STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
CHILDHOOD ARTHRITIS & RHEUMATOLOGY RESEARCH ALLIANCE (EIN 46-4152355)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-11-17
IRS object ID
202513219349308871
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-11-17T11:56:54-06:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN390919055PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1RITZ HOLMAN LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1330 E KILBOURN AVE SUITE 222AddressLine1Txt
CityMILWAUKEECityNm
State AbbreviationWIStateAbbreviationCd
ZIP53202ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN464152355EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHILDHOOD ARTHRITIS AND RHEUMATOLOGYBusinessNameLine1Txt
Business Name Line2RESEARCH ALLIANCEBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlCHILBusinessNameControlTxt
Phone2027721028PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11050 CONNECTICUT AVENUE NW 500AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20036ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonAIMEE HERSHPersonNm
Person TitleFINANCE CHAIRPersonTitleTxt
Phone2027721028PhoneNum
Signature2025-11-17SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info Curr0IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonBRIAN FALKPreparerPersonNm
PTINP01427495PTIN
Phone4142711451PhoneNum
Preparation2025-11-17PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerSTACY ARDOIN MDPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11050 CONNECTICUT AVENUE NW 500AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20036ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$9,591,717GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressHTTPS://WWW.CARRAGROUP.ORG/WebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2014FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionCARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Volunteers7TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$525,959PYContributionsGrantsAmt
CY Contributions Grants$876,245CYContributionsGrantsAmt
PY Program Service Revenue$9,748,979PYProgramServiceRevenueAmt
CY Program Service Revenue$8,039,323CYProgramServiceRevenueAmt
PY Investment Income$565,525PYInvestmentIncomeAmt
CY Investment Income$676,149CYInvestmentIncomeAmt
PY Other Revenue$541PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$10,841,004PYTotalRevenueAmt
CY Total Revenue$9,591,717CYTotalRevenueAmt
PY Grants And Similar Paid$1,281,542PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,917,390CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,832,151PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$2,131,540CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$294,912CYTotalFundraisingExpenseAmt
PY Other Expenses$8,420,658PYOtherExpensesAmt
CY Other Expenses$6,542,631CYOtherExpensesAmt
PY Total Expenses$11,534,351PYTotalExpensesAmt
CY Total Expenses$10,591,561CYTotalExpensesAmt
PY Revenues Less Expenses-$693,347PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$999,844CYRevenuesLessExpensesAmt
Total Assets BOY$17,407,019TotalAssetsBOYAmt
Total Assets EOY$17,393,639TotalAssetsEOYAmt
Total Liabilities BOY$4,708,685TotalLiabilitiesBOYAmt
Total Liabilities EOY$5,695,149TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$12,698,334NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$11,698,490NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionCARRA MEMBERS WORK TOGETHER TO CAPITALIZE ON OPPORTUNITIES, ACTIVELY DEVELOP A STRUCTURE AND A SCIENTIFIC AGENDA, AND COLLABORATE WITH POTENTIAL FUNDING SOURCES TO CREATE A RESEARCH ALLIANCE THAT BENEFITS OUR PATIENTS. CARRA CONDUCTS COLLABORATIVE RESEARCH TO PREVENT, TREAT AND CURE PEDIATRIC RHEUMATIC DISEASES.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$5,474,360ExpenseAmt
Revenue$6,165,974RevenueAmt
