CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2014

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2014-01-01 to 2014-12-31
Filed: 2015-08-13
IRS object ID: 201522259349301632
Schema version: 2014v5.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2015-08-13T12:00:59-05:00	ReturnTs
Tax Period End	2014-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	BDO USA LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	8405 GREENSBORO DRIVE 7TH FLOOR	AddressLine1Txt
City	MCLEAN	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22102	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2014-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
In Care Of	% THE ORGANIZATION	InCareOfNm
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD	AddressLine1Txt
Address Line2	Suite 200	AddressLine2Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	ROBERT J BEALL PHD	PersonNm
Person Title	President and CEO	PersonTitleTxt
Phone	7038930600	PhoneNum
Signature	2015-08-13	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	Jeffrey J Schragg	PreparerPersonNm
PTIN	P00234543	PTIN
Phone	7038930600	PhoneNum

Field	Value	IRS element (for citing)
Tax	2014	TaxYr
Build TS	2016-03-07 17:11:31Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ROBERT J BEALL PHD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$3,863,571,817	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CFF.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1955	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.	ActivityOrMissionDesc
Voting Members Governing Body	17	VotingMembersGoverningBodyCnt
Voting Members Independent	16	VotingMembersIndependentCnt
Total Employee	271	TotalEmployeeCnt
Total Volunteers	250000	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$279,115,653	PYContributionsGrantsAmt
CY Contributions Grants	$3,285,132,614	CYContributionsGrantsAmt
PY Program Service Revenue	$2,168,133	PYProgramServiceRevenueAmt
CY Program Service Revenue	$2,155,742	CYProgramServiceRevenueAmt
PY Investment Income	$8,179,793	PYInvestmentIncomeAmt
CY Investment Income	$55,016,588	CYInvestmentIncomeAmt
PY Other Revenue	$8,226,904	PYOtherRevenueAmt
CY Other Revenue	$6,708,116	CYOtherRevenueAmt
PY Total Revenue	$297,690,483	PYTotalRevenueAmt
CY Total Revenue	$3,349,013,060	CYTotalRevenueAmt
PY Grants And Similar Paid	$27,334,715	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$32,902,431	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$25,419,186	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$25,951,581	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$192,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$9,348,560	CYTotalFundraisingExpenseAmt
PY Other Expenses	$22,293,820	PYOtherExpensesAmt
CY Other Expenses	$20,975,426	CYOtherExpensesAmt
PY Total Expenses	$75,047,721	PYTotalExpensesAmt
CY Total Expenses	$80,021,438	CYTotalExpensesAmt
PY Revenues Less Expenses	$222,642,762	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$3,268,991,622	CYRevenuesLessExpensesAmt
Total Assets BOY	$692,698,706	TotalAssetsBOYAmt
Total Assets EOY	$3,922,688,693	TotalAssetsEOYAmt
Total Liabilities BOY	$94,932,860	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$108,325,747	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$597,765,846	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$3,814,362,946	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high quality, specialized care. A life-shortening genetic disease, CF affects the lungs and digestive systems of nearly 30,000 children and young adults in the U.S. Currently, there is no cure.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$45,089,603	ExpenseAmt
Grant	$31,088,737	GrantAmt
Revenue	$2,155,742	RevenueAmt
Desc	Medical Programs - Since 1955, the Cystic Fibrosis Foundation has been dedicated to curing and controlling cystic fibrosis (CF). The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis, a life-threatening genetic disease that affects 30,000 children and adults in the United States, and 70,000 people worldwide. The treatment and care protocols developed by the CF Foundation are helping tens of thousands of people with the disease live longer, healthier lives. To support its mission, the Foundation funds and accredits a nationwide network of 110 care centers. The care center network provides the best care for people with CF and has been recognized by the National Institutes of Health as a model of care for a chronic disease. Through the Foundation's efforts, the life expectancy of a child with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before. The Foundation provides much-needed support for patients and their families as they manage the difficult consequences of the disease - from supporting specialized, quality CF care to providing information and support to help people with CF access that care. The Foundation's patient registry collects information on the health status of more than 28,600 CF patients, providing caregivers and researchers critical information to help identify new health trends and effective treatments and improve the quality of CF care. The patient registry is an internationally recognized model for other nonprofit health organizations, including CF advocacy groups. Medical programs consist of approximately 338 grants and other costs to support scientific studies/investigations and cystic fibrosis centers. Approximately 165 grants totaling $15 million were awarded to cystic fibrosis care centers serving approximately 28,600 patients.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$3,724,005	ExpenseAmt
Grant	$1,813,694	GrantAmt
Revenue	$0	RevenueAmt
Desc	The mission of the Cystic Fibrosis Patient Assistance Foundation (CFPAF) is to assist cystic fibrosis patients residing in the United States, regardless of their health insurance coverage or financial resources, with access to FDA-approved drugs (and paired devices) for the inhaled treatment of cystic fibrosis pulmonary disease and to medications for the treatment of pancreatic insufficiency. Furthermore, CFPAF is committed to maintaining the highest standards of customer service and operating efficiency, in order to maximize the support and assistance that it can provide to the CF community. Since its inception, Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) has responded to 46,496 calls for assistance. In 2014, CFPAF provided $1,813,694 in patient assistance grants to 1,167 CF patients and assisted 190 in filing for benefits.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$10,589,008	ExpenseAmt
Grant	$0	GrantAmt
Revenue	$0	RevenueAmt
Desc	Public and Professional Information and Education - To broaden its reach and to support its mission, the CF Foundation has programs designed to improve the knowledge of CF patients and their families, medical professionals and the general public regarding the disease. In 2014, there were 17 publications and 29 videos produced and made available for patients, families, medical professionals, and the general public. Year-round, meetings and conferences provide updates for CF researchers, physicians and allied health professionals and opportunities for collaboration on future CF research projects and treatment/care efforts. In 2014, over 3,090,075 unique visitors came to the CF Foundation's website.	Desc

Field	Value	IRS element (for citing)
Total Other Prog Srvc Expense	$3,034,739	TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant	$0	TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue	$0	TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses	$62,437,355	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	false	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	Yes (true)	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	false	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	false	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (true)	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (true)	ProfessionalFundraisingInd
Fundraising Activities	false	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	Yes (true)	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	false	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	Yes (true)	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (true)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (true)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	230	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	271	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	false	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	false	QuidProQuoContributionsInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	17	GoverningBodyVotingMembersCnt
Independent Voting Member	16	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	Yes (true)	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	Yes (true)	LocalChaptersInd
Policies Reference Chapters	Yes (true)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	THE ORGANIZATION	PersonNm
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1Txt
City	BETHESDA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (26 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
Michael L Beatty Esq
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
J Taylor Crandall
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Richard L Dandurand
VICE CHAIRMAN	3.0	5.0	Yes (X)	$0	$0	$0
Louis DeFalco
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Richard J Gray Esq
VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
Carole B Griego MD
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Susan L Hook
LEADERSHIP COUNCIL CHAIR	5.0	3.0	Yes (X)	$0	$0	$0
Catherine C McLoud
CHAIR	8.0	6.0	Yes (X)	$0	$0	$0
Chad T Moore
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
David A Mount
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Gray B Sabin
VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
Steven Shak MD
TRUSTEE	3.0	6.0	Yes (X)	$0	$0	$0
Charles J Thayer
TREASURER	3.0	3.0	Yes (X)	$0	$0	$0
Amy S Weinberg
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Paul W Whetsell
EXEC VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
KC Bryan White
ADULT ADVISORY COUNCIL CHAIR	5.0	3.0	Yes (X)	$0	$0	$0
Robert J Beall PhD
PRESIDENT / CEO	36.0	24.0	Yes (X)	$650,137	$323,554	$224,033	Yes (X)
C Richard Mattingly
EXEC VP, COO & SECRETARY	50.0	10.0		$645,755	$0	$189,266	Yes (X)
Preston Campbell MD
EXEC VP OF MEDICAL AFFAIRS	36.0	24.0		$432,875	$213,925	$174,822	Yes (X)
Vera H Twigg
EXECUTIVE VP AND CFO	50.0	10.0		$461,903	$0	$85,449	Yes (X)
Maureen Fraser
VP OF FIELD MANAGEMENT	50.0	0.0		$219,955	$0	$40,382		Yes (X)
Daniel Klein
SR VP, PATIENT ACCESS PROGRAMS	50.0	0.0		$294,147	$0	$67,981			Yes (X)
Christopher Penland PhD
VP OF RESEARCH	35.0	15.0		$199,932	$30,745	$49,478			Yes (X)
David McLoughlin
SR. VP OF OPERATIONS	35.0	15.0		$233,360	$69,839	$57,656			Yes (X)
Glen Goldmark
VP OF HUMAN RESOURCES	50.0	0.0		$239,238	$0	$47,024			Yes (X)
Mary Dwight
SVP POLICY & COMM AFFAIRS	50.0	0.0		$221,875	$0	$60,062			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,599,177	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$638,063	TotReportableCompRltdOrgAmt
Total Other Compensation	$996,153	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	71	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	false	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt	Address Line1ContractorAddress/ForeignAddress/AddressLine1Txt	CityContractorAddress/ForeignAddress/CityNm	Province Or StateContractorAddress/ForeignAddress/ProvinceOrStateNm	CountryContractorAddress/ForeignAddress/CountryCd
SUFIAN PASSAMANO
712 MAIN STREET STE 2130	HOUSTON	TX	77002	HOTLINE/PATIENT ASST	$1,098,500
FOOD SERVICES MANAGEMENT BY MGR LL
41 MARIETTA STREET	ATLANTA	GA	30303	CONFERENCE CATERING	$881,861
ACCU-LABEL INC
2021 RESEARCH DRIVE	FORT WAYNE	IN	46808	PRINTING	$661,335
SCHANER LUBITZ PLLC
6391 ARLINGTON ROAD	BETHESDA	MD	20814	LEGAL COUNSEL	$634,894
GRANTMAIL DIRECT LTD
				PRINTING	$613,668	A01-01 15F	WORLD TRADE CENTER	NINGBO	CH

