ALS THERAPY DEVELOPMENT FOUNDATION INC: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- ALS THERAPY DEVELOPMENT FOUNDATION INC (EIN 04-3462719)
- Tax period
- 2013-01-01 to 2013-12-31
- Filed
- 2014-05-14
- IRS object ID
- 201411349349303896
- Schema version
- 2013v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule G
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-05-14T12:37:07-05:00 | ReturnTs |
| Tax Period End | 2013-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 042571780 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ALEXANDER ARONSON FINNING & CO PC | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 21 EAST MAIN STREET | AddressLine1 |
| City | WESTBORO | City |
| State | MA | State |
| ZIP Code | 01581 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 043462719 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ALS THERAPY DEVELOPMENT FOUNDATION INC | BusinessNameLine1 |
| Business Name Line2 | D/B/A ALS THERAPY DEVELOPMENT INSTITUTE | BusinessNameLine2 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | ALST | BusinessNameControlTxt |
| Phone | 6174417200 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 300 TECHNOLOGY SQUARE NO 400 | AddressLine1 |
| City | CAMBRIDGE | City |
| State | MA | State |
| ZIP Code | 02139 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | STEVE PERRIN | PersonNm |
| Person Title | CEO/CSO/PRESIDENT | PersonTitleTxt |
| Phone | 6174417200 | PhoneNum |
| Signature | 2014-05-12 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | JEFFREY CICOLINI CPA | PreparerPersonNm |
| PTIN | P00837468 | PTIN |
| Phone | 5083669100 | PhoneNum |
| Preparation | 2014-05-12 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | STEVE PERRIN | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 300 TECHNOLOGY SQUARE NO 400 | AddressLine1 |
| City | CAMBRIDGE | City |
| State | MA | State |
| ZIP Code | 02139 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $9,354,290 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.ALS.NET | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1999 | FormationYr |
| Legal Domicile State | MA | LegalDomicileStateCd |
| Activity Or Mission | WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED. | ActivityOrMissionDesc |
| Voting Members Governing Body | 16 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 15 | VotingMembersIndependentCnt |
| Total Employee | 62 | TotalEmployeeCnt |
| Total Volunteers | 656 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $11,018,319 | PYContributionsGrantsAmt |
| CY Contributions Grants | $8,115,487 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $273,960 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $408,977 | CYProgramServiceRevenueAmt |
| PY Investment Income | $70,907 | PYInvestmentIncomeAmt |
| CY Investment Income | $5,924 | CYInvestmentIncomeAmt |
| PY Other Revenue | $205,876 | PYOtherRevenueAmt |
| CY Other Revenue | $270,463 | CYOtherRevenueAmt |
| PY Total Revenue | $11,569,062 | PYTotalRevenueAmt |
| CY Total Revenue | $8,800,851 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $0 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $0 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $4,426,612 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $4,486,201 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $761,813 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $5,279,615 | PYOtherExpensesAmt |
| CY Other Expenses | $5,046,673 | CYOtherExpensesAmt |
| PY Total Expenses | $9,706,227 | PYTotalExpensesAmt |
| CY Total Expenses | $9,532,874 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,862,835 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$732,023 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $7,256,370 | TotalAssetsBOYAmt |
| Total Assets EOY | $6,746,369 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $647,494 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $869,516 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $6,608,876 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $5,876,853 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $8,294,499 | ExpenseAmt |
| Revenue | $408,977 | RevenueAmt |
| Desc | THE ALS THERAPY DEVELOPMENT INSTITUTE RECEIVED FDA APPROVAL FOR PHASE IIA TESTING OF GILENYA IN ALS PATIENTS. THE INSTITUTE CREATED A NEW TRANSGENIC MOUSE MODEL BASED A KNOWN MUTATION IN ALS PATIENTS CALLED TAFF15. THE INSTITUTE ALSO DEMONSTRATED THAT EXPRESSING THE MUTANT TAFF15 GENE IN MICE IS EMBRYONIC LETHAL. ENTERED INTO COLLABORATIVE RESEARCH AGREEMENTS TO DEVELOP ANTIBODIES TARGETING MIS-FOLDED SOD1 AND TO DEVELOP SMALL MOLECULE DE STABILIZING MIS FODED SOD1. ALSO ENTERED INTO CRO AGREEMENTS FOR MEDICINAL CHEMISTRY TO IMPROVE THE SOLUBILITY OF SALUBRINAL, A SMALL MOLECULE TARGETING EIF2A AND PROTEIN SYNTHESIS, AND FOR MEDICINAL CHEMISTRY TO CREATE NEW BENZODIAZEPINONE DERIVATIVES THAT TARGET THE ASK1 KINASE AND PROTEIN STRESS PATHWAYS. THE INSTITUTE ALSO RECEIVED IRB APPROVAL AND STARTED PATIENT ENROLLMENT FOR THE GILENYA TRIAL IN FOUR ALS CLINICS. | Desc |
