CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2013-01-01 to 2013-12-31
Filed: 2014-07-15
IRS object ID: 201431969349300518
Schema version: 2013v3.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule I
Schedule J
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2014-07-15T08:56:13-05:00	ReturnTs
Tax Period End	2013-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	BDO USA LLP	BusinessNameLine1

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	8405 GREENSBORO DRIVE 7TH FLOOR	AddressLine1
City	MCLEAN	City
State	VA	State
ZIP Code	22102	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2013-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS	BusinessNameLine1

Field	Value	IRS element (for citing)
In Care Of	% ROBERT J BEALL PHD	InCareOfNm
Business Name Control	CYST	BusinessNameControlTxt
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD	AddressLine1
Address Line2	Suite 200	AddressLine2
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	ROBERT J BEALL PHD	PersonNm
Person Title	PRESIDENT AND CEO	PersonTitleTxt
Phone	7038930600	PhoneNum
Signature	2014-06-30	SignatureDt
Discuss With Paid Preparer	Yes (true)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	Jeffrey J Schragg	PreparerPersonNm
Phone	7038930600	PhoneNum

Field	Value	IRS element (for citing)
Tax	2013	TaxYr
Build TS	2015-11-30 17:44:51Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	ROBERT J BEALL PHD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	$614,959,738	GrossReceiptsAmt
Group Return For Affiliates	false	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.CFF.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1955	FormationYr
Legal Domicile State	DE	LegalDomicileStateCd
Activity Or Mission	THE MISSION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES.	ActivityOrMissionDesc
Voting Members Governing Body	17	VotingMembersGoverningBodyCnt
Voting Members Independent	16	VotingMembersIndependentCnt
Total Employee	257	TotalEmployeeCnt
Total Volunteers	250000	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$193,893,253	PYContributionsGrantsAmt
CY Contributions Grants	$279,115,653	CYContributionsGrantsAmt
PY Program Service Revenue	$30,108,699	PYProgramServiceRevenueAmt
CY Program Service Revenue	$2,168,133	CYProgramServiceRevenueAmt
PY Investment Income	$32,829,942	PYInvestmentIncomeAmt
CY Investment Income	$8,179,793	CYInvestmentIncomeAmt
PY Other Revenue	$3,987,082	PYOtherRevenueAmt
CY Other Revenue	$8,226,904	CYOtherRevenueAmt
PY Total Revenue	$260,818,976	PYTotalRevenueAmt
CY Total Revenue	$297,690,483	CYTotalRevenueAmt
PY Grants And Similar Paid	$25,842,486	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$27,334,715	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$29,994,467	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$25,419,186	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$9,496,682	CYTotalFundraisingExpenseAmt
PY Other Expenses	$23,451,961	PYOtherExpensesAmt
CY Other Expenses	$22,293,820	CYOtherExpensesAmt
PY Total Expenses	$79,288,914	PYTotalExpensesAmt
CY Total Expenses	$75,047,721	CYTotalExpensesAmt
PY Revenues Less Expenses	$181,530,062	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$222,642,762	CYRevenuesLessExpensesAmt
Total Assets BOY	$435,100,702	TotalAssetsBOYAmt
Total Assets EOY	$692,698,706	TotalAssetsEOYAmt
Total Liabilities BOY	$84,470,819	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$94,932,860	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$350,629,883	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$597,765,846	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION IS TO CURE CYSTIC FIBROSIS AND TO PROVIDE ALL PEOPLE WITH THE DISEASE THE OPPORTUNITY TO LEAD FULL, PRODUCTIVE LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PROMOTING INDIVIDUALIZED TREATMENT, AND ENSURING ACCESS TO HIGH QUALITY, SPECIALIZED CARE. A LIFE-SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF NEARLY 30,000 CHILDREN AND YOUNG ADULTS IN THE U.S. CURRENTLY, THERE IS NO CURE.	MissionDesc
Significant New Program Srvc	false	SignificantNewProgramSrvcInd
Significant Change	false	SignificantChangeInd
Expense	$40,275,307	ExpenseAmt
Grant	$25,464,382	GrantAmt
Revenue	$2,168,132	RevenueAmt
Desc	Medical Programs - Since 1955, the Cystic Fibrosis Foundation has been dedicated to curing and controlling cystic fibrosis (CF). The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis, a life-threatening genetic disease that affects 30,000 children and adults in the United States, and 70,000 people worldwide. The treatment and care protocols developed by the CF Foundation are helping tens of thousands of people with the disease live longer, healthier lives. To support its mission, the Foundation funds and accredits a nationwide network of 110 care centers. The care center network provides the best care for people with CF and has been recognized by the National Institutes of Health as a model of care for a chronic disease. 1) Through the Foundation's efforts, the life expectancy of a child with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before. 2) The Foundation provides much-needed support for patients and their families as they manage the difficult consequences of the disease - from supporting specialized, quality CF care to providing information and support to help people with CF access that care. 3) The Foundation's patient registry collects information on the health status of approximately 28,100 CF patients, providing caregivers and researchers critical information to help identify new health trends and effective treatments and improve the quality of CF care. The patient registry is an internationally recognized model for other nonprofit health organizations, including CF advocacy groups. 4) Medical programs consist of approximately 305 grants and other costs to support scientific studies/investigations and cystic fibrosis centers. Approximately 162 grants totaling $14.4 million were awarded to cystic fibrosis care centers serving approximately 28,100 patients.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$3,293,035	ExpenseAmt
Grant	$1,870,333	GrantAmt
Revenue	$0	RevenueAmt
Desc	The mission of the Cystic Fibrosis Patient Assistance Foundation (CFPAF) is to assist cystic fibrosis patients residing in the United States, regardless of their health insurance coverage or financial resources, with access to FDA-approved drugs (and paired devices) for the inhaled treatment of cystic fibrosis pulmonary disease and to medications for the treatment of pancreatic insufficiency. Furthermore, CFPAF is committed to maintaining the highest standards of customer service and operating efficiency, in order to maximize the support and assistance that it can provide to the CF community. Since its inception, Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) has responded to 36,938 calls for assistance. In 2013, CFPAF provided $1,870,333 in patient assistance grants to 1,099 CF patients.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$10,309,962	ExpenseAmt
Grant	$0	GrantAmt
Revenue	$0	RevenueAmt
Desc	Public and Professional Information and Education - To broaden its reach and to support its mission, the CF Foundation has programs designed to improve the knowledge of CF patients and their families, medical professionals and the general public regarding the disease. In 2013, there were 30 publications, 9 webcasts and 25 videos produced and made available for patients, families, medical professionals, and the general public. Year-round, meetings and conferences provide updates for CF researchers, physicians and allied health professionals and opportunities for collaboration on future CF research projects and treatment/care efforts. In 2013, over 2,713,824 unique visitors came to the CF Foundation's website.	Desc

