THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC (EIN 31-1405490)
- Tax period
- 2013-01-01 to 2013-12-31
- Filed
- 2014-05-09
- IRS object ID
- 201401299349302450
- Schema version
- 2013v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-05-09T15:03:27-05:00 | ReturnTs |
| Tax Period End | 2013-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 310800053 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CLARK SCHAEFER HACKETT & CO | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 10100 INNOVATION DR SUITE 400 | AddressLine1 |
| City | DAYTON | City |
| State | OH | State |
| ZIP Code | 45342 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 311405490 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE PARENT PROJECT FOR MUSCULAR | BusinessNameLine1 |
| Business Name Line2 | DYSTROPHY RESEARCH INC | BusinessNameLine2 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PARE | BusinessNameControlTxt |
| Phone | 5134240696 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE NO 9TH FL | AddressLine1 |
| City | HACKENSACK | City |
| State | NJ | State |
| ZIP Code | 07601 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | NANCY L GROSS | PersonNm |
| Person Title | CFO | PersonTitleTxt |
| Phone | 5134246035 | PhoneNum |
| Signature | 2014-04-30 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | ROBIN M DENNIS | PreparerPersonNm |
| PTIN | P00999809 | PTIN |
| Phone | 9372260070 | PhoneNum |
| Preparation | 2014-04-30 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | PATRICIA A FURLONG | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 401 HACKENSACK AVENUE 9TH FLOOR | AddressLine1 |
| City | HACKENSACK | City |
| State | NJ | State |
| ZIP Code | 07601 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $6,281,506 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PARENTPROJECTMD.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1997 | FormationYr |
| Legal Domicile State | OH | LegalDomicileStateCd |
| Activity Or Mission | PARENT PROJECT MUSCULAR DYSTROPHY'S MISSION IS TO IMPROVE THE TREATMENT, QUALITY OF LIFE AND LONG-TERM OUTLOOK FOR ALL INDIVIDUALS AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY (DUCHENNE) THROUGH RESEARCH, ADVOCACY, EDUCATION AND COMPASSION.OBJECTIVES- TO IDENTIFY, SUPPORT, AND SHARE PROMISING DUCHENNE-RELATED RESEARCH.- TO MAKE STATE-OF-THE-ART INFORMATION ABOUT TREATMENT AND CARE OPTIONS AVAILABLE TO ALL MEMBERS OF THE DUCHENNE COMMUNITY.- TO PURSUE STRATEGIES THAT WILL IMPACT THIS GENERATION OF YOUNG MEN AFFECTED BY DUCHENNE AS WELL AS FUTURE GENERATIONS.- TO ENCOURAGE POLICYMAKERS TO AFFORD THE SAME PRIORITY TO DUCHENNE AS THEY WOULD TO OTHER DISORDERS OF SIMILIAR INCIDENCE AND PREVALENCE.- TO CREATE A SUPPORTIVE COMMUNITY FOR PEOPLE AFFECTED BY DUCHENNE. | ActivityOrMissionDesc |
| Voting Members Governing Body | 15 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 15 | VotingMembersIndependentCnt |
| Total Employee | 18 | TotalEmployeeCnt |
| Total Volunteers | 538 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $6,099,492 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,904,768 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $52,208 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $65,455 | CYProgramServiceRevenueAmt |
| PY Investment Income | -$6,081 | PYInvestmentIncomeAmt |
| CY Investment Income | $2,836 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$365,921 | PYOtherRevenueAmt |
| CY Other Revenue | -$343,210 | CYOtherRevenueAmt |
| PY Total Revenue | $5,779,698 | PYTotalRevenueAmt |
| CY Total Revenue | $5,629,849 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $2,779,190 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,227,380 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,131,278 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,347,166 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $724,570 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,311,660 | PYOtherExpensesAmt |
| CY Other Expenses | $2,511,769 | CYOtherExpensesAmt |