| Total Program Service Expenses | $8,294,499 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | 0 | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | 0 | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | Yes (1) | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 44 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 62 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 16 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 15 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (1) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | INSOURCE SERVICES INC | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 7812351490 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 148 LINDEN STREET | AddressLine1 |
| City | WELLESLEY | City |
| State | MA | State |
| ZIP Code | 02482 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionAGrp (22 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd |
|---|---|---|---|---|---|---|---|---|
| DR STANLEY H APPEL MD | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| ALEXANDER CAPPELLO | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| SPIROS JAMAS SCD | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| KEITH MELANSON | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| LESLIE MICHELSON JD | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| JOHN B HEYWOOD PHD SCD | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| AUGIE NIETO | ||||||||
| CHAIRMAN AND BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| ROB RODIN | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| STEVEN PERRIN PHD | ||||||||
| CEO/CSO/PRES., VICE CHAIRMAN | 40.00 | Yes (X) | $365,317 | $0 | $18,799 | Yes (X) | ||
| JAMES ALLEN HEYWOOD | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| THEODORE REICH JD CPA | ||||||||
| TREASURER AND BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| JOHN SUTHERLAND | ||||||||
| SECRETARY AND BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| STEVEN FOWLER | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| ROBERT SEPUCHA | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| JENNY DWYER | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| MIKE SMITH | ||||||||
| BOARD MEMBER | 2.50 | Yes (X) | $0 | $0 | $0 | |||
| ALAN GILL | ||||||||
| VP RESEARCH AND DEVELOPMENT | 40.00 | $159,351 | $0 | $18,550 | Yes (X) | |||
| BASHAR AL-NAKHALA | ||||||||
| VICE PRESIDENT IT | 40.00 | $117,235 | $0 | $18,546 | Yes (X) | |||
| JOHN LINCECUM | ||||||||
| DIRECTOR OF DISCOVERY BIOLOGY | 40.00 | $140,667 | $0 | $17,979 | Yes (X) | |||
| FERNANDO VIEIRA | ||||||||
| DIR. OF RESEARCH | 40.00 | $139,326 | $0 | $18,597 | Yes (X) | |||
| VLADIMIR MOROZOV | ||||||||
| SENIOR SCIENTIST | 40.00 | $112,230 | $0 | $16,929 | Yes (X) | |||
| PATRICIA TANSKI | ||||||||
| FORMER VP OF DEVELOPMENT | 40.00 | $114,503 | $0 | $1,387 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,148,629 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $110,787 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 7 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (1) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (2 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1 | CityContractorAddress/USAddress/City | StateContractorAddress/USAddress/State | ZIP CodeContractorAddress/USAddress/ZIPCode | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| INSOURCE SERVICES INC | |||||
| PO BOX 427 | NEWTON UPPER FALLS | MA | 02464 | BOOKKEEPING & FINANCE & HR & IT | $351,656 |
| PARTNERS HEALTH CARE (MGH RESEARCH) | |||||
| 125 HIGH STREET | BOSTON | MA | 02241 | CONTRACT RESEARCH - SCIENCE | $233,255 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 2 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $2,542,004 | FundraisingAmt |
| All Other Contributions | $5,573,483 | AllOtherContributionsAmt |
| Noncash Contributions | $65,001 | NoncashContributionsAmt |
| Total Contributions | $8,115,487 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PHARMACEUTICAL CONTRAC | Desc |
| Business | 541700 | BusinessCd |
| Total Revenue Column | $408,977 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $408,977 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $408,977 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,924 | TotalRevenueColumnAmt |
| Exclusion | $5,924 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $823,902 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $2,542,004 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $553,439 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $270,463 | TotalRevenueColumnAmt |
