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FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA: Form 990, tax year 2011

View the entire original 990 at ProPublica ↗

Organization
FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA (EIN 52-2122720)
Tax period
2011-01-01 to 2011-12-31
Filed
2012-05-14
IRS object ID
201231359349303603
Schema version
2011v1.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2012-05-14T13:04:21-05:00Timestamp
Tax Period End Date2011-12-31TaxPeriodEndDate

Preparer Firm PreparerFirm

FieldValueIRS element (for citing)
EIN231518888EIN

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1MAILLIE FALCONIERO & COMPANY LLPBusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 3068AddressLine1
CityWEST CHESTERCity
StatePAState
ZIP Code193813068ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnType
Tax Period Begin Date2011-01-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN522122720EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1FRIEDREICH'S ATAXIA RESEARCH ALLIANCEBusinessNameLine1
FieldValueIRS element (for citing)
Name ControlFRIENameControl
Phone4848796160Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 1537AddressLine1
CitySPRINGFIELDCity
StateVAState
ZIP Code22151ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameJENNIFER FARMERName
TitleEXECUTIVE DIRECTORTitle
Phone4848796160Phone
Date Signed2012-05-11DateSigned
Authorize Third Party1AuthorizeThirdParty

Preparer Preparer

FieldValueIRS element (for citing)
NameEDWARD FRONCZKOWSKI CPAName
PTINP01259092PTIN
Phone6106964353Phone
FieldValueIRS element (for citing)
Tax Year2011TaxYear
Build TS2016-02-24 21:20:13ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Name Of Principal Officer PersonJENNIFER FARMERNameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

