CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2012-01-01 to 2012-12-31
Filed: 2013-09-04
IRS object ID: 201302479349300365
Schema version: 2012v2.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule I
Schedule J
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-09-04T10:51:13-05:00	Timestamp
Tax Period End Date	2012-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	BDO USA LLP	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	8405 GREENSBORO DRIVE 7TH FLOOR	AddressLine1
City	MCLEAN	City
State	VA	State
ZIP Code	22102	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS	BusinessNameLine1

Field	Value	IRS element (for citing)
In Care Of Name	% ROBERT J BEALL PHD	InCareOfName
Name Control	CYST	NameControl
Phone	3019514422	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD	AddressLine1
Address Line2	Suite 200	AddressLine2
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	ROBERT J BEALL PHD	Name
Title	PRESIDENT & CEO	Title
Phone	7038930600	Phone
Date Signed	2013-09-04	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	JEFFREY J SCHRAGG	Name
Phone	7038930600	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	ROBERT J BEALL PHD	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	351163842	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
Organization501c3	X	Organization501c3
Web Site	WWW.CFF.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1955	YearFormation
State Legal Domicile	DE	StateLegalDomicile
Activity Or Mission Description	THE MISSION IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	17	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	16	NbrIndependentVotingMembers
Total Nbr Employees	329	TotalNbrEmployees
Total Nbr Volunteers	250000	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Net Unrelated Business Txbl Income	0	NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year	101016403	ContributionsGrantsPriorYear
Contributions Grants Current Year	193893253	ContributionsGrantsCurrentYear
Program Service Revenue Prior Year	26269945	ProgramServiceRevenuePriorYear
Program Service Revenue CY	30108699	ProgramServiceRevenueCY
Investment Income Prior Year	7266699	InvestmentIncomePriorYear
Investment Income Current Year	32829942	InvestmentIncomeCurrentYear
Other Revenue Prior Year	2027137	OtherRevenuePriorYear
Other Revenue Current Year	3987082	OtherRevenueCurrentYear
Total Revenue Prior Year	136580184	TotalRevenuePriorYear
Total Revenue Current Year	260818976	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	74501565	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	25842486	GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year	0	BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	27272258	SalariesEtcPriorYear
Salaries Etc Current Year	29994467	SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year	0	TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	9920842	TotalFundrsngExpCurrentYear
Other Expense Prior Year	23947791	OtherExpensePriorYear
Other Expenses Current Year	23451961	OtherExpensesCurrentYear
Total Expenses Prior Year	125721614	TotalExpensesPriorYear
Total Expenses Current Year	79288914	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	10858570	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	181530062	RevenuesLessExpensesCY
Total Assets BOY	216321364	TotalAssetsBOY
Total Assets EOY	435100702	TotalAssetsEOY
Total Liabilities BOY	40872449	TotalLiabilitiesBOY
Total Liabilities EOY	84470819	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	175448915	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	350629883	NetAssetsOrFundBalancesEOY
Info In Schedule O Part III	X	InfoInScheduleOPartIII
Mission Description	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION, A NONPROFIT DONOR SUPPORTED ORGANIZATION, IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. A LIFE SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF NEARLY 30,000 CHILDREN AND YOUNG ADULTS IN THE U.S. CURRENTLY, THERE IS NO CURE.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	36733174	Expense
Grants	24194956	Grants
Revenue	1647057	Revenue
Description	Medical Programs - Since 1955, the Cystic Fibrosis Foundation has been dedicated to curing and controlling cystic fibrosis (CF). The Cystic Fibrosis Foundation is the world's leader in the search for a cure for cystic fibrosis, a life-threatening genetic disease that affects 30,000 children and adults in the United States, and 70,000 people worldwide. The treatment and care protocols developed by the CF Foundation are helping tens of thousands of people with the disease live longer, healthier lives. To support its mission, the Foundation funds and accredits a nationwide network of 110 care centers. The care center network provides the best care for people with CF and has been recognized by the National Institutes of Health as a model of care for a chronic disease. 1) Through the Foundation's efforts, the life expectancy of a child with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before. 2) The Foundation provides much-needed support for patients and their families as they manage the difficult consequences of the disease - from supporting specialized, quality CF care to providing information and support to help people with CF access that care. 3) The Foundation supports and accredits a nationwide network of more than 110 CF care centers, which diagnose and treat nearly all CF patients. The care center network is widely recognized as a national model for specialized treatment of a disease. 4) The Foundation's patient registry collects information on the health status of more than 27,000 CF patients, providing caregivers and researchers critical information to help identify new health trends and effective treatments and improve the quality of CF care. The patient registry is an internationally recognized model for other nonprofit health organizations, including CF advocacy groups. 5) Medical programs consist of approximately 360 grants and other costs to support scientific studies/investigations and cystic fibrosis centers. Approximately 207 grants totaling $12.6 million were awarded to cystic fibrosis care centers serving approximately 27,800 patients.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	13295083	Expense
Grants	1647530	Grants
Revenue	28461642	Revenue
Description	In 2012, Cystic Fibrosis Foundation Pharmacy, LLC (CFFP) provided program management services to Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) and program management services and licensing to Cystic Fibrosis Services, Inc. (CFS). CFFP provided availability and access to cystic fibrosis medications, as well as assistance with the complex insurance issues faced in obtaining these medications. CFFP provided personalized service, patient advocacy, patient education and reimbursement support to the CF community. In 2012, CFFP served 9,642 patients. CFFP fulfilled 77,264 orders to CF patients under manufacturer programs to assist patients in need. CFFP staff assisted CF patients with 193,607 prescriptions in 2012 by filing primary, secondary and tertiary insurance claims, as needed. on December 6 2012, the Foundation sold an 80% Controlling interest in CFFP to an unrelated third party. Prior to December 6, 2012, CFFP was wholly owned by Cystic Fibrosis Foundation. See schedule O for additional information regarding this transaction. The mission of the Cystic Fibrosis Patient Assistance Foundation (CFPAF) is to assist cystic fibrosis patients residing in the United States, regardless of their health insurance coverage or financial resources, with access to FDA-approved drugs (and paired devices) for the inhaled treatment of cystic fibrosis pulmonary disease and to medications for the treatment of pancreatic insufficiency. Furthermore, the CFPAF is committed to maintaining the highest standards of customer service and operating efficiency, in order to maximize the support and assistance that it can provide to the CF community. In 2012, CFPAF responded to 27,633 calls for assistance and provided case management and $1,647,530 in patient assistance grants. In 2012, CFPAF helped more than 950 people with CF.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	9995937	Expense
Grants	0	Grants
Revenue	0	Revenue
Description	Public and Professional Information and Education - to broaden its reach and to support its mission, the CF Foundation has programs designed to improve the knowledge of CF patients and their families, medical professionals and the general public regarding the disease. In 2012, there were 22 publications, 9 webcasts and 22 videos produced and made available for patients, families, medical professionals, and the general public. Year-round, meetings and conferences provide updates for CF researchers, physicians and allied health professionals and opportunities for collaboration on future CF research projects and treatment/care efforts. In 2012, over 2,299,000 unique visitors came to the organization's website.	Description

Field	Value	IRS element (for citing)
Total Of Other Program Service Exp	2970848	TotalOfOtherProgramServiceExp
Total Of Other Program Service Grnt	0	TotalOfOtherProgramServiceGrnt
Total Of Other Program Service Rev	0	TotalOfOtherProgramServiceRev
Total Program Service Expense	62995042	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	true	LobbyingActivities
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	true	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	true	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	false	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	true	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	true	ForeignActivities
More Than5000 K To Organizations	true	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	false	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	true	GrantsToIndividuals
Schedule J Required	true	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	true	DisregardedEntity
Related Entity	true	RelatedEntity
Related Org Controlled Entity	true	RelatedOrgControlledEntity
Transaction Related Entity	true	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	246	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Number Of Employees	329	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	17	NbrVotingGoverningBodyMembers
Number Independent Voting Members	16	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	true	LocalChapters
Policies Reference Chapters	true	PoliciesReferenceChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	AL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	HI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	ROBERT J BEALL PHD	NamePerson
Telephone Number	3019514422	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	X	InfoInScheduleOPartVII

Form990 Part VII Section A Form990PartVIISectionA (27 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Average Hours Per Week RelatedAverageHoursPerWeekRelated	Individual Trustee Or DirectorIndividualTrusteeOrDirector	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	OfficerOfficer	Key EmployeeKeyEmployee	Highest Compensated EmployeeHighestCompensatedEmployee
MICHAEL L BEATTY
TRUSTEE	3.0	3.0	X	0	0	0
J TAYLOR CRANDALL
TRUSTEE	3.0	3.0	X	0	0	0
RICHARD L DANDURAND
TRUSTEE	3.0	3.0	X	0	0	0
RICHARD J GRAY
TRUSTEE	3.0	3.0	X	0	0	0
BARRY M GUMP
TRUSTEE	3.0	3.0	X	0	0	0
SUSAN L HOOK
TRUSTEE	3.0	3.0	X	0	0	0
CATHERINE C MCLOUD
TRUSTEE	5.0	8.0	X	0	0	0
CHAD T MOORE
TRUSTEE	3.0	3.0	X	0	0	0
DAVID A MOUNT
TRUSTEE	3.0	3.0	X	0	0	0
GRAY B SABIN
TRUSTEE	3.0	3.0	X	0	0	0
CHRISTY L SHAFFER PHD
TRUSTEE	3.0	8.0	X	0	0	0
STEVEN SHAK MD
TRUSTEE	3.0	6.0	X	0	0	0
CHARLES J THAYER
TRUSTEE	3.0	3.0	X	0	0	0
AMY S WEINBERG
TRUSTEE	3.0	3.0	X	0	0	0
PAUL W WHETSELL
TRUSTEE	3.0	3.0	X	0	0	0
KC BRYAN WHITE
TRUSTEE	3.0	3.0	X	0	0	0
ROBERT J BEALL PHD
PRESIDENT & CEO	36.0	24.0	X	669561	329867	112672	X
C RICHARD MATTINGLY
EXEC. VP, COO & SECRETARY	50.0	10.0		466050	0	168894	X
PRESTON CAMPBELL MD
EXECUTIVE VP OF MEDICAL AFFAIR	36.0	24.0		301432	151900	155629	X
VERA H TWIGG
SR. VP & CFO	50.0	10.0		335965	0	77783	X
DANIEL KLEIN
SR. VP OF CFFP	50.0			411943	0	35595		X
ANN PALMER
SR. VP OF FIELD MANAGEMENT	50.0			224058	0	55108		X
JAMES STONE
VP OF CYSTIC FIBROSIS SERVICES	50.0			225052	0	30484			X
DAVID MCLOUGHLIN
SR. VP OF OPERATIONS	40.0	10.0		210744	52686	57736			X
GREGORY AUGUST
CHIEF INFORMATION OFFICER	50.0			209056	0	52146			X
GLEN GOLDMARK
VP OF HUMAN RESOURCES	50.0			206181	0	45479			X
AMY DEMARIA
SR. VP OF COMMUNICATIONS	50.0			204533	0	33920			X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	3464575	TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs	534453	TotalReportableCompFrmRltdOrgs
Total Other Compensation	825446	TotalOtherCompensation
Number Individuals GT100 K	66	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	true	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1	CityAddressOfContractor/AddressUS/City	StateAddressOfContractor/AddressUS/State	ZIP CodeAddressOfContractor/AddressUS/ZIPCode	Description Of ServicesDescriptionOfServices	CompensationCompensation
ICS CORPORATION
2225 RICHMOND ST	PHILADELPHIA	PA	19125	MAILSHOP	953560
RAYMOND JAMES ASSOCIATES
880 CARILLON PARKWAY	ST PETERSBURG	FL	33716	TRANSACTION ADVISORY	867262
HUB LABELS
18223 SHAWLEY DRIVE	HAGERSTOWN	MD	21740	PRINTING	825170
SUFIAN PASSAMANO
712 main street suite 2130	HOUSTON	TX	77002	CASE MGMT/HOTLINE SV	779250
THE PEABODY ORLANDO
9801 INTERNATIONAL DR	ORLANDO	FL	32819	CONFERENCE VENUE	759799

