STRATEGY STUDIO / NONPROFIT PEOPLE SEARCH

INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE

Cite this

Plain text INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE. Strategy Studio, nonprofit organization profile, tax years 2021–2024. https://strategystudio.org/org/300065906. Retrieved 2026-10-18.

APA Strategy Studio. (n.d.). INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE [Nonprofit organization profile; tax years 2021–2024]. Retrieved October 18, 2026, from https://strategystudio.org/org/300065906

MLA “INTERNATIONAL SOCIETY FOR GENETIC EYE DISEASE.” Strategy Studio, tax years 2021–2024, https://strategystudio.org/org/300065906. Accessed 18 Oct. 2026.

Retrieved 2026-10-18; covers tax years 2021–2024. Data: Strategy Studio, CC BY 4.0.

2024 · Form 990 · revenue $17K · expenses $27K · assets $132K

Also known as
EYE DISEASE
EIN
30-0065906
Address
33350 SHAKER BLVD, PEPPER PIKE, OH 44124-4939
Website
ISGEDR.COM
NTEE code
H41
Subsection
501(c)(3)
Ruling year
2012
Cross-check
ProPublica Nonprofit Explorer

Mission

BRINGS TOGETHER FOR RESEARCH PURPOSES AND COLLABORATION PEOPLE INTERESTED AND EDUCATED IN GENETIC RESEARCH FOR EYE DISEASES.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

No one listed on these returns was paid.

Unpaid officers and directors · 1 person
NameLatest titleYearsOrganizations
Elias EXECUTIVE PR2021-2024 1

People by year

2024 · 1 person listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ELIAS EXECUTIVE PR- $0$0$0 $01
2023 · 1 person listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ELIAS EXECUTIVE PR- $0$0$0 $01
2022 · 1 person listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ELIAS EXECUTIVE PR- $0$0$0 $01
2021 · 1 person listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ELIAS EXECUTIVE PR1 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$16,868$26,509 $132,389$132,389 $16,860$0 -0-
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$99,130$98,618 $142,030$142,030 $99,120$0 -0-
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$23,200$29,321 $141,518$141,518 $23,189$0 -0-
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$237,804$180,222 $147,639$147,639 $237,802$0 -0-

Funders of this organization

2 grantors reported grants to this organization, $266,028 in all, tax years 2021 to 2023. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
CLEVELAND CLINIC FOUNDATION Public charity Exact 2021, 2023 2$158,234 2023$50,440
show
THE CLEVELAND CLINIC FOUNDATION Public charity Exact 2021 1$107,794 2021$107,794
show

Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
INTERNATIONAL THYROID EYE DISEASE SOCIETY INCOHH41 $21,209$4,230 MEMBER, BOARD OF DIRECTORS$0 Same NTEE code H41, revenue within 2x, same state, similar name
INTERNATIONAL FOUNDATION FOR OPTIC NERVE DISEASE INCNYH41 $20,351$50,311 PRESIDENT &$0 Same NTEE code H41, revenue within 2x, similar name
WESTFIELD LIONS 100 FOUNDATION INCMAH41 $10,691$2,337 Treasurer$0 Same NTEE code H41, revenue within 2x, similar mission
EYE RESEARCH FOUNDATION OF SAN DIEGOCAH41 $10,000$6,783 President & CEO$0 Same NTEE code H41, revenue within 2x
HELEN KELLER EYE RESEARCH FOUNDATION INCALH41 $22,488$163,188 President$0 Same NTEE code H41, revenue within 2x
CHICAGO CENTER FOR VISION RESEARCH LTDILH41 $32,461$4,143 DIRECTOR$0 Same NTEE code H41, revenue within 2x
INTERNATIONAL ACADEMY OF ORTHOKERATOLOGY & MYOPIA CONTROLCAH41 $11,013$12,085 DIRECTOR$0 Same NTEE code H41, revenue within 2x
WRIGHT FOUNDATION FOR PEDIATRIC OPHTHALMOLOGY AND STRABISMUSCAH41 $19,723$75,761 PRESIDENT$0 Same NTEE code H41, revenue within 2x
BLAYDES EYE FOUNDATIONWVH41 $20,835$19,808 PRESIDENT$0 Same NTEE code H41, revenue within 2x
VITREORETINAL AND MACULA RESEARCH FOUNDATION INCFLH41 $25,507$62,594 DIRECTOR$0 Same NTEE code H41, revenue within 2x
ANCHORAGE YORK RITE FOUNDATION INCAKH41 $20,475$79,949 President$0 Same NTEE code H41, revenue within 2x
KINO-EYE CENTERE FOR VISUAL INNOVATIONTXH41 $62,011$85,390 PRESIDENT$26,700 Same NTEE code H41, revenue within 5x
CALIFORNIA RETINA RESEARCH FOUNDATIONCAH41 $68,040$135,860 PRESIDENT$0 Same NTEE code H41, revenue within 5x
AMERICAN OPHTHLMOLOGICAL SOCIETY CH ARITABLE EDUCATIONA & SCIENTIFICCAH41 $80,176$83,941 SECRETARY / TREASURER$50,000 Same NTEE code H41, revenue within 5x
NEUROLOGICAL HEALTH INTERNATIONALCAH41 $5,823$7,024 President$0 Same NTEE code H41, revenue within 5x
RETINA RESEARCH FOUNDATION OF AMERICAAZH41 $4,979$1,528 President, board member$0 Same NTEE code H41, revenue within 5x
JACKSON ORTHOPAEDIC FOUNDATIONCAH41 $37,564$50,273 Chairman$0 Same NTEE code H41, revenue within 5x
THE BETTER VISION FOUNDATIONILH41 $4,275$16,288 DIRECTOR$0 Same NTEE code H41, revenue within 5x
MELLES RESEARCH FOUNDATION USA INCCAH41 $38,186$2,441 DIRECTOR$0 Same NTEE code H41, revenue within 5x
THE GLAUCOMA EDUCATION & RESEARCH FUND INCNYH41 $45,034$54,503 PRESIDENT & TREASURER$0 Same NTEE code H41, revenue within 5x
ADVANCED RETINAL THERAPEUTICS INSTITUTEFLH41 $54,937$46,874 PRESIDENT$0 Same NTEE code H41, revenue within 5x
MADISON CENTRAL LIONS FOUNDATION INCWIH41 $4,940$2,947 President$0 Same NTEE code H41, revenue within 5x
GLAUCOMA SCIENCE AND EDUCATION FOUNDATION INCNYH41 $8,156$41,202 PRESIDENT/TREASURER$0 Same NTEE code H41, revenue within 5x
STRABISMUS RESEARCH FOUNDATIONCAH41 $67,596$343,998 VP RESEARCH/OPS$34,671 Same NTEE code H41, revenue within 5x
GLAUCOMA INSTITUTE OF BEVERLY HILLS RESEARCH FOUNDATION INCCAH41 $76,571$213,662 President$0 Same NTEE code H41, revenue within 5x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
GORDON & LLURA GUND FOUNDATION Private foundation$44,596,33924 12010–2023 FOUNDATION FIGHTING BLINDNESS INC
HILLMAN FAMILY FOUNDATIONS Private foundation$25,050,2509 12020–2024 EYE & EAR FOUNDATION INC
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$20,983,632123 222016–2024 FOUNDATION FIGHTING BLINDNESS INC; GLAUCOMA RESEARCH FOUNDATION; OPHTHALMOLOGY RESEARCH FOUNDATION INC; ARTHRITIS NATIONAL RESEARCH FOUNDATION and 18 more
GEORGE GUND FOUNDATION Private foundation$19,540,00020 12017–2024 FOUNDATION FIGHTING BLINDNESS INC
GORDON GUND AND LLURA LIGGETT GUND 1993 CHARITABLE FOUNDATION Private foundation$14,609,82510 12010–2025 FOUNDATION FIGHTING BLINDNESS INC
DONOR ADVISED CHARITABLE GIVING DAF sponsor$14,264,231104 192014–2024 THAT MAN MAY SEE INC; FOUNDATION FIGHTING BLINDNESS INC; GLAUCOMA INSTITUTE OF BEVERLY HILLS RESEARCH FOUNDATION INC; EYE & EAR FOUNDATION INC and 15 more
MANNING FAMILY FOUNDATION Private foundation$10,020,0003 12020–2023 FOUNDATION FIGHTING BLINDNESS INC
NATIONAL CHRISTIAN CHARITABLE FOUNDATION DAF sponsor$3,633,36934 42012–2024 RESEARCH TO PREVENT BLINDNESS INC; FOUNDATION FIGHTING BLINDNESS INC; CHRISTIAN OPHTHALMOLOGY SOCIETY INC; GLAUCOMA RESEARCH FOUNDATION
NATIONAL PHILANTHROPIC TR DAF sponsor$3,623,77539 112014–2024 FOUNDATION FIGHTING BLINDNESS INC; RETINA FOUNDATION OF THE SOUTHWEST; CINCINNATI EYE INSTITUTE FOUNDATION; GLAUCOMA RESEARCH FOUNDATION and 7 more
DIANA DAVIS SPENCER FOUNDATION Private foundation$3,440,0009 12019–2024 FOUNDATION FIGHTING BLINDNESS INC
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor$3,311,11760 102013–2024 FOUNDATION FIGHTING BLINDNESS INC; GLAUCOMA RESEARCH FOUNDATION; ARTHRITIS NATIONAL RESEARCH FOUNDATION; THAT MAN MAY SEE INC and 6 more
JEWISH COMMUNAL FUND DAF sponsor$2,807,17328 52009–2024 FOUNDATION FIGHTING BLINDNESS INC; RESEARCH TO PREVENT BLINDNESS INC; GLAUCOMA RESEARCH FOUNDATION; MACULA FOUNDATION INC and 1 more
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$2,021,75536 132019–2024 FOUNDATION FIGHTING BLINDNESS INC; KINO-EYE CENTERE FOR VISUAL INNOVATION; ARTHRITIS NATIONAL RESEARCH FOUNDATION; GLAUCOMA RESEARCH FOUNDATION and 9 more
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$2,014,52224 42010–2024 GLAUCOMA RESEARCH FOUNDATION; THAT MAN MAY SEE INC; FOUNDATION FIGHTING BLINDNESS INC; RETINA FOUNDATION OF THE SOUTHWEST
GOATEE FOUNDATION T-A TR Private foundation$2,000,0003 12019–2021 FOUNDATION FIGHTING BLINDNESS INC

