MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2014
View the entire original 990 at ProPublica ↗
- Organization
- MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
- Tax period
- 2014-01-01 to 2014-12-31
- Filed
- 2015-08-14
- IRS object ID
- 201502269349302520
- Schema version
- 2014v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2015-08-14T12:07:42-05:00 | ReturnTs |
| Tax Period End | 2014-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BDO USA LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7101 WISCONSIN AVE SUITE 800 | AddressLine1Txt |
| City | BETHESDA | CityNm |
| State Abbreviation | MD | StateAbbreviationCd |
| ZIP | 208144827 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2014-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 131665552 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MUSCULAR DYSTROPHY ASSOCIATION INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| In Care Of | % STEPHEN P EVANS VP FINANCE | InCareOfNm |
| Business Name Control | MUSC | BusinessNameControlTxt |
| Phone | 3122605900 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 SOUTH RIVERSIDE PLAZA | AddressLine1Txt |
| Address Line2 | Suite 1500 | AddressLine2Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 606066000 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JULIE FABER | PersonNm |
| Person Title | CFO | PersonTitleTxt |
| Phone | 7038930600 | PhoneNum |
| Signature | 2015-08-13 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Mike Sorrells | PreparerPersonNm |
| PTIN | P00001737 | PTIN |
| Phone | 3016544900 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2014 | TaxYr |
| Build TS | 2016-03-07 17:11:31Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | STEVEN DERKS | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 S RIVERSIDE PL STE 1500 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60606 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $214,180,662 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.mda.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1950 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | SEE SCHEDULE O | ActivityOrMissionDesc |
| Voting Members Governing Body | 17 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 17 | VotingMembersIndependentCnt |
| Total Employee | 1150 | TotalEmployeeCnt |
| Total Volunteers | 1500000 | TotalVolunteersCnt |
| Total Gross UBI | $211,673 | TotalGrossUBIAmt |
| PY Contributions Grants | $144,990,094 | PYContributionsGrantsAmt |
| CY Contributions Grants | $135,174,690 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $4,164,516 | PYInvestmentIncomeAmt |
| CY Investment Income | $3,594,376 | CYInvestmentIncomeAmt |
| PY Other Revenue | $1,171,110 | PYOtherRevenueAmt |
| CY Other Revenue | $1,602,169 | CYOtherRevenueAmt |
| PY Total Revenue | $150,325,720 | PYTotalRevenueAmt |
| CY Total Revenue | $140,371,235 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $38,730,052 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $29,432,206 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $61,530,638 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $60,138,523 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $534,111 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $540,001 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $21,355,553 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $47,210,391 | PYOtherExpensesAmt |
| CY Other Expenses | $41,404,992 | CYOtherExpensesAmt |
| PY Total Expenses | $148,005,192 | PYTotalExpensesAmt |
| CY Total Expenses | $131,515,722 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $2,320,528 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $8,855,513 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $102,852,460 | TotalAssetsBOYAmt |
| Total Assets EOY | $97,787,518 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $81,721,263 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $91,626,238 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $21,131,197 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $6,161,280 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $61,377,651 | ExpenseAmt |
| Grant | $13,368,540 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | HEALTH CARE AND COMMUNITY SERVICES People with muscular dystrophy and related diseases are our moms and dads, sons and daughters, our friends, neighbors, coworkers and loved ones. At MDA, we're proud to offer the medical expertise and care that will help manage disease symptoms so that health and well-being will be optimized. We're committed to maximizing strength and mobility for these families, promoting their quality of life and independence, breaking down barriers, and of course, making sure they know they are never alone in this fight. Families living with neuromuscular diseases face enormous daily challenges. MDA maintains the most comprehensive services program of any voluntary health agency in the country to help improve lives and support families from day one. Ranging from a nationwide network of comprehensive clinics at the nation's top medical facilities to assistance with essential support services, MDA is here to help families today. Our heath care and community services accounted for $61,377,651 of our 2014 expenditures. As we strive to revolutionize care and support, here are some of the key ways we supported families in 2014: 1. Provided comprehensive care focused on families' needs at nearly 200 MDA clinics through nearly 57,000 visits 2. Hosted nearly 150 critical support groups for families to address daily needs and challenges 3. Offered nearly 80 week-long summer camps for more than 3,700 children to help build self-confidence and independence and remove barriers of everyday life 4. Provided equipment repairs and support to help families maintain independence 5. Gave help and guidance to young people transitioning from childhood to adulthood at transitions.mda.org to help them live independently and thrive. Additionally, through MDA's advocacy program, we've made legislators and regulatory agencies more aware of issues affecting the neuromuscular disease community and have pushed for passage of life-changing legislation. In 2014, our efforts alongside our passionate families and volunteers helped get the ABLE Act signed into law and helped enact critical updates to the MD-CARE Act and the Newborn Screening Saves Lives Reauthorization Act, among other important progress. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $18,498,911 | ExpenseAmt |
| Grant | $16,063,666 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | RESEARCH Every day, children are born with muscular dystrophy and many other life-threatening diseases affecting muscles that take away their ability to walk, move, hug, talk and even breathe. Similarly, adults are facing devastating diseases like ALS that cause muscles to deteriorate and result in loss of mobility and other severe health complications. For these kids and adults, there are currently few treatments and no cures. MDA's research program is designed to change that. We are the only nonprofit taking a big-picture perspective on diseases that limit muscle strength and mobility by being laser-focused on breakthroughs across disease categories. What we learn on the frontlines in one area can potentially have positive impacts in others. In 2014, MDA spent $18,498,911 on research designed to accelerate urgently-needed treatments and cures for the families we serve. We contributed to more than 30 clinical trials for novel drugs and therapies. Thanks in part to this progress, more new drugs in development are expected during the next five years than in the previous 50. Some of the areas where we see the greatest potential are: 1. Gene targeting therapies (replacement, exon skipping, mutation read-through): Gaining traction in DMD, SMA, LGMD, FSHD 2. Stem cell therapies: Testing in DMD, BMD, FSHD, MG, ALS 3. Small molecule therapies: In trials to improve multiple facets of neuromuscular disease, such as muscle atrophy, mitochondrial dysfunction, muscle contractility, inflammation, reduced perfusion and fibrosis (HT-100) In 2014, MDA was sponsoring 155 research grants to leading scientists across the globe. MDA's Scientific and Medical Advisory Committees, whose members are among the nation's foremost scientists and physicians in the field of neuromuscular disease, carefully evaluate all grant proposals submitted. Reports on ongoing progress in MDA's effort to discover treatments and cures, including the status of human trials of potential therapies, can be found at www.mda.org/research2. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $17,459,993 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | PROFESSIONAL AND PUBLIC HEALTH EDUCATION Muscular dystrophy, ALS and other life-threatening diseases that limit muscle strength and mobility take away everyday abilities such as walking, standing, dressing oneself, hugging someone dear and even breathing. At MDA, we dedicate every minute of every day to fighting to free our families from the harmful effects of these diseases. Providing professional and public education is one of the many ways MDA is working to save and improve lives. In 2014, MDA spent $17,459,993 to provide professional and public health education. We promoted deeper understanding and awareness to rally and inspire action through a variety of innovative strategies: 1. Placed thousands of documented news stories about MDA's mission with network, syndicated and local broadcast outlets, print news publications and online, including frequent social media postings through Facebook, Twitter and Instagram. 2. Produced, distributed and posted on YouTube hundreds of informational videos and educational materials about the challenges of living with muscular dystrophy and related diseases, facts and information, practical tips to help families, personal stories and more. 3. Delivered timely information on mda.org, which is recognized internationally as a key source of information about neuromuscular diseases. 4. Hosted the pre-eminent gathering of neuromuscular disease physicians and health care providers at the 2014 MDA Clinical Conference in Chicago to bring together the nation's best and brightest clinicians to accelerate progress and enhance care for people living with neuromuscular and motor neuron diseases. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $97,336,555 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | false | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (true) | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | Yes (true) | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (true) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (true) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | Yes (true) | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | Yes (true) | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | Yes (true) | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 1028 | IRPDocumentCnt |