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	50	CntrctRcvdGreaterThan100KCnt
Related Organizations	$3,271,167,143	RelatedOrganizationsAmt
All Other Contributions	$13,965,471	AllOtherContributionsAmt
Total Contributions	$3,285,132,614	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SCIENTIFIC CONFERENCE	611600	$1,990,732	$1,990,732
TRANSITION SERVICES	541610	$80,261	$80,261
REFUNDED OR CANCELLED GRANTS	900099	$84,749	$84,749

Field	Value	IRS element (for citing)
Total Program Service Revenue	$2,155,742	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$47,793,478	TotalRevenueColumnAmt
Exclusion	$47,793,478	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$6,366,649	TotalRevenueColumnAmt
Exclusion	$6,366,649	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$521,781,867	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$514,493,068	SecuritiesAmt
Other	$65,689	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$7,288,799	SecuritiesAmt
Other	-$65,689	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$7,223,110	TotalRevenueColumnAmt
Exclusion	$7,223,110	ExclusionAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	LIST RENTAL	Desc
Business	533110	BusinessCd
Total Revenue Column	$341,467	TotalRevenueColumnAmt
Exclusion	$341,467	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$341,467	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,349,013,060	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,155,742	RelatedOrExemptFuncIncomeAmt
Exclusion	$61,724,704	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$30,871,659	TotalAmt
Program Services	$30,871,659	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$1,831,702	TotalAmt
Program Services	$1,831,702	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$199,070	TotalAmt
Program Services	$199,070	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$3,025,537	TotalAmt
Program Services	$1,838,876	ProgramServicesAmt
Management And General	$666,075	ManagementAndGeneralAmt
Fundraising	$520,586	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$18,137,443	TotalAmt
Program Services	$11,023,665	ProgramServicesAmt
Management And General	$3,992,977	ManagementAndGeneralAmt
Fundraising	$3,120,801	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$898,939	TotalAmt
Program Services	$546,362	ProgramServicesAmt
Management And General	$197,902	ManagementAndGeneralAmt
Fundraising	$154,675	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$2,528,201	TotalAmt
Program Services	$1,536,603	ProgramServicesAmt
Management And General	$556,586	ManagementAndGeneralAmt
Fundraising	$435,012	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,361,461	TotalAmt
Program Services	$813,849	ProgramServicesAmt
Management And General	$289,253	ManagementAndGeneralAmt
Fundraising	$258,359	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$481,774	TotalAmt
Program Services	$420,744	ProgramServicesAmt
Management And General	$61,030	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$286,629	TotalAmt
Program Services	$28,425	ProgramServicesAmt
Management And General	$258,204	ManagementAndGeneralAmt
Fundraising	$0	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$435,561	TotalAmt
Program Services	$435,561	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$192,000	TotalAmt
Fundraising	$192,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$196,167	TotalAmt
Management And General	$196,167	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$3,712,955	TotalAmt
Program Services	$2,309,448	ProgramServicesAmt
Management And General	$931,076	ManagementAndGeneralAmt
Fundraising	$472,431	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$10,608	TotalAmt
Program Services	$6,153	ProgramServicesAmt
Management And General	$1,379	ManagementAndGeneralAmt
Fundraising	$3,076	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$543,025	TotalAmt
Program Services	$433,387	ProgramServicesAmt
Management And General	$31,903	ManagementAndGeneralAmt
Fundraising	$77,735	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$3,908,327	TotalAmt
Program Services	$3,040,725	ProgramServicesAmt
Management And General	$362,357	ManagementAndGeneralAmt
Fundraising	$505,245	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$1,235,897	TotalAmt
Program Services	$736,177	ProgramServicesAmt
Management And General	$326,076	ManagementAndGeneralAmt
Fundraising	$173,644	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$614,123	TotalAmt
Program Services	$514,654	ProgramServicesAmt
Management And General	$37,822	ManagementAndGeneralAmt
Fundraising	$61,647	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$2,701,138	TotalAmt
Program Services	$2,638,865	ProgramServicesAmt
Management And General	$20,276	ManagementAndGeneralAmt
Fundraising	$41,997	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$455,762	TotalAmt
Program Services	$300,088	ProgramServicesAmt
Management And General	$91,501	ManagementAndGeneralAmt
Fundraising	$64,173	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$395,424	TotalAmt
Program Services	$318,970	ProgramServicesAmt
Management And General	$15,690	ManagementAndGeneralAmt
Fundraising	$60,764	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	FundraisingFundraisingAmt	Management And GeneralManagementAndGeneralAmt
DIRECT MAIL PRINTING	$2,218,536	$686,193	$1,532,343
DIRECT MAIL POSTAGE	$2,006,784	$620,698	$1,386,086
QUALITY IMPROVEMENT TRAINING	$783,404	$783,404	$0
TRAINING	$366,111	$232,448	$87,758	$45,905

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$623,201	TotalAmt
Program Services	$269,629	ProgramServicesAmt
Management And General	$153,344	ManagementAndGeneralAmt
Fundraising	$200,228	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$80,021,438	TotalAmt
Program Services	$62,437,355	ProgramServicesAmt
Management And General	$8,235,523	ManagementAndGeneralAmt
Fundraising	$9,348,560	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$6,321,435	TotalAmt
Program Services	$1,955,220	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$4,366,215	FundraisingAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part X	Yes (X)	InfoInScheduleOPartXInd

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$53,791,914	BOYAmt
EOY	$200,542,178	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$12,026,413	BOYAmt
EOY	$10,323,508	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$3,855,668	BOYAmt
EOY	$50,121,025	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$229,641	BOYAmt
EOY	$265,490	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$1,307,422	BOYAmt
EOY	$923,653	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$8,353,181	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$5,465,660	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$3,313,390	BOYAmt
EOY	$2,887,521	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$484,322,357	BOYAmt
EOY	$2,473,908,461	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$126,808,444	BOYAmt
EOY	$1,176,671,743	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$7,043,457	BOYAmt
EOY	$7,045,114	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$692,698,706	BOYAmt
EOY	$3,922,688,693	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$16,483,836	BOYAmt
EOY	$16,831,621	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$23,236,520	BOYAmt
EOY	$28,741,961	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$4,992,667	BOYAmt
EOY	$3,325,808	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$50,219,837	BOYAmt
EOY	$59,426,357	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$94,932,860	BOYAmt
EOY	$108,325,747	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$574,947,148	BOYAmt
EOY	$3,796,361,145	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$18,850,884	BOYAmt
EOY	$14,083,576	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,967,814	BOYAmt
EOY	$3,918,225	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$597,765,846	BOYAmt
EOY	$3,814,362,946	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$692,698,706	BOYAmt
EOY	$3,922,688,693	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$3,268,991,622	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$52,394,522	NetUnrlzdGainsLossesInvstAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$106,799,244	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$101,016,043	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$193,893,253	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$279,115,653	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,285,132,614	CurrentTaxYearAmt
Total	$3,965,956,807	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$106,799,244	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$101,016,043	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$193,893,253	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$279,115,653	CurrentTaxYearMinus1YearAmt
Current Tax Year	$3,285,132,614	CurrentTaxYearAmt
Total	$3,965,956,807	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$3,965,956,807	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,848,122	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$4,888,930	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$14,145,772	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$17,054,431	CurrentTaxYearMinus1YearAmt
Current Tax Year	$54,160,127	CurrentTaxYearAmt
Total	$93,097,382	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$0	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$0	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$0	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$0	CurrentTaxYearMinus1YearAmt
Current Tax Year	$0	CurrentTaxYearAmt
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$467,607	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$576,265	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$480,632	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$449,051	CurrentTaxYearMinus1YearAmt
Current Tax Year	$341,467	CurrentTaxYearAmt
Total	$2,315,022	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$4,061,369,211	TotalSupportAmt
Gross Receipts Rltd Activities	$82,114,382	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.97651	PublicSupportCY170Pct
Public Support PY170	0.94573	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	OTHER INCOME	FormAndLineReferenceDesc
Explanation	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Total Grassroots Lobbying		TotalGrassrootsLobbyingGrp
Total Direct Lobbying		TotalDirectLobbyingGrp
Total Lobbying Expend		TotalLobbyingExpendGrp
Other Exempt Purpose Expend		OtherExemptPurposeExpendGrp
Total Exempt Purpose Expend		TotalExemptPurposeExpendGrp
Lobbying Nontaxable Amount		LobbyingNontaxableAmountGrp
Grassroots Nontaxable		GrassrootsNontaxableGrp
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Total	$3,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$4,500,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$572,513	CurrentYearMinus3Amt
Current Year Minus2	$688,016	CurrentYearMinus2Amt
Current Year Minus1	$561,245	CurrentYearMinus1Amt
Total	$1,821,774	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Total	$750,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,125,000	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$91,903	CurrentYearMinus3Amt
Current Year Minus2	$186,450	CurrentYearMinus2Amt
Current Year Minus1	$125,445	CurrentYearMinus1Amt
Total	$403,798	TotalAmt

