MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
- Tax period
- 2013-01-01 to 2013-12-31
- Filed
- 2014-08-15
- IRS object ID
- 201432279349302198
- Schema version
- 2013v3.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule L
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-08-15T12:07:58-05:00 | ReturnTs |
| Tax Period End | 2013-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BDO USA LLP | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7101 WISCONSIN AVE SUITE 800 | AddressLine1 |
| City | BETHESDA | City |
| State | MD | State |
| ZIP Code | 208144827 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 131665552 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MUSCULAR DYSTROPHY ASSOCIATION INC | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| In Care Of | % STEPHEN P EVANS VP FINANCE | InCareOfNm |
| Business Name Control | MUSC | BusinessNameControlTxt |
| Phone | 3122605900 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 SOUTH RIVERSIDE PLAZA | AddressLine1 |
| Address Line2 | Suite 1500 | AddressLine2 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 606066000 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | JULIE FABER | PersonNm |
| Person Title | CFO | PersonTitleTxt |
| Phone | 7038930600 | PhoneNum |
| Signature | 2014-08-14 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Mike Sorrells | PreparerPersonNm |
| Phone | 3016544900 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | STEVEN DERKS | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 S RIVERSIDE PL STE 1500 | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60606 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $206,547,778 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.mda.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1950 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | SEE SCHEDULE O | ActivityOrMissionDesc |
| Voting Members Governing Body | 16 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 16 | VotingMembersIndependentCnt |
| Total Employee | 1321 | TotalEmployeeCnt |
| Total Volunteers | 1500000 | TotalVolunteersCnt |
| Total Gross UBI | $253,113 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | -$29,469 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $149,557,236 | PYContributionsGrantsAmt |
| CY Contributions Grants | $144,990,094 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $1,348,594 | PYInvestmentIncomeAmt |
| CY Investment Income | $4,164,516 | CYInvestmentIncomeAmt |
| PY Other Revenue | $1,209,221 | PYOtherRevenueAmt |
| CY Other Revenue | $1,171,110 | CYOtherRevenueAmt |
| PY Total Revenue | $152,115,051 | PYTotalRevenueAmt |
| CY Total Revenue | $150,325,720 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $47,570,979 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $38,730,052 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $67,163,193 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $61,530,638 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $497,284 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $534,111 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $21,534,876 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $51,592,591 | PYOtherExpensesAmt |
| CY Other Expenses | $47,210,391 | CYOtherExpensesAmt |
| PY Total Expenses | $166,824,047 | PYTotalExpensesAmt |
| CY Total Expenses | $148,005,192 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$14,708,996 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,320,528 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $100,099,622 | TotalAssetsBOYAmt |
| Total Assets EOY | $102,852,460 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $98,635,094 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $81,721,263 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $1,464,528 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $21,131,197 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | MDA is the Nonprofit Health Agency dedicated to curing Muscular Dystrophy, ALS, and related diseases by funding worldwide research. The Association also provides comprehensive Health Care and support services, Advocacy, and Education. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $65,014,202 | ExpenseAmt |
| Grant | $12,946,604 | GrantAmt |
| Desc | HEALTH CARE AND COMMUNITY SERVICES (SEE SCHEDULE O) | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $29,354,830 | ExpenseAmt |
| Grant | $25,783,448 | GrantAmt |
| Desc | RESEARCH (SEE SCHEDULE O) | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $18,075,948 | ExpenseAmt |
| Desc | PROFESSIONAL AND PUBLIC HEALTH EDUCATION (SEE SCHEDULE O) | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $112,444,980 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | false | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (true) | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | Yes (true) | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (true) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | Yes (true) | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (true) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (true) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (true) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | Yes (true) | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | Yes (true) | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (true) | DeductibleNonCashContriInd |
| Deductible Art Contribution | Yes (true) | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 1821 | IRPDocumentCnt |
| IRP Document W2 G | 23 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 1321 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (true) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (true) | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (true) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (true) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | Yes (true) | Form8282PropertyDisposedOfInd |
| Form8282 Filed | 6 | Form8282FiledCnt |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 16 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 16 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | Yes (true) | LocalChaptersInd |
| Policies Reference Chapters | Yes (true) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ID | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | STEPHEN P EVANS VP FINANCE | PersonNm |
| Phone | 3122605900 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 SOUTH RIVERSIDE PLAZA STE 1500 | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 60606 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionAGrp (31 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| Stanley H Appel MD | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Robert M Bennett | ||||||||
| Director Emeritus | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Bart Conner | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Harold C Crump | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Benjamin F Cumbo III | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Joseph S DiMartino | ||||||||
| DIRECTOR EMERITUS | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Steve Farella | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Daniel G Fries | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Honorable Brad Henry | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| R Rodney Howell MD | ||||||||
| Chairman | 5.0 | Yes (X) | $0 | $0 | $0 | |||
| Dave Hutton | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Louis M Kunkel PhD | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Timmi Masters | ||||||||
| SECRETARY | 2.0 | Yes (X) | $0 | $0 | $0 | |||
| Olin F Morris | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Christopher J Rosa PhD | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Charles D Schoor Esq | ||||||||
| Treasurer | 5.0 | Yes (X) | $0 | $0 | $0 | |||
| John Tognino | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Victor Wright | ||||||||
| Director | 1.0 | Yes (X) | $0 | $0 | $0 | |||
| Steven Derks | ||||||||
| President & CEO | 60.0 | $460,538 | $0 | $62,129 | Yes (X) | |||
| Valerie A Cwik MD | ||||||||
| ASST. SEC & CHIEF MED & RES | 50.0 | $201,114 | $0 | $7,041 | Yes (X) | |||
| Gail Schmertz Kerner Esq | ||||||||
| ASST SEC & CHIEF LEGAL OFFICER | 50.0 | $193,559 | $0 | $13,592 | Yes (X) | |||
| Peter Morgan | ||||||||
| ASST TREAS & EVP & CHIEF OP | 50.0 | $168,799 | $0 | $13,592 | Yes (X) | |||
| Stephen P Evans CPA | ||||||||
| asst treas & vp finance | 50.0 | $117,465 | $0 | $13,592 | Yes (X) | |||
| Jodi Walters | ||||||||
| asst treas & asst vp finance | 50.0 | $70,017 | $0 | $7,037 | Yes (X) | |||
| JULIE FABER | ||||||||
| CFO | 50.0 | $21,653 | $0 | $587 | Yes (X) | |||
| John Walsh | ||||||||
| Div Chief Executive | 50.0 | $150,791 | $0 | $13,592 | Yes (X) | |||
| Kevin W Moran | ||||||||
| VP Program Development | 50.0 | $149,509 | $0 | $13,592 | Yes (X) | |||
| Bradley J Barghols | ||||||||
| Div Chief Executive | 50.0 | $140,003 | $0 | $7,506 | Yes (X) | |||
| Steven Ford | ||||||||
| EVP Chief Communications | 50.0 | $133,373 | $0 | $9,047 | Yes (X) | |||
| Robert M Grinsfelder | ||||||||
| Div chief Executive | 50.0 | $133,800 | $0 | $13,078 | Yes (X) | |||
| TODD HERMON | ||||||||
| NVP RETAIL PARTERNSHIPS | 50.0 | $126,975 | $0 | $13,099 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $2,067,596 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $187,484 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 19 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (true) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1 | CityContractorAddress/USAddress/City | StateContractorAddress/USAddress/State | ZIP CodeContractorAddress/USAddress/ZIPCode | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| Alaniz Metro Group | |||||
| 1805 E Washington Street | Mt Pleasant | IA | 52641 | Printing | $1,214,524 |
| New Edge Network Inc | |||||
| PO Box 4800 | Portland | OR | 97208 | Network Provider | $1,224,010 |
| AMERICAN BROADCASTING COMPANY INC | |||||
| 77 W 66TH STREET | NEW YORK | NY | 10023 | ABC NTWRK BROADCAST. | $2,200,000 |
| AGGREGATED SOURCING LLC | |||||
| 8338 AUSTIN AVE | MORTON GROVE | IL | 60053 | PRINTING | $1,768,198 |
| TARGETCAST LLC | |||||
| 909 THIRD AVE 31ST FLOOR | NEW YORK | NY | 10022 | MEDIA PLACEMENT | $1,306,520 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 102 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $685,404 | FederatedCampaignsAmt |
| Fundraising | $118,658,726 | FundraisingAmt |
| All Other Contributions | $25,645,964 | AllOtherContributionsAmt |
| Noncash Contributions | $532,367 | NoncashContributionsAmt |
| Total Contributions | $144,990,094 | TotalContributionsAmt |
| Total Program Service Revenue | $0 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,429,780 | TotalRevenueColumnAmt |
| Exclusion | $1,429,780 | ExclusionAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $35,384 | TotalRevenueColumnAmt |
| Exclusion | $35,384 | ExclusionAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $0 | RealAmt |
| Personal | $0 | PersonalAmt |
Net Rental Income Or Loss NetRentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $40,562,044 | SecuritiesAmt |
| Other | $128,550 | OtherAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $37,955,858 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,606,186 | SecuritiesAmt |
| Other | $128,550 | OtherAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,734,736 | TotalRevenueColumnAmt |
| Exclusion | $2,734,736 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $18,132,196 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $118,658,726 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $18,132,196 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gaming Gross Income | $538,330 | GamingGrossIncomeAmt |
