STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

NATIONAL ECZEMA ASSOCIATION: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
NATIONAL ECZEMA ASSOCIATION (EIN 93-0988840)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-11-12
IRS object ID
202513169349309281
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-11-12T18:35:32-08:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN371420474PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Fontanello Duffield & Otake LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1111 Pine Street Suite 1750AddressLine1Txt
CitySan FranciscoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94111ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN930988840EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1National Eczema AssociationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone4154993474PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1505 San Marin Drive B300AddressLine1Txt
CityNovatoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94945ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonKristin BellesonPersonNm
Person TitleCEOPersonTitleTxt
Signature2025-11-12SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonErik SatowPreparerPersonNm
PTINP01410341PTIN
Phone4159830200PhoneNum
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerKristin BellesonPrincipalOfficerNm
Gross Receipts$12,958,720GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.nationaleczema.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1988FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionNEA is the driving force for an eczema community fueled by knowledge, strengthened through collective action and propelled by the promise of a better future.ActivityOrMissionDesc
Voting Members Governing Body9VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee31TotalEmployeeCnt
Total Volunteers450TotalVolunteersCnt
Total Gross UBI$875,947TotalGrossUBIAmt
PY Contributions Grants$3,748,923PYContributionsGrantsAmt
CY Contributions Grants$5,393,885CYContributionsGrantsAmt
PY Program Service Revenue$3,635,456PYProgramServiceRevenueAmt
CY Program Service Revenue$3,850,659CYProgramServiceRevenueAmt
PY Investment Income-$173,298PYInvestmentIncomeAmt
CY Investment Income$912,839CYInvestmentIncomeAmt
PY Other Revenue$1,045PYOtherRevenueAmt
CY Other Revenue$16,430CYOtherRevenueAmt
PY Total Revenue$7,212,126PYTotalRevenueAmt
CY Total Revenue$10,173,813CYTotalRevenueAmt
PY Grants And Similar Paid$616,101PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$688,173CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$4,373,497PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$4,812,531CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$1,141,206CYTotalFundraisingExpenseAmt
PY Other Expenses$3,132,931PYOtherExpensesAmt
CY Other Expenses$4,249,322CYOtherExpensesAmt
PY Total Expenses$8,122,529PYTotalExpensesAmt
CY Total Expenses$9,750,026CYTotalExpensesAmt
PY Revenues Less Expenses-$910,403PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$423,787CYRevenuesLessExpensesAmt
Total Assets BOY$8,910,198TotalAssetsBOYAmt
Total Assets EOY$9,360,729TotalAssetsEOYAmt
Total Liabilities BOY$397,879TotalLiabilitiesBOYAmt
Total Liabilities EOY$551,438TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$8,512,319NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,809,291NetAssetsOrFundBalancesEOYAmt
MissionNEA is the driving force for an eczema community fueled by knowledge, strengthened through collective action and propelled by the promise of a better future.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$6,683,095ExpenseAmt
Revenue$3,850,659RevenueAmt
DescEczema Research, Awareness & Patient SupportThe National Eczema Association (NEA) improves the quality of life for people affected by eczema through research, education, advocacy, and community support. In 2024, NEA conducted its second national burden survey focused on forms of eczema beyond atopic dermatitis to guide care and research priorities. NEA hosted Eczema Expo 2024 in Denver with 400+ participants, providing education, connection, and mental-health resources92% reported feeling more supported. The EczemaWise mobile app surpassed 25,000 users and received multiple national awards for patient engagement. The Seal of Acceptance grew to 525+ products and expanded into lip care, deodorant, and apparel categories. NEA Ambassadors led 250+ advocacy actions, advancing the Safe Step Act and HELP Copays Act. NEAs #EczemaEverywhere campaign during Eczema Awareness Month 2024 reached 7 million impressions, amplifying public understanding of eczema as a serious disease.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$688,173ExpenseAmt
Grant$688,173GrantAmt