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	43	NumberOfContractorsGT100K
Info In Schedule O Part VIII	X	InfoInScheduleOPartVIII
Federated Campaigns	890	FederatedCampaigns
Related Organizations	178702224	RelatedOrganizations
All Other Contributions	15190139	AllOtherContributions
Total Contributions	193893253	TotalContributions

Program Service Revenue ProgramServiceRevenue (5 entries)

DescriptionDescription	Business CodeBusinessCode	Total Revenue ColumnTotalRevenueColumn	Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome	ExclusionExclusionAmount
SCIENTIFIC CONFERENCE	611600	1622297	1622297
PROGRAM MANAGEMENT FEES	541900	9360900	9360900
CALL CENTER	541900	2153493	2153493
LICENSE FEES	900003	16947249		$16,947,249
TRANSITION SERVICES	541610	24760	24760

Field	Value	IRS element (for citing)
Total Program Service Revenue	30108699	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	10639322	TotalRevenueColumn
Exclusion	$10,639,322	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	3506450	TotalRevenueColumn
Exclusion	$3,506,450	ExclusionAmount

Rental Income Or Loss RentalIncomeOrLoss

Field	Value	IRS element (for citing)
Real	0	Real
Personal	0	Personal

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	83391315	Securities
Other	29144171	Other

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	82581005	Securities
Other	7763861	Other

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	810310	Securities
Other	21380310	Other

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	22190620	TotalRevenueColumn
Exclusion	$22,190,620	ExclusionAmount

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	LIST RENTAL	Description
Business Code	533110	BusinessCode
Total Revenue Column	480632	TotalRevenueColumn
Exclusion	$480,632	ExclusionAmount

Field	Value	IRS element (for citing)
Total Other Revenue	480632	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	260818976	TotalRevenueColumn
Related Or Exempt Function Income	13161450	RelatedOrExemptFunctionIncome
Exclusion	$53,764,273	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	23530938	Total
Program Services	23530938	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	1670420	Total
Program Services	1670420	ProgramServices

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	641128	Total
Program Services	641128	ProgramServices

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	2681208	Total
Program Services	1955399	ProgramServices
Management And General	418137	ManagementAndGeneral
Fundraising	307672	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	21805285	Total
Program Services	15902544	ProgramServices
Management And General	3400554	ManagementAndGeneral
Fundraising	2502187	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	1360247	Total
Program Services	992025	ProgramServices
Management And General	212132	ManagementAndGeneral
Fundraising	156090	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	2491848	Total
Program Services	1817299	ProgramServices
Management And General	388606	ManagementAndGeneral
Fundraising	285943	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	1655879	Total
Program Services	1247462	ProgramServices
Management And General	209114	ManagementAndGeneral
Fundraising	199303	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	578023	Total
Program Services	537516	ProgramServices
Management And General	40507	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	182708	Total
Program Services	55611	ProgramServices
Management And General	127097	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	252712	Total
Program Services	252712	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	106366	Total
Program Services	0	ProgramServices
Management And General	106366	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	3030329	Total
Program Services	2245033	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	785296	Fundraising

Advertising Advertising

Field	Value	IRS element (for citing)
Total	33502	Total
Program Services	20436	ProgramServices
Management And General	5360	ManagementAndGeneral
Fundraising	7706	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	1748045	Total
Program Services	1564032	ProgramServices
Management And General	75299	ManagementAndGeneral
Fundraising	108714	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	3896695	Total
Program Services	3063964	ProgramServices
Management And General	306872	ManagementAndGeneral
Fundraising	525859	Fundraising

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	1634556	Total
Program Services	1214017	ProgramServices
Management And General	259671	ManagementAndGeneral
Fundraising	160868	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	793201	Total
Program Services	699429	ProgramServices
Management And General	27316	ManagementAndGeneral
Fundraising	66456	Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	2443790	Total
Program Services	2401735	ProgramServices
Management And General	13829	ManagementAndGeneral
Fundraising	28226	Fundraising

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	532604	Total
Program Services	448971	ProgramServices
Management And General	43658	ManagementAndGeneral
Fundraising	39975	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	447871	Total
Program Services	363025	ProgramServices
Management And General	33216	ManagementAndGeneral
Fundraising	51630	Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
DIRECT MAIL PRINTING	2998803	824371	0	2174432
DIRECT MAIL POSTAGE	2785473	765727	0	2019746
TRAINING	546284	341205	87067	118012
MAILING LIST RENTAL	464438	127674	0	336764

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	976561	Total
Program Services	312369	ProgramServices
Management And General	618229	ManagementAndGeneral
Fundraising	45963	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	79288914	Total
Program Services	62995042	ProgramServices
Management And General	6373030	ManagementAndGeneral
Fundraising	9920842	Fundraising

Field	Value	IRS element (for citing)
Joint Costs	X	JointCosts

Total Joint Costs TotalJointCosts

Field	Value	IRS element (for citing)
Total	8356668	Total
Program Services	2297323	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	6059345	Fundraising

Field	Value	IRS element (for citing)
Info In Schedule O Part X	X	InfoInScheduleOPartX

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	29623023	BOY
EOY	85991958	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	17362252	BOY
EOY	18589070	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
BOY	3775431	BOY
EOY	3897769	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
BOY	462935	BOY
EOY	341763	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	1615334	BOY
EOY	1169059	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	6400089	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	3899882	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	2580064	BOY
EOY	2500207	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	117635184	BOY
EOY	231212469	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
BOY	42519485	BOY
EOY	84037853	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	747656	BOY
EOY	7360554	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	216321364	BOY
EOY	435100702	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	12344388	BOY
EOY	19779258	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	19846941	BOY
EOY	23616669	EOY

Deferred Revenue DeferredRevenue

Field	Value	IRS element (for citing)
BOY	3567174	BOY
EOY	3851863	EOY

Tax Exempt Bond Liabilities TaxExemptBondLiabilities

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Escrow Account Liability EscrowAccountLiability

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Loans From Officers Directors LoansFromOfficersDirectors

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Mort Notes Pybl Secured Invest Prop MortNotesPyblSecuredInvestProp

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Unsecured Notes Loans Payable UnsecuredNotesLoansPayable

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
BOY	5113946	BOY
EOY	37223029	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	40872449	BOY
EOY	84470819	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	154243452	BOY
EOY	330610330	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	17895922	BOY
EOY	16291346	EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	3309541	BOY
EOY	3728207	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	175448915	BOY
EOY	350629883	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	216321364	BOY
EOY	435100702	EOY

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	X	InfoInScheduleOPartXI
Reconcilation Revenue Expenses	181530062	ReconcilationRevenueExpenses
Reconciliation Unrealized Invest	10435972	ReconciliationUnrealizedInvest
Reconcilation Other Changes	-16785066	ReconcilationOtherChanges
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited

FS Audited Basis FSAuditedBasis

Field	Value	IRS element (for citing)
Financial Statement Consolidated	X	FinancialStatementConsolidated

Field	Value	IRS element (for citing)
Audit Committee	true	AuditCommittee
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi
Contrib By Controlling Individual	false	ContribByControllingIndividual
Contribution By Related Party	false	ContributionByRelatedParty
Contrib By35 Controlled Entity	false	ContribBy35ControlledEntity

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	112573276	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	94548345	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	106799244	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	101016043	CurrentTaxYearMinus1Year
Current Tax Year	193893253	CurrentTaxYear
Total	608830161	Total

Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170

Field	Value	IRS element (for citing)
Total	0	Total

Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	112573276	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	94548345	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	106799244	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	101016043	CurrentTaxYearMinus1Year
Current Tax Year	193893253	CurrentTaxYear
Total	608830161	Total

Field	Value	IRS element (for citing)
Amounts Subst Contributors Total	0	AmountsSubstContributorsTotal
Public Support Total170	608830161	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	5292496	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	2946628	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	2848122	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	4888930	CurrentTaxYearMinus1Year
Current Tax Year	14145772	CurrentTaxYear
Total	30121948	Total

Net UBI NetUBI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	1916	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	0	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	0	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	0	CurrentTaxYearMinus1Year
Current Tax Year	0	CurrentTaxYear
Total	1916	Total

Other Income170 OtherIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	998418	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	636827	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	467607	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	576265	CurrentTaxYearMinus1Year
Current Tax Year	480632	CurrentTaxYear
Total	3159749	Total

