ROTHMUND-THOMSON SYNDROME FOUNDATION
Cite this
Plain text ROTHMUND-THOMSON SYNDROME FOUNDATION. Strategy Studio, nonprofit organization profile, tax years 2013–2024. https://strategystudio.org/org/300585106. Retrieved 2026-10-20.
APA Strategy Studio. (n.d.). ROTHMUND-THOMSON SYNDROME FOUNDATION [Nonprofit organization profile; tax years 2013–2024]. Retrieved October 20, 2026, from https://strategystudio.org/org/300585106
MLA “ROTHMUND-THOMSON SYNDROME FOUNDATION.” Strategy Studio, tax years 2013–2024, https://strategystudio.org/org/300585106. Accessed 20 Oct. 2026.
Retrieved 2026-10-20; covers tax years 2013–2024. Data: Strategy Studio, CC BY 4.0.
2024 · Form 990EZ · revenue $56K · expenses $36K · assets $75K
- EIN
- 30-0585106
- Address
- 4307 WOODWARD CT, CHANTILLY, VA 20151-3647
- Website
- www.rtsplace.org
- NTEE code
- G12
- Subsection
- 501(c)(3)
- Ruling year
- 2010
- Cross-check
- ProPublica Nonprofit Explorer
Mission
Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
None of the 19 people listed on these returns reported compensation from the organization. They are listed below.
Officers and directors, no compensation reported
19 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.
| Name | Latest title | Years | Hrs/wk (latest) | Compensation | Organizations |
|---|---|---|---|---|---|
| Staci Hanson | Chair | 2020-2024 | 10 | $0 reported | 1 |
| Kara Hanson | Treasurer | 2021-2024 | 5 | $0 reported | 1 |
| Bekkah Blankers | Vice Chair | 2022-2024 | 10 | $0 reported | 1 |
| Tamara Madsen | Director | 2022-2024 | 5 | $0 reported | 1 |
| Camille Carlson | Secretary | 2024 | 5 | $0 reported | 1 |
| Lisette Riggle | Director | 2024 | 5 | $0 reported | 1 |
| Laurie Sperou (former) | Vice-Chair | 2013-2023 | 10 | $0 reported | 1 |
| Shelley Sanders (former) | Treasurer | 2013-2023 | 10 | $0 reported | 1 |
| Sylvie Plante (former) | Secretary | 2022-2023 | 10 | $0 reported | 1 |
| Sean McMurray (former) | Director | 2022-2023 | 10 | $0 reported | 1 |
| Sheila Townsend (former) | Directer | 2017-2023 | 5 | $0 reported | 1 |
| Austin Kimmel (former) | Director | 2022-2023 | 5 | $0 reported | 1 |
| Ta-Tara Rideau (former) | Secretary | 2013-2021 | 5 | $0 reported | 1 |
| Emil Zakutny (former) | Chair | 2013-2021 | 15 | $0 reported | 1 |
| John Kimmel (former) | Chair | 2013-2020 | 10 | $0 reported | 1 |
| Komilla Chadha (former) | Director | 2016 | 2 | $0 reported | 1 |
| Peter Chadha (former) | Director | 2013-2015 | 5 | $0 reported | 1 |
| Gillian O'Reilly (former) | Director | 2013-2014 | 5 | $0 reported | 1 |
| Sandra Sperou (former) | Director | 2013 | 10 | $0 reported | 1 |
People by year
2024 · 6 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Staci Hanson | Chair | 10 | $0 | - | $0 | $0 | 1 |
| Kara Hanson | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Bekkah Blankers | Vice Chair | 10 | $0 | - | $0 | $0 | 1 |
| Tamara Madsen | Director | 5 | $0 | - | $0 | $0 | 1 |
| Camille Carlson | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Lisette Riggle | Director | 5 | $0 | - | $0 | $0 | 1 |
2023 · 10 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Laurie Sperou | Vice-Chair | 10 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 10 | $0 | - | $0 | $0 | 1 |
| Sylvie Plante | Secretary | 10 | $0 | - | $0 | $0 | 1 |