| Gaming Direct Expenses | $134,004 | GamingDirectExpensesAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $404,326 | TotalRevenueColumnAmt |
| Exclusion | $404,326 | ExclusionAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | ExclusionExclusionAmt |
|---|---|---|---|---|
| Quest Advertising | 541800 | $253,113 | $253,113 | |
| OTHER REVENUE | 900099 | $478,287 | $478,287 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $731,400 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $150,325,720 | TotalRevenueColumnAmt |
| Unrelated Business Revenue | $253,113 | UnrelatedBusinessRevenueAmt |
| Exclusion | $5,082,513 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $35,720,781 | TotalAmt |
| Program Services | $35,720,781 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,009,271 | TotalAmt |
| Program Services | $3,009,271 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,678,194 | TotalAmt |
| Program Services | $526,353 | ProgramServicesAmt |
| Management And General | $970,430 | ManagementAndGeneralAmt |
| Fundraising | $181,411 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,464,020 | TotalAmt |
| Program Services | $38,741,274 | ProgramServicesAmt |
| Management And General | $3,692,315 | ManagementAndGeneralAmt |
| Fundraising | $3,030,431 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,280,026 | TotalAmt |
| Program Services | $9,052,909 | ProgramServicesAmt |
| Management And General | $711,405 | ManagementAndGeneralAmt |
| Fundraising | $515,712 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,108,398 | TotalAmt |
| Program Services | $3,509,097 | ProgramServicesAmt |
| Management And General | $331,259 | ManagementAndGeneralAmt |
| Fundraising | $268,042 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $246,140 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $246,140 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $284,878 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $284,878 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $534,111 | TotalAmt |
| Fundraising | $534,111 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $104,709 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $104,709 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $13,850,435 | TotalAmt |
| Program Services | $3,227,393 | ProgramServicesAmt |
| Management And General | $832,741 | ManagementAndGeneralAmt |
| Fundraising | $9,790,301 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,801,496 | TotalAmt |
| Program Services | $5,188,079 | ProgramServicesAmt |
| Management And General | $1,219,654 | ManagementAndGeneralAmt |
| Fundraising | $5,393,763 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $927,921 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $927,921 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,306,283 | TotalAmt |
| Program Services | $8,189,938 | ProgramServicesAmt |
| Management And General | $481,161 | ManagementAndGeneralAmt |
| Fundraising | $635,184 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,326,350 | TotalAmt |
| Program Services | $4,349,701 | ProgramServicesAmt |
| Management And General | $334,546 | ManagementAndGeneralAmt |
| Fundraising | $642,103 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $69,654 | TotalAmt |
| Program Services | $41,653 | ProgramServicesAmt |
| Management And General | $23,239 | ManagementAndGeneralAmt |
| Fundraising | $4,762 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,121,130 | TotalAmt |
| Program Services | $688,546 | ProgramServicesAmt |
| Management And General | $1,361,443 | ManagementAndGeneralAmt |
| Fundraising | $71,141 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | MISC EXPENSES | Desc |
| Total | $3,171,395 | TotalAmt |
| Program Services | $199,985 | ProgramServicesAmt |
| Management And General | $2,503,495 | ManagementAndGeneralAmt |
| Fundraising | $467,915 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $148,005,192 | TotalAmt |
| Program Services | $112,444,980 | ProgramServicesAmt |
| Management And General | $14,025,336 | ManagementAndGeneralAmt |
| Fundraising | $21,534,876 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,516,286 | TotalAmt |
| Program Services | $1,623,354 | ProgramServicesAmt |
| Management And General | $383,884 | ManagementAndGeneralAmt |
| Fundraising | $2,509,048 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,347,489 | BOYAmt |
| EOY | $30,728,769 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,346,295 | BOYAmt |
| EOY | $2,608,340 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,302,799 | BOYAmt |
| EOY | $2,808,342 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $7,350,477 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $5,604,526 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $14,135,612 | BOYAmt |
| EOY | $1,745,951 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $72,967,427 | BOYAmt |
| EOY | $55,961,890 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $8,999,168 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $100,099,622 | BOYAmt |
| EOY | $102,852,460 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,576,961 | BOYAmt |
| EOY | $10,214,400 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $23,453,207 | BOYAmt |
| EOY | $21,825,074 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Escrow Account Liability EscrowAccountLiabilityGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Loans From Officers Directors LoansFromOfficersDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $14,500,000 | BOYAmt |
| EOY | $15,500,000 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $51,104,926 | BOYAmt |
| EOY | $34,181,789 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $98,635,094 | BOYAmt |
| EOY | $81,721,263 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | -$4,369,448 | BOYAmt |
| EOY | $15,824,975 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,427,860 | BOYAmt |
| EOY | $4,832,997 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $406,116 | BOYAmt |
| EOY | $473,225 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,464,528 | BOYAmt |
| EOY | $21,131,197 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $100,099,622 | BOYAmt |
| EOY | $102,852,460 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $2,320,528 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $2,680,294 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $14,665,848 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $175,900,213 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $171,247,359 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $157,086,289 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $149,557,236 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $144,990,094 | CurrentTaxYearAmt |
| Total | $798,781,191 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $175,900,213 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $171,247,359 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $157,086,289 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $149,557,236 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $144,990,094 | CurrentTaxYearAmt |
| Total | $798,781,191 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $0 | SubstantialContributorsTotAmt |
| Public Support Total170 | $798,781,191 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $2,794,744 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,555,153 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,887,167 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,341,192 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,465,164 | CurrentTaxYearAmt |
| Total | $9,043,420 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $270,273 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $478,287 | CurrentTaxYearAmt |
| Total | $748,560 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $808,573,171 | TotalSupportAmt |
| Public Support CY170 | 0.98789 | PublicSupportCY170Pct |
| Public Support PY170 | 0.98610 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part IV Form990ScheduleAPartIVGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | OTHER INCOME - FORM 990, SCHEDULE A, PART II | FormAndLineReferenceDesc |
| Explanation | 2012 OTHER REVENUE 270,273 2013 OTHER REVENUE 478,287 ------- TOTAL OTHER INCOME 748,560 | ExplanationTxt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $15,277 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $318,170 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $333,447 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $149,037,095 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $149,370,542 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $1,000,000 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $250,000 | FilingOrganizationsTotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tot Lbbyng Grassroot Mns Non Tx | TotLbbyngGrassrootMnsNonTxGrp | |
| Tot Lbby Expend Mns Lbbyng Non Tx | TotLbbyExpendMnsLbbyngNonTxGrp |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $1,000,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $1,000,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $1,000,000 | CurrentYearMinus1Amt |
| Current Year | $1,000,000 | CurrentYearAmt |
| Total | $4,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $6,000,000 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $368,927 | CurrentYearMinus3Amt |
| Current Year Minus2 | $428,715 | CurrentYearMinus2Amt |
| Current Year Minus1 | $341,893 | CurrentYearMinus1Amt |
| Current Year | $333,447 | CurrentYearAmt |
| Total | $1,472,982 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $250,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $250,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $250,000 | CurrentYearMinus1Amt |
| Current Year | $250,000 | CurrentYearAmt |
| Total | $1,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,500,000 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $13,300 | CurrentYearMinus3Amt |
| Current Year Minus2 | $12,650 | CurrentYearMinus2Amt |
| Current Year Minus1 | $13,285 | CurrentYearMinus1Amt |
| Current Year | $15,277 | CurrentYearAmt |
| Total | $54,512 | TotalAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Art Public Exhibition Amounts | ArtPublicExhibitionAmountsGrp | |
| Held Works Art | HeldWorksArtGrp | |
| Collection Used Pub Exhibition | Yes (X) | CollectionUsedPubExhibitionInd |
| Collection Used Preservation | Yes (X) | CollectionUsedPreservationInd |
| Coll Used Loan Or Exch Prog | Yes (X) | CollUsedLoanOrExchProgInd |
| Solicited Assets Sale | false | SolicitedAssetsSaleInd |
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $251,275 | BeginningYearBalanceAmt |
| Contributions | $50,000 | ContributionsAmt |
| Investment Earnings Or Losses | $45,482 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $346,757 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $175,428 | BeginningYearBalanceAmt |
| Contributions | $50,000 | ContributionsAmt |
| Investment Earnings Or Losses | $25,847 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $251,275 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $125,667 | BeginningYearBalanceAmt |
| Contributions | $50,000 | ContributionsAmt |
| Investment Earnings Or Losses | -$239 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $175,428 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $115,000 | BeginningYearBalanceAmt |
| Contributions | $11,313 | ContributionsAmt |
| Administrative Expenses | $646 | AdministrativeExpensesAmt |
| End Year Balance | $125,667 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| CY Minus4 Yr Endwmt Fund | CYMinus4YrEndwmtFundGrp | |