DescCARRA REGISTRY: CARRA AND THE DUKE CLINICAL RESEARCH INSTITUTE (DCRI) ARE COLLABORATING TO LAUNCH THE SECOND PHASE OF THE CARRA REGISTRY, A REGISTRY OF CHILDREN AND YOUNG ADULTS WITH PEDIATRIC-ONSET RHEUMATIC CONDITIONS SUCH AS JUVENILE IDIOPATHIC ARTHRITIS (JIA) AND SLE (LUPUS). THE REGISTRY IS A CORNERSTONE OF CARRA AND PROVIDES DISEASE AND TREATMENT DATA ON CHILDREN WITH A VARIETY OF RHEUMATIC DISEASES.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$115,436ExpenseAmt
Revenue$50,400RevenueAmt
DescANNUAL MEETING: PROVIDES MANY OPPORTUNITIES TO DEVELOP AND REFINE SCIENTIFIC APPROACHES TO QUESTIONS IN CLINICAL AND TRANSLATIONAL RESEARCH, WHILE NETWORKING WITH COLLEAGUES. THE MEETING OFFERS A UNIQUE, INTERACTIVE FORMAT WITH SESSIONS THAT ENCOURAGE ACTIVE PARTICIPATION, INCLUDING BRAINSTORMING AND CONTRIBUTING TO NEW RESEARCH INITIATIVES AND IDEAS.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$1,917,390ExpenseAmt
Grant$1,917,390GrantAmt
Revenue$1,865,194RevenueAmt
DescGRANT SUPPORT TO OTHERS: CARRA OFFERS MEMBERS VARIOUS FUNDING AND INTERNSHIP OPPORTUNITIES TO FURTHER RESEARCH THAT LEVERAGES THE CARRA NETWORK AND POSITIVELY IMPACTS THE PEDIATRIC RHEUMATOLOGY SCIENTIFIC COMMUNITY AND ADVANCES THE CARRA MISSION.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$1,560,739ExpenseAmt
DescOTHER PROGRAM SERVICES: INFORMATICS/PROGRAMMING, LEADERSHIP SERVICE ASSOCIATED WITH FURTHERING THE MISSION AND ACR MEETING EXPENSES.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$1,560,739TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses$9,067,925TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document9IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee0EmployeeCnt
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or StockholdersYes (1)MembersOrStockholdersInd
Election Of Board MembersYes (1)ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CARRA-STEPHEN WITTEBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone2027721028PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11050 CONNECTICUT AVENUE NW STE 500AddressLine1Txt
CityWASHINGTONCityNm
State AbbreviationDCStateAbbreviationCd
ZIP20036ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeInd
ROBERT COLBERT MD PHD
PAST PRESIDENT10.00Yes (X)Yes (X)$35,000$0$0
EMILY VON SCHEVEN MD MAS
PAST PRESIDENT10.00Yes (X)Yes (X)$33,723$0$0
STACY ARDOIN MD
PRESIDENT15.00Yes (X)Yes (X)$62,208$0$0
CHRISTY SANDBORG MD
CHAIR-SECRETARY3.00Yes (X)Yes (X)$0$0$0
JAY MEHTA MD MS
VICE PRESIDENT10.00Yes (X)Yes (X)$51,899$0$0
CAROL WALLACE MD
DIRECTOR1.00Yes (X)$0$0$0
HARRY SAAL PHD
DIRECTOR1.00Yes (X)$0$0$0
LEIGH WHITE JD
DIRECTOR1.00Yes (X)$0$0$0
DANIEL SOLOMON MD PHD
DIRECTOR1.00Yes (X)$0$0$0
JOHN SUNDY MD PHD
DIRECTOR1.00Yes (X)$0$0$0
ROBERT FUHLBRIGGE MD PHD
DIRECTOR1.00Yes (X)$0$0$0
AIMEE HERSH
FINANCE CHAIR10.00Yes (X)Yes (X)$21,546$0$0
RICK GOULBURN
DIRECTOR1.00Yes (X)$0$0$0
DIEGO MCDONALD
DIRECTOR1.00Yes (X)$0$0$0
MATHIEU NELESSEN
CEO40.00$310,597$0$66,512Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$514,973TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$66,512TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
DUKE CLINICAL RESEARCH INSTITUTE
2400 PRATT STDURHAMNC27705CARRA REGISTRY MANAGEMENT$3,987,239
BOSTON CHILDREN'S HOSPITAL
300 LONGWOOD AVEBOSTONMA02115INFORMATICS SUPPORT FOR REGISTRY$318,560
CINCINNATI CHILDREN'S HOSPITAL MEDICAL C
3333 BURNET AVECINCINNATIOH45229BIOSAMPLE MANAGEMENT$266,700
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
Government Grants$584,320GovernmentGrantsAmt
All Other Contributions$291,925AllOtherContributionsAmt
Total Contributions$876,245TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
RESEARCH STUDIES & COL541900$7,963,974$7,963,974
MEMBERSHIP DUES541900$75,349$75,349
FieldValueIRS element (for citing)
Total Program Service Revenue$8,039,323TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$676,149TotalRevenueColumnAmt
Exclusion$676,149ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$9,591,717TotalRevenueColumnAmt
Related Or Exempt Func Income$8,039,323RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$676,149ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,729,384TotalAmt
Program Services$1,729,384ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$23,176TotalAmt