| IRP Document W2 G | 23 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 1150 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (true) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (true) | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | Yes (true) | Form8282PropertyDisposedOfInd |
| Form8282 Filed | 18 | Form8282FiledCnt |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 17 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 17 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | Yes (true) | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ID | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | STEPHEN P EVANS VP FINANCE | PersonNm |
| Phone | 3122605900 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 SOUTH RIVERSIDE PLAZA STE 1500 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60606 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (35 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|---|
| Stanley H Appel MD | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Robert M Bennett | |||||||||
| Director Emeritus | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Bart Conner | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Harold C Crump | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Benjamin F Cumbo III | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Joseph S DiMartino | |||||||||
| Director Emeritus | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Steve Farella | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Daniel G Fries | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Honorable Brad Henry | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| R Rodney Howell MD | |||||||||
| Chairman | 5.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Dave Hutton | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Louis M Kunkel PhD | |||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | ||||
| Timmi Masters | |||||||||
| Secretary | 2.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Olin F Morris | |||||||||
| DIRECTOR | 2.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| PATRICIA Nazemetz | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Christopher J Rosa PhD | |||||||||
| DIRECTOR | 2.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Charles D Schoor Esq | |||||||||
| TREASURER | 2.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| John Tognino | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Victor Wright | |||||||||
| Director | 1.0 | 0.0 | Yes (X) | $0 | $0 | $0 | |||
| Steven Derks | |||||||||
| President & CEO | 60.0 | 0.0 | $471,134 | $0 | $86,049 | Yes (X) | |||
| Julie Faber CPA | |||||||||
| CFO & Asst Treasurer | 50.0 | 0.0 | $233,810 | $0 | $6,860 | Yes (X) | |||
| Valerie A Cwik MD | |||||||||
| Asst. Sec/chief med scientific | 50.0 | 0.0 | $200,863 | $0 | $6,881 | Yes (X) | |||
| Gail Schmertz Kerner Esq | |||||||||
| Asst. Sec-Chief Legal OfficeR | 50.0 | 0.0 | $191,725 | $0 | $19,272 | Yes (X) | |||
| Stephen P Evans CPA | |||||||||
| Asst. Treas & VP Finance | 50.0 | 0.0 | $115,680 | $0 | $19,321 | Yes (X) | |||
| Jodi Walters | |||||||||
| Asst. Treas & Asst. VP Finance | 50.0 | 0.0 | $66,689 | $0 | $6,856 | Yes (X) | |||
| Peter Morgan | |||||||||
| EVP & COO | 50.0 | 0.0 | $146,589 | $0 | $19,321 | Yes (X) | |||
| Ann McNamara | |||||||||
| EVP-Chief Development OfficeR | 50.0 | 0.0 | $215,180 | $0 | $19,299 | Yes (X) | |||
| Steven Ford | |||||||||
| EVP Chief Communications & Mkt | 50.0 | 0.0 | $203,643 | $0 | $19,299 | Yes (X) | |||
| Robert M Grinsfelder | |||||||||
| EVP & CHIEF FIELD OP OFFICER | 50.0 | 0.0 | $150,981 | $0 | $12,762 | Yes (X) | |||
| John Walsh | |||||||||
| Div Chief Executive | 50.0 | 0.0 | $150,784 | $0 | $19,321 | Yes (X) | |||
| Kevin W Moran | |||||||||
| VP Program Development | 50.0 | 0.0 | $156,291 | $0 | $19,321 | Yes (X) | |||
| Todd Hermon | |||||||||
| NVP Retail Partnerships | 50.0 | 0.0 | $147,514 | $0 | $12,762 | Yes (X) | |||
| Kimberly Bruna | |||||||||
| NVP & Community Engagement | 50.0 | 0.0 | $146,265 | $0 | $6,881 | Yes (X) | |||
| Bradley Barghols | |||||||||
| Div Chief Executive | 50.0 | 0.0 | $141,175 | $0 | $19,321 | Yes (X) | |||
| Margaret Hodges | |||||||||
| Div Chief Executive | 50.0 | 0.0 | $131,463 | $0 | $19,321 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $2,869,786 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $312,847 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 15 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| AGGREGATED SOURCING LLC | |||||
| 8338 AUSTIN AVE | MORTON GROVE | IL | 60053 | Printing | $3,255,642 |
| AMERICAN BROADCASTING COMPANY INC | |||||
| 77 W 66TH ST | NEW YORK | NY | 10023 | ABC NTWRK BROADCAST. | $2,300,000 |
| NEW EDGE NETWORK INC | |||||
| UNIT 47 PO BOX 4800 | PORTLAND | OR | 97208 | NETWORK PROVIDER | $1,038,179 |
| CC CREATIONS LTD | |||||
| 1800 SHILOH AVE | BRYAN | TX | 77803 | PROMOTIONAL MATERIAL | $921,964 |
| ROBERT HALF INTERNATIONAL INC | |||||
| PO BOX 743295 | LOS ANGELES | CA | 90074 | TEMP AGENCY | $888,167 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 63 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $579,185 | FederatedCampaignsAmt |
| Fundraising | $108,315,636 | FundraisingAmt |
| Government Grants | $283,164 | GovernmentGrantsAmt |
| All Other Contributions | $25,996,705 | AllOtherContributionsAmt |
| Noncash Contributions | $507,905 | NoncashContributionsAmt |
| Total Contributions | $135,174,690 | TotalContributionsAmt |
| Total Program Service Revenue | $0 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,714,249 | TotalRevenueColumnAmt |
| Exclusion | $1,714,249 | ExclusionAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $840,881 | TotalRevenueColumnAmt |
| Exclusion | $840,881 | ExclusionAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $0 | RealAmt |
| Personal | $0 | PersonalAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $62,168,394 | SecuritiesAmt |
| Other | $7,599 | OtherAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $60,295,866 | SecuritiesAmt |
| Other | $0 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,872,528 | SecuritiesAmt |
| Other | $7,599 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,880,127 | TotalRevenueColumnAmt |
| Exclusion | $1,880,127 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $13,415,167 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $108,315,636 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $13,415,167 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gaming Gross Income | $316,534 | GamingGrossIncomeAmt |
| Gaming Direct Expenses | $98,394 | GamingDirectExpensesAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $218,140 | TotalRevenueColumnAmt |
| Exclusion | $218,140 | ExclusionAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | ExclusionExclusionAmt |
|---|---|---|---|---|
| QUEST ADVERTISING | 541800 | $211,673 | $211,673 | |
| OTHER REVENUE | 900099 | $331,475 | $331,475 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $543,148 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $140,371,235 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $211,673 | UnrelatedBusinessRevenueAmt |
| Exclusion | $4,984,872 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,448,858 | TotalAmt |
| Program Services | $27,448,858 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,983,348 | TotalAmt |
| Program Services | $1,983,348 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,315,569 | TotalAmt |
| Program Services | $889,264 | ProgramServicesAmt |
| Management And General | $1,165,439 | ManagementAndGeneralAmt |
| Fundraising | $260,866 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $43,006,166 | TotalAmt |
| Program Services | $35,159,129 | ProgramServicesAmt |
| Management And General | $3,638,899 | ManagementAndGeneralAmt |
| Fundraising | $4,208,138 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,094,205 | TotalAmt |
| Program Services | $9,576,534 | ProgramServicesAmt |
| Management And General | $1,033,083 | ManagementAndGeneralAmt |
| Fundraising | $484,588 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,722,583 | TotalAmt |
| Program Services | $3,048,019 | ProgramServicesAmt |
| Management And General | $328,789 | ManagementAndGeneralAmt |
| Fundraising | $345,775 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $250,642 | TotalAmt |
| Program Services | $81,135 | ProgramServicesAmt |
| Management And General | $169,507 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $251,180 | TotalAmt |
| Management And General | $251,180 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $540,001 | TotalAmt |
| Fundraising | $540,001 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $172,249 | TotalAmt |
| Management And General | $172,249 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,448,012 | TotalAmt |
| Program Services | $2,955,077 | ProgramServicesAmt |
| Management And General | $372,372 | ManagementAndGeneralAmt |
| Fundraising | $9,120,563 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,634,515 | TotalAmt |
