CYSTIC FIBROSIS FOUNDATION: Form 990, tax year 2010

View the entire original 990 at ProPublica ↗

Organization: CYSTIC FIBROSIS FOUNDATION (EIN 13-1930701)
Tax period: 2010-01-01 to 2010-12-31
Filed: 2011-07-26
IRS object ID: 201102079349300720
Schema version: 2010v3.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule I
Schedule J
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2011-07-26T12:22:38-05:00	Timestamp
Tax Period End Date	2010-12-31	TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	ARGY WILTSE & ROBINSON PC	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	8405 GREENSBORO DRIVE 7TH FLOOR	AddressLine1
City	MCLEAN	City
State	VA	State
ZIP Code	22102	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2010-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	131930701	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS FOUNDATION- HEADQUARTERS	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	CYST	NameControl
Phone	3019514422	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	ROBERT J BEALL PHD	Name
Title	PRESIDENT & CEO	Title
Date Signed	2011-07-23	DateSigned

Preparer Preparer

Field	Value	IRS element (for citing)
Phone	7038930600	Phone

Field	Value	IRS element (for citing)
Tax Year	2010	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	ROBERT J BEALL PHD	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	250179596	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
Organization501c3	X	Organization501c3
Web Site	WWW.CFF.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1955	YearFormation
State Legal Domicile	DE	StateLegalDomicile
Activity Or Mission Description	THE MISSION IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	17	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	16	NbrIndependentVotingMembers
Total Nbr Employees	308	TotalNbrEmployees
Total Nbr Volunteers	250000	TotalNbrVolunteers
Total Gross UBI	0	TotalGrossUBI
Net Unrelated Business Txbl Income	0	NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year	94548345	ContributionsGrantsPriorYear
Contributions Grants Current Year	106799244	ContributionsGrantsCurrentYear
Program Service Revenue Prior Year	17000938	ProgramServiceRevenuePriorYear
Program Service Revenue CY	21411864	ProgramServiceRevenueCY
Investment Income Prior Year	-38516232	InvestmentIncomePriorYear
Investment Income Current Year	5617212	InvestmentIncomeCurrentYear
Other Revenue Prior Year	744699	OtherRevenuePriorYear
Other Revenue Current Year	639501	OtherRevenueCurrentYear
Total Revenue Prior Year	73777750	TotalRevenuePriorYear
Total Revenue Current Year	134467821	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	78204458	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	21487961	GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year	0	BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	22968489	SalariesEtcPriorYear
Salaries Etc Current Year	24796813	SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year	0	TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	10029667	TotalFundrsngExpCurrentYear
Other Expense Prior Year	20146198	OtherExpensePriorYear
Other Expenses Current Year	21688722	OtherExpensesCurrentYear
Total Expenses Prior Year	121319145	TotalExpensesPriorYear
Total Expenses Current Year	67973496	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	-47541395	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	66494325	RevenuesLessExpensesCY
Total Assets BOY	169126881	TotalAssetsBOY
Total Assets EOY	221040934	TotalAssetsEOY
Total Liabilities BOY	43054165	TotalLiabilitiesBOY
Total Liabilities EOY	32747225	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	126072716	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	188293709	NetAssetsOrFundBalancesEOY
Info In Schedule O Part III	X	InfoInScheduleOPartIII
Mission Description	THE MISSION OF THE CYSTIC FIBROSIS FOUNDATION, A NONPROFIT DONOR SUPPORTED ORGANIZATION, IS TO ASSURE THE DEVELOPMENT OF THE MEANS TO CURE AND CONTROL CYSTIC FIBROSIS (CF) AND TO IMPROVE THE QUALITY OF LIFE FOR THOSE WITH THE DISEASE. A LIFE SHORTENING GENETIC DISEASE, CF AFFECTS THE LUNGS AND DIGESTIVE SYSTEMS OF NEARLY 30,000 CHILDREN AND YOUNG ADULTS IN THE U.S. CURRENTLY, THERE IS NO CURE.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	31896940	Expense
Grants	20891238	Grants
Revenue	1616348	Revenue
Description	Medical Programs - Since 1955, the Cystic Fibrosis Foundation has been dedicated to curing and controlling cystic fibrosis (CF). The treatment and care protocols developed by the CF Foundation are helping tens of thousands of people with the disease live longer, healthier lives. To support its mission, the Foundation funds and accredits a nationwide network of 110 care centers. The care center network provides the best care for people with CF and has been recognized by the National Institutes of Health as a model of care for a chronic disease. -Cayston, a new inhaled antibiotic developed by Gilead Sciences, Inc., was approved in 2010 by the FDA. This was the first drug to progress completely through CFFT's Therapeutics Development Program and it offers an antibiotic alternative for CF patients who battle recurrent lung infections and often develop resistance to existing antibiotics. -Thanks in large part to the Foundation, in 2010, all 50 states and the District of Columbia began requiring that all newborns be screened for cystic fibrosis. In 2005, only five states required newborn screening. This progress is critically important because early diagnosis allows for early treatment, which leads to better overall health. The median predicted age of survival for a person with CF is in the mid-30s. More than 45 percent of people with CF are age 18 or older. -Medical programs consist of approximately 330 grants and other costs to support scientific studies/investigations and cystic fibrosis centers. Approximately 197 grants totaling $11.6 million were awarded to cystic fibrosis care centers serving approximately 24,000 patients.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	9482058	Expense
Grants	596723	Grants
Revenue	8921267	Revenue
Description	Cystic Fibrosis Foundation Pharmacy, LLC (CFFP) provides program management services to Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) and program management services and licensing to Cystic Fibrosis Services, Inc. (CFS). It provides availability and access to cystic fibrosis medications, as well as assistance with the complex insurance issues faced in obtaining these medications. CFFP provides personalized service, patient advocacy, patient education and reimbursement support to the CF community. In 2010, CFFP served 9,150 patients. CFFP fulfilled 80,229 orders to CF patients under manufacturer programs to assist patients in need. CFFP staff assisted CF patients with 176,505 prescriptions in 2010 by filing primary, secondary and tertiary insurance claims, as needed. Cystic Fibrosis Patient Assistance Foundation, LLC (CFPAF) responded to 9,480 calls for assistance and provided $596,723 in patient assistance grants to 696 CF patients in need during 2010.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	8795940	Expense
Grants	0	Grants
Revenue	0	Revenue
Description	Public and Professional Information and Education - to broaden its reach and to support its mission, the CF Foundation has programs designed to improve the knowledge of CF patients and their families, medical professionals and the general public regarding the disease. In 2010, there were 26 publications, 11 webcasts and 24 videos produced and made available for patients and their families and medical professionals, and the general public. Year-round conferences provide updates for CF researchers, physicians and allied health professionals and opportunities for collaboration on future CF research projects and treatment/care efforts. In 2010, nearly 2 million unique visitors came to the organization's website.	Description

Field	Value	IRS element (for citing)
Total Of Other Program Service Exp	2485924	TotalOfOtherProgramServiceExp
Total Of Other Program Service Grnt	0	TotalOfOtherProgramServiceGrnt
Total Of Other Program Service Rev	0	TotalOfOtherProgramServiceRev
Total Program Service Expense	52660862	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	true	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	true	LobbyingActivities
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	false	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	true	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	true	ReportOtherAssets
Report Other Liabilities	false	ReportOtherLiabilities
Report Fin48 Footnote	false	ReportFin48Footnote
Independent Audit Financial Stmt	false	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	true	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	true	ForeignActivities
More Than5000 K To Organizations	true	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	false	FundraisingActivities
Gaming	false	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	true	GrantsToIndividuals
Schedule J Required	true	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	false	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	false	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	false	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	true	DisregardedEntity
Related Entity	true	RelatedEntity
Related Org Controlled Entity	true	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	166	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	true	ComplianceWithBackupWitholding
Number Of Employees	308	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	false	UnrelatedBusinessIncome
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Non Deductible Contributions	false	NonDeductibleContributions
Quid Pro Quo Contributions	false	QuidProQuoContributions
Form8282 Property Disposed Of	false	Form8282PropertyDisposedOf
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form1098 C Filed	true	Form1098CFiled
Indoor Tanning Services	false	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	17	NbrVotingGoverningBodyMembers
Number Independent Voting Members	16	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	true	LocalChapters
Policies Reference Chapters	true	PoliciesReferenceChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ND	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Other Website	X	OtherWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	ROBERT J BEALL PHD	NamePerson
Telephone Number	3019514422	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON ROAD STE 200	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	X	InfoInScheduleOPartVII

Form990 Part VII Section A Form990PartVIISectionA (27 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	OfficerOfficer	Key EmployeeKeyEmployee	Highest Compensated EmployeeHighestCompensatedEmployee
Amy S Weinberg
Trustee	3.0	X	0	0	0
Barry M Gump
Trustee	3.0	X	0	0	0
Catherine C McLoud
Chair	3.0	X	0	0	0
Chad T Moore
Treasurer	3.0	X	0	0	0
Charles J Thayer
Vice Chair	3.0	X	0	0	0
David A Mount
Trustee	3.0	X	0	0	0
Gary B Sabin
Executive Vice Chair	3.0	X	0	0	0
J Taylor Crandall
Treasurer	3.0	X	0	0	0
KC Bryan White
Trustee	3.0	X	0	0	0
Paul W Whetsell
Trustee	3.0	X	0	0	0
Richard J Gray
Trustee	3.0	X	0	0	0
Richard L Dandurand
Vice Chairman	3.0	X	0	0	0
Robert S Kaplan
Trustee	3.0	X	0	0	0
Steven Shak MD
Trustee	3.0	X	0	0	0
Susan L Hook
Vice Chair	3.0	X	0	0	0
Theodore J Torphy PhD
Trustee	3.0	X	0	0	0
Robert J Beall PhD
President & CEO	34.0	X	403094	198548	239406	X
C Richard Mattingly
Exec VP and COO	50.0		427271	0	172429	X
Preston W Campbell MD
Exec VP of Medical Affairs	34.0		278976	140934	157898	X
Vera H Twigg
Sr. VP and CFO	50.0		273807	0	82369	X
Daniel Klein
Sr. Vice President - CFFP	50.0		202479	0	23164		X
Ann Palmer
SR. VP OF FIELD MANAGEMENT	50.0		199614	0	34563		X
David McLoughlin
Sr. VP OF OPERATIONS	50.0		208853	0	45817			X
Gregory August
Chief Information Officer	50.0		179978	0	41268			X
Glen Goldmark
VP of Human Resources	50.0		176282	0	34330			X
Amy DeMaria
Sr VP of Communications	50.0		175994	0	24704			X
Maureen Fraser
SR. DIR of Field Management	50.0		163765	0	32542			X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	2690113	TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs	339482	TotalReportableCompFrmRltdOrgs
Total Other Compensation	888490	TotalOtherCompensation
Number Individuals GT100 K	11	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	true	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1	CityAddressOfContractor/AddressUS/City	StateAddressOfContractor/AddressUS/State	ZIP CodeAddressOfContractor/AddressUS/ZIPCode	Description Of ServicesDescriptionOfServices	CompensationCompensation
ICS CORPORATION
2225 RICHMOND ST	PHILADELPHIA	PA	19125	MAILSHOP	1612213
DIAMONDBACK DIRECT
844 RITCHIE HWY	SEVERNA PARK	MD	21146	MAILSHOP	1087635
HUB LABELS
18223 SHAWLEY DRIVE	HAGERSTOWN	MD	21740	PRINTING	1064775
RMI DIRECT MARKETING
42 OLD RIDGEWAY RD	DANBURY	CT	06810	LIST MANAGEMENT	603656
CENTERPLATE
700 14TH ST	DENVER	CO	80202	EVENT CATERING	493835

