AMERICAN PARKINSON DISEASE ASSOC: Form 990, tax year 2011

View the entire original 990 at ProPublica ↗

Organization: AMERICAN PARKINSON DISEASE ASSOC (EIN 13-1962771)
Tax period: 2011-09-01 to 2012-08-31
Filed: 2013-04-12
IRS object ID: 201341039349300104
Schema version: 2011v1.5
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule G
Schedule I
Schedule J
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-04-12T09:36:20-07:00	Timestamp
Tax Period End Date	2012-08-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	POTTER & LAMARCA LLP	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	101 TYRELLAN AVE	AddressLine1
City	STATEN ISLAND	City
State	NY	State
ZIP Code	103092651	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2011-09-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	131962771	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	American Parkinson Disease Assoc	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	AMER	NameControl
Phone	7189818001	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	135 Parkinson Avenue	AddressLine1
City	Staten Island	City
State	NY	State
ZIP Code	10305	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	Leslie Chambers	Name
Title	President & CEO	Title
Date Signed	2013-04-12	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	Fred M LaMarca CPA	Name
Phone	7182278000	Phone

Field	Value	IRS element (for citing)
Tax Year	2011	TaxYear
Build TS	2016-02-25 16:41:14Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	Leslie Chambers	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	135 Parkinson Ave	AddressLine1
City	Staten Island	City
State	NY	State
ZIP Code	10305	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	9454810	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
All Affiliates Included	false	AllAffiliatesIncluded
Organization501c3	X	Organization501c3
Web Site	www.apdaparkinson.org	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1961	YearFormation
State Legal Domicile	NY	StateLegalDomicile
Activity Or Mission Description	To foster and promote research for the cure and alleviation of Parkinson's disease and its symptoms.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	30	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	30	NbrIndependentVotingMembers
Total Nbr Employees	16	TotalNbrEmployees
Total Nbr Volunteers	850	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Contributions Grants Prior Year	11186671	ContributionsGrantsPriorYear
Contributions Grants Current Year	8378136	ContributionsGrantsCurrentYear
Program Service Revenue CY	0	ProgramServiceRevenueCY
Investment Income Prior Year	122926	InvestmentIncomePriorYear
Investment Income Current Year	34651	InvestmentIncomeCurrentYear
Other Revenue Prior Year	-465416	OtherRevenuePriorYear
Other Revenue Current Year	-578939	OtherRevenueCurrentYear
Total Revenue Prior Year	10844181	TotalRevenuePriorYear
Total Revenue Current Year	7833848	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	3186919	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	3222166	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	1562853	SalariesEtcPriorYear
Salaries Etc Current Year	1583453	SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year	275818	TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	1196372	TotalFundrsngExpCurrentYear
Other Expense Prior Year	2934276	OtherExpensePriorYear
Other Expenses Current Year	3709054	OtherExpensesCurrentYear
Total Expenses Prior Year	7959866	TotalExpensesPriorYear
Total Expenses Current Year	8514673	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	2884315	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-680825	RevenuesLessExpensesCY
Total Assets BOY	10058121	TotalAssetsBOY
Total Assets EOY	9280021	TotalAssetsEOY
Total Liabilities BOY	2519196	TotalLiabilitiesBOY
Total Liabilities EOY	2329891	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	7538925	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	6950130	NetAssetsOrFundBalancesEOY
Mission Description	To foster and promote research for the cure and alleviation of Parkinson's disease and its symptoms.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	2561270	Expense
Description	Information and Referral Services - To promote awareness of and provide information to persons suffering from Parkinson's disease. 56 Information and Referral centers funded.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	2308370	Expense
Description	Public and Professional education - To educate the public and medical profession with programs for the benefit of Parkinsonians and their families. Approximately 180,000 newsletters are mailed seasonally.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	1434888	Expense
Description	Research Centers - To foster and promote research for the cure and alleviation of the condition of persons suffering from Parkinson's Disease. Nine Advanced Centers were funded. Four summer fellowships were funded.	Description

