CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2016-01-01 to 2016-12-31
Filed: 2017-08-22
IRS object ID: 201722349349300817
Schema version: 2016v3.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2017-08-22T14:53:50-05:00	ReturnTs
Tax Period End	2016-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	KPMG LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	1676 INTERNATIONAL DRIVE	AddressLine1Txt
City	McLean	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2016-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
In Care Of	% PRESTON W CAMPBELL MD	InCareOfNm
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVENUE Suite 1100 N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	PRESTON CAMPBELL	PersonNm
Person Title	PRESIDENT & CEO	PersonTitleTxt
Phone	3019514422	PhoneNum
Signature	2017-08-21	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JG WHITE	PreparerPersonNm
PTIN	P01498698	PTIN
Phone	7032868000	PhoneNum
Preparation	2017-08-17	PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

Field	Value	IRS element (for citing)
I Pv4 Address	167.68.102.5	IPv4AddressTxt

Field	Value	IRS element (for citing)
Federal Original Submission Id	54028020172345000001	FederalOriginalSubmissionId
Federal Original Submission Id	2017-08-22	FederalOriginalSubmissionIdDt
Filing License Type	P	FilingLicenseTypeCd
At Submission Creation Device Id	3E895241A54B985E72EC2743C754C5778BD37633	AtSubmissionCreationDeviceId
At Submission Filing Device Id	6F321923765C04EB30ECA77512AF51A673583565	AtSubmissionFilingDeviceId

Field	Value	IRS element (for citing)
Tax	2016	TaxYr
Build TS	2021-01-29 14:40:06Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Address Change	Yes (X)	AddressChangeInd
Principal Officer	PRESTON W CAMPBELL MD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVENUE	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$1,123,791,107	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CFF.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1955	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.	ActivityOrMissionDesc
Voting Members Governing Body	17	VotingMembersGoverningBodyCnt
Voting Members Independent	16	VotingMembersIndependentCnt
Total Employee	731	TotalEmployeeCnt
Total Volunteers	250000	TotalVolunteersCnt
Total Gross UBI	-$545,558	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	-$601,675	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$95,908,297	PYContributionsGrantsAmt
CY Contributions Grants	$117,148,751	CYContributionsGrantsAmt
PY Program Service Revenue	$2,216,198	PYProgramServiceRevenueAmt
CY Program Service Revenue	$2,246,282	CYProgramServiceRevenueAmt
PY Investment Income	$41,305,390	PYInvestmentIncomeAmt
CY Investment Income	$64,555,425	CYInvestmentIncomeAmt
PY Other Revenue	$9,029,211	PYOtherRevenueAmt
CY Other Revenue	$8,578,517	CYOtherRevenueAmt
PY Total Revenue	$148,459,096	PYTotalRevenueAmt
CY Total Revenue	$192,528,975	CYTotalRevenueAmt
PY Grants And Similar Paid	$132,612,012	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$198,127,696	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$32,239,198	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$58,875,323	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$192,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$133,446	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$22,784,588	CYTotalFundraisingExpenseAmt
PY Other Expenses	$27,943,551	PYOtherExpensesAmt
CY Other Expenses	$42,514,066	CYOtherExpensesAmt
PY Total Expenses	$192,986,761	PYTotalExpensesAmt
CY Total Expenses	$299,650,531	CYTotalExpensesAmt
PY Revenues Less Expenses	-$44,527,665	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$107,121,556	CYRevenuesLessExpensesAmt
Total Assets BOY	$3,803,485,303	TotalAssetsBOYAmt
Total Assets EOY	$3,919,394,927	TotalAssetsEOYAmt
Total Liabilities BOY	$124,060,775	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$187,239,749	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$3,679,424,528	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$3,732,155,178	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF MORE THAN 30,000 PEOPLE IN THE U.S. CURRENTLY, THERE IS NO CURE.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$224,800,391	ExpenseAmt
Grant	$196,250,280	GrantAmt
Revenue	$2,565,103	RevenueAmt
Desc	MEDICAL PROGRAMS SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE CYSTIC FIBROSIS FOUNDATION IS THE WORLDS LEADER IN THE SEARCH FOR A CURE FOR CYSTIC FIBROSIS, A LIFE-THREATENING GENETIC DISEASE THAT AFFECTS MORE THAN 30,000 PEOPLE IN THE UNITED STATES, AND 70,000 WORLDWIDE. THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF 120 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. BREAKTHROUGH TREATMENTS HAVE ADDED YEARS TO THE LIVES OF PEOPLE WITH CYSTIC FIBROSIS. TODAY THE MEDIAN SURVIVAL AGE IS OVER 40. THIS IS A DRAMATIC IMPROVEMENT FROM THE 1950S, WHEN A CHILD WITH CF RARELY LIVED LONG ENOUGH TO ATTEND ELEMENTARY SCHOOL. THE FOUNDATION PROVIDES MUCH-NEEDED SUPPORT FOR PATIENTS AND THEIR FAMILIES AS THEY MANAGE THE DIFFICULT CONSEQUENCES OF THE DISEASE FROM SUPPORTING SPECIALIZED, QUALITY CF CARE TO PROVIDING INFORMATION AND SUPPORT TO HELP PEOPLE WITH CF ACCESS THAT CARE. THE FOUNDATIONS PATIENT REGISTRY COLLECTS INFORMATION ON THE HEALTH STATUS OF MORE THAN 29,400 PEOPLE WITH CF, PROVIDING CAREGIVERS AND RESEARCHERS CRITICAL INFORMATION TO HELP IDENTIFY NEW HEALTH TRENDS AND EFFECTIVE TREATMENTS AND IMPROVE THE QUALITY OF CF CARE. THE PATIENT REGISTRY IS AN INTERNATIONALLY RECOGNIZED MODEL FOR OTHER NONPROFIT HEALTH ORGANIZATIONS, INCLUDING CF ADVOCACY GROUPS. MEDICAL PROGRAMS CONSIST OF APPROXIMATELY 740 GRANTS AND OTHER COSTS TO SUPPORT SCIENTIFIC STUDIES/INVESTIGATIONS AND CYSTIC FIBROSIS CENTERS. APPROXIMATELY 422 GRANTS TOTALING $31.7 MILLION WERE AWARDED TO CYSTIC FIBROSIS CARE CENTERS SERVING APPROXIMATELY 29,400 PATIENTS.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$14,539,590	ExpenseAmt
Desc	PUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF PEOPLE WITH CF AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2016, THERE WERE MORE THAN FIVE PUBLICATIONS AND 17 VIDEOS/SERIES PRODUCED AND MADE AVAILABLE FOR PEOPLE WITH CF, FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC. YEAR-ROUND, MEETINGS AND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2016, OVER 1,944,928 UNIQUE VISITORS CAME TO THE CF FOUNDATIONS WEBSITE. NEW CONTENT ON CFF.ORG IN 2016 INCLUDED THE LAUNCH OF SEVEN NEW SECTIONS AND 158 BLOG POSTS.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$15,317,469	ExpenseAmt
Grant	$1,877,416	GrantAmt
Desc	COMMUNITY SERVICES THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM, AND EMPOWER INDIVIDUALS WITH CF AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING CF. APPROXIMATELY 29,400 PEOPLE WITH CF WERE SERVED IN 2016, INCLUDING APPROXIMATELY 890 INDIVIDUALS WHO WERE NEWLY DIAGNOSED. LACK OF ADEQUATE INSURANCE COVERAGE FOR CF MEDICATIONS HAS BEEN A CONSISTENT CONCERN FOR THOSE LIVING WITH THE DISEASE AND THEIR FAMILIES. COMPASS IS A HIGHLY PERSONALIZED SERVICE TAILORED TO AN INDIVIDUALS CIRCUMSTANCES RELATED TO COMPLEX INSURANCE, FINANCIAL, LEGAL, AND OTHER ISSUES THAT CAN PREVENT ACCESS TO MUCH-NEEDED CF THERAPIES AND CARE. IN 2016, SKILLED CASE MANAGERS HELPED MORE THAN 3,800 PEOPLE WITH CF AND THEIR FAMILIES UNDERSTAND AND MAXIMIZE THEIR INSURANCE COVERAGE AND BENEFITS. CASE MANAGERS ALSO ASSISTED MANY OTHERS WITH FINDING RESOURCES FOR ISSUES RELATED TO LIFE WITH CF THAT CAN AFFECT ACCESS, INCLUDING BASIC LIVING AND FOOD EXPENSES. TODAY, MORE THAN HALF OF ALL PEOPLE WITH CF ARE AGE 18 OR OLDER. IN 2016, NEARLY 200 ADULTS JOINED BREATHECON, THE FIRST VIRTUAL CONFERENCE BY AND FOR PEOPLE WITH CF. PARTICIPANTS HEARD KEYNOTE AND PANEL PRESENTATIONS AND PARTICIPATED IN SMALL GROUP DISCUSSIONS FOCUSED ON CRUCIAL TOPICS INCLUDING FERTILITY, CF IN THE WORKPLACE, AND PARENTHOOD.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$254,657,450	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Subject To Proxy Tax	false	SubjectToProxyTaxInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	false	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	Yes (true)	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	false	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (true)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (true)	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (true)	ProfessionalFundraisingInd
Fundraising Activities	Yes (true)	FundraisingActivitiesInd
Gaming Activities	Yes (true)	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	Yes (true)	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	Yes (true)	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	Yes (true)	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (true)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (true)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	1370	IRPDocumentCnt
IRP Document W2 G	12	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	731	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (true)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (true)	Form990TFiledInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (true)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (true)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	Yes (true)	Form8282PropertyDisposedOfInd
Form8282 Filed	1	Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Form1098 C Filed	Yes (true)	Form1098CFiledInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	17	GoverningBodyVotingMembersCnt
Independent Voting Member	16	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	Yes (true)	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	Yes (true)	LocalChaptersInd
Policies Reference Chapters	Yes (true)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	PRESTON W CAMPBELL MD	PersonNm
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE STE 1100 N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (30 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
RICHARD L DANDURAND
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
LOUIS DEFALCO
VICE CHAIR	5.0	0.0	Yes (X)	$0	$0	$0
RICHARD J GRAY ESQ
VICE CHAIR	5.0	0.0	Yes (X)	$0	$0	$0
CAROLE B GRIEGO MD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
SUSAN L HOOK
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
CATHERINE C MCLOUD
CHAIR	8.0	3.0	Yes (X)	$0	$0	$0
CHAD T MOORE
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
DAVID A MOUNT
TREASURER	5.0	0.0	Yes (X)	$0	$0	$0
ROBERT H NIEHAUS
VICE CHAIR	5.0	0.0	Yes (X)	$0	$0	$0
ERIC OLSON PHD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
GARY B SABIN
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
STEVEN SHAK MD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
CHARLES J THAYER
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
THEODORE J TORPHY PHD
TRUSTEE	3.0	5.0	Yes (X)	$0	$0	$0
AMY S WEINBERG
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
PAUL W WHETSELL
EXECUTIVE VICE CHAIR	5.0	0.0	Yes (X)	$0	$0	$0
KC BRYAN WHITE
TRUSTEE	3.0	0.0	Yes (X)	$0	$0	$0
PRESTON CAMPBELL MD
PRESIDENT & CEO	37.0	18.0	Yes (X)	$616,640	$304,574	$255,951	Yes (X)
MARC S GINSKY
EXECUTIVE VP, COO & SECRETARY	50.0	5.0		$305,540	$0	$149,642	Yes (X)
VERA H TWIGG
EXECUTIVE VP & CFO	50.0	5.0		$465,131	$0	$103,024	Yes (X)
JOHN MAHLER MD
CHIEF INVESTMENT OFFICER	55.0	0.0		$830,745	$0	$109,987		Yes (X)
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIRS	41.0	14.0		$386,312	$95,540	$32,117		Yes (X)
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIRS	8.0	47.0		$58,192	$329,757	$54,167		Yes (X)
DRUCY S BOROWITZ MD
SVP, COMMUNITY PARTNERSHIPS	55.0	0.0		$320,867	$0	$7,550			Yes (X)
TIMOTHY A WAIRE JR
CHIEF INFORMATION OFFICER	55.0	0.0		$308,006	$0	$62,471			Yes (X)
LEAH BLOOM PHD
CHIEF OF STRATEGY	55.0	0.0		$305,677	$0	$48,998			Yes (X)
WILLIAM BLANTON
DIRECTOR OF INVESTMENTS	55.0	0.0		$309,472	$0	$28,410			Yes (X)
MARYBETH MCMAHON PHD
CHIEF OF STAFF	55.0	0.0		$294,073	$0	$51,095			Yes (X)
ROBERT J BEALL PHD
FORMER CEO&CURRENT CONSULTANT	10.0	0.0		$518,038	$126,109	$565				Yes (X)
C RICHARD MATTINGLY
FORMER COO	0.0	0.0		$135,951	$0	$7,251				Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$4,854,644	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$855,980	TotReportableCompRltdOrgAmt
Total Other Compensation	$911,228	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	107	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (true)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
GARDNER RUSSO GARDNER LLC
223 E CHESTNUT STREET	LANCASTER	PA	17602	INVESTMENT MGMT	$1,509,059
CELERITY IT LLC
8401 GREENSBORO DR SUITE 500	MCLEAN	VA	22102	SOFTWARE DEV/MAINT	$1,378,958
SUFIAN PASSAMANO
712 MAIN STREET SUITE 2130	HOUSTON	TX	77002	PATIENT ASSISTANCE	$1,368,250
BARES CAPITAL MANAGEMENT INC
12600 HILL COUNTRY BLVD SUITE R-23	AUSTIN	TX	78738	INVESTMENT MGMT	$1,152,160
MIND OVER MACHINES
10451 MILL RUN CIRCLE SUITE 900	OWINGS MILLS	MD	21117	SOFTWARE DEV/MAINT	$1,111,028

