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MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2015

View the entire original 990 at ProPublica ↗

Organization
MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period
2015-01-01 to 2015-12-31
Filed
2016-08-12
IRS object ID
201632259349303688
Schema version
2015v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2016-08-12T16:05:12-05:00ReturnTs
Tax Period End2015-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

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Business Name Line1BDO USA LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

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Address Line18401 GREENSBORO DRIVE SUITE 800AddressLine1Txt
CityMCLEANCityNm
State AbbreviationVAStateAbbreviationCd
ZIP22102ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2015-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN131665552EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MUSCULAR DYSTROPHY ASSOCIATION INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% STEPHEN P EVANS VP FINANCEInCareOfNm
Business Name ControlMUSCBusinessNameControlTxt
Phone3122605900PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1222 SOUTH RIVERSIDE PLAZA Suite 150AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP606066000ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJULIE FABERPersonNm
Person TitleCFOPersonTitleTxt
Phone3122605900PhoneNum
Signature2016-08-12SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMarc BergerPreparerPersonNm
PTINP01871563PTIN
Phone7038930600PhoneNum
FieldValueIRS element (for citing)
Tax2015TaxYr
Build TS2016-12-15 16:53:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSTEVEN M DERKSPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1222 S RIVERSIDE PL STE 1500AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60606ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$173,396,957GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.mda.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1950FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionSEE SCHEDULE OActivityOrMissionDesc
Voting Members Governing Body20VotingMembersGoverningBodyCnt
Voting Members Independent20VotingMembersIndependentCnt
Total Employee1085TotalEmployeeCnt
Total Volunteers1500000TotalVolunteersCnt
Total Gross UBI$258,243TotalGrossUBIAmt
PY Contributions Grants$135,174,690PYContributionsGrantsAmt
CY Contributions Grants$121,934,463CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$3,594,376PYInvestmentIncomeAmt
CY Investment Income$2,737,030CYInvestmentIncomeAmt
PY Other Revenue$1,602,169PYOtherRevenueAmt
CY Other Revenue$1,366,323CYOtherRevenueAmt
PY Total Revenue$140,371,235PYTotalRevenueAmt
CY Total Revenue$126,037,816CYTotalRevenueAmt
PY Grants And Similar Paid$29,432,206PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$27,847,205CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$60,138,523PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$57,706,251CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$540,001PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$1,438,181CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$19,740,595CYTotalFundraisingExpenseAmt
PY Other Expenses$41,404,992PYOtherExpensesAmt
CY Other Expenses$33,819,429CYOtherExpensesAmt
PY Total Expenses$131,515,722PYTotalExpensesAmt
CY Total Expenses$120,811,066CYTotalExpensesAmt
PY Revenues Less Expenses$8,855,513PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$5,226,750CYRevenuesLessExpensesAmt
Total Assets BOY$97,787,518TotalAssetsBOYAmt
Total Assets EOY$94,245,972TotalAssetsEOYAmt
Total Liabilities BOY$91,626,238TotalLiabilitiesBOYAmt
Total Liabilities EOY$85,826,209TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$6,161,280NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,419,763NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionMDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$56,468,364ExpenseAmt
Grant$13,943,137GrantAmt
DescHEALTH CARE AND COMMUNITY SERVICES People with muscular dystrophy and related diseases are our moms and dads, sons and daughters, our friends, neighbors, co-workers and loved ones. At MDA, were proud to offer the medical expertise and care that will help manage disease symptoms so that health and well-being will be optimized. Were committed to maximizing strength and mobility for families, promoting their quality of life and independence, breaking down barriers, and of course, making sure they know they are never alone in this fight. Families living with neuromuscular diseases face enormous daily challenges. MDA maintains the most comprehensive services program of any voluntary health agency in the country to help improve lives and support families from day one. Ranging from a nationwide network of comprehensive clinics at the nations top medical facilities to assistance with essential support services, MDA is here to help families today. Our health care and community services accounted for $56,468,364 of our 2015 expenditures. As we strive to revolutionize care and support, here are some of the key ways we supported families in 2015: - Provided comprehensive care focused on families needs at more than 150 MDA Care Centers through nearly 50,000 visits - Hosted more than 140 critical support groups for families to address daily needs and challenges - Offered nearly 75 weeklong summer camps for more than 3,800 children to help build self-confidence and independence and remove barriers of everyday life - Provided equipment repairs and support to help families maintain independence - Gave help and guidance to young people transitioning from childhood to adulthood at transitions.mda.org to help them live independently and thrive Additionally, through MDAs public policy and advocacy program, weve made elected officials, regulatory agencies and the general public more aware of issues affecting the neuromuscular disease community and have pushed for the passage of life-changing policies, programs and legislation. In 2015, our efforts alongside our passionate families and volunteers helped ensure passage of the Ensuring Access to Clinical Trials Act, helped delay cuts to complex rehabilitative technology, and played a role in securing the largest funding increase for the National Institutes of Health in the last decade, among other important progress.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$17,150,109ExpenseAmt
Grant$13,904,068GrantAmt
DescRESEARCH Every day, children are born with muscular dystrophy and many other life-threatening diseases affecting muscles that take away their ability to walk, move, hug, talk and even breathe. Similarly, adults are facing devastating diseases like ALS that cause muscles to deteriorate and result in loss of mobility and other severe health complications. For these kids and adults, there are currently few treatments and no cures. MDAs research program is designed to change that. We are the only nonprofit taking a big-picture perspective on diseases that limit muscle strength and mobility by being laser-focused on breakthroughs across disease categories. What we learn on the frontlines in one area can potentially have positive impacts in others. In 2015, MDA spent $17,150,109 on research designed to accelerate urgently needed treatments and cures for the families we serve. We contributed to dozens of clinical trials for novel drugs and therapies. Thanks in part to this progress, more new drugs in development are expected during the next five years than in the previous 50. Some of the areas where we see the greatest potential are: - Gene targeting therapies (replacement, exon skipping, mutation read-through and editing) - Stem cell therapies - Small molecule therapies: In trials to improve multiple facets of neuromuscular disease, such as muscle atrophy, mitochondrial dysfunction, muscle contractility, inflammation, reduced perfusion and fibrosis In 2015, MDA awarded 103 research grants to leading scientists across the globe. MDA's Scientific and Medical Advisory Committees, whose members are among the nation's foremost scientists and physicians in the field of neuromuscular disease, carefully evaluate all grant proposals submitted. Reports on ongoing progress in MDAs effort to discover treatments and cures, including the status of human trials of potential therapies, can be found at mda.org/research.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$14,962,730ExpenseAmt
DescPROFESSIONAL AND PUBLIC HEALTH EDUCATION Muscular dystrophy, ALS and other life-threatening diseases that limit muscle strength and mobility take away everyday abilities such as walking, standing, dressing oneself, hugging someone dear and even breathing. At MDA, we dedicate every minute of every day to fighting to free our families from the harmful effects of these diseases. Providing professional and public education is one of the many ways MDA is working to save and improve lives. In 2015, MDA spent $14,962,730 to provide professional and public health education. We promoted deeper understanding and awareness to rally and inspire action through a variety of innovative strategies: 1. Placed thousands of documented news stories about MDA's mission with network, syndicated and local broadcast outlets, print news publications and online, including frequent social media postings through Facebook, Twitter and Instagram. 2. Delivered critical information on research and care through MDAs award-winning national Quest Magazine that has a readership of 850,000 across print and online channels. 3. Produced, distributed and posted on YouTube hundreds of informational videos and educational materials about the challenges of living with muscular dystrophy and related diseases, facts and information, practical tips to help families, personal stories and more. 4. Delivered timely information on mda.org, which is recognized internationally as a key source of information about neuromuscular diseases. 5. Hosted the pre-eminent gathering of scientists, researchers and medical professionals specializing in neuromuscular disease research and clinical care at the 2015 MDA Scientific Conference in Washington, D.C., to bring together the nations best and brightest researchers to uncover scientific and medical breakthroughs that accelerate treatments and cures across the full spectrum of neuromuscular diseases.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$88,581,203TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredfalseScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtYes (true)CollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsYes (true)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
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Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingYes (true)ProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesYes (true)GamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
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Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
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PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntYes (true)BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
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Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document920IRPDocumentCnt
IRP Document W2 G20IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee1085EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OfYes (true)Form8282PropertyDisposedOfInd
Form8282 Filed15Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members20GoverningBodyVotingMembersCnt
Independent Voting Member20IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsYes (true)ChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersYes (true)LocalChaptersInd
Policies Reference ChaptersYes (true)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
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Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonSTEPHEN P EVANS VP FINANCEPersonNm
Phone3122605900PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1222 SOUTH RIVERSIDE PLAZA STE 1500AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60606ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (35 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
STANLEY H APPEL MD
DIRECTOR1.00.0Yes (X)$0$0$0
C THOMAS CASKEY MD
DIRECTOR1.00.0Yes (X)$0$0$0
HAROLD C CRUMP
DIRECTOR1.00.0Yes (X)$0$0$0
BENJAMIN F CUMBO III
DIRECTOR1.00.0Yes (X)$0$0$0
STEVE FARELLA
DIRECTOR1.00.0Yes (X)$0$0$0
DANIEL G FRIES
DIRECTOR1.00.0Yes (X)$0$0$0
HONORABLE BRAD HENRY
DIRECTOR1.00.0Yes (X)$0$0$0
R RODNEY HOWELL MD
CHAIRMAN5.00.0Yes (X)$0$0$0Yes (X)
DAVE HUTTON
DIRECTOR1.00.0Yes (X)$0$0$0
LOUIS M KUNKEL PHD
DIRECTOR1.00.0Yes (X)$0$0$0
OLIN F MORRIS
DIRECTOR1.00.0Yes (X)$0$0$0
PATRICIA NAZEMETZ
DIRECTOR1.00.0Yes (X)$0$0$0
CHRISTOPHER J ROSA PHD
VICE-CHAIRMAN2.00.0Yes (X)$0$0$0Yes (X)
MIKE ROWLETT
DIRECTOR1.00.0Yes (X)$0$0$0
CHARLES D SCHOOR ESQ
SECRETARY2.00.0Yes (X)$0$0$0Yes (X)
MARK SMITH
DIRECTOR1.00.0Yes (X)$0$0$0
JOHN TOGNINO
DIRECTOR1.00.0Yes (X)$0$0$0
VICTOR WRIGHT
TREASURER2.00.0Yes (X)$0$0$0Yes (X)
KRISTINE WELKER
DIRECTOR1.00.0Yes (X)$0$0$0
LILIAN WU PHD
DIRECTOR1.00.0Yes (X)$0$0$0
BART CONNER
DIRECTOR1.00.0Yes (X)$0$0$0
TIMMI MASTERS
DIRECTOR1.00.0Yes (X)$0$0$0
STEVEN M DERKS
PRESIDENT & CEO60.00.0$508,871$0$84,824Yes (X)
JULIE FABER CPA
ASST. TREASURER & CFO50.00.0$243,128$0$6,807Yes (X)
VALERIE A CWIK MD
ASST. SEC/CHIEF MED SCIENTIFIC50.00.0$237,933$0$6,807Yes (X)
ANN MCNAMARA
EVP - CHIEF DEV. OFFICER50.00.0$223,425$0$620Yes (X)
STEVEN FORD
EVP - CHIEF COMM/MRKT OFFICER50.00.0$217,286$0$18,074Yes (X)
ROBERT GRINSFELDER
EVP - CHIEF FIELD OPS OFFICER50.00.0$192,274$0$12,908Yes (X)
JOHN WALSH
DIVISION CHIEF EXECUTIVE50.00.0$160,587$0$18,074Yes (X)
BRADLEY BARGHOLS
DIVISION CHIEF EXECUTIVE50.00.0$151,446$0$18,074Yes (X)
GRACE K PAVLATH PHD
SR. VP - SCIENTIFIC PROG DIR50.00.0$197,601$0$12,908Yes (X)
GAIL SCHMERTZ KERNER ESQ
CHIEF LEGAL OFFICER50.00.0$196,731$0$18,074Yes (X)
EILEEN TIMMINS PHD
VP & CHIEF HR OFFICER50.00.0$194,250$0$12,498Yes (X)
JEANNINE M HOULIHAN
CHIEF INFORMATION OFFICER50.00.0$184,945$0$6,807Yes (X)
MARGARET HODGES
DIVISION CHIEF EXECUTIVE50.00.0$145,472$0$18,074Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,853,949TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$234,549TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K34IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