Field	Value	IRS element (for citing)
Total Program Service Expense	6304528	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	false	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	true	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	true	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	true	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	true	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	false	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	true	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	false	GrantsToIndividuals
Schedule J Required	true	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Invest Tax Exempt Bonds	false	InvestTaxExemptBonds
Escrow Account	false	EscrowAccount
On Behalf Of Issuer	false	OnBehalfOfIssuer
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	56	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	true	ComplianceWithBackupWitholding
Number Of Employees	16	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Form990-T Filed	false	Form990-TFiled
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Form8886 T Filed	false	Form8886TFiled
Non Deductible Contributions	false	NonDeductibleContributions
Non Deductible Disclosure	false	NonDeductibleDisclosure
Quid Pro Quo Contributions	true	QuidProQuoContributions
Quid Pro Quo Disclosure	true	QuidProQuoDisclosure
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Number Of8282 Filed	0	NumberOf8282Filed
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form8899 Filed	false	Form8899Filed
Form1098 C Filed	false	Form1098CFiled
Excess Business Holdings	false	ExcessBusinessHoldings
Taxable Distributions	false	TaxableDistributions
Distribution To Donor	false	DistributionToDonor
Filed Lieu1041	false	FiledLieu1041
Licensed More Than One State	false	LicensedMoreThanOneState
Indoor Tanning Services	false	IndoorTanningServices
Form720 Filed	false	Form720Filed
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	30	NbrVotingGoverningBodyMembers
Number Independent Voting Members	30	NumberIndependentVotingMembers
Family Or Business Relationship	true	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	true	LocalChapters
Policies Reference Chapters	true	PoliciesReferenceChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
Written Policy Or Procedure	false	WrittenPolicyOrProcedure
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ND	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ME	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	HI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	DC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AK	StatesWhereCopyOfReturnIsFiled
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	Cheryl Weiner	NamePerson
Telephone Number	7189818001	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	135 Parkinson Avenue	AddressLine1
City	Staten Island	City
State	NY	State
ZIP Code	10305	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (33 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	OfficerOfficer	Highest Compensated EmployeeHighestCompensatedEmployee
William Powers
Director	0.50	X	0	0	0
Joel A Miele JR
Director	0.50	X	0	0	0
Michael Melnicke
Director	0.50	X	0	0	0
Daniel Wheeler
Director	0.50	X	0	0	0
John P Schwinning
Director	0.50	X	0	0	0
Cynthia A Reimer
Director	0.50	X	0	0	0
Michael Pietrangelo
Director	0.50	X	0	0	0
Elena Imperato
Director	0.50	X	0	0	0
Thomas K Penett
Director	0.50	X	0	0	0
John Lagana JR
Director	0.50	X	0	0	0
Marvin Henick
Director	0.50	X	0	0	0
Maxine Dust
Director	0.50	X	0	0	0
Donna JC Fanelli
Director	0.50	X	0	0	0
Michael Esposito
Director	0.50	X	0	0	0
Mario J Esposito
Director	0.50	X	0	0	0
Lisa Esposito
Director	0.50	X	0	0	0
George A Esposito JR
Director	0.50	X	0	0	0
Joseph G Conte
Director	0.50	X	0	0	0
Gary W Chu
Director	0.50	X	0	0	0
Jerry Wells
Secretary	0.50	X	0	0	0	X
Robert Browne
Director	0.50	X	0	0	0
Elizabeth Braun
Director	0.50	X	0	0	0
Vincent Gattullo
Director	0.50	X	0	0	0
Nicholas Corrado
Director	1.50	X	0	0	0
Sally Ann Esposito-Browne
Treasurer	1.50	X	0	0	0	X
Elliot Shapiro
4th V Chair	1.50	X	0	0	0	X
Patrick Mcdermott
2nd V Chair	1.50	X	0	0	0	X
Fred Greene
1st V Chair	1.50	X	0	0	0	X
John Marangos
3rd V Chair	1.50	X	0	0	0	X
Joel A Miele
Chairman	1.50	X	0	0	0	X
Joel Gerstel
Former Pres ED	40.00		192399	0	41340	X
Leslie Chambers
Pres & CEO	40.00		0	0	0	X
Kathryn Whitford
Assoc Exec Dir	40.00		104416	0	13246		X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	296815	TotalReportableCompFromOrg
Total Other Compensation	54586	TotalOtherCompensation
Number Individuals GT100 K	2	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	true	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1	CityAddressOfContractor/AddressUS/City	StateAddressOfContractor/AddressUS/State	ZIP CodeAddressOfContractor/AddressUS/ZIPCode	Description Of ServicesDescriptionOfServices	CompensationCompensation
Listco Direct Marketing
1276 46th Street	Brooklyn	NY	11219	Fulfillment	475695
L & E Meridian
7400 Fullerton Rd	Springfield	VA	22153	Fulfillment	208511
Direct Edge
10375-B Southern Md Blvd	Dunkirk	MD	20754	Fulfillment	188197
Creative Direct Response
16900 Science Drive STE 210	Bowie	MD	21715	Fundraising	319085
Brickmill Marketing
24 Millbrook Road	Wilton	NH	03086	Fulfillment	363720

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	5	NumberOfContractorsGT100K
Federated Campaigns	108974	FederatedCampaigns
Membership Dues	32719	MembershipDues
Fundraising Events	1891300	FundraisingEvents
All Other Contributions	6345143	AllOtherContributions
Noncash Contributions	25000	NoncashContributions
Total Contributions	8378136	TotalContributions
Total Program Service Revenue	0	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	37177	TotalRevenueColumn
Exclusion	$37,177	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Gross Rents GrossRents

