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MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization
MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period
2013-01-01 to 2013-12-31
Filed
2014-08-15
IRS object ID
201432279349302198
Schema version
2013v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2014-08-15T12:07:58-05:00ReturnTs
Tax Period End2013-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1BDO USA LLPBusinessNameLine1

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17101 WISCONSIN AVE SUITE 800AddressLine1
CityBETHESDACity
StateMDState
ZIP Code208144827ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2013-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN131665552EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MUSCULAR DYSTROPHY ASSOCIATION INCBusinessNameLine1
FieldValueIRS element (for citing)
In Care Of% STEPHEN P EVANS VP FINANCEInCareOfNm
Business Name ControlMUSCBusinessNameControlTxt
Phone3122605900PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1222 SOUTH RIVERSIDE PLAZAAddressLine1
Address Line2Suite 1500AddressLine2
CityCHICAGOCity
StateILState
ZIP Code606066000ZIPCode

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJULIE FABERPersonNm
Person TitleCFOPersonTitleTxt
Phone7038930600PhoneNum
Signature2014-08-14SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMike SorrellsPreparerPersonNm
Phone3016544900PhoneNum
FieldValueIRS element (for citing)
Tax2013TaxYr
Build TS2015-11-30 17:44:51ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerSTEVEN DERKSPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1222 S RIVERSIDE PL STE 1500AddressLine1
CityCHICAGOCity
StateILState
ZIP Code60606ZIPCode
FieldValueIRS element (for citing)
Gross Receipts$206,547,778GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.mda.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1950FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionSEE SCHEDULE OActivityOrMissionDesc
Voting Members Governing Body16VotingMembersGoverningBodyCnt
Voting Members Independent16VotingMembersIndependentCnt
Total Employee1321TotalEmployeeCnt
Total Volunteers1500000TotalVolunteersCnt
Total Gross UBI$253,113TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm-$29,469NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$149,557,236PYContributionsGrantsAmt
CY Contributions Grants$144,990,094CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$1,348,594PYInvestmentIncomeAmt
CY Investment Income$4,164,516CYInvestmentIncomeAmt
PY Other Revenue$1,209,221PYOtherRevenueAmt
CY Other Revenue$1,171,110CYOtherRevenueAmt
PY Total Revenue$152,115,051PYTotalRevenueAmt
CY Total Revenue$150,325,720CYTotalRevenueAmt
PY Grants And Similar Paid$47,570,979PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$38,730,052CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$67,163,193PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$61,530,638CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$497,284PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$534,111CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$21,534,876CYTotalFundraisingExpenseAmt
PY Other Expenses$51,592,591PYOtherExpensesAmt
CY Other Expenses$47,210,391CYOtherExpensesAmt
PY Total Expenses$166,824,047PYTotalExpensesAmt
CY Total Expenses$148,005,192CYTotalExpensesAmt
PY Revenues Less Expenses-$14,708,996PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$2,320,528CYRevenuesLessExpensesAmt
Total Assets BOY$100,099,622TotalAssetsBOYAmt
Total Assets EOY$102,852,460TotalAssetsEOYAmt
Total Liabilities BOY$98,635,094TotalLiabilitiesBOYAmt
Total Liabilities EOY$81,721,263TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,464,528NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$21,131,197NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionMDA is the Nonprofit Health Agency dedicated to curing Muscular Dystrophy, ALS, and related diseases by funding worldwide research. The Association also provides comprehensive Health Care and support services, Advocacy, and Education.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$65,014,202ExpenseAmt
Grant$12,946,604GrantAmt
DescHEALTH CARE AND COMMUNITY SERVICES (SEE SCHEDULE O)Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$29,354,830ExpenseAmt
Grant$25,783,448GrantAmt
DescRESEARCH (SEE SCHEDULE O)Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$18,075,948ExpenseAmt
DescPROFESSIONAL AND PUBLIC HEALTH EDUCATION (SEE SCHEDULE O)Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$112,444,980TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredfalseScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtYes (true)CollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsYes (true)TempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsYes (true)ReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingYes (true)ProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesYes (true)GamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntYes (true)BusinessRlnWithOfficerEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionYes (true)DeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document1821IRPDocumentCnt
IRP Document W2 G23IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee1321EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OfYes (true)Form8282PropertyDisposedOfInd
Form8282 Filed6Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members16GoverningBodyVotingMembersCnt
Independent Voting Member16IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersYes (true)LocalChaptersInd
Policies Reference ChaptersYes (true)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
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Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonSTEPHEN P EVANS VP FINANCEPersonNm
Phone3122605900PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1222 SOUTH RIVERSIDE PLAZA STE 1500AddressLine1
CityCHICAGOCity
StateILState
ZIP Code60606ZIPCode

Form990 Part VII Section A Form990PartVIISectionAGrp (31 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
Stanley H Appel MD
Director1.0Yes (X)$0$0$0
Robert M Bennett
Director Emeritus1.0Yes (X)$0$0$0
Bart Conner
Director1.0Yes (X)$0$0$0
Harold C Crump
Director1.0Yes (X)$0$0$0
Benjamin F Cumbo III
Director1.0Yes (X)$0$0$0
Joseph S DiMartino
DIRECTOR EMERITUS1.0Yes (X)$0$0$0
Steve Farella
Director1.0Yes (X)$0$0$0
Daniel G Fries
Director1.0Yes (X)$0$0$0
Honorable Brad Henry
Director1.0Yes (X)$0$0$0
R Rodney Howell MD
Chairman5.0Yes (X)$0$0$0
Dave Hutton
Director1.0Yes (X)$0$0$0
Louis M Kunkel PhD
Director1.0Yes (X)$0$0$0
Timmi Masters
SECRETARY2.0Yes (X)$0$0$0
Olin F Morris
Director1.0Yes (X)$0$0$0
Christopher J Rosa PhD
Director1.0Yes (X)$0$0$0
Charles D Schoor Esq
Treasurer5.0Yes (X)$0$0$0
John Tognino
Director1.0Yes (X)$0$0$0
Victor Wright
Director1.0Yes (X)$0$0$0
Steven Derks
President & CEO60.0$460,538$0$62,129Yes (X)
Valerie A Cwik MD
ASST. SEC & CHIEF MED & RES50.0$201,114$0$7,041Yes (X)
Gail Schmertz Kerner Esq
ASST SEC & CHIEF LEGAL OFFICER50.0$193,559$0$13,592Yes (X)
Peter Morgan
ASST TREAS & EVP & CHIEF OP50.0$168,799$0$13,592Yes (X)
Stephen P Evans CPA
asst treas & vp finance50.0$117,465$0$13,592Yes (X)
Jodi Walters
asst treas & asst vp finance50.0$70,017$0$7,037Yes (X)
JULIE FABER
CFO50.0$21,653$0$587Yes (X)
John Walsh
Div Chief Executive50.0$150,791$0$13,592Yes (X)
Kevin W Moran
VP Program Development50.0$149,509$0$13,592Yes (X)
Bradley J Barghols
Div Chief Executive50.0$140,003$0$7,506Yes (X)
Steven Ford
EVP Chief Communications50.0$133,373$0$9,047Yes (X)
Robert M Grinsfelder
Div chief Executive50.0$133,800$0$13,078Yes (X)
TODD HERMON
NVP RETAIL PARTERNSHIPS50.0$126,975$0$13,099Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,067,596TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$187,484TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K19IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1CityContractorAddress/USAddress/CityStateContractorAddress/USAddress/StateZIP CodeContractorAddress/USAddress/ZIPCodeServicesServicesDescCompensationCompensationAmt
Alaniz Metro Group
1805 E Washington StreetMt PleasantIA52641Printing$1,214,524
New Edge Network Inc
PO Box 4800PortlandOR97208Network Provider$1,224,010
AMERICAN BROADCASTING COMPANY INC
77 W 66TH STREETNEW YORKNY10023ABC NTWRK BROADCAST.$2,200,000
AGGREGATED SOURCING LLC
8338 AUSTIN AVEMORTON GROVEIL60053PRINTING$1,768,198
TARGETCAST LLC
909 THIRD AVE 31ST FLOORNEW YORKNY10022MEDIA PLACEMENT$1,306,520
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K102CntrctRcvdGreaterThan100KCnt
Federated Campaigns$685,404FederatedCampaignsAmt
Fundraising$118,658,726FundraisingAmt
All Other Contributions$25,645,964AllOtherContributionsAmt
Noncash Contributions$532,367NoncashContributionsAmt
Total Contributions$144,990,094TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,429,780TotalRevenueColumnAmt
Exclusion$1,429,780ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$35,384TotalRevenueColumnAmt
Exclusion$35,384ExclusionAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$0RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$40,562,044SecuritiesAmt
Other$128,550OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$37,955,858SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$2,606,186SecuritiesAmt
Other$128,550OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,734,736TotalRevenueColumnAmt
Exclusion$2,734,736ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$18,132,196FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$118,658,726ContriRptFundraisingEventAmt
Fundraising Direct Expenses$18,132,196FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Gaming Gross Income$538,330GamingGrossIncomeAmt
Gaming Direct Expenses$134,004GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$404,326TotalRevenueColumnAmt
Exclusion$404,326ExclusionAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtExclusionExclusionAmt
Quest Advertising541800$253,113$253,113
OTHER REVENUE900099$478,287$478,287
FieldValueIRS element (for citing)
Other Revenue Total$731,400OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$150,325,720TotalRevenueColumnAmt
Unrelated Business Revenue$253,113UnrelatedBusinessRevenueAmt
Exclusion$5,082,513ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$35,720,781TotalAmt
Program Services$35,720,781ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$3,009,271TotalAmt
Program Services$3,009,271ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,678,194TotalAmt
Program Services$526,353ProgramServicesAmt
Management And General$970,430ManagementAndGeneralAmt
Fundraising$181,411FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$45,464,020TotalAmt
Program Services$38,741,274ProgramServicesAmt
Management And General$3,692,315ManagementAndGeneralAmt
Fundraising$3,030,431FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$10,280,026TotalAmt
Program Services$9,052,909ProgramServicesAmt
Management And General$711,405ManagementAndGeneralAmt
Fundraising$515,712FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$4,108,398TotalAmt
Program Services$3,509,097ProgramServicesAmt
Management And General$331,259ManagementAndGeneralAmt
Fundraising$268,042FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$246,140TotalAmt
Program Services$0ProgramServicesAmt
Management And General$246,140ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$284,878TotalAmt
Program Services$0ProgramServicesAmt
Management And General$284,878ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$534,111TotalAmt
Fundraising$534,111FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$104,709TotalAmt
Program Services$0ProgramServicesAmt
Management And General$104,709ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$13,850,435TotalAmt
Program Services$3,227,393ProgramServicesAmt
Management And General$832,741ManagementAndGeneralAmt
Fundraising$9,790,301FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$11,801,496TotalAmt
Program Services$5,188,079ProgramServicesAmt
Management And General$1,219,654ManagementAndGeneralAmt
Fundraising$5,393,763FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$927,921TotalAmt
Program Services$0ProgramServicesAmt
Management And General$927,921ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$9,306,283TotalAmt
Program Services$8,189,938ProgramServicesAmt
Management And General$481,161ManagementAndGeneralAmt
Fundraising$635,184FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$5,326,350TotalAmt
Program Services$4,349,701ProgramServicesAmt
Management And General$334,546ManagementAndGeneralAmt
Fundraising$642,103FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$69,654TotalAmt
Program Services$41,653ProgramServicesAmt
Management And General$23,239ManagementAndGeneralAmt
Fundraising$4,762FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$2,121,130TotalAmt
Program Services$688,546ProgramServicesAmt
Management And General$1,361,443ManagementAndGeneralAmt
Fundraising$71,141FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescMISC EXPENSESDesc
Total$3,171,395TotalAmt
Program Services$199,985ProgramServicesAmt
Management And General$2,503,495ManagementAndGeneralAmt
Fundraising$467,915FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$148,005,192TotalAmt
Program Services$112,444,980ProgramServicesAmt
Management And General$14,025,336ManagementAndGeneralAmt
Fundraising$21,534,876FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$4,516,286TotalAmt
Program Services$1,623,354ProgramServicesAmt
Management And General$383,884ManagementAndGeneralAmt
Fundraising$2,509,048FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$6,347,489BOYAmt
EOY$30,728,769EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$3,346,295BOYAmt
EOY$2,608,340EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$3,302,799BOYAmt
EOY$2,808,342EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$7,350,477LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$5,604,526LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$14,135,612BOYAmt
EOY$1,745,951EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$72,967,427BOYAmt
EOY$55,961,890EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$8,999,168EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$100,099,622BOYAmt
EOY$102,852,460EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$9,576,961BOYAmt
EOY$10,214,400EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$23,453,207BOYAmt
EOY$21,825,074EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$14,500,000BOYAmt
EOY$15,500,000EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$51,104,926BOYAmt
EOY$34,181,789EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$98,635,094BOYAmt
EOY$81,721,263EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY-$4,369,448BOYAmt
EOY$15,824,975EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,427,860BOYAmt
EOY$4,832,997EOYAmt

Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$406,116BOYAmt
EOY$473,225EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,464,528BOYAmt
EOY$21,131,197EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$100,099,622BOYAmt
EOY$102,852,460EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$2,320,528ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$2,680,294NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$14,665,848OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$175,900,213CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$171,247,359CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$157,086,289CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$149,557,236CurrentTaxYearMinus1YearAmt
Current Tax Year$144,990,094CurrentTaxYearAmt
Total$798,781,191TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$175,900,213CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$171,247,359CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$157,086,289CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$149,557,236CurrentTaxYearMinus1YearAmt
Current Tax Year$144,990,094CurrentTaxYearAmt
Total$798,781,191TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$0SubstantialContributorsTotAmt
Public Support Total170$798,781,191PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,794,744CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,555,153CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,887,167CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,341,192CurrentTaxYearMinus1YearAmt
Current Tax Year$1,465,164CurrentTaxYearAmt
Total$9,043,420TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$270,273CurrentTaxYearMinus1YearAmt
Current Tax Year$478,287CurrentTaxYearAmt
Total$748,560TotalAmt
FieldValueIRS element (for citing)
Total Support$808,573,171TotalSupportAmt
Public Support CY1700.98789PublicSupportCY170Pct
Public Support PY1700.98610PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part IV Form990ScheduleAPartIVGrp

FieldValueIRS element (for citing)
Form And Line ReferenceOTHER INCOME - FORM 990, SCHEDULE A, PART IIFormAndLineReferenceDesc
Explanation2012 OTHER REVENUE 270,273 2013 OTHER REVENUE 478,287 ------- TOTAL OTHER INCOME 748,560ExplanationTxt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$15,277FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$318,170FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$333,447FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$149,037,095FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$149,370,542FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$1,000,000FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$250,000FilingOrganizationsTotalAmt
FieldValueIRS element (for citing)
Tot Lbbyng Grassroot Mns Non TxTotLbbyngGrassrootMnsNonTxGrp
Tot Lbby Expend Mns Lbbyng Non TxTotLbbyExpendMnsLbbyngNonTxGrp

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$1,000,000CurrentYearMinus3Amt
Current Year Minus2$1,000,000CurrentYearMinus2Amt
Current Year Minus1$1,000,000CurrentYearMinus1Amt
Current Year$1,000,000CurrentYearAmt
Total$4,000,000TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$6,000,000LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$368,927CurrentYearMinus3Amt
Current Year Minus2$428,715CurrentYearMinus2Amt
Current Year Minus1$341,893CurrentYearMinus1Amt
Current Year$333,447CurrentYearAmt
Total$1,472,982TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$250,000CurrentYearMinus3Amt
Current Year Minus2$250,000CurrentYearMinus2Amt
Current Year Minus1$250,000CurrentYearMinus1Amt
Current Year$250,000CurrentYearAmt
Total$1,000,000TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,500,000GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$13,300CurrentYearMinus3Amt
Current Year Minus2$12,650CurrentYearMinus2Amt
Current Year Minus1$13,285CurrentYearMinus1Amt
Current Year$15,277CurrentYearAmt
Total$54,512TotalAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Art Public Exhibition AmountsArtPublicExhibitionAmountsGrp
Held Works ArtHeldWorksArtGrp
Collection Used Pub ExhibitionYes (X)CollectionUsedPubExhibitionInd
Collection Used PreservationYes (X)CollectionUsedPreservationInd
Coll Used Loan Or Exch ProgYes (X)CollUsedLoanOrExchProgInd
Solicited Assets SalefalseSolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$251,275BeginningYearBalanceAmt
Contributions$50,000ContributionsAmt
Investment Earnings Or Losses$45,482InvestmentEarningsOrLossesAmt
End Year Balance$346,757EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$175,428BeginningYearBalanceAmt
Contributions$50,000ContributionsAmt
Investment Earnings Or Losses$25,847InvestmentEarningsOrLossesAmt
End Year Balance$251,275EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$125,667BeginningYearBalanceAmt
Contributions$50,000ContributionsAmt
Investment Earnings Or Losses-$239InvestmentEarningsOrLossesAmt
End Year Balance$175,428EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$115,000BeginningYearBalanceAmt
Contributions$11,313ContributionsAmt
Administrative Expenses$646AdministrativeExpensesAmt
End Year Balance$125,667EndYearBalanceAmt
FieldValueIRS element (for citing)
CY Minus4 Yr Endwmt FundCYMinus4YrEndwmtFundGrp
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd
LandLandGrp
BuildingsBuildingsGrp

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$33,641OtherCostOrOtherBasisAmt
Depreciation$18,505DepreciationAmt
Book Value$15,136BookValueAmt
FieldValueIRS element (for citing)
EquipmentEquipmentGrp

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$7,316,836OtherCostOrOtherBasisAmt
Depreciation$5,586,021DepreciationAmt
Book Value$1,730,815BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,745,951TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp

FieldValueIRS element (for citing)
DescASSETS HELD FOR SALEDesc
Book Value$8,999,168BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Other Assets$8,999,168TotalBookValueOtherAssetsAmt
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescPENSION POSTRETIREMENT PLAN OBLIGATIDesc
Amt$34,181,789Amt
FieldValueIRS element (for citing)
Total Liability$34,181,789TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$153,006,014TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$2,680,294NetUnrealizedGainsInvstAmt
Revenue Not Reported$2,680,294RevenueNotReportedAmt
Revenue Subtotal$150,325,720RevenueSubtotalAmt
Total Revenue Per Form990$150,325,720TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$148,005,193TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$148,005,193ExpensesSubtotalAmt
Total Expenses Per Form990$148,005,193TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, SCHEDULE D, PART III, LINE 4ESTABLISHED IN 1992 TO FOCUS ATTENTION ON THE ACHIEVEMENTS OF ARTISTS WITH DISABILITIES AND TO EMPHASIZE THAT PHYSICAL DISABILITY IS NO BARRIER TO CREATIVITY. THE COLLECTION, ON PERMANENT DISPLAY AT MDA NATIONAL HEADQUARTERS IN CHICAGO, IL. AND MDA OPERATION CENTER IN TUCSON AZ, COMPRISES NEARLY 400 ORIGINAL WORKS BY ADULTS AND CHILDREN WHO HAVE ANY OF THE NEUROMUSCULAR DISORDERS IN MDA'S PROGRAM. ARTISTS IN THE COLLECTION REPRESENT ALL 50 STATES, THE DISTRICT OF COLUMBIA AND PUERTO RICO, AND RANGE IN AGE FROM 2 TO 82. THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES, AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
FORM 990, SCHEDULE D, PART X, LINE 2THE ASSOCIATION IS A NONPROFIT ORGANIZATION AND IS EXEMPT FROM TAXATION UNDER INTERNAL REVENUE CODE SECTION 501(C)(3) AND NEW YORK CODES, RULES AND REGULATIONS (NCRR20 SECTION 1-3.4(B)(6)).
fORM 990, SCHEDULE D, PART X, LINE 2GENERALLY ACCEPTED ACCOUNTING PRINCIPLES PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN THEIR FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR THE YEARS ENDED DECEMBER 31, 2013, 2012, AND 2011 ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (6 entries)

