NATIONAL PSORIASIS FOUNDATION: Form 990, tax year 2010
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL PSORIASIS FOUNDATION (EIN 93-0571472)
- Tax period
- 2010-07-01 to 2011-06-30
- Filed
- 2011-11-10
- IRS object ID
- 201103149349301330
- Schema version
- 2010v3.4
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2011-11-10T14:27:40-06:00 | Timestamp |
| Tax Period End Date | 2011-06-30 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | HOFFMAN STEWART & SCHMIDT PC | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 4900 MEADOWS ROAD STE 200 | AddressLine1 |
| City | LAKE OSWEGO | City |
| State | OR | State |
| ZIP Code | 970353295 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2010-07-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 930571472 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NATIONAL PSORIASIS FOUNDATION | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | NATI | NameControl |
| Phone | 5032447404 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6600 SW 92ND AVE NO 300 | AddressLine1 |
| City | PORTLAND | City |
| State | OR | State |
| ZIP Code | 972237195 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | RANDY BERANEK | Name |
| Title | PRESIDENT/CEO | Title |
| Phone | 5032447404 | Phone |
| Date Signed | 2011-11-01 | DateSigned |
| Authorize Third Party | 1 | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | ROBERT M PRILL | Name |
| Phone | 5032205900 | Phone |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2010 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | RANDY BERANEK | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6600 SW 92ND AVE NO 300 | AddressLine1 |
| City | PORTLAND | City |
| State | OR | State |
| ZIP Code | 972237195 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 7257539 | GrossReceipts |
| Group Return For Affiliates | 0 | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW.PSORIASIS.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 1968 | YearFormation |
| State Legal Domicile | OR | StateLegalDomicile |
| Activity Or Mission Description | TO FIND A CURE FOR PSORIASIS AND PSORIATIC ARTHRITIS AND TO ELIMINATE THEIR DEVASTATING EFFECTS THROUGH RESEARCH, ADVOCACY AND EDUCATION. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 15 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 15 | NbrIndependentVotingMembers |
| Total Nbr Employees | 48 | TotalNbrEmployees |
| Total Nbr Volunteers | 7821 | TotalNbrVolunteers |
| Total Gross UBI | 699842 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 5509700 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 6190828 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 666947 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 872398 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 39045 | InvestmentIncomePriorYear |
| Investment Income Current Year | 82299 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 7618 | OtherRevenuePriorYear |
| Other Revenue Current Year | -97470 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 6223310 | TotalRevenuePriorYear |
| Total Revenue Current Year | 7048055 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 1018000 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 1152121 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 2597601 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 3037359 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 1093643 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 2839555 | OtherExpensePriorYear |
| Other Expenses Current Year | 2741528 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 6455156 | TotalExpensesPriorYear |
| Total Expenses Current Year | 6931008 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | -231846 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | 117047 | RevenuesLessExpensesCY |
| Total Assets BOY | 5982234 | TotalAssetsBOY |
| Total Assets EOY | 6276884 | TotalAssetsEOY |
| Total Liabilities BOY | 466502 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 500879 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | 5515732 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | 5776005 | NetAssetsOrFundBalancesEOY |
| Info In Schedule O Part III | X | InfoInScheduleOPartIII |
| Mission Description | TO FIND A CURE FOR PSORIASIS AND PSORIATIC ARTHRITIS AND TO ELIMINATE THEIR DEVASTATING EFFECTS THROUGH RESEARCH, ADVOCACY AND EDUCATION. | MissionDescription |
| Significant New Program Services | 0 | SignificantNewProgramServices |
| Significant Change | 0 | SignificantChange |
| Expense | 1513148 | Expense |
| Description | PUBLIC EDUCATION: PROGRAMS WHICH EDUCATE THE PUBLIC ABOUT THE CAUSES, TREATMENTS, AND DIAGNOSIS OF PSORIASIS, INCLUDES THE FOUNDATION'S BASIC INFORMATION AND REFERRAL PROGRAM, EDUCATIONAL BOOKLETS, INTERNET WEBSITE, NATIONAL CONFERENCE AND COMMUNITY EDUCATION MEETINGS. | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 1769755 | Expense |