DescEczema Research We FundNEA celebrated 21 years of research investment by awarding nearly $1 million in 2024 to scientists studying eczema biology, inflammation, and psychosocial impact. Funded projects examined new therapeutic pathways, itch mechanisms, and barrier-repair science. Since its inception, NEA has awarded over $7 million to research advancing diagnosis, treatment, and patient outcomes.Community & Global EngagementNEA expanded its leadership role through the Global Skin Alliance and international eczema collaborations in Prague and Melbourne, sharing research and policy solutions worldwide. NEA strengthened clinician partnerships through its Healthcare Provider Collaborative and expanded digital education for patients and caregivers. NEAs digital and social channels now reach hundreds of thousands annually, providing trusted information and connection across the eczema community.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$7,371,268TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document77IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee31EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members9GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonKristin BellesonPersonNm
Phone4154993474PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1505 San Marin Drive Ste B300AddressLine1Txt
CityNovatoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94945ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (9 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerInd
Wendy Smith Begolka
Chief Strategy Off40.000.00$249,036$0$37,356
Julie Bock til 72024
CEO40.000.00$224,519$0$33,678
Melody Sugg
VP, Philanthropy40.000.00$199,000$0$29,850
Amber Favetti
VP Mkting & Comms40.000.00$196,800$0$29,520
Kristin Belleson
CEO40.000.00$199,830$0$0
Amy Chrnelich
Secretary/Dir2.000.00$0$0$0Yes (X)Yes (X)
Mike Bristol
Treas/CFO/Dir2.000.00$0$0$0Yes (X)
Sarah Young O'Donnell
Chairman/Dir2.000.00$0$0$0Yes (X)Yes (X)
Scott Sanford
COO40.000.00$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,069,185TotalReportableCompFromOrgAmt
Total Other Compensation$130,404TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K19IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$5,393,885AllOtherContributionsAmt
Total Contributions$5,393,885TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmt
Patient Forums$887,261$887,261
Publications$875,947$875,947
Seal of Acceptance$2,087,451$2,087,451
FieldValueIRS element (for citing)
Total Program Service Revenue$3,850,659TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$126,503TotalRevenueColumnAmt
Exclusion$126,503ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$3,571,243SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$2,784,907SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$786,336SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$786,336TotalRevenueColumnAmt
Exclusion$786,336ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$126FundraisingGrossIncomeAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$126TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
Other Income900099$12,436$12,436
Returned Grant900099$3,868$3,868
FieldValueIRS element (for citing)
Other Revenue Total$16,304OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$10,173,813TotalRevenueColumnAmt
Related Or Exempt Func Income$2,991,016RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$875,947UnrelatedBusinessRevenueAmt
Exclusion$912,839ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$292,494TotalAmt
Program Services$292,494ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$152,557TotalAmt
Program Services$152,557ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$243,122TotalAmt
Program Services$243,122ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$3,794,204TotalAmt
Program Services$2,716,345ProgramServicesAmt
Management And General$473,075ManagementAndGeneralAmt
Fundraising$604,784FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$735,158TotalAmt
Program Services$531,333ProgramServicesAmt
Management And General$84,180ManagementAndGeneralAmt
Fundraising$119,645FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$283,169TotalAmt
Program Services$200,990ProgramServicesAmt
Management And General$38,472ManagementAndGeneralAmt
Fundraising$43,707FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$27,235TotalAmt
Management And General$27,235ManagementAndGeneralAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$17,669TotalAmt
Program Services$13,424ProgramServicesAmt
Management And General$3,420ManagementAndGeneralAmt
Fundraising$825FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$112,279TotalAmt
Program Services$85,302ProgramServicesAmt
Management And General$21,736ManagementAndGeneralAmt
Fundraising$5,241FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$1,530,355TotalAmt
Program Services$1,162,659ProgramServicesAmt
Management And General$296,259ManagementAndGeneralAmt
Fundraising$71,437FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$235,253TotalAmt
Program Services$223,680ProgramServicesAmt
Management And General$3,530ManagementAndGeneralAmt
Fundraising$8,043FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$170,031TotalAmt
Program Services$92,520ProgramServicesAmt
Management And General$15,588ManagementAndGeneralAmt
Fundraising$61,923FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$262,425TotalAmt
