CUREPSP INC: Form 990, tax year 2024
View the entire original 990 at ProPublica ↗
- Organization
- CUREPSP INC (EIN 52-1704978)
- Tax period
- 2024-07-01 to 2025-06-30
- Filed
- 2026-04-27
- IRS object ID
- 202601179349301220
- Schema version
- 2024v5.5
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2026-04-27T10:14:38-05:00 | ReturnTs |
| Tax Period End | 2025-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 334358135 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | SAX ADVISORS LLC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1040 AVENUE OF THE AMERICAS 16TH | AddressLine1Txt |
| Address Line2 | FLOOR | AddressLine2Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 10018 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2024-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 521704978 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CUREPSP INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CURE | BusinessNameControlTxt |
| Phone | 6467251453 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 325 HUDSON STREET 4TH FLOOR | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 100131045 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KRISTOPHE DIAZ | PersonNm |
| Person Title | EXECUTIVE DIRECTOR | PersonTitleTxt |
| Phone | 6467251453 | PhoneNum |
| Signature | 2026-04-27 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | MIKE SCHALL | PreparerPersonNm |
| PTIN | P02024184 | PTIN |
| Phone | 2122682804 | PhoneNum |
| Preparation | 2026-03-27 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2024 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | KRISTOPHE DIAZ | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 325 HUDSON STREET 4TH FLOOR | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 100131045 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $8,077,951 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.CUREPSP.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1990 | FormationYr |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Activity Or Mission | TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 17 | TotalEmployeeCnt |
| Total Volunteers | 350 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $5,179,385 | PYContributionsGrantsAmt |
| CY Contributions Grants | $7,506,914 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | -$82,146 | PYInvestmentIncomeAmt |
| CY Investment Income | $370,642 | CYInvestmentIncomeAmt |
| PY Other Revenue | $30,447 | PYOtherRevenueAmt |
| CY Other Revenue | $25,718 | CYOtherRevenueAmt |
| PY Total Revenue | $5,127,686 | PYTotalRevenueAmt |
| CY Total Revenue | $7,903,274 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,171,461 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,740,086 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,688,770 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,059,203 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $518,814 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,985,687 | PYOtherExpensesAmt |
| CY Other Expenses | $2,066,564 | CYOtherExpensesAmt |
| PY Total Expenses | $4,845,918 | PYTotalExpensesAmt |
| CY Total Expenses | $5,865,853 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $281,768 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $2,037,421 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $8,687,169 | TotalAssetsBOYAmt |
| Total Assets EOY | $11,029,404 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,133,772 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,139,409 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $7,553,397 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $9,889,995 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | TO RAISE AWARENESS, BUILD COMMUNITY, IMPROVE CARE AND FIND A CURE FOR PSP, CBD AND MSA. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $2,252,697 | ExpenseAmt |
| Grant | $1,170,733 | GrantAmt |
| Revenue | $3,218 | RevenueAmt |