| Grants | 1152121 | Grants |
| Description | RESEARCH: PROGRAMS INCLUDE AWARDS AND GRANTS MADE TO INSTITUTIONS CONDUCTING PSORIASIS RESEARCH IN ORDER TO IMPROVE DIAGNOSIS AND TREATMENT, AND EVENTUALLY CURE PSORIASIS, SUPPORT OF THE FOUNDATION'S SCIENTIFIC MEETINGS, AND ADVOCACY ON RESEARCH ISSUES. | Description |
Activity3 Activity3
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 857372 | Expense |
| Description | ADVOCACY AND GOVERNMENT RELATIONS: COMMUNITY-BASED PROGRAMS, INCLUDING THE FOUNDATION'S MEDICAL OFFICE AND COMMUNITY LITERATURE PROGRAM, INSURANCE ADVOCACY AND GOVERNMENT AFFAIRS. | Description |
Activity Other ActivityOther (2 entries)
| ExpenseExpense | DescriptionDescription | RevenueRevenue |
|---|---|---|
| 806358 | PATIENT SERVICES: THE FOUNDATION'S PATIENT SERVICES INCLUDE THE PSORIASIS NETWORK GROUPS (SUPPORT GROUPS), ONLINE PHYSICIAN FINDER, AND INDIVIDUAL ASSISTANCE. | |
| 492321 | PROFESSIONAL EDUCATION: PROGRAMS DESIGNED TO IMPROVE THE DELIVERY OF PSORIASIS CARE BY HEALTH PROFESSIONALS. THE FOUNDATION'S PROGRAMS INCLUDE PSORIASIS FORUM NEWSLETTER AND EXHIBITS AT PROFESSIONAL CONVENTIONS. | 162349 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Other Program Service Exp | 1298679 | TotalOfOtherProgramServiceExp |
| Total Of Other Program Service Rev | 162349 | TotalOfOtherProgramServiceRev |
| Total Program Service Expense | 5438954 | TotalProgramServiceExpense |
| Described In501 C3 | 1 | DescribedIn501C3 |
| Schedule B Required | 1 | ScheduleBRequired |
| Political Activities | 0 | PoliticalActivities |
| Lobbying Activities | 1 | LobbyingActivities |
| Donor Advised Funds | 0 | DonorAdvisedFunds |
| Conservation Easements | 0 | ConservationEasements |
| Collections Of Art | 0 | CollectionsOfArt |
| Credit Counseling | 0 | CreditCounseling |
| Term Or Permanent Endowments | 1 | TermOrPermanentEndowments |
| Report Land Bldg Equip | 1 | ReportLandBldgEquip |
| Report Invest Oth Securities | 0 | ReportInvestOthSecurities |
| Report Prog Rel Invest | 0 | ReportProgRelInvest |
| Report Other Assets | 0 | ReportOtherAssets |
| Report Other Liabilities | 0 | ReportOtherLiabilities |
| Report Fin48 Footnote | 0 | ReportFin48Footnote |
| Independent Audit Financial Stmt | 1 | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | 0 | ConsolidatedAuditFinancialStmt |
| School | 0 | School |
| Foreign Office | 0 | ForeignOffice |
| Foreign Activities | 1 | ForeignActivities |
| More Than5000 K To Organizations | 0 | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | 1 | MoreThan5000KToIndividuals |
| Professional Fundraising | 0 | ProfessionalFundraising |
| Fundraising Activities | 1 | FundraisingActivities |
| Gaming | 0 | Gaming |
| Hospital | 0 | Hospital |
| Grants To Organizations | 0 | GrantsToOrganizations |
| Grants To Individuals | 1 | GrantsToIndividuals |
| Schedule J Required | 1 | ScheduleJRequired |
| Tax Exempt Bonds | 0 | TaxExemptBonds |
| Excess Benefit Transaction | 0 | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | 0 | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | 0 | LoanToOfficerOrDQP |
| Grant To Related Person | 0 | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | 0 | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | 0 | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | 0 | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | 0 | DeductibleNonCashContributions |
| Deductible Contributions Of Art | 0 | DeductibleContributionsOfArt |
| Terminated | 0 | Terminated |
| Partial Liquidation | 0 | PartialLiquidation |
| Disregarded Entity | 0 | DisregardedEntity |
| Related Entity | 0 | RelatedEntity |
| Related Org Controlled Entity | 0 | RelatedOrgControlledEntity |
| Transaction Related Entity | 0 | TransactionRelatedEntity |
| Transfers To Exempt Non Chrtbl Org | 0 | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | 0 | ActivitiesConductedPartnership |
| Schedule O Required | 1 | ScheduleORequired |
| Number Forms Transmitted With1096 | 30 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Number Of Employees | 48 | NumberOfEmployees |
| Employment Tax Returns Filed | 1 | EmploymentTaxReturnsFiled |
| Unrelated Business Income | 1 | UnrelatedBusinessIncome |
| Form990-T Filed | 1 | Form990-TFiled |
| Foreign Financial Account | 0 | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTrans |
| Taxable Party Notification | 0 | TaxablePartyNotification |
| Non Deductible Contributions | 0 | NonDeductibleContributions |
| Quid Pro Quo Contributions | 1 | QuidProQuoContributions |
| Quid Pro Quo Disclosure | 1 | QuidProQuoDisclosure |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | 0 | FundsToPayPremiums |
| Premiums Paid | 0 | PremiumsPaid |
| Indoor Tanning Services | 0 | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 15 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 15 | NumberIndependentVotingMembers |