Field	Value	IRS element (for citing)
Volunteers	Yes (true)	VolunteersInd
Paid Staff Or Management	Yes (true)	PaidStaffOrManagementInd
Media Advertisements	false	MediaAdvertisementsInd
Mailings Members	Yes (true)	MailingsMembersInd
Mailings Members	$3,271	MailingsMembersAmt
Publications Or Broadcast	Yes (true)	PublicationsOrBroadcastInd
Publications Or Broadcast	$1,142	PublicationsOrBroadcastAmt
Grants Other Organizations	false	GrantsOtherOrganizationsInd
Direct Contact Legislators	Yes (true)	DirectContactLegislatorsInd
Direct Contact Legislators	$621,824	DirectContactLegislatorsAmt
Rallies Demonstrations	Yes (true)	RalliesDemonstrationsInd
Rallies Demonstrations	$6,096	RalliesDemonstrationsAmt
Other Activities	Yes (true)	OtherActivitiesInd
Other Activities	$5,000	OtherActivitiesAmt
Total Lobbying Expenditures	$637,333	TotalLobbyingExpendituresAmt
Not Described Section501c3	false	NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	LOBBYING ACTIVITY	FormAndLineReferenceDesc
Explanation	THE CYSTIC FIBROSIS FOUNDATION IS A NON-PROFIT FOCUSED ON CURING CYSTIC FIBROSIS AND ENSURING ALL PEOPLE WITH THE DISEASE HAVE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES. IN ADDITION TO FUNDING CYSTIC FIBROSIS RESEARCH DIRECTLY, THE FOUNDATION ADVOCATES FOR POLICIES THAT ADVANCE BASIC, TRANSLATIONAL AND CLINICAL RESEARCH AND DEVELOPMENT OF TREATMENTS FOR RARE DISEASES LIKE CYSTIC FIBROSIS AND STRATEGIES THAT GIVE ALL PEOPLE WITH THE DISEASE ACCESS TO HIGH QUALITY, SPECIALIZED CYSTIC FIBROSIS CARE. ADVOCACY ACTIVITIES INCLUDE EMAIL COMMUNICATION ENCOURAGING GRASSROOTS ADVOCATES TO CONTACT THEIR LEGISLATORS, ANNUAL "FLY-IN" EVENTS WHERE VOLUNTEERS MEET WITH MEMBERS OF CONGRESS TO DISCUSS ISSUES CRITICAL TO THE CYSTIC FIBROSIS COMMUNITY AS WELL AS COMMUNICATING REGULARLY WITH FEDERAL LEGISLATORS AND AGENCIES.	ExplanationTxt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,574,544	OtherCostOrOtherBasisAmt
Depreciation	$583,727	DepreciationAmt
Book Value	$990,817	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$6,778,637	OtherCostOrOtherBasisAmt
Depreciation	$4,881,933	DepreciationAmt
Book Value	$1,896,704	BookValueAmt

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildingsGrp
Total Book Value Land Buildings	$2,887,521	TotalBookValueLandBuildingsAmt
Financial Derivatives		FinancialDerivativesGrp
Closely Held Equity Interests		CloselyHeldEquityInterestsGrp

Other Securities OtherSecuritiesGrp (7 entries)

DescDesc	Book ValueBookValueAmt	Method ValuationMethodValuationCd
INFLATION HEDGE COMMINGLED FUN	$63,273,961	F
ABSOLUTE VALUE FUND	$132,668,791	F
US GOVERMENT TREASURY SEC	$521,289,634	F
CORPORATE DEBT SECURITIES	$201,668,572	F
US GOVERNMENT AGENCY ASSET	$123,860,400	F
COMMERICAL AND OTHER ASSET	$129,992,161	F
PERPETUAL TRUSTS	$3,918,224	F

Field	Value	IRS element (for citing)
Total Book Value Securities	$1,176,671,743	TotalBookValueSecuritiesAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	INTERCOMPANY PAYABLE	Desc
Amt	$59,426,357	Amt

Field	Value	IRS element (for citing)
Total Liability	$59,426,357	TotalLiabilityAmt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
North America	Grantmaking	NONE	$127,570
Europe (Including Iceland and Greenland)	Grantmaking	NONE	$71,500

Field	Value	IRS element (for citing)
Subtotal Spent	$199,070	SubtotalSpentAmt
Total Spent	$199,070	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
North America	PILOT STUDY	$84,370	CHECK
North America	PILOT STUDY	$43,200	CHECK
Europe (Including Iceland and Greenland)	PILOT STUDY	$21,500	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$50,000	WIRE

Field	Value	IRS element (for citing)
Total501c3 Org	4	Total501c3OrgCnt
Transfer To Foreign Corp	Yes (true)	TransferToForeignCorpInd
Interest In Foreign Trust	false	InterestInForeignTrustInd
Foreign Corp Ownership	Yes (true)	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	Yes (true)	PassiveForeignInvestmestCoInd
Foreign Partnership	false	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

Procedures for monitoring grant funds outside of the U.S.

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.

FOREIGN FORMS

THE ACTIVITIES REFERENCED IN SCHEDULE F PART IV ARE LIMITED TO THE FOUNDATION'S INVESTMENT IN A FUND OF FUNDS AND A GLOBAL EQUITY FUND.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Agrmt Prof Fundraising Acty	Yes (true)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Field	Value	IRS element (for citing)
Person	NNE MARKETING	PersonNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	105 PAUL REVERE ROAD	AddressLine1Txt
City	CONCORD	CityNm
State Abbreviation	MA	StateAbbreviationCd
ZIP	01742	ZIPCd