| Sean McMurray | Director | 10 | $0 | - | $0 | $0 | 1 |
| Sheila Townsend | Directer | 5 | $0 | - | $0 | $0 | 1 |
| Staci Hanson | Chair | 15 | $0 | - | $0 | $0 | 1 |
| Kara Hanson | Director | 5 | $0 | - | $0 | $0 | 1 |
| Bekkah Blankers | Director | 10 | $0 | - | $0 | $0 | 1 |
| Tamara Madsen | Director | 5 | $0 | - | $0 | $0 | 1 |
| Austin Kimmel | Director | 5 | $0 | - | $0 | $0 | 1 |
2022 · 10 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Laurie Sperou | Vice-Chair | 10 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Sylvie Plante | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Sean McMurray | Director | 5 | $0 | - | $0 | $0 | 1 |
| Sheila Townsend | Directer | 5 | $0 | - | $0 | $0 | 1 |
| Staci Hanson | Chair | 10 | $0 | - | $0 | $0 | 1 |
| Kara Hanson | Director | 5 | $0 | - | $0 | $0 | 1 |
| Bekkah Blankers | Director | 5 | $0 | - | $0 | $0 | 1 |
| Tamara Madsen | Director | 5 | $0 | - | $0 | $0 | 1 |
| Austin Kimmel | Director | 5 | $0 | - | $0 | $0 | 1 |
2021 · 7 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| Laurie Sperou | Vice-Chair | 10 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Chair | 15 | $0 | - | $0 | $0 | 1 |
| Sheila Townsend | Directer | 5 | $0 | - | $0 | $0 | 1 |
| Staci Hanson | Director | 5 | $0 | - | $0 | $0 | 1 |
| Kara Hanson | Director | 5 | $0 | - | $0 | $0 | 1 |
2020 · 7 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 10 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 10 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 5 | $0 | - | $0 | $0 | 1 |
| Sheila Townsend | Directer | 5 | $0 | - | $0 | $0 | 1 |
| Staci Hanson | Director | 5 | $0 | - | $0 | $0 | 1 |
2019 · 6 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 15 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 15 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 10 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 5 | $0 | - | $0 | $0 | 1 |
| Sheila Townsend | Directer | 5 | $0 | - | $0 | $0 | 1 |
2018 · 6 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 15 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 15 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 10 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 5 | $0 | - | $0 | $0 | 1 |
| Sheila Townsend | Directer | 5 | $0 | - | $0 | $0 | 1 |
2017 · 6 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 10 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 10 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 5 | $0 | - | $0 | $0 | 1 |
| Sheila Townsend | Directer | 5 | $0 | - | $0 | $0 | 1 |
2016 · 6 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 10 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 10 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 5 | $0 | - | $0 | $0 | 1 |
| Komilla Chadha | Director | 2 | $0 | - | $0 | $0 | 1 |
2015 · 6 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 10 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 10 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 5 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 5 | $0 | - | $0 | $0 | 1 |
| Peter Chadha | Director | 5 | $0 | - | $0 | $0 | 1 |
2014 · 7 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 20 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 20 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 10 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 5 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 5 | $0 | - | $0 | $0 | 1 |