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WORLDWIDE PRINTING DISTRIBUTION I
2900 E APACHE STTULSAOK74110Printing$2,092,156
AGGREGATED SOURCING LLC
8338 AUSTIN AVEMORTON GROVEIL60053PRINTING$889,292
ROBERT HALF INTERNATIONAL INC
PO BOX 743295LOS ANGELESCA90074TEMP STAFFING$562,381
BLACKBAUD INC
PO BOX 930256ATLANTAGA31193shared app services$559,551
THOMPSON HABIB DENISON INC
80 HAYDEN AVE STE 300LEXINGTONMA02421direct mail$543,250
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K59CntrctRcvdGreaterThan100KCnt
Federated Campaigns$440,662FederatedCampaignsAmt
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Government Grants$243,757GovernmentGrantsAmt
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Total Revenue Column$0TotalRevenueColumnAmt

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Total Revenue Column$102,448TotalRevenueColumnAmt
Exclusion$102,448ExclusionAmt

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Real$0RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

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FieldValueIRS element (for citing)
Securities$39,740,911SecuritiesAmt
Other$12,036OtherAmt

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FieldValueIRS element (for citing)
Securities$38,503,475SecuritiesAmt
Other$110,555OtherAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$1,237,436SecuritiesAmt
Other-$98,519OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,138,917TotalRevenueColumnAmt
Exclusion$1,138,917ExclusionAmt
FieldValueIRS element (for citing)
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Contri Rpt Fundraising Event$98,801,633ContriRptFundraisingEventAmt
Fundraising Direct Expenses$8,673,714FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Gaming Gross Income$644,807GamingGrossIncomeAmt
Gaming Direct Expenses$71,397GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$573,410TotalRevenueColumnAmt
Exclusion$573,410ExclusionAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtExclusionExclusionAmt
QUEST ADVERTISING541800$258,243$258,243
OTHER REVENUE900099$432,222$432,222
FieldValueIRS element (for citing)
Other Revenue Total$690,465OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$126,037,816TotalRevenueColumnAmt
Unrelated Business Revenue$258,243UnrelatedBusinessRevenueAmt
Exclusion$3,845,110ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$25,746,142TotalAmt
Program Services$25,746,142ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$2,101,063TotalAmt
Program Services$2,101,063ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$2,034,388TotalAmt
Program Services$988,086ProgramServicesAmt
Management And General$793,482ManagementAndGeneralAmt
Fundraising$252,820FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$41,756,386TotalAmt
Program Services$33,006,618ProgramServicesAmt
Management And General$4,388,983ManagementAndGeneralAmt
Fundraising$4,360,785FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$10,376,824TotalAmt
Program Services$8,812,159ProgramServicesAmt
Management And General$1,106,650ManagementAndGeneralAmt
Fundraising$458,015FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$3,538,653TotalAmt
Program Services$2,846,708ProgramServicesAmt
Management And General$337,263ManagementAndGeneralAmt
Fundraising$354,682FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$54,065TotalAmt
Program Services$4,127ProgramServicesAmt
Management And General$40,896ManagementAndGeneralAmt
Fundraising$9,042FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$218,971TotalAmt
Management And General$218,971ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$1,438,181TotalAmt
Fundraising$1,438,181FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$130,320TotalAmt
Management And General$130,320ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$9,875,399TotalAmt
Program Services$1,730,142ProgramServicesAmt
Management And General$480,881ManagementAndGeneralAmt
Fundraising$7,664,376FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$8,755,389TotalAmt
Program Services$3,784,482ProgramServicesAmt
Management And General$1,203,706ManagementAndGeneralAmt
Fundraising$3,767,201FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$586,357TotalAmt
Management And General$586,357ManagementAndGeneralAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$7,093,266TotalAmt
Program Services$5,937,130ProgramServicesAmt
Management And General$619,246ManagementAndGeneralAmt
Fundraising$536,890FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$3,738,243TotalAmt
Program Services$2,930,705ProgramServicesAmt
Management And General$349,980ManagementAndGeneralAmt
Fundraising$457,558FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$232,893TotalAmt
Program Services$195,525ProgramServicesAmt
Management And General$23,313ManagementAndGeneralAmt
Fundraising$14,055FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$313,750TotalAmt
Management And General$313,750ManagementAndGeneralAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$612,350TotalAmt
Program Services$350,176ProgramServicesAmt
Management And General$239,609ManagementAndGeneralAmt
Fundraising$22,565FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescMISC EXPENSESDesc
Total$2,208,426TotalAmt
Program Services$148,140ProgramServicesAmt
Management And General$1,655,861ManagementAndGeneralAmt
Fundraising$404,425FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$120,811,066TotalAmt
Program Services$88,581,203ProgramServicesAmt
Management And General$12,489,268ManagementAndGeneralAmt
Fundraising$19,740,595FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$3,041,131TotalAmt
Program Services$886,152ProgramServicesAmt
Management And General$303,268ManagementAndGeneralAmt
Fundraising$1,851,711FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$25,464,796BOYAmt
EOY$23,563,965EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$5,248,079BOYAmt
EOY$3,029,209EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$1,520,433BOYAmt
EOY$2,560,027EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$6,592,247LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$5,722,836LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$1,226,887BOYAmt
EOY$869,411EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$64,327,323BOYAmt
EOY$64,223,360EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$97,787,518BOYAmt
EOY$94,245,972EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$7,471,537BOYAmt
EOY$5,303,388EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$12,161,000BOYAmt
EOY$11,486,911EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$15,500,000BOYAmt
EOY$14,500,000EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$56,493,701BOYAmt
EOY$54,535,910EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$91,626,238BOYAmt
EOY$85,826,209EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$55,712BOYAmt
EOY$3,908,059EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,616,191BOYAmt
EOY$4,027,996EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$489,377BOYAmt
EOY$483,708EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$6,161,280BOYAmt
EOY$8,419,763EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$97,787,518BOYAmt
EOY$94,245,972EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$5,226,750ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$3,853,298NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$885,031OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$157,086,289CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$149,557,236CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$144,990,094CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$135,174,690CurrentTaxYearMinus1YearAmt
Current Tax Year$121,934,463CurrentTaxYearAmt
Total$708,742,772TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$157,086,289CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$149,557,236CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$144,990,094CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$135,174,690CurrentTaxYearMinus1YearAmt
Current Tax Year$121,934,463CurrentTaxYearAmt
Total$708,742,772TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$708,742,772PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,887,167CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,341,192CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,465,164CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,555,130CurrentTaxYearMinus1YearAmt
Current Tax Year$1,700,561CurrentTaxYearAmt
Total$8,949,214TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$270,273CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$478,287CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$331,475CurrentTaxYearMinus1YearAmt
Current Tax Year$432,222CurrentTaxYearAmt
Total$1,512,257TotalAmt
FieldValueIRS element (for citing)
Total Support$719,204,243TotalSupportAmt
Public Support CY1700.98545PublicSupportCY170Pct
Public Support PY1700.98713PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceOTHER INCOME - FORM 990, SCH A, PART II, LINE 10FormAndLineReferenceDesc
Explanation2012 OTHER REVENUE 270,273 2013 OTHER REVENUE 478,287 2014 OTHER REVENUE 331,475 2015 OTHER REVENUE 432,222 ------- TOTAL OTHER REVENUE 1,512,257ExplanationTxt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$17,255FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$357,787FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$375,042FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$120,268,888FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$120,643,930FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$1,000,000FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$250,000FilingOrganizationsTotalAmt
FieldValueIRS element (for citing)
Tot Lbbyng Grassroot Mns Non TxTotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non TxTotLbbyExpendMnsLbbyngNonTxGrp