| Program Services | $4,837,123 | ProgramServicesAmt |
| Management And General | $1,220,051 | ManagementAndGeneralAmt |
| Fundraising | $4,577,341 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $685,926 | TotalAmt |
| Management And General | $685,926 | ManagementAndGeneralAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,037,415 | TotalAmt |
| Program Services | $6,878,322 | ProgramServicesAmt |
| Management And General | $596,999 | ManagementAndGeneralAmt |
| Fundraising | $562,094 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,672,556 | TotalAmt |
| Program Services | $3,681,073 | ProgramServicesAmt |
| Management And General | $327,873 | ManagementAndGeneralAmt |
| Fundraising | $663,610 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $183,002 | TotalAmt |
| Program Services | $126,931 | ProgramServicesAmt |
| Management And General | $31,990 | ManagementAndGeneralAmt |
| Fundraising | $24,081 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $314,306 | TotalAmt |
| Management And General | $314,306 | ManagementAndGeneralAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,081,004 | TotalAmt |
| Program Services | $464,862 | ProgramServicesAmt |
| Management And General | $580,401 | ManagementAndGeneralAmt |
| Fundraising | $35,741 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | MISC EXPENSES | Desc |
| Total | $2,674,185 | TotalAmt |
| Program Services | $206,880 | ProgramServicesAmt |
| Management And General | $1,934,550 | ManagementAndGeneralAmt |
| Fundraising | $532,755 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $131,515,722 | TotalAmt |
| Program Services | $97,336,555 | ProgramServicesAmt |
| Management And General | $12,823,614 | ManagementAndGeneralAmt |
| Fundraising | $21,355,553 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,487,202 | TotalAmt |
| Program Services | $1,230,207 | ProgramServicesAmt |
| Management And General | $292,538 | ManagementAndGeneralAmt |
| Fundraising | $1,964,457 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $30,728,769 | BOYAmt |
| EOY | $25,464,796 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,608,340 | BOYAmt |
| EOY | $3,027,391 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,808,342 | BOYAmt |
| EOY | $3,741,121 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $6,786,535 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $5,559,648 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,745,951 | BOYAmt |
| EOY | $1,226,887 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $55,961,890 | BOYAmt |
| EOY | $64,327,323 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,999,168 | BOYAmt |
| EOY | $0 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $102,852,460 | BOYAmt |
| EOY | $97,787,518 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,214,400 | BOYAmt |
| EOY | $7,471,537 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $21,825,074 | BOYAmt |
| EOY | $12,161,000 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Escrow Account Liability EscrowAccountLiabilityGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Loans From Officers Directors LoansFromOfficersDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $15,500,000 | BOYAmt |
| EOY | $15,500,000 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $34,181,789 | BOYAmt |
| EOY | $56,493,701 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $81,721,263 | BOYAmt |
| EOY | $91,626,238 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $15,824,975 | BOYAmt |
| EOY | $55,712 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,832,997 | BOYAmt |
| EOY | $5,616,191 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $473,225 | BOYAmt |
| EOY | $489,377 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $21,131,197 | BOYAmt |
| EOY | $6,161,280 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $102,852,460 | BOYAmt |
| EOY | $97,787,518 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $8,855,513 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$620,278 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | -$23,205,152 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $171,247,359 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $157,086,289 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $149,557,236 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $144,990,094 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $135,174,690 | CurrentTaxYearAmt |
| Total | $758,055,668 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $171,247,359 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $157,086,289 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $149,557,236 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $144,990,094 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $135,174,690 | CurrentTaxYearAmt |
| Total | $758,055,668 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $0 | SubstantialContributorsTotAmt |
| Public Support Total170 | $758,055,668 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,555,153 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,887,167 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,341,192 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,465,164 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,555,130 | CurrentTaxYearAmt |
| Total | $8,803,806 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus2 Years | $270,273 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $478,287 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $331,475 | CurrentTaxYearAmt |
| Total | $1,080,035 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $767,939,509 | TotalSupportAmt |
| Public Support CY170 | 0.98713 | PublicSupportCY170Pct |
| Public Support PY170 | 0.98789 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | OTHER INCOME - FORM 990, SCH A, PART II, LINE 10 | FormAndLineReferenceDesc |
| Explanation | 2012 OTHER REVENUE 270,273 | ExplanationTxt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $15,977 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $245,074 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $261,051 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $97,075,504 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $97,336,555 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $1,000,000 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $250,000 | FilingOrganizationsTotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tot Lbbyng Grassroot Mns Non Tx | TotLbbyngGrassrootMnsNonTxGrp | |
| Tot Lbby Expend Mns Lbbyng Non Tx | TotLbbyExpendMnsLbbyngNonTxGrp |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $1,000,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $1,000,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $1,000,000 | CurrentYearMinus1Amt |
| Current Year | $1,000,000 | CurrentYearAmt |
| Total | $4,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $6,000,000 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $428,715 | CurrentYearMinus3Amt |
| Current Year Minus2 | $341,893 | CurrentYearMinus2Amt |
| Current Year Minus1 | $333,447 | CurrentYearMinus1Amt |
| Current Year | $261,051 | CurrentYearAmt |
| Total | $1,365,106 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $250,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $250,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $250,000 | CurrentYearMinus1Amt |
| Current Year | $250,000 | CurrentYearAmt |
| Total | $1,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,500,000 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $12,650 | CurrentYearMinus3Amt |
| Current Year Minus2 | $13,285 | CurrentYearMinus2Amt |
| Current Year Minus1 | $15,277 | CurrentYearMinus1Amt |
| Current Year | $15,977 | CurrentYearAmt |
| Total | $57,189 | TotalAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Art Public Exhibition Amounts | ArtPublicExhibitionAmountsGrp | |
| Held Works Art | HeldWorksArtGrp | |
| Collection Used Pub Exhibition | Yes (X) | CollectionUsedPubExhibitionInd |
| Collection Used Preservation | Yes (X) | CollectionUsedPreservationInd |
| Coll Used Loan Or Exch Prog | Yes (X) | CollUsedLoanOrExchProgInd |
| Solicited Assets Sale | false | SolicitedAssetsSaleInd |
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $346,757 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $16,131 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $362,888 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $251,275 | BeginningYearBalanceAmt |
| Contributions | $50,000 | ContributionsAmt |
| Investment Earnings Or Losses | $45,482 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $346,757 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $175,428 | BeginningYearBalanceAmt |
| Contributions | $50,000 | ContributionsAmt |
| Investment Earnings Or Losses | $25,847 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $251,275 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $125,667 | BeginningYearBalanceAmt |
| Contributions | $50,000 | ContributionsAmt |
| Investment Earnings Or Losses | -$239 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $175,428 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $115,000 | BeginningYearBalanceAmt |
| Contributions | $11,313 | ContributionsAmt |
| Administrative Expenses | $646 | AdministrativeExpensesAmt |
| End Year Balance | $125,667 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
| Land | LandGrp | |
| Buildings | BuildingsGrp |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $30,443 | OtherCostOrOtherBasisAmt |
| Depreciation | $20,214 | DepreciationAmt |
| Book Value | $10,229 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $6,703,853 | OtherCostOrOtherBasisAmt |
| Depreciation | $5,526,374 | DepreciationAmt |
| Book Value | $1,177,479 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $52,239 | OtherCostOrOtherBasisAmt |
| Depreciation | $13,060 | DepreciationAmt |
| Book Value | $39,179 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1,226,887 | TotalBookValueLandBuildingsAmt |
