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MISSION MSA: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
MISSION MSA (EIN 74-2926378)
Tax period
2024-08-01 to 2025-07-31
Filed
2026-01-27
IRS object ID
202610279349301041
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-01-27T13:14:39-08:00ReturnTs
Tax Period End2025-07-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN362716239PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Barnes Givens & Barnes LtdBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1200 E Evergreen Ave Suite 117AddressLine1Txt
CityMount ProspectCityNm
State AbbreviationILStateAbbreviationCd
ZIP60056ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-08-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN742926378EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MISSION MSABusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlMISSBusinessNameControlTxt
Phone8667374999PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1540 N DEARBORN ST 10119AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60610ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJOSEPH LINDAHLPersonNm
Person TitleExecutive DirectorPersonTitleTxt
Signature2026-01-27SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonWilliam J BarnesPreparerPersonNm
PTINP00399658PTIN
Phone2247642442PhoneNum
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd

US Address USAddress

FieldValueIRS element (for citing)
Address Line1540 N DEARBORN ST 10119AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP606101087ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,254,154GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.MSACOALITION.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1999FormationYr
Legal Domicile StateTXLegalDomicileStateCd
Activity Or MissionTHE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Volunteers668TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$548,793PYContributionsGrantsAmt
CY Contributions Grants$1,152,738CYContributionsGrantsAmt
CY Program Service Revenue$415,279CYProgramServiceRevenueAmt
PY Investment Income$85,600PYInvestmentIncomeAmt
CY Investment Income$190,481CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$634,393PYTotalRevenueAmt
CY Total Revenue$1,758,498CYTotalRevenueAmt
PY Grants And Similar Paid$463,708PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$363,999CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
CY Salaries Comp Emp Bnft Paid$259,239CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$269,641CYTotalFundraisingExpenseAmt
PY Other Expenses$1,041,511PYOtherExpensesAmt
CY Other Expenses$1,972,801CYOtherExpensesAmt
PY Total Expenses$1,505,219PYTotalExpensesAmt
CY Total Expenses$2,596,039CYTotalExpensesAmt
PY Revenues Less Expenses-$870,826PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$837,541CYRevenuesLessExpensesAmt
Total Assets BOY$5,394,999TotalAssetsBOYAmt
Total Assets EOY$4,955,389TotalAssetsEOYAmt
Total Liabilities BOY$26,092TotalLiabilitiesBOYAmt
Total Liabilities EOY$162,189TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$5,368,907NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,793,200NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$849,760ExpenseAmt
Revenue$415,279RevenueAmt
DescPATIENT AND CAREGIVER EDUCATION AND SUPPORT, INCLUDING ANNUAL CONFERENCE, SUPPORT TELEPHONE LINE, DVDS AND PRINTED EDUCATIONAL MATERIAL.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$384,603ExpenseAmt
Grant$153,539GrantAmt
DescRESEARCH GRANT PROGRAM TO PINPOINT A CLEAR CAUSE OF MULTIPLE SYSTEM ATROPHY AND TO IDENTIFY A CURE OR EFFECTIVE THERAPIES THAT SLOW, HALT,OR REVERSE THE INSIDIOUS PROGRESSION OF MSA.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$322,728ExpenseAmt
DescCREATION AND PRODUCTION OF MATERIAL AND PROMOTIONAL ITEMS TO RAISE AWARENESS OF MULTIPLE SYSTEM ATROPHY IN THE MEDICAL AND LAY COMMUNITIES.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$238,799ExpenseAmt
DescCenters of excellenceDesc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$238,799TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses$1,795,890TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document6IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee0EmployeeCnt
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesYes (true)DelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJOSEPH LINDAHLPersonNm
Phone8667374999PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1540 N DEARBORN ST 101196AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP606101087ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
JOSEPH LINDAHL
Executive Dir.40.000.00Yes (X)$90,769$0$0
Liz Dyas
CHAIR20.000.00Yes (X)$0$0$0Yes (X)
Dawn Rodgers-Dexter
Treasurer15.000.00Yes (X)$0$0$0Yes (X)
Patricia Libby Thvedt
Secretary20.000.00Yes (X)$0$0$0Yes (X)
Pam Bower
Director2.000.00$0$0$0Yes (X)
Adrienne Glusman Marioles
Director2.000.00$0$0$0Yes (X)
Andre Cote Barch
Director2.000.00$0$0$0Yes (X)
Gary Troutman
Director2.000.00$0$0$0Yes (X)
William Billy Finnerty
Director2.000.00$0$0$0Yes (X)
Prof Dr Nadia Stefanova
Director2.000.00$0$0$0Yes (X)
Josh Launer
Director2.000.00$0$0$0Yes (X)
Amy Cooper
Director2.000.00$0$0$0Yes (X)
Kate Alivarius
Director2.000.00$0$0$0Yes (X)
Hasan Hasan
