MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2025

View the entire original 990 at ProPublica ↗

Organization: MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period: 2025-01-01 to 2025-12-31
Filed: 2026-05-14
IRS object ID: 202611349349301201
Schema version: 2025v4.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2026-05-14T00:26:46-05:00	ReturnTs
Tax Period End	2025-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	333709623	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	COHNREZNICK ADVISORY LLC	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	1 SOUTH WACKER DRIVE SUITE 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60606	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2025-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131665552	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	MUSCULAR DYSTROPHY ASSOCIATION	BusinessNameLine1Txt
Business Name Line2	INC	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	MUSC	BusinessNameControlTxt
Phone	3122605900	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	SHARON HESTERLEE PHD	PersonNm
Person Title	COO & CHIEF LEGAL OFFICER	PersonTitleTxt
Phone	3122605900	PhoneNum
Signature	2026-05-12	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	ZACHARY SEGAL	PreparerPersonNm
PTIN	P01511850	PTIN
Phone	3125085900	PhoneNum
Preparation	2026-05-11	PreparationDt

Field	Value	IRS element (for citing)
Tax	2025	TaxYr
Build TS	2025-03-06 01:10:19Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	SHARON HESTERLEE PHD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$86,702,830	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.MDA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1950	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	SEE SCHEDULE O	ActivityOrMissionDesc
Voting Members Governing Body	18	VotingMembersGoverningBodyCnt
Voting Members Independent	18	VotingMembersIndependentCnt
Total Employee	272	TotalEmployeeCnt
Total Volunteers	934	TotalVolunteersCnt
Total Gross UBI	$654,688	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$54,195,181	PYContributionsGrantsAmt
CY Contributions Grants	$54,355,588	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$5,248,735	PYInvestmentIncomeAmt
CY Investment Income	$4,498,056	CYInvestmentIncomeAmt
PY Other Revenue	$912,328	PYOtherRevenueAmt
CY Other Revenue	$5,306,388	CYOtherRevenueAmt
PY Total Revenue	$60,356,244	PYTotalRevenueAmt
CY Total Revenue	$64,160,032	CYTotalRevenueAmt
PY Grants And Similar Paid	$16,658,993	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$14,147,711	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$29,117,549	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$29,175,286	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$33,625	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$1,152,729	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$14,758,982	CYTotalFundraisingExpenseAmt
PY Other Expenses	$20,155,219	PYOtherExpensesAmt
CY Other Expenses	$17,272,380	CYOtherExpensesAmt
PY Total Expenses	$65,965,386	PYTotalExpensesAmt
CY Total Expenses	$61,748,106	CYTotalExpensesAmt
PY Revenues Less Expenses	-$5,609,142	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$2,411,926	CYRevenuesLessExpensesAmt
Total Assets BOY	$57,971,496	TotalAssetsBOYAmt
Total Assets EOY	$50,874,216	TotalAssetsEOYAmt
Total Liabilities BOY	$54,536,026	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$41,176,797	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$3,435,470	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$9,697,419	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. (CONT. SCHEDULE O) FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$21,968,472	ExpenseAmt
Grant	$7,228,714	GrantAmt
Desc	HEALTH CARE AND COMMUNITY SERVICES: MDA IS COMMITTED TO EMPOWERING PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH RESEARCH, CARE, AND ADVOCACY. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. (CONT. SCHEDULE O)EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OFTHE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$7,773,027	ExpenseAmt
Grant	$6,893,247	GrantAmt
Desc	RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING STRATEGIC RESEARCH FOR MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. (CONT. SCHEDULE O)MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$14,068,409	ExpenseAmt
Grant	$25,750	GrantAmt
Desc	PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE WORLD, OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. (CONT. SCHEDULE O)AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE AND MDA ACCESS EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NEUROMUSCULARCOMMUNITY IN-PERSON AND VIRTUALLY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL CONNECTIONS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$43,809,908	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	176	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	272	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	18	GoverningBodyVotingMembersCnt
Independent Voting Member	18	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ID	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WY	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	PAMELA KOURNETAS CFO	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	9176931872	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	1016 W JACKSON BLVD 1073	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60607	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
ANJAN ARALIHALLI
DIRECTOR	1.00	Yes (X)	$0	$0	$0
BARRY BYRNE MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
BENJAMIN CUMBO III
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHARLES D SCHOOR ESQ
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHRISTOPHER ROSA
VICE CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
DAN FRIES
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ELIZABETH MCNALLY MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
GOVERNOR BRAD HENRY
CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
HON ROBERT E PIPIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN COSTANTINO
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN E HOWELL
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LILIAN WU PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LOUIS KUNKEL PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MARK SMITH
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MATT PLUMMER
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MIKE ROWLETT
OUTGOING DIRECTOR	1.00	Yes (X)	$0	$0	$0
NANCY KINDELAN
DIRECTOR	1.00	Yes (X)	$0	$0	$0
STEVE FURNARY
DIRECTOR	1.00	Yes (X)	$0	$0	$0
TOM SIMON
DIRECTOR	1.00	Yes (X)	$0	$0	$0
DONALD WOOD
OUTGOING PRESIDENT & CEO	50.00		$662,437	$0	$17,405	Yes (X)
HENRY LANMAN
COO & CHIEF LEGAL OFFICER	50.00		$380,303	$0	$56,441	Yes (X)
MICHAEL KENNEDY
OUTGOING TREASURER & CFO	50.00		$158,297	$0	$11,653	Yes (X)
SHARON HESTERLEE
PRESIDENT & CEO	50.00		$421,661	$0	$70,765	Yes (X)
JON VAN COTT
INTERIM CFO & CONTROLLER	50.00		$213,151	$0	$48,058		Yes (X)
ANGELA LEK
CHIEF RESEARCH OFFICER	50.00		$221,940	$0	$13,910			Yes (X)
MARY ROTH
CHIEF MARKETING OFFICER	50.00		$259,355	$0	$54,791			Yes (X)
NORA CAPOCCI
EVP, HEALTHCARE SERVICES	50.00		$227,925	$0	$24,094			Yes (X)
PERIPEDES GONDIM
OUTGOING EVP, HR & VOLUNTEERS	50.00		$235,864	$0	$15,493			Yes (X)
RUTH DAILEY