| PY Total Expenses | $6,222,128 | PYTotalExpensesAmt |
| CY Total Expenses | $6,086,315 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$442,430 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$456,466 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $2,885,159 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,962,539 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $479,253 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,013,099 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $2,405,906 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,949,440 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE PARENT PROJECT FOR MUSCULAR DYSTROPHY'S MISSION IS TO END DUCHENNE MUSCULAR DSTROPHY. WE ACCELERATE RESEARCH, RAISE OUR VOICES IN WASHINGTON, DEMAND OPTIMAL CARE FOR ALL YOUNG MEN, AND EDUCATE THE GLOBAL COMMUNITY. | MissionDesc |
| Significant New Program Srvc | Yes (1) | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $3,295,024 | ExpenseAmt |
| Grant | $2,095,084 | GrantAmt |
| Desc | SUPPORT FOR RESEARCH TO ACCELERATE TREATMENTS AND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY INCLUDING STUDIES IN THE FOLLOWING AREAS: RECOMBINANT BIGLYCAN, COMBINED THERAPEUTICS, CEDARS-SINAI CLINICAL TRIALS, FAILED REGENERATION IN DMD, FOLLISTATIN GENE THERAPY, COMBINED THERAPEUTICS, EXONS 45-55 SKIPPING, OUTCOMES FOR TRIALS, A CLINICAL DEVELOPMENT SUPERHIGHWAY, AAA CARDIOMYOPATHY TREATMENT, TAMOXIFEN, AND IPS CELLS AND THERAPEUTIC APPLICATIONS, TO NAME A FEW. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,223,106 | ExpenseAmt |
| Grant | $132,296 | GrantAmt |
| Revenue | $65,455 | RevenueAmt |
| Desc | EDUCATIONAL INITIATIVES INCLUDING ONLINE RESOURCES AND TWO CONFERENCES HELD IN SAN DIEGO AND BALTIMORE THAT BROUGHT SCIENTISTS AND FAMILIES IN THE DUCHENNE COMMUNITY TOGETHER TO DISCUSS AND EXPEDITE TREATMENTS, PATIENT CARE, AND RESEARCH FOR A CURE FOR THE DISEASE. OTHER EDUCATIONAL EFFORTS WERE PROMOTED THROUGH A NEW INITIATIVE CALLED TRANSFORMING DUCHENNE CARE, F.A.C.E.S., A NEW INITIATIVE CALLED DECODE DUCHENNE, AND AN INITIATIVE TO ORGANIZE THE WORLDWIDE COMMUNITY IN A PROGRAM CALLED DUCHNNE CONNECT. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $320,912 | ExpenseAmt |
| Desc | ADVOCACY IS PROMOTED ON AN ANNUAL BASIS THROUGH A LEGISLATIVE CONFERENCE HELD IN WASHINGTON, D.C. UNDER THE LEADERSHIP OF A CONSULTING FIRM BASED IN THE AREA. PARENTS TAKE A HANDS-ON ROLE IN COMMUNICATING WITH LEGISLATORS DURING THIS PROCESS, FOR THE PURPOSE OF PROMOTING AWARENESS AND ENCOURAGING GOVERNMENT FUNDING FOR RESEARCH AND PATIENT CARE. IN ADDITION, COMMUNICATIONS ARE ROUTINELY HELD WITH NIH, THE FDA, AND THE CDC. DURING 2013, A WHITE PAPER WAS DRAFTED TO EXPLAIN THE MISSION AND A SUGGESTED APPROACH TO PROMOTE THE TREATMENT AND CURE FOR DUCHNNE MUSCULAR DYSTROPHY | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $4,839,042 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | Yes (1) | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 66 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 18 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 15 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 15 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | Yes (1) | DelegationOfMgmtDutiesInd |
| Change To Org Documents | Yes (1) | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | 0 | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NANCY L GROSS CPA | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 5134246035 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1208 SUNSET STREET | AddressLine1 |
| City | MIDDLETOWN | City |
| State | OH | State |
| ZIP Code | 45042 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| NEIL BRANDOM | |||||||
| BOARD MEMBER | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| CATHERINE J COLLINS | |||||||
| BOARD MEMBER | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| ELLEN WAGNER | |||||||
| BOARD MEMBER | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| ANESSA FEHSENFELD | |||||||