Field	Value	IRS element (for citing)
Total Other Prog Srvc Expense	$3,113,815	TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant	$0	TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue	$0	TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses	$56,992,119	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (true)	DescribedInSection501c3Ind
Schedule B Required	Yes (true)	ScheduleBRequiredInd
Political Campaign Acty	false	PoliticalCampaignActyInd
Lobbying Activities	Yes (true)	LobbyingActivitiesInd
Donor Advised Fund	false	DonorAdvisedFundInd
Conservation Easements	false	ConservationEasementsInd
Collections Of Art	false	CollectionsOfArtInd
Credit Counseling	false	CreditCounselingInd
Temp Or Permanent Endowments	false	TempOrPermanentEndowmentsInd
Report Land Building Equipment	Yes (true)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	Yes (true)	ReportInvestmentsOtherSecInd
Report Program Related Invst	false	ReportProgramRelatedInvstInd
Report Other Assets	false	ReportOtherAssetsInd
Report Other Liabilities	Yes (true)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	false	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	false	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (true)	ConsolidatedAuditFinclStmtInd
School Operating	false	SchoolOperatingInd
Foreign Office	false	ForeignOfficeInd
Foreign Activities	Yes (true)	ForeignActivitiesInd
More Than5000 K To Org	Yes (true)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	false	MoreThan5000KToIndividualsInd
Professional Fundraising	false	ProfessionalFundraisingInd
Fundraising Activities	false	FundraisingActivitiesInd
Gaming Activities	false	GamingActivitiesInd
Operate Hospital	false	OperateHospitalInd
Grants To Organizations	Yes (true)	GrantsToOrganizationsInd
Grants To Individuals	Yes (true)	GrantsToIndividualsInd
Schedule J Required	Yes (true)	ScheduleJRequiredInd
Tax Exempt Bonds	false	TaxExemptBondsInd
Engaged In Excess Benefit Trans	false	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	false	PYExcessBenefitTransInd
Loan Outstanding	false	LoanOutstandingInd
Grant To Related Person	false	GrantToRelatedPersonInd
Business Rln With Org Mem	false	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	false	BusinessRlnWithFamMemInd
Business Rln With Officer Ent	false	BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri	false	DeductibleNonCashContriInd
Deductible Art Contribution	false	DeductibleArtContributionInd
Terminate Operations	false	TerminateOperationsInd
Partial Liquidation	false	PartialLiquidationInd
Disregarded Entity	Yes (true)	DisregardedEntityInd
Related Entity	Yes (true)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (true)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (true)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	false	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	false	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (true)	ScheduleORequiredInd
IRP Document	197	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (true)	BackupWthldComplianceInd
Employee	257	EmployeeCnt
Employment Tax Returns Filed	Yes (true)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	false	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	false	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTransInd
Taxable Party Notification	false	TaxablePartyNotificationInd
Nondeductible Contributions	false	NondeductibleContributionsInd
Quid Pro Quo Contributions	false	QuidProQuoContributionsInd
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	false	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	false	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	false	IndoorTanningServicesInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	17	GoverningBodyVotingMembersCnt
Independent Voting Member	16	IndependentVotingMemberCnt
Family Or Business Rln	false	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	false	DelegationOfMgmtDutiesInd
Change To Org Documents	false	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	false	MaterialDiversionOrMisuseInd
Members Or Stockholders	false	MembersOrStockholdersInd
Election Of Board Members	false	ElectionOfBoardMembersInd
Decisions Subject To Approva	false	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (true)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (true)	MinutesOfCommitteesInd
Officer Mailing Address	false	OfficerMailingAddressInd
Local Chapters	Yes (true)	LocalChaptersInd
Policies Reference Chapters	Yes (true)	PoliciesReferenceChaptersInd
Form990 Provided To Gvrn Body	Yes (true)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (true)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (true)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (true)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (true)	WhistleblowerPolicyInd
Document Retention Policy	Yes (true)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (true)	CompensationProcessCEOInd
Compensation Process Other	Yes (true)	CompensationProcessOtherInd
Investment In Joint Venture	false	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Field	Value	IRS element (for citing)
Person	ROBERT J BEALL PHD	PersonNm
Phone	3019514422	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Form990 Part VII Section A Form990PartVIISectionAGrp (26 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
Michael L Beatty
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
J Taylor Crandall
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Richard L Dandurand
VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
Richard J Gray Esq
VICE CHAIRMAN	5.0	3.0	Yes (X)	$0	$0	$0
Barry M Gump
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Susan L Hook
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Catherine C McLoud
TRUSTEE	8.0	6.0	Yes (X)	$0	$0	$0
Chad T Moore
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
David A Mount
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Gray B Sabin
TRUSTEE	5.0	3.0	Yes (X)	$0	$0	$0
Christy L Shaffer PhD
TRUSTEE	3.0	8.0	Yes (X)	$0	$0	$0
Steven Shak MD
TRUSTEE	3.0	6.0	Yes (X)	$0	$0	$0
Charles J Thayer
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Amy S Weinberg
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Paul W Whetsell
TRUSTEE	5.0	3.0	Yes (X)	$0	$0	$0
KC Bryan White
TRUSTEE	3.0	3.0	Yes (X)	$0	$0	$0
Robert J Beall PhD
PRESIDENT & CEO	36.0	24.0	Yes (X)	$737,313	$364,564	$261,787	Yes (X)
C Richard Mattingly
EXEC VP, COO & SECRETARY	50.0	10.0		$752,470	$0	$220,754	Yes (X)
Preston W Campbell MD
EXEC VP FOR MEDICAL AFFAIRS	36.0	24.0		$796,908	$394,239	$202,914	Yes (X)
Vera H Twigg
SR. VP & CFO	50.0	10.0		$486,851	$0	$91,349	Yes (X)
Ann Palmer
SR. VICE PRESIDENT OF FIELD MG	50.0			$198,883	$0	$41,477		Yes (X)
DAVID MCLOUGHLIN
SR. VICE PRESIDENT OF OPS	50.0			$286,388	$0	$56,418			Yes (X)
DANIEL KLEIN
SR VP, PATIENT ACCESS PROGS	50.0			$243,807	$0	$32,095			Yes (X)
GLEN GOLDMARK
VP OF HUMAN RESOURCES	50.0			$230,969	$0	$45,754			Yes (X)
GREGORY AUGUST
CHIEF INFORMATION OFFICER	50.0			$229,682	$0	$51,655			Yes (X)
AMY DEMARIA
SR VP OF COMMUNICATIONS	50.0			$227,400	$0	$35,445			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$4,190,671	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$758,803	TotReportableCompRltdOrgAmt
Total Other Compensation	$1,039,648	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	68	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	false	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (true)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	false	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1	CityContractorAddress/USAddress/City	StateContractorAddress/USAddress/State	ZIP CodeContractorAddress/USAddress/ZIPCode	ServicesServicesDesc	CompensationCompensationAmt	Address Line1ContractorAddress/ForeignAddress/AddressLine1	CityContractorAddress/ForeignAddress/City	Province Or StateContractorAddress/ForeignAddress/ProvinceOrState	CountryContractorAddress/ForeignAddress/Country
PRODUCTION SOLUTIONS
1953 GALLOWS RD SUITE 699	VIENNA	VA	22182	PRINTING	$1,395,284
ITS RESOURCE LLC
7 HARVARD COURT	ROCKVILLE	MD	20850	IT SERVICES	$890,607
SUFIAN PASSAMANO
712 MAIN STREET SUITE 2130	HOUSTON	TX	77002	LEGAL INFO HOTLINE	$746,764
GRANTMAIL DIRECT LTD
				PRINTING	$628,688	A01-02 15F WORLD TRADE CENTER	NINGBO	0	CH
UTAH FOOD SERVICES INC
100 S WEST TEMPLE	SALT LAKE CITY	UT	84101	CONFERENCE CATERING	$357,576

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	40	CntrctRcvdGreaterThan100KCnt
Related Organizations	$261,572,625	RelatedOrganizationsAmt
All Other Contributions	$17,543,028	AllOtherContributionsAmt
Total Contributions	$279,115,653	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
SCIENTIFIC CONFERENCE	611600	$1,778,138	$1,778,138
TRANSITION SERVICES	541610	$176,119	$176,119
REFUNDED OR CANCELLED GRANTS	900099	$213,876	$213,876

Field	Value	IRS element (for citing)
Total Program Service Revenue	$2,168,133	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$9,276,579	TotalRevenueColumnAmt
Exclusion	$9,276,579	ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$7,777,853	TotalRevenueColumnAmt
Exclusion	$7,777,853	ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt
Personal	$0	PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$315,514,951	SecuritiesAmt
Other	$657,518	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$317,269,255	SecuritiesAmt
Other	$0	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	-$1,754,304	SecuritiesAmt
Other	$657,518	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$1,096,786	TotalRevenueColumnAmt
Exclusion	-$1,096,786	ExclusionAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	LIST RENTAL	Desc
Business	533110	BusinessCd
Total Revenue Column	$449,051	TotalRevenueColumnAmt
Exclusion	$449,051	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$449,051	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$297,690,483	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,168,133	RelatedOrExemptFuncIncomeAmt
Exclusion	$16,406,697	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$25,179,825	TotalAmt
Program Services	$25,179,825	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$1,900,474	TotalAmt
Program Services	$1,900,474	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$254,416	TotalAmt
Program Services	$254,416	ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$3,669,026	TotalAmt
Program Services	$2,410,182	ProgramServicesAmt
Management And General	$738,698	ManagementAndGeneralAmt
Fundraising	$520,146	FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$17,429,853	TotalAmt
Program Services	$11,449,665	ProgramServicesAmt
Management And General	$3,509,214	ManagementAndGeneralAmt
Fundraising	$2,470,974	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$1,227,827	TotalAmt
Program Services	$806,559	ProgramServicesAmt
Management And General	$247,203	ManagementAndGeneralAmt
Fundraising	$174,065	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$1,707,375	TotalAmt
Program Services	$1,121,574	ProgramServicesAmt
Management And General	$343,752	ManagementAndGeneralAmt
Fundraising	$242,049	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,385,105	TotalAmt
Program Services	$908,657	ProgramServicesAmt
Management And General	$268,261	ManagementAndGeneralAmt
Fundraising	$208,187	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$288,197	TotalAmt
Program Services	$245,278	ProgramServicesAmt
Management And General	$42,919	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$328,320	TotalAmt
Program Services	$50,885	ProgramServicesAmt
Management And General	$277,435	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$266,173	TotalAmt
Program Services	$266,173	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$111,438	TotalAmt
Program Services	$0	ProgramServicesAmt
Management And General	$111,438	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$3,051,626	TotalAmt
Program Services	$2,270,776	ProgramServicesAmt
Management And General	$37,542	ManagementAndGeneralAmt
Fundraising	$743,308	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$41,948	TotalAmt
Program Services	$25,588	ProgramServicesAmt
Management And General	$6,712	ManagementAndGeneralAmt
Fundraising	$9,648	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$962,756	TotalAmt
Program Services	$874,107	ProgramServicesAmt
Management And General	$12,708	ManagementAndGeneralAmt
Fundraising	$75,941	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$3,544,741	TotalAmt
Program Services	$2,511,662	ProgramServicesAmt
Management And General	$488,715	ManagementAndGeneralAmt
Fundraising	$544,364	FundraisingAmt

Royalties RoyaltiesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$1,266,461	TotalAmt
Program Services	$793,970	ProgramServicesAmt
Management And General	$315,758	ManagementAndGeneralAmt
Fundraising	$156,733	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$678,266	TotalAmt
Program Services	$587,043	ProgramServicesAmt
Management And General	$31,571	ManagementAndGeneralAmt
Fundraising	$59,652	FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$2,243,664	TotalAmt
Program Services	$2,126,777	ProgramServicesAmt
Management And General	$48,299	ManagementAndGeneralAmt
Fundraising	$68,588	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$366,183	TotalAmt
Program Services	$254,942	ProgramServicesAmt
Management And General	$64,952	ManagementAndGeneralAmt
Fundraising	$46,289	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$449,388	TotalAmt
Program Services	$322,588	ProgramServicesAmt
Management And General	$61,668	ManagementAndGeneralAmt
Fundraising	$65,132	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
DIRECT MAIL PRINTING	$2,899,191	$865,118	$0	$2,034,073
DIRECT MAIL POSTAGE	$2,423,838	$723,274	$0	$1,700,564
PROVISION FOR DOUBTFUL ACCOUNT	$1,875,308	$0	$1,875,308	$0
TRAINING	$376,641	$239,170	$63,173	$74,298

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$1,119,681	TotalAmt
Program Services	$803,416	ProgramServicesAmt
Management And General	$13,594	ManagementAndGeneralAmt
Fundraising	$302,671	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$75,047,721	TotalAmt
Program Services	$56,992,119	ProgramServicesAmt
Management And General	$8,558,920	ManagementAndGeneralAmt
Fundraising	$9,496,682	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$7,782,306	TotalAmt
Program Services	$2,322,240	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$5,460,066	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$85,991,958	BOYAmt
EOY	$53,791,914	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$18,589,070	BOYAmt
EOY	$12,026,413	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$3,897,769	BOYAmt
EOY	$3,855,668	EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$341,763	BOYAmt
EOY	$229,641	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$1,169,059	BOYAmt
EOY	$1,307,422	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$7,812,202	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$4,498,812	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$2,500,207	BOYAmt
EOY	$3,313,390	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$231,212,469	BOYAmt
EOY	$484,322,357	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$84,037,853	BOYAmt
EOY	$126,808,444	EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$7,360,554	BOYAmt
EOY	$7,043,457	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$435,100,702	BOYAmt
EOY	$692,698,706	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$19,779,258	BOYAmt
EOY	$16,483,836	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$23,616,669	BOYAmt
EOY	$23,236,520	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$3,851,863	BOYAmt
EOY	$4,992,667	EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

Field	Value	IRS element (for citing)
BOY	$0	BOYAmt
EOY	$0	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$37,223,029	BOYAmt
EOY	$50,219,837	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$84,470,819	BOYAmt
EOY	$94,932,860	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows SFAS117	Yes (X)	OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$330,610,330	BOYAmt
EOY	$574,947,148	EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$16,291,346	BOYAmt
EOY	$18,850,884	EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,728,207	BOYAmt
EOY	$3,967,814	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$350,629,883	BOYAmt
EOY	$597,765,846	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$435,100,702	BOYAmt
EOY	$692,698,706	EOYAmt