| Family Or Business Relationship | 0 | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | 0 | DelegationOfManagementDuties |
| Changes To Organizing Docs | 1 | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuse |
| Members Or Stockholders | 0 | MembersOrStockholders |
| Election Of Board Members | 0 | ElectionOfBoardMembers |
| Decisions Subject To Approval | 0 | DecisionsSubjectToApproval |
| Minutes Of Governing Body | 1 | MinutesOfGoverningBody |
| Minutes Of Committees | 1 | MinutesOfCommittees |
| Officer Mailing Address | 0 | OfficerMailingAddress |
| Local Chapters | 0 | LocalChapters |
| Form990 Provided To Governing Body | 1 | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | 1 | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | 1 | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | 1 | RegularMonitoringEnforcement |
| Whistleblower Policy | 1 | WhistleblowerPolicy |
| Document Retention Policy | 1 | DocumentRetentionPolicy |
| Compensation Process CEO | 1 | CompensationProcessCEO |
| Compensation Process Other | 1 | CompensationProcessOther |
| Investment In Joint Venture | 0 | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | AL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AK | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AZ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AR | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CO | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | DE | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | DC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | FL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | GA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | HI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | ID | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | KS | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | KY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | LA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | ME | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MD | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MS | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MO | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NE | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NV | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NJ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NM | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | ND | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OK | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OR | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | PA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | RI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | SC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | SD | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | TN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | TX | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | UT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | VT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | VA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WV | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WY | StatesWhereCopyOfReturnIsFiled |
| Own Website | X | OwnWebsite |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BETTE DRAKE | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Telephone Number | 5032447404 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6600 SW 92ND AVE STE 300 | AddressLine1 |
| City | PORTLAND | City |
| State | OR | State |
| ZIP Code | 97223 | ZIPCode |
Form990 Part VII Section A Form990PartVIISectionA (19 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation | Highest Compensated EmployeeHighestCompensatedEmployee |
|---|---|---|---|---|---|---|---|
| DANIEL E FARRINGTON | |||||||
| CHAIR | 1.00 | X | X | 0 | 0 | 0 | |
| KRISTA KELLOGG | |||||||
| CHAIR-ELECT | 1.00 | X | X | 0 | 0 | 0 | |
| MARK S LILLIE | |||||||
| VICE-CHAIR | 1.00 | X | X | 0 | 0 | 0 | |
| CHIP NEWTON | |||||||
| TREASURER | 1.00 | X | X | 0 | 0 | 0 | |
| ERIC KIMBLE | |||||||
| SECRETARY | 1.00 | X | X | 0 | 0 | 0 | |
| RICHARD SEIDEN | |||||||
| IMMEDIATE PAST-CHAIR | 1.00 | X | X | 0 | 0 | 0 | |
| COLBY EVANS MD | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| KATHLEEN GALLANT | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| LAWRENCE GREEN MD | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| HOLLY FIELDS KRAFSUR | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| SARAH KURTS | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| MIKE LAUB | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| MARK LEBWOHL MD | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| PETE REDDING | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| TERRI THEISEN | |||||||
| TRUSTEE | 1.00 | X | 0 | 0 | 0 | ||