Field	Value	IRS element (for citing)
Real	26679	Real

Rental Income Or Loss RentalIncomeOrLoss

Field	Value	IRS element (for citing)
Real	26679	Real

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	26679	TotalRevenueColumn
Exclusion	$26,679	ExclusionAmount

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	1000318	Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	1002844	Securities

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	-2526	Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	-2526	TotalRevenueColumn
Exclusion	-$2,526	ExclusionAmount

Field	Value	IRS element (for citing)
Cntrbtns Rprtd Fundraising Events	1891300	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	618118	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	-618118	TotalRevenueColumn
Exclusion	-$618,118	ExclusionAmount

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	Miscellaneous	Description
Total Revenue Column	12500	TotalRevenueColumn
Exclusion	$12,500	ExclusionAmount

Field	Value	IRS element (for citing)
Total Other Revenue	12500	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	7833848	TotalRevenueColumn
Exclusion	-$544,288	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	3222166	Total
Program Services	3222166	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	0	Total

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	0	Total

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	209954	Total
Program Services	136470	ProgramServices
Management And General	52488	ManagementAndGeneral
Fundraising	20996	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	1080551	Total
Program Services	586987	ProgramServices
Management And General	402931	ManagementAndGeneral
Fundraising	90633	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	91740	Total
Program Services	51429	ProgramServices
Management And General	32375	ManagementAndGeneral
Fundraising	7936	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	123918	Total
Program Services	69470	ProgramServices
Management And General	43730	ManagementAndGeneral
Fundraising	10718	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	77290	Total
Program Services	43329	ProgramServices
Management And General	27276	ManagementAndGeneral
Fundraising	6685	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	64701	Total
Program Services	36271	ProgramServices
Management And General	22833	ManagementAndGeneral
Fundraising	5597	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	91926	Total
Program Services	51534	ProgramServices
Management And General	32440	ManagementAndGeneral
Fundraising	7952	Fundraising

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	72461	Total
Management And General	72461	ManagementAndGeneral

Advertising Advertising

Field	Value	IRS element (for citing)
Total	0	Total

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	0	Total

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	0	Total

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	45557	Total
Program Services	25539	ProgramServices
Management And General	16077	ManagementAndGeneral
Fundraising	3941	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	55237	Total
Program Services	30966	ProgramServices
Management And General	19493	ManagementAndGeneral
Fundraising	4778	Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	444563	Total
Program Services	444563	ProgramServices

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	125305	Total
Program Services	70246	ProgramServices
Management And General	44220	ManagementAndGeneral
Fundraising	10839	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	33722	Total
Program Services	18905	ProgramServices
Management And General	11900	ManagementAndGeneral
Fundraising	2917	Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
Supplies	118713	66550	41894	10269
Office Expense	211653	118653	74692	18308
Patient Services	316045	316045
Mailings	1910061	892572	41639	975850

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	219110	Total
Program Services	122833	ProgramServices
Management And General	77324	ManagementAndGeneral
Fundraising	18953	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	8514673	Total
Program Services	6304528	ProgramServices
Management And General	1013773	ManagementAndGeneral
Fundraising	1196372	Fundraising

Field	Value	IRS element (for citing)
Joint Costs	X	JointCosts

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	170258	BOY
EOY	105400	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	4388412	BOY
EOY	4916436	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
EOY	0	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
BOY	1457199	BOY
EOY	203517	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
EOY	0	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	28281	BOY
EOY	15935	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	3833804	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	874015	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	3041828	BOY
EOY	2959789	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
BOY	972143	BOY
EOY	1078944	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
EOY	0	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	10058121	BOY
EOY	9280021	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	276073	BOY
EOY	352741	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	2155132	BOY
EOY	1893082	EOY

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
BOY	87991	BOY
EOY	84068	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	2519196	BOY
EOY	2329891	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	3128003	BOY
EOY	2723339	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	4302512	BOY
EOY	4063381	EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	108410	BOY
EOY	163410	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	7538925	BOY
EOY	6950130	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	10058121	BOY
EOY	9280021	EOY

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	X	InfoInScheduleOPartXI
Reconcilation Revenue Expenses	-680825	ReconcilationRevenueExpenses
Reconcilation Other Changes	92030	ReconcilationOtherChanges
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited
Audit Committee	true	AuditCommittee
Financial Statement Separate	X	FinancialStatementSeparate
Federal Grant Audit Required	false	FederalGrantAuditRequired
Federal Grant Audit Performed	false	FederalGrantAuditPerformed

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	10117777	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	9149259	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	9792022	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	11186671	CurrentTaxYearMinus1Year
Current Tax Year	8378136	CurrentTaxYear
Total	48623865	Total

Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170

Field	Value	IRS element (for citing)
Total	0	Total

Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	10117777	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	9149259	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	9792022	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	11186671	CurrentTaxYearMinus1Year
Current Tax Year	8378136	CurrentTaxYear
Total	48623865	Total