| Exclusion | $270,463 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $8,800,851 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $408,977 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $276,387 | ExclusionAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $384,116 | TotalAmt |
| Program Services | $330,339 | ProgramServicesAmt |
| Management And General | $11,524 | ManagementAndGeneralAmt |
| Fundraising | $42,253 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,391,391 | TotalAmt |
| Program Services | $2,843,799 | ProgramServicesAmt |
| Management And General | $192,506 | ManagementAndGeneralAmt |
| Fundraising | $355,086 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $31,489 | TotalAmt |
| Program Services | $27,207 | ProgramServicesAmt |
| Management And General | $718 | ManagementAndGeneralAmt |
| Fundraising | $3,564 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $385,553 | TotalAmt |
| Program Services | $332,483 | ProgramServicesAmt |
| Management And General | $12,559 | ManagementAndGeneralAmt |
| Fundraising | $40,511 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $293,652 | TotalAmt |
| Program Services | $255,789 | ProgramServicesAmt |
| Management And General | $6,330 | ManagementAndGeneralAmt |
| Fundraising | $31,533 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $64,489 | TotalAmt |
| Management And General | $63,289 | ManagementAndGeneralAmt |
| Fundraising | $1,200 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $29,279 | TotalAmt |
| Management And General | $29,279 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $537,854 | TotalAmt |
| Program Services | $369,938 | ProgramServicesAmt |
| Management And General | $22,590 | ManagementAndGeneralAmt |
| Fundraising | $145,326 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $19,557 | TotalAmt |
| Program Services | $18,392 | ProgramServicesAmt |
| Fundraising | $1,165 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $83,036 | TotalAmt |
| Program Services | $77,047 | ProgramServicesAmt |
| Management And General | $2,172 | ManagementAndGeneralAmt |
| Fundraising | $3,817 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $174,350 | TotalAmt |
| Program Services | $127,692 | ProgramServicesAmt |
| Management And General | $4,946 | ManagementAndGeneralAmt |
| Fundraising | $41,712 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,860,406 | TotalAmt |
| Program Services | $1,780,312 | ProgramServicesAmt |
| Management And General | $74,491 | ManagementAndGeneralAmt |
| Fundraising | $5,603 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $149,434 | TotalAmt |
| Program Services | $109,277 | ProgramServicesAmt |
| Management And General | $9,857 | ManagementAndGeneralAmt |
| Fundraising | $30,300 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $94,744 | TotalAmt |
| Program Services | $77,246 | ProgramServicesAmt |
| Management And General | $12,071 | ManagementAndGeneralAmt |
| Fundraising | $5,427 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,128 | TotalAmt |
| Program Services | $9,128 | ProgramServicesAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $197,218 | TotalAmt |
| Program Services | $170,376 | ProgramServicesAmt |
| Management And General | $5,981 | ManagementAndGeneralAmt |
| Fundraising | $20,861 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| TESTING AND LAB EXPENSE | $1,655,276 | $1,655,276 | ||
| MISCELLANEOUS | $63,613 | $16,545 | $16,878 | $30,190 |
| BAD DEBT | $49,000 | $49,000 | ||
| PROGRAM SUPPLIES AND MA | $32,427 | $19,531 | $10,711 | $2,185 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,862 | TotalAmt |
| Program Services | $25,122 | ProgramServicesAmt |
| Management And General | $660 | ManagementAndGeneralAmt |
| Fundraising | $1,080 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,532,874 | TotalAmt |
| Program Services | $8,294,499 | ProgramServicesAmt |
| Management And General | $476,562 | ManagementAndGeneralAmt |
| Fundraising | $761,813 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,482,395 | BOYAmt |
| EOY | $2,237,218 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,044,907 | BOYAmt |
| EOY | $1,473,850 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,981,555 | BOYAmt |
| EOY | $1,592,064 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $49,000 | BOYAmt |
| EOY | $629,769 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $65,452 | BOYAmt |
| EOY | $92,182 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $2,542,452 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $1,951,145 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $556,990 | BOYAmt |