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$1,000,000CurrentYearMinus3Amt
Current Year Minus2$1,000,000CurrentYearMinus2Amt
Current Year Minus1$1,000,000CurrentYearMinus1Amt
Current Year$1,000,000CurrentYearAmt
Total$4,000,000TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$6,000,000LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$341,893CurrentYearMinus3Amt
Current Year Minus2$333,447CurrentYearMinus2Amt
Current Year Minus1$261,051CurrentYearMinus1Amt
Current Year$375,042CurrentYearAmt
Total$1,311,433TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$250,000CurrentYearMinus3Amt
Current Year Minus2$250,000CurrentYearMinus2Amt
Current Year Minus1$250,000CurrentYearMinus1Amt
Current Year$250,000CurrentYearAmt
Total$1,000,000TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,500,000GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$13,285CurrentYearMinus3Amt
Current Year Minus2$15,277CurrentYearMinus2Amt
Current Year Minus1$15,977CurrentYearMinus1Amt
Current Year$17,255CurrentYearAmt
Total$61,794TotalAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Art Public Exhibition AmountsArtPublicExhibitionAmountsGrp
Held Works ArtHeldWorksArtGrp
Collection Used Pub ExhibitionYes (X)CollectionUsedPubExhibitionInd
Collection Used PreservationYes (X)CollectionUsedPreservationInd
Coll Used Loan Or Exch ProgYes (X)CollUsedLoanOrExchProgInd
Solicited Assets SalefalseSolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$362,888BeginningYearBalanceAmt
Investment Earnings Or Losses-$5,691InvestmentEarningsOrLossesAmt
End Year Balance$357,197EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$346,757BeginningYearBalanceAmt
Investment Earnings Or Losses$16,131InvestmentEarningsOrLossesAmt
End Year Balance$362,888EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$251,275BeginningYearBalanceAmt
Contributions$50,000ContributionsAmt
Investment Earnings Or Losses$45,482InvestmentEarningsOrLossesAmt
End Year Balance$346,757EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$175,428BeginningYearBalanceAmt
Contributions$50,000ContributionsAmt
Investment Earnings Or Losses$25,847InvestmentEarningsOrLossesAmt
End Year Balance$251,275EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$125,667BeginningYearBalanceAmt
Contributions$50,000ContributionsAmt
Investment Earnings Or Losses-$239InvestmentEarningsOrLossesAmt
End Year Balance$175,428EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd
LandLandGrp
BuildingsBuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$17,247OtherCostOrOtherBasisAmt
Depreciation$7,836DepreciationAmt
Book Value$9,411BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$6,518,893OtherCostOrOtherBasisAmt
Depreciation$5,701,940DepreciationAmt
Book Value$816,953BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$56,107OtherCostOrOtherBasisAmt
Depreciation$13,060DepreciationAmt
Book Value$43,047BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$869,411TotalBookValueLandBuildingsAmt
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescPENSION POSTRETIREMENT PLAN OBDesc
Amt$54,535,910Amt
FieldValueIRS element (for citing)
Total Liability$54,535,910TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$122,184,518TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$3,853,298NetUnrealizedGainsInvstAmt
Revenue Not Reported-$3,853,298RevenueNotReportedAmt
Revenue Subtotal$126,037,816RevenueSubtotalAmt
Total Revenue Per Form990$126,037,816TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$120,811,066TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$120,811,066ExpensesSubtotalAmt
Total Expenses Per Form990$120,811,066TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, SCHEDULE D, PART III, LINE 4THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
FORM 990, SCHEDULE D, PART X, LINE 2GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR THE YEARS ENDED DECEMBER 31, 2015 and 2014 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (5 entries)

RegionRegionTxtType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
East Asia and the PacificProgram ServicesGRANTS TO RECIPIENTS$407,849
Europe (Including Iceland and Greenland)Program ServicesGRANTS TO RECIPIENTS$705,287
Middle East and North AfricaProgram ServicesGRANTS TO RECIPIENTS$77,379
North AmericaProgram ServicesGRANTS TO RECIPIENTS$838,253
South AmericaProgram ServicesGRANTS TO RECIPIENTS$98,000
FieldValueIRS element (for citing)
Subtotal Spent$2,126,768SubtotalSpentAmt
Total Spent$2,126,768TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (5 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
East Asia and the PacificRESEARCH$407,849check
Europe (Including Iceland and Greenland)RESEARCH$705,287check
Middle East and North AfricaRESEARCH$77,379check
North AmericaRESEARCH$838,253check
South America$98,000check
FieldValueIRS element (for citing)
Total501c3 Org5Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990, SCHEDULE F, PART I, LINE 2FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH(INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Phone SolicitationsYes (X)PhoneSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Solicitation Of Govt GrantsYes (X)SolicitationOfGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (4 entries)