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	33	NumberOfContractorsGT100K
Related Organizations	90875118	RelatedOrganizations
All Other Contributions	15924126	AllOtherContributions
Total Contributions	106799244	TotalContributions

Program Service Revenue ProgramServiceRevenue (4 entries)

DescriptionDescription	Business CodeBusinessCode	Total Revenue ColumnTotalRevenueColumn	Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome	ExclusionExclusionAmount
SCIENTIFIC CONFERENCE	611600	1616348	1616348
PROGRAM MANAGEMENT FEES	541900	7344991	7344991
CALL CENTER	541900	1576276	1576276
LICENSE FEES	900003	10874249		$10,874,249

Field	Value	IRS element (for citing)
Total Program Service Revenue	21411864	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	2676228	TotalRevenueColumn
Exclusion	$2,676,228	ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	171894	TotalRevenueColumn
Exclusion	$171,894	ExclusionAmount

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	118652759	Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	115711775	Securities

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	2940984	Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	2940984	TotalRevenueColumn
Exclusion	$2,940,984	ExclusionAmount

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	LIST RENTAL	Description
Business Code	533110	BusinessCode
Total Revenue Column	467607	TotalRevenueColumn
Exclusion	$467,607	ExclusionAmount

Field	Value	IRS element (for citing)
Total Other Revenue	467607	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	134467821	TotalRevenueColumn
Related Or Exempt Function Income	10537615	RelatedOrExemptFunctionIncome
Exclusion	$17,130,962	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	20885838	Total
Program Services	20885838	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	596723	Total
Program Services	596723	ProgramServices

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	5400	Total
Program Services	5400	ProgramServices

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	3480415	Total
Program Services	2556735	ProgramServices
Management And General	510437	ManagementAndGeneral
Fundraising	413243	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	17189270	Total
Program Services	12627344	ProgramServices
Management And General	2520976	ManagementAndGeneral
Fundraising	2040950	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	899349	Total
Program Services	660667	ProgramServices
Management And General	131898	ManagementAndGeneral
Fundraising	106784	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	1869019	Total
Program Services	1372993	ProgramServices
Management And General	274110	ManagementAndGeneral
Fundraising	221916	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	1358760	Total
Program Services	1015201	ProgramServices
Management And General	175554	ManagementAndGeneral
Fundraising	168005	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	418245	Total
Program Services	335784	ProgramServices
Management And General	82461	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	177810	Total
Program Services	58991	ProgramServices
Management And General	118819	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	45600	Total
Program Services	45600	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	101164	Total
Program Services	0	ProgramServices
Management And General	101164	ManagementAndGeneral
Fundraising	0	Fundraising

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	2349407	Total
Program Services	1533403	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	816004	Fundraising

Advertising Advertising

Field	Value	IRS element (for citing)
Total	10996	Total
Program Services	6593	ProgramServices
Management And General	2028	ManagementAndGeneral
Fundraising	2375	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	1385665	Total
Program Services	1216906	ProgramServices
Management And General	95540	ManagementAndGeneral
Fundraising	73219	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	2763447	Total
Program Services	2119331	ProgramServices
Management And General	208244	ManagementAndGeneral
Fundraising	435872	Fundraising

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	1459323	Total
Program Services	1134555	ProgramServices
Management And General	204654	ManagementAndGeneral
Fundraising	120114	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	640974	Total
Program Services	551840	ProgramServices
Management And General	27977	ManagementAndGeneral
Fundraising	61157	Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	2383462	Total
Program Services	2335003	ProgramServices
Management And General	18509	ManagementAndGeneral
Fundraising	29950	Fundraising

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	469209	Total
Program Services	411782	ProgramServices
Management And General	30288	ManagementAndGeneral
Fundraising	27139	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	378346	Total
Program Services	301152	ProgramServices
Management And General	29778	ManagementAndGeneral
Fundraising	47416	Fundraising

Other Expenses OtherExpenses (5 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
DIRECT MAIL PRINTING	3758425	1149326	0	2609099
DIRECT MAIL POSTAGE	3354197	1025713	0	2328484
TRAINING	365661	270118	45001	50542
MAILING LIST RENTAL	622384	190325	0	432059
QUALITY IMPROVEMENT TRAINING	149283	149283	0	0

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	855124	Total
Program Services	104256	ProgramServices
Management And General	705529	ManagementAndGeneral
Fundraising	45339	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	67973496	Total
Program Services	52660862	ProgramServices
Management And General	5282967	ManagementAndGeneral
Fundraising	10029667	Fundraising

Field	Value	IRS element (for citing)
Joint Costs	X	JointCosts

Total Joint Costs TotalJointCosts

Field	Value	IRS element (for citing)
Total	9824693	Total
Program Services	3004390	ProgramServices
Management And General	0	ManagementAndGeneral
Fundraising	6820303	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	12351611	BOY
EOY	0	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	13681118	BOY
EOY	10129208	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	24734094	BOY
EOY	23195345	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
BOY	2664184	BOY
EOY	3394223	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
BOY	413890	BOY
EOY	513317	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	1424848	BOY
EOY	1074652	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	6977144	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	5023094	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	2052042	BOY
EOY	1954050	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	83584449	BOY
EOY	99508241	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
BOY	21265585	BOY
EOY	37241095	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	6955060	BOY
EOY	44030803	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	169126881	BOY
EOY	221040934	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	7876059	BOY
EOY	10639429	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	18280778	BOY
EOY	19417980	EOY

Deferred Revenue DeferredRevenue

Field	Value	IRS element (for citing)
BOY	1566466	BOY
EOY	2689816	EOY

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
BOY	15330862	BOY
EOY	0	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	43054165	BOY
EOY	32747225	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	100674842	BOY
EOY	165901802	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	22579133	BOY
EOY	19046213	EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	2818741	BOY
EOY	3345694	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	126072716	BOY
EOY	188293709	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	169126881	BOY
EOY	221040934	EOY

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	X	InfoInScheduleOPartXI
Reconcilation Revenue Expenses	66494325	ReconcilationRevenueExpenses
Reconcilation Other Changes	-4273332	ReconcilationOtherChanges
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited
Audit Committee	true	AuditCommittee
Financial Statement Consolidated	X	FinancialStatementConsolidated
Federal Grant Audit Required	false	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi
Contrib By Controlling Individual	false	ContribByControllingIndividual
Contribution By Related Party	false	ContributionByRelatedParty
Contrib By35 Controlled Entity	false	ContribBy35ControlledEntity

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	112053277	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	125762419	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	112573276	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	94548345	CurrentTaxYearMinus1Year
Current Tax Year	106799244	CurrentTaxYear
Total	551736561	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	112053277	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	125762419	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	112573276	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	94548345	CurrentTaxYearMinus1Year
Current Tax Year	106799244	CurrentTaxYear
Total	551736561	Total

Field	Value	IRS element (for citing)
Public Support Total170	551736561	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	4731799	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	9254984	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	5292496	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2946628	CurrentTaxYearMinus1Year
Current Tax Year	2848122	CurrentTaxYear
Total	25074029	Total

Net UBI NetUBI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	0	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	0	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1916	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	0	CurrentTaxYearMinus1Year
Current Tax Year	0	CurrentTaxYear
Total	1916	Total

Other Income170 OtherIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	1140889	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1086167	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	998418	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	636827	CurrentTaxYearMinus1Year
Current Tax Year	467607	CurrentTaxYear
Total	4329908	Total

Field	Value	IRS element (for citing)
Total Support	581142414	TotalSupport
Gross Receipts From Admissions Etc	60258909	GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage170	0.94940	PublicSupportPertcentage170
Public Support Pertcent Prior Year	0.94639	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170
General Explanation	THE FOUNDATION FOSTERS COLLABORATION WITHIN THE SCIENTIFIC COMMUNITY BY HOSTING A LARGE SCIENTIFIC CONFERENCE PROVIDING A FORUM FOR RESEARCHERS AND CAREGIVERS TO SHARE THEIR PRACTICES AND INVESTIGATIVE RESULTS WITH ONE ANOTHER. FEES FOR ATTENDANCE AT THIS CONFERENCE ARE REPORTED ON LINE 12. PROGRAM MANAGEMENT FEES REPRESENT CHARGES FOR THE MANAGEMENT OF OPERATIONS PROVIDED BY CYSTIC FIBROSIS FOUNDATION PHARMACY, LLC (CFFP)(A DISREGARDED ENTITY OF THE ORGANIZATION) TO CYSTIC FIBROSIS SERVICES, INC. (A SUBSIDIARY OF CFFP). LICENSE FEES ARE PAID BY CYSTIC FIBROSIS SERVICES, INC. TO CFFP, LLC, FOR PROMOTION OF THE CFS PHARMACY, FEATURING ON THE WEBSITE, USE OF PATIENT EDUCATION AND COMMUNICATION MATERIALS, USE OF ORGANIZATION NAME, LOGO AND TRADEMARK, ETC. CF'S SOLE ACTIVITY IS TO OPERATE AND MANAGE A SPECIALTY PHARMACY THAT SELLS CYSTIC FIBROSIS RELATED PRESCRIPTION PHARMACEUTICALS, RELATED DURABLE MEDICAL EQUIPMENT AND NON-PRESCRIPTION CYSTIC FIBROSIS RELATED VITAMINS AND SUPPLEMENTS. CFS SERVES PATIENTS WHO HAVE BEEN DIAGNOSED WITH CYSTIC FIBROSIS. THIS REVENUE IS NOT TAXABLE BECAUSE THE ORGANIZATION RECEIVED A PRIVATE LETTER RULING DETERMINING THAT CFS'S ACTIVITIES WERE RELATED TO THE ORGANIZATION'S EXEMPT PURPOSE.	GeneralExplanation
General Explanation	OTHER INCOME INCLUDES MAILING LIST RENTAL REVENUE	GeneralExplanation

