CURE LGMD2I FOUNDATION: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- CURE LGMD2I FOUNDATION (EIN 80-0680447)
- Tax period
- 2024-01-01 to 2024-12-31
- Filed
- 2025-11-12
- IRS object ID
- 202513169349305331
- Schema version
- 2024v5.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-11-12T11:07:25-08:00 | ReturnTs |
| Tax Period End | 2024-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 933524729 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PENNOPTIC CPAs AND STRATEGIC PARTNERS LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 117 N SIXTH STREET | AddressLine1Txt |
| City | DENVER | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 17517 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 800680447 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CURE LGMD2i FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CURE | BusinessNameControlTxt |
| Phone | 7174057518 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4028 MARIETTA AVENUE | AddressLine1Txt |
| City | COLUMBIA | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 175128901 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KELLY BRAZZO | PersonNm |
| Person Title | PRESIDENT/CEO | PersonTitleTxt |
| Phone | 7174057518 | PhoneNum |
| Signature | 2025-11-12 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (true) | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | TIMOTHY K SWEIGART CPA | PreparerPersonNm |
| PTIN | P00966423 | PTIN |
| Phone | 7173362891 | PhoneNum |
| Preparation | 2025-11-12 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | KELLY BRAZZO | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4028 MARIETTA AVENUE | AddressLine1Txt |
| City | COLUMBIA | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 175128901 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $251,444 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.curelgmd.com | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2011 | FormationYr |
| Legal Domicile State | PA | LegalDomicileStateCd |
| Activity Or Mission | FUND RESEARCH FOR CURE OF LIMB GIRDLE MUSCULAR DYSTROPHY | ActivityOrMissionDesc |
| Voting Members Governing Body | 5 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 3 | VotingMembersIndependentCnt |
| Total Employee | 1 | TotalEmployeeCnt |
| Total Volunteers | 12 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $126,556 | PYContributionsGrantsAmt |
| CY Contributions Grants | $184,380 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $1,989 | PYInvestmentIncomeAmt |
| CY Investment Income | $14,028 | CYInvestmentIncomeAmt |
| PY Other Revenue | $106,711 | PYOtherRevenueAmt |
| CY Other Revenue | $24,364 | CYOtherRevenueAmt |
| PY Total Revenue | $235,256 | PYTotalRevenueAmt |
| CY Total Revenue | $222,772 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $43,524 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $263,507 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| CY Salaries Comp Emp Bnft Paid | $48,825 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $0 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $62,640 | PYOtherExpensesAmt |
| CY Other Expenses | $103,213 | CYOtherExpensesAmt |
| PY Total Expenses | $106,164 | PYTotalExpensesAmt |
| CY Total Expenses | $415,545 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $129,092 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$192,773 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $553,188 | TotalAssetsBOYAmt |
| Total Assets EOY | $360,790 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $2,614 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $2,989 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $550,574 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $357,801 | NetAssetsOrFundBalancesEOYAmt |
| Mission | FUND RESEARCH FOR CURE OF LIMB GIRDLE MUSCULAR DYSTROPHY | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $393,380 | ExpenseAmt |
| Grant | $263,507 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | THE ORGANIZATION ISSUED FIFTEEN ANNUAL RESEARCH GRANTS TO RESEARCH GROUPS/FACILITIES IN 2024. THE PURPOSE OF WHICH WAS TO FURTHER ADVANCE RESEARCHING THE TREATMENT OF LGMD. | Desc |
| Total Program Service Expenses | $393,380 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | false | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (true) | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 1 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 5 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 3 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | false | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | false | ConflictOfInterestPolicyInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | false | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KELLY BRAZZO | PersonNm |
| Phone | 7174057518 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4028 MARIETTA AVENUE | AddressLine1Txt |
| City | COLUMBIA | CityNm |
| State Abbreviation | PA | StateAbbreviationCd |
| ZIP | 175128901 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (6 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|
| KELLY BRAZZO | |||||
| PRESIDENT/CEO | 5.00 | Yes (X) | $45,000 | $0 | $0 |
| DAN POPE | |||||
| VICE-PRESIDENT | 5.00 | Yes (X) | $0 | $0 | $0 |
| KRISTEN OLSEN | |||||
| SECRETARY/TREASURER | 1.00 | Yes (X) | $0 | $0 | $0 |
| JOHN SPENCER | |||||
| CREATIVE DIRECTOR/EXECUTIVE BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 |
| DR JEAN PIERRE LAURENT | |||||
| SCIENTIFIC DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 |
| KAITLYN NEROLADAKIS | |||||
| COMMUNICATIONS DIRECTOR/EXECUTIVE BOARD MEMBER | 1.00 | Yes (X) | $0 | $0 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $45,000 | TotalReportableCompFromOrgAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| All Other Contributions | $184,380 | AllOtherContributionsAmt |
| Total Contributions | $184,380 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $14,028 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $53,036 | FundraisingGrossIncomeAmt |
| Fundraising Direct Expenses | $28,672 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $24,364 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $24,364 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $222,772 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $14,028 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $24,364 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $156,601 | TotalAmt |
| Program Services | $156,601 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $106,906 | TotalAmt |
| Program Services | $106,906 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,000 | TotalAmt |
| Program Services | $45,000 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,825 | TotalAmt |