RegionRegionTxtType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
Central America and the CaribbeanProgram ServicesGRANTS TO RECIPIENTS$116,210
East Asia and the PacificProgram ServicesGRANTS TO RECIPIENTS$701,161
Europe (Including Iceland and Greenland)Program ServicesGRANTS TO RECIPIENTS$901,584
Middle East and North AfricaProgram ServicesGRANTS TO RECIPIENTS$100,003
North AmericaProgram ServicesGRANTS TO RECIPIENTS$1,117,813
South AmericaProgram ServicesGRANTS TO RECIPIENTS$72,500
FieldValueIRS element (for citing)
Subtotal Spent$3,009,271SubtotalSpentAmt
Total Spent$3,009,271TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (6 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
Central America and the CaribbeanRESEARCH$116,210CHECK
East Asia and the PacificRESEARCH$701,161CHECK
Europe (Including Iceland and Greenland)RESEARCH$901,584CHECK
Middle East and North AfricaResearch$100,003CHECK
North AmericaResearch$1,117,813CHECK
South AmericaRESEARCH$72,500CHECK
FieldValueIRS element (for citing)
Total501c3 Org6Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990, SCHEDULE F, PART I, LINE 2FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH(INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Solicitation Of Govt GrantsYes (X)SolicitationOfGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

FieldValueIRS element (for citing)
PersonConvio IncPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line111501 DOMAIN DRIVE STE 200AddressLine1
CityDallasCity
StateTXState
ZIP Code78758ZIPCode
FieldValueIRS element (for citing)
ActivityShared App servicesActivityTxt
Fundraiser Control Of FundsfalseFundraiserControlOfFundsInd
Gross Receipts$17,946,846GrossReceiptsAmt
Retained By Contractor$534,111RetainedByContractorAmt
Net To Organization$17,412,735NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$17,946,846TotalGrossReceiptsAmt
Total Retained By Contractors$534,111TotalRetainedByContractorsAmt
Total Net To Organization$17,412,735TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesAZLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDELicensedStatesCd
Licensed StatesDCLicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesIDLicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesINLicensedStatesCd
Licensed StatesIALicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesMTLicensedStatesCd
Licensed StatesNELicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
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Fundraising Event Information FundraisingEventInformationGrp

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Other Direct Expenses Event2$3,511,514OtherDirectExpensesEvent2Amt
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Gross Receipts Other Events$14,291,007GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$11,430,779CharitableContriOtherEventsAmt
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Oth Direct Expnss Other Events$2,860,228OthDirectExpnssOtherEventsAmt
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Gaming Information GamingInformationGrp

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Oth Direct Expnss Other Gaming$10,831OthDirectExpnssOtherGamingAmt
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Volunteer Labor Other Gaming1.00000VolunteerLaborOtherGamingPct
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Non Cash Prizes Total Gaming$123,173NonCashPrizesTotalGamingAmt
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Individual With BooksStephen P Evans CPAIndividualWithBooksNm

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Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, SCHEDULE G, PART I, LINE 2B(I) NAME OF FUNDRAISER: CONVIO, INC. (I) ADDRESS OF FUNDRAISER: PO BOX 671445, DALLAS, TX 75267
FieldValueIRS element (for citing)
Supplemental Information DetailSupplementalInformationDetail

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (259 entries)