Field	Value	IRS element (for citing)
Total Support	642113774	TotalSupport
Gross Receipts From Admissions Etc	109095776	GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage170	0.94817	PublicSupportPertcentage170
Public Support Pertcent Prior Year	0.94910	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170
General Explanation	The foundation fosters collaboration within the scientific community by hosting a large scientific conference providing a forum for researchers and caregivers to share their practices and investigate results with one another. Fees for attendance at this conference are reported on line 12. Program management fees represent charges for the management of operations provided by cystic fibrosis foundation pharmacy, LLC (CFFP) (formerly a disregarded entity of the organization) to cystic fibrosis services, inc. (cfs)(a subsidiary of cffp). License fees were paid by cfs to cffp for promotion of the cfs pharmacy, featuring on the website, use of patient education and communication materials, use of organization name, logo and trademark, etc. cfs's sole activity was to operate and manage a specialty pharmacy that sold cystic fibrosis related prescription pharmaceuticals, related durable medical equipment and non-prescription cystic fibrosis related vitamins and supplements. Cfs served patients who have been diagnosed with cystic fibrosis. This revenue is not taxable because the organization received a private letter ruling determining that cfs's activities were related to the organization's exempt purpose. The foundation sold an 80% controlling interest in cffp to an unrelated third party on December 6, 2012. See schedule O for additional information about this transaction. Transition services amount represents fees earned in connection with temporary information technology, telecommunications, and transition-related services provided by the foundation in connection with the change in the pharmacy's ownership.	GeneralExplanation

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	186450	FilingOrganizationsTotals

Total Direct Lobbying TotalDirectLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	501566	FilingOrganizationsTotals

Total Lobbying Expenditures TotalLobbyingExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	688016	FilingOrganizationsTotals

Other Exempt Purpose Expenditures OtherExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	78600898	FilingOrganizationsTotals

Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	79288914	FilingOrganizationsTotals

Lobbying Nontaxable LobbyingNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	1000000	FilingOrganizationsTotals

Grassroots Nontaxable GrassrootsNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	250000	FilingOrganizationsTotals

Field	Value	IRS element (for citing)
Tot Lobbying Grassroot Minus Non Tx		TotLobbyingGrassrootMinusNonTx
Tot Lobby Expend Mns Lobbying Nontx		TotLobbyExpendMnsLobbyingNontx

Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	1000000	CurrentYearMinus3
Current Year Minus2	1000000	CurrentYearMinus2
Current Year Minus1	1000000	CurrentYearMinus1
Current Year	1000000	CurrentYear
Total	4000000	Total

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmount

Total Lobbying Expenditures2 TotalLobbyingExpenditures2

Field	Value	IRS element (for citing)
Current Year Minus3	165973	CurrentYearMinus3
Current Year Minus2	257023	CurrentYearMinus2
Current Year Minus1	572513	CurrentYearMinus1
Current Year	688016	CurrentYear
Total	1683525	Total

Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	250000	CurrentYearMinus3
Current Year Minus2	250000	CurrentYearMinus2
Current Year Minus1	250000	CurrentYearMinus1
Current Year	250000	CurrentYear
Total	1000000	Total

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmount

Grassroots Lobbying Expenditures GrassrootsLobbyingExpenditures

Field	Value	IRS element (for citing)
Current Year Minus3	14000	CurrentYearMinus3
Current Year Minus2	11250	CurrentYearMinus2
Current Year Minus1	91903	CurrentYearMinus1
Current Year	186450	CurrentYear
Total	303603	Total

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amts		ArtPublicExhibitionAmts
Held Works Of Art Amts		HeldWorksOfArtAmts
Current Year Minus3 Years		CurrentYearMinus3Years
Current Year Minus4 Years		CurrentYearMinus4Years
Land		Land
Buildings		Buildings

Leasehold Improvements LeaseholdImprovements

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	1153324	OtherCostOrOtherBasis
Depreciation	377546	Depreciation
Book Value	775778	BookValue

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	5246765	OtherCostOrOtherBasis
Depreciation	3522336	Depreciation
Book Value	1724429	BookValue

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildings
Total Of Book Value Land Buildings	2500207	TotalOfBookValueLandBuildings
Financial Derivatives		FinancialDerivatives
Closely Held Equity Interests		CloselyHeldEquityInterests

Other Securities OtherSecurities (6 entries)

DescriptionDescription	Book ValueBookValue	Method Of ValuationMethodOfValuation
SHORT DURATION BOND MUT FUNDS	25183675	F
INFLATION HEDGE MUTUAL FUNDS	11087549	F
LONG/SHORT EQUITY FUND	17279639	F
ABSOLUTE VALUE FUND	26697163	F
OTHER HEDGE FUND	61620	F
PERPETUAL TRUSTS	3728207	F

Field	Value	IRS element (for citing)
Total Of Book Value Securities	84037853	TotalOfBookValueSecurities
Federal Income Tax Liability	0	FederalIncomeTaxLiability

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
Description	INTERCOMPANY PAYABLE	Description
Amount	$37,223,029	Amount

Field	Value	IRS element (for citing)
Total Of Amounts	37223029	TotalOfAmounts

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	true	GrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable (3 entries)

RegionRegion	Type Of Activities ConductedTypeOfActivitiesConducted	Specific Services ProvidedSpecificServicesProvided	Total ExpendituresTotalExpenditures
North America	Grantmaking	NONE	97126
Europe (Including Iceland and Greenland)	Grantmaking	NONE	446802
Middle East and North Africa	Grantmaking	NONE	97200

Field	Value	IRS element (for citing)
Subtotal Amount Spent	641128	SubtotalAmountSpent
Total Amount Spent	641128	TotalAmountSpent

Grants To Orgs Outside US GrantsToOrgsOutsideUS (7 entries)

RegionRegion	Amount Of Cash GrantAmountOfCashGrant	Manner Of Cash DisbursementMannerOfCashDisbursement	Purpose Of GrantPurposeOfGrant
North America	97126	CHECK
Europe (Including Iceland and Greenland)	185902	WIRE	RESEARCH
Europe (Including Iceland and Greenland)	43200	WIRE	PILOT STUDIES
Europe (Including Iceland and Greenland)	21500	WIRE	PILOT STUDIES
Europe (Including Iceland and Greenland)	43200	WIRE	PILOT STUDIES
Europe (Including Iceland and Greenland)	153000	WIRE	QUALITY IMPROVEMENT
Middle East and North Africa	97200	WIRE	RESEARCH

Field	Value	IRS element (for citing)
Total Number Of501c3 Orgs	7	TotalNumberOf501c3Orgs
Transfer To Foreign Corp	false	TransferToForeignCorp
Interest In Foreign Trust	false	InterestInForeignTrust
Own Foreign Corp	false	OwnForeignCorp
Passive Foreign Invest Co	false	PassiveForeignInvestCo
Foreign Partnership	false	ForeignPartnership
Boycott Countries	false	BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

Field	Value	IRS element (for citing)
Identifier	Procedures for monitoring grant funds outside of the U.S.	Identifier
Return Reference	Schedule F, Part I, Line 2	ReturnReference
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITITES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURE. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS. THE GRANT IN THE MIDDLE EAST / NORTH AFRICA REGION WAS MADE TO HEBREW UNIVERSITY OF JERUSALEM, A UNIVERSITY IN ISRAEL.	Explanation