Field	Value	IRS element (for citing)
Amounts Subst Contributors Total	0	AmountsSubstContributorsTotal
Public Support Total170	48623865	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	264849	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	103045	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	68585	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	60392	CurrentTaxYearMinus1Year
Current Tax Year	63856	CurrentTaxYear
Total	560727	Total

Net UBI NetUBI

Field	Value	IRS element (for citing)
Total	0	Total

Other Income170 OtherIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	27556	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	-650279	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	-565921	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	-538277	CurrentTaxYearMinus1Year
Current Tax Year	-618118	CurrentTaxYear
Total	-2345039	Total

Field	Value	IRS element (for citing)
Total Support	46839553	TotalSupport
Gross Receipts From Admissions Etc	110088	GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage170	1.00000	PublicSupportPertcentage170
Public Support Pertcent Prior Year	1.00000	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule D IRS990ScheduleD

Current Year CurrentYear

Field	Value	IRS element (for citing)
Beginning Of Year Balance	4410922	BeginningOfYearBalance
Contributions	2028273	Contributions
Grants Or Scholarships	799808	GrantsOrScholarships
Other Expenditures	1412596	OtherExpenditures
End Of Year Balance	4226791	EndOfYearBalance

Current Year Minus1 Year CurrentYearMinus1Year

Field	Value	IRS element (for citing)
Beginning Of Year Balance	2742714	BeginningOfYearBalance
Contributions	4044584	Contributions
Grants Or Scholarships	876679	GrantsOrScholarships
Other Expenditures	1499697	OtherExpenditures
End Of Year Balance	4410922	EndOfYearBalance

Current Year Minus2 Years CurrentYearMinus2Years

Field	Value	IRS element (for citing)
Beginning Of Year Balance	2963301	BeginningOfYearBalance
Contributions	2795460	Contributions
Grants Or Scholarships	1043224	GrantsOrScholarships
Other Expenditures	1972823	OtherExpenditures
End Of Year Balance	2742714	EndOfYearBalance

Field	Value	IRS element (for citing)
Permanent Endowment EOY Balance	0.03870	PermanentEndowmentEOYBalance
Term Endowment EOY Balance	0.96130	TermEndowmentEOYBalance
Endowments Held By Unrelated Orgs	false	EndowmentsHeldByUnrelatedOrgs
Endowments Held By Related Orgs	false	EndowmentsHeldByRelatedOrgs
Are Related Orgs Listed Schedule R	false	AreRelatedOrgsListedScheduleR

Land Land

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	696071	OtherCostOrOtherBasis
Book Value	696071	BookValue

Buildings Buildings

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	2820627	OtherCostOrOtherBasis
Depreciation	649996	Depreciation
Book Value	2170631	BookValue

Leasehold Improvements LeaseholdImprovements

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	78159	OtherCostOrOtherBasis
Depreciation	22774	Depreciation
Book Value	55385	BookValue

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	98557	OtherCostOrOtherBasis
Depreciation	64404	Depreciation
Book Value	34153	BookValue

Other Land Buildings OtherLandBuildings

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	140390	OtherCostOrOtherBasis
Depreciation	136841	Depreciation
Book Value	3549	BookValue

Field	Value	IRS element (for citing)
Total Of Book Value Land Buildings	2959789	TotalOfBookValueLandBuildings
Total Of Book Value Securities	1078944	TotalOfBookValueSecurities

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
Description	Annuities Payable	Description
Amount	$84,068	Amount

Field	Value	IRS element (for citing)
Total Of Amounts	84068	TotalOfAmounts
Total Revenue	7833848	TotalRevenue
Total Expenses	8514673	TotalExpenses
Excess Or Deficit For Year	-680825	ExcessOrDeficitForYear
Net Unrealized GL On Investments	92030	NetUnrealizedGLOnInvestments
Total Adjustments	92030	TotalAdjustments
Excess Or Deficit Per FS	-588795	ExcessOrDeficitPerFS
Tot Revenue Etc Audited Fincl Stmt	8543996	TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments	92030	NetUnrealizedGainsInvestments
Other Revenues	618118	OtherRevenues
Revenue Not Rptd F990	710148	RevenueNotRptdF990
Revenue Subtotal	7833848	RevenueSubtotal
Total Revenue Per Form990	7833848	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	9132791	TotExpensesEtcAuditedFinclStmt
Other Expenses Included	618118	OtherExpensesIncluded
Expenses Not Rptd F990	618118	ExpensesNotRptdF990
Expenses Subtotal	8514673	ExpensesSubtotal
Total Expenses Per Form990	8514673	TotalExpensesPerForm990

Form990 Schedule D Part XIV Form990ScheduleDPartXIV (3 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Part XIII, Line 2d	Part XIII, Line 2d: Other expenses and losses per audited F/S	Special Event Expenses $618118
Part XII, Line 2d	Part XII, Line 2d: Other revenue amounts included in F/S but not included on form 990	Special Event Expenses $618118
Part V, Line 4	Part V, Line 4: Intended uses of the endowment fund.	Endowment funds are restricted for research, for the information and referal centers, and program expenses at specific chapters.