Address Line1USAddress/AddressLine1CityUSAddress/CityStateUSAddress/StateZIP CodeUSAddress/ZIPCodeRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
Albany Medical College-Dept of Neurology
47 New Scotland Ave MC 70AlbanyNY12208141338310501(c)(3)$18,900Medical Diagnosis
ALS Therapy Development Foundation
215 First StreetCambridgeMA02142043462719501(c)(3)$3,831,803Research
Amicus Therapeutics Inc
6 Cedar Brook DriveCranburyNJ08512710869350Corporation$60,000Research
Ann & Robert H Lurie Children's Hospital of Chica
225 E Chicago Box 205ChicagoIL60611362170833501(c)(3)$25,000Medical Diagnosis
Ann an Robert H Lurie Children's Hospital of Chic
225 E Chicago Box 205ChicagoIL60611362170833501(c)(3)$135,000Research
Arizona Board of Regents University of Arizona
P O Box 3308TucsonAZ85722742652689State of Arizon$195,000Research
Armgo Pharma Inc
777 Old Saw Mill River RoadTarrytownNY10591260107795Corporation$499,528Research
Baptist Hospital East
4000 Kresge WayLouisvilleKY40207610444707501(c)(3)$11,700Medical Diagnosis
Baylor College of Medicine
One Baylor Plaza MS BCM 310HoustonTX77030741613878501(c)(3)$225,000Research
Billings Clinic Foundation
PO Box 31031BillingsMT59107810407289501(c)(3)$11,700Medical Diagnosis
Board of Regents University of Wisconsin System -
21 North Park Street Suite 6401MadisonWI53715396006492State of Wiscon$25,000Medical Diagnosis
Board of Regents NSHE dba University of Nevada
204 Ross Hall Mailstop 325RenoNV89557886000024State of Nevada$162,676Research
Board of Trustees of SIU
PO Box 19616SpringfieldIL62794376005961State of Illino$20,000Medical Diagnosis
Boston Biomedical Research Institute
64 Grove StreetWatertownMA02472042451939501(c)(3)$114,620Research
Brigham & Women's Hospital
75 Francis StBostonMA02115042312909501(c)(3)$32,580Medical Diagnosis
Brigham and Women's Hospital Inc
75 Francis StreetBostonMA02115042312909501(c)(3)$135,000Research
California Pacific Medical Center
475 Brannan Street Ste 220San FranciscoCA94107940562680501(c)(3)$300,000Research
California Pacific Medical Center
2324 Sacramento StreetSan FranciscoCA94115940562680501(c)(3)$372,593Medical Diagnosis
Carilion Medical Center
3 Riverside CircleRoanakeVA24016540506332501(c)(3)$20,000Medical Diagnosis
Carle Physician Group
611 W Park StUrbanaIL61801371140016501(c)(3)$10,800Medical Diagnosis
Carolinas Medical Center
1221 E MoreheadCharlotteNC28204561398929501(c)(3)$202,431Research
Carolinas Medical Center
PO Box 32861CharlotteNC28232566060481501(c)(3)$90,000Medical Diagnosis
Catabasis Pharmaceuticals Inc
One Kendall Square Suite B14202CambridgeMA02139263687168Corporation$35,000Research
Chicago Association for Research an Education in S
5000 South 5th Avenue Bld One Rm CHinesIL60141363334177501(c)(3)$60,000Research
Children's Clinics For Rehabilitative Services
2600 N Wyatt DriveTucsonAZ85712860667510501(c)(3)$24,300Medical Diagnosis
Children's Healthcare of Atlanta at Scottish Rite
1687 Tullie CircleAtlantaGA30329581947689501(c)(3)$27,000Medical Diagnosis
Children's HospNational Med Ctr
111 Michigan NWWashingtonDC20010530196580501(c)(3)$32,400Medical Diagnosis
Children's Hospof Philadelphia
34th Street Civic CtrPhiladelphiaPA19104231352166501(c)(3)$90,000Medical Diagnosis
Children's Hospital & Medical Cntr
4800 Sand Point Way-POBox 5371SeattleWA98105910564748501(c)(3)$49,050Medical Diagnosis
Children's Hospital an Research Center Oakland
747 52nd StreetOaklandCA94609940382330501(c)(3)$130,231Research
Children's Hospital Boston
300 Longwood AvenueBostonMA02115042774441501(c)(3)$377,056Research
Children's Hospital Central CA
9300 Valley Childrens Pl Ms Pcx10MaderaCA93636941294954501(c)(3)$9,000Medical Diagnosis
Children's Hospital Medical Center
3333 Burnet Ave ML 2015CincinnatiOH45229310833963501(c)(3)$54,450Medical Diagnosis
Children's Hospital Neurology Foundation
Fegan 11-300 Lingwood AveBostonMA02115222678594501(c)(3)$27,000Medical Diagnosis
Children's Hospital of Los Angeles
4650 Sunset Boulevard Mail Stop 97Los AngelesCA90027951690977501(c)(3)$20,000Medical Diagnosis
Children's Hospital of Orange County
455 S Main StreetOrangeCA92868952321788501(c)(3)$40,400Medical Diagnosis
Children's Hospital New Orleans
200 Henry Clay AvenueNew OrleansLA70118720467503501(c)(3)$9,000Medical Diagnosis
Children's Hospital Richmond
2924 Brook RoadRichmondVA23220540506309501(c)(3)$15,300Medical Diagnosis
Children's Hospital San Diego
3020 Childrens WaySan DiegoCA92123951691313501(c)(3)$33,750Medical Diagnosis
Children's Medical Center
2350 Stemmons Frwy Ste 5400DallasTX75207750800628501(c)(3)$36,750Medical Diagnosis
Children's Research Institute (CNMC)
111 Michigan Avenue NWWashingtonDC20010521654453501(c)(3)$590,339Research
CHOP of UPMC
4401 Penn Ave Fac Pavilion 6th FlPittsburghPA15224250402510501(c)(3)$18,900Medical Diagnosis
Christus Spohn Hospital Corpus Christi Memorial
2606 Hospital BlvdCorpus ChristiTX78405741109836501(c)(3)$10,000Medical Diagnosis
Cleveland Clinic Foundation
PO Box 931531ClevelandOH44193340714585501(c)(3)$130,000Research
Clinical Neurology PC
4221 S Western Suite 5010Oklahoma CityOK73109412141136Corporation$107,100Medical Diagnosis
Colorado State University
Campus Delivery Box 2002Fort CollinsCO80523846000545State of Colora$121,000Research
Columbus Children's Hospital
700 Childrens DrColumbusOH43205314379441501(c)(3)$28,800Medical Diagnosis
Cook Children's Medical Center
901 Seventh Avenue Ste 120Ft WorthTX76104752051646501(c)(3)$8,100Medical Diagnosis
Cornell University
373 Pine Tree RoadIthacaNY14850150532082501(c)(3)$120,000Research
Covenant Health System
3615 19th StLubbockTX79408752765566501(c)(3)$23,600Medical Diagnosis
Dana-Farber Cancer Institute
450 Brookline AvenueBostonMA02215042263040501(c)(3)$101,443Research
Dean Clinic
1808 West Beltline HwyMadisonWI53713391128616Corporation$25,000Medical Diagnosis
Dent Neurologic Group LLP
3980 Sheridan Drive Suite BAmherstNY14226161582336Partnership$12,600Medical Diagnosis
Drexel Neurological Associates
245 North 15th St Mail Stop 423PhiladelphiaPA19102754022380Corporation$33,750Medical Diagnosis
Driscoll Children's Hospital
3533 South Alameda StreetCorpus ChristiTX78411742577746501(c)(3)$6,000Medical Diagnosis
Duke University Medical Center
2200 West Main Street Suite 820 EDurhamNC27705560532129501(c)(3)$286,906Research
Duke University Medical Center
Box 3069DurhamNC27710561029437501(c)(3)$81,000Medical Diagnosis
Eastern Maine Medical Center
489 State StreetBangorME04401010211501501(c)(3)$8,100Medical Diagnosis
El Paso Child Neurology PA
1900 N Oregon Ste 520El PasoTX79902264347703Corporation$16,200Medical Diagnosis
Elkhart Clinic LLC
303 S NappaneeElkhartIN07103351911857Partnership$14,400Medical Diagnosis
Emory Clinic Inc
101 Woodruff CircleAtlantaGA30322582030692501(c)(3)$81,000Medical Diagnosis
Emory University Food and Drug Administration
1365B Clifton Road NE Ste 6200AtlantaGA30322580566256501(c)(3)$426,464Research
Federation of American Socities for Experimental B
9650 ROCKVILLE PIKEBethesdaMD20814520700497501(c)(3)$7,275Research
Fletcher Allen Health Care Center
1 South Prospect StreetBurlingtonVT05401030219303State of Vermon$6,300Medical Diagnosis
Fred Hutchinson Cancer Research Center
1100 Fairview Avenue N J6-500SeattleWA98109237156071501(c)(3)$100,000Research
Georgetown University
4000 Reservoir Rd NW Bldg D Rm 207WashingtonDC20057530196603501(c)(3)$20,635Medical Diagnosis
Georgia Health Sciences Medical Center
1120 15th Street Rm FY127AugustaGA30912582144788501(c)(3)$18,000Medical Diagnosis
Georgia Health Sciences University
1120 15th StreetAugustaGA30912586002053State of Georgi$130,000Research
Glendale Neurological Assoc DBA (MIND)
28595 Orchard Lake Rd 200Farmington HillsMI48334381889896Corporation$63,000Medical Diagnosis
Good Shepherd Rehabilitation Hosp
501 St John StreetAllentownPA18103231371947501(c)(3)$61,200Medical Diagnosis
Gordon Research Conferences
512 Liberty LaneWest KingstonRI02892260150662501(c)(3)$10,000Research
Greenville Hosp System Univ Medical Group
200 Patewood Drive A-200GreenvilleSC29615576007863501(c)(3)$8,100Medical Diagnosis
HALO THERAPEUTICS LLC
275 GROVE ST SUITE 2-400NEWTONMA02466275336394Partnership$293,000Research
Hamot 2nd Century Fund
302 French StreetEriePA16507251400909501(c)(3)$9,000Medical Diagnosis
Harvard Medical School
25 Shattuck Street Suite 509ABostonMA02115042103580501(c)(3)$295,937Research
Hershey Medical Center
500 University Drive Mail CodeEC0HersheyPA17033251854772State of Pennsy$73,800Medical Diagnosis
HospEspanol De Auxilio Mutuo Inc
PO Box 191227Hato ReyPR00919660486907Corporation$49,500Medical Diagnosis
Hospital De La Concepcion
PO Box 285San GermanPR00681660227304501(c)(3)$28,800Medical Diagnosis
Hospital For Special Care
2150 Corbin AvenueNew BritainCT06053060646766501(c)(3)$62,600Medical Diagnosis
Hospital For Special Surgery
535 E 70th Street 3rd FlNew YorkNY10021131624135501(c)(3)$80,000Medical Diagnosis
Hospital of The University of Pennsylvania
3400 Spruce StreetPhiladelphiaPA19104231352685State of Pennsy$70,110Medical Diagnosis
Hugo W Moser Research Institute at Kennedy Kriege
707 N BroadwayBaltimoreMD21205521524967501(c)(3)$126,513Research
Idaho Elks Rehabilitation Hospital
PO Box 1100BoiseID83701820302317501(c)(3)$19,800Medical Diagnosis
Illinois Institute of Technology
3300 South Federal Street Main BldChicagoIL60616362170136501(c)(3)$85,837Research
Indiana University (Indianapolis)
620 Union Drive Room 518IndianapolisIN46202356001673State of Indian$149,024Research
Inst Of Rehab MedNY Univ Med School
240 East 348th Street Room 15-60BNew YorkNY10016133971298501(c)(3)$72,900Medical Diagnosis
Iowa Health Des Moines
1200 Pleasant StDes MoinesIA50309420680452501(c)(3)$10,800Medical Diagnosis
IU Health Neuroscience Center
335 W 16th Street 3rd FloorIndianapolisIN46202351955872501(c)(3)$22,500Medical Diagnosis
IU Health Riley Hospital for Children
702 Barnhill Drive Room 1757IndianapolisIN46202351955872501(c)(3)$45,000Medical Diagnosis
Joan an Sanford I Weill Medical College of Cornel
1300 York Avenue Box 89New YorkNY10065131623978501(c)(3)$218,439Research
John Hopkins Univ School of Medicine
600 NWolfe Street Meyer 5-119BaltimoreMD21287320061260501(c)(3)$195,300Medical Diagnosis
Johns Hopkins University School of Medicine
