AMYLOIDOSIS FOUNDATION
2024 · Form 990 · revenue $689K · expenses $603K · assets $1.1M
- EIN
- 20-0291856
- Address
- 7151 N MAIN ST STE 2, CLARKSTON, MI 48346-1584
- Website
- WWW.AMYLOIDOSIS.ORG
- NTEE code
- H25
- Subsection
- 501(c)(3)
- Ruling year
- 2005
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE ORGANIZATIONS MISSION IS TO INCREASE EDUCATION AND AWARENESS OF AMYLOIDOSIS, TO ASSIST PATIENTS IN FINDING QUALIFIED MEDICAL CARE AND TO SUPPORT RESEARCH.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Mary E Odonnell | PRESIDENT/CEO | 2012-2024 | $63,050 | $325,526 | 1 |
Unpaid officers and directors · 17 people
| Name | Latest title | Years | Organizations |
|---|---|---|---|
| Dante Burchi | TREASURER | 2020-2024 | 1 |
| Mark Sutherland | CHIEF FINANCIAL OFFICER | 2020-2024 | 1 |
| Erskine White Edd | DIRECTOR | 2024 | 1 |
| Adrienne Molteni | DIRECTOR | 2020-2024 | 1 |
| Dan Lenihan | DIRECTOR | 2020-2024 | 1 |
| Lori Lawter | DIRECTOR | 2020-2024 | 1 |
| Stacy Goodman | DIRECTOR | 2022-2024 | 1 |
| Charlotte Haffner (former) | DIRECTOR | 2020-2023 | 1 |
| Isabelle Lousada (former) | 2012 | 2 | |
| Dr Raymond Comenzo (former) | 2012 | 2 | |
| Giampaola Merlini (former) | trustee | 2012 | 1 |
| Jeana Rossie Miller (former) | 2012 | 1 | |
| Martha Skinner (former) | 2012 | 1 | |
| Richard Cwiek (former) | 2012 | 1 | |
| Robert Kyle (former) | 2012 | 1 | |
| Stephen P Miller (former) | 2012 | 1 | |
| Uria Espinoza Leopold (former) | 2012 | 1 |
People by year
2024 · 8 people listed · 1 paid, $63K · 3 employees · 9 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARY E ODONNELL | PRESIDENT/CEO | 30 | $63,050 | $0 | $0 | $63,050 | 1 |
| DANTE BURCHI | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| MARK SUTHERLAND | CHIEF FINANCIAL OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| ERSKINE WHITE EDD | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ADRIENNE MOLTENI | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAN LENIHAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| LORI LAWTER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| STACY GOODMAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2023 · 8 people listed · 1 paid, $62K · 3 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARY E ODONNELL | PRESIDENT/CEO | 30 | $62,030 | $0 | $0 | $62,030 | 1 |
| DANTE BURCHI | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| MARK SUTHERLAND | CHIEF FINANCIAL OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| CHARLOTTE HAFFNER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ADRIENNE MOLTENI | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAN LENIHAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| LORI LAWTER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| STACY GOODMAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2022 · 8 people listed · 1 paid, $56K · 3 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARY E ODONNELL | PRESIDENT/CEO | 30 | $56,160 | $0 | $0 | $56,160 | 1 |
| DANTE BURCHI | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| MARK SUTHERLAND | CHIEF FINANCIAL OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| CHARLOTTE HAFFNER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ADRIENNE MOLTENI | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAN LENIHAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| LORI LAWTER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| STACY GOODMAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2021 · 7 people listed · 1 paid, $56K · 3 employees · 25 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARY E ODONNELL | PRESIDENT/CEO | 30 | $56,160 | $0 | $0 | $56,160 | 1 |