Director2.000.00$0$0$0Yes (X)
Paul Beach
Director2.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$90,769TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MCI USABusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line11660 International Dr Ste 600AddressLine1Txt
CityMCLEANCityNm
State AbbreviationVAStateAbbreviationCd
ZIP221024877ZIPCd
FieldValueIRS element (for citing)
ServicesManagementServicesDesc
Compensation$1,027,217CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
All Other Contributions$1,152,738AllOtherContributionsAmt
Total Contributions$1,152,738TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
Registrations$70,277$70,277
Sponsorships$345,002$345,002
FieldValueIRS element (for citing)
Total Program Service Revenue$415,279TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$148,297TotalRevenueColumnAmt
Exclusion$148,297ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$1,537,840SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$1,495,656SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$42,184SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$42,184TotalRevenueColumnAmt
Related Or Exempt Func Income$42,184RelatedOrExemptFuncIncomeAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Other Revenue Total$0OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,758,498TotalRevenueColumnAmt
Related Or Exempt Func Income$457,463RelatedOrExemptFuncIncomeAmt
Exclusion$148,297ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$268,999TotalAmt
Program Services$268,999ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$95,000TotalAmt
Program Services$95,000ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$90,769TotalAmt
Program Services$68,077ProgramServicesAmt
Management And General$9,077ManagementAndGeneralAmt
Fundraising$13,615FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$168,470TotalAmt
Program Services$126,352ProgramServicesAmt
Management And General$16,847ManagementAndGeneralAmt
Fundraising$25,271FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$1,027,217TotalAmt
Program Services$678,980ProgramServicesAmt
Management And General$198,623ManagementAndGeneralAmt
Fundraising$149,614FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$28,558TotalAmt
Management And General$28,558ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$253,464TotalAmt
Program Services$83,296ProgramServicesAmt
Management And General$143,826ManagementAndGeneralAmt
Fundraising$26,342FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$70,189TotalAmt
Program Services$32,998ProgramServicesAmt
Management And General$9,867ManagementAndGeneralAmt
Fundraising$27,324FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$180,629TotalAmt
Program Services$123,923ProgramServicesAmt
Management And General$52,746ManagementAndGeneralAmt
Fundraising$3,960FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$1,749TotalAmt
Management And General$1,749ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Patient support and education$300,093$283,624$11,437$5,032
Software and technology$94,099$41,516$35,705$16,878
Other$18,576$1,123$16,246$1,207
Awareness Outreach$10,730$8,149$2,581

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total-$12,503TotalAmt
Program Services-$16,147ProgramServicesAmt
Management And General$3,246ManagementAndGeneralAmt
Fundraising$398FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,596,039TotalAmt
Program Services$1,795,890ProgramServicesAmt
Management And General$530,508ManagementAndGeneralAmt
Fundraising$269,641FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$126,014BOYAmt
EOY$518,146EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$118,383BOYAmt
EOY$18,443EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$63,667EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$42,393BOYAmt
EOY$23,227EOYAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$5,108,209BOYAmt
EOY$4,331,906EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$5,394,999BOYAmt
EOY$4,955,389EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$26,092BOYAmt
EOY$97,931EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
EOY$64,258EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$26,092BOYAmt
EOY$162,189EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,714,065BOYAmt
EOY$2,093,854EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,654,842BOYAmt
EOY$2,699,346EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,368,907BOYAmt
EOY$4,793,200EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$5,394,999BOYAmt
EOY$4,955,389EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$837,541ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$261,834NetUnrlzdGainsLossesInvstAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,326,828CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,947,017CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,394,761CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,186,812CurrentTaxYearMinus1YearAmt
Current Tax Year$1,701,531CurrentTaxYearAmt
Total$7,556,949TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,326,828CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,947,017CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,394,761CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,186,812CurrentTaxYearMinus1YearAmt