733 North Broadway Suite 117BaltimoreMD21205520595110501(c)(3)$615,302Research
Kennedy Hospital
500 Marlboro RdCherry HillNJ08034221773439501(c)(3)$15,300Medical Diagnosis
KUMC Research Institute
MS-1039 3901 Rainbow Blvd 6003 WesKansas CityKS66160481108830501(c)(3)$70,200Medical Diagnosis
Lahey Clinic Foundation Inc
41 Mall RoadBurlingtonMA01805042704683501(c)(3)$14,850Medical Diagnosis
Le Bonheur Children's Hospital
50 Peabody Place Suite 400MemphisTN38103621872938501(c)(3)$24,300Medical Diagnosis
LES TURNER ALS FOUNDATION
5550 W Touhy Avenue Suite 302SkokieIL60077362916466501(c)(3)$7,500Research
Loma Linda University Health Care
11175 Campus Street Coleman PaviliLoma LindaCA92354330364239501(c)(3)$26,100Medical Diagnosis
Louisiana State Univ Health Sci Ctr
1501 Kings HighwayShreveportLA71130720702002State of Louisi$27,000Medical Diagnosis
LSU School of Medicine
433 Bolivar StNew OrleansLA70112721304948State of Louisi$30,600Medical Diagnosis
Lucile Salter Packard Child Hosp
4100 Bohannon Drive Mail Code 5894Menlo ParkCA94304770003859501(c)(3)$43,000Medical Diagnosis
Ludwig Institute for Cancer Research Ltd
9500 Gilman Drive MC-0660La JollaCA92093237121131501(c)(3)$193,981Research
Lutheran Hospital of Indiana Inc
7950 W Jefferson BlvdFort WayneIN46804351963748501(c)(3)$14,400Medical Diagnosis
Maine Medical Cntr-Dept of Rehabil
22 Bramhall StreetPortlandME04102010238552501(c)(3)$14,850Medical Diagnosis
Marshfield Clinic
1000 North Oak AvenueMarshfieldWI54449390452970501(c)(3)$10,800Medical Diagnosis
Mary Hitchcock Memorial Hospital
One Medical Center DrLebanonNH03756020222140501(c)(3)$22,500Medical Diagnosis
Massachusetts General Hospital (The General Hospit
101 Huntington Ave Suite 300BostonMA02199042697983501(c)(3)$90,000Research
Mayo Clinic Jacksonville
4500 San Pablo RoadJacksonvilleFL32224593337028501(c)(3)$20,250Medical Diagnosis
MDAALS Center at the University of California Ir
200 South Manchester Avenue Ste 1OrangeCA92868952226406State of Califo$66,000Medical Diagnosis
Medical College of Wisconsin
9200 W Wisconsin AveMilwaukeeWI53226390806261501(c)(3)$30,600Medical Diagnosis
Memorial Sloan-Kettering Cancer Center
1275 York Avenue Box 701New YorkNY10065131924236501(c)(3)$187,850Research
Mercy Clinic Neurology
2115 S FremontSpringfieldMO65804440552485501(c)(3)$19,000Medical Diagnosis
Mercy Health Saint Mary's
200Jefferson SEGrand RapidsMI49503382113393501(c)(3)$20,000Medical Diagnosis
Methodist Neurological Institute
6560 Fannin Street 802HoustonTX77030870721923501(c)(3)$132,300Medical Diagnosis
MetroHealth Medical Center
PO Box 73122ClevelandOH44193346004382501(c)(3)$36,000Medical Diagnosis
Michigan State University
B-301 East Fee Hall A-217 ClinicalEast LansingMI48824386005984State of Michig$20,250Medical Diagnosis
Monmouth Medical Center Foundation
300 Second AveLong BranchNJ07740223452412501(c)(3)$27,000Medical Diagnosis
Montefiore Medical Center
3351 Steuben Ave 3rd FlrBronxNY10467133908657501(c)(3)$46,575Medical Diagnosis
Nemours Children's Clinic
13535 Nemours ParkwayOrandoFL32827590634433501(c)(3)$48,300Medical Diagnosis
Neurology Associates
1301 S Cliff Ave 506Sioux FallsSD57105460364889Corporation$16,200Medical Diagnosis
Neurology Associates of Arlington
811 Interstate 20 W Ste 212ArlingtonTX76017752405825Corporation$24,300Medical Diagnosis
Neurology Medical Service Group
750 East Adams StreetSyracuseNY13210166066240501(c)(3)$45,900Medical Diagnosis
Neurology Specialists of Jupiter
601 University Blvd Suite 102JupiterFL33458650925187501(c)(3)$7,200Medical Diagnosis
Northwestern Medical Faculty Found
710 N Lake Shore Dr Rm 1119ChicagoIL60611393097297501(c)(3)$62,000Medical Diagnosis
Nymirum Inc
3510 W Liberty RdAnn ArborMI48103264216873Corporation$197,066Research
Ohio State University Hospitals
1581 Dodd Drive McCampbell HallColumbusOH43210316025986State of Ohio$61,200Medical Diagnosis
Olive View - UCLA Medical Center
14445 Olive View Drive 2C136SylmarCA91342952249539State of Califo$22,500Medical Diagnosis
Oregon Health & Science University
3181 SW Sam Jackson Park RoadPortlandOR97201931176109501(c)(3)$36,000Medical Diagnosis
Oregon Health and Science University
3181 SW Sam Jackson Park RdPortlandOR97239931176109170(c)(1)$177,188Research
OSF Medical Group Neurology
PO Box 1712PeoriaIL61656370662569Corporation$13,500Medical Diagnosis
Our Lady of Lourdes RMC
611 St Landry StLafayetteLA70506720423635501(c)(3)$36,000Medical Diagnosis
Philadelphia Health and Education Corporation db
3201 Arch Street Suite 100PhiladelphiaPA19104231352630501(c)(3)$110,000Research
Physicians Billing
1600 Rockland Road-PO Box 269WilmingtonDE19899590634433501(c)(3)$49,500Medical Diagnosis
Ponce School of Medicine
PO Box 7004PoncePR00732660379122501(c)(3)$36,000Medical Diagnosis
Prevea Clinic
PO Box 19070Green BayWI54307391839349501(c)(3)$17,576Medical Diagnosis
Rapid City Regional Hospital
PO Box 3450Rapid CitySD57709460319070501(c)(3)$7,200Medical Diagnosis
Rapides Specialty Clinic Division of RRMC
Box 30101 211 Fourth StreetAlexandriaLA71301720702002501(c)(3)$9,000Medical Diagnosis
Regents of The University of California(Los Angele
710 Westwood Plaza 4-231 RnrcLos AngelesCA90095956006143State of Califo$108,000Medical Diagnosis
Regents of The University of California(San Franci
1855 Folsom MCB 425San FranciscoCA94143946036493State of Califo$29,215Medical Diagnosis
Regents of the University of Minnesota - Twin Citi
450 McNamara Alumni Center 200 OakMinneapolisMN55455416007513State of Minnes$755,774Research
Research Institute at Nationwide Children's Hospit
700 Childrens DriveColumbusOH43205316056230501(c)(3)$453,188Research
ReveraGen BioPharma Inc
9700 GREAT SENECA HWY SUITE 150RockvilleMD20850263808415Corporation$582,363Research
Rhode Island Hospital
593 Eddy StreetProvidenceRI02903050258954501(c)(3)$16,200Medical Diagnosis
Rutgers New Jersey Medical School
90 Bergen St Suite 8100NewarkNJ07101351911857501(c)(3)$19,575Medical Diagnosis
Sacred Heart Medical Center Found
1255 Hilyard St PO Box 10905EugeneOR97440931084906501(c)(3)$13,500Medical Diagnosis
San Diego State University Research Foundation
5250 Campanile DrSan DiegoCA92182956042721State of Califo$123,437Research
Sanford Clinic Fargo Region
720 4th Street NorthFargoND58122911770748501(c)(3)$17,100Medical Diagnosis
Sanford-Burnham Medical Research Institute
10901 North Torrey Pines RdLa JollaCA92037510197108501(c)(3)$148,777Research
Sarasota Memorial Hospital
1700 Tamiami TrailSarasotaFL34239596012500501(c)(3)$24,000Medical Diagnosis
Seattle Institute for Biomedical and Clinical Rese
1660 S Columbian Way S-151FSeattleWA98108911452438501(c)(3)$105,519Research
Sentara Norfolk General Hospital
6015 Poplar Hall Dr Ste 212NorfolkVA23502541547408501(c)(3)$22,500Medical Diagnosis
Sfida BioLogic Inc
615 Arapeen Dr Suite 310Salt Lake CityUT84108900513929Corporation$78,419Research
Shands Hospital
302 Tigert HallGainesvilleFL32611596002052501(c)(3)$16,650Medical Diagnosis
Shriners Hospfor Children - Portland
3101 SW Sam Jackson Park RPortlandOR97239362193608501(c)(3)$9,000Medical Diagnosis
Shriners Hospital For Children Chicago
2211 N Oak Park AvenueChicagoIL60707362193608501(c)(3)$25,000Medical Diagnosis
Shriners Hospital For Children in Spokane
911 W 5th AvenueSpokaneWA99204362193608501(c)(3)$7,200Medical Diagnosis
Spartanburg Neurological Services
362 N Pine StreetSpartanburgSC29302570902952Corporation$8,100Medical Diagnosis
Specially For Children
1301 Barbara Jordan Blvd 200AustinTX78723742800601501(c)(3)$10,125Medical Diagnosis
St Anthony's Specialist LLC
300 S Park Place Blvd Ste 170ClearwaterFL33759743168197501(c)(3)$22,500Medical Diagnosis
St Charles Hospital And Rehabilitation Center
200 Belle Terre RoadPort JeffersonNY11777412076312501(c)(3)$18,000Medical Diagnosis
St Francis Medical Ctr
PO Box 1901MonroeLA71210720408970501(c)(3)$8,438Medical Diagnosis
St Joseph's Children's Hospital of Tampa
2700 W Dr Martin Luther King JrTampaFL33607591100828501(c)(3)$31,500Medical Diagnosis
St Joseph's Hosp & Medical Center
350 West Thomas RdPhoenixAZ85013860096787501(c)(3)$36,000Medical Diagnosis
St Jude Children's Research Hospital
262 Danny Thomas PlaceMemphisTN38105620646012501(c)(3)$60,000Research
St Luke's Rehabilitation Institute
S 711 CowleySpokaneWA99202911307555501(c)(3)$13,500Medical Diagnosis
St Peter's Hospital
410 Providence Lane NE Bldg 2OlympiaWA98506910567732501(c)(3)$28,125Medical Diagnosis
St Peter's Hospital Foundation
319 S Manning Blvd Ste 309RoesslevilleNY12205222262982501(c)(3)$120,000Medical Diagnosis
Stanford University
PO Box 44253San FranciscoCA94144941156365State of Califo$287,687Research
SUNY Upstate Medical University
750 E Adams StreetSyracuseNY13210141368361State of New Yo$369,764Research
Texas Children's Hospital
6621 FanninHoustonTX77030741100555501(c)(3)$9,000Medical Diagnosis
Texas Neurology PA
6301 Gaston Ave Ste 200WDallasTX75214752654757Corporation$19,000Medical Diagnosis
The Board of Trustees of the University of Illinoi
1737 W Polk St M/C 672 AOB 304ChicagoIL60612376000511State of Illino$165,686Research
The Children's Hospital
13123 E 16th Avenul Rehab MedicineAuroraCO80045840166760501(c)(3)$52,200Medical Diagnosis
The Children's Hospital of Philadelphia
3615 Civic Center BlvdPhiladelphiaPA19104231352166501(c)(3)$135,000Research
The Curators of the University of Missouri
310 Jesse HallColumbiaMO65211436003859State of Missou$127,194Research
The Duluth Clinic Ltd
400 E 3rd StreetDuluthMN55805410883623501(c)(3)$6,750Medical Diagnosis
The General Hospital Corporation
13th Street Bldg 149CharlestownMA02129042697983501(c)(3)$128,925Medical Diagnosis
The Methodist Hospital Research Institute
6565 Fannin MGJ4-024HoustonTX77030870721923501(c)(3)$26,524Research
The Ohio State University
1960 Kenny RoadColumbusOH43210316025986State of Ohio$135,000Research
The Regents of The Univ of Michigan
2301 Commonwealth BlvdAnn ArborMI48105386006809State of Michig$30,000Medical Diagnosis
The Regents of the University of California (Davis
1850 Research Park Drive Ste 300DavisCA95618946036494State of Califo$137,500Research
The Regents of the University of California Los A
11000 Kinross Avenue Ste 211Los AngelesCA90095946006143State of Califo$866,257Research