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (270 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	IRC SectionIRCSection	Amount Of Cash GrantAmountOfCashGrant	Purpose Of GrantPurposeOfGrant	Address Line2AddressUS/AddressLine2
Advocate Hope Children's Hospital
4440 West 95th Street	Oak Lawn	IL	60453	362169147	501(C)(3)	43631	CF CARE CENTER
Albany Medical College
Elsmere A-107	Albany	NY	12208	141338310	501(C)(3)	94700	CF CARE CENTER
Alfred I DuPont Institute of the Nemours Foundati
1600 Rockland Road	Wilmington	DE	19899	590634433	501(C)(3)	205550	CF CARE CENTER
All Children's Hospital
Dept 9010	St Petersburg	FL	33731	590683252	501(C)(3)	81820	CF CARE CENTER	PO Box 269
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501(C)(3)	124589	CF CARE CENTER	PO Box 31020
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501(C)(3)	96315	RESEARCH
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501(C)(3)	52250	TRAINING
Ann and Robert H Lurie Children's Hospital of Chi
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501(C)(3)	21600	QUALITY IMPROVEMENT
Arizona Board of Regents University of Arizona
Sponsored Projects Services	Tucson	AZ	857223308	742652689	501(C)(3)	56120	CF CARE CENTER
Arkansas Children's Hospital Research Institute I
800 Marshall Street	Little Rock	AR	72202	710694931	501(C)(3)	67360	CF CARE CENTER	888 N Euclid Room 510
Asthma and Allergy Specialists PA
411 Billings Road	Charlotte	NC	28211	561913043	CORP	34760	CF CARE CENTER	Slot 512-17
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	521958352	501(C)(3)	69900	CF CARE CENTER	Suite 104
Baylor College of Medicine
PO Box 1	Houston	TX	77212	741613878	501(C)(3)	235170	CF CARE CENTER
Baystate Medical Center (95-196)
759 Chestnut Street	Springfield	MA	01199	042790311	501(C)(3)	29910	CF CARE CENTER
Beth Israel Medical Center
Office of Grants Contracts	New York	NY	10038	135564934	501(C)(3)	74700	CF CARE CENTER
Billings Clinic
2800 10th Avenue North	Billings	MT	59107	810231784	501(C)(3)	35010	CF CARE CENTER	160 Water Street 24th Floor
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	501(C)(3)	141912	CF CARE CENTER
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	501(C)(3)	43200	PILOT STUDIES
Board of Regents of the University of Wisconsin Sy
750 University Avenue	Madison	WI	53706	396006492	501(C)(3)	14629	QUALITY IMPROVEMENT
Board of Trustees of Southern Illinois University
Division of Pulmonary Medicine	Springfield	IL	62794	376005961	501(C)(3)	6350	CF CARE CENTER
Board of Trustees of the Leland Stanford Junior Un
Stanford University	Stanford	CA	943056215	941156365	501(C)(3)	149690	CF CARE CENTER	651 Serra Street Suite 220
Board of Trustees of the Leland Stanford Junior Un
Stanford University	Stanford	CA	943056215	941156365	501(C)(3)	97200	RESEARCH	651 serra st suite 220
Board of Trustees of the Leland Stanford Junior Un
Stanford University	Stanford	CA	943056215	941156365	501(C)(3)	43600	RESEARCH STUDIES	651 serra st suite 220
California Pacific Medical Center Research Institu
2200 Webster Street Room 405	San Francisco	CA	94115	940562680	501(C)(3)	15460	CF CARE CENTER	651 Serra Street Suite 220
California State University Los Angeles Universi
5151 State University Drive GE314	Los Angeles	CA	90032	954016653	501(C)(3)	43200	PILOT STUDIES
CAMC Health Education and Research Institute
PO Box 765	Charleston	WV	25323	550753754	501(C)(3)	20690	CF CARE CENTER
Carle Foundation Hospital
611 W Park Street	Urbana	IL	61801	371119538	501(C)(3)	12755	CF CARE CENTER
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067037	341018992	501(C)(3)	349281	RESEARCH CENTERS
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067037	341018992	501(C)(3)	97200	RESEARCH	Attn Deborah Elam
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067037	341018992	501(C)(3)	68250	TRAINING	Attn Deborah Elam
Central Florida Pulmonary Group
326 North Mills Avenue	Orlando	FL	32803	591760017	CORP	44650	CF CARE CENTER	Attn Deborah Elam
Children's & Women's Physicians of Westchester
Pediatric Pulmonology	Valhalla	NY	10595	133956599	LLP	70390	CF CARE CENTER
Children's & Women's Physicians of Westchester
Pediatric Pulmonology	Valhalla	NY	10595	133956599	LLP	27000	ADULT CARE	Munger Pavilion Room 106
Children's Health Care
2525 Chicago Avenue SO	Minneapolis	MN	54040	411754276	501(C)(3)	16200	QUALITY IMPROVEMENT	Munger Pavilion Room 106
Children's Healthcare of Atlanta
1001 Johnson Ferry Road North	Atlanta	GA	30342	582367819	501(C)(3)	69180	CF CARE CENTER	32-2210
Children's Hospital & Research Center at Oakland
747 52nd Street	Oakland	CA	94609	940382330	501(C)(3)	39110	CF CARE CENTER
Children's Hospital Central California
9300 Valley Childrens Place	Madera	CA	93638	941294954	501(C)(3)	64100	CF CARE CENTER
Children's Hospital Colorado
formerly The Childrens Hospital	Aurora	CO	80045	840166760	501(C)(3)	180440	CF CARE CENTER	13123 East 16th Ave
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501(C)(3)	259200	CF CARE CENTER	13123 East 16th Ave
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501(C)(3)	100250	TRAINING
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501(C)(3)	45800	RESEARCH STUDIES
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	Cincinnati	OH	45229	310833936	501(C)(3)	377328	RESEARCH CENTERS	research accounting
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	Cincinnati	OH	45229	310833936	501(C)(3)	113020	CF CARE CENTER	Research Accounting
Children's Hospital Medical Center
Cincinnati Childrens Hospital Med	Cincinnati	OH	45229	310833936	501(C)(3)	97750	TRAINING	Research Accounting
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	443081062	340714357	501(C)(3)	114880	CF CARE CENTER	Research Accounting
Children's Hospital of Michigan
3663 Woodward Ave S Ste 200	Detroit	MI	48201	381357994	501(C)(3)	54309	CF CARE CENTER
Children's Hospital of Orange County
PO Box 5700	Orange	CA	926135700	952321786	501(C)(3)	43350	CF CARE CENTER
Children's Hospital of Pittsburgh
3705 Fifth Avenue	Pittsburgh	PA	15213	250402510	501(C)(3)	211260	CF CARE CENTER
Children's Hospital of Pittsburgh
3705 Fifth Avenue	Pittsburgh	PA	15213	250402510	501(C)(3)	49750	TRAINING
Children's Hospital Los Angeles
Research Institute	Los Angeles	CA	90027	951690977	501(C)(3)	71190	CF CARE CENTER
Children's Lung Specialists
3838 Meadows Lane	Las Vegas	NV	89107	880271963	501(C)(3)	78020	CF CARE CENTER	4650 Sunset Blvd
Children's Medical Center
One Childrens Plaza	Dayton	OH	454041815	310672132	501(C)(3)	78950	CF CARE CENTER
Children's Mercy Hospital
2401 Gillham Road	Kansas City	MO	64108	440605373	501(C)(3)	109540	CF CARE CENTER
Children's National Medical Center
111 Michigan Avenue NW	Washington	DC	20010	521654453	501(C)(3)	81970	CF CARE CENTER
Children's Research Institute
Childrens National Medical Center	Washington	DC	20010	521654453	501(C)(3)	75000	RESEARCH
Children's Specialty Group PLLC
811 Redgate Ave	Norfolk	VA	23507	541871633	501(C)(3)	70820	CF CARE CENTER	111 Michigan Avenue NW
Christus Santa Rosa Healthcare
333 North Santa Rosa	San Antonio	TX	78207	741109665	501(C)(3)	86340	CF CARE CENTER
Colorado State University Cashier's Office
Sponsored Programs	Fort Collins	CO	805232002	846000545	501(C)(3)	42946	PILOT STUDIES
Connecticut Children's Medical Center
282 Washington Street	Hartford	CT	06106	060646755	501(C)(3)	43420	CF CARE CENTER	Campus Delivery Box 2002
Cook Children's Medical Center CF Center
801 Seventh Avenue	Ft Worth	TX	76104	752051646	501(C)(3)	108820	CF CARE CENTER
Daughters of Charity Health Services of Austin
4900 Mueller Blvd	Austin	TX	78723	741109643	501(C)(3)	73090	CF CARE CENTER
Duke University
Office of Sponsored Programs	Durham	NC	27710	560532129	501(C)(3)	60330	CF CARE CENTER
East Tennessee Children's Hospital Association I
2100 Clinch Avenue 310	Knoxville	TN	37916	626002604	501(C)(3)	72630	CF CARE CENTER	Box 104025
Eastern Maine Medical Center
417 State Street	Bangor	ME	04401	010211501	501(C)(3)	25670	CF CARE CENTER
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501(C)(3)	206000	CF CARE CENTER	Suite 305
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501(C)(3)	100000	RESEARCH
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501(C)(3)	48000	TRAINING
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501(C)(3)	27000	ADULT CARE
Erlanger Health System
975 East Third Street	Chattanooga	TN	37403	626000101	501(C)(3)	33780	CF CARE CENTER
Faculty Physicians & Surgeons of LLUSM
Coleman Pavilion	Loma Linda	CA	92350	330672915	501(C)(3)	46090	CF CARE CENTER
Fairfax Neonatal Associates PC dbaPediatric Lung
2730-B Prosperity Avenue	Fairfax	VA	22031	541110106	CORP	18772	CF CARE CENTER	PO Box 2000
Fletcher Allen Health Care
111 Colchester Ave	Burlington	VT	05401	030219309	501(C)(3)	101170	CF CARE CENTER
Geisinger Medical Center
Pediatric Allergy Immunology Pul	Danville	PA	17822	236291113	501(C)(3)	51780	CF CARE CENTER
Georgia Health Sciences University
1120 15th Street	Augusta	GA	309128300	586002053	501(C)(3)	87770	CF CARE CENTER	100 N Academy Drive
Greenville Hospital System
701 Grove Road	Greenville	SC	29605	576007863	501(C)(3)	27870	CF CARE CENTER
Gundersen Lutheran Medical Foundation
1900 South Avenue	La Crosse	WI	54601	391249705	501(C)(3)	14849	CF CARE CENTER
Hartford Hospital
Department of Medicine	Hartford	CT	06102	060646668	501(C)(3)	38190	CF CARE CENTER
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	Rockville	MD	20852	521317896	501(C)(3)	97200	RESEARCH	80 Seymour Street
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	Rockville	MD	20852	521317896	501(C)(3)	38505	CF CARE CENTER
Iowa Health Foundation
1440 Ingersoll Avenue	Des Moines	IA	50309	421467682	501(C)(3)	46310	CF CARE CENTER
Kaiser Foundation Hospitals Center for Health Res
3800 North Interstate Avenue	Portland	OR	97227	911105628	501(C)(3)	29736	CF CARE CENTER
Kaiser Foundation Research Institute
1800 Harrison Street	OAKLAND	CA	94612	941105628	501(C)(3)	130870	CF CARE CENTER
Kala Pharmaceuticals
135 Beaver St	Waltham	MA	02452	270604595	CORP	42672	PILOT STUDIES	16th floor
Kaleida Health
219 Bryant Street	Buffalo	NY	14209	161533232	501(C)(3)	88150	CF CARE CENTER	Ste 309
Landon Pediatric Foundation
3291 Loma Vista Road	Ventura	CA	93003	931097216	501(C)(3)	27550	CF CARE CENTER
Lehigh Valley Hospital
Pediatric Specialty Center	Bethlehem	PA	18017	231689692	501(C)(3)	8736	CF CARE CENTER
Long Island Jewish Medical Center
Finance Department	Westbury	NY	11590	112241326	501(C)(3)	102320	CF CARE CENTER	2545 Schoenersville Road