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
| Land | LandGrp | |
| Buildings | BuildingsGrp |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $33,641 | OtherCostOrOtherBasisAmt |
| Depreciation | $18,505 | DepreciationAmt |
| Book Value | $15,136 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Equipment | EquipmentGrp |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $7,316,836 | OtherCostOrOtherBasisAmt |
| Depreciation | $5,586,021 | DepreciationAmt |
| Book Value | $1,730,815 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1,745,951 | TotalBookValueLandBuildingsAmt |
Other Assets Org OtherAssetsOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | ASSETS HELD FOR SALE | Desc |
| Book Value | $8,999,168 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Other Assets | $8,999,168 | TotalBookValueOtherAssetsAmt |
| Federal Income Tax Liability | $0 | FederalIncomeTaxLiabilityAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | PENSION POSTRETIREMENT PLAN OBLIGATI | Desc |
| Amt | $34,181,789 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $34,181,789 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $153,006,014 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $2,680,294 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $2,680,294 | RevenueNotReportedAmt |
| Revenue Subtotal | $150,325,720 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $150,325,720 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $148,005,193 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $148,005,193 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $148,005,193 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, SCHEDULE D, PART III, LINE 4 | ESTABLISHED IN 1992 TO FOCUS ATTENTION ON THE ACHIEVEMENTS OF ARTISTS WITH DISABILITIES AND TO EMPHASIZE THAT PHYSICAL DISABILITY IS NO BARRIER TO CREATIVITY. THE COLLECTION, ON PERMANENT DISPLAY AT MDA NATIONAL HEADQUARTERS IN CHICAGO, IL. AND MDA OPERATION CENTER IN TUCSON AZ, COMPRISES NEARLY 400 ORIGINAL WORKS BY ADULTS AND CHILDREN WHO HAVE ANY OF THE NEUROMUSCULAR DISORDERS IN MDA'S PROGRAM. ARTISTS IN THE COLLECTION REPRESENT ALL 50 STATES, THE DISTRICT OF COLUMBIA AND PUERTO RICO, AND RANGE IN AGE FROM 2 TO 82. THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES, AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY. |
| FORM 990, SCHEDULE D, PART X, LINE 2 | THE ASSOCIATION IS A NONPROFIT ORGANIZATION AND IS EXEMPT FROM TAXATION UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND NEW YORK CODES, RULES AND REGULATIONS (NCRR20 SECTION 1-3.4(B)(6)). |
| fORM 990, SCHEDULE D, PART X, LINE 2 | GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR THE YEARS ENDED DECEMBER 31, 2013, 2012, AND 2011 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (6 entries)
| RegionRegionTxt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|
| Central America and the Caribbean | Program Services | GRANTS TO RECIPIENTS | $116,210 |
| East Asia and the Pacific | Program Services | GRANTS TO RECIPIENTS | $701,161 |
| Europe (Including Iceland and Greenland) | Program Services | GRANTS TO RECIPIENTS | $901,584 |
| Middle East and North Africa | Program Services | GRANTS TO RECIPIENTS | $100,003 |
| North America | Program Services | GRANTS TO RECIPIENTS | $1,117,813 |
| South America | Program Services | GRANTS TO RECIPIENTS | $72,500 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Spent | $3,009,271 | SubtotalSpentAmt |
| Total Spent | $3,009,271 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (6 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| Central America and the Caribbean | RESEARCH | $116,210 | CHECK |
| East Asia and the Pacific | RESEARCH | $701,161 | CHECK |
| Europe (Including Iceland and Greenland) | RESEARCH | $901,584 | CHECK |
| Middle East and North Africa | Research | $100,003 | CHECK |
| North America | Research | $1,117,813 | CHECK |
| South America | RESEARCH | $72,500 | CHECK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 6 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | FORM 990, SCHEDULE F, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH(INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Solicitation Of Govt Grants | Yes (X) | SolicitationOfGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (true) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Convio Inc | PersonNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 11501 DOMAIN DRIVE STE 200 | AddressLine1 |
| City | Dallas | City |
| State | TX | State |
| ZIP Code | 78758 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activity | Shared App services | ActivityTxt |
| Fundraiser Control Of Funds | false | FundraiserControlOfFundsInd |
| Gross Receipts | $17,946,846 | GrossReceiptsAmt |
| Retained By Contractor | $534,111 | RetainedByContractorAmt |
| Net To Organization | $17,412,735 | NetToOrganizationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $17,946,846 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $534,111 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $17,412,735 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | SPECIAL EVENTS | NameOfEvent1Amt |
| Gross Receipts Event1 | $106,600,541 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $94,840,087 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $11,760,454 | GrossRevenueEvent1Amt |
| Other Direct Expenses Event1 | $11,760,454 | OtherDirectExpensesEvent1Amt |
| Name Of Event2 | SIGNATURE EVENT | NameOfEvent2Amt |
| Gross Receipts Event2 | $15,899,374 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $12,387,860 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $3,511,514 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $3,511,514 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 9406 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $14,291,007 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $11,430,779 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $2,860,228 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $2,860,228 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $136,790,922 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $118,658,726 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $18,132,196 | GrossRevenueTotalEventsAmt |
| Oth Direct Expnss Total Events | $18,132,196 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $18,132,196 | DirectExpenseSummaryEventsAmt |
Gaming Information GamingInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Revenue Other Gaming | $538,330 | GrossRevenueOtherGamingAmt |
| Non Cash Prizes Other Gaming | $123,173 | NonCashPrizesOtherGamingAmt |
| Oth Direct Expnss Other Gaming | $10,831 | OthDirectExpnssOtherGamingAmt |
| Volunteer Labor Other Gaming | Yes (true) | VolunteerLaborOtherGamingInd |
| Volunteer Labor Other Gaming | 1.00000 | VolunteerLaborOtherGamingPct |
| Gross Revenue Total Gaming | $538,330 | GrossRevenueTotalGamingAmt |
| Non Cash Prizes Total Gaming | $123,173 | NonCashPrizesTotalGamingAmt |
| Oth Direct Expnss Total Gaming | $10,831 | OthDirectExpnssTotalGamingAmt |
| Direct Expense Summary Gaming | $134,004 | DirectExpenseSummaryGamingAmt |
| Net Gaming Income Summary | $404,326 | NetGamingIncomeSummaryAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| States Where Gaming Conducted | AL | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | AK | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | HI | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | IL | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | IA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | LA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MI | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MN | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MO | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | NE | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | OK | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | PA | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | TX | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | WI | StatesWhereGamingConductedCd |
| Licensed | Yes (true) | LicensedInd |
| License Suspended Etc | false | LicenseSuspendedEtcInd |
| Gaming With Nonmembers | false | GamingWithNonmembersInd |
| Member Of Other Entity | false | MemberOfOtherEntityInd |
| Gaming Own Facility | 0.00000 | GamingOwnFacilityPct |
| Gaming Other Facility | 1.00000 | GamingOtherFacilityPct |
| Individual With Books | Stephen P Evans CPA | IndividualWithBooksNm |
Persons With Books US Address PersonsWithBooksUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 222 SOUTH RIVERSIDE PLAZA SUITE 15 | AddressLine1 |
| City | CHICAGO | City |
| State | IL | State |
| ZIP Code | 606066000 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct With3rd Prty For Game Rev | false | CntrctWith3rdPrtyForGameRevInd |
| Gaming Manager Person | NA | GamingManagerPersonNm |
| Charitable Distribution Rqr | false | CharitableDistributionRqrInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, SCHEDULE G, PART I, LINE 2B | (I) NAME OF FUNDRAISER: CONVIO, INC. (I) ADDRESS OF FUNDRAISER: PO BOX 671445, DALLAS, TX 75267 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Supplemental Information Detail | SupplementalInformationDetail |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (259 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| Albany Medical College-Dept of Neurology | |||||||
| 47 New Scotland Ave MC 70 | Albany | NY | 12208 | 141338310 | 501(c)(3) | $18,900 | Medical Diagnosis |
| ALS Therapy Development Foundation | |||||||
| 215 First Street | Cambridge | MA | 02142 | 043462719 | 501(c)(3) | $3,831,803 | Research |
| Amicus Therapeutics Inc | |||||||
| 6 Cedar Brook Drive | Cranbury | NJ | 08512 | 710869350 | Corporation | $60,000 | Research |
| Ann & Robert H Lurie Children's Hospital of Chica | |||||||
| 225 E Chicago Box 205 | Chicago | IL | 60611 | 362170833 | 501(c)(3) | $25,000 | Medical Diagnosis |
| Ann an Robert H Lurie Children's Hospital of Chic | |||||||
| 225 E Chicago Box 205 | Chicago | IL | 60611 | 362170833 | 501(c)(3) | $135,000 | Research |
| Arizona Board of Regents University of Arizona | |||||||
| P O Box 3308 | Tucson | AZ | 85722 | 742652689 | State of Arizon | $195,000 | Research |
| Armgo Pharma Inc | |||||||
| 777 Old Saw Mill River Road | Tarrytown | NY | 10591 | 260107795 | Corporation | $499,528 | Research |
| Baptist Hospital East | |||||||
| 4000 Kresge Way | Louisville | KY | 40207 | 610444707 | 501(c)(3) | $11,700 | Medical Diagnosis |
| Baylor College of Medicine | |||||||
| One Baylor Plaza MS BCM 310 | Houston | TX | 77030 | 741613878 | 501(c)(3) | $225,000 | Research |
| Billings Clinic Foundation | |||||||
| PO Box 31031 | Billings | MT | 59107 | 810407289 | 501(c)(3) | $11,700 | Medical Diagnosis |
| Board of Regents University of Wisconsin System - | |||||||
| 21 North Park Street Suite 6401 | Madison | WI | 53715 | 396006492 | State of Wiscon | $25,000 | Medical Diagnosis |
| Board of Regents NSHE dba University of Nevada | |||||||
| 204 Ross Hall Mailstop 325 | Reno | NV | 89557 | 886000024 | State of Nevada | $162,676 | Research |
| Board of Trustees of SIU | |||||||
| PO Box 19616 | Springfield | IL | 62794 | 376005961 | State of Illino | $20,000 | Medical Diagnosis |
| Boston Biomedical Research Institute | |||||||
| 64 Grove Street | Watertown | MA | 02472 | 042451939 | 501(c)(3) | $114,620 | Research |
| Brigham & Women's Hospital | |||||||
| 75 Francis St | Boston | MA | 02115 | 042312909 | 501(c)(3) | $32,580 | Medical Diagnosis |
| Brigham and Women's Hospital Inc | |||||||
| 75 Francis Street | Boston | MA | 02115 | 042312909 | 501(c)(3) | $135,000 | Research |
| California Pacific Medical Center | |||||||