The Regents of the University of California San D
9500 Gilman Drive Dept 0934La JollaCA92093956006144State of Califo$299,271Research
The Regents of the University of California San F
3333 California Street Ste 315San FranciscoCA94118946036493State of Califo$137,500Research
The Regents of the University of Colorado
3100 Marine Street Room 479BoulderCO80309846000555State of Colora$112,925Research
The Regents of the University of Michigan
3003 S State Street Room 1054Ann ArborMI48109386006309State of Maryla$156,030Research
The Regents of the University of New Mexico
1700 Lomas BLvd NE Ste 2200AlbuquerqueNM87131856000642State of New Me$90,000Research
The Research Institute at Nationwide Children's Ho
700 Childrens DriveColumbusOH43205316056230501(c)(3)$142,000Research
The Scripps Research Institute
10550 North Torrey Pines RdLa JollaCA92037330435954501(c)(3)$240,908Research
The Translational Genomics Research Institute
445 N Fifth Street Ste 600PhoenixAZ85004753065445501(c)(3)$129,076Research
The Trustees of Columbia University in the City of
630 West 168th Street Box 49New YorkNY10032135598093501(c)(3)$832,138Research
The Trustees of the University of Pennsylvania
3451 Walnut Street Franklin Bldg PPhiladelphiaPA19104231352685State of Pennsy$478,053Research
The Univ Of Texas Southwestern
5323 Harry Hines BlvdDallasTX75390756002868State of Texas$192,000Medical Diagnosis
The University of Iowa
2 Gilmore HallIowa CityIA52242426004813State of Iowa$330,043Research
The University of North Carolina at Chapel Hill
104 Airport Drive Ste 2200 CampusChapel HillNC27599566001393State of North$132,000Research
The University of Texas Health Science Center at H
Post Office Box 20036HoustonTX77225741761309State of Texas$318,286Research
The University of Texas Medical Branch at Galvesto
301 University BoulevardGalvestonTX77555746000949State of Texas$130,000Research
The University of Toledo
2801 West Bancroft StreetToledoOH43606346401483State of Ohio$108,606Research
Tivorsan Pharmaceuticals Inc
3 Davol Square A301ProvidenceRI02903770702642Corporation$150,000Research
Toledo Hospital
3949 Sunforest Ct Suite 203ToledoOH43623344428256501(c)(3)$30,375Medical Diagnosis
Trustees of Boston University
881 Commonwealth AvenueBostonMA02215042103547501(c)(3)$119,149Research
Trustees of Columbia University
622 W 168th Street Box 16New YorkNY10032133908657501(c)(3)$176,400Medical Diagnosis
Tufts Medical Center Hospital
800 Washington St Dept of PMRBostonMA02111043148378501(c)(3)$16,875Medical Diagnosis
UAB Division of Pediatric Neurology
1600 7th Ave South Ste 406BirminghamAL35233630307306501(c)(3)$18,000Medical Diagnosis
UMDNJ - University Hospital
150 Bergen St Rm G246NewarkNJ07103351911857501(c)(3)$58,725Medical Diagnosis
UMDNJ-New Jersey Medical School
185 S Orange Avenue MSB C-690NewarkNJ07101221775306501(c)(3)$125,000Research
UMPhysicians
2101 SE 6th St Ste 4-184 MMC 2641EMinneapolisMN55455411843943501(c)(3)$157,500Medical Diagnosis
Univ of MA Medical School
Rms 5-752 55 Lake Avenue NWorcesterMA01655043167352State of Massac$21,600Medical Diagnosis
Univ of North Carolina Hospitals
211 Friday Center Dr Suite 2033Chapel HillNC27514570935917State of North$34,200Medical Diagnosis
Univ Hosp Brooklyn SUNY-Downstate Med Ctr
450 Clarkson Ave Box 1213BrooklynNY11203141368361State of New Yo$40,500Medical Diagnosis
Univ of Arkansas for Medical Sciences
4301 W MarkhamLittle RockAR72205716046242State of Arkans$54,000Medical Diagnosis
Univ of Miami Sponsored Programs
PO Box 405803AtlantaGA30384592579826501(c)(3)$199,252Medical Diagnosis
Univ of Nevada School of Medicine
2040 W Charleston Blvd Ste 300Las VegasNV89102880330858State of Nevada$22,500Medical Diagnosis
Univ of New Mexico Health Sciences Ctr
MSC10 5620 1 University of New MexiAlbuquerqueNM87131856000642State of New Me$41,400Medical Diagnosis
Univ of Rochester Medical Center
601 Elmwood Ave Box 673RochesterNY14642160743209501(c)(3)$94,500Medical Diagnosis
Univ of TX Hlth Science Ctr MSRDP
7703 Floyd Curl DriveSan AntonioTX78284741586031State of Texas$74,700Medical Diagnosis
Univ of Utah School of Medicine
175 North Medical Dr East 5th FlooSalt Lake CityUT84132870480520State of Utah$67,500Medical Diagnosis
Univof Alabama Health SvcsFound
1720 7Th Ave South Suite 350 SparBirminghamAL35294630649108State of Alabam$25,000Medical Diagnosis
Univof Mississippi Medical Center
2500 N State StreetJacksonMS39216646008520State of Missou$87,500Medical Diagnosis
University Medical Associates
1 Poston Road Ste 350CharlestonSC29407571098556State of South$35,100Medical Diagnosis
University Medical Center
1501 N Campbell PO Box 245142TucsonAZ85724942958258State of Arizon$31,500Medical Diagnosis
University Neurology Inc
ML525-231 Bethesda AveCincinnatiOH45267311000664Corporation$70,200Medical Diagnosis
University of California Regents (Sacramento)
4860 Y Street Ste 3850SacramentoCA95817946036494State of Califo$45,000Medical Diagnosis
University of California Regents (San Francisco)
505 Parnassus Ave M 798 Box 0114San FranciscoCA94143946036493State of Califo$103,500Medical Diagnosis
University of Cincinnati
51 Goodman Drive PO Box 210222CincinnatiOH45221316000989State of Ohio$110,000Research
University of Colorado Denver AMC and DC
Mail Stop F428 Anschutz Medical CamAuroraCO80045846000555State of Colora$100,000Research
University of Florida
219 Grinter HallGainesvilleFL32611596002052State of Florid$360,240Research
University of Iowa Hospitals & Clinics
B5 Jessup HallIowa CityIA52242426004813State of Iowa$46,800Medical Diagnosis
University of Maryland Baltimore
620 W Lexington Street 4th FloorBaltimoreMD21201526002033State of Maryla$120,765Research
University of Massachusetts Medical School
55 Lake Avenue NorthWorcesterMA01655043167352State of Massac$330,000Research
University of Miami School of Medicine
1400 NW 10th AvenueMiamiFL33136590624458State of Florid$130,000Research
University of Nebraska Medical Center
600 S42nd StOmahaNE68198470049123State of Nebras$36,000Medical Diagnosis
University of Pittsburgh
200 Lothrop Street Suite F875PittsburghPA15213250965591State of Pennsy$54,000Medical Diagnosis
University of Puerto Rico Medical Sciences
GPO 365067 1st Fl Univ HospitalSan JuanPR00936660433762State of Puerto$45,000Medical Diagnosis
University of Rochester
518 Hylan Bldg Box 270140RochesterNY14627160743209501(c)(3)$660,271Research
University of Tennessee Medical Center
1928 Alcoa Highway Medical Bldg BKnoxvilleTN37920311626179State of Tennes$12,600Medical Diagnosis
University of Texas MD Anderson Cancer Center
1515 Holcombe BlvdHoustonTX77030746001118State of Texas$106,130Research
University of Utah
75 S 2000 East 211 RABSalt Lake CityUT84112876000525State of Utah$125,000Research
University of Virginia Health
PO Box 9007CharlottesvilleVA22906541124769State of Virgin$57,600Medical Diagnosis
University of Washington
4333 Brooklyn Ave NE Box 359472SeattleWA98195916001537State of Washin$1,152,873Research
University of Washington MedCenter
1959 NE Pacific Street PO Box 25SeattleWA98195916001537State of Washin$63,900Medical Diagnosis
University Physicians
One Hospital Drive DC05630ColumbiaMO65212436003859State of Missou$23,753Medical Diagnosis
University Physicians Inc
PO Box 725AuroraCO80040742161737State of Colora$135,000Medical Diagnosis
Univiversity of IL Board of Trustees
PO Box 20787SpringfieldIL62708376000511State of Illino$63,500Medical Diagnosis
UPH Neurology Clinic
2800 E Ajo WayTucsonAZ85713942958258501(c)(3)$31,500Medical Diagnosis
USCUniversity of Southern California
837 West Downey Way STO 330Los AngelesCA90089951642394State of Califo$60,250Research
UT Southwestern Medical Center
5323 Harry Hines BlvdDallasTX75390756002868State of Texas$317,942Research
Valerion Therapeutics Inc
100 Main St Suite 110ConcordMA01742320246380Corporation$140,612Research
Vanderbilt Department of Neurology
Dept at 40303 - Center 4-01-400-5AtlantaGA31992620476822501(c)(3)$149,000Medical Diagnosis
Via Christi Med Ctr St Francis Campus
707 N EmporiaWichitaKS67147481172106501(c)(3)$29,250Medical Diagnosis
W Virginia University Research Corp
1 Medical Ctr Dr Ste 7500MorgantownWV26508550665758State of West V$32,400Medical Diagnosis
Wake Forest Univ School of Medicine
Medical Center BlvdWinstonSalemNC27157223849199501(c)(3)$18,000Medical Diagnosis
Washington State University
Room 423 Neill HallPullmanWA99164916001108State of Washin$73,965Research
Washington UnivSchool of Medicine
Box 8111 600 S Euclid AveSt LouisMO63110430653611State of Missou$126,000Medical Diagnosis
Washington University in St Louis
660 South Euclid Avenue Campus BoxSt LouisMO63110430653611501(c)(3)$452,990Research
Wesley Neurology Clinic PC
1211 Union Avenue Suite 400MemphisTN38104581544781501(c)(3)$55,700Medical Diagnosis
White Plains Hospital & Medical Center
Davis Avenue at East Post RoadWhite PlainsNY10601131740130501(c)(3)$12,600Medical Diagnosis
Wichita Falls Neurology Center PLLC
1600 7th Street Ste BWichita FallsTX76301752151000Partnership$10,800Medical Diagnosis
Yale University
800 Howard Ave PO Box 208071New HavenCT06520060646973501(c)(3)$10,000Medical Diagnosis
FieldValueIRS element (for citing)
Total501c3 Org228Total501c3OrgCnt
Total Other Org24TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990, SCHEDULE F, PART I, LINE 2FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Travel For CompanionsYes (X)TravelForCompanionsInd
Club Dues Or FeesYes (X)ClubDuesOrFeesInd
Written Policy Ref T And E ExpnssYes (true)WrittenPolicyRefTAndEExpnssInd
Substantiation RequiredYes (true)SubstantiationRequiredInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanYes (true)SupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (6 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Steven Derks
President & CEO$443,038$0$0$0$17,500$0$49,250$0$12,879$0$522,667$0$0
Valerie A Cwik MD
ASST. SEC & CHIEF MED & RES$201,114$0$0$0$0$0$0$0$7,041$0$208,155$0$0
Gail Schmertz Kerner Esq
ASST SEC & CHIEF LEGAL OFFICER$193,559$0$0$0$0$0$0$0$13,592$0$207,151$0$0
Peter Morgan
ASST TREAS & EVP & CHIEF OP$168,799$0$0$0$0$0$0$0$13,592$0$182,391$0$0
John Walsh
Div Chief Executive$150,791$0$0$0$0$0$0$0$13,592$0$164,383$0$0
Kevin W Moran
VP Program Development$149,509$0$0$0$0$0$0$0$13,592$0$163,101$0$0