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	85	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$934,247	FederatedCampaignsAmt
Fundraising	$86,167,903	FundraisingAmt
All Other Contributions	$30,046,601	AllOtherContributionsAmt
Noncash Contributions	$11,538,445	NoncashContributionsAmt
Total Contributions	$117,148,751	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	SCIENTIFIC CONFERENCE	Desc
Business	611600	BusinessCd
Total Revenue Column	$2,246,282	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,246,282	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$2,246,282	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$56,600,061	TotalRevenueColumnAmt
Unrelated Business Revenue	-$545,558	UnrelatedBusinessRevenueAmt
Exclusion	$57,145,619	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$8,038,700	TotalRevenueColumnAmt
Exclusion	$8,038,700	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$925,377,731	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$917,343,148	SecuritiesAmt
Other	$79,219	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$8,034,583	SecuritiesAmt
Other	-$79,219	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$7,955,364	TotalRevenueColumnAmt
Exclusion	$7,955,364	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$13,706,145	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$86,167,903	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$13,706,145	FundraisingDirectExpensesAmt
Gaming Gross Income	$229,051	GamingGrossIncomeAmt
Gaming Direct Expenses	$133,620	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$95,431	TotalRevenueColumnAmt
Exclusion	$95,431	ExclusionAmt

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	$0	GrossSalesOfInventoryAmt
Cost Of Goods Sold	$0	CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	ExclusionExclusionAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
LIST RENTAL	533110	$125,565	$125,565
REFUNDED OR CANCELLED GRANTS	900099	$318,821		$318,821

Field	Value	IRS element (for citing)
Other Revenue Total	$444,386	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$192,528,975	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,565,103	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	-$545,558	UnrelatedBusinessRevenueAmt
Exclusion	$73,360,679	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$196,781,906	TotalAmt
Program Services	$196,781,906	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$137,575	TotalAmt
Program Services	$137,575	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,208,215	TotalAmt
Program Services	$1,208,215	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$3,248,161	TotalAmt
Program Services	$1,749,888	ProgramServicesAmt
Management And General	$609,345	ManagementAndGeneralAmt
Fundraising	$888,928	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$661,805	TotalAmt
Program Services	$477,387	ProgramServicesAmt
Management And General	$75,002	ManagementAndGeneralAmt
Fundraising	$109,416	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$44,176,990	TotalAmt
Program Services	$23,799,550	ProgramServicesAmt
Management And General	$8,287,473	ManagementAndGeneralAmt
Fundraising	$12,089,967	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$2,167,010	TotalAmt
Program Services	$1,167,437	ProgramServicesAmt
Management And General	$406,525	ManagementAndGeneralAmt
Fundraising	$593,048	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$5,119,719	TotalAmt
Program Services	$2,758,156	ProgramServicesAmt
Management And General	$960,444	ManagementAndGeneralAmt
Fundraising	$1,401,119	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$3,501,638	TotalAmt
Program Services	$1,841,938	ProgramServicesAmt
Management And General	$601,641	ManagementAndGeneralAmt
Fundraising	$1,058,059	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$626,111	TotalAmt
Program Services	$515,729	ProgramServicesAmt
Management And General	$108,284	ManagementAndGeneralAmt
Fundraising	$2,098	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$344,410	TotalAmt
Management And General	$344,410	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$574,720	TotalAmt
Program Services	$574,720	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$133,446	TotalAmt
Fundraising	$133,446	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$7,854,093	TotalAmt
Management And General	$7,854,093	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$4,277,751	TotalAmt
Program Services	$3,676,276	ProgramServicesAmt
Management And General	$270,820	ManagementAndGeneralAmt
Fundraising	$330,655	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$12,891	TotalAmt
Program Services	$5,543	ProgramServicesAmt
Management And General	$1,547	ManagementAndGeneralAmt
Fundraising	$5,801	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$3,765,353	TotalAmt
Program Services	$2,113,695	ProgramServicesAmt
Management And General	$370,439	ManagementAndGeneralAmt
Fundraising	$1,281,219	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$7,792,091	TotalAmt
Program Services	$5,752,940	ProgramServicesAmt
Management And General	$629,855	ManagementAndGeneralAmt
Fundraising	$1,409,296	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$3,914,949	TotalAmt
Program Services	$2,170,919	ProgramServicesAmt
Management And General	$524,305	ManagementAndGeneralAmt
Fundraising	$1,219,725	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$1,779,302	TotalAmt
Program Services	$1,233,340	ProgramServicesAmt
Management And General	$168,781	ManagementAndGeneralAmt
Fundraising	$377,181	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$5,097,663	TotalAmt
Program Services	$4,478,348	ProgramServicesAmt
Management And General	$135,180	ManagementAndGeneralAmt
Fundraising	$484,135	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$1,346,014	TotalAmt
Program Services	$851,020	ProgramServicesAmt
Management And General	$159,472	ManagementAndGeneralAmt
Fundraising	$335,522	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$555,857	TotalAmt
Program Services	$406,732	ProgramServicesAmt
Management And General	$104,402	ManagementAndGeneralAmt
Fundraising	$44,723	FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
MEDICAL QUALITY IMPROVEMENT	$1,282,277	$1,282,277
CARE CENTER SUPPORT	$946,282	$946,282
OTHER EXPENSES	$2,344,302	$727,577	$596,475	$1,020,250

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$299,650,531	TotalAmt
Program Services	$254,657,450	ProgramServicesAmt
Management And General	$22,208,493	ManagementAndGeneralAmt
Fundraising	$22,784,588	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,983,714	TotalAmt
Program Services	$372,541	ProgramServicesAmt
Fundraising	$1,611,173	FundraisingAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part X	Yes (X)	InfoInScheduleOPartXInd

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$98,774	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$284,143,149	BOYAmt
EOY	$94,935,899	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$10,867,532	BOYAmt
EOY	$7,734,842	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$11,119,153	BOYAmt
EOY	$6,655,865	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$212,895	BOYAmt
EOY	$272,744	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$956,650	BOYAmt
EOY	$1,819,362	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$10,274,228	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$5,445,822	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$3,152,602	BOYAmt
EOY	$4,828,406	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$1,769,524,290	BOYAmt
EOY	$2,266,485,881	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$1,716,447,700	BOYAmt
EOY	$1,529,304,556	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$7,061,332	BOYAmt
EOY	$7,258,598	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,803,485,303	BOYAmt
EOY	$3,919,394,927	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$18,195,708	BOYAmt
EOY	$20,050,844	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$44,046,759	BOYAmt
EOY	$72,415,061	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$3,422,898	BOYAmt
EOY	$4,358,270	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$58,395,410	BOYAmt
EOY	$90,415,574	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$124,060,775	BOYAmt
EOY	$187,239,749	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,664,492,149	BOYAmt
EOY	$3,720,457,947	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$11,255,303	BOYAmt
EOY	$7,954,458	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,677,076	BOYAmt
EOY	$3,742,773	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,679,424,528	BOYAmt
EOY	$3,732,155,178	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,803,485,303	BOYAmt
EOY	$3,919,394,927	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	-$107,121,556	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$159,852,206	NetUnrlzdGainsLossesInvstAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$219,524,901	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$305,963,877	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$3,312,085,535	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$122,210,533	CurrentTaxYearMinus1YearAmt
Current Tax Year	$117,148,751	CurrentTaxYearAmt
Total	$4,076,933,597	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$219,524,901	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$305,963,877	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$3,312,085,535	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$122,210,533	CurrentTaxYearMinus1YearAmt
Current Tax Year	$117,148,751	CurrentTaxYearAmt
Total	$4,076,933,597	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$4,076,933,597	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,145,772	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$17,054,431	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$54,160,127	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$75,041,033	CurrentTaxYearMinus1YearAmt
Current Tax Year	$64,638,761	CurrentTaxYearAmt
Total	$225,040,124	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$14,550,167	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$14,927,254	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$15,655,168	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$16,333,174	CurrentTaxYearMinus1YearAmt
Current Tax Year	$14,060,761	CurrentTaxYearAmt
Total	$75,526,524	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$4,377,500,245	TotalSupportAmt
Gross Receipts Rltd Activities	$39,779,656	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.93134	PublicSupportCY170Pct
Public Support PY170	0.94740	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

SCHEDULE A, PART II - OTHER INCOME

THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12.

Schedule A, Part II

PRIOR TO 2016, A SEPARATE GROUP FORM 990 HAS BEEN FILED TO REPORT THE ACTIVITIES OF THE FOUNDATION'S CHAPTER OFFICES. BECAUSE THESE OFFICES WERE NOT SEPARATE LEGAL ENTITIES, THE FOUNDATION TERMINATED ITS GROUP EXEMPTION RULING EFFECTIVE BEGINNING JANUARY 1, 2016. AS A RESULT, THE 2012-2015 INCOME REPORTED ON SCHEDULE A INCLUDES INCOME THAT WAS PREVIOUSLY REPORTED ON SCHEDULE A OF THE GROUP FORM 990.

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Total Grassroots Lobbying		TotalGrassrootsLobbyingGrp
Total Direct Lobbying		TotalDirectLobbyingGrp
Total Lobbying Expend		TotalLobbyingExpendGrp
Other Exempt Purpose Expend		OtherExemptPurposeExpendGrp
Total Exempt Purpose Expend		TotalExemptPurposeExpendGrp
Lobbying Nontaxable Amount		LobbyingNontaxableAmountGrp
Grassroots Nontaxable		GrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp
Volunteers	Yes (true)	VolunteersInd
Paid Staff Or Management	Yes (true)	PaidStaffOrManagementInd
Media Advertisements	false	MediaAdvertisementsInd
Mailings Members	Yes (true)	MailingsMembersInd
Mailings Members	$54,000	MailingsMembersAmt
Publications Or Broadcast	Yes (true)	PublicationsOrBroadcastInd
Publications Or Broadcast	$85,785	PublicationsOrBroadcastAmt
Grants Other Organizations	false	GrantsOtherOrganizationsInd
Direct Contact Legislators	Yes (true)	DirectContactLegislatorsInd
Direct Contact Legislators	$1,163,453	DirectContactLegislatorsAmt
Rallies Demonstrations	false	RalliesDemonstrationsInd
Other Activities	false	OtherActivitiesInd
Total Lobbying Expenditures	$1,303,238	TotalLobbyingExpendituresAmt
Not Described Section501c3	false	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	LOBBYING ACTIVITY	FormAndLineReferenceDesc
Explanation	THE CYSTIC FIBROSIS FOUNDATION IS FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY, DEVELOP WEB POSTS AND PUBLICATIONS TO REGULARLY UPDATE MEMBERS OF THE CYSTIC FIBROSIS COMMUNITY OF RELEVANT LEGISLATION AND ENCOURAGE INDIVIDUALS TO TAKE ACTION, AND COMMUNICATE REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.	ExplanationTxt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,714,670	OtherCostOrOtherBasisAmt
Depreciation	$918,056	DepreciationAmt
Book Value	$796,614	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$8,559,558	OtherCostOrOtherBasisAmt
Depreciation	$4,527,766	DepreciationAmt
Book Value	$4,031,792	BookValueAmt

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildingsGrp
Total Book Value Land Buildings	$4,828,406	TotalBookValueLandBuildingsAmt
Financial Derivatives		FinancialDerivativesGrp
Closely Held Equity Interests		CloselyHeldEquityInterestsGrp

Other Securities OtherSecuritiesGrp (6 entries)

DescDesc	Book ValueBookValueAmt	Method ValuationMethodValuationCd
FIXED INCOME INDEX COMMINGLED	$124,856,726	F
PUBLIC EQUITY COMMINGLED	$1,023,485,288	F
OTHER PUBLIC EQUITY BASED	$58,752,003	F
HEDGED STRATEGIES	$241,362,101	F
PVT EQTY & OTHR ILLIQUID FUNDS	$77,105,665	F
PERPETUAL TRUSTS	$3,742,773	F

Field	Value	IRS element (for citing)
Total Book Value Securities	$1,529,304,556	TotalBookValueSecuritiesAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	INTERCOMPANY PAYABLE	Desc
Amt	$90,415,574	Amt

Field	Value	IRS element (for citing)
Total Liability	$90,415,574	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE D, PART X	FormAndLineReferenceDesc
Explanation	FIN 48 FOOTNOTE THE FOUNDATION, CFFT, AND CFPAF ARE NOT-FOR-PROFIT VOLUNTARY HEALTH ORGANIZATIONS EXEMPT FROM FEDERAL INCOME TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE (THE CODE) AND FROM STATE TAXES AND HAVE BEEN CLASSIFIED AS ORGANIZATIONS THAT ARE NOT PRIVATE FOUNDATIONS UNDER SECTION 509(A) OF THE CODE. THE FOUNDATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME TAX LIABILITY AS OF DECEMBER 31, 2016 AND 2015. CONTRIBUTIONS TO THE FOUNDATION QUALIFY FOR THE CHARITABLE CONTRIBUTIONS DEDUCTION TO THE EXTENT PROVIDED BY SECTION 170 OF THE CODE. THE FOUNDATION IS NOT AWARE OF ANY TAX POSITION TAKEN THAT REQUIRES DISCLOSURE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THE FOUNDATION ANNUALLY REVIEWS ITS TAX POSITIONS AND HAS DETERMINED THAT THERE ARE NO MATERIAL UNCERTAIN TAX POSITIONS THAT REQUIRE RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (8 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
North America	Grantmaking	NONE	$165,218
Europe (Including Iceland and Greenland)	Grantmaking	NONE	$751,619
East Asia and the Pacific	Grantmaking	NONE	$161,178
Middle East and North Africa	Grantmaking	NONE	$130,200
Central America and the Caribbean	Investments		$483,395,000
East Asia and the Pacific	Investments		$2,310,000
Europe (Including Iceland and Greenland)	Investments		$123,036,000
North America	Investments		$4,744,000

Field	Value	IRS element (for citing)
Subtotal Spent	$614,693,215	SubtotalSpentAmt
Total Spent	$614,693,215	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (14 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
North America	PILOT STUDY	$107,978	CHECK
North America	PILOT STUDY	$54,000	CHECK
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$107,939	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	RESEARCH	$108,000	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$49,680	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$54,000	WIRE
East Asia and the Pacific	RESEARCH	$107,146	WIRE
East Asia and the Pacific	PILOT STUDY	$52,532	WIRE
Middle East and North Africa	RESEARCH	$108,000	WIRE
Middle East and North Africa	ADULT CARE	$22,200	WIRE

Field	Value	IRS element (for citing)
Total501c3 Org	14	Total501c3OrgCnt
Transfer To Foreign Corp	Yes (true)	TransferToForeignCorpInd
Interest In Foreign Trust	Yes (true)	InterestInForeignTrustInd
Foreign Corp Ownership	Yes (true)	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	Yes (true)	PassiveForeignInvestmestCoInd
Foreign Partnership	Yes (true)	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROCEDURES FOR MONITORING GRANT FUNDS OUTSIDE OF THE U.S.