Field	Value	IRS element (for citing)
Reconcilation Revenue Expnss	$222,642,762	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$24,493,201	NetUnrlzdGainsLossesInvstAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	false	AccountantCompileOrReviewInd
FS Audited	Yes (true)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (true)	AuditCommitteeInd
Federal Grant Audit Required	false	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind
Contribution Controller	false	ContributionControllerInd
Contribution Family	false	ContributionFamilyInd
Contribution35 Controlled	false	Contribution35ControlledInd

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$94,548,345	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$106,799,244	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$101,016,043	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$193,893,253	CurrentTaxYearMinus1YearAmt
Current Tax Year	$279,115,653	CurrentTaxYearAmt
Total	$775,372,538	TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

Field	Value	IRS element (for citing)
Total	$0	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$94,548,345	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$106,799,244	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$101,016,043	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$193,893,253	CurrentTaxYearMinus1YearAmt
Current Tax Year	$279,115,653	CurrentTaxYearAmt
Total	$775,372,538	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$0	SubstantialContributorsTotAmt
Public Support Total170	$775,372,538	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,946,628	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,848,122	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$4,888,930	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$14,145,772	CurrentTaxYearMinus1YearAmt
Current Tax Year	$17,054,431	CurrentTaxYearAmt
Total	$41,883,883	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$0	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$0	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$0	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$0	CurrentTaxYearMinus1YearAmt
Total	$0	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$636,827	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$467,607	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$576,265	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$480,632	CurrentTaxYearMinus1YearAmt
Current Tax Year	$449,051	CurrentTaxYearAmt
Total	$2,610,382	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$819,866,803	TotalSupportAmt
Gross Receipts Rltd Activities	$96,959,578	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.94573	PublicSupportCY170Pct
Public Support PY170	0.94817	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part IV Form990ScheduleAPartIVGrp

Field	Value	IRS element (for citing)
Form And Line Reference	FORM 990, SCHEDULE A, LINE 12	FormAndLineReferenceDesc
Explanation	The foundation fosters collaboration within the scientific community by hosting a large scientific conference providing a forum for researchers and caregivers to share their practices and investigate results with one another. Fees for attendance at this conference are reported on line 12. Transition services amount represents fees earned in connection with temporary information technology, telecommunications, and transition-related services provided by the foundation in connection with the change in the pharmacy's ownership.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$125,445	FilingOrganizationsTotalAmt
Affiliated Group Total	$125,445	AffiliatedGroupTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$435,800	FilingOrganizationsTotalAmt
Affiliated Group Total	$435,800	AffiliatedGroupTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$561,245	FilingOrganizationsTotalAmt
Affiliated Group Total	$561,245	AffiliatedGroupTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$74,486,476	FilingOrganizationsTotalAmt
Affiliated Group Total	$74,486,476	AffiliatedGroupTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$75,047,721	FilingOrganizationsTotalAmt
Affiliated Group Total	$75,047,721	AffiliatedGroupTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt
Affiliated Group Total	$1,000,000	AffiliatedGroupTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt
Affiliated Group Total	$250,000	AffiliatedGroupTotalAmt

Field	Value	IRS element (for citing)
Tot Lbbyng Grassroot Mns Non Tx		TotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non Tx		TotLbbyExpendMnsLbbyngNonTxGrp

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$257,023	CurrentYearMinus3Amt
Current Year Minus2	$572,513	CurrentYearMinus2Amt
Current Year Minus1	$688,016	CurrentYearMinus1Amt
Current Year	$561,245	CurrentYearAmt
Total	$2,078,797	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$11,250	CurrentYearMinus3Amt
Current Year Minus2	$91,903	CurrentYearMinus2Amt
Current Year Minus1	$186,450	CurrentYearMinus1Amt
Current Year	$125,445	CurrentYearAmt
Total	$415,048	TotalAmt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amounts		ArtPublicExhibitionAmountsGrp
Held Works Art		HeldWorksArtGrp
CY Minus3 Yr Endwmt Fund		CYMinus3YrEndwmtFundGrp
CY Minus4 Yr Endwmt Fund		CYMinus4YrEndwmtFundGrp
Land		LandGrp
Buildings		BuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$1,343,167	OtherCostOrOtherBasisAmt
Depreciation	$404,656	DepreciationAmt
Book Value	$938,511	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$6,469,035	OtherCostOrOtherBasisAmt
Depreciation	$4,094,156	DepreciationAmt
Book Value	$2,374,879	BookValueAmt

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildingsGrp
Total Book Value Land Buildings	$3,313,390	TotalBookValueLandBuildingsAmt
Financial Derivatives		FinancialDerivativesGrp
Closely Held Equity Interests		CloselyHeldEquityInterestsGrp

Other Securities OtherSecuritiesGrp (4 entries)

DescDesc	Book ValueBookValueAmt	Method ValuationMethodValuationCd
INFLATION HEDGE MUTUAL FUNDS	$18,221,543	F
LONG/SHORT EQUITY FUND	$40,144,451	F
ABSOLUTE VALUE FUND	$64,474,636	F
PERPETUAL TRUSTS	$3,967,814	F

Field	Value	IRS element (for citing)
Total Book Value Securities	$126,808,444	TotalBookValueSecuritiesAmt
Federal Income Tax Liability	$0	FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	INTERCOMPANY PAYABLE	Desc
Amt	$50,219,837	Amt

Field	Value	IRS element (for citing)
Total Liability	$50,219,837	TotalLiabilityAmt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
Europe (Including Iceland and Greenland)	Grantmaking	NONE	$157,216
Middle East and North Africa	Grantmaking	NONE	$97,200

Field	Value	IRS element (for citing)
Subtotal Spent	$254,416	SubtotalSpentAmt
Total Spent	$254,416	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
Europe (Including Iceland and Greenland)	RESEARCH	$114,016	WIRE
Europe (Including Iceland and Greenland)	PILOT STUDY	$43,200	WIRE
Middle East and North Africa	RESEARCH	$97,200	WIRE

Field	Value	IRS element (for citing)
Total501c3 Org	3	Total501c3OrgCnt
Transfer To Foreign Corp	Yes (true)	TransferToForeignCorpInd
Interest In Foreign Trust	false	InterestInForeignTrustInd
Foreign Corp Ownership	Yes (true)	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	Yes (true)	PassiveForeignInvestmestCoInd
Foreign Partnership	false	ForeignPartnershipInd
Boycott Countries	false	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

Schedule F, Part I, Line 2

THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITITES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURE. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT IN THE MIDDLE EAST / NORTH AFRICA REGION WAS MADE TO HEBREW UNIVERSITY OF JERUSALEM, A UNIVERSITY IN ISRAEL.

FORM 990, SCHEDULE F, PART IV, LINES 1 AND 3

The activities referenced in Schedule F. Part IV are limited to the Foundation's investment in two funds of funds.

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (true)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (285 entries)