Loyola University of Chicago
2160 S First Avenue	Maywood	IL	60153	361408475	501(C)(3)	37700	CF CARE CENTER	972 Brushhollow Road
LSUMC - Shreveport
P O Box 33932	Shreveport	LA	71130	720702002	501(C)(3)	76140	CF CARE CENTER
Lutheran Hospital of Indiana
7950 West Jefferson Boulevard	FT Wayne	IN	46804	351963748	CORP	27630	CF CARE CENTER
Maine Medical Center
22 Bramhall Street	Portland	ME	04102	010238552	501(C)(3)	90650	CF CARE CENTER
Marshall University Research Corporation
401 11th Street Suite 1400	Huntington	WV	25701	550683361	501(C)(3)	97200	RESEARCH
Marshfield Clinic Research Foundation
1000 North Oak Avenue	Marshfield	WI	54449	390452970	501(C)(3)	15599	CF CARE CENTER
Mary Bridge Children's Foundation
311 South L Street	Tacoma	WA	98405	943030039	501(C)(3)	36130	CF CARE CENTER
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501(C)(3)	83230	CF CARE CENTER	Mailstop B1-OC
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501(C)(3)	43200	PILOT STUDIES
Memorial Medical Center Foundation
2801 Atlantic Avenue	Long Beach	CA	908011428	956105984	501(C)(3)	104140	CF CARE CENTER
Miami Children's Hospital
MOB 203	Miami	FL	33155	590638499	501(C)(3)	25730	CF CARE CENTER	PO Box 1428
Michigan State University
301 Administration Bldg	East Lansing	MI	488241046	386005984	501(C)(3)	48430	CF CARE CENTER	3200 SW 60th Court
Mission Healthcare Foundation Inc
980 Hendersonville Road	Asheville	NC	28803	561881331	501(C)(3)	17592	CF CARE CENTER
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501(C)(3)	59820	CF CARE CENTER	Suite C
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501(C)(3)	27000	QUALITY IMPROVEMENT
Mount Sinai School of Medicine
One Gustave L Levy Place	New York	NY	10029	136171197	501(C)(3)	8550	CF CARE CENTER
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501(C)(3)	111310	CF CARE CENTER	Box 3500
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501(C)(3)	96821	RESEARCH
Nemours Children's Clinic Jacksonville
807 Nira Street	Jacksonville	FL	32207	590634433	501(C)(3)	27000	QUALITY IMPROVEMENT
New York Medical College
40 Sunshine Cottage Road	Valhalla	NY	10595	131099420	501(C)(3)	27000	QUALITY IMPROVEMENT
New York University School of Medicine
550 First Avenue	New York	NY	10016	135562308	501(C)(3)	8000	CF CARE CENTER
North Suburban Pulmonary Research and Education
8780 W Gold	Niles	IL	60714	364393617	501(C)(3)	8000	CF CARE CENTER
Northwest Permanente PC
500 NE Multnomah Street	Portland	OR	97232	930698548	CORP	27000	ADULT CARE	Suite 102
Northwestern Medical Faculty Foundation
Financial Services	Chicago	IL	60611	363097297	501(C)(3)	8000	CF CARE CENTER	Suite 100
Northwestern University
750 N Lake Shore Drive	Chicago	IL	606113008	362167817	501(C)(3)	27000	ADULT CARE	680 N Lake Shore Dr Suite 1118
Oregon Health & Science University
Sponsored Projects Administration O	Portland	OR	97239	237083114	501(C)(3)	152204	CF CARE CENTER	Rubloff 7th Floor
Oregon Health & Science University
Sponsored Projects Administration O	Portland	OR	97239	237083114	501(C)(3)	45800	RESEARCH STUDIES	0690 SW Bancroft Street
Oregon Health & Science University
Sponsored Projects Administration O	Portland	OR	97239	237083114	501(C)(3)	43200	PILOT STUDIES	0690 SW Bancroft Street
Orlando Health Foundation
3160 Southgate Commerce Blvd	Orlando	FL	32806	592244943	501(C)(3)	29010	CF CARE CENTER	0690 SW Bancroft Street
Pediatric Specialty
Saint Barnabas Medical Center	Livingston	NJ	07039	221494440	501(C)(3)	5840	CF CARE CENTER	Suite 50
Pennsylvania State University
College of Medicine	Hershey	PA	17033	246000376	501(C)(3)	109700	CF CARE CENTER	Pediatric Pulmonary Division
Philadelphia Health & Education Corp (Drexel Univ
3201 Arch Street	Philadelphia	PA	19104	232979433	501(C)(3)	81780	CF CARE CENTER	Office of Research Affairs H138
Philadelphia Health & Education Corp (Drexel Univ
3201 Arch Street	Philadelphia	PA	19104	232979433	501(C)(3)	27000	ADULT CARE	Suite 420
Phoenix Children's Hospital
1300 North 12th Street	Phoenix	AZ	85006	860422559	501(C)(3)	122740	CF CARE CENTER	Suite 420
Providence Alaska Medical Center
3200 Providence Drive	Anchorage	AK	995196604	920016429	501(C)(3)	29280	CF CARE CENTER
Providence Physician Service
101 W 8th Ave	Spokane	WA	99204	911216033	corp	55690	CF CARE CENTER	PO Box 196604
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501(C)(3)	242894	TRAINING
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501(C)(3)	21600	QUALITY IMPROVEMENT	F428 Fitzsimons Building 500
Renown Regional Medical Center Children's Hospital
1155 Mill Street	Reno	NV	89503	880213754	501(C)(3)	17630	CF CARE CENTER	F428 Fitzsimons Building 500
Rhode Island Hospital
593 Eddy Street	Providence	RI	02903	050258954	501(C)(3)	54850	CF CARE CENTER
Rosalind Franklin University of Medicine and Scien
3333 Green Bay Road	North Chicago	IL	60064	362181973	501(C)(3)	191166	RESEARCH
Rush University Medical Center
1725 West Harrison Suite 718	Chicago	IL	60612	362174823	501(C)(3)	44490	CF CARE CENTER
Saint Francis Medical Center
530 NE Glen Oak Avenue	Peoria	IL	61637	370662569	501(C)(3)	46810	CF CARE CENTER
Saint Joseph's Hospital and Medical Center
703 Main Street	Paterson	NJ	07503	221487602	501(C)(3)	17490	CF CARE CENTER
Samaritan Medical Center
Child Adolescent Health Services	Watertown	NY	13601	150533577	501(C)(3)	8720	CF CARE CENTER
Sanford Children's Specialty Clinic
1305 W 18th Street	Sioux Falls	SD	571175039	460447693	501(C)(3)	52030	CF CARE CENTER	513 Washington Street
Scott & White Memorial Hospital
2401 South 31st Street	Temple	TX	76508	741166904	501(C)(3)	12580	CF CARE CENTER
Seattle Children's Hospital Foundation
6901 Sand Point Way NE	Seattle	WA	981050371	910564748	501(C)(3)	99100	CF CARE CENTER
South Broward Hospital District
Joe DiMaggios Childrens Hospital	Hollywood	FL	33321	596014973	501(C)(3)	42530	CF CARE CENTER
Spectrum Health Foundation
Downtown Campus	Grand Rapids	MI	49503	382752328	501(C)(3)	123470	CF CARE CENTER	Cystic Fibrosis Clinic
St Alexius Medical Center
PO Box 5510	Bismarck	ND	585065510	450226711	501(C)(3)	29810	CF CARE CENTER	100 Michigan Street NE MC 004
St Joseph's Regional Medical Center Inc
611 East Cedar Street	Mishawaka	IN	465451468	351568821	501(C)(3)	25650	CF CARE CENTER
St Louis University
3500 Lindell Blvd	St Louis	MO	63103	430654872	501(C)(3)	94750	CF CARE CENTER	Suite 405
St Luke's Regional Medical Center
100 East Idaho	Boise	ID	83712	820161600	501(C)(3)	44760	CF CARE CENTER
Sutter Medical Center Sacramento
5609 J Street Suite C	Sacramento	CA	95819	941156621	501(C)(3)	48940	CF CARE CENTER	Suite 200
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	West Palm Beach	FL	33407	752932830	corp	40140	CF CARE CENTER
Texas Tech University Health Sciences Center
3601 4th Street	Lubbock	TX	79430	752668014	501(C)(3)	9870	CF CARE CENTER	901 45th Street
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Philadelphia	PA	191044318	231352166	501(C)(3)	125044	CF CARE CENTER	Mail Stop 6591
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Philadelphia	PA	191044318	231352166	501(C)(3)	68250	TRAINING
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501(C)(3)	173151	RESEARCH
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501(C)(3)	67010	CF CARE CENTER	310 Jesse Hall
The Feinstein Institute for Medical Research
350 Community Drive	Manhasset	NY	11030	112673595	501(C)(3)	27000	ADULT CARE	310 Jesse Hall
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	Boston	MA	02114	042697983	501(C)(3)	107999	PILOT STUDIES
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	Boston	MA	02114	042697983	501(C)(3)	168500	TRAINING	PO Box 414876
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	Boston	MA	02114	042697983	501(C)(3)	90000	RESEARCH	PO Box 414876
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	Boston	MA	02114	042697983	501(C)(3)	89660	CF CARE CENTER	PO Box 414876
The General Hospital Corporation (Massachusetts Ge
Mass General Research Finance	Boston	MA	02114	042697983	501(C)(3)	42500	RESEARCH STUDIES	PO Box 414876
The Hitchcock Foundation
One Medical Center Drive	Lebanon	NH	03756	020222139	501(C)(3)	93510	CF CARE CENTER	PO Box 414876
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501(C)(3)	228160	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501(C)(3)	49750	TRAINING
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501(C)(3)	43197	PILOT STUDIES
The Medical College of Wisconsin
8701 Watertown Polk Rd	Milwaukee	WI	53226	390806261	501(C)(3)	131390	CF CARE CENTER
The Medical College of Wisconsin
8701 Watertown Pike Rd	Milwaukee	WI	53226	390806261	501(C)(3)	27000	QUALITY IMPROVEMENT
The Ohio State University
1960 Kenny Road	Columbus	OH	43210	316025986	501(C)(3)	43462	RESEARCH STUDIES
The President & Fellows of Harvard College
25 Shattuck Street	Boston	MA	02115	042103580	501(C)(3)	97200	RESEARCH
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	229044195	546001796	501(C)(3)	102058	CF CARE CENTER
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	229044195	546001796	501(C)(3)	45800	RESEARCH STUDIES	Office of Sponsored Programs
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	229044195	546001796	501(C)(3)	43200	RESEARCH	Office of Sponsored Programs
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	229044195	546001796	501(C)(3)	43200	PILOT STUDIES	Office of Sponsored Programs
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	229044195	546001796	501(C)(3)	27000	ADULT CARE	Office of Sponsored Programs
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	229044195	546001796	501(C)(3)	21196	QUALITY IMPROVEMENT	Office of Sponsored Programs
The Regents of the University of California Davis
Cashiers Office 1200 Dutton Hall	Davis	CA	95616	946036494	501(C)(3)	69290	CF CARE CENTER	Office of Sponsored Programs
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501(C)(3)	118580	CF CARE CENTER	One Shields Avenue
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501(C)(3)	43200	PILOT STUDIES	9500 Gilman Drive Dept 0934
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501(C)(3)	27000	ADULT CARE	9500 Gilman Drive Dept 0934
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501(C)(3)	460000	RESEARCH CENTERS	9500 Gilman Drive Dept 0934
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501(C)(3)	70750	CF CARE CENTER	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501(C)(3)	48000	TRAINING	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501(C)(3)	27000	ADULT CARE	3333 California Street Suite 315