| 475 Brannan Street Ste 220 | San Francisco | CA | 94107 | 940562680 | 501(c)(3) | $300,000 | Research |
| California Pacific Medical Center | |||||||
| 2324 Sacramento Street | San Francisco | CA | 94115 | 940562680 | 501(c)(3) | $372,593 | Medical Diagnosis |
| Carilion Medical Center | |||||||
| 3 Riverside Circle | Roanake | VA | 24016 | 540506332 | 501(c)(3) | $20,000 | Medical Diagnosis |
| Carle Physician Group | |||||||
| 611 W Park St | Urbana | IL | 61801 | 371140016 | 501(c)(3) | $10,800 | Medical Diagnosis |
| Carolinas Medical Center | |||||||
| 1221 E Morehead | Charlotte | NC | 28204 | 561398929 | 501(c)(3) | $202,431 | Research |
| Carolinas Medical Center | |||||||
| PO Box 32861 | Charlotte | NC | 28232 | 566060481 | 501(c)(3) | $90,000 | Medical Diagnosis |
| Catabasis Pharmaceuticals Inc | |||||||
| One Kendall Square Suite B14202 | Cambridge | MA | 02139 | 263687168 | Corporation | $35,000 | Research |
| Chicago Association for Research an Education in S | |||||||
| 5000 South 5th Avenue Bld One Rm C | Hines | IL | 60141 | 363334177 | 501(c)(3) | $60,000 | Research |
| Children's Clinics For Rehabilitative Services | |||||||
| 2600 N Wyatt Drive | Tucson | AZ | 85712 | 860667510 | 501(c)(3) | $24,300 | Medical Diagnosis |
| Children's Healthcare of Atlanta at Scottish Rite | |||||||
| 1687 Tullie Circle | Atlanta | GA | 30329 | 581947689 | 501(c)(3) | $27,000 | Medical Diagnosis |
| Children's HospNational Med Ctr | |||||||
| 111 Michigan NW | Washington | DC | 20010 | 530196580 | 501(c)(3) | $32,400 | Medical Diagnosis |
| Children's Hospof Philadelphia | |||||||
| 34th Street Civic Ctr | Philadelphia | PA | 19104 | 231352166 | 501(c)(3) | $90,000 | Medical Diagnosis |
| Children's Hospital & Medical Cntr | |||||||
| 4800 Sand Point Way-POBox 5371 | Seattle | WA | 98105 | 910564748 | 501(c)(3) | $49,050 | Medical Diagnosis |
| Children's Hospital an Research Center Oakland | |||||||
| 747 52nd Street | Oakland | CA | 94609 | 940382330 | 501(c)(3) | $130,231 | Research |
| Children's Hospital Boston | |||||||
| 300 Longwood Avenue | Boston | MA | 02115 | 042774441 | 501(c)(3) | $377,056 | Research |
| Children's Hospital Central CA | |||||||
| 9300 Valley Childrens Pl Ms Pcx10 | Madera | CA | 93636 | 941294954 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Children's Hospital Medical Center | |||||||
| 3333 Burnet Ave ML 2015 | Cincinnati | OH | 45229 | 310833963 | 501(c)(3) | $54,450 | Medical Diagnosis |
| Children's Hospital Neurology Foundation | |||||||
| Fegan 11-300 Lingwood Ave | Boston | MA | 02115 | 222678594 | 501(c)(3) | $27,000 | Medical Diagnosis |
| Children's Hospital of Los Angeles | |||||||
| 4650 Sunset Boulevard Mail Stop 97 | Los Angeles | CA | 90027 | 951690977 | 501(c)(3) | $20,000 | Medical Diagnosis |
| Children's Hospital of Orange County | |||||||
| 455 S Main Street | Orange | CA | 92868 | 952321788 | 501(c)(3) | $40,400 | Medical Diagnosis |
| Children's Hospital New Orleans | |||||||
| 200 Henry Clay Avenue | New Orleans | LA | 70118 | 720467503 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Children's Hospital Richmond | |||||||
| 2924 Brook Road | Richmond | VA | 23220 | 540506309 | 501(c)(3) | $15,300 | Medical Diagnosis |
| Children's Hospital San Diego | |||||||
| 3020 Childrens Way | San Diego | CA | 92123 | 951691313 | 501(c)(3) | $33,750 | Medical Diagnosis |
| Children's Medical Center | |||||||
| 2350 Stemmons Frwy Ste 5400 | Dallas | TX | 75207 | 750800628 | 501(c)(3) | $36,750 | Medical Diagnosis |
| Children's Research Institute (CNMC) | |||||||
| 111 Michigan Avenue NW | Washington | DC | 20010 | 521654453 | 501(c)(3) | $590,339 | Research |
| CHOP of UPMC | |||||||
| 4401 Penn Ave Fac Pavilion 6th Fl | Pittsburgh | PA | 15224 | 250402510 | 501(c)(3) | $18,900 | Medical Diagnosis |
| Christus Spohn Hospital Corpus Christi Memorial | |||||||
| 2606 Hospital Blvd | Corpus Christi | TX | 78405 | 741109836 | 501(c)(3) | $10,000 | Medical Diagnosis |
| Cleveland Clinic Foundation | |||||||
| PO Box 931531 | Cleveland | OH | 44193 | 340714585 | 501(c)(3) | $130,000 | Research |
| Clinical Neurology PC | |||||||
| 4221 S Western Suite 5010 | Oklahoma City | OK | 73109 | 412141136 | Corporation | $107,100 | Medical Diagnosis |
| Colorado State University | |||||||
| Campus Delivery Box 2002 | Fort Collins | CO | 80523 | 846000545 | State of Colora | $121,000 | Research |
| Columbus Children's Hospital | |||||||
| 700 Childrens Dr | Columbus | OH | 43205 | 314379441 | 501(c)(3) | $28,800 | Medical Diagnosis |
| Cook Children's Medical Center | |||||||
| 901 Seventh Avenue Ste 120 | Ft Worth | TX | 76104 | 752051646 | 501(c)(3) | $8,100 | Medical Diagnosis |
| Cornell University | |||||||
| 373 Pine Tree Road | Ithaca | NY | 14850 | 150532082 | 501(c)(3) | $120,000 | Research |
| Covenant Health System | |||||||
| 3615 19th St | Lubbock | TX | 79408 | 752765566 | 501(c)(3) | $23,600 | Medical Diagnosis |
| Dana-Farber Cancer Institute | |||||||
| 450 Brookline Avenue | Boston | MA | 02215 | 042263040 | 501(c)(3) | $101,443 | Research |
| Dean Clinic | |||||||
| 1808 West Beltline Hwy | Madison | WI | 53713 | 391128616 | Corporation | $25,000 | Medical Diagnosis |
| Dent Neurologic Group LLP | |||||||
| 3980 Sheridan Drive Suite B | Amherst | NY | 14226 | 161582336 | Partnership | $12,600 | Medical Diagnosis |
| Drexel Neurological Associates | |||||||
| 245 North 15th St Mail Stop 423 | Philadelphia | PA | 19102 | 754022380 | Corporation | $33,750 | Medical Diagnosis |
| Driscoll Children's Hospital | |||||||
| 3533 South Alameda Street | Corpus Christi | TX | 78411 | 742577746 | 501(c)(3) | $6,000 | Medical Diagnosis |
| Duke University Medical Center | |||||||
| 2200 West Main Street Suite 820 E | Durham | NC | 27705 | 560532129 | 501(c)(3) | $286,906 | Research |
| Duke University Medical Center | |||||||
| Box 3069 | Durham | NC | 27710 | 561029437 | 501(c)(3) | $81,000 | Medical Diagnosis |
| Eastern Maine Medical Center | |||||||
| 489 State Street | Bangor | ME | 04401 | 010211501 | 501(c)(3) | $8,100 | Medical Diagnosis |
| El Paso Child Neurology PA | |||||||
| 1900 N Oregon Ste 520 | El Paso | TX | 79902 | 264347703 | Corporation | $16,200 | Medical Diagnosis |
| Elkhart Clinic LLC | |||||||
| 303 S Nappanee | Elkhart | IN | 07103 | 351911857 | Partnership | $14,400 | Medical Diagnosis |
| Emory Clinic Inc | |||||||
| 101 Woodruff Circle | Atlanta | GA | 30322 | 582030692 | 501(c)(3) | $81,000 | Medical Diagnosis |
| Emory University Food and Drug Administration | |||||||
| 1365B Clifton Road NE Ste 6200 | Atlanta | GA | 30322 | 580566256 | 501(c)(3) | $426,464 | Research |
| Federation of American Socities for Experimental B | |||||||
| 9650 ROCKVILLE PIKE | Bethesda | MD | 20814 | 520700497 | 501(c)(3) | $7,275 | Research |
| Fletcher Allen Health Care Center | |||||||
| 1 South Prospect Street | Burlington | VT | 05401 | 030219303 | State of Vermon | $6,300 | Medical Diagnosis |
| Fred Hutchinson Cancer Research Center | |||||||
| 1100 Fairview Avenue N J6-500 | Seattle | WA | 98109 | 237156071 | 501(c)(3) | $100,000 | Research |
| Georgetown University | |||||||
| 4000 Reservoir Rd NW Bldg D Rm 207 | Washington | DC | 20057 | 530196603 | 501(c)(3) | $20,635 | Medical Diagnosis |
| Georgia Health Sciences Medical Center | |||||||
| 1120 15th Street Rm FY127 | Augusta | GA | 30912 | 582144788 | 501(c)(3) | $18,000 | Medical Diagnosis |
| Georgia Health Sciences University | |||||||
| 1120 15th Street | Augusta | GA | 30912 | 586002053 | State of Georgi | $130,000 | Research |
| Glendale Neurological Assoc DBA (MIND) | |||||||
| 28595 Orchard Lake Rd 200 | Farmington Hills | MI | 48334 | 381889896 | Corporation | $63,000 | Medical Diagnosis |
| Good Shepherd Rehabilitation Hosp | |||||||
| 501 St John Street | Allentown | PA | 18103 | 231371947 | 501(c)(3) | $61,200 | Medical Diagnosis |
| Gordon Research Conferences | |||||||
| 512 Liberty Lane | West Kingston | RI | 02892 | 260150662 | 501(c)(3) | $10,000 | Research |
| Greenville Hosp System Univ Medical Group | |||||||
| 200 Patewood Drive A-200 | Greenville | SC | 29615 | 576007863 | 501(c)(3) | $8,100 | Medical Diagnosis |
| HALO THERAPEUTICS LLC | |||||||
| 275 GROVE ST SUITE 2-400 | NEWTON | MA | 02466 | 275336394 | Partnership | $293,000 | Research |
| Hamot 2nd Century Fund | |||||||
| 302 French Street | Erie | PA | 16507 | 251400909 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Harvard Medical School | |||||||
| 25 Shattuck Street Suite 509A | Boston | MA | 02115 | 042103580 | 501(c)(3) | $295,937 | Research |
| Hershey Medical Center | |||||||
| 500 University Drive Mail CodeEC0 | Hershey | PA | 17033 | 251854772 | State of Pennsy | $73,800 | Medical Diagnosis |
| HospEspanol De Auxilio Mutuo Inc | |||||||
| PO Box 191227 | Hato Rey | PR | 00919 | 660486907 | Corporation | $49,500 | Medical Diagnosis |
| Hospital De La Concepcion | |||||||
| PO Box 285 | San German | PR | 00681 | 660227304 | 501(c)(3) | $28,800 | Medical Diagnosis |
| Hospital For Special Care | |||||||
| 2150 Corbin Avenue | New Britain | CT | 06053 | 060646766 | 501(c)(3) | $62,600 | Medical Diagnosis |
| Hospital For Special Surgery | |||||||
| 535 E 70th Street 3rd Fl | New York | NY | 10021 | 131624135 | 501(c)(3) | $80,000 | Medical Diagnosis |
| Hospital of The University of Pennsylvania | |||||||
| 3400 Spruce Street | Philadelphia | PA | 19104 | 231352685 | State of Pennsy | $70,110 | Medical Diagnosis |
| Hugo W Moser Research Institute at Kennedy Kriege | |||||||
| 707 N Broadway | Baltimore | MD | 21205 | 521524967 | 501(c)(3) | $126,513 | Research |
| Idaho Elks Rehabilitation Hospital | |||||||
| PO Box 1100 | Boise | ID | 83701 | 820302317 | 501(c)(3) | $19,800 | Medical Diagnosis |
| Illinois Institute of Technology | |||||||
| 3300 South Federal Street Main Bld | Chicago | IL | 60616 | 362170136 | 501(c)(3) | $85,837 | Research |
| Indiana University (Indianapolis) | |||||||
| 620 Union Drive Room 518 | Indianapolis | IN | 46202 | 356001673 | State of Indian | $149,024 | Research |
| Inst Of Rehab MedNY Univ Med School | |||||||
| 240 East 348th Street Room 15-60B | New York | NY | 10016 | 133971298 | 501(c)(3) | $72,900 | Medical Diagnosis |
| Iowa Health Des Moines | |||||||
| 1200 Pleasant St | Des Moines | IA | 50309 | 420680452 | 501(c)(3) | $10,800 | Medical Diagnosis |
| IU Health Neuroscience Center | |||||||
| 335 W 16th Street 3rd Floor | Indianapolis | IN | 46202 | 351955872 | 501(c)(3) | $22,500 | Medical Diagnosis |
| IU Health Riley Hospital for Children | |||||||
| 702 Barnhill Drive Room 1757 | Indianapolis | IN | 46202 | 351955872 | 501(c)(3) | $45,000 | Medical Diagnosis |
| Joan an Sanford I Weill Medical College of Cornel | |||||||
| 1300 York Avenue Box 89 | New York | NY | 10065 | 131623978 | 501(c)(3) | $218,439 | Research |
| John Hopkins Univ School of Medicine | |||||||
| 600 NWolfe Street Meyer 5-119 | Baltimore | MD | 21287 | 320061260 | 501(c)(3) | $195,300 | Medical Diagnosis |
| Johns Hopkins University School of Medicine | |||||||
| 733 North Broadway Suite 117 | Baltimore | MD | 21205 | 520595110 | 501(c)(3) | $615,302 | Research |
| Kennedy Hospital | |||||||
| 500 Marlboro Rd | Cherry Hill | NJ | 08034 | 221773439 | 501(c)(3) | $15,300 | Medical Diagnosis |
| KUMC Research Institute | |||||||
| MS-1039 3901 Rainbow Blvd 6003 Wes | Kansas City | KS | 66160 | 481108830 | 501(c)(3) | $70,200 | Medical Diagnosis |
| Lahey Clinic Foundation Inc | |||||||
| 41 Mall Road | Burlington | MA | 01805 | 042704683 | 501(c)(3) | $14,850 | Medical Diagnosis |
| Le Bonheur Children's Hospital | |||||||
| 50 Peabody Place Suite 400 | Memphis | TN | 38103 | 621872938 | 501(c)(3) | $24,300 | Medical Diagnosis |
| LES TURNER ALS FOUNDATION | |||||||