FieldValueIRS element (for citing)
Address Line1533 W UWCHLAN AVENUEAddressLine1
CityDOWNINGTOWNCity
StatePAState
ZIP Code19335ZIPCode
FieldValueIRS element (for citing)
Gross Receipts3507441GrossReceipts
Group Return For Affiliates0GroupReturnForAffiliates
Organization501c3XOrganization501c3
Web SiteWWW.CUREFA.ORGWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation1998YearFormation
State Legal DomicileVAStateLegalDomicile
Activity Or Mission DescriptionTO TREAT AND CURE FRIEDREICH'S ATAXIA BY ADVANCING RESEARCH, AWARENESS AND PARTNERSHIPS.ActivityOrMissionDescription
Nbr Voting Members Governing Body16NbrVotingMembersGoverningBody
Nbr Independent Voting Members15NbrIndependentVotingMembers
Total Nbr Employees5TotalNbrEmployees
Total Nbr Volunteers400TotalNbrVolunteers
Total Gross UBI0TotalGrossUBI
Net Unrelated Business Txbl Income0NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year2851697ContributionsGrantsPriorYear
Contributions Grants Current Year2831171ContributionsGrantsCurrentYear
Program Service Revenue Prior Year0ProgramServiceRevenuePriorYear
Program Service Revenue CY0ProgramServiceRevenueCY
Investment Income Prior Year57570InvestmentIncomePriorYear
Investment Income Current Year12704InvestmentIncomeCurrentYear
Other Revenue Prior Year289732OtherRevenuePriorYear
Other Revenue Current Year133726OtherRevenueCurrentYear
Total Revenue Prior Year3198999TotalRevenuePriorYear
Total Revenue Current Year2977601TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year2976699GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY2484153GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year0BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Prior Year530359SalariesEtcPriorYear
Salaries Etc Current Year359219SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year0TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY0TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year81823TotalFundrsngExpCurrentYear
Other Expense Prior Year227308OtherExpensePriorYear
Other Expenses Current Year200872OtherExpensesCurrentYear
Total Expenses Prior Year3734366TotalExpensesPriorYear
Total Expenses Current Year3044244TotalExpensesCurrentYear
Revenues Less Expenses Prior Year-535367RevenuesLessExpensesPriorYear
Revenues Less Expenses CY-66643RevenuesLessExpensesCY
Total Assets BOY2928697TotalAssetsBOY
Total Assets EOY2783758TotalAssetsEOY
Total Liabilities BOY248806TotalLiabilitiesBOY
Total Liabilities EOY170510TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY2679891NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY2613248NetAssetsOrFundBalancesEOY
Info In Schedule O Part IIIXInfoInScheduleOPartIII
Mission DescriptionTO MARSHAL AND FOCUS THE RESOURCES AND RELATIONSHIPS NEEDED TO CURE FA BY RAISING FUNDS FOR RESEARCH, PROMOTING PUBLIC AWARENESS AND ALIGNING SCIENTISTS, PATIENTS, CLINICIANS, GOV'T AGENCIES AND PHARMACEUTICAL COMPANIES DEDICATED TO CURING FA AND RELATED DISORDERS.MissionDescription
Significant New Program Services0SignificantNewProgramServices
Significant Change0SignificantChange
Expense2652613Expense
DescriptionRESEARCH & GRANT PROGRAM: FARA'S COMMITMENT TO FUNDING HIGH QUALITY RESEARCH PROJECTS THAT MOVE US CLOSER TO EFFECTIVE TREATMENTS CONTINUED AT AN ACCELERATED PACE IN 2011. IN TOTAL, FARA PROVIDED >$2.5M IN RESEARCH GRANT AND CLINICAL RESEARCH INFRASTRUCTURE FUNDING. OVER THE PAST YEAR, 29 NEW GRANT APPLICATIONS WERE SUBMITTED AND AFTER RIGOROUS PEER REVIEW, 13 WERE DETERMINED MERITORIOUS AND AWARDED FUNDING IN 2011 AND EARLY 2012. IN ADDITION, BASED ON EXCELLENT PROGRESS, CONTINUATION FUNDING WAS PROVIDED FOR 14 PROJECTS, FOR A TOTAL OF 27 GRANTS AWARDED.- RESEARCH INTO FA IS PROVIDING INSIGHTS AND ADVANCES IN OTHER DISEASES SUCH AS MITOCHONDRIAL DISEASES, MUSCULAR DYSTROPHIES, DIABETES, AND CARDIOMYOPATHY.- SEE SCHEDULE O FOR CONTINUATION OF PROGRAM SERVICE ACCOMPLISHMENTS.- THESE FUNDED PROJECTS ADDRESS NUMEROUS IMPORTANT RESEARCH QUESTIONS THAT DIRECTLY TARGET FARA'S STRATEGIC RESEARCH INITIATIVES, INCLUDING IMPROVED FUNCTIONAL MEASURES AND BIOMARKERS FOR CLINICAL TRIALS, ADVANCES IN GENE AND CELL THERAPY APPROACHES, IMPROVED TOOLS FOR DRUG DISCOVERY, AND EVALUATION OF CANDIDATES TO ADVANCE TO THE TREATMENT PIPELINE. SEVERAL ARE CO-FUNDED WITH OUR FRIEDREICH'S ATAXIA ADVOCACY GROUP PARTNERS; THIS COLLABORATIVE APPROACH BOTH INCREASES THE NUMBER OF AVAILABLE RESEARCH DOLLARS AND HELPS TO MINIMIZE DUPLICATION OF EFFORT. OF NOTE, FA SHARES SIMILAR SYMPTOMS AND DISEASE MECHANISMS WITH OTHER DISEASES, BOTH RARE AND COMMON. - PARTICULARLY PROMISING RESEARCH FUNDED BY FARA IS BEING DONE BY DR. SID HECHT AT ARIZONA STATE UNIVERSITY. HE IS SYNTHESIZING COMPOUNDS KNOWN AS MULTIFUNCTIONAL RADICAL QUENCHERS (MRQS) AND TESTING THEM IN FA CELL AND ANIMAL MODELS TO DETERMINE THEIR POTENTIAL AS TREATMENTS FOR FA. MRQ COMPOUNDS ARE DESIGNED TO BLUNT MITOCHONDRIAL DEGRADATION RESULTING FROM OXIDATIVE STRESS AND TO AUGMENT ATP PRODUCTION IN PARTIALLY DYSFUNCTIONAL MITOCHONDRIA. IN A RECENTLY PUBLISHED PAPER (ARCE ET AL, 2011, A STRATEGY FOR SUPPRESSING REDOX STRESS WITHIN MITOCHONDRIA, ACS MED. CHEM. LETT. 2:608-613), DR. HECHT AND HIS COLLEAGUES DEMONSTRATED THAT THEY HAD DEVELOPED AN MRQ THAT PROTECTS FA FIBROBLASTS FROM OXIDATIVE STRESS MORE EFFECTIVELY THAN EITHER IDEBENONE OR IDEBENOL. THEY ARE CONTINUING TO DEVELOP AND EVALUATE MODIFIED MRQ COMPOUNDS TO IDENTIFY THOSE THAT ARE LIKELY TO BE THE MOST EFFECTIVE THERAPEUTIC AGENTS FOR FA.- ANOTHER GRANT AWARD TARGETING DRUG DISCOVERY HAS GONE TO DR. GINO CORTOPASSI AT THE UNIVERSITY OF CALIFORNIA, DAVIS. DR. CORTOPASSI HAS DEVELOPED AN APPROACH THAT TARGETS REPURPOSING OF DRUGS. HE DEVELOPED ASSAY TO SCREEN DRUGS THAT HAVE ALREADY BEEN APPROVED FOR HUMAN USE IN OTHER DISEASES AND INDICATIONS AND IDENTIFY THOSE DRUGS THAT PROTECT THE FA PATIENT CELLS FROM DEATH. THIS GRANT AWARD FOCUSES ON DETERMINING THE MECHANISMS OF ACTION, RELATIVE POTENCY, AND EFFICACY IN CELL AND ANIMAL MODELS OF THE SELECTED DRUGS IN PREPARATION FOR CLINICAL TESTING IN INDIVIDUALS WITH FA. SUCH AN APPROACH TO REPURPOSING DRUGS OFFERS A POTENTIAL EXPEDITED COURSE TO CLINICAL TESTING BECAUSE MUCH IS ALREADY KNOWN ABOUT THESE DRUGS AS THEY HAVE ALREADY BEEN STUDIED IN OTHER DISEASES.- FARA IS ALSO FUNDING THE DEVELOPMENT OF CLINICAL MANAGEMENT GUIDELINES FOR FA, WHICH WILL BE A VALUABLE RESOURCE FOR ASSISTING CLINICIANS AND FA PATIENTS IN MAKING APPROPRIATE HEALTH CARE DECISIONS. ADDITIONALLY, FARA CONTINUES TO SUPPORT THE STANDARDIZED CHARACTERIZATION OF FA MOUSE MODELS AT THE JACKSON LABORATORY. THE EXCITING ADVANCES IN DIFFERENTIATION OF INDUCED PLURIPOTENT STEM (IPS) CELL LINES FROM FA PATIENTS INTO SENSORY NEURONS AND CARDIOMYOCYTES IS ANOTHER RESEARCH AREA THAT FARA IS SUPPORTING.- IN ADDITION TO RESEARCH GRANTS FARA FUNDS THE ONGOING DEVELOPMENT OF VITAL CLINICAL RESEARCH INFRASTRUCTURE. CLINICAL RESEARCH INFRASTRUCTURE REFERS TO THE RESOURCES NEEDED TO FACILITATE ANY TYPE OF RESEARCH, INCLUDING CLINICAL TRIALS, THAT INVOLVE PATIENTS. THESE RESOURCES CAN INCLUDE THINGS LIKE: - PATIENT REGISTRY : A DATABASE THAT CAPTURES INFORMATION ON INDIVIDUALS WITH A SPECIFIC CONDITION - FARA PATIENT REGISTRY : WWW.CUREFA.ORG/REGISTRY - NATURAL HISTORY STUDY: LONGITUDINAL DATA (USUALLY ABOUT 10 YEARS) ON INDIVIDUALS WITH A DISEASE THAT DESCRIBES AND QUANTIFIES THE PROGRESSION OF THE DISEASE ALONG WITH THE SYMPTOMS AND MANIFESTATIONS OF THE DISEASE. NATURAL HISTORY CAN SOMETIMES SERVE AS THE BASIS FROM WHICH MEASUREMENTS CAN BE MADE TO DETERMINE EFFECTS OF NEW TREATMENTS, DRUGS OR INTERVENTIONS. - CLINICAL OUTCOME MEASURES : FUNCTIONAL PERFORMANCE TESTS (E.G., TIMED PEGBOARD OR WALK TESTS, VISION, HEARING OR SPEECH TESTS) THAT QUANTIFY HOW MUCH CHANGE TAKES PLACE IN A SPECIFIC AMOUNT OF TIME AND ARE USED IN CLINICAL TRIALS TO MEASURE WHETHER A DRUG IS ALTERING THE COURSE OF THE DISEASE. - BIOMARKERS: ANYTHING THAT CAN BE USED AS AN INDICATOR OF A PARTICULAR DISEASE STATE - USUALLY PROTEINS, ENZYMES, GENETIC VARIANTS, IMAGING (MRI, CT OR PET SCANS). BIOMARKERS CAN BE USED TO ASSESS RISK OF DISEASE, DIAGNOSIS, OR OUTCOMES. USE OF BIOMARKERS IN DRUG DEVELOPMENT IS OF GREAT INTEREST BECAUSE BIOMARKERS CAN PROVIDE EVIDENCE OF BIOLOGICAL ACTIVITY, POTENTIALLY DEMONSTRATING THERAPEUTIC BENEFIT MORE QUICKLY THAN TRADITIONAL OUTCOME MEASURES. - BIOREPOSITORY: A REPOSITORY OR BANK OF STORED BIOLOGICAL MATERIALS SUCH AS BLOOD SAMPLES, DNA, ORGANS, AND TISSUES (SUCH AS SKIN, MUSCLE, HEART) THAT CAN BE USED FOR RESEARCH. - COLLABORATIVE CLINICAL RESEARCH NETWORK IN FA (CCRN IN FA): AN INTERNATIONAL NETWORK OF 11 CLINICAL RESEARCH CENTERS THAT WORK TOGETHER TO ADVANCE TREATMENTS AND CLINICAL CARE FOR INDIVIDUALS WITH FRIEDREICH'S ATAXIA. HAVING SUCH A NETWORK MEANS THAT THERE ARE TRAINED PHYSICIANS AND RESEARCH COORDINATORS READY TO DO CLINICAL RESEARCH STUDIES AND TRIALS. ALSO, THIS NETWORK IS BACKED BY A DATA COORDINATION CENTER THAT FACILITATES ALL ASPECTS OF DATA COLLECTION, DATABASE MANAGEMENT, AND STATISTICAL ANALYSIS OF STUDY DATA. TO LEARN MORE, VISIT WWW.CUREFA.ORG/NETWORK.HTML- THROUGH THE CCRN IN FA WE HAVE COLLECTED SIX YEARS OF NATURAL HISTORY DATA (ONGOING) IN MORE THAN 600 INDIVIDUALS WITH FA, VALIDATED CLINICAL OUTCOME MEASURES AND THE FARS SCALE, STUDIED SPEECH, VISION AND HEARING, LAUNCHED BIOMARKER STUDIES, ESTABLISHED DNA AND RNA REPOSITORIES, AND PROVIDED MANY BLOOD SAMPLES TO RESEARCHERS AROUND THE WORLD. THE CCRN IN FA INVESTIGATORS HAVE BEEN INVOLVED IN MULTIPLE CLINICAL TRIALS INCLUDING A FEW THAT WERE DESIGNED AND CONDUCTED SOLELY THROUGH NETWORK SITES.FARA CONTRIBUTED MORE THAN $500,000 IN 2011 TO CLINICAL RESEARCH INFRASTRUCTURE IN DIRECT FUNDING TO THE CCRN IN FA CENTERS AND RELATED CLINICAL RESEARCH ACTIVITIES.- TITLES AND SUMMARIES OF MOST OF THE PROJECTS PRESENTLY FUNDED BY FARA ARE AVAILABLE AT:WWW.CUREFA.ORG/RPMP/PUBLIC/PGGRANTLIST.ASPX AND COMPLETE LISTINGS OF GRANTS AWARDED BY YEAR CAN BE ACCESSED AT: WWW.CUREFA.ORG/GRANTS-AWARDED.HTMLDescription