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	11250	FilingOrganizationsTotals

Total Direct Lobbying TotalDirectLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	245773	FilingOrganizationsTotals

Total Lobbying Expenditures TotalLobbyingExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	257023	FilingOrganizationsTotals

Other Exempt Purpose Expenditures OtherExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	67716473	FilingOrganizationsTotals

Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	67973496	FilingOrganizationsTotals

Lobbying Nontaxable LobbyingNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	1000000	FilingOrganizationsTotals

Grassroots Nontaxable GrassrootsNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	250000	FilingOrganizationsTotals

Field	Value	IRS element (for citing)
Tot Lobbying Grassroot Minus Non Tx		TotLobbyingGrassrootMinusNonTx
Tot Lobby Expend Mns Lobbying Nontx		TotLobbyExpendMnsLobbyingNontx

Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	1000000	CurrentYearMinus3
Current Year Minus2	1000000	CurrentYearMinus2
Current Year Minus1	1000000	CurrentYearMinus1
Current Year	1000000	CurrentYear
Total	4000000	Total

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmount

Total Lobbying Expenditures2 TotalLobbyingExpenditures2

Field	Value	IRS element (for citing)
Current Year Minus3	124713	CurrentYearMinus3
Current Year Minus2	150679	CurrentYearMinus2
Current Year Minus1	165973	CurrentYearMinus1
Current Year	257023	CurrentYear
Total	698388	Total

Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus3	250000	CurrentYearMinus3
Current Year Minus2	250000	CurrentYearMinus2
Current Year Minus1	250000	CurrentYearMinus1
Current Year	250000	CurrentYear
Total	1000000	Total

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmount

Grassroots Lobbying Expenditures GrassrootsLobbyingExpenditures

Field	Value	IRS element (for citing)
Current Year Minus3	16500	CurrentYearMinus3
Current Year Minus2	14000	CurrentYearMinus2
Current Year Minus1	14000	CurrentYearMinus1
Current Year	11250	CurrentYear
Total	55750	Total

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Art Public Exhibition Amts		ArtPublicExhibitionAmts
Held Works Of Art Amts		HeldWorksOfArtAmts
Land		Land
Buildings		Buildings

Leasehold Improvements LeaseholdImprovements

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	777830	OtherCostOrOtherBasis
Depreciation	403975	Depreciation
Book Value	373855	BookValue

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	6199314	OtherCostOrOtherBasis
Depreciation	4619119	Depreciation
Book Value	1580195	BookValue

Field	Value	IRS element (for citing)
Other Land Buildings		OtherLandBuildings
Total Of Book Value Land Buildings	1954050	TotalOfBookValueLandBuildings
Financial Derivatives		FinancialDerivatives
Closely Held Equity Interests		CloselyHeldEquityInterests

Other Securities OtherSecurities (3 entries)

DescriptionDescription	Book ValueBookValue	Method Of ValuationMethodOfValuation
OTHER INVESTMENT FUNDS	7492504	F
MARKETABLE ALT. INV. FUNDS	26630169	F
INTEREST IN PERPETUAL TRUSTS	3118422	F

Field	Value	IRS element (for citing)
Total Of Book Value Securities	37241095	TotalOfBookValueSecurities

Other Assets OtherAssets (4 entries)

DescriptionDescription	Book ValueBookValue
INTERCOMPANY RECEIVABLE	39368519
INVESTMENT IN SUBSIDIARY	-5393313
OTHER ASSETS	55597
LOAN TO SUBSIDIARY	10000000

Field	Value	IRS element (for citing)
Total Book Value Other Assets	44030803	TotalBookValueOtherAssets

Form990 Schedule D Part XIV Form990ScheduleDPartXIV

Field	Value	IRS element (for citing)
Identifier	FIN 48 FOOTNOTE	Identifier
Return Reference	FORM 990, SCHEDULE D, PART X, LINE 2	ReturnReference
Explanation	IN 2009, THE FOUNDATION ADOPTED AUTHORITATIVE GUIDANCE SPECIFIC TO THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. THE ADOPTION DID NOT HAVE A MATERIAL EFFECT ON THE FINANCIAL STATEMENTS.	Explanation

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	true	GrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable

Field	Value	IRS element (for citing)
Region	North America	Region
Number Of Offices	0	NumberOfOffices
Number Of Employees	0	NumberOfEmployees
Type Of Activities Conducted	Grantmaking	TypeOfActivitiesConducted
Specific Services Provided	NONE	SpecificServicesProvided
Total Expenditures	5400	TotalExpenditures

Field	Value	IRS element (for citing)
Subtotal Number Of Offices	0	SubtotalNumberOfOffices
Subtotal Number Of Employees	0	SubtotalNumberOfEmployees
Total Number Of Offices	0	TotalNumberOfOffices
Total Number Of Employees	0	TotalNumberOfEmployees
Subtotal Amount Spent	5400	SubtotalAmountSpent
Total Amount Spent	5400	TotalAmountSpent

Grants To Orgs Outside US GrantsToOrgsOutsideUS

Field	Value	IRS element (for citing)
Region	North America	Region
Purpose Of Grant	QUAL IMPROV	PurposeOfGrant
Amount Of Cash Grant	5400	AmountOfCashGrant
Manner Of Cash Disbursement	CHECK	MannerOfCashDisbursement

Field	Value	IRS element (for citing)
Total Number Of501c3 Orgs	1	TotalNumberOf501c3Orgs
Transfer To Foreign Corp	false	TransferToForeignCorp
Interest In Foreign Trust	false	InterestInForeignTrust
Own Foreign Corp	false	OwnForeignCorp
Passive Foreign Invest Co	false	PassiveForeignInvestCo
Foreign Partnership	false	ForeignPartnership
Boycott Countries	false	BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

Field	Value	IRS element (for citing)
Identifier	Procedures for monitoring grant funds outside of the U.S.	Identifier
Return Reference	Schedule F, Part I, Line 2	ReturnReference
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGRESS AND FINANCIAL ASPECTS OF GRANTS AWARDED TO ENTITIES OUTSIDE OF THE UNITED STATES. THE ORGANIZATION FOLLOWS THE U.S. DEPARTMENT OF TREASURY ANTI-TERRORIST FINANCING VOLUNTARY BEST PRACTICES GUIDELINES FOR CHARITIES. IN COMPLIANCE WITH THE BEST PRACTICES, THE ORGANIZATION COLLECTS AND REVIEWS INFORMATION ABOUT THE PROSPECTIVE GRANTEES AND CONDUCTS A VETTING PROCESS TO ENSURE THEY ARE NOT SUSPECTED OF ACTIVITIES RELATED TO TERRORISM. ONCE A GRANT IS APPROVED, A WRITTEN AGREEMENT IS SIGNED BY BOTH THE ORGANIZATION AND THE GRANTEE. FUNDING IS INCREMENTAL AND SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS SCIENTIFIC PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. THE FINAL GRANT PAYMENT IS CONTINGENT UPON RECEIPT AND APPROVAL OF THE REPORT OF EXPENDITURES. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED BY STAFF TO ENSURE INCURRED COSTS ARE APPROPRIATE. the cf foundation's internal auditors conduct audits on samples of grant expenditure reports by examining supporting records from the sponsored institutions.	Explanation