| EOY | $591,307 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $76,071 | BOYAmt |
| EOY | $129,979 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,256,370 | BOYAmt |
| EOY | $6,746,369 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $596,889 | BOYAmt |
| EOY | $611,613 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $64,825 | EOYAmt |
Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $50,605 | BOYAmt |
| EOY | $193,078 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $647,494 | BOYAmt |
| EOY | $869,516 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,527,321 | BOYAmt |
| EOY | $4,294,268 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,081,555 | BOYAmt |
| EOY | $1,582,585 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,608,876 | BOYAmt |
| EOY | $5,876,853 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,256,370 | BOYAmt |
| EOY | $6,746,369 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$732,023 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,455,858 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,927,606 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,444,164 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,936,764 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8,115,487 | CurrentTaxYearAmt |
| Total | $38,879,879 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,455,858 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $6,927,606 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,444,164 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $8,936,764 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $8,115,487 | CurrentTaxYearAmt |
| Total | $38,879,879 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $22,095,179 | SubstantialContributorsTotAmt |
| Public Support Total170 | $16,784,700 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $48,591 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $30,729 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $15,882 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $70,907 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,924 | CurrentTaxYearAmt |
| Total | $172,033 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $310,601 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $704,819 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $782,346 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $205,876 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $270,463 | CurrentTaxYearAmt |
| Total | $2,274,105 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $41,326,017 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $98,000 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.40620 | PublicSupportCY170Pct |
| Public Support PY170 | 0.86320 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part IV Form990ScheduleAPartIVGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART II - B, LINE 10 | FormAndLineReferenceDesc |
| Explanation | OTHER INCOME REPRESENTS NET SPECIAL EVENT REVENUE, EXCLUDING CONTRIBUTIONS. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $24,950 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $24,950 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $9,507,924 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $9,532,874 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $626,644 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $156,661 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $521,962 | CurrentYearMinus3Amt |
| Current Year Minus2 | $536,554 | CurrentYearMinus2Amt |
| Current Year Minus1 | $635,311 | CurrentYearMinus1Amt |
| Current Year | $626,644 | CurrentYearAmt |
| Total | $2,320,471 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $3,480,707 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $50,645 | CurrentYearMinus3Amt |
| Current Year Minus2 | $37,902 | CurrentYearMinus2Amt |
| Current Year Minus1 | $34,728 | CurrentYearMinus1Amt |
| Current Year | $24,950 | CurrentYearAmt |
| Total | $148,225 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $130,491 | CurrentYearMinus3Amt |
| Current Year Minus2 | $134,139 | CurrentYearMinus2Amt |
| Current Year Minus1 | $158,828 | CurrentYearMinus1Amt |
| Current Year | $156,661 | CurrentYearAmt |
| Total | $580,119 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $870,179 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $375,683 | OtherCostOrOtherBasisAmt |
| Depreciation | $132,398 | DepreciationAmt |
| Book Value | $243,285 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $2,166,769 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,818,747 | DepreciationAmt |
| Book Value | $348,022 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $591,307 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $8,832,261 | TotalRevEtcAuditedFinclStmtAmt |