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	X	MailSolicitations
Email Solicitations	X	EmailSolicitations
Phone Solicitations	X	PhoneSolicitations
In Person Solicitations	X	InPersonSolicitations
Solicitation Of Non Govt Grants	X	SolicitationOfNonGovtGrants
Special Fundraising Events	X	SpecialFundraisingEvents
Agreement Ref Fundraising	true	AgreementRefFundraising

Fundraiser Activity Information FundraiserActivityInformation

Name Of Organization NameOfOrganization

Field	Value	IRS element (for citing)
Business Name Line1	CDR	BusinessNameLine1

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	16900 Science	AddressLine1
City	Bowie	City
State	MD	State
ZIP Code	21715	ZIPCode

Field	Value	IRS element (for citing)
Activity	Fundraising	Activity
Fundraiser Control Of Funds	false	FundraiserControlOfFunds
Gross Receipts	775694	GrossReceipts
Amount Retained By Contractor	319085	AmountRetainedByContractor
Net To Organization	456609	NetToOrganization

Field	Value	IRS element (for citing)
Total Gross Receipts	775694	TotalGrossReceipts
Total Retained By Contractors	319085	TotalRetainedByContractors
Total Net To Organization	456609	TotalNetToOrganization
Licensed States	WI	LicensedStates
Licensed States	WV	LicensedStates
Licensed States	WA	LicensedStates
Licensed States	VA	LicensedStates
Licensed States	UT	LicensedStates
Licensed States	TN	LicensedStates
Licensed States	SC	LicensedStates
Licensed States	RI	LicensedStates
Licensed States	PA	LicensedStates
Licensed States	OR	LicensedStates
Licensed States	OK	LicensedStates
Licensed States	OH	LicensedStates
Licensed States	ND	LicensedStates
Licensed States	NC	LicensedStates
Licensed States	NY	LicensedStates
Licensed States	NM	LicensedStates
Licensed States	NJ	LicensedStates
Licensed States	NH	LicensedStates
Licensed States	MS	LicensedStates
Licensed States	MN	LicensedStates
Licensed States	MI	LicensedStates
Licensed States	MA	LicensedStates
Licensed States	MD	LicensedStates
Licensed States	ME	LicensedStates
Licensed States	KY	LicensedStates
Licensed States	KS	LicensedStates
Licensed States	IL	LicensedStates
Licensed States	HI	LicensedStates
Licensed States	GA	LicensedStates
Licensed States	FL	LicensedStates
Licensed States	DC	LicensedStates
Licensed States	CT	LicensedStates
Licensed States	CO	LicensedStates
Licensed States	CA	LicensedStates
Licensed States	AR	LicensedStates
Licensed States	AZ	LicensedStates
Licensed States	AK	LicensedStates
Licensed States	AK	LicensedStates

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	Walk a Thon	NameOfEvent1
Gross Receipts Event1	949975	GrossReceiptsEvent1
Charitable Contributions Event1	949975	CharitableContributionsEvent1
Other Direct Expenses Event1	264398	OtherDirectExpensesEvent1
Name Of Event2	Various National Events	NameOfEvent2
Gross Receipts Event2	528886	GrossReceiptsEvent2
Charitable Contributions Event2	528886	CharitableContributionsEvent2
Other Direct Expenses Event2	43203	OtherDirectExpensesEvent2
Total Number Of Other Events	1	TotalNumberOfOtherEvents
Gross Receipts Other Events	412439	GrossReceiptsOtherEvents
Charitable Contrib Other Events	412439	CharitableContribOtherEvents
Other Direct Expenses Other Events	310517	OtherDirectExpensesOtherEvents
Gross Receipts Total	1891300	GrossReceiptsTotal
Charitable Contributions Total	1891300	CharitableContributionsTotal
Other Direct Expenses Total Events	618118	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	618118	DirectExpenseSummaryEvents
Net Income Summary	-618118	NetIncomeSummary