Address Line1USAddress/AddressLine1	Address Line2USAddress/AddressLine2	CityUSAddress/City	StateUSAddress/State	ZIP CodeUSAddress/ZIPCode	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt
Academic Medicine Services Inc
4598 Main Street	Suite 23	Amherst	NY	14226	141368361	501c(3)	$54,000	ADULT CARE
Advocate Hope Children's Hospital
4440 West 95th Street		Oak Lawn	IL	60453	362169147	501c(3)	$46,455	CF CARE CENTER
Albany Medical College
Elsmere A-107		Albany	NY	12208	141338310	501c(3)	$99,730	CF CARE CENTER
All Children's Hospital
Dept 9010		St Petersburg	FL	33731	590683252	501c(3)	$90,950	CF CARE CENTER
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	PO Box 31020	Chicago	IL	60614	362170833	501c(3)	$130,485	CF CARE CENTER
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205		Chicago	IL	60614	362170833	501c(3)	$96,807	RESEARCH
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205		Chicago	IL	60614	362170833	501c(3)	$129,600	QUALITY IMPROVEMENT
Arizona Board of Regents University of Arizona
Sponsored Projects Services		Tucson	AZ	857223308	742652689	IRC 115	$58,200	CF CARE CENTER
Arizona Board of Regents University of Arizona
Sponsored Projects Services	888 N Euclid Room 510	Tucson	AZ	857223308	742652689	IRC 115	$27,000	QUALITY IMPROVEMENT
Arkansas Children's Hospital Research Institute I
800 Marshall Street	888 N Euclid Room 510	Little Rock	AR	72202	710694931	501c(3)	$84,960	CF CARE CENTER
Arkansas Children's Hospital Research Institute I
800 Marshall Street	Slot 512-17	Little Rock	AR	72202	710694931	501c(3)	$21,600	QUALITY IMPROVEMENT
Asthma and Allergy Specialists PA
411 Billings Road	Slot 512-17	Charlotte	NC	28211	561913043	CORP	$37,592	CF CARE CENTER
Baylor College of Medicine
PO Box 1	Suite 104	Houston	TX	77212	741613878	501c(3)	$240,694	CF CARE CENTER
Baylor College of Medicine
PO Box 1		Houston	TX	77212	741613878	501c(3)	$42,808	QUALITY IMPROVEMENT
Baystate Medical Center (95-196)
759 Chestnut Street		Springfield	MA	01199	042790311	501c(3)	$32,880	CF CARE CENTER
Beth Israel Medical Center
Office of Grants Contracts		New York	NY	10038	135564934	501c(3)	$68,490	CF CARE CENTER
Beth Israel Medical Center
Office of Grants Contracts	160 Water Street 24th Floor	New York	NY	10038	135564934	501c(3)	$13,160	QUALITY IMPROVEMENT
Billings Clinic
2800 10th Avenue North	160 Water Street 24th Floor	Billings	MT	59107	810231784	501c(3)	$85,139	CF CARE CENTER
Board of Regents of the University of Wisconsin Sy
750 University Avenue		Madison	WI	53706	396006492	501c(3)	$150,299	CF CARE CENTER
Board of Regents of the University of Wisconsin Sy
750 University Avenue		Madison	WI	53706	396006492	501c(3)	$43,200	PILOT STUDY
Board of Trustees of Southern Illinois University
Division of Pulmonary Medicine		Springfield	IL	62794	376005961	501c(3)	$9,000	CF CARE CENTER
Board of Trustees of the Leland Stanford Junior Un
Stanford University	PO Box 19636	Stanford	CA	943056215	941156365	501c(3)	$167,590	CF CARE CENTER
Board of Trustees of the Leland Stanford Junior Un
Stanford University	651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	$97,200	RESEARCH
Brigham and Women's Hospital Boston
10 Vining Street	651 Serra Street Suite 220	Boston	MA	02115	042312909	501c(3)	$43,200	PILOT STUDY
California Pacific Medical Center Research Institu
2200 Webster Street Room 405		San Francisco	CA	94115	940562680	501c(3)	$14,760	CF CARE CENTER
CAMC Health Education and Research Institute
PO Box 765		Charleston	WV	25323	550753754	501c(3)	$28,130	CF CARE CENTER
CAMC Health Education and Research Institute
PO Box 765		Charleston	WV	25323	550753754	501c(3)	$13,160	QUALITY IMPROVEMENT
Carle Foundation Hospital
611 W Park Street		Urbana	IL	61801	371119538	501c(3)	$19,000	CF CARE CENTER
Case Western Reserve University
10900 Euclid Avenue		Cleveland	OH	441067037	341018992	501c(3)	$169,628	RESEARCH
Case Western Reserve University
10900 Euclid Avenue	Attn Deborah Elam	Cleveland	OH	441067037	341018992	501c(3)	$43,200	PILOT STUDY
Case Western Reserve University
10900 Euclid Avenue	Attn Deborah Elam	Cleveland	OH	441067037	341018992	501c(3)	$349,281	RESEARCH CENTER
Central Florida Pulmonary Group
326 North Mills Avenue	Attn Deborah Elam	Orlando	FL	32803	591760017	CORP	$49,240	CF CARE CENTER
Central Florida Pulmonary Group
326 North Mills Avenue		Orlando	FL	32803	591760017	CORP	$13,160	QUALITY IMPROVEMENT
Children's & Women's Physicians of Westchester
Pediatric Pulmonology		Valhalla	NY	10595	133956599	LLP	$74,640	CF CARE CENTER
Children's & Women's Physicians of Westchester
Pediatric Pulmonology	Munger Pavilion Room 106	Valhalla	NY	10595	133956599	LLP	$13,160	QUALITY IMPROVEMENT
Children's Healthcare of Atlanta
1001 Johnson Ferry Road North	Munger Pavilion Room 106	Atlanta	GA	30342	582367819	501c(3)	$83,710	CF CARE CENTER
Children's Hospital & Research Center at Oakland
747 52nd Street		Oakland	CA	94609	940382330	501c(3)	$39,430	CF CARE CENTER
Children's Hospital Central California
9300 Valley Childrens Place		Madera	CA	93638	941294954	501c(3)	$61,480	CF CARE CENTER
Children's Hospital Colorado
formerly The Childrens Hospital		Aurora	CO	80045	840166760	501c(3)	$173,420	CF CARE CENTER
Children's Hospital Colorado
formerly The Childrens Hospital	13123 East 16th Ave	Aurora	CO	80045	840166760	501c(3)	$48,000	TRAINING
Children's Hospital Corporation
300 Longwood Ave	13123 East 16th Ave	Boston	MA	021155737	042774441	501c(3)	$274,550	CF CARE CENTER
Children's Hospital Corporation
300 Longwood Ave		Boston	MA	021155737	042774441	501c(3)	$68,250	TRAINING
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med		Cincinnati	OH	45229	310833936	501c(3)	$118,320	CF CARE CENTER
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	Research Accounting	Cincinnati	OH	45229	310833936	501c(3)	$48,000	TRAINING
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	3333 Burnet Avenue	Cincinnati	OH	45229	310833936	501c(3)	$380,144	RESEARCH CENTER
Children's Hospital Medical Center Akron
One Perkins Square	Research Accounting	Akron	OH	443081062	340714357	501c(3)	$121,110	CF CARE CENTER
Children's Hospital Medical Center Akron
One Perkins Square		Akron	OH	443081062	340714357	501c(3)	$27,000	QUALITY IMPROVEMENT
Children's Hospital of Michigan
3663 Woodward Ave S Ste 200		Detroit	MI	48201	381357994	501c(3)	$75,230	CF CARE CENTER
Children's Hospital of Orange County
PO Box 5700		Orange	CA	926135700	952321786	501c(3)	$36,830	CF CARE CENTER
Children's Hospital of Pittsburgh
3705 Fifth Avenue		Pittsburgh	PA	15213	250402510	501c(3)	$249,340	CF CARE CENTER
Children's Hospital Los Angeles
Research Institute		Los Angeles	CA	90027	951690977	501c(3)	$87,200	CF CARE CENTER
Children's Hospital Los Angeles
Research Institute	4650 Sunset Blvd	Los Angeles	CA	90027	951690977	501c(3)	$13,160	QUALITY IMPROVEMENT
Children's Lung Specialists
3838 Meadows Lane	4650 Sunset Blvd	Las Vegas	NV	89107	880271963	501c(3)	$77,110	CF CARE CENTER
Children's Medical Center
One Childrens Plaza		Dayton	OH	454041815	310672132	501c(3)	$80,550	CF CARE CENTER
Children's Medical Center
One Childrens Plaza		Dayton	OH	45404	310672132	501c(3)	$13,160	QUALITY IMPROVEMENT
Children's Mercy Hospital
2401 Gillham Road		Kansas City	MO	64108	440605373	501c(3)	$115,160	CF CARE CENTER
Children's National Medical Center
111 Michigan Avenue NW		Washington	DC	20010	521654453	501c(3)	$85,300	CF CARE CENTER
Children's Respiratory Center
58 Bear Drive		Greenville	SC	29605	570971539	501c(3)	$36,620	CF CARE CENTER
Children's Specialty Group PLLC
811 Redgate Ave		Norfolk	VA	23507	541871633	501c(3)	$72,110	CF CARE CENTER
Christus Santa Rosa Healthcare
333 North Santa Rosa		San Antonio	TX	78207	741109665	501c(3)	$92,330	CF CARE CENTER
Connecticut Children's Medical Center
282 Washington Street		Hartford	CT	06106	060646755	501c(3)	$45,480	CF CARE CENTER
Cook Children's Medical Center CF Center
801 Seventh Avenue		Ft Worth	TX	76104	752051646	501c(3)	$137,890	CF CARE CENTER
Daughters of Charity Health Services of Austin
4900 Mueller Blvd		Austin	TX	78723	741109643	501c(3)	$99,970	CF CARE CENTER
Duke University
Office of Sponsored Programs		Durham	NC	27710	560532129	501c(3)	$59,980	CF CARE CENTER
East Tennessee Children's Hospital Association I
2100 Clinch Avenue 310	Box 104025	Knoxville	TN	37916	626002604	501c(3)	$75,180	CF CARE CENTER
Eastern Maine Medical Center
417 State Street		Bangor	ME	04401	010211501	501c(3)	$28,540	CF CARE CENTER
Emory University
1380 South Oxford Road	Suite 305	Atlanta	GA	30322	580566256	501c(3)	$26,914	ADULT CARE
Emory University
1380 South Oxford Road		Atlanta	GA	30322	580566256	501c(3)	$200,483	CF CARE CENTER
Emory University
1380 South Oxford Road		Atlanta	GA	30322	580566256	501c(3)	$150,000	RESEARCH
Emory University
1380 South Oxford Road		Atlanta	GA	30322	580566256	501c(3)	$43,200	PILOT STUDY
Emory University
1380 South Oxford Road		Atlanta	GA	30322	580566256	501c(3)	$52,250	TRAINING
Erlanger Health System
975 East Third Street		Chattanooga	TN	37403	626000101	501c(3)	$34,440	CF CARE CENTER
Erlanger Health System
975 East Third Street		Chattanooga	TN	37403	626000101	501c(3)	$13,160	QUALITY IMPROVEMENT
Faculty Physicians & Surgeons of LLUSM
Coleman Pavilion		Loma Linda	CA	92350	330672915	501c(3)	$50,540	CF CARE CENTER
Fairview Health Services - University of Minnesota
c/o Fairview Foundation	PO Box 2000	Minneapolis	MN	55454	416007513	501c(3)	$52,250	TRAINING
Fletcher Allen Health Care
111 Colchester Avenue	2200 Riverside Avenue	Burlington	VT	054011473	030219309	501c(3)	$85,390	CF CARE CENTER
Geisinger Medical Center
Pediatric Allergy Immunology Pul		Danville	PA	17822	236291113	501c(3)	$56,050	CF CARE CENTER
Georgia Health Sciences University
1120 15th Street	100 N Academy Drive	Augusta	GA	309128300	586002053	501c(3)	$92,330	CF CARE CENTER
Good Samaritan Hospital
1000 Montauk Highway		New York	NY	11795	111888924	501c(3)	$14,300	CF CARE CENTER
Goryeb Children's Hospital of Atlantic Health Syst
at Morristown Medical Center		Morristown	NJ	07960	521958352	501c(3)	$65,035	CF CARE CENTER
Gundersen Lutheran Medical Foundation
1900 South Avenue	100 Madison Avenue	La Crosse	WI	54601	391249705	501c(3)	$16,853	CF CARE CENTER
Hartford Hospital
Department of Medicine		Hartford	CT	06102	060646668	501c(3)	$46,470	CF CARE CENTER
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	80 Seymour Street	Rockville	MD	20852	521317896	501c(3)	$38,505	CF CARE CENTER
Indiana University
6368 Cascade Pointe Dr SE		Indianapolis	IN	46228	356001673	501c(3)	$5,537	TRAINING
Iowa Health Foundation (Blank Children's CF Center
1440 Ingersoll Avenue		Des Moines	IA	50309	421467682	501c(3)	$49,300	CF CARE CENTER
Johns Hopkins University School of Medicine
1830 E Monument Street 5th Floor		Baltimore	MD	21205	520595110	501c(3)	$85,950	RESEARCH
Kaiser Foundation Hospitals Center for Health Res
3800 North Interstate Avenue		Portland	OR	97227	911105628	501c(3)	$33,535	CF CARE CENTER
Kaiser Foundation Research Institute
1800 Harrison Street		OAKLAND	CA	94612	941105628	501c(3)	$141,410	CF CARE CENTER
Kaleida Health
219 Bryant Street	16th floor	Buffalo	NY	14209	161533232	501c(3)	$94,590	CF CARE CENTER
Landon Pediatric Foundation
3291 Loma Vista Road		Ventura	CA	93003	931097216	501c(3)	$25,690	CF CARE CENTER
Lee Memorial Health System Foundation Inc
9800 S HealthPark Dr	Building 340 Suite 302	Ft Myers	FL	339083630	650645343	501c(3)	$19,460	CF CARE CENTER
Lehigh Valley Hospital
Pediatric Specialty Center		Bethlehem	PA	18017	231689692	501c(3)	$18,200	CF CARE CENTER
Long Island Jewish Medical Center
Finance Department	2545 Schoenersville Road	Westbury	NY	11590	112241326	501c(3)	$92,630	CF CARE CENTER
Loyola University of Chicago
2160 S First Avenue	972 Brushhollow Road	Maywood	IL	60153	361408475	501c(3)	$46,800	CF CARE CENTER
LSUMC - Shreveport
P O Box 33932		Shreveport	LA	71130	720702002	501c(3)	$76,080	CF CARE CENTER
Lutheran Hospital of Indiana
7950 West Jefferson Boulevard		FT Wayne	IN	46804	351963748	CORP	$36,720	CF CARE CENTER
Maine Medical Center
22 Bramhall Street		Portland	ME	04102	010238552	501c(3)	$92,680	CF CARE CENTER
