TURNER SYNDROME FOUNDATION INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: TURNER SYNDROME FOUNDATION INC (EIN 27-1409942)
Tax period: 2012-07-01 to 2013-06-30
Filed: 2013-11-14
IRS object ID: 201323189349308227
Schema version: 2012v2.0
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-11-14T15:35:13-08:00	Timestamp
Tax Period End Date	2013-06-30	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	CARBONELLA & CO LLP	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	4300 HYLAN BLVD	AddressLine1
City	STATEN ISLAND	City
State	NY	State
ZIP Code	103126505	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-07-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	271409942	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	TURNER SYNDROME FOUNDATION INC	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	TURN	NameControl
Phone	8005944585	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	15 MOUNT DR	AddressLine1
City	HOLMDEL	City
State	NJ	State
ZIP Code	07733	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	LAURA FASCIANO	Name
Title	PRESIDENT	Title
Phone	8005944585	Phone
Date Signed	2013-11-08	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	GERARD CARBONELLA	Name
Phone	7182271435	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	LAURA FASCIANO	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	15 MOUNT DR	AddressLine1
City	HOLMDEL	City
State	NJ	State
ZIP Code	07733	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	247488	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
Organization501c3	X	Organization501c3
Web Site	N/A	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	2009	YearFormation
State Legal Domicile	NJ	StateLegalDomicile
Activity Or Mission Description	THE GOAL OF THE TURNER SYNDROME FOUNDATION (TSF) IS TO SUPPORT RESEARCH INITIATIVES AND FACILITATE EDUCATION PROGRAMS TO INCREASE PROFESSIONAL AWARENESS AND ENHANCE MEDICAL CARE OF THOSE AFFECTED BY TURNER SYNDROME.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	9	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	8	NbrIndependentVotingMembers
Total Nbr Employees	3	TotalNbrEmployees
Total Nbr Volunteers	12	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	158672	ContributionsGrantsPriorYear
Contributions Grants Current Year	234235	ContributionsGrantsCurrentYear
Program Service Revenue CY	0	ProgramServiceRevenueCY
Investment Income Current Year	0	InvestmentIncomeCurrentYear
Other Revenue Prior Year	7416	OtherRevenuePriorYear
Other Revenue Current Year	3805	OtherRevenueCurrentYear
Total Revenue Prior Year	166088	TotalRevenuePriorYear
Total Revenue Current Year	238040	TotalRevenueCurrentYear
Grants And Similar Amnts CY	0	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	50297	SalariesEtcPriorYear
Salaries Etc Current Year	83814	SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	0	TotalFundrsngExpCurrentYear
Other Expense Prior Year	103366	OtherExpensePriorYear
Other Expenses Current Year	136705	OtherExpensesCurrentYear
Total Expenses Prior Year	153663	TotalExpensesPriorYear
Total Expenses Current Year	220519	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	12425	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	17521	RevenuesLessExpensesCY
Total Assets BOY	24246	TotalAssetsBOY
Total Assets EOY	41767	TotalAssetsEOY
Total Liabilities EOY	0	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	24246	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	41767	NetAssetsOrFundBalancesEOY
Mission Description	THE GOAL OF THE TURNER SYNDROME	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	161085	Expense
Revenue	169999	Revenue
Description	THE TURNER SYNDROME FOUNDATION STRIVES TO INCREASE THE AWARENESS OF SYMPTONS RELATED TO TURNER SYNDROME AND HIGHLIGHT TREATMENTS AVAILABLE TO THOSE AFFECTED BY TURNER SYNDROME. THE FOUNDATION PARTICIPATES IN MAJOR PEDIATRIC MEDICINE, PEDIATRIC ENDOCRINOLOGY, AND DISABILITY CONFERENCES WHERE INFORMATION ABOUT TURNER SYNDROME DISEASE IS SHARED WITH GENERAL PRACTITIONERS AND SPECIALISTS.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	31700	Expense
Revenue	11500	Revenue
Description	THE TURNER SYNDROME FOUNDATION STRIVES TO EDUCATE NOT ONLY INDIVIDUALS AFFECTED BY TURNER SYNDROME, BUT ALSO PRIMARY CARE PHYSICIANS. THE FOUNDATIONS EDUCATION PROGRAMS AND WORKSHOPS TRANSLATE THE PRACTICE OF CLINICAL SCIENCE INTO USEFUL AND TRANSFORMATIVE INFORMATION TO BENEFIT HEALTHCARE PROVIDERS, EDUCATORS, PATIENTS AND THEIR FAMILIES.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	20545	Expense
Revenue	255	Revenue
Description	THE TURNER SYNDROME FOUNDATION ENCOURAGES FURTHER RESEARCH AND DEVELOPMENT BY PROMOTING AWARENESS AND EDUCATION. THE FOUNDATION SUPPORTS SCIENTIFIC RESEARCH INITIATIVES BY ADVOCATING THE NEED FOR INCREASED SCIENTIFIC ACTIVITY.	Description