Program Services$23,176ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$164,830TotalAmt
Program Services$164,830ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$204,376TotalAmt
Program Services$153,282ProgramServicesAmt
Management And General$51,094ManagementAndGeneralAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,570,438TotalAmt
Program Services$734,632ProgramServicesAmt
Management And General$639,981ManagementAndGeneralAmt
Fundraising$195,825FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$240,613TotalAmt
Program Services$112,556ProgramServicesAmt
Management And General$98,054ManagementAndGeneralAmt
Fundraising$30,003FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$116,113TotalAmt
Program Services$54,316ProgramServicesAmt
Management And General$47,318ManagementAndGeneralAmt
Fundraising$14,479FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$946TotalAmt
Management And General$946ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$25,608TotalAmt
Management And General$25,608ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$608,952TotalAmt
Program Services$517,762ProgramServicesAmt
Management And General$85,840ManagementAndGeneralAmt
Fundraising$5,350FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$7,507TotalAmt
Management And General$7,507ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$10,982TotalAmt
Program Services$7,590ProgramServicesAmt
Management And General$3,392ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$182,464TotalAmt
Program Services$13,854ProgramServicesAmt
Management And General$168,610ManagementAndGeneralAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$18,794TotalAmt
Program Services$190ProgramServicesAmt
Management And General$18,604ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$60,288TotalAmt
Program Services$9,710ProgramServicesAmt
Management And General$1,323ManagementAndGeneralAmt
Fundraising$49,255FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$24,490TotalAmt
Management And General$24,490ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$34,503TotalAmt
Management And General$34,503ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmt
REGISTRY OPERATIONS$4,634,750$4,634,750
WORK EFFORT$439,867$439,867
SUBSTUDIES RESEARCH PRO$386,626$386,626
MANUSCRIPTS$85,400$85,400

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$21,454TotalAmt
Management And General$21,454ManagementAndGeneralAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$10,591,561TotalAmt
Program Services$9,067,925ProgramServicesAmt
Management And General$1,228,724ManagementAndGeneralAmt
Fundraising$294,912FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$2,929,485BOYAmt
EOY$1,564,718EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$11,756,589BOYAmt
EOY$13,424,529EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$2,604,039BOYAmt
EOY$2,259,279EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$23,105BOYAmt
EOY$72,796EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$91,822BOYAmt
EOY$67,332EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$1,979BOYAmt
EOY$4,985EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$17,407,019BOYAmt
EOY$17,393,639EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,419,300BOYAmt
EOY$2,168,076EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$1,424,861BOYAmt
EOY$1,893,351EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$1,864,524BOYAmt
EOY$1,633,722EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$4,708,685BOYAmt
EOY$5,695,149EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$12,698,334BOYAmt
EOY$11,698,490EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$12,698,334BOYAmt
EOY$11,698,490EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$17,407,019BOYAmt
EOY$17,393,639EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$999,844ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,005,647CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$205,868CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$648,500CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$525,959CurrentTaxYearMinus1YearAmt
