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APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization
APLASTIC ANEMIA & MDS INTERNATIONAL FOUNDATION INC (EIN 52-1336903)
Tax period
2016-01-01 to 2016-12-31
Filed
2017-11-14
IRS object ID
201703189349303335
Schema version
2016v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2017-11-14T10:08:18-06:00ReturnTs
Tax Period End2016-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN521392008PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1GELMAN ROSENBERG & FREEDMANBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line14550 MONTGOMERY AVE SUITE 650NAddressLine1Txt
CityBETHESDACityNm
State AbbreviationMDStateAbbreviationCd
ZIP208142930ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2016-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN521336903EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1APLASTIC ANEMIA & MDS INTERNATIONALBusinessNameLine1Txt
Business Name Line2FOUNDATION INCBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlAPLABusinessNameControlTxt
Phone8007472820PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 PARK AVENUE NO 108AddressLine1Txt
CityROCKVILLECityNm
State AbbreviationMDStateAbbreviationCd
ZIP20850ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonKATHLEEN WEISPersonNm
Person TitleCEOPersonTitleTxt
Phone8007472820PhoneNum
Signature2017-11-14SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Phone3019519090PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address75.103.231.202IPv4AddressTxt
FieldValueIRS element (for citing)
IP2017-11-14IPDt
IP Tm11:07:53IPTm
IP TimezoneESIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id24E2B1EDDFB7997E904F8C8AA54720A5F314F67AAtSubmissionCreationDeviceId
At Submission Filing Device Id1C84E1F40D0AB4F75A6C29AABE8087358D4F1C89AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2016TaxYr
Build TS2017-02-10 21:41:12ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerKATHLEEN WEISPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 PARK AVENUE NO 108AddressLine1Txt
CityROCKVILLECityNm
State AbbreviationMDStateAbbreviationCd
ZIP20850ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$8,454,004GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.AAMDS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1983FormationYr
Legal Domicile StateMDLegalDomicileStateCd
Activity Or MissionSEE PART III, LINE 1.ActivityOrMissionDesc
Voting Members Governing Body11VotingMembersGoverningBodyCnt
Voting Members Independent11VotingMembersIndependentCnt
Total Employee20TotalEmployeeCnt
Total Volunteers670TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$5,277,766PYContributionsGrantsAmt
CY Contributions Grants$6,294,712CYContributionsGrantsAmt
PY Program Service Revenue$33,365PYProgramServiceRevenueAmt
CY Program Service Revenue$62,389CYProgramServiceRevenueAmt
PY Investment Income$257,730PYInvestmentIncomeAmt
CY Investment Income$71,536CYInvestmentIncomeAmt
PY Other Revenue-$15,830PYOtherRevenueAmt
CY Other Revenue-$30,496CYOtherRevenueAmt
PY Total Revenue$5,553,031PYTotalRevenueAmt
CY Total Revenue$6,398,141CYTotalRevenueAmt
PY Grants And Similar Paid$3,040,289PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$2,803,709CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,574,037PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,752,789CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$375,728CYTotalFundraisingExpenseAmt
PY Other Expenses$2,005,987PYOtherExpensesAmt
CY Other Expenses$2,222,739CYOtherExpensesAmt
PY Total Expenses$6,620,313PYTotalExpensesAmt
CY Total Expenses$6,779,237CYTotalExpensesAmt
PY Revenues Less Expenses-$1,067,282PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$381,096CYRevenuesLessExpensesAmt
Total Assets BOY$6,287,901TotalAssetsBOYAmt
Total Assets EOY$5,638,642TotalAssetsEOYAmt
Total Liabilities BOY$1,560,115TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,155,792TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$4,727,786NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,482,850NetAssetsOrFundBalancesEOYAmt
MissionTO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$6,166,903ExpenseAmt
Grant$2,803,709GrantAmt
Revenue$62,389RevenueAmt
DescPROVIDED PATIENT EDUCATION MATERIALS AND PROGRAMS REGARDING DIAGNOSIS, TREATMENT AND LIVING WITH BONE MARROW FAILURE DISEASES; PROVIDED PEER SUPPORT THROUGH A NETWORK OF VOLUNTEERS; BUILD AWARENESS AND KNOWLEDGE OF BONE MARROW FAILURE DISEASES AMONG HEALTH PROFESSIONALS AND THE PUBLIC; RAISED PUBLIC AND PRIVATE SUPPORT TO FUND RESEARCH TO IMPROVE PATIENT TREATMENT AND FIND A CURE FOR BONE MARROW FAILURE DISEASES.Desc
Total Program Service Expenses$6,166,903TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other AssetsYes (1)ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl EntYes (1)RelatedOrganizationCtrlEntInd