| Desc | CUREPSP SUPPORTS SCIENTIFIC RESEARCH AIMED AT DEVELOPING NEW TREATMENTS AND ULTIMATELY A CURE FOR PROGRESSIVE SUPRANUCLEAR PALSY (PSP) AND CORTICOBASAL DEGENERATION (CBD), BOTH PRIMARY TAUOPATHIES. THE ORGANIZATION FUNDS AND FACILITATES RESEARCH PROJECTS THAT ADVANCE UNDERSTANDING OF THESE DISEASES WHILE ALSO CONTRIBUTING TO BROADER SCIENTIFIC KNOWLEDGE RELEVANT TO OTHER NEURODEGENERATIVE CONDITIONS, INCLUDING ALZHEIMER'S DISEASE, PICK'S DISEASE, ARGYROPHILIC GRAIN DISEASE, CHRONIC TRAUMATIC ENCEPHALOPATHY, AND CERTAIN FORMS OF FAMILIAL FRONTOTEMPORAL DEMENTIA.CONTINUED ON SCHEDULE OCUREPSP'S FUNDING AND PARTNERSHIPS ARE STRATEGICALLY FOCUSED ON ADVANCING RESEARCH IN SEVERAL KEY AREAS: (A) UNDERSTANDING THE CAUSES AND RISK FACTORS OF NEURODEGENERATION, (B) DISCOVERING AND VALIDATING ACTIONABLE BIOMARKERS AND CLINICAL TESTS TO ENHANCE DIAGNOSIS AND INCREASE THE LIKELIHOOD OF MORE EFFECTIVE CLINICAL TRIALS, (C) IDENTIFYING GENETIC VARIANTS LINKED TO THESE DISEASES, (D) DEVELOPING THERAPIES THAT COULD PREVENT, HALT, OR REVERSE THE BRAIN DAMAGE CAUSED BY THE PATHOLOGICAL ACCUMULATION OF PROTEINS, (E) ASSISTING PHARMACEUTICAL, BIOTECH, AND DIAGNOSTIC COMPANIES, AS WELL AS RESEARCH INSTITUTIONS, IN RECRUITING AND PROMOTING PARTICIPATION IN CLINICAL TRIALS, AND (F) DEVELOPING STRATEGIC ASSETS THAT DIRECTLY BENEFIT INDUSTRY PARTNERS, SUCH AS THE COMPREHENSIVE PATIENT JOURNEY STUDY, WHICH PROVIDES DETAILED INSIGHTS INTO THE REAL-WORLD EXPERIENCES OF PATIENTS TO INFORM AND OPTIMIZE CLINICAL TRIAL DESIGN. ADDITIONALLY, CUREPSP COLLABORATES WITH LEADING INSTITUTIONS LIKE THE MAYO CLINIC'S BRAIN BANK IN JACKSONVILLE, FLORIDA, TO PROVIDE ESSENTIAL BRAIN TISSUE SAMPLES TO RESEARCHERS WORLDWIDE, EXPANDING ACCESS TO THESE CRUCIAL BIOLOGICAL RESOURCES. CUREPSP'S PARTNERSHIPS ARE DESIGNED TO FAST-TRACK SHARED OBJECTIVES. IN THIS EFFORT, CUREPSP WORKS CLOSELY WITH AND CO-INVESTS IN PROGRAMS AND RESEARCH ALONGSIDE PROMINENT NONPROFIT ORGANIZATIONS AND FOUNDATIONS, SUCH AS THE ALZHEIMER'S ASSOCIATION, THE MICHAEL J. FOX FOUNDATION, THE PARKINSON'S FOUNDATION, AND THE RAINWATER CHARITABLE FOUNDATION, AS WELL AS PATIENT-LED ORGANIZATIONS LIKE MISSION MSA IN THE UNITED STATES AND THE PSP ASSOCIATION IN THE UNITED KINGDOM. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,101,271 | ExpenseAmt |
| Grant | $30,000 | GrantAmt |
| Desc | THE PREVALENCE OF PROGRESSIVE SUPRANUCLEAR PALSY (PSP) IS COMPARABLE TO THAT OF ALS (AMYOTROPHIC LATERAL SCLEROSIS), YET PSP, ALONG WITH CORTICOBASAL DEGENERATION (CBD) AND MULTIPLE SYSTEM ATROPHY (MSA), REMAINS SIGNIFICANTLY UNDERRECOGNIZED COMPARED TO ALS. CUREPSP IS DEDICATED TO RAISING AWARENESS FOR THESE CONDITIONS AND SUPPORTING THE PATIENTS, FAMILIES, AND CAREGIVERS AFFECTED BY THEM, EMPOWERING THEM TO ADVOCATE EFFECTIVELY FOR THEIR NEEDS. THE ORGANIZATION IS COMMITTED TO ENHANCING QUALITY OF LIFE AND PATIENT OUTCOMES BY BUILDING A RESILIENT AND SUPPORTIVE COMMUNITY THAT GROW AWARENESS NATIONALLY AND GLOBALLY. CONTINUED ON SCHEDULE OCUREPSP PURSUES THESE GOALS THROUGH VOLUNTEER DEVELOPMENT PROGRAMS, PROFESSIONAL EDUCATION, AND THE DISTRIBUTION OF EDUCATIONAL RESOURCES BOTH ONLINE AND IN PRINT FOR THE PUBLIC AND HEALTHCARE PROFESSIONALS. ADDITIONALLY, IT ACTIVELY SHARES VITAL INFORMATION THROUGH SOCIAL MEDIA AND ONLINE NEWSLETTERS. CUREPSP ENGAGES IN ADVOCACY TO ADVANCE PUBLIC POLICIES THAT IMPROVE CARE, SUPPORT RESEARCH, AND INCREASE AWARENESS. THE ORGANIZATION MOBILIZES PATIENTS, CARE PARTNERS, AND VOLUNTEERS TO PARTICIPATE IN LEGISLATIVE OUTREACH, EDUCATES POLICYMAKERS ABOUT THE NEEDS OF THE COMMUNITY, AND COLLABORATES WITH NATIONAL ADVOCACY COALITIONS TO PROMOTE POLICIES THAT EXPAND ACCESS TO CARE, SUPPORT FAMILY CARE PARTNERS, IMPROVE DIAGNOSTICS, AND INCREASE FEDERAL INVESTMENT IN RESEARCH. THROUGH THESE EFFORTS, CUREPSP HAS HELPED ADVANCE FEDERAL AND STATE POLICY INITIATIVES RELATED TO TELEHEALTH ACCESS, COORDINATED NATIONAL STRATEGIES FOR PARKINSONIAN DISEASES, AND INCREASED RECOGNITION OF THESE CONDITIONS WITHIN FEDERAL RESEARCH PRIORITIES. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,398,788 | ExpenseAmt |
| Grant | $539,353 | GrantAmt |
| Desc | CUREPSP PUBLISHES A LIBRARY OF PRINTED AND ONLINE EDUCATIONAL MATERIALS FOR FAMILIES, PATIENTS, PHYSICIANS, AND OTHER HEALTHCARE PROFESSIONALS. THESE MATERIALS ARE DEVELOPED IN COLLABORATION WITH CUREPSP CENTERS OF CARE, A NETWORK OF HOSPITALS AND BEST-IN-CLASS ACADEMIC CENTERS SPECIALIZING IN TREATING PATIENTS WITH PSP, CBD, AND MSA. CUREPSP SPONSORS EDUCATIONAL CONFERENCES IN COLLABORATION WITH LEADING INSTITUTIONS TO INCREASE KNOWLEDGE AND SUPPORT PEOPLE LIVING WITH THESE FATAL DISEASES. THE OBJECTIVE IS TO PROMOTE EDUCATION, EARLIER AND MORE ACCURATE DIAGNOSIS AND BETTER PATIENT CARE. SEVERAL DOZEN VOLUNTEER EVENTS ANNUALLY, SUPPORTED BY CUREPSP, FURTHER EDUCATE, AND EMPOWER OUR COMMUNITY TO PREPARE FOR THEIR CARE NEEDS. (CONTINUE