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANTS TO THE MIDDLE EAST/NORTH AFRICA REGION WERE MADE TO WEIZMANN INSTITUTE OF SCIENCE AND HADASSAH HEBREW UNIVERSITY MEDICAL CENTER IN ISRAEL.

FOREIGN FORMS

THE ACTIVITIES REFERENCED IN SCHEDULE F, PART IV ARE LIMITED TO CERTAIN OF THE FOUNDATION'S INVESTMENTS.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (true)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
LAUTMAN MASKA NEILL CO
MAIL COUNSEL	false	$4,352,594	$104,000	$4,248,594
TURNKEY PROMOTIONS
FUND COUNSEL	false		$29,446

Field	Value	IRS element (for citing)
Total Gross Receipts	$4,352,594	TotalGrossReceiptsAmt
Total Retained By Contractors	$133,446	TotalRetainedByContractorsAmt
Total Net To Organization	$4,248,594	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SKI	Event1Nm
Gross Receipts Event1	$2,249,457	GrossReceiptsEvent1Amt
Charitable Contri Event1	$904,274	CharitableContriEvent1Amt
Gross Revenue Event1	$1,345,183	GrossRevenueEvent1Amt
Rent Facility Costs Event1	$512,314	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$296,675	FoodAndBeverageEvent1Amt
Entertainment Event1	$1,500	EntertainmentEvent1Amt
Other Direct Expenses Event1	$534,693	OtherDirectExpensesEvent1Amt
Event2	WALK	Event2Nm
Gross Receipts Event2	$2,133,119	GrossReceiptsEvent2Amt
Charitable Contri Event2	$2,083,934	CharitableContriEvent2Amt
Gross Revenue Event2	$49,185	GrossRevenueEvent2Amt
Rent Facility Costs Event2	$11,706	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$15,905	FoodAndBeverageEvent2Amt
Entertainment Event2	$250	EntertainmentEvent2Amt
Other Direct Expenses Event2	$21,323	OtherDirectExpensesEvent2Amt
Other Events Total	985	OtherEventsTotalCnt
Gross Receipts Other Events	$95,491,472	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$83,179,695	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$12,311,777	GrossRevenueOtherEventsAmt
Cash Prizes Other Events	$17,766	CashPrizesOtherEventsAmt
Non Cash Prizes Other Events	$923,778	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$2,594,323	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$3,685,780	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$366,487	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$4,723,645	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$99,874,048	GrossReceiptsTotalAmt
Charitable Contributions Tot	$86,167,903	CharitableContributionsTotAmt
Gross Revenue Total Events	$13,706,145	GrossRevenueTotalEventsAmt
Cash Prizes Total Events	$17,766	CashPrizesTotalEventsAmt
Non Cash Prizes Total Events	$923,778	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$3,118,343	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$3,998,360	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$368,237	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$5,279,661	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$13,706,145	DirectExpenseSummaryEventsAmt

Gaming Information GamingInformationGrp

Field	Value	IRS element (for citing)
Gross Revenue Other Gaming	$229,051	GrossRevenueOtherGamingAmt
Cash Prizes Other Gaming	$500	CashPrizesOtherGamingAmt
Non Cash Prizes Other Gaming	$131,880	NonCashPrizesOtherGamingAmt
Oth Direct Expnss Other Gaming	$1,240	OthDirectExpnssOtherGamingAmt
Volunteer Labor Other Gaming	false	VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming	$229,051	GrossRevenueTotalGamingAmt
Cash Prizes Total Gaming	$500	CashPrizesTotalGamingAmt
Non Cash Prizes Total Gaming	$131,880	NonCashPrizesTotalGamingAmt
Oth Direct Expnss Total Gaming	$1,240	OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming	$133,620	DirectExpenseSummaryGamingAmt
Net Gaming Income Summary	$95,431	NetGamingIncomeSummaryAmt

Field	Value	IRS element (for citing)
States Where Gaming Conducted	AL	StatesWhereGamingConductedCd
States Where Gaming Conducted	AZ	StatesWhereGamingConductedCd
States Where Gaming Conducted	CA	StatesWhereGamingConductedCd
States Where Gaming Conducted	DC	StatesWhereGamingConductedCd
States Where Gaming Conducted	FL	StatesWhereGamingConductedCd
States Where Gaming Conducted	GA	StatesWhereGamingConductedCd
States Where Gaming Conducted	IL	StatesWhereGamingConductedCd
States Where Gaming Conducted	KS	StatesWhereGamingConductedCd
States Where Gaming Conducted	KY	StatesWhereGamingConductedCd
States Where Gaming Conducted	LA	StatesWhereGamingConductedCd
States Where Gaming Conducted	MD	StatesWhereGamingConductedCd
States Where Gaming Conducted	MA	StatesWhereGamingConductedCd
States Where Gaming Conducted	MI	StatesWhereGamingConductedCd
States Where Gaming Conducted	MN	StatesWhereGamingConductedCd
States Where Gaming Conducted	MO	StatesWhereGamingConductedCd
States Where Gaming Conducted	NV	StatesWhereGamingConductedCd
States Where Gaming Conducted	NH	StatesWhereGamingConductedCd
States Where Gaming Conducted	NY	StatesWhereGamingConductedCd
States Where Gaming Conducted	NC	StatesWhereGamingConductedCd
States Where Gaming Conducted	OH	StatesWhereGamingConductedCd
States Where Gaming Conducted	OK	StatesWhereGamingConductedCd
States Where Gaming Conducted	PA	StatesWhereGamingConductedCd
States Where Gaming Conducted	TX	StatesWhereGamingConductedCd
States Where Gaming Conducted	VA	StatesWhereGamingConductedCd
States Where Gaming Conducted	WI	StatesWhereGamingConductedCd
Licensed	Yes (true)	LicensedInd
License Suspended Etc	false	LicenseSuspendedEtcInd
Gaming With Nonmembers	false	GamingWithNonmembersInd
Member Of Other Entity	false	MemberOfOtherEntityInd
Gaming Other Facility	1.00000	GamingOtherFacilityPct
Individual With Books	THE ORGANIZATION	IndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE SUITE 1100N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Cntrct With3rd Prty For Game Rev	false	CntrctWith3rdPrtyForGameRevInd
Charitable Distribution Rqr	false	CharitableDistributionRqrInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROFESSIONAL FUNDRAISING SERVICES

SCHEDULE G, PART I, LINE 2B CFF HAD A WRITTEN CONTRACT WITH LAUTMAN MASKA NEILL & COMPANY TO CONSULT ON ITS DIRECT MARKETING EFFORTS, STARTING IN JUNE 2016. THE EXPENSE FOR THE PROJECT IS $16,000 PER MONTH OR $104,000 FOR THE PARTIAL YEAR OF SERVICES. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED LAUTMAN MASKA NEILL & COMPANY FOR CREATIVE DEVELOPMENT AND A ONE-TIME DATA AUDIT IN 2016. LAUTMAN MASKA NEILL & COMPANY DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MARKETING CAMPAIGNS WITH WHICH LAUTMAN MASKA NEILL & COMPANY ASSISTS WITH ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION. CFF HAD A WRITTEN CONTRACT WITH TURNKEY PROMOTIONS TO CONSULT ON ITS PEER TO PEER FUNDRAISING CAMPAIGNS, STARTING IN AUGUST 2016. THE EXPENSE FOR THE PROJECT WAS $29,446. IN ADDITION TO THE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES, CFF ALSO ENGAGED TURNKEY PROMOTIONS FOR PRIZE FULFILLMENT IN 2016. TURNKEY PROMOTIONS DOES NOT COLLECT ANY FUNDS ON BEHALF OF CFF. ALL DONATIONS THAT RESULT FROM MARKETING CAMPAIGNS WITH WHICH TURNKEY PROMOTIONS ASSISTS WITH ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.

SCHEDULE G, PART III

ON OCCASION, THE CYSTIC FIBROSIS FOUNDATION CONDUCTS RAFFLES, DRAWINGS, OR GAMES OF CHANCE AS PART OF ITS FUNDRAISING EVENTS. GAMING LICENSES ARE OBTAINED WHEN APPLICABLE PER STATE OR LOCAL REGULATION. THERE ARE CERTAIN STATES WHERE CFF ONLY CONDUCTS OPPORTUNITY DRAWINGS. ANY VOLUNTEER INVOLVEMENT IN SUCH ACTIVITIES WAS INSIGNIFICANT. NO OUTSIDE PARTY HAD ANY INVOLVEMENT IN GAMING ACTIVITIES AND THESE ACTIVITIES DO NOT GENERATE UNRELATED BUSINESS INCOME. THE EXECUTIVE DIRECTOR OF EACH CHAPTER IS RESPONSIBLE FOR OVERSEEING GAMING ACTIVITIES CONDUCTED BY THEIR CHAPTER.