Transaction With Control EntYes (1)TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document67IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee20EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members11GoverningBodyVotingMembersCnt
Independent Voting Member11IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process Other0CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonKATHLEEN WEISPersonNm
Phone3012797202PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1100 PARK AVENUE SUITE 108AddressLine1Txt
CityROCKVILLECityNm
State AbbreviationMDStateAbbreviationCd
ZIP20850ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
KEVIN LYONS-TARR
CHAIR2.00Yes (X)Yes (X)$0$0$0
HARSHA MURTHY
VICE CHAIR1.00Yes (X)Yes (X)$0$0$0
STEPHEN KING
SECRETARY1.00Yes (X)Yes (X)$0$0$0
TONY SAN FILIPPO
TREASURER1.00Yes (X)Yes (X)$0$0$0
STEPHANIE DILLON HAMM
BOARD MEMBER1.00Yes (X)$0$0$0
DEBORAH COOK
BOARD MEMBER1.00Yes (X)$0$0$0
JAMES GAJEWSKI
BOARD MEMBER1.00Yes (X)$0$0$0
BART FISHER
BOARD MEMBER1.00Yes (X)$0$0$0
NEIL HORIKOSHI
BOARD MEMBER1.00Yes (X)$0$0$0
MELANIE MARQUEZ
BOARD MEMBER1.00Yes (X)$0$0$0
JUDY PAULETTE
BOARD MEMBER1.00Yes (X)$0$0$0
KATHLEEN WEIS
CEO40.00Yes (X)$206,782$0$17,760
SERAP AKISOGLU
CHIEF DEVELOPMENT OFFICER40.00$124,477$0$19,039Yes (X)
BENITA MARCUS
SENIOR DIR., OPERATIONS40.00$108,341$0$17,132Yes (X)
ELLEN SALKELD
SR. DIR. RESEARCH/HEALTH PROF. PRGRM40.00$104,176$0$6,265Yes (X)
BARBARA HOLZER
SENIOR DIR., COMMUNICATIONS/OUTREACH40.00$102,615$0$15,843Yes (X)
PAUL SCRIBNER
SENIOR DIR., PATIENT ADVOCACY40.00$105,834$0$13,159Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$752,225TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$89,198TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K6IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
CALIBRE CPA GROUP
7501 WISCONSIN AVENUEBETHESDAMD20814PROFESSIONAL SERVICES$205,660
THE GARDINER GROUP
610 HICKORY CIRCLELA PLATAMD20646PROFESSIONAL SERVICES$117,330
CALVERT COMPUTER SOLUTIONS
10388 SOUTHERN MARYLAND BLVDDUNKIRKMD20754IT SERVICES$103,754
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
Federated Campaigns$29,001FederatedCampaignsAmt
Fundraising$351,900FundraisingAmt
Related Organizations$35,358RelatedOrganizationsAmt
Government Grants$10,000GovernmentGrantsAmt
All Other Contributions$5,868,453AllOtherContributionsAmt
Noncash Contributions$25,104NoncashContributionsAmt
Total Contributions$6,294,712TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescCONFERENCEDesc
Business900099BusinessCd
Total Revenue Column$62,389TotalRevenueColumnAmt
Related Or Exempt Func Income$62,389RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$62,389TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$82,617TotalRevenueColumnAmt
Exclusion$82,617ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$1,975,150SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$1,986,231SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$11,081SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$11,081TotalRevenueColumnAmt
Exclusion-$11,081ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$39,136FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$351,900ContriRptFundraisingEventAmt
Fundraising Direct Expenses$69,632FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$30,496TotalRevenueColumnAmt
Exclusion-$30,496ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$6,398,141TotalRevenueColumnAmt
Related Or Exempt Func Income$62,389RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$41,040ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$2,612,959TotalAmt
Program Services$2,612,959ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$19,250TotalAmt
Program Services$19,250ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$171,500TotalAmt
Program Services$171,500ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$224,542TotalAmt
Program Services$134,725ProgramServicesAmt
Management And General$49,398ManagementAndGeneralAmt
Fundraising$40,419FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,259,870TotalAmt
Program Services$1,074,322ProgramServicesAmt
Management And General$60,637ManagementAndGeneralAmt
Fundraising$124,911FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$51,625TotalAmt
Program Services$44,553ProgramServicesAmt
Management And General$2,124ManagementAndGeneralAmt
Fundraising$4,948FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$110,375TotalAmt
Program Services$91,669ProgramServicesAmt
Management And General$6,978ManagementAndGeneralAmt
Fundraising$11,728FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$106,377TotalAmt
Program Services$86,920ProgramServicesAmt