CHIEF DEVELOPMENT OFFICER	50.00		$304,413	$0	$29,955			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,085,346	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$342,565	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	56	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
YES & HOLDINGS LLC
1700 DIAGONAL ROAD SUITE 700	ALEXANDRIA	VA	22314	MARKETING SERVICES	$995,973
MOORE A SERIES LLC
4200 PARLIAMENT PLACE 3RD FLOOR	LANHAM	MD	20703	DIRECT MAIL MARKETING	$756,396
BACK POCKET AGENCY LLC
1647 W OLIVE AVE	CHICAGO	IL	60660	CONTENT MARKETING AGENCY	$601,287
CADENT MEDICAL COMMUNICATIONS LLC
200 VESEY STREET 40TH FL	NEW YORK	NY	10281	MANAGEMENT AND LOGISTICAL SUPPPORT	$552,008
MWW GROUP LLC
ONE MEADOWLANDS PLAZA 15TH FL	EAST RUTHERFORD	NJ	07073	MARKETING SERVICES	$404,000

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	12	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$291,115	FederatedCampaignsAmt
Fundraising	$33,197,103	FundraisingAmt
Government Grants	$193,656	GovernmentGrantsAmt
All Other Contributions	$20,673,714	AllOtherContributionsAmt
Noncash Contributions	$317,030	NoncashContributionsAmt
Total Contributions	$54,355,588	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,037,478	TotalRevenueColumnAmt
Exclusion	$1,037,478	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$6,063,508	TotalRevenueColumnAmt
Exclusion	$6,063,508	ExclusionAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$4,250	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$4,250	RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$4,250	TotalRevenueColumnAmt
Exclusion	$4,250	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$21,664,886	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$18,204,308	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$3,460,578	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,460,578	TotalRevenueColumnAmt
Exclusion	$3,460,578	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$2,922,432	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$33,197,103	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$4,338,490	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$1,416,058	TotalRevenueColumnAmt
Exclusion	-$1,416,058	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	QUEST ADVERTISING	Desc
Business	541800	BusinessCd
Total Revenue Column	$654,688	TotalRevenueColumnAmt
Unrelated Business Revenue	$654,688	UnrelatedBusinessRevenueAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$654,688	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$64,160,032	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$654,688	UnrelatedBusinessRevenueAmt
Exclusion	$9,149,756	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$12,790,451	TotalAmt
Program Services	$12,790,451	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,357,260	TotalAmt
Program Services	$1,357,260	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$2,040,172	TotalAmt
Program Services	$1,313,151	ProgramServicesAmt
Management And General	$96,314	ManagementAndGeneralAmt
Fundraising	$630,707	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$20,884,236	TotalAmt
Program Services	$13,442,078	ProgramServicesAmt
Management And General	$985,925	ManagementAndGeneralAmt
Fundraising	$6,456,233	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$388,108	TotalAmt
Program Services	$249,805	ProgramServicesAmt
Management And General	$18,322	ManagementAndGeneralAmt
Fundraising	$119,981	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$4,129,118	TotalAmt
Program Services	$2,657,694	ProgramServicesAmt
Management And General	$194,932	ManagementAndGeneralAmt
Fundraising	$1,276,492	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,733,652	TotalAmt
Program Services	$1,115,860	ProgramServicesAmt
Management And General	$81,844	ManagementAndGeneralAmt
Fundraising	$535,948	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$300,691	TotalAmt
Program Services	$33,367	ProgramServicesAmt
Management And General	$88,048	ManagementAndGeneralAmt
Fundraising	$179,276	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$130,450	TotalAmt
Program Services	$51,227	ProgramServicesAmt
Management And General	$15,487	ManagementAndGeneralAmt
Fundraising	$63,736	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$420,000	TotalAmt
Program Services	$420,000	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$1,152,729	TotalAmt
Fundraising	$1,152,729	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$123,958	TotalAmt
Management And General	$123,958	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$1,218,465	TotalAmt
Program Services	$1,145,811	ProgramServicesAmt
Management And General	$72,654	ManagementAndGeneralAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$1,803,589	TotalAmt
Program Services	$1,798,731	ProgramServicesAmt
Fundraising	$4,858	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$2,131,273	TotalAmt
Program Services	$916,427	ProgramServicesAmt
Management And General	$220,470	ManagementAndGeneralAmt
Fundraising	$994,376	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,266,089	TotalAmt
Program Services	$800,624	ProgramServicesAmt
Management And General	$769,082	ManagementAndGeneralAmt
Fundraising	$696,383	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$105,641	TotalAmt
Program Services	$64	ProgramServicesAmt
Management And General	$77,563	ManagementAndGeneralAmt
Fundraising	$28,014	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$2,228,542	TotalAmt
Program Services	$1,577,311	ProgramServicesAmt
Management And General	$76,280	ManagementAndGeneralAmt
Fundraising	$574,951	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,041,529	TotalAmt
Program Services	$1,041,488	ProgramServicesAmt
Fundraising	$41	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$777,554	TotalAmt
Program Services	$305,341	ProgramServicesAmt
Management And General	$92,312	ManagementAndGeneralAmt
Fundraising	$379,901	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$657,418	TotalAmt
Program Services	$535,102	ProgramServicesAmt
Management And General	$122,316	ManagementAndGeneralAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$473,662	TotalAmt
Program Services	$186,004	ProgramServicesAmt
Management And General	$56,234	ManagementAndGeneralAmt
Fundraising	$231,424	FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	FundraisingFundraisingAmt
EVENT EXPENSES	$2,448,636	$1,052,794	$1,395,842
PRODUCTION COSTS	$955,424	$955,424

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$189,459	TotalAmt
Program Services	$63,894	ProgramServicesAmt
Management And General	$87,475	ManagementAndGeneralAmt
Fundraising	$38,090	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$61,748,106	TotalAmt
Program Services	$43,809,908	ProgramServicesAmt
Management And General	$3,179,216	ManagementAndGeneralAmt
Fundraising	$14,758,982	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,512,828	TotalAmt
Program Services	$605,131	ProgramServicesAmt
Management And General	$0	ManagementAndGeneralAmt
Fundraising	$907,697	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$4,374,392	BOYAmt
EOY	$3,486,720	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$1,562,462	BOYAmt
EOY	$5,591,799	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$4,089,647	BOYAmt
EOY	$4,315,250	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$2,604,547	BOYAmt
EOY	$1,565,963	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$5,597,533	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$5,205,918	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$1,014,299	BOYAmt