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (68 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	Amount Of Cash GrantAmountOfCashGrant	Amount Of Non Cash AssistanceAmountOfNonCashAssistance	Purpose Of GrantPurposeOfGrant
Westfield Mem Hospital
189 East Main Street	Westfield	NY	14787	160743222	28500	0	Information and Referral
Washington University Medical Center
4525 Scott Avenue Box 8225	St Louis	MO	63110	430653611	75000	0	Medical Research
Washington U School of Med
660 South Euclid Avenue	St Louis	MO	63110	430653611	39923	0	Information and Referral
VA Hospital
1000 Locust Street	Reno	NV	89502	208903914	25000	0	Information and Referral
Uof Virginia Health Sys
500 Ray C Hunt Drive Box 801018	Charlottesville	VA	22903	546001796	33269	0	Information and Research
University of Virginia Medical Center
The McKim Hall - Box 394	Charlottesville	VA	22908	237173411	75000	0	Medical Research
University of Virginia Med Ct
The McKim Hall - Box 394	Charlottesville	VA	22908	237173411	30000	0	Information and Referral
University of Pittsburgh
3109 Cathedral of Learning	Pittsburgh	PA	15260	250965591	75000	0	Medical Research
University of Maryland Hospital
110 S Paca Street 3 Floor	Baltimore	MD	21201	522238893	61500	0	Information and Referral
University of Kentucky
740 S Limestone Street Suite L445	Lexington	KY	40536	616033693	34912	0	Information and Referral
University of Arizona
1501 N Campbell Avenue	Tucson	AZ	85724	742652689	47500	0	Information and Referral
University of Alabama
17207 7th Ave	Birmingham	AL	35223	636001138	38403	0	Information and Referral
University of Alabama
1719 6th Ave South CIRC 516	Birmingham	AL	35294	636005396	75000	0	Medical Research
UCLA School of Medicine
710 Westwood Plaza	Los Angeles	CA	90095	956006143	75000	0	Medical Research
U of Washington
1660 Columbian Way Box 358280	Seattle	WA	98108	178019988	42580	0	Information and Referral
U of Vermont
1 South Prospect Street	Burlington	VT	05401	562498034	38000	0	Information and Referral
U of Utah HSC
729 Arapeen Drive	Salt Lake City	UT	84108	876000525	33268	0	Information and Referral
U of TX HSC at San Antonio
8300 Floyd Curl MSC 7883	San Antonio	TX	78229	741586031	33268	0	Information and Referral
U of New Mexico HSC
1 University of New Mexico	Albuquerque	NM	87131	850482962	28500	0	Information and Referral
The University of Chicago
5841 S Maryland Avenue	Chicago	IL	60637	362177139	25000	0	Medical Research
The Hitchcock Foundation
One Medical Center Drive	Lebanon	NH	03756	581963909	39900	0	Information and Referral
The Albany Medical Center
47 New Scotland Avenue	Albany	NY	12208	201173824	6667	0	Information and Referral
Staten Island Univ Hosp
475 Seaview Ave	Staten Island	NY	10305	112868878	39920	0	Information and Referral
Standford University Med
300 Pasteur Drive Room A-343	Stanford	CA	94305	954724131	36111	0	Information and Referral
St Marys Hospital
700 S Park Street	Madison	WI	53715	390806393	38403	0	Information and Referral
St Josephs Regional Health
PO Box 22445	Hot Springs	AR	71903	364195126	33269	0	Information and Referral
St Catherines of Siena Hosp
50 Route 25A	Smithtown	NY	11787	061562701	33269	0	Information and Referral
Robert Wood Johnson University Hospital
97 Paterson Street Room 206	New Brunswick	NJ	08901	226014339	75000	0	Medical Research
Robert Wood Johnson U
120 Albany Street Suite 360	New Brunswick	NJ	08901	226014339	49430	0	Information and Referral
Regents of the U of California
710 Westwood Plaza	Los Angeles	CA	90095	946036494	31606	0	Information and Referral
Regents of the U of Californi
710 Westwood plaza	Los Angeles	CA	90095	946036494	75000	0	Medical Research
Peninsula Hospital Center
51-15 Beach Channel Drive	Far Rockaway	NY	11691	116037195	39923	0	Information and Referral
Orange Coast Memorial Med
9940 Talbert Avenue Suite 204	Fountain Valley	CA	92708	330332723	39923	0	Information and Referral
