CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2011

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2011-01-01 to 2011-12-31
Filed: 2012-08-23
IRS object ID: 201212369349300801
Schema version: 2011v1.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2012-08-23T16:22:06-05:00	Timestamp
Tax Period End Date	2011-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	ARGY WILTSE & ROBINSON PC	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	8405 GREENSBORO DRIVE 7TH FLOOR	AddressLine1
City	MCLEAN	City
State	VA	State
ZIP Code	22102	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2011-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS	BusinessNameLine1

Field	Value	IRS element (for citing)
In Care Of Name	% ROBERT J BEALL PHD	InCareOfName
Name Control	CYST	NameControl
Phone	3019514422	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	ROBERT J BEALL PHD	Name
Title	PRESIDENT & CEO	Title
Date Signed	2012-08-23	DateSigned
Authorize Third Party	true	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	DAVID J TRIMNER	Name
Phone	7038930600	Phone

Field	Value	IRS element (for citing)
Tax Year	2011	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	ROBERT J BEALL PHD	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	241014092	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
Organization501c3	X	Organization501c3
Web Site	WWW.CFF.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1955	YearFormation
State Legal Domicile	DE	StateLegalDomicile
Activity Or Mission Description	THE MISSION IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	18	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	17	NbrIndependentVotingMembers
Total Nbr Employees	319	TotalNbrEmployees
Total Nbr Volunteers	250000	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Net Unrelated Business Txbl Income	0	NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year	106799244	ContributionsGrantsPriorYear
Contributions Grants Current Year	101016403	ContributionsGrantsCurrentYear
Program Service Revenue Prior Year	21411864	ProgramServiceRevenuePriorYear
Program Service Revenue CY	26269945	ProgramServiceRevenueCY
Investment Income Prior Year	5617212	InvestmentIncomePriorYear
Investment Income Current Year	7266699	InvestmentIncomeCurrentYear
Other Revenue Prior Year	639501	OtherRevenuePriorYear
Other Revenue Current Year	2027137	OtherRevenueCurrentYear
Total Revenue Prior Year	134467821	TotalRevenuePriorYear
Total Revenue Current Year	136580184	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	21487961	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	74501565	GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year	0	BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	24796813	SalariesEtcPriorYear
Salaries Etc Current Year	27272258	SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year	0	TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	10319779	TotalFundrsngExpCurrentYear
Other Expense Prior Year	21688722	OtherExpensePriorYear
Other Expenses Current Year	23947791	OtherExpensesCurrentYear
Total Expenses Prior Year	67973496	TotalExpensesPriorYear
Total Expenses Current Year	125721614	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	66494325	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	10858570	RevenuesLessExpensesCY
Total Assets BOY	221040934	TotalAssetsBOY
Total Assets EOY	216321364	TotalAssetsEOY
Total Liabilities BOY	32747225	TotalLiabilitiesBOY
Total Liabilities EOY	40872449	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	188293709	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	175448915	NetAssetsOrFundBalancesEOY
Info In Schedule O Part III	X	InfoInScheduleOPartIII
Mission Description	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION, A NONPROFIT DONOR SUPPORTED ORGANIZATION, IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. A LIFE SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF NEARLY 30,000 CHILDREN AND YOUNG ADULTS IN THE U.S. CURRENTLY, THERE IS NO CURE.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	87231930	Expense
Grants	73296331	Grants
Revenue	1648930	Revenue
Description	MEDICAL PROGRAMS - SINCE 1955, THE CYSTIC FIBROSIS FOUNDATION HAS BEEN DEDICATED TO CURING AND CONTROLLING CYSTIC FIBROSIS (CF). THE TREATMENT AND CARE PROTOCOLS DEVELOPED BY THE CF FOUNDATION ARE HELPING TENS OF THOUSANDS OF PEOPLE WITH THE DISEASE LIVE LONGER, HEALTHIER LIVES. TO SUPPORT ITS MISSION, THE FOUNDATION FUNDS AND ACCREDITS A NATIONWIDE NETWORK OF 110 CARE CENTERS. THE CARE CENTER NETWORK PROVIDES THE BEST CARE FOR PEOPLE WITH CF AND HAS BEEN RECOGNIZED BY THE NATIONAL INSTITUTES OF HEALTH AS A MODEL OF CARE FOR A CHRONIC DISEASE. A) IN 2011, PHASE 3 CLINICAL TRIALS OF VX-770 SHOWED PROFOUND RESULTS. THOSE RECEIVING THE DRUG DEMONSTRATED THE HIGHEST INCREASE ON A LUNG FUNCTION TEST SEEN IN ANY CLINICAL TRIAL OF A CF DRUG. A NEW DRUG APPLICATION TO THE FDA FOR VX-770 UNDER THE TRADE NAME KALYDECO WAS SUBMITTED BY VERTEX PHARMACEUTICALS. B) RESULTS FROM THE FIRST PART OF AN ONGOING PHASE 2 TRIAL TESTING KALYDECO IN COMBINATION WITH VX-809 SHOW PROMISING RESULTS IN PEOPLE WITH THE MOST COMMON CF MUTATION, DELTA F508. C) THE MEDIAN PREDICTED AGE OF SURVIVAL FOR A PERSON WITH CF IS IN THE LATE 30S. MORE THAN 45 PERCENT OF PEOPLE WITH CF ARE AGE 18 OR OLDER. D) MEDICAL PROGRAMS CONSIST OF APPROXIMATELY 360 GRANTS AND OTHER COSTS TO SUPPORT SCIENTIFIC STUDIES/INVESTIGATIONS AND CYSTIC FIBROSIS CENTERS. APPROXIMATELY 220 GRANTS TOTALING $12.5 MILLION WERE AWARDED TO CYSTIC FIBROSIS CARE CENTERS SERVING APPROXIMATELY 27,000 PATIENTS.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	10499220	Expense
Grants	1205234	Grants
Revenue	24621015	Revenue
Description	CYSTIC FIBROSIS FOUNDATION PHARMACY, LLC (CFFP) PROVIDES PROGRAM MANAGEMENT SERVICES TO CYSTIC FIBROSIS PATIENT ASSISTANCE FOUNDATION, LLC (CFPAF) AND PROGRAM MANAGEMENT SERVICES AND LICENSING TO CYSTIC FIBROSIS SERVICES, INC. (CFS). IT PROVIDES AVAILABILITY AND ACCESS TO CYSTIC FIBROSIS MEDICATIONS, AS WELL AS ASSISTANCE WITH THE COMPLEX INSURANCE ISSUES FACED IN OBTAINING THESE MEDICATIONS. CFFP PROVIDES PERSONALIZED SERVICE, PATIENT ADVOCACY, PATIENT EDUCATION AND REIMBURSEMENT SUPPORT TO THE CF COMMUNITY. IN 2011, CFFP SERVED 10,352 PATIENTS. CFFP FULFILLED 82,586 ORDERS TO CF PATIENTS UNDER MANUFACTURER PROGRAMS TO ASSIST PATIENTS IN NEED. CFFP STAFF ASSISTED CF PATIENTS WITH 188,592 PRESCRIPTIONS IN 2011 BY FILING PRIMARY, SECONDARY AND TERTIARY INSURANCE CLAIMS, AS NEEDED. CYSTIC FIBROSIS PATIENT ASSISTANCE FOUNDATION, LLC (CFPAF) RESPONDED TO 6,817 CALLS FOR ASSISTANCE AND PROVIDED $1,205,234 IN PATIENT ASSISTANCE GRANTS AND CASE MANAGEMENT TO 853 CF PATIENTS IN NEED DURING 2011.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	9558413	Expense
Grants	0	Grants
Revenue	0	Revenue
Description	dPUBLIC AND PROFESSIONAL INFORMATION AND EDUCATION - TO BROADEN ITS REACH AND TO SUPPORT ITS MISSION, THE CF FOUNDATION HAS PROGRAMS DESIGNED TO IMPROVE THE KNOWLEDGE OF CF PATIENTS AND THEIR FAMILIES, MEDICAL PROFESSIONALS AND THE GENERAL PUBLIC REGARDING THE DISEASE. IN 2011, THERE WERE 23 PUBLICATIONS, 18 WEBCASTS AND 37 VIDEOS PRODUCED AND MADE AVAILABLE FOR PATIENTS, FAMILIES, MEDICAL PROFESSIONALS, AND THE GENERAL PUBLIC. YEAR-ROUND CONFERENCES PROVIDE UPDATES FOR CF RESEARCHERS, PHYSICIANS AND ALLIED HEALTH PROFESSIONALS AND OPPORTUNITIES FOR COLLABORATION ON FUTURE CF RESEARCH PROJECTS AND TREATMENT/CARE EFFORTS. IN 2011, OVER 2,180,000 UNIQUE VISITORS CAME TO THE ORGANIZATION'S WEBSITE.	Description

Field	Value	IRS element (for citing)
Total Of Other Program Service Exp	2724489	TotalOfOtherProgramServiceExp
Total Of Other Program Service Grnt	0	TotalOfOtherProgramServiceGrnt
Total Of Other Program Service Rev	0	TotalOfOtherProgramServiceRev
Total Program Service Expense	110014052	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	true	LobbyingActivities
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	true	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	true	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	false	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	true	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	true	ForeignActivities
More Than5000 K To Organizations	true	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	false	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	true	GrantsToIndividuals
Schedule J Required	true	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	true	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	true	DisregardedEntity
Related Entity	true	RelatedEntity
Related Org Controlled Entity	true	RelatedOrgControlledEntity
Transaction Related Entity	true	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	195	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Number Of Employees	319	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	18	NbrVotingGoverningBodyMembers
Number Independent Voting Members	17	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	true	LocalChapters
Policies Reference Chapters	true	PoliciesReferenceChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	AL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	HI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	ROBERT J BEALL PHD	NamePerson
Telephone Number	3019514422	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	X	InfoInScheduleOPartVII

Form990 Part VII Section A Form990PartVIISectionA (29 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	OfficerOfficer	Highest Compensated EmployeeHighestCompensatedEmployee
J Taylor Crandall
Trustee	3.0	X	0	0	0
Michael L Beatty
Trustee	3.0	X	0	0	0
Richard L Dandurand
Vice Chairman	5.0	X	0	0	0
Richard J Gray
Trustee	3.0	X	0	0	0
Barry M Gump
Trustee	3.0	X	0	0	0
Susan L Hook
Vice Chair	5.0	X	0	0	0
Catherine C McLoud
Chair	7.0	X	0	0	0
Chad T Moore
Trustee	3.0	X	0	0	0
David A Mount
Trustee	5.0	X	0	0	0
Gary B Sabin
Executive Vice Chairman	5.0	X	0	0	0
Christie L Shaffer PHD
Trustee	3.0	X	0	0	0
Steven Shak MD
Trustee	3.0	X	0	0	0
Charles J Thayer
Treasurer	3.0	X	0	0	0
Theodore J Torphy PhD
Trustee	3.0	X	0	0	0
Amy S Weinberg
Trustee	3.0	X	0	0	0
Paul W Whetsell
Trustee	5.0	X	0	0	0
KC Bryan White
Trustee	3.0	X	0	0	0
Robert J Beall PhD
President & CEO	34.0	X	477065	234488	362172	X
ROBERT KAPLAN TRUSTEE
TRUSTEE	3.0	X	0	0	0
C Richard Mattingly
Exec VP and COO	50.0		475320	0	284459	X
Preston W Campbell MD
Exec VP of Medical Affairs	34.0		310778	156360	268893	X
Vera H Twigg
Sr. VP and CFO	50.0		325228	0	119955	X
Ann Palmer
Sr. Vice President of Field Ma	50.0		233610	0	42419	X
Daniel Klein
Sr. Vice President - CFFP	50.0		248172	0	29128	X
Gregory August
Chief Information Officer	50.0		218198	0	44500		X
David McLoughlin
Sr. Vice President of Operatio	50.0		267117	0	49005		X
Glen Goldmark
VP of Human Resources	50.0		213637	0	39578		X
Amy DeMaria
Sr VP of Communications	50.0		212990	0	28682		X
Mary Dwight
VP of Government Affairs	50.0		195488	0	50744		X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	3177603	TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs	390848	TotalReportableCompFrmRltdOrgs
Total Other Compensation	1319535	TotalOtherCompensation
Number Individuals GT100 K	67	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	true	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1	CityAddressOfContractor/AddressUS/City	StateAddressOfContractor/AddressUS/State	ZIP CodeAddressOfContractor/AddressUS/ZIPCode	Description Of ServicesDescriptionOfServices	CompensationCompensation
ICS CORPORATION
2225 RICHMOND ST	PHILADELPHIA	PA	19125	MAILSHOP	1452328
HUB LABELS
18223 SHAWLEY DRIVE	HAGERSTOWN	MD	21740	PRINTING	936511
DIAMONDBACK DIRECT
844 RITCHIE HWY	SEVERNA PARK	MD	21146	MAILSHOP	850497
RMI DIRECT MARKETING
42 OLD RIDGEWAY ROAD	DANBURY	CT	06810	LIST MANAGEMENT	550440
ITS RESOURCES LLC
7 HARVARD COURT	ROCKVILLE	MD	20850	IT SERVICES	464713