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501(C)(3)	205160	CF CARE CENTER	3333 California Street Suite 315
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501(C)(3)	75000	RESEARCH
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501(C)(3)	43200	QUALITY IMPROVEMENT
The Regents of the University of Minnesota
Sponsored Projects Administration	Minneapolis	MN	554552070	416007513	501(C)(3)	319500	CF CARE CENTER
The Research Institute at Nationwide Children's H
Huntington National Bank	Columbus	OH	43260	316056230	501(C)(3)	202200	CF CARE CENTER	200 Oak St SE
The Research Institute at Nationwide Children's H
Huntington National Bank	Columbus	OH	43260	316056230	501(C)(3)	27000	ADULT CARE	Dept 4656 / Ref 413407
The Research Foundation of SUNY
P O Box 9	Albany	NY	122010009	141368361	501(C)(3)	144050	CF CARE CENTER	Dept 4656 / Ref 413407
The Tampa General Hospital Foundation
PO Box 1289	Tampa	FL	33601	237354477	501(C)(3)	59930	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501(C)(3)	131640	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501(C)(3)	49750	TRAINING
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	352940006	636005396	501(C)(3)	500000	RESEARCH CENTERS
The University of Alabama at Birmingham
1530 3rd Ave S THT422	Birmingham	AL	352940006	636005396	501(C)(3)	90909	RESEARCH
The University of Chicago
5801 S Ellis Avenue	Chicago	IL	60637	362177139	501(C)(3)	75000	RESEARCH
The University of Chicago
5801 S Ellis Avenue	Chicago	IL	60637	362177139	501(C)(3)	50260	CF CARE CENTER
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501(C)(3)	460000	RESEARCH CENTERS
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501(C)(3)	252598	CF CARE CENTER	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501(C)(3)	474049	RESEARCH	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501(C)(3)	147500	TRAINING	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501(C)(3)	132681	PILOT STUDIES	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501(C)(3)	42500	RESEARCH STUDIES	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501(C)(3)	27000	QUALITY IMPROVEMENT	Office of Sponsored Research
The University of Texas at Austin
P O Box 7726	Austin	TX	787137726	746000203	501(C)(3)	97200	RESEARCH	Office of Sponsored Research
The University of Vermont and State Agricultural C
85 So Prospect Street	Burlington	VT	054050160	030179440	501(C)(3)	42500	RESEARCH STUDIES
Toledo Children's Hospital
2142 N Cove Blvd	Toledo	OH	43606	344428256	501(C)(3)	86480	CF CARE CENTER
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501(C)(3)	346667	RESEARCH CENTERS
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501(C)(3)	301474	QUALITY IMPROVEMENT
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501(C)(3)	27000	ADULT CARE
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501(C)(3)	199318	CF CARE CENTER
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501(C)(3)	68250	TRAINING	PO Box 66057
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501(C)(3)	19994	QUALITY IMPROVEMENT	PO Box 66057
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501(C)(3)	97200	RESEARCH	PO Box 66057
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501(C)(3)	75048	RESEARCH CENTER
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501(C)(3)	43200	PILOT STUDIES
Trustees of the University of Pennsylvania on beha
3451 Walnut Street	Philadelphia	PA	19104	231352685	501(C)(3)	84550	CF CARE CENTER
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501(C)(3)	103940	CF CARE CENTER	Franklin Bldg P-221
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501(C)(3)	27000	ADULT CARE
UMDNJ- Robert Wood Johnson Medical School
UMDNJ	New Brunswick	NJ	08903	221775306	501(C)(3)	62660	CF CARE CENTER
University of Arkansas for Medical Sciences
4301 West Markham Street	Little Rock	AR	72205	716046242	501(C)(3)	49810	CF CARE CENTER	1 Robert Wood Johnson Place
University of Cincinnati Physicians Company
231 Albert Sabin Way	Cincinnati	OH	452670564	311405915	501(C)(3)	50510	CF CARE CENTER	Mail Slot 555
University of Florida
PO Box 115500	Gainesville	FL	32611	596002052	501(C)(3)	82167	CF CARE CENTER	MSB 60048
University of Florida
PO Box 115500	Gainesville	FL	32611	596002052	501(C)(3)	27000	ADULT CARE
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501(C)(3)	500000	RESEARCH CENTERS
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501(C)(3)	118410	CF CARE CENTER	B 5 Jessup Hall
University of Iowa
Grant Accounting Office	Iowa City	IA	52242	426004813	501(C)(3)	97200	RESEARCH	B 5 Jessup Hall
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard MSN 1039	Kansas City	KS	661032937	481108830	501(C)(3)	75940	CF CARE CENTER	B 5 Jessup Hall
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard MSN 1039	Kansas City	KS	661032937	481108830	501(C)(3)	27000	ADULT CARE
University of Kentucky Research Foundation
Kentucky CF Clinic J424	Lexington	KY	405360284	616033693	501(C)(3)	115010	CF CARE CENTER
University of Louisville Research Foundation Inc
Office of Grants Management	Louisville	KY	40292	611029626	501(C)(3)	88820	CF CARE CENTER	740 South Limestone
University of Maryland - College Park
3112 Lee Building	College Park	MD	207425141	526002033	501(C)(3)	43200	PILOT STUDIES	Jouett Hall Belknap Campus
University of Massachusetts Medical Center
55 Lake Avenue	Worcester	MA	10655	043167352	501(C)(3)	75000	RESEARCH
University of Massachusetts Medical Center
55 Lake Avenue	Worcester	MA	10655	043167352	501(C)(3)	69440	CF CARE CENTER
University of Miami
Pediatric/Pulmonary Division	Miami	FL	33137	590624458	501(C)(3)	61530	CF CARE CENTER
University of Mississippi Medical Center
2500 North State Street	Jackson	MS	392164505	646008520	501(C)(3)	54750	CF CARE CENTER	1601 NW 12th Avenue
University of Mississippi Medical Center
2500 North State Street	Jackson	MS	392164505	646008520	501(C)(3)	27000	ADULT CARE
University of Montana - Missoula
Office of Research Sponsored Prog	Missoula	MT	598124824	816001713	501(C)(3)	29037	RESEARCH STUDIES
University of Nebraska Medical Center
Service Building	Omaha	NE	681987835	470049123	501(C)(3)	132230	CF CARE CENTER	202 University Hall
University of New Mexico Health Sciences Center
Controllers Office	Albuquerque	NM	871315041	856000642	501(C)(3)	57233	CF CARE CENTER	985100 Nebraska Medical Center
University of New Mexico Health Sciences Center
Controllers Office	Albuquerque	NM	871315041	856000642	501(C)(3)	27000	ADULT CARE	Health Sciences and Services Bldg
University of Oklahoma Health Sciences Center
PO Box 26901	Oklahoma City	OK	73190	736017987	501(C)(3)	112250	CF CARE CENTER	Health Sciences and Services Bldg
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501(C)(3)	459431	RESEARCH CENTERS
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501(C)(3)	97200	RESEARCH
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501(C)(3)	91600	RESEARCH STUDIES
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501(C)(3)	49750	TRAINING
University of Rochester
1325 Mt Hope Avenue	Rochester	NY	14642	160743209	501(C)(3)	88090	CF CARE CENTER
University of Rochester
1325 Mt Hope Avenue	Rochester	NY	14642	160743209	501(C)(3)	21600	QUALITY IMPROVEMENT	Suite 260
University of South Carolina Research Foundation
901 Sumter Street	Columbia	SC	29208	570967350	501(C)(3)	39000	CF CARE CENTER	Suite 260
University of South Florida
Department of Pediatrics	Tampa	FL	33606	593102112	501(C)(3)	27370	CF CARE CENTER	Suite 501
University of Southern California
USC Contracts and Grants	Los Angeles	CA	900339002	951642394	501(C)(3)	82750	CF CARE CENTER	17 Davis Boulevard Suite 200
University of Southern California
USC Contracts and Grants	Los Angeles	CA	900339002	951642394	501(C)(3)	27000	ADULT CARE	1540 Alcazar Street
University of Tennessee
62 S Dunlap	Memphis	TN	38163	626001636	501(C)(3)	79200	CF CARE CENTER	1540 Alcazar Street
University of Tennessee
62 S Dunlap	Memphis	TN	38163	626001636	501(C)(3)	75000	RESEARCH
University of Tennessee Medical Center
1940 Alcoa Hwy	Knoxville	TN	37920	311626179	501(C)(3)	19040	CF CARE CENTER
University of Texas Health Center at Tyler
11937 US Hwy 271	Tyler	TX	75708	756001354	501(C)(3)	33860	CF CARE CENTER	Suite E-110
University of Texas Health Science Center Houston
P O Box 20036	Houston	TX	772250036	741761309	501(C)(3)	97200	RESEARCH
University of Toledo - Health Science Campus
Research Sponsored Programs	Toledo	OH	436142595	346401483	501(C)(3)	75000	RESEARCH
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501(C)(3)	207430	CF CARE CENTER	3000 Arlington Avenue
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501(C)(3)	36922	PILOT STUDIES
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	501(C)(3)	500000	RESEARCH CENTERS
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	501(C)(3)	267900	RESEARCH
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	501(C)(3)	80950	CF CARE CENTER
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	501(C)(3)	43200	PILOT STUDIES
University of Washington
4333 Brooklyn Avenue NE Box 359472	Seattle	WA	981959472	916001537	501(C)(3)	41574	RESEARCH STUDIES
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	501(C)(3)	187620	CF CARE CENTER
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	501(C)(3)	43200	PILOT STUDIES
Vanderbilt University
PO Box 30195	Nashville	TN	372410195	620476822	501(C)(3)	179186	CF CARE CENTER
Via Christi Regional Medical Center CF Clinic
3311 East Murdock Street	Wichita	KS	67218	481172106	501(C)(3)	49150	CF CARE CENTER
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	232842506	546001758	501(C)(3)	54061	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	271571064	223849199	501(C)(3)	46860	CF CARE CENTER
Washington University
Campus Box 1034	St Louis	MO	631121408	430653611	501(C)(3)	219335	CF CARE CENTER
Washington University
Campus Box 1034	St Louis	MO	631121408	430653611	501(C)(3)	21600	QUALITY IMPROVEMENT	700 Rosedale Avenue
Wayne State University
Grants Contracts Office III	Detroit	MI	48201	386028425	501(C)(3)	45510	CF CARE CENTER	700 Rosedale Avenue
West Virginia University Research Corporation
West Virginia University	Morgantown	WV	265066001	550665758	501(C)(3)	57900	CF CARE CENTER	Research and Sponsored Programs
Yale University
47 College Street Suite 203	New Haven	CT	065208047	060646973	501(C)(3)	68250	TRAINING	PO Box 6001
Yale University
47 College Street Suite 203	New Haven	CT	065208047	060646973	501(C)(3)	60420	CF CARE CENTER