| RANDY BERANEK | |||||||
| PRESIDENT/CEO | 40.00 | X | 235080 | 0 | 17036 | ||
| WILLIAM CARDMON | |||||||
| CHIEF FIELD SVC OFFICER | 40.00 | 201788 | 0 | 15786 | X | ||
| BRUCE BEBO JR | |||||||
| DIRECTOR, RESEARCH | 40.00 | 102238 | 0 | 11808 | X | ||
| SHEILA RITTENBERG | |||||||
| SR. DIRECTOR, ADVOCACY & EXTERNAL AFFAIRS | 40.00 | 104798 | 0 | 11622 | X | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 643904 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 0 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 56252 | TotalOtherCompensation |
| Number Individuals GT100 K | 4 | NumberIndividualsGT100K |
| Formers Listed | 0 | FormersListed |
| Total Comp GT150 K | 1 | TotalCompGT150K |
| Compensation From Other Sources | 0 | CompensationFromOtherSources |
Contractor Compensation ContractorCompensation (2 entries)
| Address Line1AddressOfContractor/AddressUS/AddressLine1 | CityAddressOfContractor/AddressUS/City | StateAddressOfContractor/AddressUS/State | ZIP CodeAddressOfContractor/AddressUS/ZIPCode | Description Of ServicesDescriptionOfServices | CompensationCompensation |
|---|---|---|---|---|---|
| DRINKER BIDDLE REATH LLP | |||||
| ONE LOGAN SQUARE STE 2000 | PHILADELPHIA | PA | 19103 | CONSULTING | 183723 |
| GENETIC ALLIANCE | |||||
| 4301 CONNECTICUT AVE NW SUITE 404 | WASHINGTON | DC | 20854 | BIOBANK | 109410 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Number Of Contractors GT100 K | 2 | NumberOfContractorsGT100K |
| Federated Campaigns | 63511 | FederatedCampaigns |
| Fundraising Events | 1314104 | FundraisingEvents |
| All Other Contributions | 4813213 | AllOtherContributions |
| Total Contributions | 6190828 | TotalContributions |
Program Service Revenue ProgramServiceRevenue (4 entries)
| DescriptionDescription | Business CodeBusinessCode | Total Revenue ColumnTotalRevenueColumn | Unrelated Business RevenueUnrelatedBusinessRevenue | Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome |
|---|---|---|---|---|
| ADVERTISING INCOME | 541800 | 699842 | 699842 | |
| SAMPLE FEES | 711300 | 90055 | 90055 | |
| FEES FROM SURVEY PANEL | 561000 | 55000 | 55000 | |
| EDUCATION CONFERENCES | 611710 | 27501 | 27501 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | 872398 | TotalProgramServiceRevenue |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 82130 | TotalRevenueColumn |
| Exclusion | $82,130 | ExclusionAmount |
Gross Amount Sales Assets GrossAmountSalesAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 100000 | Securities |
Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 99831 | Securities |
Gain Or Loss GainOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | 169 | Securities |
Net Gain Or Loss Investments NetGainOrLossInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 169 | TotalRevenueColumn |
| Exclusion | $169 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Fundraising Events | 0 | GrossIncomeFundraisingEvents |
| Cntrbtns Rprtd Fundraising Events | 1314104 | CntrbtnsRprtdFundraisingEvents |
| Fundraising Direct Expenses | 87263 | FundraisingDirectExpenses |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -87263 | TotalRevenueColumn |
| Exclusion | -$87,263 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | 12183 | GrossSalesOfInventory |
| Cost Of Goods Sold | 22390 | CostOfGoodsSold |
Net Income Or Loss NetIncomeOrLoss
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -10207 | TotalRevenueColumn |
| Related Or Exempt Function Income | -10207 | RelatedOrExemptFunctionIncome |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 7048055 | TotalRevenueColumn |
| Related Or Exempt Function Income | 162349 | RelatedOrExemptFunctionIncome |
| Unrelated Business Revenue | 699842 | UnrelatedBusinessRevenue |
| Exclusion | -$4,964 | ExclusionAmount |
Grants To Domestic Individuals GrantsToDomesticIndividuals
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 1002121 | Total |
| Program Services | 1002121 | ProgramServices |
Foreign Grants ForeignGrants
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 150000 | Total |
| Program Services | 150000 | ProgramServices |
Comp Current Officers Directors CompCurrentOfficersDirectors
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 237921 | Total |
| Program Services | 180599 | ProgramServices |
| Management And General | 14974 | ManagementAndGeneral |
| Fundraising | 42348 | Fundraising |
Other Salaries And Wages OtherSalariesAndWages
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2227296 | Total |
| Program Services | 1690664 | ProgramServices |
| Management And General | 140185 | ManagementAndGeneral |
| Fundraising | 396447 | Fundraising |
Pension Plan Contributions PensionPlanContributions
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 89658 | Total |
| Program Services | 68113 | ProgramServices |
| Management And General | 5663 | ManagementAndGeneral |