| Federal Income Tax Liability | $0 | FederalIncomeTaxLiabilityAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PENSION POSTRETIREMENT PLAN OB | Desc |
| Amt | $56,493,701 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $56,493,701 | TotalLiabilityAmt |
| Total Rev Etc Audited Fincl Stmt | $139,750,957 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$620,278 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | -$620,278 | RevenueNotReportedAmt |
| Revenue Subtotal | $140,371,235 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $140,371,235 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $131,515,722 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $131,515,722 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $131,515,722 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, SCHEDULE D, PART III, LINE 4 | THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY. |
| FORM 990, SCHEDULE D, PART X, LINE 2 | GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR THE YEARS ENDED DECEMBER 31, 2013, 2012, AND 2011 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|
| East Asia and the Pacific | Program Services | GRANTS TO RECIPIENTS | $479,741 |
| Europe (Including Iceland and Greenland) | Program Services | GRANTS TO RECIPIENTS | $596,198 |
| Middle East and North Africa | Program Services | GRANTS TO RECIPIENTS | $100,003 |
| North America | Program Services | GRANTS TO RECIPIENTS | $807,406 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $1,983,348 | SubtotalSpentAmt |
| Total Spent | $1,983,348 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| East Asia and the Pacific | RESEARCH | $479,741 | CHECK |
| Europe (Including Iceland and Greenland) | RESEARCH | $596,198 | CHECK |
| Middle East and North Africa | RESEARCH | $100,003 | CHECK |
| North America | RESEARCH | $807,406 | CHECK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | FORM 990, SCHEDULE F, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH(INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Solicitation Of Govt Grants | Yes (X) | SolicitationOfGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (true) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (4 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| Convio Inc | ||||||||
| 11501 DOMAIN DRIVE STE 200 | DALLAS | TX | 78758 | Shared App services | false | $5,619,989 | $140,500 | $5,479,489 |
| BLACKBAUD INC | ||||||||
| PO BOX 930256 | ATLANTA | GA | 31193 | SHARED APP SERVICE | false | $10,874,075 | $271,852 | $10,602,223 |
| STRATEGIC FUNDRAISING INC | ||||||||
| 7800 3RD ST NORTH STE 900 | ST PAUL | MN | 55128 | TELEMKTG | false | $205,040 | $127,649 | $77,391 |
| DONOR CARE CENTER INC | ||||||||
| 480 W TUSCARAWAS AVE 3RD FLR | BARBERTON | OH | 44203 | TELEMKTG | false | $15,194 | $0 | $15,194 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $16,714,298 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $540,001 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $16,174,297 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | PR | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | SPECIAL EVENTS | Event1Nm |
| Gross Receipts Event1 | $93,906,993 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $85,474,297 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $8,432,696 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $8,432,696 | OtherDirectExpensesEvent1Amt |
| Event2 | SIGNATURE EVENT | Event2Nm |
| Gross Receipts Event2 | $14,873,185 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $12,336,420 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $2,536,765 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $2,536,765 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 476 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $12,950,625 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $10,504,919 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $2,445,706 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $2,445,706 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $121,730,803 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $108,315,636 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $13,415,167 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $13,415,167 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $13,415,167 | DirectExpenseSummaryEventsAmt |
Gaming Information GamingInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Revenue Other Gaming | $316,534 | GrossRevenueOtherGamingAmt |
| Non Cash Prizes Other Gaming | $79,044 | NonCashPrizesOtherGamingAmt |
| Oth Direct Expnss Other Gaming | $19,350 | OthDirectExpnssOtherGamingAmt |
| Volunteer Labor Other Gaming | Yes (true) | VolunteerLaborOtherGamingInd |
| Volunteer Labor Other Gaming | 1.00000 | VolunteerLaborOtherGamingPct |
| Gross Revenue Total Gaming | $316,534 | GrossRevenueTotalGamingAmt |
| Non Cash Prizes Total Gaming | $79,044 | NonCashPrizesTotalGamingAmt |
| Oth Direct Expnss Total Gaming | $19,350 | OthDirectExpnssTotalGamingAmt |
| Direct Expense Summary Gaming | $98,394 | DirectExpenseSummaryGamingAmt |
| Net Gaming Income Summary | $218,140 | NetGamingIncomeSummaryAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| States Where Gaming Conducted | AL | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | AK | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | HI | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | IA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | LA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MI | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MN | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MO | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | NE | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | OK | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | PA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | TX | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | WI | StatesWhereGamingConductedCd |
| Licensed | Yes (true) | LicensedInd |
| License Suspended Etc | false | LicenseSuspendedEtcInd |
| Gaming With Nonmembers | false | GamingWithNonmembersInd |
| Member Of Other Entity | false | MemberOfOtherEntityInd |
| Gaming Other Facility | 1.00000 | GamingOtherFacilityPct |
| Individual With Books | Stephen P Evans Vice President Fi | IndividualWithBooksNm |
Persons With Books US Address PersonsWithBooksUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 SOUTH RIVERSIDE PLAZA SUITE 15 | AddressLine1Txt |
| City | CHICAGO | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 606066000 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct With3rd Prty For Game Rev | false | CntrctWith3rdPrtyForGameRevInd |
| Gaming Manager Person | NA | GamingManagerPersonNm |
| Charitable Distribution Rqr | false | CharitableDistributionRqrInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | ADDRESSES FOR EACH FUNDRAISER - FORM 990, SCH G, PART I, COLUMN (I) | FormAndLineReferenceDesc |
| Explanation | 1. CONVIO, INC. 11501 Domain Drive Ste 200 Dallas, TX 78758 2. Blackbaud Inc. PO Box 930256 Atlanta, GA 31193 3. Strategic Fundraising Inc. 7800 3rd St North Ste 900 St. Paul, MN 55128 4. Donor Care Center, Inc. 480 W. Tuscarawas Ave 3rd Flr Barberton, OH 44203 | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (239 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| Albany Medical College-Dept of Neurology | |||||||
| 47 New Scotland Ave MC 70 | Albany | NY | 12208 | 141338310 | 501(c)(3) | $18,900 | Medical Diagnosis |
| Alfred I Dupont Hospital For Children | |||||||
| 1600 Rockland Road-PO Box 269 | Wilmington | DE | 19899 | 590634433 | 501(c)(3) | $49,500 | Medical Diagnosis |
| ALS Therapy Development Foundation | |||||||
| 215 First Street | Cambridge | MA | 02142 | 043462719 | 501(c)(3) | $959,410 | Research |
| Ann & Robert H Lurie Children's Hospital of Chica | |||||||
| 225 E Chicago Box 205 | Chicago | IL | 60611 | 362170833 | 501(c)(3) | $25,000 | Medical Diagnosis |
| Ann an Robert H Lurie Children's Hospital of Chic | |||||||
| 225 E Chicago Box 205 | Chicago | IL | 60611 | 362170833 | 501(c)(3) | $135,000 | Research |
| Arizona Board of Regents University of Arizona | |||||||
| 1303 E University Blvd Box 3 | Tucson | AZ | 85719 | 742652689 | State of Arizon | $279,600 | Research |
| Armgo Pharma Inc | |||||||
| 777 Old Saw Mill River Road | Tarrytown | NY | 10591 | 260107795 | C CORP | $999,056 | Research |
| Baptist Hospital East | |||||||
| 4000 Kresge Way | Louisville | KY | 40207 | 610444707 | 501(c)(3) | $11,700 | Medical Diagnosis |
| Barrow Neurological Institute - St Joseph Med Ct | |||||||
| 350 West Thomas Road 8 Fl BNI | Phoenix | AZ | 85013 | 860096787 | 501(c)(3) | $700,000 | Research |
| Baylor College of Medicine | |||||||
| One Baylor Plaza MS BCM 310 | Houston | TX | 77030 | 741613878 | 501(c)(3) | $100,000 | Research |
| Billings Clinic Foundation | |||||||
| PO Box 31031 | Billings | MT | 59107 | 810407289 | 501(c)(3) | $11,700 | Medical Diagnosis |
| Board of Regents University of Wisconsin System - | |||||||
| 21 North Park Street Suite 6401 | Madison | WI | 53715 | 396006492 | State of Wiscon | $25,000 | Medical Diagnosis |
| Board of Regents NSHE dba University of Nevada | |||||||
| 204 Ross Hall Mailstop 325 | Reno | NV | 89557 | 886000024 | State of Nevada | $162,676 | Research |
| Board of Trustees of SIU | |||||||
| PO Box 19616 | Springfield | IL | 62794 | 376005961 | State of Illino | $18,750 | Medical Diagnosis |
| Brigham & Women's Hospital | |||||||
| 75 Francis St | Boston | MA | 02115 | 042312909 | 501(c)(3) | $32,580 | Medical Diagnosis |
| Brigham and Women's Hospital Inc | |||||||
| 75 Francis Street | Boston | MA | 02115 | 042312909 | 501(c)(3) | $135,000 | Research |
| Buffalo General Medical Center | |||||||
| 100 High Street | Buffalo | NY | 14203 | 167359213 | 501(c)(3) | $10,125 | Medical Diagnosis |
| California Institute of Technology | |||||||
| 1200 E California Blvd | Pasadena | CA | 91125 | 951643307 | C CORP | $84,600 | Research |