| DANTE BURCHI | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| MARK SUTHERLAND | CHIEF FINANCIAL OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| CHARLOTTE HAFFNER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ADRIENNE MOLTENI | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAN LENIHAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| LORI LAWTER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2020 · 7 people listed · 1 paid, $56K · 3 employees · 0 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARY E ODONNELL | PRESIDENT/CEO | 30 | $56,376 | $0 | $0 | $56,376 | 1 |
| DANTE BURCHI | TREASURER | 5 | $0 | $0 | $0 | $0 | 1 |
| MARK SUTHERLAND | CHIEF FINANCIAL OFFICER | 5 | $0 | $0 | $0 | $0 | 1 |
| CHARLOTTE HAFFNER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| ADRIENNE MOLTENI | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| DAN LENIHAN | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
| LORI LAWTER | DIRECTOR | 5 | $0 | $0 | $0 | $0 | 1 |
2012 · 10 people listed · 1 paid, $32K · 4 employees · 6 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| MARY E ODONNELL | 30 | $31,750 | $0 | $0 | $31,750 | 1 | |
| GIAMPAOLA MERLINI | trustee | 5 | $0 | $0 | $0 | $0 | 1 |
| ISABELLE LOUSADA | 5 | $0 | $0 | $0 | $0 | 2 | |
| JEANA ROSSIE MILLER | 5 | $0 | $0 | $0 | $0 | 1 | |
| MARTHA SKINNER | 5 | $0 | $0 | $0 | $0 | 1 | |
| RAYMOND COMENZO | 5 | $0 | $0 | $0 | $0 | 2 | |
| RICHARD CWIEK | 5 | $0 | $0 | $0 | $0 | 1 | |
| ROBERT KYLE | 5 | $0 | $0 | $0 | $0 | 1 | |
| STEPHEN P MILLER | 5 | $0 | $0 | $0 | $0 | 1 | |
| URIA ESPINOZA LEOPOLD | 5 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 2 grants to organizations · $112K
Listed grants add up to $112,500; the return's “grants paid” expense line says $166,725. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2023 · 3 grants to organizations · $125K
Listed grants add up to $125,000; the return's “grants paid” expense line says $180,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2022 · 4 grants to organizations · $150K
Listed grants add up to $150,000; the return's “grants paid” expense line says $240,866. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
2021 · 6 grants to organizations · $395K
2020 · 4 grants to organizations · $200K
Listed grants add up to $200,000; the return's “grants paid” expense line says $263,273. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $688,539 | $602,526 | $1,128,603 | $1,121,360 | $583,395 | $0 | $63,050 | 3 | 9 |
| 2023 · Form 990 | ||||||||
| $535,162 | $568,920 | $1,050,511 | $1,045,889 | $463,050 | $0 | $62,031 | 3 | 0 |
| 2022 · Form 990 | ||||||||
| $710,435 | $598,170 | $1,056,187 | $1,034,788 | $606,782 | $0 | $56,160 | 3 | 0 |
| 2021 · Form 990 | ||||||||
| $779,248 | $709,491 | $1,060,679 | $1,052,322 | $657,560 | $0 | $56,160 | 3 | 25 |
| 2020 · Form 990 | ||||||||
| $693,866 | $591,592 | $951,168 | $941,424 | $676,410 | $0 | $56,376 | 3 | 0 |
| 2012 · Form 990 | ||||||||
| $425,726 | $464,791 | $392,641 | $368,882 | $409,102 | $0 | $92,962 | 4 | 6 |
Funders of this organization
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Similar organizations
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Who funds organizations like this
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Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $602,526 spent · pay $186,548 · grants $166,725 · events $3,537
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $133,225 | $133,225 | - | - | 22.1% | |
| Other (as described) | PATIENT SERVICES | $120,668 | $120,668 | - | - | 20.0% |
| Other salaries and wages | $110,357 | $69,766 | $21,739 | $18,852 | 18.3% | |
| Pay: officers, directors, trustees, key employees | $63,050 | $40,983 | $15,763 | $6,304 | 10.5% | |
| Grants outside the US | $33,500 | $33,500 | - | - | 5.6% | |