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePARTICIPATION IN, OR RECEIVED PAYMENT FROM RETIREMENT PLANFormAndLineReferenceDesc
ExplanationSTEVEN M. DERKS - $66,750, 457 RETIREMENT PLANExplanationTxt

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp (2 entries)

Relationship DescriptionRelationshipDescriptionTxtTransactionTransactionAmtTransactionTransactionDescSharing Of RevenuesSharingOfRevenuesInd
Steve Farella
MDA Board Member$1,306,520Public Service Announcementsfalse
Daniel G Fries
MDA Board Member$262,005Pension Actuaries Servicefalse

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceFORM 990, SCHEDULE L, PART IVFormAndLineReferenceDesc
Explanation(A) NAME OF PERSON: STEVE FARELLA (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $ 1,306,520 (D) DESCRIPTION OF TRANSACTION: MDA board member Steve Farella was the CEO of Targetcast. Of the $1,306,520 paid to Targetcast, $1,139,589 was passed through to the ABC Television Station Group for a promotional campaign supporting the MDA Show of Strength Telethon. Targetcast did not receive any commissions for the paid media placements. Targetcast also provided MDA with placement of free public service announcements in national media outlets and received fees of $166,931. Steve Farella is not directly compensated by MDA. (E) SHARING OF ORGANIZATION REVENUES? = NO (A) NAME OF PERSON: DANIEL G. FRIES (B) RELATIONSHIP BETWEEN INTERESTED PERSON AND ORGANIZATION: MDA BOARD MEMBER (C) AMOUNT OF TRANSACTION $ 262,005. (D) DESCRIPTION OF TRANSACTION: MDA BOARD MEMBER DAN FRIES IS EMPLOYED BY SIBSON CONSULTING AS A SENIOR VP, NEW YORK REGIONAL LEADER, AND IS NOT DIRECTLY COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. SIBSON CONSULTING PROVIDES MDA'S PENSION ACTUARIES. (E) SHARING OF ORGANIZATION REVENUES? = NOExplanationTxt

Schedule M IRS990ScheduleM

Works Of Art WorksOfArtGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution11ContributionCnt
Noncash Contributions Rpt F990$0NoncashContributionsRptF990Amt
FieldValueIRS element (for citing)
Art Historical TreasuresArtHistoricalTreasuresGrp
Art Fractional InterestArtFractionalInterestGrp
Books And PublicationsBooksAndPublicationsGrp
Clothing And Household GoodsClothingAndHouseholdGoodsGrp
Cars And Other VehiclesCarsAndOtherVehiclesGrp
Boats And PlanesBoatsAndPlanesGrp
Intellectual PropertyIntellectualPropertyGrp

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution22ContributionCnt
Noncash Contributions Rpt F990$113,953NoncashContributionsRptF990Amt
Method Of Determining RevenuesSELLING PRICEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Securities Closely Held StockSecuritiesCloselyHeldStockGrp
Secur Prtnrshp Trust IntrstsSecurPrtnrshpTrustIntrstsGrp
Securities MiscellaneousSecuritiesMiscellaneousGrp
Qualified Contrib Hist StructQualifiedContribHistStructGrp
Qualified Contrib OtherQualifiedContribOtherGrp
Real Estate ResidentialRealEstateResidentialGrp
Real Estate CommercialRealEstateCommercialGrp
Real Estate OtherRealEstateOtherGrp
CollectiblesCollectiblesGrp
Food InventoryFoodInventoryGrp
Drugs And Medical SuppliesDrugsAndMedicalSuppliesGrp
TaxidermyTaxidermyGrp
Historical ArtifactsHistoricalArtifactsGrp
Scientific SpecimensScientificSpecimensGrp
Archaeological ArtifactsArchaeologicalArtifactsGrp

Other Non Cash Contri Table OtherNonCashContriTableGrp (2 entries)