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (251 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	IRC SectionIRCSection	Amount Of Cash GrantAmountOfCashGrant	Purpose Of GrantPurposeOfGrant	Address Line2AddressUS/AddressLine2
Advocate Hope Children's Hospital
4440 West 95th Street	Oak Lawn	IL	60453	362169147	501c(3)	42726	CF CARE CENTER
Albany Medical College
Elsmere A-107	Albany	NY	12208	141338310	501c(3)	88030	CF CARE CENTER
Alfred I DuPont Institute of the Nemours Foundati
1600 Rockland Road	Wilmington	DE	19899	590634433	501c(3)	186060	CF CARE CENTER
All Children's Hospital
Dept 9010	St Petersburg	FL	33731	590683252	501c(3)	73830	CF CARE CENTER	PO Box 269
Arizona Board of Regents University of Arizona
Sponsored Projects Services	Tucson	AZ	857223308	742652689	501c(3)	49270	CF CARE CENTER	PO Box 31020
Arkansas Children's Hospital Research Institute I
800 Marshall Street	Little Rock	AR	72202	710694931	501c(3)	68340	CF CARE CENTER	888 N Euclid Room 510
Asthma and Allergy Specialists PA
411 Billings Road	Charlotte	NC	28211	561913043	C Corp.	38312	CF CARE CENTER	Slot 512-17
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	521958352	501c(3)	66360	CF CARE CENTER	Suite 104
Atlantic Health System
100 Madison Avenue	Morristown	NJ	07962	521958352	501c(3)	27000	ADULT CARE
Baylor College of Medicine
PO Box 1	Houston	TX	77212	741613878	501c(3)	407299	CF CARE CENTER
Baylor College of Medicine
PO Box 1	Houston	TX	77212	741613878	501c(3)	27000	ADULT CARE
Baystate Medical Center (95-196)
759 Chestnut Street	Springfield	MA	01199	042790311	501c(3)	28880	CF CARE CENTER
Beth Israel Medical Center
36 Seventh Avenue Suite 509	New York	NY	10011	135564934	501c(3)	87740	CF CARE CENTER
Board of Trustees Southern Illinois University
Division of Pulmonary Medicine	Springfield	IL	62794	376005961	501c(3)	6390	CF CARE CENTER
California Pacific Medical Center Research Institu
2200 Webster Street Room 405	San Francisco	CA	94115	940562680	501c(3)	16710	CF CARE CENTER	PO Box 19636
CAMC Health Education and Research Institute
PO Box 765	Charleston	WV	25323	550753754	501c(3)	14360	CF CARE CENTER
Carle Clinic Association
Department of Pediatrics	Urbana	IL	61801	371188284	C. Corp.	10598	CF CARE CENTER
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067015	341018992	501c(3)	42500	RESEARCH	602 W University Avenue
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067015	341018992	501c(3)	97200	RESEARCH STUDIES
Case Western Reserve University
10900 Euclid Avenue	Cleveland	OH	441067015	341018992	501c(3)	450000	RESEARCH CENTERS
Central Florida Pulmonary Group
326 North Mills Avenue	Orlando	FL	32803	591760017	C Corp.	35570	CF CARE CENTER
Children's Healthcare of Atlanta
1001 Johnson Ferry Road North	Atlanta	GA	30342	582367819	501c(3)	72830	CF CARE CENTER
Children's Hospital & Research Center at Oakland
747 52nd Street	Oakland	CA	94609	940382330	501c(3)	33270	CF CARE CENTER
Children's Hospital & Research Center at Oakland
747 52nd Street	Oakland	CA	94609	940382330	501c(3)	10000	RESEARCH STUDIES
Children's Hospital and Regional Medical Center
4800 Sand Point Way NE	Seattle	WA	981050371	910564748	501c(3)	83850	CF CARE CENTER
Children's Hospital and Regional Medical Center
4800 Sand Point Way NE	Seattle	WA	981050371	910564748	501c(3)	43200	PILOT STUDIES
Children's Hospital Central California
9300 Valley Childrens Place	Madera	CA	93638	941294954	501c(3)	46750	CF CARE CENTER
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	163148	TRAINING
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	215017	CF CARE CENTER
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	42500	RESEARCH
Children's Hospital Corporation
300 Longwood Ave	Boston	MA	021155737	042774441	501c(3)	27000	ADULT CARE
Children's Hospital Foundation at Westchester Medi
Pediatric Pulmonology	Valhalla	NY	10595	133940462	501c(3)	65010	CF CARE CENTER
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	443081062	340714357	501c(3)	102550	CF CARE CENTER	Munger Pavilion Room 106
Children's Hospital Medical Center Akron
One Perkins Square	Akron	OH	443081062	340714357	501c(3)	54000	ADULT CARE
Children's Hospital Medical Center Cincinnati
Research Accounting	Cincinnati	OH	45229	310833936	501c(3)	48000	TRAINING
Children's Hospital Medical Center Cincinnati
Research Accounting	Cincinnati	OH	45229	310833936	501c(3)	95430	CF CARE CENTER	3333 Burnet Avenue
Children's Hospital Medical Center Cincinnati
Research Accounting	Cincinnati	OH	45229	310833936	501c(3)	333000	RESEARCH CENTERS	3333 Burnet Avenue
Children's Hospital of Michigan
3663 Woodward Ave S Ste 200	Detroit	MI	48201	381357994	501c(3)	74860	CF CARE CENTER	3333 Burnet Avenue
Children's Hospital Los Angeles
Research Institute	Los Angeles	CA	90027	951690977	501c(3)	78740	CF CARE CENTER
Children's Lung Specialists
3838 Meadows Lane	Las Vegas	NV	89107	880271963	501c(3)	71030	CF CARE CENTER	4650 Sunset Blvd
Children's Medical Center
One Childrens Plaza	Dayton	OH	454041815	310672132	501c(3)	76230	CF CARE CENTER
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	48000	TRAINING
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	108334	CF CARE CENTER
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	27000	QUALITY IMPROVEMENT
Children's Memorial Hospital
2300 Childrens Plaza - Box 205	Chicago	IL	60614	362170833	501c(3)	43200	PILOT STUDIES
Children's Mercy Hospital
2401 Gillham Road	Kansas City	MO	64108	440605373	501c(3)	108790	CF CARE CENTER
Children's National Medical Center
111 Michigan Avenue NW	Washington	DC	20010	521654453	501c(3)	79640	CF CARE CENTER
Children's National Medical Center
111 Michigan Avenue NW	Washington	DC	20010	521654453	501c(3)	7406	RESEARCH
Children's Respiratory Center
58 Bear Drive	Greenville	SC	29605	570971539	C Corp.	26960	CF CARE CENTER
Children's Specialty Group PLLC
PO Box 11049	Norfolk	VA	23517	541871633	PLLC	65240	CF CARE CENTER
Christus Santa Rosa Healthcare
333 North Santa Rosa	San Antonio	TX	78207	741109665	501c(3)	78600	CF CARE CENTER
Clinical Practices of the University of Pennsylvan
The University of Pennsylvania Heal	Philadelphia	PA	19104	231352685	501c(3)	78241	CF CARE CENTER
Clinical Practices of the University of Pennsylvan
The University of Pennsylvania Heal	Philadelphia	PA	19104	231352685	501c(3)	10960	RESEARCH
Clinical Practices of the University of Pennsylvan
The University of Pennsylvania Heal	Philadelphia	PA	19104	231352685	501c(3)	306000	RESEARCH CENTERS
Connecticut Children's Medical Center
282 Washington Street	Hartford	CT	06106	060646755	501c(3)	46329	CF CARE CENTER
Connecticut Children's Medical Center
282 Washington Street	Hartford	CT	06106	060646755	501c(3)	32109	QUALITY IMPROVEMENT
COOK CHILDREN'S MEDICAL CENTER
801 Seventh Avenue	Ft Worth	TX	76104	752051646	501c(3)	108840	CF CARE CENTER
Daughters of Charing Health Services of Austin
4900 Mueller Blvd	Austin	TX	78723	741109643	501c(3)	54730	CF CARE CENTER
Drexel University College of Medicine
3201 Arch St Suite 100	Philadelphia	PA	191291191	232979433	501c(3)	90110	CF CARE CENTER
Drexel University College of Medicine
3201 Arch St Suite 100	Philadelphia	PA	191291191	232979433	501c(3)	27000	ADULT CARE
Duke University Medical Center
Office of Sponsored Programs	Durham	NC	27710	560532129	501c(3)	49750	TRAINING
Duke University Medical Center
Office of Sponsored Programs	Durham	NC	27710	560532129	501c(3)	62360	CF CARE CENTER	Box 104025
East Tennessee Children's Hospital Association I
2100 Clinch Avenue 310	Knoxville	TN	37916	626002604	501c(3)	68260	CF CARE CENTER	Box 104025
Eastern Maine Medical Center
417 State Street	Bangor	ME	04401	010211501	501c(3)	29960	CF CARE CENTER
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	185600	CF CARE CENTER	Suite 305
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	27000	QUALITY IMPROVEMENT
Emory University
1380 South Oxford Road	Atlanta	GA	30322	580566256	501c(3)	20250	ADULT CARE
Fairfax Neonatal Associates PC dbaPediatric Lung
2730-B Prosperity Avenue	Fairfax	VA	22031	541110106	C Corp.	20878	CF CARE CENTER
Fletcher Allen Health Care
111 Colchester Ave	Burlington	VT	05401	030219309	501c(3)	66210	CF CARE CENTER
Geisinger Medical Center
Pediatric Allergy Immunology Pul	Danville	PA	17822	236291113	501c(3)	46390	CF CARE CENTER
Good Samaritan Hospital
1000 Montauk Highway	New York	NY	11795	111888924	501c(3)	11050	CF CARE CENTER	100 N Academy Drive
Gundersen Lutheran Medical Foundation
1900 South Avenue	La Crosse	WI	54601	391249705	501c(3)	13500	CF CARE CENTER
Hartford Hospital
Department of Medicine	Hartford	CT	06102	060646668	501c(3)	30441	CF CARE CENTER
Henry M Jackson Foundation for the advancement of
1404 Rockville Pike Suite 600	Rockville	MD	20852	521317896	501c(3)	38505	CF CARE CENTER	80 Seymour Street
Indiana University (Indianapolis)
Indiana University Research and Spo	Indianapolis	IN	462025167	356001673	501c(3)	97750	TRAINING
Indiana University (Indianapolis)
Indiana University Research and Spo	Indianapolis	IN	462025167	356001673	501c(3)	189040	CF CARE CENTER
Iowa Health Foundation
1440 Ingersoll Avenue	Des Moines	IA	50309	421467682	501c(3)	42680	CF CARE CENTER
Kaiser Foundation Hospitals Center for Health Res
3800 North Interstate Avenue	Portland	OR	97227	911105628	501c(3)	20336	CF CARE CENTER
Kaiser Foundation Research Institute
1800 Harrison Street	OAKLAND	CA	94612	941105628	501c(3)	119500	CF CARE CENTER
Kaleida Health
219 Bryant Street	Buffalo	NY	14209	161533232	501c(3)	80400	CF CARE CENTER	16th floor
Kosair Children's Hospital - CF Center
PO Box 35070	Louisville	KY	402325070	611028725	501c(3)	47860	CF CARE CENTER
Landon Pediatric Foundation
3160 Loma Vista Road	Ventura	CA	93003	931097216	501c(3)	22620	CF CARE CENTER
Lee Memorial Health System Foundation Inc
9800 S HealthPark Dr	Ft Myers	FL	339083630	650645343	501c(3)	23320	CF CARE CENTER
Loma Linda University Medical Center