Marshfield Clinic Research Foundation
1000 North Oak Avenue		Marshfield	WI	54449	390452970	501c(3)	$16,973	CF CARE CENTER
Mary Bridge Children's Foundation
311 South L Street		Tacoma	WA	98405	943030039	501c(3)	$35,350	CF CARE CENTER
Medical University of South Carolina
PO Box 997	Mailstop B1-OC	Charleston	SC	29402	576000722	501c(3)	$67,270	CF CARE CENTER
Memorial Medical Center Foundation
2801 Atlantic Avenue		Long Beach	CA	908011428	956105984	501c(3)	$116,430	CF CARE CENTER
Miami Children's Hospital
MOB 203	PO Box 1428	Miami	FL	33155	590638499	501c(3)	$26,460	CF CARE CENTER
Michigan State UniversityKCMS
1000 Oakland Drive	3200 SW 60th Court	Kalamazoo	MI	49001	386005984	501c(3)	$52,520	CF CARE CENTER
Mission Healthcare Foundation Inc
980 Hendersonville Road		Asheville	NC	28803	561881331	501c(3)	$9,784	CF CARE CENTER
Monmouth Medical Center Foundation
300 Second Avenue	Suite C	Long Branch	NJ	07740	222456079	501c(3)	$62,370	CF CARE CENTER
National Jewish Medical and Research Center
1400 Jackson Street	Box 3500	Denver	CO	80206	742044647	501c(3)	$122,290	CF CARE CENTER
National Jewish Medical and Research Center
1400 Jackson Street		Denver	CO	80206	742044647	501c(3)	$96,760	RESEARCH
Nemours Children's Clinic Jacksonville
807 Nira Street		Jacksonville	FL	32207	590634433	501c(3)	$208,650	CF CARE CENTER
Nemours Children's Clinic Jacksonville
807 Nira Street		Jacksonville	FL	32207	590634433	501c(3)	$21,600	QUALITY IMPROVEMENT
New York University School of Medicine
550 First Avenue		New York	NY	10016	135562308	501c(3)	$43,790	CF CARE CENTER
New York University School of Medicine
550 First Avenue		New York	NY	10016	135562308	501c(3)	$21,600	QUALITY IMPROVEMENT
North Suburban Pulmonary Research and Education
8780 W Gold		Niles	IL	60714	364393617	501c(3)	$8,000	CF CARE CENTER
Northwest Permanente PC
500 NE Multnomah Street	Suite 102	Portland	OR	97232	930698548	CORP	$27,000	ADULT CARE
Northwestern Medical Faculty Foundation
Financial Services	Suite 100	Chicago	IL	60611	363097297	501c(3)	$8,000	CF CARE CENTER
Northwestern University
750 N Lake Shore Drive	680 N Lake Shore Dr Suite 1118	Chicago	IL	606113008	362167817	501c(3)	$27,000	ADULT CARE
Oregon Health & Science University
Sponsored Projects Administration O	Rubloff 7th Floor	Portland	OR	97239	237083114	501c(3)	$169,075	CF CARE CENTER
Oregon Health & Science University
Sponsored Projects Administration O	0690 SW Bancroft Street	Portland	OR	97239	237083114	501c(3)	$43,200	PILOT STUDY
Oregon Health & Science University
Sponsored Projects Administration O	0690 SW Bancroft Street	Portland	OR	97239	237083114	501c(3)	$13,160	QUALITY IMPROVEMENT
Orlando Health Foundation
3160 Southgate Commerce Blvd	0690 SW Bancroft Street	Orlando	FL	32806	592244943	501c(3)	$35,630	CF CARE CENTER
Pennsylvania State University
College of Medicine	Suite 50	Hershey	PA	17033	246000376	IRC 115	$132,530	CF CARE CENTER
Philadelphia Health & Education Corp (Drexel Univ
3201 Arch Street	Office of Research Affairs H138	Philadelphia	PA	19104	232979433	501c(3)	$90,810	CF CARE CENTER
Phoenix Children's Hospital
1300 North 12th Street	Suite 420	Phoenix	AZ	85006	860422559	501c(3)	$142,900	CF CARE CENTER
Providence Alaska Medical Center
3200 Providence Drive		Anchorage	AK	995196604	920016429	501c(3)	$30,810	CF CARE CENTER
Providence Physician Service
101 W 8th Ave	PO Box 196604	Spokane	WA	99204	911216033	501c(3)	$67,800	CF CARE CENTER
Regents of the University of Colorado
Grants Contracts		Aurora	CO	800450508	846000555	501c(3)	$126,327	TRAINING
Regents of the University of Colorado at Denver
Grants and Contracts Mail Stop F42	F428 Fitzsimons Building 500	Aurora	CO	80045	846000555	501c(3)	$68,250	TRAINING
Renown Regional Medical Center Children's Hospital
1155 Mill St Z-5	Anschutz Medical Campus Bldg 500	Reno	NV	89503	942972749	501c(3)	$16,840	CF CARE CENTER
Rhode Island Hospital
593 Eddy Street		Providence	RI	02903	050258954	501c(3)	$57,880	CF CARE CENTER
RUSH PRESBYTERIANSTLUKE'S MEDICAL CENTER
1725 West Harrison Street		CHICAGO	IL	60612	362174823	501c(3)	$13,160	QUALITY IMPROVEMENT
Rush University Medical Center
1725 West Harrison Suite 718	Suite 054	Chicago	IL	60612	362174823	501c(3)	$46,550	CF CARE CENTER
Saint Barnabas Medical Center
Saint Barnabas Medical Center		Livingston	NJ	07039	221494440	501c(3)	$22,030	CF CARE CENTER
Saint Francis Medical Center
530 NE Glen Oak Avenue	Pediatric Pulmonary Division	Peoria	IL	61637	370662569	501c(3)	$54,410	CF CARE CENTER
Saint Joseph's Hospital and Medical Center
703 Main Street		Paterson	NJ	07503	221487602	501c(3)	$21,250	CF CARE CENTER
Samaritan Medical Center
Child Adolescent Health Services		Watertown	NY	13601	150533577	501c(3)	$10,480	CF CARE CENTER
Sanford Children's Specialty Clinic
1305 W 18th Street	513 Washington Street	Sioux Falls	SD	571175039	460447693	501c(3)	$62,330	CF CARE CENTER
Scott & White Memorial Hospital
2401 South 31st Street		Temple	TX	76508	741166904	501c(3)	$23,300	CF CARE CENTER
Seattle Children's Hospital Foundation
6901 Sand Point Way NE		Seattle	WA	981050371	910564748	501c(3)	$103,490	CF CARE CENTER
South Broward Hospital District
Joe DiMaggios Childrens Hospital		Hollywood	FL	33321	596014973	501c(3)	$66,460	CF CARE CENTER
Spectrum Health Foundation
Downtown Campus	Cystic Fibrosis Clinic	Grand Rapids	MI	49503	382752328	501c(3)	$125,810	CF CARE CENTER
St Alexius Medical Center
PO Box 5510	100 Michigan Street NE MC 004	Bismarck	ND	585065510	450226711	501c(3)	$28,670	CF CARE CENTER
St Joseph's Regional Medical Center Inc
611 East Cedar Street		Mishawaka	IN	465451468	351568821	501c(3)	$28,070	CF CARE CENTER
St Louis University
3500 Lindell Blvd	Suite 405	St Louis	MO	63103	430654872	501c(3)	$98,200	CF CARE CENTER
St Louis University
3500 Lindell Blvd		St Louis	MO	63103	430654872	501c(3)	$380,249	RESEARCH CENTER
St Louis University
3500 Lindell Blvd		St Louis	MO	63103	430654872	501c(3)	$27,000	QUALITY IMPROVEMENT
St Luke's Cystic Fibrosis Center of Idaho
100 E Idaho Ste 200		Boise	ID	83712	820161600	501c(3)	$58,800	CF CARE CENTER
Stony Brook University Hospital
Division of Pediatric Pulmonary		Stony Brook	NY	117943362	141368361	501c(3)	$144,260	CF CARE CENTER
Sutter Medical Center Sacramento
5609 J Street Suite C	HSC T11-080	Sacramento	CA	95819	941156621	501c(3)	$51,120	CF CARE CENTER
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620		West Palm Beach	FL	33407	752932830	CORP	$38,280	CF CARE CENTER
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	901 45th Street	West Palm Beach	FL	33407	752932830	CORP	$13,160	QUALITY IMPROVEMENT
Texas Tech University Health Sciences Center
3601 4th Street	901 45th Street	Lubbock	TX	79430	752668014	IRC 115	$9,870	CF CARE CENTER
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Mail Stop 6591	Philadelphia	PA	191044318	231352166	501c(3)	$134,690	CF CARE CENTER
The Children's Hospital of Philadelphia
3516 Civic Center Blvd		Philadelphia	PA	191044318	231352166	501c(3)	$52,250	TRAINING
The Curators of the University of Missouri
Office of Sponsored Program Adminis		Columbia	MO	65211	436003859	501c(3)	$74,020	CF CARE CENTER
The Curators of the University of Missouri
Office of Sponsored Program Adminis	310 Jesse Hall	Columbia	MO	65211	436003859	501c(3)	$125,000	RESEARCH
The Curators of the University of Missouri
Office of Sponsored Program Adminis	310 Jesse Hall	Columbia	MO	65211	436003859	501c(3)	$42,750	RESEARCH STUDY
The Cystic Fibrosis Center at St Vincent's Hospit
36 Seventh Avenue Suite 509	310 Jesse Hall	New York	NY	10011	135562343	501c(3)	$21,137	QUALITY IMPROVEMENT
The Feinstein Institute for Medical Research
350 Community Drive		Manhasset	NY	11030	112673595	501c(3)	$27,000	ADULT CARE
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance		Boston	MA	02114	042697983	501c(3)	$101,750	CF CARE CENTER
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	PO Box 414876	Boston	MA	02114	042697983	501c(3)	$13,160	QUALITY IMPROVEMENT
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	PO Box 414876	Boston	MA	02114	042697983	501c(3)	$215,000	RESEARCH
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	PO Box 414876	Boston	MA	02114	042697983	501c(3)	$86,350	RESEARCH STUDY
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	PO Box 414876	Boston	MA	02114	042697983	501c(3)	$172,841	TRAINING
The Hitchcock Foundation
One Medical Center Drive	PO Box 414876	Lebanon	NH	03756	020222139	501c(3)	$99,180	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$242,480	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$54,000	RESEARCH STUDY
The Johns Hopkins University
600 N Wolfe Street Park 316		Baltimore	MD	21205	520595110	501c(3)	$86,314	PILOT STUDY
The Medical College of Wisconsin
8701 Watertown Plk Rd		Milwaukee	WI	53226	390806261	501c(3)	$146,000	CF CARE CENTER
The Ohio State University
1960 Kenny Road		Columbus	OH	43210	316025986	IRC 115	$46,050	RESEARCH STUDY
The President & Fellows of Harvard College
25 Shattuck Street		Boston	MA	02115	042103580	501c(3)	$97,200	RESEARCH
The Rector and Visitors of the University of Virgi
PO Box 400195		Charlottesville	VA	229044195	546001796	501c(3)	$27,000	ADULT CARE
The Rector and Visitors of the University of Virgi
PO Box 400195	Office of Sponsored Programs	Charlottesville	VA	229044195	546001796	501c(3)	$130,420	CF CARE CENTER
The Regents of the University of California Davis
Cashiers Office 1200 Dutton Hall	Office of Sponsored Programs	Davis	CA	95616	946036494	501c(3)	$72,520	CF CARE CENTER
The Regents of the University of California San D
Office of Post Award Financial Serv	One Shields Avenue	La Jolla	CA	920930954	956006144	501c(3)	$131,600	CF CARE CENTER
The Regents of the University of California San F
UCSF Office of Sponsored Research	9500 Gilman Drive Dept 0934	San Francisco	CA	941430962	946036493	501c(3)	$27,000	ADULT CARE
The Regents of the University of California San F
UCSF Office of Sponsored Research	3333 California Street Suite 315	San Francisco	CA	941430962	946036493	501c(3)	$81,550	CF CARE CENTER
The Regents of the University of California San F
UCSF Office of Sponsored Research	3333 California Street Suite 315	San Francisco	CA	941430962	946036493	501c(3)	$43,200	PILOT STUDY
The Regents of the University of California San F
UCSF Office of Sponsored Research	3333 California Street Suite 315	San Francisco	CA	941430962	946036493	501c(3)	$148,250	TRAINING
The Regents of the University of California San F
UCSF Office of Sponsored Research	3333 California Street Suite 315	San Francisco	CA	941430962	946036493	501c(3)	$460,000	RESEARCH CENTER
The Regents of the University of Michigan
3003 South State Street Room 3089	3333 California Street Suite 315	Ann Arbor	MI	481091274	386006309	501c(3)	$168,805	CF CARE CENTER
The Regents of The University of Michigan
3003 South State Street		Ann Arbor	MI	481091274	386006309	501c(3)	$43,200	PILOT STUDY
The Regents of the University of Michigan
3003 South State Street Room 3089	Room 1044	Ann Arbor	MI	481091274	386006309	501c(3)	$48,000	TRAINING
The Regents of the University of Michigan
3003 South State Street Room 3089		Ann Arbor	MI	481091274	386006309	501c(3)	$21,600	QUALITY IMPROVEMENT
The Regents of the University of Minnesota
Sponsored Projects Administration		Minneapolis	MN	554552070	416007513	501c(3)	$333,190	CF CARE CENTER
The Research Institute at Nationwide Children's H
Huntington National Bank	200 Oak St SE	Columbus	OH	43260	316056230	501c(3)	$27,000	ADULT CARE
The Research Institute at Nationwide Children's H
Huntington National Bank	Dept 4656 / Ref 413407	Columbus	OH	43260	316056230	501c(3)	$228,740	CF CARE CENTER
The Tampa General Hospital Foundation
PO Box 1289	Dept 4656 / Ref 413407	Tampa	FL	33601	237354477	501c(3)	$74,780	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace		New York	NY	10027	135598093	501c(3)	$141,340	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace		New York	NY	10027	135598093	501c(3)	$48,000	TRAINING
The Trustees of Columbia University in the City of
351 Engineering Terrace		New York	NY	10027	135598093	501c(3)	$13,160	QUALITY IMPROVEMENT