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	46	NumberOfContractorsGT100K
Related Organizations	81863236	RelatedOrganizations
All Other Contributions	19153167	AllOtherContributions
Noncash Contributions	532764	NoncashContributions
Total Contributions	101016403	TotalContributions

Program Service Revenue ProgramServiceRevenue (4 entries)

DescriptionDescription	Business CodeBusinessCode	Total Revenue ColumnTotalRevenueColumn	Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome	ExclusionExclusionAmount
SCIENTIFIC CONFERENCE	611600	1648930	1648930
PROGRAM MANAGEMENT FEES	541900	8920638	8920638
CALL CENTER	541900	1938316	1938316
LICENSE FEES	900003	13762061		$13,762,061

Field	Value	IRS element (for citing)
Total Program Service Revenue	26269945	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	3438058	TotalRevenueColumn
Exclusion	$3,438,058	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	1450872	TotalRevenueColumn
Exclusion	$1,450,872	ExclusionAmount

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	108262549	Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	104433908	Securities

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	3828641	Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	3828641	TotalRevenueColumn
Exclusion	$3,828,641	ExclusionAmount

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	LIST RENTAL	Description
Business Code	533110	BusinessCode
Total Revenue Column	576265	TotalRevenueColumn
Exclusion	$576,265	ExclusionAmount

Field	Value	IRS element (for citing)
Total Other Revenue	576265	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	136580184	TotalRevenueColumn
Related Or Exempt Function Income	12507884	RelatedOrExemptFunctionIncome
Exclusion	$23,055,897	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	73053292	Total
Program Services	73053292	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	1212242	Total
Program Services	1212242	ProgramServices

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	236031	Total
Program Services	236031	ProgramServices

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	2331798	Total
Program Services	1725408	ProgramServices
Management And General	334759	ManagementAndGeneral
Fundraising	271631	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	20131956	Total
Program Services	14896590	ProgramServices
Management And General	2890194	ManagementAndGeneral
Fundraising	2345172	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	1210677	Total
Program Services	895837	ProgramServices
Management And General	173808	ManagementAndGeneral
Fundraising	141032	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	2003186	Total
Program Services	1482253	ProgramServices
Management And General	287582	ManagementAndGeneral
Fundraising	233351	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	1594641	Total
Program Services	1214254	ProgramServices
Management And General	191535	ManagementAndGeneral
Fundraising	188852	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	380252	Total
Program Services	324835	ProgramServices
Management And General	55417	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	180167	Total
Program Services	59890	ProgramServices
Management And General	120277	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	293211	Total
Program Services	293211	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	102488	Total
Program Services	0	ProgramServices
Management And General	102488	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	2965468	Total
Program Services	1999889	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	965579	Fundraising

Advertising Advertising

Field	Value	IRS element (for citing)
Total	6422	Total
Program Services	3917	ProgramServices
Management And General	1028	ManagementAndGeneral
Fundraising	1477	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	1955394	Total
Program Services	1768900	ProgramServices
Management And General	83822	ManagementAndGeneral
Fundraising	102672	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	3584763	Total
Program Services	2824293	ProgramServices
Management And General	271911	ManagementAndGeneral
Fundraising	488559	Fundraising

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	1505673	Total
Program Services	1190541	ProgramServices
Management And General	198720	ManagementAndGeneral
Fundraising	116412	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	786559	Total
Program Services	694250	ProgramServices
Management And General	21990	ManagementAndGeneral
Fundraising	70319	Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	2394030	Total
Program Services	2358973	ProgramServices
Management And General	12874	ManagementAndGeneral
Fundraising	22183	Fundraising

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	485741	Total
Program Services	426836	ProgramServices
Management And General	29705	ManagementAndGeneral
Fundraising	29200	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	408836	Total
Program Services	338988	ProgramServices
Management And General	24428	ManagementAndGeneral
Fundraising	45420	Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
DIRECT MAIL PRINTING	3585707	1056349	0	2529358
DIRECT MAIL POSTAGE	3222034	949211	0	2272823
TRAINING	366080	281331	38592	46157
MAILING LIST RENTAL	574881	169360	0	405521

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	1150085	Total
Program Services	557371	ProgramServices
Management And General	548653	ManagementAndGeneral
Fundraising	44061	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	125721614	Total
Program Services	110014052	ProgramServices
Management And General	5387783	ManagementAndGeneral
Fundraising	10319779	Fundraising

Field	Value	IRS element (for citing)
Joint Costs	X	JointCosts

Total Joint Costs TotalJointCosts

Field	Value	IRS element (for citing)
Total	9652139	Total
Program Services	2843520	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	6808617	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	10129208	BOY
EOY	29623023	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	23195345	BOY
EOY	17362252	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
BOY	3394223	BOY
EOY	3775431	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
BOY	513317	BOY
EOY	462935	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	1074652	BOY
EOY	1615334	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	8356373	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	5776309	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	1954050	BOY
EOY	2580064	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	99508241	BOY
EOY	117635184	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
BOY	37241095	BOY
EOY	42519485	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	44030803	BOY
EOY	747656	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	221040934	BOY
EOY	216321364	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	10639429	BOY
EOY	12344388	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	19417980	BOY
EOY	19846941	EOY

Deferred Revenue DeferredRevenue

Field	Value	IRS element (for citing)
BOY	2689816	BOY
EOY	3567174	EOY

Tax Exempt Bond Liabilities TaxExemptBondLiabilities

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Escrow Account Liability EscrowAccountLiability

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Loans From Officers Directors LoansFromOfficersDirectors

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Mort Notes Pybl Secured Invest Prop MortNotesPyblSecuredInvestProp

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Unsecured Notes Loans Payable UnsecuredNotesLoansPayable

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	0	EOY

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
BOY	0	BOY
EOY	5113946	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	32747225	BOY
EOY	40872449	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	165901802	BOY
EOY	154243452	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	19046213	BOY
EOY	17895922	EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	3345694	BOY
EOY	3309541	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	188293709	BOY
EOY	175448915	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	221040934	BOY
EOY	216321364	EOY

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	X	InfoInScheduleOPartXI
Reconcilation Revenue Expenses	10858570	ReconcilationRevenueExpenses
Reconcilation Other Changes	-23703364	ReconcilationOtherChanges
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited
Audit Committee	true	AuditCommittee
Financial Statement Consolidated	X	FinancialStatementConsolidated
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi
Contrib By Controlling Individual	false	ContribByControllingIndividual
Contribution By Related Party	false	ContributionByRelatedParty
Contrib By35 Controlled Entity	false	ContribBy35ControlledEntity

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	125762419	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	112573276	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	94548345	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	106799244	CurrentTaxYearMinus1Year
Current Tax Year	101016043	CurrentTaxYear
Total	540699327	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	125762419	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	112573276	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	94548345	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	106799244	CurrentTaxYearMinus1Year
Current Tax Year	101016043	CurrentTaxYear
Total	540699327	Total

Field	Value	IRS element (for citing)
Public Support Total170	540699327	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	9254984	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	5292496	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	2946628	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2848122	CurrentTaxYearMinus1Year
Current Tax Year	4888930	CurrentTaxYear
Total	25231160	Total

Net UBI NetUBI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	0	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1916	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	0	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	0	CurrentTaxYearMinus1Year
Current Tax Year	0	CurrentTaxYear
Total	1916	Total

Other Income170 OtherIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	1086167	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	998418	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	636827	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	467607	CurrentTaxYearMinus1Year
Current Tax Year	576265	CurrentTaxYear
Total	3765284	Total

Field	Value	IRS element (for citing)
Total Support	569697687	TotalSupport
Gross Receipts From Admissions Etc	85445190	GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage170	0.94910	PublicSupportPertcentage170
Public Support Pertcent Prior Year	0.94940	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170
General Explanation	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATIVE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. PROGRAM MANAGEMENT FEES REPRESENT CHARGES FOR THE MANAGEMENT OF OPERATIONS PROVIDED BY CYSTIC FIBROSIS FOUNDATION PHARMACY, LLC (CFFP) (A DISREGARDED ENTITY OF THE ORGANIZATION) TO CYSTIC FIBROSIS SERVICES, INC. (A SUBSIDIARY OF CFFP). LICENSE FEES ARE PAID BY CYSTIC FIBROSIS SERVICES, INC. TO CFFP, LLC, FOR PROMOTION OF THE CFS PHARMACY, FEATURING ON THE WEBSITE, USE OF PATIENT EDUCATION AND COMMUNICATION MATERIALS, USE OF ORGANIZATION NAME, LOGO AND TRADEMARK, ETC. CFS's SOLE ACTIVITY IS TO OPERATE AND MANAGE A SPECIALTY PHARMACY THAT SELLS CYSTIC FIBROSIS RELATED PRESCRIPTION PHARMACEUTICALS, RELATED DURABLE MEDICAL EQUIPMENT AND NON-PRESCRIPTION CYSTIC FIBROSIS RELATED VITAMINS AND SUPPLEMENTS. CFS SERVES PATIENTS WHO HAVE BEEN DIAGNOSED WITH CYSTIC FIBSOSIS. THIS REVENUE IS NOT TAXABLE BECAUSE THE ORGANIZATION RECEIVED A PRIVATE LETTER RULING DETERMINING THAT CFS'S ACTIVITIES WERE RELATED TO THE ORGANIZATION'S EXEMPT PURPOSE.	GeneralExplanation

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	91903	FilingOrganizationsTotals

Total Direct Lobbying TotalDirectLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	480610	FilingOrganizationsTotals

Total Lobbying Expenditures TotalLobbyingExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	572513	FilingOrganizationsTotals

Other Exempt Purpose Expenditures OtherExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	125149101	FilingOrganizationsTotals

Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	125721614	FilingOrganizationsTotals

Lobbying Nontaxable LobbyingNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	1000000	FilingOrganizationsTotals

Grassroots Nontaxable GrassrootsNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	250000	FilingOrganizationsTotals

Field	Value	IRS element (for citing)
Tot Lobbying Grassroot Minus Non Tx		TotLobbyingGrassrootMinusNonTx
Tot Lobby Expend Mns Lobbying Nontx		TotLobbyExpendMnsLobbyingNontx

Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	1000000	CurrentYearMinus3
Current Year Minus2	1000000	CurrentYearMinus2
Current Year Minus1	1000000	CurrentYearMinus1
Current Year	1000000	CurrentYear
Total	4000000	Total

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmount

Total Lobbying Expenditures2 TotalLobbyingExpenditures2

Field	Value	IRS element (for citing)
Current Year Minus3	150679	CurrentYearMinus3
Current Year Minus2	165973	CurrentYearMinus2
Current Year Minus1	257023	CurrentYearMinus1
Current Year	572513	CurrentYear
Total	1146188	Total

Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	250000	CurrentYearMinus3
Current Year Minus2	250000	CurrentYearMinus2
Current Year Minus1	250000	CurrentYearMinus1
Current Year	250000	CurrentYear
Total	1000000	Total

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmount

Grassroots Lobbying Expenditures GrassrootsLobbyingExpenditures

Field	Value	IRS element (for citing)
Current Year Minus3	14000	CurrentYearMinus3
Current Year Minus2	14000	CurrentYearMinus2
Current Year Minus1	11250	CurrentYearMinus1
Current Year	91903	CurrentYear
Total	131153	Total

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amts		ArtPublicExhibitionAmts
Held Works Of Art Amts		HeldWorksOfArtAmts
Current Year Minus3 Years		CurrentYearMinus3Years
Land		Land
Buildings		Buildings

Leasehold Improvements LeaseholdImprovements

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	1529793	OtherCostOrOtherBasis
Depreciation	506968	Depreciation
Book Value	1022825	BookValue

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	6826580	OtherCostOrOtherBasis
Depreciation	5269341	Depreciation
Book Value	1557239	BookValue

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildings
Total Of Book Value Land Buildings	2580064	TotalOfBookValueLandBuildings
Financial Derivatives		FinancialDerivatives
Closely Held Equity Interests		CloselyHeldEquityInterests

Other Securities OtherSecurities (3 entries)

DescriptionDescription	Book ValueBookValue	Method Of ValuationMethodOfValuation
OTHER INVESTMENT FUNDS	9643597	F
MARKETABLE ALT. INV. FUNDS	29566347	F
INTEREST IN PERPETUAL TRUSTS	3309541	F

Field	Value	IRS element (for citing)
Total Of Book Value Securities	42519485	TotalOfBookValueSecurities
Federal Income Tax Liability	0	FederalIncomeTaxLiability

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
Description	INTERCOMPANY PAYABLE	Description
Amount	$5,113,946	Amount

Field	Value	IRS element (for citing)
Total Of Amounts	5113946	TotalOfAmounts

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	true	GrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable (2 entries)

RegionRegion	Number Of OfficesNumberOfOffices	Number Of EmployeesNumberOfEmployees	Type Of Activities ConductedTypeOfActivitiesConducted	Specific Services ProvidedSpecificServicesProvided	Total ExpendituresTotalExpenditures
North America	0	0	Grantmaking	NONE	192831
Europe (Including Iceland and Greenland)	0	0	Grantmaking	none	43200

Field	Value	IRS element (for citing)
Subtotal Number Of Offices	0	SubtotalNumberOfOffices
Subtotal Number Of Employees	0	SubtotalNumberOfEmployees
Total Number Of Offices	0	TotalNumberOfOffices
Total Number Of Employees	0	TotalNumberOfEmployees
Subtotal Amount Spent	236031	SubtotalAmountSpent
Total Amount Spent	236031	TotalAmountSpent

Grants To Orgs Outside US GrantsToOrgsOutsideUS (3 entries)

RegionRegion	Purpose Of GrantPurposeOfGrant	Amount Of Cash GrantAmountOfCashGrant	Manner Of Cash DisbursementMannerOfCashDisbursement
North America	RESEARCH	96166	CHECK
North America	PILOT STUDIES	96665	CHECK
Europe/Iceland/Greenland	PILOT STUDIES	43200	WIRE

Field	Value	IRS element (for citing)
Total Number Of501c3 Orgs	3	TotalNumberOf501c3Orgs
Transfer To Foreign Corp	false	TransferToForeignCorp
Interest In Foreign Trust	false	InterestInForeignTrust
Own Foreign Corp	false	OwnForeignCorp
Passive Foreign Invest Co	false	PassiveForeignInvestCo
Foreign Partnership	false	ForeignPartnership
Boycott Countries	false	BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

Field	Value	IRS element (for citing)
Identifier	Procedures for monitoring grant funds outside of the U.S.	Identifier
Return Reference	Schedule F, Part I, Line 2	ReturnReference
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. the cf foundation's internal auditors conduct audits on samples of grant expenditure reports by examining supporting records from the sponsored institutions.	Explanation