Coleman Pavilion	Loma Linda	CA	92350	330672915	501c(3)	47530	CF CARE CENTER
Long Island Jewish Medical Center
Finance Department	Westbury	NY	11590	112241326	501c(3)	29788	CF CARE CENTER	PO Box 2000
Loyola University of Chicago
2160 S First Avenue	Maywood	IL	60153	361408475	501c(3)	39450	CF CARE CENTER	972 Brushhollow Road
LSUMC - Shreveport
P O Box 33932	Shreveport	LA	71130	720702002	501c(3)	68140	CF CARE CENTER
Lutheran Hospital of Indiana
7950 West Jefferson Boulevard	FT Wayne	IN	46804	351963748	LP	25360	CF CARE CENTER
Maine Medical Center
22 Bramhall Street	Portland	ME	04102	010238552	501c(3)	76590	CF CARE CENTER
Marshfield Clinic Research Foundation
1000 North Oak Avenue	Marshfield	WI	54449	390452970	501c(3)	12008	CF CARE CENTER
Mary Bridge Children's Foundation
311 South L Street	Tacoma	WA	98405	943030039	501c(3)	33290	CF CARE CENTER
Medical College of Georgia
PO box 945552	Atlanta	GA	303945552	586002053	501c(3)	75790	CF CARE CENTER	Mailstop B1-OC
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501c(3)	77320	CF CARE CENTER
Medical University of South Carolina
PO Box 997	Charleston	SC	29402	576000722	501c(3)	27000	ADULT CARE
Memorial Medical Center Foundation
2801 Atlantic Avenue	Long Beach	CA	90806	956105984	501c(3)	80790	CF CARE CENTER
Memorial Medical Center Foundation
2801 Atlantic Avenue	Long Beach	CA	90806	956105984	501c(3)	23000	ADULT CARE
Miami Children's Hospital
MOB 203	Miami	FL	33155	590638499	501c(3)	26580	CF CARE CENTER
Michigan State University
301 Administration Bldg	East Lansing	MI	488241046	386005984	501c(3)	55514	CF CARE CENTER	3200 SW 60th Court
Mission Healthcare Foundation Inc
980 Hendersonville Road	Asheville	NC	28803	561881331	501c(3)	14304	CF CARE CENTER
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501c(3)	55410	CF CARE CENTER	Suite C
Monmouth Medical Center Foundation
300 Second Avenue	Long Branch	NJ	07740	222456079	501c(3)	27000	ADULT CARE
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	84960	CF CARE CENTER
National Jewish Medical and Research Center
1400 Jackson Street	Denver	CO	80206	742044647	501c(3)	91000	RESEARCH
North Suburban Pulmonary Research and Education
8780 W Gold	Niles	IL	60714	364393617	C Corp.	8000	CF CARE CENTER
Northeastern University
360 Huntington Avenue	Boston	MA	02115	041679980	501c(3)	45800	RESEARCH	Suite 102
Northwestern Medical Faculty Foundation
Financial Services	Chicago	IL	60611	363097297	501c(3)	6000	CF CARE CENTER	405 Lake Hall
Northwestern University
750 N Lake Shore Drive	Chicago	IL	606113008	362167817	501c(3)	27000	ADULT CARE	680 N Lake Shore Dr Suite 1118
Norton Hospital Inc
PO Box 35070	Louisville	KY	402325070	610703799	501c(3)	27130	CF CARE CENTER	Rubloff 7th Floor
Oregon Health & Sciences University
3181 SW Sam Jackson Park Road L-1	Portland	OR	97201	237083114	501c(3)	134164	CF CARE CENTER
Oregon Health & Sciences University
3181 SW Sam Jackson Park Road L-1	Portland	OR	97201	237083114	501c(3)	25289	QUALITY IMPROVEMENT
Oregon Health & Sciences University
3181 SW Sam Jackson Park Road L-1	Portland	OR	97201	237083114	501c(3)	42500	RESEARCH
Oregon Health & Sciences University
3181 SW Sam Jackson Park Road L-1	Portland	OR	97201	237083114	501c(3)	97200	RESEARCH STUDIES
Oregon Health & Sciences University
3181 SW Sam Jackson Park Road L-1	Portland	OR	97201	237083114	501c(3)	27000	ADULT CARE
Pennsylvania State University
College of Medicine	Hershey	PA	17033	246000376	501c(3)	103470	CF CARE CENTER
Phoenix Children's Hospital
1300 North 12th Street	Phoenix	AZ	85006	860422559	501c(3)	123640	CF CARE CENTER	Office of Research Affairs H138
Providence Alaska Medical Center
3200 Providence Drive	Anchorage	AK	995196604	920016429	501c(3)	24840	CF CARE CENTER
Providence Physician Service
101 W 8th Ave	Spokane	WA	99204	911216033	C Corp.	56760	CF CARE CENTER	PO Box 196604
Regents of the University of Colorado
Grants Contracts	Aurora	CO	800450508	846000555	501c(3)	129798	TRAINING
Rhode Island Hospital
593 Eddy Street	Providence	RI	02903	050258954	501c(3)	53110	CF CARE CENTER	F428 Fitzsimons Building 500
Rosalind Franklin University of Medicine and Scien
Green Bay Rd	North Chicago	IL	60064	362181973	501c(3)	197387	RESEARCH STUDIES
Rush-Presbyterian-St Luke's Medical Center
1725 West Harrison Suite 718	Chicago	IL	60612	362174823	501c(3)	36950	CF CARE CENTER
Saint Barnabas Medical Center
Pediatric Pulmonary Division	Livingston	NJ	07039	221494440	501c(3)	19290	CF CARE CENTER
Saint Francis Medical Center
530 NE Glen Oak Avenue	Peoria	IL	61637	370662569	501c(3)	47970	CF CARE CENTER	200 S Orange Avenue
Saint Joseph's Hospital and Medical Center
703 Main Street	Paterson	NJ	07503	221487602	501c(3)	16410	CF CARE CENTER
Samaritan Medical Center
Child Adolescent Health Services	Watertown	NY	13601	150533577	501c(3)	7120	CF CARE CENTER
Sanford Children's Specialty Clinic
1305 W 18th Street	Sioux Falls	SD	571175039	460447693	501c(3)	56010	CF CARE CENTER	513 Washington Street
South Broward Hospital District
Joe DiMaggios Childrens Hospital	Hollywood	FL	33321	596014973	501c(3)	42800	CF CARE CENTER
Spectrum Health
Downtown Campus	Grand Rapids	MI	49503	382752328	501c(3)	99490	CF CARE CENTER	Cystic Fibrosis Clinic
St Alexius Medical Center
PO Box 1658	Bismarck	ND	58502	450226711	501c(3)	30040	CF CARE CENTER	100 Michigan Street NE
St Joseph's Regional Medical Center
720 East Cedar Street	South Bend	IN	46617	351568821	501c(3)	20910	CF CARE CENTER
St Louis University
3500 Lindell Blvd	St Louis	MO	63103	430654872	501c(3)	76786	CF CARE CENTER	Suite 440
St Luke's Regional Medical Center
100 East Idaho	Boise	ID	83712	820161600	501c(3)	38950	CF CARE CENTER
Stanford University
651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	52250	TRAINING	Suite 200
Stanford University
651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	122060	CF CARE CENTER	Mail Code 5402
Stanford University
651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	97200	RESEARCH STUDIES	Mail Code 5402
Stanford University
651 Serra Street Suite 220	Stanford	CA	943056215	941156365	501c(3)	27000	ADULT CARE	Mail Code 5402
Sutter Medical Center Sacramento
5609 J Street Suite C	Sacramento	CA	95819	941156621	501c(3)	47260	CF CARE CENTER	Mail Code 5402
TC Thompson Children's Hospital
910 Blackford Street	Chattanooga	TN	37403	626000101	501c(3)	28170	CF CARE CENTER
Tenet St Mary's Inc Cystic Fibrosis Center
PO Box 24620	West Palm Beach	FL	33407	752932830	C Corp.	36980	CF CARE CENTER
The Children's Hospital Association
13123 East 16th Avenue B321	Aurora	CO	80045	840166760	501c(3)	188740	CF CARE CENTER	901 45th Street
The Children's Hospital at Scott & White
2401 South 31st Street	Temple	TX	76508	741166904	501c(3)	13000	CF CARE CENTER
The Children's Hospital of Philadelphia
3516 Civic Center Blvd	Philadelphia	PA	191044318	231352166	501c(3)	78748	CF CARE CENTER
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	57604	CF CARE CENTER
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	43600	RESEARCH	310 Jesse Hall
The Curators of the University of Missouri
Office of Sponsored Program Adminis	Columbia	MO	65211	436003859	501c(3)	27000	ADULT CARE	310 Jesse Hall
The Feinstein Institute for Medical Research
350 Community Drive	Manhasset	NY	11030	112673595	501c(3)	27000	QUALITY IMPROVEMENT	310 Jesse Hall
The General Hospital Corporation (aka Massachus
Research Management	Boston	MA	021142554	042697983	501c(3)	166971	TRAINING
The General Hospital Corporation (aka Massachus
Research Management	Boston	MA	021142554	042697983	501c(3)	88380	CF CARE CENTER	50 Staniford Street Suite 1001
The Hitchcock Foundation
One Medical Center Drive	Lebanon	NH	03756	020222139	501c(3)	85430	CF CARE CENTER	50 Staniford Street Suite 1001
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	197550	CF CARE CENTER
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	89750	RESEARCH
The Johns Hopkins University
600 N Wolfe Street Park 316	Baltimore	MD	21205	520595110	501c(3)	414000	RESEARCH CENTERS
The Medical College of Wisconsin
8701 Watertown Plk Rd	Milwaukee	WI	53226	390806261	501c(3)	125230	CF CARE CENTER
The Ohio State University Research Foundation
1960 Kenny Road	Columbus	OH	432101063	316401599	501c(3)	97200	RESEARCH STUDIES
The President and Fellows of Harvard College
Holyoke Center Suite 600	Cambridge	MA	02138	042103580	501c(3)	45800	RESEARCH
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	108492	CF CARE CENTER	1350 Massachusetts Ave
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	42500	RESEARCH
The Rector and Visitors of the University of Virgi
PO Box 400195	Charlottesville	VA	22904	546001796	501c(3)	182112	RESEARCH STUDIES
The Regents of the University of California Davis
Cashiers Office 1200 Dutton Hall	Davis	CA	95616	956036494	501c(3)	67118	CF CARE CENTER
The Regents of the University of California Davis
Cashiers Office 1200 Dutton Hall	Davis	CA	95616	956036494	501c(3)	25388	ADULT CARE	One Shields Avenue
The Regents of the University of California Los A
UCLA Office of Contract and Grant A	Los Angeles	CA	900241406	956006143	501c(3)	43200	PILOT STUDIES	One Shields Avenue
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501c(3)	101592	CF CARE CENTER	10920 Wilshire Blvd Suite 200
The Regents of the University of California San D
Office of Post Award Financial Serv	La Jolla	CA	920930954	956006144	501c(3)	27000	ADULT CARE	9500 Gilman Drive 0954
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	48000	TRAINING	9500 Gilman Drive 0954
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	71080	CF CARE CENTER	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	414000	RESEARCH CENTERS	3333 California Street Suite 315
The Regents of the University of California San F
UCSF Office of Sponsored Research	San Francisco	CA	941430962	946036493	501c(3)	27000	ADULT CARE	3333 California Street Suite 315
The Regents of the University of Michigan
