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PROJECT 8P FOUNDATION: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
PROJECT 8P FOUNDATION (EIN 83-2545342)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-11-05
IRS object ID
202523109349301402
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-11-05T16:40:23-05:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN474306215PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Mullins PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17625 Wisconsin AvenueAddressLine1Txt
CityBethesdaCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN832545342EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Project 8p FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% Bina ShahInCareOfNm
Business Name ControlPROJBusinessNameControlTxt
Phone2122483260PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1787 Seventh Avenue 31st floorAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10019ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonBINA SHAHPersonNm
Person TitleFounderCEOTreasurerPersonTitleTxt
Phone2122483260PhoneNum
Signature2025-11-05SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJOHN MULLINSPreparerPersonNm
PTINP01429307PTIN
Phone2027706371PhoneNum
Preparation2025-11-05PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerBina ShahPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1787 Seventh Avenue 31st floorAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10019ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$1,888,508GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.project8p.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2018FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTo empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. Activities include clinical care, research, AI data-driven platform and biorepository, and education and advocacy.ActivityOrMissionDesc
Voting Members Governing Body4VotingMembersGoverningBodyCnt
Voting Members Independent4VotingMembersIndependentCnt
Total Employee3TotalEmployeeCnt
Total Volunteers10TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,930,820PYContributionsGrantsAmt
CY Contributions Grants$1,787,094CYContributionsGrantsAmt
CY Program Service Revenue$19,288CYProgramServiceRevenueAmt
PY Investment Income$31,051PYInvestmentIncomeAmt
CY Investment Income$53,281CYInvestmentIncomeAmt
PY Other Revenue$49,488PYOtherRevenueAmt
CY Other Revenue$28,845CYOtherRevenueAmt
PY Total Revenue$2,011,359PYTotalRevenueAmt
CY Total Revenue$1,888,508CYTotalRevenueAmt
PY Grants And Similar Paid$378,466PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$491,099CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$20,686PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$248,683CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$51,294CYTotalFundraisingExpenseAmt
PY Other Expenses$514,157PYOtherExpensesAmt
CY Other Expenses$647,660CYOtherExpensesAmt
PY Total Expenses$913,309PYTotalExpensesAmt
CY Total Expenses$1,387,442CYTotalExpensesAmt
PY Revenues Less Expenses$1,098,050PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$501,066CYRevenuesLessExpensesAmt
Total Assets BOY$2,492,008TotalAssetsBOYAmt
Total Assets EOY$2,943,272TotalAssetsEOYAmt
Total Liabilities BOY$188,594TotalLiabilitiesBOYAmt
Total Liabilities EOY$86,971TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,303,414NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,856,301NetAssetsOrFundBalancesEOYAmt
MissionTo empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. Activities include clinical care, research, AI data-driven platform and biorepository, and education and advocacy.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$927,478ExpenseAmt
Grant$468,599GrantAmt
DescScientific Programs: Project 8p Foundation partners with top researchers and biopharma to uncover the causes of chromosome 8p disorders and improve the lives of those affected. Our work addresses urgent biological questionssuch as symptom progression, mitochondrial dysfunction, gut-brain interactions, and cellular stressto deliver actionable clinical tools for families today, while accelerating discoveries that can lead to scalable treatments for all communities affected by complex neurodevelopmental and neuromuscular conditions. Were advancing innovative technologies and accelerating therapeutic discovery by harnessing data in new ways. Our proprietary 8p Insights Portal is a growing, patient-centered resource that integrates clinical records, caregiver-reported outcomes, and biospecimen datadriving scientific breakthroughs and delivering meaningful impact for those living with chromosome 8p disorders.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$218,505ExpenseAmt
Grant$2,500GrantAmt
Revenue$19,288RevenueAmt
DescCommunity Outreach & Conferences: Project 8p supported over 200 families with clinical tools, education, and services. We hosted a three-day Family & Science Conference, bringing together researchers, clinicians, and families to foster collaboration and accelerate progress. Through monthly roundtables and ongoing stakeholder education, we promote a team science approach while sharing the latest research, clinical insights, and lived experiences. These efforts strengthen our shared goals and ensure the voices of those affected by 8p remain central to every initiative.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$34,196ExpenseAmt
Grant$20,000GrantAmt
