INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE
Cite this
Plain text INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE. Strategy Studio, nonprofit organization profile, tax years 2021–2024. https://strategystudio.org/org/300065906. Retrieved 2026-10-18.
APA Strategy Studio. (n.d.). INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE [Nonprofit organization profile; tax years 2021–2024]. Retrieved October 18, 2026, from https://strategystudio.org/org/300065906
MLA “INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE.” Strategy Studio, tax years 2021–2024, https://strategystudio.org/org/300065906. Accessed 18 Oct. 2026.
Retrieved 2026-10-18; covers tax years 2021–2024. Data: Strategy Studio, CC BY 4.0.
2024 · Form 990 · revenue $17K · expenses $27K · assets $132K
- Also known as
- EYE DISEASE
- EIN
- 30-0065906
- Address
- 33350 SHAKER BLVD, PEPPER PIKE, OH 44124-4939
- Website
- ISGEDR.COM
- NTEE code
- H41
- Subsection
- 501(c)(3)
- Ruling year
- 2012
- Cross-check
- ProPublica Nonprofit Explorer
Mission
BRINGS TOGETHER FOR RESEARCH PURPOSES AND COLLABORATION PEOPLE INTERESTED AND EDUCATED IN GENETIC RESEARCH FOR EYE DISEASES.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
No one listed on these returns was paid.
Unpaid officers and directors · 1 person
| Name | Latest title | Years | Organizations |
|---|---|---|---|
| Elias | EXECUTIVE PR | 2021-2024 | 1 |
People by year
2024 · 1 person listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ELIAS | EXECUTIVE PR | - | $0 | $0 | $0 | $0 | 1 |
2023 · 1 person listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ELIAS | EXECUTIVE PR | - | $0 | $0 | $0 | $0 | 1 |
2022 · 1 person listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ELIAS | EXECUTIVE PR | - | $0 | $0 | $0 | $0 | 1 |
2021 · 1 person listed · none paid · 0 employees
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| ELIAS | EXECUTIVE PR | 1 | $0 | $0 | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $16,868 | $26,509 | $132,389 | $132,389 | $16,860 | $0 | - | 0 | - |
| 2023 · Form 990 | ||||||||
| $99,130 | $98,618 | $142,030 | $142,030 | $99,120 | $0 | - | 0 | - |
| 2022 · Form 990 | ||||||||
| $23,200 | $29,321 | $141,518 | $141,518 | $23,189 | $0 | - | 0 | - |
| 2021 · Form 990 | ||||||||
| $237,804 | $180,222 | $147,639 | $147,639 | $237,802 | $0 | - | 0 | - |
Funders of this organization
2 grantors reported grants to this organization, $266,028 in all, tax years 2021 to 2023. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| CLEVELAND CLINIC FOUNDATION | Public charity | Exact | 2021, 2023 | 2 | $158,234 | 2023 | $50,440 | show |
| THE CLEVELAND CLINIC FOUNDATION | Public charity | Exact | 2021 | 1 | $107,794 | 2021 | $107,794 | show |
Similar organizations
Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)
| Organization | State | NTEE | Latest revenue | Latest expenses | Top-paid title | Top pay | Why similar |
|---|---|---|---|---|---|---|---|
| INTERNATIONAL THYROID EYE DISEASE SOCIETY INC | OH | H41 | $21,209 | $4,230 | MEMBER, BOARD OF DIRECTORS | $0 | Same NTEE code H41, revenue within 2x, same state, similar name |
| INTERNATIONAL FOUNDATION FOR OPTIC NERVE DISEASE INC | NY | H41 | $20,351 | $50,311 | PRESIDENT & | $0 | Same NTEE code H41, revenue within 2x, similar name |
| WESTFIELD LIONS 100 FOUNDATION INC | MA | H41 | $10,691 | $2,337 | Treasurer | $0 | Same NTEE code H41, revenue within 2x, similar mission |
| EYE RESEARCH FOUNDATION OF SAN DIEGO | CA | H41 | $10,000 | $6,783 | President & CEO | $0 | Same NTEE code H41, revenue within 2x |
| HELEN KELLER EYE RESEARCH FOUNDATION INC | AL | H41 | $22,488 | $163,188 | President | $0 | Same NTEE code H41, revenue within 2x |
| CHICAGO CENTER FOR VISION RESEARCH LTD | IL | H41 | $32,461 | $4,143 | DIRECTOR | $0 | Same NTEE code H41, revenue within 2x |
| INTERNATIONAL ACADEMY OF ORTHOKERATOLOGY & MYOPIA CONTROL | CA | H41 | $11,013 | $12,085 | DIRECTOR | $0 | Same NTEE code H41, revenue within 2x |
