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NATIONAL ALOPECIA AREATA FOUNDATION: Form 990, tax year 2025

View the entire original 990 at ProPublica ↗

Organization
NATIONAL ALOPECIA AREATA FOUNDATION (EIN 94-2780249)
Tax period
2025-01-01 to 2025-12-31
Filed
2026-04-28
IRS object ID
202621189349302472
Schema version
2025v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-04-28T19:57:34-07:00ReturnTs
Tax Period End2025-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN883279586PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Hiep Pham CPA IncBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line141041 Trimboli Way 1926AddressLine1Txt
CityFremontCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94538ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2025-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN942780249EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1National Alopecia Areata FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlNATIBusinessNameControlTxt
Phone4154723780PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11500 Grant AvenueAddressLine1Txt
CityNovatoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94945ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonLaura MaciagPersonNm
Person TitleInterim CEOPersonTitleTxt
Phone4154723780PhoneNum
Signature2026-03-09SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonHiep PhamPreparerPersonNm
PTINP01346204PTIN
Phone5107897736PhoneNum
Preparation2026-04-28PreparationDt
FieldValueIRS element (for citing)
Tax2025TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLaura MaciagPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11500 Grant Avenue Suite 242AddressLine1Txt
CityNovatoCityNm
State AbbreviationCAStateAbbreviationCd
ZIP94945ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,321,303GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.naaf.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1981FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionNAAF drives research to find a cure and accessible treatments for alopecia areata, supports those those impacted, and educates the public about the disease.ActivityOrMissionDesc
Voting Members Governing Body15VotingMembersGoverningBodyCnt
Voting Members Independent15VotingMembersIndependentCnt
Total Employee18TotalEmployeeCnt
Total Volunteers500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$2,126,872PYContributionsGrantsAmt
CY Contributions Grants$2,444,229CYContributionsGrantsAmt
PY Program Service Revenue$287,019PYProgramServiceRevenueAmt
CY Program Service Revenue$228,385CYProgramServiceRevenueAmt
PY Investment Income$231,917PYInvestmentIncomeAmt
CY Investment Income$116,285CYInvestmentIncomeAmt
PY Other Revenue$772,597PYOtherRevenueAmt
CY Other Revenue$1,209,162CYOtherRevenueAmt
PY Total Revenue$3,418,405PYTotalRevenueAmt
CY Total Revenue$3,998,061CYTotalRevenueAmt
PY Grants And Similar Paid$163,034PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$337,673CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,573,467PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$2,060,356CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$623,456CYTotalFundraisingExpenseAmt
PY Other Expenses$1,241,512PYOtherExpensesAmt
CY Other Expenses$1,452,153CYOtherExpensesAmt
PY Total Expenses$2,978,013PYTotalExpensesAmt
CY Total Expenses$3,850,182CYTotalExpensesAmt
PY Revenues Less Expenses$440,392PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$147,879CYRevenuesLessExpensesAmt
Total Assets BOY$4,314,356TotalAssetsBOYAmt
Total Assets EOY$4,739,437TotalAssetsEOYAmt
Total Liabilities BOY$554,791TotalLiabilitiesBOYAmt
Total Liabilities EOY$715,745TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$3,759,565NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$4,023,692NetAssetsOrFundBalancesEOYAmt
MissionNAAF drives research to find a cure and accessible treatments for alopecia areata, supports those those impacted, and educates the public about the disease.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$2,804,461ExpenseAmt
Grant$337,673GrantAmt
Revenue$228,385RevenueAmt
DescAwareness and support - provided emotional support and medical updates for persons suffering from Alopecia Areata. Services provided include monthly live webinars, a youth mentor program, support groups for parents and people living with alopecia areata, a robust website with resources including but not limited to patient brochures, school advisory toolkit as well as resources for insurance and finding local doctors who treat alopecia areata. Sponsored annual patient conference which featured support sessions, and which was attended by persons from the US and other countries. Walk For Alopecia held in September during Alopecia Areata Awareness month to raise funds and awareness of Alopecia areata. NAAFs Treatment Development programs funded medical research to find safe and effective treatments or cure for alopecia areata.Desc