EOY	$391,615	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$44,214,583	BOYAmt
EOY	$35,421,745	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$76,213	BOYAmt
EOY	$76,213	EOYAmt

Intangible Assets IntangibleAssetsGrp

Field	Value	IRS element (for citing)
BOY	$10,442	BOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$24,911	BOYAmt
EOY	$24,911	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$57,971,496	BOYAmt
EOY	$50,874,216	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$7,831,569	BOYAmt
EOY	$2,334,615	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$1,079,496	BOYAmt
EOY	$178,924	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$4,618,055	BOYAmt
EOY	$5,840,048	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$10,768,117	BOYAmt
EOY	$10,179,517	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$30,238,789	BOYAmt
EOY	$22,643,693	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$54,536,026	BOYAmt
EOY	$41,176,797	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	-$1,508,923	BOYAmt
EOY	$4,359,739	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$4,944,393	BOYAmt
EOY	$5,337,680	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$3,435,470	BOYAmt
EOY	$9,697,419	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$57,971,496	BOYAmt
EOY	$50,874,216	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	$2,411,926	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$22,871	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$3,872,894	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$60,181,680	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$59,144,929	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$56,761,618	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$54,195,181	CurrentTaxYearMinus1YearAmt
Current Tax Year	$54,355,588	CurrentTaxYearAmt
Total	$284,638,996	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$60,181,680	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$59,144,929	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$56,761,618	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$54,195,181	CurrentTaxYearMinus1YearAmt
Current Tax Year	$54,355,588	CurrentTaxYearAmt
Total	$284,638,996	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$4,205,198	SubstantialContributorsTotAmt
Public Support Total170	$280,433,798	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$968,429	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,684,474	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,629,877	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,224,872	CurrentTaxYearMinus1YearAmt
Current Tax Year	$7,105,236	CurrentTaxYearAmt
Total	$14,612,888	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus3 Years	$10,004	CurrentTaxYearMinus3YearsAmt
Total	$10,004	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$299,261,888	TotalSupportAmt
Public Support CY170	0.93710	PublicSupportCY170Pct
Public Support PY170	0.95410	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$420,000	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$420,000	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$43,389,908	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$43,809,908	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$869,855	CurrentYearMinus3Amt
Current Year Minus2	$847,575	CurrentYearMinus2Amt
Current Year Minus1	$998,305	CurrentYearMinus1Amt
Current Year	$420,000	CurrentYearAmt
Total	$3,135,735	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$790,233	BeginningYearBalanceAmt
Investment Earnings Or Losses	$102,391	InvestmentEarningsOrLossesAmt
Administrative Expenses	$65,855	AdministrativeExpensesAmt
End Year Balance	$826,769	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$816,802	BeginningYearBalanceAmt
Investment Earnings Or Losses	$77,476	InvestmentEarningsOrLossesAmt
Administrative Expenses	$104,045	AdministrativeExpensesAmt
End Year Balance	$790,233	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$982,396	BeginningYearBalanceAmt
Contributions	$24,380	ContributionsAmt
Investment Earnings Or Losses	$133,867	InvestmentEarningsOrLossesAmt
Other Expenditures	$312,379	OtherExpendituresAmt
Administrative Expenses	$11,462	AdministrativeExpensesAmt
End Year Balance	$816,802	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$1,191,057	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$195,884	InvestmentEarningsOrLossesAmt
Administrative Expenses	$12,777	AdministrativeExpensesAmt
End Year Balance	$982,396	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$1,077,753	BeginningYearBalanceAmt
Investment Earnings Or Losses	$126,644	InvestmentEarningsOrLossesAmt
Administrative Expenses	$13,340	AdministrativeExpensesAmt
End Year Balance	$1,191,057	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$5,597,533	OtherCostOrOtherBasisAmt
Depreciation	$5,205,918	DepreciationAmt
Book Value	$391,615	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$391,615	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	ACCRUED PENSION COST	Desc
Amt	$22,643,693	Amt

Field	Value	IRS element (for citing)
Total Liability	$22,643,693	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$68,006,515	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$22,871	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$1,032,831	DonatedServicesAndUseFcltsAmt
Other Revenue	$2,964,731	OtherRevenueAmt
Revenue Not Reported	$3,974,691	RevenueNotReportedAmt
Revenue Subtotal	$64,031,824	RevenueSubtotalAmt
Investment Expenses Not Incld	$123,958	InvestmentExpensesNotIncldAmt
Other Revenues Not Included	$4,250	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$128,208	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$64,160,032	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$61,744,566	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$1,032,831	DonatedServicesUseFcltsAmt
Other Expenses Included	-$4,250	OtherExpensesIncludedAmt
Expenses Not Reported	$1,028,581	ExpensesNotReportedAmt
Expenses Subtotal	$60,715,985	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$123,958	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$908,163	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$1,032,121	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$61,748,106	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED TO SUPPORT DUCHENNE MUSCULAR DYSTROPHY RESEARCH THAT HAS BEEN APPROVED FOR FUNDING BY THE ASSOCIATION. THE ASSOCIATION MANAGES THIS ENDOWMENT IN ACCORDANCE WITH THE NEW YORK PRUDENT MANAGEMENT OF INSTITUTIONAL FUNDS ACT (NYPMIFA). THE ASSOCIATION HAS INTERPRETED NYPMIFA AS ALLOWING IT TO APPROPRIATE FOR FUTURE EXPENDITURE OR TO ACCUMULATE SO MUCH OF DONOR-RESTRICTED ENDOWMENT FUNDS AS IS PRUDENT FOR THE USES, BENEFITS, PURPOSES AND DURATION FOR WHICH THE ENDOWMENT FUND IS ESTABLISHED, SUBJECT TO THE INTENT OF THE DONOR AS EXPRESSED IN THE GIFT INSTRUMENT AND ABSENT EXPLICIT DONOR STIPULATIONS TO THE CONTRARY. PER THE DONOR'S DESIGNATION, THE ASSOCIATION IS TO DISBURSE APPROXIMATELY 85% OF ANNUAL NET INCOME OF ITS ENDOWED FUND AND THE REMAINING 15% RETURNS TO PRINCIPAL.
PART X, LINE 2:	U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2025, 2024, 2023, 2022 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN BY THE ASSOCIATION AND HAS CONCLUDED THAT, AS OF DECEMBER 31, 2025, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 2,965,008. FUNDRAISING EXPENSES -277.