| BOARD MEMBER | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| DANIEL P GAROFALO | |||||||
| BOARD SECRETARY | 10.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| ROBERT GETLER | |||||||
| BOARD MEMBER | 10.00 | Yes (X) | $0 | $0 | $0 | ||
| LANCE HESTER | |||||||
| BOARD MEMBER | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN HIATT | |||||||
| BOARD MEMBER | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| MARTIN KARLIN | |||||||
| TRUSTEE | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN KILLIAN | |||||||
| BOARD TREASURER | 3.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| ROBERT MCDONALD MD | |||||||
| BOARD CHAIRMAN | 10.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| HEINRICH MEERMANN | |||||||
| TRUSTEE | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| ROBERT NUTT | |||||||
| TRUSTEE | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES POYSKY | |||||||
| TRUSTEE | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| JASBIR SEEHRA | |||||||
| TRUSTEE | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| DOUGLAS BIGGAR | |||||||
| TRUSTEE | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| PATRICIA FURLONG | |||||||
| FOUNDING PRESIDENT/CEO | 65.00 | $171,081 | $0 | $12,758 | Yes (X) | ||
| KIMBERLY GALBERAITH | |||||||
| COO | 50.00 | $147,132 | $0 | $19,062 | Yes (X) | ||
| NANCY GROSS | |||||||
| CFO | 32.00 | $83,820 | $0 | $0 | Yes (X) | ||
| SHARON HESTERLEE | |||||||
| VP OF RESEARCH | 40.00 | $153,565 | $0 | $7,139 | Yes (X) | ||
| HOLLY PEAY | |||||||
| VP OF OUTREACH AND EDUCATION | 40.00 | $109,340 | $0 | $3,280 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $664,938 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $42,239 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 4 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1 | CityContractorAddress/USAddress/City | StateContractorAddress/USAddress/State | ZIP CodeContractorAddress/USAddress/ZIPCode | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| UNIVERSITY OF PENNSLYVANIA | |||||
| 415 CURIE BOULEVARD | PHILADELPHIA | PA | 19104 | RESEARCH | $527,281 |
| FAEGREBD CONSULTING | |||||
| PO BOX 664091 | INDIANAPOLIS | IN | 46266 | CONSULTING | $306,697 |
| MARRIOTT BUSINESS SERVICES | |||||
| PO BOX 402745 | ATLANTA | GA | 30384 | TRAVEL | $235,394 |
| MARK KRUEGER & ASSOCIATES INC | |||||
| 521 FIFTH AVE 27TH FLOOR | NEW YORK | NY | 10175 | CONSULTING | $141,325 |
| KATHI KINNETT | |||||
| 401 HACKENSACK AVE 9TH FLOOR | HACKENSACK | NJ | 07601 | CONSULTING | $136,357 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 9 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $1,613,329 | FundraisingAmt |
| Government Grants | $146,051 | GovernmentGrantsAmt |
| All Other Contributions | $4,145,388 | AllOtherContributionsAmt |
| Noncash Contributions | $450,002 | NoncashContributionsAmt |
| Total Contributions | $5,904,768 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE FEES | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $65,455 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $65,455 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $65,455 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,984 | TotalRevenueColumnAmt |
| Exclusion | $1,984 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $309,299 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $307,858 | SecuritiesAmt |
| Other | $589 | OtherAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,441 | SecuritiesAmt |
| Other | -$589 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $852 | TotalRevenueColumnAmt |
| Exclusion | $852 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,613,329 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $343,210 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$343,210 | TotalRevenueColumnAmt |
| Exclusion | -$343,210 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,629,849 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $65,455 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$340,374 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,016,261 | TotalAmt |