ON SCHEDULE O)CUREPSP UTILIZES SOCIAL MEDIA, ONLINE PLATFORMS, AND EDUCATIONAL PROGRAMMING TO COMMUNICATE WITH AND SUPPORT PATIENTS, CARE PARTNERS, AND HEALTHCARE PROFESSIONALS. THE ORGANIZATION MAINTAINS AN ONLINE PATIENT AND CAREGIVER FORUM, PRODUCES NATIONAL WEBINARS AND EDUCATIONAL PRESENTATIONS FROM CLINICIANS AND RESEARCHERS, AND HOSTS "ASK THE EXPERTS" INTERACTIVE SESSIONS. CUREPSP ALSO ORGANIZES ONLINE SUPPORT GROUPS, ANNUAL WELLNESS WORKSHOPS, AND AN IN-PERSON COMMUNITY GATHERING TO HELP INDIVIDUALS MANAGE DISEASE BURDEN AND THE CHALLENGES OF CAREGIVING. THROUGH THE CUREPSP QUALITY OF LIFE RESPITE GRANT PROGRAM, SUPPORTED BY THE CHERIE LEVIEN QUALITY OF LIFE FUND AND OTHER DONORS, THE ORGANIZATION PROVIDES FINANCIAL ASSISTANCE TO HELP FAMILIES ACCESS PROFESSIONAL IN-HOME CARE. CUREPSP SUPPORTS MORE THAN 50 VIRTUAL AND IN-PERSON SUPPORT GROUPS AND LEVERAGES A GLOBAL NETWORK OF MORE THAN 350 VOLUNTEERS TO PROVIDE ONLINE, TELEPHONE, AND FACE-TO-FACE SUPPORT.CUREPSP ESTABLISHED THE CUREPSP CENTERS OF CARE NETWORK IN 2017 TO IMPROVE ACCESS TO HIGH-QUALITY, SPECIALIZED CLINICAL CARE. MEDICAL CENTERS ARE DESIGNATED BASED ON CRITERIA INCLUDING EXPERTISE IN DIAGNOSIS AND MANAGEMENT, AVAILABILITY OF MULTIDISCIPLINARY CARE AND SUPPORT SERVICES, AND PARTICIPATION IN CLINICAL RESEARCH. THROUGH THIS NETWORK, CUREPSP COLLABORATES WITH LEADING MEDICAL CENTERS TO PROMOTE EARLIER DIAGNOSIS, ADVANCE BEST PRACTICES IN CARE, EXPAND ACCESS TO SPECIALIZED SERVICES, AND SUPPORT CLINICAL RESEARCH. THE NETWORK NOW INCLUDES CENTERS IN THE UNITED STATES AND CANADA, WITH ADDITIONAL CENTERS PLANNED IN EUROPE. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $4,752,756 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 37 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 17 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (1) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | 0 | WhistleblowerPolicyInd |
| Document Retention Policy | 0 | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | KRISTOPHE DIAZ | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 6467251453 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 325 HUDSON STREET 4TH FLOOR | AddressLine1Txt |
| City | NEW YORK | CityNm |
| State Abbreviation | NY | StateAbbreviationCd |
| ZIP | 100131045 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| JACK PHILLIPS | |||||||
| CHAIR | 25.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| AMY BRANCH | |||||||
| VICE CHAIR | 8.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| JUSTIN SHEA | |||||||
| TREASURER | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| LAWRENCE LEVIEN | |||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| LAWRENCE GOLBE | |||||||
| CHAIR - SCIENTIFIC ADVISOR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| WILLIAM MCFARLAND | |||||||
| DIRECTOR | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| JAMES MCCLELLAN | |||||||
| DIRECTOR | 0.50 | Yes (X) | $0 | $0 | $0 | ||
| ILEEN MCFARLAND | |||||||
| DIRECTOR | 35.00 | Yes (X) | $0 | $0 | $0 | ||
| LOUIS FOXWELL | |||||||
| DIRECTOR | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| ALEXANDER PANTELYAT | |||||||
| DIRECTOR | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| PAUL FREEMAN | |||||||
| DIRECTOR | 3.00 | Yes (X) | $0 | $0 | $0 | ||
| MANA BHATT SANGHVI | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| NADINE TATTON | |||||||
| DIRECTOR | 0.50 | Yes (X) | $0 | $0 | $0 | ||
| MARIA SCHMIDT | |||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||
| KRISTOPHE J DIAZ | |||||||
| EXE DIR AND CHIEF SCIENCE OFFICER | 40.00 | Yes (X) | $266,514 | $0 | $23,982 | ||
| RICHARD T SPAIN IV | |||||||
| DIRECTOR, DEVELOPMENT | 40.00 | $161,643 | $0 | $22,585 | Yes (X) | ||
| JENNIFER L BRUMMET | |||||||
| ASSOC. DIR. CLINICAL AFFAIRS AND ADVOCACY | 40.00 | $149,533 | $0 | $22,420 | Yes (X) | ||
| JESSICA SHURER | |||||||
| DIR. CLINICAL AFFAIRS AND ADVOCACY | 40.00 | $113,088 | $0 | $21,205 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $690,778 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $90,192 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 4 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| REGINA PRINTING | |||||
| 260 WAGNER STREET | MIDDLESEX | NJ | 08846 | PRINTING SERVICES | $407,797 |
| DEVELOPING NOW INC | |||||
| 134 N 4TH STREET FLOOR 2 | BROOKLYN | NY | 11249 | WEBSITE DEVELOPEMENT SERVICES | $114,000 |