Activity2 Activity2

FieldValueIRS element (for citing)
Expense137876Expense
DescriptionRESEARCH CONFERENCES: FARA ORGANIZES AND SUPPORTS A NUMBER OF SCIENTIFIC CONFERENCES TO IMPROVE SHARING OF KNOWLEDGE, INSIGHTS AND ADVANCES AND BUILD COLLABORATIONS AND SYNERGISTIC CONNECTIONS BETWEEN FA RESEARCHERS. IN 2011, FARA SPONSORED THE LARGEST FA SCIENTIFIC CONFERENCE HELD IN STRASBOURG, FRANCE MAY 5-7 2011.- MORE THAN 200 SCIENTISTS, PHYSICIANS, AND ADVOCACY PARTNERS CONVENED AT THE INSTITUTE OF GENETICS AND MOLECULAR AND CELLULAR BIOLOGY (IGBMC) IN STRASBOURG, FRANCE TO SHARE THEIR LATEST RESEARCH ON FRIEDREICH'S ATAXIA. THE IGBMC WAS A PERFECT PLACE TO HOLD SUCH A MEETING BECAUSE IT IS HOME TO SEVERAL RESEARCHERS WHO HAVE LONGSTANDING COMMITMENTS AND CONTRIBUTIONS TO FA RESEARCH. THESE RESEARCHERS ARE PART OF THE CORE GROUP WHO IDENTIFIED THE FA GENE AND MUTATION WHICH CAUSE FA, DEVELOPED THE FIRST ANIMAL MODELS, AND NOW CONTINUE TO DO IMPORTANT RESEARCH INTO UNDERSTANDING FRATAXIN FUNCTION, MITOCHONDRIAL DYSFUNCTION IN FA, AND DEVELOPMENT OF NEW ANIMAL AND CELLULAR MODELS.- THE STRASBOURG MEETING WAS THE LARGEST GATHERING OF THE FA SCIENTIFIC COMMUNITY AND INCLUDED: - SCIENTISTS FROM 15 COUNTRIES - SEVEN PHARMACEUTICAL COMPANIES PARTICIPATING THROUGH ATTENDANCE, PRESENTATIONS OF RESEARCH, AND/OR SPONSORSHIP - SIX BIOTECHNOLOGY COMPANIES CONTRIBUTING THROUGH SPONSORSHIP - 10 ADVOCACY PARTNERS SUPPORTING THE CONFERENCE THROUGH SPONSORSHIP AND/OR ATTENDANCE - 58 ORAL PRESENTATIONS AND 53 POSTER PRESENTATIONS OF ORIGINAL RESEARCH - 25 SCHOLARSHIPS AWARDED TO JUNIOR INVESTIGATORS SUBMITTING COMPETITIVE ABSTRACTS TO SUPPORT THEIR PARTICIPATION IN THE CONFERENCE- THIS CONFERENCE COVERED ALL ASPECTS OF FA RESEARCH FROM THE INTRICACIES OF HOW THE GAA REPEAT EXPANSION IN THE FA GENE RESULTS IN LOWER FRATAXIN PROTEIN TO RESULTS OF CLINICAL TRIALS. THE CONFERENCE WAS DIVIDED INTO EIGHT SESSIONS BASED ON TOPIC AREA, BUT ALL ATTENDEES PARTICIPATED EQUALLY THROUGHOUT AS INSIGHTS FROM ONE AREA OF THE RESEARCH MAY HAVE IMPLICATIONS AND INSIGHTS INTO ANOTHER AREA. BASIC RESEARCHERS AND CLINICAL SCIENTISTS SHARED THEIR FINDINGS, IDEAS AND CHALLENGES SO THAT EACH COULD LEARN FROM THE APPLIED KNOWLEDGE.- THE SCIENTIFIC PROCEEDINGS OF THIS MEETING WERE RECENTLY PUBLISHED IN THE JOURNAL OF DISEASE MODELS AND MECHANISMS - ALAIN MARTELLI, MAREK NAPIERALA, HELENE PUCCIO., UNDERSTANDING THE GENETIC AND MOLECULAR PATHOGENESIS OF FRIEDREICH'S ATAXIA THROUGH ANIMAL AND CELLULAR MODELSDIS. MODEL. MECH. MARCH 2012, DOI: 10.1242/DMM.008706VOL. 5 NO. 2 165-176- FARA ORGANIZED A FOCUSED MEETING OF RESEARCHERS WORKING ON THE GENERATION AND DIFFERENTIATION OF FA IPS CELLS TO DISCUSS ISSUES AND COMPARE RESULTS. THIS MEETING TOOK PLACE IN PHILADELPHIA IN OCTOBER 2011 AND FOLLOWED UP ON ITEMS DISCUSSED AT THE FA STEM CELL TASK FORCE MEETING HELD DIRECTLY AFTER THE STRASBOURG CONFERENCE IN MAY. AN IMPORTANT OUTCOME WAS THE DEVELOPMENT OF THE FA IPS DATABASE, WHICH PROVIDES DETAILED INFORMATION ABOUT ALL OF THE AVAILABLE FA IPS CELL LINES.Description