| WRIGHT FOUNDATION FOR PEDIATRIC OPHTHALMOLOGY AND STRABISMUS | CA | H41 | $19,723 | $75,761 | PRESIDENT | $0 | Same NTEE code H41, revenue within 2x |
| BLAYDES EYE FOUNDATION | WV | H41 | $20,835 | $19,808 | PRESIDENT | $0 | Same NTEE code H41, revenue within 2x |
| VITREORETINAL AND MACULA RESEARCH FOUNDATION INC | FL | H41 | $25,507 | $62,594 | DIRECTOR | $0 | Same NTEE code H41, revenue within 2x |
| ANCHORAGE YORK RITE FOUNDATION INC | AK | H41 | $20,475 | $79,949 | President | $0 | Same NTEE code H41, revenue within 2x |
| KINO-EYE CENTERE FOR VISUAL INNOVATION | TX | H41 | $62,011 | $85,390 | PRESIDENT | $26,700 | Same NTEE code H41, revenue within 5x |
| CALIFORNIA RETINA RESEARCH FOUNDATION | CA | H41 | $68,040 | $135,860 | PRESIDENT | $0 | Same NTEE code H41, revenue within 5x |
| AMERICAN OPHTHLMOLOGICAL SOCIETY CH ARITABLE EDUCATIONA & SCIENTIFIC | CA | H41 | $80,176 | $83,941 | SECRETARY / TREASURER | $50,000 | Same NTEE code H41, revenue within 5x |
| NEUROLOGICAL HEALTH INTERNATIONAL | CA | H41 | $5,823 | $7,024 | President | $0 | Same NTEE code H41, revenue within 5x |
| RETINA RESEARCH FOUNDATION OF AMERICA | AZ | H41 | $4,979 | $1,528 | President, board member | $0 | Same NTEE code H41, revenue within 5x |
| JACKSON ORTHOPAEDIC FOUNDATION | CA | H41 | $37,564 | $50,273 | Chairman | $0 | Same NTEE code H41, revenue within 5x |
| THE BETTER VISION FOUNDATION | IL | H41 | $4,275 | $16,288 | DIRECTOR | $0 | Same NTEE code H41, revenue within 5x |
| MELLES RESEARCH FOUNDATION USA INC | CA | H41 | $38,186 | $2,441 | DIRECTOR | $0 | Same NTEE code H41, revenue within 5x |
| THE GLAUCOMA EDUCATION & RESEARCH FUND INC | NY | H41 | $45,034 | $54,503 | PRESIDENT & TREASURER | $0 | Same NTEE code H41, revenue within 5x |
| ADVANCED RETINAL THERAPEUTICS INSTITUTE | FL | H41 | $54,937 | $46,874 | PRESIDENT | $0 | Same NTEE code H41, revenue within 5x |
| MADISON CENTRAL LIONS FOUNDATION INC | WI | H41 | $4,940 | $2,947 | President | $0 | Same NTEE code H41, revenue within 5x |
| GLAUCOMA SCIENCE AND EDUCATION FOUNDATION INC | NY | H41 | $8,156 | $41,202 | PRESIDENT/TREASURER | $0 | Same NTEE code H41, revenue within 5x |
| STRABISMUS RESEARCH FOUNDATION | CA | H41 | $67,596 | $343,998 | VP RESEARCH/OPS | $34,671 | Same NTEE code H41, revenue within 5x |
| GLAUCOMA INSTITUTE OF BEVERLY HILLS RESEARCH FOUNDATION INC | CA | H41 | $76,571 | $213,662 | President | $0 | Same NTEE code H41, revenue within 5x |
Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $26,509 spent · pay $0 · grants $0 · events $5,179
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Office expenses | $11,469 | $11,469 | - | - | 43.3% | |
| Conferences, conventions and meetings | $5,179 | $5,179 | - | - | 19.5% | |
| Fees: other services | $4,171 | $4,171 | - | - | 15.7% | |
| Travel | $3,940 | $3,940 | - | - | 14.9% | |
| Fees: accounting | $1,600 | - | $1,600 | - | 6.0% | |
| Fees: legal | $150 | - | $150 | - | 0.6% | |
| Total | $26,509 | 100% |
2023 · Form 990 · $98,618 spent · pay $0 · grants $0 · events $72,977
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $72,977 | $72,977 | - | - | 74.0% | |
| Office expenses | $11,000 | $11,000 | - | - | 11.2% | |
| Fees: other services | $7,958 | $7,958 | - | - | 8.1% | |
| Information technology | $5,183 | $5,183 | - | - | 5.3% | |
| Fees: accounting | $1,500 | - | $1,500 | - | 1.5% | |
| Total | $98,618 | 100% |
2022 · Form 990 · $29,321 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Office expenses | $15,070 | $15,070 | - | - | 51.4% | |
| Fees: other services | $7,928 | $7,928 | - | - | 27.0% | |
| Information technology | $4,923 | $4,923 | - | - | 16.8% | |
| Fees: accounting | $1,400 | - | $1,400 | - | 4.8% | |
| Total | $29,321 | 100% |
2021 · Form 990 · $180,222 spent · pay $0 · grants $0 · events $0
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Fees: other services | $179,472 | $179,472 | - | - | 99.6% | |
| Fees: accounting | $750 | - | $750 | - | 0.4% | |
| Total | $180,222 | 100% |