| Donated Services And Use Fclts | $31,410 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $31,410 | RevenueNotReportedAmt |
| Revenue Subtotal | $8,800,851 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $8,800,851 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $9,564,284 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $31,410 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $31,410 | ExpensesNotReportedAmt |
| Expenses Subtotal | $9,532,874 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $9,532,874 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ALS TDI ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE FINANCIAL STATEMENT REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. ALS TDI HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS AT DECEMBER 31, 2013. THE INFORMATIONAL RETURNS OF ALS TDI ARE SUBJECT TO EXAMINATION BY THE FEDERAL AND STATE JURISDICTIONS AND GENERALLY REMAIN OPEN FOR THE MOST RECENT THREE YEARS. THESE RETURNS ARE GENERALLY SUBJECT TO EXAMINATION BY INTERNAL REVENUE SERVICE, MASSACHUSETTS, CALIFORNIA, INDIANA, ILLINOIS, AND MICHIGAN TAX AUTHORITIES FOR THE LAST THREE YEARS. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | TRI STATE TREK | NameOfEvent1Amt |
| Gross Receipts Event1 | $459,314 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $421,764 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $37,550 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $13,043 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $42,457 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $54,796 | OtherDirectExpensesEvent1Amt |
| Name Of Event2 | WHITE COAT AFFAIR - BOSTON GALA | NameOfEvent2Amt |
| Gross Receipts Event2 | $252,125 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $125,000 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $127,125 | GrossRevenueEvent2Amt |
| Food And Beverage Event2 | $71,030 | FoodAndBeverageEvent2Amt |
| Other Direct Expenses Event2 | $35,181 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 51 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $2,654,467 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $1,995,240 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $659,227 | GrossRevenueOtherEventsAmt |
| Food And Beverage Other Events | $4,597 | FoodAndBeverageOtherEventsAmt |
| Oth Direct Expnss Other Events | $332,335 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $3,365,906 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $2,542,004 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $823,902 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $13,043 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $118,084 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $422,312 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $553,439 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $270,463 | NetIncomeSummaryAmt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| First Class Or Charter Travel | Yes (X) | FirstClassOrCharterTravelInd |
| Written Policy Ref T And E Expnss | Yes (1) | WrittenPolicyRefTAndEExpnssInd |
| Substantiation Required | Yes (1) | SubstantiationRequiredInd |
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (7 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| STEVEN PERRIN PHD | ||||||||||||||
| CEO/CSO/PRES., VICE CHAIRMAN | $365,317 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $18,799 | $0 | $384,116 | $0 | $0 | $0 |
| ALAN GILL | ||||||||||||||
| VP RESEARCH AND DEVELOPMENT | $159,351 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $18,550 | $0 | $177,901 | $0 | $0 | $0 |
| BASHAR AL-NAKHALA | ||||||||||||||
| VICE PRESIDENT IT | $117,235 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $18,546 | $0 | $135,781 | $0 | $0 | $0 |
| JOHN LINCECUM | ||||||||||||||
| DIRECTOR OF DISCOVERY BIOLOGY | $140,667 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $17,979 | $0 | $158,646 | $0 | $0 | $0 |
| FERNANDO VIEIRA | ||||||||||||||
| DIR. OF RESEARCH | $139,326 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $18,597 | $0 | $157,923 | $0 | $0 | $0 |
| VLADIMIR MOROZOV | ||||||||||||||
| SENIOR SCIENTIST | $112,230 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $16,929 | $0 | $129,159 | $0 | $0 | $0 |
| PATRICIA TANSKI | ||||||||||||||
| FORMER VP OF DEVELOPMENT | $114,503 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $1,387 | $0 | $115,890 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 1A | FormAndLineReferenceDesc |
| Explanation | THE CEO HAS VERBAL AUTHORIZATION TO FLY FIRST CLASS AT HIS DISCRETION. IN GENERAL, HE ONLY FLIES FIRST CLASS WHEN THE FLIGHT IS LONGER THAN 5 1/2 HRS. | ExplanationTxt |