| California Pacific Medical Center | |||||||
| 475 Brannan Street Ste 220 | San Francisco | CA | 94107 | 940562680 | 501(c)(3) | $306,000 | Research |
| California Pacific Medical Center | |||||||
| 2324 Sacramento Street | San Francisco | CA | 94115 | 940562680 | 501(c)(3) | $371,771 | Medical Diagnosis |
| Carilion Medical Center | |||||||
| 3 Riverside Circle | Roanake | VA | 24016 | 540506332 | 501(c)(3) | $20,000 | Medical Diagnosis |
| Carle Physician Group | |||||||
| 611 W Park St | Urbana | IL | 61801 | 371140016 | 501(c)(3) | $11,425 | Medical Diagnosis |
| Carolinas Medical Center | |||||||
| 1221 E Morehead | Charlotte | NC | 28204 | 561398929 | 501(c)(3) | $276,328 | Research |
| Carolinas Medical Center | |||||||
| PO Box 32861 | Charlotte | NC | 28232 | 566060481 | 501(c)(3) | $90,000 | Medical Diagnosis |
| Children's Clinics For Rehabilitative Services | |||||||
| 2600 N Wyatt Drive | Tucson | AZ | 85712 | 860667510 | 501(c)(3) | $18,225 | Medical Diagnosis |
| Children's Healthcare of Atlanta at Scottish Rite | |||||||
| 1687 Tullie Circle | Atlanta | GA | 30329 | 581947689 | 501(c)(3) | $27,000 | Medical Diagnosis |
| Children's HospNational Med Ctr | |||||||
| 111 Michigan NW | Washington | DC | 20010 | 530196580 | 501(c)(3) | $32,400 | Medical Diagnosis |
| Children's Hospof Philadelphia | |||||||
| 34th Street Civic Ctr | Philadelphia | PA | 19104 | 231352166 | 501(c)(3) | $90,000 | Medical Diagnosis |
| Children's Hospital & Medical Cntr | |||||||
| 4800 Sand Point Way-POBox 5371 | Seattle | WA | 98105 | 910564748 | 501(c)(3) | $49,050 | Medical Diagnosis |
| Children's Hospital Boston | |||||||
| 300 Longwood Avenue | Boston | MA | 02115 | 042774441 | 501(c)(3) | $144,600 | Research |
| Children's Hospital Central CA | |||||||
| 9300 Valley Childrens Pl Ms Pcx10 | Madera | CA | 93636 | 941294954 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Children's Hospital Medical Center | |||||||
| 3333 Burnet Ave ML 2015 | Cincinnati | OH | 45229 | 310833963 | 501(c)(3) | $54,450 | Medical Diagnosis |
| Children's Hospital Neurology Foundation | |||||||
| Fegan 11-300 Lingwood Ave | Boston | MA | 02115 | 222678594 | 501(c)(3) | $27,000 | Medical Diagnosis |
| Children's Hospital of Los Angeles | |||||||
| 4650 Sunset Boulevard Mail Stop 97 | Los Angeles | CA | 90027 | 951690977 | 501(c)(3) | $20,000 | Medical Diagnosis |
| Children's Hospital of Orange County | |||||||
| 455 S Main Street | Orange | CA | 92868 | 952321788 | 501(c)(3) | $5,400 | Medical Diagnosis |
| Children's Hospital New Orleans | |||||||
| 200 Henry Clay Avenue | New Orleans | LA | 70118 | 720467503 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Children's Hospital Richmond | |||||||
| 2924 Brook Road | Richmond | VA | 23220 | 540506309 | 501(c)(3) | $15,300 | Medical Diagnosis |
| Children's Hospital San Diego | |||||||
| 3020 Childrens Way | San Diego | CA | 92123 | 951691313 | 501(c)(3) | $11,250 | Medical Diagnosis |
| Children's Medical Center | |||||||
| 2350 Stemmons Frwy Ste 5400 | Dallas | TX | 75207 | 750800628 | 501(c)(3) | $30,000 | Medical Diagnosis |
| Children's Research Institute (CNMC) | |||||||
| 111 Michigan Avenue NW | Washington | DC | 20010 | 521654453 | 501(c)(3) | $452,177 | Research |
| CHOP of UPMC | |||||||
| 4401 Penn Ave Fac Pavilion 6th Fl | Pittsburgh | PA | 15224 | 250402510 | 501(c)(3) | $18,900 | Medical Diagnosis |
| Christus Spohn Hospital Corpus Christi Memorial | |||||||
| 2606 Hospital Blvd | Corpus Christi | TX | 78405 | 741109836 | 501(c)(3) | $10,000 | Medical Diagnosis |
| Cleveland Clinic Foundation | |||||||
| PO Box 931531 | Cleveland | OH | 44193 | 340714585 | 501(c)(3) | $130,000 | Research |
| Clinical Neurology PC | |||||||
| 4221 S Western Suite 5010 | Oklahoma City | OK | 73109 | 412141136 | C CORP | $107,100 | Medical Diagnosis |
| Colorado State University | |||||||
| Campus Delivery Box 2002 | Fort Collins | CO | 80523 | 846000545 | State of Colora | $121,000 | Research |
| Columbia University Medical Center | |||||||
| 630 West 168th Street Box 49 | New York | NY | 10032 | 135598093 | 501(c)(3) | $861,930 | Research |
| Columbus Children's Hospital | |||||||
| 700 Childrens Dr | Columbus | OH | 43205 | 314379441 | 501(c)(3) | $21,600 | Medical Diagnosis |
| Cook Children's Medical Center | |||||||
| 901 Seventh Avenue Ste 120 | Ft Worth | TX | 76104 | 752051646 | 501(c)(3) | $8,100 | Medical Diagnosis |
| Cornell University | |||||||
| 373 Pine Tree Road | Ithaca | NY | 14850 | 150532082 | 501(c)(3) | $120,000 | Research |
| Covenant Health System | |||||||
| 3615 19th St | Lubbock | TX | 79408 | 752765566 | 501(c)(3) | $23,600 | Medical Diagnosis |
| Dean Clinic | |||||||
| 1808 West Beltline Hwy | Madison | WI | 53713 | 391128616 | C CORP | $25,000 | Medical Diagnosis |
| Dent Neurologic Group LLP | |||||||
| 3980 Sheridan Drive Suite B | Amherst | NY | 14226 | 161582336 | PARTNERSHIP | $12,600 | Medical Diagnosis |
| Drexel Neurological Associates | |||||||
| 245 North 15th St Mail Stop 423 | Philadelphia | PA | 19102 | 754022380 | C CORP | $33,750 | Medical Diagnosis |
| Driscoll Children's Hospital | |||||||
| 3533 South Alameda Street | Corpus Christi | TX | 78411 | 742577746 | 501(c)(3) | $6,000 | Medical Diagnosis |
| Duke University | |||||||
| PO Box 602651 | Charlotte | NC | 28260 | 560532129 | 501(c)(3) | $100,000 | Research |
| Duke University Medical Center | |||||||
| Box 3069 | Durham | NC | 27710 | 561029437 | 501(c)(3) | $81,000 | Medical Diagnosis |
| Eastern Maine Medical Center | |||||||
| 489 State Street | Bangor | ME | 04401 | 010211501 | 501(c)(3) | $10,800 | Medical Diagnosis |
| El Paso Child Neurology PA | |||||||
| 1900 N Oregon Ste 520 | El Paso | TX | 79902 | 264347703 | C CORP | $16,200 | Medical Diagnosis |
| Elkhart Clinic LLC | |||||||
| 303 S Nappanee | Elkhart | IN | 07103 | 351911857 | PARTNERSHIP | $14,400 | Medical Diagnosis |
| Emory Clinic Inc | |||||||
| 101 Woodruff Circle | Atlanta | GA | 30322 | 582030692 | 501(c)(3) | $81,000 | Medical Diagnosis |
| Emory University | |||||||
| 1599 Clifton Road NE 4th Floor | Atlanta | GA | 30322 | 580566256 | 501(c)(3) | $294,655 | Research |
| Fletcher Allen Health Care Center | |||||||
| 1 South Prospect Street | Burlington | VT | 05401 | 030219303 | State of Vermon | $6,300 | Medical Diagnosis |
| Fred Hutchinson Cancer Research Center | |||||||
| 1100 Fairview Avenue N J6-500 | Seattle | WA | 98109 | 237156071 | 501(c)(3) | $100,000 | Research |
| Georgetown University | |||||||
| 4000 Reservoir Rd NW Bldg D Rm 207 | Washington | DC | 20057 | 530196603 | 501(c)(3) | $20,700 | Medical Diagnosis |
| Georgia Health Sciences Medical Center | |||||||
| 1120 15th Street Rm FY127 | Augusta | GA | 30912 | 582144788 | 501(c)(3) | $18,000 | Medical Diagnosis |
| Georgia Health Sciences University | |||||||
| 1120 15th Street | Augusta | GA | 30912 | 586002053 | State of Georgi | $130,000 | Research |
| Glendale Neurological Assoc DBA (MIND) | |||||||
| 28595 Orchard Lake Rd 200 | Farmington Hills | MI | 48334 | 381889896 | C CORP | $63,000 | Medical Diagnosis |
| Good Shepherd Rehabilitation Hosp | |||||||
| 501 St John Street | Allentown | PA | 18103 | 231371947 | 501(c)(3) | $61,200 | Medical Diagnosis |
| Greenville Hosp System Univ Medical Group | |||||||
| 200 Patewood Drive A-200 | Greenville | SC | 29615 | 576007863 | 501(c)(3) | $8,100 | Medical Diagnosis |
| Halo Therapeutics LLC | |||||||
| 275 GROVE ST SUITE 2-400 | Newton | MA | 02466 | 275336394 | PARTNERSHIP | $207,000 | Research |
| Hamot 2nd Century Fund | |||||||
| 302 French Street | Erie | PA | 16507 | 251400909 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Hershey Medical Center | |||||||
| 500 University Drive Mail CodeEC0 | Hershey | PA | 17033 | 251854772 | State of Pennsy | $73,800 | Medical Diagnosis |
| HospEspanol De Auxilio Mutuo Inc | |||||||
| PO Box 191227 | Hato Rey | PR | 00919 | 660486907 | C CORP | $49,500 | Medical Diagnosis |
| Hospital De La Concepcion | |||||||
| PO Box 285 | San German | PR | 00681 | 660227304 | 501(c)(3) | $28,800 | Medical Diagnosis |
| Hospital For Special Care | |||||||
| 2150 Corbin Avenue | New Britain | CT | 06053 | 060646766 | 501(c)(3) | $62,600 | Medical Diagnosis |
| Hospital For Special Surgery | |||||||
| 535 E 70th Street 3rd Fl | New York | NY | 10021 | 131624135 | 501(c)(3) | $80,000 | Medical Diagnosis |
| Hospital of The University of Pennsylvania | |||||||
| 3400 Spruce Street | Philadelphia | PA | 19104 | 231352685 | State of Pennsy | $52,583 | Medical Diagnosis |
| Idaho Elks Rehabilitation Hospital | |||||||
| PO Box 1100 | Boise | ID | 83701 | 820302317 | 501(c)(3) | $7,294 | Medical Diagnosis |
| Inst Of Rehab MedNY Univ Med School | |||||||
| 240 East 348th Street Room 15-60B | New York | NY | 10016 | 133971298 | 501(c)(3) | $72,900 | Medical Diagnosis |
| Iowa Health Des Moines | |||||||
| 1200 Pleasant St | Des Moines | IA | 50309 | 420680452 | 501(c)(3) | $10,800 | Medical Diagnosis |
| IU Health Riley Hospital for Children | |||||||
| 702 Barnhill Drive Room 1757 | Indianapolis | IN | 46202 | 351955872 | 501(c)(3) | $33,750 | Medical Diagnosis |
| Joan an Sanford I Weill Medical College of Cornel | |||||||
| 1300 York Avenue Box 89 | New York | NY | 10065 | 131623978 | 501(c)(3) | $218,439 | Research |
| John Hopkins Univ School of Medicine | |||||||
| 600 NWolfe Street Meyer 5-119 | Baltimore | MD | 21287 | 320061260 | 501(c)(3) | $195,300 | Medical Diagnosis |
| Johns Hopkins University School of Medicine | |||||||
| 733 North Broadway Suite 117 | Baltimore | MD | 21205 | 520595110 | 501(c)(3) | $492,406 | Research |
| Kennedy Hospital | |||||||
| 500 Marlboro Rd | Cherry Hill | NJ | 08034 | 221773439 | 501(c)(3) | $15,300 | Medical Diagnosis |
| KUMC Research Institute | |||||||
| MS-1039 3901 Rainbow Blvd 6003 Wes | Kansas City | KS | 66160 | 481108830 | 501(c)(3) | $70,200 | Medical Diagnosis |
| Lahey Clinic Foundation Inc | |||||||
| 41 Mall Road | Burlington | MA | 01805 | 042704683 | 501(c)(3) | $11,138 | Medical Diagnosis |