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $26,509 spent · pay $0 · grants $0 · events $5,179
LineAs describedTotalProgramManagementFundraisingShare
Office expenses $11,469$11,469-- 43.3%
Conferences, conventions and meetings $5,179$5,179-- 19.5%
Fees: other services $4,171$4,171-- 15.7%
Travel $3,940$3,940-- 14.9%
Fees: accounting $1,600-$1,600- 6.0%
Fees: legal $150-$150- 0.6%
Total$26,509100%

View the filing

2023 · Form 990 · $98,618 spent · pay $0 · grants $0 · events $72,977
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $72,977$72,977-- 74.0%
Office expenses $11,000$11,000-- 11.2%
Fees: other services $7,958$7,958-- 8.1%
Information technology $5,183$5,183-- 5.3%
Fees: accounting $1,500-$1,500- 1.5%
Total$98,618100%

View the filing

2022 · Form 990 · $29,321 spent · pay $0 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Office expenses $15,070$15,070-- 51.4%
Fees: other services $7,928$7,928-- 27.0%
Information technology $4,923$4,923-- 16.8%
Fees: accounting $1,400-$1,400- 4.8%
Total$29,321100%

View the filing

2021 · Form 990 · $180,222 spent · pay $0 · grants $0 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Fees: other services $179,472$179,472-- 99.6%
Fees: accounting $750-$750- 0.4%
Total$180,222100%

View the filing