DescPatient Impact (Clinics & Care): Project 8p advanced its mission to improve clinical care for individuals with chromosome 8p disorders through several key initiatives. We published the first-ever Clinical Care Guidelines for 8p, providing an evidence-informed framework to guide physicians and care teams worldwide. We also launched the Patient Navigator, a free, interactive, online tool that helps families and clinicians understand symptoms across body systemsdrawing on real-world data from our 8p Insights Portal.Additionally, we expanded our Multidisciplinary Hospital Clinic Model, supporting the development of coordinated care hubs that bring together specialists to provide comprehensive, patient-centered services. These efforts mark important strides in reducing diagnostic delays, improving care coordination, and empowering families with accessible, data-driven resources.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,180,179TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document7IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee3EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members4GoverningBodyVotingMembersCnt
Independent Voting Member4IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonThe OrganizationPersonNm
Phone2122483260PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1787 Seventh Avenue 31st floorAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10019ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (6 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Lauren Chaby
Executive Director40.000.00Yes (X)$102,083$0$0
Wissam Nesr
Director1.000.00$0$0$0Yes (X)
David Jackson
Director1.000.00$0$0$0Yes (X)
Jahn Marie Surette
Director1.000.00$0$0$0Yes (X)
Bina Shah
FounderCEOTreasurer5.000.00Yes (X)$0$0$0Yes (X)
Erica Seaborne
Secretary1.000.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$102,083TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$1,787,094AllOtherContributionsAmt
Total Contributions$1,787,094TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescRegistrationsDesc
Business900099BusinessCd
Total Revenue Column$19,288TotalRevenueColumnAmt
Related Or Exempt Func Income$19,288RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$19,288TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$53,281TotalRevenueColumnAmt
Exclusion$53,281ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$28,845FundraisingGrossIncomeAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$28,845TotalRevenueColumnAmt
Exclusion$28,845ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,888,508TotalRevenueColumnAmt
Related Or Exempt Func Income$19,288RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$82,126ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$425,418TotalAmt
Program Services$425,418ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$2,500TotalAmt
Program Services$2,500ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$63,181TotalAmt
Program Services$63,181ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$102,083TotalAmt
Program Services$56,761ProgramServicesAmt
Management And General$30,143ManagementAndGeneralAmt
Fundraising$15,179FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$127,025TotalAmt
Program Services$70,629ProgramServicesAmt
Management And General$37,507ManagementAndGeneralAmt
Fundraising$18,889FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$19,575TotalAmt
Program Services$10,884ProgramServicesAmt
Management And General$5,780ManagementAndGeneralAmt
Fundraising$2,911FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$20,576TotalAmt
Program Services$6,398ProgramServicesAmt
Management And General$13,716ManagementAndGeneralAmt
Fundraising$462FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$20,424TotalAmt
Program Services$6,351ProgramServicesAmt
Management And General$13,615ManagementAndGeneralAmt
Fundraising$458FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$1,141TotalAmt
Management And General$1,141ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$400,944TotalAmt
Program Services$363,845ProgramServicesAmt
Management And General$35,891ManagementAndGeneralAmt
Fundraising$1,208FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$5,215TotalAmt
Program Services$4,324ProgramServicesAmt
Management And General$891ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$8,212TotalAmt
Program Services$2,327ProgramServicesAmt
Management And General$4,312ManagementAndGeneralAmt
Fundraising$1,573FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$49,777TotalAmt
Program Services$35,149ProgramServicesAmt
Management And General$4,348ManagementAndGeneralAmt
Fundraising$10,280FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$33,714TotalAmt
Program Services$27,836ProgramServicesAmt
Management And General$5,544ManagementAndGeneralAmt
Fundraising$334FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$97,962TotalAmt
Program Services$97,962ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$1,294TotalAmt
Management And General$1,294ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescOtherDesc
Total$8,401TotalAmt
Program Services$6,614ProgramServicesAmt
Management And General$1,787ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,387,442TotalAmt
Program Services$1,180,179ProgramServicesAmt
Management And General$155,969ManagementAndGeneralAmt
Fundraising$51,294FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$573,374BOYAmt
EOY$1,424,495EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$874,742BOYAmt
EOY$289,660EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,043,892BOYAmt
EOY$1,229,117EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,492,008BOYAmt