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	175	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	9	TotalNbrOfOtherOrganizations

Form990 Schedule I Part III Form990ScheduleIPartIII (2 entries)

Type Of GrantTypeOfGrant	Number Of RecipientsNumberOfRecipients	Amount Of Cash GrantAmountOfCashGrant
PATIENT ASSISTANCE PROGRAM	958	1647530
FELLOWSHIPS	6	22890

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.	Identifier
Return Reference	PART I, LINE 2	ReturnReference
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLES OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.	Explanation

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	X	CompensationCommittee
Independent Consultant	X	IndependentConsultant
Form990 Of Other Organizations	X	Form990OfOtherOrganizations
Written Employment Contract	X	WrittenEmploymentContract
Compensation Survey	X	CompensationSurvey
Board Or Committee Approval	X	BoardOrCommitteeApproval
Severance Payment	false	SeverancePayment
Supplemental Nonqual Retire Plan	true	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	false	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	false	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	false	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	false	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	false	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	true	AnyNonFixedPayments
Initial Contract Exception	false	InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII (11 entries)

TitleTitle	Base Compensation Filing OrgBaseCompensationFilingOrg	Comp Based On Related OrgsCompBasedOnRelatedOrgs	Bonus Filing OrgBonusFilingOrg	Bonus Related OrgsBonusRelatedOrgs	Other Compensation Filing OrgOtherCompensationFilingOrg	Other Compensation Related OrgsOtherCompensationRelatedOrgs	Deferred Comp Filing OrgDeferredCompFilingOrg	Deferred Comp Related OrgsDeferredCompRelatedOrgs	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg	Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs	Total Compensation Filing OrgTotalCompensationFilingOrg	Total Compensation Related OrgsTotalCompensationRelatedOrgs	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg	Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs
ROBERT J BEALL PHD
PRESIDENT & CEO	363683	183806	72046	35485	233832	110576	68745	21252	22675	0	760981	351119	131320	64680
C RICHARD MATTINGLY
EXEC. VP, COO & SECRETARY	376534	0	67369	0	22147	0	149819	0	19075	0	634944	0
PRESTON CAMPBELL MD
EXECUTIVE VP OF MEDICAL AFFAIR	243354	125512	42187	20778	15891	5610	92725	33064	29840	0	423997	184964
VERA H TWIGG
SR. VP & CFO	272799	0	44485	0	18681	0	47143	0	30640	0	413748	0
DANIEL KLEIN
SR. VP OF CFFP	229958	0	60608	0	121377	0	30596	0	4999	0	447538	0
ANN PALMER
SR. VP OF FIELD MANAGEMENT	204225	0	17900	0	1933	0	28268	0	26840	0	279166	0
JAMES STONE
VP OF CYSTIC FIBROSIS SERVICES	132186	0	92450	0	416	0	22665	0	7819	0	255536	0
DAVID MCLOUGHLIN
SR. VP OF OPERATIONS	190981	47745	18782	4696	981	245	30596	0	27140	0	268480	52686
GREGORY AUGUST
CHIEF INFORMATION OFFICER	189503	0	19142	0	411	0	26506	0	25640	0	261202	0
GLEN GOLDMARK
VP OF HUMAN RESOURCES	183846	0	19723	0	2612	0	25804	0	19675	0	251660	0
AMY DEMARIA
SR. VP OF COMMUNICATIONS	185835	0	18309	0	389	0	25265	0	8655	0	238453	0

Form990 Schedule J Part III Form990ScheduleJPartIII (2 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN	PART I, LINE 4B AND 7	Part I, Line 4b: Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below. Part I, Line 7: Several individuals listed in Form 990, Part VII, Section A, line 1a, (who are identified in Part II, below) participated in the Foundation's Incentive Compensation Plan, from which non-fixed payments not described in lines 5 and 6 were paid. The Incentive Compensation Plan pays non-fixed payments subject to, and based on, the achievement of annual performance objectives established in advance by the Compensation Committee of the Board of Trustees. In addition, the Incentive Compensation Plan pays non-fixed payments that relate to a three-year performance period, subject to, and based on, the achievement of long-term performance objectives established in advance by the Compensation Committee of the Board.
COMPENSATION	PART II	Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $348,608, 401(k) bonus - $15,075; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $72,046; (B)(iii) Other Reportable Compensation: health insurance benefit - $3,349, automobile allowance - $4,824, other benefits including taxable general organization group term life insurance premium - $17,703, SERP account that became vested, of which $131,320 was previously reported (3) - $207,956; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $43,149; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $13,177, employee contribution to flexible spending account benefit - $4,500, employee contribution to general organization health plan benefit - $4,998 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $176,381, 401(k) bonus - $7,425; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $35,485; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,649, automobile allowance - $2,376, other benefits including general organization group term life insurance premium - $4,125, SERP account that became vested, of which $64,680 was previously reported (3) - $102,426; (C) Deferred Compensation: long-term incentive plan benefit (6) - $21,252; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $243,354; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $42,187; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premium - $4,501, Section 457(b) Plan (5) - $11,390; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $31,763, SERP (4) - $35,366; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $18,366, employee contribution to flexible spending account benefit - $4,200, employee contribution to general organization health plan benefit - $7,274 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $125,512; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $20,778; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,610; (C) Deferred Compensation: long-term incentive plan benefit (6) - $15,645, SERP (4) - $17,419; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $376,534; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $67,369; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $17,000; other benefits including taxable general organization group term life insurance premium - $5,147; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $47,982, SERP (4) - $76,241; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $13,177, employee contribution to flexible spending account benefit - $900, employee contribution to general organization health plan benefit - $4,998 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $272,799; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $44,485; (B)(iii) Other Reportable Compensation: taxable general organization group term life insurance premium - $1,681, Section 457(b) Plan (5) - $17,000; (C) Deferred Compensation: retirement benefit (2) - $25,596, long-term incentive plan benefit (6) - $19,926, SERP (4) - $ 1,621; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $18,366, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $7,274 Cystic Fibrosis Foundation - Headquarters. (A) Name: D. Klein; (B)(i) Base Compensation: base salary - $229,958; (B)(ii) Bonus & Incentive Compensation: annual incentive plan benefit (1) - $27,450 related to plan year 2011, $33,158 related to 2012 plan year; (B)(iii) Other Reportable Compensation: retention bonus (7) - $118,040; taxable general organization group term life insurance premium - $3,337; (C) Deferred Compensation: retirement benefit (2) - $25,596; SERP (4) - $5,000; (D) Nontaxable Benefits: employee contribution to flexible spending account benefit - $4,999 (1) This is an award subject to, and based on, achievement of annual performance standards established in advance by the Compensation Committee of the Board. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2012 Plan Year. (3) A. A portion of the total SERP account that became vested relates to employer contributions to the SERP that were earned by the participant and accrued during 2010 and 2011. As required, those SERP contributions from prior years were reported as "Retirement and other Deferred Compensation" on the applicable prior years' Form 990s and therefore (as required by the instructions) are double-reported here. The remaining portion of the total SERP account that became vested relates to employer contributions to the SERP that were earned by the participant during 2012. B. SERP interests would have been forfeited by the participant if the participant voluntarily terminated employment prior to December 31, 2012. C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under those arrangements are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining the vesting date designated by CFF (which is either a specified age or number of years of service, depending on the participant). C. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. For example, under current law, interests under SERPs are reportable as taxable compensation when they become vested, even if those amounts are not yet payable to the participant (and even if those amounts are never paid to the participant). E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. For certain specified participants, an independent actuary developed the contribution formula pursuant to which SERP contribution amounts are determined. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $17,000). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards that relate to a three-year performance period, subject to, and based on, achievement of performance objectives established in advance by the Compensation Committee of the Board. Each year, a new three-year performance period begins. As required by the Form 990 instructions, the amounts reported on this Form 990 reflect an estimate of the portion of each award that the executive accrued under the Plan for performance in 2012 (i.e., with respect to the 2011-2013 and the 2012-2014 performance peri