PART XI, LINE 4B - OTHER ADJUSTMENTS:	SUBLEASE RENTAL 4,250.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	SUBLEASE RENTAL -4,250.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	FUNDRAISING EXPENSES 277. GRANTS WRITTEN OFF 907,886.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC	PROGRAM SERVICES	RESEARCH GRANT	$183,407
EUROPE	PROGRAM SERVICES	RESEARCH GRANT	$761,308
NORTH AMERICA	PROGRAM SERVICES	RESEARCH GRANT	$264,812
MIDDLE EAST AND NORTH AFRICA	PROGRAM SERVICES	RESEARCH GRANT	$147,733

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,357,260	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,357,260	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EAST ASIA AND THE PACIFIC	RESEARCH	$183,407	CHECK/WIRE	$0
EUROPE	RESEARCH	$761,308	CHECK/WIRE	$0
NORTH AMERICA	RESEARCH	$264,812	CHECK/WIRE	$0
MIDDLE EAST AND NORTH AFRICA	RESEARCH	$147,733	CHECK/WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	0	Total501c3OrgCnt
Total Other Org	26	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Solicitation Of Govt Grants	Yes (X)	SolicitationOfGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	0	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
MOORE A SERIES LLC
4200 PARLIAMENT PLACE 3RD FLOOR	LANHAM	MD	20703	DIRECT MAIL MARKETING	0	$2,892,688	$756,396	$2,136,292
STREETLIGHT DIGITAL
PO BOX 75	CONIFER	CO	80433	DIGITAL MARKETING	0	$1,332,228	$396,333	$935,895

Field	Value	IRS element (for citing)
Total Gross Receipts	$4,224,916	TotalGrossReceiptsAmt
Total Retained By Contractors	$1,152,729	TotalRetainedByContractorsAmt
Total Net To Organization	$3,072,187	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SPECIAL EVENTS	Event1Nm
Gross Receipts Event1	$17,404,222	GrossReceiptsEvent1Amt
Charitable Contri Event1	$15,000,609	CharitableContriEvent1Amt
Gross Revenue Event1	$2,403,613	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$173,336	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$222,292	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$34,495	FoodAndBeverageEvent1Amt
Entertainment Event1	$148,706	EntertainmentEvent1Amt
Other Direct Expenses Event1	$56,406	OtherDirectExpensesEvent1Amt
Event2	DISTINGUISHED EVENTS	Event2Nm
Gross Receipts Event2	$12,136,635	GrossReceiptsEvent2Amt
Charitable Contri Event2	$11,912,541	CharitableContriEvent2Amt
Gross Revenue Event2	$224,094	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$946,726	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$1,242,133	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$514,012	FoodAndBeverageEvent2Amt
Entertainment Event2	$268,082	EntertainmentEvent2Amt
Other Direct Expenses Event2	$21,576	OtherDirectExpensesEvent2Amt
Other Events Total	101	OtherEventsTotalCnt
Gross Receipts Other Events	$6,578,678	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$6,283,953	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$294,725	GrossRevenueOtherEventsAmt
Non Cash Prizes Other Events	$91,808	NonCashPrizesOtherEventsAmt
Rent Fclty Costs Other Events	$360,990	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$6,914	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$2,677	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$248,337	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$36,119,535	GrossReceiptsTotalAmt
Charitable Contributions Tot	$33,197,103	CharitableContributionsTotAmt
Gross Revenue Total Events	$2,922,432	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$1,211,870	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$1,825,415	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$555,421	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$419,465	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$326,319	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$4,338,490	DirectExpenseSummaryEventsAmt
Net Income Summary	-$1,416,058	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (193 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ADVENTHEALTH ORLANDO
601 E ROLLINS STREET BOX 37	ORLANDO	FL	328031248	590724459	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
ALBERGUE OLIMPICO DE PUERTO RICO
PR-712 KM 03	SALINAS	PR	00751	660630488	501(C)(3)	$21,574	$0	MEDICAL DIAGNOSIS AND RESEARCH
ANN & ROBERT H LURIE CHILDREN'S HOSPITAL OF CHICAGO
225 E CHICAGO BOX 4	CHICAGO	IL	60611	362170833	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
ASCENSION SETON
4900 MUELLER BLVD	AUSTIN	TX	78735	741109643	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
ATRIUM HEALTH FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	566060481	501(C)(3)	$90,000	$0	MEDICAL DIAGNOSIS
ATRIUM HEALTH WFB
PO BOX 604096	CHARLOTTE	NC	282604096	223849199	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
BAYCARE MEDICAL GROUP
2985 DREW STREET MS 1027	CLEARWATER	FL	33759	593140335	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
BAYLOR COLLEGE OF MEDICINE
PO BOX 30120 7	DALLAS	TX	753031207	741613878	501(C)(3)	$131,500	$0	MEDICAL DIAGNOSIS AND RESEARCH
BEAUMONT HEALTH SYSTEM
3535 WEST 13 MILE ROAD PEDIATRIC	ROYAL OAK	MI	48073	381459362	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	ADMINISTRATION SUITE 709
BILLINGS CLINIC FOUNDATION
PO BOX 31031	BILLINGS	MT	591071031	810407289	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616	SPRINGFIELD	IL	627949616	376005961	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
BOSTON CHILDREN'S HOSPITAL
1295 BOYLSTON ST 4TH FLOOR	BOSTON	MA	033265724	042774441	501(C)(3)	$144,824	$0	MEDICAL DIAGNOSIS AND RESEARCH
BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149	BOSTON	MA	022413149	042312909	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
CALIFORNIA PACIFIC MEDICAL CENTER FOUNDATION
PO BOX 160045	SACRAMENTO	CA	95816	942728423	501(C)(3)	$92,650	$0	MEDICAL DIAGNOSIS
CAMP ALDERSGATE INC
2000 ALDERSGATE RD	LITTLE ROCK	AR	72205	710265209	501(C)(3)	$32,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP ARANZAZU
5420 LOOP 1781	ROCKPORT	TX	78382	743032285	501(C)(3)	$11,080	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP CAVELL CONSERVANCY
3335 LAKESHORE RD	LEXINGTON	MI	48450	462336793	501(C)(3)	$39,950	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP COLE
1571 CROSSING CREEK ROAD	EASTOVER	SC	29044	821387411	501(C)(3)	$42,974	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP COURAGEOUS OF IOWA