| Fundraising | 15882 | Fundraising |
Other Employee Benefits OtherEmployeeBenefits
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 275691 | Total |
| Program Services | 209427 | ProgramServices |
| Management And General | 17409 | ManagementAndGeneral |
| Fundraising | 48855 | Fundraising |
Payroll Taxes PayrollTaxes
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 206793 | Total |
| Program Services | 156970 | ProgramServices |
| Management And General | 13016 | ManagementAndGeneral |
| Fundraising | 36807 | Fundraising |
Fees For Services Legal FeesForServicesLegal
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 24497 | Total |
| Program Services | 19498 | ProgramServices |
| Management And General | 1351 | ManagementAndGeneral |
| Fundraising | 3648 | Fundraising |
Fees For Services Lobbying FeesForServicesLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 206804 | Total |
| Program Services | 206804 | ProgramServices |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 740490 | Total |
| Program Services | 544415 | ProgramServices |
| Management And General | 52032 | ManagementAndGeneral |
| Fundraising | 144043 | Fundraising |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 354463 | Total |
| Program Services | 192729 | ProgramServices |
| Management And General | 16665 | ManagementAndGeneral |
| Fundraising | 145069 | Fundraising |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 380876 | Total |
| Program Services | 275177 | ProgramServices |
| Management And General | 42358 | ManagementAndGeneral |
| Fundraising | 63341 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 275923 | Total |
| Program Services | 166810 | ProgramServices |
| Management And General | 44578 | ManagementAndGeneral |
| Fundraising | 64535 | Fundraising |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 334549 | Total |
| Program Services | 289498 | ProgramServices |
| Management And General | 43009 | ManagementAndGeneral |
| Fundraising | 2042 | Fundraising |
Depreciation Depletion DepreciationDepletion
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 22660 | Total |
| Program Services | 17194 | ProgramServices |
| Management And General | 1420 | ManagementAndGeneral |
| Fundraising | 4046 | Fundraising |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 35011 | Total |
| Program Services | 26566 | ProgramServices |
| Management And General | 2194 | ManagementAndGeneral |
| Fundraising | 6251 | Fundraising |
Other Expenses OtherExpenses (3 entries)
| DescriptionDescription | TotalTotal | Program ServicesProgramServices | Management And GeneralManagementAndGeneral | FundraisingFundraising |
|---|---|---|---|---|
| PRINTING | 349234 | 231688 | 2000 | 115546 |
| DUES & SUBSCRIPTIONS | 11567 | 7100 | 1557 | 2910 |
| OTHER | 5454 | 3581 | 1873 |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 6931008 | Total |
| Program Services | 5438954 | ProgramServices |
| Management And General | 398411 | ManagementAndGeneral |
| Fundraising | 1093643 | Fundraising |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | X | JointCosts |
Total Joint Costs TotalJointCosts
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 853891 | Total |
| Program Services | 657885 | ProgramServices |
| Management And General | 0 | ManagementAndGeneral |
| Fundraising | 196006 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2517980 | BOY |
| EOY | 2141289 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 742625 | BOY |
| EOY | 1109457 | EOY |
Accounts Receivable AccountsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 146662 | BOY |
| EOY | 213850 | EOY |
Inventories For Sale Or Use InventoriesForSaleOrUse
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 41184 | BOY |
| EOY | 20186 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 103818 | BOY |
| EOY | 176533 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Buildings Equipment Basis | 616889 | LandBuildingsEquipmentBasis |
| Land Bldg Equipment Accum Deprec | 564715 | LandBldgEquipmentAccumDeprec |
Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 70839 | BOY |
| EOY | 52174 | EOY |
Investments Pub Traded Securities InvestmentsPubTradedSecurities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2359126 | BOY |
| EOY | 2563395 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 5982234 | BOY |
| EOY | 6276884 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 366502 | BOY |
| EOY | 476786 | EOY |
Grants Payable GrantsPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 100000 | BOY |
Deferred Revenue DeferredRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | 24093 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 466502 | BOY |
| EOY | 500879 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 4089459 | BOY |
| EOY | 4285183 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1426273 | BOY |