| ARABELLA ADVISORS LLC | |||||
| 1828 L ST NORTHWEST STE 300 | WASHINGTON | DC | 20036 | ACCOUNTING SERVICES | $107,487 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $615,392 | FundraisingAmt |
| All Other Contributions | $6,891,522 | AllOtherContributionsAmt |
| Noncash Contributions | $62,614 | NoncashContributionsAmt |
| Total Contributions | $7,506,914 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $369,113 | TotalRevenueColumnAmt |
| Exclusion | $369,113 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $110,000 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $108,471 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,529 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,529 | TotalRevenueColumnAmt |
| Exclusion | $1,529 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $64,463 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $615,392 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $64,463 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $4,961 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $1,743 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,218 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,218 | RelatedOrExemptFuncIncomeAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER REVENUE | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $22,500 | TotalRevenueColumnAmt |
| Exclusion | $22,500 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $22,500 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $7,903,274 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,218 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $393,142 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,361,000 | TotalAmt |
| Program Services | $1,361,000 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $255,643 | TotalAmt |
| Program Services | $255,643 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $123,443 | TotalAmt |
| Program Services | $123,443 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $310,127 | TotalAmt |
| Program Services | $248,101 | ProgramServicesAmt |
| Management And General | $31,013 | ManagementAndGeneralAmt |
| Fundraising | $31,013 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,385,868 | TotalAmt |
| Program Services | $1,079,462 | ProgramServicesAmt |
| Management And General | $128,010 | ManagementAndGeneralAmt |
| Fundraising | $178,396 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,806 | TotalAmt |
| Program Services | $21,638 | ProgramServicesAmt |
| Management And General | $2,555 | ManagementAndGeneralAmt |
| Fundraising | $3,613 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $220,885 | TotalAmt |
| Program Services | $183,780 | ProgramServicesAmt |
| Management And General | $7,595 | ManagementAndGeneralAmt |
| Fundraising | $29,510 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $114,517 | TotalAmt |
| Program Services | $89,626 | ProgramServicesAmt |
| Management And General | $10,711 | ManagementAndGeneralAmt |
| Fundraising | $14,180 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $61,277 | TotalAmt |
| Management And General | $61,277 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $135,576 | TotalAmt |
| Management And General | $135,576 | ManagementAndGeneralAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,874 | TotalAmt |
| Management And General | $16,874 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $159,526 | TotalAmt |
| Program Services | $128,631 | ProgramServicesAmt |
| Management And General | $21,895 | ManagementAndGeneralAmt |
| Fundraising | $9,000 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $418,829 | TotalAmt |
| Program Services | $318,356 | ProgramServicesAmt |
| Management And General | $2,011 | ManagementAndGeneralAmt |
| Fundraising | $98,462 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,524 | TotalAmt |
| Program Services | $5,693 | ProgramServicesAmt |
| Management And General | $332 | ManagementAndGeneralAmt |
| Fundraising | $499 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $210,206 | TotalAmt |
| Program Services | $142,180 | ProgramServicesAmt |
| Management And General | $11,482 | ManagementAndGeneralAmt |
| Fundraising | $56,544 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,209 | TotalAmt |
| Program Services | $50,900 | ProgramServicesAmt |
| Management And General | $3,995 | ManagementAndGeneralAmt |