Program Services$199,372ProgramServicesAmt
Management And General$50,803ManagementAndGeneralAmt
Fundraising$12,250FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$141,908TotalAmt
Program Services$101,500ProgramServicesAmt
Management And General$17,809ManagementAndGeneralAmt
Fundraising$22,599FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$211,165TotalAmt
Program Services$108,168ProgramServicesAmt
Management And General$74,449ManagementAndGeneralAmt
Fundraising$28,548FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$488,532TotalAmt
Program Services$488,532ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$25,092TotalAmt
Program Services$17,964ProgramServicesAmt
Management And General$3,128ManagementAndGeneralAmt
Fundraising$4,000FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Program & Awareness Events$336,562$320,005$5,050$11,507
Taxes, Licenses & Fees$296,689$212,406$36,992$47,291
Conference/Event Exhibition$118,252$112,435$1,774$4,043
Bad Debt Expense$79,552$79,552

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$196,323TotalAmt
Program Services$96,460ProgramServicesAmt
Management And General$84,052ManagementAndGeneralAmt
Fundraising$15,811FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$9,750,026TotalAmt
Program Services$7,371,268ProgramServicesAmt
Management And General$1,237,552ManagementAndGeneralAmt
Fundraising$1,141,206FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,407,818BOYAmt
EOY$857,944EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$631,090BOYAmt
EOY$1,551,886EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$68BOYAmt
EOY$139,359EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$125,768LandBldgEquipCostOrOtherBssAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$254,703BOYAmt
EOY$125,768EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$4,971,923BOYAmt
EOY$5,529,708EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$1,632,996BOYAmt
EOY$1,144,464EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$11,600BOYAmt
EOY$11,600EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$8,910,198BOYAmt
EOY$9,360,729EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$71,748BOYAmt
EOY$172,797EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$50,000BOYAmt
EOY$240,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$276,131BOYAmt
EOY$138,641EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$397,879BOYAmt
EOY$551,438EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$8,352,599BOYAmt
EOY$8,566,107EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$159,720BOYAmt
EOY$243,184EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$8,512,319BOYAmt
EOY$8,809,291EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$8,910,198BOYAmt
EOY$9,360,729EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$423,787ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$132,315NetUnrlzdGainsLossesInvstAmt
Donated Services And Use Fclts$5,500DonatedServicesAndUseFcltsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,553,306CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,688,366CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,151,638CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,748,923CurrentTaxYearMinus1YearAmt
Current Tax Year$5,393,885CurrentTaxYearAmt
Total$20,536,118TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,553,306CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,688,366CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,151,638CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,748,923CurrentTaxYearMinus1YearAmt
Current Tax Year$5,393,885CurrentTaxYearAmt
Total$20,536,118TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$6,139,700SubstantialContributorsTotAmt
Public Support Total170$14,396,418PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$83,941CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$77,024CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$146,022CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$144,137CurrentTaxYearMinus1YearAmt
Current Tax Year$126,503CurrentTaxYearAmt
Total$577,627TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$21,113,745TotalSupportAmt
Public Support CY1700.68190PublicSupportCY170Pct
Public Support PY1700.60800PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$125,768OtherCostOrOtherBasisAmt
Book Value$125,768BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$125,768TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescLease Obligation - CurrentDesc
Amt$138,641Amt
FieldValueIRS element (for citing)
Total Liability$138,641TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$10,173,813TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$10,173,813RevenueSubtotalAmt
Total Revenue Per Form990$10,173,813TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$9,750,026TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$9,750,026ExpensesSubtotalAmt
Total Expenses Per Form990$9,750,026TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X : FIN48 FootnoteFormAndLineReferenceDesc