Activity3 Activity3

FieldValueIRS element (for citing)
Expense110491Expense
DescriptionEDUCATION, AWARENESS & OUTREACH PROGRAMS: FRIEDREICH'S ATAXIA (FA) IS A RARE DISEASE; AFFECTING 1 IN 50,000 INDIVIDUALS. FARA IS DEDICATED TO RAISING AWARENESS FOR FA. FARA HAS UTILIZED BOTH TRADITIONAL AND SOCIAL MEDIA STRATEGIES TO BRING GREATER AWARENESS TO FA IN THE GENERAL PUBLIC AND TO ENGAGE AND EDUCATE THE FA COMMUNITY. IN 2011, FARA WAS ABLE TO PARTNER WITH SEVERAL CELEBRITIES TO CREATE VIDEO-BASED AWARENESS CAMPAIGNS LEVERAGED THROUGH SOCIAL MEDIA.- THE CAST OF ARMY WIVES - TAKE ACTION, DONATE, CURE FA - HTTP://WWW.YOUTUBE.COM/WATCH?V=WX-C4LWSP0I- RONDE BARBER AND KYLE BRYANT TALK ABOUT FRIEDREICH'S ATAXIA - HTTP://WWW.YOUTUBE.COM/WATCH?V=3WYBNC1_EZI- FARA STAFF AND SCIENTIFIC ADVISORS WERE INVITED TO GIVE FORMAL PRESENTATIONS AT SEVERAL MEDICAL AND PATIENT CONFERENCES THROUGHOUT THE YEAR; INCLUDING THE ANNUAL CHILD NEUROLOGY MEETING IN OCTOBER IN SAVANNAH, GA.- ALSO, IN 2011 FARA LAUNCHED A NEW AMBASSADOR PROGRAM WHICH MENTORS AND ENCOURAGES INDIVIDUALS WITH FA TO DEVELOP AND SHARE THEIR PERSONAL STORY AND TO BEGIN GRASSROOTS OUTREACH TO RAISE AWARENESS.Description
FieldValueIRS element (for citing)
Total Program Service Expense2900980TotalProgramServiceExpense
Described In501 C31DescribedIn501C3
Schedule B Required1ScheduleBRequired
Political Activities0PoliticalActivities
Lobbying Activities1LobbyingActivities
Subject To Proxy Tax0SubjectToProxyTax
Donor Advised Funds0DonorAdvisedFunds
Conservation Easements0ConservationEasements
Collections Of Art0CollectionsOfArt
Credit Counseling0CreditCounseling
Term Or Permanent Endowments0TermOrPermanentEndowments
Report Land Bldg Equip1ReportLandBldgEquip
Report Invest Oth Securities0ReportInvestOthSecurities
Report Prog Rel Invest1ReportProgRelInvest
Report Other Assets0ReportOtherAssets
Report Other Liabilities0ReportOtherLiabilities
Report Fin48 Footnote1ReportFin48Footnote
Independent Audit Financial Stmt1IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt0ConsolidatedAuditFinancialStmt
School0School
Foreign Office0ForeignOffice
Foreign Activities1ForeignActivities
More Than5000 K To Organizations1MoreThan5000KToOrganizations
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Professional Fundraising0ProfessionalFundraising
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Gaming0Gaming
Hospital0Hospital
Grants To Organizations1GrantsToOrganizations
Grants To Individuals0GrantsToIndividuals
Schedule J Required1ScheduleJRequired
Tax Exempt Bonds0TaxExemptBonds
Excess Benefit Transaction0ExcessBenefitTransaction
Prior Excess Benefit Transaction0PriorExcessBenefitTransaction
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Bsnss Rltnshp With Organization0BsnssRltnshpWithOrganization
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Deductible Non Cash Contributions1DeductibleNonCashContributions
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Transaction Related Entity0TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org0TransfersToExemptNonChrtblOrg
Activities Conducted Partnership0ActivitiesConductedPartnership
Schedule O Required1ScheduleORequired
Number Forms Transmitted With10962NumberFormsTransmittedWith1096
Number W2 G Included0NumberW2GIncluded
Compliance With Backup Witholding1ComplianceWithBackupWitholding
Number Of Employees5NumberOfEmployees
Employment Tax Returns Filed1EmploymentTaxReturnsFiled
Unrelated Business Income0UnrelatedBusinessIncome
Foreign Financial Account0ForeignFinancialAccount
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTrans
Taxable Party Notification0TaxablePartyNotification
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Quid Pro Quo Contributions1QuidProQuoContributions
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Premiums Paid0PremiumsPaid
Indoor Tanning Services0IndoorTanningServices
Info In Schedule O Part VIXInfoInScheduleOPartVI
Nbr Voting Governing Body Members16NbrVotingGoverningBodyMembers
Number Independent Voting Members15NumberIndependentVotingMembers
Family Or Business Relationship0FamilyOrBusinessRelationship
Delegation Of Management Duties0DelegationOfManagementDuties
Changes To Organizing Docs0ChangesToOrganizingDocs
Material Diversion Or Misuse0MaterialDiversionOrMisuse
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Compensation Process Other1CompensationProcessOther
Investment In Joint Venture0InvestmentInJointVenture
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Own WebsiteXOwnWebsite
Other WebsiteXOtherWebsite
Upon RequestXUponRequest