Management And General$7,697ManagementAndGeneralAmt
Fundraising$11,760FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$209,587TotalAmt
Program Services$177,469ProgramServicesAmt
Management And General$9,610ManagementAndGeneralAmt
Fundraising$22,508FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$26,972TotalAmt
Program Services$26,972ProgramServicesAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$514,616TotalAmt
Program Services$435,179ProgramServicesAmt
Management And General$23,770ManagementAndGeneralAmt
Fundraising$55,667FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$285,672TotalAmt
Program Services$214,538ProgramServicesAmt
Management And General$12,908ManagementAndGeneralAmt
Fundraising$58,226FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$140,567TotalAmt
Program Services$107,229ProgramServicesAmt
Management And General$21,329ManagementAndGeneralAmt
Fundraising$12,009FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$214,617TotalAmt
Program Services$173,100ProgramServicesAmt
Management And General$29,117ManagementAndGeneralAmt
Fundraising$12,400FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$239,188TotalAmt
Program Services$232,735ProgramServicesAmt
Management And General$665ManagementAndGeneralAmt
Fundraising$5,788FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$411,518TotalAmt
Program Services$400,414ProgramServicesAmt
Management And General$1,145ManagementAndGeneralAmt
Fundraising$9,959FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$45,356TotalAmt
Program Services$36,582ProgramServicesAmt
Management And General$6,153ManagementAndGeneralAmt
Fundraising$2,621FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$18,640TotalAmt
Program Services$15,034ProgramServicesAmt
Management And General$2,529ManagementAndGeneralAmt
Fundraising$1,077FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
HONORARIA$102,949$100,716$1,348$885
PROF. DEVELOPMENT$13,057$11,037$1,198$822

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$6,779,237TotalAmt
Program Services$6,166,903ProgramServicesAmt
Management And General$236,606ManagementAndGeneralAmt
Fundraising$375,728FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,193,611BOYAmt
EOY$452,703EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$266,746BOYAmt
EOY$1,128,710EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$437,190BOYAmt
EOY$243,095EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$5,432BOYAmt
EOY$409,795EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$225,649BOYAmt
EOY$310,711EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$360,519LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$238,078LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$37,102BOYAmt
EOY$122,441EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$3,861,406BOYAmt
EOY$2,680,166EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$260,765BOYAmt
EOY$291,021EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$6,287,901BOYAmt
EOY$5,638,642EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$415,928BOYAmt
EOY$364,233EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$1,144,187BOYAmt
EOY$748,620EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$42,939EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,560,115BOYAmt
EOY$1,155,792EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$402,732BOYAmt
EOY$454,049EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,325,054BOYAmt
EOY$4,028,801EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,727,786BOYAmt
EOY$4,482,850EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$6,287,901BOYAmt
EOY$5,638,642EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$381,096ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$136,160NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,295,799CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,360,504CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$7,394,694CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$5,277,766CurrentTaxYearMinus1YearAmt
Current Tax Year$6,294,712CurrentTaxYearAmt
Total$30,623,475TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,295,799CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,360,504CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$7,394,694CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$5,277,766CurrentTaxYearMinus1YearAmt
Current Tax Year$6,294,712CurrentTaxYearAmt
Total$30,623,475TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$21,153,848SubstantialContributorsTotAmt
Public Support Total170$9,469,627PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$40,025CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$146,346CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$176,581CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$165,316CurrentTaxYearMinus1YearAmt