Field	Value	IRS element (for citing)
Activity	strategy on mail	ActivityTxt
Fundraiser Control Of Funds	false	FundraiserControlOfFundsInd
Gross Receipts	$9,952,379	GrossReceiptsAmt
Retained By Contractor	$281,210	RetainedByContractorAmt
Net To Organization	$9,671,169	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$9,952,379	TotalGrossReceiptsAmt
Total Retained By Contractors	$281,210	TotalRetainedByContractorsAmt
Total Net To Organization	$9,671,169	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PROFESSIONAL FUNDRAISING SERVICES	FormAndLineReferenceDesc
Explanation	SCHEDULE G, PART I, LINE 2B CFF HAS A WRITTEN CONTRACT WITH NNE MARKETING TO CONSULT ON ITS DIRECT MARKETING FUNDRAISING EFFORTS. THE EXPENSE FOR THE PROJECT IS $16,000 PER MONTH OR $192,000 PER YEAR, PLUS CREATIVE DEVELOPMENT, WHICH IS BILLED SEPARATELY AND ACCOUNTS FOR THE DIFFERENCE IN THE TOTAL AMOUNT PAID AND THOSE CONSULTING ACTIVITIES THAT MAY BE CONSIDERED PROFESSIONAL FUNDRAISING SERVICES. ALL DONATIONS THAT RESULT FROM MARKETING CAMPAIGNS, WHICH NNE ASSISTS WITH, ARE MADE PAYABLE DIRECTLY TO THE FOUNDATION.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (302 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
Advocate Medical Group
701 Lee St	Des Plaines	IL	60016	362169147	501c(3)	$59,570	CF CARE CENTER
Albany Medical College
Elsmere A-107	Albany	NY	12208	141338310	501c(3)	$99,590	CF CARE CENTER
Alfred I Dupont Institute of the Nemours Foundati
1600 Rockland Road	Wilmington	DE	19899	590634433	501c(3)	$214,435	CF CARE CENTER
All Children's Hospital
Dept 9010	St Petersburg	FL	33731	590683252	501c(3)	$95,090	CF CARE CENTER	PO Box 269
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	$152,100	CF CARE CENTER	PO Box 31020
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	$120,615	RESEARCH
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	$43,200	PILOT STUDY
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	$102,600	QUALITY IMPROVEMENT
Arizona Board of Regents University of Arizona
Sponsored Projects Services	Tucson	AZ	857223308	742652689	IRC 115	$27,000	ADULT CARE
Arizona Board of Regents University of Arizona
Sponsored Projects Services	Tucson	AZ	857223308	742652689	IRC 115	$56,825	CF CARE CENTER	888 N Euclid Room 510
Arkansas Children's Hospital Research Institute I
800 Marshall Street	Little Rock	AR	72202	710694931	501c(3)	$85,225	CF CARE CENTER	888 N Euclid Room 510
Asthma and Allergy Specialists PA
411 Billings Road	Charlotte	NC	28211	561913043	C CORP	$49,370	CF CARE CENTER	Slot 512-17
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	521958352	501c(3)	$77,710	CF CARE CENTER	Suite 104
Baylor College of Medicine
PO Box 1	Houston	TX	77212	741613878	501c(3)	$59,393	ADULT CARE
Baylor College of Medicine
PO Box 1	Houston	TX	77212	741613878	501c(3)	$281,525	CF CARE CENTER
Baystate Medical Center (95-196)
759 Chestnut Street	Springfield	MA	01199	042790311	501c(3)	$33,615	CF CARE CENTER
Beth Israel Medical Center
Office of Grants Contracts	New York	NY	10038	135564934	501c(3)	$52,050	CF CARE CENTER
Billings Clinic
2800 10th Avenue North	Billings	MT	59107	810231784	501c(3)	$62,365	CF CARE CENTER	160 Water Street 24th Floor
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	501c(3)	$163,545	CF CARE CENTER
Board of Trustees of Southern Illinois University
Division of Pulmonary Medicine	Springfield	IL	62794	376005961	501c(3)	$17,710	CF CARE CENTER
Board of Trustees of the Leland Stanford Junior Un
Stanford University	Stanford	CA	943056215	941156365	501c(3)	$168,303	CF CARE CENTER	PO Box 19636
Board of Trustees of the Leland Stanford Junior Un
Stanford University	Stanford	CA	943056215	941156365	501c(3)	$97,200	RESEARCH	651 Serra Street Suite 220
Board of Trustees of the Leland Stanford Junior Un
Stanford University	Stanford	CA	943056215	941156365	501c(3)	$48,000	TRAINING	651 Serra Street Suite 220
Brigham and Women's Hospital Boston
10 Vining Street	Boston	MA	02115	042312909	501c(3)	$97,200	RESEARCH	651 Serra Street Suite 220
Brigham and Women's Hospital Boston
10 Vining Street	Boston	MA	02115	042312909	501c(3)	$43,200	PILOT STUDY
California Pacific Medical Center Research Institu
2200 Webster Street Room 405	San Francisco	CA	94115	940562680	501c(3)	$15,950	CF CARE CENTER
CAMC Health Education and Research Institute
PO Box 765	Charleston	WV	25323	550753754	501c(3)	$38,815	CF CARE CENTER
Carle Foundation Hospital
611 W Park Street	Urbana	IL	61801	371119538	501c(3)	$29,570	CF CARE CENTER
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067037	341018992	501c(3)	$269,400	RESEARCH
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067037	341018992	501c(3)	$43,200	PILOT STUDY	Attn Deborah Elam
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067037	341018992	501c(3)	$349,281	RESEARCH CENTER	Attn Deborah Elam
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067037	341018992	501c(3)	$11,880	QUALITY IMPROVEMENT	Attn Deborah Elam
Center for Medical Technology Policy
World Trade Center Baltimore	Baltimore	MD	21202	271203017	501c(3)	$149,712	QUALITY IMPROVEMENT	Attn Deborah Elam
Central Florida Pulmonary Group
326 North Mills Avenue	Orlando	FL	32803	591760017	C CORP	$51,325	CF CARE CENTER	401 East Pratt Street Suite 631
Chest Medicine Associates
100 Foden Road	South Portland	ME	04103	010461391	C CORP	$27,000	ADULT CARE
Children's & Women's Physicians of Westchester
Pediatric Pulmonology	Valhalla	NY	10595	133956599	LLP	$75,855	CF CARE CENTER
Children's Health Care
2525 Chicago Avenue SO	Minneapolis	MN	55404	411754276	501c(3)	$57,415	CF CARE CENTER	Munger Pavilion Room 106
Children's Healthcare of Atlanta
1001 Johnson Ferry Road North	Atlanta	GA	30342	582367819	501c(3)	$86,600	CF CARE CENTER	32-2210
Children's Healthcare of Atlanta
1001 Johnson Ferry Road North	Atlanta	GA	30342	582367819	501c(3)	$11,880	QUALITY IMPROVEMENT
Children's Hospital & Research Center at Oakland
747 52nd Street	Oakland	CA	94609	940382330	501c(3)	$35,005	CF CARE CENTER
Children's Hospital Central California
9300 Valley Childrens Place	Madera	CA	93638	941294954	501c(3)	$72,805	CF CARE CENTER
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	$32,200	ADULT CARE
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	$288,370	CF CARE CENTER
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	$103,000	TRAINING
Children's Hospital Medical Center
Cincinnati Childrens Hospital Medi	Cincinnati	OH	45229	310833936	501c(3)	$117,110	CF CARE CENTER
Children's Hospital Medical Center
Cincinnati Childrens Hospital Medi	Cincinnati	OH	45229	310833936	501c(3)	$97,750	TRAINING	Research Accounting
Children's Hospital Medical Center
Cincinnati Childrens Hospital Medi	Cincinnati	OH	45229	310833936	501c(3)	$384,368	RESEARCH CENTER	Research Accounting
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	443081062	340714357	501c(3)	$129,235	CF CARE CENTER	Research Accounting
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	443081062	340714357	501c(3)	$9,903	QUALITY IMPROVEMENT
Children's Hospital of Michigan
3663 Woodward Ave S Ste 200	Detroit	MI	48201	381357994	501c(3)	$70,960	CF CARE CENTER
Children's Hospital of Orange County
PO Box 5700	Orange	CA	926135700	952321786	501c(3)	$40,155	CF CARE CENTER
Children's Hospital of Pittsburgh
3705 Fifth Avenue	Pittsburgh	PA	15213	250402510	501c(3)	$249,635	CF CARE CENTER
Children's Hospital Los Angeles
Research Institute	Los Angeles	CA	90027	951690977	501c(3)	$82,820	CF CARE CENTER
Children's Lung Specialists
3838 Meadows Lane	Las Vegas	NV	89107	880271963	501c(3)	$82,765	CF CARE CENTER	4650 Sunset Blvd
Children's Medical Center
One Childrens Plaza	Dayton	OH	454041815	310672132	501c(3)	$86,180	CF CARE CENTER
Children's Mercy Hospital
2401 Gillham Road	Kansas City	MO	64108	440605373	501c(3)	$120,795	CF CARE CENTER
Children's National Medical Center
111 Michigan Avenue NW	Washington	DC	20010	521654453	501c(3)	$100,430	CF CARE CENTER
Children's Specialty Group PLLC
811 Redgate Ave	Norfolk	VA	23507	541871633	501c(3)	$72,495	CF CARE CENTER
Christus Santa Rosa Healthcare
333 North Santa Rosa	San Antonio	TX	78207	741109665	501c(3)	$23,500	CF CARE CENTER
Connecticut Children's Medical Center
282 Washington Street	Hartford	CT	06106	060646755	501c(3)	$47,035	CF CARE CENTER
Cook Children's Medical Center CF Center
801 Seventh Avenue	Ft Worth	TX	76104	752051646	501c(3)	$152,045	CF CARE CENTER
Daughters of Charity Health Services of Austin
PO Box 1	Houston	TX	77212	741109643	501c(3)	$98,435	CF CARE CENTER
Daughters of Charity Health Services of Austin
PO Box 1	Houston	TX	77212	741109643	501c(3)	$23,760	QUALITY IMPROVEMENT
Duke University
Office of Sponsored Programs	Durham	NC	27710	560532129	501c(3)	$63,815	CF CARE CENTER
East Tennessee Children's Hospital Association I
2100 Clinch Avenue 310	Knoxville	TN	37916	626002604	501c(3)	$75,610	CF CARE CENTER	Box 104025
East Tennessee Children's Hospital Association I
2100 Clinch Avenue 310	Knoxville	TN	37916	626002604	501c(3)	$23,760	QUALITY IMPROVEMENT
Eastern Maine Medical Center
417 State Street	Bangor	ME	04401	010211501	501c(3)	$29,635	CF CARE CENTER
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	$59,149	ADULT CARE	Suite 305
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	$212,880	CF CARE CENTER
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	$246,860	RESEARCH
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	$43,200	PILOT STUDY
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	$100,000	RESEARCH CENTER
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	$9,210	QUALITY IMPROVEMENT
Erlanger Health System
975 East Third Street	Chattanooga	TN	37403	626000101	501c(3)	$40,355	CF CARE CENTER
Faculty Physicians & Surgeons of LLUSM
Coleman Pavilion	Loma Linda	CA	92350	330672915	501c(3)	$51,495	CF CARE CENTER
Fairfax Neonatal Associates PC dbaPediatric Lung
2730-B Prosperity Avenue	Fairfax	VA	22031	541110106	C CORP	$20,790	CF CARE CENTER	PO Box 2000
Fletcher Allen Health Care
111 Colchester Ave	Burlington	VT	05401	030219309	501c(3)	$32,157	ADULT CARE
Fletcher Allen Health Care
111 Colchester Ave	Burlington	VT	05401	030219309	501c(3)	$92,535	CF CARE CENTER
Geisinger Medical Center
Pediatric Allergy Immunology Pul	Danville	PA	17822	236291113	501c(3)	$55,865	CF CARE CENTER
Georgia Health Sciences University
1120 15th Street	Augusta	GA	309128300	586002053	501c(3)	$98,370	CF CARE CENTER	100 N Academy Drive
Good Samaritan Hospital
1000 Montauk Highway	New York	NY	11795	111888924	501c(3)	$13,750	CF CARE CENTER
Greenville Hospital System
701 Grove Road	Greenville	SC	29605	576007863	501c(3)	$37,765	CF CARE CENTER
Gundersen Lutheran Medical Foundation
1900 South Avenue	La Crosse	WI	54601	391249705	501c(3)	$19,765	CF CARE CENTER
Hartford Hospital
Department of Medicine	Hartford	CT	06102	060646668	501c(3)	$51,995	CF CARE CENTER
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	Rockville	MD	20852	521317896	501c(3)	$45,505	CF CARE CENTER	80 Seymour Street
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	Rockville	MD	20852	521317896	501c(3)	$86,400	PILOT STUDY
Iowa Health Foundation (Blank Children's CF Center
1440 Ingersoll Avenue	Des Moines	IA	50309	421467682	501c(3)	$50,155	CF CARE CENTER
Kaiser Foundation Research Institute
1800 Harrison Street	OAKLAND	CA	94612	941105628	501c(3)	$190,090	CF CARE CENTER
Kaleida Health
219 Bryant Street	Buffalo	NY	14209	161533232	501c(3)	$99,870	CF CARE CENTER	16th floor
Landon Pediatric Foundation
3291 Loma Vista Road	Ventura	CA	93003	931097216	501c(3)	$32,730	CF CARE CENTER
Lee Memorial Health System Foundation Inc
16451 HealthPark Commons 200	Ft Myers	FL	339083630	650645343	501c(3)	$19,855	CF CARE CENTER	Building 340 Suite 302
Lehigh Valley Hospital