ActivityActivityTxtFundraiser Control Of FundsFundraiserControlOfFundsIndGross ReceiptsGrossReceiptsAmtRetained By ContractorRetainedByContractorAmtNet To OrganizationNetToOrganizationAmt
BLACKBAUD INC
Shared App servicesfalse$23,393,888$559,551$22,834,337
THOMPSON HABIB DENISON INC
DIRECT MAILfalse$4,504,779$543,250$3,961,529
GRIZZARD COMMUNICATIONS GRP
DIRECT MAILfalse$3,262,081$239,237$3,022,844
STRATEGIC RESOURCES INC
TELE MARKETINGfalse$107,432$96,143$11,289
FieldValueIRS element (for citing)
Total Gross Receipts$31,268,180TotalGrossReceiptsAmt
Total Retained By Contractors$1,438,181TotalRetainedByContractorsAmt
Total Net To Organization$29,829,999TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesAZLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDELicensedStatesCd
Licensed StatesDCLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesIDLicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesINLicensedStatesCd
Licensed StatesIALicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesMTLicensedStatesCd
Licensed StatesNELicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesSDLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd
Licensed StatesWYLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1SPECIAL EVENTSEvent1Nm
Gross Receipts Event1$82,361,567GrossReceiptsEvent1Amt
Charitable Contri Event1$78,603,369CharitableContriEvent1Amt
Gross Revenue Event1$3,758,198GrossRevenueEvent1Amt
Other Direct Expenses Event1$3,758,198OtherDirectExpensesEvent1Amt
Event2SIGNATUREEvent2Nm
Gross Receipts Event2$12,829,417GrossReceiptsEvent2Amt
Charitable Contri Event2$10,157,612CharitableContriEvent2Amt
Gross Revenue Event2$2,671,805GrossRevenueEvent2Amt
Other Direct Expenses Event2$2,671,805OtherDirectExpensesEvent2Amt
Other Events Total362OtherEventsTotalCnt
Gross Receipts Other Events$12,284,363GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$10,040,652CharitableContriOtherEventsAmt
Gross Revenue Other Events$2,243,711GrossRevenueOtherEventsAmt
Oth Direct Expnss Other Events$2,243,711OthDirectExpnssOtherEventsAmt
Gross Receipts Total$107,475,347GrossReceiptsTotalAmt
Charitable Contributions Tot$98,801,633CharitableContributionsTotAmt
Gross Revenue Total Events$8,673,714GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$8,673,714OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$8,673,714DirectExpenseSummaryEventsAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$644,807GrossRevenueOtherGamingAmt
Non Cash Prizes Other Gaming$60,927NonCashPrizesOtherGamingAmt
Oth Direct Expnss Other Gaming$10,470OthDirectExpnssOtherGamingAmt
Volunteer Labor Other GamingYes (true)VolunteerLaborOtherGamingInd
Volunteer Labor Other Gaming1.00000VolunteerLaborOtherGamingPct
Gross Revenue Total Gaming$644,807GrossRevenueTotalGamingAmt
Non Cash Prizes Total Gaming$60,927NonCashPrizesTotalGamingAmt
Oth Direct Expnss Total Gaming$10,470OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming$71,397DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$573,410NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedAKStatesWhereGamingConductedCd
States Where Gaming ConductedFLStatesWhereGamingConductedCd
States Where Gaming ConductedILStatesWhereGamingConductedCd
States Where Gaming ConductedINStatesWhereGamingConductedCd
States Where Gaming ConductedIAStatesWhereGamingConductedCd
States Where Gaming ConductedMIStatesWhereGamingConductedCd
States Where Gaming ConductedMNStatesWhereGamingConductedCd
States Where Gaming ConductedMOStatesWhereGamingConductedCd
States Where Gaming ConductedOKStatesWhereGamingConductedCd
States Where Gaming ConductedPAStatesWhereGamingConductedCd
States Where Gaming ConductedTXStatesWhereGamingConductedCd
States Where Gaming ConductedVAStatesWhereGamingConductedCd
States Where Gaming ConductedWIStatesWhereGamingConductedCd
LicensedYes (true)LicensedInd
License Suspended EtcfalseLicenseSuspendedEtcInd
Gaming With NonmembersfalseGamingWithNonmembersInd
Member Of Other EntityfalseMemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct
Individual With BooksStephen P Evans Vice President FiIndividualWithBooksNm