Current Tax Year$82,617CurrentTaxYearAmt
Total$610,885TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$398CurrentTaxYearMinus4YearsAmt
Total$398TotalAmt
FieldValueIRS element (for citing)
Total Support$31,234,758TotalSupportAmt
Gross Receipts Rltd Activities$180,042GrossReceiptsRltdActivitiesAmt
Public Support CY1700.30320PublicSupportCY170Pct
Public Support PY1700.32820PublicSupportPY170Pct
Ten Pct Facts Crcmstncs Test CYYes (X)TenPctFactsCrcmstncsTestCYInd
Facts And Circumstances TestAAMDS QUALIFIES AS A PUBLIC CHARITY UNDER THE "FACTS AND CIRCUMSTANCES" TEST OF 1.170A-9(F)(3) OF THE TREASURY REGULATIONS, BASED UPON THE FOLLOWING:ITS SUPPORT, AS REPORTED FOR 2016, IS 30.32%, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I).AAMDS IS ORGANIZED AND OPERATED SO AS TO ATTRACT NEW AND ADDITIONAL FUNDING ON A CONTINUOUS BASIS, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(II). AAMDS HAS RECENTLY UNDERTAKEN NEW DEVELOPMENT EFFORTS TO BROADEN AAMDS' BASE OF SUPPORT.AAMDS' PUBLIC SUPPORT, AT 30.32%, IS WELL ABOVE THE 10% MINIMUM REQUIRED FOR THE "FACTS AND CIRCUMSTANCES" TEST, THEREBY MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(III). IN MEETING THE REQUIREMENT OF 1.170A-9(F)(3)(I), AAMDS HAS RECEIVED SUPPORT FROM A REPRESENTATIVE NUMBER OF ORGANIZATIONS, RATHER THAN RECEIVING ALL OR MOST OF ITS SUPPORT FROM A SINGLE ORGANIZATION, OR FROM A SINGLE DONOR. IN FACT, AAMDS HAS RECEIVED FINANCIAL SUPPORT FROM A NUMBER OF INDIVIDUAL DONORS, IN ADDITION TO GRANTS RECEIVED FROM A NUMBER OF DIFFERENT ORGANIZATIONS. AAMDS' CURRENT FUNDRAISING PLANS ARE TARGETED AT A BROAD BASE OF DONORS. IN THIS RESPECT, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(B).AAMDS REMAINS AN ORGANIZATION COMMITTED TO SERVING THE PUBLIC THROUGH ITS WORK. AAMDS WAS FORMED TO SUPPORT PATIENTS, FAMILIES AND CAREGIVERS COPING WITH APLASTIC ANEMIA, MDS, PNH AND RELATED BONE MARROW FAILURE DISEASES BY PROVIDING ANSWERS, SUPPORT AND HOPE. IN THIS MANNER, AAMDS MEETS THE REQUIREMENT OF 1.170A-9(F)(3)(III)(D).FactsAndCircumstancesTestTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$6,779,237FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$6,779,237FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$488,962FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$122,241FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$415,944CurrentYearMinus3Amt
Current Year Minus2$527,108CurrentYearMinus2Amt
Current Year Minus1$481,016CurrentYearMinus1Amt
Current Year$488,962CurrentYearAmt
Total$1,913,030TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$2,869,545LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$5,500CurrentYearMinus3Amt
Total$5,500TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$103,986CurrentYearMinus3Amt
Current Year Minus2$131,777CurrentYearMinus2Amt
Current Year Minus1$120,254CurrentYearMinus1Amt
Current Year$122,241CurrentYearAmt
Total$478,258TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$717,387GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$360,519OtherCostOrOtherBasisAmt
Depreciation$238,078DepreciationAmt
Book Value$122,441BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$122,441TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
SECURITY DEPOSITS$25,783
CHARITABLE REMAINDER TRUST$265,238
FieldValueIRS element (for citing)
Total Book Value Other Assets$291,021TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescDEFERRED RENTDesc
Amt$42,939Amt
FieldValueIRS element (for citing)
Total Liability$42,939TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$6,653,933TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$136,160NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$50,000DonatedServicesAndUseFcltsAmt
Other Revenue$69,632OtherRevenueAmt
Revenue Not Reported$255,792RevenueNotReportedAmt
Revenue Subtotal$6,398,141RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$6,398,141TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$6,898,869TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$50,000DonatedServicesUseFcltsAmt
Other Expenses Included$69,632OtherExpensesIncludedAmt
Expenses Not Reported$119,632ExpensesNotReportedAmt
Expenses Subtotal$6,779,237ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$6,779,237TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:FOR THE YEAR ENDED DECEMBER 31, 2016, THE FOUNDATION HAS DOCUMENTED ITS CONSIDERATION OF FASB ASC 740-10, INCOME TAXES, THAT PROVIDES GUIDANCE FOR REPORTING UNCERTAINTY IN INCOME TAXES AND HAS DETERMINED THAT NO MATERIAL UNCERTAIN TAX POSITIONS QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENT EXPENSES REPORTED AS EXPENSE ON THE FINANCIAL 69,632. STATEMENTS AND NETTED AGAINST REVENUE ON FORM 990, PART VIII, LINE 8C.