| Program Services | $2,016,261 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,839 | TotalAmt |
| Program Services | $4,839 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $206,280 | TotalAmt |
| Program Services | $206,280 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $433,853 | TotalAmt |
| Program Services | $303,072 | ProgramServicesAmt |
| Management And General | $130,781 | ManagementAndGeneralAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $790,130 | TotalAmt |
| Program Services | $647,098 | ProgramServicesAmt |
| Fundraising | $143,032 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $22,855 | TotalAmt |
| Management And General | $22,855 | ManagementAndGeneralAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100,328 | TotalAmt |
| Program Services | $75,966 | ProgramServicesAmt |
| Management And General | $13,172 | ManagementAndGeneralAmt |
| Fundraising | $11,190 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,660 | TotalAmt |
| Program Services | $3,605 | ProgramServicesAmt |
| Management And General | $3,055 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $113,425 | TotalAmt |
| Program Services | $1,232 | ProgramServicesAmt |
| Management And General | $93,953 | ManagementAndGeneralAmt |
| Fundraising | $18,240 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $421,371 | TotalAmt |
| Program Services | $387,323 | ProgramServicesAmt |
| Management And General | $10,000 | ManagementAndGeneralAmt |
| Fundraising | $24,048 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $61,695 | TotalAmt |
| Program Services | $15,204 | ProgramServicesAmt |
| Management And General | $33,967 | ManagementAndGeneralAmt |
| Fundraising | $12,524 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,188 | TotalAmt |
| Program Services | $6,929 | ProgramServicesAmt |
| Management And General | $19,259 | ManagementAndGeneralAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $122,458 | TotalAmt |
| Program Services | $97,892 | ProgramServicesAmt |
| Management And General | $10,167 | ManagementAndGeneralAmt |
| Fundraising | $14,399 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $371,599 | TotalAmt |
| Program Services | $284,945 | ProgramServicesAmt |
| Management And General | $40,269 | ManagementAndGeneralAmt |
| Fundraising | $46,385 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $387,750 | TotalAmt |
| Program Services | $387,750 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $477 | TotalAmt |
| Management And General | $477 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,716 | TotalAmt |
| Program Services | $5,444 | ProgramServicesAmt |
| Management And General | $5,136 | ManagementAndGeneralAmt |
| Fundraising | $5,136 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $82,659 | TotalAmt |
| Program Services | $6,300 | ProgramServicesAmt |
| Management And General | $76,359 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| OUTSIDE SERVICES | $318,438 | $278,406 | $6,115 | $33,917 |
| FEES & PERMITS | $182,015 | $16,471 | $3,866 | $161,678 |
| BANK CHARGES | $165,710 | $11,762 | $153,948 | |
| MEALS & ENTERTAINMENT | $78,739 | $41,525 | $9,318 | $27,896 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $156,869 | TotalAmt |
| Program Services | $52,500 | ProgramServicesAmt |
| Management And General | $32,192 | ManagementAndGeneralAmt |
| Fundraising | $72,177 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,086,315 | TotalAmt |
| Program Services | $4,839,042 | ProgramServicesAmt |
| Management And General | $522,703 | ManagementAndGeneralAmt |
| Fundraising | $724,570 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $312,217 | BOYAmt |
| EOY | $80,144 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,612,152 | BOYAmt |
| EOY | $1,955,080 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $398,061 | BOYAmt |
| EOY | $282,817 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $34,523 | BOYAmt |