| EOY | 1490822 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 5515732 | BOY |
| EOY | 5776005 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 5982234 | BOY |
| EOY | 6276884 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | X | InfoInScheduleOPartXI |
| Reconcilation Revenue Expenses | 117047 | ReconcilationRevenueExpenses |
| Reconcilation Other Changes | 143226 | ReconcilationOtherChanges |
| Info In Schedule O Part XII | X | InfoInScheduleOPartXII |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | 0 | AccountantCompileOrReview |
| FS Audited | 1 | FSAudited |
| Audit Committee | 1 | AuditCommittee |
| Financial Statement Separate | X | FinancialStatementSeparate |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 4458874 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 3929185 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 4497080 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 5509700 | CurrentTaxYearMinus1Year |
| Current Tax Year | 6190828 | CurrentTaxYear |
| Total | 24585667 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 4458874 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 3929185 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 4497080 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 5509700 | CurrentTaxYearMinus1Year |
| Current Tax Year | 6190828 | CurrentTaxYear |
| Total | 24585667 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 8334001 | AmountsSubstContributorsTotal |
| Public Support Total170 | 16251666 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 150050 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 230259 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 112826 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 73409 | CurrentTaxYearMinus1Year |
| Current Tax Year | 82130 | CurrentTaxYear |
| Total | 648674 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 25234341 | TotalSupport |
| Gross Receipts From Admissions Etc | 1443234 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.64400 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.68890 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 13135 | FilingOrganizationsTotals |
Total Direct Lobbying TotalDirectLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 443861 | FilingOrganizationsTotals |
Total Lobbying Expenditures TotalLobbyingExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 456996 | FilingOrganizationsTotals |
Other Exempt Purpose Expenditures OtherExemptPurposeExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 6474012 | FilingOrganizationsTotals |
Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 6931008 | FilingOrganizationsTotals |
Lobbying Nontaxable LobbyingNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 496550 | FilingOrganizationsTotals |
Grassroots Nontaxable GrassrootsNontaxableAmount
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 124138 | FilingOrganizationsTotals |
Tot Lobbying Grassroot Minus Non Tx TotLobbyingGrassrootMinusNonTx
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Tot Lobby Expend Mns Lobbying Nontx TotLobbyExpendMnsLobbyingNontx
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Totals | 0 | FilingOrganizationsTotals |
Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 334641 | CurrentYearMinus3 |
| Current Year Minus2 | 407047 | CurrentYearMinus2 |
| Current Year Minus1 | 472758 | CurrentYearMinus1 |
| Current Year | 496550 | CurrentYear |
| Total | 1710996 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,566,494 | LobbyingCeilingAmount |
Total Lobbying Expenditures2 TotalLobbyingExpenditures2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 330200 | CurrentYearMinus3 |
| Current Year Minus2 | 374716 | CurrentYearMinus2 |
| Current Year Minus1 | 347625 | CurrentYearMinus1 |
| Current Year | 456996 | CurrentYear |
| Total | 1509537 | Total |
Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 83660 | CurrentYearMinus3 |
| Current Year Minus2 | 101762 | CurrentYearMinus2 |
| Current Year Minus1 | 118190 | CurrentYearMinus1 |
| Current Year | 124138 | CurrentYear |
| Total | 427750 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $641,625 | GrassrootsCeilingAmount |
Grassroots Lobbying Expenditures GrassrootsLobbyingExpenditures
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | 8126 | CurrentYearMinus3 |
| Current Year Minus2 | 11521 | CurrentYearMinus2 |
| Current Year Minus1 | 11906 | CurrentYearMinus1 |
| Current Year | 13135 | CurrentYear |
| Total | 44688 | Total |
Schedule D IRS990ScheduleD
Current Year CurrentYear
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Of Year Balance | 2193590 | BeginningOfYearBalance |
| Contributions | 288450 | Contributions |
| Investment Earnings Or Losses | 202725 | InvestmentEarningsOrLosses |
| Other Expenditures | 105885 | OtherExpenditures |
| End Of Year Balance | 2578880 | EndOfYearBalance |