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (283 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	IRC SectionIRCSection	Amount Of Cash GrantAmountOfCashGrant	Purpose Of GrantPurposeOfGrant	Address Line2AddressUS/AddressLine2
Advocate Hope Children's Hospital
4440 West 95th Street	Oak Lawn	IL	60453	362169147	501c(3)	44097	CF CARE CENTER
Agile Sciences Inc
840 Main Campus Drive	Raleigh	NC	27606	208755458	CORP	75000	RESEARCH	Lab 3550
Albany Medical College
Elsmere A-107	Albany	NY	12208	141338310	501c(3)	91870	CF CARE CENTER
Alfred I Dupont Institute of the Nemours Foundati
1600 Rockland Road	Wilmington	DE	19899	590634433	501c(3)	48935	CF CARE CENTER
All Children's Hospital
Dept 9010	St Petersburg	FL	33731	590683252	501c(3)	98890	CF CARE CENTER	PO Box 269
Arizona Board of Regents University of Arizona
Sponsored Projects Services	Tucson	AZ	857223308	742652689	501c(3)	54685	CF CARE CENTER	PO Box 31020
Arizona Board of Regents University of Arizona
Sponsored Projects Services	Tucson	AZ	857223308	742652689	501c(3)	27000	QUALITY IMPROVEMENT	888 N Euclid Room 510
Arkansas Children's Hospital Research Institute I
800 Marshall Street	Little Rock	AR	72202	710694931	501c(3)	76795	CF CARE CENTER	888 N Euclid Room 510
Asthma and Allergy Specialists PA
411 Billings Road	Charlotte	NC	28211	561913043	CORP	33140	CF CARE CENTER	Slot 512-17
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	202088165	501c(3)	68435	CF CARE CENTER	Suite 104
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	521958352	501c(3)	21600	QUALITY IMPROVEMENT
Baylor College of Medicine
PO Box 1	Houston	TX	77212	741613878	501c(3)	228370	CF CARE CENTER
Baystate Medical Center (95-196)
759 Chestnut Street	Springfield	MA	01199	042790311	501c(3)	30655	CF CARE CENTER
Beth Israel Medical Center
Office of Grants Contracts	New York	NY	10038	135564934	501c(3)	61470	CF CARE CENTER
Billings Clinic
2800 10th Ave North	Billings	MT	59107	810231784	501c(3)	35000	CF CARE CENTER	160 Water Street 24th Floor
Board of Trustees Southern Illinois University
Division of Pulmonary Medicine	Springfield	IL	62794	376005961	501c(3)	6350	CF CARE CENTER
California Pacific Medical Center Research Institu
2200 Webster Street Room 405	San Francisco	CA	94115	940562680	501c(3)	17135	CF CARE CENTER	PO Box 19636
CAMC Health Education and Research Institute
PO Box 765	Charleston	WV	25323	550753754	501c(3)	16335	CF CARE CENTER
Carle FOUNDATION HOSPITAL
Department of Pediatrics	Urbana	IL	61801	371119538	501c(3)	10535	CF CARE CENTER
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067015	341018992	501c(3)	349281	RESEARCH CENTERS	602 W University Avenue
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067015	341018992	501c(3)	194400	RESEARCH
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067015	341018992	501c(3)	43600	RESEARCH STUDIES
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067015	341018992	501c(3)	43200	PILOT STUDIES
Central Florida Pulmonary Group
326 North Mills Avenue	Orlando	FL	32803	591760017	CORP	38305	CF CARE CENTER
Children's & Women's Physicians of Westchester
Pediatric Pulmonology	Valhalla	NY	10595	133956599	LLP	70345	CF CARE CENTER
Children's & Women's Physicians of Westchester
Pediatric Pulmonology	Valhalla	NY	10595	133956599	LLP	27000	ADULT CARE	Munger Pavilion Room 106
Children's Health Care
2525 Chicago Avenue SO	Minneapolis	MN	55404	411754276	501c(3)	36288	QUALITY IMPROVEMENT	Munger Pavilion Room 106
Children's Healthcare of Atlanta
1001 Johnson Ferry Road North	Atlanta	GA	30342	582367819	501c(3)	78095	CF CARE CENTER	32-2210
Children's Hospital & Research Center at Oakland
747 52nd Street	Oakland	CA	94609	940382330	501c(3)	33260	CF CARE CENTER
Children's Hospital Central California
9300 Valley Childrens Place	Madera	CA	93638	941294954	501c(3)	54380	CF CARE CENTER
Children's Hospital Colorado
13123 East 16th Ave	Aurora	CO	80045	840166760	501c(3)	175855	CF CARE CENTER
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	246955	CF CARE CENTER
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	100250	TRAINING
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	43600	RESEARCH STUDIES
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	21600	QUALITY IMPROVEMENT
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	443081062	340714357	501c(3)	108695	CF CARE CENTER
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	443081062	340714357	501c(3)	27000	QUALITY IMPROVEMENT
Children's Hospital Medical Center Cincinnati
Research Accounting	Cincinnati	OH	45229	310833936	501c(3)	375920	RESEARCH CENTERS
Children's Hospital Medical Center Cincinnati
Research Accounting	Cincinnati	OH	45229	310833936	501c(3)	106530	CF CARE CENTER	3333 Burnet Avenue
Children's Hospital Medical Center Cincinnati
Research Accounting	Cincinnati	OH	45229	310833936	501c(3)	97750	TRAINING	3333 Burnet Avenue
Children's Hospital of Michigan
3663 Woodward Ave S Ste 200	Detroit	MI	48201	381357994	501c(3)	73040	CF CARE CENTER	3333 Burnet Avenue
Children's Hospital of Orange County
PO Box 5700	Orange	CA	926135700	952321786	501c(3)	43625	CF CARE CENTER
Children's Hospital of Pittsburgh
3705 Fifth Avenue	Pittsburgh	PA	15213	250402510	501c(3)	216050	CF CARE CENTER
Children's Hospital of Pittsburgh
3705 Fifth Avenue	Pittsburgh	PA	15213	250402510	501c(3)	48000	TRAINING
Children's Hospital Los Angeles
Research Institute	Los Angeles	CA	90027	951690977	501c(3)	68420	CF CARE CENTER
Children's Lung Specialists
3838 Meadows Lane	Las Vegas	NV	89107	880271963	501c(3)	76075	CF CARE CENTER	4650 Sunset Blvd
Children's Medical Center
One Childrens Plaza	Dayton	OH	454041815	310672132	501c(3)	78210	CF CARE CENTER
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	120538	CF CARE CENTER
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	100250	TRAINING
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	96851	RESEARCH
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	48600	QUALITY IMPROVEMENT
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	43200	PILOT STUDIES
Children's Mercy Hospital
2401 Gillham Road	Kansas City	MO	64108	440605376	501c(3)	112355	CF CARE CENTER
Children's National Medical Center
111 Michigan Avenue NW	Washington	DC	20010	521640403	501c(3)	75395	CF CARE CENTER
Children's National Medical Center
111 Michigan Avenue NW	Washington	DC	20010	521654453	501c(3)	21600	QUALITY IMPROVEMENT
Children's Respiratory Center
58 Bear Drive	Greenville	SC	29605	570971539	CORP	25780	CF CARE CENTER
Children's Specialty Group PLLC
601 Childrens Lane	Norfolk	VA	23507	541871633	501c(3)	74770	CF CARE CENTER
Christus Santa Rosa Healthcare
333 North Santa Rosa	San Antonio	TX	78207	741109665	501c(3)	86985	CF CARE CENTER
Colorado State University Cashier's Office
Sponsored Programs	Fort Collins	CO	805232002	846000545	501c(3)	43186	PILOT STUDIES
Connecticut Children's Medical Center
282 Washington Street	Hartford	CT	06106	060646755	501c(3)	46670	CF CARE CENTER	Campus Delivery Box 2002
Cook Children's Medical Center CF Center
801 Seventh Avenue	Ft Worth	TX	76104	752051646	501c(3)	117630	CF CARE CENTER
Daughters of Charity Health Services of Austin
4900 Mueller Blvd	Austin	TX	78723	741109643	501c(3)	64470	CF CARE CENTER
Drexel University College of Medicine
St Christophers Hospital for Chil	Philadelphia	PA	191291191	232979433	501c(3)	77870	CF CARE CENTER
Drexel University College of Medicine
245 N 15th Street	Philadelphia	PA	191291191	232979433	501c(3)	21600	QUALITY IMPROVEMENT
Duke University Medical Center
Office of Sponsored Programs	Durham	NC	27710	560532129	501c(3)	55235	CF CARE CENTER	Mailstop 107
East Tennessee Children's Hospital Association I
2100 Clinch Avenue 310	Knoxville	TN	37916	626002604	501c(3)	68685	CF CARE CENTER	Box 104025
Eastern Maine Medical Center
417 State Street	Bangor	ME	04401	010211501	501c(3)	25375	CF CARE CENTER
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	202790	CF CARE CENTER	Suite 305
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	48000	TRAINING
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	14035	ADULT CARE
Erlanger Health System
975 East Third Street	Chattanooga	TN	37403	626000101	501c(3)	30675	CF CARE CENTER
Fletcher Allen Health Care
111 Colchester Ave	Burlington	VT	05401	030219309	501c(3)	75725	CF CARE CENTER
Fletcher Allen Health Care
111 Colchester Ave	Burlington	VT	05401	030219309	501c(3)	21600	QUALITY IMPROVEMENT
Geisinger Medical Center
Pediatric Allergy Immunology Pul	Danville	PA	17822	236291113	501c(3)	52305	CF CARE CENTER
Georgia Health Sciences University
1120 15th Street	Augusta	GA	309128300	586002053	501c(3)	83305	CF CARE CENTER	100 N Academy Drive
Good Samaritan Hospital
1000 Montauk Highway	New York	NY	11795	111888924	501c(3)	5900	CF CARE CENTER
Gundersen Lutheran Medical Foundation
1900 South Avenue	La Crosse	WI	54601	391249705	501c(3)	14445	CF CARE CENTER
Hartford Hospital
Department of Medicine	Hartford	CT	06102	060646668	501c(3)	33000	CF CARE CENTER
Hartford Hospital
Department of Medicine	Hartford	CT	06102	060646668	501c(3)	27000	ADULT CARE	80 Seymour Street
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	Rockville	MD	20852	521317896	501c(3)	96237	RESEARCH	80 Seymour Street
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	Rockville	MD	20852	521317896	501c(3)	38505	CF CARE CENTER
Indiana University (Indianapolis)
Indiana University Research and Spo	Indianapolis	IN	462025167	356001673	501c(3)	49445	TRAINING
Iowa Health Foundation
1440 Ingersoll Avenue	Des Moines	IA	50309	426004813	501c(3)	169710	CF CARE CENTER
Johns Hopkins University School of Medicine
1830 E Monument Street 5th Floor	Baltimore	MD	21205	520595110	501c(3)	85950	RESEARCH
Johns Hopkins University School of Medicine
1830 E Monument Street 5th Floor	Baltimore	MD	21205	520595110	501c(3)	68250	TRAINING
Kaiser Foundation Hospitals Center for Health Res
3800 North Interstate Avenue	Portland	OR	97227	911105628	501c(3)	27000	ADULT CARE
Kaiser Foundation Hospitals Center for Health Res
3800 North Interstate Avenue	Portland	OR	97227	911105628	501c(3)	24500	CF CARE CENTER
Kaiser Foundation Research Institute
1800 Harrison Street	OAKLAND	CA	94612	941105628	501c(3)	130725	CF CARE CENTER
Kaleida Health
219 Bryant Street	Buffalo	NY	14209	161533232	501c(3)	85710	CF CARE CENTER	16th floor
Landon Pediatric Foundation
3291 Loma Vista Road	Ventura	CA	93003	931097216	501c(3)	21985	CF CARE CENTER
Lehigh Valley Hospital
Pediatric Specialty Center	Bethlehem	PA	18017	231689692	501c(3)	9314	CF CARE CENTER	Building 340 Suite 302
Loma Linda University Medical Center
Coleman Pavilion	Loma Linda	CA	92350	330672915	501c(3)	49900	CF CARE CENTER	2545 Schoenersville Road
Long Beach Memorial Medical Center
2801 Atlantic Avenue	Long Beach	CA	90806	956105984	501c(3)	97490	CF CARE CENTER	PO Box 2000
Long Island Jewish Medical Center
Finance Department	Westbury	NY	11590	112241326	501c(3)	85780	CF CARE CENTER
Long Island Jewish Medical Center
Finance Department	Westbury	NY	11590	112241326	501c(3)	27000	ADULT CARE	972 Brushhollow Road
Loyola University of Chicago
2160 S First Avenue	Maywood	IL	60153	361408475	501c(3)	31835	CF CARE CENTER	972 Brushhollow Road
LSUMC - Shreveport
P O Box 33932	Shreveport	LA	71130	720702002	501c(3)	73150	CF CARE CENTER
Lutheran Hospital of Indiana
7950 West Jefferson Boulevard	FT Wayne	IN	46804	351963748	LTD. PTR.	29130	CF CARE CENTER
Maine Medical Center
22 Bramhall Street	Portland	ME	04102	010238552	501c(3)	82865	CF CARE CENTER
Marshall University Research Corporation
401 11th Street Suite 1400	Huntington	WV	25701	550683361	501c(3)	97200	RESEARCH
Marshfield Clinic Research Foundation
1000 North Oak Avenue	Marshfield	WI	54449	390452970	501c(3)	14392	CF CARE CENTER
Mary Bridge Children's Foundation
311 South L Street	Tacoma	WA	98405	943030039	501c(3)	33440	CF CARE CENTER
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501c(3)	83755	CF CARE CENTER	Mailstop B1-OC
Miami Children's Hospital
MOB 203	Miami	FL	33155	590638499	501c(3)	26565	CF CARE CENTER
Michigan State University
301 Administration Bldg	East Lansing	MI	488241046	386005984	501c(3)	22745	CF CARE CENTER	3200 SW 60th Court
Michigan State UniversityKCMS
1000 Oakland Drive	Kalamazoo	MI	49001	382015695	501c(3)	24190	CF CARE CENTER
Mission Healthcare Foundation Inc
980 Hendersonville Road	Asheville	NC	28803	561881331	501c(3)	17584	CF CARE CENTER
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501c(3)	61185	CF CARE CENTER	Suite C
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501c(3)	27000	QUALITY IMPROVEMENT
Mount Sinai School of Medicine
One Gustave L Levy Place	New York	NY	10029	136171197	501c(3)	11120	CF CARE CENTER
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	104745	CF CARE CENTER	Box 3500
Nemours Children's Clinic Jacksonville
807 Nira Street	Jacksonville	FL	32207	590634433	501c(3)	148325	CF CARE CENTER
Nemours Children's Clinic Jacksonville
807 Nira Street	Jacksonville	FL	32207	590634433	501c(3)	27000	QUALITY IMPROVEMENT
New York Medical College
40 Sunshine Cottage Road	Valhalla	NY	10595	131099420	501c(3)	27000	QUALITY IMPROVEMENT
North Suburban Pulmonary Research and Education
8780 W Gold	Niles	IL	60714	364393617	501c(3)	8000	CF CARE CENTER
Northwestern Medical Faculty Foundation
Financial Services	Chicago	IL	60611	363097297	501c(3)	8000	CF CARE CENTER	Suite 102
Northwestern University
750 N Lake Shore Drive	Chicago	IL	606113008	362167817	501c(3)	21659	ADULT CARE	680 N Lake Shore Dr Suite 1118
Northwestern University
750 N Lake Shore Drive	Chicago	IL	606113008	362167817	501c(3)	21600	QUALITY IMPROVEMENT	Rubloff 7th Floor
Oregon Health & Science University
Sponsored Projects Administration O	Portland	OR	97239	931176109	501c(3)	140950	CF CARE CENTER	Rubloff 7th Floor
Pediatric Specialty
Saint Barnabas Medical Center	Livingston	NJ	07039	221494440	501c(3)	21905	CF CARE CENTER	0690 SW Bancroft Street
Pennsylvania State University
College of Medicine	Hershey	PA	17033	246000376	501c(3)	99440	CF CARE CENTER	Pediatric Pulmonary Division
Phoenix Children's Hospital
1300 North 12th Street	Phoenix	AZ	85006	860422559	501c(3)	83815	CF CARE CENTER	Office of Research Affairs H138
Providence Alaska Medical Center
3200 Providence Drive	Anchorage	AK	995196604	920016429	501c(3)	27995	CF CARE CENTER
Providence Physician Service
101 W 8th Ave	Spokane	WA	99204	911216033	CORP	57380	CF CARE CENTER	PO Box 196604
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501c(3)	166376	TRAINING
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501c(3)	75000	RESEARCH	F428 Fitzsimons Building 500
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501c(3)	21600	QUALITY IMPROVEMENT	F428 Fitzsimons Building 500
Rhode Island Hospital
593 Eddy Street	Providence	RI	02903	050258954	501c(3)	54935	CF CARE CENTER	F428 Fitzsimons Building 500
Rosalind Franklin University of Medicine and Scien
3333 Green Bay Road	North Chicago	IL	60064	362181973	501c(3)	179886	RESEARCH
Rush University Medical Center
1725 West Harrison Suite 718	Chicago	IL	60612	362174823	501c(3)	40130	CF CARE CENTER
Saint Francis Medical Center
530 NE Glen Oak Avenue	Peoria	IL	61637	370662569	501c(3)	47355	CF CARE CENTER
Saint Joseph's Hospital and Medical Center
703 Main Street	Paterson	NJ	07503	221487602	501c(3)	16145	CF CARE CENTER
Samaritan Medical Center
Child Adolescent Health Services	Watertown	NY	13601	150533577	501c(3)	9210	CF CARE CENTER
Sanford Children's Specialty Clinic
1305 W 18th Street	Sioux Falls	SD	571175039	460447693	501c(3)	54745	CF CARE CENTER	513 Washington Street
Seattle Children's Hospital
4800 Sand Point Way NE MS T-0111	Seattle	WA	98105	910564748	501c(3)	43200	PILOT STUDIES
Seattle Children's Hospital
4800 Sand Point Way NE MS T-0111	Seattle	WA	98105	910564748	501c(3)	9288	QUALITY IMPROVEMENT
Seattle Children's Hospital Foundation
6901 Sand Point Way NE	Seattle	WA	981050371	910564748	501c(3)	93510	CF CARE CENTER
South Broward Hospital District
Joe DiMaggios Childrens Hospital	Hollywood	FL	33321	596014973	501c(3)	47580	CF CARE CENTER
Spectrum Health