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (370 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
UNIVERSITY PSYCHIATRIC PRACTICE INC (SUNY BUFFAL
462 GRIDER ST	BUFFALO	NY	14215	161426208	501c(3)	$24,195	ACADEMIC ADVISORY AWARD
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501c(3)	$27,000	ADULT CARE
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
351 ENGINEERING TERRACE	NEW YORK	NY	10027	135598093	501c(3)	$64,800	ADULT CARE
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 LAKE AVENUE	WORCESTER	MA	10655	043167352	IRC 115	$25,240	ADULT CARE
UNIVERSITY OF ROCHESTER
1325 MT HOPE AVENUE	ROCHESTER	NY	14642	160743209	501c(3)	$32,400	ADULT CARE	SUITE 260
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$58,384	ADULT CARE
THE JOHNS HOPKINS UNIVERSITY
600 N WOLFE STREET PARK 316	BALTIMORE	MD	21205	520595110	501c(3)	$77,559	ADULT CARE
MEDICAL UNIVERSITY OF SOUTH CAROLINA
PO BOX 997	CHARLESTON	SC	29402	576000722	501c(3)	$28,895	ADULT CARE
EMORY UNIVERSITY
1599 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501c(3)	$138,136	ADULT CARE
NEMOURS CHILDREN'S CLINIC JACKSONVILLE
807 NIRA STREET	JACKSONVILLE	FL	32207	590634433	501c(3)	$32,400	ADULT CARE
UNIVERSITY OF FLORIDA
SHANDS CHILDRENS HOSPITAL	GAINSVILLE	FL	32610	596002052	IRC 115	$81,789	ADULT CARE	1600 SW ARCHER RD SUITE D2-15
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S H
700 CHILDRENS DRIVE	COLUMBUS	OH	43260	316056230	501c(3)	$32,400	ADULT CARE	DEPT 4656 / REF 413407
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
2074 ABINGDON ROAD	CLEVELAND	OH	44106	341567805	501c(3)	$25,903	ADULT CARE
WAYNE STATE UNIVERSITY
GRANTS CONTRACTS OFFICE III	DETROIT	MI	48201	386028425	501c(3)	$40,573	ADULT CARE	RESEARCH AND SPONSORED PROGRAMS
UNIVERSITY OF IOWA
GRANT ACCOUNTING OFFICE	IOWA CITY	IA	52242	426004813	IRC 115	$41,389	ADULT CARE	B 5 JESSUP HALL
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLK RD	MILWAUKEE	WI	53226	390806261	501c(3)	$39,492	ADULT CARE
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
750 UNIVERSITY AVENUE	MADISON	WI	53706	396006492	IRC 115	$17,955	ADULT CARE
RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA
1725 WEST HARRISON SUITE 718	CHICAGO	IL	60612	362174823	501c(3)	$27,000	ADULT CARE
THE CURATORS OF THE UNIVERSITY OF MISSOURI
OFFICE OF SPONSORED PROGRAM ADMINIS	COLUMBIA	MO	65211	436003859	IRC 115	$26,999	ADULT CARE	310 JESSE HALL
UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901	OKLAHOMA CITY	OK	73190	731563627	IRC 115	$56,473	ADULT CARE
BAYLOR COLLEGE OF MEDICINE
PO BOX 1	HOUSTON	TX	77212	741613878	501c(3)	$32,392	ADULT CARE
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501c(3)	$38,983	ADULT CARE
UNIVERSITY OF UTAH
406 PARK BLDG	SALT LAKE CITY	UT	84112	876000525	501c(3)	$32,400	ADULT CARE
LONG BEACH MEMORIAL MEDICAL CENTER
2801 ATLANTIC AVENUE	LONG BEACH	CA	90806	953527031	501c(3)	$27,000	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
CASHIERS OFFICE 1200 DUTTON HALL	DAVIS	CA	95616	946036494	501c(3)	$46,440	ADULT CARE	ONE SHIELDS AVENUE
OREGON HEALTH & SCIENCE UNIVERSITY
SPONSORED PROJECTS ADMINISTRATION O	PORTLAND	OR	97239	237083114	501c(3)	$64,800	ADULT CARE	0690 SW BANCROFT STREET
UNIVERSITY OF MIAMI
PEDIATRIC/PULMONARY DIVISION	MIAMI	FL	33136	590624458	501c(3)	$70,483	ADULT CARE	1601 NW 12TH AVENUE
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
MASS GENERAL RESEARCH FINANCE	BOSTON	MA	02114	042697983	501c(3)	$41,096	ADULT CARE	PO BOX 414876
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVE	BOSTON	MA	02215	042103881	501c(3)	$61,193	ADULT CARE	BR305
RHODE ISLAND HOSPITAL
593 EDDY STREET	PROVIDENCE	RI	02903	050258954	501c(3)	$44,753	ADULT CARE
BROWN UNIVERSITY
BOX 1929	PROVIDENCE	RI	02912	050258809	501c(3)	$73,679	ADULT CARE
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501c(3)	$41,142	ADULT CARE
FLETCHER ALLEN HEALTH CARE
111 COLCHESTER AVE	BURLINGTON	VT	05401	030219309	501c(3)	$32,157	ADULT CARE
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501c(3)	$59,309	ADULT CARE
ATLANTIC HEALTH SYSTEM
100 MADISON AVENUE	MORRISTOWN	NJ	07962	521958352	501c(3)	$40,842	ADULT CARE
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
58 BEVIER ROAD	PISCATAWAY	NJ	088548010	462354111	IRC 115	$41,142	ADULT CARE
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
133 SOUTH 36TH STREET MEZZANINE	PHILADELPHIA	PA	191043246	231352685	501c(3)	$27,000	ADULT CARE
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501c(3)	$32,400	ADULT CARE
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI
PO BOX 400195	CHARLOTTESVILLE	VA	229044195	546001796	501c(3)	$40,483	ADULT CARE	OFFICE OF SPONSORED PROGRAMS
VIRGINIA COMMONWEALTH UNIVERSITY
BOX 2506 - VCU STATION	RICHMOND	VA	232842506	546001758	IRC 115	$45,316	ADULT CARE
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$32,529	ADULT CARE	OFFICE OF SPONSORED RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501c(3)	$32,400	ADULT CARE	ATTN DEBORAH ELAM
TRUSTEES OF INDIANA UNIVERSITY
FINANCIAL MANAGEMENT SERVICES	BLOOMINGTON	IN	462666057	356001673	501c(3)	$32,400	ADULT CARE	PO BOX 66057
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501c(3)	$32,400	ADULT CARE
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
SPONSORED PROJECTS ADMINISTRATION	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$222,708	ADULT CARE	200 OAK ST SE
NORTHWESTERN UNIVERSITY
750 N LAKE SHORE DRIVE	CHICAGO	IL	606113008	362167817	501c(3)	$49,980	ADULT CARE	RUBLOFF 7TH FLOOR
WASHINGTON UNIVERSITY
700 ROSEDALE AVENUE	ST LOUIS	MO	631121408	430653611	501c(3)	$82,755	ADULT CARE	CAMPUS BOX 1034
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BOULEVARD MSN 1039	KANSAS CITY	KS	661032937	481108830	501c(3)	$73,440	ADULT CARE
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985100 NEBRASKA MEDICAL CENTER	OMAHA	NE	681987835	470049123	501c(3)	$27,000	ADULT CARE	SERVICE BUILDING
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$91,351	ADULT CARE
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	782293900	741586031	IRC 115	$78,004	ADULT CARE	MAIL CODE 7828
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS	AURORA	CO	800450508	846000555	501c(3)	$40,986	ADULT CARE	F428 FITZSIMONS BUILDING 500
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
SPONSORED PROJECTS SERVICES	TUCSON	AZ	857223308	742652689	IRC 115	$27,000	ADULT CARE	888 N EUCLID ROOM 510
CHILDREN'S HOSPITAL OF ORANGE COUNTY
PO BOX 5700	ORANGE	CA	926135700	952321786	501c(3)	$32,400	ADULT CARE
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501c(3)	$148,119	CF CARE CENTER
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF
351 ENGINEERING TERRACE	NEW YORK	NY	10027	135598093	501c(3)	$269,410	CF CARE CENTER
BETH ISRAEL MEDICAL CENTER
OFFICE OF GRANTS CONTRACTS	NEW YORK	NY	10038	135564934	501c(3)	$213,130	CF CARE CENTER	160 WATER STREET 24TH FLOOR
UNIVERSITY OF MASSACHUSETTS MEDICAL CENTER
55 LAKE AVENUE	WORCESTER	MA	10655	043167352	IRC 115	$169,150	CF CARE CENTER
LONG ISLAND JEWISH MEDICAL CENTER
FINANCE DEPARTMENT	WESTBURY	NY	11590	112241326	501c(3)	$218,230	CF CARE CENTER	972 BRUSHHOLLOW ROAD
GOOD SAMARITAN HOSPITAL
1000 MONTAUK HIGHWAY	NEW YORK	NY	11795	111888924	501c(3)	$25,580	CF CARE CENTER
ALBANY MEDICAL COLLEGE
ELSMERE A-107	ALBANY	NY	12208	141338310	501c(3)	$151,040	CF CARE CENTER
KALEIDA HEALTH
219 BRYANT STREET	BUFFALO	NY	14209	161533232	501c(3)	$228,298	CF CARE CENTER
UNIVERSITY OF ROCHESTER
1325 MT HOPE AVENUE	ROCHESTER	NY	14642	160743209	501c(3)	$273,960	CF CARE CENTER	SUITE 260
CHILDREN'S HOSPITAL OF PITTSBURGH
3705 FIFTH AVENUE	PITTSBURGH	PA	15213	250402510	501c(3)	$381,760	CF CARE CENTER
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$54,000	CF CARE CENTER
PENNSYLVANIA STATE UNIVERSITY
COLLEGE OF MEDICINE	HERSHEY	PA	17033	246000376	IRC 115	$174,050	CF CARE CENTER	OFFICE OF RESEARCH AFFAIRS H138
GEISINGER MEDICAL CENTER
PEDIATRIC ALLERGY IMMUNOLOGY PUL	DANVILLE	PA	17822	236291113	501c(3)	$160,443	CF CARE CENTER	100 N ACADEMY DRIVE
LEHIGH VALLEY HOSPITAL
PEDIATRIC SPECIALTY CENTER	BETHLEHEM	PA	18017	231689692	501c(3)	$69,193	CF CARE CENTER	2545 SCHOENERSVILLE ROAD
DREXEL UNIVERSITY
3201 ARCH STREET	PHILADELPHIA	PA	19104	231352630	501c(3)	$255,331	CF CARE CENTER	SUITE 420
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ON BEHA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501c(3)	$56,160	CF CARE CENTER	FRANKLIN BLDG P-221
CHRISTIANA CARE HEALTH SERVICES INC
PO BOX 2653	WILMINGTON	DE	19805	510103684	501c(3)	$28,500	CF CARE CENTER
ALFRED I DUPONT INSTITUTE OF THE NEMOURS FOUNDATI
1600 ROCKLAND ROAD	WILMINGTON	DE	19899	590634433	501c(3)	$75,040	CF CARE CENTER	PO BOX 269
CHILDREN'S NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501c(3)	$258,957	CF CARE CENTER
HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF
1404 ROCKVILLE PIKE SUITE 600	ROCKVILLE	MD	20852	521317896	501c(3)	$60,000	CF CARE CENTER
THE JOHNS HOPKINS UNIVERSITY
600 N WOLFE STREET PARK 316	BALTIMORE	MD	21205	520595110	501c(3)	$473,019	CF CARE CENTER
CAMC HEALTH EDUCATION AND RESEARCH INSTITUTE
PO BOX 765	CHARLESTON	WV	25323	550753754	501c(3)	$67,220	CF CARE CENTER
DUKE UNIVERSITY
OFFICE OF SPONSORED PROGRAMS	DURHAM	NC	27710	560532129	501c(3)	$208,319	CF CARE CENTER	BOX 104025
CAROLINAS HEALTHCARE FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	566060481	501c(3)	$55,100	CF CARE CENTER
MISSION HEALTHCARE FOUNDATION INC
980 HENDERSONVILLE ROAD	ASHEVILLE	NC	28803	561881331	501c(3)	$31,700	CF CARE CENTER	SUITE C
UNIVERSITY OF SOUTH CAROLINA RESEARCH FOUNDATION
901 SUMTER STREET	COLUMBIA	SC	29208	570967350	501c(3)	$70,530	CF CARE CENTER	SUITE 501
MEDICAL UNIVERSITY OF SOUTH CAROLINA
PO BOX 997	CHARLESTON	SC	29402	576000722	501c(3)	$199,340	CF CARE CENTER
GREENVILLE HOSPITAL SYSTEM
701 GROVE ROAD	GREENVILLE	SC	29605	576007863	501c(3)	$72,120	CF CARE CENTER
EMORY UNIVERSITY
1599 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501c(3)	$379,528	CF CARE CENTER
CHILDREN'S HEALTHCARE OF ATLANTA
1001 JOHNSON FERRY ROAD NORTH	ATLANTA	GA	30342	582367819	501c(3)	$145,500	CF CARE CENTER
THE ADULT CYSTIC FIBROSIS CENTER OF JACKSONVILLE
425 N LEE STREET SUITE 202	JACKSONVILLE	FL	32204	204055796	501c(3)	$75,000	CF CARE CENTER
NEMOURS CHILDREN'S CLINIC JACKSONVILLE
807 NIRA STREET	JACKSONVILLE	FL	32207	590634433	501c(3)	$87,480	CF CARE CENTER
NEMOURS CHILDREN'S CLINIC PENSACOLA
5153 NORTH 9TH AVENUE	PENSACOLA	FL	32504	590634433	501c(3)	$94,420	CF CARE CENTER
UNIVERSITY OF FLORIDA
SHANDS CHILDRENS HOSPITAL	GAINSVILLE	FL	32610	596002052	IRC 115	$293,230	CF CARE CENTER	1600 SW ARCHER RD SUITE D2-15
NEMOURS CHILDREN'S CLINIC ORLANDO
496 S DELANEY AVENUE SUITE 408	ORLANDO	FL	32801	590634433	501c(3)	$67,920	CF CARE CENTER
ORLANDO HEALTH FOUNDATION
3160 SOUTHGATE COMMERCE BLVD	ORLANDO	FL	32806	592244943	501c(3)	$78,530	CF CARE CENTER	SUITE 50
MIAMI CHILDREN'S HOSPITAL
3200 SW 60TH COURT	MIAMI	FL	33155	590638499	501c(3)	$72,990	CF CARE CENTER	MOB 203
SOUTH BROWARD HOSPITAL DISTRICT
JOE DIMAGGIOS CHILDRENS HOSPITAL	HOLLYWOOD	FL	33321	596014973	501c(3)	$178,240	CF CARE CENTER	CYSTIC FIBROSIS CLINIC
THE TAMPA GENERAL HOSPITAL FOUNDATION
PO BOX 1289	TAMPA	FL	33601	237354477	501c(3)	$126,650	CF CARE CENTER
UNIVERSITY OF SOUTH FLORIDA
DEPARTMENT OF PEDIATRICS	TAMPA	FL	33606	593102112	IRC 115	$38,430	CF CARE CENTER	17 DAVIS BOULEVARD SUITE 200
ALL CHILDREN'S HOSPITAL
DEPT 9010	ST PETERSBURG	FL	33731	590683252	501c(3)	$228,597	CF CARE CENTER	PO BOX 31020
ERLANGER HEALTH SYSTEM
975 EAST THIRD STREET	CHATTANOOGA	TN	37403	626000101	501c(3)	$49,880	CF CARE CENTER
EAST TENNESSEE CHILDREN'S HOSPITAL ASSOCIATION I
2100 CLINCH AVENUE 310	KNOXVILLE	TN	37916	626002604	501c(3)	$112,100	CF CARE CENTER
UNIVERSITY OF TENNESSEE MEDICAL CENTER
1940 ALCOA HWY	KNOXVILLE	TN	37920	311626179	501c(3)	$148,970	CF CARE CENTER	SUITE E-110
UNIVERSITY OF TENNESSEE
62 S DUNLAP	MEMPHIS	TN	38163	626001636	IRC 115	$139,550	CF CARE CENTER
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
OFFICE OF GRANTS MANAGEMENT	LOUISVILLE	KY	40292	611029626	501c(3)	$157,450	CF CARE CENTER	JOUETT HALL BELKNAP CAMPUS
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE	COLUMBUS	OH	43260	316056230	501c(3)	$290,020	CF CARE CENTER	DEPT 4656 / REF 413407
TOLEDO CHILDREN'S HOSPITAL
2142 N COVE BLVD	TOLEDO	OH	43606	344428256	501c(3)	$181,184	CF CARE CENTER
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
2074 ABINGDON ROAD	CLEVELAND	OH	44106	341567805	501c(3)	$236,640	CF CARE CENTER
CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501c(3)	$205,113	CF CARE CENTER	3333 BURNET AVENUE
CHILDREN'S HOSPITAL OF MICHIGAN
3663 WOODWARD AVE S STE 200	DETROIT	MI	48201	381357994	501c(3)	$144,940	CF CARE CENTER
WAYNE STATE UNIVERSITY
GRANTS CONTRACTS OFFICE III	DETROIT	MI	48201	386028425	501c(3)	$144,220	CF CARE CENTER	RESEARCH AND SPONSORED PROGRAMS
MICHIGAN STATE UNIVERSITYKCMS
1000 OAKLAND DRIVE	KALAMAZOO	MI	49001	386005984	501c(3)	$32,730	CF CARE CENTER
WESTERN MICHIGAN UNIVERSITY SCHOOL OF MEDICINE
1000 OAKLAND DRIVE	KALAMAZOO	MI	49008	454135256	501c(3)	$29,000	CF CARE CENTER
SPECTRUM HEALTH FOUNDATION
DOWNTOWN CAMPUS	GRAND RAPIDS	MI	49503	382752328	501c(3)	$293,732	CF CARE CENTER	100 MICHIGAN STREET NE MC 004
IOWA HEALTH FOUNDATION (BLANK CHILDREN'S CF CENTER
1440 INGERSOLL AVENUE	DES MOINES	IA	50309	421467682	501c(3)	$79,090	CF CARE CENTER
UNIVERSITY OF IOWA
GRANT ACCOUNTING OFFICE	IOWA CITY	IA	52242	426004813	IRC 115	$205,070	CF CARE CENTER	B 5 JESSUP HALL
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
750 UNIVERSITY AVENUE	MADISON	WI	53706	396006492	IRC 115	$324,729	CF CARE CENTER
MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 NORTH OAK AVENUE	MARSHFIELD	WI	54449	390452970	501c(3)	$84,054	CF CARE CENTER
GUNDERSEN LUTHERAN MEDICAL FOUNDATION
1900 SOUTH AVENUE	LA CROSSE	WI	54601	391249705	501c(3)	$34,770	CF CARE CENTER
MAYO CLINIC ROCHESTER
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501c(3)	$93,700	CF CARE CENTER	PLUMMER 5
BILLINGS CLINIC
2800 10TH AVENUE NORTH	BILLINGS	MT	59107	810231784	501c(3)	$78,390	CF CARE CENTER
LOYOLA UNIVERSITY OF CHICAGO
2160 S FIRST AVENUE	MAYWOOD	IL	60153	361408475	501c(3)	$129,750	CF CARE CENTER
RUSH UNIVERSITY MEDICAL CENTER ST LUKE'S MEDICA
1725 WEST HARRISON SUITE 718	CHICAGO	IL	60612	362174823	501c(3)	$167,952	CF CARE CENTER
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
2300 CHILDRENS PLAZA - BOX 205	CHICAGO	IL	60614	362170833	501c(3)	$213,619	CF CARE CENTER
THE UNIVERSITY OF CHICAGO
5801 S ELLIS AVENUE	CHICAGO	IL	60637	362177139	501c(3)	$241,686	CF CARE CENTER
OSF SAINT FRANCIS MEDICAL CENTER
530 NE GLEN OAK AVENUE	PEORIA	IL	61637	370662569	501c(3)	$110,880	CF CARE CENTER
CARLE FOUNDATION HOSPITAL
611 W PARK STREET	URBANA	IL	61801	371119538	501c(3)	$42,930	CF CARE CENTER
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