| Program Services | $3,825 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $250 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $250 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,370 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $2,370 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,144 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $5,144 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,432 | TotalAmt |
| Program Services | $27,432 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $72 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $72 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,525 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $3,525 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| BANK AND PROCESSING FEES | $1,754 | $0 | $1,754 | $0 |
| WEBSITE COSTS | $7,074 | $0 | $7,074 | $0 |
| STATE FILING FEES | $1,976 | $0 | $1,976 | $0 |
| AWARENESS PROGRAM COSTS | $53,616 | $53,616 | $0 | $0 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $415,545 | TotalAmt |
| Program Services | $393,380 | ProgramServicesAmt |
| Management And General | $22,165 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $113,171 | BOYAmt |
| EOY | $273,510 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $440,017 | BOYAmt |
| EOY | $87,280 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $553,188 | BOYAmt |
| EOY | $360,790 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,614 | BOYAmt |
| EOY | $2,989 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,614 | BOYAmt |
| EOY | $2,989 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $544,574 | BOYAmt |
| EOY | $351,801 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,000 | BOYAmt |
| EOY | $6,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $550,574 | BOYAmt |
| EOY | $357,801 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $553,188 | BOYAmt |
| EOY | $360,790 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$192,773 | ReconcilationRevenueExpnssAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | Yes (true) | AccountantCompileOrReviewInd |
Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| FS Audited | false | FSAuditedInd |
| Audit Committee | false | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
| Other Support Sum | $0 | OtherSupportSumAmt |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $83,704 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $114,641 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $133,513 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $126,556 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $184,390 | CurrentTaxYearAmt |
| Total | $642,804 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $83,704 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $114,641 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $133,513 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $126,556 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $184,390 | CurrentTaxYearAmt |
| Total | $642,804 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $0 | SubstantialContributorsTotAmt |
| Public Support Total170 | $642,804 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $578 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $45 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $93 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,989 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $14,028 | CurrentTaxYearAmt |
| Total | $16,733 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $659,537 | TotalSupportAmt |
| Public Support CY170 | 0.97460 | PublicSupportCY170Pct |
| Public Support PY170 | 0.99520 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
| Public Support Total509 | $0 | PublicSupportTotal509Amt |
| Public Support CY509 | 0 | PublicSupportCY509Pct |
| Investment Income CY | 0 | InvestmentIncomeCYPct |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule F IRS990ScheduleF
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt | Description Of Non Cash AsstDescriptionOfNonCashAsstTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|---|---|
| Europe | FUND RESEARCH | $86,906 | WIRE TRANSFER | $0 | 0 | 0 |
| East Asia and Pacific | FUND RESEARCH | $20,000 | WIRE TRANSFER | $0 | 0 | 0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 2 | Total501c3OrgCnt |
| Transfer To Foreign Corp | Yes (true) | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Other | FormAndLineReferenceDesc |
| Explanation | PART IV LINE 1. THE FOUNDATION IS NOT REQUIRED TO FILE FORM 926 AS THE TRANSFER OF CASH TO THE FOREIGN ENTITY DID NOT RESULT IN OWNERSHIP OF 10% OR MORE OF THE VOTING POWER OF THE RECIPIENT ENTITY, NOR WAS THE AMOUNT TRANSFERRED MORE THAN $100,000 TO ANY SINGLE RECIPIENT | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | CASINO NIGHT | Event1Nm |
| Gross Receipts Event1 | $53,036 | GrossReceiptsEvent1Amt |
| Gross Revenue Event1 | $53,036 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $17,435 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $53,036 | GrossReceiptsTotalAmt |
| Gross Revenue Total Events | $53,036 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $17,435 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $17,435 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $35,601 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (5 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|
| THE SPEAK FOUNDATION | ||||||
| 71 EAST AVENUE | NORWALK | CT | 06851 | 262087516 | $15,000 | 2025 INTERNATIONAL LGMD CONFERENCE |
| UNIVERSITY OF IOWA | ||||||
| 285 NEWTON ROAD | IOWA CITY | IA | 52242 | 426004813 | $10,000 | DYSTROGLYCANOPATHY PATIENT AND FAMILY CONFERENCE |
| LGMD AWARENESS FOUNDATION | ||||||
| 638 KENNEDY DR | TWIN LAKES | WI | 53181 | 851504937 | $7,000 | 10TH ANNUAL LGMD AWARENESS DAY SPONSORSHIP |
| UMASS CHAN MEDICAL SCHOOL | ||||||
| 55 LAKE AVENUE NORTH SUITE S1-859 | WORCESTER | MA | 01655 | 043108190 | $23,000 | LGMD2I THERAPEUTICS FOR FKRP GENE CORRECTION VIA PRIME |
| NATIONWIDE CHILDREN'S HOSPITAL | ||||||
| 700 CHILDRENS DR | COLUMBUS | OH | 43205 | 311036372 | NOVEL GENE THERAPY | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Total Other Org | 3 | TotalOtherOrgCnt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Pt VI, Line 11b | PRESIDENT OF FOUNDATION REVIEWS FORM 990 BEFORE RETURN IS FILED. |
| Pt VI, Line 2 | PRESIDENT/CEO AND VICE PRESIDENT ARE HUSBAND AND WIFE. |
| Pt VI, Line 15a | THERE IS NO COMPENSATION PAID TO ANY OFFICER OF THE FOUNDATION. |
| Pt VI, Line 15b | THERE ARE NO COMPENSATED INDIVIDUALS OF THE FOUNDATION. ALL ASPECTS OF FOUNDATIONS ACTIVITIES ARE PERFORMED BY VOLUNTEERS. |
| Pt VI, Line 19 | DOCUMENTS REQUIRED TO BE DISCLOSED TO PUBLIC ARE MADE AVAILABLE UPON REQUEST. |
| Pt XII, Line 2c | PRESIDENT OF FOUNDATION SELECTED AND OVERSEES THE FINANCIAL STATEMENT PROCESS OF THE ACCOUNTANT. |