Current Year Minus1 Year CurrentYearMinus1Year
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Of Year Balance | 431146 | BeginningOfYearBalance |
| Contributions | 1749437 | Contributions |
| Investment Earnings Or Losses | 13007 | InvestmentEarningsOrLosses |
| End Of Year Balance | 2193590 | EndOfYearBalance |
Current Year Minus2 Years CurrentYearMinus2Years
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Of Year Balance | 428946 | BeginningOfYearBalance |
| Investment Earnings Or Losses | 3259 | InvestmentEarningsOrLosses |
| Administrative Expenses | 1059 | AdministrativeExpenses |
| End Of Year Balance | 431146 | EndOfYearBalance |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated EOY Balance | 1.00000 | BoardDesignatedEOYBalance |
| Endowments Held By Unrelated Orgs | 0 | EndowmentsHeldByUnrelatedOrgs |
| Endowments Held By Related Orgs | 0 | EndowmentsHeldByRelatedOrgs |
Equipment Equipment
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | 616889 | OtherCostOrOtherBasis |
| Depreciation | 564715 | Depreciation |
| Book Value | 52174 | BookValue |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Of Book Value Land Buildings | 52174 | TotalOfBookValueLandBuildings |
| Total Revenue | 7048055 | TotalRevenue |
| Total Expenses | 6931008 | TotalExpenses |
| Excess Or Deficit For Year | 117047 | ExcessOrDeficitForYear |
| Net Unrealized GL On Investments | 143226 | NetUnrealizedGLOnInvestments |
| Total Adjustments | 143226 | TotalAdjustments |
| Excess Or Deficit Per FS | 260273 | ExcessOrDeficitPerFS |
| Tot Revenue Etc Audited Fincl Stmt | 7213671 | TotRevenueEtcAuditedFinclStmt |
| Net Unrealized Gains Investments | 143226 | NetUnrealizedGainsInvestments |
| Other Revenues | 22390 | OtherRevenues |
| Revenue Not Rptd F990 | 165616 | RevenueNotRptdF990 |
| Revenue Subtotal | 7048055 | RevenueSubtotal |
| Revenue Not Rptd On Fin Stmt | 0 | RevenueNotRptdOnFinStmt |
| Total Revenue Per Form990 | 7048055 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 6953398 | TotExpensesEtcAuditedFinclStmt |
| Other Expenses Included | 22390 | OtherExpensesIncluded |
| Expenses Not Rptd F990 | 22390 | ExpensesNotRptdF990 |
| Expenses Subtotal | 6931008 | ExpensesSubtotal |
| Expenses Not Rptd On Fin Stmt | 0 | ExpensesNotRptdOnFinStmt |
| Total Expenses Per Form990 | 6931008 | TotalExpensesPerForm990 |
Form990 Schedule D Part XIV Form990ScheduleDPartXIV (3 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS: | PART V, LINE 4: | THE ENDOWMENT WILL BE USED FOR SUPPORT OF THE ORGANIZATION'S EXEMPT PURPOSE, LIMITED TO 5 PERCENT PERCENT OF PRINCIPAL PER YEAR AS WELL AS SUBJECT TO APPROVAL. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | COST OF SALES 22,390. | |
| PART XIII, LINE 2D - OTHER ADJUSTMENTS: | COST OF SALES 22,390. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 1 | GrantRecordsMaintained |
Accts Actvs Out US Table AcctsActvsOutUSTable
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE (INCLUDING ICELAND & GREENLAND) | Region |
| Number Of Offices | 0 | NumberOfOffices |
| Number Of Employees | 0 | NumberOfEmployees |
| Type Of Activities Conducted | GRANTS TO RECIPIENTS | TypeOfActivitiesConducted |
| Specific Services Provided | RESEARCH | SpecificServicesProvided |
| Total Expenditures | 150000 | TotalExpenditures |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Number Of Employees | 0 | SubtotalNumberOfEmployees |
| Cont Number Of Employees | 0 | ContNumberOfEmployees |
| Total Number Of Employees | 0 | TotalNumberOfEmployees |
| Subtotal Amount Spent | 150000 | SubtotalAmountSpent |
| Cont Amount Spent | 0 | ContAmountSpent |
| Total Amount Spent | 150000 | TotalAmountSpent |
Grants To Ind Outside US GrantsToIndOutsideUS (2 entries)
| Type Of AssistanceTypeOfAssistance | RegionRegion | Number Of RecipientsNumberOfRecipients | Amount Of Cash GrantAmountOfCashGrant | Manner Of Cash DisbursementMannerOfCashDisbursement | Method Of ValuationMethodOfValuation |
|---|---|---|---|---|---|
| DISCOVERY GRANT | EUROPE (INCLUDING ICELAND AND GREENLAND) | 1 | 50000 | CHECK | COST |
| TRANSLATIONAL GRANT | EUROPE (INCLUDING ICELAND AND GREENLAND) | 1 | 100000 | CHECK | COST |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorp |
| Interest In Foreign Trust | 0 | InterestInForeignTrust |
| Own Foreign Corp | 0 | OwnForeignCorp |
| Passive Foreign Invest Co | 0 | PassiveForeignInvestCo |
| Foreign Partnership | 0 | ForeignPartnership |
| Boycott Countries | 0 | BoycottCountries |
Form990 Schedule F Part V Form990ScheduleFPartV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: | Identifier |
| Explanation | SCHEDULE F, PART I, LINE 2: NATIONAL PSORIASIS REQUIRES WRITTEN PROGRESS REPORTS AND A FINANCIAL ACCOUNTING AT THE END OF EACH PROJECT. | Explanation |
Schedule G IRS990ScheduleG
Events Information EventsInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | WALK FOR A CURE | NameOfEvent1 |