| EOY | $30,333 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $105,615 | BOYAmt |
| EOY | $458,316 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $93,140 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $69,404 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $31,534 | BOYAmt |
| EOY | $23,736 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $391,057 | BOYAmt |
| EOY | $132,113 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,885,159 | BOYAmt |
| EOY | $2,962,539 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $146,856 | BOYAmt |
| EOY | $158,671 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $332,397 | BOYAmt |
| EOY | $854,428 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $479,253 | BOYAmt |
| EOY | $1,013,099 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,168,421 | BOYAmt |
| EOY | $1,517,808 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,237,485 | BOYAmt |
| EOY | $431,632 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,405,906 | BOYAmt |
| EOY | $1,949,440 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,885,159 | BOYAmt |
| EOY | $2,962,539 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$456,466 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $4,538,702 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,093,016 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,588,002 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,099,492 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,904,768 | CurrentTaxYearAmt |
| Total | $30,223,980 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $4,538,702 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $7,093,016 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,588,002 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $6,099,492 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,904,768 | CurrentTaxYearAmt |
| Total | $30,223,980 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $6,028,752 | SubstantialContributorsTotAmt |
| Public Support Total170 | $24,195,228 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $156 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,773 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $9,589 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,310 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,984 | CurrentTaxYearAmt |
| Total | $17,812 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $30,241,792 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $317,014 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.80010 | PublicSupportCY170Pct |
| Public Support PY170 | 0.81870 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $320,912 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $320,912 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $5,766,348 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,087,260 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $454,363 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $113,591 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $379,296 | CurrentYearMinus3Amt |
| Current Year Minus2 | $461,002 | CurrentYearMinus2Amt |
| Current Year Minus1 | $461,106 | CurrentYearMinus1Amt |
| Current Year | $454,363 | CurrentYearAmt |
| Total | $1,755,767 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,633,651 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $190,870 | CurrentYearMinus3Amt |
| Current Year Minus2 | $193,286 | CurrentYearMinus2Amt |
| Current Year Minus1 | $166,266 | CurrentYearMinus1Amt |
| Current Year | $320,912 | CurrentYearAmt |
| Total | $871,334 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $94,824 | CurrentYearMinus3Amt |
| Current Year Minus2 | $115,251 | CurrentYearMinus2Amt |
| Current Year Minus1 | $115,277 | CurrentYearMinus1Amt |
| Current Year | $113,591 | CurrentYearAmt |
| Total | $438,943 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $658,415 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $4,480 | OtherCostOrOtherBasisAmt |
| Depreciation | $369 | DepreciationAmt |