Total Program Service Expenses$2,804,461TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsYes (true)ReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document28IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee18EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members15GoverningBodyVotingMembersCnt
Independent Voting Member15IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonOutfitters4PersonNm
Phone3369300140PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1Coliseum Dr NWAddressLine1Txt
CityWinston SalemCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27106ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
Ann Hollins
Chair4.00Yes (X)Yes (X)$0$0$0
Bonnie Chong
Director4.00Yes (X)$0$0$0
Jonelle Massey
Director2.00Yes (X)$0$0$0
Jim OConnell
Chief Financial Officer4.00Yes (X)Yes (X)$0$0$0
Tyrone Folliard-Olson
Vice Chair4.00Yes (X)Yes (X)$0$0$0
Simon Rubenstein
Director2.00Yes (X)$0$0$0
Maureen McGettigan
Secretary4.00Yes (X)Yes (X)$0$0$0
Ron Saca
Director2.00Yes (X)$0$0$0
Dr Brett King
Director2.00Yes (X)$0$0$0
Shamsha Damani
Director2.00Yes (X)$0$0$0
David Granson
Director2.00Yes (X)$0$0$0
Lisa Bard Levine
Director2.00Yes (X)$0$0$0
Ruth Rama-Witt
Director2.00Yes (X)$0$0$0
Shawn Borisoff
Director2.00Yes (X)$0$0$0
Nicole Friedland
President & CEO40.00Yes (X)$327,697$0$24,652
Laura Maciag
Chief Operating Officer40.00Yes (X)$203,975$0$16,665
Robert Baker III
Chief Growth Officer40.00Yes (X)$192,125$0$13,616
Lisa Anderson
Vice President of Research and Education40.00$144,156$0$10,150Yes (X)
George Gondo
Chief Mission Officer40.00$159,517$0$3,649Yes (X)
Jenna Smith
Marketing and Communications Director40.00$110,262$0$1,057Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,137,732TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$69,789TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K6IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$2,444,229AllOtherContributionsAmt
Total Contributions$2,444,229TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (3 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtExclusionExclusionAmt
TDP Services624100$107,758$0$0
Conference Registration Fees624100$78,127$0$0
Publications and Community Services624100$42,500$0$0
FieldValueIRS element (for citing)
Total Program Service Revenue$228,385TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$116,285TotalRevenueColumnAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$116,285ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$1,465,149FundraisingGrossIncomeAmt
Fundraising Direct Expenses$323,242FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,141,907TotalRevenueColumnAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$1,141,907ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOther IncomeDesc
Business999999BusinessCd
Total Revenue Column$67,255TotalRevenueColumnAmt
Related Or Exempt Func Income$67,255RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$67,255OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,998,061TotalRevenueColumnAmt
Related Or Exempt Func Income$295,640RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$1,258,192ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$337,673TotalAmt
Program Services$337,673ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,137,732TotalAmt
Program Services$910,186ProgramServicesAmt
Management And General$56,886ManagementAndGeneralAmt
Fundraising$170,660FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$609,070TotalAmt
Program Services$487,256ProgramServicesAmt
Management And General$30,454ManagementAndGeneralAmt
Fundraising$91,360FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$78,278TotalAmt
Program Services$62,622ProgramServicesAmt
Management And General$3,914ManagementAndGeneralAmt
Fundraising$11,742FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$117,460TotalAmt
Program Services$93,968ProgramServicesAmt
Management And General$5,873ManagementAndGeneralAmt
Fundraising$17,619FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$117,816TotalAmt
Program Services$94,252ProgramServicesAmt
Management And General$5,892ManagementAndGeneralAmt
Fundraising$17,672FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$478,941TotalAmt
Program Services$176,597ProgramServicesAmt
Management And General$249,424ManagementAndGeneralAmt
Fundraising$52,920FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$23,147TotalAmt
Program Services$17,780ProgramServicesAmt
Management And General$2,033ManagementAndGeneralAmt
Fundraising$3,334FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$83,585TotalAmt
Program Services$66,868ProgramServicesAmt
Management And General$4,179ManagementAndGeneralAmt
Fundraising$12,538FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$180,759TotalAmt
Program Services$160,493ProgramServicesAmt
Management And General$19,519ManagementAndGeneralAmt
Fundraising$747FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$15,718TotalAmt
Program Services$12,574ProgramServicesAmt
Management And General$786ManagementAndGeneralAmt
Fundraising$2,358FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Advocacy$85,779$85,779$0$0
Scholarships$16,333$16,333$0$0
Supplies and Equipment$16,503$8,240$6,399$1,864
Technology and Software$123,702$98,962$6,185$18,555