| Le Bonheur Children's Hospital | |||||||
| 50 Peabody Place Suite 400 | Memphis | TN | 38103 | 621872938 | 501(c)(3) | $24,300 | Medical Diagnosis |
| Loma Linda University Health Care | |||||||
| 11175 Campus Street Coleman Pavili | Loma Linda | CA | 92354 | 330364239 | 501(c)(3) | $26,100 | Medical Diagnosis |
| Louisiana State Univ Health Sci Ctr | |||||||
| 1501 Kings Highway | Shreveport | LA | 71130 | 720702002 | State of Louisi | $27,000 | Medical Diagnosis |
| LSU School of Medicine | |||||||
| 433 Bolivar St | New Orleans | LA | 70112 | 721304948 | State of Louisi | $33,300 | Medical Diagnosis |
| Lucile Salter Packard Child Hosp | |||||||
| 4100 Bohannon Drive Mail Code 5894 | Menlo Park | CA | 94304 | 770003859 | 501(c)(3) | $43,000 | Medical Diagnosis |
| Lutheran Hospital of Indiana Inc | |||||||
| 7950 W Jefferson Blvd | Fort Wayne | IN | 46804 | 351963748 | 501(c)(3) | $18,000 | Medical Diagnosis |
| Maine Medical Cntr-Dept of Rehabil | |||||||
| 22 Bramhall Street | Portland | ME | 04102 | 010238552 | 501(c)(3) | $14,850 | Medical Diagnosis |
| Marshfield Clinic | |||||||
| 1000 North Oak Avenue | Marshfield | WI | 54449 | 390452970 | 501(c)(3) | $10,800 | Medical Diagnosis |
| Mary Hitchcock Memorial Hospital | |||||||
| One Medical Center Dr | Lebanon | NH | 03756 | 020222140 | 501(c)(3) | $22,500 | Medical Diagnosis |
| Mayo Clinic | |||||||
| 200 First Street SW | Rochester | MN | 55905 | 416011702 | 501(c)(3) | $5,500 | Research |
| Mayo Clinic Jacksonville | |||||||
| 4500 San Pablo Road | Jacksonville | FL | 32224 | 593337028 | 501(c)(3) | $27,000 | Medical Diagnosis |
| Medical College of Virginia | |||||||
| PO Box 980599 | Richmond | VA | 23298 | 541581185 | 501(c)(3) | $20,000 | Medical Diagnosis |
| Medical College of Wisconsin | |||||||
| 9200 W Wisconsin Ave | Milwaukee | WI | 53226 | 390806261 | 501(c)(3) | $30,600 | Medical Diagnosis |
| Memorial Sloan-Kettering Cancer Center | |||||||
| 1275 York Avenue Box 701 | New York | NY | 10065 | 131924236 | 501(c)(3) | $128,634 | Research |
| Mercy Clinic Neurology | |||||||
| 2115 S Fremont | Springfield | MO | 65804 | 440552485 | 501(c)(3) | $19,000 | Medical Diagnosis |
| Mercy Health Saint Mary's | |||||||
| 200Jefferson SE | Grand Rapids | MI | 49503 | 382113393 | 501(c)(3) | $40,000 | Medical Diagnosis |
| Methodist Neurological Institute | |||||||
| 6560 Fannin Street 802 | Houston | TX | 77030 | 870721923 | 501(c)(3) | $132,300 | Medical Diagnosis |
| MetroHealth Medical Center | |||||||
| PO Box 73122 | Cleveland | OH | 44193 | 346004382 | 501(c)(3) | $36,000 | Medical Diagnosis |
| Miller School of Medicine of the University of Mia | |||||||
| 1320 South Dixie Highway Suite 650 | Coral Gables | FL | 33146 | 590624458 | State of Florid | $299,200 | Research |
| Monmouth Medical Center Foundation | |||||||
| 300 Second Ave | Long Branch | NJ | 07740 | 223452412 | 501(c)(3) | $27,000 | Medical Diagnosis |
| Montefiore Medical Center | |||||||
| 3351 Steuben Ave 3rd Flr | Bronx | NY | 10467 | 133908657 | 501(c)(3) | $46,575 | Medical Diagnosis |
| Nationwide Children's Hospital | |||||||
| 555 South 18th St | Columbus | OH | 43205 | 311036370 | 501(c)(3) | $7,200 | Medical Diagnosis |
| Neurology Associates | |||||||
| 1301 S Cliff Ave 506 | Sioux Falls | SD | 57105 | 460364889 | 501(c)(3) | $16,200 | Medical Diagnosis |
| Neurology Associates of Arlington | |||||||
| 811 Interstate 20 W Ste 212 | Arlington | TX | 76017 | 752405825 | 501(c)(3) | $24,300 | Medical Diagnosis |
| Neurology Medical Service Group | |||||||
| 750 East Adams Street | Syracuse | NY | 13210 | 166066240 | 501(c)(3) | $45,900 | Medical Diagnosis |
| Neurology Specialists of Jupiter | |||||||
| 601 University Blvd Suite 102 | Jupiter | FL | 33458 | 650925187 | 501(c)(3) | $7,200 | Medical Diagnosis |
| Northwestern Medical Faculty Found | |||||||
| 710 N Lake Shore Dr Rm 1119 | Chicago | IL | 60611 | 393097297 | 501(c)(3) | $62,000 | Medical Diagnosis |
| Ohio State University Hospitals | |||||||
| 1581 Dodd Drive McCampbell Hall | Columbus | OH | 43210 | 316025986 | State of Ohio | $61,200 | Medical Diagnosis |
| Olive View - UCLA Medical Center | |||||||
| 14445 Olive View Drive 2C136 | Sylmar | CA | 91342 | 952249539 | State of Califo | $22,500 | Medical Diagnosis |
| Oregon Health & Science University | |||||||
| 3181 SW Sam Jackson Park Road | Portland | OR | 97201 | 931176109 | 501(c)(3) | $18,000 | Medical Diagnosis |
| Oregon Health and Science University | |||||||
| 3181 SW Sam Jackson Park Rd | Portland | OR | 97239 | 931176109 | 170 (c) (1) | $117,216 | Research |
| OSF Medical Group Neurology | |||||||
| PO Box 1712 | Peoria | IL | 61656 | 370662569 | 501(c)(3) | $14,125 | Medical Diagnosis |
| Our Lady of Lourdes RMC | |||||||
| 611 St Landry St | Lafayette | LA | 70506 | 720423635 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Phoenix Children's Hospital | |||||||
| 1919 East Thomas Rd | Phoenix | AZ | 85016 | 860422559 | 501(c)(3) | $6,000 | Medical Diagnosis |
| Ponce School of Medicine | |||||||
| PO Box 7004 | Ponce | PR | 00732 | 660379122 | 501(c)(3) | $36,000 | Medical Diagnosis |
| President an Fellows of Harvard College | |||||||
| PO Box 415649 | Boston | MA | 02241 | 042103580 | 501(c)(3) | $100,538 | Research |
| Prevea Clinic | |||||||
| PO Box 19070 | Green Bay | WI | 54307 | 391839349 | 501(c)(3) | $17,932 | Medical Diagnosis |
| Purdue University | |||||||
| Young Hall 155 S Grant Street | West Lafayette | IN | 46202 | 356002041 | State of Indian | $84,600 | Research |
| Rady Children's Hospital - San Diego | |||||||
| 3020 Childrens Way MC 5118 | San Diego | CA | 92123 | 951691313 | 501(c)(3) | $33,750 | Medical Diagnosis |
| Rapid City Regional Hospital | |||||||
| PO Box 3450 | Rapid City | SD | 57709 | 460319070 | 501(c)(3) | $5,400 | Medical Diagnosis |
| Rapides Specialty Clinic Division of RRMC | |||||||
| Box 30101 211 Fourth Street | Alexandria | LA | 71301 | 720702002 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Regents of The University of California(Los Angele | |||||||
| 710 Westwood Plaza 4-231 Rnrc | Los Angeles | CA | 90095 | 956006143 | State of Califo | $108,000 | Medical Diagnosis |
| Regents of The University of California(San Franci | |||||||
| 1855 Folsom MCB 425 | San Francisco | CA | 94143 | 946036493 | State of Califo | $25,000 | Medical Diagnosis |
| Regents of The University of California Irvine Me | |||||||
| 200 South Manchester Avenue Ste 1 | Orange | CA | 92868 | 952226406 | State of Califo | $66,000 | Medical Diagnosis |
| Regents of the University of Minnesota - Twin Citi | |||||||
| 450 McNamara Alumni Center 200 Oak | Minneapolis | MN | 55455 | 416007513 | State of Minnes | $251,840 | Research |
| ReveraGen BioPharma Inc | |||||||
| 8070 Georgia Ave Ste 416 | Silver Spring | MD | 20910 | 263808415 | C CORP | $507,600 | Research |
| Rhode Island Hospital | |||||||
| 593 Eddy Street | Providence | RI | 02903 | 050258954 | 501(c)(3) | $16,200 | Medical Diagnosis |
| Round Rock Medical Center | |||||||
| 2400 Round Rock Ave | Round Rock | TX | 78681 | 742781812 | 501(c)(3) | $13,500 | Medical Diagnosis |
| Rutgers New Jersey Medical School | |||||||
| 90 Bergen St Suite 8100 | Newark | NJ | 07101 | 351911857 | 501(c)(3) | $78,300 | Medical Diagnosis |
| Sacred Heart Medical Center Found | |||||||
| 1255 Hilyard St PO Box 10905 | Eugene | OR | 97440 | 931084906 | 501(c)(3) | $13,500 | Medical Diagnosis |
| Sanford Clinic Fargo Region | |||||||
| 720 4th Street North | Fargo | ND | 58122 | 911770748 | 501(c)(3) | $17,100 | Medical Diagnosis |
| Sanofi-Aventis US Inc | |||||||
| 55 Corporate Drive | Bridgewater | NJ | 08807 | 421612939 | C CORP | $60,000 | Research |
| Sarasota Memorial Hospital | |||||||
| 1700 Tamiami Trail | Sarasota | FL | 34239 | 596012500 | 501(c)(3) | $24,000 | Medical Diagnosis |
| Sentara Norfolk General Hospital | |||||||
| 6015 Poplar Hall Dr Ste 212 | Norfolk | VA | 23502 | 541547408 | 501(c)(3) | $22,500 | Medical Diagnosis |
| Shands Hospital | |||||||
| 302 Tigert Hall | Gainesville | FL | 32611 | 596002052 | 501(c)(3) | $22,050 | Medical Diagnosis |
| Shriners Hospfor Children - Portland | |||||||
| 3101 SW Sam Jackson Park R | Portland | OR | 97239 | 362193608 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Shriners Hospital For Children Chicago | |||||||
| 2211 N Oak Park Avenue | Chicago | IL | 60707 | 362193608 | 501(c)(3) | $25,000 | Medical Diagnosis |
| Shriners Hospital For Children in Spokane | |||||||
| 911 W 5th Avenue | Spokane | WA | 99204 | 362193608 | 501(c)(3) | $7,200 | Medical Diagnosis |
| Southern Research Institute | |||||||
| 2000 Ninth Avenue South | Birmingham | AL | 35205 | 630288868 | 501(c)(3) | $84,600 | Research |
| Spartanburg Neurological Services | |||||||
| 362 N Pine Street | Spartanburg | SC | 29302 | 570902952 | 501(c)(3) | $8,100 | Medical Diagnosis |
| Specially For Children | |||||||
| 1301 Barbara Jordan Blvd 200 | Austin | TX | 78723 | 742800601 | 501(c)(3) | $13,500 | Medical Diagnosis |
| St Anthony's Specialist LLC | |||||||
| 300 S Park Place Blvd Ste 170 | Clearwater | FL | 33759 | 743168197 | 501(c)(3) | $22,500 | Medical Diagnosis |
| St Charles Hospital And Rehabilitation Center | |||||||
| 200 Belle Terre Road | Port Jefferson | NY | 11777 | 412076312 | 501(c)(3) | $18,000 | Medical Diagnosis |
| St Francis Medical Ctr | |||||||
| PO Box 1901 | Monroe | LA | 71210 | 720408970 | 501(c)(3) | $11,250 | Medical Diagnosis |
| St Joseph's Children's Hospital of Tampa | |||||||
| 2700 W Dr Martin Luther King Jr | Tampa | FL | 33607 | 591100828 | 501(c)(3) | $31,500 | Medical Diagnosis |
| St Joseph's Hosp & Medical Center | |||||||
| 350 West Thomas Rd | Phoenix | AZ | 85013 | 860096787 | 501(c)(3) | $66,000 | Medical Diagnosis |
| St Jude Children's Research Hospital | |||||||
| PO Box 1000 Dept 949 | Memphis | TN | 38148 | 620646012 | 501(c)(3) | $60,000 | Research |
| St Luke's Rehabilitation Institute | |||||||
| S 711 Cowley | Spokane | WA | 99202 | 911307555 | 501(c)(3) | $16,094 | Medical Diagnosis |