| Fundraising | $10,314 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $242,177 | TotalAmt |
| Program Services | $179,915 | ProgramServicesAmt |
| Management And General | $27,131 | ManagementAndGeneralAmt |
| Fundraising | $35,131 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $124,825 | TotalAmt |
| Program Services | $98,640 | ProgramServicesAmt |
| Management And General | $6,796 | ManagementAndGeneralAmt |
| Fundraising | $19,389 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $110,254 | TotalAmt |
| Program Services | $86,289 | ProgramServicesAmt |
| Management And General | $10,313 | ManagementAndGeneralAmt |
| Fundraising | $13,652 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,789 | TotalAmt |
| Management And General | $8,789 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| RESEARCH | $291,903 | $291,903 | ||
| OTHER EXPENSES | $143,335 | $32,564 | $105,218 | $5,553 |
| POSTAGE AND SHIPPING | $62,309 | $47,992 | $759 | $13,558 |
| PHOTOGRAPHY AND VIDEOGR | $7,000 | $7,000 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,951 | TotalAmt |
| Management And General | $1,951 | ManagementAndGeneralAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,865,853 | TotalAmt |
| Program Services | $4,752,756 | ProgramServicesAmt |
| Management And General | $594,283 | ManagementAndGeneralAmt |
| Fundraising | $518,814 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $326,774 | BOYAmt |
| EOY | $1,509,956 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $949,402 | BOYAmt |
| EOY | $1,255,437 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $314,706 | BOYAmt |
| EOY | $19,105 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,623 | BOYAmt |
| EOY | $5,533 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $167,944 | BOYAmt |
| EOY | $191,712 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $318,111 | BOYAmt |
| EOY | $227,363 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $530,039 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $378,601 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $204,692 | BOYAmt |
| EOY | $151,438 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,395,653 | BOYAmt |
| EOY | $7,631,258 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,264 | BOYAmt |
| EOY | $37,602 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,687,169 | BOYAmt |
| EOY | $11,029,404 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $197,082 | BOYAmt |
| EOY | $555,796 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $688,177 | BOYAmt |
| EOY | $327,262 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $248,513 | BOYAmt |
| EOY | $223,513 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $32,838 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,133,772 | BOYAmt |
| EOY | $1,139,409 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,724,836 | BOYAmt |
| EOY | $7,258,098 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,828,561 | BOYAmt |
| EOY | $2,631,897 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,553,397 | BOYAmt |
| EOY | $9,889,995 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,687,169 | BOYAmt |
| EOY | $11,029,404 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $2,037,421 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $299,177 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,290,908 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,585,545 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,237,361 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,179,385 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $7,506,914 | CurrentTaxYearAmt |
| Total | $25,800,113 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus2 Years | $7,971 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,729 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $4,961 | CurrentTaxYearAmt |
| Total | $18,661 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,290,908 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,585,545 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,245,332 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,185,114 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $7,511,875 | CurrentTaxYearAmt |
| Total | $25,818,774 | TotalAmt |
Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $82,413 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $122,202 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $89,000 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $25,000 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,632 | CurrentTaxYearAmt |