Current Tax Year$876,245CurrentTaxYearAmt
Total$5,262,219TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,005,647CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$205,868CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$648,500CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$525,959CurrentTaxYearMinus1YearAmt
Current Tax Year$876,245CurrentTaxYearAmt
Total$5,262,219TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$5,262,219PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$46,432CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,422CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$165,869CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$565,525CurrentTaxYearMinus1YearAmt
Current Tax Year$676,149CurrentTaxYearAmt
Total$1,455,397TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$65,475CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$29,753CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus1 Year$541CurrentTaxYearMinus1YearAmt
Total$95,769TotalAmt
FieldValueIRS element (for citing)
Total Support$6,813,385TotalSupportAmt
Gross Receipts Rltd Activities$36,481,854GrossReceiptsRltdActivitiesAmt
Public Support CY1700.77230PublicSupportCY170Pct
Public Support PY1700.91680PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationGRANT SUPPORT REFUNDS - 2020 AMOUNT: $ 48,875. 2021 AMOUNT: $ 29,346. REBATES/COMMISSIONS - 2020 AMOUNT: $ 900. 2021 AMOUNT: $ 407. IRS REFUNDS - 2020 AMOUNT: $ 15,700. MISCELLANEOUS - 2023 AMOUNT: $ 541.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$10,078,121TotalRevEtcAuditedFinclStmtAmt
Donated Services And Use Fclts$486,404DonatedServicesAndUseFcltsAmt
Revenue Not Reported$486,404RevenueNotReportedAmt
Revenue Subtotal$9,591,717RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$9,591,717TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$11,077,965TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$486,404DonatedServicesUseFcltsAmt
Expenses Not Reported$486,404ExpensesNotReportedAmt
Expenses Subtotal$10,591,561ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$10,591,561TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART X, LINE 2:FormAndLineReferenceDesc
ExplanationTHE ORGANIZATION IS EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF INTERNAL REVENUE CODE AND IS CLASSIFIED AS OTHER THAN A PRIVATE FOUNDATION. MANAGEMENT HAS REVIEWED ALL TAX POSITIONS RECOGNIZED IN PREVIOUSLY FILED TAX RETURNS AND THOSE EXPECTED TO BE TAKEN IN FUTURE TAX RETURNS. AS OF DECEMBER 31, 2024, THE ORGANIZATION HAD NO AMOUNTS RELATED TO UNRECOGNIZED INCOME TAX BENEFITS AND NO AMOUNTS RELATED TO ACCRUED INTEREST AND PENALTIES. THE ORGANIZATION DOES NOT ANTICIPATE ANY SIGNIFICANT CHANGES TO UNRECOGNIZED INCOME TAX BENEFITS OVER THE NEXT YEAR.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtOfficesOfficesCntType Of Activities ConductedTypeOfActivitiesConductedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
NORTH AMERICA1RESEARCH$141,830
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH$23,800
FieldValueIRS element (for citing)
Subtotal Offices1SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office1TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$165,630SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$165,630TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtNon Cash AssistanceNonCashAssistanceAmt
NORTH AMERICA (CANADA)RESEARCH$141,830WIRE$0
UNITED KINGDOMRESEARCH$23,000WIRE$0
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationCARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (13 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtValuation Method UsedValuationMethodUsedDescPurpose Of GrantPurposeOfGrantTxt
BOSTON CHILDREN'S HOSPITAL
300 LONGWOOD AVEBOSTONMA02115042774441501(C)(3)$49,999$0FMVAF SMALL GRANT
COHEN CHILDREN'S MEDICAL CENTER OF NEW YORK-FEINSTEIN
269-01 76TH AVEQUEENSNY11040112673595501(C)(3)$25,000$0FMVAF SMALL GRANT
WAKE FOREST UNIVERSITY
PO BOX 7868WINSTONSALEMNC27109223849199501(C)(3)$99,857$0FMVAF LARGE GRANT