DIVISION OF PULMONARY MEDICINE	SPRINGFIELD	IL	62794	376005961	501c(3)	$29,260	CF CARE CENTER	PO BOX 19636
ST LOUIS UNIVERSITY
3500 LINDELL BLVD	ST LOUIS	MO	63103	430654872	501c(3)	$177,494	CF CARE CENTER
CHILDREN'S MERCY HOSPITAL
2401 GILLHAM ROAD	KANSAS CITY	MO	64108	440605373	501c(3)	$222,730	CF CARE CENTER
THE CURATORS OF THE UNIVERSITY OF MISSOURI
OFFICE OF SPONSORED PROGRAM ADMINIS	COLUMBIA	MO	65211	436003859	IRC 115	$218,856	CF CARE CENTER	310 JESSE HALL
VIA CHRISTI HOSPITAL WICHITA INC
707 N EMPORIA	WICHITA	KS	67214	481172106	501c(3)	$117,490	CF CARE CENTER
TULANE UNIVERSITY MEDICAL SCHOOL
6401 FRERET ST	NEW ORLEANS	LA	70118	720423889	501c(3)	$324,708	CF CARE CENTER
LSUMC - SHREVEPORT
P O BOX 33932	SHREVEPORT	LA	71130	720702002	501c(3)	$120,010	CF CARE CENTER
ARKANSAS CHILDREN'S HOSPITAL RESEARCH INSTITUTE I
800 MARSHALL STREET	LITTLE ROCK	AR	72202	710694931	501c(3)	$113,060	CF CARE CENTER	SLOT 512-17
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM STREET	LITTLE ROCK	AR	72205	716046242	IRC 115	$97,810	CF CARE CENTER	MAIL SLOT 555
UNIVERSITY OF OKLAHOMA HEALTH SCIENCES CENTER
PO BOX 26901	OKLAHOMA CITY	OK	73190	731563627	IRC 115	$347,170	CF CARE CENTER
UNIVERSITY OF TEXAS HEALTH CENTER AT TYLER
11937 US HWY 271	TYLER	TX	75708	756001354	IRC 115	$171,374	CF CARE CENTER
COOK CHILDREN'S MEDICAL CENTER CF CENTER
801 SEVENTH AVENUE	FT WORTH	TX	76104	752051646	501c(3)	$222,300	CF CARE CENTER
SCOTT & WHITE MEMORIAL HOSPITAL
2401 SOUTH 31ST STREET	TEMPLE	TX	76508	741166904	501c(3)	$41,110	CF CARE CENTER
BAYLOR COLLEGE OF MEDICINE
PO BOX 1	HOUSTON	TX	77212	741613878	501c(3)	$443,194	CF CARE CENTER
DAUGHTERS OF CARING HEALTH SERVICES OF AUSTIN
PO BOX 1	HOUSTON	TX	77212	741109643	501c(3)	$320,477	CF CARE CENTER
CHRISTUS SANTA ROSA HEALTHCARE
333 NORTH SANTA ROSA	SAN ANTONIO	TX	78207	741109665	501c(3)	$34,230	CF CARE CENTER
DRISCOLL CHILDREN'S HOSPITAL
CORPUS CHRISTI TX 78411	CORPUS CHRISTI	TX	78411	742577746	501c(3)	$25,640	CF CARE CENTER
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH STREET	LUBBOCK	TX	79430	752668014	IRC 115	$35,540	CF CARE CENTER	MAIL STOP 6591
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501c(3)	$247,178	CF CARE CENTER
ST LUKE'S REGIONAL MEDICAL CENTER
100 EAST IDAHO	BOISE	ID	83712	820161600	501c(3)	$170,580	CF CARE CENTER	SUITE 200
UNIVERSITY OF UTAH
406 PARK BLDG	SALT LAKE CITY	UT	84112	876000525	501c(3)	$411,552	CF CARE CENTER
PHOENIX CHILDREN'S HOSPITAL
1300 NORTH 12TH STREET	PHOENIX	AZ	85006	860422559	501c(3)	$277,061	CF CARE CENTER
RENOWN HEALTH FOUNDATION
1155 MILL ST Z-5	RENO	NV	89502	942972749	501c(3)	$35,460	CF CARE CENTER
CHILDREN'S HOSPITAL LOS ANGELES
RESEARCH INSTITUTE	LOS ANGELES	CA	90027	951690977	501c(3)	$196,637	CF CARE CENTER	4650 SUNSET BLVD
UNIVERSITY OF SOUTHERN CALIFORNIA KECK SCHOOL OF M
CONTRACTS AND GRANTS OFFICE	LOS ANGELES	CA	90033	951642394	501c(3)	$54,000	CF CARE CENTER	1540 ALCAZAR STREET CHP-100
MATTEL CHILDRENS HOSPITAL UNIVERSITY OF CALIFORNIA
10833 LE CONTE AVE	LOS ANGELES	CA	90095	954372298	501c(3)	$29,830	CF CARE CENTER	MDCC 22-402
LOMA LINDA UNIVERSITY
11175 E CAMPUS STREET	LOMA LINDA	CA	92354	953522679	501c(3)	$66,180	CF CARE CENTER	COLEMAN PAV A1120N
LANDON PEDIATRIC FOUNDATION
3291 LOMA VISTA ROAD	VENTURA	CA	93003	931097216	501c(3)	$38,400	CF CARE CENTER	BUILDING 340 SUITE 302
SANTA BARBARA COTTAGE HOSPITAL
2405 DE LA VINA STREET	SANTA BARBARA	CA	93105	951644629	501c(3)	$34,220	CF CARE CENTER
CHILDREN'S HOSPITAL CENTRAL CALIFORNIA
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93638	941294954	501c(3)	$142,499	CF CARE CENTER
CALIFORNIA PACIFIC MEDICAL CENTER RESEARCH INSTITU
2200 WEBSTER STREET ROOM 405	SAN FRANCISCO	CA	94115	940562680	501c(3)	$49,797	CF CARE CENTER
KAISER FOUNDATION RESEARCH INSTITUTE
1800 HARRISON STREET	OAKLAND	CA	94612	941105628	501c(3)	$306,580	CF CARE CENTER	16TH FLOOR
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
CASHIERS OFFICE 1200 DUTTON HALL	DAVIS	CA	95616	946036494	501c(3)	$165,939	CF CARE CENTER	ONE SHIELDS AVENUE
SUTTER MEDICAL CENTER SACRAMENTO
5609 J STREET SUITE C	SACRAMENTO	CA	95819	941156621	501c(3)	$64,740	CF CARE CENTER
OREGON HEALTH & SCIENCE UNIVERSITY
SPONSORED PROJECTS ADMINISTRATION O	PORTLAND	OR	97239	237083114	501c(3)	$389,869	CF CARE CENTER	0690 SW BANCROFT STREET
MARY BRIDGE CHILDREN'S FOUNDATION
311 SOUTH L STREET	TACOMA	WA	98405	943030039	501c(3)	$56,480	CF CARE CENTER	MAILSTOP B1-OC
UNIVERSITY OF MIAMI
PEDIATRIC/PULMONARY DIVISION	MIAMI	FL	33136	590624458	501c(3)	$214,310	CF CARE CENTER	1601 NW 12TH AVENUE
CHILDREN'S HEALTH CARE
2525 CHICAGO AVENUE SO	MINNEAPOLIS	MN	55404	411754276	501c(3)	$129,070	CF CARE CENTER	32-2210
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$238,740	CF CARE CENTER
BAYSTATE MEDICAL CENTER (95-196)
759 CHESTNUT STREET	SPRINGFIELD	MA	01199	042790311	501c(3)	$60,680	CF CARE CENTER
TUFTS MEDICAL CENTER
800 WASHINGTON STREET BOX 817	BOSTON	MA	02111	043400617	501c(3)	$27,240	CF CARE CENTER
THE GENERAL HOSPITAL CORPORATION ( MASSACHUSETTS G
MASS GENERAL RESEARCH FINANCE	BOSTON	MA	02114	042697983	501c(3)	$269,201	CF CARE CENTER	PO BOX 414876
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVE	BOSTON	MA	021155737	042774441	501c(3)	$436,038	CF CARE CENTER
RHODE ISLAND HOSPITAL
593 EDDY STREET	PROVIDENCE	RI	02903	050258954	501c(3)	$163,311	CF CARE CENTER
THE HITCHCOCK FOUNDATION
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222139	501c(3)	$212,728	CF CARE CENTER
MAINE MEDICAL CENTER
22 BRAMHALL STREET	PORTLAND	ME	04102	010238552	501c(3)	$232,623	CF CARE CENTER
EASTERN MAINE MEDICAL CENTER
417 STATE STREET	BANGOR	ME	04401	010211501	501c(3)	$45,830	CF CARE CENTER	SUITE 305
FLETCHER ALLEN HEALTH CARE
111 COLCHESTER AVE	BURLINGTON	VT	05401	030219309	501c(3)	$167,364	CF CARE CENTER
UNIVERSITY OF VERMONT MEDICAL CENTER INCFLETCHE
PO BOX 1870	BURLINGTON	VT	05402	030219309	501c(3)	$121,360	CF CARE CENTER
HARTFORD HOSPITAL (CENTRAL CT CYSTIC FIBROSIS CTR)
DEPARTMENT OF MEDICINE	HARTFORD	CT	06102	060646668	501c(3)	$178,333	CF CARE CENTER	80 SEYMOUR STREET
CONNECTICUT CHILDREN'S MEDICAL CENTER
282 WASHINGTON STREET	HARTFORD	CT	06106	060646755	501c(3)	$66,460	CF CARE CENTER
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501c(3)	$287,262	CF CARE CENTER
SAINT JOSEPH'S HOSPITAL AND MEDICAL CENTER
703 MAIN STREET	PATERSON	NJ	07503	221487602	501c(3)	$68,283	CF CARE CENTER
MONMOUTH MEDICAL CENTER FOUNDATION
300 SECOND AVENUE	LONG BRANCH	NJ	07740	222456079	501c(3)	$181,260	CF CARE CENTER
ATLANTIC HEALTH SYSTEM
100 MADISON AVENUE	MORRISTOWN	NJ	07962	521958352	501c(3)	$166,489	CF CARE CENTER
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
58 BEVIER ROAD	PISCATAWAY	NJ	088548010	462354111	IRC 115	$255,453	CF CARE CENTER
The Research Foundation of SUNY
750 E Adams Street	Syracuse	NY	13210	141368361	501c(3)	$319,380	CF CARE CENTER
THE RESEARCH FOUNDATION OF SUNY
101 Nicolls Road	Stony Brook	NY	11794	141368361	501c(3)	$89,012	CF CARE CENTER
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
133 SOUTH 36TH STREET MEZZANINE	PHILADELPHIA	PA	191043246	231352685	501c(3)	$203,100	CF CARE CENTER
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501c(3)	$308,917	CF CARE CENTER
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGI
PO BOX 400195	CHARLOTTESVILLE	VA	229044195	546001796	501c(3)	$342,526	CF CARE CENTER	OFFICE OF SPONSORED PROGRAMS
VIRGINIA COMMONWEALTH UNIVERSITY
BOX 2506 - VCU STATION	RICHMOND	VA	232842506	546001758	IRC 115	$278,390	CF CARE CENTER
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
WEST VIRGINIA UNIVERSITY	MORGANTOWN	WV	265066001	550665758	501c(3)	$195,541	CF CARE CENTER	PO BOX 6001
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	271571064	223849199	501c(3)	$120,240	CF CARE CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$420,433	CF CARE CENTER	OFFICE OF SPONSORED RESEARCH
GEORGIA HEALTH SCIENCES UNIVERSITY
1120 15TH STREET	AUGUSTA	GA	309128300	586002053	501c(3)	$261,333	CF CARE CENTER
LEE MEMORIAL HEALTH SYSTEM FOUNDATION INC (LMHS
16451 HEALTHPARK COMMONS 200	FT MYERS	FL	339083630	650645343	501c(3)	$37,800	CF CARE CENTER
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501c(3)	$466,345	CF CARE CENTER
VANDERBILT UNIVERSITY
PO BOX 30195	NASHVILLE	TN	372410195	620476822	501c(3)	$248,390	CF CARE CENTER
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	392164505	646008520	501c(3)	$185,941	CF CARE CENTER
UNIVERSITY OF KENTUCKY RESEARCH FOUNDATION
KENTUCKY CF CLINIC J424	LEXINGTON	KY	405360284	616033693	501c(3)	$187,180	CF CARE CENTER	740 SOUTH LIMESTONE
CHILDREN'S HOSPITAL MEDICAL CENTER AKRON
ONE PERKINS SQUARE	AKRON	OH	443081062	340714357	501c(3)	$254,190	CF CARE CENTER
UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY
231 ALBERT SABIN WAY	CINCINNATI	OH	452670564	311405915	501C(3)	$139,915	CF CARE CENTER	MSB 60048
CHILDREN'S MEDICAL CENTER
ONE CHILDRENS PLAZA	DAYTON	OH	454041815	310672132	501c(3)	$246,711	CF CARE CENTER
TRUSTEES OF INDIANA UNIVERSITY
FINANCIAL MANAGEMENT SERVICES	BLOOMINGTON	IN	462666057	356001673	501c(3)	$460,463	CF CARE CENTER	PO BOX 66057
SAINT JOSEPH REGIONAL MEDICAL CENTER
611 EAST CEDAR STREET	MISHAWAKA	IN	465451468	351568821	501c(3)	$41,260	CF CARE CENTER	SUITE 405
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501c(3)	$537,840	CF CARE CENTER
MICHIGAN STATE UNIVERSITY
301 ADMINISTRATION BLDG	EAST LANSING	MI	488241046	386005984	501c(3)	$46,300	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
SPONSORED PROJECTS ADMINISTRATION	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$626,601	CF CARE CENTER	200 OAK ST SE
SANFORD CHILDREN'S SPECIALTY CLINIC
1305 W 18TH STREET	SIOUX FALLS	SD	571175039	460447693	501c(3)	$130,720	CF CARE CENTER
SANFORD MEDICAL CENTER FARGO
801 NORTH BROADWAY	FARGO	ND	581220176	450226909	501c(3)	$30,360	CF CARE CENTER
ST ALEXIUS MEDICAL CENTER
PO BOX 5510	BISMARCK	ND	585065510	450226711	501c(3)	$69,140	CF CARE CENTER
ADVOCATE CHARITABLE FOUNDATION
3075 HIGHLAND PARKWAY SUITE 600	DOWNERS GROVE	IL	605151288	363297360	501c(3)	$179,360	CF CARE CENTER
NORTHWESTERN UNIVERSITY
750 N LAKE SHORE DRIVE	CHICAGO	IL	606113008	362167817	501c(3)	$178,595	CF CARE CENTER	RUBLOFF 7TH FLOOR
WASHINGTON UNIVERSITY
CAMPUS BOX 1034	ST LOUIS	MO	631121408	430653611	501c(3)	$331,066	CF CARE CENTER	700 ROSEDALE AVENUE
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BOULEVARD MSN 1039	KANSAS CITY	KS	661032937	481108830	501c(3)	$297,564	CF CARE CENTER
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985100 Nebraska Medical Center	OMAHA	NE	681987835	470049123	501c(3)	$244,120	CF CARE CENTER
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$415,240	CF CARE CENTER
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN A
MAIL CODE 7828	SAN ANTONIO	TX	782293900	741586031	IRC 115	$165,607	CF CARE CENTER	7703 FLOYD CURL DRIVE
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS	AURORA	CO	800450508	846000555	501c(3)	$380,160	CF CARE CENTER	F428 FITZSIMONS BUILDING 500
ARIZONA BOARD OF REGENTS UNIVERSITY OF ARIZONA
SPONSORED PROJECTS SERVICES	TUCSON	AZ	857223308	742652689	IRC 115	$214,780	CF CARE CENTER	888 N EUCLID ROOM 510
UNIVERSITY OF NEW MEXICO HEALTH SCIENCES CENTER
CONTROLLERS OFFICE	ALBUQUERQUE	NM	871315041	856000642	IRC 115	$124,160	CF CARE CENTER	HEALTH SCIENCES AND SERVICES BLDG
UNIVERSITY OF SOUTHERN CALIFORNIA
USC CONTRACTS AND GRANTS	LOS ANGELES	CA	900339002	951642394	501c(3)	$151,007	CF CARE CENTER	1540 ALCAZAR STREET
MEMORIAL MEDICAL CENTER FOUNDATION
2801 ATLANTIC AVENUE	LONG BEACH	CA	908011428	956105984	501c(3)	$177,240	CF CARE CENTER	PO BOX 1428
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN D
OFFICE OF POST AWARD FINANCIAL SERV	LA JOLLA	CA	920930954	956006144	501c(3)	$422,093	CF CARE CENTER	9500 GILMAN DRIVE DEPT 0934
CHILDREN'S HOSPITAL OF ORANGE COUNTY
PO BOX 5700	ORANGE	CA	926135700	952321786	501c(3)	$196,736	CF CARE CENTER
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
UCSF OFFICE OF SPONSORED RESEARCH	SAN FRANCISCO	CA	941430962	946036493	501c(3)	$317,040	CF CARE CENTER	3333 CALIFORNIA STREET SUITE 315
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
651 SERRA STREET SUITE 220	STANFORD	CA	943056215	941156365	501c(3)	$353,945	CF CARE CENTER
SEATTLE CHILDREN'S HOSPITAL
6901 SAND POINT WAY NE	SEATTLE	WA	981050371	910564748	501c(3)	$210,220	CF CARE CENTER
PROVIDENCE HEALTH & SERVICES WASHINGTON
3200 PROVIDENCE DRIVE	ANCHORAGE	AK	995196604	510216586	501c(3)	$225,310	CF CARE CENTER	PO BOX 196604
MILES FOR CYSTIC FIBROSIS INC
PO BOX 2984	TUCKER	GA	30085	264020016	501c(3)	$10,000	COMMUNITY IMPACT
CYSTIC FIBROSIS LIFESTYLE FOUNDATION
3007 71ST STREET	MIAMI BEACH	FL	33141	571163801	501c(3)	$10,000	COMMUNITY IMPACT	SUITE 550
ROCK CF FOUNDATION
2990 W GRAND BOULEVARD	DETROIT	MI	48202	134358351	501c(3)	$10,000	COMMUNITY IMPACT	SUITE M21
BREATHE BRAVELY INC
305 W 29TH STREET	SIOUX FALLS	SD	57105	475334258	501c(3)	$9,248	COMMUNITY IMPACT
UNITED STATES ADULT CYSTIC FIBROSIS ASSOCIATION
4646 NE DIVISION STREET	GRESHAM	OR	970300519	931036770	501c(3)	$9,337	COMMUNITY IMPACT
HEALTHWELL FOUNDATION
PO BOX 4133	GAITHERSBURG	MD	20885	200413676	501c(3)	$1,750,000	PATIENT ASSISTANCE
UNIVERSITY OF UTAH
406 PARK BLDG	SALT LAKE CITY	UT	84112	876000525	501c(3)	$20,303	PATIENT REGISTRY
CARNEGIE MELLON UNIVERSITY
5000 FORBES AVENUE	PITTSBURGH	PA	15213	250969449	501c(3)	$54,000	PILOT STUDY
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$54,000	PILOT STUDY
THE JOHNS HOPKINS UNIVERSITY
600 N WOLFE STREET PARK 316	BALTIMORE	MD	21205	520595110	501c(3)	$54,000	PILOT STUDY
EASTERN VIRGINIA MEDICAL SCHOOL
601 CHILDRENS LANE	NORFOLK	VA	23507	546055378	501c(3)	$54,000	PILOT STUDY
UNIVERSITY OF GEORGIA RESEARCH FOUNDATION INC DE
232 EPPS BRIDGE RD UNIT 3A	ATHENS	GA	30606	581353149	501c(3)	$54,000	PILOT STUDY
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316025986	IRC 115	$54,000	PILOT STUDY
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE	COLUMBUS	OH	43260	316056230	501c(3)	$54,000	PILOT STUDY	DEPT 4656 / REF 413407
BOWLING GREEN STATE UNIVERSITY
106 UNIVERSITY HALL	BOWLING GREEN	OH	43403	346402018	IRC 115	$54,000	PILOT STUDY
UNIVERSITY OF CINCINNATI
560 UNIVERSITY HALL	CINCINNATI	OH	45221	316000989	IRC 115	$54,000	PILOT STUDY	SPONSORED PROGRAMS ACCOUNTING DEPT
CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501c(3)	$162,000	PILOT STUDY	3333 BURNET AVENUE
UNIVERSITY OF IOWA
GRANT ACCOUNTING OFFICE	IOWA CITY	IA	52242	426004813	IRC 115	$54,000	PILOT STUDY	B 5 JESSUP HALL
THE CURATORS OF THE UNIVERSITY OF MISSOURI
OFFICE OF SPONSORED PROGRAM ADMINIS	COLUMBIA	MO	65211	436003859	IRC 115	$108,000	PILOT STUDY	310 JESSE HALL
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501c(3)	$108,000	PILOT STUDY
SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESE
1660 SO COLUMBIAN WAY	SEATTLE	WA	98108	911452438	501c(3)	$108,000	PILOT STUDY	S-151F
UNIVERSITY OF MIAMI