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (9 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
OTHER PROGRAM SERVICES	PART III, LINE 4D	Community Services - The Cystic Fibrosis Foundation provides year-round efforts to educate, inform and empower individuals with CF and their families about the latest developments in treatment and care. The programs are designed to help the general public in the detection of the disease by providing a referral service and handling inquiries concerning cystic fibrosis. Approximately 27,800 people with CF were served in 2012, including approximately 917 individuals who were newly diagnosed.
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 11B (PAGE 6 CORE FORM)	The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities. In all cases the Cystic Fibrosis Foundation Board of Trustees receives a complete copy of the final Form 990 before it is filed.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM)	A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2012 and had no conflicts of interest as defined by the policy.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B (PAGE 6 CORE FORM)	The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of assuring the development of the means to cure and control CF and improving the quality of life for those with the disease. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was last used in 2012 to establish compensation for the following officers or positions: President & CEO Executive Vice President & COO Executive Vice President for Medical Affairs Senior Vice President & CFO Senior Vice President - CFFP
PUBLIC INSPECTION	PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM)	Forms 1023 and 990-T for the Organization were available on its website, CFF.org and the Organization's website provided a direct link to its Form 990 on Guidestar.org. The Foundation's governing documents (Bylaws and Articles of Incorporation) were available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents was also available on the Foundation's website, www.cff.org during 2012. The Board and Officer Conflict of Interest Policy and the audited financial statements were available on the Foundation's website, www.cff.org during 2012.
OTHER CHANGE IN NET ASSETS	FORM 990, PART XI, LINE 5	GAIN ON SALE OF PHARMACY - 20% RETAINED INTEREST 5.642,139 OTHER CHANGES IN NET ASSETS - CHANGE IN EQUITY IN FORMER SUBSIDIARY (CFS) -22,427,205 ----------- TOTAL TO PART XI, LINE 5 -16,785,066
COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, KEY EMPLOYEES, ETC	FORM 990, PART VII, SECTION A	NAME AND TITLE MICHAEL L. BEATTY, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE J. TAYLOR CRANDALL, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD L. DANDURAND, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD J. GRAY, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE BARRY M. GUMP, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE SUSAN L. HOOK, VICE CHAIR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, CHAIR AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 8 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHAD T. MOORE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE DAVID A. MOUNT, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE GARY B. SABIN, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHRISTY L. SHAFFER PHD. TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 8 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 6 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHARLES J. THAYER, TREASURER AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE AMY S. WEINBERG, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE PAUL W. WHETSELL, VICE CHAIRMAN AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE KC BRYAN WHITE, TRUSTEE AVG HRS WORKED 3 HRS AVG HRS WORKED - RELATED 3 HRS POSITION INDIVIDUAL TRUSTEE REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D., PRESIDENT AND CEO AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION INDIVIDUAL TRUSTEE & OFFICER REPORTABLE COMP FROM THE ORG 669,561 REPORTABLE COMP FROM RELATED ORG 329,867 EST. AMT OF OTHER COMP FROM THE ORG 112,672 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP, COO & SECRETARY AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 466,050 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 168,894 NAME AND TITLE PRESTON CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 36 HRS AVG HRS WORKED - RELATED 24 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 301,431 REPORTABLE COMP FROM RELATED ORG 151,900 EST. AMT OF OTHER COMP FROM THE ORG 155,630 NAME AND TITLE VERA H. TWIGG, SR. VP & CFO AVG HRS WORKED 50 HRS AVG HRS WORKED - RELATED 10 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 335,965 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 77,783 NAME AND TITLE DANIEL KLEIN, SR VP - CFFP AVG HRS WORKED 50 HRS POSITION KEY EMPLOYEE REPORTABLE COMP FROM THE ORG 411,943 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 35,596 NAME AND TITLE ANN PALMER, SR VP OF FIELD MANAGEMENT AVG HRS WORKED 50 HRS POSITION KEY EMPLOYEE REPORTABLE COMP FROM THE ORG 224,058 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 55,108 NAME AND TITLE JAMES STONE, VP OF CFS AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 225,052 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 30,484 NAME AND TITLE DAVID MCLOUGHLIN, SR VP OF OPERATIONS AVG HRS WORKED 40 HRS AVG HRS WORKED - RELATED 10 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 210,744 REPORTABLE COMP FROM RELATED ORG 52,686 EST. AMT OF OTHER COMP FROM THE ORG 57,736 NAME AND TITLE GREGORY AUGUST, CIO AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 209,057 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 52,146 NAME AND TITLE GLEN GOLDMARK, VP OF HUMAN RESOURCES AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 206,181 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 45,479 NAME AND TITLE AMY DEMARIA, SR VP OF COMMUNICATIONS AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 204,533 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 33,919 TOTAL REPORTABLE COMP FROM THE ORG 3,464,575 TOTAL REPORTABLE COMP FROM RELATED ORG 534,453 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 825,446
UNRESTRICTED NET ASSETS - BOARD DESIGNATED	FORM 990, PART X, LINE 27	The Foundation's unrestricted net assets total $330,610,330 as of December 31, 2012. Of this amount, the Foundation's Board of Trustees has designated $153,000,000 to be used for drug discovery and development programs.
TRANSACTIONS WITH RELATED ORGANIZATIONS	FORM 990, SCHEDULE R, PART V	On December 6, 2012, the Foundation completed its sale of pharmacy operations. Under the terms of the sale agreement, the purchaser, an unrelated third party, acquired 80% of the outstanding membership interests of Cystic Fibrosis Foundation Pharmacy, LLC (CFFP). The Foundation retained a 20% non-controlling minority interest in CFFP totaling $7,286,043. The gain on the sale of the 80% interest (net of sale expenses) was $21,380,310, and is reported in Part VIII, Line 7c (ii). The gain associated with the Foundation's 20% retained interest in CFFP was $5,642,139. This amount is reported in part XI, line 5 - other changes in net assets. Subsequent to the sale, the Foundation no longer controls CFFP and does not exercise significant influence over CFFP operations. CFFP is the owner of all the outstanding shares of common stock of Cystic Fibrosis Services, Inc (CFS). Due to the sale of its controlling interest in CFFP, the Foundation's ownership and control of CFS also terminated and was transferred to the purchaser as part of the sale transaction. Subsequent to the sale, CFFP became a holding company that includes two independent operating entities: CFS and Pharma Dynamics. Established in 1988, CFS is a full-service specialty pharmacy specializing in cystic fibrosis medications, patient advocacy and reimbursement support. Pharma Dynamics is a new entity created by the purchaser that provides call center services related to cystic fibrosis drugs. Responses at Schedule R Part V (1 of 2) #2 (1), (4) and (5) and Part V ( 2 of 2) # 2 (2), (3), (4) AND (5) relate to transactions that occurred between the Foundation (including its former disregarded entity, CFFP) and CFS prior to the sale. The $10,000,000 note payable referenced on Part V (2 of 2) #(4) was also repaid in full by CFS prior to the sale.

Schedule R IRS990ScheduleR

Form990 Schedule R Part I Form990ScheduleRPartI (2 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EINEIN	Primary ActivitiesPrimaryActivities	Legal Domicile StateLegalDomicileState	Total IncomeTotalIncome	EOY AssetsEOYAssets	Business Name Line1DirectControllingEntityName/BusinessNameLine1
CYSTIC FIBROSIS FOUNDATION PHARMACY LLC
6931 ARLINGTON RD	BETHESDA	MD	20814	510636432	PROGRAM MGT	DE	28477305	0	NA
cystic fibrosis patient assistance fdn
6931 arlington rd	bethesda	MD	20814	900350985	patient asst	DE	2200404	3882072	na

Form990 Schedule R Part II Form990ScheduleRPartII (2 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EINEIN	Primary ActivitiesPrimaryActivities	Legal Domicile StateLegalDomicileState	Exempt Code SectionExemptCodeSection	Public Charity StatusPublicCharityStatus	Business Name Line1DirectControllingEntityName/BusinessNameLine1	Controlled OrgControlledOrg
cystic fibrosis foundation therapeutics
6931 ARLINGTON RD	BETHESDA	MD	20814	912059167	RESEARCH	MD	501(c)(3)	11A	CFF-HQ	true
CYSTIC FIBROSIS FOUNDATION GROUP
6931 ARLINGTON RD	BETHESDA	MD	20814	136161105	EDUCATION	DE	501(c)(3)	7	cfF-hq	true

Form990 Schedule R Part IV Form990ScheduleRPartIV

Name Of Related Org NameOfRelatedOrg

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS SERVICES INC	BusinessNameLine1

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON RD	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
EIN	521850490	EIN
Primary Activity	PHARMACY	PrimaryActivity
Legal Domicile State	MD	LegalDomicileState

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF PHARMACY	BusinessNameLine1

Field	Value	IRS element (for citing)
Type Of Entity	C	TypeOfEntity
Share Of Total Income	14342610	ShareOfTotalIncome
Share Of EOY Assets	0	ShareOfEOYAssets
Controlled Org	false	ControlledOrg

Field	Value	IRS element (for citing)
Receipt Of Int Ann Rents Royalties	true	ReceiptOfIntAnnRentsRoyalties
Gift Grant Or Cap Contr To Other Org	true	GiftGrantOrCapContrToOtherOrg
Gift Grant Or Cap Contr Fr Other Org	true	GiftGrantOrCapContrFrOtherOrg
Loans Or Guarantees To Other Org	true	LoansOrGuaranteesToOtherOrg
Loans Or Guarantees From Other Org	false	LoansOrGuaranteesFromOtherOrg
Dividends Related Organization	true	DividendsRelatedOrganization
Sale Of Assets To Other Org	false	SaleOfAssetsToOtherOrg
Purchase Of Assets From Other Org	false	PurchaseOfAssetsFromOtherOrg
Exchange Of Assets	false	ExchangeOfAssets
Rental Of Facilities To Other Orgs	false	RentalOfFacilitiesToOtherOrgs
Rental Of Facilities Fr Other Orgs	false	RentalOfFacilitiesFrOtherOrgs
Perform Of Services For Other Orgs	true	PerformOfServicesForOtherOrgs
Perform Of Services By Other Orgs	false	PerformOfServicesByOtherOrgs
Sharing Of Facilities	true	SharingOfFacilities
Sharing Of Paid Employees	true	SharingOfPaidEmployees
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrg
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrg
Other Transfer To Other Org	true	OtherTransferToOtherOrg
Other Transfer From Other Org	true	OtherTransferFromOtherOrg

Transactions Related Orgs Table TransactionsRelatedOrgsTable (11 entries)

Transaction TypeTransactionType	Amount InvolvedAmountInvolved	Method Of Amt DeterminationMethodOfAmtDetermination
CYSTIC FIBROSIS SERVICES INC
A(I)	15663	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
C	86638239	FMV
CYSTIC FIBROSIS FOUNDATION GROUP
c	92063985	FMV
CYSTIC FIBROSIS SERVICES INC
f	6037874	FMV
CYSTIC FIBROSIS SERVICES INC
L	9360900	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
N	333740	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
O	1852879	FMV
CYSTIC FIBROSIS SERVICES INC
S	16947249	FMV
CYSTIC FIBROSIS SERVICES INC
B	38912756	FMV
CYSTIC FIBROSIS SERVICES INC
D	10000000	FMV
CYSTIC FIBROSIS SERVICES INC
R	302969	FMV

Form990 Schedule R Part VII Form990ScheduleRPartVII

Field	Value	IRS element (for citing)
Identifier	TRANSACTIONS WITH RELATED ORGANIZATIONS	Identifier
Return Reference	FORM 990, SCHEDULE R, PART V	ReturnReference
Explanation	ON DECEMBER 6, 2012 THE FOUNDATION COMPLETED ITS SALE OF PHARMACY OPERATIONS. SEE SCHEDULE O FOR MORE INFORMATION ABOUT THIS TRANSACTION.	Explanation