| Total | $321,247 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $82,413 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $122,202 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $89,000 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $25,000 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,632 | CurrentTaxYearAmt |
| Total | $321,247 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $25,497,527 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $18,990 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $237,008 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $189,592 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $173,534 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $369,113 | CurrentTaxYearAmt |
| Total | $988,237 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $18,990 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $237,008 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $189,592 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $173,534 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $369,113 | CurrentTaxYearAmt |
| Total | $988,237 | TotalAmt |
Other Income509 OtherIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $23,693 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,984 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $11,183 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $27,583 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $22,500 | CurrentTaxYearAmt |
| Total | $88,943 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,333,591 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,826,537 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $3,446,107 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $5,386,231 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $7,903,488 | CurrentTaxYearAmt |
| Total | $26,895,954 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.94800 | PublicSupportCY509Pct |
| Public Support PY509 | 0.94950 | PublicSupportPY509Pct |
| Investment Income CY | 0.03670 | InvestmentIncomeCYPct |
| Investment Income PY | 0.03090 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $363,961 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $35,025 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $29,672 | AdministrativeExpensesAmt |
| End Year Balance | $369,314 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $357,599 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $41,672 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $35,310 | AdministrativeExpensesAmt |
| End Year Balance | $363,961 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $351,053 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $32,546 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $26,000 | AdministrativeExpensesAmt |
| End Year Balance | $357,599 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $397,078 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$43,025 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $3,000 | AdministrativeExpensesAmt |
| End Year Balance | $351,053 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $316,620 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $80,458 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $397,078 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $40,743 | OtherCostOrOtherBasisAmt |
| Depreciation | $37,835 | DepreciationAmt |
| Book Value | $2,908 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $489,296 | OtherCostOrOtherBasisAmt |
| Depreciation | $340,766 | DepreciationAmt |
| Book Value | $148,530 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $151,438 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OPERATING LEASE LIABILITIES | Desc |
| Amt | $32,838 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $32,838 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $8,202,451 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $299,177 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $299,177 | RevenueNotReportedAmt |
| Revenue Subtotal | $7,903,274 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $7,903,274 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $5,865,853 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Not Reported | $0 | ExpensesNotReportedAmt |