| Book Value | $4,111 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $58,338 | OtherCostOrOtherBasisAmt |
| Depreciation | $44,052 | DepreciationAmt |
| Book Value | $14,286 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $30,322 | OtherCostOrOtherBasisAmt |
| Depreciation | $24,983 | DepreciationAmt |
| Book Value | $5,339 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $23,736 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $5,631,383 | TotalRevEtcAuditedFinclStmtAmt |
| Revenue Not Reported | $0 | RevenueNotReportedAmt |
| Revenue Subtotal | $5,631,383 | RevenueSubtotalAmt |
| Other Revenues Not Included | -$1,534 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | -$1,534 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,629,849 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $6,087,849 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $1,534 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $1,534 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,086,315 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,086,315 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAX UNDER THE PROVISIONS OF INTERNAL REVENUE CODE SECTION 501(C)(3). THE ORGANIZATION DOES NOT CURRENTLY CONDUCT ANY ACTIVITIES, WHICH WOULD RESULT IN THE IMPOSITION OF THE UNRELATED BUSINESS INCOME TAX AND BELIEVES IT HAS NOT EARNED ANY UNRELATED BUSINESS INCOME AND HAS ESTIMATED NO TAX IS DUE BASED ON CURRENT FACTS AND CIRCUMSTANCES. THUS, THE ORGANIZATION HAS DETERMINED THAT AN ACCRUAL FOR TAXES IS NOT NEEDED FOR THE YEAR ENDED DECEMBER 31, 2013. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | LOSS ON DISPOSITION OF FIXED ASSETS = (589) IN-KIND DONATIONS OF PROFESSIONAL FEES = (945) |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | LOSS ON DISPOSITION OF FIXED ASSETS = 589 IN-KIND DONATIONS OF PROFESSIONAL FEES = 945 |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| EUROPE | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $172,947 |
| NORTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | $33,333 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $206,280 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $206,280 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (5 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|
| EUROPE | DEVELOPMENT OF MEMRI | $32,397 | WIRE TRANSFER | FMV - US DOLLARS |
| EUROPE | TACT MEETING SUPPORT | $27,000 | WIRE TRANSFER | FMV - US DOLLARS |
| NORTH AMERICA | EXONS 45-55 SKIPPING | $33,333 | WIRE TRANSFER | FMV - US DOLLARS |
| EUROPE | TAMOXIFEN PROJECT | $82,050 | WIRE TRANSFER | FMV - US DOLLARS |
| EUROPE | DMD LIASON POST | $31,500 | WIRE TRANSFER | FMV - US DOLLARS |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 5 | Total501c3OrgCnt |
| Transfer To Foreign Corp | Yes (1) | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | A REPORT OF EXPENDITURES AND MEDICAL RESULTS OF THE GRANT ACTIVITY IS REQUIRED FROM THE GRANTEE. |
| PART I, LINE 3: | ACCRUAL METHOD |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | DREAM AUCTION | NameOfEvent1Amt |
| Gross Receipts Event1 | $342,007 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $342,007 | CharitableContriEvent1Amt |
| Other Direct Expenses Event1 | $92,163 | OtherDirectExpensesEvent1Amt |
| Name Of Event2 | COACH TO CURE MD | NameOfEvent2Amt |
| Gross Receipts Event2 | $248,883 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $248,883 | CharitableContriEvent2Amt |
| Other Direct Expenses Event2 | $20,589 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 63 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $1,022,439 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $1,022,439 | CharitableContriOtherEventsAmt |
| Oth Direct Expnss Other Events | $230,458 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,613,329 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,613,329 | CharitableContributionsTotAmt |