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line1222 SOUTH RIVERSIDE PLAZA SUITE 15AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP606066000ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game RevfalseCntrctWith3rdPrtyForGameRevInd
Gaming Manager PersonNAGamingManagerPersonNm
Charitable Distribution RqrfalseCharitableDistributionRqrInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceADDRESSES FOR EACH FUNDRAISER - FORM 990, SCH G, PART I, COLUMN (I)FormAndLineReferenceDesc
Explanation1. Blackbaud Inc. PO Box 930256 Atlanta, GA 31193 2. Thompson Habib & Denison Inc 80 Hayden Ave, Ste 300 Lexington, MA 31193 3. Grizzard Communication Group 3500 Lenox Rd NE, Ste 1900 Atlanta, GA 30326 4. STRATEGIC RESOURCES, INC. 111 OVERLOOK ROAD PAMONA, NY 10970ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (239 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
Albany Medical Center Hospital
47 New Scotland Ave MC 70AlbanyNY12208141338310501(c)(3)$18,900Medical Diagnosis
Alfred I Dupont Hospital For Children
PO Box 269 1600 Rockland RoadWilmingtonDE19899590634433501(c)(3)$49,500Medical Diagnosis
American Family Children's Hospital
21 North Park St Ste 6401MadisonWI53715396006492501(c)(3)$25,000Medical Diagnosis
Ann & Robert H Lurie Children's Hospital
225 E Chicago Ave Box 205ChicagoIL60611362170833501(c)(3)$25,000Medical Diagnosis
Arizona Board of Regents University of AZ
1303 E University Blvd Box 3TucsonAZ85719742652689State of AZ$84,600Research
Baptist Hospital East
4000 Kresge WayLouisvilleKY40207610444707501(c)(3)$11,700Medical Diagnosis
Baylor College of Medicine
One Baylor Plaza MS BCM 310HoustonTX77030741613878501(c)(3)$200,000Research
Billings Clinic
PO Box 31031BillingsMT59107810407289501(c)(3)$11,700Medical Diagnosis
Board of Trustees of SIU
Off of the Pres-SIUP Mailcode 68CarbondaleIL62901376005961501(c)(3)$15,000Medical Diagnosis
Boston University
881 Commonwealth AveBostonMA02215042103547501(c)(3)$99,628Research
Brigham and Women's Hospital
41 Ave Louis PasteurBostonMA02115042312909501(c)(3)$32,580Medical Diagnosis
Buffalo General Medical Center
100 High StBuffaloNY14203161359213501(c)(3)$13,500Medical Diagnosis
California Institute of Technology
1200 E California BlvdPasadenaCA91125951643307C Corp$84,600Research
California Pacific Medical Center
2324 Sacramento StSan FranciscoCA94115940562680501(c)(3)$560,314Medical Diagnosis
Carilion Medical Center
3 Riverside CircleRoanakeVA24016540506332501(c)(3)$20,000Medical Diagnosis
Carle Physician Group
611 W Park StUrbanaIL61801371140016501(c)(3)$13,300Medical Diagnosis
Carolinas Healthcare Foundation Inc
1221 E Morehead StCharlotteNC28204566060481C Corp$109,251Research
Carolinas Medical Center
1221 E MoreheadCharlotteNC28204561398929501(c)(3)$14,900Research
Carolinas Medical Center
1221 East Morehead StCharlotteNC28204566060481501(c)(3)$90,000Medical Diagnosis
Catabasis Pharmaceuticals Inc
One Kendall Square Ste B14202CambridgeMA02139263687168C Corp$225,800Research
Cedars-Sinai Medical Center
8700 Beverly BLVD 65Wil Ste 1150Los AngelesCA90048951644600501(c)(3)$100,000Research
Children's Hospital Central Ca Pediatric
9300 Valley Childrens Pl Ms Pcx10MaderaCA93636941294954501(c)(3)$9,000Medical Diagnosis
Children's Clinics For Rehabilitative Serv
2600 North Wyatt DrTucsonAZ85712860667510501(c)(3)$24,300Medical Diagnosis
Children's Healthcare of Atlanta at Scottish Rite
1001 Johnson Ferry Rd NEAtlantaGA30342581947689501(c)(3)$27,000Medical Diagnosis
Children's Hosp National Med Ctr
111 Michigan NWWashingtonDC20010530196580501(c)(3)$32,400Medical Diagnosis
Children's Hospof Philadelphia
34th St Civic CtrPhiladelphiaPA19104231352166501(c)(3)$90,000Medical Diagnosis
Children's Hospital Boston
300 Longwood AveBostonMA02115042774441501(c)(3)$326,336Research
Children's Hospital Boston
Fegan 11-300 Longwood AveBostonMA02115222678594501(c)(3)$27,000Medical Diagnosis
Children's Hospital Los Angeles
4650 Sunset BLVD Mail Stop 97Los AngelesCA90027951690977501(c)(3)$20,000Medical Diagnosis
Children's Hospital Medical Center
3333 Burnet AveCincinnatiOH45229310833963501(c)(3)$54,450Medical Diagnosis
Children's Hospital of Orange County
455 S Main StOrangeCA92868952321788501(c)(3)$20,400Medical Diagnosis
Children's Hospital of Pittsburgh
4401 Penn Ave Fac Pavilion 6th FlPittsburghPA15224250402510501(c)(3)$18,900Medical Diagnosis
Children's Hospital of Wisconsin
9200 W Wisconsin AveMilwaukeeWI53226390806261501(c)(3)$7,200Medical Diagnosis
Children's Hospital New Orleans
200 Henry Clay AveNew OrleansLA70118720467503501(c)(3)$9,000Medical Diagnosis
Children's Hospital Richmond
2924 Brook RoadRichmondVA23220540506309501(c)(3)$15,300Medical Diagnosis
Children's Medical Center
2350 Stemmons Frwy Ste 5400DallasTX75207750800628501(c)(3)$30,000Medical Diagnosis
Children's Research Institute (CNMC)
111 Michigan Ave NWWashingtonDC20010521654453501(c)(3)$332,412Research
Clinical Neurology PC
4221 S Western Ste 5010Oklahoma CityOK73109412141136501(c)(3)$107,100Medical Diagnosis
Colorado State University
Campus Delivery Box 2002Fort CollinsCO80523846000545State of CO$99,536Research
Columbia University Medical Center
630 West 168th St Box 49New YorkNY10032135598093501(c)(3)$645,309Research
Columbia University Medical Center
622 W 168th St Box 16New YorkNY10032133908657501(c)(3)$176,400Medical Diagnosis
Community Medical Centers
1855 Folsom MCB 425San FranciscoCA94143946036493501(c)(3)$25,000Medical Diagnosis
Cook Children's Medical Center
901 Seventh Ave Ste 120Ft WorthTX76104752051646501(c)(3)$8,100Medical Diagnosis
Covenant Health System
3615 19th StLubbockTX79408752765566501(c)(3)$23,600Medical Diagnosis
Dartmouth-Hitchcock Medical Center
One Medical Center DrLebanonNH03756020222140501(c)(3)$22,500Medical Diagnosis
Dean Clinic
1808 West Beltline HwyMadisonWI53713391128616501(c)(3)$25,000Medical Diagnosis
Dent Neurologic Group LLP
3980 Sheridan Dr Ste BAmherstNY14226161582336501(c)(3)$12,600Medical Diagnosis
Drexel Neurological Associates
245 North 15th St Mail Stop 423PhiladelphiaPA19102754022380501(c)(3)$33,750Medical Diagnosis
Driscoll Children's Hospital
3533 South Alameda StCorpus ChristiTX78411742577746501(c)(3)$6,000Medical Diagnosis
Duke University
PO Box 602651CharlotteNC28260560532129501(c)(3)$100,000Research
Duke University Medical Center
Box 3069 Clinic CoordinatorDurhamNC27710561029437501(c)(3)$81,000Medical Diagnosis
Eastern Maine Medical Center
489 State StBangorME04401010211501501(c)(3)$10,800Medical Diagnosis
Elkhart Clinic LLC
303 S NappaneeElkhartIN46514351911857501(c)(3)$14,400Medical Diagnosis
Emory University
1599 Clifton Road NE 4th FloorAtlantaGA30322580566256501(c)(3)$218,627Research
Emory University
12 Executive Park Dr NE Rm 433AtlantaGA30329582030692501(c)(3)$81,000Medical Diagnosis
Fairview University Medical Center
2101 SE 6th ST Ste 4-184 MMC 2641EMinneapolisMN55455411843943501(c)(3)$235,625Medical Diagnosis
Fletcher Allen Health Care Center - University of
1 South Prospect StBurlingtonVT05401030219303501(c)(3)$6,300Medical Diagnosis
Fred Hutchinson Cancer Research Center
1100 Fairview Ave N J6-500SeattleWA98109237156071501(c)(3)$100,000Research
Froedtert Memorial Lutheran Hospital
9200 W Wisconsin AveMilwaukeeWI53226390806261501(c)(3)$23,400Medical Diagnosis
Georgetown University
4000 Reservoir Rd NW Bldg D Rm 207WashingtonDC20057530196603501(c)(3)$20,700Medical Diagnosis
Georgia Health Sciences Medical Center
1120 15th St Rm FY127AugustaGA30912582144788501(c)(3)$18,000Medical Diagnosis
Gillette Children's Specialty Healthcare
Wells Fargo Bank NW 8265 PO Box 1MinneapolisMN55485363379150501(c)(3)$20,000Medical Diagnosis
Glendale Neurological Assoc DBA (MIND)
28595 Orchard Lake Rd 200Farmington HillsMI48334381889896501(c)(3)$63,000Medical Diagnosis
Good Shepherd Rehabilitation Hosp
850 S 5th StAllentownPA18103231371947501(c)(3)$61,200Medical Diagnosis
Gordon Research Conferences
512 Liberty LaneWest KingstonRI02892260150662501(c)(3)$7,500Research
Greenville Hosp System University Medical Group
200 Patewood Dr A-200GreenvilleSC29615576007863501(c)(3)$8,100Medical Diagnosis
Halo Therapeutics LLC
275 GROVE ST Ste 2-400NewtonMA02466275336394Partnership$69,000Research
Hamot 2nd Century Fund
302 French StEriePA16507251400909501(c)(3)$9,000Medical Diagnosis
Health South Rehabilitation Hospital
1211 Union Ave Ste 400MemphisTN38104621499155501(c)(3)$55,700Medical Diagnosis
Hershey Medical Center
500 University Dr Mail CodeEC037HersheyPA17033251854772501(c)(3)$73,800Medical Diagnosis
HospEspanol De Auxilio Mutuo Inc
PO Box 191227Hato ReyPR00919660486907501(c)(3)$49,500Medical Diagnosis
Hospital de la Concepcion
PO Box 285San GermanPR00681660227304501(c)(3)$14,400Medical Diagnosis
Hospital For Special Care
2150 Corbin AveNew BritainCT06053060646766501(c)(3)$62,600Medical Diagnosis
Hospital For Special Surgery
535 E 70th St Dept of NeurologyNew YorkNY10021131624135501(c)(3)$80,000Medical Diagnosis
Hospital of The University of Pennsylvania
3400 Spruce StPhiladelphiaPA19104231352685State of PA$70,108Medical Diagnosis
Houston Methodist Hosptial
6560 Fannin St 802HoustonTX77030870721923501(c)(3)$132,300Medical Diagnosis
Houston Methodist Research Institute
6670 BertnerHoustonTX77030870721923501(c)(3)$76,344Research
IU Health Neuroscience Center
355 W 16th St 3rd Floor NeurologyIndianapolisIN46202351955872501(c)(3)$22,500Medical Diagnosis
IU Health Riley Hospital for Children
355 West 16th 4th floorIndianapolisIN46202351955872501(c)(3)$22,500Medical Diagnosis
Joan and Sanford I Weill Medical College
1300 York Ave Box 89New YorkNY10065131623978501(c)(3)$199,999Research
Johns Hopkins University School of Medicine
600 NWolfe StBaltimoreMD21287320061260501(c)(3)$195,300Medical Diagnosis