Non Cash CheckboxNonCashCheckboxIndDescDescContributionContributionCntNoncash Contributions Rpt F990NoncashContributionsRptF990AmtMethod Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Yes (X)MEDICAL EQUIPMENT26$412,414APPRAISAL
Yes (X)ART WORK1$6,000APPRAISAL
FieldValueIRS element (for citing)
Form8283 Received26Form8283ReceivedCnt
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (10 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART I, LINE 1MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS, AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY, AND EDUCATION.
FORM 990, PART VI, SECTION B, LINE 11ALL BOARD MEMBERS WERE INVITED TO THE AUDIT COMMITTEE MEETING FOR THE FEDERAL FORM 990 REVIEW BY BDO BEFORE FILING WITH THE IRS. THOSE NOT IN ATTENDANCE WERE PROVIDED A HARD COPY.
FORM 990, PART VI, SECTION B, LINE 12CTHE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH THE MDA LEGAL DEPARTMENT.
FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART XI, LINE 9CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 16,411,265 IMPAIRMENT LOSS -1,745,417 ----------- TOTAL TO FORM 990, PART XI, LINE 9 14,665,848
FORM 990, PART XI, LINE 2CTHERE HAVE BEEN NO CHANGES DURING THE YEAR IN THE PROCESS FOR OVERSIGHT OF THE AUDIT OF THE FINANCIAL STATEMENTS.
FORM 990, PART III, LINE 4AThe mission of the Muscular Dystrophy Association (MDA) is to save and improve lives for people fighting muscle diseases. In addition to funding research, MDA does this by supporting and empowering families through its services programs. MDA provides services to those affected by any of the disorders in its program, irrespective of age, race, creed, or gender. MDA's program is designed to assist those affected by muscular dystrophy and related diseases of the neuromuscular system, which affect children and adults. A complete list of diseases covered can be obtained by written request to MDA at 3300 East Sunrise Drive, Tucson, Arizona 85718 or via www.mda.org. MDA maintains the most comprehensive services program of any voluntary health agency in the country. This aspect of MDA's program accounted for over $65,014,202 of its 2013 expenditures. MDA's program - ranging from a nationwide network of clinics to assistance with essential support services - is administered through its field offices across the United States and in Puerto Rico. Caring MDA staff in these offices provides support for local families upon diagnosis and throughout their neuromuscular disease journey. MDA Clinics: MDA maintains a network of 200 hospital-affiliated clinics located at medical institutions and university-based facilities. Each year MDA provides tens of thousands of medical visits through its clinic program. With a referral from a physician who suspects a neuromuscular disorder, individuals are eligible for a diagnostic evaluation at an MDA clinic. Once confirmed with a diagnosis covered by MDA, individuals can receive follow-up care from clinic team members using a multidisciplinary team approach. Annual physical, occupational, respiratory and speech therapy consultations, as well as annual flu inoculations, are among the many services available through MDA clinics. MDA clinics also are essential to the advancement of neuromuscular disease research and serve as focal points for the clinical application of scientific advances designed to treat these disorders, including clinical trials. In 2012 the Association established the MDA U.S. Neuromuscular Disease Registry, with the aim of improving survival and quality of life for those with neuromuscular diseases, as well as expediting clinical trials. The registry was piloted at 25 MDA clinics in 2013, with plans in place to expand the registry to MDA's entire clinic network. As part of its clinic program, the Association has over 40 amyotrophic lateral sclerosis (ALS) centers across the country (listing available at mda.org). Equipment Assistance: Through its Equipment Inventory Program, MDA provided thousands of adaptive devices in 2013 - at no cost to those served by the Association. Examples of equipment provided include walkers, wheelchairs, communication technologies and hospital beds. MDA also assisted with repairs to all types of durable medical equipment for those it serves. Summer Camp: In 2013, thousands of children with neuromuscular disease enjoyed a week of fun and friendship at one of nearly 80 MDA summer camps across the country. Support and Information Services: Support and information were provided through MDA's nationwide network of over 150 local support groups and educational seminars. Support also was available through MDA's care coordination tool, www.mda.org/myMuscleTeam, which enables families to seek assistance from friends and loved ones by posting household tasks and caregiving needs for which help is being sought, such as transportation to medical appointments or meal preparation. MDA staff also assisted individuals by advising them about federal, state and community services for which they may be eligible. MDA's transitional services offered support and resources for youth with neuromuscular disease who are entering adulthood, including an online Transitions Center at www.transitions.mda.org/. Additional information about MDA's Health Care and Community Services Program is available through MDA's Web site at www.mda.org/services.html.
FORM 990, PART III, LINE 4BThe Muscular Dystrophy Association, Inc., (MDA) is a not-for-profit organization incorporated on June 6, 1950, under the laws of the State of New York. MDA supports worldwide research to find the causes of and develop therapies and cures for muscular dystrophies and related neuromuscular disorders. MDA's programs are supported almost entirely by individual private contributions from the general public. MDA neither receives fees from those it serves nor applies any means test for services. The diseases supported by MDA are the muscular dystrophies (among which are Duchenne and Becker); motor neuron diseases, including amyotrophic lateral sclerosis (ALS, Lou Gehrig's disease) and spinal muscular atrophy; the peripheral nerve disorders Charcot-Marie-Tooth disease and Friedreich ataxia; inflammatory myopathies; disorders of the neuromuscular junction; metabolic diseases of muscle and other myopathies. Most of the disorders in MDA's program have genetic underpinnings. Most cause progressive weakness resulting in significant mobility impairment. Some of the more than 40 neuromuscular diseases covered by MDA are life-shortening. As reported by the U.S. Department of Health and Human Services, National Institutes of Health (NIH), in the United States alone, muscular dystrophy and other neuromuscular disorders are estimated to affect some 1 million people. MDA supports hundreds of research teams worldwide, primarily at academic institutions, through its investigator initiated research grants program. The basic science projects funded by MDA, such as disease gene discovery, gene transfer technology, and cellular regulation studies, are now being applied to the development of therapies. The Association is currently funding therapeutic strategies such as gene- and stem cell-based therapies, biologics, small molecules, antisense oligonucleotides, RNA interference, epigenetic regulation, permanent gene repair and more. MDA is currently sponsoring research grants in the United States and a dozen foreign countries. The Association's research program accounted for some $29,354,830 of its expenditures for the 2013 calendar year. MDA's Scientific and Medical Advisory Committees, whose members are among the nation's foremost scientists and physicians in the field of neuromuscular disease, carefully evaluate all Research Grant and Development Grant proposals submitted to the Association. MDA maintains a diverse program of basic research, which advances investigations of possible treatments for neuromuscular diseases, muscle function, regulation and regeneration; biochemical changes involved in muscle disease; the genetics of neuromuscular disease; and the interaction of nerve and muscle. This work is crucial for providing a sound scientific foundation upon which practical advances against disease can be built. Additionally, the Association's translational research program is focused on milestone driven contracts with the biotech industry, pharmaceutical companies and academic investigators for research that is directly relevant to bringing new therapies to market. Advisors to MDA's translational research program include a number of top neuromuscular disease researchers, as well as representatives of NIH and industry. Recent Research Accomplishments Accelerating therapy development and reducing barriers to move therapies into human clinical trials is a focus of MDA's research program. Through its basic and translational research grants programs MDA is supporting preclinical development and early phase human testing of strategies and compounds designed to slow progression of neuromuscular diseases and important strides are being made as a result of MDA-support research. Exon skipping is a therapeutic strategy that coaxes muscle cells to ignore, or "skip over," a flawed section of genetic instructions for the dystrophin protein, which is absent in people with DMD. MDA funded much of the early work that led to exon skipping drugs that are now showing encouraging results in human clinical trials, and continues to develop the strategy for DMD. A 48-week phase 2b clinical trial of the exon-51 skipping drug, eteplirsen, reported that the drug was safe and well tolerated, resulted in significant production of dystrophin in the region of muscle fibers where it is required, and slowed the decline in walking ability in study participants. In an extension of that study reported in 2013, the drug remains safe and well tolerated and walking ability remained stable at 96 weeks. The synthetic molecules that promote exon-skipping are termed antisense-oligonucleotides (AONs) which are custom designed to target specific regions of the DNA or RNA genetic material. In addition to exon skipping to repair faulty dystrophin genes, MDA-supported researchers are employing AONs to develop innovative therapeutic approaches for a number of other diseases, including SMA, myotonic dystrophy, ALS, and FSHD. In 2013, the experimental antisense drug ISIS-SMNRx was shown to be safe and well tolerated in early phase testing in infants and children with spinal muscular atrophy and a phase 2 study of this drug was launched in infants. ISIS-SMNRx, developed by Isis Pharmaceuticals in Carlsbad, Calif.; MDA supported the laboratory development of this drug through a grant to Adrian Krainer at Cold Spring Harbor (N.Y.) Laboratory. For myotonic dystrophy type 1, scientists are using AONs to block disease-causing genetic instructions in cells and animal disease models. Planning for human clinical trials of this therapeutic strategy for myotonic muscular dystrophy is underway. With support from MDA Dr. Charles Thornton at the University of Rochester has developed a Myotonic Dystrophy Clinical Research Network to standardize methods for evaluating those with myotonic dystrophy types 1 and 2, in preparation for clinical trials in these disorders. MDA also supports a Clinical Research Network focused on DMD and another on ALS. In 2013, the DMD network announced results of its study of infants and toddlers with DMD, demonstrating that signs of the disorder are apparent at these very young ages. This information will help inform design of clinical trials to include this population in the future. Additionally in 2013 awarded the DMD Clinical Research Network a grant to test prednisone, the only drug currently available for the treatment of DMD, in boys 30 months of age and younger. Work of the ALS clinical research network is focused on quality measures for ALS, in conjunction with the American Academy of Neurology, as well as the effect of diet in the progression of the disorder. In ALS, MDA continued to fund studies aimed at better understanding the causes of ALS and identifying targets for therapy development. An important finding reported in 2013 was that generation of toxic RNA plays a role in C9ORF72 ALS and frontotemporal dementia, the most common genetic cause of ALS. These findings provide the basis for further investigation of antisense-based therapies as a treatment for this form of ALS. Another gene that is involved in causing ALS is the FUS gene. MDA-supported researchers linked ALS-causing mutations in the FUS gene to an impaired ability to repair DNA, and that a failure to repair DNA damage appears to play an important role in ALS. MDA also funded a ALS exome sequencing project to help identify new genes associated with ALS. In August 2013, MDA funded its second grantee under the Bridge-to-Industry (B2I) program, a pilot project designed to train promising researchers in translational research by providing experience both in academia and the biopharmaceutical industry. Translational research refers to the lengthy and complex "translation" of promising laboratory findings into marketable drugs. Dr. Christopher Penton will study compounds that boost muscle repair and dampen muscle scar formation at the University of Arizona and pharmaceutical company Sanofi. To promote timely sharing of results and to encourage collaborations among investigators MDA hosts a biennial Scientific Conference. With a focus on turning research into treatments as quickly as possible, more than 500 participants from the academic, corporate drug development and clinical arenas gathered in Washington, D.C. in April 2013 for this international meeting. More than 70 oral presentations and nearly 200 scientific posters were presented at the event, covering a wide range of diseases under MDA's umbrella MDA remains committed to supporting cutting-edge research by top scientists and clinicians throughout the world-research. The focus of MDA's research effort in the future remains the advancement of strategies to apply the technologies resulting from years of basic research toward the development of effective therapies. This is how MDA can best serve those with neuromuscular diseases and their families. MDA is enhancing its partnerships with industry, the National Institutes of Health and academia to accelerate neuromusc
FORM 990, PART III, LINE 4CIn the year ended December 31, 2013, the Muscular Dystrophy Association (MDA) expended $18,075,948 on its professional and public health education program. MDA annually provides the medical profession, scientific community, general public and people affected by muscle diseases with timely and thorough information about MDA's programs and the 43 different diseases they cover. MDA successfully worked with media outlets nationwide in 2013, placing thousands of documented news stories about its mission to save and improve lives for people fighting muscle disease with network, syndicated and local broadcast outlets, print news publications, and online, including social media mentions. Representing millions of impressions collectively, the valuable earned media placements were reinforced by thousands of no-cost public service advertisements. In addition to free banner advertisements on many high-traffic websites, a substantial number of MDA's "Progress that Moves Muscles" PSAs were published by newspapers and other periodicals; and broadcast by national, regional and local television, cable and radio stations. MDA publications and extensive online postings produced a steady stream of information about MDA-funded research and health care services, as well as insightful articles on relevant legislation and inspiring individuals. In addition to posting two to three online news articles per week during 2013, MDA produced four print issues of its award-winning national magazine Quest. In addition, MDA produced and distributed a variety of educational videos for families affected by muscular dystrophy and related diseases. These videos were reinforced by an extensive array of program-specific spots broadcast during the 2013 MDA Show of Strength Telethon viewed by tens of millions worldwide on the ABC network. Among these spots were special profiles of people living with muscle diseases; research updates; educational spots on the myriad medical and health care services available through MDA's national network of 200 medical clinics; a spotlight on MDA's extraordinary summer camp program for children ages 6 to 17; and much more. MDA also continued to enhance its popular website at mda.org, as well as many other program-specific sites. Internationally recognized as a key source of information about neuromuscular diseases, total 2013 page views at mda.org surpassed 5.7 million, with unique visitors exceeding 1.7 million for the year. MDA also facilitated and promoted a variety of webinars and conference live streams to give the families it serves, as well as medical and health care professionals, ample opportunities to ask questions about diseases, research, services and many other topics.