ExplanationThe Organization adopted the recognition requirements for uncertain income tax positions as required by generally accepted accounting principles, with no cumulative effect adjustment required. Income taxbenefits are recognized for income tax positions taken or expected to be taken in a tax return, only when it is determined that the income tax position will more-likely-than-not be sustained upon examination by taxing authorities. The Organization has analyzed tax positions taken for filing with the Internal Revenue Service and all state jurisdictions where it operates. The Organization believes that income tax filing positions will be sustained upon examination and does not anticipate any adjustments that would result in a material adverse effect on the Organizations financial condition, results of operations or cash flows. Accordingly, the Organization has not recorded any reserves, or relatedaccruals for interest and penalties for uncertain income tax positions at December 31, 2024. The Organization is subject to routine audits by taxing jurisdictions; however, there are currently no auditsfor any tax periods in progress.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (5 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
North America00Research GrantResearch Grant$63,122
Europe00Research GrantResearch Grant$50,000
Middle East00Research GrantResearch Grant$50,000
East Asia and Pacific00Research GrantResearch Grant$25,000
Europe00Research GrantResearch Grant$55,000
FieldValueIRS element (for citing)
Subtotal Spent$243,122SubtotalSpentAmt
Total Spent$243,122TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (8 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
East Asia & PacResearch$25,000Wire
EuropeResearch$25,000Wire
EuropeResearch$25,000Wire
EuropeResearch$5,000Wire
EuropeResearch$50,000Wire
Middle EastResearch$50,000Wire
North AmericaResearch$5,625Wire
North AmericaResearch$57,497Wire
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Total Other Org7TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside USFormAndLineReferenceDesc
ExplanationGrants are awarded based upon recommendations of independent peer review committee which evaluates responses to requests for proposals. A portion of grant award is paid when contract is signed. Final payment is not made until peer review committee approves final report.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (10 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxtIRC SectionIRCSectionDesc
Boston Childrens Hospital
300 Longwood AveBostonMA02115042774441$50,000$0Research
Childrens Hospital of Philly
3401 Civic Center BlvdPhiladelphiaPA19104231352166$12,550$0Research501(c)(3)
Emory University
201 Dowman DriveAtlantaGA30322580566256$30,000$0Research
Harvard College
1033 Massachusetts AvenueCambridgeMA02138042103580$25,000$0Research501(c)(3)
John Hopkins Wilmer Eye Inst
1800 Orleans StBaltimoreMD21287521118420$16,668$0Research
UC San Diego
9500 Gilman DrLa JollaCA92093956006144$19,987$0Research
UC San Francisco
505 Parnassus AveSan FranciscoCA94143946036493$80,000$0Research
Univ Pennsylvania
3400 Civic Center BlvdPhiladelphiaPA19104231352685$15,000$0Research
University of Texas
110 Inner Campus DriveAustinTX78705746000203$8,327$0Research
Yale University
149 Elm StreetNew HavenCT06511060646973$25,000$0Research501(c)(3)
FieldValueIRS element (for citing)
Total501c3 Org10Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (3 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceDesc
Scholarships54$39,977N/A
Honorariums140$112,580N/A
Research Grant1N/A

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationGrants are awarded based upon recommendations of independent scientific advisory committee which evaluates responses to request for proposal. One third of the grants are paid when contract is signed, one third upon submission of six month progress report, and the remainder paid upon submission of final report.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Substantiation RequiredYes (true)SubstantiationRequiredInd
Compensation CommitteeYes (X)CompensationCommitteeInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (5 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
Amber Favetti
VP Mkting & Comms$196,800$29,520$226,320
Julie Bock til 72024
CEO$224,519$33,678$258,197
Kristin Belleson
CEO$199,830$199,830
Melody Sugg
VP, Philanthropy$199,000$29,850$228,850
Wendy Smith Begolka
Chief Strategy Off$249,036$37,356$286,392

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bForm 990 is reviewed by directors at meeting scheduled for that purpose, return preparer is available to explain form and answer questions.
Form 990, Part VI, Section B, Line 12cOfficers and directors complete an annual disclosure statement.
Form 990, Part VI, Section B, Line 15aCompensation is determined by reference to performance and comparable organizations based on data published by the National Health Council.
Form 990, Part VI, Section C, Line 19Available upon request.