12007 190TH STREET PO BOX 418	MONTICELLO	IA	52310	237210932	501(C)(3)	$56,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP FOR ALL
3701 KIRBY DRIVE SUITE 570	HOUSTON	TX	77098	760404267	501(C)(3)	$43,750	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP JOHN MARC
4925 GREENVILLE AVESUITE400	DALLAS	TX	75206	752205242	501(C)(3)	$41,760	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP RONALD MCDONALD FOR GOOD TIMES
1250 LYMAN PLACE	LOS ANGELES	CA	90029	953167869	501(C)(3)	$49,666	$0	MEDICAL DIAGNOSIS AND RESEARCH
CAMP TWIN LAKES
1100 SPRING STREET SUITE 406	ATLANTA	GA	30309	581826782	501(C)(3)	$33,155	$0	MEDICAL DIAGNOSIS AND RESEARCH
CEDARS-SINAI MEDICAL CENTER
6500 WILSHIRE BLVD STE 1150	LOS ANGELES	CA	90048	951644600	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
CENTER FOR COURAGEOUS KIDS
1501 BURNLEY ROAD	SCOTTSVILLE	KY	42164	201789905	501(C)(3)	$16,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100	ROUND ROCK	TX	78681	742710396		$10,000	$0	MEDICAL DIAGNOSIS
CHARCOT-MARIE-TOOTH ASSOCIATION
PO BOX 105	GLENOLDEN	PA	19036	222480896	501(C)(3)	$29,999	$0	RESEARCH
CHILD CRISIS ARIZONA
PO BOX 105	GLENOLDEN	PA	19036	860324144	501(C)(3)	$46,481	$0	MEDICAL DIAGNOSIS AND RESEARCH
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE	TUCSON	AZ	85712	860667510	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HEALTHCARE OF ATLANTA FOUNDATION
PO BOX 101012	ATLANTA	GA	303921012	581710601	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285	AURORA	CO	80045	840166760	501(C)(3)	$55,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL LOS ANGELES
4650 SUNSET BLVD MAILSTOP 97	LOS ANGELES	CA	90027	951690977	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVE	CINCINNATI	OH	452293039	310833936	501(C)(3)	$65,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF ORANGE COUNTY
1201 W LA VETA AVE	ORANGE	CA	928683874	952321786	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$83,300	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANT	PITTSBURGH	PA	15224	251865744	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	FLOOR 3
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE	NORFOLK	VA	23507	540506321	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL OF WISCONSIN
8701 WATERTOWN PLANK RD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$6,025	$0	MOVR REGISTRY SUPPORT
CHILDRENS HOSPITAL NEW ORLEANS
200 HENRY CLAY AVENUE	NEW ORLEANS	LA	70118	720467503	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S RESEARCH INSTITUTE (CNMC)
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521654453	501(C)(3)	$258,963	$0	RESEARCH
CLINICAL NEUROLOGY PC
PC 4221 S WESTERN SUITE 5010	OKLAHOMA CITY	OK	73109	412141136	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
COLUMBIA UNIVERSITY MEDICAL CENTER
COLUMBIA UNIVERSITY 630 WEST 168TH	NEW YORK	NY	10032	135598093	501(C)(3)	$196,318	$0	RESEARCH	STREET BOX 49
COMMUNITY HOSPITALS OF CENTRAL CALIFORNIA FOUNDATION
1530 E SHAW AVE STE 106	FRESNO	CA	93710	770191730	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CONNECTICUT CHILDREN'S MEDICAL CENTER
282 WASHINGTON STREET	HARTFORD	CT	061063322	060646755	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
COOK CHILDRENS MEDICAL CENTER
801 SEVENTH AVENUE FT	WORTH	TX	76104	752705881	501(C)(3)	$26,200	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
COPAMARINA BEACH RESORT & SPA PR
PO BOX 805	GUANICA	PR	00653	660479688		$50,769	$0	MEDICAL DIAGNOSIS AND RESEARCH
CURATORS OF THE UNIVERSITY OF MISSOURI
AR PO BOX 807012	KANSAS CITY	MO	641807012	436003859	501(C)(3)	$40,900	$0	MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT
CURE CMD
3217 E CARSON ST 1014	LAKEWOOD	CA	90712	262640975	501(C)(3)	$17,000	$0	RESEARCH
DANA-FARBER CANCER INSTITUTE INC
450 BROOKLINE AVENUE	BOSTON	MA	022155450	042263040	501(C)(3)	$75,000	$0	RESEARCH
DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOOR	AMHERST	NY	14226	161582336	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL & MEDICAL CENTER
350 W THOMAS RD	PHOENIX	AZ	85013	941196203	501(C)(3)	$80,000	$0	RESEARCH
DIGNITY HEALTH ST JOSEPHS HOSPITAL AZ
MISC A/R CASE FILE 57431	LOS ANGELES	CA	900748781	860096787	501(C)(3)	$60,000	$0	MEDICAL DIAGNOSIS
DUKE UNIVERSITY MEDICAL CENTER
PO BOX 602651	CHARLOTTE	NC	282602651	562070036	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
EASTER SEALS COLORADO
393 S HARLAN ST	LAKEWOOD	CO	80226	840412575	501(C)(3)	$46,706	$0	MEDICAL DIAGNOSIS AND RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)(3)	$159,603	$0	RESEARCH	MAILSTOP
EMORY UNIVERSITY
12 EXECUTIVE PARK DR NE RM 433	ATLANTA	GA	30329	582030692	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
FLORIDA ELKS YOUTH CAMP INC
24175 SE HIGHWAY 450	UMATILLA	FL	32784	593415374	501(C)(3)	$33,262	$0	MEDICAL DIAGNOSIS AND RESEARCH
FRIEDREICH'S ATAXIA RESEARCH ALLIANCE
PO BOX 1537	SPRINGFIELD	VA	22151	522122720	501(C)(3)	$113,159	$0	RESEARCH
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	178223057	236291113	501(C)(3)	$20,075	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUE	ST PAUL	MN	55101	363379150	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
GORDON RESEARCH CONFERENCES
5586 POST ROAD	EAST GREENWICH	RI	02818	260150662	501(C)(3)	$10,000	$0	RESEARCH
HAPPINESS IS CAMPING INC
62 SUNSET LAKE RD	HARDWICK	NJ	07825	132556242	501(C)(3)	$45,280	$0	MEDICAL DIAGNOSIS AND RESEARCH
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE	NEW BRITAIN	CT	06053	060646766	501(C)(3)	$51,125	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
HUDSONALPHA INSTITUTE FOR BIOTECHNOLOGY
601 GENOME WAY	HUNTSVILLE	AL	35806	432059317	501(C)(3)	$38,588	$0	RESEARCH
IDAHO PHYSICAL MEDICINE AND REHABILITATION
P O BOX 1128 ATTN	IDAHO	ID	83701	820435241		$15,300	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
INDIANA UNIVERSITY HEALTH INC
IU HEALTH 2227 RELIABLE PARKWAY	CHICAGO	IL	606860022	351955872	501(C)(3)	$40,000	$0	MEDICAL DIAGNOSIS
INDIANA UNIVERSITY
1024 EAST 3RD STREET ROOM 132	BLOOMINGTON	IN	47405	356001673	501(C)(3)	$54,900	$0	MEDICAL DIAGNOSIS AND RESEARCH
INSTITUTO REHABILITACION DEL CARIBE
PO BOX 363792	SAN JUAN	PR	00936	660704444		$20,000	$0	MEDICAL DIAGNOSIS
IOWA STATE UNIVERSITY OF SCIENCE AND TECHNOLOGY
1350 BEARDSHEAR HALL515 MORRILL RD	AMES	IA	500112103	426004224	STATE OF IOWA	$40,000	$0	RESEARCH