The Books Are In Care Of TheBooksAreInCareOf

Name Business NameBusiness

FieldValueIRS element (for citing)
Business Name Line1JENNIFER FARMERBusinessNameLine1
FieldValueIRS element (for citing)
Telephone Number4848796160TelephoneNumber

Address US AddressUS

FieldValueIRS element (for citing)
Address Line1533 W UWCHLAN AVENUEAddressLine1
CityDOWNINGTOWNCity
StatePAState
ZIP Code19335ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (17 entries)

TitleTitleAverage Hours Per WeekAverageHoursPerWeekIndividual Trustee Or DirectorIndividualTrusteeOrDirectorOfficerOfficerHighest Compensated EmployeeHighestCompensatedEmployeeReportable Comp From OrganizationReportableCompFromOrganizationReportable Comp From Related OrgsReportableCompFromRelatedOrgsOther CompensationOtherCompensation
RONALD BARTEK
PRESIDENT/DIRECTOR40.00XXX16000000
EDWARD RAMSEY
TREASURERXX000
MARILYN E DOWNING
SECRETARYXX000
RUTH DEWITT
DIRECTORX000
JOSEPH PONT
DIRECTORX000
PAUL AVERY
DIRECTORX000
PETER CRISP
DIRECTORX000
THOMAS A DECOTIIS PHD
CHAIRMANXX000
DR EARL GILLER
SCIENTIFIC DIRECTORX000
DR HOLLY HEDRICK
DIRECTORX000
NICHOLAS A JOHNSON
DIRECTORX000
LAURA KALICK
DIRECTORX000
STEVE KLASKO
DIRECTORX000
PAUL MARCOTTE
DIRECTORX000
PETER PITTS
DIRECTORX000
ROB DHOBLE
DIRECTORX000
JENNIFER FARMER
EXECUTIVE DIRECTOR40.00X8200000
FieldValueIRS element (for citing)
Total Reportable Comp From Org242000TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs0TotalReportableCompFrmRltdOrgs
Total Other Compensation0TotalOtherCompensation
Number Individuals GT100 K1NumberIndividualsGT100K
Formers Listed0FormersListed
Total Comp GT150 K1TotalCompGT150K
Compensation From Other Sources0CompensationFromOtherSources
Number Of Contractors GT100 K0NumberOfContractorsGT100K
Fundraising Events2030278FundraisingEvents
All Other Contributions800893AllOtherContributions
Total Contributions2831171TotalContributions

Investment Income InvestmentIncome

FieldValueIRS element (for citing)
Total Revenue Column12704TotalRevenueColumn
Exclusion$12,704ExclusionAmount
FieldValueIRS element (for citing)
Gross Income Fundraising Events663566GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events2030278CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses529840FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

FieldValueIRS element (for citing)
Total Revenue Column133726TotalRevenueColumn
Exclusion$133,726ExclusionAmount

Total Revenue TotalRevenue

FieldValueIRS element (for citing)
Total Revenue Column2977601TotalRevenueColumn
Related Or Exempt Function Income0RelatedOrExemptFunctionIncome
Unrelated Business Revenue0UnrelatedBusinessRevenue
Exclusion$146,430ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

FieldValueIRS element (for citing)
Total1813550Total
Program Services1813550ProgramServices

Foreign Grants ForeignGrants

FieldValueIRS element (for citing)
Total670603Total
Program Services670603ProgramServices

Comp Current Officers Directors CompCurrentOfficersDirectors

FieldValueIRS element (for citing)
Total229900Total
Program Services181500ProgramServices
Management And General16200ManagementAndGeneral
Fundraising32200Fundraising

Other Salaries And Wages OtherSalariesAndWages

FieldValueIRS element (for citing)
Total102600Total
Program Services78100ProgramServices
Management And General7125ManagementAndGeneral
Fundraising17375Fundraising

Payroll Taxes PayrollTaxes

FieldValueIRS element (for citing)
Total26719Total
Program Services20127ProgramServices
Management And General2109ManagementAndGeneral
Fundraising4483Fundraising

Fees For Services Accounting FeesForServicesAccounting

FieldValueIRS element (for citing)
Total11307Total
Management And General11307ManagementAndGeneral

Fees For Services Other FeesForServicesOther

FieldValueIRS element (for citing)
Total7072Total
Program Services750ProgramServices
Management And General322ManagementAndGeneral
Fundraising6000Fundraising

Advertising Advertising

FieldValueIRS element (for citing)
Total1500Total
Program Services1500ProgramServices

Office Expenses OfficeExpenses

FieldValueIRS element (for citing)
Total16528Total
Program Services10546ProgramServices
Management And General4673ManagementAndGeneral
Fundraising1309Fundraising

Travel Travel

FieldValueIRS element (for citing)
Total85624Total
Program Services75465ProgramServices
Management And General8392ManagementAndGeneral
Fundraising1767Fundraising

Conferences Meetings ConferencesMeetings

FieldValueIRS element (for citing)
Total33378Total
Program Services31947ProgramServices
Management And General1431ManagementAndGeneral