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$301,784	CF CARE CENTER
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$90,909	RESEARCH
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$500,000	RESEARCH CENTER
The University of Alabama at Birmingham
1530 3rd Ave S THT422		Birmingham	AL	352940006	636005396	501c(3)	$81,000	QUALITY IMPROVEMENT
The University of Chicago
5801 S Ellis Avenue		Chicago	IL	60637	362177139	501c(3)	$57,630	CF CARE CENTER
The University of Chicago
5801 S Ellis Avenue		Chicago	IL	60637	362177139	501c(3)	$75,000	RESEARCH
The University of North Carolina at Chapel Hill
North Carolina State Treasurer		Chapel Hill	NC	275991350	566001393	501c(3)	$267,864	CF CARE CENTER
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Office of Sponsored Research	Chapel Hill	NC	275991350	566001393	501c(3)	$86,400	PILOT STUDY
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Office of Sponsored Research	Chapel Hill	NC	275991350	566001393	501c(3)	$275,150	RESEARCH
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Office of Sponsored Research	Chapel Hill	NC	275991350	566001393	501c(3)	$100,250	TRAINING
The University of Texas at Austin
P O Box 7726	Office of Sponsored Research	Austin	TX	787137726	746000203	501c(3)	$42,750	RESEARCH STUDY
The University of Texas at Austin
P O Box 7726		Austin	TX	787137726	746000203	501c(3)	$43,200	PILOT STUDY
The University of Vermont and State Agricultural C
85 So Prospect Street		Burlington	VT	054050160	030179440	501c(3)	$54,000	ADULT CARE
The University of Vermont and State Agricultural C
85 So Prospect Street		Burlington	VT	054050160	030179440	501c(3)	$43,600	RESEARCH STUDY
Toledo Children's Hospital
2142 N Cove Blvd		Toledo	OH	43606	344428256	501c(3)	$89,880	CF CARE CENTER
Trustees of Boston University
881 Commonwealth Avenue		Boston	MA	02215	042103547	501c(3)	$96,000	TRAINING
Trustees of Dartmouth College
11 Rope Ferry Road 6210		Hanover	NH	037551404	020222111	501c(3)	$25,754	ADULT CARE
Trustees of Dartmouth College
11 Rope Ferry Road 6210		Hanover	NH	037551404	020222111	501c(3)	$42,750	RESEARCH STUDY
Trustees of Dartmouth College
11 Rope Ferry Road 6210		Hanover	NH	037551404	020222111	501c(3)	$346,667	RESEARCH CENTER
Trustees of Dartmouth College
Dartmouth Medical School		Hanover	NH	037551404	020222111	501c(3)	$448,849	QUALITY IMPROVEMENT
Trustees of Indiana University
Financial Management Services	Dept of Microbiology and Immunolog	Bloomington	IN	462666057	356001673	501c(3)	$214,420	CF CARE CENTER
Trustees of Indiana University
Financial Management Services	PO Box 66057	Bloomington	IN	462666057	356001673	501c(3)	$48,000	TRAINING
Trustees of Indiana University
Financial Management Services	PO Box 66057	Bloomington	IN	462666057	356001673	501c(3)	$21,600	QUALITY IMPROVEMENT
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	PO Box 66057	Philadelphia	PA	191043246	231352685	501c(3)	$54,000	ADULT CARE
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine		Philadelphia	PA	191043246	231352685	501c(3)	$66,513	RESEARCH CENTER
Trustees of the University of Pennsylvania on beha
3451 Walnut Street		Philadelphia	PA	19104	231352685	501c(3)	$116,640	CF CARE CENTER
Tulane University Medical School
6401 Freret St	Franklin Bldg P-221	New Orleans	LA	70118	720423889	501c(3)	$27,000	ADULT CARE
Tulane University Medical School
6401 Freret St		New Orleans	LA	70118	720423889	501c(3)	$110,200	CF CARE CENTER
UMDNJ- Robert Wood Johnson Medical School
UMDNJ		New Brunswick	NJ	08903	221775306	501c(3)	$61,900	CF CARE CENTER
University at Buffalo Pediatric Associates
239 Bryant Street	1 Robert Wood Johnson Place	Buffalo	NY	14222	161238821	501c(3)	$80,998	QUALITY IMPROVEMENT
University Hospitals of Cleveland
2074 Abingdon Road	2nd Floor	Cleveland	OH	44106	340714775	501c(3)	$318,380	CF CARE CENTER
University Hospitals of Cleveland
2074 Abingdon Road		Cleveland	OH	44106	340714775	501c(3)	$26,875	QUALITY IMPROVEMENT
University of Arkansas for Medical Sciences
4301 West Markham Street		Little Rock	AR	72205	716046242	501c(3)	$52,510	CF CARE CENTER
University of Arkansas for Medical Sciences
4301 West Markham Street	Mail Slot 555	Little Rock	AR	72205	716046242	501c(3)	$13,160	QUALITY IMPROVEMENT
University of Cincinnati Physicians Company
231 Albert Sabin Way	Mail Slot 555	Cincinnati	OH	452670564	311405915	501c(3)	$53,360	CF CARE CENTER
University of Florida
Shands Childrens Hospital	MSB 60048	Gainsville	FL	32610	596002052	IRC 115	$95,250	CF CARE CENTER
University of Florida
Shands Childrens Hospital	1600 SW Archer Rd Suite D2-15	Gainsville	FL	32610	596002052	IRC 115	$20,947	QUALITY IMPROVEMENT
University of Florida
Shands Childrens Hospital	1600 SW Archer Rd Suite D2-15	Gainsville	FL	32610	596002052	IRC 115	$27,000	ADULT CARE
University of Iowa
Grant Accounting Office	1600 SW Archer Rd Suite D2-15	Iowa City	IA	52242	426004813	501c(3)	$127,910	CF CARE CENTER
University of Iowa
Grant Accounting Office	B 5 Jessup Hall	Iowa City	IA	52242	426004813	501c(3)	$192,972	RESEARCH
University of Iowa
Grant Accounting Office	B 5 Jessup Hall	Iowa City	IA	52242	426004813	501c(3)	$43,200	PILOT STUDY
University of Iowa
Grant Accounting Office	B 5 Jessup Hall	Iowa City	IA	52242	426004813	501c(3)	$49,750	TRAINING
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard MSN 1039	B 5 Jessup Hall	Kansas City	KS	661032937	481108830	501c(3)	$27,000	ADULT CARE
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard MSN 1039		Kansas City	KS	661032937	481108830	501c(3)	$92,540	CF CARE CENTER
University of Kentucky Research Foundation
Kentucky CF Clinic J424		Lexington	KY	405360284	616033693	501c(3)	$113,690	CF CARE CENTER
University of Louisville Research Foundation Inc
Office of Grants Management	740 South Limestone	Louisville	KY	40292	611029626	501c(3)	$106,730	CF CARE CENTER
University of Maryland
650 W Baltimore St - 8 South	Jouett Hall Belknap Campus	Baltimore	MD	21201	526002033	IRC 115	$17,861	RESEARCH
University of Maryland - College Park
3112 Lee Building		College Park	MD	207425141	526002033	IRC 115	$43,200	PILOT STUDY
University of Massachusetts Medical Center
55 Lake Avenue		Worcester	MA	10655	043167352	IRC 115	$68,320	CF CARE CENTER
University of Miami
Pediatric/Pulmonary Division		Miami	FL	33136	590624458	501c(3)	$67,630	CF CARE CENTER
University of Miami
Pediatric/Pulmonary Division	1601 NW 12th Avenue	Miami	FL	33136	590624458	501c(3)	$27,000	QUALITY IMPROVEMENT
University of Mississippi Medical Center
2500 North State Street	1601 NW 12th Avenue	Jackson	MS	392164505	646008520	501c(3)	$27,000	ADULT CARE
University of Mississippi Medical Center
2500 North State Street		Jackson	MS	392164505	646008520	501c(3)	$73,390	CF CARE CENTER
University of Mississippi Medical Center
2500 North State Street		Jackson	MS	392164505	646008520	501c(3)	$13,160	QUALITY IMPROVEMENT
University of Nebraska Medical Center
Service Building		Omaha	NE	681987835	470049123	501c(3)	$148,850	CF CARE CENTER
University of Nebraska Medical Center
Service Building	985100 Nebraska Medical Center	Omaha	NE	681987835	470049123	501c(3)	$27,000	QUALITY IMPROVEMENT
University of New Mexico Health Sciences Center
Controllers Office	985100 Nebraska Medical Center	Albuquerque	NM	871315041	856000642	IRC 115	$27,000	ADULT CARE
University of New Mexico Health Sciences Center
Controllers Office	Health Sciences and Services Bldg	Albuquerque	NM	871315041	856000642	IRC 115	$74,490	CF CARE CENTER
University of Oklahoma Health Sciences Center
PO Box 26901	Health Sciences and Services Bldg	Oklahoma City	OK	73190	736017987	IRC 115	$116,770	CF CARE CENTER
University of Oklahoma Health Sciences Center
PO Box 26901		Oklahoma City	OK	73190	736017987	IRC 115	$26,320	QUALITY IMPROVEMENT
University of Pittsburgh
350 Thackeray Hall		Pittsburgh	PA	15260	250965591	501c(3)	$97,200	RESEARCH
University of Pittsburgh
350 Thackeray Hall		Pittsburgh	PA	15260	250965591	501c(3)	$97,200	PILOT STUDY
University of Pittsburgh
350 Thackeray Hall		Pittsburgh	PA	15260	250965591	501c(3)	$48,000	TRAINING
University of Pittsburgh
350 Thackeray Hall		Pittsburgh	PA	15260	250965591	501c(3)	$460,000	RESEARCH CENTER
University of Rochester
1325 Mt Hope Avenue		Rochester	NY	14642	160743209	501c(3)	$84,700	CF CARE CENTER
University of South Carolina Research Foundation
901 Sumter Street	Suite 260	Columbia	SC	29208	570967350	501c(3)	$37,870	CF CARE CENTER
University of South Florida
Department of Pediatrics	Suite 501	Tampa	FL	33606	593102112	IRC 115	$28,060	CF CARE CENTER
University of Southern California
USC Contracts and Grants	17 Davis Boulevard Suite 200	Los Angeles	CA	900339002	951642394	501c(3)	$89,000	CF CARE CENTER
University of Tennessee
62 S Dunlap	1540 Alcazar Street	Memphis	TN	38163	626001636	IRC 115	$85,570	CF CARE CENTER
University of Tennessee Medical Center
1940 Alcoa Hwy		Knoxville	TN	37920	311626179	501c(3)	$34,250	CF CARE CENTER
University of Texas Health Center at Tyler
11937 US Hwy 271	Suite E-110	Tyler	TX	75708	756001354	501c(3)	$42,410	CF CARE CENTER
University of Texas Health Science Center Houston
P O Box 20036		Houston	TX	772250036	741761309	501c(3)	$97,200	RESEARCH
University of Utah
406 Park Bldg		Salt Lake City	UT	84112	876000525	501c(3)	$224,590	CF CARE CENTER
University of Washington
4333 Brooklyn Avenue NE Box 359472		Seattle	WA	981959472	916001537	IRC 115	$98,280	CF CARE CENTER
University of Washington
4333 Brooklyn Avenue NE Box 359472		Seattle	WA	981959472	916001537	IRC 115	$433,900	RESEARCH
University of Washington
4333 Brooklyn Avenue NE Box 359472		Seattle	WA	981959472	916001537	IRC 115	$500,000	RESEARCH CENTER
University of Washington
4333 Brooklyn Avenue NE Box 359472		Seattle	WA	981959472	916001537	IRC 115	$45,800	RESEARCH STUDY
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd		Dallas	TX	753909040	756002868	IRC 115	$199,120	CF CARE CENTER
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd		Dallas	TX	753909040	756002868	IRC 115	$43,200	PILOT STUDY
Utah Department of Health
44 Mario Capecchi Drive		Salt Lake City	UT	84114	876000545	OTHER-GOV'T	$19,543	QUALITY IMPROVEMENT
Vanderbilt University
PO Box 30195	PO BOX 144710	Nashville	TN	372410195	620476822	501c(3)	$191,220	CF CARE CENTER
Vanderbilt University
PO Box 30195		Nashville	TN	372410195	620476822	501c(3)	$68,250	TRAINING
Vanderbilt University
PO Box 30195		Nashville	TN	372410195	620476822	501c(3)	$42,750	RESEARCH STUDY
Via Christi Regional Medical Center CF Clinic
3311 East Murdock Street		Wichita	KS	67218	481172106	501c(3)	$51,700	CF CARE CENTER
Virginia Commonwealth University
Box 2506 - VCU Station		Richmond	VA	232842506	546001758	501c(3)	$60,730	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd		WinstonSalem	NC	271571064	223849199	501c(3)	$60,480	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd		WinstonSalem	NC	271571064	223849199	501c(3)	$13,160	QUALITY IMPROVEMENT
Washington University
Campus Box 1034		St Louis	MO	631121408	430653611	501c(3)	$228,032	CF CARE CENTER
Washington University
Campus Box 1034	700 Rosedale Avenue	St Louis	MO	631121408	430653611	501c(3)	$20,683	QUALITY IMPROVEMENT
Wayne State University
Grants Contracts Office III	700 Rosedale Avenue	Detroit	MI	48201	386028425	501c(3)	$48,160	CF CARE CENTER
West Virginia University Research Corporation
West Virginia University	Research and Sponsored Programs	Morgantown	WV	265066001	550665758	501c(3)	$72,880	CF CARE CENTER
West Virginia University Research Corporation
West Virginia University	PO Box 6001	Morgantown	WV	265066001	550665758	501c(3)	$13,160	QUALITY IMPROVEMENT
Yale University
47 College Street Suite 203	PO Box 6001	New Haven	CT	065208047	060646973	501c(3)	$69,190	CF CARE CENTER
Yale University
47 College Street Suite 203		New Haven	CT	065208047	060646973	501c(3)	$26,320	QUALITY IMPROVEMENT
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501c(3)	$43,600	RESEARCH STUDY
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
NORTH CAROLINA STATE TREASURER	OFFICE OF SPONSORED RESEARCH	CHAPEL HILL	NC	275991350	566001393	501C(3)	$460,000	RESEARCH CENTER