JOHNS HOPKINS ALL CHILDREN'S HOSPITAL ST PETE FL
601 5TH STREET SOUTH SUITE 302	ST PETERSBURG	FL	34655	590683252	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
JOHNS HOPKINS UNIVERSITY- CG
733 NORTH BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)(3)	$578,750	$0	MEDICAL DIAGNOSIS AND RESEARCH
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202	LOMA LINDA	CA	92350	951816009	501(C)(3)	$60,000	$0	MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER-NEW ORLEANS
1542 TULANE AVE ROOM 763A	NEW ORLEANS	LA	70112	726087770	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
LSUHSC-SHREVEPORT
1501 KINGS HWY ROOM 3-408 C	SHREVEPORT	LA	71103	720702002	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
MAINE MEDICAL CENTER
92 CAMPUS DRIVE2ND FLOOR SUITE	SCARBOROUGH	ME	04074	010238552	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL
PO BOX 414876	BOSTON	MA	022414876	042697983	501(C)(3)	$377,699	$0	MEDICAL DIAGNOSIS AND RESEARCH
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$45,000	$0	MEDICAL DIAGNOSIS
MAYO CLINIC
PO BOX 860334	MINNEAPOLIS	MN	554860334	416011702	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
MCV ASSOCIATED PHYSICIANS
1101 EAST MARSHALL STREET RM6-015	RICHMOND	VA	232980599	541581185	501(C)(3)	$40,000	$0	MEDICAL DIAGNOSIS	BOX 980599
MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK RD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606 MSC 808	CHARLESTON	SC	294258080	576000722	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOOR PHC	WASHINGTON	DC	20007	522218584	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
METHODIST LE BONHEUR COMMUNITY OUTREACH
GARY COOK 600 JEFFERSON AVE	MEMPHIS	TN	38105	621251288	501(C)(3)	$50,900	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2 EAST	LANSING	MI	48824	386005984	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
MILLER SCHOOL OF MEDICINE OF THE UNIVERSITY OF MIAMI
PO BOX 405803	ATLANTA	GA	303845803	590624458	501(C)(3)	$157,732	$0	RESEARCH
MONTEFIORE MEDICAL CENTER
555 S BROADWAY BLDG A 1ST FL RM	BRONX	NY	10467	131740114	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS	A1-R61
MT HOOD KIWANIS CAMP INC
10725 SW BARBUR BLVD SUITE 50	PORTLAND	OR	97219	930422242	501(C)(3)	$18,322	$0	MEDICAL DIAGNOSIS AND RESEARCH
NATIONAL ABILITY CENTER
1000 ABILITY	WAY PARK CITY	UT	84060	943025807	501(C)(3)	$16,803	$0	MEDICAL DIAGNOSIS AND RESEARCH
NATIONAL INSTITUTES OF NEUROLOGICAL DISORDERS AND STROKE NIH NINDS
PO BOX 5801	BETHESDA	MD	20824	520858115	SEC 115	$49,112	$0	RESEARCH
NEMOURS FOUNDATION
10140 CENTURION PARKWAY N	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707	TULSA	OK	74104	731502318		$6,250	$0	MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026	BOSTON	MA	022415026	135562308	STATE OF NY	$50,000	$0	MEDICAL DIAGNOSIS
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
259 E ERIE ST SUITE 1900	CHICAGO	IL	60611	363382383	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
NORTON HEALTHCARE
224 E BROADWAY 5TH FLOOR	LOUISVILLE	KY	402021959	611276316	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
OLIVE VIEW-UCLA EDUCATION & RESEARCH INSTITUTE
14445 OLIVE VIEW DRIVE RESEARCH	SYLMAR	CA	913421495	952249539	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	ADMINISTRATION OFFICE
OREGON HEALTH & SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD MAIL	PORTLAND	OR	97239	931176109	STATE OF OR	$99,994	$0	RESEARCH	CODE L106OPAM
OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL INSTITUTE
800 NE GLEN OAK AVE	PEORIA	IL	61603	383852646	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
PINE TREE SOCIETY INC
149 FRONT STREET	BATH	ME	04530	010212442	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
PONCE HEALTH SCIENCES UNIVERSITY
PO BOX 7004	PONCE	PR	007327004	660379122	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
PRISMA HEALTH GRANTS AND TRIALS
PO BOX 748580	ATLANTA	GA	303748580	811723202	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
PROVIDENCE MEDICAL GROUP
101 W 8TH AVE	SPOKANE	WA	99204	510216586	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RADY CHILDRENS HOSPITAL FOUNDATION - SAN DIEGO
3020 CHILDRENS WAY MC 5005	SAN DIEGO	CA	921234282	330170626	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
RECREATION UNLIMITED FARM AND FUN
7700 PIPER ROAD	ASHLEY	OH	43003	311813336	501(C)(3)	$39,807	$0	MEDICAL DIAGNOSIS AND RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
4860 Y STREET SUITE 3850	SACRAMENTO	CA	95817	946036494	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
REGENTS OF THE UNIVERSITY OF MINNESOTA - TWIN CITIES
NW 5957 PO BOX 1450	MINNEAPOLIS	MN	554855957	416007513	501(C)(3)	$272,950	$0	RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1700 W VAN BUREN STREET SUITE 250	CHICAGO	IL	60612	362174823	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY-RBHS-NJMS
33 KNIGHTSBRIDGE ROAD 2ND FLOOR	PISCATAWAY	NJ	08854	462354111	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS	EAST
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10901 NORTH TORREY PINES RD	LA JOLLA	CA	92037	510197108	501(C)(3)	$31,500	$0	RESEARCH
SANFORD MEDICAL CENTER FARGO
P O BOX 2010	FARGO	ND	58122	450226909	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL ATTN PAT BURKE	SARASOTA	FL	34239	596012500	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SEATTLE CHILDRENS HOSPITAL
4300 ROOSEVELT WAY NE M/S RC 507	SEATTLE	WA	98105	910564748	501(C)(3)	$12,500	$0	MEDICAL DIAGNOSIS
SEMMES-MURPHEY CLINIC
PO BOX 1000 DEPT 575	MEMPHIS	TN	38148	620642575	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	362193608	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
SIERRA NEVADA JOURNEYS
PO BOX 1631	RENO	NV	89505	010881587	501(C)(3)	$71,200	$0	MEDICAL DIAGNOSIS AND RESEARCH
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN NE MC 004	GRAND RAPIDS	MI	49503	382752328	501(C)(3)	$15,000	$0	MEDICAL DIAGNOSIS
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD	PORT JEFFERSON	NY	11777	412076312	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
ST JUDE CHILDREN'S RESEARCH HOSPITAL INC
262 DANNY THOMAS PLACE	MEMPHIS	TN	381053678	620646012	501(C)(3)	$75,000	$0	RESEARCH
ST LUKES HEALTH SYSTEM
PO BOX 1663	IDAHO	ID	837011663	452716222	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