3003 South State Street Room 3089	Ann Arbor	MI	481091274	386006309	501c(3)	189200	CF CARE CENTER	3333 California Street Suite 315
The Regents of the University of Minnesota
Sponsored Projects Administration	Minneapolis	MN	554552070	416007513	501c(3)	49197	TRAINING
The Regents of the University of Minnesota
Sponsored Projects Administration	Minneapolis	MN	554552070	416007513	501c(3)	296640	CF CARE CENTER	200 Oak St SE
The Research Institute at Nationwide Children's H
Huntington National Bank	Columbus	OH	43260	316056230	501c(3)	182140	CF CARE CENTER	200 Oak St SE
The Research Foundation of SUNY
P O Box 9	Albany	NY	122010009	141368361	501c(3)	122950	CF CARE CENTER	Dept 4656 / Ref 413407
The Research Foundation of SUNY
P O Box 9	Albany	NY	122010009	141368361	501c(3)	27000	ADULT CARE
The Tampa General Hospital Foundation
PO Box 1289	Tampa	FL	33601	237354477	501c(3)	48910	CF CARE CENTER
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	49750	TRAINING
The Trustees of Columbia University in the City of
351 Engineering Terrace	New York	NY	10027	135598093	501c(3)	119050	CF CARE CENTER
The University of Alabama at Birmingham
AB 990	Birmingham	AL	352940109	636005396	501c(3)	49662	TRAINING
The University of Alabama at Birmingham
AB 990	Birmingham	AL	352940109	636005396	501c(3)	150950	CF CARE CENTER	1530 3rd Avenue S
The University of Alabama at Birmingham
AB 990	Birmingham	AL	352940109	636005396	501c(3)	27000	QUALITY IMPROVEMENT	1530 3rd Avenue S
The University of Alabama at Birmingham
AB 990	Birmingham	AL	352940109	636005396	501c(3)	414000	RESEARCH CENTERS	1530 3rd Avenue S
The University of Chicago
5801 S Ellis Avenue	Chicago	IL	60637	362177139	501c(3)	50550	CF CARE CENTER	1530 3rd Avenue S
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	236094	CF CARE CENTER
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	27000	QUALITY IMPROVEMENT	300 Bynum Hall
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	87956	RESEARCH	300 Bynum Hall
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	86073	PILOT STUDIES	300 Bynum Hall
The University of North Carolina at Chapel Hill
North Carolina State Treasurer	Chapel Hill	NC	275991350	566001393	501c(3)	486000	RESEARCH CENTERS	300 Bynum Hall
The University of Vermont and State Agricultural C
85 So Prospect Street	Burlington	VT	054050160	030179440	501c(3)	68250	TRAINING	300 Bynum Hall
Toledo Children's Hospital
2142 N Cove Blvd	Toledo	OH	43606	344428256	501c(3)	76040	CF CARE CENTER
Trustees of Boston University
881 Commonwealth Avenue	Boston	MA	02215	042103547	501c(3)	43200	PILOT STUDIES
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	183825	QUALITY IMPROVEMENT
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	97200	RESEARCH STUDIES
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	43072	PILOT STUDIES
Trustees of Dartmouth College
11 Rope Ferry Road 6210	Hanover	NH	037551404	020222111	501c(3)	340347	RESEARCH CENTERS
Tulane University Medical School
6401 Freret St	New Orleans	LA	70118	720423889	501c(3)	85460	CF CARE CENTER
UMDNJ- Robert Wood Johnson Medical School
UMDNJ	New Brunswick	NJ	08903	221775306	501c(3)	61860	CF CARE CENTER
UMDNJ- Robert Wood Johnson Medical School
UMDNJ	New Brunswick	NJ	08903	221775306	501c(3)	27000	ADULT CARE	1 Robert Wood Johnson Place
University Hospitals of Cleveland
2074 Abingdon Road	Cleveland	OH	44106	340714775	501c(3)	154980	CF CARE CENTER	1 Robert Wood Johnson Place
University Internal Medicine Associates Inc
Cardio-Pulmonary Research Center	Cincinnati	OH	45326	310896517	501c(3)	46340	CF CARE CENTER
University of Arkansas for Medical Sciences
4301 West Markham Street	Little Rock	AR	72205	716046242	501c(3)	38010	CF CARE CENTER	PO Box 670564
University of Arkansas for Medical Sciences
4301 West Markham Street	Little Rock	AR	72205	716046242	501c(3)	27000	ADULT CARE	Mail Slot 555
University of Cincinnati
560 University Hall	Cincinnati	OH	45221	316000989	501c(3)	99500	TRAINING	Mail Slot 555
University of Florida
PO Box 115500	Gainesville	FL	32611	596002052	501c(3)	85050	CF CARE CENTER	Sponsored Programs Accounting Dept
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	115080	CF CARE CENTER
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	27000	QUALITY IMPROVEMENT	Division of Sponsored Programs
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	68250	TRAINING	Division of Sponsored Programs
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	91300	RESEARCH	Division of Sponsored Programs
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	93829	RESEARCH STUDIES	Division of Sponsored Programs
University of Iowa
Office of Vice President for Resear	Iowa City	IA	52242	426004813	501c(3)	450000	RESEARCH CENTERS	Division of Sponsored Programs
University of Kansas Medical Center Research Insti
3901 Rainbow Boulevard	Kansas City	KS	661607702	481108830	501c(3)	51390	CF CARE CENTER	Division of Sponsored Programs
University of Kentucky Research Foundation
Kentucky CF Clinic J424	Lexington	KY	405360284	616033693	501c(3)	99160	CF CARE CENTER
University of Massachusetts Medical Center
55 Lake Avenue	Worcester	MA	10655	043167352	501c(3)	51790	CF CARE CENTER	740 South Limestone
University of Miami
Pediatric/Pulmonary Division	Miami	FL	33137	590624458	501c(3)	51290	CF CARE CENTER
University of Miami
Pediatric/Pulmonary Division	Miami	FL	33137	590624458	501c(3)	49646	ADULT CARE	1601 NW 12th Avenue
University of Mississippi Medical Center
2500 North State Street	Jackson	MS	392164505	646008520	501c(3)	51630	CF CARE CENTER	1601 NW 12th Avenue
University of Nebraska Medical Center
Service Building	Omaha	NE	681987835	470049123	501c(3)	125210	CF CARE CENTER
University of Nebraska Medical Center
Service Building	Omaha	NE	681987835	470049123	501c(3)	5400	QUALITY IMPROVEMENT	985100 Nebraska Medical Center
University of New Mexico Health Sciences Center
Controllers Office	Albuquerque	NM	871315041	856000642	501c(3)	46862	CF CARE CENTER	985100 Nebraska Medical Center
University of Oklahoma Health Sciences Center
PO Box 26901	Oklahoma City	OK	73190	736017987	501c(3)	104740	CF CARE CENTER	Health Sciences and Services Bldg
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	5400	QUALITY IMPROVEMENT
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	128600	RESEARCH
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	450000	RESEARCH CENTERS
University of Pittsburgh
350 Thackeray Hall	Pittsburgh	PA	15260	250965591	501c(3)	27000	ADULT CARE
University of Rochester
1325 Mt Hope Avenue	Rochester	NY	14642	160743209	501c(3)	78910	CF CARE CENTER
University of Rochester
1325 Mt Hope Avenue	Rochester	NY	14642	160743209	501c(3)	27000	ADULT CARE	Suite 260
University of South Alabama
Admin Bldg 362	Mobile	AL	36688	630477348	501c(3)	34750	CF CARE CENTER	Suite 260
University of South Carolina Research Foundation
901 Sumter Street	Columbia	SC	29208	570967350	501c(3)	31941	CF CARE CENTER
University of South Florida
Department of Pediatrics	Tampa	FL	33606	593102112	501c(3)	22520	CF CARE CENTER	Suite 501
University of Southern California
USC Contracts and Grants	Los Angeles	CA	900339002	951642394	501c(3)	42777	CF CARE CENTER	17 Davis Boulevard Suite 200
University of Southern California
USC Contracts and Grants	Los Angeles	CA	900339002	951642394	501c(3)	54000	ADULT CARE	1540 Alcazar Street
University of Tennessee
62 S Dunlap	Memphis	TN	38163	626001636	501c(3)	61210	CF CARE CENTER	1540 Alcazar Street
University of Texas Health Center at Tyler
11937 US Hwy 271	Tyler	TX	75708	756001354	501c(3)	18000	CF CARE CENTER
University of Utah
406 Park Bldg	Salt Lake City	UT	84112	876000525	501c(3)	175550	CF CARE CENTER
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	74930	CF CARE CENTER
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	97200	RESEARCH STUDIES	3917 University Way NE
University of Washington
Grant Contract Accounting	Seattle	WA	981056692	916001537	501c(3)	378000	RESEARCH CENTERS	3917 University Way NE
University of Wisconsin Board of Regents
750 University Avenue	Madison	WI	53706	396006492	501c(3)	48000	TRAINING	3917 University Way NE
University of Wisconsin Board of Regents
750 University Avenue	Madison	WI	53706	396006492	501c(3)	138462	CF CARE CENTER
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	501c(3)	144220	CF CARE CENTER
UT Southwestern Medical Center at Dallas
5323 Harry Hines Blvd	Dallas	TX	753909040	756002868	501c(3)	92882	RESEARCH STUDIES
Vanderbilt University Medical Center
PO Box 30195	Nashville	TN	372410195	620476822	501c(3)	153980	CF CARE CENTER
Via Christi Regional Medical Center CF Clinic
3311 East Murdock Street	Wichita	KS	67218	481172106	501c(3)	55120	CF CARE CENTER
Virginia Commonwealth University
Box 2506 - VCU Station	Richmond	VA	232842506	546001758	501c(3)	59940	CF CARE CENTER
Wake Forest University Health Sciences
Medical Center Blvd	WinstonSalem	NC	271571064	223849199	501c(3)	53275	CF CARE CENTER
Washington University
Campus Box 1034	St Louis	MO	631121408	430653611	501c(3)	210095	CF CARE CENTER
Wayne State University
Grants Contracts Office III	Detroit	MI	48201	386028425	501c(3)	40790	CF CARE CENTER	700 Rosedale Avenue
Weill Medical College of Cornell University
Whitney Pavillion Rm W-706	New York	NY	10021	150532082	501c(3)	43600	RESEARCH	Research and Sponsored Programs
West Virginia University Research Corporation
West Virginia University	Morgantown	WV	265066001	550665758	501c(3)	56160	CF CARE CENTER	1300 York Avenue Box 62
Wright State University School of Medicine
One Childrens Plaza	Dayton	OH	45404	310732831	501c(3)	27000	ADULT CARE	PO Box 6001
Yale University
Cashier Office of the Asst Treasu	New Haven	CT	065208231	060646973	501c(3)	62000	CF CARE CENTER
Yale University
Cashier Office of the Asst Treasu	New Haven	CT	065208231	060646973	501c(3)	68250	TRAINING	PO Box 208231
Yale University
Cashier Office of the Asst Treasu	New Haven	CT	065208231	060646973	501c(3)	43200	PILOT STUDIES	PO Box 208231