Depreciation Depletion DepreciationDepletion

FieldValueIRS element (for citing)
Total758Total
Management And General758ManagementAndGeneral

Insurance Insurance

FieldValueIRS element (for citing)
Total2480Total
Management And General2480ManagementAndGeneral

Other Expenses OtherExpenses (4 entries)

DescriptionDescriptionTotalTotalProgram ServicesProgramServicesManagement And GeneralManagementAndGeneralFundraisingFundraising
FACILITIES AND EQUIPMEN17965978132944890
CREDIT CARD & BANK FEES928317721047002
BUSINESS REGISTRATION F68633910252928
BOOKS, SUBSCRIPTIONS &581316173273869

All Other Expenses AllOtherExpenses

FieldValueIRS element (for citing)
Total2301Total
Program Services1407ProgramServices
Management And General894ManagementAndGeneral

Total Functional Expenses TotalFunctionalExpenses

FieldValueIRS element (for citing)
Total3044244Total
Program Services2900980ProgramServices
Management And General61441ManagementAndGeneral
Fundraising81823Fundraising

Cash Non Interest Bearing CashNonInterestBearing

FieldValueIRS element (for citing)
BOY539316BOY
EOY287214EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

FieldValueIRS element (for citing)
BOY42400BOY
EOY687079EOY

Accounts Receivable AccountsReceivable

FieldValueIRS element (for citing)
BOY164689BOY
EOY124538EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

FieldValueIRS element (for citing)
BOY17978BOY
EOY5144EOY
FieldValueIRS element (for citing)
Land Buildings Equipment Basis3794LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec2000LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

FieldValueIRS element (for citing)
BOY2552BOY
EOY1794EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

FieldValueIRS element (for citing)
BOY1061762BOY
EOY577989EOY

Investments Program Related InvestmentsProgramRelated

FieldValueIRS element (for citing)
BOY1100000BOY
EOY1100000EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY2928697BOY
EOY2783758EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

FieldValueIRS element (for citing)
BOY248806BOY
EOY170510EOY

Total Liabilities TotalLiabilities

FieldValueIRS element (for citing)
BOY248806BOY
EOY170510EOY
FieldValueIRS element (for citing)
Follow SFAS117XFollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

FieldValueIRS element (for citing)
BOY2379891BOY
EOY2468579EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY300000BOY
EOY144669EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY2679891BOY
EOY2613248EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY2928697BOY
EOY2783758EOY
FieldValueIRS element (for citing)
Reconcilation Revenue Expenses-66643ReconcilationRevenueExpenses
Reconcilation Other Changes0ReconcilationOtherChanges
Info In Schedule O Part XIIXInfoInScheduleOPartXII
Method Of Accounting AccrualXMethodOfAccountingAccrual
Accountant Compile Or Review0AccountantCompileOrReview
FS Audited1FSAudited
Audit Committee1AuditCommittee
Financial Statement SeparateXFinancialStatementSeparate
Federal Grant Audit Required0FederalGrantAuditRequired

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org170b1 AviXPubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years1614044CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years1929438CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years3433440CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year2980429CurrentTaxYearMinus1Year
Current Tax Year2831171CurrentTaxYear
Total12788522Total

Total170 Total170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years1614044CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years1929438CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years3433440CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year2980429CurrentTaxYearMinus1Year
Current Tax Year2831171CurrentTaxYear
Total12788522Total
FieldValueIRS element (for citing)
Amounts Subst Contributors Total1266349AmountsSubstContributorsTotal
Public Support Total17011522173PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years25762CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years25162CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years4041CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year57570CurrentTaxYearMinus1Year
Current Tax Year12704CurrentTaxYear
Total125239Total
FieldValueIRS element (for citing)
Total Support12913761TotalSupport
Gross Receipts From Admissions Etc39486GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage1700.89220PublicSupportPertcentage170
Public Support Pertcent Prior Year0.87430PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170XThirtyThreePercntTestsCY170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
Political Expenditures0PoliticalExpenditures
Volunteer Hours0VolunteerHours
Amt Of4955 Tax0AmtOf4955Tax
Amt Of4955 Tax On Managers0AmtOf4955TaxOnManagers
Volunteers0Volunteers
Paid Staff Or Management1PaidStaffOrManagement
Media Advertisements0MediaAdvertisements
Mailings Members1MailingsMembers
Mailings Members$616MailingsMembersAmount
Publications Or Broadcast0PublicationsOrBroadcast
Grants Other Organizations0GrantsOtherOrganizations
Direct Contact Legislators1DirectContactLegislators
Direct Contact Legislators$2,464DirectContactLegislatorsAmount
Rallies Demonstrations0RalliesDemonstrations
Other Activities1OtherActivities
Other Activities$1,100OtherActivitiesAmount
Total Lobbying Expenditures IIB4180TotalLobbyingExpendituresIIB
Not Described In501c30NotDescribedIn501c3

Form990 Schedule C Part IV Form990ScheduleCPartIV

FieldValueIRS element (for citing)
IdentifierEXPLANATION OF OTHER LOBBYING ACTIVITIES:Identifier
Return ReferencePART II-B, LINE 1I:ReturnReference
ExplanationTHE ORGANIZATION PAID DUES TO 501(C)(4) ORGANIZATIONS THAT ARE ENGAGED IN INFLUENCING LEGISLATION.Explanation

Schedule D IRS990ScheduleD

Other Land Buildings OtherLandBuildings

FieldValueIRS element (for citing)
Other Cost Or Other Basis3794OtherCostOrOtherBasis
Depreciation2000Depreciation
Book Value1794BookValue
FieldValueIRS element (for citing)
Total Of Book Value Land Buildings1794TotalOfBookValueLandBuildings