| Expenses Subtotal | $5,865,853 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $5,865,853 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART X, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE ANY UNCERTAIN TAX POSITIONS. TAX FILING FOR THE PERIOD ENDING JUNE 30, 2022 AND LATER ARE SUBJECT TO EXAMINATION BY APPLICABLE TAXING AUTHORITIES. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| CANADA | 0 | 0 | GRANTMAKING | FY25 CENTER OF CARE AWARD GRANT | $20,000 |
| ARGENTINA | 0 | 0 | GRANTMAKING | STUDENT FELLOWSHIP GRANT - CURE PILLAR OF OUR MISSION | $5,000 |
| JAPAN | 0 | 0 | GRANTMAKING | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | $98,443 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $123,443 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $123,443 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|
| JAPAN | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | $98,443 | $0 |
| CANADA | FY25 CENTER OF CARE AWARD GRANT | $20,000 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANT RECIPIENTS MUST ADHERE TO SPECIFIC REPORTING GUIDELINES THROUGHOUT THE DURATION OF THEIR FUNDING. AT THE MIDPOINT OF THE GRANT PERIOD, INVESTIGATORS MUST SUBMIT BOTH A FINANCIAL REPORT AND A SCIENTIFIC PROGRESS REPORT. THESE REPORTS PROVIDE A DETAILED ACCOUNT OF THE FINANCIAL EXPENDITURES RELATED AND SUMMARIZE THE SCIENTIFIC ADVANCES ACHIEVED TO DATE AND ACCORDING TO THE PROJECT PLAN. AT THE CONCLUSION OF THE GRANT PERIOD, A FINAL SET OF FINANCIAL AND SCIENTIFIC PROGRESS REPORTS MUST BE SUBMITTED. THESE DOCUMENTS ARE CRUCIAL FOR EVALUATING THE OUTCOMES AND FISCAL MANAGEMENT OF THE PROJECT. THE REPORTS ARE REVIEWED BY THE ASSOCIATE DIRECTOR OF SCIENTIFIC AFFAIRS AND THE CHIEF SCIENCE OFFICER, AND SUBSEQUENT FUNDING DISBURSEMENTS ARE CONTINGENT UPON APPROVAL. FAILURE TO SUBMIT SATISFACTORY REPORTS MAY RESULT IN THE WITHHOLDING OF PAYMENTS. | ExplanationTxt |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | ANNUAL CUREPSP | Event1Nm |
| Gross Receipts Event1 | $379,610 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $351,803 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $27,807 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $441 | RentFacilityCostsEvent1Amt |
| Other Direct Expenses Event1 | $27,367 | OtherDirectExpensesEvent1Amt |
| Event2 | MARATHON | Event2Nm |
| Gross Receipts Event2 | $68,389 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $56,026 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $12,363 | GrossRevenueEvent2Amt |
| Other Direct Expenses Event2 | $12,363 | OtherDirectExpensesEvent2Amt |
| Gross Receipts Other Events | $231,856 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $207,563 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $24,293 | GrossRevenueOtherEventsAmt |
| Oth Direct Expnss Other Events | $24,292 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $679,855 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $615,392 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $64,463 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $441 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $64,022 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $64,463 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $0 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (16 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|
| NORTH TEXAS COMMUNITY FOUNDATION | |||||||||
| 777 MAIN STREET STE 2850 | FORTH WORTH | TX | 76102 | 752267767 | 501 (C) (3) | $200,000 | $0 | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | |
| REGENERATIVE RESEARCH FOUNDATION | |||||||||
| 150 NEW SCOTLAND AVENUE | ALBANY | NY | 12208 | 203654626 | 501 (C) (3) | $150,000 | $0 | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | |
| ALZHEIMERS ASSOCIATION | |||||||||
| 225 NORTH MICHIGAN AVENUE 17TH | CHICAGO | IL | 60601 | 133039601 | 501 (C) (3) | $125,000 | $0 | SPECIAL INITIATIVE GRANT: REIMB. FOR GLOBAL TAU MEETING, LONDON, APRIL 24-25, 2025 | FLOOR |
| BAYLOR COLLEGE OF MEDICINE - GRANTS | |||||||||
| ONE BAYLOR PLAZA MS BCM 206 | HOUSTON | TX | 77030 | 741613878 | 501 (C) (3) | $100,000 | $0 | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | |
| MAYO CLINIC JACKSONVILLE | |||||||||
| 4500 SAN PABLO ROAD SOUTH | JACKSONVILLE | FL | 32224 | 593337028 | 501 (C) (3) | $100,000 | $0 | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | |
| UNIVERSITY OF MASSACHUSETTS | |||||||||