PART XII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENT EXPENSES REPORTED AS EXPENSE ON THE FINANCIAL 69,632. STATEMENTS AND NETTED AGAINST REVENUE ON FORM 990, PART VIII, LINE 8C.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPE00GRANTS TO RECIPIENTS LOCATED IN REGION$115,000
SOUTH AMERICA00GRANTS TO RECIPIENTS LOCATED IN REGION$25,000
EAST ASIA AND THE PACIFIC00GRANTS TO RECIPIENTS LOCATED IN REGION$31,500
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continutation Total Office0ContinutationTotalOfficeCnt
Continutation Total Employee0ContinutationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$171,500SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$171,500TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (7 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtManner Of Cash DisbursementMannerOfCashDisbursementTxtNon Cash AssistanceNonCashAssistanceAmt
EUROPERESEARCHWIRE$15,000
EUROPERESEARCHWIRE$15,000
EUROPERESEARCHCHECKS AND WIRE$25,000
EUROPERESEARCHCHECKS$30,000
EUROPERESEARCHCHECKS$30,000
EAST ASIA AND THE PACIFICRESEARCHCHECKS$31,500
SOUTH AMERICARESEARCHCHECKS$25,000
FieldValueIRS element (for citing)
Total501c3 Org7Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt
Transfer To Foreign CorpYes (1)TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationAS WITH ALL OF OUR TWO-YEAR RESEARCH GRANTS, PROGRESS REPORTS ARE REQUIRED TO BE SUBMITTED AFTER THE FIRST YEAR AND A FINAL REPORT IS REQUIRED AT THE CONCLUSION OF THE SECOND YEAR. THESE REPORTS ARE REVIEWED AND APPROVED BY OUR MEDICAL ADVISORY BOARD. SECOND YEAR FUNDING IS CONTINGENT UPON SUBMISSION OF THE FIRST YEAR PROGRESS REPORT AND INDICATION OF FIRST YEAR PROGRESS IN MEETING THE OBJECTIVES OF THE STUDY.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1WALKEvent1Nm
Gross Receipts Event1$391,036GrossReceiptsEvent1Amt
Charitable Contri Event1$351,900CharitableContriEvent1Amt
Gross Revenue Event1$39,136GrossRevenueEvent1Amt
Cash Prizes Event1$300CashPrizesEvent1Amt
Non Cash Prizes Event1$450NonCashPrizesEvent1Amt
Rent Facility Costs Event1$1,000RentFacilityCostsEvent1Amt
Food And Beverage Event1$3,300FoodAndBeverageEvent1Amt
Other Direct Expenses Event1$64,582OtherDirectExpensesEvent1Amt
Gross Receipts Total$391,036GrossReceiptsTotalAmt
Charitable Contributions Tot$351,900CharitableContributionsTotAmt
Gross Revenue Total Events$39,136GrossRevenueTotalEventsAmt
Cash Prizes Total Events$300CashPrizesTotalEventsAmt
Non Cash Prizes Total Events$450NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$1,000RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$3,300FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$64,582OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$69,632DirectExpenseSummaryEventsAmt
Net Income Summary-$30,496NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (18 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVEALBANYNY12208141338310501(C)(3)$15,000RESEARCH
ALBERT EINSTEIN COLLEGE OF MEDICINE YESHIVA UNIVERSITY
500 WEST 185TH STNEW YORKNY10033131624225501(C)(3)$60,000RESEARCH
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZAHOUSTONTX77030741159753501(C)(3)$30,000RESEARCH
CINCINNATI CHILDREN'S HOSPITAL
3333 BURNET AVECINCINNATIOH45229310933936501(C)(3)$7,249RESEARCH
CLEVELAND CLINIC
PO BOX 931568 ATTN165368173501CLEVELANDOH44193340714585501(C)(3)$545,098RESEARCH
DANA FARBER CANCER INSTITUTE
450 BROOKLINE AVENUEBOSTONMA02215042263040501(C)(3)$406,421RESEARCH
H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE
PO BOX 742801ATLANTAGA30374592451713501(C)(3)$294,547RESEARCH
JOHNS HOPKINS UNIVERSITY