PEDIATRIC/PULMONARY DIVISION	MIAMI	FL	33136	590624458	501c(3)	$54,000	PILOT STUDY	1601 NW 12TH AVENUE
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$108,000	PILOT STUDY
NORTHEASTERN UNIVERSITY
360 HUNTINGTON AVENUE	BOSTON	MA	02115	041679980	501c(3)	$54,000	PILOT STUDY	405 LAKE HALL
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501c(3)	$108,000	PILOT STUDY
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501c(3)	$108,000	PILOT STUDY
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501c(3)	$108,000	PILOT STUDY
VIRGINIA COMMONWEALTH UNIVERSITY
BOX 2506 - VCU STATION	RICHMOND	VA	232842506	546001758	IRC 115	$54,000	PILOT STUDY
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
WEST VIRGINIA UNIVERSITY	MORGANTOWN	WV	265066001	550665758	501c(3)	$54,000	PILOT STUDY	PO BOX 6001
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$430,880	PILOT STUDY	OFFICE OF SPONSORED RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501c(3)	$54,000	PILOT STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501c(3)	$162,000	PILOT STUDY	ATTN DEBORAH ELAM
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501c(3)	$54,000	PILOT STUDY
NORTHWESTERN UNIVERSITY
750 N LAKE SHORE DRIVE	CHICAGO	IL	606113008	362167817	501c(3)	$52,000	PILOT STUDY	RUBLOFF 7TH FLOOR
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BOULEVARD MSN 1039	KANSAS CITY	KS	661032937	481108830	501c(3)	$54,000	PILOT STUDY
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985100 Nebraska Medical Center	OMAHA	NE	681987835	470049123	501c(3)	$53,020	PILOT STUDY
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS	AURORA	CO	800450508	846000555	501c(3)	$108,000	PILOT STUDY	F428 FITZSIMONS BUILDING 500
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS A
UCLA OFFICE OF CONTRACT AND GRANT A	LOS ANGELES	CA	900241406	956006143	501c(3)	$108,000	PILOT STUDY	10920 WILSHIRE BLVD SUITE 200
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
UCSF OFFICE OF SPONSORED RESEARCH	SAN FRANCISCO	CA	941430962	946036493	501c(3)	$54,000	PILOT STUDY	3333 CALIFORNIA STREET SUITE 315
OREGON STATE UNIVERSITY
312 KERR ADMINISTRATION BLDG	CORVALLIS	OR	973312140	611730890	IRC 115	$50,000	PILOT STUDY
LONG ISLAND JEWISH MEDICAL CENTER
FINANCE DEPARTMENT	WESTBURY	NY	11590	112241326	501c(3)	$242,539	QUALITY IMPROVEMENT	972 BRUSHHOLLOW ROAD
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$146,085	QUALITY IMPROVEMENT
THE MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLK RD	MILWAUKEE	WI	53226	390806261	501c(3)	$81,000	QUALITY IMPROVEMENT
ANN AND ROBERT H LURIE CHILDREN'S HOSPITAL OF CHI
2300 CHILDRENS PLAZA - BOX 205	CHICAGO	IL	60614	362170833	501c(3)	$37,800	QUALITY IMPROVEMENT
OREGON HEALTH & SCIENCE UNIVERSITY
SPONSORED PROJECTS ADMINISTRATION O	PORTLAND	OR	97239	237083114	501c(3)	$32,400	QUALITY IMPROVEMENT	0690 SW BANCROFT STREET
SEATTLE CHILDREN'S HOSPITAL
4800 SAND POINT WAY NE MS T-0111	SEATTLE	WA	98105	910564748	501c(3)	$24,357	QUALITY IMPROVEMENT
BRIGHAM AND WOMEN'S HOSPITAL BOSTON
10 VINING	BOSTON	MA	02115	042312909	501c(3)	$38,835	QUALITY IMPROVEMENT
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501c(3)	$1,058,488	QUALITY IMPROVEMENT
VIRGINIA COMMONWEALTH UNIVERSITY
BOX 2506 - VCU STATION	RICHMOND	VA	232842506	546001758	IRC 115	$119,149	QUALITY IMPROVEMENT
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$133,782	QUALITY IMPROVEMENT	OFFICE OF SPONSORED RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501c(3)	$128,376	QUALITY IMPROVEMENT
UNIVERSITY OF CINCINNATI PHYSICIANS COMPANY
231 ALBERT SABIN WAY	CINCINNATI	OH	452670564	311405915	501c(3)	$92,434	QUALITY IMPROVEMENT	MSB 60048
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501c(3)	$5,400	QUALITY IMPROVEMENT
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTI
3901 RAINBOW BOULEVARD MSN 1039	KANSAS CITY	KS	661032937	481108830	501c(3)	$94,016	QUALITY IMPROVEMENT
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$32,400	QUALITY IMPROVEMENT
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS	AURORA	CO	800450508	846000555	501c(3)	$209,280	QUALITY IMPROVEMENT	F428 FITZSIMONS BUILDING 500
BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UN
651 SERRA STREET SUITE 220	STANFORD	CA	943056215	941156365	501c(3)	$100,000	RESEARCH
BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
809 S MARSHFIELD AVENUE	CHICAGO	IL	606127205	376000511	501c(3)	$120,824	RESEARCH	MB 502 M/C 551
BRIGHAM AND WOMEN'S HOSPITAL BOSTON
10 VINING	BOSTON	MA	02115	042312909	501c(3)	$108,000	RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501c(3)	$534,441	RESEARCH	ATTN DEBORAH ELAM
CHILDREN'S HOSPITAL & RESEARCH CENTER AT OAKLAND
747 52ND STREET	OAKLAND	CA	94609	940382330	501c(3)	$231,800	RESEARCH
CHILDREN'S RESEARCH INSTITUTE (AT CNMC)
CHILDRENS NATIONAL MEDICAL CENTER	WASHINGTON	DC	20010	521654453	501c(3)	$108,000	RESEARCH	111 MICHIGAN AVENUE NW
EMORY UNIVERSITY
1599 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501c(3)	$108,000	RESEARCH
HARVARD MEDICAL SCHOOL
200 LONGWOOD AVENUE	BOSTON	MA	02115	042103580	501c(3)	$107,492	RESEARCH
NATIONAL DISEASE RESEARCH INTERCHANGE
8 PENN CENTER 15TH FLOOR	PHILADELPHIA	PA	19103	232213205	501c(3)	$236,500	RESEARCH	1628 JFK BOULEVARD
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501c(3)	$216,000	RESEARCH
ORGAN ALLIANCE INC
115 W 18TH ST 2ND FLOOR	NEW YORK	NY	10011	460806598	501c(3)	$250,000	RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501c(3)	$432,000	RESEARCH
THE CURATORS OF THE UNIVERSITY OF MISSOURI
OFFICE OF SPONSORED PROGRAM ADMINIS	COLUMBIA	MO	65211	436003859	IRC 115	$374,000	RESEARCH	310 JESSE HALL
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
MASS GENERAL RESEARCH FINANCE	BOSTON	MA	02114	042697983	501c(3)	$295,115	RESEARCH	PO BOX 414876
THE JOHNS HOPKINS UNIVERSITY
600 N WOLFE STREET PARK 316	BALTIMORE	MD	21205	520595110	501c(3)	$423,946	RESEARCH
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316025986	IRC 115	$208,000	RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501c(3)	$108,000	RESEARCH
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
SPONSORED PROJECTS ADMINISTRATION	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$108,000	RESEARCH	200 OAK ST SE
THE SCRIPPS RESEARCH INSTITUTE
10666 NORTH TORREY PINES ROAD	LA JOLLA	CA	92037	330435954	501c(3)	$108,000	RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501c(3)	$556,760	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$233,000	RESEARCH	OFFICE OF SPONSORED RESEARCH
THE UNIVERSITY OF TEXAS AT AUSTIN
P O BOX 7726	AUSTIN	TX	787137726	746000203	IRC 115	$106,777	RESEARCH
THE UNIVERSITY OF VERMONT AND STATE AGRICULTURAL C
85 SO PROSPECT STREET	BURLINGTON	VT	054050160	030179440	501c(3)	$108,000	RESEARCH
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501c(3)	$215,755	RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
133 SOUTH 36TH STREET MEZZANINE	PHILADELPHIA	PA	191043246	231352685	501c(3)	$108,000	RESEARCH
UNIVERSITY HOSPITALS OF CLEVELAND RAINBOW BABIES
2074 ABINGDON ROAD	CLEVELAND	OH	44106	341567805	501c(3)	$106,951	RESEARCH
UNIVERSITY OF CENTRAL FLORIDA RESEARCH FOUNDATION
12201 RESEARCH PARKWAY SUITE 501	ORLANDO	FL	32826	593086453	501c(3)	$108,000	RESEARCH
UNIVERSITY OF CINCINNATI
560 UNIVERSITY HALL	CINCINNATI	OH	45221	316000989	IRC 115	$125,000	RESEARCH	SPONSORED PROGRAMS ACCOUNTING DEPT
UNIVERSITY OF FLORIDA
SHANDS CHILDRENS HOSPITAL	GAINSVILLE	FL	32610	596002052	IRC 115	$108,000	RESEARCH	1600 SW ARCHER RD SUITE D2-15
UNIVERSITY OF IOWA
GRANT ACCOUNTING OFFICE	IOWA CITY	IA	52242	426004813	IRC 115	$215,900	RESEARCH	B 5 JESSUP HALL
UNIVERSITY OF MARYLAND - COLLEGE PARK
3112 LEE BUILDING	COLLEGE PARK	MD	207425141	526002033	IRC 115	$108,000	RESEARCH
UNIVERSITY OF MIAMI
PEDIATRIC/PULMONARY DIVISION	MIAMI	FL	33136	590624458	501c(3)	$108,000	RESEARCH	1601 NW 12TH AVENUE
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$233,000	RESEARCH
UNIVERSITY OF SOUTH ALABAMA
ADMIN BLDG 362	MOBILE	AL	36688	630477348	501c(3)	$108,000	RESEARCH
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$453,824	RESEARCH
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$318,922	RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	271571064	223849199	501c(3)	$26,422	RESEARCH
YALE UNIVERSITY
47 COLLEGE STREET SUITE 203	NEW HAVEN	CT	065208047	060646973	501c(3)	$108,000	RESEARCH
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$500,000	RESEARCH CENTER
EMORY UNIVERSITY
1599 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501c(3)	$462,333	RESEARCH CENTER
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HO
700 CHILDRENS DRIVE	COLUMBUS	OH	43260	316056230	501c(3)	$100,000	RESEARCH CENTER	DEPT 4656 / REF 413407
CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501c(3)	$470,000	RESEARCH CENTER	3333 BURNET AVENUE
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501c(3)	$525,000	RESEARCH CENTER
SEATTLE INSTITUTE FOR BIOMEDICAL AND CLINICAL RESE
1660 SO COLUMBIAN WAY	SEATTLE	WA	98108	911452438	501c(3)	$600,000	RESEARCH CENTER	S-151F
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$600,000	RESEARCH CENTER
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501c(3)	$520,000	RESEARCH CENTER
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$600,000	RESEARCH CENTER	OFFICE OF SPONSORED RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501c(3)	$525,000	RESEARCH CENTER
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501c(3)	$923,133	RESEARCH CENTER	ATTN DEBORAH ELAM
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
UCSF OFFICE OF SPONSORED RESEARCH	SAN FRANCISCO	CA	941430962	946036493	501c(3)	$430,000	RESEARCH CENTER	3333 CALIFORNIA STREET SUITE 315
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$47,930	RESEARCH STUDY
EMORY UNIVERSITY
1599 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501c(3)	$46,250	RESEARCH STUDY
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316025986	IRC 115	$94,180	RESEARCH STUDY
CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501c(3)	$46,250	RESEARCH STUDY	3333 BURNET AVENUE
NATIONAL JEWISH MEDICAL AND RESEARCH CENTER
1400 JACKSON STREET	DENVER	CO	80206	742044647	501c(3)	$46,250	RESEARCH STUDY
CALIFORNIA INSTITUTE OF TECHNOLOGY
1200 E CALIFORNIA BLVD	PASADENA	CA	91125	951643307	501c(3)	$95,932	RESEARCH STUDY	M/C 201-15
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVENUE NE BOX 359472	SEATTLE	WA	981959472	916001537	IRC 115	$94,180	RESEARCH STUDY
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
MASS GENERAL RESEARCH FINANCE	BOSTON	MA	02114	042697983	501c(3)	$47,930	RESEARCH STUDY	PO BOX 414876
HARVARD MEDICAL SCHOOL
200 LONGWOOD AVENUE	BOSTON	MA	02115	042103580	501c(3)	$46,250	RESEARCH STUDY
TRUSTEES OF DARTMOUTH COLLEGE
11 ROPE FERRY ROAD 6210	HANOVER	NH	037551404	020222111	501c(3)	$47,930	RESEARCH STUDY
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501c(3)	$46,250	RESEARCH STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$190,112	RESEARCH STUDY	OFFICE OF SPONSORED RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501c(3)	$47,930	RESEARCH STUDY
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	441067037	341018992	501c(3)	$47,930	RESEARCH STUDY	ATTN DEBORAH ELAM
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
SPONSORED PROJECTS ADMINISTRATION	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$46,250	RESEARCH STUDY	200 OAK ST SE
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$47,930	RESEARCH STUDY
THE UNIVERSITY OF TEXAS AT AUSTIN
P O BOX 7726	AUSTIN	TX	787137726	746000203	IRC 115	$136,830	RESEARCH STUDY
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
UCSF OFFICE OF SPONSORED RESEARCH	SAN FRANCISCO	CA	941430962	946036493	501c(3)	$46,230	RESEARCH STUDY	3333 CALIFORNIA STREET SUITE 315
UNIVERSITY OF PITTSBURGH
350 THACKERAY HALL	PITTSBURGH	PA	15260	250965591	501c(3)	$62,144	TRAINING
EMORY UNIVERSITY
1599 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501c(3)	$67,750	TRAINING
VANDERBILT UNIVERSITY MEDICAL CENTER
1161 21ST AVENUE SOUTH	NASHVILLE	TN	37232	352528741	501c(3)	$130,000	TRAINING	SUITE D3300 MCN
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S H
700 CHILDRENS DRIVE	COLUMBUS	OH	43260	316056230	501c(3)	$130,000	TRAINING	DEPT 4656 / REF 413407
CHILDREN'S HOSPITAL MEDICAL CENTER (CINCINNATI CHI
RESEARCH ACCOUNTING	CINCINNATI	OH	45229	310833936	501c(3)	$66,250	TRAINING	3333 BURNET AVENUE
UNIVERSITY OF IOWA
GRANT ACCOUNTING OFFICE	IOWA CITY	IA	52242	426004813	IRC 115	$105,000	TRAINING	B 5 JESSUP HALL
BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SY
750 UNIVERSITY AVENUE	MADISON	WI	53706	396006492	IRC 115	$61,250	TRAINING
UNIVERSITY OF COLORADO HEALTH SCIENCES CENTER
4200 E 9TH AVENUE	DENVER	CO	80262	846000555	501c(3)	$66,250	TRAINING
UNIVERSITY OF MIAMI
PEDIATRIC/PULMONARY DIVISION	MIAMI	FL	33136	590624458	501c(3)	$100,000	TRAINING	1601 NW 12TH AVENUE
THE GENERAL HOSPITAL CORPORATION (MASSACHUSETTS GE
MASS GENERAL RESEARCH FINANCE	BOSTON	MA	02114	042697983	501c(3)	$278,845	TRAINING	PO BOX 414876
CHILDREN'S HOSPITAL CORPORATION (BOSTON CHILDREN'S
300 LONGWOOD AVE	BOSTON	MA	021155737	042774441	501c(3)	$63,750	TRAINING
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3516 CIVIC CENTER BLVD	PHILADELPHIA	PA	191044318	231352166	501c(3)	$61,250	TRAINING
VIRGINIA COMMONWEALTH UNIVERSITY
BOX 2506 - VCU STATION	RICHMOND	VA	232842506	546001758	IRC 115	$61,250	TRAINING
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	CHAPEL HILL	NC	275991350	566001393	501c(3)	$127,500	TRAINING	OFFICE OF SPONSORED RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S THT422	BIRMINGHAM	AL	352940006	636005396	501c(3)	$68,500	TRAINING
TRUSTEES OF INDIANA UNIVERSITY
FINANCIAL MANAGEMENT SERVICES	BLOOMINGTON	IN	462666057	356001673	501c(3)	$227,500	TRAINING	PO BOX 66057
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET ROOM 3089	ANN ARBOR	MI	481091274	386006309	501c(3)	$66,250	TRAINING
THE REGENTS OF THE UNIVERSITY OF MINNESOTA
SPONSORED PROJECTS ADMINISTRATION	MINNEAPOLIS	MN	554552070	416007513	IRC 115	$66,250	TRAINING	200 OAK ST SE
UT SOUTHWESTERN MEDICAL CENTER AT DALLAS
5323 HARRY HINES BLVD	DALLAS	TX	753909040	756002868	IRC 115	$61,250	TRAINING
REGENTS OF THE UNIVERSITY OF COLORADO AT DENVER
GRANTS CONTRACTS	AURORA	CO	800450508	846000555	501c(3)	$124,000	TRAINING	F428 FITZSIMONS BUILDING 500
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN F
UCSF OFFICE OF SPONSORED RESEARCH	SAN FRANCISCO	CA	941430962	946036493	501c(3)	$230,000	TRAINING	3333 CALIFORNIA STREET SUITE 315
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501C(3)	$317,055	CF CARE CENTER
Saint Barnabas Medical Center
Pediatric Pulmonary Division	Livingston	NJ	07039	221494440	501C(3)	$35,230	CF CARE CENTER
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS INC
4550 MONTGOMERY AVE SUITE 1100N	BETHESDA	MD	20814	912059167	501c(3)	$138,829,706	GENERAL SUPPORT