| Travel | $27,225 | $27,225 | - | - | 4.5% | |
| All other expenses | $26,694 | $13,415 | $5,287 | $7,992 | 4.4% | |
| Fees: other services | $17,472 | - | $10,631 | $6,841 | 2.9% | |
| Other (as described) | PRINTING AND COPYING | $17,270 | $14,854 | $1,267 | $1,149 | 2.9% |
| Payroll taxes | $13,141 | $8,410 | $2,891 | $1,840 | 2.2% | |
| Other (as described) | BANK AND CREDIT CARD FE | $12,193 | $100 | -$1,071 | $13,164 | 2.0% |
| Occupancy | $10,450 | $7,838 | $1,306 | $1,306 | 1.7% | |
| Other (as described) | FOOD AND LODGING | $10,209 | $10,209 | - | - | 1.7% |
| Office expenses | $2,938 | $1,976 | $481 | $481 | 0.5% | |
| Depreciation and depletion | $2,135 | - | $2,135 | - | 0.4% | |
| Insurance | $1,999 | - | $1,999 | - | 0.3% | |
| Fundraising events Event | direct expenses; gross income $20,171 | $3,537 | reported apart | |||
| Total | $602,526 | 100% |
2023 · Form 990 · $568,920 spent · pay $183,772 · grants $180,000 · events $22,501
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $180,000 | $180,000 | - | - | 31.6% | |
| Other salaries and wages | $108,715 | $70,678 | $8,858 | $29,179 | 19.1% | |
| Pay: officers, directors, trustees, key employees | $62,031 | $40,320 | $12,406 | $9,305 | 10.9% | |
| Other (as described) | PATIENT SERVICES | $56,406 | $56,406 | - | - | 9.9% |
| Travel | $37,357 | $37,357 | - | - | 6.6% | |
| Other (as described) | FUNDRAISING | $22,501 | - | - | $22,501 | 4.0% |
| Fees: other services | $20,684 | $5,650 | $9,384 | $5,650 | 3.6% | |
| Other (as described) | BANK AND CREDIT CARD FE | $20,479 | $225 | -$18 | $20,272 | 3.6% |
| Other (as described) | PRINTING AND COPYING | $17,237 | $12,928 | $2,585 | $1,724 | 3.0% |
| All other expenses | $13,905 | $24,549 | $6,567 | -$17,211 | 2.4% | |
| Payroll taxes | $13,026 | $9,118 | $1,954 | $1,954 | 2.3% | |
| Occupancy | $11,400 | $7,410 | $2,280 | $1,710 | 2.0% | |
| Depreciation and depletion | $1,927 | - | $1,927 | - | 0.3% | |
| Office expenses | $1,890 | $946 | $472 | $472 | 0.3% | |
| Insurance | $1,362 | - | $1,362 | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $47,251 | $22,501 | reported apart | |||
| Total | $568,920 | 100% |
2022 · Form 990 · $598,170 spent · pay $171,815 · grants $240,866 · events $32,551
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $240,866 | $240,866 | - | - | 40.3% | |
| Other salaries and wages | $103,488 | $82,701 | $10,393 | $10,394 | 17.3% | |
| Other (as described) | PATIENT SERVICES | $60,047 | $60,047 | $0 | $0 | 10.0% |
| Pay: officers, directors, trustees, key employees | $56,160 | $44,879 | $5,641 | $5,640 | 9.4% | |
| Other (as described) | FUNDRAISING | $32,551 | - | - | $32,551 | 5.4% |
| Fees: other services | $21,836 | $5,180 | $9,914 | $6,742 | 3.7% | |
| Other (as described) | BANK AND CREDIT CARD FE | $20,714 | $20 | $707 | $19,987 | 3.5% |
| Other (as described) | PRINTING AND COPYING | $16,989 | $11,893 | $2,548 | $2,548 | 2.8% |
| Occupancy | $16,265 | $11,385 | $2,440 | $2,440 | 2.7% | |
| Payroll taxes | $12,167 | $9,723 | $1,222 | $1,222 | 2.0% | |
| Travel | $11,164 | $11,164 | - | - | 1.9% | |
| Office expenses | $3,710 | $2,596 | $557 | $557 | 0.6% | |
| Insurance | $2,903 | - | $2,903 | - | 0.5% | |
| Depreciation and depletion | $775 | - | $775 | - | 0.1% | |
| All other expenses | -$1,465 | $24,200 | $3,842 | -$29,507 | -0.2% | |
| Fundraising events Event | direct expenses; gross income $127,372 | $32,551 | reported apart | |||
| Total | $598,170 | 100% |
2021 · Form 990 · $709,491 spent · pay $171,202 · grants $395,000 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $395,000 | $395,000 | - | - | 55.7% | |
| Other salaries and wages | $102,876 | $74,298 | $14,333 | $14,245 | 14.5% | |