| 50 WASHINGTON STREET SUITE 3000 | WESTBOROUGH | MA | 01581 | 043167352 | 501 (C) (3) | $100,000 | $0 | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | |
| UNIVERSITY OF NEBRASKA MEDICAL CENTER | |||||||||
| 985045 NEBRASKA MEDICAL CENTER | OMAHA | NE | 68198 | 470049123 | 501 (C) (3) | $100,000 | $0 | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | |
| WASHINGTON UNIVERSITY | |||||||||
| 4320 BROOKLYN AVENUE NORTHEAST | SEATTLE | WA | 98105 | 916001537 | 501 (C) (3) | $100,000 | $0 | FUNDING RESEARCH - CURE PILLAR OF OUR MISSION | SUITE 5 |
| STANFORD OFFICE OF RESEARCH ADMINISTRATION | |||||||||
| PO BOX 884253 | LOS ANGELES | CA | 90088 | 941156365 | 501 (C) (3) | $50,000 | $0 | FY25 CENTER OF CARE AWARD GRANT | |
| MICHIGAN STATE UNIVERSITY | |||||||||
| 426 AUDITORIUM ROAD ROOM 360 | EAST LANSING | MI | 48824 | 386005984 | 501 (C) (3) | $45,000 | $0 | FY25 CENTER OF CARE AWARD GRANT | |
| UNIVERSITY RESEARCH ADMINISTRATION - UNIV OF CHICAGO | |||||||||
| 6054 SOUTH DREXEL AVENUE SUITE 300 | CHICAGO | IL | 60637 | 362177139 | 501 (C) (3) | $40,000 | $0 | FY25 CENTER OF CARE AWARD GRANT | |
| THE MICHAEL J FOX FOUNDATION | |||||||||
| 111 WEST 33RD STREET 10TH FLOOR | NEW YORK | NY | 10001 | 134141945 | 501 (C) (3) | $30,000 | $0 | SPECIAL INITIATIVE GRANT: SPONSORSHIP OF THE ECONOMIC BURDEN REPORT | |
| FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH | |||||||||
| 11400 ROCKVILLE PIKE SUITE 600 | NORTH BETHESDA | MD | 20852 | 521986675 | 501 (C) (3) | $25,000 | $0 | SPECIAL INITIATIVE GRANT: PARTNERSHIP WITH FNIH - AMP PDRD INITIATIVE | |
| UNIVERSITY OF TEXAS AT SAN ANTONIO | |||||||||
| ONE UTSA CIRCLE GIFT SERVICES | SAN ANTONIO | TX | 78249 | 741717115 | 501 (C) (3) | $10,000 | $0 | STUDENT FELLOWSHIP GRANTS - CURE PILLAR OF OUR MISSION | |
| FASEB | |||||||||
| 6120 EXECUTIVE BLVD SUITE 230 | ROCKVILLE | MD | 20852 | 520700497 | 501 (C) (3) | $6,000 | $0 | SPONSORSHIP AT FASEB MEETING | |
| SJO RESEARCH & CONSULTING | |||||||||
| 205 COUNTRY LANE | PHOENIXVILLE | PA | 19460 | 451290156 | 501 (C) (3) | $54,474 | $0 | RESEARCH GRANT | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 15 | Total501c3OrgCnt |
| Total Other Org | 1 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Cash GrantCashGrantAmt |
|---|---|---|
| BRAIN TISSUE GRANTS | 38 | $36,192 |
| RESPITE CARE FUND | 92 | $219,451 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | INVESTIGATORS ARE REQUIRED TO PROVIDE TWO PROGRESS REPORTS DURING THE TERM OF THE GRANT. THE PROGRESS REPORT IS SENT FOR REVIEW AND APPROVAL TO THE VICE PRESIDENT OF SCIENTIFIC AFFAIRS AND PAYMENT MAY BE RELEASED ONLY AFTER APPROVAL HAS BEEN GIVEN. IF PROGRESS REPORTS ARE NOT DETERMINED TO BE SATISFACTORY, PAYMENT MAY BE WITHHELD UNTIL THE INVESTIGATOR CAN PROVIDE A SATISFACTORY REPORT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| KRISTOPHE J DIAZ | ||||||||||||||
| EXE DIR AND CHIEF SCIENCE OFFICER | $236,514 | $0 | $30,000 | $0 | $0 | $0 | $5,197 | $0 | $18,785 | $0 | $290,496 | $0 | $0 | $0 |
| RICHARD T SPAIN IV | ||||||||||||||
| DIRECTOR, DEVELOPMENT | $151,643 | $0 | $10,000 | $0 | $0 | $0 | $4,549 | $0 | $18,036 | $0 | $184,228 | $0 | $0 | $0 |
| JENNIFER L BRUMMET | ||||||||||||||
| ASSOC. DIR. CLINICAL AFFAIRS AND ADV | $149,533 | $0 | $0 | $0 | $0 | $0 | $4,384 | $0 | $18,036 | $0 | $171,953 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 9 | ContributionCnt |
| Noncash Contributions Rpt F990 | $62,614 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | 0 | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 2 | WILLIAM R. MCFARLAND AND ILEEN J MCFARLAND ARE HUSBAND AND WIFE. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE 990 IS PROVIDED TO THE FINANCE COMMITTEE FOR REVIEW AND APPROVAL. THE FORM IS THEN PROVIDED TO THE FULL BOARD OF DIRECTORS FOR A PERIOD TO MAKE COMMENTS BEFORE FILING WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE ORGANIZATION HAS A BOARD APPROVED CONFLICTS OF INTEREST POLICY. EACH BOARD MEMBER MUST FILL OUT AN ANNUAL DECLARATION STATING THEY HAD NO CONFLICTS OR IDENTIFYING THE NATURE OF THEIR INTERESTED PARTY TRANSACTIONS. |
| FORM 990, PART VI, SECTION B, LINE 15A | THE BOARD OF DIRECTORS DISCUSSED PERFORMANCE AND USES SALARY DATA TO DETERMINE. PERIODICALLY THE BOARD ALSO OBTAINS AN INDEPENDENT COMPENSATION STUDY TO DETERMINE SALARY LEVELS. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS ARE MADE AVAILABLE UPON REQUEST. |