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$427,686TotalAmt
Program Services$174,878ProgramServicesAmt
Management And General$30,721ManagementAndGeneralAmt
Fundraising$222,087FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,850,182TotalAmt
Program Services$2,804,461ProgramServicesAmt
Management And General$422,265ManagementAndGeneralAmt
Fundraising$623,456FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$431,830BOYAmt
EOY$412,367EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$2,669,305BOYAmt
EOY$1,787,000EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$35,850EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$89,193BOYAmt
EOY$80,535EOYAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$1,038,076BOYAmt
EOY$2,363,643EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$85,952BOYAmt
EOY$60,042EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$4,314,356BOYAmt
EOY$4,739,437EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$143,756BOYAmt
EOY$124,697EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$325,000BOYAmt
EOY$530,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$86,035BOYAmt
EOY$61,048EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$554,791BOYAmt
EOY$715,745EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,345,731BOYAmt
EOY$3,681,645EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$413,834BOYAmt
EOY$342,047EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,759,565BOYAmt
EOY$4,023,692EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,314,356BOYAmt
EOY$4,739,437EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$147,879ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$116,248NetUnrlzdGainsLossesInvstAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind
Other Support Sum$0OtherSupportSumAmt

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,734,122CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,036,555CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,699,475CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,137,872CurrentTaxYearMinus1YearAmt
Current Tax Year$2,444,229CurrentTaxYearAmt
Total$11,052,253TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,734,122CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,036,555CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,699,475CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,137,872CurrentTaxYearMinus1YearAmt
Current Tax Year$2,444,229CurrentTaxYearAmt
Total$11,052,253TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$3,214,180SubstantialContributorsTotAmt
Public Support Total170$7,838,073PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$12,227CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years-$79,331CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$146,088CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$231,917CurrentTaxYearMinus1YearAmt
Current Tax Year$232,533CurrentTaxYearAmt
Total$543,434TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$0CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$0CurrentTaxYearMinus1YearAmt
Current Tax Year$0CurrentTaxYearAmt
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Total Support$11,595,687TotalSupportAmt
Gross Receipts Rltd Activities$1,437,547GrossReceiptsRltdActivitiesAmt
Public Support CY1700.67590PublicSupportCY170Pct
Public Support PY1700.96850PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind
Public Support Total509$0PublicSupportTotal509Amt
Public Support CY5090PublicSupportCY509Pct
Investment Income CY0InvestmentIncomeCYPct

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Other Assets Org OtherAssetsOrgGrp

FieldValueIRS element (for citing)
DescOperating Lease Right-of Use AssetDesc
Book Value$60,042BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Other Assets$60,042TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescOperating Lease LiabilityDesc
Amt$61,048Amt
FieldValueIRS element (for citing)
Total Liability$61,048TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,114,309TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$116,248NetUnrealizedGainsInvstAmt
Revenue Not Reported$116,248RevenueNotReportedAmt
Revenue Subtotal$3,998,061RevenueSubtotalAmt
Total Revenue Per Form990$3,998,061TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,850,182TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$3,850,182ExpensesSubtotalAmt
Total Expenses Per Form990$3,850,182TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePt X, Line 2FormAndLineReferenceDesc
ExplanationThe Organization is exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code. The Organization is also exempt from California franchise taxes under Section 23701(d) of the Revenue and Taxation Code and, therefore, has made no provision for Federal or California income taxes. Contributors, donors, and grantors may obtain tax benefits. In addition, the Organization has been determined by the Internal Revenue Service not to be a private foundation within the meaning of Section 509(a) of the Code. The Organization adopted the recognition requirements for uncertain income tax positions as required by generally accepted accounting principles, with no cumulative effect adjustment required. Income tax benefits are recognized for income tax positions taken or expected to be taken in a tax return, only when it is determined that the income tax position will more-likely-thannot be sustained upon examination by taxing authorities. The Organization has analyzed tax positions taken for filing with the Internal Revenue Service and all state jurisdictions where it operates. The Organization believes that income tax filing positions will be sustained upon examination and does not anticipate any adjustments that would result in a material adverse effect on the Organizations financial condition, results of operations, or cash flows. Accordingly, the Organization has not recorded any reserves, or related accruals for interest and penalties for uncertain income tax positions. The Organization is subject to routine audits by taxing jurisdictions; however, there are currently no audits for any tax periods in progress.ExplanationTxt