| Peter Chadha | Director | 5 | $0 | - | $0 | $0 | 1 |
| Gillian O'Reilly | Director | 5 | $0 | - | $0 | $0 | 1 |
2013 · 8 people listed · none paid
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| John Kimmel | Chair | 20 | $0 | - | $0 | $0 | 1 |
| Laurie Sperou | Vice-Chair | 20 | $0 | - | $0 | $0 | 1 |
| Shelley Sanders | Treasurer | 10 | $0 | - | $0 | $0 | 1 |
| Ta-Tara Rideau | Secretary | 10 | $0 | - | $0 | $0 | 1 |
| Emil Zakutny | Director | 10 | $0 | - | $0 | $0 | 1 |
| Peter Chadha | Director | 10 | $0 | - | $0 | $0 | 1 |
| Gillian O'Reilly | Director | 10 | $0 | - | $0 | $0 | 1 |
| Sandra Sperou | Director | 10 | $0 | - | $0 | $0 | 1 |
Highest-paid independent contractors
No independent contractors reported.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990EZ | ||||||||
| $55,899 | $35,560 | $74,975 | $74,975 | $49,079 | $0 | - | - | - |
| 2023 · Form 990EZ | ||||||||
| $47,972 | $53,063 | $54,636 | $54,636 | $32,835 | $0 | - | - | - |
| 2022 · Form 990EZ | ||||||||
| $60,413 | $64,542 | $59,727 | $59,727 | $34,872 | $0 | - | - | - |
| 2021 · Form 990EZ | ||||||||
| $77,171 | $93,501 | $63,856 | $63,856 | $57,168 | $0 | - | - | - |
| 2020 · Form 990EZ | ||||||||
| $85,876 | $52,387 | $80,186 | $80,186 | $61,557 | $0 | - | - | - |
| 2019 · Form 990EZ | ||||||||
| $65,900 | $51,191 | $46,697 | $46,697 | $60,399 | $0 | - | - | - |
| 2018 · Form 990EZ | ||||||||
| $42,456 | $59,431 | $31,988 | $31,988 | $31,548 | $0 | - | - | - |
| 2017 · Form 990EZ | ||||||||
| $30,021 | $32,359 | $48,963 | $48,963 | $15,834 | $0 | - | - | - |
| 2016 · Form 990EZ | ||||||||
| $34,675 | $36,215 | $51,226 | $51,226 | $12,542 | $0 | - | - | - |
| 2015 · Form 990EZ | ||||||||
| $27,205 | $50,225 | $52,766 | $52,766 | $11,367 | $0 | - | - | - |
| 2014 · Form 990EZ | ||||||||
| $24,795 | $6,491 | $75,786 | $75,786 | $8,357 | $0 | - | - | - |
| 2013 · Form 990EZ | ||||||||
| $26,076 | $18,140 | $57,482 | $57,482 | $10,745 | $0 | - | - | - |
Funders of this organization
6 grantors reported grants to this organization, $184,075 in all, tax years 2018 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV
| Grantor | Type | Match | Years given | Grants | Total | Latest year | Latest year's amount | Grants |
|---|---|---|---|---|---|---|---|---|
| FORGOOD INC | DAF sponsor | Exact | 2018-2023 | 6 | $154,762 | 2023 | $18,996 | show |
| PAYPAL CHARITABLE GIVING FUND | DAF sponsor | Exact | 2023-2024 | 2 | $25,272 | 2024 | $8,521 | show |
| AMAZONSMILE FOUNDATION | Private foundation | Fuzzy filed as “ROTHMUND-THOMSON SYNDROME FOUNDATION” | 2020-2023 | 4 | $2,531 | 2023 | $541 | show |
| ALLSTATE FOUNDATION | Private foundation | Fuzzy filed as “ROTHMUND-THOMSON SYNDROME FOUNDATION” | 2021 | 1 | $1,000 | 2021 | $1,000 | show |
| AMERICAN TOWER CHARITABLE FOUNDATION INC | Private foundation | Fuzzy filed as “ROTHMUND-THOMSON SYNDROME FOUNDATION” | 2021 | 1 | $500 | 2021 | $500 | show |
| YELP FOUNDATION | Private foundation | Fuzzy filed as “ROTHMUND-THOMSON SYNDROME FOUNDATION” | 2023 | 1 | $10 | 2023 | $10 | show |
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Who funds organizations like this
Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).