12529 COLLECTIONS CENTER DRCHICAGOIL60693520595110501(C)(3)$519,931RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVEBOSTONMA02199041564655501(C)(3)$30,000RESEARCH
MEMORIAL SLOAN-KETTERING CANCER CENTER
1275 YORK AVENUE BOX 701NEW YORKNY10065131924236501(C)(3)$15,000RESEARCH
NATIONAL INSTITUTES OF HEALTH
CLINICAL CENTER NIHCCBETHESDAMD20892520858115GOVERNMENT$15,000RESEARCH
RHODE ISLAND HOSPITAL
1 HOPPIN STPROVIDENCERI02903050258954501(C)(3)$30,000RESEARCH
THE U OF TEXAS MD ANDERSON CANCER CENTER
PO BOX 301402 UNIT 1431HOUSTONTX77230760449960501(C)(3)$170,750RESEARCH
UNIVERSITY OF MICHIGAN
BOX 223131PITTSBURGHPA15251386006309501(C)(3)$15,000RESEARCH
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT ST ROOM P-22PHILADELPHIAPA19104231352685501(C)(3)$15,000RESEARCH
UNIVERSITY OF SOUTH CAROLINA
715 SUMTER STCOLUMBIASC29208576001153501(C)(3)$22,500RESEARCH
WASHINGTON UNIVERSITY IN ST LOUIS
ONE BROOKINGS DRIVE BOX 1054ST LOUISMO63130430653611501(C)(3)$14,870RESEARCH
WEILL CORNELL MEDICAL COLLEGE
525 EAST 68TH STREETNEW YORKNY10065133376695501(C)(3)$406,593RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org18Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeSCHOLARSHIPSGrantTypeTxt
Recipient3RecipientCnt
Cash Grant$19,250CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationAS WITH ALL OF OUR TWO-YEAR RESEARCH GRANTS, PROGRESS REPORTS ARE REQUIRED TO BE SUBMITTED AFTER THE FIRST YEAR AND A FINAL REPORT IS REQUIRED AT THE CONCLUSION OF THE SECOND YEAR. THESE REPORTS ARE REVIEWED AND APPROVED BY OUR MEDICAL ADVISORY BOARD. SECOND YEAR FUNDING IS CONTINGENT UPON SUBMISSION OF THE FIRST YEAR PROGRESS REPORT AND INDICATION OF FIRST YEAR PROGRESS IN MEETING THE OBJECTIVES OF THE STUDY.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonKATHLEEN WEISPersonNm
TitleCEOTitleTxt
Base Compensation Filing Org$185,011BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$21,771BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$0OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$10,925DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$6,835NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$224,542TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$0CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 7FormAndLineReferenceDesc
ExplanationTHE ORGANIZATION PAID K. WEIS $21,771 IN BONUS COMPENSATION DURING THE YEAR.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution4ContributionCnt
Noncash Contributions Rpt F990$6,133NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)

Non Cash CheckboxNonCashCheckboxIndDescDescContributionContributionCntNoncash Contributions Rpt F990NoncashContributionsRptF990AmtMethod Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Yes (X)OFFICE SUPPLIES1$12,331FMV
Yes (X)FURNITURE DONATIONS1$6,640FMV
FieldValueIRS element (for citing)
Form8283 Received0Form8283ReceivedCnt
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, COLUMN (B):FormAndLineReferenceDesc
ExplanationTHE NUMBER IN COLUMN (B) REPRESENTS THE NUMBER OF CONTRIBUTIONS.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BTHE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTANTS AND REVIEWED BY THE AUDIT COMMITTEE. A FINAL COPY WAS DISTRIBUTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12CBEFORE ANY CONTRACTS ARE AWARDED FOR THE PURCHASE OF GOODS OR SERVICES, MANAGEMENT AND STAFF REVIEW THEM FOR ANY POTENTIAL, PERCEIVED AND/OR REAL CONFLICTS OF INTEREST WITH RESPECT TO BOARD MEMBERS, KEY VOLUNTEERS OR STAFF. IN THE EVENT OF CONFLICT OF INTEREST, THE MATTER IS REFERRED TO THE EXECUTIVE COMMITTEE OF THE BOARD FOR DISCUSSION AND RESOLUTION. NO SUCH CONFLICTS OCCURRED IN 2016.