Johns Hopkins University School of Medicine
733 North Broadway Ste 117BaltimoreMD21205520595110501(c)(3)$579,663Research
KUMC Research Institute
3901 Rainbow BlvdKansas CityKS66160481108830501(c)(3)$46,800Medical Diagnosis
Le Bonheur Children's Hospital
50 Peabody Place Ste 400MemphisTN38103621872938501(c)(3)$30,375Medical Diagnosis
Loma Linda University
11175 Campus St Coleman Pav Rm ALoma LindaCA92354330364239501(c)(3)$26,100Medical Diagnosis
Louisiana State University Health Sci Ctr
1501 Kings Highway Neurology DeptShreveportLA71130720702002State of LA$27,000Medical Diagnosis
LSU School of Medicine
433 Bolivar StNew OrleansLA70112721304948501(c)(3)$33,300Medical Diagnosis
Lucile Salter Packard Child Hosp
4100 Bohannon Dr Mail Code 5894 1Menlo ParkCA94025770003859501(c)(3)$43,000Medical Diagnosis
Ludwig Institute for Cancer Research
9500 Gilman DrLa JollaCA92093237121131501(c)(3)$99,009Research
Lutheran Hospital of Indiana
7950 W Jefferson BlvdFort WayneIN46804351963748501(c)(3)$14,400Medical Diagnosis
Maine Medical Center
49 Spring StScarboroughME04074010238552501(c)(3)$14,850Medical Diagnosis
Marshfield Clinic
1000 North Oak AveMarshfieldWI54449390452970501(c)(3)$10,800Medical Diagnosis
Massachusetts General Hospital
55 FRUIT ST- WACC 720BOSTONMA02114042697983501(c)(3)$16,903Research
Massachusetts General Hospital
MGH Research Fin 1200-207418 PO BoBostonMA02241042697983501(c)(3)$123,300Medical Diagnosis
Mayo Clinic Jacksonville
4500 San Pablo RoadJacksonvilleFL32224593337028501(c)(3)$27,000Medical Diagnosis
Mercy Clinic Neurology
2115 S FremontSpringfieldMO65804440552485501(c)(3)$19,000Medical Diagnosis
Mercy Health Saint Mary's
200 Jefferson SEGrand RapidsMI49503382113393501(c)(3)$40,000Medical Diagnosis
Methodist Neurological Institute
6560 Fannin StHoustonTX77030870721923501(c)(3)$84,600Research
Metrohealth Medical Center
PO Box 73122ClevelandOH44193346004382501(c)(3)$36,000Medical Diagnosis
Michigan State University
B-301 E Fee Hall A-217 Clinical CEast LansingMI48824386005984State of MI$6,750Medical Diagnosis
Miller School of Medicine of the University of Mia
1320 South Dixie Highway Ste 650Coral GablesFL33146590624458State of FL$261,074Research
Montefiore Medical Center
3351 Steuben Ave 3rd FloorBronxNY10467133908657501(c)(3)$62,100Medical Diagnosis
Nationwide Children's Hospital
555 South 18th StColumbusOH43205311036370501(c)(3)$28,800Medical Diagnosis
Nationwide Children's Hospital
700 Childrens DrColumbusOH43205316056230501(c)(3)$10,000Research
Nemours Children's Clinic - Orlando
10140 Centurion Parkway North 3EJacksonvilleFL32246590634433501(c)(3)$50,000Medical Diagnosis
Neurology Associates
1301 S Cliff Ave 506Sioux FallsSD57105460364889501(c)(3)$16,200Medical Diagnosis
Neurology Associates of Arlington
2800 E Broad St Ste 504MansfieldTX76063752405825501(c)(3)$24,300Medical Diagnosis
Northeast ALS Consortium
2720 Neilson Way Floor 1Santa MonicaCA90409562547779501(c)(3)$50,000Research
Northwestern Medical Faculty Found
710 N Lake Shore Dr Rm 1119ChicagoIL60611393097297501(c)(3)$62,000Medical Diagnosis
Northwestern University-Chicago
750 N Lake Shore Dr Rubloff Bldg 7ChicagoIL60611362167817501(c)(3)$100,000Research
NYU Elaine A And Kenneth G Langone Med
240 East 38th St Room 15-60BNew YorkNY10016133971298501(c)(3)$72,900Medical Diagnosis
Ohio State University Hospital
Ste 181 2006 Kenny RoadColumbusOH43212316025986State of OH$61,200Medical Diagnosis
Olive View - UCLA Medical Center
14445 Olive View Dr 2C136SylmarCA91342952249539501(c)(3)$22,500Medical Diagnosis
Oregon Health & Science University
3181 SW Sam Jackson Park RoadPortlandOR97201931176109501(c)(3)$36,000Medical Diagnosis
OSF Medical Group Neurology
100 NE Randolph AvePeoriaIL61656370662569501(c)(3)$16,000Medical Diagnosis
Palo Alto Veterans Institute for Research
3801 Miranda AvePalo AltoCA94304770207331501(c)(3)$60,000Research
Phoenix Children's Hospital
1919 East Thomas RdPhoenixAZ85016860422559501(c)(3)$12,000Medical Diagnosis
Ponce School of Medicine
PO Box 7004PoncePR00732660379122501(c)(3)$36,000Medical Diagnosis
President and Fellows of Harvard College
PO Box 415649BostonMA02241042103580501(c)(3)$59,995Research
Prevea Clinic
PO Box 19070Green BayWI54307391839349501(c)(3)$17,944Medical Diagnosis
Purdue University
Young Hall 155 S Grant StWest LafayetteIN46202356002041State of IN$84,600Research
Rady Children's Hospital - San Diego
MDA Clinic 3020 Childrens Way MCSan DiegoCA92123951691313501(c)(3)$45,000Medical Diagnosis
Rapides Specialty Clinic Division of RRMC
Box 30101 211 Fourth StAlexandriaLA71301720702002501(c)(3)$9,000Medical Diagnosis
Regents of the University of California
675 Nelson Rising Lane Ste 201 BoxSan FranciscoCA94158946036493State of CA$108,000Medical Diagnosis
Regents of the University of California
Med Pmr Dept 4860 Y St Ste 3850SacramentoCA95817946036494State of CA$45,000Medical Diagnosis
Regents of the University of California
710 Westwood Plaza 4-231 RnrcLos AngelesCA90095956006143State of CA$108,000Medical Diagnosis
Regents of The University of Michigan
2301 Commonwealth BlvdAnn ArborMI48105386006809State of MI$30,000Medical Diagnosis
Regents of The University of Michigan
200 South Manchester Ave Ste 110OrangeCA92868952226406State of CA$66,000Medical Diagnosis
Regents of the University of Minnesota - Twin Citi
450 McNamara Alumni Center 200 OakMinneapolisMN55455416007513State of MN$275,314Research
ReveraGen BioPharma Inc
8070 Georgia Ave Ste 416Silver SpringMD20910263808415C Corp$659,880Research
Rhode Island Hospital
593 Eddy StProvidenceRI02903050258954501(c)(3)$16,200Medical Diagnosis
Round Rock Medical Center
2400 Round Rock AveRound RockTX78681742781812501(c)(3)$13,500Medical Diagnosis
Rutgers New Jersey Medical School
65 Davidson Road Room 306PiscatawayNJ08854351911857501(c)(3)$78,300Medical Diagnosis
Sacred Heart Hospital
1255 Hilyard St/PO Box 10905EugeneOR97440931084906501(c)(3)$13,500Medical Diagnosis
Sanford Clinic
720 4th St NorthFargoND58122911770748501(c)(3)$17,100Medical Diagnosis
Sanford-Burnham Medical Research Institute
10901 North Torrey Pines RoadLa JollaCA92037510197108501(c)(3)$99,279Research
Sanofi-Aventis US Inc
55 Corporate DrBridgewaterNJ08807421612939C Corp$159,500Research
Sarasota Memorial Hospital
1700 Tamiami TrailSarasotaFL34239596012500501(c)(3)$24,000Medical Diagnosis
Seattle Children's Hospital
4800 Sand Point Way-POBox 5371SeattleWA98105910564748501(c)(3)$49,050Medical Diagnosis
Sentara Norfolk General Hospital
6015 Poplar Hall Dr Ste 212NorfolkVA23502541547408501(c)(3)$22,500Medical Diagnosis
Shriners Hospfor Children - Portland
3101 SW Sam Jackson Park RoadPortlandOR97239362193608501(c)(3)$9,000Medical Diagnosis
Shriners Hospital For Children - Chicago
2211 N Oak Park AveChicagoIL60707362193608501(c)(3)$25,000Medical Diagnosis
Shriners Hospital For Children in Spokane
911 W 5th AveSpokaneWA99204362193608501(c)(3)$7,200Medical Diagnosis
Southern Research Institute
2000 Ninth Ave SouthBirminghamAL35205630288868501(c)(3)$84,600Research
Spartanburg Neurological Services
362 N Pine StSpartanburgSC29302570902952501(c)(3)$8,100Medical Diagnosis
Specially For Children - Child Neur ctr
1301 Barbara Jordan Blvd 200AustinTX78723742800601501(c)(3)$13,500Medical Diagnosis
Spectrum Health Foundation
100 Michigan NE MC 004Grand RapidsMI49503382752328501(c)(3)$20,000Medical Diagnosis
St Anthony's Neurology Group
300 S Park Place Blvd Ste 170ClearwaterFL33759743168197501(c)(3)$22,500Medical Diagnosis
St Charles Hospital And Rehabilitation Ctr
200 Belle Terre RoadPort JeffersonNY11777412076312501(c)(3)$18,000Medical Diagnosis
St Francis Community Health Center
PO Box 1901MonroeLA71210720408970501(c)(3)$11,250Medical Diagnosis
St Joseph's Children's Hospital of Tampa
2700 W Dr Martin Luther King Jr BTampaFL33607591100828501(c)(3)$31,500Medical Diagnosis
St Joseph's Hospital & Medical Center
350 West Thomas RdPhoenixAZ85013860096787501(c)(3)$60,000Medical Diagnosis
St Jude Children's Research Hospital
PO Box 1000 Dept 949MemphisTN38148620646012501(c)(3)$59,737Research
St Luke's Health System
190 E BannockBoiseID83712820161600501(c)(3)$10,000Medical Diagnosis
St Luke's Rehabilitation Institute
S 711 CowleySpokaneWA99202911307555501(c)(3)$18,000Medical Diagnosis
St Peter's Hospital Foundation
319 S Manning Blvd Ste 114AlbanyNY12208222262982501(c)(3)$70,000Medical Diagnosis
Stanford University
PO Box 44253San FranciscoCA94144941156365State of CA$184,467Research
SUNY Downstate Med Ctr
450 Clarkson Ave Box 1213BrooklynNY11203141368361501(c)(3)$40,500Medical Diagnosis
SUNY Upstate Medical University
750 E Adams StSyracuseNY13210166066240501(c)(3)$45,900Medical Diagnosis
Texas Children's Hospital
PO Box 300327HoustonTX77230741100555501(c)(3)$18,000Medical Diagnosis
Texas Neurology PA
6301 Gaston Ave Ste 100 West ToweDallasTX75214752654757501(c)(3)$9,000Medical Diagnosis
The Board of Trustees of the Univ of il
1737 W Polk St M/C 672 AOB 304ChicagoIL60612376000511State of IL$84,600Research
The Children's Hospital in Aurora
13123 E 16th AveAuroraCO80045840166760501(c)(3)$52,200Medical Diagnosis
The Children's Hospital in Birmingham
1600 7th Ave South Acc Ste 406BirminghamAL35233630307306501(c)(3)$18,000Medical Diagnosis
The Curators of the University of Missouri
310 Jesse HallColumbiaMO65211436003859State of MO$184,600Research
The Duluth Clinic Ltd
400 E 3rd St Acct 99902024-0DuluthMN55805410883623501(c)(3)$6,750Medical Diagnosis
The George Washington University
2121 Eye St NWWashingtonDC20052530196584501(c)(3)$84,600Research
The Jackson Laboratory
600 Main StBar HarborME04609010211513501(c)(3)$100,000Research
The Methodist Hospital Research Institute
6565 Fannin MGJ4-024HoustonTX77030870721923501(c)(3)$100,000Research
The Mucio F Delgado Clinic