Field	Value	IRS element (for citing)
Total501c3 Org	201	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (3 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Cash GrantCashGrantAmt
PATIENT ASSISTANCE PROGRAM	51	$45,977
FELLOWSHIPS	9	$73,745
COMMUNITY IMPACT GRANTS	2	$17,854

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.

SCHEDULE I, PART I, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE U.S. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTION. FOR GRANTS TO FOR-PROFIT ORGANIZATIONS THE CF FOUNDATION HAS PROCEDURES IN PLACE TO 1) SEE THAT THE GRANT FUNDS AWARDED ARE SPENT ONLY FOR THE PURPOSE FOR WHICH THE GRANT IS MADE AND 2) OBTAIN FULL AND COMPLETE REPORTS FROM THE GRANTEE ORGANIZATION ON HOW THE FUNDS ARE SPENT CONSISTENT WITH IRS GUIDELINES FOR EXPENDITURE RESPONSIBILITY. THE ORGANIZATION PERFORMS PRE-GRANT INQUIRIES DEALING WITH MATTERS SUCH AS THE IDENTITY, HISTORY, ACTIVITIES, AND PRACTICES OF THE GRANTEE TO GAIN REASONABLE ASSURANCE THAT THEY WILL USE THE GRANT FUNDS FOR THE PURPOSE FOR WHICH RECEIVED. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE THAT INCLUDES THE FOLLOWING AGREEMENTS: ANY AMOUNTS NOT USED FOR PURPOSES OF THE GRANT WILL BE REPAID, THE GRANTEE WILL KEEP RECORDS OF RECEIPTS AND EXPENDITURES AND MAKE THEM AVAILABLE TO THE GRANTOR AT REASONABLE TIMES, AND FUNDS CANNOT BE USED TO INFLUENCE LEGISLATION OR UNDERTAKE ANY NONEXEMPT ACTIVITY.

SCHEDULE I, PART III

CFF PERFORMED EXTENSIVE MONITORING OF PATIENT ASSISTANCE GRANTS IN ACCORDANCE WITH DHHS OIG REGULATIONS. FELLOWSHIPS ARE AWARDED TO INVESTIGATORS CONDUCTING RESEARCH RELATED TO GRANTS REPORTED IN PART II. SEE SUPPLEMENTAL INFORMATION FOR PART I, LINE 2 FOR PROCEDURES USED TO MONITOR THESE GRANTS. PRIOR TO MAKING FELLOWSHIP PAYMENTS, SUPPORTING DOCUMENTATION OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. COMMUNITY IMPACT GRANTS ARE AWARDED TO INDIVIDUALS CONDUCTING PROGRAMS PROPOSED BY AND FOR PEOPLE WITH CF AND THEIR FAMILIES. PRIOR TO MAKING FINAL IMPACT GRANT PAYMENTS, EXPENDITURE REPORTS ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE.