Field	Value	IRS element (for citing)
Total501c3 Org	174	Total501c3OrgCnt
Total Other Org	6	TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)

Grant TypeGrantTypeTxt	RecipientRecipientCnt	Cash GrantCashGrantAmt
PATIENT ASSISTANCE PROGRAM	1099	$1,870,333
FELLOWSHIPS	5	$30,141

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2	FormAndLineReferenceDesc
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	false	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (true)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	false	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	false	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	false	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	false	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	false	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (true)	AnyNonFixedPaymentsInd
Initial Contract Exception	false	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Robert J Beall PhD
PRESIDENT & CEO	$380,301	$190,871	$336,101	$165,543	$20,911	$8,150	$171,595	$71,686	$18,506	$0	$927,414	$436,250	$193,934	$95,519
C Richard Mattingly
EXEC VP, COO & SECRETARY	$387,406	$0	$341,899	$0	$23,165	$0	$203,248	$0	$17,506	$0	$973,224	$0	$215,658	$0
Preston W Campbell MD
EXEC VP FOR MEDICAL AFFAIRS	$254,125	$129,788	$223,848	$110,254	$318,935	$154,197	$127,555	$49,994	$25,365	$0	$949,828	$444,233	$345,168	$170,010
Vera H Twigg
SR. VP & CFO	$292,024	$0	$174,583	$0	$20,244	$0	$66,034	$0	$25,315	$0	$578,200	$0	$90,322	$0
Ann Palmer
SR. VICE PRESIDENT OF FIELD MG	$156,039	$0	$41,308	$0	$1,536	$0	$21,547	$0	$19,930	$0	$240,360	$0	$0	$0
DAVID MCLOUGHLIN
SR. VICE PRESIDENT OF OPS	$245,504	$0	$39,643	$0	$1,241	$0	$31,052	$0	$25,366	$0	$342,806	$0	$0	$0
DANIEL KLEIN
SR VP, PATIENT ACCESS PROGS	$207,204	$0	$33,158	$0	$3,445	$0	$29,595	$0	$2,500	$0	$275,902	$0	$0	$0
GLEN GOLDMARK
VP OF HUMAN RESOURCES	$190,152	$0	$38,111	$0	$2,706	$0	$28,548	$0	$17,206	$0	$276,723	$0	$0	$0
GREGORY AUGUST
CHIEF INFORMATION OFFICER	$195,767	$0	$33,489	$0	$426	$0	$28,789	$0	$22,866	$0	$281,337	$0	$0	$0
AMY DEMARIA
SR VP OF COMMUNICATIONS	$191,555	$0	$35,243	$0	$602	$0	$27,823	$0	$7,622	$0	$262,845	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 4B AND 7

Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to the designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Several individuals listed in Form 990, Part VII, Section A, line 1a, (who are identified in Part II, below) participated in the Foundation's Incentive Compensation Plan, from which non-fixed payments not described in lines 5 and 6 were paid. The Incentive Compensation Plan pays non-fixed payments subject to, and based on, the achievement of annual performance objectives established in advance by the Compensation Committee of the Board of Trustees. In addition, the Incentive Compensation Plan pays non-fixed payments that relate to a three-year performance period, subject to, and based on, the achievement of long-term performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include royalty-related revenues (such as royalty streams, lump-sum royalty payments and sales proceeds of royalty rights) related to CF drugs.