EOY$2,943,272EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$188,594BOYAmt
EOY$71,422EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
EOY$15,549EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$188,594BOYAmt
EOY$86,971EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,303,414BOYAmt
EOY$1,706,301EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,000,000BOYAmt
EOY$1,150,000EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,303,414BOYAmt
EOY$2,856,301EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,492,008BOYAmt
EOY$2,943,272EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$501,066ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$51,821NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$888,647CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$632,932CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$559,258CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,930,820CurrentTaxYearMinus1YearAmt
Current Tax Year$1,787,094CurrentTaxYearAmt
Total$5,798,751TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$888,647CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$632,932CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$559,258CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,930,820CurrentTaxYearMinus1YearAmt
Current Tax Year$1,787,094CurrentTaxYearAmt
Total$5,798,751TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$2,293,264SubstantialContributorsTotAmt
Public Support Total170$3,505,487PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$120CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$29CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$12,383CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$31,051CurrentTaxYearMinus1YearAmt
Current Tax Year$53,281CurrentTaxYearAmt
Total$96,864TotalAmt
FieldValueIRS element (for citing)
Total Support$5,895,615TotalSupportAmt
Public Support CY1700.59460PublicSupportCY170Pct
Public Support PY1700.75770PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,939,188TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$51,821NetUnrealizedGainsInvstAmt
Revenue Not Reported$51,821RevenueNotReportedAmt
Revenue Subtotal$1,887,367RevenueSubtotalAmt
Investment Expenses Not Incld$1,141InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$1,141RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,888,508TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$1,386,301TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$1,386,301ExpensesSubtotalAmt
Investment Expenses Not Incld2$1,141InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$1,141ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$1,387,442TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X, Line 2-Text in footnote regarding FIN 48 (ASC 740)FormAndLineReferenceDesc
ExplanationThe Organization follows the Financial Accounting Standards Board Accounting Standards Codification, which provides guidance on accounting for uncertainty in income taxes recognized in The Organizations financial statements, if any. As of year end, The Organization had no unrecognized tax benefits related to uncertain tax positions in its information return that would qualify for either recognition or disclosure in its financial statements. The Organizations policy would be to recognize interest and penalties on tax positions related to its unrecognized tax benefits in income tax expense in the financial statements. Through year end, there have been no matters that would have resulted in an accrual for interest and/or penalties.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Gross Receipts Event1$28,845GrossReceiptsEvent1Amt
Gross Revenue Event1$28,845GrossRevenueEvent1Amt
Gross Receipts Total$28,845GrossReceiptsTotalAmt
Gross Revenue Total Events$28,845GrossRevenueTotalEventsAmt
Net Income Summary$28,845NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (6 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
Childrens Hospital Colorado
111 S Tejon St Suite 309Colorado SpringsCO80903840813462501c3$20,000Clinical Care
The Regents of the Univ of Cal
1111 Franklin StOaklandCA94607943067788501c3$220,994Research
University of Connecticut
352 Mansfield RdStorrs MansfieldCT06269060772160501c3$79,923Research
UC SanDiego
9500 Gilman DrLa JollaCA92093956006144501c3$49,641Research
Uplifting Athletes
8 Atkinson Drive Unit 574DoylestownPA18901341986485501c3$10,000Research
Yale University
PO Box 208356New HavenCT065208356060646973501c3$79,647
FieldValueIRS element (for citing)
Total501c3 Org6Total501c3OrgCnt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990 governing body review Part VI line 11The Final 990 (filed with the IRS) will be available at the next meeting of the board for inspection. In addition, upon request of any board member, a copy will be provided. If there are any material changes, an amended 990 will be filed.
Conflict of interest policy compliance Part VI line 12cThe Organization enforces the conflict of interest policy by monitoring known relationships, questionnaires, and noting any changes in disclosed information. Any conflict is reviewed by the board before a decision is made as to whether to approve the transaction.
Form 990 availability to public Part VI line 18These documents are available to the public on its website.
Governing documents etc available to public Part VI line 19These documents are available upon request.
List of other fees for services expenses Part IX line 11gHR Fees: $3,961Other Prof Fees: $39,975MarCom: $20,424Research Fees: $347,102