Schedule M IRS990ScheduleM
Food Inventory FoodInventoryGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 8 | ContributionCnt |
| Noncash Contributions Rpt F990 | $910 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | SELLING PRICE | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp (3 entries)
| Non Cash CheckboxNonCashCheckboxInd | DescDesc | ContributionContributionCnt | Noncash Contributions Rpt F990NoncashContributionsRptF990Amt | Method Of Determining RevenuesMethodOfDeterminingRevenuesTxt |
|---|---|---|---|---|
| Yes (X) | AUCTION ITEMS | 35 | $35,930 | SELLING PRICE |
| Yes (X) | FUNDRAISING S | 56 | $24,767 | SELLING PRICE |
| Yes (X) | OTHER | 20 | $3,394 | SELLING PRICE |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 2 | JAMES HEYWOOD, BOARD MEMBER, IS THE SON OF JOHN HEYWOOD, MEMBER OF THE BOARD OF DIRECTORS. |
| FORM 990, PART VI, SECTION B, LINE 11 | FORM 990 IS REVIEWED BY THE CHIEF FINANCIAL OFFICER AND THEN APPROVED BY THE BOARD OF DIRECTORS. |
| FORM 990, PART VI, SECTION B, LINE 12C | ALS TDI HAS A WRITTEN CONFLICT OF INEREST POLICY WHICH REQUIRES ANNUAL SIGNOFFS BY OFFICERS, DIRECTORS AND KEY EMPLOYEES. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE PROCESS TO DETERMINE THE COMPENSATION OF THE PRESIDENT WAS LAST UNDERTAKEN AT THE END OF 2011. THE PROCESS CONSISTED OF EVALUATING COMPARABLE DATA FOR FUNCTIONALLY SIMILAR POSITIONS AT SIMILAR ORGANIZATIONS, ALONG WITH THE REVIEW AND APPROVAL BY THE EXECUTIVE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS WHICH IS COMPRISED OF INDEPENDENT MEMBERS. APPROVALS AND DISCUSSIONS WERE FORMALLY DOCUMENTED BY MEETING MINUTES FOR PRESENATION TO THE FULL BOARD FOR APPROVAL. FORM 990, PART VI, SECTION B. LINE 15B: THE PROCESS TO ESTABLISH COMPENSATION OF OTHER OFFICERS AND KEY EMPLOYEES IS COMPLETED ON AN ANNUAL BASIS BY EVALUATING COMPARABLE DATA FOR FUNCTIONALLY SIMILAR POSITIONS AT SIMILAR ORGANIZATIONS, PRESENTING RECOMMENDATIONS TO THE EXECUTIVE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS WHICH IS COMPRISED OF INDEPENDENT MEMBERS AND DOCUMENTING SUCH DISCUSSIONS IN THE BOARD MINUTES. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE ON THE ORGANIZATION'S WEB SITE. FINANCIAL STATEMENTS ARE ALSO AVAILABLE BY MAIL UPON REQUEST. |
| FORM 990, PART XII, LINE 2C: | DURING 2013, THE ORGANIZATION DID NOT CHANGE THE WAY IN WHICH ITS COMMITTEE ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT, ITS FINANCIAL STATEMENTS AND SELECTION OF AN INDEPENDENT ACCOUNTANT. |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp (3 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Total IncomeTotalIncomeAmt | End Of Year AssetsEndOfYearAssetsAmt | Business Name Line1DirectControllingEntityName/BusinessNameLine1 |
|---|---|---|---|---|---|---|---|---|
| ANELIXIS THERAPEUTICS LLC | ||||||||
| 300 TECHNOLOGY SQUARE | CAMBRIDGE | MA | 02139 | TO ASSIST IN PROVIDING MECHANISMS TO ALS TDI TO SUPPORT RESEARCH AND DISCOVE | DE | $0 | $0 | ALS THERAPY DEVELOPMENT FOUNDATION INC |
| NEUROCATHARSIS THERAPEUTICS LLC | ||||||||
| 300 TECHNOLOGY SQUARE | CAMBRIDGE | MA | 02139 | TO ASSIST IN PROVIDING MECHANISMS TO ALS TDI TO SUPPORT RESEARCH AND DISCOVE | DE | $0 | $0 | ANELIXIS THERAPEUTICS LLC |
| NEUROSTYSIS THERAPEUTICS LLC | ||||||||
| 300 TECHNOLOGY SQUARE | CAMBRIDGE | MA | 02139 | TO ASSIST IN PROVIDING MECHANISMS TO ALS TDI TO SUPPORT RESEARCH AND DISCOVE | DE | $0 | $0 | ANELIXIS THERAPEUTICS LLC |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, IDEFTIFICATION OF DISREGARDED ENTITIES: | NAME OF DISREGARDED ENTITY: ANELIXIS THERAPEUTICS, LLC PRIMARY ACTIVITY: TO ASSIST IN PROVIDING MECHANISMS TO ALS TDI TO SUPPORT RESEARCH, SCIENTIFIC DISCOVERIES, INVENTIONS AND PROCESSES TO BE DEVELOPED, APPLIED OR PATENTED. ANELIXIS THERAPEUTICS, LLC WAS ALSO ESTABLISHED AS A MEANS TO GENERATE FUNDS TO SUPPORT DISCOVERIES AND PATENTS RELATED TO THE MISSION OF ALS TDI. |
| PART I, IDEFTIFICATION OF DISREGARDED ENTITIES: | NAME OF DISREGARDED ENTITY: NEUROCATHARSIS THERAPEUTICS, LLC PRIMARY ACTIVITY: TO ASSIST IN PROVIDING MECHANISMS TO ALS TDI TO SUPPORT RESEARCH, SCIENTIFIC DISCOVERIES, INVENTIONS AND PROCESSES TO BE DEVELOPED, APPLIED OR PATENTED. NEUROCATHARSIS THERAPEUTICS, LLC WAS ALSO ESTABLISHED AS A MEANS TO GENERATE FUNDS TO SUPPORT DISCOVERIES AND PATENTS RELATED TO THE MISSION OF ALS TDI. |
| PART I, IDEFTIFICATION OF DISREGARDED ENTITIES: | NAME OF DISREGARDED ENTITY: NEUROTYSIS THERAPEUTICS, LLC PRIMARY ACTIVITY: TO ASSIST IN PROVIDING MECHANISMS TO ALS TDI TO SUPPORT RESEARCH, SCIENTIFIC DISCOVERIES, INVENTIONS AND PROCESSES TO BE DEVELOPED, APPLIED OR PATENTED. NEUROSTYSIS THERAPEUTICS, LLC WAS ALSO ESTABLISHED AS A MEANS TO GENERATE FUNDS TO SUPPORT DISCOVERIES AND PATENTS RELATED TO THE MISSION OF ALS TDI. |