS ENTIRE PROCESS IS DOCUMENTED. SALARIES OF ALL STAFF ARE REVIEWED ANNUALLY BY THE EXECUTIVE DIRECTOR USING COMPENSATION SURVEY DATA FOR COMPARABLE SIZE AND TYPE ORGANIZATIONS. THE LAST SALARY REVIEW DATE FOR THE EXECUTIVE DIRECTOR WAS AUGUST 2017. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC IN PRINT AND/OR ELECTRONIC FORM UPON REQUEST, AT NO COST. |
| FORM 990, PART XI, LINE 10: | DURING THE YEARS 2012-2014, APLASTIC ANEMIA AND MDS INTERNATIONAL FOUNDATION RECEIVED SIGNIFICANT FUNDING FOR MULTI-YEAR PROGRAM SUPPORT AND RESEARCH GRANTS. THE FOUNDATION'S POLICY, WHICH IS IN ACCORDANCE WITH GENERALLY ACCEPTED ACCOUNTING POLICIES, IS TO RECOGNIZE TEMPORARILY RESTRICTED REVENUE IN THE YEAR IN WHICH THE FUNDS WERE COMMITTED AND TO RECORD EXPENSES AND RELEASE RESTRICTIONS IN THE YEAR IN WHICH THE FUNDS ARE SPENT. THE TIMING RESULTED IN NET INCOME FOR THE YEARS 2012-2014 AND A NET LOSS FOR 2015, 2016 AND 2017. |