Pediatric Specialty Center	Bethlehem	PA	18017	231689692	501c(3)	$20,090	CF CARE CENTER
Long Island Jewish Medical Center
Finance Department	Westbury	NY	11590	112241326	501c(3)	$105,780	CF CARE CENTER	2545 Schoenersville Road
Long Island Jewish Medical Center
Finance Department	Westbury	NY	11590	112241326	501c(3)	$266,668	QUALITY IMPROVEMENT	972 Brushhollow Road
Loyola University of Chicago
2160 S First Avenue	Maywood	IL	60153	361408475	501c(3)	$50,645	CF CARE CENTER	972 Brushhollow Road
LSUMC - Shreveport
P O Box 33932	Shreveport	LA	71130	720702002	501c(3)	$77,445	CF CARE CENTER
Lutheran Hospital of Indiana
7950 West Jefferson Boulevard	FT Wayne	IN	46804	351963748	C CORP	$42,465	CF CARE CENTER
Maine Medical Center
22 Bramhall Street	Portland	ME	04102	010238552	501c(3)	$100,430	CF CARE CENTER
Marshfield Clinic Research Foundation
1000 North Oak Avenue	Marshfield	WI	54449	390452970	501c(3)	$23,390	CF CARE CENTER
Mary Bridge Children's Foundation
311 South L Street	Tacoma	WA	98405	943030039	501c(3)	$39,475	CF CARE CENTER
Mayo Clinic Rochester
200 First Street SW	Rochester	MN	55905	416011702	501c(3)	$18,000	CF CARE CENTER	Mailstop B1-OC
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501c(3)	$89,035	CF CARE CENTER	Plummer 5
Memorial Medical Center Foundation
2801 Atlantic Avenue	Long Beach	CA	908011428	956105984	501c(3)	$118,410	CF CARE CENTER
Miami Children's Hospital
MOB 203	Miami	FL	33155	590638499	501c(3)	$28,325	CF CARE CENTER	PO Box 1428
Michigan State University
301 Administration Bldg	East Lansing	MI	488241046	386005984	501c(3)	$43,200	PILOT STUDY	3200 SW 60th Court
Michigan State UniversityKCMS
1000 Oakland Drive	Kalamazoo	MI	49001	386005984	501c(3)	$52,080	CF CARE CENTER
Miller School of Medicine University of Miami
1600 NW 10th Ave	Miami	FL	33136	590624458	501c(3)	$288,174	QUALITY IMPROVEMENT
Mission Healthcare Foundation Inc
980 Hendersonville Road	Asheville	NC	28803	561881331	501c(3)	$6,000	CF CARE CENTER	Room 7058
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501c(3)	$65,810	CF CARE CENTER	Suite C
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$127,470	CF CARE CENTER
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	$291,240	RESEARCH
Nemours Children's Clinic Jacksonville
807 Nira Street	Jacksonville	FL	32207	590634433	501c(3)	$32,400	ADULT CARE
Nemours Children's Clinic Jacksonville
807 Nira Street	Jacksonville	FL	32207	590634433	501c(3)	$21,600	QUALITY IMPROVEMENT
New York University School of Medicine
550 First Avenue	New York	NY	10016	135562308	501c(3)	$27,000	ADULT CARE
New York University School of Medicine
550 First Avenue	New York	NY	10016	135562308	501c(3)	$50,985	CF CARE CENTER
North Suburban Pulmonary Research and Education
8780 W Gold	Niles	IL	60714	364393617	501c(3)	$9,000	CF CARE CENTER
Oregon Health & Science University
Sponsored Projects Administration O	Portland	OR	97239	237083114	501c(3)	$32,400	ADULT CARE	Suite 102
Oregon Health & Science University
Sponsored Projects Administration O	Portland	OR	97239	237083114	501c(3)	$187,835	CF CARE CENTER	0690 SW Bancroft Street
Oregon Health & Science University
Sponsored Projects Administration O	Portland	OR	97239	237083114	501c(3)	$41,525	QUALITY IMPROVEMENT	0690 SW Bancroft Street
Orlando Health Foundation
3160 Southgate Commerce Blvd	Orlando	FL	32806	592244943	501c(3)	$55,470	CF CARE CENTER	0690 SW Bancroft Street
Pennsylvania State University
College of Medicine	Hershey	PA	17033	246000376	IRC 115	$130,460	CF CARE CENTER	Suite 50
Philadelphia Health & Education Corp (Drexel U)
3201 Arch Street	Philadelphia	PA	19104	232979433	501c(3)	$56,831	ADULT CARE	Office of Research Affairs H138
Philadelphia Health & Education Corp (Drexel U)
3201 Arch Street	Philadelphia	PA	19104	232979433	501c(3)	$89,720	CF CARE CENTER	Suite 420
Phoenix Children's Hospital
1300 North 12th Street	Phoenix	AZ	85006	860422559	501c(3)	$146,800	CF CARE CENTER	Suite 420
Providence Alaska Medical Center
3200 Providence Drive	Anchorage	AK	995196604	920016429	501c(3)	$31,315	CF CARE CENTER
Providence Physician Service
101 W 8th Ave	Spokane	WA	99204	911216033	C CORP	$67,530	CF CARE CENTER	PO Box 196604
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501c(3)	$180,580	CF CARE CENTER
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501c(3)	$167,011	TRAINING	F428 Fitzsimons Building 500
Renown Health Foundation
1155 Mill St Z-5	Reno	NV	89502	942872749	501c(3)	$19,645	CF CARE CENTER	F428 Fitzsimons Building 500
Rhode Island Hospital
593 Eddy Street	Providence	RI	02903	050258954	501c(3)	$60,900	CF CARE CENTER
Rosalind Franklin University of Medicine and Scien
3333 Green Bay Road	North Chicago	IL	60064	362181973	501c(3)	$173,774	RESEARCH
Rush University Medical Center
1725 West Harrison Suite 718	Chicago	IL	60612	362174823	501c(3)	$27,000	ADULT CARE
Rush University Medical Center
1725 West Harrison Suite 718	Chicago	IL	60612	362174823	501c(3)	$47,690	CF CARE CENTER
Rutgers The State University of New Jersey
58 Bevier Road	Piscataway	NJ	088548010	462354111	501c(3)	$67,855	CF CARE CENTER
Saint Barnabas Medical Center
Saint Barnabas Medical Center	Livingston	NJ	07039	221494440	501c(3)	$25,495	CF CARE CENTER
Saint Francis Medical Center
530 NE Glen Oak Avenue	Peoria	IL	61637	370662569	501c(3)	$49,015	CF CARE CENTER	Pediatric Pulmonary Division
Saint Joseph's Hospital and Medical Center
703 Main Street	Paterson	NJ	07503	221487602	501c(3)	$24,945	CF CARE CENTER
Samaritan Medical Center
Child Adolescent Health Services	Watertown	NY	13601	150533577	501c(3)	$8,950	CF CARE CENTER
Sanford Children's Specialty Clinic
1305 W 18th Street	Sioux Falls	SD	571175039	460447693	501c(3)	$67,485	CF CARE CENTER	513 Washington Street
Sanford Medical Center Fargo
801 North Broadway	Fargo	ND	581220176	450226909	501c(3)	$18,610	CF CARE CENTER
Santa Barbara Cottage Hospital
2405 De La Vina Street	Santa Barbara	CA	93105	951644629	501c(3)	$6,000	CF CARE CENTER
Scott & White Memorial Hospital
2401 South 31st Street	Temple	TX	76508	741166904	501c(3)	$26,360	CF CARE CENTER
Seattle Children's Hospital Foundation
6901 Sand Point Way NE	Seattle	WA	981050371	910564748	501c(3)	$111,845	CF CARE CENTER
South Broward Hospital District
Joe DiMaggios Childrens Hospital	Hollywood	FL	33321	596014973	501c(3)	$71,980	CF CARE CENTER
Spectrum Health Foundation
Downtown Campus	Grand Rapids	MI	49503	382752328	501c(3)	$145,490	CF CARE CENTER	Cystic Fibrosis Clinic
Spectrum Health Foundation
Downtown Campus	Grand Rapids	MI	49503	382752328	501c(3)	$23,760	QUALITY IMPROVEMENT	100 Michigan Street NE MC 004
St Alexius Medical Center
PO Box 5510	Bismarck	ND	585065510	450226711	501c(3)	$32,655	CF CARE CENTER	100 Michigan Street NE MC 004
St Joseph's Regional Medical Center Inc
611 East Cedar Street	Mishawaka	IN	465451468	351568821	501c(3)	$27,570	CF CARE CENTER
St Louis University
3500 Lindell Blvd	St Louis	MO	63103	430654872	501c(3)	$105,540	CF CARE CENTER	Suite 405
St Luke's Regional Medical Center
100 East Idaho	Boise	ID	83712	820161600	501c(3)	$68,615	CF CARE CENTER
Stony Brook University Hospital
Division of Pediatric Pulmonary	Stony Brook	NY	117943362	141368361	501c(3)	$157,275	CF CARE CENTER	Suite 200
Sutter Medical Center Sacramento
5609 J Street Suite C	Sacramento	CA	95819	941156621	501c(3)	$50,190	CF CARE CENTER	HSC T11-080
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	West Palm Beach	FL	33407	752932830	C CORP	$48,070	CF CARE CENTER
Tennessee Department of HealthLab Services
710 James Robertson Parkway 6th fl	Nashville	TN	37243	626001445	OTHER-GOV'T	$20,000	QUALITY IMPROVEMENT	901 45th Street
Texas Tech University Health Sciences Center
3601 4th Street	Lubbock	TX	79430	752668014	IRC 115	$20,470	CF CARE CENTER
The Adult Cystic Fibrosis Center of Jacksonville
425 N Lee Street Suite 202	Jacksonville	FL	32204	204055796	501c(3)	$23,620	CF CARE CENTER	Mail Stop 6591
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Philadelphia	PA	191044318	231352166	501c(3)	$32,400	ADULT CARE
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Philadelphia	PA	191044318	231352166	501c(3)	$153,975	CF CARE CENTER
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Philadelphia	PA	191044318	231352166	501c(3)	$68,250	TRAINING
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	$79,105	CF CARE CENTER
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	$11,660	RESEARCH	310 Jesse Hall
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	$43,850	RESEARCH STUDY	310 Jesse Hall
The General Hospital Corporation (Massachusetts)
Mass General Research Finance	Boston	MA	02114	042697983	501c(3)	$103,120	CF CARE CENTER	310 Jesse Hall
The General Hospital Corporation (Massachusetts)
Mass General Research Finance	Boston	MA	02114	042697983	501c(3)	$86,950	RESEARCH STUDY	PO Box 414876
The General Hospital Corporation (Massachusetts)
Mass General Research Finance	Boston	MA	02114	042697983	501c(3)	$107,999	PILOT STUDY	PO Box 414876
The General Hospital Corporation (Massachusetts)
Mass General Research Finance	Boston	MA	02114	042697983	501c(3)	$86,263	TRAINING	PO Box 414876
The Hitchcock Foundation
One Medical Center Drive	Lebanon	NH	03756	020222139	501c(3)	$108,690	CF CARE CENTER	PO Box 414876
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	$255,700	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	$289,350	RESEARCH
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	$54,750	RESEARCH STUDY
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	$43,166	PILOT STUDY
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	$263,790	RESEARCH CENTER
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501c(3)	$166,435	CF CARE CENTER
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501c(3)	$81,000	QUALITY IMPROVEMENT
The Ohio State University
1960 Kenny Road	Columbus	OH	43210	316025986	IRC 115	$97,200	RESEARCH
The President & Fellows of Harvard College
25 Shattuck Street	Boston	MA	02115	042103580	501c(3)	$42,750	RESEARCH STUDY
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	229044195	546001796	501c(3)	$110,530	CF CARE CENTER
The Regents of the University of California Davis
Cashiers Office 1200 Dutton Hall	Davis	CA	95616	946036494	501c(3)	$72,510	CF CARE CENTER	Office of Sponsored Programs
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501c(3)	$27,000	ADULT CARE	One Shields Avenue
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501c(3)	$145,165	CF CARE CENTER	9500 Gilman Drive Dept 0934
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	$32,400	ADULT CARE	9500 Gilman Drive Dept 0934
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	$81,060	CF CARE CENTER	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	$100,000	RESEARCH	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	$89,317	TRAINING	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	$460,000	RESEARCH CENTER	3333 California Street Suite 315
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	$32,400	ADULT CARE	3333 California Street Suite 315
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	$237,170	CF CARE CENTER
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	$43,200	PILOT STUDY
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	$49,750	TRAINING
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	$21,600	QUALITY IMPROVEMENT
The Regents of the University of Minnesota
Sponsored Projects Administration	Minneapolis	MN	554552070	416007513	501c(3)	$32,400	ADULT CARE
The Regents of the University of Minnesota
Sponsored Projects Administration	Minneapolis	MN	554552070	416007513	501c(3)	$279,860	CF CARE CENTER	200 Oak St SE
The Research Institute at Nationwide Children's H
700 CHILDRENS DRIVE	Columbus	OH	432052664	316056230	501c(3)	$221,340	CF CARE CENTER