| 5550 W Touhy Avenue Suite 302 | Skokie | IL | 60077 | 362916466 | 501(c)(3) | $7,500 | Research |
| Loma Linda University Health Care | |||||||
| 11175 Campus Street Coleman Pavili | Loma Linda | CA | 92354 | 330364239 | 501(c)(3) | $26,100 | Medical Diagnosis |
| Louisiana State Univ Health Sci Ctr | |||||||
| 1501 Kings Highway | Shreveport | LA | 71130 | 720702002 | State of Louisi | $27,000 | Medical Diagnosis |
| LSU School of Medicine | |||||||
| 433 Bolivar St | New Orleans | LA | 70112 | 721304948 | State of Louisi | $30,600 | Medical Diagnosis |
| Lucile Salter Packard Child Hosp | |||||||
| 4100 Bohannon Drive Mail Code 5894 | Menlo Park | CA | 94304 | 770003859 | 501(c)(3) | $43,000 | Medical Diagnosis |
| Ludwig Institute for Cancer Research Ltd | |||||||
| 9500 Gilman Drive MC-0660 | La Jolla | CA | 92093 | 237121131 | 501(c)(3) | $193,981 | Research |
| Lutheran Hospital of Indiana Inc | |||||||
| 7950 W Jefferson Blvd | Fort Wayne | IN | 46804 | 351963748 | 501(c)(3) | $14,400 | Medical Diagnosis |
| Maine Medical Cntr-Dept of Rehabil | |||||||
| 22 Bramhall Street | Portland | ME | 04102 | 010238552 | 501(c)(3) | $14,850 | Medical Diagnosis |
| Marshfield Clinic | |||||||
| 1000 North Oak Avenue | Marshfield | WI | 54449 | 390452970 | 501(c)(3) | $10,800 | Medical Diagnosis |
| Mary Hitchcock Memorial Hospital | |||||||
| One Medical Center Dr | Lebanon | NH | 03756 | 020222140 | 501(c)(3) | $22,500 | Medical Diagnosis |
| Massachusetts General Hospital (The General Hospit | |||||||
| 101 Huntington Ave Suite 300 | Boston | MA | 02199 | 042697983 | 501(c)(3) | $90,000 | Research |
| Mayo Clinic Jacksonville | |||||||
| 4500 San Pablo Road | Jacksonville | FL | 32224 | 593337028 | 501(c)(3) | $20,250 | Medical Diagnosis |
| MDAALS Center at the University of California Ir | |||||||
| 200 South Manchester Avenue Ste 1 | Orange | CA | 92868 | 952226406 | State of Califo | $66,000 | Medical Diagnosis |
| Medical College of Wisconsin | |||||||
| 9200 W Wisconsin Ave | Milwaukee | WI | 53226 | 390806261 | 501(c)(3) | $30,600 | Medical Diagnosis |
| Memorial Sloan-Kettering Cancer Center | |||||||
| 1275 York Avenue Box 701 | New York | NY | 10065 | 131924236 | 501(c)(3) | $187,850 | Research |
| Mercy Clinic Neurology | |||||||
| 2115 S Fremont | Springfield | MO | 65804 | 440552485 | 501(c)(3) | $19,000 | Medical Diagnosis |
| Mercy Health Saint Mary's | |||||||
| 200Jefferson SE | Grand Rapids | MI | 49503 | 382113393 | 501(c)(3) | $20,000 | Medical Diagnosis |
| Methodist Neurological Institute | |||||||
| 6560 Fannin Street 802 | Houston | TX | 77030 | 870721923 | 501(c)(3) | $132,300 | Medical Diagnosis |
| MetroHealth Medical Center | |||||||
| PO Box 73122 | Cleveland | OH | 44193 | 346004382 | 501(c)(3) | $36,000 | Medical Diagnosis |
| Michigan State University | |||||||
| B-301 East Fee Hall A-217 Clinical | East Lansing | MI | 48824 | 386005984 | State of Michig | $20,250 | Medical Diagnosis |
| Monmouth Medical Center Foundation | |||||||
| 300 Second Ave | Long Branch | NJ | 07740 | 223452412 | 501(c)(3) | $27,000 | Medical Diagnosis |
| Montefiore Medical Center | |||||||
| 3351 Steuben Ave 3rd Flr | Bronx | NY | 10467 | 133908657 | 501(c)(3) | $46,575 | Medical Diagnosis |
| Nemours Children's Clinic | |||||||
| 13535 Nemours Parkway | Orando | FL | 32827 | 590634433 | 501(c)(3) | $48,300 | Medical Diagnosis |
| Neurology Associates | |||||||
| 1301 S Cliff Ave 506 | Sioux Falls | SD | 57105 | 460364889 | Corporation | $16,200 | Medical Diagnosis |
| Neurology Associates of Arlington | |||||||
| 811 Interstate 20 W Ste 212 | Arlington | TX | 76017 | 752405825 | Corporation | $24,300 | Medical Diagnosis |
| Neurology Medical Service Group | |||||||
| 750 East Adams Street | Syracuse | NY | 13210 | 166066240 | 501(c)(3) | $45,900 | Medical Diagnosis |
| Neurology Specialists of Jupiter | |||||||
| 601 University Blvd Suite 102 | Jupiter | FL | 33458 | 650925187 | 501(c)(3) | $7,200 | Medical Diagnosis |
| Northwestern Medical Faculty Found | |||||||
| 710 N Lake Shore Dr Rm 1119 | Chicago | IL | 60611 | 393097297 | 501(c)(3) | $62,000 | Medical Diagnosis |
| Nymirum Inc | |||||||
| 3510 W Liberty Rd | Ann Arbor | MI | 48103 | 264216873 | Corporation | $197,066 | Research |
| Ohio State University Hospitals | |||||||
| 1581 Dodd Drive McCampbell Hall | Columbus | OH | 43210 | 316025986 | State of Ohio | $61,200 | Medical Diagnosis |
| Olive View - UCLA Medical Center | |||||||
| 14445 Olive View Drive 2C136 | Sylmar | CA | 91342 | 952249539 | State of Califo | $22,500 | Medical Diagnosis |
| Oregon Health & Science University | |||||||
| 3181 SW Sam Jackson Park Road | Portland | OR | 97201 | 931176109 | 501(c)(3) | $36,000 | Medical Diagnosis |
| Oregon Health and Science University | |||||||
| 3181 SW Sam Jackson Park Rd | Portland | OR | 97239 | 931176109 | 170(c)(1) | $177,188 | Research |
| OSF Medical Group Neurology | |||||||
| PO Box 1712 | Peoria | IL | 61656 | 370662569 | Corporation | $13,500 | Medical Diagnosis |
| Our Lady of Lourdes RMC | |||||||
| 611 St Landry St | Lafayette | LA | 70506 | 720423635 | 501(c)(3) | $36,000 | Medical Diagnosis |
| Philadelphia Health and Education Corporation db | |||||||
| 3201 Arch Street Suite 100 | Philadelphia | PA | 19104 | 231352630 | 501(c)(3) | $110,000 | Research |
| Physicians Billing | |||||||
| 1600 Rockland Road-PO Box 269 | Wilmington | DE | 19899 | 590634433 | 501(c)(3) | $49,500 | Medical Diagnosis |
| Ponce School of Medicine | |||||||
| PO Box 7004 | Ponce | PR | 00732 | 660379122 | 501(c)(3) | $36,000 | Medical Diagnosis |
| Prevea Clinic | |||||||
| PO Box 19070 | Green Bay | WI | 54307 | 391839349 | 501(c)(3) | $17,576 | Medical Diagnosis |
| Rapid City Regional Hospital | |||||||
| PO Box 3450 | Rapid City | SD | 57709 | 460319070 | 501(c)(3) | $7,200 | Medical Diagnosis |
| Rapides Specialty Clinic Division of RRMC | |||||||
| Box 30101 211 Fourth Street | Alexandria | LA | 71301 | 720702002 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Regents of The University of California(Los Angele | |||||||
| 710 Westwood Plaza 4-231 Rnrc | Los Angeles | CA | 90095 | 956006143 | State of Califo | $108,000 | Medical Diagnosis |
| Regents of The University of California(San Franci | |||||||
| 1855 Folsom MCB 425 | San Francisco | CA | 94143 | 946036493 | State of Califo | $29,215 | Medical Diagnosis |
| Regents of the University of Minnesota - Twin Citi | |||||||
| 450 McNamara Alumni Center 200 Oak | Minneapolis | MN | 55455 | 416007513 | State of Minnes | $755,774 | Research |
| Research Institute at Nationwide Children's Hospit | |||||||
| 700 Childrens Drive | Columbus | OH | 43205 | 316056230 | 501(c)(3) | $453,188 | Research |
| ReveraGen BioPharma Inc | |||||||
| 9700 GREAT SENECA HWY SUITE 150 | Rockville | MD | 20850 | 263808415 | Corporation | $582,363 | Research |
| Rhode Island Hospital | |||||||
| 593 Eddy Street | Providence | RI | 02903 | 050258954 | 501(c)(3) | $16,200 | Medical Diagnosis |
| Rutgers New Jersey Medical School | |||||||
| 90 Bergen St Suite 8100 | Newark | NJ | 07101 | 351911857 | 501(c)(3) | $19,575 | Medical Diagnosis |
| Sacred Heart Medical Center Found | |||||||
| 1255 Hilyard St PO Box 10905 | Eugene | OR | 97440 | 931084906 | 501(c)(3) | $13,500 | Medical Diagnosis |
| San Diego State University Research Foundation | |||||||
| 5250 Campanile Dr | San Diego | CA | 92182 | 956042721 | State of Califo | $123,437 | Research |
| Sanford Clinic Fargo Region | |||||||
| 720 4th Street North | Fargo | ND | 58122 | 911770748 | 501(c)(3) | $17,100 | Medical Diagnosis |
| Sanford-Burnham Medical Research Institute | |||||||
| 10901 North Torrey Pines Rd | La Jolla | CA | 92037 | 510197108 | 501(c)(3) | $148,777 | Research |
| Sarasota Memorial Hospital | |||||||
| 1700 Tamiami Trail | Sarasota | FL | 34239 | 596012500 | 501(c)(3) | $24,000 | Medical Diagnosis |
| Seattle Institute for Biomedical and Clinical Rese | |||||||
| 1660 S Columbian Way S-151F | Seattle | WA | 98108 | 911452438 | 501(c)(3) | $105,519 | Research |
| Sentara Norfolk General Hospital | |||||||
| 6015 Poplar Hall Dr Ste 212 | Norfolk | VA | 23502 | 541547408 | 501(c)(3) | $22,500 | Medical Diagnosis |
| Sfida BioLogic Inc | |||||||
| 615 Arapeen Dr Suite 310 | Salt Lake City | UT | 84108 | 900513929 | Corporation | $78,419 | Research |
| Shands Hospital | |||||||
| 302 Tigert Hall | Gainesville | FL | 32611 | 596002052 | 501(c)(3) | $16,650 | Medical Diagnosis |
| Shriners Hospfor Children - Portland | |||||||
| 3101 SW Sam Jackson Park R | Portland | OR | 97239 | 362193608 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Shriners Hospital For Children Chicago | |||||||
| 2211 N Oak Park Avenue | Chicago | IL | 60707 | 362193608 | 501(c)(3) | $25,000 | Medical Diagnosis |
| Shriners Hospital For Children in Spokane | |||||||
| 911 W 5th Avenue | Spokane | WA | 99204 | 362193608 | 501(c)(3) | $7,200 | Medical Diagnosis |
| Spartanburg Neurological Services | |||||||
| 362 N Pine Street | Spartanburg | SC | 29302 | 570902952 | Corporation | $8,100 | Medical Diagnosis |
| Specially For Children | |||||||
| 1301 Barbara Jordan Blvd 200 | Austin | TX | 78723 | 742800601 | 501(c)(3) | $10,125 | Medical Diagnosis |
| St Anthony's Specialist LLC | |||||||
| 300 S Park Place Blvd Ste 170 | Clearwater | FL | 33759 | 743168197 | 501(c)(3) | $22,500 | Medical Diagnosis |
| St Charles Hospital And Rehabilitation Center | |||||||
| 200 Belle Terre Road | Port Jefferson | NY | 11777 | 412076312 | 501(c)(3) | $18,000 | Medical Diagnosis |
| St Francis Medical Ctr | |||||||
| PO Box 1901 | Monroe | LA | 71210 | 720408970 | 501(c)(3) | $8,438 | Medical Diagnosis |
| St Joseph's Children's Hospital of Tampa | |||||||
| 2700 W Dr Martin Luther King Jr | Tampa | FL | 33607 | 591100828 | 501(c)(3) | $31,500 | Medical Diagnosis |
| St Joseph's Hosp & Medical Center | |||||||
| 350 West Thomas Rd | Phoenix | AZ | 85013 | 860096787 | 501(c)(3) | $36,000 | Medical Diagnosis |
| St Jude Children's Research Hospital | |||||||
| 262 Danny Thomas Place | Memphis | TN | 38105 | 620646012 | 501(c)(3) | $60,000 | Research |
| St Luke's Rehabilitation Institute | |||||||
| S 711 Cowley | Spokane | WA | 99202 | 911307555 | 501(c)(3) | $13,500 | Medical Diagnosis |
| St Peter's Hospital | |||||||
| 410 Providence Lane NE Bldg 2 | Olympia | WA | 98506 | 910567732 | 501(c)(3) | $28,125 | Medical Diagnosis |
| St Peter's Hospital Foundation | |||||||
| 319 S Manning Blvd Ste 309 | Roessleville | NY | 12205 | 222262982 | 501(c)(3) | $120,000 | Medical Diagnosis |
| Stanford University | |||||||
| PO Box 44253 | San Francisco | CA | 94144 | 941156365 | State of Califo | $287,687 | Research |
| SUNY Upstate Medical University | |||||||
| 750 E Adams Street | Syracuse | NY | 13210 | 141368361 | State of New Yo | $369,764 | Research |
| Texas Children's Hospital | |||||||
| 6621 Fannin | Houston | TX | 77030 | 741100555 | 501(c)(3) | $9,000 | Medical Diagnosis |
| Texas Neurology PA | |||||||
| 6301 Gaston Ave Ste 200W | Dallas | TX | 75214 | 752654757 | Corporation | $19,000 | Medical Diagnosis |
| The Board of Trustees of the University of Illinoi | |||||||
| 1737 W Polk St M/C 672 AOB 304 | Chicago | IL | 60612 | 376000511 | State of Illino | $165,686 | Research |
| The Children's Hospital | |||||||
| 13123 E 16th Avenul Rehab Medicine | Aurora | CO | 80045 | 840166760 | 501(c)(3) | $52,200 | Medical Diagnosis |
| The Children's Hospital of Philadelphia | |||||||
| 3615 Civic Center Blvd | Philadelphia | PA | 19104 | 231352166 | 501(c)(3) | $135,000 | Research |
| The Curators of the University of Missouri | |||||||
| 310 Jesse Hall | Columbia | MO | 65211 | 436003859 | State of Missou | $127,194 | Research |