The full list · all similar organizations
Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990EZ · $35,560 spent · pay $0 · grants $32,977 · events $5,970
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $32,977 | 92.7% | |
| Other expenses (detail on Schedule O) | $2,292 | 6.4% | |
| Printing, publications, postage | $291 | 0.8% | |
| Fundraising events Event | direct expenses; gross income - | $5,970 | reported apart |
| Total | $35,560 | 100% |
2023 · Form 990EZ · $53,063 spent · pay $0 · grants $51,021 · events $6,852
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $51,021 | 96.2% | |
| Other expenses (detail on Schedule O) | $1,939 | 3.7% | |
| Printing, publications, postage | $103 | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $6,852 | reported apart |
| Total | $53,063 | 100% |
2022 · Form 990EZ · $64,542 spent · pay $0 · grants $62,314 · events $5,101
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $62,314 | 96.5% | |
| Other expenses (detail on Schedule O) | $2,118 | 3.3% | |
| Printing, publications, postage | $110 | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $5,101 | reported apart |
| Total | $64,542 | 100% |
2021 · Form 990EZ · $93,501 spent · pay $0 · grants $90,000 · events $6,854
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $90,000 | 96.3% | |
| Other expenses (detail on Schedule O) | $3,399 | 3.6% | |
| Printing, publications, postage | $102 | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $6,854 | reported apart |
| Total | $93,501 | 100% |
2020 · Form 990EZ · $52,387 spent · pay $0 · grants $50,000 · events $6,570
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $50,000 | 95.4% | |
| Other expenses (detail on Schedule O) | $2,294 | 4.4% | |
| Printing, publications, postage | $93 | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $6,570 | reported apart |
| Total | $52,387 | 100% |
2019 · Form 990EZ · $51,191 spent · pay $0 · grants $50,000 · events $5,749
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $50,000 | 97.7% | |
| Other expenses (detail on Schedule O) | $1,155 | 2.3% | |
| Printing, publications, postage | $36 | 0.1% | |
| Fundraising events Event | direct expenses; gross income - | $5,749 | reported apart |
| Total | $51,191 | 100% |
2018 · Form 990EZ · $59,431 spent · pay $0 · grants $54,681 · events $3,454
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $54,681 | 92.0% | |
| Other expenses (detail on Schedule O) | $4,593 | 7.7% | |
| Printing, publications, postage | $157 | 0.3% | |
| Fundraising events Event | direct expenses; gross income - | $3,454 | reported apart |
| Total | $59,431 | 100% |
2017 · Form 990EZ · $32,359 spent · pay $0 · grants $30,198 · events $3,821
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $30,198 | 93.3% | |
| Other expenses (detail on Schedule O) | $1,947 | 6.0% | |
| Printing, publications, postage | $214 | 0.7% | |
| Fundraising events Event | direct expenses; gross income - | $3,821 | reported apart |
| Total | $32,359 | 100% |
2016 · Form 990EZ · $36,215 spent · pay $0 · grants $35,000 · events $5,396
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $35,000 | 96.6% | |
| Other expenses (detail on Schedule O) | $1,135 | 3.1% | |
| Printing, publications, postage | $80 | 0.2% | |
| Fundraising events Event | direct expenses; gross income - | $5,396 | reported apart |
| Total | $36,215 | 100% |
2015 · Form 990EZ · $50,225 spent · pay $0 · grants $48,772 · events $3,100
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $48,772 | 97.1% | |
| Printing, publications, postage | $991 | 2.0% | |
| Other expenses (detail on Schedule O) | $462 | 0.9% | |
| Fundraising events Event | direct expenses; gross income - | $3,100 | reported apart |
| Total | $50,225 | 100% |
2014 · Form 990EZ · $6,491 spent · pay $0 · grants $4,497 · events $6,580
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $4,497 | 69.3% | |
| Other expenses (detail on Schedule O) | $1,706 | 26.3% | |
| Printing, publications, postage | $288 | 4.4% | |
| Fundraising events Event | direct expenses; gross income - | $6,580 | reported apart |
| Total | $6,491 | 100% |
2013 · Form 990EZ · $18,140 spent · pay $0 · grants $14,660 · events $4,488
| Line | As described | Total | Share |
|---|---|---|---|
| Grants and similar amounts paid | $14,660 | 80.8% | |
| Other expenses (detail on Schedule O) | $2,435 | 13.4% | |
| Fees to independent contractors | $602 | 3.3% | |
| Printing, publications, postage | $443 | 2.4% | |
| Fundraising events Event | direct expenses; gross income - | $4,488 | reported apart |
| Total | $18,140 | 100% |