| Oth Direct Expnss Total Events | $343,210 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $343,210 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$343,210 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (22 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Valuation Method UsedValuationMethodUsedDesc | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2 |
|---|---|---|---|---|---|---|---|---|---|
| CEDARS-SINAI MEDICAL CENTER | |||||||||
| 8700 BEVERLY BOULEVARD | LOS ANGELES | CA | 90048 | 951644600 | 501(C)(3) | $94,203 | N/A | CEDARS-SINAI CLINICAL TRIALS | |
| CHILDREN'S RESEARCH INSTITUTE | |||||||||
| 111 MICHIGAN AVENUE | WASHINGTON | DC | 20010 | 521654453 | 501(C)(3) | $47,770 | N/A | WEISMAN FELLOWSHIP | |
| CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER | |||||||||
| 3333 BURNET AVENUE | CINCINNATI | OH | 45229 | 310833936 | 501(C)(3) | $46,344 | N/A | AAA CARDIOMYOPATHY TREATMENT, BIOLOGICAL SAMPLES | |
| LEE SWEENEY CONSULTING LLC | |||||||||
| 2100 LOCUST STREET | PHILADELPHIA | PA | 19103 | 262195280 | $132,000 | N/A | PROJECT CATALYST | ||
| MARK KREUGER & ASSOCIATES INC | |||||||||
| 521 FIFTH AVENUE 27TH FLOOR | NEW YORK | NY | 10175 | 133866890 | $127,457 | N/A | FDA COMMISSIONED PAPER | ||
| RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL | |||||||||
| 700 CHILDRENS DRIVE | COLUMBUS | OH | 43205 | 316056230 | 501(C)(3) | $96,054 | N/A | NCH/WELLSTONE/OSU MYOLOGY, CARDIAC INITIATIVE, FOLLASTINE GENE THERAPY | |
| TIVORSAN PHARMACEUTICALS INC | |||||||||
| 3 DAVOL SQUARE | PROVIDENCE | RI | 02903 | 770702642 | $75,000 | N/A | RECOMBINANT BIGLYCAN | ||
| UNIVERSITY OF WASHINGTON | |||||||||
| 1705 NE PACIFIC STREET H-418 HSB | SEATTLE | WA | 09195 | 916001537 | 501(C)(3) | $55,528 | N/A | CARDIAC USE OF SILDENAFIL | BOX 357290 |
| UNIVERSITY OF PENNSYLVANIA | |||||||||
| 3900 DELANCEY STREET | PHILADELPHIA | PA | 19104 | 231352685 | 501(C)(3) | $599,437 | N/A | SLEEPER DOG COLONY, UTROPHIN PROMOTER HTS, NEW DIRECTION CONFERENCE, COMBINED THERAPEUTICS, FAILED REGENERATION IN MD | |
| UNIVERSITY OF CALIFORNIA | |||||||||
| 405 HILGARD AVE 1125 MURPHY HALL | LOS ANGELES | CA | 90095 | 956006143 | 501(C)(3) | $144,193 | N/A | RNA-SEQ ANALYSIS - FIBROSIS | |
| UNIVERSITY OF CALIFORNIA DAVIS | |||||||||
| PO BOX 989062 | WEST SACRAMENTO | CA | 95798 | 946036494 | 501(C)(3) | $119,579 | N/A | OUTCOMES FOR TRIALS | |
| UNIVERSITY OF FLORIDA | |||||||||
| 123 GRINTER HALL | GAINESVILLE | FL | 32611 | 596002052 | 501(C)(3) | $48,037 | N/A | MAGNETIC RESONANCE IMAGING | |
| UNIVERSITY OF MISSOURI | |||||||||
| PO BOX 807012 | KANSAS CITY | MO | 64180 | 436003859 | 501(C)(3) | $140,213 | N/A | SERCA2 GENE THERAPY | |
| DART THERAPEUTICS INC | |||||||||
| ONE BROADWAY | CAMBRIDGE | MA | 02142 | 462264157 | $75,000 | N/A | CLINICAL DEVELOPMENT | ||
| HUGO W MOSER RESEARCH INSTITUTE | |||||||||
| 707 N BROADWAY | BALTIMORE | MD | 21205 | 521524967 | 501(C)(3) | $17,500 | N/A | ENHANCING TRANSPLANT ENVIRONMENT | |
| UNIVERSITY OF ARIZONA | |||||||||
| 1303 E UNIVERSITY BLVD | TUCSON | AZ | 85719 | 742652689 | 501(C)(3) | $23,305 | N/A | EUREKA CERTIFICATE COURSE | |
| UNIVERSITY OF ROCHESTER | |||||||||
| 601 ELMWOOD AVE | ROCHESTER | NY | 14642 | 160743209 | 501(C)(3) | $26,119 | N/A | CORTICOSTERIODS IN DMD | |
| REVERAGEN BIOPHARMA INC | |||||||||
| 9700 GREAT SENECA HIGHWAY | ROCKVILLE | MD | 20850 | 263808415 | $8,332 | N/A | MICRO RNAS | ||
| UNIVERSITY OF NEVEDA RENO | |||||||||
| 1664 N VIRGINIA AVE | RENO | NV | 89557 | 886000024 | 501(C)(3) | $12,500 | N/A | LAMININ-III PROTEIN THERAPY | |
| UNIVERSITY OF MINNESOTA | |||||||||
| NW 5957 PO BOX 1450 | MINNEAPOLIS | MN | 55485 | 416007513 | 501(C)(3) | $88,000 | N/A | IPS CELLS AND THERAPEUTIC APPS | |
| HALO THERAPEUTICS LLC | |||||||||
| 275 GROVE STREET | NEWTON | MA | 02466 | 275336394 | $45,833 | N/A | PHASE II STUDY HT-100 | ||
| UNIVERSITY OF IOWA | |||||||||
| B5 JESSUP HALL | IOWA CITY | IA | 52242 | 426004813 | 501(C)(3) | -$7,243 | N/A | NATIONAL TASK FORCE | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 15 | Total501c3OrgCnt |
