HIDRADENITIS SUPPURATIVA FOUNDATION
2024 · Form 990 · revenue $1.8M · expenses $1.3M · assets $2.1M
- EIN
- 92-0598936
- Address
- 964 HIGH HOUSE RD 3064, CARY, NC 27513-3574
- Website
- www.hs-foundation.org
- NTEE code
- P20
- Subsection
- 501(c)(3)
- Ruling year
- 2022
- Cross-check
- ProPublica Nonprofit Explorer
Mission
THE MISSION OF THE HS FOUNDATION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY HS THROUGH ADVOCACY, EDUCATION AND RESEARCH.
Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).
People paid by the organization
1 person paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.
| Name | Latest title | Years | Latest year pay | Total pay from here | Organizations |
|---|---|---|---|---|---|
| Brent Hazelett | CHIEF EXECUTIVE OFFICER | 2023-2024 | $243,108 | $460,878 | 2 |
Unpaid officers and directors · 19 people
| Name | Latest title | Years | Organizations |
|---|---|---|---|
| Iltefat Hamzavi Md | IMMEDIATE PAST PRESIDENT | 2023-2024 | 2 |
| Joslyn R Sciacca Kirby Md | PAST PRESIDENT | 2023-2024 | 2 |
| Hadar Lev-Tov Md | PRESIDENT | 2023-2024 | 2 |
| Martin Okun Md | PAST SECRETARY | 2023-2024 | 2 |
| Athena Gierbolini | DIRECTOR | 2023-2024 | 2 |
| Jennifer Hsiao Md | DIRECTOR | 2023-2024 | 2 |
| Christopher Sayed Md | SECRETARY | 2023-2024 | 2 |
| Haley Naik Md | VICE PRESIDENT | 2023-2024 | 2 |
| Michelle Lowes Mbbs Phd | DIRECTOR | 2023-2024 | 2 |
| Amit Garg Md | DIRECTOR | 2023-2024 | 2 |
| Barry Resnik Md | DIRECTOR | 2023-2024 | 2 |
| Stephanie Goldberg Md | DIRECTOR | 2023-2024 | 2 |
| Vivian Shi Md | TREASURER | 2023-2024 | 2 |
| Steven Daveluy Md | DIRECTOR | 2023-2024 | 2 |
| Afsaneh Alavi Md | DIRECTOR | 2023-2024 | 2 |
| Donna Atherton | DIRECTOR | 2023-2024 | 2 |
| Ginette Okoye Md | DIRECTOR | 2023-2024 | 2 |
| Lauren Orenstein Md | DIRECTOR | 2024 | 1 |
| Colleen Cotton Md | DIRECTOR | 2024 | 1 |
People by year
2024 · 20 people listed · 1 paid, $243K · 1 employee · 40 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRENT HAZELETT | CHIEF EXECUTIVE OFFICER | 45 | $233,758 | $0 | $9,350 | $243,108 | 2 |
| ILTEFAT HAMZAVI MD | IMMEDIATE PAST PRESIDENT | 0 | $0 | $0 | $0 | $0 | 2 |
| JOSLYN R SCIACCA KIRBY MD | PAST PRESIDENT | 0 | $0 | $0 | $0 | $0 | 2 |
| HADAR LEV-TOV MD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 2 |
| MARTIN OKUN MD | PAST SECRETARY | 0 | $0 | $0 | $0 | $0 | 2 |
| ATHENA GIERBOLINI | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| JENNIFER HSIAO MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| CHRISTOPHER SAYED MD | SECRETARY | 1 | $0 | $0 | $0 | $0 | 2 |
| HALEY NAIK MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 2 |
| MICHELLE LOWES MBBS PHD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| AMIT GARG MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| BARRY RESNIK MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| STEPHANIE GOLDBERG MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| VIVIAN SHI MD | TREASURER | 1 | $0 | $0 | $0 | $0 | 2 |
| STEVEN DAVELUY MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| AFSANEH ALAVI MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| DONNA ATHERTON | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| GINETTE OKOYE MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 2 |
| LAUREN ORENSTEIN MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
| COLLEEN COTTON MD | DIRECTOR | 0 | $0 | $0 | $0 | $0 | 1 |
2023 · 18 people listed · 1 paid, $218K · 1 employee · 40 volunteers
| Name | Title | Hrs/wk | From org | From related | Other | Total | Orgs |
|---|---|---|---|---|---|---|---|
| BRENT HAZELETT | CHEIF EXECTIVE OFFICER | 45 | $211,000 | $0 | $6,770 | $217,770 | 2 |
| ILTEFAT HAMZAVI MD | IMMEDIATE PAST PRESIDENT | 1 | $0 | $0 | $0 | $0 | 2 |
| JOSLYN R SCIACCA KIRBY MD | PRESIDENT | 3 | $0 | $0 | $0 | $0 | 2 |
| HADAR LEV-TOV MD | VICE PRESIDENT | 1 | $0 | $0 | $0 | $0 | 2 |
| MARTIN OKUN MD | SECRETARY | 1 | $0 | $0 | $0 | $0 | 2 |
| ATHENA GIERBOLINI | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| JENNIFER HSIAO MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| CHRISTOPHER SAYED MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| HALEY NAIK MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| MICHELLE LOWES MBBS PHD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| AMIT GARG MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| BARRY RESNIK MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| STEPHANIE GOLDBERG MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| VIVIAN SHI MD | TREASURER | 1 | $0 | $0 | $0 | $0 | 2 |
| STEVEN DAVELUY MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| AFSANEH ALAVI MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| DONNA ATHERTON | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
| GINETTE OKOYE MD | DIRECTOR | 1 | $0 | $0 | $0 | $0 | 2 |
Highest-paid independent contractors
No independent contractors reported.