The Research Institute at Nationwide Children's H
700 CHILDRENS DRIVE	Columbus	OH	432052664	316056230	501c(3)	$43,200	PILOT STUDY
The Tampa General Hospital Foundation
PO Box 1289	Tampa	FL	33601	237354477	501c(3)	$86,575	CF CARE CENTER	Dept 4656 / Ref 413407
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$32,400	ADULT CARE
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$141,355	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	$97,750	TRAINING
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	352940006	636005396	501c(3)	$276,250	CF CARE CENTER
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	352940006	636005396	501c(3)	$215,909	RESEARCH
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	352940006	636005396	501c(3)	$42,750	RESEARCH STUDY
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	352940006	636005396	501c(3)	$500,000	RESEARCH CENTER
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	352940006	636005396	501c(3)	$137,919	QUALITY IMPROVEMENT
The University of Chicago
5801 S Ellis Avenue	Chicago	IL	60637	362177139	501c(3)	$64,385	CF CARE CENTER
The University of Chicago
University Research Administration	Chicago	IL	60637	362177139	501c(3)	$75,000	RESEARCH
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	$282,840	CF CARE CENTER	970 E 58th Street
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	$423,368	RESEARCH	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	$165,540	TRAINING	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	$88,800	RESEARCH STUDY	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	$43,181	PILOT STUDY	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	$460,000	RESEARCH CENTER	Office of Sponsored Research
The University of North Carolina at Chapel Hill
300 Bynum Hall	Chapel Hill	NC	275994100	566001393	501c(3)	$96,047	QUALITY IMPROVEMENT	Office of Sponsored Research
The University of North Carolina at Charlotte
9201 University City Blvd	Charlotte	NC	282230001	560791228	501c(3)	$42,746	RESEARCH STUDY	CB 4100
The University of Texas at Austin
P O Box 7726	Austin	TX	787137726	746000203	501c(3)	$86,599	RESEARCH STUDY
The University of Texas at Austin
P O Box 7726	Austin	TX	787137726	746000203	501c(3)	$43,200	PILOT STUDY
Toledo Children's Hospital
2142 N Cove Blvd	Toledo	OH	43606	344428256	501c(3)	$96,945	CF CARE CENTER
Toledo Children's Hospital
2142 N Cove Blvd	Toledo	OH	43606	344428256	501c(3)	$23,760	QUALITY IMPROVEMENT
Trustees of Boston University
881 Commonwealth Avenue	Boston	MA	02215	042103547	501c(3)	$104,500	TRAINING
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	$89,900	RESEARCH STUDY
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	$43,200	PILOT STUDY
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	$346,667	RESEARCH CENTER
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	$652,847	QUALITY IMPROVEMENT
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501c(3)	$32,400	ADULT CARE
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501c(3)	$232,580	CF CARE CENTER	PO Box 66057
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501c(3)	$49,750	TRAINING	PO Box 66057
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501c(3)	$27,000	ADULT CARE	PO Box 66057
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501c(3)	$73,358	PILOT STUDY
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501c(3)	$59,083	RESEARCH CENTER
Trustees of the University of Pennsylvania on beha
3451 Walnut Street	Philadelphia	PA	19104	231352685	501c(3)	$124,990	CF CARE CENTER
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501c(3)	$32,400	ADULT CARE	Franklin Bldg P-221
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501c(3)	$110,635	CF CARE CENTER
University at Buffalo Pediatric Associates
1028 Main Street	Buffalo	NY	01402	161238821	501c(3)	$81,000	QUALITY IMPROVEMENT
University Hospitals of Cleveland
2074 Abingdon Road	Cleveland	OH	44106	340714775	501c(3)	$26,336	ADULT CARE
University Hospitals of Cleveland
2074 Abingdon Road	Cleveland	OH	44106	340714775	501c(3)	$179,085	CF CARE CENTER
University Hospitals of Cleveland
2074 Abingdon Road	Cleveland	OH	44106	340714775	501c(3)	$11,880	QUALITY IMPROVEMENT
University of Arkansas for Medical Sciences
4301 West Markham Street	Little Rock	AR	72205	716046242	501c(3)	$53,865	CF CARE CENTER
University of Cincinnati Physicians Company
231 Albert Sabin Way	Cincinnati	OH	452670564	311405915	501c(3)	$66,445	CF CARE CENTER	Mail Slot 555
University of Cincinnati Physicians Company
231 Albert Sabin Way	Cincinnati	OH	452670564	311405915	501c(3)	$91,893	QUALITY IMPROVEMENT	MSB 60048
University of Florida
Shands Childrens Hospital	Gainesville	FL	32610	596002052	IRC 115	$93,450	CF CARE CENTER	MSB 60048
University of Florida
Shands Childrens Hospital	Gainesville	FL	32610	596002052	IRC 115	$17,210	QUALITY IMPROVEMENT	1600 SW Archer Rd Suite D2-15
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501c(3)	$142,305	CF CARE CENTER	1600 SW Archer Rd Suite D2-15
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501c(3)	$194,400	RESEARCH	B 5 Jessup Hall
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501c(3)	$136,500	TRAINING	B 5 Jessup Hall
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501c(3)	$129,600	PILOT STUDY	B 5 Jessup Hall
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501c(3)	$1,000,000	RESEARCH CENTER	B 5 Jessup Hall
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard MSN 1039	Kansas City	KS	661032937	481108830	501c(3)	$27,000	ADULT CARE	B 5 Jessup Hall
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard MSN 1039	Kansas City	KS	661032937	481108830	501c(3)	$102,885	CF CARE CENTER
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard MSN 1039	Kansas City	KS	661032937	481108830	501c(3)	$97,200	RESEARCH
University of Kentucky Research Foundation
Kentucky CF Clinic J424	Lexington	KY	405360284	616033693	501c(3)	$121,670	CF CARE CENTER
University of Louisville Research Foundation Inc
Office of Grants Management	Louisville	KY	40292	611029626	501c(3)	$114,675	CF CARE CENTER	740 South Limestone
University of Maryland
650 W Baltimore St - 8 South	Baltimore	MD	21201	526002033	IRC 115	$43,200	PILOT STUDY	Jouett Hall Belknap Campus
University of Massachusetts Medical Center
55 Lake Avenue	Worcester	MA	10655	043167352	IRC 115	$25,240	ADULT CARE
University of Massachusetts Medical Center
55 Lake Avenue	Worcester	MA	10655	043167352	IRC 115	$73,836	CF CARE CENTER
University of Miami
Pediatric/Pulmonary Division	Miami	FL	33137	590624458	501c(3)	$73,575	CF CARE CENTER
University of Miami
Pediatric/Pulmonary Division	Miami	FL	33137	590624458	501c(3)	$97,200	RESEARCH	1601 NW 12th Avenue
University of Nebraska Medical Center
Service Building	Omaha	NE	681987835	470049123	501c(3)	$27,000	ADULT CARE	1601 NW 12th Avenue
University of Nebraska Medical Center
Service Building	Omaha	NE	681987835	470049123	501c(3)	$162,400	CF CARE CENTER	985100 Nebraska Medical Center
University of New Mexico Health Sciences Center
Controllers Office	Albuquerque	NM	871315041	856000642	IRC 115	$80,775	CF CARE CENTER	985100 Nebraska Medical Center
University of Oklahoma Health Sciences Center
PO Box 26901	Oklahoma City	OK	73190	736017987	IRC 115	$145,570	CF CARE CENTER	Health Sciences and Services Bldg
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$27,000	ADULT CARE
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$391,600	RESEARCH
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$97,200	PILOT STUDY
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$170,435	TRAINING
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$460,000	RESEARCH CENTER
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	$148,848	QUALITY IMPROVEMENT
University of Rochester
1325 Mt Hope Avenue	Rochester	NY	14642	160743209	501c(3)	$91,590	CF CARE CENTER
University of South Carolina Research Foundation
901 Sumter Street	Columbia	SC	29208	570967350	501c(3)	$41,865	CF CARE CENTER	Suite 260
University of South Florida
Department of Pediatrics	Tampa	FL	33606	593102112	IRC 115	$27,100	CF CARE CENTER	Suite 501
University of Southern California
USC Contracts and Grants	Los Angeles	CA	900339002	951642394	501c(3)	$97,097	RESEARCH	17 Davis Boulevard Suite 200
University of Southern California Keck School of M
Contracts and Grants Office	LOS ANGELES	CA	90033	951642394	501c(3)	$95,560	CF CARE CENTER	1540 Alcazar Street
University of Tennessee Medical Center
1940 Alcoa Hwy	Knoxville	TN	37920	311626179	501c(3)	$38,745	CF CARE CENTER	1540 Alcazar Street CHP-100
University of Tennessee
62 S Dunlap	Memphis	TN	38163	626001636	IRC 115	$31,375	CF CARE CENTER	Suite E-110
University of Texas Health Center at Tyler
11937 US Hwy 271	Tyler	TX	75708	756001354	501c(3)	$44,620	CF CARE CENTER
University of Texas Health Science Center at San A
Mail Code 7828	San Antonio	TX	782293900	741586031	501c(3)	$38,500	CF CARE CENTER
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501c(3)	$233,570	CF CARE CENTER	7703 Floyd Curl Drive
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501c(3)	$100,000	RESEARCH
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	IRC 115	$101,175	CF CARE CENTER
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	IRC 115	$296,200	RESEARCH
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	IRC 115	$42,750	RESEARCH STUDY
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	IRC 115	$120,500	TRAINING
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	IRC 115	$500,000	RESEARCH CENTER
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	IRC 115	$149,721	QUALITY IMPROVEMENT
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	IRC 115	$91,530	ADULT CARE
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	IRC 115	$221,315	CF CARE CENTER
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	IRC 115	$43,200	PILOT STUDY
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	IRC 115	$23,760	QUALITY IMPROVEMENT
Vanderbilt University
PO Box 30195	Nashville	TN	372410195	620476822	501c(3)	$207,425	CF CARE CENTER
Vanderbilt University
PO Box 30195	Nashville	TN	372410195	620476822	501c(3)	$43,850	RESEARCH STUDY
Via Christi Regional Medical Center CF Clinic
3311 East Murdock Street	Wichita	KS	67218	481172106	501c(3)	$59,275	CF CARE CENTER
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	232842506	546001758	501c(3)	$73,620	CF CARE CENTER
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	232842506	546001758	501c(3)	$81,000	QUALITY IMPROVEMENT
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	271571064	223849199	501c(3)	$69,560	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	271571064	223849199	501c(3)	$94,016	RESEARCH
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	271571064	223849199	501c(3)	$43,200	PILOT STUDY
Washington University
Campus Box 1034	St Louis	MO	631121408	430653611	501c(3)	$216,820	CF CARE CENTER
Washington University
Campus Box 1034	St Louis	MO	631121408	430653611	501c(3)	$21,591	QUALITY IMPROVEMENT	700 Rosedale Avenue
Wayne State University
Grants Contracts Office III	Detroit	MI	48201	386028425	501c(3)	$44,620	CF CARE CENTER	700 Rosedale Avenue
West Virginia University Research Corporation
West Virginia University	Morgantown	WV	265066001	550665758	501c(3)	$68,946	CF CARE CENTER	Research and Sponsored Programs
Yale University
47 College Street Suite 203	New Haven	CT	065208047	060646973	501c(3)	$59,374	ADULT CARE	PO Box 6001
Yale University
47 College Street Suite 203	New Haven	CT	065208047	060646973	501c(3)	$73,625	CF CARE CENTER
Yale University
47 College Street Suite 203	New Haven	CT	065208047	060646973	501c(3)	$97,200	RESEARCH
Yale University
47 College Street Suite 203	New Haven	CT	065208047	060646973	501c(3)	$43,200	PILOT STUDY	PO Box 208047