Investments Program Related InvestmentsProgramRelated

FieldValueIRS element (for citing)
DescriptionINVESTMENT IN EDISON PHARMACEUTICALS, INC.Description
Book Value1100000BookValue
Method Of ValuationCMethodOfValuation
FieldValueIRS element (for citing)
Total Of Book Value Program Related1100000TotalOfBookValueProgramRelated
Total Revenue2977601TotalRevenue
Total Expenses3044244TotalExpenses
Excess Or Deficit For Year-66643ExcessOrDeficitForYear
Excess Or Deficit Per FS-66643ExcessOrDeficitPerFS
Tot Revenue Etc Audited Fincl Stmt3507441TotRevenueEtcAuditedFinclStmt
Other Revenues529840OtherRevenues
Revenue Not Rptd F990529840RevenueNotRptdF990
Revenue Subtotal2977601RevenueSubtotal
Revenue Not Rptd On Fin Stmt0RevenueNotRptdOnFinStmt
Total Revenue Per Form9902977601TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt3574084TotExpensesEtcAuditedFinclStmt
Other Expenses Included529840OtherExpensesIncluded
Expenses Not Rptd F990529840ExpensesNotRptdF990
Expenses Subtotal3044244ExpensesSubtotal
Expenses Not Rptd On Fin Stmt0ExpensesNotRptdOnFinStmt
Total Expenses Per Form9903044244TotalExpensesPerForm990

Form990 Schedule D Part XIV Form990ScheduleDPartXIV (4 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48:PART X:FARA BELIEVES IT HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN AND, AS SUCH, DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. FARA'S FEDERAL RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX (FORM 990) FOR TAX YEARS 2008, 2009 AND 2010 IS SUBJECT TO EXAMINATION BY THE IRS, GENERALLY FOR THREE YEARS AFTER THE TAX RETURNS WERE FILED.
PART XI, LINE 8 - OTHER ADJUSTMENTS:INVESTMENT GAINS/LOSSES
PART XII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSE
PART XIII, LINE 2D - OTHER ADJUSTMENTS:SPECIAL EVENTS EXPENSE

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained1GrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable (2 entries)

RegionRegionNumber Of OfficesNumberOfOfficesNumber Of EmployeesNumberOfEmployeesType Of Activities ConductedTypeOfActivitiesConductedSpecific Services ProvidedSpecificServicesProvidedTotal ExpendituresTotalExpenditures
EUROPE00GRANTS TO RECIPIENTS LOCATED IN REGIONRESEARCH AND GRANT PROGRAM227849
EAST ASIA AND THE PACIFIC00GRANTS TO RECIPIENTS LOCATED IN REGIONRESEARCH AND GRANT PROGRAM442754
FieldValueIRS element (for citing)
Subtotal Number Of Offices0SubtotalNumberOfOffices
Subtotal Number Of Employees0SubtotalNumberOfEmployees
Cont Number Of Offices0ContNumberOfOffices
Cont Number Of Employees0ContNumberOfEmployees
Total Number Of Offices0TotalNumberOfOffices
Total Number Of Employees0TotalNumberOfEmployees
Subtotal Amount Spent670603SubtotalAmountSpent
Cont Amount Spent0ContAmountSpent
Total Amount Spent670603TotalAmountSpent

Grants To Orgs Outside US GrantsToOrgsOutsideUS (9 entries)

RegionRegionPurpose Of GrantPurposeOfGrantAmount Of Cash GrantAmountOfCashGrantManner Of Cash DisbursementMannerOfCashDisbursement
EAST ASIA AND THE PACIFICMEDICAL RESEARCH221607WIRE/CHECK
EAST ASIA AND THE PACIFICMEDICAL RESEARCH45000WIRE
EUROPEMEDICAL RESEARCH33342WIRE
EUROPEMEDICAL RESEARCH29507WIRE
EAST ASIA AND THE PACIFICMEDICAL RESEARCH101719WIRE
EAST ASIA AND THE PACIFICMEDICAL RESEARCH49800WIRE
EUROPEMEDICAL RESEARCH75000WIRE
EAST ASIA AND THE PACIFICMEDICAL RESEARCH24628WIRE
EUROPEMEDICAL RESEARCH90000WIRE
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorp
Interest In Foreign Trust0InterestInForeignTrust
Own Foreign Corp0OwnForeignCorp
Passive Foreign Invest Co0PassiveForeignInvestCo
Foreign Partnership0ForeignPartnership
Boycott Countries0BoycottCountries

Schedule G IRS990ScheduleG

Events Information EventsInformation

FieldValueIRS element (for citing)
Name Of Event1FARA ENERGY BALLNameOfEvent1
Gross Receipts Event11273293GrossReceiptsEvent1
Charitable Contributions Event1800781CharitableContributionsEvent1
Gross Revenue Event1472512GrossRevenueEvent1
Other Direct Expenses Event1271355OtherDirectExpensesEvent1
Name Of Event2RIDE ATAXIA DALLASNameOfEvent2
Gross Receipts Event2205330GrossReceiptsEvent2
Charitable Contributions Event2188830CharitableContributionsEvent2
Gross Revenue Event216500GrossRevenueEvent2
Other Direct Expenses Event228057OtherDirectExpensesEvent2
Gross Receipts Other Events1215221GrossReceiptsOtherEvents
Charitable Contrib Other Events1040667CharitableContribOtherEvents
Gross Revenue Other Events174554GrossRevenueOtherEvents
Other Direct Expenses Other Events230428OtherDirectExpensesOtherEvents
Gross Receipts Total2693844GrossReceiptsTotal
Charitable Contributions Total2030278CharitableContributionsTotal
Gross Revenue Total Events663566GrossRevenueTotalEvents
Other Direct Expenses Total Events529840OtherDirectExpensesTotalEvents
Direct Expense Summary Events529840DirectExpenseSummaryEvents
Net Income Summary133726NetIncomeSummary
FieldValueIRS element (for citing)
Name Of Gaming Rec Keeper PersonFELICIA DEROSANameOfGamingRecKeeperPerson

Address Of Gaming Rec Keeper US AddressOfGamingRecKeeperUS

FieldValueIRS element (for citing)
Address Line1533 W UWCHLAN AVENUEAddressLine1
CityDOWNINGTOWNCity
StatePAState
ZIP Code19335ZIPCode

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Records Maintained1RecordsMaintained

Recipient Table RecipientTable (16 entries)