| St Peter's Hospital Foundation | |||||||
| 319 S Manning Blvd Ste 309 | Roessleville | NY | 12205 | 222262982 | 501(c)(3) | $120,000 | Medical Diagnosis |
| Stanford University | |||||||
| PO Box 44253 | San Francisco | CA | 94144 | 941156365 | State of Califo | $84,600 | Research |
| Texas Children's Hospital | |||||||
| 6621 Fannin | Houston | TX | 77030 | 741100555 | 501(c)(3) | $13,500 | Medical Diagnosis |
| Texas Neurology PA | |||||||
| 6301 Gaston Ave Ste 200W | Dallas | TX | 75214 | 752654757 | C CORP | $9,000 | Medical Diagnosis |
| The Board of Trustees of the University of Illinoi | |||||||
| 1737 W Polk St M/C 672 AOB 304 | Chicago | IL | 60612 | 376000511 | State of Illino | $250,286 | Research |
| The Children's Hospital | |||||||
| 13123 E 16th Avenul Rehab Medicine | Aurora | CO | 80045 | 840166760 | 501(c)(3) | $52,200 | Medical Diagnosis |
| The Children's Hospital of Philadelphia | |||||||
| 3615 Civic Center Blvd | Philadelphia | PA | 19104 | 231352166 | 501(c)(3) | $219,600 | Research |
| The Curators of the University of Missouri | |||||||
| 310 Jesse Hall | Columbia | MO | 65211 | 436003859 | State of Missou | $84,600 | Research |
| The Duluth Clinic Ltd | |||||||
| 400 E 3rd Street | Duluth | MN | 55805 | 410883623 | C CORP | $6,750 | Medical Diagnosis |
| The General Hospital Corporation | |||||||
| PO BOX 414876 | Boston | MA | 02241 | 042697983 | 501(c)(3) | $123,300 | Medical Diagnosis |
| The George Washington University | |||||||
| 2121 Eye St NW | Washington | DC | 20052 | 530196584 | 501(c)(3) | $84,600 | Research |
| The Methodist Hospital Research Institute | |||||||
| 6565 Fannin MGJ4-024 | Houston | TX | 77030 | 870721923 | 501(c)(3) | $178,955 | Research |
| The Nemours Foundation | |||||||
| 10140 Centurion Parkway North | Jacksonville | FL | 32246 | 590634433 | 501(c)(3) | $50,000 | Medical Diagnosis |
| The Ohio State University Research Foundation | |||||||
| 1960 Kenny Road | Columbus | OH | 43210 | 316025986 | State of Ohio | $204,493 | Research |
| The Regents of The Univ of Michigan | |||||||
| 2301 Commonwealth Blvd | Ann Arbor | MI | 48105 | 386006809 | State of Michig | $30,000 | Medical Diagnosis |
| The Regents of the University of California (Davis | |||||||
| 1850 Research Park Drive Ste 300 | Davis | CA | 95618 | 946036494 | State of Califo | $137,500 | Research |
| The Regents of the University of California Los A | |||||||
| 11000 Kinross Avenue Ste 211 | Los Angeles | CA | 90095 | 946006143 | State of Califo | $665,000 | Research |
| The Regents of the University of California San D | |||||||
| 9500 Gilman Drive Dept 0934 | La Jolla | CA | 92093 | 956006144 | State of Califo | $288,491 | Research |
| The Regents of the University of California San F | |||||||
| 3333 California Street Ste 315 | San Francisco | CA | 94118 | 946036493 | State of Califo | $135,360 | Research |
| The Regents of the University of Colorado | |||||||
| 3100 Marine Street Room 479 | Boulder | CO | 80309 | 846000555 | State of Colora | $212,925 | Research |
| The Regents of the University of Michigan | |||||||
| 3003 S State Street Room 1054 | Ann Arbor | MI | 48109 | 386006309 | State of Maryla | $240,630 | Research |
| The Research Foundation of SUNY | |||||||
| 750 E Adams St 209 CAB | Syracuse | NY | 13210 | 141368361 | State of New Yo | $185,760 | Research |
| The Research Institute at Nationwide Children's Ho | |||||||
| 700 Childrens Drive | Columbus | OH | 43205 | 316056230 | 501(c)(3) | $390,600 | Research |
| The Scripps Research Institute | |||||||
| 10550 North Torrey Pines Rd | La Jolla | CA | 92037 | 330435954 | 501(c)(3) | $240,908 | Research |
| The Trustees of the University of Pennsylvania | |||||||
| 3451 Walnut Street Franklin Bldg P | Philadelphia | PA | 19104 | 231352685 | State of Pennsy | $437,350 | Research |
| The Univ Of Texas Southwestern | |||||||
| 5323 Harry Hines Blvd | Dallas | TX | 75390 | 756002868 | State of Texas | $192,000 | Medical Diagnosis |
| The University of Alabama at Birmingham | |||||||
| 1720 2nd Avenue South AB 990 | Birmingham | AL | 35294 | 636005396 | State of Alabam | $103,133 | Research |
| The University of Iowa | |||||||
| 2 Gilmore Hall | Iowa City | IA | 52242 | 426004813 | State of Iowa | $431,657 | Research |
| The University of North Carolina at Chapel Hill | |||||||
| 104 Airport Drive Ste 2200 Campus | Chapel Hill | NC | 27599 | 566001393 | State of North | $132,000 | Research |
| The University of Texas Health Science Center at H | |||||||
| Post Office Box 20036 | Houston | TX | 77225 | 741761309 | State of Texas | $177,374 | Research |
| Tivorsan Pharmaceuticals Inc | |||||||
| 3 Davol Square A301 | Providence | RI | 02903 | 770702642 | C CORP | $600,000 | Research |
| Toledo Hospital | |||||||
| 3949 Sunforest Ct Suite 203 | Toledo | OH | 43623 | 344428256 | 501(c)(3) | $40,500 | Medical Diagnosis |
| Trustees of Columbia University | |||||||
| 622 W 168th Street Box 16 | New York | NY | 10032 | 133908657 | 501(c)(3) | $176,400 | Medical Diagnosis |
| Tufts Medical Center Hospital | |||||||
| 800 Washington St Dept of PMR | Boston | MA | 02111 | 043148378 | 501(c)(3) | $22,500 | Medical Diagnosis |
| UAB Division of Pediatric Neurology | |||||||
| 1600 7th Ave South Ste 406 | Birmingham | AL | 35233 | 630307306 | 501(c)(3) | $18,000 | Medical Diagnosis |
| UMPhysicians | |||||||
| 2101 SE 6th St Ste 4-184 MMC 2641E | Minneapolis | MN | 55455 | 411843943 | 501(c)(3) | $157,500 | Medical Diagnosis |
| Univ of MA Medical School | |||||||
| Rms 5-752 55 Lake Avenue N | Worcester | MA | 01655 | 043167352 | State of Massac | $21,600 | Medical Diagnosis |
| Univ of North Carolina Hospitals | |||||||
| 211 Friday Center Dr Suite 2033 | Chapel Hill | NC | 27514 | 570935917 | State of North | $34,200 | Medical Diagnosis |
| Univ Hosp Brooklyn SUNY-Downstate Med Ctr | |||||||
| 450 Clarkson Ave Box 1213 | Brooklyn | NY | 11203 | 141368361 | State of New Yo | $40,500 | Medical Diagnosis |
| Univ of Arkansas for Medical Sciences | |||||||
| One Hospital Drive DC05630 | Little Rock | AR | 72205 | 716046242 | State of Arkans | $54,000 | Medical Diagnosis |
| Univ of Miami Sponsored Programs | |||||||
| PO Box 405803 | Atlanta | GA | 30384 | 592579826 | 501(c)(3) | $57,600 | Medical Diagnosis |
| Univ of Nevada School of Medicine | |||||||
| 2040 W Charleston Blvd Ste 300 | Las Vegas | NV | 89102 | 880330858 | State of Nevada | $53,100 | Medical Diagnosis |
| Univ of New Mexico Health Sciences Ctr | |||||||
| MSC10 5620 1 University of New Mexi | Albuquerque | NM | 87131 | 856000642 | State of New Me | $10,800 | Medical Diagnosis |
| Univ of Rochester Medical Center | |||||||
| 601 Elmwood Ave Box 673 | Rochester | NY | 14642 | 160743209 | 501(c)(3) | $94,500 | Medical Diagnosis |
| Univ of TX Hlth Science Ctr MSRDP | |||||||
| 7703 Floyd Curl Drive | San Antonio | TX | 78284 | 741586031 | State of Texas | $74,700 | Medical Diagnosis |
| Univ of Utah School of Medicine | |||||||
| 175 North Medical Dr East 5th Floo | Salt Lake City | UT | 84132 | 870480520 | State of Utah | $209,836 | Medical Diagnosis |
| Univof Alabama Health SvcsFound | |||||||
| 1720 7Th Ave South Suite 350 Spar | Birmingham | AL | 35294 | 630649108 | State of Alabam | $75,000 | Medical Diagnosis |
| Univof Mississippi Medical Center | |||||||
| 2500 N State Street | Jackson | MS | 39216 | 646008520 | State of Missou | $37,500 | Medical Diagnosis |
| University Medical Associates | |||||||
| 1 Poston Road Ste 350 | Charleston | SC | 29407 | 571098556 | State of South | $35,100 | Medical Diagnosis |
| University Medical Center | |||||||
| 1501 N Campbell PO Box 245142 | Tucson | AZ | 85724 | 942958258 | 501(c)(3) | $63,000 | Medical Diagnosis |
| University Neurology Inc | |||||||
| ML525-231 Bethesda Ave | Cincinnati | OH | 45267 | 311000664 | 501(c)(3) | $70,200 | Medical Diagnosis |
| University of California Regents (Sacramento) | |||||||
| 4860 Y Street Ste 3850 | Sacramento | CA | 95817 | 946036494 | State of Califo | $45,000 | Medical Diagnosis |
| University of California Regents (San Francisco) | |||||||
| 505 Parnassus Ave M 798 Box 0114 | San Francisco | CA | 94143 | 946036493 | State of Califo | $108,000 | Medical Diagnosis |
| University of Cincinnati | |||||||
| 51 Goodman Drive PO Box 210222 | Cincinnati | OH | 45221 | 316000989 | State of Ohio | $110,000 | Research |
| University of Florida | |||||||
| 219 Grinter Hall | Gainesville | FL | 32611 | 596002052 | State of Florid | $100,000 | Research |
| University of Iowa Hospitals & Clinics | |||||||
| B5 Jessup Hall | Iowa City | IA | 52242 | 426004813 | State of Iowa | $46,800 | Medical Diagnosis |
| University of Louisville Physicians Inc | |||||||
| 500 S Preston Street | Louisville | KY | 40202 | 273645560 | State of Kentuc | $7,000 | Medical Diagnosis |
| University of Miami | |||||||
| 1120 NW 14th Avenue Suite 1306 | Miami | FL | 33136 | 590624458 | State of Florid | $12,195 | Medical Diagnosis |
| University of Nebraska Medical Center | |||||||
| 600 S42nd St | Omaha | NE | 68198 | 470049123 | State of Nebras | $36,000 | Medical Diagnosis |
| University of Oregon | |||||||
| 5219 University of Oregon | Eugene | OR | 97403 | 481278531 | State of Oregon | $84,600 | Research |
| University of Pittsburgh | |||||||
| 123 University Place | Pittsburgh | PA | 15213 | 250965591 | State of Pennsy | $84,600 | Research |
| University of Pittsburgh | |||||||
| 200 Lothrop Street Suite F875 | Pittsburgh | PA | 15213 | 250965591 | State of Pennsy | $54,000 | Medical Diagnosis |
| University of Puerto Rico Medical Sciences | |||||||
| GPO 365067 1st Fl Univ Hospital | San Juan | PR | 00936 | 660433762 | State of Puerto | $45,000 | Medical Diagnosis |
| University of Rochester | |||||||
| 518 Hylan Bldg Box 270140 | Rochester | NY | 14627 | 160743209 | 501(c)(3) | $772,333 | Research |
| University of Tennessee Medical Center | |||||||
| 1928 Alcoa Highway Medical Bldg B | Knoxville | TN | 37920 | 311626179 | State of Tennes | $29,600 | Medical Diagnosis |