FORM 990, PART VI, SECTION B, LINE 15ATHE CEO'S PERFORMANCE & COMPENSATION IS REVIEWED BY THE EXECUTIVE COMMITTEE USING COMPENSATION STUDIES PUBLISHED BY ASAE, BOARD SOURCE & OTHERS FOR COMPARITIVE DATA. THE EXECUTIVE DIRECTOR'S SALARY IS APPROVED BY THE EXECUTIVE COMMITTEE WHICH THEN INFORMS THE BOARD. THIS ENTIRE PROCESS IS DOCUMENTED. SALARIES OF ALL STAFF ARE REVIEWED ANNUALLY BY THE EXECUTIVE DIRECTOR USING COMPENSATION SURVEY DATA FOR COMPARABLE SIZE AND TYPE ORGANIZATIONS. THE LAST SALARY REVIEW DATE FOR THE EXECUTIVE DIRECTOR WAS JULY 2016.
FORM 990, PART VI, SECTION C, LINE 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC IN PRINT AND/OR ELECTRONIC FORM UPON REQUEST, AT NO COST.
FORM 990, PART XI, LINE 10:DURING THE YEARS 2012-2014, APLASTIC ANEMIA AND MDS INTERNATIONAL FOUNDATION RECEIVED SIGNIFICANT FUNDING FOR MULTI-YEAR PROGRAM SUPPORT AND RESEARCH GRANTS. THE FOUNDATION'S POLICY, WHICH IS IN ACCORDANCE WITH GENERALLY ACCEPTED ACCOUNTING POLICIES, IS TO RECOGNIZE TEMPORARILY RESTRICTED REVENUE IN THE YEAR IN WHICH THE FUNDS WERE COMMITTED AND TO RECORD EXPENSES AND RELEASE RESTRICTIONS IN THE YEAR IN WHICH THE FUNDS ARE SPENT. THE TIMING RESULTED IN NET INCOME FOR THE YEARS 2012-2014 AND A NET LOSS FOR 2015 AND 2016.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1THE PNH RESEARCH & SUPPORT FOUNDATIONBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 10983AddressLine1Txt
CityROCKVILLECityNm
State AbbreviationMDStateAbbreviationCd
ZIP20849ZIPCd
FieldValueIRS element (for citing)
EIN200577614EIN
Primary ActivitiesPROMOTING AWARENESS AND FUNDING RESEARCH TO CURE PNHPrimaryActivitiesTxt
Legal Domicile StateMDLegalDomicileStateCd
Exempt Code Section501(C)(3)ExemptCodeSectionTxt
Public Charity StatusLINE 10PublicCharityStatusTxt

Direct Controlling Entity Name DirectControllingEntityName

FieldValueIRS element (for citing)
Business Name Line1AAMDSBusinessNameLine1Txt
FieldValueIRS element (for citing)
Controlled OrganizationYes (1)ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org0GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgYes (1)GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees Sharing0PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other OrgYes (1)ReimbursementPaidByOtherOrgInd
Transfer To Other OrgYes (1)TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxtInvolvedInvolvedAmtMethod Of Amount DeterminationMethodOfAmountDeterminationTxt
PNH FOUNDATION
C$35,358GRANT
PNH FOUNDATION
R$37,784GROSS RECIEPTS
PNH FOUNDATION
Q$4,612ACTUAL COST REIMBURSEMENT