Ochsner Clinic Foundation
1514 Jefferson Highway	New Orleans	LA	70121	951831116	33250	0	Information and Referral
NY College of Osteopathic
PO Box 8000 Northern Blvd	Old Westbury	NY	11568	237190271	32919	0	Information and Referral
New York U Med Ctr
353 Lexington Avenue	New York	NY	10016	135562309	33269	0	Information and Referral
Neurological Institute
700 Olympic Plaza Suite 904	Tyler	TX	75701	741586031	34912	0	Information and Referral
Methodist Healthcare
1211 Union Avenue Suite 330	Memphis	TN	38104	620479367	5775	0	Information and Referral
Mayo Clinic Jacksonville
4500 San Pablo Road	Jacksonville	FL	32224	268013125	5837	0	Information and Referral
MaineHealth Learning Center
5 Bucknam Road Suite 1A	Falmouth	ME	04105	222589873	39923	0	Information and Referral
LSU Health Sciences Center
1501 Kings Highway	Shreveport	LA	71103	726087770	5250	0	Information and Referral
Lewis House CCMC
1 Medical Center Blvd	Upland	PA	19013	232692637	34582	0	Information and Referral
Kettering Memorial Hospital
11711 Princeton Pike Suite 341	Cincinnati	OH	45246	300010371	12110	0	Information and Referral
Kent Hospital
455 Toll Gate Road Building 2C	Warwick	RI	02886	050258896	38950	0	Information and Referral
Iowa Health - Des Moines
1200 Pleasant St E-524	Des Moines	IA	50309	421195202	38403	0	Information and Referral
Information & Referral Center
201 East Sample Road	Deerfield Beach	FL	33064	651021857	33268	0	Information and Referral
Huntington Memorial Hospital
650 south Fair Oaks Blvd Suite 32	Pasadena	CA	92123	951644036	7500	0	Information and Referral
Hillcrest Medical Ctr Sys
1125 South Trenton	Tulsa	OK	74120	770633896	46455	0	Information and Referral
HealthSouth Rehab Hosp
143 East 2nd Street	Erie	PA	16507	631105904	36210	0	Information and Referral
Gulfport Memorial Hospital
1340 Broad Avenue Suite 440	Gulfport	MS	39501	951831116	38403	0	Information and Referral
Emory University Med
1841 Clifton Road NE Room 504	Atlanta	GA	30329	580566256	39923	0	Information and Referral
Emory U Sc of Medicine
401 Woodtuff Memorial Blvd	Atlanta	GA	30322	580566256	50000	0	Medical research
Edward White Hosptial
2191 9th Avenue N	St Petersburg	FL	33713	593089836	33269	0	Information and Referral
Crozer Chester Medical Center
1 Medical Center Blvd	Upland	PA	19013	232692637	33269	0	Information and Referral
Creighton University
601 N 30th Street Room 2902B	Omaha	NE	68131	470376583	38403	0	Information and Referral
Covenant Hospital
3610 22nd Street Suite 300	Lubbock	TX	79410	752428911	31273	0	Information and Referral
Central DuPage Hospital
25 North Winfield Road	Winfield	IL	60190	362813490	42583	0	Information and Referral
Center for Aging Research
18433 Roscoe Blvd Suite 210	Northridge	CA	91325	954490770	43890	0	Information and Referral
Centennial Medical Center
2300 Patterson Street	Nashville	TN	37203	953062349	33269	0	Information and Referral
Cedars-Sinai
8700 Beverly Blvd	Los Angeles	CA	90048	951644600	53200	0	Information and Referral
Boston University School of Medicine
715 Albany Street Suite C-329	Boston	MA	02118	042103545	75000	0	Information and Referral
Boston U School of Med
72 East Concord Street C3	Boston	MA	02118	042103547	78152	0	Medical Research
Benefis Health Care
500 15th Avenue South	Great Falls	MT	59405	810480587	38589	0	Information and Referral
Baylor Neuroscience Center
3600 Gaston Avenue Barnett Tower	Dallas	TX	75246	582670080	38000	0	Information and Referral
Banner Good Samaritan
1012 E Willetta St	Phoenix	AZ	85006	330858519	49253	0	Information and Referral
APDA Information & Ref Ctr
8555 Aero Drive Suite 308	San Diego	CA	92123	710875246	32425	0	Information and Referral
Allegheny General Hospital
490 East North Avenue Ste 500	Pittsburgh	PA	15235	954724131	30000	0	Information and Referral
Abbott Northwestern Hospital
800 East 28th Street 39304	Minneapolis	MN	55407	410963538	41248	0	Information and Referral