Field	Value	IRS element (for citing)
Total501c3 Org	172	Total501c3OrgCnt
Total Other Org	8	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Cash GrantCashGrantAmt
PATIENT ASSISTANCE PROGRAM	1167	$1,813,694
FELLOWSHIPS	4	$18,008

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.	FormAndLineReferenceDesc
Explanation	PART 1, LINE 2 THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (true)	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Robert J Beall PhD
PRESIDENT / CEO	$399,993	$200,570	$233,330	$114,924	$16,814	$8,060	$145,953	$58,825	$19,255	$0	$815,345	$382,379	$65,086	$32,057
C Richard Mattingly
EXEC VP, COO & SECRETARY	$399,981	$0	$222,762	$0	$23,012	$0	$173,105	$0	$16,161	$0	$835,021	$0	$72,377	$0
Preston Campbell MD
EXEC VP OF MEDICAL AFFAIRS	$261,919	$133,626	$151,307	$74,524	$19,649	$5,775	$108,170	$40,216	$26,436	$0	$567,481	$254,141	$47,912	$23,599
Vera H Twigg
EXECUTIVE VP AND CFO	$300,886	$0	$139,087	$0	$21,930	$0	$59,013	$0	$26,436	$0	$547,352	$0	$30,185	$0
Maureen Fraser
VP OF FIELD MANAGEMENT	$196,495	$0	$20,672	$0	$2,788	$0	$22,127	$0	$18,255	$0	$260,337	$0	$0	$0
Daniel Klein
SR VP, PATIENT ACCESS PROGRAMS	$253,270	$0	$37,689	$0	$3,188	$0	$26,520	$0	$41,461	$0	$362,128	$0	$0	$0
Christopher Penland PhD
VP OF RESEARCH	$160,625	$28,345	$38,695	$2,400	$612	$0	$23,688	$0	$25,790	$0	$249,410	$30,745	$0	$0
David McLoughlin
SR. VP OF OPERATIONS	$194,290	$59,132	$37,828	$10,707	$1,242	$0	$31,520	$0	$26,136	$0	$291,016	$69,839	$0	$0
Glen Goldmark
VP OF HUMAN RESOURCES	$196,260	$0	$40,188	$0	$2,790	$0	$29,369	$0	$17,655	$0	$286,262	$0	$0	$0
Mary Dwight
SVP POLICY & COMM AFFAIRS	$185,223	$0	$36,276	$0	$376	$0	$28,626	$0	$31,436	$0	$281,937	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN

Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to the designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Part I, Line 7: Several individuals listed in Form 990, Part VII, Section A, line 1a, (who are identified in Part II, below) participated in the Foundation's Incentive Compensation Plan, from which non-fixed payments not described in lines 5 and 6 were paid. The Incentive Compensation Plan pays non-fixed payments subject to, and based on, the achievement of annual performance objectives established in advance by the Compensation Committee of the Board of Trustees. In addition, the Incentive Compensation Plan pays non-fixed payments that relate to a three-year performance period, subject to, and based on, the achievement of long-term performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs.

COMPENSATION

Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $384,583, 401(k) bonus - $15,410; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $121,344, long-term incentive plan payment, which was previously reported (6) - $65,086, long-term incentive plan treatment award (3) - $46,900; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,165, automobile allowance - $4,824, other benefits - $8,825; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $53,773, SERP (4) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $12,031, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $192,980, 401(k) bonus - $7,590; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $59,767, long-term incentive plan payment, which was previously reported (6) - $32,057, long-term incentive plan treatment award (3) - $23,100; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,559, automobile allowance - $2,376, other benefits - $4,125 (C) Deferred Compensation: long-term incentive plan benefit (6) - $26,485, SERP (4) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $261,919; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $69,894, long-term incentive plan payment, which was previously reported (6) - $47,912, long-term incentive plan treatment award (3) - $33,500; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $7,924, Section 457(b) Plan (5) - $11,725; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $39,099, SERP (4) - $42,551; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $133,626; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $34,426, long-term incentive plan payment, which was previously reported (6) - $23,599, long-term incentive plan treatment award (3) - $16,500; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,775; (C) Deferred Compensation: long-term incentive plan benefit (6) - $19,258, SERP (4) - $20,958; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Mattingly; (B)(i) Base Compensation: base salary - $399,981; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $100,385, long-term incentive plan payment, which was previously reported (6) - $72,377, long-term incentive plan treatment award (3) - $50,000; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,500; other benefits including taxable general organization group term life insurance premium - $5,512; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $58,531, SERP (4) - $88,054; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $10,760, employee contribution to flexible spending account benefit - $1,600, employee contribution to general organization health plan benefit - $3,801 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $300,886; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $73,902, long-term incentive plan payment, which was previously reported (6) - $30,185, long-term incentive plan treatment award (3) - $35,000; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $4,430, Section 457(b) Plan (5) - $17,500; (C) Deferred Compensation: retirement benefit (2) - $26,520, long-term incentive plan benefit (6) - $27,386, SERP (4) - $5,107; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,053, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2014 Plan Year. (3) This is an award under a plan that pays a specified dollar amount only if and when the FDA approves certain pre-specified types of therapies. In the event the employee terminates employment prior to FDA approval of the specified therapy type and payment of the award, the employee will forfeit his or her right to receive payment, unless termination is due to retirement or disability. The plan will terminate on December 31, 2018 unless the Foundation determines to extend the plan. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or date, depending on the participant). C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include program-related revenues (such as royalty streams, lump-sum payments, other program-related income, and sales proceeds from transfer of the foregoing to third parties) related to the development and approval of CF drugs. Each year, a new three-year performance period begins. As required by the Form 990 instructions, the amounts reported on this Form 990 reflect an estimate of the portion of each award that the executive accrued under the Plan for performance in 2014 (i.e., with respect to the 2012-2014, 2013-2015 and the 2014-2017 performance periods), but the amounts reported have not been earned, awarded or paid under the Plan. The individual must be employed on 12/31/15 and 12/31/16 to be eligible to receive full payment of the award for the 2013-2015, and the 2014-2016 performance periods, respectively. The award relating to the 3-year performance period ending 12/31/13 was paid in 2014, and is properly reported again (as compensation) on this Form 990.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
OTHER PROGRAM SERVICES	PART III, LINE 4D: Community Services - The Cystic Fibrosis Foundation provides year-round efforts to educate, inform and empower individuals with CF and their families about the latest developments in treatment and care. The programs are designed to help the general public in the detection of the disease by providing a referral service and handling inquiries concerning cystic fibrosis. Approximately 28,600 people with CF were served in 2014, including approximately 840 individuals who were newly diagnosed.
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 11B (PAGE 6 CORE FORM) The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Board of Trustees receives a complete copy of the final Form 990 before it is filed.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM) A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2014 and had no conflicts of interest as defined by the policy.
DETERMINING COMPENSATION	PART VI - SECTION B, LINE 15A AND 15B (PAGE 6 CORE FORM) The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of curing cystic fibrosis and providing all people with the disease the opportunity to lead full, productive lives. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers or key employees of the organization: President & CEO Executive Vice President & COO Executive Vice President for Medical Affairs Executive Vice President & CFO Vice President of Field Management The process was last undertaken in 2014.
PUBLIC INSPECTION	PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM) Forms 1023 and 990-T for the Organization were available on its website, CFF.org and the Organization's website provided a direct link to its Form 990 on Guidestar.org. The Foundation's governing documents (Bylaws and Articles of Incorporation) were available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents was also available on the Foundation's website, www.cff.org during 2014. The Board and Officer Conflict of Interest Policy and the audited financial statements were available on the Foundation's website, www.cff.org during 2014.
COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, KEY EMPLOYEES, ETC	PART VII, SECTION A: NAME AND TITLE MICHAEL L. BEATTY ESQ., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE J. TAYLOR CRANDALL, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD L. DANDURAND, VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE LOUIS DEFALCO, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD J. GRAY ESQ., VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CAROLE B. GRIEGO, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE SUSAN L. HOOK, LEADERSHIP COUNCIL CHAIR AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, CHAIR AVG HRS WORKED 8 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHAD T. MOORE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE DAVID A. MOUNT, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE GARY B. SABIN, VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHARLES J. THAYER, TREASURER AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE AMY S. WEINBERG, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE PAUL W. WHETSELL, EXEC VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE KC BRYAN WHITE, ADULT ADVISORY COUNCIL CHAIR AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D., PRES/CEO AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION INDIVIDUAL TRUSTEE & OFFICER REPORTABLE COMP FROM THE ORG 650,137 REPORTABLE COMP FROM RELATED ORG 323,554 EST. AMT OF OTHER COMP FROM THE ORG 224,033 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP, COO & SECRETARY AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 645,755 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 189,266 NAME AND TITLE PRESTON CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 432,875 REPORTABLE COMP FROM RELATED ORG 213,925 EST. AMT OF OTHER COMP FROM THE ORG 174,822 NAME AND TITLE VERA H. TWIGG, EXECUTIVE VP & CFO AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 461,903 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 85,449 NAME AND TITLE MAUREEN FRASER, VP OF FIELD MGMT AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION KEY EMPLOYEE REPORTABLE COMP FROM THE ORG 219,955 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 40,382 NAME AND TITLE DANIEL KLEIN, SR VP PATIENT ACCESS PROGRAMS AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 294,147 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 67,981 NAME AND TITLE CHRISTOPHER PENLAND, PH.D., VP OF RESEARCH AVG HRS WORKED 35 HRS AVG HRS WORKED - RELATED 15 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 199,932 REPORTABLE COMP FROM RELATED ORG 30,745 EST. AMT OF OTHER COMP FROM THE ORG 49,478 NAME AND TITLE DAVID MCLOUGHLIN, SR. VP OF OPS AVG HRS WORKED 35 HRS AVG HRS WORKED - RELATED 15 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 233,360 REPORTABLE COMP FROM RELATED ORG 69,839 EST. AMT OF OTHER COMP FROM THE ORG 57,656 NAME AND TITLE GLEN GOLDMARK, VP OF HUMAN RES. AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 239,238 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 47,024 NAME AND TITLE MARY DWIGHT, SVP POLICY AND COMMUNITY AFFAIRS AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED NOT APPLICABLE POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 221,875 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 60,062 TOTAL REPORTABLE COMP FROM THE ORG 3,599,177 TOTAL REPORTABLE COMP FROM RELATED ORG 638,063 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 996,153
UNRESTRICTED NET ASSETS - BOARD DESIGNATED	FORM 990, PART X, LINE 27 The Foundation's unrestricted net assets totalled $3,796,361,145 as of December 31, 2014. Of this amount, the Foundation's Board of Trustees has designated $3,300,000,000 to be spent in support of the mission of the Foundation over the long term.
SIGNIFICANT DIVERSION OF THE ORGANIZATION'S ASSETS	Part VI, Section A, Line 5 (Page 6 Core Form) During the year, the organization's internal controls detected misappropriations of Foundation assets, which amounted to approximately $1,470,000. The misappropriations were carried out from 2010 to September 2014, with approximately $1,233,000 of the losses incurred between January 2013 and September 2014. These misappropriations involved IT equipment that was stolen by two employees, and fraudulent invoicing by a vendor and employee. Upon discovery, the Foundation immediately notified the Audit Committee of the Board of Trustees who engaged an independent law firm to investigate the schemes. The individuals involved are no longer employed by the Foundation and the Foundation has terminated its business relationship with the vendor involved in the fraudulent invoicing. The Foundation is cooperating with law enforcement officials in support of prosecution of any individuals who have violated the law. The Foundation has filed claims with its insurance company and corrective actions have been instituted.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	cystic fibrosis patient assistance fdn	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 arlington rd	AddressLine1Txt
City	bethesda	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	20814	ZIPCd

Field	Value	IRS element (for citing)
EIN	900350985	EIN
Primary Activities	patient asst	PrimaryActivitiesTxt
Legal Domicile State	DE	LegalDomicileStateCd
Total Income	$1,903,128	TotalIncomeAmt
End Of Year Assets	$4,023,017	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	na	BusinessNameLine1Txt

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Exempt Code SectionExemptCodeSectionTxt	Public Charity StatusPublicCharityStatusTxt	Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt	Controlled OrganizationControlledOrganizationInd
cystic fibrosis foundation therapeutics
6931 ARLINGTON RD	BETHESDA	MD	20814	912059167	RESEARCH	MD	501(c)(3)	11A	CFF-HQ	Yes (true)
CYSTIC FIBROSIS FOUNDATION GROUP
6931 ARLINGTON RD	BETHESDA	MD	20814	136161105	EDUCATION	DE	501(c)(3)	7	cfF-hq	Yes (true)

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	false	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	Yes (true)	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	Yes (true)	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (true)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (4 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
C	$3,180,372,057	FMV
CYSTIC FIBROSIS FOUNDATION GROUP
c	$90,795,086	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
N	$1,330,603	COST
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
O	$3,615,373	COST