Who the money went to
Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.
2024 · 8 grants to organizations · $345K
2023 · 8 grants to organizations · $289K
Listed grants add up to $289,384; the return's “grants paid” expense line says $300,501. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.
Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.
Who gave
Contributor names are not public for this form type.
Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.
Finances
Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.
| Revenue | Expenses | Assets | Net assets | Contributions | Program revenue | Officer pay | Employees | Volunteers |
|---|---|---|---|---|---|---|---|---|
| 2024 · Form 990 | ||||||||
| $1,803,205 | $1,349,348 | $2,109,589 | $1,461,189 | $941,347 | $818,997 | $242,923 | 1 | 40 |
| 2023 · Form 990 | ||||||||
| $1,078,743 | $1,245,076 | $1,268,561 | $997,810 | $637,160 | $414,320 | $217,770 | 1 | 40 |
Funders of this organization
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Similar organizations
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Who funds organizations like this
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Where the money went
Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.
2024 · Form 990 · $1,349,348 spent · pay $256,766 · grants $347,000 · events $591,682
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $591,682 | $591,682 | - | - | 43.8% | |
| Grants to US organizations and governments | $345,000 | $345,000 | - | - | 25.6% | |
| Pay: officers, directors, trustees, key employees | $242,923 | $81,379 | $134,417 | $27,127 | 18.0% | |
| Fees: other services | $79,184 | - | $79,184 | - | 5.9% | |
| Travel | $39,140 | $31,312 | $7,828 | - | 2.9% | |
| Payroll taxes | $13,843 | $4,153 | $8,306 | $1,384 | 1.0% | |
| Fees: accounting | $13,274 | - | $13,274 | - | 1.0% | |
| Office expenses | $9,160 | - | $9,160 | - | 0.7% | |
| Other (as described) | Dues and Subscriptions | $5,516 | $5,516 | - | - | 0.4% |
| Grants to US individuals | $2,000 | $2,000 | - | - | 0.1% | |
| Advertising and promotion | $1,749 | $1,749 | - | - | 0.1% | |
| Insurance | $1,582 | - | $1,582 | - | 0.1% | |
| Fees: investment management | $1,559 | - | $1,559 | - | 0.1% | |
| Other (as described) | Miscellaneous | $1,136 | - | $1,136 | - | 0.1% |
| Other (as described) | Taxes and Licenses | $885 | $885 | - | - | 0.1% |
| Fees: legal | $715 | - | $715 | - | 0.1% | |
| Total | $1,349,348 | 100% |
2023 · Form 990 · $1,245,076 spent · pay $267,602 · grants $300,501 · events $537,910
| Line | As described | Total | Program | Management | Fundraising | Share |
|---|---|---|---|---|---|---|
| Conferences, conventions and meetings | $537,910 | $537,910 | - | - | 43.2% | |
| Grants to US organizations and governments | $294,384 | $294,384 | - | - | 23.6% | |
| Pay: officers, directors, trustees, key employees | $217,770 | $76,531 | $118,229 | $23,010 | 17.5% | |
| Fees: other services | $65,300 | - | $65,300 | - | 5.2% | |
| Other salaries and wages | $49,832 | - | $49,832 | - | 4.0% | |
| Travel | $36,906 | $29,525 | $7,381 | - | 3.0% | |
| Fees: accounting | $14,385 | - | $14,385 | - | 1.2% | |
| Other (as described) | Dues and Subscriptions | $6,130 | $5,641 | $489 | - | 0.5% |
| Grants to US individuals | $6,117 | $6,117 | - | - | 0.5% | |
| Office expenses | $6,022 | - | $6,022 | - | 0.5% | |
| Advertising and promotion | $2,972 | $2,972 | - | - | 0.2% | |
| Other (as described) | Taxes and Licenses | $1,714 | $1,714 | - | - | 0.1% |
| Insurance | $1,527 | - | $1,527 | - | 0.1% | |
| Other (as described) | Miscellaneous | $1,452 | - | $1,452 | - | 0.1% |
| Fees: investment management | $1,430 | - | $1,430 | - | 0.1% | |
| Fees: legal | $1,225 | - | $1,225 | - | 0.1% | |
| Total | $1,245,076 | 100% |