Downtown Campus	Grand Rapids	MI	49503	382752328	501c(3)	114775	CF CARE CENTER	Cystic Fibrosis Clinic
Spectrum Health
Downtown Campus	Grand Rapids	MI	49503	382752328	501c(3)	21600	QUALITY IMPROVEMENT	100 Michigan Street NE MC 004
St Alexius Medical Center
PO Box 1658	Bismarck	ND	58502	450226711	501c(3)	26925	CF CARE CENTER	100 Michigan Street NE MC 004
St Joseph's Regional Medical Center Inc
720 East Cedar Street	South Bend	IN	46617	351568821	501c(3)	19110	CF CARE CENTER
St Louis University
3500 Lindell Blvd	St Louis	MO	63103	430654872	501c(3)	83130	CF CARE CENTER	Suite 440
St Louis University
3500 Lindell Blvd	St Louis	MO	63103	430654872	501c(3)	27000	QUALITY IMPROVEMENT
St Luke's Regional Medical Center
100 East Idaho	Boise	ID	83712	820161600	501c(3)	41015	CF CARE CENTER
Stanford University
651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	194400	RESEARCH	Suite 200
Stanford University
651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	145415	CF CARE CENTER	Mail Code 5402
Stanford University
651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	42500	RESEARCH STUDIES	Mail Code 5402
Sutter Medical Center Sacramento
5609 J Street Suite C	Sacramento	CA	95819	941156621	501c(3)	48140	CF CARE CENTER	Mail Code 5402
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	West Palm Beach	FL	33407	752932830	CORP	37190	CF CARE CENTER
The Children's Hospital at Scott & White
2401 South 31st Street	Temple	TX	76508	741166904	501c(3)	15000	CF CARE CENTER	901 45th Street
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Philadelphia	PA	191044318	231352166	501c(3)	113022	CF CARE CENTER
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	172200	RESEARCH
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	63710	CF CARE CENTER	310 Jesse Hall
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	45800	RESEARCH STUDIES	310 Jesse Hall
The General Hospital Corporation (aka Massachus
Mass General Research Finance	Boston	MA	02114	042697983	501c(3)	125000	RESEARCH	310 Jesse Hall
The General Hospital Corporation (aka Massachus
Mass General Research Finance	Boston	MA	02114	042697983	501c(3)	97213	TRAINING	PO Box 414876
The General Hospital Corporation (aka Massachus
Mass General Research Finance	Boston	MA	02114	042697983	501c(3)	96700	CF CARE CENTER	PO Box 414876
The Hitchcock Foundation
One Medical Center Drive	Lebanon	NH	03756	020222139	501c(3)	92320	CF CARE CENTER	PO Box 414876
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	217640	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	87867	RESEARCH CENTERS
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	9288	QUALITY IMPROVEMENT
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501c(3)	124545	CF CARE CENTER
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501c(3)	27000	QUALITY IMPROVEMENT
The Ohio State University Research Foundation
1960 Kenny Road	Columbus	OH	432101063	316401599	501c(3)	97200	RESEARCH
The Ohio State University Research Foundation
1960 Kenny Road	Columbus	OH	432101063	316401599	501c(3)	42201	RESEARCH STUDIES
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	193276	RESEARCH
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	104285	CF CARE CENTER
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	43600	RESEARCH STUDIES
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	27000	ADULT CARE
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	21196	QUALITY IMPROVEMENT
The Regents of the University of California Davis
Cashiers Office 1200 Dutton Hall	Davis	CA	95616	956036494	501c(3)	69255	CF CARE CENTER
The Regents of the University of California Los A
UCLA Office of Contract and Grant A	Los Angeles	CA	900241406	956006143	501c(3)	43200	PILOT STUDIES	One Shields Avenue
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501c(3)	107176	CF CARE CENTER	10920 Wilshire Blvd Suite 200
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501c(3)	43200	PILOT STUDIES	9500 Gilman Drive Dept 0934
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501c(3)	27000	ADULT CARE	9500 Gilman Drive Dept 0934
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	460000	RESEARCH CENTERS	9500 Gilman Drive Dept 0934
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	79895	CF CARE CENTER	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	52250	TRAINING	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	27000	ADULT CARE	3333 California Street Suite 315
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	206670	CF CARE CENTER	3333 California Street Suite 315
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	43200	QUALITY IMPROVEMENT
The Regents of the University of Minnesota
Sponsored Projects Administration	Minneapolis	MN	554552070	416007513	501c(3)	321220	CF CARE CENTER
The Research Institute at Nationwide Children's H
Huntington National Bank	Columbus	OH	43260	316056230	501c(3)	200120	CF CARE CENTER	200 Oak St SE
The Research Foundation of SUNY
P O Box 9	Albany	NY	122010009	141368361	501c(3)	120926	CF CARE CENTER	Dept 4656 / Ref 413407
The Research Foundation of SUNY on behalf of Unive
211 UB Commons	Amherst	NY	14228	141368361	501c(3)	27000	ADULT CARE
The Research Foundation of SUNY on behalf of Unive
211 UB Commons	Amherst	NY	14228	141368361	501c(3)	8000	CF CARE CENTER	520 Lee Entrance
The Research Institute at Nationwide Children's Ho
Huntington National Bank	Columbus	OH	43260	316056230	501c(3)	27000	ADULT CARE	520 Lee Entrance
The Tampa General Hospital Foundation
PO Box 1289	Tampa	FL	33601	277354477	501c(3)	53430	CF CARE CENTER	Dept 4656 / Ref 413407
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	123590	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	48000	TRAINING
The University of Alabama at Birmingham
AB 990	Birmingham	AL	352940109	636005396	501c(3)	500000	RESEARCH CENTERS
The University of Alabama at Birmingham
AB 990	Birmingham	AL	352940109	636005396	501c(3)	142639	CF CARE CENTER	1530 3rd Avenue S
The University of Chicago
5801 S Ellis Avenue	Chicago	IL	60637	362177139	501c(3)	53825	CF CARE CENTER	1530 3rd Avenue S
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	460000	RESEARCH CENTERS
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	253276	CF CARE CENTER	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	444400	RESEARCH	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	86400	PILOT STUDIES	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	73400	TRAINING	Office of Sponsored Research
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	43738	RESEARCH STUDIES	Office of Sponsored Research
The University of Texas at Austin
P O Box 7726	Austin	TX	787137726	746000203	501c(3)	92867	RESEARCH	Office of Sponsored Research
The University of Texas at Austin
P O Box 7726	Austin	TX	787137726	746000203	501c(3)	7423	RESEARCH STUDIES
The University of Vermont and State Agricultural C
85 So Prospect Street	Burlington	VT	054050160	030179440	501c(3)	27000	ADULT CARE
Toledo Children's Hospital
2142 N Cove Blvd	Toledo	OH	43606	344428256	501c(3)	82770	CF CARE CENTER
Trustees of Boston University
881 Commonwealth Avenue	Boston	MA	02215	042103547	501c(3)	43200	PILOT STUDIES
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	346667	RESEARCH CENTERS
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	233833	QUALITY IMPROVEMENT
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	159528	PATIENT REGISTRY
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	41872	PILOT STUDIES
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	27000	ADULT CARE
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501c(3)	186435	CF CARE CENTER
Trustees of Indiana University
Financial Management Services	Bloomington	IN	462666057	356001673	501c(3)	18810	QUALITY IMPROVEMENT	PO Box 66057
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501c(3)	97200	RESEARCH	PO Box 66057
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501c(3)	75048	RESEARCH CENTERS
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501c(3)	27000	ADULT CARE
Trustees of the University of Pennsylvania
133 South 36th Street Mezzanine	Philadelphia	PA	191043246	231352685	501c(3)	21600	QUALITY IMPROVEMENT
Trustees of the University of Pennsylvania on beha
3451 Walnut Street	Philadelphia	PA	19104	231352685	501c(3)	68670	CF CARE CENTER
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501c(3)	88315	CF CARE CENTER	Franklin Bldg P-221
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501c(3)	27000	ADULT CARE
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501c(3)	15917	QUALITY IMPROVEMENT
UMDNJ- Robert Wood Johnson Medical School
UMDNJ	New Brunswick	NJ	08903	221775306	501c(3)	66905	CF CARE CENTER
University Hospitals of Cleveland
2074 Abingdon Road	Cleveland	OH	44106	340714775	501c(3)	149820	CF CARE CENTER	1 Robert Wood Johnson Place
University Hospitals of Cleveland
2074 Abingdon Road	Cleveland	OH	44106	340714775	501c(3)	26966	QUALITY IMPROVEMENT
University of Arkansas for Medical Sciences
4301 West Markham Street	Little Rock	AR	72205	716046242	501c(3)	45000	CF CARE CENTER
University of Cincinnati
560 University Hall	Cincinnati	OH	45221	316000989	501c(3)	59000	TRAINING	Mail Slot 555
University of Cincinnati Physicians Company
231 Albert Sabin Way	Cincinnati	OH	452670564	311405915	501c(3)	51440	CF CARE CENTER	Sponsored Programs Accounting Dept
University of Florida
PO Box 115500	Gainsville	FL	32611	596002052	501c(3)	88440	CF CARE CENTER	MSB 60048
University of Florida
PO Box 115500	Gainesville	FL	32611	596002052	501c(3)	27000	ADULT CARE
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	500000	RESEARCH CENTERS
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	67677	TRAINING	Division of Sponsored Programs
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	45500	RESEARCH	Division of Sponsored Programs
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard	Kansas City	KS	661607702	481108830	501c(3)	52030	CF CARE CENTER	Division of Sponsored Programs
University of Kentucky Research Foundation
Kentucky CF Clinic J424	Lexington	KY	405360284	616033693	501c(3)	105550	CF CARE CENTER
University of Louisville Research Foundation Inc
Office of Grants Management	Louisville	KY	40292	611029626	501c(3)	88180	CF CARE CENTER	740 South Limestone
University of Louisville Research Foundation Inc
Office of Grants Management	Louisville	KY	40292	611029626	501c(3)	21600	QUALITY IMPROVEMENT	Jouett Hall Belknap Campus
University of Massachusetts Medical Center
55 Lake Avenue	Worcester	MA	10655	043167352	501c(3)	64296	CF CARE CENTER	Jouett Hall Belknap Campus
University of Miami
Pediatric/Pulmonary Division	Miami	FL	33137	590624458	501c(3)	57655	CF CARE CENTER
University of Miami
Pediatric/Pulmonary Division	Miami	FL	33137	590624458	501c(3)	26855	QUALITY IMPROVEMENT	1601 NW 12th Avenue
University of Mississippi Medical Center
2500 North State Street	Jackson	MS	392164505	646008520	501c(3)	64759	CF CARE CENTER	1601 NW 12th Avenue
University of Mississippi Medical Center
2500 North State Street	Jackson	MS	392164505	646008520	501c(3)	27000	ADULT CARE
University of Nebraska Medical Center
Service Building	Omaha	NE	681987835	470049123	501c(3)	133610	CF CARE CENTER
University of Nebraska Medical Center
Service Building	Omaha	NE	681987835	470049123	501c(3)	27000	QUALITY IMPROVEMENT	985100 Nebraska Medical Center
University of New Mexico Health Sciences Center
Controllers Office	Albuquerque	NM	871315041	856000642	501c(3)	67000	CF CARE CENTER	985100 Nebraska Medical Center
University of New Mexico Health Sciences Center
Controllers Office	Albuquerque	NM	871315041	856000642	501c(3)	21600	QUALITY IMPROVEMENT	Health Sciences and Services Bldg
University of Oklahoma Health Sciences Center
PO Box 26901	Oklahoma City	OK	73190	736017987	501c(3)	113615	CF CARE CENTER	Health Sciences and Services Bldg
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	460000	RESEARCH CENTERS
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	176600	RESEARCH STUDIES
University of Rochester
1325 Mt Hope Avenue	Rochester	NY	14642	160743209	501c(3)	80790	CF CARE CENTER
University of Rochester
1325 Mt Hope Avenue	Rochester	NY	14642	160743209	501c(3)	21600	QUALITY IMPROVEMENT	Suite 260
University of South Alabama
Admin Bldg 362	Mobile	AL	36688	630477348	501c(3)	19280	CF CARE CENTER	Suite 260
University of South Carolina Research Foundation
901 Sumter Street	Columbia	SC	29208	570967350	501c(3)	35080	CF CARE CENTER
University of South Florida
Department of Pediatrics	Tampa	FL	33606	593102112	501c(3)	27025	CF CARE CENTER	Suite 501
University of Southern California
USC Contracts and Grants	Los Angeles	CA	900339002	951642394	501c(3)	83455	CF CARE CENTER	17 Davis Boulevard Suite 200
University of Southern California
USC Contracts and Grants	Los Angeles	CA	900339002	951642394	501c(3)	27000	ADULT CARE	1540 Alcazar Street
University of Tennessee
62 S Dunlap	Memphis	TN	38163	626001636	501c(3)	65070	CF CARE CENTER	1540 Alcazar Street
University of Tennessee Medical Center
1940 Alcoa Hwy	Knoxville	TN	37920	311626179	501c(3)	18500	CF CARE CENTER
University of Texas Health Center at Tyler
11937 US Hwy 271	Tyler	TX	75708	756001354	501c(3)	30000	CF CARE CENTER	Suite E-110
University of Texas Health Center at Tyler
11937 US Hwy 271	Tyler	TX	75708	756001354	501c(3)	21600	QUALITY IMPROVEMENT
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501c(3)	190685	CF CARE CENTER
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501c(3)	35965	PILOT STUDIES
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	500000	RESEARCH CENTERS
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	194400	RESEARCH	3917 University Way NE
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	76340	CF CARE CENTER	3917 University Way NE
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	43200	PILOT STUDIES	3917 University Way NE
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	41060	RESEARCH STUDIES	3917 University Way NE
University of Wisconsin Board of Regents
750 University Avenue	Madison	WI	53706	396006492	501c(3)	142328	CF CARE CENTER	3917 University Way NE
University of Wisconsin Board of Regents
750 University Avenue	Madison	WI	53706	396006492	501c(3)	50171	QUALITY IMPROVEMENT
University of Wisconsin Board of Regents
750 University Avenue	Madison	WI	53706	396006492	501c(3)	49750	TRAINING
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	501c(3)	165813	CF CARE CENTER
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	501c(3)	43200	PILOT STUDIES
Vanderbilt University Medical Center
PO Box 30195	Nashville	TN	372410195	620476822	501c(3)	162235	CF CARE CENTER
Vanderbilt University Medical Center
PO Box 30195	Nashville	TN	372410195	620476822	501c(3)	9288	QUALITY IMPROVEMENT
Via Christi Regional Medical Center CF Clinic
3311 East Murdock Street	Wichita	KS	67218	481172106	501c(3)	56895	CF CARE CENTER
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	232842506	546001758	501c(3)	61685	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	271571064	223849199	501c(3)	55150	CF CARE CENTER
Washington University
Campus Box 1034	St Louis	MO	631121408	430653611	501c(3)	209385	CF CARE CENTER
Washington University
Campus Box 1034	St Louis	MO	631121408	430653611	501c(3)	21600	QUALITY IMPROVEMENT	700 Rosedale Avenue
Wayne State University
Grants Contracts Office III	Detroit	MI	48201	386028425	501c(3)	48040	CF CARE CENTER	700 Rosedale Avenue
Weill Medical College of Cornell University
Whitney Pavilion Rm W-706	New York	NY	10021	150532082	501c(3)	45800	RESEARCH STUDIES	Research and Sponsored Programs
West Virginia University Research Corporation
West Virginia University	Morgantown	WV	265066001	550665758	501c(3)	63551	CF CARE CENTER	1300 York Avenue Box 62
West Virginia University Research Corporation
West Virginia University	Morgantown	WV	265066001	550665758	501c(3)	27000	ADULT CARE	PO Box 6001
Yale University
Cashier Office of the Asst Treasu	New Haven	CT	065208231	060646973	501c(3)	64350	CF CARE CENTER	PO Box 6001
CYSTIC FIBROSIS FOUNDATION THERAPUETICS
6931 ARLINGTON ROAD SUITE 200	BETHESDA	MD	20814	912059167	501C(3)	49932523	GENERAL SUPPORT