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	165	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	10	TotalNbrOfOtherOrganizations

Form990 Schedule I Part III Form990ScheduleIPartIII

Field	Value	IRS element (for citing)
Type Of Grant	PATIENT ASSISTANCE PROGRAM	TypeOfGrant
Number Of Recipients	696	NumberOfRecipients
Amount Of Cash Grant	596723	AmountOfCashGrant

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	PROCEDURES FOR MONITORING GRANT FUNDS INSIDE OF THE U.S.	Identifier
Return Reference	PART I, LINE 2	ReturnReference
Explanation	THE ORGANIZATION HAS PROCEDURES IN PLACE TO MONITOR THE SCIENTIFIC PROGREYS AND FINANCIAL ASPECTS OF GRANT FUNDS AWARDED TO ENTITIES INSIDE OF THE US. SPONSORED INSTITUTIONS ARE REQUIRED TO SUBMIT ANNUAL REPORTS OF EXPENDITURES AS WELL AS PROGRESS REPORTS. SCIENTIFIC REPORTS ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S SCIENTIFIC STAFF TO DETERMINE PROGRESS. REPORTS OF EXPENDITURES ARE REVIEWED AND APPROVED TO ENSURE INCURRED COSTS ARE APPROPRIATE. THE CF FOUNDATION'S INTERNAL AUDITORS CONDUCT AUDITS ON SAMPLEs OF GRANT EXPENDITURE REPORTS BY EXAMINING SUPPORTING RECORDS FROM THE SPONSORED INSTITUTIONS.	Explanation

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	X	CompensationCommittee
Independent Consultant	X	IndependentConsultant
Form990 Of Other Organizations	X	Form990OfOtherOrganizations
Written Employment Contract	X	WrittenEmploymentContract
Compensation Survey	X	CompensationSurvey
Board Or Committee Approval	X	BoardOrCommitteeApproval
Severance Payment	false	SeverancePayment
Supplemental Nonqual Retire Plan	true	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	false	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	false	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	false	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	false	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	false	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	false	AnyNonFixedPayments
Initial Contract Exception	false	InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII (11 entries)

Base Compensation Filing OrgBaseCompensationFilingOrg	Comp Based On Related OrgsCompBasedOnRelatedOrgs	Bonus Filing OrgBonusFilingOrg	Bonus Related OrgsBonusRelatedOrgs	Other Compensation Filing OrgOtherCompensationFilingOrg	Other Compensation Related OrgsOtherCompensationRelatedOrgs	Deferred Comp Filing OrgDeferredCompFilingOrg	Deferred Comp Related OrgsDeferredCompRelatedOrgs	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg	Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs	Total Compensation Filing OrgTotalCompensationFilingOrg	Total Compensation Related OrgsTotalCompensationRelatedOrgs	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg	Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs
C Richard Mattingly
345800	0	62006	0	19465	0	149016	0	23413	0	599700	0	62006	0
Robert J Beall PhD
323652	164014	54003	26599	25439	7935	154438	63690	21278	0	578810	262238	54003	26599
Preston W Campbell MD
222712	115272	41046	20217	15218	5445	95170	34498	28230	0	402376	175432	41046	20217
Vera H Twigg
237095	0	25969	0	10743	0	54772	0	27597	0	356176	0	25969	0
Daniel Klein
200635	0	0	0	1844	0	20164	0	3000	0	225643	0	0	0
Ann Palmer
197800	0	0	0	1814	0	19835	0	14728	0	234177	0	0	0
David McLoughlin
208167	0	0	0	686	0	21587	0	24230	0	254670	0	0	0
Gregory August
179592	0	0	0	386	0	18038	0	23230	0	221246	0	0	0
Glen Goldmark
174685	0	0	0	1597	0	17302	0	17028	0	210612	0	0	0
Amy DeMaria
175629	0	0	0	365	0	16952	0	7752	0	200698	0	0	0
Maureen Fraser
162305	0	0	0	1460	0	15727	0	16815	0	196307	0	0	0

Form990 Schedule J Part III Form990ScheduleJPartIII (2 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN	PART I, LINE 4B	Certain persons listed in Form 990, Part VII, Section A participate in a nonqualified deferred compensation plan, under which interests are forfeited by the participant if the participant voluntarily terminates employment prior to designated vesting date. Further information about the nonqualified deferred compensation plan in which those persons participate is provided in the additional information for Schedule J, Part II, below.
COMPENSATION	PART II	Cystic Fibrosis Foundation - Headquarters. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $308,912, 401(k) bonus - $14,740; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $54,003; (B)(iii) Other Reportable Compensation: health insurance benefit - $2,912, automobile allowance - $4,824, other benefits including taxable general organization group term life insurance premiums - $17,703; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefits (6) - $63,650, SERP (3) - $65,660; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $11,932, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $4,346 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: R. Beall, Ph.D.; (B)(i) Base Compensation: base salary - $156,754, 401(k) bonus - $7,260; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $26,599; (B)(iii) Other Reportable Compensation: health insurance benefit - $1,434, automobile allowance - $2,376, other benefits including general organization group term life insurance premiums - $4,125; (C) Deferred Compensation: long-term incentive plan benefits (6) - $31,350, SERP (3) - $32,340; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $222,712; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $41,046; (B)(iii) Other Reportable Compensation: other benefits including taxable general organization group term life insurance premiums - $4,163, Section 457(b) Plan (5) - $11,055; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefits (6) - $46,855, SERP (4) - $23,187; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $16,905, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $6,325 Cystic Fibrosis Foundation Therapeutics, Inc. EIN 91-2059167. (A) Name: P. Campbell, M.D.; (B)(i) Base Compensation: base salary - $115,272; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $20,217; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $5,445; (C) Deferred Compensation: long-term incentive plan benefit (6) - $23,077, SERP (4) - $11,421; (D) Nontaxable Benefits: $0 Cystic Fibrosis Foundation - Headquarters. Name: (A) R. Mattingly; (B)(i) Base Compensation: base salary - $345,800; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1) - $62,006; (B)(iii) Other Reportable Compensation: Section 457(b) Plan (5) - $16,500; other benefits including taxable general organization group term life insurance premiums - $2,965; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefit (6) - $70,780, SERP (4) - $53,108; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $15,273, employee contribution to flexible spending account benefit - $2,500, employee contribution to general organization health plan benefit - $5,640 Cystic Fibrosis Foundation - Headquarters. (A) Name: V. Twigg; (B)(i) Base Compensation: base salary - $237,095; (B)(ii) Bonus & Incentive Compensation: long-term incentive plan payment, which was previously reported (1)- $25,969; (B)(iii) Other Reportable Compensation: taxable general organization group term life insurance premiums - $1,368, Section 457(b) Plan (5) - $9,375; (C) Deferred Compensation: retirement benefit (2) - $25,128, long-term incentive plan benefit (6) - $29,644; (D) Nontaxable Benefits: employer contribution to general organization health plan benefit - $17,908, employee contribution to flexible spending account benefit - $5,000, employee contribution to general organization health plan benefit - $4,689 (1) This figure represents payment of an award that accrued over a three-year performance period (years 2007-2009), and which was based on achievement of long term performance standards established in advance by the Compensation Committee of the Board. As required, this award was reported as "Deferred Compensation" on prior years' Forms 990 in each year it accrued and therefore (as required by the instructions) is double-reported here. (2) This is the employer contribution made under the Cystic Fibrosis Foundation 401(k) Plan for the 2010 Plan Year. (3) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to December 31, 2012. C. SERP interests are held in a trust subject to the claims of CFF's bankruptcy creditors. In the event of a CFF bankruptcy, participants would become general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. SERP contribution amounts were determined by an independent actuary. F. CFF retains the right to amend or terminate the SERP at any time. (4) A. This is an unvested employer contribution to the SERP. B. SERP interests are forfeited by the participant if the participant voluntarily terminates employment prior to attaining age 60. C. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. D. The SERP is a nonqualified deferred compensation plan. This means that participants do not receive the tax benefits available to participants in tax qualified retirement plans. E. The SERP's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which SERP contribution amounts are determined. F. CFF retains the right to amend or terminate the SERP at any time. (5) A. This is a vested contribution to the 457(b) Plan for the reporting period. B. In the event of a CFF bankruptcy, participants are general unsecured creditors of CFF. C. Distributions from the 457(b) Plan may not be rolled-over to an IRA or qualified plan (but may only be rolled-over to another 457(b) plan). D. The 457(b) Plan's design was reviewed and opined upon as reasonable by an independent compensation consultant. An independent actuary developed the contribution formula pursuant to which 457(b) contribution amounts are determined. Contributions to the 457(b) Plan are subject to annual IRS limits (currently $16,500). E. CFF retains the right to amend or terminate the 457(b) Plan at any time. (6) This Plan provides for awards related to a 3-year performance period, which ends on 12/31/12, based on achievement of performance objectives established in advance by the Compensation Committee of the Board. The individual must be employed on 12/31/12 to be eligible to receive full payment of the award. As required by the Form 990 instructions, this reported amount is an estimate of the portion of the award that accrued under the Plan by the executive for performance in 2010 but it has not been earned, awarded or paid under the Plan.