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Awareness EventEvent1Nm
Gross Receipts Event1$1,465,149GrossReceiptsEvent1Amt
Gross Revenue Event1$1,465,149GrossRevenueEvent1Amt
Other Direct Expenses Event1$323,242OtherDirectExpensesEvent1Amt
Gross Receipts Total$1,465,149GrossReceiptsTotalAmt
Gross Revenue Total Events$1,465,149GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$323,242OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$323,242DirectExpenseSummaryEventsAmt
Net Income Summary$1,141,907NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (7 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
PeDRA
205 SE Spokane StSuite 300PortlandOR97202842173231$50,000Research
Brigham and Women's Hospital
75 Francis StBostonMA02115042312909$30,000Research
Trustees of Columbia University in the City of New
535 W 116th StNew YorkNY10027135598093$30,000Research
Penn State University
201 Old MainUniversity ParkPA16802246000376$50,000Research
The Trustees of the University of Pennsylvania
3451 Walnut Street 5th Floor FranklPhiladelphiaPA19104231352685$45,000Research
The University of Iowa
410 E Washington StIowa CityIA52240426004813$24,997Research
Trustees of Columbia University in the City of New
615 W 131st St MC 8741New YorkNY10027135598093$53,750Research
FieldValueIRS element (for citing)
Total501c3 Org3Total501c3OrgCnt
Total Other Org4TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (5 entries)

Base Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Nicole Friedland
$327,697$0$62,000$0$0$0$22,932$0$1,630$0$414,259$0$0$0
Laura Maciag
$204,975$0$20,000$0$0$0$14,342$0$2,323$0$241,640$0$0$0
Robert Baker III
$194,125$0$12,000$0$0$0$13,587$0$29$0$219,741$0$0$0
Lisa Anderson
$144,156$0$10,000$0$0$0$10,087$0$63$0$164,306$0$0$0
George Gondo
$160,017$0$0$0$0$0$2,333$0$1,316$0$163,666$0$0$0

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (17 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Pt VI, Line 11bForm 990 is reviewed by Directors at meeting scheduled for that purpose - return preparer is available to explain form and answer questions.
Pt VI, Line 12cOfficers & directors & staff complete annual disclosure statement.
Pt VI, Line 15aWhen hiring the Executive Director and other key employees, and thereafter on an annual basis, the Board performs a thorough review to determine suitable compensation. This process includes a review of comparability data by the Board of Directors including compensation surveys and Forms 990 of similar organizations.
Pt VI, Line 19Governing documents are available through the California Secretary of State. Financial statements, Form 990, and Conflict of Int erest policy are available on the organization website.
Pt XII, Line 2cThe Organization has a separate audit and finance committee. The Audit committee selects the auditor and has audit oversight. The Finance commitee reviews financial statements.
Form 990, Part IX, Line 11gProfessional Fees 478941. 176597. 249424. 52920.
Form 990, Part IX, Line 24eTelephone and Internet 9094. 7275. 455. 1364.
Form 990, Part IX, Line 24ePostage and Shipping 33839. 4100. 4415. 25324.
Form 990, Part IX, Line 24ePrinting and Publications 44819. 13784. 0. 31035.
Form 990, Part IX, Line 24eEquipment Maintenance and Leasing 5013. 1274. 3739. 0.
Form 990, Part IX, Line 24ePhotography and Video 21046. 6099. 0. 14947.
Form 990, Part IX, Line 24eAudio and Visual 85121. 80721. 0. 4400.
Form 990, Part IX, Line 24eProduction Company 94684. 0. 0. 94684.
Form 990, Part IX, Line 24eTaxes, Licenses and Fees 5997. 4798. 299. 900.
Form 990, Part IX, Line 24eDues and Subscriptions 29710. 8509. 16441. 4760.
Form 990, Part IX, Line 24eBank Charges and Fees 43043. 4063. 2605. 36375.
Form 990, Part IX, Line 24eOther Expenses 55320. 44255. 2767. 8298.