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (true)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (true)	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
PRESTON CAMPBELL MD
PRESIDENT & CEO	$357,226	$180,509	$152,289	$75,008	$107,125	$49,057	$162,842	$66,877	$26,232	$0	$805,714	$371,451	$147,413	$72,607
JOHN MAHLER MD
CHIEF INVESTMENT OFFICER	$177,342	$0	$650,000	$0	$3,403	$0	$100,000	$0	$9,987	$0	$940,732	$0	$0	$0
MARC S GINSKY
EXECUTIVE VP, COO & SECRETARY	$279,180	$0	$25,000	$0	$1,360	$0	$128,668	$0	$20,974	$0	$455,182	$0	$0	$0
VERA H TWIGG
EXECUTIVE VP & CFO	$319,108	$0	$128,023	$0	$18,000	$0	$72,613	$0	$30,411	$0	$568,155	$0	$41,247	$0
ROBERT J BEALL PHD
FORMER CEO&CURRENT CONSULTANT	$268,508	$3,206	$210,054	$103,459	$39,476	$19,444	$565	$0	$0	$0	$518,603	$126,109	$113,893	$56,096
C RICHARD MATTINGLY
FORMER COO	$0	$0	$0	$0	$135,951	$0	$7,251	$0	$0	$0	$143,202	$0	$102,921	$0
DRUCY S BOROWITZ MD
SVP, COMMUNITY PARTNERSHIPS	$307,519	$0	$10,000	$0	$3,348	$0	$5,000	$0	$2,550	$0	$328,417	$0	$0	$0
TIMOTHY A WAIRE JR
CHIEF INFORMATION OFFICER	$262,540	$0	$44,653	$0	$813	$0	$32,060	$0	$30,411	$0	$370,477	$0	$0	$0
LEAH BLOOM PHD
CHIEF OF STRATEGY	$274,659	$0	$30,529	$0	$489	$0	$14,780	$0	$34,218	$0	$354,675	$0	$0	$0
WILLIAM BLANTON
DIRECTOR OF INVESTMENTS	$266,030	$0	$42,900	$0	$542	$0	$27,060	$0	$1,350	$0	$337,882	$0	$0	$0
MARYBETH MCMAHON PHD
CHIEF OF STAFF	$255,891	$0	$35,856	$0	$2,326	$0	$32,060	$0	$19,035	$0	$345,168	$0	$0	$0
BRUCE MARSHALL MD
SENIOR VP, CLINICAL AFFAIRS	$323,150	$79,919	$60,229	$14,896	$2,933	$725	$25,703	$6,357	$46	$11	$412,061	$101,908	$0	$0
WILLIAM SKACH MD
SENIOR VP, RESEARCH AFFAIRS	$50,388	$285,530	$7,259	$41,136	$545	$3,091	$3,683	$20,872	$4,442	$25,170	$66,317	$375,799	$0	$0

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 4A SEVERANCE PAYMENTS:	A FORMER OFFICER LISTED ON THE FORM 990, PART VII, SECTION A RECEIVED PAYMENTS UNDER A SEVERANCE ARRANGEMENT, AS DESCRIBED IN FURTHER DETAIL IN SCHEDULE J, PART III, FOOTNOTE 10, BELOW.
PART I, LINE 4B - SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN:	CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO THE DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE, INCLUDING THE AMOUNT OF ANY PAYMENT MADE BY THE PLAN DURING THE REPORTING YEAR, IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
PART I, LINE 7	SEVERAL INDIVIDUALS LISTED IN FORM 990, PART VII, SECTION A, LINE 1A, (WHO ARE IDENTIFIED IN PART II, BELOW) PARTICIPATED IN THE FOUNDATION'S INCENTIVE COMPENSATION PLAN, FROM WHICH NON-FIXED PAYMENTS NOT DESCRIBED IN LINES 5 AND 6 WERE PAID. THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF ANNUAL PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES. IN ADDITION, THE INCENTIVE COMPENSATION PLAN PAYS NON-FIXED PAYMENTS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, THE ACHIEVEMENT OF LONG-TERM PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS.
PART II	CYSTIC FIBROSIS FOUNDATION. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $357,226; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $92,169, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $60,120; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $7,524, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS - $8,375, VESTED SERP ACCOUNT (8) - $86,402; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $70,122, SERP (4) - $65,660; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $16,970, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $6,712; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $147,413. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $180,509; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $45,396, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $29,612; (B)(III) OTHER REPORTABLE COMPENSATION: AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS - $4,125, VESTED SERP ACCOUNT (8) - $42,556; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $34,537, SERP (4) - $32,340; (D) NONTAXABLE BENEFITS: $0; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $72,607. CYSTIC FIBROSIS FOUNDATION. (A) NAME: M. GINSKY.; (B)(I) BASE COMPENSATION: BASE SALARY - $279,180; (B)(II) BONUS & INCENTIVE COMPENSATION: GUARANTEED INCENTIVE $25,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $1,360; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $128,668; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $14,001, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,400, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,573; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $0. CYSTIC FIBROSIS FOUNDATION. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $319,108; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) $86,776, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS PREVIOUSLY REPORTED (6) - $41,247; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $18,000; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $27,060, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $38,375, SERP (4) - $7,178; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $20,429, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $2,550, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,432; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $41,247. CYSTIC FIBROSIS FOUNDATION. (A) NAME: J. MAHLER; (B)(I) BASE COMPENSATION: BASE SALARY - $177,342; (B)(II) BONUS & INCENTIVE COMPENSATION: GUARANTEED INCENTIVE (9) $650,000; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $3,403; (C) DEFERRED COMPENSATION: SERP (4) - $100,000; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $7,521, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $700, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $1,766; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $0. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $6,508; EXECUTIVE ADVISORY CONSULTING SERVICES FEES - $262,000; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT FOR 2015 (1) $124,948, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS EARNED IN PRIOR YEARS AND PREVIOUSLY REPORTED AS DEFERRED COMPENSATION (6) - $85,106; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $39,476; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) $565; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $113,893. CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $3,206; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT FOR 2015 (1) $61,541, LONG-TERM INCENTIVE PLAN PAYMENT, WHICH WAS EARNED IN PRIOR YEARS AND PREVIOUSLY REPORTED AS DEFERRED COMPENSATION (6) - $41,918; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $19,444 (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $56,096. CYSTIC FIBROSIS FOUNDATION. (A) NAME: R. MATTINGLY; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN DISTRIBUTION (7) - $76,130; SEVERANCE PAY (10) - $59,821; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN SEVERANCE BENEFIT (11) - $7,251; (F) COMPENSATION REPORTED IN PRIOR FORM 990 (3) - $102,921. (1) THIS IS AN AWARD SUBJECT TO, AND BASED ON, ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2016 PLAN YEAR. (3) THIS AMOUNT, ALTHOUGH ALSO INCLUDED IN COLUMN B OF THIS FORM 990, HAS ALREADY BEEN REPORTED AS COMPENSATION ON PRIOR YEARS' FORM 990S, AND THEREFORE (AS REQUIRED BY THE INSTRUCTIONS) IS DOUBLE-REPORTED HERE. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING THE VESTING DATE DESIGNATED BY CFF (WHICH IS EITHER A SPECIFIED AGE OR DATE, DEPENDING ON THE PARTICIPANT). C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX-QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5) A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS (CURRENTLY $18,000). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, SUBJECT TO, AND BASED ON, ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. ANY FINANCIAL PERFORMANCE OBJECTIVES ESTABLISHED UNDER THE INCENTIVE COMPENSATION PLAN DO NOT INCLUDE PROGRAM-RELATED REVENUES (SUCH AS ROYALTY STREAMS, LUMP-SUM PAYMENTS, OTHER PROGRAM-RELATED INCOME, AND SALES PROCEEDS FROM TRANSFER OF THE FOREGOING TO THIRD PARTIES) RELATED TO THE DEVELOPMENT AND APPROVAL OF CF DRUGS. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED IN COLUMN (C) ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2016 (I.E., WITH RESPECT TO THE 2014-2016, 2015-2017 AND THE 2016-2018 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED IN COLUMN (C) HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/16, 12/31/17 AND 12/31/18 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2014-2016, 2015-2017, AND THE 2016-2018 PERFORMANCE PERIODS, RESPECTIVELY. THE AWARD RELATING TO THE 3-YEAR PERFORMANCE PERIOD ENDING 12/31/15 WAS PAID IN 2016, AND IS PROPERLY REPORTE

Schedule M IRS990ScheduleM

Field	Value	IRS element (for citing)
Works Of Art		WorksOfArtGrp
Art Historical Treasures		ArtHistoricalTreasuresGrp
Art Fractional Interest		ArtFractionalInterestGrp
Books And Publications		BooksAndPublicationsGrp
Clothing And Household Goods		ClothingAndHouseholdGoodsGrp

Cars And Other Vehicles CarsAndOtherVehiclesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	106	ContributionCnt
Noncash Contributions Rpt F990	$40,112	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Boats And Planes		BoatsAndPlanesGrp
Intellectual Property		IntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	185	ContributionCnt
Noncash Contributions Rpt F990	$2,695,909	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Securities Closely Held Stock		SecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust Intrsts		SecurPrtnrshpTrustIntrstsGrp
Securities Miscellaneous		SecuritiesMiscellaneousGrp
Qualified Contrib Hist Struct		QualifiedContribHistStructGrp
Qualified Contrib Other		QualifiedContribOtherGrp
Real Estate Residential		RealEstateResidentialGrp
Real Estate Commercial		RealEstateCommercialGrp
Real Estate Other		RealEstateOtherGrp
Collectibles		CollectiblesGrp
Food Inventory		FoodInventoryGrp
Drugs And Medical Supplies		DrugsAndMedicalSuppliesGrp
Taxidermy		TaxidermyGrp
Historical Artifacts		HistoricalArtifactsGrp
Scientific Specimens		ScientificSpecimensGrp
Archaeological Artifacts		ArchaeologicalArtifactsGrp

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	TANGIBLE&SERVICE AUCTION ITEMS	Desc
Contribution	20941	ContributionCnt
Noncash Contributions Rpt F990	$8,802,424	NoncashContributionsRptF990Amt
Method Of Determining Revenues	NET CASH RECEIPTS	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Form8283 Received	1	Form8283ReceivedCnt
Any Property That Must Be Held	false	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (true)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (true)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	THIRD PARTY SELLER	FormAndLineReferenceDesc
Explanation	SCHEDULE M, PART I, LINE 6 CYSTIC FIBROSIS FOUNDATION CONTRACTS WITH A THIRD PARTY TO ADMINISTER ITS VEHICLE DONATION PROGRAM AND SELL DONATED VEHICLES. THE THIRD PARTY DOES NOT SOLICIT DONATIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
SIGNIFICANT CHANGES TO GOVERNING DOCUMENTS	PART VI, SECTION A, LINE 4 DURING 2016, THE CYSTIC FIBROSIS FOUNDATION AMENDED ITS BYLAWS TO 1) CHANGE THE NUMBER OF AT LARGE TRUSTEES FROM 16 TO 12-18 AND 2) EXPAND THE DURATION OF TRUSTEE AT LARGE, BOARD OFFICER AND COUNCIL CHAIR TERMS TO THREE YEARS. REVIEW OF 990 BY GOVERNING BODY PART VI, SECTION B, LINE 11B THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATIONS ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES. IN ALL CASES THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A COMPLETE COPY OF THE FINAL FORM 990 BEFORE IT IS FILED.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER, OFFICER, AND KEY EMPLOYEE. DISCLOSURES PROVIDED ARE REPORTED TO THE GOVERNANCE COMMITTEE AND THE BOARD OF TRUSTEES. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2016 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF CURING CYSTIC FIBROSIS AND PROVIDING ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: (1) IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. (2) ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. (3) ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. (4) REVIEWS ALL ELEMENTS OF EACH EXECUTIVES TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVES HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVES ENTIRE COMPENSATION PACKAGE TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. (5) DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. (6) OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEES COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS USED TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR KEY EMPLOYEES OF THE ORGANIZATION: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT, COO AND SECRETARY EXECUTIVE VICE PRESIDENT AND CFO CHIEF INVESTMENT OFFICER SENIOR VP, RESEARCH AFFAIRS SENIOR VP, CLINICAL AFFAIRS THE PROCESS WAS LAST UNDERTAKEN IN 2016, WITH THE EXCEPTION OF THAT FOR THE CEO POSITION WHICH WAS LAST CONDUCTED IN 2015.
PUBLIC INSPECTION	PART VI, SECTION C, LINE 19 FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A DIRECT LINK TO ITS FORM 990 ON GUIDESTAR.ORG. THE FOUNDATIONS GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2016. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATIONS WEBSITE, WWW.CFF.ORG, DURING 2016.
PART VII, SECTION A	REPORTABLE COMPENSATION FROM THE ORGANIZATION A PORTION OF THIS BASE COMPENSATION AMOUNT WAS PAID TO DR. BEALL WITH RESPECT TO HIS SERVICES AS AN EMPLOYEE, WHICH TERMINATED ON 12/31/15. HE WAS PAID FOR THOSE SERVICES IN ACCORDANCE WITH THE ORGANIZATIONS STANDARD PAY PRACTICES, WHICH CAUSED HIS FINAL PAYCHECK AS AN EMPLOYEE TO BE PAID ON THE FIRST PAYDATE DURING 2016. THEREFORE THE COMPENSATION IS REPORTABLE COMPENSATION FOR 2016. DR. BEALL RECEIVED NO BASE PAY AS A FORMER OFFICER OF THE ORGANIZATION. IN ADDITION, DR. BEALL RECEIVED COMPENSATION FOR SERVICES HE PROVIDED AS AN INDEPENDENT CONTRACTOR FOR EXECUTIVE ADVISORY CONSULTING SERVICES HE PROVIDED TO THE ORGANIZATION DURING 2016.
FORM 990, PART X, LINE 27	UNRESTRICTED NET ASSETS BOARD DESIGNATED THE FOUNDATIONS UNRESTRICTED NET ASSETS TOTALED $3,720,457,947 AS OF DECEMBER 31, 2016. OF THIS AMOUNT, THE FOUNDATIONS BOARD OF TRUSTEES HAS DESIGNATED $3,300,000,000 TO BE SPENT IN SUPPORT OF THE MISSION OF THE FOUNDATION OVER THE LONG TERM.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS PATIENT ASSISTANCE FDN	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE STE 1100 N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	900350985	EIN
Primary Activities	PATIENT ASST	PrimaryActivitiesTxt
Legal Domicile State	DE	LegalDomicileStateCd
Total Income	$0	TotalIncomeAmt
End Of Year Assets	$0	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF	BusinessNameLine1Txt

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION THERAPEUTICS	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	4550 MONTGOMERY AVE STE 1100 N	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	912059167	EIN
Primary Activities	RESEARCH	PrimaryActivitiesTxt
Legal Domicile State	MD	LegalDomicileStateCd
Exempt Code Section	501(c)(3)	ExemptCodeSectionTxt
Public Charity Status	11A	PublicCharityStatusTxt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Controlled Organization	false	ControlledOrganizationInd

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (true)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	false	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	false	DivRelatedOrganizationInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	Yes (true)	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (true)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (3 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
B	$138,829,706	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
N	$920,354	COST
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
O	$1,972,835	COST