Field	Value	IRS element (for citing)
Total Program Service Expense	213330	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	false	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	false	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	false	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	false	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	false	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	false	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	false	GrantsToOrganizations
Grants To Individuals	false	GrantsToIndividuals
Schedule J Required	false	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	0	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	true	ComplianceWithBackupWitholding
Number Of Employees	3	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	true	QuidProQuoContributions
Quid Pro Quo Disclosure	true	QuidProQuoDisclosure
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	9	NbrVotingGoverningBodyMembers
Number Independent Voting Members	8	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	false	LocalChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	false	CompensationProcessCEO
Compensation Process Other	false	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	LAURA FASCIANO	NamePerson
Telephone Number	8005944585	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	15 MOUNT DR	AddressLine1
City	HOLMDEL	City
State	NE	State
ZIP Code	07733	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (10 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	OfficerOfficer	Highest Compensated EmployeeHighestCompensatedEmployee	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation
LAURA FASCIANO
PRESIDENT	40.00	X	X	X	70000	0	0
GARY SULLIVAN
TREASURER	10.00	X	X		0	0	0
HELEN POLISE
VICE PRESIDENT	10.00	X	X		0	0	0
SUZANNE BOUSQUET
SECRETARY	10.00	X	X		0	0	0
BEVERLY DALEY
DIRECTOR	10.00	X	X		0	0	0
DONNA VILLAVICENCIO
VICE PRESIDENT	10.00	X	X		0	0	0
DANIELLE MOORE
DIRECTOR	5.00	X			0	0	0
DAWN PETR
DIRECTOR	5.00	X			0	0	0
ROSEMARY SCALES
DIRECTOR	5.00	X			0	0	0
RICHARD CAROLAN
DIRECTOR	5.00	X			0	0	0

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	70000	TotalReportableCompFromOrg
Formers Listed	false	FormersListed
Total Comp GT150 K	false	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources
All Other Contributions	234235	AllOtherContributions
Total Contributions	234235	TotalContributions
Gross Income Fundraising Events	13253	GrossIncomeFundraisingEvents
Fundraising Direct Expenses	9448	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	3805	TotalRevenueColumn
Exclusion	$3,805	ExclusionAmount

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	238040	TotalRevenueColumn
Exclusion	$3,805	ExclusionAmount

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	70000	Total
Program Services	66500	ProgramServices
Management And General	3500	ManagementAndGeneral
Fundraising	0	Fundraising

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	2287	Total
Program Services	2287	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	11527	Total
Program Services	10951	ProgramServices
Management And General	576	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	2150	Total
Program Services	0	ProgramServices
Management And General	2150	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	1667	Total
Program Services	1584	ProgramServices
Management And General	83	ManagementAndGeneral
Fundraising	0	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	27003	Total
Program Services	26140	ProgramServices
Management And General	863	ManagementAndGeneral
Fundraising	0	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	3775	Total
Program Services	3775	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	2205	Total
Program Services	2205	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	7799	Total
Program Services	7799	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	4943	Total
Program Services	4943	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral
BANK CHARGES	1296	1279	17
REGISTRATION FEES	12763	12763	0
PRINTING	17658	17658	0
SUPPLIES	5696	5696	0

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	49750	Total
Program Services	49750	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	220519	Total
Program Services	213330	ProgramServices
Management And General	7189	ManagementAndGeneral
Fundraising	0	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	24246	BOY
EOY	37742	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
EOY	1150	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
EOY	2875	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	24246	BOY
EOY	41767	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Field	Value	IRS element (for citing)
Do Not Follow SFAS117	X	DoNotFollowSFAS117

Retained Earnings Endowment Etc RetainedEarningsEndowmentEtc

Field	Value	IRS element (for citing)
BOY	24246	BOY
EOY	41767	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	24246	BOY
EOY	41767	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	24246	BOY
EOY	41767	EOY

Field	Value	IRS element (for citing)
Reconcilation Revenue Expenses	17521	ReconcilationRevenueExpenses
Method Of Accounting Cash	X	MethodOfAccountingCash
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	false	FSAudited
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus3 Years	25199	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	70597	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	158798	CurrentTaxYearMinus1Year
Current Tax Year	234235	CurrentTaxYear
Total	488829	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus3 Years	25199	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	70597	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	158798	CurrentTaxYearMinus1Year
Current Tax Year	234235	CurrentTaxYear
Total	488829	Total

Field	Value	IRS element (for citing)
Public Support Total170	488829	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Total	0	Total

Field	Value	IRS element (for citing)
Total Support	488829	TotalSupport
First5 Years170	X	First5Years170
Public Support Pertcentage170	0	PublicSupportPertcentage170
Public Support Total509	0	PublicSupportTotal509
Public Support Percentage509	0	PublicSupportPercentage509
Investment Income Percentage	0	InvestmentIncomePercentage

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (4 entries)

IdentifierIdentifier	ExplanationExplanation
Pt VI, Line 11b	DISTRIBUTED AND REVIEWED INDEPENDENTLY
Pt VI, Line 12c	DISCUSSED AT REGULAR MEETINGS
Pt VI, Line 19	CONTAINED WITH ALL LITERATURE
Form 990, Part IX, Line 24f	TELEPHONE EXPENSE 2551. 2551. 0. 0. POSTAGE EXPENSE 1813. 1813. 0. 0. EXHIBITS 822. 822. 0. 0. LECTURERS 15504. 15504. 0. 0. PROMOTION AWARENESS 29060. 29060. 0. 0.