ST PETERS HOSPITAL
310 S MANNING BLVD	ALBANY	NY	12208	222262982	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON RD MAIL CODE 5894	MENLO PARK	CA	94025	770003859	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STANFORD HEALTH CARE
315 MONTGOMERY STREET	SAN FRANCISCO	CA	94104	946174066	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STANFORD UNIVERSITY
PO BOX 884253	LOS ANGELES	CA	900884253	941156365	501(C)(3)	$57,500	$0	RESEARCH
TEMPLE UNIVERSITY
PO BOX 22432	NEW YORK	NY	100872432	231365971	501(C)(3)	$18,575	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
TEXAS NEUROLOGY PA
MD 6080 NORTH CENTRAL EXPRESSWAY	DALLAS	TX	75206	752654757	501(C)(3)	$49,000	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT	SUITE 100
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
UW-MADISON GAR ACCOUNT OFFICE FOR	MILWAUKEE	WI	532780538	396006492	501(C)(3)	$20,725	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT	RESEARCH SPONSORED PROGRAMS DRAWER
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS - UNIV OF ILLINOIS AT
28395 NETWORK PLACE	CHICAGO	IL	606731283	376000511	STATE OF IL	$189,982	$0	RESEARCH
THE HOSPITAL FOR SPECIAL SURGERY
535 EAST 70TH STREET	NEW YORK	NY	100214872	131624135	501(C)(3)	$26,300	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
THE METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET 802	HOUSTON	TX	77030	571201170	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
THE METROHEALTH SYSTEM
PO BOX 73308	CLEVELAND	OH	44193	346004382	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
THE OHIO STATE UNIVERSITY
1072 GRAVES HALL 333 W 10TH AVE	COLUMBUS	OH	43210	316025986	STATE OF OHIO	$102,325	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
THE PAINTED TURTLE
1300 4TH STREET SUITE 300	SANTA MONICA	CA	90401	954612481	501(C)(3)	$80,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
MAIL CODE H157 500 UNIVERSITY DRIVE	HERSHEY	PA	17033	246000376	STATE OF PA	$35,000	$0	MEDICAL DIAGNOSIS
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195	CHARLOTTESVILLE	VA	229044195	546001796	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
228 ALDRICH HALL	IRVINE	CA	926971050	952226406	501(C)(3)	$106,500	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (UNIVERSITY OF CALIFORNIA DAVIS
1125 MURPHY HALL 405 HILGARD AVENUE	LOS ANGELES	CA	900959000	946036494	501(C)(3)	$188,722	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
9500 GILMAN DRIVE DEPT 0934 USCD	LA JOLLA	CA	920930934	956006143	501(C)(3)	$410,998	$0	MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT	FUND 8987EA
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
PO BOX 748872	LOS ANGELES	CA	900744872	956006144	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1850 RESEARCH PARK DRIVE SUITE 300	DAVIS	CA	95618	946036493	501(C)(3)	$133,975	$0	MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
BOX 223131 PAF 17-PAF00659	PITTSBURGH	PA	152512131	386006309	501(C)(3)	$112,366	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE RESEARCH FOUNDATION FOR THE STATE UNIVERSITY OF NEW YORK
CAB209 750 EAST ADAMS STREET	SYRACUSE	NY	13210	141368361	501(C)(3)	$189,470	$0	RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
PO BOX 78000	DETROIT	MI	482781653	316056230	501(C)(3)	$12,500	$0	MEDICAL DIAGNOSIS
THE RYR-1 FOUNDATION
PO BOX 13312	PITTSBURGH	PA	15243	471094057	501(C)(3)	$7,000	$0	RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
PO BOX 29789 GENERAL POST OFFICE	NEW YORK	NY	100879789	135598093	501(C)(3)	$250,000	$0	RESEARCH
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
PO BOX 785541	PHILADELPHIA	PA	191785541	231352685	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE S LOWDER 608 ATTN	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$30,000	$0	MEDICAL DIAGNOSIS	TRINA IRBY
THE UNIVERSITY OF IOWA
2410 UCC 201 ST CLINTON	IOWA CITY	IA	522424034	426004813	501(C)(3)	$144,401	$0	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DR SUITE 2200 CAMPUS	CHAPEL HILL	NC	275991350	566001393	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS	BOX 1350
THOMAS JEFFERSON UNIVERSITY
1101 MARKET STREET 29TH FLOOR	PHILADELPHIA	PA	191072934	231352651	501(C)(3)	$35,000	$0	RESEARCH
TIMBER POINTE OUTDOOR CENTER
TIMBER POINTE LANE	HUDSON	IL	61748	370686250	501(C)(3)	$54,124	$0	MEDICAL DIAGNOSIS AND RESEARCH
TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS
200 JEFFERSON SE	GRAND RAPIDS	MI	49503	272491974	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
TRUE FRIENDS
10509 108TH ST NW	ANNANDALE	MN	55302	411543013	501(C)(3)	$43,060	$0	MEDICAL DIAGNOSIS AND RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNYSYLVANIA
3451 WALNUT STREET FRANKLIN	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$40,000	$0	RESEARCH	BUILDING 5TH FLOOR
TRUSTEES OF TUFTS COLLEGE
136 HARRISON AVE	BOSTON	MA	02111	042103634	501(C)(3)	$74,982	$0	RESEARCH
UMASS CHAN MEDICAL SCHOOL
55 LAKE AVENUE	NORTH WORCESTER	MA	01655	043167352	STATE OF MA	$30,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
450 CLARKSON AVENUE BOX 35	BROOKLYN	NY	11203	146013200	STATE OF NY	$35,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY NEUROLOGY INC
77 GOODELL ST SUITE 310	BUFFALO	NY	14203	161359213	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 7TH AVENUE SOUTH SC 460A	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$30,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM STREET 812	LITTLE ROCK	AR	72205	716046242	STATE OF AR	$30,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF CINCINNATI PHYSICIANS
260 STETSON STREET SUITE 2300 ML	CINCINNATI	OH	45219	273850988	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS	0525
UNIVERSITY OF CINCINNATI
PO BOX 210140	CINCINNATI	OH	452210140	316000989	501(C)(3)	$7,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF COLORADO DENVER
170801-SR PO BOX 910238	DENVER	CO	802910238	846000555	STATE OF CO	$100,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF FLORIDA
33 TIGERT HALL	GAINESVILLE	FL	32611	596002052	STATE OF FLORIDA	$191,500	$0	RESEARCH
UNIVERSITY OF IOWA
118 S CLINTON STREET	IOWA CITY	IA	52242	426004813	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD MS 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$206,922	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300	LOUISVILLE	KY	402021959	611029626	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF MASSACHUSETTS CHAN MEDICAL SCHOOL