PART II

Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $364,891, 401(k) bonus - $15,410; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $129,736, long-term incentive plan payment, of which $193,934 was previously reported (6) - $206,365; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,349, automobile allowance - $4,824, other benefits including taxable general organization group term life insurance premium - $12,738; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $79,883, SERP (4) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $11,282, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $183,281, 401(k) bonus - $7,590; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $63,900, long-term incentive plan payment, of which $95,519 was previously reported (6) - $101,643; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,649, automobile allowance - $2,376, other benefits - $4,125 (C) Deferred Compensation: long-term incentive plan benefit (6) - $39,346, SERP (4) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $254,125; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $71,937, long-term incentive plan payment, of which $142,760 was previously reported (6) - $151,911; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $5,867, Section 457(b) Plan (5) - $11,725, SERP account that became vested, of which $202,408 was previously reported (3) - $301,343; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $59,896, SERP (4) - $41,607; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $15,982, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,883 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $129,788; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $35,431, long-term incentive plan payment, of which $70,315 was previously reported (6) - $74,823; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,775, SERP account that became vested, of which $99,695 was previously reported (3) - $148,422; (C) Deferred Compensation: long-term incentive plan benefit (6) - $29,501, SERP (4) - $20,493; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $387,406; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $112,417, long-term incentive plan payment, of which $215,658 was previously reported (6) - $229,482; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,500; other benefits including taxable general organization group term life insurance premium - $5,665; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $88,833, SERP (4) - $88,363; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $11,282, employee contribution to flexible spending account benefit - $1,500, employee contribution to general organization health plan benefit - $4,724 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $292,024; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $78,471, long-term incentive plan payment, of which $90,322 was previously reported (6) - $96,112; (B)(iii) Other Reportable Compensation: taxable general organization group term life insurance premium - $2,744, Section 457(b) Plan (5) - $17,500; (C) Deferred Compensation: retirement benefit (2) - $26,052, long-term incentive plan benefit (6) - $35,067, SERP (4) - $4,915; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $15,982, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $6,833 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the Board. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2013 Plan Year. (3) This amount is the aggregate of employer contributions to the SERP that were earned by the participant and accrued from 2007 through 2012, and which became vested (but have not yet been paid, in accordance with the governing SERP documents) during the reporting year. As required, SERP contributions have been reported as "Contributions to Employee Benefit Plans" and "Deferred Compensation" on prior years' Form 990s and therefore (as required by the instructions) are double-reported here. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or date, depending on the participant). C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board. Any financial performance objectives established under the Incentive Compensation Plan do not include royalty-related revenues (such as royalty streams, lump-sum royalty payments and sales proceeds of royalty rights) related to CF drugs. Each year, a new three-year performance period begins. As required by the Form 990 instructions, the amounts reported on this Form 990 reflect an estimate of the portion of each award that the executive accrued under the Plan for performance in 2013 (i.e., with respect to the 2011-2013, 2012-2014 and the 2013-2015 performance periods), but the amounts reported have not been earned, awarded or paid under the Plan. The individual must be employed on 12/31/14 and 12/31/15 to be eligible to receive full payment of the award for the 2012-2014, and the 2013-2015 performance periods, respectively. The award relating to the 3-year performance period ending 12/31/12 was paid in 2013, and is properly reported again (as compensation) on this Form 990.)

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART III, LINE 4D	Community Services - The Cystic Fibrosis Foundation provides year-round efforts to educate, inform and empower individuals with CF and their families about the latest developments in treatment and care. The programs are designed to help the general public in the detection of the disease by providing a referral service and handling inquiries concerning cystic fibrosis. Approximately 28,100 people with CF were served in 2013, including approximately 959 individuals who were newly diagnosed.
PART VI, SECTION B, LINE 11B (PAGE 6 CORE FORM)	The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Board of Trustees receives a complete copy of the final Form 990 before it is filed.
PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM)	A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2013 and had no conflicts of interest as defined by the policy.
PART VI, SECTION B, LINE 15A AND 15B (PAGE 6 CORE FORM)	The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of curing cystic fibrosis and providing all people with the disease the opportunity to lead full, productive lives. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following offices and positions: President & CEO Executive Vice President & COO Executive Vice President for Medical Affairs Executive Vice President & CFO Senior VP, Patient Access Programs The process was last undertaken in 2012 (and again in 2014).
PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM)	Forms 1023 and 990-T for the Organization were available on its website, CFF.org and the Organization's website provided a direct link to its Form 990 on Guidestar.org. The Foundation's governing documents (Bylaws and Articles of Incorporation) were available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents was also available on the Foundation's website, www.cff.org during 2013. The Board and Officer Conflict of Interest Policy and the audited financial statements were available on the Foundation's website, www.cff.org during 2013.
FORM 990, PART VII, SECTION A	NAME AND TITLE MICHAEL L. BEATTY, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE J. TAYLOR CRANDALL, TRUSTee AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD L. DANDURAND, VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD J. GRAY, VICE CHAIRMEN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE BARRY M. GUMP, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE SUSAN L. HOOK, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, CHAIR AVG HRS WORKED 8 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHAD T. MOORE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE DAVID A. MOUNT, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE GARY B. SABIN, VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHRISTY L. SHAFFER PHD., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 8 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHARLES J. THAYER, TREASURER AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE AMY S. WEINBERG, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE PAUL W. WHETSELL, VICE CHAIRMAN AVG HRS WORKED 5 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE KC BRYAN WHITE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D., PRES/CEO AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION INDIVIDUAL TRUSTEE AND OFFICER REPORTABLE COMP FROM THE ORG 737,313 REPORTABLE COMP FROM RELATED ORG 364,564 EST. AMT OF OTHER COMP FROM THE ORG 261,787 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP, COO & SECRETARY AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 752,470 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 220,754 NAME AND TITLE PRESTON CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 796,908 REPORTABLE COMP FROM RELATED ORG 394,239 EST. AMT OF OTHER COMP FROM THE ORG 202,914 NAME AND TITLE VERA H. TWIGG, SR. VP & CFO AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 486,851 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 91,349 NAME AND TITLE ANN PALMER, SR VP OF FIELD MGMT AVG HRS WORKED 50 HRS POSITION KEY EMPLOYEE REPORTABLE COMP FROM THE ORG 198,883 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 46,476 NAME AND TITLE DAVID MCLOUGHLIN, SR VP OF OPS AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 286,388 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 56,418 NAME AND TITLE DANIEL KLEIN, SR VP, PATIENT ACCESS OF PROGRAMS AVG HRS WORKED 50 HRS POSITION KEY EMPLOYEE REPORTABLE COMP FROM THE ORG 243,807 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 32,095 NAME AND TITLE GLEN GOLDMARK, VP OF HUMAN RES. AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 230,969 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 45,755 NAME AND TITLE GREGORY AUGUST, CIO AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 229,682 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 51,655 NAME AND TITLE AMY DEMARIA, SR VP OF COMMUNIC. AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 227,400 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 35,445 TOTAL REPORTABLE COMP FROM THE ORG 4,190,671 TOTAL REPORTABLE COMP FROM RELATED ORG 758,803 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 1,044,648
FORM 990, PART X, LINE 27	The Foundation's unrestricted net assets total $574,947,148 as of December 31, 2013. Of this amount, the Foundation's Board of Trustees has designated $239,000,000 to be used for drug discovery and development programs.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp

Disregarded Entity Name DisregardedEntityName

Field	Value	IRS element (for citing)
Business Name Line1	cystic fibrosis patient assistance fdn	BusinessNameLine1

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 arlington rd	AddressLine1
City	bethesda	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
EIN	900350985	EIN
Primary Activities	patient asst	PrimaryActivitiesTxt
Legal Domicile State	DE	LegalDomicileStateCd
Total Income	$2,900,000	TotalIncomeAmt
End Of Year Assets	$4,555,120	EndOfYearAssetsAmt

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	na	BusinessNameLine1

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (2 entries)

Address Line1USAddress/AddressLine1	CityUSAddress/City	StateUSAddress/State	ZIP CodeUSAddress/ZIPCode	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Exempt Code SectionExemptCodeSectionTxt	Public Charity StatusPublicCharityStatusTxt	Business Name Line1DirectControllingEntityName/BusinessNameLine1	Controlled OrganizationControlledOrganizationInd
cystic fibrosis foundation therapeutics
6931 ARLINGTON RD	BETHESDA	MD	20814	912059167	RESEARCH	MD	501(c)(3)	11A	CFF-HQ	Yes (true)
CYSTIC FIBROSIS FOUNDATION GROUP
6931 ARLINGTON RD	BETHESDA	MD	20814	136161105	EDUCATION	DE	501(c)(3)	7	cfF-hq	Yes (true)

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	false	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	false	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	Yes (true)	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	false	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	false	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	false	DivRelatedOrganizationInd
Asset Sale To Other Org	false	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	false	AssetPurchaseFromOtherOrgInd
Asset Exchange	false	AssetExchangeInd
Rental Of Facilities To Oth Org	false	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	false	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	false	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	false	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	Yes (true)	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (true)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	false	TransferToOtherOrgInd
Transfer From Other Org	false	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (4 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
C	$169,699,768	FMV
CYSTIC FIBROSIS FOUNDATION GROUP
c	$91,872,857	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
N	$520,100	COST
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
O	$2,365,047	COST