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	171	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	8	TotalNbrOfOtherOrganizations

Form990 Schedule I Part III Form990ScheduleIPartIII (2 entries)

Type Of GrantTypeOfGrant	Number Of RecipientsNumberOfRecipients	Amount Of Cash GrantAmountOfCashGrant
PATIENT ASSISTANCE PROGRAM	646	1205234
FELLOWSHIPS	4	7008

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.	Identifier
Return Reference	PART I, LINE 2	ReturnReference
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO ENSURE PROGRESS HAS BEEN ATTAINED. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLEs OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.	Explanation

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	X	CompensationCommittee
Independent Consultant	X	IndependentConsultant
Form990 Of Other Organizations	X	Form990OfOtherOrganizations
Written Employment Contract	X	WrittenEmploymentContract
Compensation Survey	X	CompensationSurvey
Board Or Committee Approval	X	BoardOrCommitteeApproval
Severance Payment	false	SeverancePayment
Supplemental Nonqual Retire Plan	true	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	false	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	false	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	false	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	false	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	false	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	false	AnyNonFixedPayments
Initial Contract Exception	false	InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII (11 entries)

Base Compensation Filing OrgBaseCompensationFilingOrg	Comp Based On Related OrgsCompBasedOnRelatedOrgs	Bonus Filing OrgBonusFilingOrg	Bonus Related OrgsBonusRelatedOrgs	Other Compensation Filing OrgOtherCompensationFilingOrg	Other Compensation Related OrgsOtherCompensationRelatedOrgs	Deferred Comp Filing OrgDeferredCompFilingOrg	Deferred Comp Related OrgsDeferredCompRelatedOrgs	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg	Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs	Total Compensation Filing OrgTotalCompensationFilingOrg	Total Compensation Related OrgsTotalCompensationRelatedOrgs	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg	Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs
Robert J Beall PhD
333873	168556	117753	57997	25439	7935	238007	104851	19314	0	734386	339339	0	0
C Richard Mattingly
358018	0	95553	0	21749	0	267345	0	17114	0	759779	0	0	0
Preston W Campbell MD
229481	118606	65596	32309	15701	5445	170443	71573	26877	0	508098	227933	0	0
Vera H Twigg
244233	0	62993	0	18002	0	93694	0	26261	0	445183	0	0	0
Ann Palmer
201870	0	29864	0	1876	0	24116	0	18303	0	276029	0	0	0
Daniel Klein
221229	0	24863	0	2080	0	25128	0	4000	0	277300	0	0	0
Gregory August
184906	0	32893	0	399	0	22623	0	21877	0	262698	0	0	0
David McLoughlin
232199	0	34112	0	806	0	25128	0	23877	0	316122	0	0	0
Glen Goldmark
183193	0	28794	0	1650	0	21964	0	17614	0	253215	0	0	0
Amy DeMaria
180744	0	31869	0	377	0	21390	0	7292	0	241672	0	0	0
Mary Dwight
161126	0	34037	0	325	0	20867	0	29877	0	246232	0	0	0