55 LAKE AVENUE	NORTH WORCESTER	MA	01666	043167352	501(C)(3)	$105,000	$0	RESEARCH
UNIVERSITY OF MIAMI
PO BOX 405803	ATLANTA	GA	303845803	590624458	501(C)(3)	$128,050	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
POST-AWARD 2500 NORTH STATE STREET	JACKSON	MS	392164505	646008520	STATE OF MS	$20,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF NEBRASKA MEDICAL CENTER
988435 NEBRASKA MEDICAL CENTER	OMAHA	NE	681988435	470049123	STATE OF NE	$35,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICO MSC09	ALBUQUERQUE	NM	871310001	856000642	STATE OF NM	$35,000	$0	MEDICAL DIAGNOSIS	5225
UNIVERSITY OF PITTSBURGH
PO BOX 640458	PITTSBURGH	PA	152640458	232919472	501(C)(3)	$81,212	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES
CLINICA LAS AMERICAS 400 FD	SAN JUAN	PR	009182162	660433762	501(C)(3)	$40,000	$0	MEDICAL DIAGNOSIS	ROOSEVELT AVE
UNIVERSITY OF ROCHESTER -
910 GENESEE STREET SUITE 200	ROCHESTER	NY	146113847	160743209	501(C)(3)	$398,910	$0	RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828	SAN ANTONIO	TX	782293900	741586031	STATE OF TX	$75,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH
PO BOX 581374	SALT LAKE CITY	UT	84158	876000525	STATE OF UT	$85,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902	BURLINGTON	VT	054011902	030219309	STATE OF VT	$20,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF WASHINGTON MEDICAL CENTER
4333 BROOKLYN AVE NE BOX 359472	SEATTLE	WA	98195	916001537	STATE OF WA	$641,819	$0	MEDICAL DIAGNOSIS
UT SOUTHWESTERN MEDICAL CENTER
BOX 356143 1959 NE PACIFIC	SEATTLE	WA	981956143	756002868	STATE OF WA	$96,250	$0	MEDICAL DIAGNOSIS
UW HOSPITAL & CLINICS AUTHORITY
DRAWER 853	MILWAUKEE	WI	53278	391835630	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
VALLEY CHILDRENS HOSPITAL
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93636	941294954	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236	DALLAS	TX	753121236	352528741	501(C)(3)	$125,550	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
VARIETY - THE CHILDREN'S CHARITY OF THE DELAWARE VALLEY
PO BOX 609 2950 POTSHOP ROAD	WORCESTER	PA	19490	231556195	501(C)(3)	$50,500	$0	MEDICAL DIAGNOSIS AND RESEARCH
VICTORY JUNCTION
4500 ADAMS WAY	RANDLEMAN	NC	27317	562215292	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
VIRGINIA COMMONWEALTH UNIVERSITY
800 EAST LEIGH STREET SUITE 3100	RICHMOND	VA	232843039	546001758	STATE OF VA	$122,759	$0	RESEARCH
WASHINGTON UNIVERSITY IN ST LOUIS
700 ROSEDALE AVE CAMPUS BOX 1034	ST LOUIS	MO	63112	430653611	501(C)(3)	$125,000	$0	MEDICAL DIAGNOSIS
WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89	NEW YORK	NY	10065	131623978	501(C)(3)	$40,000	$0	RESEARCH
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROAD	MORGANTOWN	WV	26506	550665758	501(C)(3)	$7,500	$0	MEDICAL DIAGNOSIS
WONDERLAND CAMP & CONFERENCE CENTER
9241 CAMP LAKE ROAD	SALEM	WI	53168	362167909	CHURCH	$31,317	$0	MEDICAL DIAGNOSIS AND RESEARCH
YALE UNIVERSITY
PO BOX 208087	NEW HAVEN	CT	065208087	060646973	501(C)(3)	$101,876	$0	MEDICAL DIAGNOSIS RESEARCH AND MOVR REGISTRY SUPPORT
YMCA CAMP SEYMOUR
9725 CRAMER RD NW GIG	HARBOUR	WA	98329	910565562	501(C)(3)	$49,334	$0	MEDICAL DIAGNOSIS AND RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	192	Total501c3OrgCnt
Total Other Org	7	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (1)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (1)	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
DONALD WOOD
OUTGOING PRESIDENT & CEO	$247,116	$0	$81,000	$0	$334,321	$0	$0	$0	$17,405	$0	$679,842	$0	$0	$0
SHARON HESTERLEE
PRESIDENT & CEO	$390,615	$0	$31,046	$0	$0	$0	$31,000	$0	$39,765	$0	$492,426	$0	$0	$0
HENRY LANMAN
COO & CHIEF LEGAL OFFICER	$380,303	$0	$0	$0	$0	$0	$21,040	$0	$35,401	$0	$436,744	$0	$0	$0
RUTH DAILEY
CHIEF DEVELOPMENT OFFICER	$293,237	$0	$11,176	$0	$0	$0	$29,361	$0	$594	$0	$334,368	$0	$0	$0
MARY ROTH
CHIEF MARKETING OFFICER	$231,341	$0	$28,014	$0	$0	$0	$34,750	$0	$20,041	$0	$314,146	$0	$0	$0
JON VAN COTT
INTERIM CFO & CONTROLLER	$199,591	$0	$0	$0	$13,560	$0	$0	$0	$48,058	$0	$261,209	$0	$0	$0
NORA CAPOCCI
EVP, HEALTHCARE SERVICES	$203,913	$0	$24,012	$0	$0	$0	$23,500	$0	$594	$0	$252,019	$0	$0	$0
PERIPEDES GONDIM
OUTGOING EVP, HR & VOLUNTEERS	$148,669	$0	$23,283	$0	$63,912	$0	$15,128	$0	$365	$0	$251,357	$0	$0	$0
ANGELA LEK
CHIEF RESEARCH OFFICER	$221,940	$0	$0	$0	$0	$0	$13,316	$0	$594	$0	$235,850	$0	$0	$0
MICHAEL KENNEDY
OUTGOING TREASURER & CFO	$59,653	$0	$0	$0	$98,644	$0	$5,546	$0	$6,107	$0	$169,950	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 4A	THE FOLLOWING INDIVIDUALS RECEIVED SEVERANCE: - DONALD WOOD, OUTGOING PRESIDENT & CEO RECEIVED $315,000 - MICHAEL KENNEDY, OUTGOING TREASURER & CFO RECEIVED $97,308. - PERIPEDES GONDIM, OUTGOING EVP, HUMAN RESOURCES & VOLUNTEERS RECEIVED $59,371
PART I, LINE 7	INCLUDED ON SCHEDULE J, PART II, COLUMN B(II) REPRESENTS EMPLOYEE BONUSES BASED ON INDIVIDUAL AND ORGANIZATIONAL PERFORMANCE METRICS. THESE PAYMENTS ARE SUBJECT TO FINAL BOARD APPROVAL.

Schedule M IRS990ScheduleM

Drugs And Medical Supplies DrugsAndMedicalSuppliesGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	6	ContributionCnt
Noncash Contributions Rpt F990	$45,171	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	AUCTION ITEMS	Desc
Contribution	9	ContributionCnt
Noncash Contributions Rpt F990	$271,859	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	0	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, COLUMN (B):	FormAndLineReferenceDesc
Explanation	COLUMN B REPRESENTS NUMBER OF CONTRIBUTIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART I, LINE 1	MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS THE #1 VOLUNTARY HEALTH ORGANIZATION IN THE UNITED STATES FOR PEOPLE LIVING WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES. FOR OVER 70 YEARS, MDA HAS LED THE WAY IN ACCELERATING RESEARCH, ADVANCING CARE, AND ADVOCATING FOR THE SUPPORT OF OUR FAMILIES. MDA'S MISSION IS TO EMPOWER THE PEOPLE WE SERVE TO LIVE LONGER, MORE INDEPENDENT LIVES.
FORM 990, PART VI, SECTION B, LINE 11B	ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE.
FORM 990, PART XI, LINE 9:	CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 2,965,008. GRANTS WRITTEN OFF 907,886.