| University of Utah | |||||||
| 75 S 2000 East 211 RAB | Salt Lake City | UT | 84112 | 876000525 | State of Utah | $125,000 | Research |
| University of Virginia Health | |||||||
| PO Box 9007 | Charlottesville | VA | 22906 | 541124769 | State of Virgin | $57,600 | Medical Diagnosis |
| University of Washington | |||||||
| 4333 Brooklyn Ave NE | Seattle | WA | 98195 | 916001537 | State of Washin | $622,358 | Research |
| University of Washington MedCenter | |||||||
| 1959 NE Pacific Street PO Box 25 | Seattle | WA | 98195 | 916001537 | State of Washin | $63,900 | Medical Diagnosis |
| University Physicians | |||||||
| One Hospital Drive DC05630 | Columbia | MO | 65212 | 436003859 | State of Missou | $12,600 | Medical Diagnosis |
| University Physicians Inc | |||||||
| PO Box 725 | Aurora | CO | 80040 | 742161737 | State of Colora | $135,000 | Medical Diagnosis |
| Univiversity of IL Board of Trustees | |||||||
| PO Box 20787 | Springfield | IL | 62708 | 376000511 | State of Illino | $63,500 | Medical Diagnosis |
| UT Southwestern Medical Center | |||||||
| 5323 Harry Hines Blvd | Dallas | TX | 75390 | 756002868 | State of Texas | $182,261 | Research |
| Valerion Therapeutics Inc | |||||||
| 100 Main St Suite 110 | Concord | MA | 01742 | 320246380 | C CORP | $1,448,461 | Research |
| Vanderbilt Department of Neurology | |||||||
| Dept at 40303 - Center 4-01-400-5 | Atlanta | GA | 31992 | 620476822 | 501(c)(3) | $149,000 | Medical Diagnosis |
| Via Christi Med Ctr St Francis Campus | |||||||
| 707 N Emporia | Wichita | KS | 67147 | 481172106 | 501(c)(3) | $29,250 | Medical Diagnosis |
| W Virginia University Research Corp | |||||||
| 1 Medical Ctr Dr Ste 7500 | Morgantown | WV | 26508 | 550665758 | State of West V | $32,400 | Medical Diagnosis |
| Wake Forest Univ School of Medicine | |||||||
| Medical Center Blvd | WinstonSalem | NC | 27157 | 223849199 | 501(c)(3) | $18,000 | Medical Diagnosis |
| Washington UnivSchool of Medicine | |||||||
| Box 8111 600 S Euclid Ave | St Louis | MO | 63110 | 430653611 | State of Missou | $94,500 | Medical Diagnosis |
| Washington University in St Louis | |||||||
| 660 South Euclid Avenue Campus Box | St Louis | MO | 63110 | 430653611 | 501(c)(3) | $668,356 | Research |
| Wesley Neurology Clinic PC | |||||||
| 1211 Union Avenue Suite 400 | Memphis | TN | 38104 | 581544781 | 501(c)(3) | $55,700 | Medical Diagnosis |
| White Plains Hospital & Medical Center | |||||||
| Davis Avenue at East Post Road | White Plains | NY | 10601 | 131740130 | 501(c)(3) | $6,300 | Medical Diagnosis |
| Wichita Falls Neurology Center PLLC | |||||||
| 1600 7th Street Ste B | Wichita Falls | TX | 76301 | 752151000 | PARTNERSHIP | $5,400 | Medical Diagnosis |
| Yale University | |||||||
| 800 Howard Ave PO Box 208071 | New Haven | CT | 06520 | 060646973 | 501(c)(3) | $16,750 | Medical Diagnosis |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 213 | Total501c3OrgCnt |
| Total Other Org | 26 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | FORM 990, SCHEDULE I, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRYS THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Club Dues Or Fees | Yes (X) | ClubDuesOrFeesInd |
| Written Policy Ref T And E Expnss | Yes (true) | WrittenPolicyRefTAndEExpnssInd |
| Substantiation Required | Yes (true) | SubstantiationRequiredInd |
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | Yes (true) | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (14 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Steven Derks | ||||||||||||||
| President & CEO | $441,134 | $0 | $30,000 | $0 | $0 | $0 | $66,750 | $0 | $19,299 | $0 | $557,183 | $0 | $0 | $0 |
| Julie Faber CPA | ||||||||||||||
| CFO & Asst Treasurer | $233,810 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $6,860 | $0 | $240,670 | $0 | $0 | $0 |
| Valerie A Cwik MD | ||||||||||||||
| Asst. Sec/chief med scientific | $200,863 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $6,881 | $0 | $207,744 | $0 | $0 | $0 |
| Gail Schmertz Kerner Esq | ||||||||||||||
| Asst. Sec-Chief Legal OfficeR | $191,725 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $19,272 | $0 | $210,997 | $0 | $0 | $0 |
| Peter Morgan | ||||||||||||||
| EVP & COO | $146,589 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $19,321 | $0 | $165,910 | $0 | $0 | $0 |
| Ann McNamara | ||||||||||||||
| EVP-Chief Development OfficeR | $215,180 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $19,299 | $0 | $234,479 | $0 | $0 | $0 |
| Steven Ford | ||||||||||||||
| EVP Chief Communications & Mkt | $203,643 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $19,299 | $0 | $222,942 | $0 | $0 | $0 |
| Kevin W Moran | ||||||||||||||
| VP Program Development | $156,291 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $19,321 | $0 | $175,612 | $0 | $0 | $0 |
| Robert M Grinsfelder | ||||||||||||||
| EVP & CHIEF FIELD OP OFFICER | $150,981 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $12,762 | $0 | $163,743 | $0 | $0 | $0 |
| John Walsh | ||||||||||||||
| Div Chief Executive | $147,784 | $0 | $3,000 | $0 | $0 | $0 | $0 | $0 | $19,321 | $0 | $170,105 | $0 | $0 | $0 |
| Todd Hermon | ||||||||||||||
| NVP Retail Partnerships | $147,514 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $12,762 | $0 | $160,276 | $0 | $0 | $0 |
| Kimberly Bruna | ||||||||||||||
| NVP & Community Engagement | $146,265 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $6,881 | $0 | $153,146 | $0 | $0 | $0 |
| Bradley Barghols | ||||||||||||||
| Div Chief Executive | $138,175 | $0 | $3,000 | $0 | $0 | $0 | $0 | $0 | $19,321 | $0 | $160,496 | $0 | $0 | $0 |
| Margaret Hodges | ||||||||||||||
| Div Chief Executive | $131,463 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $19,321 | $0 | $150,784 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PARTICIPATION IN, OR RECEIVED PAYMENT FROM RETIREMENT PLAN | FormAndLineReferenceDesc |
| Explanation | Steven M. Derks $66,750 457 B & F retirement plan | ExplanationTxt |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Daniel G Fries | PersonNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | MDA Board Member | RelationshipDescriptionTxt |
| Transaction | $301,889 | TransactionAmt |
| Transaction | Pension Actuaries Service | TransactionDesc |
| Sharing Of Revenues | false | SharingOfRevenuesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | BUSINESS TRANSACTIONS INVOLVING INTERESTED PERSONS | FormAndLineReferenceDesc |
| Explanation | (A) NAME OF PERSON: DANIEL G. FRIES (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $301,889 (D) DESCRIPTION OF TRANSACTION: MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. (E) SHARING OF ORGANIZATION REVENUES? = NO | ExplanationTxt |
Schedule M IRS990ScheduleM
| Field | Value | IRS element (for citing) |
|---|---|---|
| Works Of Art | WorksOfArtGrp | |
| Art Historical Treasures | ArtHistoricalTreasuresGrp | |
| Art Fractional Interest | ArtFractionalInterestGrp | |
| Books And Publications | BooksAndPublicationsGrp | |
| Clothing And Household Goods | ClothingAndHouseholdGoodsGrp | |
| Cars And Other Vehicles | CarsAndOtherVehiclesGrp | |
| Boats And Planes | BoatsAndPlanesGrp | |
| Intellectual Property | IntellectualPropertyGrp |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 18 | ContributionCnt |
| Noncash Contributions Rpt F990 | $56,566 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | SELLING PRICE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities Closely Held Stock | SecuritiesCloselyHeldStockGrp | |
| Secur Prtnrshp Trust Intrsts | SecurPrtnrshpTrustIntrstsGrp | |
| Securities Miscellaneous | SecuritiesMiscellaneousGrp | |
| Qualified Contrib Hist Struct | QualifiedContribHistStructGrp | |
| Qualified Contrib Other | QualifiedContribOtherGrp | |
| Real Estate Residential | RealEstateResidentialGrp | |
| Real Estate Commercial | RealEstateCommercialGrp | |
| Real Estate Other | RealEstateOtherGrp | |
| Collectibles | CollectiblesGrp | |
| Food Inventory | FoodInventoryGrp | |
| Drugs And Medical Supplies | DrugsAndMedicalSuppliesGrp | |
| Taxidermy | TaxidermyGrp | |
| Historical Artifacts | HistoricalArtifactsGrp | |
| Scientific Specimens | ScientificSpecimensGrp | |
| Archaeological Artifacts | ArchaeologicalArtifactsGrp |
Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)
| Non Cash CheckboxNonCashCheckboxInd | DescDesc | ContributionContributionCnt | Noncash Contributions Rpt F990NoncashContributionsRptF990Amt | Method Of Determining RevenuesMethodOfDeterminingRevenuesTxt |
|---|---|---|---|---|
| Yes (X) | MEDICAL EQUIPMENT | 24 | $451,099 | APPRAISAL |
| Yes (X) | BASEBALL TICKETS | 4 | $240 | APPRAISAL |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 25 | Form8283ReceivedCnt |
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | false | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | false | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART I, LINE 1 | MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. |
| FORM 990, PART VI, SECTION B, LINE 11 | ALL BOARD MEMBERS WERE INVITED TO THE AUDIT COMMITTEE MEETING FOR THE FEDERAL FORM 990 REVIEW BY BDO BEFORE FILING WITH THE IRS. THOSE NOT IN ATTENDANCE WERE PROVIDED A COPY. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH THE MDA LEGAL DEPARTMENT. |
| FORM 990, PART VI, SECTION B, LINE 15 | A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. |
| OTHER CHANGES IN NET ASSETS - FORM 990, PART XI, LINE 9 | CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS -23,205,152 |
| FORM 990, PART XI, LINE 2C | THERE HAVE BEEN NO CHANGES DURING THE YEAR IN THE PROCESS FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS. |
| FORM 990, PART VI, LINE 4: CHANGE TO BYLAWS | The organization made several bylaws changes effective June 26, 2014 and October 23, 2014. Included in these changes was the creation of a Compensation Committee which has responsibility relating to the process for determining the compensation for the organization's Chief Executive Officer and other senior staff executives. |