| The Duluth Clinic Ltd | |||||||
| 400 E 3rd Street | Duluth | MN | 55805 | 410883623 | 501(c)(3) | $6,750 | Medical Diagnosis |
| The General Hospital Corporation | |||||||
| 13th Street Bldg 149 | Charlestown | MA | 02129 | 042697983 | 501(c)(3) | $128,925 | Medical Diagnosis |
| The Methodist Hospital Research Institute | |||||||
| 6565 Fannin MGJ4-024 | Houston | TX | 77030 | 870721923 | 501(c)(3) | $26,524 | Research |
| The Ohio State University | |||||||
| 1960 Kenny Road | Columbus | OH | 43210 | 316025986 | State of Ohio | $135,000 | Research |
| The Regents of The Univ of Michigan | |||||||
| 2301 Commonwealth Blvd | Ann Arbor | MI | 48105 | 386006809 | State of Michig | $30,000 | Medical Diagnosis |
| The Regents of the University of California (Davis | |||||||
| 1850 Research Park Drive Ste 300 | Davis | CA | 95618 | 946036494 | State of Califo | $137,500 | Research |
| The Regents of the University of California Los A | |||||||
| 11000 Kinross Avenue Ste 211 | Los Angeles | CA | 90095 | 946006143 | State of Califo | $866,257 | Research |
| The Regents of the University of California San D | |||||||
| 9500 Gilman Drive Dept 0934 | La Jolla | CA | 92093 | 956006144 | State of Califo | $299,271 | Research |
| The Regents of the University of California San F | |||||||
| 3333 California Street Ste 315 | San Francisco | CA | 94118 | 946036493 | State of Califo | $137,500 | Research |
| The Regents of the University of Colorado | |||||||
| 3100 Marine Street Room 479 | Boulder | CO | 80309 | 846000555 | State of Colora | $112,925 | Research |
| The Regents of the University of Michigan | |||||||
| 3003 S State Street Room 1054 | Ann Arbor | MI | 48109 | 386006309 | State of Maryla | $156,030 | Research |
| The Regents of the University of New Mexico | |||||||
| 1700 Lomas BLvd NE Ste 2200 | Albuquerque | NM | 87131 | 856000642 | State of New Me | $90,000 | Research |
| The Research Institute at Nationwide Children's Ho | |||||||
| 700 Childrens Drive | Columbus | OH | 43205 | 316056230 | 501(c)(3) | $142,000 | Research |
| The Scripps Research Institute | |||||||
| 10550 North Torrey Pines Rd | La Jolla | CA | 92037 | 330435954 | 501(c)(3) | $240,908 | Research |
| The Translational Genomics Research Institute | |||||||
| 445 N Fifth Street Ste 600 | Phoenix | AZ | 85004 | 753065445 | 501(c)(3) | $129,076 | Research |
| The Trustees of Columbia University in the City of | |||||||
| 630 West 168th Street Box 49 | New York | NY | 10032 | 135598093 | 501(c)(3) | $832,138 | Research |
| The Trustees of the University of Pennsylvania | |||||||
| 3451 Walnut Street Franklin Bldg P | Philadelphia | PA | 19104 | 231352685 | State of Pennsy | $478,053 | Research |
| The Univ Of Texas Southwestern | |||||||
| 5323 Harry Hines Blvd | Dallas | TX | 75390 | 756002868 | State of Texas | $192,000 | Medical Diagnosis |
| The University of Iowa | |||||||
| 2 Gilmore Hall | Iowa City | IA | 52242 | 426004813 | State of Iowa | $330,043 | Research |
| The University of North Carolina at Chapel Hill | |||||||
| 104 Airport Drive Ste 2200 Campus | Chapel Hill | NC | 27599 | 566001393 | State of North | $132,000 | Research |
| The University of Texas Health Science Center at H | |||||||
| Post Office Box 20036 | Houston | TX | 77225 | 741761309 | State of Texas | $318,286 | Research |
| The University of Texas Medical Branch at Galvesto | |||||||
| 301 University Boulevard | Galveston | TX | 77555 | 746000949 | State of Texas | $130,000 | Research |
| The University of Toledo | |||||||
| 2801 West Bancroft Street | Toledo | OH | 43606 | 346401483 | State of Ohio | $108,606 | Research |
| Tivorsan Pharmaceuticals Inc | |||||||
| 3 Davol Square A301 | Providence | RI | 02903 | 770702642 | Corporation | $150,000 | Research |
| Toledo Hospital | |||||||
| 3949 Sunforest Ct Suite 203 | Toledo | OH | 43623 | 344428256 | 501(c)(3) | $30,375 | Medical Diagnosis |
| Trustees of Boston University | |||||||
| 881 Commonwealth Avenue | Boston | MA | 02215 | 042103547 | 501(c)(3) | $119,149 | Research |
| Trustees of Columbia University | |||||||
| 622 W 168th Street Box 16 | New York | NY | 10032 | 133908657 | 501(c)(3) | $176,400 | Medical Diagnosis |
| Tufts Medical Center Hospital | |||||||
| 800 Washington St Dept of PMR | Boston | MA | 02111 | 043148378 | 501(c)(3) | $16,875 | Medical Diagnosis |
| UAB Division of Pediatric Neurology | |||||||
| 1600 7th Ave South Ste 406 | Birmingham | AL | 35233 | 630307306 | 501(c)(3) | $18,000 | Medical Diagnosis |
| UMDNJ - University Hospital | |||||||
| 150 Bergen St Rm G246 | Newark | NJ | 07103 | 351911857 | 501(c)(3) | $58,725 | Medical Diagnosis |
| UMDNJ-New Jersey Medical School | |||||||
| 185 S Orange Avenue MSB C-690 | Newark | NJ | 07101 | 221775306 | 501(c)(3) | $125,000 | Research |
| UMPhysicians | |||||||
| 2101 SE 6th St Ste 4-184 MMC 2641E | Minneapolis | MN | 55455 | 411843943 | 501(c)(3) | $157,500 | Medical Diagnosis |
| Univ of MA Medical School | |||||||
| Rms 5-752 55 Lake Avenue N | Worcester | MA | 01655 | 043167352 | State of Massac | $21,600 | Medical Diagnosis |
| Univ of North Carolina Hospitals | |||||||
| 211 Friday Center Dr Suite 2033 | Chapel Hill | NC | 27514 | 570935917 | State of North | $34,200 | Medical Diagnosis |
| Univ Hosp Brooklyn SUNY-Downstate Med Ctr | |||||||
| 450 Clarkson Ave Box 1213 | Brooklyn | NY | 11203 | 141368361 | State of New Yo | $40,500 | Medical Diagnosis |
| Univ of Arkansas for Medical Sciences | |||||||
| 4301 W Markham | Little Rock | AR | 72205 | 716046242 | State of Arkans | $54,000 | Medical Diagnosis |
| Univ of Miami Sponsored Programs | |||||||
| PO Box 405803 | Atlanta | GA | 30384 | 592579826 | 501(c)(3) | $199,252 | Medical Diagnosis |
| Univ of Nevada School of Medicine | |||||||
| 2040 W Charleston Blvd Ste 300 | Las Vegas | NV | 89102 | 880330858 | State of Nevada | $22,500 | Medical Diagnosis |
| Univ of New Mexico Health Sciences Ctr | |||||||
| MSC10 5620 1 University of New Mexi | Albuquerque | NM | 87131 | 856000642 | State of New Me | $41,400 | Medical Diagnosis |
| Univ of Rochester Medical Center | |||||||
| 601 Elmwood Ave Box 673 | Rochester | NY | 14642 | 160743209 | 501(c)(3) | $94,500 | Medical Diagnosis |
| Univ of TX Hlth Science Ctr MSRDP | |||||||
| 7703 Floyd Curl Drive | San Antonio | TX | 78284 | 741586031 | State of Texas | $74,700 | Medical Diagnosis |
| Univ of Utah School of Medicine | |||||||
| 175 North Medical Dr East 5th Floo | Salt Lake City | UT | 84132 | 870480520 | State of Utah | $67,500 | Medical Diagnosis |
| Univof Alabama Health SvcsFound | |||||||
| 1720 7Th Ave South Suite 350 Spar | Birmingham | AL | 35294 | 630649108 | State of Alabam | $25,000 | Medical Diagnosis |
| Univof Mississippi Medical Center | |||||||
| 2500 N State Street | Jackson | MS | 39216 | 646008520 | State of Missou | $87,500 | Medical Diagnosis |
| University Medical Associates | |||||||
| 1 Poston Road Ste 350 | Charleston | SC | 29407 | 571098556 | State of South | $35,100 | Medical Diagnosis |
| University Medical Center | |||||||
| 1501 N Campbell PO Box 245142 | Tucson | AZ | 85724 | 942958258 | State of Arizon | $31,500 | Medical Diagnosis |
| University Neurology Inc | |||||||
| ML525-231 Bethesda Ave | Cincinnati | OH | 45267 | 311000664 | Corporation | $70,200 | Medical Diagnosis |
| University of California Regents (Sacramento) | |||||||
| 4860 Y Street Ste 3850 | Sacramento | CA | 95817 | 946036494 | State of Califo | $45,000 | Medical Diagnosis |
| University of California Regents (San Francisco) | |||||||
| 505 Parnassus Ave M 798 Box 0114 | San Francisco | CA | 94143 | 946036493 | State of Califo | $103,500 | Medical Diagnosis |
| University of Cincinnati | |||||||
| 51 Goodman Drive PO Box 210222 | Cincinnati | OH | 45221 | 316000989 | State of Ohio | $110,000 | Research |
| University of Colorado Denver AMC and DC | |||||||
| Mail Stop F428 Anschutz Medical Cam | Aurora | CO | 80045 | 846000555 | State of Colora | $100,000 | Research |
| University of Florida | |||||||
| 219 Grinter Hall | Gainesville | FL | 32611 | 596002052 | State of Florid | $360,240 | Research |
| University of Iowa Hospitals & Clinics | |||||||
| B5 Jessup Hall | Iowa City | IA | 52242 | 426004813 | State of Iowa | $46,800 | Medical Diagnosis |
| University of Maryland Baltimore | |||||||
| 620 W Lexington Street 4th Floor | Baltimore | MD | 21201 | 526002033 | State of Maryla | $120,765 | Research |
| University of Massachusetts Medical School | |||||||
| 55 Lake Avenue North | Worcester | MA | 01655 | 043167352 | State of Massac | $330,000 | Research |
| University of Miami School of Medicine | |||||||
| 1400 NW 10th Avenue | Miami | FL | 33136 | 590624458 | State of Florid | $130,000 | Research |
| University of Nebraska Medical Center | |||||||
| 600 S42nd St | Omaha | NE | 68198 | 470049123 | State of Nebras | $36,000 | Medical Diagnosis |
| University of Pittsburgh | |||||||
| 200 Lothrop Street Suite F875 | Pittsburgh | PA | 15213 | 250965591 | State of Pennsy | $54,000 | Medical Diagnosis |
| University of Puerto Rico Medical Sciences | |||||||
| GPO 365067 1st Fl Univ Hospital | San Juan | PR | 00936 | 660433762 | State of Puerto | $45,000 | Medical Diagnosis |
| University of Rochester | |||||||
| 518 Hylan Bldg Box 270140 | Rochester | NY | 14627 | 160743209 | 501(c)(3) | $660,271 | Research |
| University of Tennessee Medical Center | |||||||
| 1928 Alcoa Highway Medical Bldg B | Knoxville | TN | 37920 | 311626179 | State of Tennes | $12,600 | Medical Diagnosis |
| University of Texas MD Anderson Cancer Center | |||||||
| 1515 Holcombe Blvd | Houston | TX | 77030 | 746001118 | State of Texas | $106,130 | Research |
| University of Utah | |||||||
| 75 S 2000 East 211 RAB | Salt Lake City | UT | 84112 | 876000525 | State of Utah | $125,000 | Research |
| University of Virginia Health | |||||||
| PO Box 9007 | Charlottesville | VA | 22906 | 541124769 | State of Virgin | $57,600 | Medical Diagnosis |
| University of Washington | |||||||
| 4333 Brooklyn Ave NE Box 359472 | Seattle | WA | 98195 | 916001537 | State of Washin | $1,152,873 | Research |
| University of Washington MedCenter | |||||||
| 1959 NE Pacific Street PO Box 25 | Seattle | WA | 98195 | 916001537 | State of Washin | $63,900 | Medical Diagnosis |
| University Physicians | |||||||
| One Hospital Drive DC05630 | Columbia | MO | 65212 | 436003859 | State of Missou | $23,753 | Medical Diagnosis |
| University Physicians Inc | |||||||
| PO Box 725 | Aurora | CO | 80040 | 742161737 | State of Colora | $135,000 | Medical Diagnosis |
| Univiversity of IL Board of Trustees | |||||||
| PO Box 20787 | Springfield | IL | 62708 | 376000511 | State of Illino | $63,500 | Medical Diagnosis |
| UPH Neurology Clinic | |||||||
| 2800 E Ajo Way | Tucson | AZ | 85713 | 942958258 | 501(c)(3) | $31,500 | Medical Diagnosis |
| USCUniversity of Southern California | |||||||
| 837 West Downey Way STO 330 | Los Angeles | CA | 90089 | 951642394 | State of Califo | $60,250 | Research |
| UT Southwestern Medical Center | |||||||
| 5323 Harry Hines Blvd | Dallas | TX | 75390 | 756002868 | State of Texas | $317,942 | Research |
| Valerion Therapeutics Inc | |||||||
| 100 Main St Suite 110 | Concord | MA | 01742 | 320246380 | Corporation | $140,612 | Research |
| Vanderbilt Department of Neurology | |||||||
| Dept at 40303 - Center 4-01-400-5 | Atlanta | GA | 31992 | 620476822 | 501(c)(3) | $149,000 | Medical Diagnosis |
| Via Christi Med Ctr St Francis Campus | |||||||
| 707 N Emporia | Wichita | KS | 67147 | 481172106 | 501(c)(3) | $29,250 | Medical Diagnosis |
| W Virginia University Research Corp | |||||||
| 1 Medical Ctr Dr Ste 7500 | Morgantown | WV | 26508 | 550665758 | State of West V | $32,400 | Medical Diagnosis |
| Wake Forest Univ School of Medicine | |||||||