Current Tax Year$1,701,531CurrentTaxYearAmt
Total$7,556,949TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$592,087SubstantialContributorsTotAmt
Public Support Total170$6,964,862PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$38,259CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$66,121CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$95,758CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$75,026CurrentTaxYearMinus1YearAmt
Current Tax Year$254,122CurrentTaxYearAmt
Total$529,286TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$70,000CurrentTaxYearMinus4YearsAmt
Total$70,000TotalAmt
FieldValueIRS element (for citing)
Total Support$8,156,235TotalSupportAmt
Public Support CY1700.85390PublicSupportCY170Pct
Public Support PY1700.63980PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$1,991,774TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$261,834NetUnrealizedGainsInvstAmt
Revenue Not Reported$261,834RevenueNotReportedAmt
Revenue Subtotal$1,729,940RevenueSubtotalAmt
Investment Expenses Not Incld$28,558InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$28,558RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$1,758,498TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,567,481TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,567,481ExpensesSubtotalAmt
Investment Expenses Not Incld2$28,558InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$28,558ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,596,039TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X : FIN48 FootnoteFormAndLineReferenceDesc
ExplanationTHE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL ANDSTATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIESRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BESUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF July 31, 2025 MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME.THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BYEVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENTS OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF July 31, 2025. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS.ExplanationTxt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
AsiaResearch$12,500wire
CanadaMSA RESEARCH$15,000Wire
EuropeMSA RESEARCH$57,500WIRE
Middle EastResearch$10,000wire
FieldValueIRS element (for citing)
Total Other Org4TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside USFormAndLineReferenceDesc
ExplanationTHE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THERESEARCH GRANTS.ExplanationTxt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (15 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Brigham and Womens Hospital
75 Francis StBostonMA02115042312909501 c 3$7,500$0MSA Research
Emory University
599 Clifton Road NEAtlantaGA30322580566256501 c 3$7,500$0MSA Research
Massachusetts General Hospita
55 Fruit StBostonMS02114042697983501 c 3$7,500$0MSA Research
New York University
550 First AveNew YorkNY10016135562308501 c 3$10,170$0MSA Research
others under 5000 each
540 N DEARBORN ST 101196CHICAGOIL60610501 c 3$15,627$0MSA Research
Rush University Medical Cente
1620 W Harrison StChicagoIL60612362174823501 c 3$7,500$0MSA Research
University of Florida
1149 Newell DrGainsvilleFL32610596002052501 c 3$105,869$0MSA Research
University of Miami
1600 NW 10th AveMiamiFL33136590624458501 c 3$7,500$0MSA Research
University of North Carolina
104 Airport Dr Ste 2200Chapel HillNC27599566001393501 c 3$7,500$0MSA Research
University of Texas Southwest
5323 Harry Hines BlvdDallasTX75390756002868501 c 3$7,500$0MSA Research
University of Utah
27 S Mario Capecchi DrSalt Lake CityUT84113876000525501 c 3$7,500$0MSA Research
University of Virginia
1001 Emmet St NCharlottesvilleVA22903546001796501 c 3$7,500$0MSA Research
Virginia Commonwealth Univers
PO 843035RichmondVA23084546001758501 c 3$7,500$0MSA Research
Washington University
One Brookings DrSt LouisMO63130430653611501 c 3$7,500$0MSA Research
Yale University
367 Cedar StNew HavenCT06511060646973501 c 3$7,500$0MSA Research
FieldValueIRS element (for citing)
Total501c3 Org15Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationTHE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THE RESEARCH GRANTS.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section A, Line 3THE ORGANIZATION IS A PARTY TO AN AGREEMENT FOR OPERATIONS MANAGEMENT,FINANCE AND ACCOUNTING, FUNDRAISING, EVENTS MANAGEMENT, PUBLICATIONS,MEMBERSHIP SUPPORT AND COMMUNICATION SERVICES PROVIDED TO THE ORGANIZATIONBY MCI USA.
Form 990, Part VI, Section B, Line 11bTHE FORM 990 IS REVIEWED IN DETAIL BY THE TREASURER OF THE ORGANIZATION.THE FORM 990 IS THEN SENT TO ALL MEMBERS OF THE BOARD OF DIRECTORS FORREVIEW AND COMMENT PRIOR TO FILING.
Form 990, Part VI, Section B, Line 12cEACH BOARD MEMBER COMPLETES AND SIGNS A CONFLICT OF INTEREST QUESTIONNAIREEVERY YEAR.
Form 990, Part VI, Section C, Line 19THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTSAVAILABLE TO THE PUBLIC UPON REQUEST
Form 990, Part XII, Line 2cTHE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOROVERSIGHT FOR THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF ANINDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED DURING THE YEAR.