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	64	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	4	TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used	Identifier
Explanation	APDA has an independent scientific advisory board (SAB) that recommends the recepients of the grants, who are in turn is approved by the Board of Directors. Initial funding is made based on the grant and subsequent payments are made contingent on progress reports. Final reports are mandatory for the grants and only after their receipt is final payment disbursed. Centers for Advanced Research where funding extends out to more than one year submit annual progress reports.Information and Referal Centers are monitored for volume activity and similarly, after the initial payment, subsequent payments are contingent upon receipt of progress reports.	Explanation

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Personal Services	X	PersonalServices
Written Policy Re T And E Expenses	false	WrittenPolicyReTAndEExpenses
Compensation Committee	X	CompensationCommittee
Independent Consultant	X	IndependentConsultant
Written Employment Contract	X	WrittenEmploymentContract
Severance Payment	true	SeverancePayment
Supplemental Nonqual Retire Plan	false	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	false	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	false	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	false	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	false	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	false	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	false	AnyNonFixedPayments
Initial Contract Exception	false	InitialContractException
Rebuttable Presumption Procedure	false	RebuttablePresumptionProcedure

Form990 Schedule J Part II Form990ScheduleJPartII

Field	Value	IRS element (for citing)
Name Person	Joel Gerstel	NamePerson
Base Compensation Filing Org	192399	BaseCompensationFilingOrg
Deferred Comp Filing Org	18999	DeferredCompFilingOrg
Nontaxable Benefits Filing Org	22341	NontaxableBenefitsFilingOrg
Total Compensation Filing Org	233739	TotalCompensationFilingOrg
Comp Report Prior990 Filing Org	128266	CompReportPrior990FilingOrg

Form990 Schedule J Part III Form990ScheduleJPartIII (2 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Sch J, Part I, Line 1b	Part I, Line 1b: Reason for not following policy regarding payment provisions for expenses	No policy at time of illness. Illness of the executive director required the use of a car service for transportation to the office.
Sch J, Part I, Line 1a	Part I, Line 1a: Relevant information in regards to selections on 1a.	Illness of the executive director required the use of a car service for transportation to the office.

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (7 entries)

Return ReferenceReturnReference	ExplanationExplanation	IdentifierIdentifier
Schedule G, Part 1	Brickmill expenses were $347,017. Of this amount, $17,351 was identified by the contract as the basic mailing, printing, and postage costs, with the difference recorded as payment to the fundraising counsel.
Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	Provided upon request.	Form 990, Part VI, Line 19
Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees	same as 15a above. Outside contractors hired to benchmark executive salary. Independent compensation committee formed to approve executive director and key employee salaries.	Form 990, Part VI, Line 15b
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts	Conflict of Interest policy signed by the Board annually. Members recuse themselves from voting if there is a potential conflict of interest.	Form 990, Part VI, Line 12c
Form 990, Part VI, Line 11: Form 990 Review Process	Form 990 was reviewed in detail by Finance & Audit Comittees & distributed electronically to all other board members	Form 990, Part VI, Line 11
Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, Et	1)Elizabeth Braun - Board MemberSister to board member Elena ImperatoCousin to board members Mario J. Esposito Jr., Michael Esposito, Dr. Robert Browne, Lisa Esposito & Sally Ann Esposito-Browne2) Dr. Robert Browne - Board MemberHusband of Treasurer & Board Member Sally Ann Esposito BrowneCousin to board members Elizabeth Braun, Mario J. Esposito Jr., Michael Esposito, & Elena ImperatoBrother in law to board member Lisa Esposito3) Mario J. Esposito Jr. - Board MemberBrother of board member Michael EspositoCousin to board members Elizabeth Braun, Elena Imperato, Dr. Robert Browne, Sally Ann Esposito- Browne & Lisa Esposito4) Michael Esposito - Board MemberBrother of board member Mario J. Esposito Jr. Cousin to board members Elizabeth Braun, Elena Imperato, Dr. Robert Browne, Sally Ann Esposito- Browne & Lisa Esposito PidorianoCousin to board members Elizabeth Braun, Elena Imperato, Michael Esposito & Mario J. Esposito Jr.Sister of board members Sally Ann Browne Esposito & Lisa EspositoSister in law of board member Dr.Robert Browne5)Lisa Esposito - Board MemberCousin to board members Elizabeth Braun, Elena Imperato, Michael Esposito & Mario J. Esposito Jr.Sister of board members Sally Ann Browne Esposito Sister in law of board member Dr.Robert Browne6) Elena Imperato - Board MemberCousin to board members Mario J. Esposito Jr., Michael Esposito, Lisa Esposito, Sally Ann Esposito Browne & Dr. Robert BrowneSister of board member Elizabeth Braun 7) Edward Clark - Maintenance EngineerSon in Law of former President & Board member Vincent Gatullo8) Vincent Gatullo Board Member & former President Father in law of maintenance engineer Edward Clark8) George Esposito - Board member 2nd Cousin to board members Elizabeth Braun, Mario J. Esposito Jr., Michael Esposito, Elena Imperato, Dr. Robert Browne, Sally Ann Esposito Browne & Lisa Esposito11) Sally Ann Esposito Browne - Treasurerwife of Dr. Robert Browne, Board member, and related to several other board members12) Joel A. Miele - ChairmanFather of board member Joel A Miele, JrFather in law of board member Gary Chu	Form 990, Part VI, Line 2
	Client Note 1 - Statement: Note 1Form 990, Part VI, Line 80bStatement of Other Information on Related OrganizationNote 1: Various officers & directors of the American Parkinson Disease Assn., Inc. are members of the Board of Directors of International Parkinson Fonds, a not-for-profit Netherlands Corporation and Internationale Parkinson Fonds (Deutschland) GmbH in Germany. These organizations were formed to raise funds for Parkinson disease in those countries. International Parkinson Fonds(Netherlands) and Internationale Parkinson Fonds (Germany)are independent entities and are not controlled or affiliated with the American Parkinson Disease Assn., Inc.