| Pay: officers, directors, trustees, key employees | $56,160 | $16,848 | $28,080 | $11,232 | 7.9% | |
| Other (as described) | PATIENT SERVICES | $41,848 | $41,848 | - | - | 5.9% |
| Other (as described) | BANK AND CREDIT CARD FE | $18,745 | $11,546 | $1,865 | $5,334 | 2.6% |
| Other (as described) | PRINTING AND COPYING | $16,301 | $14,020 | $1,303 | $978 | 2.3% |
| Fees: other services | $16,210 | - | $8,975 | $7,235 | 2.3% | |
| Occupancy | $15,807 | $13,594 | $1,265 | $948 | 2.2% | |
| All other expenses | $15,186 | $7,654 | $1,356 | $6,176 | 2.1% | |
| Other (as described) | POSTAGE | $13,781 | $12,952 | $474 | $355 | 1.9% |
| Payroll taxes | $12,166 | $6,973 | $3,244 | $1,949 | 1.7% | |
| Office expenses | $2,830 | $2,574 | $146 | $110 | 0.4% | |
| Insurance | $2,626 | $2,259 | $210 | $157 | 0.4% | |
| Depreciation and depletion | $775 | - | $775 | - | 0.1% | |
| Travel | -$820 | - | -$820 | - | -0.1% | |
| Fundraising events Event | direct expenses; gross income $63,728 | $0 | reported apart | |||
| Total | $709,491 | 100% |
2020 · Form 990 · $591,592 spent · pay $173,215 · grants $263,273 · events $3,247
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US organizations and governments | $263,273 | $263,273 | - | - | 44.5% | |
| Other salaries and wages | $116,839 | $114,010 | $1,885 | $944 | 19.7% | |
| Pay: officers, directors, trustees, key employees | $56,376 | $16,913 | $28,188 | $11,275 | 9.5% | |
| Other (as described) | PATIENT SERVICES | $46,291 | $46,291 | $0 | $0 | 7.8% |
| Other (as described) | BANK AND CREDIT CARD FE | $21,970 | $5,581 | $6,008 | $10,381 | 3.7% |
| Fees: other services | $16,803 | - | $8,790 | $8,013 | 2.8% | |
| Other (as described) | PRINTING AND COPYING | $15,086 | $15,039 | $47 | $0 | 2.6% |
| Occupancy | $14,205 | $6,676 | $4,688 | $2,841 | 2.4% | |
| All other expenses | $10,835 | $7,736 | $1,366 | $1,733 | 1.8% | |
| Other (as described) | POSTAGE | $10,652 | $7,190 | $1,541 | $1,921 | 1.8% |
| Depreciation and depletion | $9,369 | - | $9,369 | - | 1.6% | |
| Travel | $4,177 | $4,177 | - | - | 0.7% | |
| Insurance | $2,535 | - | $2,535 | - | 0.4% | |
| Office expenses | $2,191 | $791 | $720 | $680 | 0.4% | |
| Advertising and promotion | $990 | $990 | - | - | 0.2% | |
| Fundraising events Event | direct expenses; gross income $11,987 | $3,247 | reported apart | |||
| Total | $591,592 | 100% |
2012 · Form 990 · $464,791 spent · pay $101,074 · grants $248,885 · events $15,342
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Grants to US individuals | $176,505 | $176,505 | - | - | 38.0% | |
| Pay: officers, directors, trustees, key employees | $92,962 | $39,446 | $26,418 | $27,098 | 20.0% | |
| Grants outside the US | $72,380 | $72,380 | - | - | 15.6% | |
| Fees: other services | $24,025 | - | - | $24,025 | 5.2% | |
| Conferences, conventions and meetings | $15,342 | $15,223 | - | $119 | 3.3% | |
| Travel | $14,353 | $14,234 | $119 | - | 3.1% | |
| Occupancy | $14,223 | $5,974 | $3,982 | $4,267 | 3.1% | |
| Other (as described) | Program Services | $12,123 | $12,123 | - | - | 2.6% |
| Other (as described) | Printing | $11,297 | $11,297 | - | - | 2.4% |
| Payroll taxes | $7,112 | $2,987 | $556 | $3,569 | 1.5% | |
| Other (as described) | Postage and shipping | $4,847 | $4,847 | - | - | 1.0% |
| Information technology | $4,397 | $1,262 | $1,948 | $1,187 | 0.9% | |
| Office expenses | $4,132 | - | $4,132 | - | 0.9% | |
| Other (as described) | Merchandise | $4,113 | $4,113 | - | - | 0.9% |
| All other expenses | $4,087 | $4,087 | - | - | 0.9% | |
| Insurance | $1,066 | - | $1,066 | - | 0.2% | |
| Other salaries and wages | $1,000 | $1,000 | - | - | 0.2% | |
| Depreciation and depletion | $827 | - | $827 | - | 0.2% | |
| Total | $464,791 | 100% |