Address Line1AddressUS/AddressLine1CityAddressUS/CityStateAddressUS/StateZIP CodeAddressUS/ZIPCodeEIN Of RecipientEINOfRecipientIRC SectionIRCSectionAmount Of Cash GrantAmountOfCashGrantPurpose Of GrantPurposeOfGrantAddress Line2AddressUS/AddressLine2
UNIVERSITY OF ROCHESTER
515 HYLAN BUILDING RC BOX 270140ROCHESTERNY14627160743209501(C)(3)112343MEDICAL RESEARCH
UNIVERSITY OF SOUTH FLORIDA
4202 EAST FOWLER AVENUETAMPAFL33620593102112501(C)(3)199736MEDICAL RESEARCH
CHILDREN'S HOSPITAL OF PHILADELPHIA
34TH ST CIVIC CENTER BLVDPHILADELPHIAPA19104231352166501(C)(3)222194MEDICAL RESEARCH
ALBANY RESERACH INSTITUTE INC
113 HOLLAND AVENUEALBANYNY12208141716021501(C)(3)37192MEDICAL RESEARCH
ARIZONA STATE UNIVERSITY
UNIVERSITY DRIVE AND MILL AVENUETEMPEAZ85287860196696501(C)(3)225280MEDICAL RESEARCHTEMPE ARIZ
THE WINIFRED MASTERSON BURKE MEDICAL RESEARCH INSTITUTE
785 MAMARONECK AVENUEWHITE PLAINSNY10605133434924501(C)(3)100000MEDICAL RESEARCH
SCRIPPS RESEARCH INSTITUTE
10550 NORTH TORREY PINES ROADLA JOLLACA92037330435954501(C)(3)163465MEDICAL RESEARCHOSP-TPC7
THE JACKSON LABORATORY
600 MAIN STREETBAR HARBORME04609010211513501(C)(3)130792MEDICAL RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10920 WILSHIRE BLVD 5TH FLOORLOS ANGELESCA90024956006143501(C)(3)189200MEDICAL RESEARCH
EMORY UNIVERSITY
201 DOWMAN DRIVEATLANTAGA30322580566256501(C)(3)13400MEDICAL RESEARCH
GENETIC DISEASE SCREENING PROGRAM - CA DEPT OF PUBLIC HEALTH
850 MARINA BAY PARKWAYRICHMONDCA94804943402381501(C)(3)20000MEDICAL RESEARCH
LSU HEALTH SCIENCE CENTER
433 BOLIVAR STREETNEW ORLEANSLA70112721115391501(C)(3)89958MEDICAL RESEARCH
STATEGICS
1455 ADAMS DR SUITE 2050MENLO PARKCA94025260305594152690MEDICAL RESEARCH
UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUECHICAGOIL60637362177139501(C)(3)3900MEDICAL RESEARCH
UNIVERSITY OF IOWA DEPT OF PEDIATRICS
200 HAWKINS DRIVEIOWA CITYIA52242426004813501(C)(3)3400MEDICAL RESEARCH
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET RM P 221PHILADELPHIAPA19104231352685501(C)(3)150000MEDICAL RESEARCHFRANKLIN BLDG
FieldValueIRS element (for citing)
Total Nbr Of501 C3 And Govt Grants15TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations16TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

FieldValueIRS element (for citing)
IdentifierPROCEDURE FOR MONITORING GRANTS IN THE U.S.:Identifier
Return ReferencePART I, LINE 2:ReturnReference
ExplanationSCHEDULE I, PART I, LINE 2: GRANTS ARE REVIEWED BY INDEPENDENT SCIENTIFIC ADVISORS AND APPROVED BY BOARD.Explanation

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeXCompensationCommittee
Severance Payment0SeverancePayment
Supplemental Nonqual Retire Plan0SupplementalNonqualRetirePlan
Equity Based Comp Arrangement0EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org0CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs0CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org0CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs0CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments0AnyNonFixedPayments
Initial Contract Exception0InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII

FieldValueIRS element (for citing)
Name PersonRONALD BARTEKNamePerson
Base Compensation Filing Org160000BaseCompensationFilingOrg
Comp Based On Related Orgs0CompBasedOnRelatedOrgs
Bonus Filing Org0BonusFilingOrg
Bonus Related Orgs0BonusRelatedOrgs
Other Compensation Filing Org0OtherCompensationFilingOrg
Other Compensation Related Orgs0OtherCompensationRelatedOrgs
Deferred Comp Filing Org0DeferredCompFilingOrg
Deferred Comp Related Orgs0DeferredCompRelatedOrgs
Nontaxable Benefits Filing Org0NontaxableBenefitsFilingOrg
Nontaxable Benefits Related Orgs0NontaxableBenefitsRelatedOrgs
Total Compensation Filing Org160000TotalCompensationFilingOrg
Total Compensation Related Orgs0TotalCompensationRelatedOrgs
Comp Report Prior990 Filing Org0CompReportPrior990FilingOrg
Comp Report Prior990 Related Orgs0CompReportPrior990RelatedOrgs

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTraded

FieldValueIRS element (for citing)
Non Cash CheckboxXNonCashCheckbox
Number Of Contributions3NumberOfContributions
Noncash Contribs Rptd F99042117NoncashContribsRptdF990
Method Of Determining RevenuesMARKET PRICEMethodOfDeterminingRevenues
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeld
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGifts
Third Parties Used0ThirdPartiesUsed

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (7 entries)

Return ReferenceReturnReferenceExplanationExplanation
FORM 990, PART VI, SECTION B, LINE 11COPIES OF 990 ARE DISTRIBUTED TO BOARD MEMBERS FOR REVIEW AND APPROVAL PRIOR TO FILING.
FORM 990, PART VI, SECTION B, LINE 12CALL NEW AND EXISTING BOARD MEMBERS REQUIRED TO ANNUALLY COMPLETE A CONFLICT OF INTEREST STATEMENT
FORM 990, PART VI, SECTION B, LINE 15EVALUATION AND COMPENSATION COMMITTEE PERFORMS EMPLOYEE EVALUATIONS AND DETERMINES SALARY INCREASES ON A YEARLY BASIS FOR ALL EMPLOYEES. COMMITTEE EXAMINES BENCHMARK DATA IN DETERMINING SALARIES FOR PRESIDENT AND EXECUTIVE DIRECTOR.
FORM 990, PART VI, SECTION C, LINE 18FORM 990 IS AVAILABLE ON THE ORGANIZATION'S WEBSITE AS WELL AS GUIDESTAR.ORG
FORM 990, PART VI, SECTION C, LINE 19FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FORM 1023 ARE AVAILABLE UPON REQUEST.
FORM 990, PART VI LINE 17THE ORGANIZATION IS ALSO REGISTERED TO SOLICIT CONTRIBUTIONS IN THE STATES LISTED.
THIS PROCESS IN WHICH THE ORGANIZATION ASSUMES RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT HAS NOT CHANGED FROM THE PRIOR YEAR.