2800 E Ajo WayTucsonAZ85713942958258501(c)(3)$31,500Medical Diagnosis
The Ohio State University Research Found
1960 Kenny RoadColumbusOH43210316025986State of OH$233,930Research
The Queen's Medical Center
1301 Punchbowl StHonoluluHI96813990073524501(c)(3)$25,000Medical Diagnosis
The Regents of the University of California (Davis
1850 Research Park Dr Ste 300DavisCA95618946036494State of CA$95,907Research
The Regents of the University of California Los A
11000 Kinross Ave Ste 211Los AngelesCA90095946006143State of CA$715,870Research
The Regents of the University of California San D
9500 Gilman Dr Dept 0934La JollaCA92093956006144State of CA$159,648Research
The Regents of the University of California San F
3333 California St Ste 315San FranciscoCA94118946036493State of CA$135,360Research
The Regents of the University of Colorado
3100 Marine St Room 479BoulderCO80309846000555State of CO$100,000Research
The Regents of the University of Michigan
3003 S State St Room 1054Ann ArborMI48109386006309State of MI$160,546Research
The Research Foundation of SUNY
750 E Adams St 209 CABSyracuseNY13210141368361State of NY$50,633Research
The Research Institute at Nationwide Child
700 Childrens DrColumbusOH43205316056230501(c)(3)$144,600Research
The Salk Institute for Biological Studies
10010 North Torrey Pines RoadLa JollaCA92037952160097501(c)(3)$60,000Research
The Scripps Research Institute
10550 North Torrey Pines RdLa JollaCA92037330435954501(c)(3)$100,000Research
The Trustees of the University of Pennsylvania
3451 Walnut St Franklin Bldg P-22PhiladelphiaPA19104231352685State of PA$200,802Research
The University of Alabama at Birmingham
1720 2nd Ave South AB 990BirminghamAL35294636005396State of AL$100,000Research
The University of Alabama at Birmingham
1720 7th Ave South SC 350E1BirminghamAL35233630649108State of AL$50,000Medical Diagnosis
The University of Iowa
2 Gilmore HallIowa CityIA52242426004813State of IA$460,325Research
The University of Oklahoma Health Sciences Center
1000 Stanton L Young Blvd Lib 12Oklahoma CityOK73117736017987State of OK$100,000Research
The University of Texas Health Science Ctr
Post Office Box 20036HoustonTX77225741761309State of TX$46,726Research
Thomas Jefferson University
125 S 9th StPhiladelphiaPA19107231352651501(c)(3)$300,000Research
Toledo Children's Hospital - Center For Health Ser
3949 Sunforest Court Twin Oaks BlToledoOH43623344428256501(c)(3)$40,500Medical Diagnosis
Tufts Medical Center Hospital
800 Washington St Dept of PM andBostonMA02111043148378501(c)(3)$22,500Medical Diagnosis
UNC Hospitals
211 Friday Center Dr Ste 2033Chapel HillNC27514570935917State of NC$34,200Medical Diagnosis
University Medical Associates
1 Poston Road Ste 350CharlestonSC29407571098556State of SC$43,875Medical Diagnosis
University Neurology Inc
231 Bethesda AveCincinnatiOH45267311000664State of OH$70,200Medical Diagnosis
University of Arizona Health Sciences Ctr
1501 N Campbell PO Box 245142TucsonAZ85724942958258State of AZ$31,500Medical Diagnosis
University of Arkansas for Medical Sciences
4301 W MarkhamLittle RockAR72205716046242State of AR$54,000Medical Diagnosis
University of Colorado
PO Box 110247AuroraCO80042742161737State of CO$135,000Medical Diagnosis
University of Colorado Denver AMC and DC
Anschutz Medical Campus Building 50AuroraCO80045846000555State of CO$100,000Research
University of Florida
219 Grinter HallGainesvilleFL32611596002052State of FL$170,411Research
University of Florida Health
302 Tigert HallGainesvilleFL32611596002052State of FL$27,450Medical Diagnosis
University of IL Board of Trustees
506 S Wright StUrbanaIL62708376000511State of IL$63,500Medical Diagnosis
University of Iowa Hospitals & Clinics
B5 Jessup HallIowa CityIA52242426004813State of IA$46,800Medical Diagnosis
University of Kentucky Research Foundation
500 South Limestone 109 Kinkead HaLexingtonKY40526616033693State of KY$100,000Research
University of Louisville Physicians Inc
500 S Preston St HSC-A Room 113LouisvilleKY40202273645560State of KY$7,000Medical Diagnosis
University of MA Memorial Medical Center
55 Lake Ave North Room S1-802 1043WorcesterMA01655043167352State of MA$49,991Medical Diagnosis
University of Maryland
620 W Lexington St 4th FloorBaltimoreMD21201526002033State of MD$100,000Research
University of Massachusetts Medical school
55 Lake Ave NorthWorcesterMA01655043167352501(c)(3)$100,000Research
University of Miami Sponsored Programs
PO Box 405803AtlantaGA30384592579826State of GA$90,168Medical Diagnosis
University of Missouri
One Hospital Dr DC05630ColumbiaMO65212436003859State of MO$12,600Medical Diagnosis
University of Nebraska Medical Center
Sponsored ProgAcct/600 S42nd StOmahaNE68198470049123State of NE$36,000Medical Diagnosis
University of Nevada School of Medicine
2040 W Charleston Blvd Ste 300Las VegasNV89102880330858State of NV$22,500Medical Diagnosis
University of New Mexico Health & Science
MSC 09 5225 1 University of New MexAlbuquerqueNM87131856000642State of NM$41,400Medical Diagnosis
University of Oregon
5219 University of OregonEugeneOR97403481278531State of OR$84,600Research
University of Pittsburgh
123 University PlacePittsburghPA15213250965591State of PA$93,070Research
University of Pittsburgh
200 Lothrop St Ste F875PittsburghPA15213250965591State of PA$54,000Medical Diagnosis
University of Puerto Rico Medical Sciences
Clinica Las Americas 400 FD RooseveSan JuanPR00918660433762Puerto Rico$45,000Medical Diagnosis
University of Rochester
518 Hylan Bldg Box 270140RochesterNY14627160743209501(c)(3)$172,064Research
University of Rochester Medical Center
601 Elmwood Ave Box 673RochesterNY14642160743209State of NY$94,500Medical Diagnosis
University of Southern California
3720 S Flower StLos AngelesCA90089951642394State of CA$160,000Research
University of Tennessee Medical Center
1928 Alcoa Highway Medical Bldg BKnoxvilleTN37920311626179State of TN$12,600Medical Diagnosis
University of TX Hlth Science Ctr MSRDP
7703 Floyd Curl DrSan AntonioTX78284741586031State of TX$74,700Medical Diagnosis
University of TXSW Medical Center
5323 Harry Hines BlvdDallasTX75390756002868State of TX$192,000Medical Diagnosis
University of Utah
75 S 2000 East 211 RABSalt Lake CityUT84112876000525State of UT$125,000Research
University of Utah School of Medicine
175 North Medical Dr East 5th FlooSalt Lake CityUT84132870480520State of UT$67,500Medical Diagnosis
University of Virginia Health
Services Foundation PO Box 9007CharlottesvilleVA22906541124769State of VA$57,600Medical Diagnosis
University of Washington
4333 Brooklyn Ave NESeattleWA98195916001537State of WA$342,741Research
University of Washington MedCenter
1959 NE Pacific St PO Box 2561SeattleWA98195916001537State of WA$63,900Medical Diagnosis
UT Southwestern Medical Center
5323 Harry Hines BlvdDallasTX75390756002868State of TX$203,364Research
Vanderbilt Department of Neurology
1236 PO Box 121236DallasTX75312620476822501(c)(3)$149,000Medical Diagnosis
Via Christi Hospitals Wichita Inc
707 N EmporiaWichitaKS67147481172106501(c)(3)$29,250Medical Diagnosis
Virginia Commonwealth University
PO Box 980599 VCU NeurologyRichmondVA23298541581185501(c)(3)$40,000Medical Diagnosis
Virginia Commonwealth University
PO BOX 980568RichmondVA23298546001758State of VA$100,000Research
W Virginia University Research Corp
1 Medical Ctr Dr Ste 7500MorgantownWV26508550665758State of WV$32,400Medical Diagnosis
Wake Forest University School of Medicine
475 Vine StWinstonSalemNC27157223849199State of NC$18,000Medical Diagnosis
Washington University in St Louis
660 South Euclid Ave Campus Box 80St LouisMO63110430653611501(c)(3)$266,902Research
Washington University School of Medicine
DeptOf Neurology Box 8111 600 SSt LouisMO63110430653611State of MO$126,000Medical Diagnosis
White Plains Hospital & Medical Center
Davis Ave at East Post RoadWhite PlainsNY10601131740130501(c)(3)$12,600Medical Diagnosis
Wright State University
3640 Colonel Glenn HwyDaytonOH45435310732831501(c)(3)$82,603Research
Yale University
800 Howard Ave PO Box 208071New HavenCT06520060646973501(c)(3)$37,000Medical Diagnosis
FieldValueIRS element (for citing)
Total501c3 Org233Total501c3OrgCnt
Total Other Org6TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990, SCHEDULE I, PART I, LINE 2FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Club Dues Or FeesYes (X)ClubDuesOrFeesInd
Written Policy Ref T And E ExpnssYes (true)WrittenPolicyRefTAndEExpnssInd
Substantiation RequiredYes (true)SubstantiationRequiredInd
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanYes (true)SupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (13 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
STEVEN M DERKS
PRESIDENT & CEO$473,271$0$35,600$0$0$0$66,750$0$18,074$0$593,695$0$0$0
JULIE FABER CPA
ASST. TREASURER & CFO$243,128$0$0$0$0$0$0$0$6,807$0$249,935$0$0$0
VALERIE A CWIK MD
ASST. SEC/CHIEF MED SCIENTIFIC$237,933$0$0$0$0$0$0$0$6,807$0$244,740$0$0$0
ANN MCNAMARA
EVP - CHIEF DEV. OFFICER$223,425$0$0$0$0$0$0$0$620$0$224,045$0$0$0
STEVEN FORD
EVP - CHIEF COMM/MRKT OFFICER$212,036$0$5,250$0$0$0$0$0$18,074$0$235,360$0$0$0
ROBERT GRINSFELDER
EVP - CHIEF FIELD OPS OFFICER$192,274$0$0$0$0$0$0$0$12,908$0$205,182$0$0$0
JOHN WALSH
DIVISION CHIEF EXECUTIVE$160,587$0$0$0$0$0$0$0$18,074$0$178,661$0$0$0
BRADLEY BARGHOLS
DIVISION CHIEF EXECUTIVE$151,446$0$0$0$0$0$0$0$18,074$0$169,520$0$0$0
GRACE K PAVLATH PHD
SR. VP - SCIENTIFIC PROG DIR$197,601$0$0$0$0$0$0$0$12,908$0$210,509$0$0$0
GAIL SCHMERTZ KERNER ESQ
CHIEF LEGAL OFFICER$196,731$0$0$0$0$0$0$0$18,074$0$214,805$0$0$0
EILEEN TIMMINS PHD
VP & CHIEF HR OFFICER$194,250$0$0$0$0$0$0$0$12,498$0$206,748$0$0$0
JEANNINE M HOULIHAN
CHIEF INFORMATION OFFICER$184,945$0$0$0$0$0$0$0$6,807$0$191,752$0$0$0
MARGARET HODGES
DIVISION CHIEF EXECUTIVE$145,472$0$0$0$0$0$0$0$18,074$0$163,546$0$0$0