| Total Other Org | 7 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION HAS A STANDARDIZED GRANT TEMPLATE THAT REQUIRES REGULAR PERIODIC REPORTING OF THE USE OF GRANT FUNDS AND A PROGRESS REPORT OF THE GRANT ACTIVITIES. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| PATRICIA FURLONG | ||||||||||||||
| FOUNDING PRESIDENT/CEO | $168,000 | $0 | $3,081 | $0 | $0 | $0 | $5,137 | $0 | $7,621 | $0 | $183,839 | $0 | $0 | $0 |
| KIMBERLY GALBERAITH | ||||||||||||||
| COO | $144,200 | $0 | $2,932 | $0 | $0 | $0 | $4,423 | $0 | $14,639 | $0 | $166,194 | $0 | $0 | $0 |
| SHARON HESTERLEE | ||||||||||||||
| VP OF RESEARCH | $150,000 | $0 | $3,565 | $0 | $0 | $0 | $4,614 | $0 | $2,525 | $0 | $160,704 | $0 | $0 | $0 |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp
Name Of Interested NameOfInterested
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | GROSS & COMPANY INC CPA'S AND BUSINESS ADVISORS | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Relationship Description | CFO, NANCY GROSS, OWNS COMPANY | RelationshipDescriptionTxt |
| Transaction | $83,820 | TransactionAmt |
| Transaction | NANCY L. GROSS, CPA OWNS GROSS AND COMPANY, LICENSED BUSINESS PROFESSIONALS. HER COMPANY BILLS THE ORGANIZATION FOR TIME SHE SPENDS IN HER CAPACITY AS ACTING CHIEF FINANCIAL OFFICER. | TransactionDesc |
| Sharing Of Revenues | 0 | SharingOfRevenuesInd |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 5 | ContributionCnt |
| Noncash Contributions Rpt F990 | $307,857 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV AT DATE OF GIFT | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | FUNDRAISING S | Desc |
| Contribution | 623 | ContributionCnt |
| Noncash Contributions Rpt F990 | $142,145 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION USES CARS FOR CAUSES, ANOTHER TAX-EXEMPT ORGANIZATION, WHEN A VEHICLE IS DONATED. THE DONOR DONATES THE VEHICLE TO CARS FOR CAUSES AND THE PROCEEDS OF THE SALE ARE FORWARDED TO THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH, INC. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (9 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART III, LINE 2 | DURING THE YEAR, THE ORGANIZATION BEGAN AN INITIATIVE CALLED TRANSFORMING DUCHENNE CARE TO PROMOTE AND ESTABLISH CONSISTENT CARE STANDARDS. IN ADDITION, WE ESTABLISHED A SUPERHIGHWAY PROJECT TO EXPEDITE THE DEVELOPMENT, TESTING, AND AVAILABILITY OF DRUGS FOR THE TREATMENT OF THE DISEASE. FINALLY, WE BEGAN A PROJECT CALLED DECODE DUCHENNE THAT PURSUES THE DEVELOPMENT OF A DATABASE OF CLINICAL CHARACTERISTICS OF DUCHENNE VICTIMS. |
| FORM 990, PART VI, SECTION A, LINE 3 | THE ORGANIZATION HAS HIRED AN INDEPENDENT CONTRACTOR TO ACT AS THEIR CFO. |
| FORM 990, PART VI, SECTION A, LINE 4 | THE BOARD UPDATED THE BY-LAWS DURING 2014. |
| FORM 990, PART VI, SECTION A, LINE 8B | THE ORGANIZATION DID NOT DOCUMENT ALL OF ITS COMMITTEE MEETINGS |
| FORM 990, PART VI, SECTION B, LINE 11 | THE 990 IS COMPLETED BY AN INDEPENDENT CPA FIRM AND A DRAFT IS PRESENTED TO THE BOARD MEMBERS FOR REVIEW. THE BOARD WILL THEN VOTE TO APPROVE THE 990 BEFORE IT IS SIGNED AND MAILED. IF THERE ARE ANY COMMENTS OR QUESTIONS THE ISSUE IS RESOLVED PRIOR TO FILING THE 990 WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE SECRETARY IS RESPONSIBLE TO ENSURE EACH BOARD MEMBER HAS COMPLETED THEIR WRITTEN STATEMENT ANNUALLY. |
| FORM 990, PART VI, SECTION B, LINE 15 | AN INDEPENDENT COMPANY WAS RETAINED TO CONDUCT AN EXECUTIVE COMPENSATION REASONABLENESS AUDIT, AS OUTLINED BY SECTION 4958 OF THE INTERNAL REVENUE CODE AND TREASURY REGULATION SECTION 53.4958-6, FOR THE EXECUTIVE DIRECTOR AND CHIEF OPERATING OFFICER. THEY DETERMINED THAT THE COMPENSATION LEVELS COMPLIED WITH INDUSTRY STANDARDS. THE CONSIDERATION AND APPROVAL OF THE BUDGET WAS SUBJECT TO THE RESULTS OF THE AUDIT. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION PREPARES AN ANNUAL REPORT WHICH INCLUDES THIS INFORMATION. THE REPORT IS MADE AVAILABLE TO THE PUBLIC UPON REQUEST. |
| FORM 990, PART XI, LINE 2C | THE PROCESS HAS NOT CHANGED FROM PRIOR YEAR. |