Form990 Schedule J Part III Form990ScheduleJPartIII (2 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN	PART I, LINE 4B	CERTAIN PERSONS LISTED IN FORM 990, PART VII, SECTION A PARTICIPATE IN A NONQUALIFIED DEFERRED COMPENSATION PLAN, UNDER WHICH INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO DESIGNATED VESTING DATE. FURTHER INFORMATION ABOUT THE NONQUALIFIED DEFERRED COMPENSATION PLAN IN WHICH THOSE PERSONS PARTICIPATE IS PROVIDED IN THE ADDITIONAL INFORMATION FOR SCHEDULE J, PART II, BELOW.
COMPENSATION	PART II	CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $319,133, 401(K) BONUS - $14,740; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $117,753; (B)(III) OTHER REPORTABLE COMPENSATION: HEALTH INSURANCE BENEFIT - $2,912, AUTOMOBILE ALLOWANCE - $4,824, OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $17,703; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $25,128, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $147,219, SERP (3) - $65,660; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $10,968, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $4,000, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,346 CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: R. BEALL, PH.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $161,296, 401(K) BONUS - $7,260; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $57,997; (B)(III) OTHER REPORTABLE COMPENSATION: HEALTH INSURANCE BENEFIT - $1,434, AUTOMOBILE ALLOWANCE - $2,376, OTHER BENEFITS INCLUDING GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,125; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $72,511, SERP (3) - $32,340; (D) NONTAXABLE BENEFITS: $0 CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $229,481; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $65,596; (B)(III) OTHER REPORTABLE COMPENSATION: OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $4,646, SECTION 457(B) PLAN (5) - $11,055; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $25,128, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $108,374, SERP (4) - $36,941; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $15,552, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $5,000, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $6,325 CYSTIC FIBROSIS FOUNDATION THERAPEUTICS, INC. EIN 91-2059167. (A) NAME: P. CAMPBELL, M.D.; (B)(I) BASE COMPENSATION: BASE SALARY - $118,606; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $32,309; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $5,445; (C) DEFERRED COMPENSATION: LONG-TERM INCENTIVE PLAN BENEFIT (6) - $53,378, SERP (4) - $18,195; (D) NONTAXABLE BENEFITS: $0 CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. NAME: (A) R. MATTINGLY; (B)(I) BASE COMPENSATION: BASE SALARY - $358,018; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $95,553; (B)(III) OTHER REPORTABLE COMPENSATION: SECTION 457(B) PLAN (5) - $16,500; OTHER BENEFITS INCLUDING TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $5,249; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $25,128, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $163,713, SERP (4) - $78,504; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $10,968, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $1,800, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,346 CYSTIC FIBROSIS FOUNDATION - HEADQUARTERS. (A) NAME: V. TWIGG; (B)(I) BASE COMPENSATION: BASE SALARY - $244,233; (B)(II) BONUS & INCENTIVE COMPENSATION: ANNUAL INCENTIVE PLAN BENEFIT (1) - $62,993; (B)(III) OTHER REPORTABLE COMPENSATION: TAXABLE GENERAL ORGANIZATION GROUP TERM LIFE INSURANCE PREMIUM - $1,611, SECTION 457(B) PLAN (5) - $16,391; (C) DEFERRED COMPENSATION: RETIREMENT BENEFIT (2) - $25,128, LONG-TERM INCENTIVE PLAN BENEFIT (6) - $68,566; (D) NONTAXABLE BENEFITS: EMPLOYER CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $16,571, EMPLOYEE CONTRIBUTION TO FLEXIBLE SPENDING ACCOUNT BENEFIT - $5,000, EMPLOYEE CONTRIBUTION TO GENERAL ORGANIZATION HEALTH PLAN BENEFIT - $4,690 (1) THIS IS AN AWARD BASED ON ACHIEVEMENT OF ANNUAL PERFORMANCE STANDARDS ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. (2) THIS IS THE EMPLOYER CONTRIBUTION MADE UNDER THE CYSTIC FIBROSIS FOUNDATION 401(K) PLAN FOR THE 2011 PLAN YEAR. (3)A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO DECEMBER 31, 2012. C. SERP INTERESTS ARE HELD IN A TRUST SUBJECT TO THE CLAIMS OF CFF'S BANKRUPTCY CREDITORS. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS WOULD BECOME GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. SERP CONTRIBUTION AMOUNTS WERE DETERMINED BY AN INDEPENDENT ACTUARY. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (4) A. THIS IS AN UNVESTED EMPLOYER CONTRIBUTION TO THE SERP. B. SERP INTERESTS ARE FORFEITED BY THE PARTICIPANT IF THE PARTICIPANT VOLUNTARILY TERMINATES EMPLOYMENT PRIOR TO ATTAINING AGE 60. C. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. D. THE SERP IS A NONQUALIFIED DEFERRED COMPENSATION PLAN. THIS MEANS THAT PARTICIPANTS DO NOT RECEIVE THE TAX BENEFITS AVAILABLE TO PARTICIPANTS IN TAX QUALIFIED RETIREMENT PLANS. FOR EXAMPLE, UNDER CURRENT LAW, INTERESTS UNDER SERPS ARE REPORTABLE AS TAXABLE COMPENSATION WHEN THEY BECOME VESTED, EVEN IF THOSE AMOUNTS ARE NOT YET PAYABLE TO THE PARTICIPANT (AND EVEN IF THOSE AMOUNTS ARE NEVER PAID TO THE PARTICIPANT). E. THE SERP'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH SERP CONTRIBUTION AMOUNTS ARE DETERMINED. F. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE SERP AT ANY TIME. (5)A. THIS IS A VESTED CONTRIBUTION TO THE 457(B) PLAN FOR THE REPORTING PERIOD. B. IN THE EVENT OF A CFF BANKRUPTCY, PARTICIPANTS ARE GENERAL UNSECURED CREDITORS OF CFF. C. DISTRIBUTIONS FROM THE 457(B) PLAN MAY NOT BE ROLLED-OVER TO AN IRA OR QUALIFIED PLAN (BUT MAY ONLY BE ROLLED-OVER TO ANOTHER 457(B) PLAN). D. THE 457(B) PLAN'S DESIGN WAS REVIEWED AND OPINED UPON AS REASONABLE BY AN INDEPENDENT COMPENSATION CONSULTANT. AN INDEPENDENT ACTUARY DEVELOPED THE CONTRIBUTION FORMULA PURSUANT TO WHICH 457(B) CONTRIBUTION AMOUNTS ARE DETERMINED. CONTRIBUTIONS TO THE 457(B) PLAN ARE SUBJECT TO ANNUAL IRS LIMITS (CURRENTLY $16,500). E. CFF RETAINS THE RIGHT TO AMEND OR TERMINATE THE 457(B) PLAN AT ANY TIME. (6) THIS PLAN PROVIDES FOR AWARDS THAT RELATE TO A THREE-YEAR PERFORMANCE PERIOD, BASED ON ACHIEVEMENT OF PERFORMANCE OBJECTIVES ESTABLISHED IN ADVANCE BY THE COMPENSATION COMMITTEE OF THE BOARD. EACH YEAR, A NEW THREE-YEAR PERFORMANCE PERIOD BEGINS. AS REQUIRED BY THE FORM 990 INSTRUCTIONS, THE AMOUNTS REPORTED ON THIS FORM 990 REFLECT AN ESTIMATE OF THE PORTION OF EACH AWARD THAT THE EXECUTIVE ACCRUED UNDER THE PLAN FOR PERFORMANCE IN 2011 (I.E., WITH RESPECT TO THE 2010-2012 AND THE 2011-2013 PERFORMANCE PERIODS), BUT THE AMOUNTS REPORTED HAVE NOT BEEN EARNED, AWARDED OR PAID UNDER THE PLAN. THE INDIVIDUAL MUST BE EMPLOYED ON 12/31/12 AND 12/31/13 TO BE ELIGIBLE TO RECEIVE FULL PAYMENT OF THE AWARD FOR THE 2010-2012 AND THE 2011-2013 PERFORMANCE PERIODS, RESPECTIVELY.

Schedule M IRS990ScheduleM

Field	Value	IRS element (for citing)
Works Of Art		WorksOfArt
Art Historical Treasures		ArtHistoricalTreasures
Art Fractional Interest		ArtFractionalInterest
Books And Publications		BooksAndPublications
Clothing And Household Goods		ClothingAndHouseholdGoods
Cars And Other Vehicles		CarsAndOtherVehicles
Boats And Planes		BoatsAndPlanes
Intellectual Property		IntellectualProperty

Securities Publicly Traded SecuritiesPubliclyTraded

Field	Value	IRS element (for citing)
Non Cash Checkbox	X	NonCashCheckbox
Number Of Contributions	1	NumberOfContributions
Noncash Contribs Rptd F990	532764	NoncashContribsRptdF990
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenues

Field	Value	IRS element (for citing)
Securities Closely Held Stock		SecuritiesCloselyHeldStock
Securities Prtnrshp Trust Intrsts		SecuritiesPrtnrshpTrustIntrsts
Securities Miscellaneous		SecuritiesMiscellaneous
Qualified Contrib Hist Struct		QualifiedContribHistStruct
Qualified Contrib Other		QualifiedContribOther
Real Estate Residential		RealEstateResidential
Real Estate Commercial		RealEstateCommercial
Real Estate Other		RealEstateOther
Collectibles		Collectibles
Food Inventory		FoodInventory
Drugs And Medical Supplies		DrugsAndMedicalSupplies
Taxidermy		Taxidermy
Historical Artifacts		HistoricalArtifacts
Scientific Specimens		ScientificSpecimens
Archaeological Artifacts		ArchaeologicalArtifacts
Number Of8283 Received	0	NumberOf8283Received
Any Property That Must Be Held	false	AnyPropertyThatMustBeHeld
Review Process Unusual NC Gifts	true	ReviewProcessUnusualNCGifts
Third Parties Used	false	ThirdPartiesUsed