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line Referenceschedule J, Part I, Line 4b:FormAndLineReferenceDesc
ExplanationSteven M. Derks $66,750 457(B) & (F) retirement planExplanationTxt

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

FieldValueIRS element (for citing)
PersonDaniel G FriesPersonNm
FieldValueIRS element (for citing)
Relationship DescriptionMDA Board MemberRelationshipDescriptionTxt
Transaction$215,281TransactionAmt
TransactionPension Actuaries ServiceTransactionDesc
Sharing Of RevenuesfalseSharingOfRevenuesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceBUSINESS TRANSACTIONS INVOLVING INTERESTED PERSONSFormAndLineReferenceDesc
Explanation(A) NAME OF PERSON: DANIEL G. FRIES (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $215,281 (D) DESCRIPTION OF TRANSACTION: MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. (E) SHARING OF ORGANIZATION REVENUES? = NOExplanationTxt

Schedule M IRS990ScheduleM

FieldValueIRS element (for citing)
Works Of ArtWorksOfArtGrp
Art Historical TreasuresArtHistoricalTreasuresGrp
Art Fractional InterestArtFractionalInterestGrp
Books And PublicationsBooksAndPublicationsGrp
Clothing And Household GoodsClothingAndHouseholdGoodsGrp
Cars And Other VehiclesCarsAndOtherVehiclesGrp
Boats And PlanesBoatsAndPlanesGrp
Intellectual PropertyIntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution32ContributionCnt
Noncash Contributions Rpt F990$88,139NoncashContributionsRptF990Amt
Method Of Determining RevenuesSELLING PRICEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Securities Closely Held StockSecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust IntrstsSecurPrtnrshpTrustIntrstsGrp
Securities MiscellaneousSecuritiesMiscellaneousGrp
Qualified Contrib Hist StructQualifiedContribHistStructGrp
Qualified Contrib OtherQualifiedContribOtherGrp
Real Estate ResidentialRealEstateResidentialGrp
Real Estate CommercialRealEstateCommercialGrp
Real Estate OtherRealEstateOtherGrp
CollectiblesCollectiblesGrp
Food InventoryFoodInventoryGrp
Drugs And Medical SuppliesDrugsAndMedicalSuppliesGrp
TaxidermyTaxidermyGrp
Historical ArtifactsHistoricalArtifactsGrp
Scientific SpecimensScientificSpecimensGrp
Archaeological ArtifactsArchaeologicalArtifactsGrp

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescMEDICAL EQUIPMENTDesc
Contribution69ContributionCnt
Noncash Contributions Rpt F990$609,489NoncashContributionsRptF990Amt
Method Of Determining RevenuesAPPRAISALMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Form8283 Received42Form8283ReceivedCnt
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART I, LINE 1MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION.
FORM 990, PART VI, SECTION A, LINE 4THE ORGANIZATION REVISED ITS BYLAWS IN 2015 TO ADD TERMS FOR BOARD OF DIRECTOR MEMBERS AND OFFICERS AND TO UPDATE AND CLARIFY THE ROLES AND RESPONSIBILITIES OF CERTAIN MEMBERS, OFFICERS AND COMMITTEES INCLUDING THE PRESIDENT.
FORM 990, PART VI, SECTION B, LINE 11ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12CTHE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH LEGAL.
FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
OTHER CHANGES IN NET ASSETS - FORM 990, PART XI, LINE 9CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 885,031