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVDPHILADELPHIAPA19104231352166501(C)(3)$287,500$0FMVAF MENTORED CAREER DEVELOPMENT GRANT
CINCINNATI CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVECINCINNATIOH45229316026285501(C)(3)$545,993$0FMVAF MENTORED CAREER DEVELOPMENT, HEALTH EQUITY, ABC GRANT, LADA GRANT
UNIVERSITY OF MICHIGAN
19000 HUBBARD DRDEARBORNMI48126386006309501(C)(3)$98,000$0FMVAF SMALL & LARGE GRANT
UCSF BENIOFF CHILDREN'S HOSPITAL
1444 FLORIDA AVEMODESTOCA95350946036493501(C)(3)$287,500$0FMVAF MENTORED CAREER DEVELOPMENT
UNIVERSITY OF WASHINGTON
1501 NE BOAT STREETSEATTLEWA98195916001537501(C)(3)$48,804$0FMVAF ABC GRANT
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM RD ROOM 360EAST LANSINGMI48824386005984501(C)(3)$48,600$0FMVLADA GRANT
UNIVERSITY OF TEXAS-SOUTHWESTERN
5323 HARRY HINES BLVDDALLASTX75390756002868501(C)(3)$13,246$0FMVPRES RESEARCH GRANT
UNIVERSITY OF NORTH CAROLINA
104 AIRPORT DRIVE CB1270CHAPEL HILLNC27599566001393501(C)(3)$49,920$0FMVAF ABC GRANT
SEATTLE CHILDREN'S HOSPITAL
PO BOX 50020SEATTLEWA98145134148824501(C)(3)$124,965$0FMVAF BRIDGE GRANT
ARKANSAS CHILDREN'S HOSPITAL
13 CHILDRENS WAYLITTLE ROCKAR72202710694931501(C)(3)$50,000$0FMVAF SMALL GRANT
FieldValueIRS element (for citing)
Total501c3 Org13Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (4 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmtValuation Method UsedValuationMethodUsedDesc
PUBLICATION GRANTS2$15,871FMV
UTRECH TRAVEL GRANTS1$1,790FMV
VERITY GRANT2$2,000FMV
PRES TRAVEL GRANT2$3,515FMV

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationCARRA HAS A GRANTS REVIEW COMMITTEE THAT OVERSEES THE FUNDING OF GRANTS. GRANT RECIPIENTS MUST GO THROUGH A GRANT REVIEW PROCESS, WHICH INCLUDES A FINAL GRANT REPORT DUE WITHIN 30 DAYS OF THE END OF THE PROJECT PERIOD.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonMATHIEU NELESSENPersonNm
TitleCEOTitleTxt
Base Compensation Filing Org$310,597BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$0BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$0OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$16,878DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$49,634NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$377,109TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$0CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 6LINE 6 EXPLANATION - THE ORGANIZATION HAS MEMBERS.
FORM 990, PART VI, SECTION A, LINE 7ALINE 7A EXPLANATION - MEMBERS VOTE TO ELECT THE EXECUTIVE COMMITTEE
FORM 990, PART VI, SECTION B, LINE 11BLINE 11B EXPLANATION - PRIOR TO FILING, FORM 990 WILL BE REVIEWED BY MANAGEMENT AND THEN DISTRIBUTED TO THE FULL BOARD AND FINANCE COMMITTEE FOR REVIEW.
FORM 990, PART VI, SECTION B, LINE 12CTHE CONFLICT OF INTEREST POLICY IS MONITORED BY THE ETHICS COMMITTEE AND REVIEWED AND SIGNED AT THE BEGINNING OF EACH FISCAL YEAR BY ALL STAFF AND BOARD MEMBERS WITH SIGNIFICANT DECISION MAKING AUTHORITY. IT IS EACH SIGNATOR'S OBLIGATION TO DISCLOSE ANY POTENTIAL CONFLICT AS SOON AS IT IS KNOWN, OR REASONABLY SHOULD BE KNOWN.
FORM 990, PART VI, SECTION B, LINE 15THE BOARD OF DIRECTORS SHALL REVIEW ANY COMPENSATION PACKAGES AND SHALL APPROVE SUCH COMPENSATION ONLY AFTER DETERMINING THAT THE COMPENSATION IS REASONABLE. COMPENSATION IS DETERMINED USING INFORMATION ABOUT COMPENSATION PAID BY SIMILARLY SITUATED TAXABLE AND TAX-EXEMPT ORGANIZATIONS FOR SIMILAR SERVICES. SUCH INFORMATION MAY INCLUDE UP-TO-DATE COMPENSATION SURVEYS COMPILED BY INDEPENDENT FIRMS OR ACTUAL WRITTEN OFFERS FROM SIMILARLY SITUATED ORGANIZATIONS. APPROVALS OF ALL COMPENSATION MUST BE DOCUMENTED IN WRITING WITH THE DATES AND TERMS OF THE AGREEMENT, A RECORD OF ALL INDIVIDUALS WHO VOTED IN CONSIDERATION, ALONG WITH ALL INFORMATION AND THE INFORMATION'S SOURCE.
FORM 990, PART VI, SECTION C, LINE 19THE MOST RECENT FORM 990S (INCLUDING FINANCIAL INFORMATION), THE BYLAWS, ARTICLES OF INCORPORATION, FORM 1023 APPLICATION FOR EXEMPTION, AND CONFLICT OF INTEREST POLICY ARE PROVIDED TO THE PUBLIC UPON REQUEST