| Medical Center Blvd | WinstonSalem | NC | 27157 | 223849199 | 501(c)(3) | $18,000 | Medical Diagnosis |
| Washington State University | |||||||
| Room 423 Neill Hall | Pullman | WA | 99164 | 916001108 | State of Washin | $73,965 | Research |
| Washington UnivSchool of Medicine | |||||||
| Box 8111 600 S Euclid Ave | St Louis | MO | 63110 | 430653611 | State of Missou | $126,000 | Medical Diagnosis |
| Washington University in St Louis | |||||||
| 660 South Euclid Avenue Campus Box | St Louis | MO | 63110 | 430653611 | 501(c)(3) | $452,990 | Research |
| Wesley Neurology Clinic PC | |||||||
| 1211 Union Avenue Suite 400 | Memphis | TN | 38104 | 581544781 | 501(c)(3) | $55,700 | Medical Diagnosis |
| White Plains Hospital & Medical Center | |||||||
| Davis Avenue at East Post Road | White Plains | NY | 10601 | 131740130 | 501(c)(3) | $12,600 | Medical Diagnosis |
| Wichita Falls Neurology Center PLLC | |||||||
| 1600 7th Street Ste B | Wichita Falls | TX | 76301 | 752151000 | Partnership | $10,800 | Medical Diagnosis |
| Yale University | |||||||
| 800 Howard Ave PO Box 208071 | New Haven | CT | 06520 | 060646973 | 501(c)(3) | $10,000 | Medical Diagnosis |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 228 | Total501c3OrgCnt |
| Total Other Org | 24 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | FORM 990, SCHEDULE F, PART I, LINE 2 | FormAndLineReferenceDesc |
| Explanation | UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Travel For Companions | Yes (X) | TravelForCompanionsInd |
| Club Dues Or Fees | Yes (X) | ClubDuesOrFeesInd |
| Written Policy Ref T And E Expnss | Yes (true) | WrittenPolicyRefTAndEExpnssInd |
| Substantiation Required | Yes (true) | SubstantiationRequiredInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | Yes (true) | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Steven Derks | |||||||||||||
| President & CEO | $443,038 | $0 | $0 | $0 | $17,500 | $0 | $49,250 | $0 | $12,879 | $0 | $522,667 | $0 | $0 |
| Valerie A Cwik MD | |||||||||||||
| ASST. SEC & CHIEF MED & RES | $201,114 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $7,041 | $0 | $208,155 | $0 | $0 |
| Gail Schmertz Kerner Esq | |||||||||||||
| ASST SEC & CHIEF LEGAL OFFICER | $193,559 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $13,592 | $0 | $207,151 | $0 | $0 |
| Peter Morgan | |||||||||||||
| ASST TREAS & EVP & CHIEF OP | $168,799 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $13,592 | $0 | $182,391 | $0 | $0 |
| John Walsh | |||||||||||||
| Div Chief Executive | $150,791 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $13,592 | $0 | $164,383 | $0 | $0 |
| Kevin W Moran | |||||||||||||
| VP Program Development | $149,509 | $0 | $0 | $0 | $0 | $0 | $0 | $0 | $13,592 | $0 | $163,101 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PARTICIPATION IN, OR RECEIVED PAYMENT FROM RETIREMENT PLAN | FormAndLineReferenceDesc |
| Explanation | STEVEN M. DERKS - $66,750, 457 RETIREMENT PLAN | ExplanationTxt |
Schedule L IRS990ScheduleL
Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp (2 entries)
| Relationship DescriptionRelationshipDescriptionTxt | TransactionTransactionAmt | TransactionTransactionDesc | Sharing Of RevenuesSharingOfRevenuesInd |
|---|---|---|---|
| Steve Farella | |||
| MDA Board Member | $1,306,520 | Public Service Announcements | false |
| Daniel G Fries | |||
| MDA Board Member | $262,005 | Pension Actuaries Service | false |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | FORM 990, SCHEDULE L, PART IV | FormAndLineReferenceDesc |
| Explanation | (A) NAME OF PERSON: STEVE FARELLA (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $ 1,306,520 (D) DESCRIPTION OF TRANSACTION: MDA board member Steve Farella was the CEO of Targetcast. Of the $1,306,520 paid to Targetcast, $1,139,589 was passed through to the ABC Television Station Group for a promotional campaign supporting the MDA Show of Strength Telethon. Targetcast did not receive any commissions for the paid media placements. Targetcast also provided MDA with placement of free public service announcements in national media outlets and received fees of $166,931. Steve Farella is not directly compensated by MDA. (E) SHARING OF ORGANIZATION REVENUES? = NO (A) NAME OF PERSON: DANIEL G. FRIES (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $ 262,005. (D) DESCRIPTION OF TRANSACTION: MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. (E) SHARING OF ORGANIZATION REVENUES? = NO | ExplanationTxt |
Schedule M IRS990ScheduleM
Works Of Art WorksOfArtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 11 | ContributionCnt |
| Noncash Contributions Rpt F990 | $0 | NoncashContributionsRptF990Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Art Historical Treasures | ArtHistoricalTreasuresGrp | |
| Art Fractional Interest | ArtFractionalInterestGrp | |
| Books And Publications | BooksAndPublicationsGrp | |
| Clothing And Household Goods | ClothingAndHouseholdGoodsGrp | |
| Cars And Other Vehicles | CarsAndOtherVehiclesGrp | |
| Boats And Planes | BoatsAndPlanesGrp | |
| Intellectual Property | IntellectualPropertyGrp |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 22 | ContributionCnt |
| Noncash Contributions Rpt F990 | $113,953 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | SELLING PRICE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities Closely Held Stock | SecuritiesCloselyHeldStockGrp | |
| Secur Prtnrshp Trust Intrsts | SecurPrtnrshpTrustIntrstsGrp | |
| Securities Miscellaneous | SecuritiesMiscellaneousGrp | |
| Qualified Contrib Hist Struct | QualifiedContribHistStructGrp | |
| Qualified Contrib Other | QualifiedContribOtherGrp | |
| Real Estate Residential | RealEstateResidentialGrp | |
| Real Estate Commercial | RealEstateCommercialGrp | |
| Real Estate Other | RealEstateOtherGrp | |
| Collectibles | CollectiblesGrp | |
| Food Inventory | FoodInventoryGrp | |
| Drugs And Medical Supplies | DrugsAndMedicalSuppliesGrp | |
| Taxidermy | TaxidermyGrp | |
| Historical Artifacts | HistoricalArtifactsGrp | |
| Scientific Specimens | ScientificSpecimensGrp | |
| Archaeological Artifacts | ArchaeologicalArtifactsGrp |
Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)
| Non Cash CheckboxNonCashCheckboxInd | DescDesc | ContributionContributionCnt | Noncash Contributions Rpt F990NoncashContributionsRptF990Amt | Method Of Determining RevenuesMethodOfDeterminingRevenuesTxt |
|---|---|---|---|---|
| Yes (X) | MEDICAL EQUIPMENT | 26 | $412,414 | APPRAISAL |
| Yes (X) | ART WORK | 1 | $6,000 | APPRAISAL |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 26 | Form8283ReceivedCnt |
| Any Property That Must Be Held | false | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | false | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | false | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (10 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART I, LINE 1 | MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION. |
| FORM 990, PART VI, SECTION B, LINE 11 | ALL BOARD MEMBERS WERE INVITED TO THE AUDIT COMMITTEE MEETING FOR THE FEDERAL FORM 990 REVIEW BY BDO BEFORE FILING WITH THE IRS. THOSE NOT IN ATTENDANCE WERE PROVIDED A HARD COPY. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH THE MDA LEGAL DEPARTMENT. |
| FORM 990, PART VI, SECTION B, LINE 15 | A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. |
| FORM 990, PART XI, LINE 9 | CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 16,411,265 IMPAIRMENT LOSS -1,745,417 ----------- TOTAL TO FORM 990, PART XI, LINE 9 14,665,848 |
| FORM 990, PART XI, LINE 2C | THERE HAVE BEEN NO CHANGES DURING THE YEAR IN THE PROCESS FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS. |
| FORM 990, PART III, LINE 4A | The mission of the Muscular Dystrophy Association (MDA) is to save and improve lives for people fighting muscle diseases. In addition to funding research, MDA does this by supporting and empowering families through its services programs. MDA provides services to those affected by any of the disorders in its program, irrespective of age, race, creed, or gender. MDA's program is designed to assist those affected by muscular dystrophy and related diseases of the neuromuscular system, which affect children and adults. A complete list of diseases covered can be obtained by written request to MDA at 3300 East Sunrise Drive, Tucson, Arizona 85718 or via www.mda.org. MDA maintains the most comprehensive services program of any voluntary health agency in the country. This aspect of MDA's program accounted for over $65,014,202 of its 2013 expenditures. MDA's program - ranging from a nationwide network of clinics to assistance with essential support services - is administered through its field offices across the United States and in Puerto Rico. Caring MDA staff in these offices provides support for local families upon diagnosis and throughout their neuromuscular disease journey. MDA Clinics: MDA maintains a network of 200 hospital-affiliated clinics located at medical institutions and university-based facilities. Each year MDA provides tens of thousands of medical visits through its clinic program. With a referral from a physician who suspects a neuromuscular disorder, individuals are eligible for a diagnostic evaluation at an MDA clinic. Once confirmed with a diagnosis covered by MDA, individuals can receive follow-up care from clinic team members using a multidisciplinary team approach. Annual physical, occupational, respiratory and speech therapy consultations, as well as annual flu inoculations, are among the many services available through MDA clinics. MDA clinics also are essential to the advancement of neuromuscular disease research and serve as focal points for the clinical application of scientific advances designed to treat these disorders, including clinical trials. In 2012 the Association established the MDA U.S. Neuromuscular Disease Registry, with the aim of improving survival and quality of life for those with neuromuscular diseases, as well as expediting clinical trials. The registry was piloted at 25 MDA clinics in 2013, with plans in place to expand the registry to MDA's entire clinic network. As part of its clinic program, the Association has over 40 amyotrophic lateral sclerosis (ALS) centers across the country (listing available at mda.org). Equipment Assistance: Through its Equipment Inventory Program, MDA provided thousands of adaptive devices in 2013 - at no cost to those served by the Association. Examples of equipment provided include walkers, wheelchairs, communication technologies and hospital beds. MDA also assisted with repairs to all types of durable medical equipment for those it serves. Summer Camp: In 2013, thousands of children with neuromuscular disease enjoyed a week of fun and friendship at one of nearly 80 MDA summer camps across the country. Support and Information Services: Support and information were provided through MDA's nationwide network of over 150 local support groups and educational seminars. Support also was available through MDA's care coordination tool, www.mda.org/myMuscleTeam, which enables families to seek assistance from friends and loved ones by posting household tasks and caregiving needs for which help is being sought, such as transportation to medical appointments or meal preparation. MDA staff also assisted individuals by advising them about federal, state and community services for which they may be eligible. MDA's transitional services offered support and resources for youth with neuromuscular disease who are entering adulthood, including an online Transitions Center at www.transitions.mda.org/. Additional information about MDA's Health Care and Community Services Program is available through MDA's Web site at www.mda.org/services.html. |