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (11 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
OTHER PROGRAM SERVICES	PART III, LINE 4D	COMMUNITY SERVICES - THE CYSTIC FIBROSIS FOUNDATION PROVIDES YEAR-ROUND EFFORTS TO EDUCATE, INFORM AND EMPOWER PATIENTS AND THEIR FAMILIES ABOUT THE LATEST DEVELOPMENTS IN TREATMENT AND CARE. THE PROGRAMS ARE DESIGNED TO HELP THE GENERAL PUBLIC IN THE DETECTION OF THE DISEASE BY PROVIDING A REFERRAL SERVICE AND HANDLING INQUIRIES CONCERNING THOSE WITH CYSTIC FIBROSIS. APPROXIMATELY 27,000 PATIENTS WERE SERVED IN 2011, INCLUDING APPROXIMATELY 866 PATIENTS WHO WERE NEWLY DIAGNOSED.
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 11B (PAGE 6 CORE FORM)	THE CYSTIC FIBROSIS FOUNDATION BOARD OF TRUSTEES RECEIVES A DRAFT OF THE FORM 990 PRIOR TO ITS BEING FILED, WITH SUFFICIENT TIME FOR REVIEW AND COMMENT ALLOWED. THE COMPENSATION COMMITTEE OF THE BOARD OF TRUSTEES AND THE FOUNDATION'S ERISA ATTORNEYS REVIEW THE EXECUTIVE COMPENSATION SECTIONS OF THE FORM 990 TO ENSURE COMPLETENESS AND ACCURACY. THE AUDIT COMMITTEE OF THE BOARD OF TRUSTEES ALSO REVIEWS THE FORM 990 AS PART OF ITS CHARTERED RESPONSIBILITIES.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM)	A CONFLICT OF INTEREST DISCLOSURE STATEMENT IS COMPLETED ANNUALLY BY EACH BOARD MEMBER AND OFFICER. DISCLOSURES PROVIDED ARE REPORTED TO THE NOMINATING AND GOVERNANCE COMMITTEE, THE AUDIT COMMITTEE AND THE BOARD OF TRUSTEES. AS REQUIRED WITHIN THE BYLAWS, ANY POTENTIAL CONFLICTS OF INTEREST MUST BE REPORTED TO THE BOARD AS THEY ARISE. WHEN ANY MATTER IS DEEMED A POTENTIAL CONFLICT OF INTEREST AND REQUIRES ACTION BY THE BOARD OF TRUSTEES, THE INTERESTED TRUSTEE OR OFFICER IS REQUIRED TO RETIRE FROM THE ROOM IN WHICH THE BOARD OR ITS COMMITTEE IS MEETING, MAY NOT PARTICIPATE IN THE FINAL DELIBERATION OF THE MATTER, AND MAY NOT VOTE ON THE MATTER. THE ORGANIZATION ENFORCED THE POLICY DURING 2011 AND HAD NO CONFLICTS OF INTEREST AS DEFINED BY THE POLICY.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B (PAGE 6 CORE FORM)	THE TOTAL COMPENSATION OF EXECUTIVES AT THE CYSTIC FIBROSIS FOUNDATION IS SPECIFICALLY DESIGNED TO ATTRACT AND RETAIN THE HIGHEST QUALIFIED EXECUTIVE AND MEDICAL TALENT TO FULFILL THE CRITICALLY IMPORTANT MISSION OF ASSURING THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CF AND IMPROVING THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. THE INDEPENDENT COMPENSATION COMMITTEE OF THE CF FOUNDATION'S BOARD OF TRUSTEES FOLLOWS THE PROCESS DESCRIBED IN THE IRS INTERMEDIATE SANCTIONS RULES WHEN DETERMINING COMPENSATION. SPECIFICALLY, THE COMMITTEE: 1. IS COMPOSED ENTIRELY OF NON-EMPLOYEE VOLUNTEER DIRECTORS WHO HAVE NO FAMILIAL, BUSINESS OR SIGNIFICANT PERSONAL RELATIONSHIPS WITH THE CF FOUNDATION OR ITS EXECUTIVES. 2. ASSESSES THE SHORT-TERM AND LONG-TERM CONTRIBUTION AND PERFORMANCE OF EACH EXECUTIVE IN MEETING VERY DEFINITIVE AND QUANTIFIABLE OBJECTIVES FOCUSED ON THE CF FOUNDATION'S MISSION SUCCESS. 3. ENGAGES AN INDEPENDENT COMPENSATION CONSULTING FIRM TO COMPILE APPROPRIATE COMPARABILITY DATA (INCLUDING COMPENSATION MARKET INFORMATION FOR PEERS WITH WHOM THE CF FOUNDATION COMPETES FOR EXECUTIVE TALENT) FOR COMMITTEE RELIANCE. THE COMMITTEE MEETS WITH REPRESENTATIVES OF THE CONSULTING FIRM TO REVIEW THIS DATA IN DETAIL. 4. REVIEWS ALL ELEMENTS OF EACH EXECUTIVE'S TOTAL COMPENSATION, INCLUDING BUT NOT LIMITED TO BASE SALARY, BONUSES, PERQUISITES, FRINGE BENEFITS, AND INCENTIVE AND DEFERRED COMPENSATION ARRANGEMENTS. UPON THE EXECUTIVE'S HIRE, AND AT EACH POINT IN TIME THEREAFTER AT WHICH A NEW OR REVISED COMPENSATION ARRANGEMENT IS UNDER CONSIDERATION WITH RESPECT TO THE EXECUTIVE, THE COMMITTEE MEETS WITH ITS INDEPENDENT COMPENSATION CONSULTING FIRM BEFORE THE ARRANGEMENT IS IMPLEMENTED TO EVALUATE THE REASONABLENESS OF THE ARRANGEMENT BY COMPARING BOTH THE ARRANGEMENT ITSELF AND THE EXECUTIVE'S ENTIRE COMPENSATION PACKAGES TO COMPENSATION PACKAGES PAID BY SIMILARLY SITUATED ORGANIZATIONS FOR FUNCTIONALLY COMPARABLE POSITIONS. 5. DOCUMENTS, CONCURRENTLY WITH ITS DETERMINATION, THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES ARE REVIEWED, REVISED IF NECESSARY AND APPROVED AT THE FOLLOWING MEETING OF THE COMMITTEE. 6. OBTAINS A WRITTEN LEGAL OPINION CONCERNING THE COMMITTEE'S COMPLIANCE WITH THE IRS INTERMEDIATE SANCTIONS RULES. THE PROCESS DESCRIBED ABOVE WAS LAST USED IN 2009 TO ESTABLISH COMPENSATION FOR THE FOLLOWING OFFICERS OR POSITIONS: PRESIDENT & CEO EXECUTIVE VICE PRESIDENT & COO EXECUTIVE VICE PRESIDENT FOR MEDICAL AFFAIRS SENIOR VICE PRESIDENT & CFO IN ADDITION, IN DECEMBER 2010, THE COMPENSATION COMMITTEE REVIEWED THE EXECUTIVES' PERFORMANCE, RECENT INDEPENDENTLY PREPARED COMPENSATION DATA, AND OTHER CHANGES RELEVANT TO THE ENVIRONMENT OF THE CF FOUNDATION TO APPROVE INCREASES IN THE EXECUTIVES' SALARY FOR CALENDAR YEAR 2011. THE COMPENSATION COMMITTEE DOCUMENTED THE BASIS FOR ITS DETERMINATION IN THE MINUTES OF ITS MEETING. THESE MINUTES WERE REVIEWED AND APPROVED AT THE FOLLOWING MEETING OF THE COMPENSATION COMMITTEE.
PUBLIC INSPECTION	PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM)	FORMS 1023 AND 990-T FOR THE ORGANIZATION WERE AVAILABLE ON ITS WEBSITE, CFF.ORG AND THE ORGANIZATION'S WEBSITE PROVIDED A LINK TO GUIDESTAR.ORG FOR ACCESS TO FORM 990 DURING 2011. THE FOUNDATION'S GOVERNING DOCUMENTS (BYLAWS AND ARTICLES OF INCORPORATION) WERE AVAILABLE UPON REQUEST BY CONTACTING THE NATIONAL OFFICE OF THE CYSTIC FIBROSIS FOUNDATION IN WRITING OR BY PHONE. INFORMATION ON HOW TO OBTAIN THE GOVERNING DOCUMENTS WAS ALSO AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG DURING 2011. THE BOARD AND OFFICER CONFLICT OF INTEREST POLICY AND THE AUDITED FINANCIAL STATEMENTS WERE AVAILABLE ON THE FOUNDATION'S WEBSITE, WWW.CFF.ORG DURING 2011.
OTHER CHANGE IN NET ASSETS	FORM 990, PART XI, LINE 5	UNREALIZED GAIN ON INVESTMENTS -11,046,677 OTHER CHANGES IN NET ASSETS - CHANGE IN EQUITY IN SUBSIDIARY -12,656,688 ------------ TOTAL -23,703,365
COMPENSATION OF OFFICERS, DIRECTORS, TRUSTEES, KEY EMPLOYEES, ETC	FORM 990, PART VII, SECTION A	NAME AND TITLE J. TAYLOR CRANDALL, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE MICHAEL L. BEATTY, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD L. DANDURAND, VICE CHAIR AVG HRS WORKED 5 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE RICHARD J. GRAY, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE BARRY M. GUMP, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE SUSAN L. HOOK, VICE CHAIR AVG HRS WORKED 5 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CATHERINE C. MCLOUD, CHAIR AVG HRS WORKED 7 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHAD T. MOORE, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE DAVID A. MOUNT, TRUSTEE AVG HRS WORKED 5 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE GARY B. SABIN, EXEC VICE CHAIRMAN AVG HRS WORKED 5 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE Christy Shaffer,PH.D. TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE STEVEN SHAK, M.D., TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE CHARLES J. THAYER, TREASURER AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE THEODORE J. TORPHY,PH.D. TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE AMY S. WEINBERG, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE PAUL W. WHETSELL, TRUSTEE AVG HRS WORKED 5 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE KC BRYAN WHITE, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT KAPLAN, TRUSTEE AVG HRS WORKED 3 HRS POSITION DIRECTOR REPORTABLE COMP FROM THE ORG NONE REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG NONE NAME AND TITLE ROBERT J. BEALL, PH.D., PRES/CEO AVG HRS WORKED 34 HRS POSITION DIRECTOR & OFFICER REPORTABLE COMP FROM THE ORG 477,065 REPORTABLE COMP FROM RELATED ORG 234,488 EST. AMT OF OTHER COMP FROM THE ORG 362,172 NAME AND TITLE C. RICHARD MATTINGLY, EXEC VP/COO AVG HRS WORKED 50 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 475,320 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 284,459 NAME AND TITLE PRESTON W. CAMPBELL, M.D., EXEC VP OF MEDICAL AFFAIRS AVG HRS WORKED 34 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 310,778 REPORTABLE COMP FROM RELATED ORG 156,360 EST. AMT OF OTHER COMP FROM THE ORG 268,893 NAME AND TITLE VERA H. TWIGG, SR VP & CFO AVG HRS WORKED 50 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 325,228 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 119,955 NAME AND TITLE ANN PALMER, SR VP OF FIELD MGMT AVG HRS WORKED 50 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 233,610 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 42,419 NAME AND TITLE DANIEL KLEIN, SR VP - CFFP AVG HRS WORKED 50 HRS POSITION OFFICER REPORTABLE COMP FROM THE ORG 248,172 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 29,128 NAME AND TITLE GREGORY AUGUST, CIO AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 218,198 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 44,500 NAME AND TITLE DAVID MCLOUGHLIN, SR VP OF OPS AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 267,117 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 49,005 NAME AND TITLE GLEN GOLDMARK, VP OF HR AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 213,637 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 39,578 NAME AND TITLE AMY DEMARIA, SR VP OF COMM AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 212,990 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 28,683 NAME AND TITLE MARY B. DWIGHT, VP GOVT AFFAIRS AVG HRS WORKED 50 HRS POSITION HIGHEST COMP. EMPLOYEE REPORTABLE COMP FROM THE ORG 195,488 REPORTABLE COMP FROM RELATED ORG NONE EST. AMT OF OTHER COMP FROM THE ORG 50,744 TOTAL REPORTABLE COMP FROM THE ORG 3,177,603 TOTAL REPORTABLE COMP FROM RELATED ORG 390,848 TOTAL EST. AMT OF OTHER COMP FROM THE ORG 1,319,535
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:Robert J. Beall, Ph.D. TITLE:President & CEO HOURS:23
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:C. Richard Mattingly TITLE:Exec VP and COO HOURS:10
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:Preston W. Campbell, MD TITLE:Exec VP of Medical Affairs HOURS:23
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:Vera H. Twigg TITLE:Sr. VP and CFO HOURS:10

Schedule R IRS990ScheduleR

Form990 Schedule R Part I Form990ScheduleRPartI (2 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EINEIN	Primary ActivitiesPrimaryActivities	Legal Domicile StateLegalDomicileState	Total IncomeTotalIncome	EOY AssetsEOYAssets	Business Name Line1DirectControllingEntityName/BusinessNameLine1
CYSTIC FIBROSIS FOUNDATION PHARMACY LLC
6931 ARLINGTON RD	BETHESDA	MD	20814	510636432	PROGRAM MGT	DE	24659724	1958607	NA
cystic fibrosis patient assistance fdn
6931 arlington rd	bethesda	MD	20814	900350985	patient asst	DE	3525197	3580629	na

Form990 Schedule R Part II Form990ScheduleRPartII (2 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EINEIN	Primary ActivitiesPrimaryActivities	Legal Domicile StateLegalDomicileState	Exempt Code SectionExemptCodeSection	Public Charity StatusPublicCharityStatus	Business Name Line1DirectControllingEntityName/BusinessNameLine1	Controlled OrgControlledOrg
cystic fibrosis foundation therapeutics
6931 ARLINGTON RD	BETHESDA	MD	20814	912059167	RESEARCH	MD	501(C)(3)	11A	CFF-HQ	true
CYSTIC FIBROSIS FOUNDATION GROUP
6931 ARLINGTON RD	BETHESDA	MD	20814	136161105	EDUCATION	DE	501(C)(3)	7	cfF-hq	true

Form990 Schedule R Part IV Form990ScheduleRPartIV

Name Of Related Org NameOfRelatedOrg

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS SERVICES INC	BusinessNameLine1

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON RD	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
EIN	521850490	EIN
Primary Activity	PHARMACY	PrimaryActivity
Legal Domicile State	MD	LegalDomicileState

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF PHARMACY	BusinessNameLine1

Field	Value	IRS element (for citing)
Type Of Entity	C	TypeOfEntity
Share Of Total Income	14385471	ShareOfTotalIncome
Share Of EOY Assets	32220396	ShareOfEOYAssets
Percentage Ownership	1.00000	PercentageOwnership

Field	Value	IRS element (for citing)
Receipt Of Int Ann Rents Royalties	true	ReceiptOfIntAnnRentsRoyalties
Gift Grant Or Cap Contr To Other Org	true	GiftGrantOrCapContrToOtherOrg
Gift Grant Or Cap Contr Fr Other Org	true	GiftGrantOrCapContrFrOtherOrg
Loans Or Guarantees To Other Org	true	LoansOrGuaranteesToOtherOrg
Loans Or Guarantees From Other Org	false	LoansOrGuaranteesFromOtherOrg
Sale Of Assets To Other Org	false	SaleOfAssetsToOtherOrg
Purchase Of Assets From Other Org	false	PurchaseOfAssetsFromOtherOrg
Exchange Of Assets	false	ExchangeOfAssets
Rental Of Facilities To Other Orgs	false	RentalOfFacilitiesToOtherOrgs
Rental Of Facilities Fr Other Orgs	false	RentalOfFacilitiesFrOtherOrgs
Perform Of Services For Other Orgs	true	PerformOfServicesForOtherOrgs
Perform Of Services By Other Orgs	false	PerformOfServicesByOtherOrgs
Sharing Of Facilities	true	SharingOfFacilities
Sharing Of Paid Employees	true	SharingOfPaidEmployees
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrg
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrg
Other Transfer To Other Org	false	OtherTransferToOtherOrg
Other Transfer From Other Org	true	OtherTransferFromOtherOrg

Transactions Related Orgs Table TransactionsRelatedOrgsTable (9 entries)

Transaction TypeTransactionType	Amount InvolvedAmountInvolved	Method Of Amt DeterminationMethodOfAmtDetermination
CYSTIC FIBROSIS SERVICES INC
A(I)	38709	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
B	49932523	FMV
CYSTIC FIBROSIS FOUNDATION GROUP
C	81863236	FMV
CYSTIC FIBROSIS SERVICES INC
D	10000000	FMV
CYSTIC FIBROSIS SERVICES INC
B	8729961	FMV
CYSTIC FIBROSIS SERVICES INC
K	8920638	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
M	255145	FMV
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
N	1640186	FMV
CYSTIC FIBROSIS SERVICES INC
R	13762061	FMV