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (11 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
OTHER PROGRAM SERVICES	PART III, LINE 4D (PAGE 2 CORE FORM)	Community Services - The Cystic Fibrosis Foundation provides year-round efforts to educate, inform and empower patients and their families about the latest developments in treatment and care. Consists of programs designed to help the general public and cystic fibrosis families in the detection of the disease by providing a referral service and handling inquiries concerning patients. Approximately 25,000 patients were served in 2010, including approximately 911 patients who were newly diagnosed.
REVIEW OF 990 BY GOVERNING BODY	PART VI, SECTION B, LINE 11B (PAGE 6 CORE FORM)	The Cystic Fibrosis Foundation Board of Trustees receives a draft of the Form 990 prior to its being filed, with sufficient time for review and comment allowed. The Compensation Committee of the Board of Trustees and the Foundation's ERISA attorneys review the executive compensation sections of the Form 990 to ensure completeness and accuracy. The Audit Committee of the Board of Trustees also reviews the Form 990 as part of its chartered responsibilities.
CONFLICT OF INTEREST MONITORING	PART VI, SECTION B, LINE 12C (PAGE 6 CORE FORM)	A conflict of interest disclosure statement is completed annually by each Board member and officer. Disclosures provided are reported to the Nominating and Governance Committee, the Audit Committee and the Board of Trustees. As required within the bylaws, any potential conflicts of interest must be reported to the Board as they arise. When any matter is deemed a potential conflict of interest and requires action by the Board of Trustees, the interested trustee or officer is required to retire from the room in which the Board or its committee is meeting, may not participate in the final deliberation of the matter, and may not vote on the matter. The Organization enforced the policy during 2010 and had no conflicts of interest as defined by the policy.
DETERMINING COMPENSATION	PART VI, SECTION B, LINE 15A AND 15B (PAGE 6 CORE FORM)	The total compensation of executives at the Cystic Fibrosis Foundation is specifically designed to attract and retain the highest qualified executive and medical talent to fulfill the critically important mission of assuring the development of the means to cure and control CF and improving the quality of life for those with the disease. The independent Compensation Committee of the CF Foundation's Board of Trustees follows the process described in the IRS intermediate sanctions rules when determining compensation. Specifically, the Committee: (1) Is composed entirely of non-employee volunteer directors who have no familial, business or significant personal relationships with the CF Foundation or its executives. (2) Assesses the short-term and long-term contribution and performance of each executive in meeting very definitive and quantifiable objectives focused on the CF Foundation's mission success. (3) Engages an independent compensation consulting firm to compile appropriate comparability data (including compensation market information for peers with whom the CF Foundation competes for executive talent) for Committee reliance. The Committee meets with representatives of the consulting firm to review this data in detail. (4) Reviews all elements of each executive's total compensation, including but not limited to base salary, bonuses, perquisites, fringe benefits, and incentive and deferred compensation arrangements. Upon the executive's hire, and at each point in time thereafter at which a new or revised compensation arrangement is under consideration with respect to the executive, the Committee meets with its independent compensation consulting firm before the arrangement is implemented to evaluate the reasonableness of the arrangement by comparing both the arrangement itself and the executive's entire compensation package to compensation packages paid by similarly situated organizations for functionally comparable positions. (5) Documents, concurrently with its determination, the basis for its determination in the minutes of its meeting. These minutes are reviewed, revised if necessary and approved at the following meeting of the Committee. (6) Obtains a written legal opinion concerning the Committee's compliance with the IRS intermediate sanctions rules. The process described above was used to establish compensation for the following officers or positions: President & CEO Executive Vice President & COO Executive Vice President for Medical Affairs Senior Vice President & CFO The process was last undertaken in 2009.
PUBLIC INSPECTION	PART VI, SECTION C, LINE 19 (PAGE 6 CORE FORM)	Forms 1023 and 990-T for the Organization are available on its website, CFF.org. The Organization's website provides a link to Guidestar.org for access to Form 990. The Foundation's governing documents (Bylaws and Articles of Incorporation) are available upon request by contacting the National Office of the Cystic Fibrosis Foundation in writing or by phone. Information on how to obtain the governing documents is also available on the Foundation's website, www.cff.org. The Board and Officer Conflict of Interest Policy and the audited financial statements are available on the Foundation's website, www.cff.org.
OTHER CHANGE IN NET ASSETS	FORM 990, PART XI, LINE 5	UNREALIZED GAIN ON INVESTMENTS = 5,228,703 CHANGE IN EQUITY IN SUBSIDIARY (CFS) = -9,502,034 ----------- TOTAL CHANGES IN NET ASSETS -4,273,331
ACCOUNTS IN FOREIGN COUNTRIES	FORM 990, PART V, LINE 4B	THE FINANCIAL ACCOUNTS IN FOREIGN COUNTRIES THAT THE ORGANIZATION HAS AN INTEREST IN WERE SHARES INVESTMENT MUTUAL FUNDS.
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:Robert J. Beall, Ph.D. TITLE:President & CEO HOURS:23
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:C. Richard Mattingly TITLE:Exec VP and COO HOURS:10
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:Preston W. Campbell, MD TITLE:Exec VP of Medical Affairs HOURS:23
HOURS DEVOTED FOR RELATED ORGANIZATION	FORM 990 PART VII	NAME:Vera H. Twigg TITLE:Sr. VP and CFO HOURS:10

Schedule R IRS990ScheduleR

Form990 Schedule R Part I Form990ScheduleRPartI (2 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EINEIN	Primary ActivitiesPrimaryActivities	Legal Domicile StateLegalDomicileState	Total IncomeTotalIncome	EOY AssetsEOYAssets	Business Name Line1DirectControllingEntityName/BusinessNameLine1
CYSTIC FIBROSIS FOUNDATION PHARMACY LLC
6931 ARLINGTON RD	BETHESDA	MD	20814	510636432	PROGRAM MGT	DE	20090267	14982238	NA
cystic fibrosis patient assistance fdn
6931 arlington rd	bethesda	MD	20814	900350985	patient asst	DE	142728	1672655	na

Form990 Schedule R Part II Form990ScheduleRPartII (2 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EINEIN	Primary ActivitiesPrimaryActivities	Legal Domicile StateLegalDomicileState	Exempt Code SectionExemptCodeSection	Public Charity StatusPublicCharityStatus	Business Name Line1DirectControllingEntityName/BusinessNameLine1
cystic fibrosis foundation therapeutics
6931 ARLINGTON RD	BETHESDA	MD	20814	912059167	RESEARCH	MD	501(C)(3)	11A	CFF-HQ
CYSTIC FIBROSIS FOUNDATION GROUP
6931 ARLINGTON RD	BETHESDA	MD	20814	136161105	EDUCATION	DE	501(C)(3)	7	cfF-hq

Form990 Schedule R Part IV Form990ScheduleRPartIV

Name Of Related Org NameOfRelatedOrg

Field	Value	IRS element (for citing)
Business Name Line1	CYSTIC FIBROSIS SERVICES INC	BusinessNameLine1

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	6931 ARLINGTON RD	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20814	ZIPCode

Field	Value	IRS element (for citing)
EIN	521850490	EIN
Primary Activity	PHARMACY	PrimaryActivity
Legal Domicile State	MD	LegalDomicileState

Direct Controlling Entity Name DirectControllingEntityName

Field	Value	IRS element (for citing)
Business Name Line1	CFF PHARMACY	BusinessNameLine1

Field	Value	IRS element (for citing)
Type Of Entity	C	TypeOfEntity
Share Of Total Income	13585954	ShareOfTotalIncome
Share Of EOY Assets	27829457	ShareOfEOYAssets
Percentage Ownership	1.00000	PercentageOwnership

Field	Value	IRS element (for citing)
Receipt Of Int Ann Rents Royalties	true	ReceiptOfIntAnnRentsRoyalties
Gift Grant Or Cap Contr To Other Org	false	GiftGrantOrCapContrToOtherOrg
Gift Grant Or Cap Contr Fr Other Org	true	GiftGrantOrCapContrFrOtherOrg
Loans Or Guarantees To Other Org	true	LoansOrGuaranteesToOtherOrg
Loans Or Guarantees From Other Org	false	LoansOrGuaranteesFromOtherOrg
Sale Of Assets To Other Org	false	SaleOfAssetsToOtherOrg
Purchase Of Assets From Other Org	false	PurchaseOfAssetsFromOtherOrg
Exchange Of Assets	false	ExchangeOfAssets
Rental Of Facilities To Other Orgs	false	RentalOfFacilitiesToOtherOrgs
Rental Of Facilities Fr Other Orgs	false	RentalOfFacilitiesFrOtherOrgs
Perform Of Services For Other Orgs	true	PerformOfServicesForOtherOrgs
Perform Of Services By Other Orgs	false	PerformOfServicesByOtherOrgs
Sharing Of Facilities	true	SharingOfFacilities
Sharing Of Paid Employees	true	SharingOfPaidEmployees
Reimbursement Paid To Other Org	false	ReimbursementPaidToOtherOrg
Reimbursement Paid By Other Org	false	ReimbursementPaidByOtherOrg
Other Transfer To Other Org	false	OtherTransferToOtherOrg
Other Transfer From Other Org	true	OtherTransferFromOtherOrg

Transactions Related Orgs Table TransactionsRelatedOrgsTable (9 entries)

Transaction TypeTransactionType	Amount InvolvedAmountInvolved
cystic fibrosis foundation therapeutics
C	11352615
CYSTIC FIBROSIS FOUNDATION GROUP
C	79522503
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
M	242526
CYSTIC FIBROSIS FOUNDATION THERAPEUTICS
N	1684291
CYSTIC FIBROSIS SERVICES INC
D	10000000
CYSTIC FIBROSIS SERVICES INC
A(I)	57404
CYSTIC FIBROSIS SERVICES INC
K	7344991
CYSTIC FIBROSIS SERVICES INC
R	10874249
CYSTIC FIBROSIS SERVICES INC
B	7200940