| FORM 990, PART III, LINE 4B | The Muscular Dystrophy Association, Inc., (MDA) is a not-for-profit organization incorporated on June 6, 1950, under the laws of the State of New York. MDA supports worldwide research to find the causes of and develop therapies and cures for muscular dystrophies and related neuromuscular disorders. MDA's programs are supported almost entirely by individual private contributions from the general public. MDA neither receives fees from those it serves nor applies any means test for services. The diseases supported by MDA are the muscular dystrophies (among which are Duchenne and Becker); motor neuron diseases, including amyotrophic lateral sclerosis (ALS, Lou Gehrig's disease) and spinal muscular atrophy; the peripheral nerve disorders Charcot-Marie-Tooth disease and Friedreich ataxia; inflammatory myopathies; disorders of the neuromuscular junction; metabolic diseases of muscle and other myopathies. Most of the disorders in MDA's program have genetic underpinnings. Most cause progressive weakness resulting in significant mobility impairment. Some of the more than 40 neuromuscular diseases covered by MDA are life-shortening. As reported by the U.S. Department of Health and Human Services, National Institutes of Health (NIH), in the United States alone, muscular dystrophy and other neuromuscular disorders are estimated to affect some 1 million people. MDA supports hundreds of research teams worldwide, primarily at academic institutions, through its investigator initiated research grants program. The basic science projects funded by MDA, such as disease gene discovery, gene transfer technology, and cellular regulation studies, are now being applied to the development of therapies. The Association is currently funding therapeutic strategies such as gene- and stem cell-based therapies, biologics, small molecules, antisense oligonucleotides, RNA interference, epigenetic regulation, permanent gene repair and more. MDA is currently sponsoring research grants in the United States and a dozen foreign countries. The Association's research program accounted for some $29,354,830 of its expenditures for the 2013 calendar year. MDA's Scientific and Medical Advisory Committees, whose members are among the nation's foremost scientists and physicians in the field of neuromuscular disease, carefully evaluate all Research Grant and Development Grant proposals submitted to the Association. MDA maintains a diverse program of basic research, which advances investigations of possible treatments for neuromuscular diseases, muscle function, regulation and regeneration; biochemical changes involved in muscle disease; the genetics of neuromuscular disease; and the interaction of nerve and muscle. This work is crucial for providing a sound scientific foundation upon which practical advances against disease can be built. Additionally, the Association's translational research program is focused on milestone driven contracts with the biotech industry, pharmaceutical companies and academic investigators for research that is directly relevant to bringing new therapies to market. Advisors to MDA's translational research program include a number of top neuromuscular disease researchers, as well as representatives of NIH and industry. Recent Research Accomplishments Accelerating therapy development and reducing barriers to move therapies into human clinical trials is a focus of MDA's research program. Through its basic and translational research grants programs MDA is supporting preclinical development and early phase human testing of strategies and compounds designed to slow progression of neuromuscular diseases and important strides are being made as a result of MDA-support research. Exon skipping is a therapeutic strategy that coaxes muscle cells to ignore, or "skip over," a flawed section of genetic instructions for the dystrophin protein, which is absent in people with DMD. MDA funded much of the early work that led to exon skipping drugs that are now showing encouraging results in human clinical trials, and continues to develop the strategy for DMD. A 48-week phase 2b clinical trial of the exon-51 skipping drug, eteplirsen, reported that the drug was safe and well tolerated, resulted in significant production of dystrophin in the region of muscle fibers where it is required, and slowed the decline in walking ability in study participants. In an extension of that study reported in 2013, the drug remains safe and well tolerated and walking ability remained stable at 96 weeks. The synthetic molecules that promote exon-skipping are termed antisense-oligonucleotides (AONs) which are custom designed to target specific regions of the DNA or RNA genetic material. In addition to exon skipping to repair faulty dystrophin genes, MDA-supported researchers are employing AONs to develop innovative therapeutic approaches for a number of other diseases, including SMA, myotonic dystrophy, ALS, and FSHD. In 2013, the experimental antisense drug ISIS-SMNRx was shown to be safe and well tolerated in early phase testing in infants and children with spinal muscular atrophy and a phase 2 study of this drug was launched in infants. ISIS-SMNRx, developed by Isis Pharmaceuticals in Carlsbad, Calif.; MDA supported the laboratory development of this drug through a grant to Adrian Krainer at Cold Spring Harbor (N.Y.) Laboratory. For myotonic dystrophy type 1, scientists are using AONs to block disease-causing genetic instructions in cells and animal disease models. Planning for human clinical trials of this therapeutic strategy for myotonic muscular dystrophy is underway. With support from MDA Dr. Charles Thornton at the University of Rochester has developed a Myotonic Dystrophy Clinical Research Network to standardize methods for evaluating those with myotonic dystrophy types 1 and 2, in preparation for clinical trials in these disorders. MDA also supports a Clinical Research Network focused on DMD and another on ALS. In 2013, the DMD network announced results of its study of infants and toddlers with DMD, demonstrating that signs of the disorder are apparent at these very young ages. This information will help inform design of clinical trials to include this population in the future. Additionally in 2013 awarded the DMD Clinical Research Network a grant to test prednisone, the only drug currently available for the treatment of DMD, in boys 30 months of age and younger. Work of the ALS clinical research network is focused on quality measures for ALS, in conjunction with the American Academy of Neurology, as well as the effect of diet in the progression of the disorder. In ALS, MDA continued to fund studies aimed at better understanding the causes of ALS and identifying targets for therapy development. An important finding reported in 2013 was that generation of toxic RNA plays a role in C9ORF72 ALS and frontotemporal dementia, the most common genetic cause of ALS. These findings provide the basis for further investigation of antisense-based therapies as a treatment for this form of ALS. Another gene that is involved in causing ALS is the FUS gene. MDA-supported researchers linked ALS-causing mutations in the FUS gene to an impaired ability to repair DNA, and that a failure to repair DNA damage appears to play an important role in ALS. MDA also funded a ALS exome sequencing project to help identify new genes associated with ALS. In August 2013, MDA funded its second grantee under the Bridge-to-Industry (B2I) program, a pilot project designed to train promising researchers in translational research by providing experience both in academia and the biopharmaceutical industry. Translational research refers to the lengthy and complex "translation" of promising laboratory findings into marketable drugs. Dr. Christopher Penton will study compounds that boost muscle repair and dampen muscle scar formation at the University of Arizona and pharmaceutical company Sanofi. To promote timely sharing of results and to encourage collaborations among investigators MDA hosts a biennial Scientific Conference. With a focus on turning research into treatments as quickly as possible, more than 500 participants from the academic, corporate drug development and clinical arenas gathered in Washington, D.C. in April 2013 for this international meeting. More than 70 oral presentations and nearly 200 scientific posters were presented at the event, covering a wide range of diseases under MDA's umbrella MDA remains committed to supporting cutting-edge research by top scientists and clinicians throughout the world-research. The focus of MDA's research effort in the future remains the advancement of strategies to apply the technologies resulting from years of basic research toward the development of effective therapies. This is how MDA can best serve those with neuromuscular diseases and their families. MDA is enhancing its partnerships with industry, the National Institutes of Health and academia to accelerate neuromusc |
| FORM 990, PART III, LINE 4C | In the year ended December 31, 2013, the Muscular Dystrophy Association (MDA) expended $18,075,948 on its professional and public health education program. MDA annually provides the medical profession, scientific community, general public and people affected by muscle diseases with timely and thorough information about MDA's programs and the 43 different diseases they cover. MDA successfully worked with media outlets nationwide in 2013, placing thousands of documented news stories about its mission to save and improve lives for people fighting muscle disease with network, syndicated and local broadcast outlets, print news publications, and online, including social media mentions. Representing millions of impressions collectively, the valuable earned media placements were reinforced by thousands of no-cost public service advertisements. In addition to free banner advertisements on many high-traffic websites, a substantial number of MDA's "Progress that Moves Muscles" PSAs were published by newspapers and other periodicals; and broadcast by national, regional and local television, cable and radio stations. MDA publications and extensive online postings produced a steady stream of information about MDA-funded research and health care services, as well as insightful articles on relevant legislation and inspiring individuals. In addition to posting two to three online news articles per week during 2013, MDA produced four print issues of its award-winning national magazine Quest. In addition, MDA produced and distributed a variety of educational videos for families affected by muscular dystrophy and related diseases. These videos were reinforced by an extensive array of program-specific spots broadcast during the 2013 MDA Show of Strength Telethon viewed by tens of millions worldwide on the ABC network. Among these spots were special profiles of people living with muscle diseases; research updates; educational spots on the myriad medical and health care services available through MDA's national network of 200 medical clinics; a spotlight on MDA's extraordinary summer camp program for children ages 6 to 17; and much more. MDA also continued to enhance its popular website at mda.org, as well as many other program-specific sites. Internationally recognized as a key source of information about neuromuscular diseases, total 2013 page views at mda.org surpassed 5.7 million, with unique visitors exceeding 1.7 million for the year. MDA also facilitated and promoted a variety of webinars and conference live streams to give the families it serves, as well as medical and health care professionals, ample opportunities to ask questions about diseases, research, services and many other topics. |