| Gross Receipts Event1 | 1314104 | GrossReceiptsEvent1 |
| Charitable Contributions Event1 | 1314104 | CharitableContributionsEvent1 |
| Rent Facility Costs Event1 | 25691 | RentFacilityCostsEvent1 |
| Food And Beverage Event1 | 1587 | FoodAndBeverageEvent1 |
| Other Direct Expenses Event1 | 59985 | OtherDirectExpensesEvent1 |
| Gross Receipts Total | 1314104 | GrossReceiptsTotal |
| Charitable Contributions Total | 1314104 | CharitableContributionsTotal |
| Rent Facility Costs Total Events | 25691 | RentFacilityCostsTotalEvents |
| Food And Beverage Total Events | 1587 | FoodAndBeverageTotalEvents |
| Other Direct Expenses Total Events | 59985 | OtherDirectExpensesTotalEvents |
| Direct Expense Summary Events | 87263 | DirectExpenseSummaryEvents |
| Net Income Summary | -87263 | NetIncomeSummary |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | 1 | RecordsMaintained |
Form990 Schedule I Part III Form990ScheduleIPartIII (4 entries)
| Type Of GrantTypeOfGrant | Number Of RecipientsNumberOfRecipients | Amount Of Cash GrantAmountOfCashGrant |
|---|---|---|
| DISCOVERY GRANTS | 6 | 300000 |
| TRANSLATIONAL GRANTS | 3 | 250000 |
| FELLOWSHIP GRANTS | 12 | 452121 |
| GENERAL GRANTS |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURE FOR MONITORING GRANTS IN THE U.S.: | Identifier |
| Return Reference | PART I, LINE 2: | ReturnReference |
| Explanation | SCHEDULE I, PART I, LINE 2: NATIONAL PSORIASIS REQUIRES WRITTEN PROGRESS REPORTS AND A FINANCIAL ACCOUNTING AT THE END OF THE PROJECT. | Explanation |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Independent Consultant | X | IndependentConsultant |
| Compensation Survey | X | CompensationSurvey |
| Board Or Committee Approval | X | BoardOrCommitteeApproval |
| Severance Payment | 0 | SeverancePayment |
| Supplemental Nonqual Retire Plan | 0 | SupplementalNonqualRetirePlan |
| Equity Based Comp Arrangement | 0 | EquityBasedCompArrangement |
| Comp Based On Revenue Of Filing Org | 0 | CompBasedOnRevenueOfFilingOrg |
| Comp Based On Revenue Related Orgs | 0 | CompBasedOnRevenueRelatedOrgs |
| Comp Based Net Earnings Filing Org | 0 | CompBasedNetEarningsFilingOrg |
| Comp Based Net Earnings Relate Orgs | 0 | CompBasedNetEarningsRelateOrgs |
| Any Non Fixed Payments | 0 | AnyNonFixedPayments |
| Initial Contract Exception | 0 | InitialContractException |
Form990 Schedule J Part II Form990ScheduleJPartII (2 entries)
| Base Compensation Filing OrgBaseCompensationFilingOrg | Comp Based On Related OrgsCompBasedOnRelatedOrgs | Bonus Filing OrgBonusFilingOrg | Bonus Related OrgsBonusRelatedOrgs | Other Compensation Filing OrgOtherCompensationFilingOrg | Other Compensation Related OrgsOtherCompensationRelatedOrgs | Deferred Comp Filing OrgDeferredCompFilingOrg | Deferred Comp Related OrgsDeferredCompRelatedOrgs | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg | Nontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgs | Total Compensation Filing OrgTotalCompensationFilingOrg | Total Compensation Related OrgsTotalCompensationRelatedOrgs | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrg | Comp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| RANDY BERANEK | |||||||||||||
| 205440 | 0 | 29640 | 0 | 0 | 0 | 10461 | 0 | 6575 | 0 | 252116 | 0 | 0 | 0 |
| WILLIAM CARDMON | |||||||||||||
| 184224 | 0 | 17564 | 0 | 0 | 0 | 9211 | 0 | 6575 | 0 | 217574 | 0 | 0 | 0 |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (7 entries)
| IdentifierIdentifier | ExplanationExplanation | Return ReferenceReturnReference |
|---|---|---|
| FORM 990, PART VI, SECTION A, LINE 4 | THE BYLAWS OF THE ORGANIZATION CHANGED TO REFLECT UPDATED COMMITTEE CHARTERS AND POWERS OF THE BOARD. | |
| FORM 990, PART VI, SECTION B, LINE 11 | THE CEO AND THE FINANCE DIRECTOR REVIEW THE FORM 990 BEFORE IT IS FILED. IT IS ALSO E-MAILED TO THE BOARD OF DIRECTORS PRIOR TO FILING. | |
| CONFLICT OF INTEREST POLICIES ARE RENEWED QUARTERLY. ANY INDIVIDUAL THAT HAS A CONFLICT REFRAINS FROM DISCUSSING AND VOTING ON RELATED MATTERS. | FORM 990, PART VI, SECTION B, LINE 12C | |
| THE BOARD OF TRUSTEES ANNUALLY REVIEWS AND APPROVES THE CEO'S COMPENSATION AND PERFORMANCE. THE FOUNDATION UTILIZES AND INDEPENDENT COMPENSATION CONSULTANT AND SUBSCRIBES TO A SALARY SURVEY TO HAVE COMPARABLE INFORMATION FOR SALARIES. | FORM 990, PART VI, SECTION B, LINE 15 | |
| THE ORGANIZATION'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. | FORM 990, PART VI, SECTION C, LINE 19 | |
| CHANGES IN NET ASSETS OR FUND BALANCES: | NET UNREALIZED GAINS ON INVESTMENTS: 143,226. | FORM 990, PART XI, LINE 5: |
| THERE HAS BEEN NO CHANGE IN THE PROCESS FROM THE PRIOR YEAR REGARDING THE OVERSIGHT OF THE ORGANIZATION'S AUDITED FINANCIAL STATEMENTS OR THE SELECTION PROCESS OF THE INDEPENDENT ACCOUNTANT THAT AUDIT THE FINANCIAL STATEMENTS OF THE ORGANIZATION. | FORM 990, PART XI, LINE 2C: |